PLEASE DISREGARD the email that you received. It is spam that attached to my
address book.
Priscilla
-Original Message-
From: pkeene2...@aol.com
To: tmic-list@eskimo.com
Sent: Fri, Oct 8, 2010 8:49 pm
Subject: [TMIC] To tmic-l...@eskimo.com!, very important
hi! tmic-l...@
Nine years for me! Up with the warm, down with the cold; up with the sun, down
with the gloom. Yesterday,
with the cold and rain, my arm got literally stuck when it was bent at the
elbow. I had to get my son to pull it out straight; today it's warmer and it
doesn't freeze up. Time to get out
http://www.pnlx.cpxstore.com
Dear Jude,
As you face this surgery,?just remember that we are all with you in spirit,
even though you may not know all of us.? We are right by your side with
powerful energy and prayers as you enter the unknown.? As frightening as it is,
God will lead you through it.? He will be there holdi
Hi Pam,
I would love to be in NOLA again. I've been there twice and even got a
rare tour of Ann Rice's home in 1999 before TM hit me. I would love to
participate in Mardi Gras; my brother works on Carnival Cruise ships
that come into NO and also loves the town and has lots of friends
there.
I have been taking Lyrica for quite a while and it really helps me walk
better. Lately, I have had pain in my arm muscles; my orthopedic
doctor said my left arm has slipped out of the socket two inches. I
wonder if this is caused by the Lyrica? Would steroids help my
muscles? I am going to
Hi Amanda,
I can type with my thumb and I sometimes use a voice recognition program called
Dragon-Naturally Speaking.? I went to JH and saw Dr. Kerr about?6 months after
I had the attack.? He prescribed neurontin for me which helped the tingling and
burning in my legs and the banding.? I really
In 2001 I had an acute attack of transverse myelitis, paralyzing me from the
chest down. I was in rehab hospital for eight weeks and I slowly recovered and
finally I was able to walk. From the beginning, they told me that I would never
use my hands because I was struck at c5 and c6.. I can't us
Have a wonderful day!
Priscilla
-Original Message-
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]
Sent: Sun, 27 Jul 2008 7:28 pm
Subject: Check this out!
We are sending you this email on behalf of Priscilla Keene ([EMAIL PROTECTED]):
I found this page at AllegroMedical.com and thought
I think I understand why some babies cry and scream for no apparent reason.?
After living with TM for 7 years I've learned that certain scented lotions make
my dry, scaly legs burn like fire, I can't find a bra that doesn't make my
banding even more painful, my feet burn when they are ice cold,
Dear Jim.
When I had the attack of TM and was?taken to the hospital, the doctors in the
ER had no idea what had happened to me.? After?I was finally diagnosed by a
Colombian neurologist who was practicing here, my daughter immediately began
researching TM on the Internet and found this wond
Frank,? why don't you write all of us prescriptions for it?? That MD degree
should be used for something beneficial.
Priscilla in TN
-Original Message-
From: [EMAIL PROTECTED] <[EMAIL PROTECTED]>
To: Trudy Ogilvie <[EMAIL PROTECTED]>; [EMAIL PROTECTED]
Cc: tmic-list@eskimo.
Hello everyone,
I have a lot of trouble typing as my hands are paralyzed, and I can only use my
thumb, so I don't post often.? From the very beginning of this condition, I
have been very positive, and I have felt God's presence with me constantly.
Some members of my church tell me I have be
In a message dated 7/26/2007 7:23:51 PM Pacific Standard Time,
[EMAIL PROTECTED] writes:
I learned thru this group that you cannot take Metamucil within (I think) 2
hours before meds and one hour after meds.
I was wondering about vitamins. Are there any vitamins that might interact
harmfully
Dear Franque et al,
For four years I had diarrhea every time I ate a meal; the doctor said I had
Crohn's
disease, but I was in denial of having that and ignored him. Then I changed
meds--from a high dosage of neurontin to lyrica and cymbalta. Now I have
chronic constipation and I think the m
My TM, is it that goes as idiopathic (that means the idiots
can't figure out what's going on) :-)
I love that explanation, Naomi; it's a classic. You have a great attitude!
Hugs,
Priscilla in TN
** See what's free at http://www.aol.com.
I WAS ALSO ABLE TO UPLOAD A PICTURE. I WILL ADD MORE LATER.
PRISCILLA IN TN
** See what's free at http://www.aol.com.
** See what's free at http://www.aol.com.
--- Begin Message ---
Johnson and Johnson Baby Wash with Lavender and also their Baby Bath (that
states "no soap and hyperallergenic") burn my legs and feet. The latter has a
red dye in it. Think how it must feel t
Remember to thank your caregivers after you see this video. This is awesome!
Hugs to all,
Priscilla in TN
** See what's free at http://www.aol.com.
--- Begin Message ---
You won't believe this father. Kind of makes us all a little ashamed. Please
read the
Dear Kristy,
I also have cold spots on my legs and arms, but only when I lie down at
night. When I am upright and walking, I don't feel cold at all. In fact, I
have
a burning and tingling sensation in my legs. I take lyrica for that.
Sometimes when I'm sitting next to a lamp, I feel
I use the same program but I have a lot of mistakes, because of my Southern
accent. :-).
Priscilla in Tennessee
In a message dated 3/22/2007 1:52:50 PM Eastern Daylight Time,
[EMAIL PROTECTED] writes:
Jude,
I use the Dragon Naturally Speaking voice recognition program. It's a voic
Gunny,
I am so sorry to hear of your dear mother's passing. My thoughts and prayers
are with you during this time. Take care.
Priscilla Keene in TN
Merrry Christmas
and
Happy New Year
from
Priscilla Keene in TN
I'm happy to be celebrating Christmas with my lst grandchild
Caden Isaiah Arnold--5 months old!
God Bless you Everyone
P.S.I just made a donation through Yahoo. How wonderful to get matching
funds!!!
Happy Thanksgiving to all. We all have so much to be thankful for even
though we have T M. Celebrate and cherish our abundant lives, and live each
day to
the fullest.
Hugs to all,
Priscilla in TN
Two HorsesJust up the road from my home is a field,with two horses in it. From a distance, each looks like every other horse. But if you stop your car, or are walking by, you will notice something quite amazing. Looking into the eyes of one horse will disclose that he is blind. His owner has chose
I started at 50mg three times a day, then increased it after a couple of weeks. I didn't wean off neurontin but started lyrica immediately after stopping neurontin with no problems.
Priscilla in spooky TN
I'm taking 75 mg three times a day at 10, 2, and 6pm.
Priscilla in TN
I started taking lyrica without weaning off neurontin and had no problems. I have done so much better with lyrica.
Priscilla in TN
n a message dated 10/19/2006 1:52:38 PM Eastern Standard Time, [EMAIL PROTECTED] writes:
I weaned off of neurontin slowly while starting lyrica at the same t
Other forms of myelitis may result from poliovirus, herpes zoster, herpesvirus B, or rabies virus; disorders that cause meningeal inflammation, such as syphilis, abscesses and other suppurative conditions, and tuberculosis; smallpox or polio vaccination; parasitic and fungal infections; and chron
Hi Vickie,
The email address worked for me.
Priscilla in TN
Interesting reading about stem cell research:
Click here: Clash Over Stem Cell Research Heats Up
Priscilla in TN
The TLC program that Dr. Kerr was on was "Lethal Diet" on "Mystery Diagnosis." It was about a young boy whose body was producing too much lactic acid; Dr. Kerr put him on a special diet.
Priscilla in TN
Did anyone see Dr. Douglas Kerr on TLC's "Mystery Diagnosis" last night? He looks different from when I saw him in 2001; he's now got a gray beard.
Priscilla in TN
--- Begin Message ---
Yes, the name is "House" and it's on Fox on Tuesday nights from 8-10 this summer, showing 2 reruns each week.
PK in TN
--- End Message ---
Did anyone see "House" last night? The patient was diagnosed with TM which was a result of an extremely high exposure to radiation; consequently, the patient died. Dr. House has mentioned TM several times.
Priscilla in TN
My friend saw this article in the Washington Post (3/30/06) and I thought I would send it on to the group.
Click here: Md. Approves Fund To Support Medical Stem Cell Research
Priscilla in Tn
I also came off neurontin (3600 mg a day) and went on lyrica (225 mg a day) and had no trouble changing over. Lyrica has helped the burning and tingling in my legs tremendously, and I no longer have the diarrhea caused by neurontin.
Priscilla in TN
Another hero has fallen. A sad day, indeed!
Priscilla in TN
I have a Life Line, and even though I've never had to use it yet, I feel much more secure.
Click here: Lifeline - the most trusted medical alert service provider
Priscilla in TN
In a message dated 2/23/2006 12:45:51 PM Eastern Standard Time, [EMAIL PROTECTED] writes:
In a message dated 2/23/2006 12:34:59 AM Central Standard Time, [EMAIL PROTECTED] writes:
Hi all
I told my other group about Lyrca and Robyn has tried it. Well it sure worked for her and I didn't get t
In a message dated 2/13/2006 2:07:45 AM Eastern Standard Time, [EMAIL PROTECTED] writes:
Since the end of January, I seem to have been losing ground. I can still walk, though I use a cane more often. I probably actually have more strength, but my energy (when I have it) doesn't last long, and
I don't write often, but I read the posts every day. I am 63 and I have had TM since May of 2001. I can walk short distances like from my front door down the sidewalk to a car, and then my legs get weak, and I have to sit a while. I have very little use of my fingers, hands, and arms which ma
In a message dated 10/12/2005 1:10:26 AM Eastern Daylight Time, [EMAIL PROTECTED] writes:
if it is sequel as in what follows, i unfortunately have a sequel called MS, just diagnosed a week ago with multiple lesions in my brain. after 5 years with tm, i am weary from pain, depression and fatigue
Havahappy day,
Peachy in TN
Thanks for the info; I checked out the website and plan to visit a mountain sports shop in town to try them out. They sound as if they'd be perfect.
Peachy in TN.
Hello all,
Maybe someone can help me. My balance is pretty bad and my legs are weak, but I can't hold a walker or cane because my hands are paralyzed, and I have no grip. Has anyone seen a cane with a type of velcro holder on it? I always have to hold someone's arm when walking outdoors. Al
--- Begin Message ---
Hi Cookie,
Welcome to TMIC; you have found a great support group. I don't write to the group often because I cannot use my hands, and I must type with my right thumb. I came down with TM on May 11, 2001. I was substitute teaching that day, having retired after teachin
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