Is there anybody living in Georgia that is on this list? Please let me know.
I would like to set up some sort of meeting in April.
Thanks!
Debbie
dnca...@gmail.com
P BE GREEN! Please consider the environment before printing this e-mail
I hope that people on this list are reading about and keeping informed of
the fundraisers about the U.S. Several very energetic members are putting a
lot of effort and energy into the events and I hope they are not going
unrewarded. If you are able to attend any of the events, please do so. If
yo
Nikki,
Below is a link to a very good article regarding pregnancy and TM. We have
heard many (wonderful) stories of women having children after having an
attack of TM. One woman was paralyzed at age 12, and she has lead a
productive life, got married, works full time, and her son is now 19 years
ol
Here are some informative articles about fatigue and TM, and the use of
Provigil.
http://www.myelitis.org/newsletters/j2/journal-2-10.htm
http://www.myelitis.org/newsletters/v5n1/newsletter5-1-02.htm
The above articles from the TMA Journals address fatigue issues for patients
with TM. Provigil
Thank you Rob for the update and all your hard work!
Yes, it definitely is worth the effort to get together and meet people face
to face to discuss frustrations and other issues, so I echo Rob's sentiments
regarding support groups.
Take care,
Debbie
From: Robert Pall [mailto:robthe...@aol.com
Hello All,
I hope that everybody here is able to view this video. It is about the
First Annual South Jersey TM Walk. I really wish that I could have been
there! Colleen's family and friends helped put this together to raise funds
for awareness and research, and I want to thank all that got invol
I have not had the achilles tendon procedure; however, I have had a few other surgical procedures on my foot because of the residuals of TM. The first one was to have all my toes (bones) fused to prevent them from curling from atrophy. One day in the surgical center and then a few weeks' recove
I know that she has to be subscribed to the tmic list in order to post a message; however, nobody should reply to an email such as this without verifying the validity of the request. Do you know of any hotels that require you to stay UNTIL the bill is paid? Most hotels require you to pay BEFORE
I "celebrated" my 14th on December 30, two days after I celebrated my 34th anniversary with my husband:-)
Debbie
-Original Message- From: bobby jim Sent: Feb 3, 2011 7:07 PM To: Lori Biehler , TMIC Cc: Neil McNeil Subject: [TMIC] Re: 10th!
And me missus will 'celebrake' her 14th this S
I know several millionaires who would not agree with you - if money could
buy ability to walk, they would all be walking without aid of wheelchairs.
When I had to learn to walk again and was released from the hospital in
Minnesota to return to "care" in California, I could not get the new neuro
t
Hi,
I just got off the phone with Cindy. She is in better spirits now that they
have her infection under control, but is not out of the woods yet. She
could use a lot of thoughts and prayers and even a card or two.
I am sure she would love to hear from her friends on the list, so here is
her add
Hi Barbara,
I totally agree with you. Knowing Cindy, she has a heart of gold and she
goes out of her way to help others out of bad situations. She did apologize
for her error, and all we can do is accept her apology and move on.
All information that Cindy provides is information that she hers
Folks,
You need to understand that the email address in the "from" line is NOT the
actual sender of the email! Their computer has been hacked, or you can say
that their address book has been hijacked by a "spoofer" who then sends out
mass emails to everybody in their address book with these links.
Hi Regina,
The symposium was in Dallas, and about 150 TM'ers and their caregivers
attended, which made it a success. I met Linda from Idaho there, Todd Tarno
and Cora were there. Those were the only people that I recognized from the
tmic list.
It will take a few weeks for the videographers to e
For those of us who are NOT fortunate enough to know Cindy personally, you
need to know that she is confined to a wheelchair, but does not let the
wheelchair confine her. She leads a very active life, serves on the board
of an independent living center, runs the Southern California TM support
grou
I saw this great article about Mike Hammond who passed away recently, and
who had been an active member on this list.
http://www.heraldnet.com/article/20101010/NEWS01/710109909
He was such a nice guy. I met him first at the Seattle TMA Symposium in
1999.
Take care,
Debbie
dca...@earthlink.net
According to the directory, there are about a half dozen TMA members in
Hawaii.
From: Janice Nichols [mailto:jan...@centurytel.net]
Sent: Wednesday, September 29, 2010 8:18 PM
To: James Berg; tmic-list@eskimo.com
Subject: Re: [TMIC] Anyone else in Hawaii
As far as I remember, I think you are
I am leaving for the symposium in Dallas in a few days. I hope to meet many
of you there!
Take care,
Debbie
Because of the subject line, I had thought that somebody needed technical
assistance, and/or was having difficulties submitting messages to the tmic
list. I was mistaken. It seems to have nothing to do with that.
From: Janice Nichols [mailto:jan...@centurytel.net]
Sent: Tuesday, August 31, 20
Is it actually that you "had" MS and now you "have" TM, or just that the
doctors speculated that you might have MS, and then after a while determined
that your actual diagnosis is TM due to the results of your testing?
Some doctors are very conservative in their diagnoses while others jump the
I believe that there is a talk by one of the Doctors at one of the symposia
that is posted on the website that you could view on that subject. If it is
not a video presentation, it will be a power point presentation. Please
check the website at www.myelitis.org and click on "symposiums".
I do re
Hello Jeron,
I can't explain to you why you have had a recurrence of TM, if that is what you had, rather than an increase of symptoms due to an infection that you are fighting.
But I would like to suggest that your doctors do a little bit more research before giving you those websites. Only o
Hi All,
I have returned from Victory Junction Camp in Randleman, North Carolina. I was
one of the volunteer camp counselors for our Transverse Myelitis family week
that the Nascar Petty family has promised to sponsor once every two years for
our kids. (I have been home and back to work for a w
From what I have learned, it should be taken in conjunction with Chondroitin and MSM to help the body absorb the better parts of it. I also have a gel that comes in a tube that I rub onto my knees and other "achy" areas so it doesn't even go into the bloodstream, thus preventing the risk of too
I am forwarding this message to the list for a dear friend of mine who is the
support group leader in the Southwest Virginia area. If any of you live
nearby, she would love to meet you!
Dear TMA members, ( & all rare Neuro diseases we advocate for)
My name is Drema and I live in Pulaski, VA.
Title: UNSUBSCRIBE PLEASE
Please note that there is a different address that you need to send your email to in order to unsubscribe. The reason that we on the list see so many of these people unsubscribing is that they are all sending it to the wrong address. Please refer back to the website wh
I have a membership at Costco, and at Sam's Club. Why? Because I like one store for certain items which I can't get at the other store, and vice versa. Should I quit one membership and stay "loyal" to only one of the stores? Or can I go to both stores if I like?
-Original Message- F
I have to respectfully add to Grace's comment below. She is absolutely correct
when she states that the groups are formed to spread awareness of TM, ADEM, NMO
and the other neuroimmunologic disorders. The TMA was not formed to hold a
monopoly on support groups. It was formed as a non-profit o
Currently, there are no large symposia planned for the near future. The last one in 2008 was very energy, money and time draining, and so many of the TMA patients are unable to spend the money to attend, so the program is going to be re-vamped. There will most likely be smaller and more frequen
Hello All,
I thought I might mention this regarding the TENS unit. If you are going to be
investing in this, you might want to consider the EMS unit instead. A TENS
unit is for "nerve stimulation" to help with pain. The EMS unit is a "muscle
stimulator", used to waken up sleeping muscles or p
I will make just a short statement regarding this, as I do not wish to become
involved in a debate. Dr. Kerr has stated in all of his talks that the BIGGEST
mistake in the very beginning was to even give it the name "embryonic stem
cells". They are NOT embryos. They are NOT aborted fetuses.
Sorry, only for kids that have TM to give them the opportunity to meet other
kids with TM. We get our chance to meet others during the symposia, so this
one is for the kids:-)
- Original Message -
From: fr...@franksheldon.com
To: Deborah Nord Capen ; tmic-list@eskimo.com
Hi Everybody,
I know there are a few parents on the list who have children between the ages
of 6-16. I sure hope that you have signed up to go to Victory Junction Family
Camp this summer. The deadline to apply is in March. Everything is free for
the week, you can also bring siblings, it is fo
I forwarded the message on to Bob Cook, and he sent me this response to forward to the list.
I HAVE NOT BEEN ON THE LIST IN QUITE A WHILE, BUT, YES, I HAVE HAD THE PROCEDURE REFERRED TO AS ABALATION FOR ATRIAL TACARDIA. IT WAS ABOUT 80 % SUCCESSFUL AND I WAS ABLE TO QUIT TAKING THE MEDICATION
Anybody else been there?Hi Rob,
Since my husband has become more involved in attending our TMA symposia, and
has attended a few of the support group meetings in other states, he has become
MUCH more enlightened! I can recall when he used to actually accuse me of
taking "illicit" drugs, because
Over 500 mobile homes destroyed in a mobile home park in the San Fernando
Valley,
with about 5 active fires right now, the evacuation toll was up to about 18,000
or more, but many people (who still have homes) are able to return.
Cindy McLeroy is closer to the Anaheim Hills fires. I am more eas
Check out Dr. Carlos Pardo's presentation at the 2008 Seattle Symposium at this
page: http://www.myelitis.org/rnds2008/index.htm It is about Sarcoidosis. Dr.
Pardo works for Dr. Doug Kerr at Johns Hopkins.
Hope this helps.
Take care,
Debbie
- Original Message -
From: [EMAIL PROTECT
Donna was a speaker at our Seattle symposium with Dr. Kerr as the moderator (he
wrote the foreword in her book). Donna was ill, so could not attend at the
last minute, but we set up a web-cam conference with her from her home so that
she could still speak to our group. It was very interesting,
Hi,
For some reason the original response was getting rejected by the tmic list
server, so I am creating a new email with the response in this one.
So far there are 97 people signed up to attend the symposium in Seattle. I
hope that more people on the west side of the U.S. will be able to atten
I tried sending a reply and it has been rejected. I am sending a non-reply to
see if it is also rejected. No need to respond to this message.
Debbie
[EMAIL PROTECTED]
AOL EmailKen Oliver's address is in the TMA Membership Directory if you would
like to mail him cards. He lives in New Mexico. Because of privacy issues, I
will not publicly post his address without his permission.
Take care,
Debbie
[EMAIL PROTECTED]
- Original Message -
From: [EMAI
Hello,
For all of you who have recently joined the list, you need to know what a huge
asset that Jim Lubin is to the TM community. Without Jim, none of us would
have met each other, as he started this list.
If you have a few days to spare, please check out this website
http://www.makoa.org/jim
Hello Everybody,
I am posting this message at the request of a very sweet lady that I met in
Montana last fall. She has TM and has such a positive attitude and outlook on
life.
Uyen has set up a website where she has listed items that she has created,
mostly Asian artwork and beautiful article
Since I know Lori, and I know that she has a very important job that requires a
lot of brainwork, I felt that I needed to comment on this.
I manage a medical clinic that also does urinalysis testing for drugs.
Companies send their potential employees in to us to be tested. We interview
the pa
Just a reminder - for those of you who are waiting until the last minute - if
you are mailing in check payment, the deadline for sending in check payment to
Paula Lazzeri is February 15 for the Symposium in Anaheim. This is because
Paula will be flying down to Anaheim a few days before the symp
Hello List,
Just a reminder about the TMA California Symposium.
The symposium will be on Saturday, February 23. It will be one day only. The
cost for registration is $50.00. Our wonderful doctors from Johns Hopkins
will be there for you to meet. The famous celebrated author Allen Rucker who
If Sue Mattis is out there, could she please send me an email?
It seems to have changed, and we do not have her new email address.
Thanks!
Debbie
[EMAIL PROTECTED]
The arrangements have been finalized, the contracts have been signed. We are
going to have a one-day symposium in Southern California! Chitra Krishnan, Dr.
Kerr, Dr. Kaplin, Dr. Pidcock, and Dr. Levy will all be at the Paradise Pier
hotel, next door to the Disneyland Hotel in Anaheim, Californ
Jim has posted a very important message to us all. I have been subscribed to
the tmic list for almost 11 years, and I can attest to the fact that if you
post to the list, your information will be there for the world to share. I
have used most search engines and typed in my own name, and now th
I rarely write to the list unless I can think of something important to share.
This is very much worth sharing! Please watch the video at myspace.com and
then send to all your family and friends. It will help them understand much
better what we are experiencing.
http://myspacetv.com/index.cf
I was asked to forward this to the list for those concerned, and for those who are using this medication.
Dangerous Drug Interaction with Zanaflex (tizanidine)
Use of Zanaflex with CYP1A2 inhibitors can lead to side effects such as
severe hypotension and sedation...
http://www.accessdata.fda.
I was asked to forward this message to the list for anybody interested:
> From: CDER MEDWATCH LISTSERV <[EMAIL PROTECTED]>
> To: <[EMAIL PROTECTED]>
> Date: 7/17/2007 3:30:34 PM
> Subject: FDA MedWatch: April 2007 Monthly Safety Labeling Changes Posted
on Website
>
> MedWatch - The FDA Safety I
For those of you who feel that nobody is working on contacting talk show hosts
to get the word out about transverse myelitis, please read the following
message. Also, please let all your friends and family know that Montel
Williams show will be aired, and that they need to watch the show.
A
Hi Deb, and those of you who responded to my plea for help,
So far, we have the following states represented:
Washington
Louisiana
Hawaii
Ohio
Idaho
California
North Carolina
Pennsylvania
New Jersey
Maine
Texas
Michigan
Georgia
Maryland
New York
But Jim is now in sixth place with only 42 donations
Hi Everybody,
I am writing to say that I am just slightly disappointed at the lack of
response to Jim's request to participate in this fundraiser. Out of the
100-plus people that are signed up with this list, only about 5-6 have
responded. Jim has slipped into second place in the contest.
For
Hello Everybody,
This is the latest update on Errol's
grandson. Just click on the link to read the article of what little Dane
went through. He is home now with his family. Errol wishes to thank
all of you for your kind thoughts and prayers.
Good afternoon
folks,
Good news from Australia! The
baby is doing well and may be coming home soon! If anybody would like a
picture of the baby, please let me know and I will send it to you
privately. Errol thanks everybody who sent prayers and positive wishes
their way. Prayers were answered and the nurses
I know that Mavis in Australia will
be having a great birthday celebration, as her grandson is improving now.
I have forwarded the latest update on Dane for all of you:
Hello
Everybody,
Dane is out of ICU as of yesterday anddown in the high dep
Yes, we already knew this. I
believe that Victoria is trying to link moldy walls to fungal infections, which
are a totally different thing. Do a web search for "fungal infections" and
it will show you exactly what a fungal infection is - no mention of mold.
I do not wish to dispute that V
More good news from down
under:
Good evening everyone,
We managed to get down to see Danetoday (Saturday) and it was so great
to see him again. He is now six weeksold, had his first operation and
is healing gradually. While I was at hiscot side, the doc and
nurses removed his breathing
Hello,
Errol's grandson had his surgery and
all is looking well so far. Please read the below message from
Errol. Thank you for all your prayers and well wishes, they reached
Australia!
Hello Everyone,
Dane had his operation today. He was taken to the theatre at
7:30am and the procedure
Hello all,
If any of you are not interested in
receiving information about Errol's grandson, please let me know. This
information does not pertain to TM, but it does concern a member of our group
that we love dearly, so I feel it important to keep you updated.
If anybody feels this is
ina
Hi Everybody,
I am copying the latest information
on Errol's grandson. Poor little guy needs a lot of help.
Saturday, yesterday saw Mavis and myself drive down to see Dane in
hospital.
Dane is looking reasonably good, having regained his birth weight, he is
allowed to breast feed each day
Hello again,
Errol in Australia has so many
friends on this list, and he wants me to pass on his many thanks for all of your
prayers and kind thoughts. As his entire family is consumed by little
Dane's health problems, he has not had a chance to thank you all individually,
and until all is
Actually this is an update on his tiny
grandson. Errol asked me to pass along a message to all of you that he
thanks you for all your kind thoughts and prayers during this trying time.
I am copying excerpts of his message for all to read:
- Original Message -
From: Errol White
Hello all,
I want to pass along this message regarding
our friend Errol, who lives in Australia. It was with great pride that we
received his announcement of the birth of his new grandson last week. It
is with great sadness that he writes the latest, that his grandson is requiring
open he
How many people will I be having the
privilege of meeting or seeing again during the TM symposium in
Baltimore?
I am really looking forward to
it!
Debbie[EMAIL PROTECTED]
Please watch the following video that
describes depression and depression in patients with TM. This talk is
given by Dr. Adam Kaplin, the only psychiatrist who has been given a grant
to study specifically this topic. This talk was given during the 2001
symposium in Baltimore:
http://video.
Hello Everybody,
I am forwarding to you an email that
I received from Sandy Siegel, the President of The Transverse Myelitis
Association. I was going to just let you know of a wonderful opportunity
to raise money for research of TM and to raise awareness of TM, but I could not
improve on th
I am looking for the following
people. If you know how I can contact them, please let me know, or if you
are one of these people, please send me a private reply.
Neil and Wendy Ross (Cole's Mom and
Dad)
Larry Throne from
Oklahoma
Glen Winkel
If any of you know how to contact
them, plea
Hello List members,
I know that there are several of my
friends who have been subscribed to the list for the past 9 or more years, who
have had the opportunity to meet and get to know Dick and Deanne Gilmur, the
parents of a young child who was diagnosed with transverse myelitis when she was
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