Re: [CMLHope] Blood checkup platelets still over million
It will work!!! Might have some initial glitches until you get regulatedstay your course my friend. you are awesome...have a good day.. hope the headache subsides...18's .Beth -Original Message- From: ICANDOALLTTC via CMLHope To: cmlhope Sent: Tue, Jan 27, 2015 5:43 am Subject: Re: [CMLHope] Blood checkup platelets still over million Thanks Beth, Jeanie's last stand hehe--4th tki in 11 years. You know I will fight on! Blessings And Prayers 18's Love In a message dated 1/26/2015 6:03:08 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Jeanie- Ponatinib was made specifically for mutation issues. Be positive!!! It's going to work for you! it has done a great job for many already, the majority without a lot of side effects. Go you Beth :) -Original Message- From: 'Icandoallttc' via CMLHope To: cmlhope Sent: Mon, Jan 26, 2015 2:59 pm Subject: Re: [CMLHope] Blood checkup platelets still over million Hi Beth and thanks, I have high blood pressure and wasn't taking anything for it. I have the cuff. I started on small dose clondine a few days ago. I did have the mutant g250A. This mutant has been reported to confer resistance to BCR-ABL1 tkis. I had been on sprycel since sept 2009-about the same amount of time I was on gleevec before I got a mutant and it quit working. The recent test show I am in acelerated phase of cml. The ponatinib is supposed to not be affected by the mutants. Keep praying as I pray for you and all. I love you too. Prayers & Blessings Jeanie 18's On Jan 26, 2015, at 3:38 PM, bkbarney via CMLHope wrote: I am feeling pretty crappy but trying to find my anchor..lots of tests...waiting to go back to Mayo on the 12th of February. MRI yesterday of my throat/neck to look and see why so much pain there...I am blessed and I know it as my blood looks pretty darn good and I trust the sprycel will work it's magic again against the cancer. Once it does, I am considering with my oncologist Ponatinib as well. The one thing I would want to pass on ..is if you don't have one, maybe get a blood pressure cuff and take your pressure a couple times a day. It seems that the issue of stroke etc..is that it can push your pressure up without any one knowing in a short period of time. ..then people take meds to lower the BPetc...this blood pressure spike can come on or not...if it does, it can happen suddenlyso simply keeping track of your blood pressure daily would be a smart thing to do as a protective measure. That's my two cents You have a lot on your plate... but you have all of us here with you...praying, and hoping and smiling..cause we love you..Take care.on your first week..praying for no side effects and a great outcome for youyou have been through enough for now..you need a break Thanks for your noteBeth :) -Original Message- From: 'Icandoallttc' via CMLHope To: cmlhope Sent: Mon, Jan 26, 2015 2:30 pm Subject: Re: [CMLHope] Blood checkup platelets still over million Thanks Beth, Is it time for the pity party??? I am going to start on the big breakfast with new med. It helped when I was on gleevec. How are you??? Blessings Jeanie 18's On Jan 26, 2015, at 3:12 PM, bkbarney via CMLHope wrote: Good luck with the Ponatinib Jeanie. Hope it works well for you. Hope those platelets come down soon. Hang in there! and susan, don't know why you are feeling so low, but I hope they can tweek your meds and that that will help improve how you feel. Take good care, love to all and 18's Beth -Original Message- From: 'Susan Zimmerman' via CMLHope To: cmlhope Sent: Mon, Jan 26, 2015 1:54 pm Subject: Re: [CMLHope] Blood checkup platelets still over million Hi Jeanie, Will be praying and believing with you that this will be easily tolerated by your body and counts will go down very quickly. I can't seem to want to stay out of the bed very long lately.Just exhausted, don't know why, trying different things. I am only on 100 mg a day of bosulif and can't imagine that's causing it.What does anybody else think? We upped my antidepressant and lowered my blood pressure med to see if this helps. Going to a cardiologist soon. Everyone, we are all in this together and we'll all make it through!!! 18's, Susan -Original Message----- From: 'Icandoallttc' via CML
Re: [CMLHope] Blood checkup platelets still over million
Hi Marty and thanks--you are so right!!! The dr seemed so concerned about the side effects but I have had them for 11 years. He wants me back in three days and I don't think that's long enough to see if the drug works, but that's what he wants so I'll do it! Blessings Jeanie<3 In a message dated 1/26/2015 5:06:13 P.M. Eastern Standard Time, wa2...@gmail.com writes: Hi Jeanie, First, I wish you the best of luck with your new TKI. And you said "what other choice do I have" Well, you don't have any other choice but as I keep on saying there is a cure coming soon, then you won't have to make any choices. 18's, Marty On Mon, Jan 26, 2015 at 1:54 PM, 'Icandoallttc' via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote: Hi all, Blessings Jeanie 18's 🐠🐠 -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to _CMLHope@googlegroups.com_ (mailto:CMLHope@googlegroups.com) To unsubscribe from this group, send email to _CMLHope-unsubscribe@googlegroups.com_ (mailto:cmlhope-unsubscr...@googlegroups.com) For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+unsubscribe@googlegroups.com_ (mailto:cmlhope+unsubscr...@googlegroups.com) . For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+unsubscribe@googlegroups.com_ (mailto:cmlhope+unsubscr...@googlegroups.com) . For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Blood checkup platelets still over million
Thanks Beth, Jeanie's last stand hehe--4th tki in 11 years. You know I will fight on! Blessings And Prayers 18's Love In a message dated 1/26/2015 6:03:08 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Jeanie- Ponatinib was made specifically for mutation issues. Be positive!!! It's going to work for you! it has done a great job for many already, the majority without a lot of side effects. Go you Beth :) -Original Message- From: 'Icandoallttc' via CMLHope To: cmlhope Sent: Mon, Jan 26, 2015 2:59 pm Subject: Re: [CMLHope] Blood checkup platelets still over million Hi Beth and thanks, I have high blood pressure and wasn't taking anything for it. I have the cuff. I started on small dose clondine a few days ago. I did have the mutant g250A. This mutant has been reported to confer resistance to BCR-ABL1 tkis. I had been on sprycel since sept 2009-about the same amount of time I was on gleevec before I got a mutant and it quit working. The recent test show I am in acelerated phase of cml. The ponatinib is supposed to not be affected by the mutants. Keep praying as I pray for you and all. I love you too. Prayers & Blessings Jeanie 18's On Jan 26, 2015, at 3:38 PM, bkbarney via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote: I am feeling pretty crappy but trying to find my anchor..lots of tests...waiting to go back to Mayo on the 12th of February. MRI yesterday of my throat/neck to look and see why so much pain there...I am blessed and I know it as my blood looks pretty darn good and I trust the sprycel will work it's magic again against the cancer. Once it does, I am considering with my oncologist Ponatinib as well. The one thing I would want to pass on ..is if you don't have one, maybe get a blood pressure cuff and take your pressure a couple times a day. It seems that the issue of stroke etc..is that it can push your pressure up without any one knowing in a short period of time. ..then people take meds to lower the BPetc...this blood pressure spike can come on or not...if it does, it can happen suddenlyso simply keeping track of your blood pressure daily would be a smart thing to do as a protective measure. That's my two cents You have a lot on your plate... but you have all of us here with you...praying, and hoping and smiling..cause we love you..Take care.on your first week..praying for no side effects and a great outcome for youyou have been through enough for now..you need a break Thanks for your noteBeth :) -Original Message- From: 'Icandoallttc' via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > To: cmlhope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > Sent: Mon, Jan 26, 2015 2:30 pm Subject: Re: [CMLHope] Blood checkup platelets still over million Thanks Beth, Is it time for the pity party??? I am going to start on the big breakfast with new med. It helped when I was on gleevec. How are you??? Blessings Jeanie 18's On Jan 26, 2015, at 3:12 PM, bkbarney via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote: Good luck with the Ponatinib Jeanie. Hope it works well for you. Hope those platelets come down soon. Hang in there! and susan, don't know why you are feeling so low, but I hope they can tweek your meds and that that will help improve how you feel. Take good care, love to all and 18's Beth -Original Message- From: 'Susan Zimmerman' via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > To: cmlhope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > Sent: Mon, Jan 26, 2015 1:54 pm Subject: Re: [CMLHope] Blood checkup platelets still over million Hi Jeanie, Will be praying and believing with you that this will be easily tolerated by your body and counts will go down very quickly. I can't seem to want to stay out of the bed very long lately. Just exhausted, don't know why, trying different things. I am only on 100 mg a day of bosulif and can't imagine that's causing it. What does anybody else think? We upped my antidepressant and lowered my blood pressure med to see if this helps. Going to a cardiologist soon. Everyone, we are all in this together and we'll all make it through!!! 18's, Susan -Original Message- From: 'Icandoallttc' via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > To: cmlhope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > Sent: Mon, Jan 26, 2015 2:47 pm Subject: Re: [CMLHope] Blood checkup platelets still over million Thanks Greenie and I will Blessings Jeanie 18's On Ja
Re: [CMLHope] Blood checkup platelets still over million
Jeanie, Thanks for keeping us in the loop. Please continue to let us know how you are tolerating ponatinib. I am praying for you that this drug will work for you and not have unmanageable side effects. God bless and keep you, Joyce in IL On Jan 26, 2015, at 1:00 PM, 'Icandoallttc' via CMLHope wrote: > Just took my first dose of ponatinib. He said to take 3--15 mg tablets daily > to see if it would bring the counts down. > Do this for 3 days and see him on thurs. > There is danger of heart problems--blood clots--stroke and ect--/ real fun > but what other choice do I have??? > 1 baby aspirin daily and stay on the allopurinol daily. Hope every one is > good. Let us know. > Prayers > > Blessings Jeanie 18's 🐠🐠 > >> On Jan 26, 2015, at 1:54 PM, "'Icandoallttc' via CMLHope" >> wrote: >> >> Hi all, >> >> >> Blessings Jeanie 18's 🐠🐠 >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Blood checkup platelets still over million
Jeanie- Ponatinib was made specifically for mutation issues. Be positive!!! It's going to work for you! it has done a great job for many already, the majority without a lot of side effects. Go you Beth :) -Original Message- From: 'Icandoallttc' via CMLHope To: cmlhope Sent: Mon, Jan 26, 2015 2:59 pm Subject: Re: [CMLHope] Blood checkup platelets still over million Hi Beth and thanks, I have high blood pressure and wasn't taking anything for it. I have the cuff. I started on small dose clondine a few days ago. I did have the mutant g250A. This mutant has been reported to confer resistance to BCR-ABL1 tkis. I had been on sprycel since sept 2009-about the same amount of time I was on gleevec before I got a mutant and it quit working. The recent test show I am in acelerated phase of cml. The ponatinib is supposed to not be affected by the mutants. Keep praying as I pray for you and all. I love you too. Prayers & Blessings Jeanie 18's On Jan 26, 2015, at 3:38 PM, bkbarney via CMLHope wrote: I am feeling pretty crappy but trying to find my anchor..lots of tests...waiting to go back to Mayo on the 12th of February. MRI yesterday of my throat/neck to look and see why so much pain there...I am blessed and I know it as my blood looks pretty darn good and I trust the sprycel will work it's magic again against the cancer. Once it does, I am considering with my oncologist Ponatinib as well. The one thing I would want to pass on ..is if you don't have one, maybe get a blood pressure cuff and take your pressure a couple times a day. It seems that the issue of stroke etc..is that it can push your pressure up without any one knowing in a short period of time. ..then people take meds to lower the BPetc...this blood pressure spike can come on or not...if it does, it can happen suddenlyso simply keeping track of your blood pressure daily would be a smart thing to do as a protective measure. That's my two cents You have a lot on your plate... but you have all of us here with you...praying, and hoping and smiling..cause we love you..Take care.on your first week..praying for no side effects and a great outcome for youyou have been through enough for now..you need a break Thanks for your noteBeth :) -Original Message- From: 'Icandoallttc' via CMLHope To: cmlhope Sent: Mon, Jan 26, 2015 2:30 pm Subject: Re: [CMLHope] Blood checkup platelets still over million Thanks Beth, Is it time for the pity party??? I am going to start on the big breakfast with new med. It helped when I was on gleevec. How are you??? Blessings Jeanie 18's On Jan 26, 2015, at 3:12 PM, bkbarney via CMLHope wrote: Good luck with the Ponatinib Jeanie. Hope it works well for you. Hope those platelets come down soon. Hang in there! and susan, don't know why you are feeling so low, but I hope they can tweek your meds and that that will help improve how you feel. Take good care, love to all and 18's Beth -Original Message- From: 'Susan Zimmerman' via CMLHope To: cmlhope Sent: Mon, Jan 26, 2015 1:54 pm Subject: Re: [CMLHope] Blood checkup platelets still over million Hi Jeanie, Will be praying and believing with you that this will be easily tolerated by your body and counts will go down very quickly. I can't seem to want to stay out of the bed very long lately. Just exhausted, don't know why, trying different things. I am only on 100 mg a day of bosulif and can't imagine that's causing it. What does anybody else think? We upped my antidepressant and lowered my blood pressure med to see if this helps. Going to a cardiologist soon. Everyone, we are all in this together and we'll all make it through!!! 18's, Susan -Original Message- From: 'Icandoallttc' via CMLHope To: cmlhope Sent: Mon, Jan 26, 2015 2:47 pm Subject: Re: [CMLHope] Blood checkup platelets still over million Thanks Greenie and I will Blessings Jeanie 18's On Jan 26, 2015, at 2:15 PM, Myvety2k via CMLHope wrote: Good Luck and think positive. greenie In a message dated 1/26/2015 2:00:25 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Just took my first dose of ponatinib. He said to take 3--15 mg tablets daily to see if it would bring the counts down. Do this for 3 days and see him on thurs. There is danger of heart problems--blood clots--stroke and ect--/ real fun but what other choice do I have??? 1 baby aspirin daily and stay on the allopurinol daily. Hope every one is good. Let us know. Prayers Blessings Jeanie 18's > On Jan 26, 2015, at 1:54 PM, "'Icandoallttc' via CMLHope" > wrote: > > Hi all, > > > Blessings Jeanie 18's > > -- > -- > [CMLHope] > A support grou
Re: [CMLHope] Blood checkup platelets still over million
Hi Jeanie, First, I wish you the best of luck with your new TKI. And you said "what other choice do I have" Well, you don't have any other choice but as I keep on saying there is a cure coming soon, then you won't have to make any choices. 18's, Marty On Mon, Jan 26, 2015 at 1:54 PM, 'Icandoallttc' via CMLHope < cmlhope@googlegroups.com> wrote: > Hi all, > > > Blessings Jeanie 18's 🐠🐠 > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Blood checkup platelets still over million
Hi Beth and thanks, I have high blood pressure and wasn't taking anything for it. I have the cuff. I started on small dose clondine a few days ago. I did have the mutant g250A. This mutant has been reported to confer resistance to BCR-ABL1 tkis. I had been on sprycel since sept 2009-about the same amount of time I was on gleevec before I got a mutant and it quit working. The recent test show I am in acelerated phase of cml. The ponatinib is supposed to not be affected by the mutants. Keep praying as I pray for you and all. I love you too. Prayers & Blessings Jeanie 18's 🐠🐠 > On Jan 26, 2015, at 3:38 PM, bkbarney via CMLHope > wrote: > > I am feeling pretty crappy but trying to find my anchor..lots of > tests...waiting to go back to Mayo on the 12th of February. MRI yesterday of > my throat/neck to look and see why so much pain there...I am blessed and I > know it as my blood looks pretty darn good and I trust the sprycel will work > it's magic again against the cancer. Once it does, I am considering with my > oncologist Ponatinib as well. The one thing I would want to pass on ..is if > you don't have one, maybe get a blood pressure cuff and take your pressure a > couple times a day. It seems that the issue of stroke etc..is that it can > push your pressure up without any one knowing in a short period of time. > ..then people take meds to lower the BPetc...this blood pressure spike > can come on or not...if it does, it can happen suddenlyso simply keeping > track of your blood pressure daily would be a smart thing to do as a > protective measure. That's my two cents > > You have a lot on your plate... but you have all of us here with > you...praying, and hoping and smiling..cause we love you..Take care.on > your first week..praying for no side effects and a great outcome for > youyou have been through enough for now..you need a break > > Thanks for your noteBeth :) > > > -Original Message- > From: 'Icandoallttc' via CMLHope > To: cmlhope > Sent: Mon, Jan 26, 2015 2:30 pm > Subject: Re: [CMLHope] Blood checkup platelets still over million > > Thanks Beth, > Is it time for the pity party??? > I am going to start on the big breakfast with new med. It helped when I was > on gleevec. > How are you??? > > Blessings Jeanie 18's > > On Jan 26, 2015, at 3:12 PM, bkbarney via CMLHope > wrote: > >> Good luck with the Ponatinib Jeanie. Hope it works well for you. >> Hope those platelets come down soon. >> Hang in there! >> >> and susan, don't know why you are feeling so low, but I hope they can tweek >> your meds and that that will help improve how you feel. >> >> Take good care, love to all and 18's Beth >> >> -Original Message- >> From: 'Susan Zimmerman' via CMLHope >> To: cmlhope >> Sent: Mon, Jan 26, 2015 1:54 pm >> Subject: Re: [CMLHope] Blood checkup platelets still over million >> >> Hi Jeanie, >> Will be praying and believing with you that this will be easily tolerated by >> your body and counts will go down very quickly. >> >> I can't seem to want to stay out of the bed very long lately. Just >> exhausted, don't know why, trying different things. I am only on 100 mg a >> day of bosulif and can't imagine that's causing it. What does anybody else >> think? We upped my antidepressant and lowered my blood pressure med to see >> if this helps. Going to a cardiologist soon. >> >> Everyone, we are all in this together and we'll all make it through!!! >> >> 18's, >> Susan >> >> -Original Message- >> From: 'Icandoallttc' via CMLHope >> To: cmlhope >> Sent: Mon, Jan 26, 2015 2:47 pm >> Subject: Re: [CMLHope] Blood checkup platelets still over million >> >> Thanks Greenie and I will >> >> Blessings Jeanie 18's >> >> On Jan 26, 2015, at 2:15 PM, Myvety2k via CMLHope >> wrote: >> >>> Good Luck and think positive. >>> >>> greenie >>> >>> >>> >>> In a message dated 1/26/2015 2:00:25 P.M. Eastern Standard Time, >>> cmlhope@googlegroups.com writes: >>> Just took my first dose of ponatinib. He said to take 3--15 mg tablets >>> daily to see if it would bring the counts down. >>> Do this for 3 days and see him on thurs. >>> There is danger of heart problems--blood clots--stroke and ect--/ real fun >>> but what other choice do I have??? >>> 1 baby aspirin daily a
Re: [CMLHope] Blood checkup platelets still over million
I am feeling pretty crappy but trying to find my anchor..lots of tests...waiting to go back to Mayo on the 12th of February. MRI yesterday of my throat/neck to look and see why so much pain there...I am blessed and I know it as my blood looks pretty darn good and I trust the sprycel will work it's magic again against the cancer. Once it does, I am considering with my oncologist Ponatinib as well. The one thing I would want to pass on ..is if you don't have one, maybe get a blood pressure cuff and take your pressure a couple times a day. It seems that the issue of stroke etc..is that it can push your pressure up without any one knowing in a short period of time. ..then people take meds to lower the BPetc...this blood pressure spike can come on or not...if it does, it can happen suddenlyso simply keeping track of your blood pressure daily would be a smart thing to do as a protective measure. That's my two cents You have a lot on your plate... but you have all of us here with you...praying, and hoping and smiling..cause we love you..Take care.on your first week..praying for no side effects and a great outcome for youyou have been through enough for now..you need a break Thanks for your noteBeth :) -Original Message- From: 'Icandoallttc' via CMLHope To: cmlhope Sent: Mon, Jan 26, 2015 2:30 pm Subject: Re: [CMLHope] Blood checkup platelets still over million Thanks Beth, Is it time for the pity party??? I am going to start on the big breakfast with new med. It helped when I was on gleevec. How are you??? Blessings Jeanie 18's On Jan 26, 2015, at 3:12 PM, bkbarney via CMLHope wrote: Good luck with the Ponatinib Jeanie. Hope it works well for you. Hope those platelets come down soon. Hang in there! and susan, don't know why you are feeling so low, but I hope they can tweek your meds and that that will help improve how you feel. Take good care, love to all and 18's Beth -Original Message- From: 'Susan Zimmerman' via CMLHope To: cmlhope Sent: Mon, Jan 26, 2015 1:54 pm Subject: Re: [CMLHope] Blood checkup platelets still over million Hi Jeanie, Will be praying and believing with you that this will be easily tolerated by your body and counts will go down very quickly. I can't seem to want to stay out of the bed very long lately. Just exhausted, don't know why, trying different things. I am only on 100 mg a day of bosulif and can't imagine that's causing it. What does anybody else think? We upped my antidepressant and lowered my blood pressure med to see if this helps. Going to a cardiologist soon. Everyone, we are all in this together and we'll all make it through!!! 18's, Susan -Original Message- From: 'Icandoallttc' via CMLHope To: cmlhope Sent: Mon, Jan 26, 2015 2:47 pm Subject: Re: [CMLHope] Blood checkup platelets still over million Thanks Greenie and I will Blessings Jeanie 18's On Jan 26, 2015, at 2:15 PM, Myvety2k via CMLHope wrote: Good Luck and think positive. greenie In a message dated 1/26/2015 2:00:25 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Just took my first dose of ponatinib. He said to take 3--15 mg tablets daily to see if it would bring the counts down. Do this for 3 days and see him on thurs. There is danger of heart problems--blood clots--stroke and ect--/ real fun but what other choice do I have??? 1 baby aspirin daily and stay on the allopurinol daily. Hope every one is good. Let us know. Prayers Blessings Jeanie 18's > On Jan 26, 2015, at 1:54 PM, "'Icandoallttc' via CMLHope" > wrote: > > Hi all, > > > Blessings Jeanie 18's > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscri
Re: [CMLHope] Blood checkup platelets still over million
Thanks Beth, Is it time for the pity party??? I am going to start on the big breakfast with new med. It helped when I was on gleevec. How are you??? Blessings Jeanie 18's 🐠🐠 > On Jan 26, 2015, at 3:12 PM, bkbarney via CMLHope > wrote: > > Good luck with the Ponatinib Jeanie. Hope it works well for you. > Hope those platelets come down soon. > Hang in there! > > and susan, don't know why you are feeling so low, but I hope they can tweek > your meds and that that will help improve how you feel. > > Take good care, love to all and 18's Beth > > -Original Message- > From: 'Susan Zimmerman' via CMLHope > To: cmlhope > Sent: Mon, Jan 26, 2015 1:54 pm > Subject: Re: [CMLHope] Blood checkup platelets still over million > > Hi Jeanie, > Will be praying and believing with you that this will be easily tolerated by > your body and counts will go down very quickly. > > I can't seem to want to stay out of the bed very long lately. Just > exhausted, don't know why, trying different things. I am only on 100 mg a > day of bosulif and can't imagine that's causing it. What does anybody else > think? We upped my antidepressant and lowered my blood pressure med to see > if this helps. Going to a cardiologist soon. > > Everyone, we are all in this together and we'll all make it through!!! > > 18's, > Susan > > -----Original Message- > From: 'Icandoallttc' via CMLHope > To: cmlhope > Sent: Mon, Jan 26, 2015 2:47 pm > Subject: Re: [CMLHope] Blood checkup platelets still over million > > Thanks Greenie and I will > > Blessings Jeanie 18's > > On Jan 26, 2015, at 2:15 PM, Myvety2k via CMLHope > wrote: > >> Good Luck and think positive. >> >> greenie >> >> >> >> In a message dated 1/26/2015 2:00:25 P.M. Eastern Standard Time, >> cmlhope@googlegroups.com writes: >> Just took my first dose of ponatinib. He said to take 3--15 mg tablets >> daily to see if it would bring the counts down. >> Do this for 3 days and see him on thurs. >> There is danger of heart problems--blood clots--stroke and ect--/ real fun >> but what other choice do I have??? >> 1 baby aspirin daily and stay on the allopurinol daily. Hope every one is >> good. Let us know. >> Prayers >> >> Blessings Jeanie 18's >> >> > On Jan 26, 2015, at 1:54 PM, "'Icandoallttc' via CMLHope" >> > wrote: >> > >> > Hi all, >> > >> > >> > Blessings Jeanie 18's >> > >> > -- >> > -- >> > [CMLHope] >> > A support group of http://cmlhope.com >> > - >> > >> > You received this message because you are subscribed to the Google Groups >> > "CMLHope" group. >> > To post to this group, send email to CMLHope@googlegroups.com >> > To unsubscribe from this group, send email to >> > cmlhope-unsubscr...@googlegroups.com >> > For more options, visit this group at >> > http://groups.google.com/group/CMLHope >> > --- >> > You received this message because you are subscribed to the Google Groups >> > "CMLHope" group. >> > To unsubscribe from this group and stop receiving emails from it, send an >> > email to cmlhope+unsubscr...@googlegroups.com. >> > For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope&quo
Re: [CMLHope] Blood checkup platelets still over million
Hi Susan and thanks for your prayers. I have had the same problem. I got real sick about 4 months ago and have been I bed for most if that time. I didn't know my platelets were so high because I had 3 months in between drs visits but I knew something was wrong. I don't think staying in bed, if you are so tired, is bad. Just do your normal activities and walk some if possible. Eat well and do massages daily. Are you drinking lots of water? I have to drink 2-3 quarts with new meds. That is hard for me because I'm a sipper and not a glugger hehe. How is you hmg? Have you checked for anemia? Try to have some liver at least once a week and fish 3 times weekly. Prayers Blessings Jeanie 18's 🐠🐠 > On Jan 26, 2015, at 2:54 PM, "'Susan Zimmerman' via CMLHope" > wrote: > > Hi Jeanie, > Will be praying and believing with you that this will be easily tolerated by > your body and counts will go down very quickly. > > I can't seem to want to stay out of the bed very long lately. Just > exhausted, don't know why, trying different things. I am only on 100 mg a > day of bosulif and can't imagine that's causing it. What does anybody else > think? We upped my antidepressant and lowered my blood pressure med to see > if this helps. Going to a cardiologist soon. > > Everyone, we are all in this together and we'll all make it through!!! > > 18's, > Susan > > -Original Message----- > From: 'Icandoallttc' via CMLHope > To: cmlhope > Sent: Mon, Jan 26, 2015 2:47 pm > Subject: Re: [CMLHope] Blood checkup platelets still over million > > Thanks Greenie and I will > > Blessings Jeanie 18's > > On Jan 26, 2015, at 2:15 PM, Myvety2k via CMLHope > wrote: > >> Good Luck and think positive. >> >> greenie >> >> >> >> In a message dated 1/26/2015 2:00:25 P.M. Eastern Standard Time, >> cmlhope@googlegroups.com writes: >> Just took my first dose of ponatinib. He said to take 3--15 mg tablets >> daily to see if it would bring the counts down. >> Do this for 3 days and see him on thurs. >> There is danger of heart problems--blood clots--stroke and ect--/ real fun >> but what other choice do I have??? >> 1 baby aspirin daily and stay on the allopurinol daily. Hope every one is >> good. Let us know. >> Prayers >> >> Blessings Jeanie 18's >> >> > On Jan 26, 2015, at 1:54 PM, "'Icandoallttc' via CMLHope" >> > wrote: >> > >> > Hi all, >> > >> > >> > Blessings Jeanie 18's >> > >> > -- >> > -- >> > [CMLHope] >> > A support group of http://cmlhope.com >> > - >> > >> > You received this message because you are subscribed to the Google Groups >> > "CMLHope" group. >> > To post to this group, send email to CMLHope@googlegroups.com >> > To unsubscribe from this group, send email to >> > cmlhope-unsubscr...@googlegroups.com >> > For more options, visit this group at >> > http://groups.google.com/group/CMLHope >> > --- >> > You received this message because you are subscribed to the Google Groups >> > "CMLHope" group. >> > To unsubscribe from this group and stop receiving emails from it, send an >> > email to cmlhope+unsubscr...@googlegroups.com. >> > For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >>
Re: [CMLHope] Blood checkup platelets still over million
Good luck with the Ponatinib Jeanie. Hope it works well for you. Hope those platelets come down soon. Hang in there! and susan, don't know why you are feeling so low, but I hope they can tweek your meds and that that will help improve how you feel. Take good care, love to all and 18's Beth -Original Message- From: 'Susan Zimmerman' via CMLHope To: cmlhope Sent: Mon, Jan 26, 2015 1:54 pm Subject: Re: [CMLHope] Blood checkup platelets still over million Hi Jeanie, Will be praying and believing with you that this will be easily tolerated by your body and counts will go down very quickly. I can't seem to want to stay out of the bed very long lately. Just exhausted, don't know why, trying different things. I am only on 100 mg a day of bosulif and can't imagine that's causing it. What does anybody else think? We upped my antidepressant and lowered my blood pressure med to see if this helps. Going to a cardiologist soon. Everyone, we are all in this together and we'll all make it through!!! 18's, Susan -Original Message- From: 'Icandoallttc' via CMLHope To: cmlhope Sent: Mon, Jan 26, 2015 2:47 pm Subject: Re: [CMLHope] Blood checkup platelets still over million Thanks Greenie and I will Blessings Jeanie 18's On Jan 26, 2015, at 2:15 PM, Myvety2k via CMLHope wrote: Good Luck and think positive. greenie In a message dated 1/26/2015 2:00:25 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Just took my first dose of ponatinib. He said to take 3--15 mg tablets daily to see if it would bring the counts down. Do this for 3 days and see him on thurs. There is danger of heart problems--blood clots--stroke and ect--/ real fun but what other choice do I have??? 1 baby aspirin daily and stay on the allopurinol daily. Hope every one is good. Let us know. Prayers Blessings Jeanie 18's > On Jan 26, 2015, at 1:54 PM, "'Icandoallttc' via CMLHope" > wrote: > > Hi all, > > > Blessings Jeanie 18's > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope&
Re: [CMLHope] Blood checkup platelets still over million
Hi Jeanie, Will be praying and believing with you that this will be easily tolerated by your body and counts will go down very quickly. I can't seem to want to stay out of the bed very long lately. Just exhausted, don't know why, trying different things. I am only on 100 mg a day of bosulif and can't imagine that's causing it. What does anybody else think? We upped my antidepressant and lowered my blood pressure med to see if this helps. Going to a cardiologist soon. Everyone, we are all in this together and we'll all make it through!!! 18's, Susan -Original Message- From: 'Icandoallttc' via CMLHope To: cmlhope Sent: Mon, Jan 26, 2015 2:47 pm Subject: Re: [CMLHope] Blood checkup platelets still over million Thanks Greenie and I will Blessings Jeanie 18's On Jan 26, 2015, at 2:15 PM, Myvety2k via CMLHope wrote: Good Luck and think positive. greenie In a message dated 1/26/2015 2:00:25 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Just took my first dose of ponatinib. He said to take 3--15 mg tablets daily to see if it would bring the counts down. Do this for 3 days and see him on thurs. There is danger of heart problems--blood clots--stroke and ect--/ real fun but what other choice do I have??? 1 baby aspirin daily and stay on the allopurinol daily. Hope every one is good. Let us know. Prayers Blessings Jeanie 18's > On Jan 26, 2015, at 1:54 PM, "'Icandoallttc' via CMLHope" > wrote: > > Hi all, > > > Blessings Jeanie 18's > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to
Re: [CMLHope] Blood checkup platelets still over million
Thanks Greenie and I will Blessings Jeanie 18's 🐠🐠 > On Jan 26, 2015, at 2:15 PM, Myvety2k via CMLHope > wrote: > > Good Luck and think positive. > > greenie > > > > In a message dated 1/26/2015 2:00:25 P.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > Just took my first dose of ponatinib. He said to take 3--15 mg tablets daily > to see if it would bring the counts down. > Do this for 3 days and see him on thurs. > There is danger of heart problems--blood clots--stroke and ect--/ real fun > but what other choice do I have??? > 1 baby aspirin daily and stay on the allopurinol daily. Hope every one is > good. Let us know. > Prayers > > Blessings Jeanie 18's 🐠🐠 > > > On Jan 26, 2015, at 1:54 PM, "'Icandoallttc' via CMLHope" > > wrote: > > > > Hi all, > > > > > > Blessings Jeanie 18's 🐠🐠 > > > > -- > > -- > > [CMLHope] > > A support group of http://cmlhope.com > > - > > > > You received this message because you are subscribed to the Google Groups > > "CMLHope" group. > > To post to this group, send email to CMLHope@googlegroups.com > > To unsubscribe from this group, send email to > > cmlhope-unsubscr...@googlegroups.com > > For more options, visit this group at http://groups.google.com/group/CMLHope > > --- > > You received this message because you are subscribed to the Google Groups > > "CMLHope" group. > > To unsubscribe from this group and stop receiving emails from it, send an > > email to cmlhope+unsubscr...@googlegroups.com. > > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Blood checkup platelets still over million
Good Luck and think positive. greenie In a message dated 1/26/2015 2:00:25 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Just took my first dose of ponatinib. He said to take 3--15 mg tablets daily to see if it would bring the counts down. Do this for 3 days and see him on thurs. There is danger of heart problems--blood clots--stroke and ect--/ real fun but what other choice do I have??? 1 baby aspirin daily and stay on the allopurinol daily. Hope every one is good. Let us know. Prayers Blessings Jeanie 18's 🐠🐠 > On Jan 26, 2015, at 1:54 PM, "'Icandoallttc' via CMLHope" wrote: > > Hi all, > > > Blessings Jeanie 18's 🐠🐠 > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Blood checkup platelets still over million
Just took my first dose of ponatinib. He said to take 3--15 mg tablets daily to see if it would bring the counts down. Do this for 3 days and see him on thurs. There is danger of heart problems--blood clots--stroke and ect--/ real fun but what other choice do I have??? 1 baby aspirin daily and stay on the allopurinol daily. Hope every one is good. Let us know. Prayers Blessings Jeanie 18's 🐠🐠 > On Jan 26, 2015, at 1:54 PM, "'Icandoallttc' via CMLHope" > wrote: > > Hi all, > > > Blessings Jeanie 18's 🐠🐠 > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
