I know there's a ton of you that don't know about my twin Granddaughters.
now I'm gonna swallow my pride and ask for your help. The twins, Yesenia
and Jessica both have Rett Syndrome. The best way to explain this disorder is
to say that all these girls can do physically is smile. All other
sorry about all of this BJ,,sometimes the pills talk more than normal!
my bad!
--- On Sat, 5/28/11, bobberino wrote:
From: bobberino
Subject: Re: [TMIC] HELP- I don't know how to get off this website
To: fr...@franksheldon.com, "Jill Posner"
Cc: tmic-list@eskimo.com
Date: S
Hello Jude,
It's Ella (Alle) and I'm not the one wanting to leave, someone else asked
and I gave them the link.
It ain't no secret. y'all just need to know how to word your request and
where to post it.
BobbyJim
- Original Message -
From: fr...@franksheldon.com
To: Jill Posner
Cc: tmic-list@eskimo.com
Sent: Saturday, May 28, 2011 3:46 PM
Subject: [TMIC] HELP- I don&
Go on here and click on the unsubscribe link
_Transverse Myelitis Internet Club_ (http://www.myelitis.org/tmic/)
Jill,
I've been on this so long that I don't know what I'd do without this group, so
have forgotten the secret code to leave.
But as with all Questions, Ask the group !
Good Luck in all your adventures. Send Money when you get a job.
pH
nt: Monday, April 04, 2011 15:21
Subject: Re: [TMIC] Help .Elizabeth Clark
This is bullshit--my wife and I were contacted with a similar scam that our
friend was roobed and needed money and after investigation we found our friend
well and happy. Don't fall for it.
On Mon, Apr
This is bullshit--my wife and I were contacted with a similar scam that our
friend was roobed and needed money and after investigation we found our
friend well and happy. Don't fall for it.
On Mon, Apr 4, 2011 at 6:29 AM, wrote:
>
> I'm writing this with tears in my eyes,my family and I came ov
I'm writing this with tears in my eyes,my family and I came over here to
London,United Kingdom for a short vacation. unfortunately,we were mugged at
the park of the hotel where we stayed,all cash and credit card were stolen off
us but luckily for us we still have our passports with us.
We'
Sent: Saturday, February 26, 2011 9:44 AM
To: balmat...@aol.com ; tmic-list@eskimo.com
Subject: Re: [TMIC] help
Hi Barb:
It has been a crazy couple of months...at the end of january my company
closed so i am currently on unemploymentnot the end of the world...i am 63
so I am not far from
-Original Message-
From: Barbara Alma
To: robthecfo
Sent: Fri, Feb 25, 2011 7:33 pm
Subject: Re: [TMIC] help
Hi Rob,
Sorry to hear about the job, and the company. It may be a good time to just
enjoy getting unemployment for a little bit and take a vacation for yourself,
whether it&#
I think you have to unsubscribe and then subscribe under the new email.
Lori
From: robthe...@aol.com
Sent: Wednesday, February 23, 2011 1:53 PM
To: tmic-list@eskimo.com
Subject: [TMIC] help
I no longer have access to my work email which was "rp...@neillsupply.com.
I just subscribed usi
I no longer have access to my work email which was "rp...@neillsupply.com.
I just subscribed using my home email address" robthe...@aol.com"
Question...how do I get rid of the old address?
Rob in New Jersey
I make dolls (mainly to sell my doll patterns) and would send her
one, if you p-mail me her address.
There's an organization that organizes mail and goodies for sick kids.
http://www.hugsandhope.org/
you might want to use http://www.caringbridge.org
--
Here is an article from the South Bend (Indiana)Tribune about help for a young
lady with ADEM I thought might be interesting for some or all.
Gary (Niles, MI near South Bend)
, 2009 9:02 PM
To: TMIC
Subject: [TMIC] Help getting in touch with Todd Tarno
Can I get the groups assistance getting Todd Tarno to get in touch with me.
This is concerning the raffle that we had and he was the winner of. I've sent
him multiple emails to the email address that shows up here o
I don't have any other addresses for him. It's possible he's away for the
holidays.
Barbara H.
http://barabarah.wordpress.com
On Wed, Dec 30, 2009 at 10:02 PM, kevin weilacher wrote:
> Can I get the groups assistance getting Todd Tarno to get in touch with me.
> This is concerning the raffle tha
Can I get the groups assistance getting Todd Tarno to get in touch with me.
This is concerning the raffle that we had and he was the winner of. I've sent
him multiple emails to the email address that shows up here on the group and
I've also sent him a note on the TM Network and Facebook too.
He
: [TMIC] Help, Advise please
Better Safe Than Sorry!! I would go to the ER. Just my opinion.
Subject: [TMIC] Help, Advise please
Have had TM since 04 this is a first and need advise
had relapse last april 08.. legs were more numb than ususal
today legs are more numb but arms have little
From: HEATHER FRASER
To: kimr1...@bellsouth.net
Cc: TMIC
Sent: Wednesday, January 21, 2009 9:21:22 PM
Subject: Re: [TMIC] Help, Advise please
Kim,
I think you should be seeing your neuro right away.
Thinking of you,
Heather in Calgary
- Original
Kim,
I think you should be seeing your neuro right away.
Thinking of you,
Heather in Calgary
- Original Message -
From: kimr1...@bellsouth.net
Date: Wednesday, January 21, 2009 4:40 pm
Subject: [TMIC] Help, Advise please
To: TMIC
> Have had TM since 04 this is a first and need adv
Better Safe Than Sorry!! I would go to the ER. Just my opinion.
Subject: [TMIC] Help, Advise please
Have had TM since 04 this is a first and need advise
had relapse last april 08.. legs were more numb than ususal
today legs are more numb but arms have little to no strenght, hand hurt
Have had TM since 04 this is a first and need advise
had relapse last april 08.. legs were more numb than ususal
today legs are more numb but arms have little to no strenght, hand hurt.. no strenght can't grip anything, hurt to straighten out (feel like when you have raked a yard all day
Did you get this, Ann??
Jeanne in Dayton
I am getting the digest but am not getting the individual postings. Up
until this past week I have been getting the posting for all of you. Any
suggestions?
Ann in Virginia
**Get the Moviefone Toolbar. Showtimes, theaters, movie news &
more!(http://pr.atwola.com/promoclk/10
*Sal,*
**
*Honey, I'll start looking for you right now. Not to worry, I'm very good
at this.*
**
*Chin up!*
*Gracie*
Does anyone know of a Neurologist that has experience with TM in Sacramento,
Ca? I have not seen a right neuro for 2 and half years. Please help.
__
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around
http://mail.yahoo
How do I get off the email list? I am getting so emails I can not keep up.
Please remove me from the list or let me know how I can get the emails to stop!
Thanks,
Colleen Shaw
Colleen
LET'S FIND A CURE FOR CROHN'S DISEASE
-
Looking
Hi,
www.whalesrevenge.com is trying to get a million people to sign a petition to
stop whaling.
If you could tell as many people as you can about our website, that would be a
great help.
Thanks for your support and remember to sign the petition.
Tonya,
Thanks for the info. Fort Smith is like 3 hrs. from us. Perhaps my back
surgeon I am soon going to will help me find a good neurologist or other pain
dr. I think I need a pain dr. because I am on fentanyl patches and I don't
think neuros. can prescribe them regularly; but not for sur
Hi to all,
Does anyone in the group live in Arkansas and go to a pain dr. in North
Little Rock, or Little Rock? I am on the search of a pain dr. for my pain
meds. I don't have much luck w/ them & in my experience they are becoming here
more & more like "Gods". My pcp dr. faxed info about me
Mornin' Jude ~
Thank you honey for letting me know your experience with the
Lyrica.
I started keeping a file on Lyrica emails and they are running about 80%
for and 20% against it.. I'm leaning toward trying it my banding has
been so much worse lately. It used to just come and go
Title: AOL Email
Hey Lynn,
Sorry to make this "public" but when I send you email
now, it comes back as "no such address/member.'
What's going on? Let me know, OK? I cannot go too
long without you!
Love Ya,
Title: AOL Email
Hi Lynn, my dear
friend...
When I first switched to Lyrica it took me about three times
before I was able to make it through the whole regime of titering off of
the Neurontin while getting onto the Lyrica. The pain wa
I'm glad I changed to the Lyrica. It was so hard to remember to take the Neurontin 3 times a day. The 2nd was the hardest to remember, but then I would start feeling the pain and know that I had forgotten my 2nd dose. I only take 75 mg Lyrica twice a day and it is wonderful. Todd in CC, TX
Hi Jude ~
Please don't feel badlyI think we all feel "twitchy" at
times and sometimes wish we could take back something we said. I know I
have...!
We all just need to forgive each otherand ourselveson those
days.
I so hope things will improve for you Jude.. you are a good
Very well said Bob. Thank you so much!
Michelle - (NEWBIE)
Bothell, WA
TM2000 to MS2006
Title: AOL Email
Lynn,
You are so kind. I have made myself
feel like an ass, again. I was feeling "twitchy" and took it out on
"unsubs."
Thanks for doing a job that no one thanks you
for.
Peace,
Jude
OOPS
> My second most favorite site dealing with immuno- diseases is Brain Talk at
> Harvard Neurology, Multiple Sclerosis.
BrainTalk does NOT have a group for T.M., they try to welcome people but again
it'x just sort of left up to the group.
F
Bob,
Excellent idea.
My second most favorite site dealing with immuno- diseases is Brain Talk at
Harvard Neurology, Multiple Sclerosis. BrainTalk does have a group for T.M.,
they try to welcome people but again it'x just sort of left up to the group.
T,M, and M.S. have many similar symptoms a
MY APOLOGY IF ANYONE THOUGHT MY E-MAIL INTIMATED OUR TABLE CONVERSATIONS WERE UNSAVORY. THAT WAS NOT MY INTENT. I LIKE TOD'S REPRINT OF SANDY'S E-MAIL WELCOMING MARIE. MAYBE WE, OR SOMEONE, COULD SEE THAT NEWBIES ALSO GET IT WHEN THEY JOIN OR WHEN WE SEE ONE.
IT IS A GREAT INTRO AS WELL AS
Hi Bob and All ~
Excellent letter Bobgreat ideas..!
Thought I should pop in here and let everyone know that I have
been handling the "unsubscribers" for many months now. I write to them off
list as soon as I see their email. There are many reasons why they have
unsubscribed...
mposed upon the taxpayer.
> [Original Message]
> From: [EMAIL PROTECTED] <[EMAIL PROTECTED]>
> To: <[EMAIL PROTECTED]>;
> Date: 10/10/2006 9:04:50 AM
> Subject: Re: [TMIC] hELP WITH UNSUBSCRIBING
>
>
> > I feel like I am acting like a big bitch (sorry if I off
> I feel like I am acting like a big bitch (sorry if I offended anyone) . How
> do people find their way onto the TMIC List?
Jude,
This is one of the mytsteries of the internet.
I think that people are generally lazy.
They are motivated when searching for us, then unmotivated (satiated) w
Title: AOL Email
I feel like I am acting like a big bitch
(sorry if I offended anyone) . How do people find their way onto the
TMIC List? Don't they know where to go to find out how to
unsubscribe?
I am so tired of emailing people to
Do you know about these? They both have programs for many different disorders or diseases and will provide meds at no cost and will also pay co-pays or will pay during the "gap" period with Medicare Part D. National Organization for Rare Disorders, Inc (NORD) in Danbury CT. 1 866-924-0100Patien
In my case, the lesions showed up very clearly on
the initial MRI. With each new attack (I have relapsing Devic's.)
both old and new lesions are always visible.
Grace
PM
Subject: [TMIC] help with questions
I have been subscribed to the site for a while
now and have searched archive records for assistance to my
problem.
February 1999 I woke up one Monday morning
with a strange feeling from my waistdown. Over the next three weeks i steadily
> The abnormalities seen in your spinal fluid are consistant with those I > see
> in MS patients, so lets wait and see.
> MRI. This one showed white matter suspious of MS.
sounds like MS to me. I'd like to see MRI's of Brain over the next few years.
Do you have a lesion in your spinal cord?
I have been subscribed to the site for a while now
and have searched archive records for assistance to my problem.
February 1999 I woke up one Monday morning
with a strange feeling from my waistdown. Over the next three weeks i steadily
got worse and had to use a cane for walking. At the
I am looking for the following
people. If you know how I can contact them, please let me know, or if you
are one of these people, please send me a private reply.
Neil and Wendy Ross (Cole's Mom and
Dad)
Larry Throne from
Oklahoma
Glen Winkel
If any of you know how to contact
them, plea
tmic-list@eskimo.com
Sent: Saturday, November 19, 2005 1:51
PM
Subject: [TMIC] Help TMA
If any of our folks are thinking about
shopping on line for Christmas presents, I would
like to suggest finding a place to shop
that supports our own organization.
That would be the
Subject: Re: [TMIC] Help TMA
In a message dated 11/19/2005 5:03:05 PM Eastern Standard Time, [EMAIL PROTECTED] writes:
I have the Transerve Myelitis Association listed there as my charity of
choice. I don't know if I've ever heard of the International Disability
Association -- I
In a message dated 11/19/2005 5:03:05 PM Eastern Standard Time,
[EMAIL PROTECTED] writes:
I have the Transerve Myelitis Association listed there as my charity of
choice. I don't know if I've ever heard of the International Disability
Association -- It sounds a little like Gunny's orgn
I have the Transerve Myelitis Association listed there as my charity of
choice. I don't know if I've ever heard of the International Disability
Association -- It sounds a little like Gunny's orgnaization, but I can't
remember for sure.
Barbara H.
In a message dated 11/19/2005 4:54:03 PM
If any of our folks are thinking about
shopping on line for Christmas presents, I would
like to suggest finding a place to shop
that supports our own organization.
That would be the iGive mall where they
have everything from cloths to xylophones to
well...what ever you can think of.
If yo
> This might sound silly but is there any way you can interrupt the flow of
> water from the jets by fixing a hand towel to the nozzle, with a wide rubber
> band or something?
Jude,
excellent idea, very inexpensi9ve too
thanks
f
Hey Frank,
What I have done with my problem is this: I got
a hand held shower wand, opened the part where the water comes out, cut a slim
slice of sponge and stuck it right inside the shower head. The water comes out
very softly, kind of like a gentle stream. It takes a little longer to showe
In a message dated 11/18/2005 9:24:23 AM Central Standard Time,
[EMAIL PROTECTED] writes:
Dear
People,I have run into a problem ande need your help, suggestions,
support.I hate to have showers, and have major problems getting into
and out of the tub.This has slowly come upon me over t
Grace and all,
Thanks so much for all the advice and support.
It good to know that I'm not in the shower, or tub, alone.
I'll wash your back if you do mine!!
pH
Frank,
I too have super sensitive skin but only on my legs. COLD/COOL water sends
my pain through the roof and will cause a bad spasm. I have a roll in shower and
go in backwards and let the water roll down from behind so it doesn't hit
the legs directly. Also, could you "soap up" and then ju
I can't stand taking a shower either, so I've resorted to lukewarm tub
baths---which bring along their own set of problems. I hate the feel of the
washcloth on my skin, so use my hands to lather. Also, a tip from my
doctor re: making things easier. A small squirt of no tears baby shampoo
into
Frank ~
Bob & Patti gave you the right advice on hand held shower
heads.
I'm with you...I can't stand under a shower either with this
hypersensitive skin!
One thing I would suggest is a padded bath bench. I have
tried both and the padded one works best for mehowever..
Hi!
Great minds think alike!
Patti - Michigan
>
> From: "ROBERT COOK" <[EMAIL PROTECTED]>
> Date: 2005/11/18 Fri AM 09:34:06 CST
> To: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>, tmIc-list@eskimo.com
> Subject: RE: [TMIC] Help!!
>
> HYPER
t; From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>
> Date: 2005/11/18 Fri AM 09:23:00 CST
> To: tmIc-list@eskimo.com
> Subject: [TMIC] Help!!
>
> Dear People,
>
> I have run into a problem ande need your help, suggestions, support.
>
> I hate to have showers,
THAT DRY SHOWER STUFF FOR CLEANSING DURING
THE INTERIM.
> [Original Message]
> From: [EMAIL PROTECTED] <[EMAIL PROTECTED]>
> To:
> Date: 11/18/2005 9:23:44 AM
> Subject: [TMIC] Help!!
>
> Dear People,
>
> I have run into a problem ande need your help, suggestion
Dear People,
I have run into a problem ande need your help, suggestions, support.
I hate to have showers, and have major problems getting into and out of the tub.
This has slowly come upon me over the last two years (TM since Aug 2000), and
is now so bad that I bathe only when forced to by the
67 matches
Mail list logo
