Have had TM for ten years and have had the flu shot each year with no problem.
This is the only site that I read.
How do you get on Facebook for this group?
GUESS YOU GET THE TROPY FOR AGE.
ann in Virginia
name robert diehl age now 77 live in doylestown,pa
i was 72 and got transverse meylitis and guillem bryee symdrum...that was april
1 2004
spent the whole month of april in the hospital
65 in 2002. Looks like I am the old lady of the group=
Have been using tramadol for years. It does not take away the pain but does
dull it some. Have no trouble getting tramadol in the states.
Ann in Virginia
-Original Message-
From: Kevin Wolfthal
To: tmic-list@eskimo.com
Sent: Sat, Nov 28, 2009 7:04 pm
Subject: [TMIC] Question
Some
Don't forget I am treasurer.? Any amount of dues would be appreciated.
I note no one has said anything about being treasurer?? I will be glad to serve
as same.? Please send dues to me.
Rob I tried Cymbalta and the only effect it had on me was I could not pee.?
Decided I sitll had to put up with the banding.
Ann in Virginia
Have a pain all the time on my right side. When I become constipated the pain
becomes much worse and goes all the way up to my shoulder
Ann in Virginia
-Original Message-
From: Kevin Wolfthal
To: tmic-list@eskimo.com
Sent: Sun, Aug 9, 2009 5:16 pm
Subject: [TMIC] question
Has anyone
Do not often post but have certainly learned from the comments.? Have used the
T,E.N. S unit for about seven years and have certainly found it helpful for
pain.? It does not relieve the pain but certainly does help it.
Ann in Virginia
I am getting the digest but am not getting the individual postings. Up
until this past week I have been getting the posting for all of you. Any
suggestions?
Ann in Virginia
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I have used the tens unit since Tm invited itself into my body. Have found
it to be very helpful. Am not aware of pain as much and it does help with my
legs. Give it a try.
Ann in Virginia
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Just because my legs are attached to me does not mean that I recognize them
as part of my body. In fact I have disowned them. Since they are now
disowned my life has become much easier. I get up in the morning and do not
have
to think which way my legs are going . I just let them go th
Gunny
Many thanks for becoming a part of my five year plan. Sounds as if I had
better get my fat ? to the pool. Guess there is no quick fix.
Trudy
Shame you don't live at Virginia Beach. I was referring to the Transverse
Myelitis newsletter of spring 2007.
and thanks for the good wishes
The medical community has had me for the first five years. I have decided
that I am not wild about their plan since obviously there is none so am
devising my own. My neuro is so busy that he will see me only twice a year so
I am
going to Charlotte, NC to see a new neuro that a friend of mi
Are we all cured or are we just not chattering due to the cold?
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If anybody replies to you directly please let me know what they say. I have
the same problem and have found nothing to relieve the legs. I have tried
muscle relaxants. I find that a massage helps but it only lasts for a short
time. I also would love to know if there are any exercises that
Has everybody gone to find Frank?
Ann in Virginia
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Have been too busy helping husband who had stroke to be in contact with
you.. He is much better so now have a question for "The Mob"Don't you all
like your new name. Anyway my massage therapist allowed as to how the muscles
in my legs were getting hard. I have noticed that my legs are
Don't have hot or cold feet. Have feet that feel like walking on marbles
with duck tape wrapped around them.
Ann in sunny Virginia
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Hey Gang,
My husband recently had a stroke and he is now having spasms in his legs.
He has been put on bacolofin but I was wondering if any of you had any hints
of how to make one more comfortable. Thanks for any input you can give me.
Ann in Virginia
*
Or, should I simply be more thankful for getting any and all of the email
that I do get and Thank the Lord that there are people who think of me at all?
Of the two choices I choose the one above.
Ann in Virginia
** See what's free at http://www.aol.c
Trudy,
Just read your note to Jude and had to reply. First of all I live in
Roanoke which is in the western part of the state and have a few years on
you. I am 69 and have had TM for four years. My husband is a retired
physician and many years before I developed TM he described neurology
Welcome back Trudy. I have had Tm for five years. I
started off with a little numbness and have progressively gotten worse.
Right now I am on 2400 of neurontin. Am not aware that it helps but when I
forget to take it I realize that it does help with the burning. I also
take Tramadol (5
Click
here: Message
ann in virginia
You can correspond with all of the group by just writing using the original
address that you used that I replied to. In case you do not still have it,
the address is listed above along with yours.
Ann in Virginia
I notice that every thing refers to acute TM. Has anybody in the
group had TM that has come on gradually. Everyone should read the link
that Frank sent about GP's. There I guess is nothing we can do about this
but we certainly should be informed. At a hospital here in Virginia who
employ
Have been gone for a week and have no mail from the group. Are we all
on vacation or do I have a problem at my end?
Ann in Virginia
The fun part you are having right now. Tomorrow will be a
breeze.
ann in Virginia
Just got back in town and have been reading the postings. Am glad I
found someone else as strange as I am. I too could not use the
Lyrica. Really did something to my muscles in my legs.
Ann in Virginia
Frank,
I was having a pretty decent weekend until I read your note to Sally.
Have not heard anyone else mentioning the fact that they were getting
worse. Like you, I had no pain originally and when they kept asking me
about pain I did not understand what they were talking about. Now I
d
Dear Nima,
I have had Tm for almost four years. I too have been getting
considerably worse in my pain, walking etc. I have been on Bacloen,
Tizanidine and Lyrica all at separate times. I found all of these
medicines to make my muscles in my legs much weaker. Actually I was
walking like
Kate.. Was hoping someone would reply to you since I have the same
questions but no answers. It does make sense that the more you use your
legs the better off you would be. Hopefully someone who knows the answers
to your questions will reply.
Is there any documentation on T
When on cruise I go to dance floor with my walker and then get on floor
pretending I am dancing. Porbably look like a fool but have a good
time.
Ann in Virginia
Ok gang I thing I have had all my questions answered until my computer dies
again. Many thnks. I still think sour apple martinis are the best
and one question that I did have that I did not ask. HOW THE HECK DO YOU
GET RID OF THIS STUFF and I am not speaking of the martinis.
Ann in windy
How the heck do you get to the digests? thanks
Dumb Ann in Virginia
Am still trying to get information back that I lost when my computer was
not nice. I had saved correspondence about someone who had purchased shoes
that were really great. I know the shoes started with the letter M.
If anyone know what I am talking about let me know.
I still think sour
Have you tried the support knee hi's? I just happend to have a pair
that I purchased years ago and put them on today. Really seems to
help. I do not mean the prescription kind but the kind that you can buy
anywhere.
Ann in Virginia
I tried Lyrica for about ten days. At the end of that time my walking
was such that I did not know which way my legs would take me. Lyrica had
the same effect on me that Baclofin (sp) did. I took the Lyrica in
November. I am now walking better but my legs still feel like wooden solders and
My computer has not been feeling well so have been away for a while.
Hope everyone had a happy new year. Prior to computer going down I heard
from someone in Uk that was taking Lyrica. I tried this and it made my
muscles weak and legs stiff. He also said his legs were stiff but he was
co
I also took the Lyrica and could not tolerate it. Definitely caused
muscle weakness in legs.
Did not have any trouble getting approval for it from Anthem here in
Virginia. Physician had to write and as soon as he did drug was
approved. Just wish I could take it. Would certainly be nice to
Is anyone talking Lyrica and if so has it made your legs feel stiff?
Also want to know if it has helped anyone. Thanks
Ann in Virginia
Was so excited - saw my neurologist on this past Wednesday and he put me on
Lycia. He gave me a couple of samples. Went to pharmacy today to
pick up prescription and realize that I should have gotten on my knees and
thanked him for samples. Boy is that stuff expensive. I know some of
you
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