Re: [TMIC] 10 LONG YEARS

2007-09-21 Thread Kevin Wolfthal
Hi Grace, Was it the author with TM she had on? I think bombardment with email is worth a shot. I think I'll start emailing my state politicians also. I have gotten help from some of them on other matters. I'd be willing to testify to Congress if it would help. Kevin Grace M. wr

Re: [TMIC] 10 LONG YEARS

2007-09-21 Thread Alton Ryder
Muscles in my left thigh fight it out every night - trying to flex and extend at the same time. Hard on the kneecap. Alton

[TMIC] L'Shona Tova

2007-09-21 Thread ACAROE
For all of you that are Jewish and everyone else, have a Happy and Healthy New Year. May the coming year bring us all peace and a feeling of well being and perhaps a little more medical insight into our problems. I, for one, have not felt "normal" since Labor Day weekend 2005. If o

Re: [TMIC] 10 LONG YEARS

2007-09-21 Thread Grace M.
> > *Hi Kevin,* *RE; Oprah---we've been trying to get her attention also for a segment on rare neurological diseases. Recently, she did feature a gentleman with Transverse Myelitis. Last year, i heard that she would be doing a segement, specifically on neurological disorders, but i haven't see

Re: [TMIC] Hi Stacy

2007-09-21 Thread Larry Throne
Stacy, One of the foster mothers I worked with several years ago started back to school at age fifty-two.  She got her BSW then went straight after her MSW.  Six years later she is the executive director of a rural mental health agency.  I've often heard it said that whether it takes you two or t

Re: [TMIC] 10 LONG YEARS

2007-09-21 Thread Larry Throne
I've lived with TM so long it is normal for me.  I can't remember what it feels like to not have to tell my leg to move or have to sling them from one spot to another.  I have to admit that I worry sometimes that as I age things get more difficult.  I don't have the stamina that I used to have.  My

Re: [TMIC] one of our felloe TM'ers

2007-09-21 Thread Alle111
In a message dated 9/21/2007 4:25:31 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: For the last few months my right leg has been contracting to where I can hardly get the knee past 90 degrees anymore. Is this a normal procedure for someone in this condition? Bernie, I really don

Re: [TMIC] one of our felloe TM'ers

2007-09-21 Thread Bernard Pelow
*This is scary for me. For the last few months my right leg has been contracting to where I can hardly get the knee past 90 degrees anymore, no matter how much I massage and stretch my leg. And when I have spasms now, the leg tries to straighten out, and it causes a lot more pain than usual. I

Re: [TMIC] 10 LONG YEARS

2007-09-21 Thread JHarper33
Hi Rob, I just turned 50 last month and then had my 12th TM anniversary Sept. 1. For several years I have not looked forward to Sept. 1, but then I'd forget about it (one of the benefits of being "middle-aged" :-) ) and remember a few days later that I've passed another milestone with TM.

[TMIC] one of our felloe TM'ers

2007-09-21 Thread Alle111
Hello, I hope everyone is well today. I received this from a sister of one of our "family" (Roland 'Red") and I think his last name is Hiles (?), but she asked that I ask you to please pray for him, thanks.Ella Subj: Update on Red Date: 9/19/2007 10:37:13 PM Eastern Daylight Time

Re: [TMIC] 10 LONG YEARS

2007-09-21 Thread Kevin Wolfthal
Hi Folks, Ok, I just wrote to the Oprah show. Here's the address: http://www.oprah.com/email/reach/email_showideas.jhtml This is what I wrote: "I have a rare medical condition called Transverse Myelitis. I, and others with the illness, are trying to raise awareness of it. Cody Unser,

Re: [TMIC] 10 LONG YEARS

2007-09-21 Thread Kevin Wolfthal
Gunny, The only thing I can think of right now is if we could get someone like Cody Unser on a show like Oprah, maybe with Dr. Kerr. She has done programs on medical subjects. Kevin [EMAIL PROTECTED] wrote: Kev: Gimme some ideas on how we can make money to fund Doug Kerr. Eve

Re: [TMIC] 10 LONG YEARS

2007-09-21 Thread Kevin Wolfthal
Robert, I wish you a belated Happy Birthday. Next year will be 20 years with TM for me. I don't remember the exact date of onset, I just remember standing up from my seat at a movie theatre, and my left foot/leg was numb. Nothing has been normal since then. FWIW, I, and many others, unders

[TMIC] 10 LONG YEARS

2007-09-21 Thread Robert Pall
Yesterday was my 60th birthdayin 6 days it will be my 10 year aniversary of having TM. I am feeling somewhat sad and melancholy. I normally accept my condition and give thanks that it is not as bad as many on the list. However looking back I can no longer remember what it felt like to b

Re: [TMIC] Hi Stacy

2007-09-21 Thread Stacy Harim
Thank you Barbara and everyone else giving me encouragement I really appreciate the thoughtfulness. You all are great support. Stacy - Original Message - From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Tuesday, Sep

Re: [TMIC] Hi Stacy

2007-09-21 Thread Stacy Harim
Don't speak so quick. I don't know how long it will take for me to get back to it. I messed myself up pretty bad with my back. A lot of therapy is still needed. I'm still trying to figure out how to get to my feet so I can get dressed in a fair amount of time. LOL. stacy - Original Mes