[TMIC] Jude was looking good today!
I visited Jude this afternoon (Tuesday) and had a surprise - she wasn't in her room. It turned out to be a pleasant surprise as soon as her nurse said she was at their salon getting her hair cut. She said I could wait for Jude since she was due back to her room for her antibiotic regimine, but I was eager to see her be up and about and went on the search down the halway. I found Jude in a recreation room visiting with her friend who has a chair identical to hers. We stayed there for just a few minutes, then went back to her room. Jude's aid came in and put her in bed using a lift - something I haven't witnessed with anyone (including myself). I'm stuck sitting here trying to say how much I hate TM after witnessing what it has done to some of you. Nothing has changed in Jude's prognosis - I think this is her second week on the antibiotics fighting MRSA. I did witness answers to our prayers regarding the care she is receiving at the nursing home. The aid that cared for Jude today was super. She told Jude that she went to Administration and asked if she could be Jude's nurse, it was time to put things behind them. They hugged, teared up and I watched this lady give the kind, carrying, and respectful treatment that we all want to receive. She was likely with us about twenty minutes while she transferred Jude. After the aid left I asked Jude what the reunion was about - was she one of the nurses that Jude had trouble with? She was! Jude said she had been a good aid in the past and she wasn't just putting on a show for me. She said this lady turned ugly toward her and made her night miserable (the night we heard about a few weeks ago.) Jude had no fear of having her as her aid today and complimented her on how comfortable she made the transfer. These people must all realize how fragile Jude's life is and know she wasn't making up her additional weakness from the MRSA. By-the-way she will hopefully have her laptop hooked up tonight. So send her a post. It was a pleasant visit, although, sobering to know that antibiotic is truly her lifeline at this time. (I taught a Sunday School class once titled Jesus is my LSD - Life Saving Device.) The kids loved it! Patti Patti
Re: [TMIC] med question - meloxicam and baclofen
When I first came home from hospital I was on 80 mg of Baclofen and lots of Zanaflex (can't remember exactly) and with the Gabapentin at about 3600 mg I was a real zombie. It took a few years to get down to where I am now. I take 40 mg Baclofen per day (10mg every 5 hours) and then one 4mg tab of Zanaflex at bedtime. Have to be careful with the Zanaflex - liver enzyme problems. Heather in Calgary TM since Sept 2003 - Original Message - From: "Gerry Surette" <[EMAIL PROTECTED]> To: <[EMAIL PROTECTED]> Cc: Sent: Tuesday, April 08, 2008 1:35 PM Subject: RE: [TMIC] med question - meloxicam and baclofen It is the opposite with me I have been on baclofin for approximately 5 years. I too felt "stupid" at the begining but taken in conjunction with zanaflex; I can't walk or function without them. It took approximately five changes in strengh before my neuro was pleased with the disage. The only side effects I now experience is dry mouth; The long term is that you must consult your neuro before stopping taken it; Once on it it is very dangerous to stop taken it; From: <[EMAIL PROTECTED]> To: randy rankin <[EMAIL PROTECTED]>,"Butcher, Bernard G (NY80)" <[EMAIL PROTECTED]>,TM Group Subject: RE: [TMIC] med question - meloxicam and baclofen Date: Tue, 8 Apr 2008 9:50:09 -0700 Yes. I can't take more than 10mg and was totally stupid at 20mg. However, I also find that pain makes me stupid since I can't concentrate on anything else. What a vicious cycle we're in! Patti "Butcher wrote: > Hi Patti - Do you find that Baclofen makes it difficult to think? I > took > it for a while, and it made me kinda stupid I couldn't do my crossword > > > BERNARD BUTCHER > > -Original Message- > From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] > Sent: Friday, April 04, 2008 5:43 PM > To: randy rankin; TM Group > Subject: Re: [TMIC] med question - meloxicam and baclofen > > Randy > I had similar confusion with what I heard from various medical people. > Dec 2003 my neuro rx'd baclofen for spasticity and the next day I had > physical and occupational therapy. Both therapists told me I didn't > have > spasticity and wanted permission to talk with my neuro. So there I was > in my TM stupor questioning who knew best. I started on the baclofen > and have never discontinued it. My Neuro knew best. > I am too flexible (rubbery) if I take over 10mg so he moved me to every > six hours and that works for me. > I couldn't have discribed it at well as Merieke's post, however, it's > exactly how both the spasms and spasticity feel to me. > Patti > randy rankin <[EMAIL PROTECTED]> wrote: > > Ok - what's the scoop on these drugs. Have any of you all taken them? > > > > Did they help? > > > > Where there any significant side effects? > > > > I was sent to a bone doc. to have a look. > > > > He wants me to try baclofen for spasms, (i didn't know that I was > > having them - everyone else says that I'm not have spasms - I'm so > > confussed on the term spasms. - first neuro talked about my legs > > being > > > spastic because they wouldn't move - he pick them up and the right > > leg > > > would stick in mid area lol - he'd have to push it back down. When I > > mentioned "spasm" later, everyone would look at me oddly and say that > > I wasn't having spasms. Now this guy is giving me meds for spasms and > > says that my right leg shows signs of spasticity) > > > > He said my vert was great - mild degeneration in mid T and at L-5 > S-1 - which I already knew about. The 'arthritis' is genetic/ "getting > older" he said - but it is unusual for my age. He said my 2001 car > accident didn't have anything to do with it - but my chiro told me in > 01 > that it would come in time because it almost always shows up in a few > years after a major collision. Anyway - what's the scoop on all these > meds. before I decide to go ahead and take them I just wanted find out > if it is worth the time. > > > > > > - > > You rock. That's why Blockbuster's offering you one month of > Blockbuster Total Access, No Cost. -- No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.9/1365 - Release Date: 4/8/2008 7:30 AM
RE: [TMIC] med question - meloxicam and baclofen
I know; but with with my loving wife beside me who can get a word in anyway: hahah From: "Butcher, Bernard G (NY80)" <[EMAIL PROTECTED]> To: "Gerry Surette" <[EMAIL PROTECTED]>,<[EMAIL PROTECTED]> CC: Subject: RE: [TMIC] med question - meloxicam and baclofen Date: Tue, 8 Apr 2008 15:59:58 -0400 I take Tizanidine (zaniflex) every night - I think I would have big trouble sleeping if I didn't - I get "jimmy legs". Taking it during the day as prescribed by my neuro is a problem because it makes me sleepy. In the morning I sometimes have dry mouth so bad, the inside of my mouth sticks to my teeth - tough talking like that! BERNARD BUTCHER -Original Message- From: Gerry Surette [mailto:[EMAIL PROTECTED] Sent: Tuesday, April 08, 2008 3:36 PM To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: RE: [TMIC] med question - meloxicam and baclofen It is the opposite with me I have been on baclofin for approximately 5 years. I too felt "stupid" at the begining but taken in conjunction with zanaflex; I can't walk or function without them. It took approximately five changes in strengh before my neuro was pleased with the disage. The only side effects I now experience is dry mouth; The long term is that you must consult your neuro before stopping taken it; Once on it it is very dangerous to stop taken it; >From: <[EMAIL PROTECTED]> >To: randy rankin <[EMAIL PROTECTED]>,"Butcher, Bernard G (NY80)" ><[EMAIL PROTECTED]>,TM Group >Subject: RE: [TMIC] med question - meloxicam and baclofen >Date: Tue, 8 Apr 2008 9:50:09 -0700 > >Yes. I can't take more than 10mg and was totally stupid at 20mg. >However, I also find that pain makes me stupid since I can't >concentrate on anything else. >What a vicious cycle we're in! > >Patti > "Butcher wrote: > > Hi Patti - Do you find that Baclofen makes it difficult to think? I > > took it for a while, and it made me kinda stupid I couldn't do my > > crossword > > > > > > BERNARD BUTCHER > > > > -Original Message- > > From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] > > Sent: Friday, April 04, 2008 5:43 PM > > To: randy rankin; TM Group > > Subject: Re: [TMIC] med question - meloxicam and baclofen > > > > Randy > > I had similar confusion with what I heard from various medical people. > > Dec 2003 my neuro rx'd baclofen for spasticity and the next day I > > had physical and occupational therapy. Both therapists told me I > > didn't have spasticity and wanted permission to talk with my neuro. > > So there I was in my TM stupor questioning who knew best. I started > > on the baclofen and have never discontinued it. My Neuro knew best. > > I am too flexible (rubbery) if I take over 10mg so he moved me to > > every six hours and that works for me. > > I couldn't have discribed it at well as Merieke's post, however, > > it's exactly how both the spasms and spasticity feel to me. > > Patti > > randy rankin <[EMAIL PROTECTED]> wrote: > > > Ok - what's the scoop on these drugs. Have any of you all taken them? > > > > > > Did they help? > > > > > > Where there any significant side effects? > > > > > > I was sent to a bone doc. to have a look. > > > > > > He wants me to try baclofen for spasms, (i didn't know that I > > > was having them - everyone else says that I'm not have spasms - > > > I'm so confussed on the term spasms. - first neuro talked about my > > > legs being > > > > > spastic because they wouldn't move - he pick them up and the right > > > leg > > > > > would stick in mid area lol - he'd have to push it back down. When > > > I mentioned "spasm" later, everyone would look at me oddly and say > > > that I wasn't having spasms. Now this guy is giving me meds for > > > spasms and says that my right leg shows signs of spasticity) > > > > > > He said my vert was great - mild degeneration in mid T and at > > > L-5 > > S-1 - which I already knew about. The 'arthritis' is genetic/ > > "getting older" he said - but it is unusual for my age. He said my > > 2001 car accident didn't have anything to do with it - but my chiro > > told me in 01 that it would come in time because it almost always > > shows up in a few years after a major collision. Anyway - what's the > > scoop on all these meds. before I decide to go ahead and take them I > > just wanted find out if it is worth the time. > > > > > > > > > - > > > You rock. That's why Blockbuster's offering you one month of > > Blockbuster Total Access, No Cost.
RE: [TMIC] med question - meloxicam and baclofen
I take Tizanidine (zaniflex) every night - I think I would have big trouble sleeping if I didn't - I get "jimmy legs". Taking it during the day as prescribed by my neuro is a problem because it makes me sleepy. In the morning I sometimes have dry mouth so bad, the inside of my mouth sticks to my teeth - tough talking like that! BERNARD BUTCHER -Original Message- From: Gerry Surette [mailto:[EMAIL PROTECTED] Sent: Tuesday, April 08, 2008 3:36 PM To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: RE: [TMIC] med question - meloxicam and baclofen It is the opposite with me I have been on baclofin for approximately 5 years. I too felt "stupid" at the begining but taken in conjunction with zanaflex; I can't walk or function without them. It took approximately five changes in strengh before my neuro was pleased with the disage. The only side effects I now experience is dry mouth; The long term is that you must consult your neuro before stopping taken it; Once on it it is very dangerous to stop taken it; >From: <[EMAIL PROTECTED]> >To: randy rankin <[EMAIL PROTECTED]>,"Butcher, Bernard G (NY80)" ><[EMAIL PROTECTED]>,TM Group >Subject: RE: [TMIC] med question - meloxicam and baclofen >Date: Tue, 8 Apr 2008 9:50:09 -0700 > >Yes. I can't take more than 10mg and was totally stupid at 20mg. >However, I also find that pain makes me stupid since I can't >concentrate on anything else. >What a vicious cycle we're in! > >Patti > "Butcher wrote: > > Hi Patti - Do you find that Baclofen makes it difficult to think? I > > took it for a while, and it made me kinda stupid I couldn't do my > > crossword > > > > > > BERNARD BUTCHER > > > > -Original Message- > > From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] > > Sent: Friday, April 04, 2008 5:43 PM > > To: randy rankin; TM Group > > Subject: Re: [TMIC] med question - meloxicam and baclofen > > > > Randy > > I had similar confusion with what I heard from various medical people. > > Dec 2003 my neuro rx'd baclofen for spasticity and the next day I > > had physical and occupational therapy. Both therapists told me I > > didn't have spasticity and wanted permission to talk with my neuro. > > So there I was in my TM stupor questioning who knew best. I started > > on the baclofen and have never discontinued it. My Neuro knew best. > > I am too flexible (rubbery) if I take over 10mg so he moved me to > > every six hours and that works for me. > > I couldn't have discribed it at well as Merieke's post, however, > > it's exactly how both the spasms and spasticity feel to me. > > Patti > > randy rankin <[EMAIL PROTECTED]> wrote: > > > Ok - what's the scoop on these drugs. Have any of you all taken them? > > > > > > Did they help? > > > > > > Where there any significant side effects? > > > > > > I was sent to a bone doc. to have a look. > > > > > > He wants me to try baclofen for spasms, (i didn't know that I > > > was having them - everyone else says that I'm not have spasms - > > > I'm so confussed on the term spasms. - first neuro talked about my > > > legs being > > > > > spastic because they wouldn't move - he pick them up and the right > > > leg > > > > > would stick in mid area lol - he'd have to push it back down. When > > > I mentioned "spasm" later, everyone would look at me oddly and say > > > that I wasn't having spasms. Now this guy is giving me meds for > > > spasms and says that my right leg shows signs of spasticity) > > > > > > He said my vert was great - mild degeneration in mid T and at > > > L-5 > > S-1 - which I already knew about. The 'arthritis' is genetic/ > > "getting older" he said - but it is unusual for my age. He said my > > 2001 car accident didn't have anything to do with it - but my chiro > > told me in 01 that it would come in time because it almost always > > shows up in a few years after a major collision. Anyway - what's the > > scoop on all these meds. before I decide to go ahead and take them I > > just wanted find out if it is worth the time. > > > > > > > > > - > > > You rock. That's why Blockbuster's offering you one month of > > Blockbuster Total Access, No Cost.
RE: [TMIC] med question - meloxicam and baclofen
It is the opposite with me I have been on baclofin for approximately 5 years. I too felt "stupid" at the begining but taken in conjunction with zanaflex; I can't walk or function without them. It took approximately five changes in strengh before my neuro was pleased with the disage. The only side effects I now experience is dry mouth; The long term is that you must consult your neuro before stopping taken it; Once on it it is very dangerous to stop taken it; From: <[EMAIL PROTECTED]> To: randy rankin <[EMAIL PROTECTED]>,"Butcher, Bernard G (NY80)" <[EMAIL PROTECTED]>,TM Group Subject: RE: [TMIC] med question - meloxicam and baclofen Date: Tue, 8 Apr 2008 9:50:09 -0700 Yes. I can't take more than 10mg and was totally stupid at 20mg. However, I also find that pain makes me stupid since I can't concentrate on anything else. What a vicious cycle we're in! Patti "Butcher wrote: > Hi Patti - Do you find that Baclofen makes it difficult to think? I took > it for a while, and it made me kinda stupid I couldn't do my crossword > > > BERNARD BUTCHER > > -Original Message- > From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] > Sent: Friday, April 04, 2008 5:43 PM > To: randy rankin; TM Group > Subject: Re: [TMIC] med question - meloxicam and baclofen > > Randy > I had similar confusion with what I heard from various medical people. > Dec 2003 my neuro rx'd baclofen for spasticity and the next day I had > physical and occupational therapy. Both therapists told me I didn't have > spasticity and wanted permission to talk with my neuro. So there I was > in my TM stupor questioning who knew best. I started on the baclofen > and have never discontinued it. My Neuro knew best. > I am too flexible (rubbery) if I take over 10mg so he moved me to every > six hours and that works for me. > I couldn't have discribed it at well as Merieke's post, however, it's > exactly how both the spasms and spasticity feel to me. > Patti > randy rankin <[EMAIL PROTECTED]> wrote: > > Ok - what's the scoop on these drugs. Have any of you all taken them? > > > > Did they help? > > > > Where there any significant side effects? > > > > I was sent to a bone doc. to have a look. > > > > He wants me to try baclofen for spasms, (i didn't know that I was > > having them - everyone else says that I'm not have spasms - I'm so > > confussed on the term spasms. - first neuro talked about my legs being > > > spastic because they wouldn't move - he pick them up and the right leg > > > would stick in mid area lol - he'd have to push it back down. When I > > mentioned "spasm" later, everyone would look at me oddly and say that > > I wasn't having spasms. Now this guy is giving me meds for spasms and > > says that my right leg shows signs of spasticity) > > > > He said my vert was great - mild degeneration in mid T and at L-5 > S-1 - which I already knew about. The 'arthritis' is genetic/ "getting > older" he said - but it is unusual for my age. He said my 2001 car > accident didn't have anything to do with it - but my chiro told me in 01 > that it would come in time because it almost always shows up in a few > years after a major collision. Anyway - what's the scoop on all these > meds. before I decide to go ahead and take them I just wanted find out > if it is worth the time. > > > > > > - > > You rock. That's why Blockbuster's offering you one month of > Blockbuster Total Access, No Cost.
RE: [TMIC] med question - meloxicam and baclofen
Yes. I can't take more than 10mg and was totally stupid at 20mg. However, I also find that pain makes me stupid since I can't concentrate on anything else. What a vicious cycle we're in! Patti "Butcher wrote: > Hi Patti - Do you find that Baclofen makes it difficult to think? I took > it for a while, and it made me kinda stupid I couldn't do my crossword > > > BERNARD BUTCHER > > -Original Message- > From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] > Sent: Friday, April 04, 2008 5:43 PM > To: randy rankin; TM Group > Subject: Re: [TMIC] med question - meloxicam and baclofen > > Randy > I had similar confusion with what I heard from various medical people. > Dec 2003 my neuro rx'd baclofen for spasticity and the next day I had > physical and occupational therapy. Both therapists told me I didn't have > spasticity and wanted permission to talk with my neuro. So there I was > in my TM stupor questioning who knew best. I started on the baclofen > and have never discontinued it. My Neuro knew best. > I am too flexible (rubbery) if I take over 10mg so he moved me to every > six hours and that works for me. > I couldn't have discribed it at well as Merieke's post, however, it's > exactly how both the spasms and spasticity feel to me. > Patti > randy rankin <[EMAIL PROTECTED]> wrote: > > Ok - what's the scoop on these drugs. Have any of you all taken them? > > > > Did they help? > > > > Where there any significant side effects? > > > > I was sent to a bone doc. to have a look. > > > > He wants me to try baclofen for spasms, (i didn't know that I was > > having them - everyone else says that I'm not have spasms - I'm so > > confussed on the term spasms. - first neuro talked about my legs being > > > spastic because they wouldn't move - he pick them up and the right leg > > > would stick in mid area lol - he'd have to push it back down. When I > > mentioned "spasm" later, everyone would look at me oddly and say that > > I wasn't having spasms. Now this guy is giving me meds for spasms and > > says that my right leg shows signs of spasticity) > > > > He said my vert was great - mild degeneration in mid T and at L-5 > S-1 - which I already knew about. The 'arthritis' is genetic/ "getting > older" he said - but it is unusual for my age. He said my 2001 car > accident didn't have anything to do with it - but my chiro told me in 01 > that it would come in time because it almost always shows up in a few > years after a major collision. Anyway - what's the scoop on all these > meds. before I decide to go ahead and take them I just wanted find out > if it is worth the time. > > > > > > - > > You rock. That's why Blockbuster's offering you one month of > Blockbuster Total Access, No Cost.