Canceled: GPC Dev Weekly Teleconference

[Verhagen, Laurel A]

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ORGANIZER;CN="Verhagen, Laurel A":MAILTO:VERHAGEN.LAUREL@marshfieldresearch.o
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DESCRIPTION;LANGUAGE=en-US:When: Occurs every Tuesday from 11:00 AM to 12:0
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SUMMARY;LANGUAGE=en-US:Canceled: GPC Dev Weekly Teleconference
DTSTART;TZID=Central Standard Time:20180918T11
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FW: University of Iowa's r019 approved

[Verhagen, Laurel A]

I don’t see that this came through the gpc-dev archive. If it’s a duplicate 
message, please ignore (or feel extra applauded).

Thanks,
Laurel

From: Russ Waitman [mailto:rwait...@kumc.edu]
Sent: Wednesday, July 31, 2019 11:29 AM
To: Smith, Nicholas C; Gryzlak, Brian M; Verhagen, Laurel A; Gpc-dev
Cc: e-chrischil...@uiowa.edu
Subject: [EXTERNAL] Re: University of Iowa's r019 approved

Congratulations Iowa!

Russ


From: PCORnet OC 
Date: Wednesday, July 31, 2019 at 11:17 AM
To: "nicholas-c-sm...@uiowa.edu" , Brian Gryzlak 
, "'VERHAGEN. edu'" 
, Russ Waitman 
Cc: Allison Haufler , Darcy Louzao 
, Laura Qualls 
Subject: University of Iowa's r019 approved

Good afternoon.

I’m happy to report that University of Iowa's data curation query response for 
refresh 19 was approved.  Please retain a static, locked copy of the SAS 
version of the characterized tables and use these data when responding to SAS 
queries issued by the DRN OC or study teams, unless instructed otherwise.  You 
may update the SAS version of the HARVEST Table and the PCORNET_TRIAL Table, as 
well as your RDBMS DataMart as needed.

Thanks,
DRN OC Data Curation Team

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Intermountain HC's r013 approved

[Verhagen, Laurel A]

Congratulations Intermountain!

Thanks,
Laurel

From: PCORnet DRN OC [mailto:dr...@pcornet.org]
Sent: Monday, July 29, 2019 10:44 AM
To: Susan Rea; Verhagen, Laurel A; Russ Waitman
Cc: Allison Haufler; Darcy Louzao, Ph.D.; Laura Qualls
Subject: [EXTERNAL] Intermountain HC's r013 approved

Good morning,

I’m happy to report that Intermountain HC's data curation query response for 
refresh 13 was approved.  Please retain a static, locked copy of the SAS 
version of the characterized tables and use these data when responding to SAS 
queries issued by the DRN OC or study teams, unless instructed otherwise.  You 
may update the SAS version of the HARVEST Table and the PCORNET_TRIAL Table, as 
well as your RDBMS DataMart as needed.

Thanks,
DRN OC Data Curation Team

__
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University of Kansas' r013 approved

[Verhagen, Laurel A]

Congratulations KUMC!

Thanks,
Laurel

From: PCORnet DRN OC [mailto:dr...@pcornet.org]
Sent: Monday, July 29, 2019 10:26 AM
To: Sravani Chandaka; Imran Hafeez; Russ Waitman; Verhagen, Laurel A
Cc: Allison Haufler; Darcy Louzao, Ph.D.; Laura Qualls
Subject: [EXTERNAL] University of Kansas' r013 approved

Good morning,

I’m happy to report that University of Kansas' data curation query response for 
refresh 13 was approved.  Please retain a static, locked copy of the SAS 
version of the characterized tables and use these data when responding to SAS 
queries issued by the DRN OC or study teams, unless instructed otherwise.  You 
may update the SAS version of the HARVEST Table and the PCORNET_TRIAL Table, as 
well as your RDBMS DataMart as needed.


Thanks,
DRN OC Data Curation Team

__
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RE: HELP on Loading MS SQL dates to SAS datasets for CDMV41 tables

[Verhagen, Laurel A]

Hi Jim,

Attached is the code that we use to build SAS flat files from SQL server.

Steff noted that there are a few "time" fields that we do not fill (as we don't 
capture the data), which may automatically get set to "" in this code. If 
you use our SAS program as reference, keep an eye on the time fields and 
overall output.

Hope this helps? I know the turnaround time is tight...

Thanks,
Laurel

From: Gpc-dev [mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Campbell, 
James R
Sent: Monday, July 22, 2019 11:24 AM
To: GPC STANDARDS
Cc: Research Informatics Group, UNMC
Subject: [EXTERNAL] HELP on Loading MS SQL dates to SAS datasets for CDMV41 
tables

We are struggling to format our SAS datasets from the CDMV41 tables we have 
built and recently converted to MS SQL.  The inbound dates from MS SQL end up 
as SAS Numeric 'DATE9' format which does not match the format we had employed 
before.  Our date formatting code converts everything to '19600101'   Has 
anybody identified the SAS code to yield the format which Duke likes?  This was 
'YYMMDDN8' when we brought in the data from Oracle.
Jim Campbell

The information in this e-mail may be privileged and confidential, intended 
only for the use of the addressee(s) above. Any unauthorized use or disclosure 
of this information is prohibited. If you have received this e-mail by mistake, 
please delete it and immediately contact the sender.

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or telephone.  Thank you for your cooperation.


Build Flat Files.sas
Description: Build Flat Files.sas
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UT HSC San Antonio's r016 approved

[Verhagen, Laurel A]

Congratulations UTHSCSA!

Thanks,
Laurel

From: PCORnet DRN OC [mailto:dr...@pcornet.org]
Sent: Monday, July 22, 2019 11:12 AM
To: Moffett, Eric E; manuells; Russ Waitman; Verhagen, Laurel A
Cc: Allison Haufler; Darcy Louzao, Ph.D.; Laura Qualls
Subject: [EXTERNAL] UT HSC San Antonio's r016 approved

Good morning.

I’m happy to report that UT HSC San Antonio's data curation query response for 
refresh 16 was approved.  Please retain a static, locked copy of the SAS 
version of the characterized tables and use these data when responding to SAS 
queries issued by the DRN OC or study teams, unless instructed otherwise.  You 
may update the SAS version of the HARVEST Table and the PCORNET_TRIAL Table, as 
well as your RDBMS DataMart as needed.  Please contact the DRN OC if an 
off-cycle refresh is required for any of the tables except for the HARVEST and 
PCORNET_TRIAL tables.

Thanks,
DRN OC Data Curation Team

__
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Marshfield Clinic's r015 approved

[Verhagen, Laurel A]

Congratulations Marshfield!

Thanks,
Laurel

From: PCORnet DRN OC [mailto:dr...@pcornet.org]
Sent: Monday, July 22, 2019 10:38 AM
To: Verhagen, Laurel A; Russ Waitman
Cc: Allison Haufler; Darcy Louzao, Ph.D.; Laura Qualls
Subject: [EXTERNAL] Marshfield Clinic's r015 approved

Good morning.

I’m happy to report that Marshfield Clinic's data curation query response for 
refresh 15 was approved.  Please retain a static, locked copy of the SAS 
version of the characterized tables and use these data when responding to SAS 
queries issued by the DRN OC or study teams, unless instructed otherwise.  You 
may update the SAS version of the HARVEST Table and the PCORNET_TRIAL Table, as 
well as your RDBMS DataMart as needed.  Please contact the DRN OC if an 
off-cycle refresh is required for any of the tables except for the HARVEST and 
PCORNET_TRIAL tables.

Thanks,
DRN OC Data Curation Team

__
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Med Coll Wisconsin's r012 approved

[Verhagen, Laurel A]

Congratulations, MCW!

Thanks,
Laurel

From: PCORnet DRN OC [mailto:dr...@pcornet.org]
Sent: Thursday, July 11, 2019 1:40 PM
To: Stoddard, Alexander; Verhagen, Laurel A; Russ Waitman
Cc: Allison Haufler; Darcy Louzao, Ph.D.; Laura Qualls
Subject: [EXTERNAL] Med Coll Wisconsin's r012 approved

Good afternoon.

I’m happy to report that Med Coll Wisconsin's data curation query response for 
refresh 12 was approved.  Please retain a static, locked copy of the SAS 
version of the characterized tables and use these data when responding to SAS 
queries issued by the DRN OC or study teams, unless instructed otherwise.  You 
may update the SAS version of the HARVEST Table and the PCORNET_TRIAL Table, as 
well as your RDBMS DataMart as needed.  Please contact the DRN OC if an 
off-cycle refresh is required for any of the tables except for the HARVEST and 
PCORNET_TRIAL tables.

Thanks,
DRN OC Data Curation Team

__
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information.  If you received this message in error, you should destroy the 
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Allina Health Sys' r013 approved

[Verhagen, Laurel A]

In Russ’ absence…. Congratulations, Allina!

Thanks,
Laurel

From: PCORnet DRN OC [mailto:dr...@pcornet.org]
Sent: Thursday, July 11, 2019 2:35 PM
To: Mazumder, Narayana; Verhagen, Laurel A; Russ Waitman
Subject: [EXTERNAL] Allina Health Sys' r013 approved

Good afternoon.

I’m happy to report that Allina Health Sys' data curation query response for 
refresh 13 was approved.  Please retain a static, locked copy of the SAS 
version of the characterized tables and use these data when responding to SAS 
queries issued by the DRN OC or study teams, unless instructed otherwise.  You 
may update the SAS version of the HARVEST Table and the PCORNET_TRIAL Table, as 
well as your RDBMS DataMart as needed.  Please contact the DRN OC if an 
off-cycle refresh is required for any of the tables except for the HARVEST and 
PCORNET_TRIAL tables.

Thanks,
DRN OC Data Curation Team

__
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e-mail message and any attachments or copies, and you are prohibited from 
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RE: gpc-dev July 2 agenda and meeting notes

[Verhagen, Laurel A]

No need to carry it forward.

Marshfield was interest in making the data available for queries and wanted to 
know if a consistent approach existed through ACT. We have one researcher 
interested in a study with Medicare patients. General comments from sites are 
sufficient for the need/use case for now on the i2b2 side. If funded, the study 
could leverage the CDM for data needs.

Thanks,
Laurel

From: Dan Connolly [mailto:dconno...@kumc.edu]
Sent: Monday, July 08, 2019 12:00 PM
To: Verhagen, Laurel A; gpc-dev@listserv.kumc.edu
Subject: [EXTERNAL] RE: gpc-dev July 2 agenda and meeting notes

The
Payer Type Ontology item... I don't see any follow-up actions, which suggests 
whoever raised it is satisfied and it shouldn't be carried forward to this 
week. But it's not clear to me who raised it, so I would appreciate 
confirmation.



--


Dan



From: Gpc-dev [gpc-dev-boun...@listserv.kumc.edu] on behalf of Verhagen, Laurel 
A [verhagen.lau...@marshfieldresearch.org]
Sent: Tuesday, July 02, 2019 12:03 PM
To: gpc-dev@listserv.kumc.edu
Subject: gpc-dev July 2 agenda and meeting notes
PDF attached for archiving. Thanks to Maren/KUMC for taking notes!

Next meeting is 7/9 – Jarrah/IU will be our scribe. Agenda in 
progress…<https://urldefense.proofpoint.com/v2/url?u=https-3A__docs.google.com_document_d_1Tg4EPpaFhZZVsQvAJ77N0iZoMSgKko92smG-2DjHWOnvU_edit&d=DwMGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=74360vz9yfbl-sej6ol5GDECMbhsD093B9aRVSX8oCo&s=nR2cF-9RqEMyFSfGA4TnpDssUVD9K1R9-U0oVUVwSsg&e=>

Thanks,
Laurel

From: Gpc-dev [mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Verhagen, 
Laurel A
Sent: Monday, July 01, 2019 3:52 PM
To: gpc-dev@listserv.kumc.edu
Subject: [EXTERNAL] gpc-dev July 2 agenda and meeting notes

Hi everyone,

Below find the agenda for gpc-dev on Tuesday, July 2 at 11:00 a.m. CT. Our 
scribe will be KUMC.


Connect:
https://global.gotomeeting.com/meeting/join/817393381<https://urldefense.proofpoint.com/v2/url?u=https-3A__global.gotomeeting.com_meeting_join_817393381&d=DwMGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=T7_nI_KXvNW-fHDjxUJ805Gu53Yxx3ZlIo7ueHU3niM&s=OxCE2BY2MwowcXEKdBDv3v-bPlvy3IVCj7LUMoAZ9D4&e=>

access code: 817-393-381; call +1 (571) 317-3131

Link to notes:
https://docs.google.com/document/d/1rEWpOo7awU_BTUbEw5T0yKNpIhr0Sb5kXffhlBz-67c/edit#<https://urldefense.proofpoint.com/v2/url?u=https-3A__docs.google.com_document_d_1rEWpOo7awU-5FBTUbEw5T0yKNpIhr0Sb5kXffhlBz-2D67c_edit&d=DwMGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=yCC-3ENRy4bxvdPnuyPA3HvQCqcE7wqh1xQaN9eY8k0&s=6AV-ss6oD04uidrl9QDahWCFSRO6_acWU121Bce5pio&e=>


Let me know if you have additions/changes? The agenda is pretty short, but 
we’ll spend a little time talking about CDM v5.



Thanks,

Laurel
--

1.   Convene, take roll, review records and plan next meeting(s)

a.   11:00 a.m. Central Time.
​Meeting ID and access code: 
817-393-381<https://urldefense.proofpoint.com/v2/url?u=https-3A__global.gotomeeting.com_meeting_join_817393381&d=DwMGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=yCC-3ENRy4bxvdPnuyPA3HvQCqcE7wqh1xQaN9eY8k0&s=qfo-jv3r4VGs1H-eyiTQWX04znC8_Rh8VRr9HJgZHaw&e=>;
 call +1 (571) 317-3131

b.  Roll; comments on the agenda? (ref 
SoftwareDev#tracking<https://urldefense.proofpoint.com/v2/url?u=https-3A__informatics.gpcnetwork.org_trac_Project_wiki_SoftwareDev-23tracking&d=DwMGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=yCC-3ENRy4bxvdPnuyPA3HvQCqcE7wqh1xQaN9eY8k0&s=FbYQ8wowWjHldq1UMRUWdQc26sjzfPrgyR4eUNJ-8kI&e=>)
Reminder - put site after your name in GoToMeeting preferences

   i.  GPC 
DevTeams<https://urldefense.proofpoint.com/v2/url?u=https-3A__informatics.gpcnetwork.org_trac_Project_wiki_DevTeams&d=DwMGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=yCC-3ENRy4bxvdPnuyPA3HvQCqcE7wqh1xQaN9eY8k0&s=-EP6IVd7st89JDEZDs75muO6UHwlvYHgYtPp9269Cks&e=>
 represented? KUMC, UIOWA, MCW, MCRI,  UNMC, UTHSCSA, UTSW, MU, IndianaU, Utah, 
Allina, Intermountain

 ii.  Today's 
scribe: KUMC

c.   Comments on the agenda? On last week’s notes? 
(#12<https://urldefense.proofpoint.com/v2/url?u=https-3A__informatics.gpcnetwork.org_trac_Project_ticket_12&d=DwMGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwc

gpc-dev July 2 agenda and meeting notes

[Verhagen, Laurel A]

Hi everyone,

Below find the agenda for gpc-dev on Tuesday, July 2 at 11:00 a.m. CT. Our 
scribe will be KUMC.


Connect:
https://global.gotomeeting.com/meeting/join/817393381

access code: 817-393-381; call +1 (571) 317-3131

Link to notes:
https://docs.google.com/document/d/1rEWpOo7awU_BTUbEw5T0yKNpIhr0Sb5kXffhlBz-67c/edit#


Let me know if you have additions/changes? The agenda is pretty short, but 
we’ll spend a little time talking about CDM v5.



Thanks,

Laurel
--

1.   Convene, take roll, review records and plan next meeting(s)

a.   11:00 a.m. Central Time.
​Meeting ID and access code: 
817-393-381; call +1 
(571) 317-3131

b.  Roll; comments on the agenda? (ref 
SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences

   i.  GPC 
DevTeams 
represented? KUMC, UIOWA, MCW, MCRI,  UNMC, UTHSCSA, UTSW, MU, IndianaU, Utah, 
Allina, Intermountain

 ii.  Today's 
scribe: KUMC

c.   Comments on the agenda? On last week’s notes? 
(#12)
Recent tickets 
opened/closed - FYI 
(i.e. not intended for discussion)

   i.  none 
this week

d.  Next meeting(s)/scribe: July 9 Scribe: UNMC? UTSW?

   i.  Note 
scribe 
rotation
 appendix

2.   
Milestone:snow-shrine-3,
 etc.

a.   #739 HERON 
NAACCR ETL outdated by 
v18 - DC made some 
related progress

b.  Payer Type Ontology?

   i.  Has 
anyone added the payer_type_primary and payer_type_secondary for i2b2 (is this 
in ACT?)

 ii.  Are 
non-ACT sites able to access the ACT ontology?

3.   PCORnet DRN OC

a.   Cycle 6, Refresh 3

   i.  
Distributed July 3

 ii.  Due July 
24

b.  Cycle 7, Initial

   i.  
Distributed Oct 7

 ii.  Due Oct 28

c.   CDM v5.0 Update

   i.  More 
than 150 comments were received 

 from the seven networks that responded. This feedback was used to further 
refine the CDM specification, which has now been presented to the Steering 
Committee.  A vote for approval will begin this week and close on July 12.  We 
expect that the final CDM v5 
specification
 will be released to production during the week of July 15.

4.   
#411 
Align SNOW SHRINE terminology with ACT ontology for interoperation of query

a.   Meds - is it by design that brand drugs seem to not be included?

5.   
Milestone:grouse-refresh-2

a.   #727 
Finder file for Allina, Utah, 
Intermountain 
owner: KUMC

b.  #597 spec 
for crosswalk to accompany i2b2 datamarts for GROUSE
No progress. 
Waiting on spec from Dan at KUMC.


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e

gpc-dev June 11 agenda and meeting notes

[Verhagen, Laurel A]

Hi everyone,


Below find the agenda for gpc-dev on Tuesday, June 11 at 11:00 a.m. CT. Our 
scribe will be Allina.



Connect:
https://global.gotomeeting.com/meeting/join/817393381

access code: 817-393-381; call +1 (571) 317-3131



Link to notes:

https://docs.google.com/document/d/1jIEdIBEFPWqTFYtnVrUBUzilzXRtr6VzHtLcmBJ-qZc/edit#



Let me know if you have additions/changes?



Thanks,

Laurel
--

1.   Convene, take roll, review records and plan next meeting(s)

a.   11:00 a.m. Central Time.
​Meeting ID and access code: 
817-393-381; call +1 
(571) 317-3131

b.  Roll; comments on the agenda? (ref 
SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences

   i.  GPC 
DevTeams 
represented? KUMC, UIOWA, MCW, MCRI, UNMC, UTHSCSA, UTSW, MU, IndianaU, Utah, 
Allina, Intermountain

 ii.  Today's 
scribe: Allina

c.   Comments on the agenda? On last week’s notes? 
(#12)
Recent tickets 
opened/closed - FYI 
(i.e. not intended for discussion)

   i.  none 
this week

d.  Next meeting(s)/scribe: June 18 Scribe: UIOWA? Intermountain?

   i.  Note 
scribe 
rotation
 appendix

2.   PCORI_PMP_WP001 report for PCORI final report submission 
   “... Hillary 
Sandoval needs the reports from all the sites by 05/24/2019”

a.   UNMC - McClay & co working on it as of 9am today
Trying to get help from DRN OC

3.   
Milestone:grouse-refresh-2

a.   #727 
Finder file for Allina, Utah, 
Intermountain - 
update? (Please let Dan C know if your site will not be represented on dev 
calls)

   i.  Utah - 
ETA June 11

 ii.  
Intermountain - ETA June 11

iii.  Allina - 
ETA June 11

4.   PCORnet Steering Committee call slides for today and CDM5 Draft out 
for feedback  
Feedback due June 14


a.   Immunizations call notes/recording 


b.  Address history 
notes/recording

c.   Utah-Reid provided a summary of changes  in the meeting 6/4.

d.  Other comments to include?

   i.  Sites 
can submit feedback individually or as a collective GPC response.

 ii.  Notes 
from MCRI

e.  All things CDM v 
5.0

   i.  Direct 
link to the spec and 
feedback

5.   
Milestone:snow-shrine-3

a.   #411 note 
Full Release of Snow Shrine metadata, version 1.2 (20190430)

   i.  JRC - 
aims to get CDM folder table documentation out by the end of the week (6/7)

6.   Todd M - #746 help with 
SSDMF

a.   Dan notes earlier 
discussion, not 
terribly fruitful; Nick S sent 
mail

b.  Todd - Did you get what you needed?

7.   ACT SHRINE status

a.   Which sites are active with ACT?

8.   GROUSE Breast Cancer project

a.   Survey re: date 
shifting

b.  Respond by 6/14



__
The contents of this message may contain private, protected and/or pri

gpc-dev May 21 agenda and meeting notes

[Verhagen, Laurel A]

Hi everyone,

Unless Dan sends something different, here’s our tentative agenda for tomorrow 
(5/21) at 11:00 CT:
https://docs.google.com/document/d/1LUKFj9g0AJ7OglkYlCfEKl1yRI7YOkYFKz6FOSNZtJM/edit#

Scribe will be Marshfield.

Connect:
https://global.gotomeeting.com/meeting/join/817393381
Access Code: 817-393-381
United States (Toll-free): +1 (571) 317-3131

Thanks,
Laurel
--


1.   Convene, take roll, review records and plan next meeting(s)

a.   11:00 a.m. Central Time.
​Meeting ID and access code: 
817-393-381; call +1 
(571) 317-3131

b.  Roll; comments on the agenda? (ref 
SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences

   i.  GPC 
DevTeams 
represented? KUMC, UIOWA, MCW, MCRI, UNMC, UTHSCSA, UTSW, MU, IndianaU, Utah, 
Allina, Intermountain

 ii.  Today's 
scribe: Marshfield

c.   Comments on last week’s notes? 
(#12)
Recent tickets 
opened/closed - FYI 
(i.e. not intended for discussion)

   i.  None 
this week

d.  Next meeting(s)/scribe: May 28 Scribe: Allina? MU?

   i.  Note 
scribe 
rotation
 appendix

2.   PCORI_PMP_WP001 report for PCORI final report submission 
   Sravani 
Chandaka: “... Hillary Sandoval needs the reports from all the sites by 
05/24/2019”

a.   UNMC

b.  IU

3.   Russ reports the network agreements signed by all sites!

4.   
Milestone:grouse-refresh-2

a.   Datamarts submitted: UIOWA, UNMC, Marshfield, MU, MCW, UTSW
Reminder: recent datamarts not yet available to analysts. Data integration ETA 
June (#620)

b.  In progress: KUMC 
#731

c.   #727 
Finder file for Allina, Utah, 
Intermountain - 
update?

   i.  Utah -  
Estimated start on Finder File is end of May.

1.   Reid needed github access - was this granted?

 ii.  Allina -

iii.  
Intermountain - 2 weeks out, at least as of 5/14.

5.   Milestone:next-d

a.   #713 status by 
site

   i.  Data 
files submitted: KUMC, IOWA, MCW, UNMC, MU, UTSW, MCW

1.   IU - ETA 5/22/2019; on track?

 ii.  A’lona 
sent data profiles via dropbox

iii.  Pending 
requests/questions for:

1.   UTSW

a.   FINALSTATTABLE1_DATA_TABLE ?

b.  NEXTD4_DISPENSING_DATA_TABLE ?

c.   ENROLLMENT table has empty ENR_VALUE column - why?

2.   UNMC

a.   reload SES file. Reason: GTRACT_ACS field got converted to scientific 
format.

b.  explain meaning of records in ENROLLMENT table that have ENR_VALUE=.

3.   MU

a.   address extremely high numbers on category "No payment from an 
Organization/agency/Program/Private" and very low numbers on enrollment with 
"Private Health insurance".

   iv.  Data 
explanations 
table

1.   Responses posted: KUMC, Iowa, MCW, MU

2.   UNMC?

3.   UTSW?

4.   IU?

6.   CDM v5.0 Stakeholder Sessions

a.   Address History - held May 6, 9

b.  Immunizations - Thursday, 5/16: 1pm ET, Meeting number: 735 252 
912

RE: gpc-dev May 14 agenda and meeting notes

[Verhagen, Laurel A]

One update, Hillary notes that she is actually still waiting on the 
“PCORI_PMP_WP001” report for PCORI final report submission from UNMC and IU. 
These are due 5/25.

Thanks,
Laurel

From: Verhagen, Laurel A
Sent: Tuesday, May 14, 2019 12:05 PM
To: Verhagen, Laurel A; gpc-dev@listserv.kumc.edu
Subject: gpc-dev May 14 agenda and meeting notes

PDF attached for archiving.  Thanks to Reid for taking notes! CDM v5.0 release 
schedule is now included.

Next meeting is May 21; Scribe will be Marshfield.

Thanks,
Laurel

From: Gpc-dev [mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Verhagen, 
Laurel A
Sent: Monday, May 13, 2019 3:47 PM
To: gpc-dev@listserv.kumc.edu
Subject: [EXTERNAL] gpc-dev May 14 agenda and meeting notes

Hi everyone,

There’s a gpc-dev call scheduled tomorrow (5/14) at 11:00 CT. Our scribe will 
be Reid/Utah

Link to agenda/notes:
https://docs.google.com/document/d/19BFhOpteUjjnfZsr11H1I-eivQOzi8hjCHZugVB2lIQ/edit<https://urldefense.proofpoint.com/v2/url?u=https-3A__docs.google.com_document_d_19BFhOpteUjjnfZsr11H1I-2DeivQOzi8hjCHZugVB2lIQ_edit&d=DwMGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=9O-knz-Gk75DFJ6MHFLj3WOq-L5i0IDrcDpFpKdhUaU&s=Ceprw5uWaVdLfIDimXUO19zfShHB9C2bDRaZ1TvXlVI&e=>

Connect:
https://global.gotomeeting.com/meeting/join/817393381<https://urldefense.proofpoint.com/v2/url?u=https-3A__global.gotomeeting.com_meeting_join_817393381&d=DwMGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=9O-knz-Gk75DFJ6MHFLj3WOq-L5i0IDrcDpFpKdhUaU&s=YMl6XRTCkvLrh41s37be9fuv9WhGuZfQ8JwTK_sc9MA&e=>
Access Code: 817-393-381
United States (Toll-free): +1 (571) 317-3131

Topics are pretty light. Let me know if you have anything to add.

Thanks,
Laurel
--

1.   Convene, take roll, review records and plan next meeting(s)

a.   11:00 a.m. Central Time.
​Meeting ID and access code: 
817-393-381<https://urldefense.proofpoint.com/v2/url?u=https-3A__global.gotomeeting.com_meeting_join_817393381&d=DwMGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=9O-knz-Gk75DFJ6MHFLj3WOq-L5i0IDrcDpFpKdhUaU&s=YMl6XRTCkvLrh41s37be9fuv9WhGuZfQ8JwTK_sc9MA&e=>;
 call +1 (571) 317-3131

b.  Roll; comments on the agenda? (ref 
SoftwareDev#tracking<https://urldefense.proofpoint.com/v2/url?u=https-3A__informatics.gpcnetwork.org_trac_Project_wiki_SoftwareDev-23tracking&d=DwMGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=9O-knz-Gk75DFJ6MHFLj3WOq-L5i0IDrcDpFpKdhUaU&s=edbPdIapzCTS8b4X8KDe0DPbunyGkA_nOdju9SBsymY&e=>)
Reminder - put site after your name in GoToMeeting preferences

   i.  GPC 
DevTeams<https://urldefense.proofpoint.com/v2/url?u=https-3A__informatics.gpcnetwork.org_trac_Project_wiki_DevTeams&d=DwMGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=9O-knz-Gk75DFJ6MHFLj3WOq-L5i0IDrcDpFpKdhUaU&s=me4ionef-AT4oefHAUxjrRYJDFommc92WV_LghNaObI&e=>
 represented? KUMC, UIOWA, MCW, MCRI, UNMC, UTHSCSA, UTSW, MU, IndianaU, Utah, 
Allina, Intermountain

 ii.  Today's 
scribe: Utah

c.   Comments on last week’s notes? 
(#12<https://urldefense.proofpoint.com/v2/url?u=https-3A__informatics.gpcnetwork.org_trac_Project_ticket_12&d=DwMGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=9O-knz-Gk75DFJ6MHFLj3WOq-L5i0IDrcDpFpKdhUaU&s=z7ruJUpXRmqJ0xHKuz1WG8bQYBzW1EhIyBKcSzPtDi8&e=>)
Recent tickets 
opened/closed<https://urldefense.proofpoint.com/v2/url?u=https-3A__informatics.gpcnetwork.org_trac_Project_timeline&d=DwMGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=9O-knz-Gk75DFJ6MHFLj3WOq-L5i0IDrcDpFpKdhUaU&s=dXxr_0ZUTbMpP0O4H9LbaQ7Om7mTdnv98pLs3doLkpY&e=>
 - FYI (i.e. not intended for discussion)

   i.  None 
this week

d.  Next meeting(s)/scribe: May 21 Scribe: Marshfield

   i.  Note 
scribe 
rotation<https://urldefense.proofpoint.com/v2/url?u=https-3A__docs.google.com_document_d_19BFhOpteUjjnfZsr11H1I-2DeivQOzi8hjCHZugVB2lIQ_edit-23heading-3Dh.zbjzupqx0rh7&d=DwMGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=9O-knz-Gk75DFJ6MHFLj3WOq-L5i0IDrcDpFpKdhUaU&s=2Mnrz0Zp

RE: CDM and GROUSE death data

[Verhagen, Laurel A]

Hi Brian,

For item 2, if you have access to the DCQ reports per site, you can find the 
source of death data on either query name: Death_L3_Source from 
...data_curation_all.pdf or  Chart II "Trend in Death Records by Death Date and 
Source, Past 5 Years" from ...EDCRPT.pdf.

Does Iowa have a one time need for this information? Ongoing?

Thanks,
Laurel

From: Gpc-dev [mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Gryzlak, 
Brian M
Sent: Wednesday, May 15, 2019 11:10 AM
To: gpc-dev@listserv.kumc.edu
Subject: [EXTERNAL] CDM and GROUSE death data

Hi everyone,

We (UIOWA) have a few questions related to CDM / CDM-in-GROUSE death dataI 
hope these questions make sense but I will try to clarify if not.


1.   Is there a ticket or website that tracks the version or date of the 
SSDMF release that KUMC sends to sites?  E.g., "The SSDMF version that KUMC 
sent out in April 2019 was current as of X"?



2.   Is there a ticket or website that tracks - at the site level - the 
source(s) each site uses for populating the DEATH table in the CDM and 
CDM-in-GROUSE (e.g., SSDMF, local EMR, other)?



3.   For those sites that do use SSDMF for their CDM, is there a ticket or 
website that tracks the SSDMF release that each site used to populate the CDM 
DEATH table?  For example, something like:

a.   "Site X used the XX/XX/201X SSDMF update provided by KUMC to populate 
the DEATH table in their CDM v4.1, refresh 17.  Site X's CDM version currently 
staged in GROUSE uses the XX/XX/201Y SSDMF release."

Thanks,

Brian M. Gryzlak, MSW, MA
Project Coordinator
S423 CPHB
319.335.8218
The University of Iowa
Iowa City, IA 52242
brian-gryz...@uiowa.edu

Health Effectiveness Research Center 
(HERCe)

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gpc-dev May 14 agenda and meeting notes

[Verhagen, Laurel A]

Hi everyone,

There’s a gpc-dev call scheduled tomorrow (5/14) at 11:00 CT. Our scribe will 
be Reid/Utah

Link to agenda/notes:
https://docs.google.com/document/d/19BFhOpteUjjnfZsr11H1I-eivQOzi8hjCHZugVB2lIQ/edit

Connect:
https://global.gotomeeting.com/meeting/join/817393381
Access Code: 817-393-381
United States (Toll-free): +1 (571) 317-3131

Topics are pretty light. Let me know if you have anything to add.

Thanks,
Laurel
--

1.   Convene, take roll, review records and plan next meeting(s)

a.   11:00 a.m. Central Time.
​Meeting ID and access code: 
817-393-381; call +1 
(571) 317-3131

b.  Roll; comments on the agenda? (ref 
SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences

   i.  GPC 
DevTeams 
represented? KUMC, UIOWA, MCW, MCRI, UNMC, UTHSCSA, UTSW, MU, IndianaU, Utah, 
Allina, Intermountain

 ii.  Today's 
scribe: Utah

c.   Comments on last week’s notes? 
(#12)
Recent tickets 
opened/closed - FYI 
(i.e. not intended for discussion)

   i.  None 
this week

d.  Next meeting(s)/scribe: May 21 Scribe: Marshfield

   i.  Note 
scribe 
rotation
 appendix

2.   PCORI_PMP_WP001 report for PCORI final report submission 
   Sravani 
Chandaka: “... Hillary Sandoval needs the reports from all the sites by 
05/24/2019”

a.   KUMC - done

b.  UIOWA

c.   MCW

d.  MCRI - done

e.  UNMC

   i.  SC to 
send spreadsheet to McClay

f.UTHSCSA - done

g.   UTSW

h.  MU - done

i. IndianaU

j.Utah

   i.  
submitted 002 - will be looking into 001 (to PCORnet)

k.   Allina

l. Intermountain

3.   
Milestone:grouse-refresh-2

a.   Datamarts submitted: UIOWA, UNMC, Marshfield, MU, MCW, UTSW
Reminder: recent datamarts not yet available to analysts. Data integration ETA 
June (#620)

b.  In progress: KUMC 
#731

c.   #727 
Finder file for Allina, Utah, 
Intermountain - 
update?

4.   Milestone:next-d

a.   #713 status by 
site

   i.  KUMC, 
IOWA, MCW, UNMC, MU, UTSW - submitted

 ii.  IU - ETA 
5/10/2019 – update?

1.   Internal governance discussion is taking place.

5.   CDM v5.0 Stakeholder Sessions

a.   Address History - held May 6, 9

b.  Immunizations - Thursday, 5/16: 1pm ET, Meeting number: 735 252 
912

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Canceled: GPC Dev Weekly Teleconference

[Verhagen, Laurel A]

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DESCRIPTION;LANGUAGE=en-US:**Due to lack of agenda items\, the conference c
 all today is canceled.\n\n--\nWhen: Occurs every Tuesday from 11:00 AM to 
 12:00 PM\, effective 9/25/18-12/31/19. (UTC-06:00) Central Time (US & Cana
 da)\n\n1.  Please join my meeting: https://global.gotomeeting.com/meet
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 o PIN: Shown after joining the meeting\n\n  Meeting ID:817-393-381\n\n
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gpc-dev Jan 15 agenda and meeting notes

[Verhagen, Laurel A]

Hi everyone, 

Below find the agenda for gpc-dev on Tuesday, Jan 15 at 11:00 a.m. CT. Our 
scribe will be UTSW.

Connect:
https://global.gotomeeting.com/meeting/join/817393381
access code: 817-393-381; call +1 (571) 317-3131

Link to notes:
https://docs.google.com/document/d/1PnUr3KYuAoiuRQRE1xs0uGRSJZ41eTUYBj0_QMZ7aTw/edit#

Let me know if you have additions/changes?

Thanks,
Laurel
--
1. Convene, take roll, review records and plan next meeting(s)
​   Roll; comments on the agenda? (ref SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences
GPC DevTeams represented? KUMC, UIOWA, MCW, MCRI, UNMC, UTHSCSA, UTSW, 
MU, IndianaU, Utah, Allina, Intermountain
Today's scribe: UTSW
Comments on last week’s notes? (#12)
Recent tickets opened/closed - FYI (i.e. not intended for discussion)
Opened - GROUSE data refresh tickets: #731, #732, #733, #734, 
#735, #736, #737 
Closed - #723 Finder File UNMC; #728 Finder File UTHSCSA
Next meeting(s)/scribe: Jan 22 Marshfield? IU?

2. RCR - milestones:cancer-rcr-1; cancer-rcr-3 / Grouse-3
Updates? (Remove from agenda?)

3. PCORnet CDM/Data Changes
Data Curation Dates - REMINDER
Cycle 6, Refresh 1 - Distributed 1/14/19; Due 2/04/19
Cycle 6, Refresh 2 - Distributed 4/01/19; Due 4/22/19
People Centered Research Foundation (PCRF)/PCORnet 2.0
Updates?

4. GROUSE 
FinderFiles - deadline to ship to GDIT is 1/4/19
#725 IU - 
#727 Allina, Utah, Intermountain and UIHC - Pending regulatory 
aspects. 
Data Refresh Tracking - Check that the contacts are correct for your 
site.
#731 KUMC
#732 Iowa
#733 UNMC
#734 Marshfield
#735 MU
#736 UTSW
#737 MCW
Do other sites have approvals for submitting data for GROUSE?
Continuing review
IRB meeting soon, anticipate early distribution 

5. #711/ DROC #40: Predictive Models for Acute Kidney Injury using PCORnet CDM
Updates?

6. NextD - sites: IOWA, UNMC, MCW, IU, KUMC, UTSW, MU
#713 - NextD Data Refresh; based on CDM v4.0; pending #715
January 5 deadline
UNMC - 
UTSW - 
7. #718/ DROC #42: Comparison of Outcomes of Unilateral Mastectomy and 
Contralateral Prophylactic Mastectomy with Reconstruction
Due date is Jan 11; UNMC, UTSW to deliver by end of the month 

8. DEMO - UNMC presenting on NDC to RxNorm Mapping and allergy extract and 
coding
Mapping files posted ahead of the meeting?

9. Tumor Registry Updated NAACCR Format; 
NAACCR v 18 formatting will be creating needs for ETL changes; 
 
10. milestone:snow-shrine-2 , milestone:snow-shrine-3
Group will look at expanded ACT membership and SHRINE over GROUSE. Jim 
Campbell to update trac as appropriate.
#411 - Align SNOW SHRINE terminology with ARCH and ACT ontology for 
interoperation of query 
11. milestone:text-notes-1 De-identification; use case: #573
Pushed out 6 months, per Hackathon6
12. Other topics?
Upcoming demos:
1/22 - MCW Honest Broker Data Delivery; additional staff from 
MCW to attend with Kris
Additional topics?


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RE: Diabetes query run time

[Verhagen, Laurel A]

Our runtime at Marshfield was under 13 hours. Have any other GPC sites tried 
this one yet? Do we have any updates to report?

Thanks, 
Laurel

-Original Message-
From: Russ Waitman [mailto:rwait...@kumc.edu] 
Sent: Friday, January 11, 2019 10:03 AM
To: Kho, Abel
Cc: tcar...@lphi.org; pu...@ochin.org; Maren Lowrance; Sravani Chandaka; 
Verhagen, Laurel A; Gpc-dev; PCORnet OC; Laura Qualls; Rothman, Russell 
(russell.roth...@vanderbilt.edu)
Subject: Re: Diabetes query run time 

I'd feed that info back to duke and Vandy who were leading the Diabetes CRG  
that it may be a bridge too far 

Russ


On 1/11/19, 10:00 AM, "Kho, Abel"  wrote:

Our run times are up to 80+ hours 

Sent from my iPhone

> On Jan 11, 2019, at 9:47 AM, Russ Waitman  wrote:
> 
> WARNING: External email, please be mindful before clicking or replying.
> 
> 
> They said it would take 19 hours
> 
> Russ Waitman
> 
> 
>> On Jan 11, 2019, at 9:27 AM, Kho, Abel  wrote:
>> 
>> Are any of your sites struggling with the diabetes rcr query with super 
long run times?  Most of our sites are not able to run it because of excessive 
run times
>> 
>> Sent from my iPhone
>> 
>> 
>> This message and any included attachments are intended only for the 
addressee. The information contained in this message is confidential and may 
constitute proprietary or non-public information under international, federal, 
or state laws. Unauthorized forwarding, printing, copying, distribution, or use 
of such information is strictly prohibited and may be unlawful. If you are not 
the addressee, please promptly delete this message and notify the sender of the 
delivery error by e-mail.
>> 


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of such information is strictly prohibited and may be unlawful. If you are not 
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gpc-dev Jan 8 agenda and meeting notes

[Verhagen, Laurel A]

Good morning, 

I neglected to distribute the agenda for our meeting at 11, but we will be 
meeting today. Our scribe will be UNMC.

Connect:
https://global.gotomeeting.com/meeting/join/817393381
access code: 817-393-381; call +1 (571) 317-3131

Link to notes: 
https://docs.google.com/document/d/1Z8TiN-V6he8SeXs089PJy5m_cNGbEndPUpgX-i2AZqA/edit#

Thanks, 
Laurel
--
1. Convene, take roll, review records and plan next meeting(s)
a. 11:00 a.m. Central Time.
​   Meeting ID and access code: 817-393-381; call +1 (571) 317-3131
Roll; comments on the agenda? (ref SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences
GPC DevTeams represented? 
Today's scribe: UNMC
Comments on last week’s notes? (#12)
Recent tickets opened/closed - FYI (i.e. not intended for discussion)
Opened - none
Closed  
Finder file tickets (#721, #724, #726, #730)
#594 babel ontology update for MU
Next meeting(s)/scribe: Jan 15 UTSW? Marshfield?
Note scribe rotation appendix

2. RCR - milestones:cancer-rcr-1; cancer-rcr-3 / Grouse-3
Updates?

3. PCORnet CDM/Data Changes
Data Curation Dates - REMINDER
Cycle 6, Refresh 1 - Distributed 1/14/19; Due 2/04/19
Cycle 6, Refresh 2 - Distributed 4/01/19; Due 4/22/19
PCRF SOW Changes
Updates?

4. GROUSE FinderFiles - deadline to ship to GDIT is 1/4/19
Sites
Done: KUMC [#720], MCRI [#721], MU [#724], Iowa [#730], MCW 
[#726]
#722 UTSW - update?
#723 UNMC - update?
#725 IU - update?
#727 Allina, Utah, Intermountain and UIHC - Note Waitman / KUMC 
has the ball 
#728 UTHSCSA - approvals were obtained; update?
LV to create ticket(s) for CDM and i2b2 data to be sent to KUMC 
(deadline 3/1/19)

5. GROUSE continuing review
Brian checked in with Steve Fennel who reports that KUMC has submitted 
their continuing review to the KUMC IRB and plans to distribute the approval 
documents to sites once the review is approved.

6. #711/ DROC #40: Predictive Models for Acute Kidney Injury using PCORnet CDM
Updates?

7. NextD - sites: IOWA, UNMC, MCW, IU, KUMC, UTSW, MU
#713 - NextD Data Refresh; based on CDM v4.0; pending #715
January 5 deadline
Updates?

8. #718/ DROC #42: Comparison of Outcomes of Unilateral Mastectomy and 
Contralateral Prophylactic Mastectomy with Reconstruction in a Multicenter 
Cohort
Due date is Jan 11
Updates?

9. milestone:snow-shrine-2 , milestone:snow-shrine-3
Group will look at expanded ACT membership and SHRINE over GROUSE. Jim 
Campbell to update trac as appropriate.
#411 - Align SNOW SHRINE terminology with ARCH and ACT ontology for 
interoperation of query 

10. milestone:text-notes-1 De-identification; use case: #573
Pushed out 6 months, per Hackathon6

11. Other topics?
Upcoming demos:
1/15 - UNMC NDC to RxNorm Mapping 
1/22 - MCW Honest Broker Data Delivery


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gpc-dev December 18 agenda and meeting notes

[Verhagen, Laurel A]

Hi everyone,

Below find the agenda-in-progress for our meeting Tuesday, December 18 at 11:00 
a.m. CT. Our scribe will be KUMC.

Connect:
https://global.gotomeeting.com/meeting/join/817393381
access code: 817-393-381; call +1 (571) 317-3131

Link to notes/tentative agenda:
https://docs.google.com/document/d/1KWmVDW2tzs6hZRqMzctw5agrqPb4AVCMiJH5TzoqOdE/edit

Let me know if you have additions/changes?

Thanks,
Laurel
--
1. Convene, take roll, review records and plan next meeting(s)
a. 11:00 a.m. Central Time.
​   Meeting ID and access code: 817-393-381; call +1 (571) 317-3131
b. Roll; comments on the agenda? (ref SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences
i. GPC DevTeams represented? KUMC, UIOWA, MCW, MCRI, UNMC, 
UTHSCSA, UTSW, MU, IU, Utah, Allina
ii. Today's scribe: KUMC
c. Comments on last week’s notes? (#12)
Recent tickets opened/closed - FYI (i.e. not intended for discussion)
i. Opened - #720-728, 730 GROUSE finder files due Jan 4; #729 
Update Babel Metadata
ii. Closed - 
d. Next meeting(s)/scribe: Dec 25, Jan 1, Jan 8 ? UNMC? UTSW?
i. Note scribe rotation appendix
2. RCR - milestones:cancer-rcr-1; cancer-rcr-3 / Grouse-3
a. Updates?
3. PCORnet CDM/Data Changes
a. Data Curation Dates - REMINDER
i. Cycle 6, Refresh 1 - Distributed 1/14/19; Due 2/04/19
ii. Cycle 6, Refresh 2 - Distributed 4/01/19; Due 4/22/19
b. PCRF SOW Changes - no updates
4. GROUSE FinderFiles - deadline to ship to GDIT is 1/4/19; check if sites are 
at risk to miss this deadline (action item from Hackathon)
a. #720 KUMC - done
b. #721 MCRF - 
c. #722 UTSW -
d. #723 UNMC -
e. #724 MU -
f. #725 IU -
g. #726 MCW -
h. #727 Allina, Utah, Intermountain and UIHC - 
i. #728 UTHSCSA - 
j. #730 Iowa - 
5. #729 Update Babel Metadata from Datamarts submitted for GROUSE
a. Timeline? 
b. #594 babel ontology update for MU - close for now?
c. How to handle sites that have left (CMH, WISC, UMN)?
6. HackathonSix
a. Action items:
i. GROUSE Finder Files (see above)
ii. MCW/Andrew to demo of Honest Broker Data Delivery Tool 
(January 8?)
1. Other demos from sites? REDCap and FHIR?
iii. Guidance needed with regard to former sites. Revised 
agreements with new sites.
b. Remember to complete the feedback form; it's helpful for planning 
future events.
7. #711/DROC #40: Predictive Models for Acute Kidney Injury using PCORnet CDM
a. Updates?
8. NextD - IOWA, UNMC, MCW, IU, KUMC, UTSW, MU
a. #713 - NextD Data Refresh; based on CDM v4.0; pending #715
i. January 1st, then one month to complete extraction
ii. Any challenges for January deadline?
1. MCW - will need to port the SQL to PostgreSQL, will 
have complete by FEB 15
2. NE - will be aiming for January 10
3. All other sites say they should be able to meet the 
Jan 5 deadline
b. Updates?
9. #718/ DROC #42: Comparison of Outcomes of Unilateral Mastectomy and 
Contralateral Prophylactic Mastectomy with Reconstruction in a Multicenter 
Cohort [also]
a. Due date was 12/15.
b. MCW will close its IRB this week. 
c. Updates?
10. milestone:snow-shrine-2 , milestone:snow-shrine-3
a. Unclear path forward based on Hackathon6 - who makes the decision?
b. #411 - Align SNOW SHRINE terminology with ARCH and ACT ontology for 
interoperation of query 
11. milestone:text-notes-1 De-identification; use case: #573
a. Pushed out 6 months, per Hackathon6
12. Other topics?


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Canceled: GPC Dev Weekly Teleconference

[Verhagen, Laurel A]

BEGIN:VCALENDAR
METHOD:CANCEL
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ORGANIZER;CN="Verhagen, Laurel A":MAILTO:VERHAGEN.LAUREL@marshfieldresearch.o
 rg
ATTENDEE;ROLE=REQ-PARTICIPANT;PARTSTAT=NEEDS-ACTION;RSVP=FALSE;CN=gpc-dev@l
 istserv.kumc.edu:MAILTO:gpc-dev@listserv.kumc.edu
ATTENDEE;ROLE=REQ-PARTICIPANT;PARTSTAT=NEEDS-ACTION;RSVP=FALSE;CN="Roush, St
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ATTENDEE;ROLE=REQ-PARTICIPANT;PARTSTAT=NEEDS-ACTION;RSVP=FALSE;CN=Reid.Holb
 r...@hsc.utah.edu:MAILTO:reid.holbr...@hsc.utah.edu
ATTENDEE;ROLE=REQ-PARTICIPANT;PARTSTAT=NEEDS-ACTION;RSVP=FALSE;CN="Osinski, 
 Kristen (kosin...@mcw.edu)":MAILTO:kosin...@mcw.edu
DESCRIPTION;LANGUAGE=en-US:**Canceling due to the holiday\n--\nWhen: Occurs
  every Tuesday from 11:00 AM to 12:00 PM\, effective 9/25/18-12/31/19. (UT
 C-06:00) Central Time (US & Canada)\n\n1.  Please join my meeting: htt
 ps://global.gotomeeting.com/meeting/join/817393381\n2.  Use your micro
 phone and speakers (VoIP) - a headset is recommended. Or\, call in using y
 our telephone.\nUnited States (Toll-free): +1 (571) 317-3131\n\n  Acce
 ss Code: 817-393-381\n  Audio PIN: Shown after joining the meeting\n\n
   Meeting ID:817-393-381\n\nAn agenda is due to the gpc-dev mailing li
 st a day in advance:\nhttp://listserv.kumc.edu/pipermail/gpc-dev/\n\nFor m
 ore information see:\nhttps://informatics.gpcnetwork.org/trac/Project/wiki
 /SoftwareDev#next-agenda\n\n\n\n
SUMMARY;LANGUAGE=en-US:Canceled: GPC Dev Weekly Teleconference
DTSTART;TZID=Central Standard Time:20181225T11
DTEND;TZID=Central Standard Time:20181225T12
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Canceled: GPC Dev Weekly Teleconference

[Verhagen, Laurel A]

BEGIN:VCALENDAR
METHOD:CANCEL
PRODID:Microsoft Exchange Server 2010
VERSION:2.0
BEGIN:VTIMEZONE
TZID:Central Standard Time
BEGIN:STANDARD
DTSTART:16010101T02
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
RRULE:FREQ=YEARLY;INTERVAL=1;BYDAY=1SU;BYMONTH=11
END:STANDARD
BEGIN:DAYLIGHT
DTSTART:16010101T02
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
RRULE:FREQ=YEARLY;INTERVAL=1;BYDAY=2SU;BYMONTH=3
END:DAYLIGHT
END:VTIMEZONE
BEGIN:VEVENT
ORGANIZER;CN="Verhagen, Laurel A":MAILTO:VERHAGEN.LAUREL@marshfieldresearch.o
 rg
ATTENDEE;ROLE=REQ-PARTICIPANT;PARTSTAT=NEEDS-ACTION;RSVP=FALSE;CN=gpc-dev@l
 istserv.kumc.edu:MAILTO:gpc-dev@listserv.kumc.edu
ATTENDEE;ROLE=REQ-PARTICIPANT;PARTSTAT=NEEDS-ACTION;RSVP=FALSE;CN="Roush, St
 effani":MAILTO:roush.steff...@marshfieldresearch.org
ATTENDEE;ROLE=REQ-PARTICIPANT;PARTSTAT=NEEDS-ACTION;RSVP=FALSE;CN=Reid.Holb
 r...@hsc.utah.edu:MAILTO:reid.holbr...@hsc.utah.edu
ATTENDEE;ROLE=REQ-PARTICIPANT;PARTSTAT=NEEDS-ACTION;RSVP=FALSE;CN="Osinski, 
 Kristen (kosin...@mcw.edu)":MAILTO:kosin...@mcw.edu
DESCRIPTION;LANGUAGE=en-US:When: Occurs every Tuesday from 11:00 AM to 12:0
 0 PM\, effective 9/25/18-12/31/19. (UTC-06:00) Central Time (US & Canada)\
 n\n1.  Please join my meeting: https://global.gotomeeting.com/meeting/
 join/817393381\n2.  Use your microphone and speakers (VoIP) - a headse
 t is recommended. Or\, call in using your telephone.\nUnited States (Toll-
 free): +1 (571) 317-3131\n\n  Access Code: 817-393-381\n  Audio PI
 N: Shown after joining the meeting\n\n  Meeting ID:817-393-381\n\nAn a
 genda is due to the gpc-dev mailing list a day in advance:\nhttp://listser
 v.kumc.edu/pipermail/gpc-dev/\n\nFor more information see:\nhttps://inform
 atics.gpcnetwork.org/trac/Project/wiki/SoftwareDev#next-agenda\n\n\n\n
SUMMARY;LANGUAGE=en-US:Canceled: GPC Dev Weekly Teleconference
DTSTART;TZID=Central Standard Time:20181211T11
DTEND;TZID=Central Standard Time:20181211T12
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Hachathon6 Notes Link

[Verhagen, Laurel A]

Hi everyone, 

I've prepped a notes document for the meeting next week:
https://docs.google.com/document/d/1DLM6oC9kV0A3Kabf_7yYSqrMnTWIgjEKV2DqHKPfoSE/edit#

This link is also posted from the Hackathon 6 page: 
https://informatics.gpcnetwork.org/trac/Project/wiki/HackathonSix

Please note that this includes scribe assignments by site for each session. I 
have two sites listed to ensure we have coverage, but feel free to adjust as 
needed next week.

Save travels!!
Laurel

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gpc-dev December 4 agenda and meeting notes

[Verhagen, Laurel A]

Hi everyone,

Below find the agenda-in-progress for our meeting Tuesday, December 4 at 11:00 
a.m. CT. Our scribe will be MCW.

Connect:
https://global.gotomeeting.com/meeting/join/817393381
access code: 817-393-381; call +1 (571) 317-3131

Link to notes/tentative agenda:
https://docs.google.com/document/d/1DLM6oC9kV0A3Kabf_7yYSqrMnTWIgjEKV2DqHKPfoSE/edit#

Let me know if you have additions/changes?

Thanks,
Laurel
--
1. Convene, take roll, review records and plan next meeting(s)
a.11:00 a.m. Central Time.
​   Meeting ID and access code: 817-393-381; call +1 (571) 317-3131
b. Roll; comments on the agenda? (ref SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences
i. GPC DevTeams represented? KUMC, UIOWA, MCW, MCRI, UNMC, 
UTHSCSA, UTSW, MU, IU, Utah, Allina
ii. Today's scribe: MCW
c. Comments on last week’s notes? (#12)
Recent tickets opened/closed - FYI (i.e. not intended for discussion)
i. Opened - 
ii. Closed - #565 GPC PI Connect Phase II Data Request; 
#389 HERON LOINC term build insufficiently 
specified/documented; 
#522 Days Supply in CDM v3 prescribing table not 
populated with...
d. Next meeting(s)/scribe: December 18 KUMC? UNMC?
i. Note scribe rotation appendix

2. RCR - milestones:cancer-rcr-1; cancer-rcr-3 / Grouse-3
a. Updates?

3. PCORnet CDM/Data Changes
a. Data Curation Dates - REMINDER
i. Cycle 6, Refresh 1 - Distributed 1/14/19; Due 2/04/19
1.Version 6 of the data checks is posted for comment

a.https://pcornet.imeetcentral.com/drnoc-workgroups/folder/WzIwLDg5ODQ0MDZd/WzIsNjIzMDQxOTVd/
b. Version 6 will go into effect in January
ii. Cycle 6, Refresh 2 - Distributed 4/01/19; Due 4/22/19
b. PCRF SOW Changes
i. Big impact for GPC:
1. No date shifting
2. Mapping meds and labs
ii. DRN OC will not be enforcing any changes in January; they 
assume that PCRF will not either 
iii. A workgroup is being formed to discuss when the changes 
need to be implemented. 
iv. Guidance will be shared with networks/sites as soon as 
possible, per DRN OC.
v. GPC sites should proceed with a general refresh of data to 
the CDM v4.1 spec for Cycle 6, Refresh 1. 

4. LEC and HackathonSix
a. Ahead of the meeting
i. All to update and add hardware details to GPC DevTeams Tools 
and Techniques slides from HackathonFour Jan 2017
1.Also think about updating the people slides??
ii. Remote connection/GoToMeeting link
1.Distributed by email
2.Posted http://www.gpcnetwork.org/?q=2018-LEC-Hackathon
b. Agendas (http://www.gpcnetwork.org/?q=2018-LEC-Hackathon)
i. Breakout session descriptions are posted
ii. Any updates/questions?

5. DROC #40: Predictive Models for Acute Kidney Injury using PCORnet CDM
a.#711 - External Validation for Acute Kidney Injury(AKI) Predictive 
Models using PCORnet CDM data
i. Two options:
1.Run R locally and return reports
a. Done - KUMC, UIowa, UTHSCSA, Marshfield
b. Utah in queue
c. Indiana, when can run code?
i. Jarrah will submit a request
2.KUMC runs the scripts against GROUSE data for sites
a. Sites: UTSW, MCW, UNMC, MU, IU
ii. Updates?

6. NextD - IOWA, UNMC, MCW, IU, KUMC, UTSW, MU
a.#713 - NextD Data Refresh; based on CDM v4.0; pending #715
i. January 1st, then one month to complete extraction
b.#715 NextD request on mapping payer_type variables
i. Data dictionary, and enrollment changes are done now. 
c. Updates?

7. #509 geocoding ETL code: reproducible method with version-controlled code
 
8.DROC #42: Comparison of Outcomes of Unilateral Mastectomy and Contralateral 
Prophylactic Mastectomy with Reconstruction in a Multicenter Cohort [also #718]
a. Due date 12/15
b. Anyone working on this needs to be listed on the IRB for the main BC 
study. UIOWA IRB approved the RTM additions.
i. If there are others who need to access breast cancer data - 
contact brian-gryz...@uiowa.edu 

9.milestone:snow-shrine-2 , milestone:snow-shrine-3
a. Planning tabled until Hackathon 6 (Dec 10-11); activity suspended 
pending discussion at hackathon
b. #411 - Align SNOW SHRINE terminology with ARCH and ACT ontology for 
interoperation 

gpc-dev November 27 agenda and meeting notes

[Verhagen, Laurel A]

Hi everyone,

Below find the agenda-in-progress for our meeting Tuesday, November 27 at 11:00 
a.m. CT. Our scribe will be Iowa.

Connect: https://global.gotomeeting.com/meeting/join/817393381
access code: 817-393-381; call +1 (571) 317-3131

Link to notes:
https://docs.google.com/document/d/1ycpcFYTwBNwa5dbCZ0uQgrDmqREZh59FR68iy7dNfIg/edit

Let me know if you have additions/changes?

Thanks,
Laurel
--
1. Convene, take roll, review records and plan next meeting(s)
a. 11:00 a.m. Central Time.
Meeting ID and access code: 817-393-381; call +1 (571) 317-3131
b. Roll; comments on the agenda? (ref SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences
i. GPC DevTeams represented? KUMC, UIOWA, MCW, 
MCRI, UNMC, UTHSCSA, UTSW, MU, IU, Utah, Allina
ii. Today's scribe: Iowa
c. Comments on last week's notes? (#12)
Recent tickets opened/closed 
i. Opened - none
ii. Closed - #717 OBS_CLIN coding for CDMv41; 
#712 WISC CDM Cycle 4; #472 Wisconsin Medicaid data
d. Next meeting(s): 4 December - scribe MCW? KUMC?
i. Note scribe rotation appendix

2. RCR - milestones:cancer-rcr-1; cancer-rcr-3 / Grouse-3 
a. News?

3. PCORnet CDM/Data Curation
a. Cycle 6, Refresh 1 - Distributed 1/14/19; Due 2/04/19
b. Cycle 6, Refresh 2 - Distributed 4/01/19; Due 4/22/19

4. HackathonSix - 
a. Ahead of the meeting
i. Add hardware details to GPC DevTeams Tools and Techniques 
(https://docs.google.com/presentation/d/1LkZNvjSEjXkCwo0a0rLigqlSFS_ZOHS8QQiJfL8K_-Q/edit#slide=id.g1ab798bdd4_0_8)
b. Remote connection/GoToMeeting link?
c. Agenda discussion (http://www.gpcnetwork.org/?q=2018-LEC-Hackathon)
i. Monday, Dec 10
1. 10:30-12 Site PIs & Hackathon teams
2. 1:00-2:00 GROUSE
3. 2:10-3:10 SNOW SHRINE replacement
4. 3:30-4:30 Business Development & Hackathon
ii. Tuesday, Dec 11
1. 8:00-9:30 Hackathon
2. 10:00-11:15 Hackathon & Site PIs

5. PCRF 
a. Contractual requirements for the CDM
i. Laurel to confirm expectations and timeline.

6. DROC #40: Predictive Models for Acute Kidney Injury using PCORnet CDM
a. #711 - External Validation for Acute Kidney Injury(AKI) 
Predictive Models using PCORnet CDM data
 i. Deadline - late October (past)
 ii. Two options:
1. Run R locally and return 
reports (as earlier discussed)
a. Done - KUMC, 
Iowa, UTHSCSA
b. Utah - 
c. Marshfield - 
2. KUMC runs reports against 
GROUSE data
a. UTSW, MCW, 
UNMC, MU, IU 


7. NextD - sites: IOWA, UNMC, MCW, IU, KUMC, UTSW, MU
a. #713 - NextD Data Refresh; based on CDM v4.0; due date 1/1/19
c. #715 - NextD request on mapping payer_type variables 
i. Updates?

8. DROC #42: Comparison of Outcomes of Unilateral Mastectomy and Contralateral 
Prophylactic Mastectomy with Reconstruction in a Multicenter Cohort [also #718]
a. Due date 12/15

9. milestone:snow-shrine-2 , milestone:snow-shrine-3
a. Tabled until Hackathon6

10. milestone:text-notes-1 De-identification; use case: #573
a. Tabled for clarification on expectations

11. Other topics

__
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RE: gpc-dev November 20 agenda and meeting notes

[Verhagen, Laurel A]

PDF attached for archiving. Thanks to Todd/MU for taking notes!

Laurel

-Original Message-
From: Gpc-dev [mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Verhagen, 
Laurel A
Sent: Monday, November 19, 2018 4:10 PM
To: gpc-dev@listserv.kumc.edu
Subject: gpc-dev November 20 agenda and meeting notes

Hi everyone,

Below find the agenda in progress for our meeting Tuesday, November 20 at 11:00 
a.m. CT. Our scribe will be Todd from MU.

Connect:
https://urldefense.proofpoint.com/v2/url?u=https-3A__global.gotomeeting.com_meeting_join_817393381&d=DwICAg&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrbqse0CnDMUgS4P3-3HOTSAwE8Vfvoc1Wm0NCYFbuU-_5&m=3QCcPfWSKoHxhKBs5pmKQ2TIA9T-HsPNgkx660FUqMI&s=YLCXfx5UeztBRwrZTlgO4lgfbLqR2_KnByVsaO_Byh0&e=
access code: 817-393-381; call +1 (571) 317-3131

Link to notes/tentative agenda:
https://urldefense.proofpoint.com/v2/url?u=https-3A__docs.google.com_document_d_1nEBGmyq4zAIIy4RWMPrB9izMIhRnNaVBPSM9m3Yr2Xw_edit&d=DwICAg&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrbqse0CnDMUgS4P3-3HOTSAwE8Vfvoc1Wm0NCYFbuU-_5&m=3QCcPfWSKoHxhKBs5pmKQ2TIA9T-HsPNgkx660FUqMI&s=D7DAuIbE1UvCiHL41Ed6kLAUWL3iN-5zL--hjnWYU5k&e=

Let me know if you have additions/changes?

Thanks,
Laurel
--
1. Convene, take roll, review records and plan next meeting(s)
a. 11:00 a.m. Central Time.
Meeting ID and access code: 817-393-381; call +1 (571) 317-3131
b. Roll; comments on the agenda? (ref SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences
i. GPC DevTeams represented? KUMC, UIOWA, MCW, 
MCRI, UNMC, UTHSCSA, UTSW, MU, IU, Utah, Allina
ii. Today's scribe: Todd/MU
c. Comments on last week's notes? (#12)
Recent tickets opened/closed 
i. Opened - #719 Oracle is changing their 
licensing fees
ii. Closed - none
d. Next meeting(s): 27 November - scribe: Iowa
i. Note scribe rotation appendix

2. RCR - milestones:cancer-rcr-1; cancer-rcr-3 / Grouse-3 
a. News?

3. PCORnet CDM/Data Curation
a. Cycle 5, Refresh 2 - distributed 10/8/18; due 10/29/18 
i.   CDM Data Curation Query Package v4.12
ii.  Approved: Utah, Allina, MCW, UTHSCSA, UNMC, Iowa, 
Marshfield, Intermountain, Indiana, UTSW, KUMC, MU
iii.  Pending: None
b. Cycle 6, Refresh 1 - Distributed 1/14/19; Due 2/04/19
c.  Cycle 6, Refresh 2 - Distributed 4/01/19; Due 4/22/19

4. PCRF 
a. Master Table of CRN Information
i. Distributed to PM group
ii. Due COB on Tuesday, Nov 20 

5. DROC #40: Predictive Models for Acute Kidney Injury using PCORnet CDM
a. #711 - External Validation for Acute Kidney Injury(AKI) 
Predictive Models using PCORnet CDM data
 i. Deadline - late October (past)
 ii. Two options:
1. Run R locally and return 
reports (as earlier discussed)
a. Done - KUMC, 
Iowa, UTHSCSA
b. Utah - 
c. Marshfield - 
2. KUMC runs reports against 
GROUSE data
a. UTSW, MCW, 
UNMC, MU, IU 


6. Learning Engagement Conference and HackathonSix - 
https://urldefense.proofpoint.com/v2/url?u=https-3A__informatics.gpcnetwork.org_trac_Project_wiki_HackathonSix&d=DwICAg&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrbqse0CnDMUgS4P3-3HOTSAwE8Vfvoc1Wm0NCYFbuU-_5&m=3QCcPfWSKoHxhKBs5pmKQ2TIA9T-HsPNgkx660FUqMI&s=cwd8l-2Z9F9nRcsvpOWHyjL_Waz-u9Zuj7X91s60mbc&e=
a. Dec 10-11, Kansas City, MO
b. Updates?

7. NextD - sites: IOWA, UNMC, MCW, IU, KUMC, UTSW, MU
a. #713 - NextD Data Refresh; based on CDM v4.0; due date was 
11/2/18
c. #715 - NextD request on mapping payer_type variables 
i. Updates?

8. DROC #42: Comparison of Outcomes of Unilateral Mastectomy and Contralateral 
Prophylactic Mastectomy with Reconstruction in a Multicenter Cohort [also #718]
a. Due date 11/15/18 - will be revised
b. Anyone accessing the BC dataset needs to be listed on the 
IRB with Iowa. 

9.  #719 Oracle is changing their licensing fees
a. Feedback fo

gpc-dev November 20 agenda and meeting notes

[Verhagen, Laurel A]

Hi everyone,

Below find the agenda in progress for our meeting Tuesday, November 20 at 11:00 
a.m. CT. Our scribe will be Todd from MU.

Connect:
https://global.gotomeeting.com/meeting/join/817393381
access code: 817-393-381; call +1 (571) 317-3131

Link to notes/tentative agenda:
https://docs.google.com/document/d/1nEBGmyq4zAIIy4RWMPrB9izMIhRnNaVBPSM9m3Yr2Xw/edit

Let me know if you have additions/changes?

Thanks,
Laurel
--
1. Convene, take roll, review records and plan next meeting(s)
a. 11:00 a.m. Central Time.
Meeting ID and access code: 817-393-381; call +1 (571) 317-3131
b. Roll; comments on the agenda? (ref SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences
i. GPC DevTeams represented? KUMC, UIOWA, MCW, 
MCRI, UNMC, UTHSCSA, UTSW, MU, IU, Utah, Allina
ii. Today's scribe: Todd/MU
c. Comments on last week's notes? (#12)
Recent tickets opened/closed 
i. Opened - #719 Oracle is changing their 
licensing fees
ii. Closed - none
d. Next meeting(s): 27 November - scribe: Iowa
i. Note scribe rotation appendix

2. RCR - milestones:cancer-rcr-1; cancer-rcr-3 / Grouse-3 
a. News?

3. PCORnet CDM/Data Curation
a. Cycle 5, Refresh 2 - distributed 10/8/18; due 10/29/18 
i.   CDM Data Curation Query Package v4.12
ii.  Approved: Utah, Allina, MCW, UTHSCSA, UNMC, Iowa, 
Marshfield, Intermountain, Indiana, UTSW, KUMC, MU
iii.  Pending: None
b. Cycle 6, Refresh 1 - Distributed 1/14/19; Due 2/04/19
c.  Cycle 6, Refresh 2 - Distributed 4/01/19; Due 4/22/19

4. PCRF 
a. Master Table of CRN Information
i. Distributed to PM group
ii. Due COB on Tuesday, Nov 20 

5. DROC #40: Predictive Models for Acute Kidney Injury using PCORnet CDM
a. #711 - External Validation for Acute Kidney Injury(AKI) 
Predictive Models using PCORnet CDM data
 i. Deadline - late October (past)
 ii. Two options:
1. Run R locally and return 
reports (as earlier discussed)
a. Done - KUMC, 
Iowa, UTHSCSA
b. Utah - 
c. Marshfield - 
2. KUMC runs reports against 
GROUSE data
a. UTSW, MCW, 
UNMC, MU, IU 


6. Learning Engagement Conference and HackathonSix - 
https://informatics.gpcnetwork.org/trac/Project/wiki/HackathonSix
a. Dec 10-11, Kansas City, MO
b. Updates?

7. NextD - sites: IOWA, UNMC, MCW, IU, KUMC, UTSW, MU
a. #713 - NextD Data Refresh; based on CDM v4.0; due date was 
11/2/18
c. #715 - NextD request on mapping payer_type variables 
i. Updates?

8. DROC #42: Comparison of Outcomes of Unilateral Mastectomy and Contralateral 
Prophylactic Mastectomy with Reconstruction in a Multicenter Cohort [also #718]
a. Due date 11/15/18 - will be revised
b. Anyone accessing the BC dataset needs to be listed on the 
IRB with Iowa. 

9.  #719 Oracle is changing their licensing fees
a. Feedback for UNMC re: shifting from Oracle to SQL server for DW?

10. milestone:snow-shrine-2 , milestone:snow-shrine-3
a. Tabled until Hackathon6

11. milestone:text-notes-1 De-identification; use case: #573
a. Tabled for clarification on expectations

12. Other topics

__
The contents of this message may contain private, protected and/or privileged 
information.  If you received this message in error, you should destroy the 
e-mail message and any attachments or copies, and you are prohibited from 
retaining, distributing, disclosing or using any information contained within.  
Please contact the sender and advise of the erroneous delivery by return e-mail 
or telephone.  Thank you for your cooperation.
___
Gpc-dev mailing list
Gpc-dev@listserv.kumc.edu
http://listserv.kumc.edu/mailman/listinfo/gpc-dev

RE: gpc-dev November 13 agenda and meeting notes

[Verhagen, Laurel A]

PDF attached for archiving. Thank you to Reid for taking notes!

Agenda in progress for 11/20: 
https://docs.google.com/document/d/1nEBGmyq4zAIIy4RWMPrB9izMIhRnNaVBPSM9m3Yr2Xw/edit

Thanks, 
Laurel

-Original Message-
From: Gpc-dev [mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Verhagen, 
Laurel A
Sent: Monday, November 12, 2018 2:15 PM
To: gpc-dev@listserv.kumc.edu
Subject: gpc-dev November 13 agenda and meeting notes

Hi everyone,

Below find the tentative agenda for our meeting Tuesday, November 13 at 11:00 
a.m. CT. Our scribe will be Reid from Utah.

Connect:
https://urldefense.proofpoint.com/v2/url?u=https-3A__global.gotomeeting.com_meeting_join_817393381&d=DwICAg&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=Xy1JhgNiNN5o8BiO4LneNiWXLsT4zv_QsNRe-TCV1Ww&s=dwLefSk0DWw3C0W1GwvtXb2scHaiS14wVBrnehP_3dY&e=
access code: 817-393-381; call +1 (571) 317-3131

Link to notes/tentative agenda:
https://urldefense.proofpoint.com/v2/url?u=https-3A__docs.google.com_document_d_1i7PfkxGzpCVXuvriF5Khoz1tZeslvinJr0n2ejb1xy8_edit&d=DwICAg&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=Xy1JhgNiNN5o8BiO4LneNiWXLsT4zv_QsNRe-TCV1Ww&s=wcqEvIMjX_MRFbU8TTf3BscCfxYAChrQrIyiPlcuXuA&e=

Let me know if you have additions/changes?

Thanks,
Laurel
--
1. Convene, take roll, review records and plan next meeting(s)
a. 11:00 a.m. Central Time.
Meeting ID and access code: 817-393-381; call +1 (571) 317-3131
b. Roll; comments on the agenda? (ref SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences
i. GPC DevTeams represented? KUMC, UIOWA, MCW, 
MCRI, UNMC, UTHSCSA, UTSW, MU, IU, Utah, Allina
ii. Today's scribe: Reid/Utah
c. Comments on last week's notes? (#12)
Recent tickets opened/closed 
i. Opened - none
ii. Closed - none
d. Next meeting(s): 16 October - scribe: MU? Iowa?
i. Note scribe rotation appendix

2. RCR - milestones:cancer-rcr-1; cancer-rcr-3 / Grouse-3 
a. News?

3. PCORnet CDM/Data Curation
a. Cycle 5, Refresh 2 - distributed 10/8/18; due 10/29/18 
i.   CDM Data Curation Query Package v4.12
b.  Approved: Utah, Allina, MCW, UTHSCSA, UNMC, Iowa, Marshfield, 
Intermountain, Indiana, UTSW, KUMC
c.  Pending: MU

4. DROC #40: Predictive Models for Acute Kidney Injury using PCORnet CDM
a. #711 - External Validation for Acute Kidney Injury(AKI) 
Predictive Models using PCORnet CDM data
 i. Deadline - late October (past)
 ii. Two options:
1. Run R locally and return 
reports (as earlier discussed)
a. Done - KUMC, 
Iowa, UTHSCSA
b. Marshfield - 
Steffani working with Song
c. Utah - ?
2. KUMC runs reports against 
GROUSE data
a. UTSW, MCW, 
UNMC, MU, IU 
b. Update?
   
5. Learning Engagement Conference and HackathonSix - 
https://urldefense.proofpoint.com/v2/url?u=https-3A__informatics.gpcnetwork.org_trac_Project_wiki_HackathonSix&d=DwICAg&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=Xy1JhgNiNN5o8BiO4LneNiWXLsT4zv_QsNRe-TCV1Ww&s=NzlaOAI5n8nNQ6-Lb-zaYGOP1Rt_UBcxZ9govBL8wOU&e=
a. Dec 10-11, Kansas City
b. Registration survey is out - respond as soon as possible: 
https://urldefense.proofpoint.com/v2/url?u=https-3A__redcap.kumc.edu_surveys_-3Fs-3DFALMAN3AJH&d=DwICAg&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=Xy1JhgNiNN5o8BiO4LneNiWXLsT4zv_QsNRe-TCV1Ww&s=M8sAL9LQkk9rQbFdpVVzbfWFgQ7hrA_wm779Ct8P88s&e=

6. NextD - sites: IOWA, UNMC, MCW, IU, KUMC, UTSW, MU
a. #713 - NextD Data Refresh; based on CDM v4.0; due date was 
11/2/18
c. #715 - #715 NextD request on mapping payer_type variables 
i. Update from Campbell on 11/1.

7. DROC #42: Comparison of Outcomes of Unilateral Mastectomy and Contralateral 
Prophylactic Mastectomy with Reconstruction in a Multicenter Coh

gpc-dev November 13 agenda and meeting notes

[Verhagen, Laurel A]

Hi everyone,

Below find the tentative agenda for our meeting Tuesday, November 13 at 11:00 
a.m. CT. Our scribe will be Reid from Utah.

Connect:
https://global.gotomeeting.com/meeting/join/817393381
access code: 817-393-381; call +1 (571) 317-3131

Link to notes/tentative agenda:
https://docs.google.com/document/d/1i7PfkxGzpCVXuvriF5Khoz1tZeslvinJr0n2ejb1xy8/edit

Let me know if you have additions/changes?

Thanks,
Laurel
--
1. Convene, take roll, review records and plan next meeting(s)
a. 11:00 a.m. Central Time.
Meeting ID and access code: 817-393-381; call +1 (571) 317-3131
b. Roll; comments on the agenda? (ref SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences
i. GPC DevTeams represented? KUMC, UIOWA, MCW, 
MCRI, UNMC, UTHSCSA, UTSW, MU, IU, Utah, Allina
ii. Today's scribe: Reid/Utah
c. Comments on last week's notes? (#12)
Recent tickets opened/closed 
i. Opened - none
ii. Closed - none
d. Next meeting(s): 16 October - scribe: MU? Iowa?
i. Note scribe rotation appendix

2. RCR - milestones:cancer-rcr-1; cancer-rcr-3 / Grouse-3 
a. News?

3. PCORnet CDM/Data Curation
a. Cycle 5, Refresh 2 - distributed 10/8/18; due 10/29/18 
i.   CDM Data Curation Query Package v4.12
b.  Approved: Utah, Allina, MCW, UTHSCSA, UNMC, Iowa, Marshfield, 
Intermountain, Indiana, UTSW, KUMC
c.  Pending: MU

4. DROC #40: Predictive Models for Acute Kidney Injury using PCORnet CDM
a. #711 - External Validation for Acute Kidney Injury(AKI) 
Predictive Models using PCORnet CDM data
 i. Deadline - late October (past)
 ii. Two options:
1. Run R locally and return 
reports (as earlier discussed)
a. Done - KUMC, 
Iowa, UTHSCSA
b. Marshfield - 
Steffani working with Song
c. Utah - ?
2. KUMC runs reports against 
GROUSE data
a. UTSW, MCW, 
UNMC, MU, IU 
b. Update?
   
5. Learning Engagement Conference and HackathonSix - 
https://informatics.gpcnetwork.org/trac/Project/wiki/HackathonSix
a. Dec 10-11, Kansas City
b. Registration survey is out - respond as soon as possible: 
https://redcap.kumc.edu/surveys/?s=FALMAN3AJH

6. NextD - sites: IOWA, UNMC, MCW, IU, KUMC, UTSW, MU
a. #713 - NextD Data Refresh; based on CDM v4.0; due date was 
11/2/18
c. #715 - #715 NextD request on mapping payer_type variables 
i. Update from Campbell on 11/1.

7. DROC #42: Comparison of Outcomes of Unilateral Mastectomy and Contralateral 
Prophylactic Mastectomy with Reconstruction in a Multicenter Cohort [also #718]
a. Due date 11/15/18 - will be revised
b. Anyone accessing the BC dataset needs to be listed on the 
IRB with Iowa. 
1. Update?

8. milestone:snow-shrine-2 , milestone:snow-shrine-3
a. Tabled until Hackathon6

9. milestone:text-notes-1 De-identification; use case: #573
a. Tabled for clarification on expectations

10. Other topics

__
The contents of this message may contain private, protected and/or privileged 
information.  If you received this message in error, you should destroy the 
e-mail message and any attachments or copies, and you are prohibited from 
retaining, distributing, disclosing or using any information contained within.  
Please contact the sender and advise of the erroneous delivery by return e-mail 
or telephone.  Thank you for your cooperation.
___
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Canceled: GPC Dev Weekly Teleconference

[Verhagen, Laurel A]

BEGIN:VCALENDAR
METHOD:CANCEL
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BEGIN:VTIMEZONE
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BEGIN:STANDARD
DTSTART:16010101T02
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 rg
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ATTENDEE;ROLE=REQ-PARTICIPANT;PARTSTAT=NEEDS-ACTION;RSVP=FALSE;CN="Roush, St
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ATTENDEE;ROLE=REQ-PARTICIPANT;PARTSTAT=NEEDS-ACTION;RSVP=FALSE;CN="Osinski, 
 Kristen (kosin...@mcw.edu)":MAILTO:kosin...@mcw.edu
DESCRIPTION;LANGUAGE=en-US:When: Occurs every Tuesday from 11:00 AM to 12:0
 0 PM\, effective 9/25/18-12/31/19. (UTC-06:00) Central Time (US & Canada)\
 n\n1.  Please join my meeting: https://global.gotomeeting.com/meeting/
 join/817393381\n2.  Use your microphone and speakers (VoIP) - a headse
 t is recommended. Or\, call in using your telephone.\nUnited States (Toll-
 free): +1 (571) 317-3131\n\n  Access Code: 817-393-381\n  Audio PI
 N: Shown after joining the meeting\n\n  Meeting ID:817-393-381\n\nAn a
 genda is due to the gpc-dev mailing list a day in advance:\nhttp://listser
 v.kumc.edu/pipermail/gpc-dev/\n\nFor more information see:\nhttps://inform
 atics.gpcnetwork.org/trac/Project/wiki/SoftwareDev#next-agenda\n\n\n\n
SUMMARY;LANGUAGE=en-US:Canceled: GPC Dev Weekly Teleconference
DTSTART;TZID=Central Standard Time:20181106T11
DTEND;TZID=Central Standard Time:20181106T12
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DTSTAMP:20181030T173527Z
TRANSP:OPAQUE
STATUS:CANCELLED
SEQUENCE:3
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gpc-dev October 30 agenda and meeting notes

[Verhagen, Laurel A]

PDF attached for archiving. Thanks to Eric from UTHSCSA for taking notes!

Note that we will not meet on 11/6, due to AMIA.

Agenda in progress for 11/13 - scribe will be Reid from Utah
https://docs.google.com/document/d/1i7PfkxGzpCVXuvriF5Khoz1tZeslvinJr0n2ejb1xy8/edit

Thanks, 
Laurel

-Original Message-
From: Gpc-dev [mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Verhagen, 
Laurel A
Sent: Monday, October 29, 2018 1:34 PM
To: gpc-dev@listserv.kumc.edu
Subject: gpc-dev October 30 agenda and meeting notes

Hi everyone,

Below find the tentative agenda for our meeting Tuesday, October 30 at 11:00 
a.m. CT. Our scribe will UTHSCSA.

Connect: 
https://urldefense.proofpoint.com/v2/url?u=https-3A__global.gotomeeting.com_meeting_join_817393381&d=DwICAg&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=s_jE1I4-KlT5ieMOJ8oh51RUPWZZSGbLWdNuznYTtPc&s=87z_WS2tjqB6Sy_DpYfoJTpyr98HXRGwVeRJtOXqo7M&e=
access code: 817-393-381; call +1 (571) 317-3131

Link to notes/tentative agenda:
https://urldefense.proofpoint.com/v2/url?u=https-3A__docs.google.com_document_d_1eHArjrVzuVyaEsFq-2D-5F73d6CdeaM7QWeEsTbE1o80Qsw_edit&d=DwICAg&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=s_jE1I4-KlT5ieMOJ8oh51RUPWZZSGbLWdNuznYTtPc&s=EBAdGIQHHtGcdVPdtCX6vBasj-dpn9eULdK19z8tWrw&e=

Let me know if you have additions/changes?

Thanks,
Laurel
--
1. Convene, take roll, review records and plan next meeting(s)
a. 11:00 a.m. Central Time.
b. Roll; comments on the agenda? (ref SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences
i. GPC DevTeams represented? KUMC, UIOWA, MCW, 
MCRI, UNMC, UTHSCSA, UTSW, MU, IU, Utah, Allina
ii. Today's scribe: *UTHSCSA*
c. Comments on last week's notes? (#12)
Recent tickets opened/closed 
i. Opened - none
ii. Closed - none
d. Next meeting(s): 13 November - scribe: Utah? MU?
i. Note scribe rotation appendix

2. RCR - milestones:cancer-rcr-1; cancer-rcr-3 / Grouse-3 
a. News? (Off the agenda in 2 weeks/meetings)

3. PCORnet CDM/Data Curation
a. Cycle 5, Refresh 2 - distributed 10/8/18; due 10/29/18 
i.   CDM Data Curation Query Package v4.12
b.  Approved: Utah, Allina, MCW, UTHSCSA
c. Any sites not submit on 10/29?

4. DROC #40: Predictive Models for Acute Kidney Injury using PCORnet CDM
a. #711 - External Validation for Acute Kidney Injury(AKI) 
Predictive Models using PCORnet CDM data
 i. Deadline - late October
 ii. Two options:
1. Run R locally and return 
reports (as earlier discussed)
a. Done - KUMC, 
Iowa, UTHSCSA
b. Marshfield - 
update?
c. Utah - 
update?
2. KUMC runs reports against 
GROUSE data
a. UTSW, MCW, 
UNMC, MU, IU 
b. Mei 
submitted this to the DROC for approval; checking on status.
   
5. Learning Engagement Conference and HackathonSix
a. Dec 10-11, Kansas City
b. Registration survey is out - respond as soon as possible: 
https://urldefense.proofpoint.com/v2/url?u=https-3A__redcap.kumc.edu_surveys_-3Fs-3DFALMAN3AJH&d=DwICAg&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=s_jE1I4-KlT5ieMOJ8oh51RUPWZZSGbLWdNuznYTtPc&s=bGRZ1WU0w1f3_WnnCxtOy4E3BL4mnafWaOI_XA4DPuc&e=

6. NextD - sites: IOWA, UNMC, MCW, IU, KUMC, UTSW, MU
a. #713 - NextD Data Refresh; based on CDM v4.0; due date 
11/2/18
c. #715 - #715 NextD request on mapping payer_type variables 
i. Waiting on new code from Northwestern/KUMC? 
New ETA (was 10/26)?

7. DROC #42: Comparison of Outcomes of Unilateral Mastectomy and Contralateral 
Prophylactic Mastectomy with Reconstruction in a Multicenter Cohort [also #718]
a. Due date 11/15/18
b. Request from Brian - anyone accessing the BC dataset needs 
to be listed on the IRB with Iowa. 
1. Responses from KUMC, Marshfield, UTSW (as of 10/18).

8. milestone:snow-shrine-2 , milestone:snow

gpc-dev October 30 agenda and meeting notes

[Verhagen, Laurel A]

Hi everyone,

Below find the tentative agenda for our meeting Tuesday, October 30 at 11:00 
a.m. CT. Our scribe will UTHSCSA.

Connect: https://global.gotomeeting.com/meeting/join/817393381
access code: 817-393-381; call +1 (571) 317-3131

Link to notes/tentative agenda:
https://docs.google.com/document/d/1eHArjrVzuVyaEsFq-_73d6CdeaM7QWeEsTbE1o80Qsw/edit

Let me know if you have additions/changes?

Thanks,
Laurel
--
1. Convene, take roll, review records and plan next meeting(s)
a. 11:00 a.m. Central Time.
b. Roll; comments on the agenda? (ref SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences
i. GPC DevTeams represented? KUMC, UIOWA, MCW, 
MCRI, UNMC, UTHSCSA, UTSW, MU, IU, Utah, Allina
ii. Today's scribe: *UTHSCSA*
c. Comments on last week's notes? (#12)
Recent tickets opened/closed 
i. Opened - none
ii. Closed - none
d. Next meeting(s): 13 November - scribe: Utah? MU?
i. Note scribe rotation appendix

2. RCR - milestones:cancer-rcr-1; cancer-rcr-3 / Grouse-3 
a. News? (Off the agenda in 2 weeks/meetings)

3. PCORnet CDM/Data Curation
a. Cycle 5, Refresh 2 - distributed 10/8/18; due 10/29/18 
i.   CDM Data Curation Query Package v4.12
b.  Approved: Utah, Allina, MCW, UTHSCSA
c. Any sites not submit on 10/29?

4. DROC #40: Predictive Models for Acute Kidney Injury using PCORnet CDM
a. #711 - External Validation for Acute Kidney Injury(AKI) 
Predictive Models using PCORnet CDM data
 i. Deadline - late October
 ii. Two options:
1. Run R locally and return 
reports (as earlier discussed)
a. Done - KUMC, 
Iowa, UTHSCSA
b. Marshfield - 
update?
c. Utah - 
update?
2. KUMC runs reports against 
GROUSE data
a. UTSW, MCW, 
UNMC, MU, IU 
b. Mei 
submitted this to the DROC for approval; checking on status.
   
5. Learning Engagement Conference and HackathonSix
a. Dec 10-11, Kansas City
b. Registration survey is out - respond as soon as possible: 
https://redcap.kumc.edu/surveys/?s=FALMAN3AJH

6. NextD - sites: IOWA, UNMC, MCW, IU, KUMC, UTSW, MU
a. #713 - NextD Data Refresh; based on CDM v4.0; due date 
11/2/18
c. #715 - #715 NextD request on mapping payer_type variables 
i. Waiting on new code from Northwestern/KUMC? 
New ETA (was 10/26)?

7. DROC #42: Comparison of Outcomes of Unilateral Mastectomy and Contralateral 
Prophylactic Mastectomy with Reconstruction in a Multicenter Cohort [also #718]
a. Due date 11/15/18
b. Request from Brian - anyone accessing the BC dataset needs 
to be listed on the IRB with Iowa. 
1. Responses from KUMC, Marshfield, UTSW (as of 10/18).

8. milestone:snow-shrine-2 , milestone:snow-shrine-3
a. Tabled until Hackathon6

9. milestone:text-notes-1 De-identification; use case: #573
a. Tabled for clarification on expectations

10. Other topics?

__
The contents of this message may contain private, protected and/or privileged 
information.  If you received this message in error, you should destroy the 
e-mail message and any attachments or copies, and you are prohibited from 
retaining, distributing, disclosing or using any information contained within.  
Please contact the sender and advise of the erroneous delivery by return e-mail 
or telephone.  Thank you for your cooperation.
___
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DCQ Reminder

[Verhagen, Laurel A]

Hi everyone,

Just a reminder to go through the Cycle 5 Data Curation Query Package Checklist 
carefully before you submit.

Key items:

* Log should not contains errors

* Data refresh needs to have occurred in the last 3 months

* Annotated Data Dictionary must be updated

* Harvest table must be updated

* Counts should remain stable. Drops of 5+% need to be explained, 
including listing the person at your site who approved the change.

Deadline is Monday (10/29) - how are we doing on submissions?

Thanks,
Laurel

__
The contents of this message may contain private, protected and/or privileged 
information.  If you received this message in error, you should destroy the 
e-mail message and any attachments or copies, and you are prohibited from 
retaining, distributing, disclosing or using any information contained within.  
Please contact the sender and advise of the erroneous delivery by return e-mail 
or telephone.  Thank you for your cooperation.
___
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http://listserv.kumc.edu/mailman/listinfo/gpc-dev

RE: gpc-dev October 23 agenda and meeting notes

[Verhagen, Laurel A]

PDF attached for archiving. Thanks to Jarrah/IU for taking notes. 

Next meeting: October 30
Scribe will be UTHSCSA
Agenda in progress... 
https://docs.google.com/document/d/1eHArjrVzuVyaEsFq-_73d6CdeaM7QWeEsTbE1o80Qsw/edit

Please note: gpc-dev will not meet on 11/6 due to AMIA. 

Thanks, 
Laurel

-Original Message-
From: Gpc-dev [mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Verhagen, 
Laurel A
Sent: Monday, October 22, 2018 10:52 AM
To: gpc-dev@listserv.kumc.edu
Subject: gpc-dev October 23 agenda and meeting notes

Hi everyone,

Below find the tentative agenda for our meeting Tuesday, October 23 at 11:00 
a.m. CT. Our scribe will be Jarrah from IU.

Connect: 
https://urldefense.proofpoint.com/v2/url?u=https-3A__global.gotomeeting.com_meeting_join_817393381&d=DwICAg&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=kY0CLZZSZ4uZrm7MkAVkIbJXjRCE0OUJpfCXWBlZm4M&s=UFSmJEqWTM9MfmW_jsAyfKbtJ0u2oQd12v3EDqUMENM&e=
access code: 817-393-381; call +1 (571) 317-3131

Link to notes/tentative agenda:
https://urldefense.proofpoint.com/v2/url?u=https-3A__docs.google.com_document_d_1lsb22xE6s-5Fq1XI-5FzT36QcGEWBHxuXMIA6HPrYxu8TNE_edit&d=DwICAg&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=kY0CLZZSZ4uZrm7MkAVkIbJXjRCE0OUJpfCXWBlZm4M&s=T6Y_z-BxE7itzSaZz_ou2am6hDmC4LScImc07uTF0u8&e=

Let me know if you have additions/changes?

Thanks,
Laurel
--
1. Convene, take roll, review records and plan next meeting(s)
a. 11:00 a.m. Central Time.
Meeting ID and access code: 817-393-381; call +1 (571) 317-3131
b. Roll; comments on the agenda? (ref SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences
i. GPC DevTeams represented? KUMC, UIOWA, MCW, 
MCRI, UNMC, UTHSCSA, UTSW, MU, IU, Utah, Allina
ii. Today's scribe: Jarrah/IU
c. Comments on last week's notes? (#12)
Recent tickets opened/closed 
i. Opened - #714 NextD aggregate counts request
ii. Closed - none
d. Next meeting(s): 16 October - scribe: IU? UTHSCSA?
i. Note scribe rotation appendix

2. RCR - milestones:cancer-rcr-1; cancer-rcr-3 / Grouse-3 
a. News? (Off the agenda in 3 weeks)

3. PCORnet CDM/Data Curation
a. Cycle 5, Refresh 2 - distributed 10/8/18; due 10/29/18 
i.   CDM Data Curation Query Package v4.12
b.  Approved: Utah, Allina

4. DROC #40: Predictive Models for Acute Kidney Injury using PCORnet CDM
a. #711 - External Validation for Acute Kidney Injury(AKI) 
Predictive Models using PCORnet CDM data
 i. Deadline - late October
 ii. Two options:
1. Run R locally and return 
reports (as earlier discussed)
a. Done - KUMC, 
Iowa, UTHSCSA
b. Marshfield - 
Steffani working with Song
c. Utah - ?
2. KUMC runs reports against 
GROUSE data
a. UTSW, MCW, 
UNMC, MU, IU 
b. Mei 
submitted this to the DROC for approval; checking on status.
   
5. Learning Engagement Conference and HackathonSix
a. Dec 10-11, Kansas City
b. Registration survey is out - respond as soon as possible: 
https://urldefense.proofpoint.com/v2/url?u=https-3A__redcap.kumc.edu_surveys_-3Fs-3DFALMAN3AJH&d=DwICAg&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=kY0CLZZSZ4uZrm7MkAVkIbJXjRCE0OUJpfCXWBlZm4M&s=T-EJeHrNY-9gH1Jqxu_ZSla14zvT_nnSXKuaXZgQ_54&e=

6. NextD - sites: IOWA, UNMC, MCW, IU, KUMC, UTSW, MU
a. #713 - NextD Data Refresh; based on CDM v4.0; due date 
11/2/18
c. #715 - #715 NextD request on mapping payer_type variables 
i. New code from Northwestern/KUMC?

7. DROC #42: Comparison of Outcomes of Unilateral Mastectomy and Contralateral 
Prophylactic Mastectomy with Reconstruction in a Multicenter Cohort [also #718]
a. Due date 11/15/18
b. Request from Brian - anyone accessing the BC dataset needs 
to be listed on the IRB with Iowa. 
1. Responses from KUMC, Marshfield, UTSW (as of 10/18

gpc-dev October 23 agenda and meeting notes

[Verhagen, Laurel A]

Hi everyone,

Below find the tentative agenda for our meeting Tuesday, October 23 at 11:00 
a.m. CT. Our scribe will be Jarrah from IU.

Connect: https://global.gotomeeting.com/meeting/join/817393381
access code: 817-393-381; call +1 (571) 317-3131

Link to notes/tentative agenda:
https://docs.google.com/document/d/1lsb22xE6s_q1XI_zT36QcGEWBHxuXMIA6HPrYxu8TNE/edit

Let me know if you have additions/changes?

Thanks,
Laurel
--
1. Convene, take roll, review records and plan next meeting(s)
a. 11:00 a.m. Central Time.
Meeting ID and access code: 817-393-381; call +1 (571) 317-3131
b. Roll; comments on the agenda? (ref SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences
i. GPC DevTeams represented? KUMC, UIOWA, MCW, 
MCRI, UNMC, UTHSCSA, UTSW, MU, IU, Utah, Allina
ii. Today's scribe: Jarrah/IU
c. Comments on last week's notes? (#12)
Recent tickets opened/closed 
i. Opened - #714 NextD aggregate counts request
ii. Closed - none
d. Next meeting(s): 16 October - scribe: IU? UTHSCSA?
i. Note scribe rotation appendix

2. RCR - milestones:cancer-rcr-1; cancer-rcr-3 / Grouse-3 
a. News? (Off the agenda in 3 weeks)

3. PCORnet CDM/Data Curation
a. Cycle 5, Refresh 2 - distributed 10/8/18; due 10/29/18 
i.   CDM Data Curation Query Package v4.12
b.  Approved: Utah, Allina

4. DROC #40: Predictive Models for Acute Kidney Injury using PCORnet CDM
a. #711 - External Validation for Acute Kidney Injury(AKI) 
Predictive Models using PCORnet CDM data
 i. Deadline - late October
 ii. Two options:
1. Run R locally and return 
reports (as earlier discussed)
a. Done - KUMC, 
Iowa, UTHSCSA
b. Marshfield - 
Steffani working with Song
c. Utah - ?
2. KUMC runs reports against 
GROUSE data
a. UTSW, MCW, 
UNMC, MU, IU 
b. Mei 
submitted this to the DROC for approval; checking on status.
   
5. Learning Engagement Conference and HackathonSix
a. Dec 10-11, Kansas City
b. Registration survey is out - respond as soon as possible: 
https://redcap.kumc.edu/surveys/?s=FALMAN3AJH

6. NextD - sites: IOWA, UNMC, MCW, IU, KUMC, UTSW, MU
a. #713 - NextD Data Refresh; based on CDM v4.0; due date 
11/2/18
c. #715 - #715 NextD request on mapping payer_type variables 
i. New code from Northwestern/KUMC?

7. DROC #42: Comparison of Outcomes of Unilateral Mastectomy and Contralateral 
Prophylactic Mastectomy with Reconstruction in a Multicenter Cohort [also #718]
a. Due date 11/15/18
b. Request from Brian - anyone accessing the BC dataset needs 
to be listed on the IRB with Iowa. 
1. Responses from KUMC, Marshfield, UTSW (as of 10/18).

8. milestone:snow-shrine-2 , milestone:snow-shrine-3
a. Tabled until Hackathon6

9. milestone:text-notes-1 De-identification; use case: #573
a. Tabled for clarification on expectations

10. Other topics

__
The contents of this message may contain private, protected and/or privileged 
information.  If you received this message in error, you should destroy the 
e-mail message and any attachments or copies, and you are prohibited from 
retaining, distributing, disclosing or using any information contained within.  
Please contact the sender and advise of the erroneous delivery by return e-mail 
or telephone.  Thank you for your cooperation.
___
Gpc-dev mailing list
Gpc-dev@listserv.kumc.edu
http://listserv.kumc.edu/mailman/listinfo/gpc-dev

RE: gpc-dev October 16 agenda and meeting notes

[Verhagen, Laurel A]

PDF attached for archiving! 

Tentative agenda for 10/23: 
https://docs.google.com/document/d/1lsb22xE6s_q1XI_zT36QcGEWBHxuXMIA6HPrYxu8TNE/edit
 (scribe will be IU/Jarrah)

Thanks, 
Laurel

-Original Message-
From: Gpc-dev [mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Verhagen, 
Laurel A
Sent: Monday, October 15, 2018 1:28 PM
To: gpc-dev@listserv.kumc.edu
Subject: gpc-dev October 16 agenda and meeting notes

Hi everyone,

Below find the tentative agenda for our meeting Tuesday, October 16 at 11:00 
a.m. CT. Our scribe will be Reid from Utah.

Connect: 
https://urldefense.proofpoint.com/v2/url?u=https-3A__global.gotomeeting.com_meeting_join_817393381&d=DwICAg&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=5Ibp_PPGn9pOCtadDBA5NIDOeB-jQ6h7G25SxerL4Qs&s=BliegX58GchFpg9g91pDaxL5M7oJnCMUOR46QnuH1hs&e=
access code: 817-393-381; call +1 (571) 317-3131

Link to notes:
https://urldefense.proofpoint.com/v2/url?u=https-3A__docs.google.com_document_d_1bDq-5FvUc6a9wS7EVjYtpzvpwerVR65txEoaR3AyGjqyM_edit-23&d=DwICAg&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=5Ibp_PPGn9pOCtadDBA5NIDOeB-jQ6h7G25SxerL4Qs&s=CLaqNNoLj1eA_-8bwqx1F9t4Eeajgy7JfUHnm7HexiE&e=

Let me know if you have additions/changes?

Thanks,
Laurel
--
1. Convene, take roll, review records and plan next meeting(s)
a. 11:00 a.m. Central Time.
Meeting ID and access code: 817-393-381; call +1 (571) 317-3131
b. Roll; comments on the agenda? (ref SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences
i. GPC DevTeams represented? KUMC, UIOWA, MCW, 
MCRI, UNMC, UTHSCSA, UTSW, MU, IU, Utah
ii. Today's scribe: Reid/Utah
c. Comments on last week's notes? (#12)
Recent tickets opened/closed 
i. Opened - #717 Obs_Clin and CDMV4.1; #718 MCW 
BC request
ii. Closed - none
d. Next meeting(s): 16 October - scribe: IU? UTHSCSA?
i. Note scribe rotation appendix

2. RCR - milestones:cancer-rcr-1; cancer-rcr-3 / Grouse-3 
a. News?

3. PCORnet CDM/Data Curation
a. Cycle 5, Refresh 2 - distributed 10/8/18; due 10/29/18 
i.   CDM Data Curation Query Package v4.12
b.  Data Curation Office Hours
i.  Monday 10/15 11-12 CT
ii. Thursday 10/18 12-1 CT

4. DROC #40: Predictive Models for Acute Kidney Injury using PCORnet CDM
a. #711 - External Validation for Acute Kidney Injury(AKI) 
Predictive Models using PCORnet CDM data
 i. Deadline - late October
 ii. Two options:
1. Run R locally and return 
reports (as earlier discussed)
a. Done - KUMC, 
Iowa, UTHSCSA
b. Marshfield - 
this week
c. Utah - 
2. KUMC runs reports against 
GROUSE data
a. UTSW, MCW, 
UNMC, MU, IU 
b. Mei 
submitted this to the DROC for approval
   
5. Learning Engagement Conference and HackathonSix
a. Dec 10-11, Kansas City
b. Registration survey is out - respond as soon as possible: 
https://urldefense.proofpoint.com/v2/url?u=https-3A__redcap.kumc.edu_surveys_-3Fs-3DFALMAN3AJH&d=DwICAg&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=5Ibp_PPGn9pOCtadDBA5NIDOeB-jQ6h7G25SxerL4Qs&s=LSBk6PL45EefaAA06sDnBT9-hlDCLZpNGEKquuTQoQs&e=

6. NextD - sites: IOWA, UNMC, MCW, IU, KUMC, UTSW, MU
a. #713 - NextD Data Refresh; based on CDM v4.0; due date 
11/2/18
b. #714 - NextD aggregate counts from EDC request
i. Resolved? OK to close the ticket?
c. #715 - #715 NextD request on mapping payer_type variables 
i. Due date 10/15/18
ii. Pending - UTSW?

7. DROC #42: Comparison of Outcomes of Unilateral Mastectomy and Contralateral 
Prophylactic Mastectomy with Reconstruction in a Multicenter Cohort [also #718]
a. Due date 11/15/18
b. KU, Iowa, Wisc, UNMC, UTSW - waiting on responses
c. UMN - waiting on response to DROC request

8.

gpc-dev October 16 agenda and meeting notes

[Verhagen, Laurel A]

Hi everyone,

Below find the tentative agenda for our meeting Tuesday, October 16 at 11:00 
a.m. CT. Our scribe will be Reid from Utah.

Connect: https://global.gotomeeting.com/meeting/join/817393381
access code: 817-393-381; call +1 (571) 317-3131

Link to notes:
https://docs.google.com/document/d/1bDq_vUc6a9wS7EVjYtpzvpwerVR65txEoaR3AyGjqyM/edit#

Let me know if you have additions/changes?

Thanks,
Laurel
--
1. Convene, take roll, review records and plan next meeting(s)
a. 11:00 a.m. Central Time.
Meeting ID and access code: 817-393-381; call +1 (571) 317-3131
b. Roll; comments on the agenda? (ref SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences
i. GPC DevTeams represented? KUMC, UIOWA, MCW, 
MCRI, UNMC, UTHSCSA, UTSW, MU, IU, Utah
ii. Today's scribe: Reid/Utah
c. Comments on last week's notes? (#12)
Recent tickets opened/closed 
i. Opened - #717 Obs_Clin and CDMV4.1; #718 MCW 
BC request
ii. Closed - none
d. Next meeting(s): 16 October - scribe: IU? UTHSCSA?
i. Note scribe rotation appendix

2. RCR - milestones:cancer-rcr-1; cancer-rcr-3 / Grouse-3 
a. News?

3. PCORnet CDM/Data Curation
a. Cycle 5, Refresh 2 - distributed 10/8/18; due 10/29/18 
i.   CDM Data Curation Query Package v4.12
b.  Data Curation Office Hours
i.  Monday 10/15 11-12 CT
ii. Thursday 10/18 12-1 CT

4. DROC #40: Predictive Models for Acute Kidney Injury using PCORnet CDM
a. #711 - External Validation for Acute Kidney Injury(AKI) 
Predictive Models using PCORnet CDM data
 i. Deadline - late October
 ii. Two options:
1. Run R locally and return 
reports (as earlier discussed)
a. Done - KUMC, 
Iowa, UTHSCSA
b. Marshfield - 
this week
c. Utah - 
2. KUMC runs reports against 
GROUSE data
a. UTSW, MCW, 
UNMC, MU, IU 
b. Mei 
submitted this to the DROC for approval
   
5. Learning Engagement Conference and HackathonSix
a. Dec 10-11, Kansas City
b. Registration survey is out - respond as soon as possible: 
https://redcap.kumc.edu/surveys/?s=FALMAN3AJH

6. NextD - sites: IOWA, UNMC, MCW, IU, KUMC, UTSW, MU
a. #713 - NextD Data Refresh; based on CDM v4.0; due date 
11/2/18
b. #714 - NextD aggregate counts from EDC request
i. Resolved? OK to close the ticket?
c. #715 - #715 NextD request on mapping payer_type variables 
i. Due date 10/15/18
ii. Pending - UTSW?

7. DROC #42: Comparison of Outcomes of Unilateral Mastectomy and Contralateral 
Prophylactic Mastectomy with Reconstruction in a Multicenter Cohort [also #718]
a. Due date 11/15/18
b. KU, Iowa, Wisc, UNMC, UTSW - waiting on responses
c. UMN - waiting on response to DROC request

8. milestone:snow-shrine-2 , milestone:snow-shrine-3
a. Tabled until Hackathon6

9. milestone:text-notes-1 De-identification; use case: #573
a. Tabled for clarification on expectations

10. Other topics

__
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Data Curation Query Package v4.12 Office Hours

[Verhagen, Laurel A]

Sharing to make sure everyone has the connection information for DCQ Office 
Hours next week:

Monday 10/15 11-12 CT
Webex Link: 
https://dukemed.webex.com/dukemed/j.php?MTID=m942858e79de4a0542a7abb6fd5bad45d
Call in: 1-650-479-3207
Access Code: 738 339 589

Thursday 10/18 12-1 CT
Webex: 
https://dukemed.webex.com/dukemed/j.php?MTID=md1bbe28ab32d70cdb7ee927b4f90e0e0
Call in: 1-650-479-3207
Access Code: 732 470 892

Thanks,
Laurel

From: PCORnet DRN OC [mailto:dr...@pcornet.org]
Sent: Tuesday, October 09, 2018 2:53 PM
Subject: Data Curation Query Package v4.12 Office Hours

Good afternoon,

We are holding two office hours next week, Monday, October 15th, 12-1pm ET and 
Thursday, October 18th, 1-2pm ET, to demonstrate how to run the new modularized 
data curation program (query package v4.12) as well as answer any questions 
that any network member has regarding the data curation package distributed 
yesterday (October 8th). The session on Monday will include the demonstration 
and will be recorded and posted to iMeet following the office hour for anyone 
who is not able to attend. Calendar invitations with WebEx information for 
these office hours will be sent shortly. Please let us know if you have any 
questions.

Thanks,
The Data Curation Team

__
The contents of this message may contain private, protected and/or privileged 
information.  If you received this message in error, you should destroy the 
e-mail message and any attachments or copies, and you are prohibited from 
retaining, distributing, disclosing or using any information contained within.  
Please contact the sender and advise of the erroneous delivery by return e-mail 
or telephone.  Thank you for your cooperation.
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Gpc-dev@listserv.kumc.edu
http://listserv.kumc.edu/mailman/listinfo/gpc-dev

RE: Data Curation Query Package v4.12

[Verhagen, Laurel A]

Marshfield ran into a problem with the 03_run_edc_prep.sas program on 
Wednesday. DRN OC was able to identify it as a Windows specific bug. They were 
quick to respond and provide a fix.

Thanks,
Laurel

From: Gpc-dev [mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Sravani 
Chandaka
Sent: Friday, October 12, 2018 3:51 PM
To: gpc-dev@listserv.kumc.edu
Cc: Imran Hafeez
Subject: Data Curation Query Package v4.12

Hi GPC Dev,
Has anyone run the latest data curation query package v4.12 against their 
latest CDM? KUMC's CDM ETL is still in progress and we plan to run the data 
curation query early next week. Please let us know incase you encountered any 
difficulties with the query as its structure is slightly different from the 
previous ones. It could help us with our query run. Also, we are planning to 
attend the Data curation office hours meeting 11AM-12PM on Oct 15th and 
12PM-1PM on Oct18th.

Thanks
Sravani

__
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information.  If you received this message in error, you should destroy the 
e-mail message and any attachments or copies, and you are prohibited from 
retaining, distributing, disclosing or using any information contained within.  
Please contact the sender and advise of the erroneous delivery by return e-mail 
or telephone.  Thank you for your cooperation.
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http://listserv.kumc.edu/mailman/listinfo/gpc-dev

RE: gpc-dev October 9 agenda and meeting notes

[Verhagen, Laurel A]

Correction--link for notes was wrong.

Please use:  
https://docs.google.com/document/d/1QaKZaG2kiqTusVILA-d_ldEewEsIAbo722WYqEnD_Fg/edit#heading=h.rnoo2ngaxhim

Thanks,
Laurel

From: Verhagen, Laurel A
Sent: Monday, October 08, 2018 11:46 AM
To: gpc-dev@listserv.kumc.edu
Subject: gpc-dev October 9 agenda and meeting notes


Hi everyone,



Below find the tentative agenda for our meeting Tuesday, October 2 at 11:00 
a.m. CT.



Connect: https://global.gotomeeting.com/meeting/join/817393381

access code: 817-393-381; call +1 (571) 317-3131



Link to notes:

https://docs.google.com/document/d/1Q9XBrFBAL0KKJdavjIvXYk6ps8KiOoGbm107-zanwMA/edit#<https://docs.google.com/document/d/1Q9XBrFBAL0KKJdavjIvXYk6ps8KiOoGbm107-zanwMA/edit>



Let me know if you have additions/changes?



Thanks,

Laurel

--

1. Convene, take roll, review records and plan next meeting(s)

a. 11:00 a.m. Central Time.

Meeting ID and access code: 817-393-381; call +1 (571) 317-3131

b. Roll; comments on the agenda? (ref SoftwareDev#tracking)

Reminder - put site after your name in GoToMeeting preferences

i. GPC DevTeams represented? KUMC, UIOWA, MCW, 
MCRI, UNMC, UTHSCSA, UTSW, MU, IU, Utah

ii. Today's scribe: Reid/Utah

c. Comments on last week’s notes? (#12)

Recent tickets opened/closed

i. Opened - #717 Obs_Clin and CDMV4.1; #718 MCW 
BC request

ii. Closed - none

d. Next meeting(s): 16 October - scribe: UTSW? IU?

i. Note scribe rotation appendix



2. RCR - milestones:cancer-rcr-1; cancer-rcr-3 / Grouse-3

a. News?



3. PCORnet CDM/Data Curation

a. Cycle 5, Refresh 2 - distributed 10/8/18; due 10/29/18



4. DROC #40: Predictive Models for Acute Kidney Injury using PCORnet CDM

a. #711 - External Validation for Acute Kidney Injury(AKI) 
Predictive Models using PCORnet CDM data

 i. Deadline - late October

 ii. Two options:

1. Run R locally and return 
reports (as earlier discussed)

a. Iowa - 
updates

b. UTHSCSA - ?

c. Marshfield - 
plan to start next week

2. Sites submit data and KUMC 
runs reports

a. UTSW, MCW, 
UNMC, MU

b. Does this 
need to go through the DROC? Question from 9/25

3. Need status

a. Utah

b. IU



5. Learning Engagement Conference and HackathonSix

a. Dec 10-11, Kansas City

b. Registration survey is out - respond as soon as possible: 
https://redcap.kumc.edu/surveys/?s=FALMAN3AJH

c. Starting to work on the agenda



6. NextD - sites: IOWA, UNMC, MCW, IU, KUMC, UTSW, MU

a. #713 - NextD Data Refresh; based on CDM v4.0; due date 
11/2/18

b. #714 - NextD aggregate counts from EDC request

i. Need update from IU

c. #715 - #715 NextD request on mapping payer_type variables

i. KUMC and NU team is currently working on 
solution that will be proposed to  other sites for potential use for extraction 
of coverage history from  accounts. It will be available by Oct. 11th.



7. DROC #42: Comparison of Outcomes of Unilateral Mastectomy and Contralateral 
Prophylactic Mastectomy with Reconstruction in a Multicenter Cohort [also #718]

a. Due date 11/15/18

b. KU, Iowa, Wisc, UNMC, UTSW – waiting on responses?

c. UMN - waiting on response to DROC request



8. milestone:snow-shrine-2 , milestone:snow-shrine-3

a. Planning tabled until Hackathon6

b. SHRINE hub down as of 10/8/18 (per Bill).



9. milestone:text-notes-1 De-identification; use case: #573

a. Tabled until next meeting/after Brad/Russ connect



10. Other topics

__
The contents of this message may contain private, protected and/or privileged 
information.  If you received this message in error, you should destroy the 
e-mail message and any attachments or copies, and you are prohibited from 
retaining, distributing, disclosing or using any 

gpc-dev October 9 agenda and meeting notes

[Verhagen, Laurel A]

Hi everyone,



Below find the tentative agenda for our meeting Tuesday, October 2 at 11:00 
a.m. CT.



Connect: https://global.gotomeeting.com/meeting/join/817393381

access code: 817-393-381; call +1 (571) 317-3131



Link to notes:

https://docs.google.com/document/d/1Q9XBrFBAL0KKJdavjIvXYk6ps8KiOoGbm107-zanwMA/edit#



Let me know if you have additions/changes?



Thanks,

Laurel

--

1. Convene, take roll, review records and plan next meeting(s)

a. 11:00 a.m. Central Time.

Meeting ID and access code: 817-393-381; call +1 (571) 317-3131

b. Roll; comments on the agenda? (ref SoftwareDev#tracking)

Reminder - put site after your name in GoToMeeting preferences

i. GPC DevTeams represented? KUMC, UIOWA, MCW, 
MCRI, UNMC, UTHSCSA, UTSW, MU, IU, Utah

ii. Today's scribe: Reid/Utah

c. Comments on last week’s notes? (#12)

Recent tickets opened/closed

i. Opened - #717 Obs_Clin and CDMV4.1; #718 MCW 
BC request

ii. Closed - none

d. Next meeting(s): 16 October - scribe: UTSW? IU?

i. Note scribe rotation appendix



2. RCR - milestones:cancer-rcr-1; cancer-rcr-3 / Grouse-3

a. News?



3. PCORnet CDM/Data Curation

a. Cycle 5, Refresh 2 - distributed 10/8/18; due 10/29/18



4. DROC #40: Predictive Models for Acute Kidney Injury using PCORnet CDM

a. #711 - External Validation for Acute Kidney Injury(AKI) 
Predictive Models using PCORnet CDM data

 i. Deadline - late October

 ii. Two options:

1. Run R locally and return 
reports (as earlier discussed)

a. Iowa - 
updates

b. UTHSCSA - ?

c. Marshfield - 
plan to start next week

2. Sites submit data and KUMC 
runs reports

a. UTSW, MCW, 
UNMC, MU

b. Does this 
need to go through the DROC? Question from 9/25

3. Need status

a. Utah

b. IU



5. Learning Engagement Conference and HackathonSix

a. Dec 10-11, Kansas City

b. Registration survey is out - respond as soon as possible: 
https://redcap.kumc.edu/surveys/?s=FALMAN3AJH

c. Starting to work on the agenda



6. NextD - sites: IOWA, UNMC, MCW, IU, KUMC, UTSW, MU

a. #713 - NextD Data Refresh; based on CDM v4.0; due date 
11/2/18

b. #714 - NextD aggregate counts from EDC request

i. Need update from IU

c. #715 - #715 NextD request on mapping payer_type variables

i. KUMC and NU team is currently working on 
solution that will be proposed to  other sites for potential use for extraction 
of coverage history from  accounts. It will be available by Oct. 11th.



7. DROC #42: Comparison of Outcomes of Unilateral Mastectomy and Contralateral 
Prophylactic Mastectomy with Reconstruction in a Multicenter Cohort [also #718]

a. Due date 11/15/18

b. KU, Iowa, Wisc, UNMC, UTSW – waiting on responses?

c. UMN - waiting on response to DROC request



8. milestone:snow-shrine-2 , milestone:snow-shrine-3

a. Planning tabled until Hackathon6

b. SHRINE hub down as of 10/8/18 (per Bill).



9. milestone:text-notes-1 De-identification; use case: #573

a. Tabled until next meeting/after Brad/Russ connect



10. Other topics

__
The contents of this message may contain private, protected and/or privileged 
information.  If you received this message in error, you should destroy the 
e-mail message and any attachments or copies, and you are prohibited from 
retaining, distributing, disclosing or using any information contained within.  
Please contact the sender and advise of the erroneous delivery by return e-mail 
or telephone.  Thank you for your cooperation.
___
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Gpc-dev@listserv.kumc.edu
http://listserv.kumc.edu/mailman/listinfo/gpc-dev

RE: gpc-dev October 2 agenda and meeting notes

[Verhagen, Laurel A]

PDF attached for archiving.

Thanks, 
Laurel

-Original Message-
From: Gpc-dev [mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Verhagen, 
Laurel A
Sent: Monday, October 01, 2018 3:48 PM
To: gpc-dev@listserv.kumc.edu
Subject: gpc-dev October 2 agenda and meeting notes

Hi everyone,

Below find the tentative agenda for our meeting Tuesday, October 2 at 11:00 
a.m. CT.

Connect: 
https://urldefense.proofpoint.com/v2/url?u=https-3A__global.gotomeeting.com_meeting_join_817393381&d=DwICAg&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=-zp03gFlyTTCJW_bU1o0Zj3Jz9_TIPZwTEIhOb_ZGpY&s=VvIdMvj3rGPl9G7cNkUzUgzImlvAqQadY1CmPExXzl8&e=
access code: 817-393-381; call +1 (571) 317-3131

Link to notes:
https://urldefense.proofpoint.com/v2/url?u=https-3A__docs.google.com_document_d_1Q9XBrFBAL0KKJdavjIvXYk6ps8KiOoGbm107-2DzanwMA_edit-23&d=DwICAg&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=-zp03gFlyTTCJW_bU1o0Zj3Jz9_TIPZwTEIhOb_ZGpY&s=qZ0-cV7wiq5PfEGHA6aoO82wCLxk9pr4-S2MLsLeaHY&e=

Let me know if you have additions/changes?

Thanks,
Laurel
--
1. Convene, take roll, review records and plan next meeting(s)
a. 11:00 a.m. Central Time.
Meeting ID and access code: 817-393-381; call +1 (571) 317-3131
b. Roll; comments on the agenda? (ref SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences
i. GPC DevTeams represented? KUMC, UIOWA, MCW, MCRI, UNMC, 
UTHSCSA, UTSW, MU, IU, Utah
ii. Today's scribe: UNMC
c. Comments on last week's notes? (#12)
Recent tickets opened/closed 
i. Opened - none
ii. Closed - none
d. Next meeting(s): 9 October - Utah?
i. Note scribe rotation appendix
2. RCR - milestones:cancer-rcr-1; cancer-rcr-3 / Grouse-3 
a. News?
3. PCORnet CDM/Data Curation
a. Cycle 5, Refresh 2 - distributed 10/8/18; due 10/29/18   
4. DROC #40: Predictive Models for Acute Kidney Injury using PCoRnet CDM
a. #711 - External Validation for Acute Kidney Injury(AKI) Predictive 
Models using PCORnet CDM data
 i. Deadline - late October
 ii. Two options:
1. Run R locally and return reports (as earlier 
discussed)
a. Iowa - updates
b. UTHSCSA - ?
c. Marshfield - plan to start next week
2. Sites submit data and KUMC runs reports
a. UTSW, MCW, UNMC, MU 
b. Does this need to go through the DROC? 
Question from 9/25
3. Need status
a. Utah
b. IU
5. Learning Engagement Conference and HackathonSix
a. Dec 10-11, Kansas City
b. Registration survey is out - respond as soon as possible
c. Starting to work on the agenda... 
6. NextD - updates from Charon or Zahra; sites: IOWA, UNMC, MCW, IU, KUMC, 
UTSW, MU
a. #713 - NextD Data Refresh; based on CDM v4.0; due date 11/2/18
b. #714 - NextD aggregate counts from EDC request
i. Need update from UNMC, MCW, IU   
c. #715 - #715 NextD request on mapping payer_type variables 
i. New request
1. Does your site capture current insurance status of 
the patient in the source system?
2. If yes, would it be possible to get longitudinal 
records on such status for each patient?
ii. Check responses by site
7. milestone:snow-shrine-2 , milestone:snow-shrine-3
a. Planning tabled until Hackathon6
8. DEV Teams list 
(https://urldefense.proofpoint.com/v2/url?u=https-3A__informatics.gpcnetwork.org_trac_Project_wiki_DevTeams&d=DwICAg&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=-zp03gFlyTTCJW_bU1o0Zj3Jz9_TIPZwTEIhOb_ZGpY&s=IGoxP-kQkOMfm5LktgPyJdSAouG37dQOgxx6134DG7U&e=)
 - updates for KUMC, Marshfield, UTHSCSA
a. Review/update for your site.
b. May come up with an archive option for sites that have left the 
network.
9. milestone:text-notes-1 De-identification; use case: #573
a. Tabled until next meeting/after Brad/Russ connect
10. Other topics

__
The contents of this message may contain private, protected and/or privileged 
information.  If you received this message in error, you should destroy the 
e-mail message and any attachments or copies, and you are prohibited from 
retaining, distributing, disclosing or using any information contained within.  
P

gpc-dev October 2 agenda and meeting notes

[Verhagen, Laurel A]

Hi everyone,

Below find the tentative agenda for our meeting Tuesday, October 2 at 11:00 
a.m. CT.

Connect: https://global.gotomeeting.com/meeting/join/817393381
access code: 817-393-381; call +1 (571) 317-3131

Link to notes:
https://docs.google.com/document/d/1Q9XBrFBAL0KKJdavjIvXYk6ps8KiOoGbm107-zanwMA/edit#

Let me know if you have additions/changes?

Thanks,
Laurel
--
1. Convene, take roll, review records and plan next meeting(s)
a. 11:00 a.m. Central Time.
Meeting ID and access code: 817-393-381; call +1 (571) 317-3131
b. Roll; comments on the agenda? (ref SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences
i. GPC DevTeams represented? KUMC, UIOWA, MCW, MCRI, UNMC, 
UTHSCSA, UTSW, MU, IU, Utah
ii. Today's scribe: UNMC
c. Comments on last week's notes? (#12)
Recent tickets opened/closed 
i. Opened - none
ii. Closed - none
d. Next meeting(s): 9 October - Utah?
i. Note scribe rotation appendix
2. RCR - milestones:cancer-rcr-1; cancer-rcr-3 / Grouse-3 
a. News?
3. PCORnet CDM/Data Curation
a. Cycle 5, Refresh 2 - distributed 10/8/18; due 10/29/18   
4. DROC #40: Predictive Models for Acute Kidney Injury using PCoRnet CDM
a. #711 - External Validation for Acute Kidney Injury(AKI) Predictive 
Models using PCORnet CDM data
 i. Deadline - late October
 ii. Two options:
1. Run R locally and return reports (as earlier 
discussed)
a. Iowa - updates
b. UTHSCSA - ?
c. Marshfield - plan to start next week
2. Sites submit data and KUMC runs reports
a. UTSW, MCW, UNMC, MU 
b. Does this need to go through the DROC? 
Question from 9/25
3. Need status
a. Utah
b. IU
5. Learning Engagement Conference and HackathonSix
a. Dec 10-11, Kansas City
b. Registration survey is out - respond as soon as possible
c. Starting to work on the agenda... 
6. NextD - updates from Charon or Zahra; sites: IOWA, UNMC, MCW, IU, KUMC, 
UTSW, MU
a. #713 - NextD Data Refresh; based on CDM v4.0; due date 11/2/18
b. #714 - NextD aggregate counts from EDC request
i. Need update from UNMC, MCW, IU   
c. #715 - #715 NextD request on mapping payer_type variables 
i. New request
1. Does your site capture current insurance status of 
the patient in the source system?
2. If yes, would it be possible to get longitudinal 
records on such status for each patient?
ii. Check responses by site
7. milestone:snow-shrine-2 , milestone:snow-shrine-3
a. Planning tabled until Hackathon6
8. DEV Teams list 
(https://informatics.gpcnetwork.org/trac/Project/wiki/DevTeams) - updates for 
KUMC, Marshfield, UTHSCSA
a. Review/update for your site.
b. May come up with an archive option for sites that have left the 
network.
9. milestone:text-notes-1 De-identification; use case: #573
a. Tabled until next meeting/after Brad/Russ connect
10. Other topics

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RE: gpc-dev September 25 agenda and meeting notes

[Verhagen, Laurel A]

PDF attached for archiving.

Thanks, 
Laurel

-Original Message-
From: Verhagen, Laurel A 
Sent: Monday, September 24, 2018 2:26 PM
To: gpc-dev@listserv.kumc.edu
Subject: gpc-dev September 25 agenda and meeting notes

Hi everyone,

Below find the tentative agenda for our meeting Tuesday, September 25 at 11:00 
a.m. CT.

**WISC will be unable to take notes. KUMC is the next site up on the scribe 
rotation. Please plan to have someone available to assist with this.**

Connect: https://global.gotomeeting.com/meeting/join/817393381
access code: 817-393-381; call +1 (571) 317-3131

Link to notes:
https://docs.google.com/document/d/1ouibGaPx3fjR6DZT92zq1NO7p1ZgU_Rcg5CeB_PEo3E/edit

Let me know if you have additions/changes?

Thanks,
Laurel
--
1. Convene, take roll, review records and plan next meeting(s)
a. 11:00 a.m. Central Time.
Meeting ID and access code: 817-393-381; call +1 (571) 317-3131
b. Roll; comments on the agenda? (ref SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences
i. all 12 GPC DevTeams represented? KUMC, UIOWA, WISC, MCW, 
MCRI, UMN, UNMC, UTHSCSA, UTSW, MU, IU, Utah
ii. Today's scribe: WISC/Bill
c. Comments on last week's notes? (#12)
Recent tickets opened/closed 
i. Opened - 
#714 NextD aggregate counts request
#715 NextD request on mapping payer_type variables
#716 Create Trac Accounts
ii. Closed - 
#703 Final Report to PCORI 
#677 Develop and test Aim 3 SAS code
#402 enhanced data resource from GPC Cohort
d. Next meeting(s): 2 October - Utah?
i. Note scribe rotation appendix
2. RCR - milestones:cancer-rcr-1; cancer-rcr-3 / Grouse-3 
a. News?
3. PCORnet CDM/Data Curation (milestone:pcornet-cdm-4 due July 13) 
a. #712 - WISC CDM Cycle 4 overdue
b. Upcoming Data Curation Schedule: Cycle 5, Second, CDM v4.1, 
distributed 10/8, due 10/29 4. DROC #40: Predictive Models for Acute 4. Kidney 
Injury using PCORnet CDM
a. #711 - External Validation for Acute Kidney Injury(AKI) Predictive 
Models using PCORnet CDM data
i. Deadline late October
ii. Progress/barriers by site
5. PCORnet 2.0 / PCRF
a. News?
6. Learning Engagement Conference and HackathonSix
a. Dec 10-11, Kansas City
b. Registration survey is out - respond as soon as possible
c. Attendees: 5 per site - Site PI, Patient Engagement Officer, IRB 
member, Dev team member, Project Manager
7. milestone:text-notes-1 De-identification; use case: #573
a. Tabled until next meeting/after Brad/Russ connect
8. NextD - updates from Charon or Zahra; sites: IOWA, UNMC, MCW, IU, KUMC, 
UTSW, MU
a. #713 - NextD Data Refresh; based on CDM v4.0; due date 11/2/18
b. #714 - NextD aggregate counts request
i. Update on submission for Iowa, UNMC, MCW, IU 
c. #715 - #715 NextD request on mapping payer_type variables
9. milestone:snow-shrine-2 , milestone:snow-shrine-3
a. Planning tabled until Hackathon6
10. Other topics


__
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retaining, distributing, disclosing or using any information contained within.  
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or telephone.  Thank you for your cooperation.


25 September GPC-DEV Meeting Notes.pdf
Description: 25 September GPC-DEV Meeting Notes.pdf
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gpc-dev September 25 agenda and meeting notes

[Verhagen, Laurel A]

Hi everyone,

Below find the tentative agenda for our meeting Tuesday, September 25 at 11:00 
a.m. CT.

**WISC will be unable to take notes. KUMC is the next site up on the scribe 
rotation. Please plan to have someone available to assist with this.**

Connect: https://global.gotomeeting.com/meeting/join/817393381
access code: 817-393-381; call +1 (571) 317-3131

Link to notes:
https://docs.google.com/document/d/1ouibGaPx3fjR6DZT92zq1NO7p1ZgU_Rcg5CeB_PEo3E/edit

Let me know if you have additions/changes?

Thanks,
Laurel
--
1. Convene, take roll, review records and plan next meeting(s)
a. 11:00 a.m. Central Time.
Meeting ID and access code: 817-393-381; call +1 (571) 317-3131
b. Roll; comments on the agenda? (ref SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences
i. all 12 GPC DevTeams represented? KUMC, UIOWA, WISC, MCW, 
MCRI, UMN, UNMC, UTHSCSA, UTSW, MU, IU, Utah
ii. Today's scribe: WISC/Bill
c. Comments on last week's notes? (#12)
Recent tickets opened/closed 
i. Opened - 
#714 NextD aggregate counts request
#715 NextD request on mapping payer_type variables
#716 Create Trac Accounts
ii. Closed - 
#703 Final Report to PCORI 
#677 Develop and test Aim 3 SAS code
#402 enhanced data resource from GPC Cohort
d. Next meeting(s): 2 October - Utah?
i. Note scribe rotation appendix
2. RCR - milestones:cancer-rcr-1; cancer-rcr-3 / Grouse-3 
a. News?
3. PCORnet CDM/Data Curation (milestone:pcornet-cdm-4 due July 13) 
a. #712 - WISC CDM Cycle 4 overdue
b. Upcoming Data Curation Schedule: Cycle 5, Second, CDM v4.1, 
distributed 10/8, due 10/29 4. DROC #40: Predictive Models for Acute 4. Kidney 
Injury using PCORnet CDM
a. #711 - External Validation for Acute Kidney Injury(AKI) Predictive 
Models using PCORnet CDM data
i. Deadline late October
ii. Progress/barriers by site
5. PCORnet 2.0 / PCRF
a. News?
6. Learning Engagement Conference and HackathonSix
a. Dec 10-11, Kansas City
b. Registration survey is out - respond as soon as possible
c. Attendees: 5 per site - Site PI, Patient Engagement Officer, IRB 
member, Dev team member, Project Manager
7. milestone:text-notes-1 De-identification; use case: #573
a. Tabled until next meeting/after Brad/Russ connect
8. NextD - updates from Charon or Zahra; sites: IOWA, UNMC, MCW, IU, KUMC, 
UTSW, MU
a. #713 - NextD Data Refresh; based on CDM v4.0; due date 11/2/18
b. #714 - NextD aggregate counts request
i. Update on submission for Iowa, UNMC, MCW, IU 
c. #715 - #715 NextD request on mapping payer_type variables
9. milestone:snow-shrine-2 , milestone:snow-shrine-3
a. Planning tabled until Hackathon6
10. Other topics


__
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e-mail message and any attachments or copies, and you are prohibited from 
retaining, distributing, disclosing or using any information contained within.  
Please contact the sender and advise of the erroneous delivery by return e-mail 
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RE: gpc-dev / RCR September 18 agenda and meeting notes

[Verhagen, Laurel A]

PDF attached for archiving.

Preview of the agenda for 9/25: 
https://docs.google.com/document/d/1ouibGaPx3fjR6DZT92zq1NO7p1ZgU_Rcg5CeB_PEo3E/edit

Thanks, 
Laurel

-Original Message-
From: Gpc-dev [mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Verhagen, 
Laurel A
Sent: Friday, September 14, 2018 4:19 PM
To: gpc-dev@listserv.kumc.edu
Subject: gpc-dev / RCR September 18 agenda and meeting notes

Hi everyone, 

Below find the tentative agenda for our meeting Tuesday, September 18 at 11:00 
a.m. CT.

Connect: 
https://urldefense.proofpoint.com/v2/url?u=https-3A__global.gotomeeting.com_meeting_join_817393381&d=DwIGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=a2YjrR29-tZLYVbPflB0wkHmUDvVm7OeYnPaIiDLz0I&s=4Wq7xwj6n6AtoA46WTqf-oM4YdCSfShW_Vy6lQGf9KA&e=
access code: 817-393-381; call +1 (571) 317-3131

Link to notes: 
https://urldefense.proofpoint.com/v2/url?u=https-3A__docs.google.com_document_d_19Q-5FaNWiDyjDZA03MIOk2ykf8Tz-2Ds7U5PPEwu4ajHF8A_edit-23&d=DwIGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=a2YjrR29-tZLYVbPflB0wkHmUDvVm7OeYnPaIiDLz0I&s=-87RXDZoa_o0mwcQoKSrx_aiMXAjYltZxBPoOLoyjnA&e=

Let me know if you have additions/changes.

Thanks,
Laurel
--
1. Convene, take roll, review records and plan next meeting(s)
a. 11:00 a.m. Central Time.
​   Meeting ID and access code: 817-393-381; call +1 (571) 317-3131
b. Roll; comments on the agenda? (ref SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences
i. all 13 GPC DevTeams represented? KUMC, UIOWA, WISC, MCW, 
MCRI, UMN, UNMC, UTHSCSA, UTSW, MU, IU, Utah
ii. Today's scribe: MCW/Andrew
c. Comments on last week’s notes? (#12)
Recent tickets opened/closed 
i. Opened - none
ii. Closed - none
d. Next meeting(s): 18 September – KUMC? WISC?
i. Note scribe rotation appendix
2. RCR - milestones:cancer-rcr-1; cancer-rcr-3 / Grouse-3 / #677 Develop and 
test Aim 3 SAS code (Ref: Using GROUSE for Analysis slides: Aim 3 framework, 
status)
a. News?
3. PCORnet CDM/Data Curation (milestone:pcornet-cdm-4 due July 13) 
a. #712 - WISC CDM Cycle 4 overdue
i. Need to resubmit
b. Upcoming Data Curation Schedule: Cycle 5, Second, CDM v4.1, 
distributed 10/8, due 10/29
4. DROC #40: Predictive Models for Acute Kidney Injury using PCORnet CDM
a. #711 - External Validation for Acute Kidney Injury(AKI) Predictive 
Models using PCORnet CDM data
i. Progress - Nick/Iowa, Eric/UTHSCSA
ii. Deadline for this is late October
5. PCORnet 2.0 / PCRF
a. News? 
6. Learning Engagement Conference and HackathonSix
a. Dec 10-11, Kansas City
b. Registration survey is out - respond as soon as possible
c. Attendees: 5 per site - Site PI, Patient Engagement Officer, IRB 
member, Dev team member, Project Manager
7. milestone:text-notes-1 De-identification; use case: #573
a. Updates? 
i. Brad to follow-up with George
ii. Dan to follow-up with Russ
8. NextD 
a. #713 - NextD Data Refresh; based on CDM v4.0
b. Tentative due date 11/2/18
9. milestone:snow-shrine-2 , milestone:snow-shrine-3
a. Jim will report back next week on action items based on upcoming 
calls.
b. #411 - Align SNOW SHRINE terminology with ARCH and ACT ontology for 
interoperation of query - Jim Campbell provided query XML
i. SNOW SHRINE metadata published at 
https://urldefense.proofpoint.com/v2/url?u=https-3A__www.unmc.edu_pathology_informatics_tdc&d=DwIGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=a2YjrR29-tZLYVbPflB0wkHmUDvVm7OeYnPaIiDLz0I&s=N9_wMnb6xijLTXX6HZMK9ptdNYezGsyn1O8mI9TJE_0&e=
c. Cert Update? - WISC/Bill  
d. Lab metadata investigation - Jay Pederson
10. Other topics


__
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information.  If you received this message in error, you should destroy the 
e-mail message and any attachments or copies, and you are prohibited from 
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DevTeams cleanup

[Verhagen, Laurel A]

Hi everyone,

The dev teams wiki page is dangerously out of date:
https://informatics.gpcnetwork.org/trac/Project/wiki/DevTeams

It seems good to get this updated for PCORnet 2.0.

Thanks,
Laurel

__
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or telephone.  Thank you for your cooperation.
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GPC Dev Weekly Teleconference

[Verhagen, Laurel A]

BEGIN:VCALENDAR
METHOD:REQUEST
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VERSION:2.0
BEGIN:VTIMEZONE
TZID:Central Standard Time
BEGIN:STANDARD
DTSTART:16010101T02
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
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RRULE:FREQ=YEARLY;INTERVAL=1;BYDAY=2SU;BYMONTH=3
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BEGIN:VEVENT
ORGANIZER;CN="Verhagen, Laurel A":MAILTO:VERHAGEN.LAUREL@marshfieldresearch.o
 rg
ATTENDEE;ROLE=REQ-PARTICIPANT;PARTSTAT=NEEDS-ACTION;RSVP=FALSE;CN=gpc-dev@l
 istserv.kumc.edu:MAILTO:gpc-dev@listserv.kumc.edu
DESCRIPTION;LANGUAGE=en-US:When: Occurs every Tuesday from 11:00 AM to 12:0
 0 PM\, effective 9/25/18-12/31/19. (UTC-06:00) Central Time (US & Canada)\
 n\n1.  Please join my meeting: https://global.gotomeeting.com/meeting/
 join/817393381\n2.  Use your microphone and speakers (VoIP) - a headse
 t is recommended. Or\, call in using your telephone.\nUnited States (Toll-
 free): +1 (571) 317-3131\n\n  Access Code: 817-393-381\n  Audio PI
 N: Shown after joining the meeting\n\n  Meeting ID:817-393-381\n\nAn a
 genda is due to the gpc-dev mailing list a day in advance:\nhttp://listser
 v.kumc.edu/pipermail/gpc-dev/\n\nFor more information see:\nhttps://inform
 atics.gpcnetwork.org/trac/Project/wiki/SoftwareDev#next-agenda\n\n\n\n
RRULE:FREQ=WEEKLY;UNTIL=20191231T17Z;INTERVAL=1;BYDAY=TU;WKST=SU
SUMMARY;LANGUAGE=en-US:GPC Dev Weekly Teleconference
DTSTART;TZID=Central Standard Time:20180918T11
DTEND;TZID=Central Standard Time:20180918T12
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CLASS:PUBLIC
PRIORITY:5
DTSTAMP:20180917T190856Z
TRANSP:OPAQUE
STATUS:CONFIRMED
SEQUENCE:0
LOCATION;LANGUAGE=en-US:https://global.gotomeeting.com/meeting/join/8173933
 81
X-MICROSOFT-CDO-APPT-SEQUENCE:0
X-MICROSOFT-CDO-OWNERAPPTID:-1374578718
X-MICROSOFT-CDO-BUSYSTATUS:TENTATIVE
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RE: gpc-dev / RCR September 18 agenda and meeting notes

[Verhagen, Laurel A]

Reminder on the agenda below. KUMC reports not having a conference call invite 
for tomorrow, and I'll be re-distributing one shortly. GoToMeeting info has not 
changed.

Thanks, 
Laurel

-Original Message-
From: Gpc-dev [mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Verhagen, 
Laurel A
Sent: Friday, September 14, 2018 4:19 PM
To: gpc-dev@listserv.kumc.edu
Subject: gpc-dev / RCR September 18 agenda and meeting notes

Hi everyone, 

Below find the tentative agenda for our meeting Tuesday, September 18 at 11:00 
a.m. CT.

Connect: 
https://urldefense.proofpoint.com/v2/url?u=https-3A__global.gotomeeting.com_meeting_join_817393381&d=DwIGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=a2YjrR29-tZLYVbPflB0wkHmUDvVm7OeYnPaIiDLz0I&s=4Wq7xwj6n6AtoA46WTqf-oM4YdCSfShW_Vy6lQGf9KA&e=
access code: 817-393-381; call +1 (571) 317-3131

Link to notes: 
https://urldefense.proofpoint.com/v2/url?u=https-3A__docs.google.com_document_d_19Q-5FaNWiDyjDZA03MIOk2ykf8Tz-2Ds7U5PPEwu4ajHF8A_edit-23&d=DwIGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=a2YjrR29-tZLYVbPflB0wkHmUDvVm7OeYnPaIiDLz0I&s=-87RXDZoa_o0mwcQoKSrx_aiMXAjYltZxBPoOLoyjnA&e=

Let me know if you have additions/changes.

Thanks,
Laurel
--
1. Convene, take roll, review records and plan next meeting(s)
a. 11:00 a.m. Central Time.
​   Meeting ID and access code: 817-393-381; call +1 (571) 317-3131
b. Roll; comments on the agenda? (ref SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences
i. all 13 GPC DevTeams represented? KUMC, UIOWA, WISC, MCW, 
MCRI, UMN, UNMC, UTHSCSA, UTSW, MU, IU, Utah
ii. Today's scribe: MCW/Andrew
c. Comments on last week’s notes? (#12)
Recent tickets opened/closed 
i. Opened - none
ii. Closed - none
d. Next meeting(s): 18 September – KUMC? WISC?
i. Note scribe rotation appendix
2. RCR - milestones:cancer-rcr-1; cancer-rcr-3 / Grouse-3 / #677 Develop and 
test Aim 3 SAS code (Ref: Using GROUSE for Analysis slides: Aim 3 framework, 
status)
a. News?
3. PCORnet CDM/Data Curation (milestone:pcornet-cdm-4 due July 13) 
a. #712 - WISC CDM Cycle 4 overdue
i. Need to resubmit
b. Upcoming Data Curation Schedule: Cycle 5, Second, CDM v4.1, 
distributed 10/8, due 10/29
4. DROC #40: Predictive Models for Acute Kidney Injury using PCORnet CDM
a. #711 - External Validation for Acute Kidney Injury(AKI) Predictive 
Models using PCORnet CDM data
i. Progress - Nick/Iowa, Eric/UTHSCSA
ii. Deadline for this is late October
5. PCORnet 2.0 / PCRF
a. News? 
6. Learning Engagement Conference and HackathonSix
a. Dec 10-11, Kansas City
b. Registration survey is out - respond as soon as possible
c. Attendees: 5 per site - Site PI, Patient Engagement Officer, IRB 
member, Dev team member, Project Manager
7. milestone:text-notes-1 De-identification; use case: #573
a. Updates? 
i. Brad to follow-up with George
ii. Dan to follow-up with Russ
8. NextD 
a. #713 - NextD Data Refresh; based on CDM v4.0
b. Tentative due date 11/2/18
9. milestone:snow-shrine-2 , milestone:snow-shrine-3
a. Jim will report back next week on action items based on upcoming 
calls.
b. #411 - Align SNOW SHRINE terminology with ARCH and ACT ontology for 
interoperation of query - Jim Campbell provided query XML
i. SNOW SHRINE metadata published at 
https://urldefense.proofpoint.com/v2/url?u=https-3A__www.unmc.edu_pathology_informatics_tdc&d=DwIGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=a2YjrR29-tZLYVbPflB0wkHmUDvVm7OeYnPaIiDLz0I&s=N9_wMnb6xijLTXX6HZMK9ptdNYezGsyn1O8mI9TJE_0&e=
c. Cert Update? - WISC/Bill  
d. Lab metadata investigation - Jay Pederson
10. Other topics


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gpc-dev / RCR September 18 agenda and meeting notes

[Verhagen, Laurel A]

Hi everyone, 

Below find the tentative agenda for our meeting Tuesday, September 18 at 11:00 
a.m. CT.

Connect: 
https://global.gotomeeting.com/meeting/join/817393381
access code: 817-393-381; call +1 (571) 317-3131

Link to notes: 
https://docs.google.com/document/d/19Q_aNWiDyjDZA03MIOk2ykf8Tz-s7U5PPEwu4ajHF8A/edit#

Let me know if you have additions/changes.

Thanks,
Laurel
--
1. Convene, take roll, review records and plan next meeting(s)
a. 11:00 a.m. Central Time.
​   Meeting ID and access code: 817-393-381; call +1 (571) 317-3131
b. Roll; comments on the agenda? (ref SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences
i. all 13 GPC DevTeams represented? KUMC, UIOWA, WISC, MCW, 
MCRI, UMN, UNMC, UTHSCSA, UTSW, MU, IU, Utah
ii. Today's scribe: MCW/Andrew
c. Comments on last week’s notes? (#12)
Recent tickets opened/closed 
i. Opened - none
ii. Closed - none
d. Next meeting(s): 18 September – KUMC? WISC?
i. Note scribe rotation appendix
2. RCR - milestones:cancer-rcr-1; cancer-rcr-3 / Grouse-3 / #677 Develop and 
test Aim 3 SAS code (Ref: Using GROUSE for Analysis slides: Aim 3 framework, 
status)
a. News?
3. PCORnet CDM/Data Curation (milestone:pcornet-cdm-4 due July 13) 
a. #712 - WISC CDM Cycle 4 overdue
i. Need to resubmit
b. Upcoming Data Curation Schedule: Cycle 5, Second, CDM v4.1, 
distributed 10/8, due 10/29
4. DROC #40: Predictive Models for Acute Kidney Injury using PCORnet CDM
a. #711 - External Validation for Acute Kidney Injury(AKI) Predictive 
Models using PCORnet CDM data
i. Progress - Nick/Iowa, Eric/UTHSCSA
ii. Deadline for this is late October
5. PCORnet 2.0 / PCRF
a. News? 
6. Learning Engagement Conference and HackathonSix
a. Dec 10-11, Kansas City
b. Registration survey is out - respond as soon as possible
c. Attendees: 5 per site - Site PI, Patient Engagement Officer, IRB 
member, Dev team member, Project Manager
7. milestone:text-notes-1 De-identification; use case: #573
a. Updates? 
i. Brad to follow-up with George
ii. Dan to follow-up with Russ
8. NextD 
a. #713 - NextD Data Refresh; based on CDM v4.0
b. Tentative due date 11/2/18
9. milestone:snow-shrine-2 , milestone:snow-shrine-3
a. Jim will report back next week on action items based on upcoming 
calls.
b. #411 - Align SNOW SHRINE terminology with ARCH and ACT ontology for 
interoperation of query - Jim Campbell provided query XML
i. SNOW SHRINE metadata published at 
https://www.unmc.edu/pathology/informatics/tdc
c. Cert Update? - WISC/Bill  
d. Lab metadata investigation - Jay Pederson
10. Other topics


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gpc-dev / RCR September 11 agenda and meeting notes

[Verhagen, Laurel A]

Hi everyone, 

Below find the tentative agenda for our meeting Tuesday, September 11 at 11:00 
a.m. CT.

Connect: https://global.gotomeeting.com/meeting/join/817393381; access code: 
817-393-381; call +1 (571) 317-3131

Link for notes: 
https://docs.google.com/document/d/1CztBFRwHG45TlsYTdrVuuGuntQGwZDQC_7ne6qFp-Do/edit#

Let me know if you have additions/changes.

Thanks,
Laurel

--
1. Convene, take roll, review records and plan next meeting(s)
a. 11:00 a.m. Central Time.
​   Meeting ID and access code: 817-393-381; call +1 (571) 317-3131
b. Roll; comments on the agenda? (ref SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences
i. all 13 GPC DevTeams represented? 
ii. Cancer RCR project sites? 
iii. Today's scribe: UIOWA/Nick
c. Comments on last week’s notes? (#12)
Recent tickets opened/closed - FYI (i.e. not intended for discussion)
i. Opened - #711 AKI Predictive Model, #712 WISC DCQ Cycle 4, 
#713 NextD data refresh
ii. Closed - none
d. Next meeting(s): 18 September - KUMC? UTHSCSA?
i. Note scribe rotation appendix
2. milestone:cancer-rcr-1
a. News?
3. RCR - Aim 3 cancer-rcr-3 / Grouse-3 / #677 Develop and test Aim 3 SAS code 
(Ref: Using GROUSE for Analysis slides: Aim 3 framework, status)
a. Final report is due to PCORI by 9/17; discussions with DRN OC 
continue
b. News?
4. PCORnet CDM v4.1 (milestone:pcornet-cdm-4 due July 13) 
a. #712 - WISC CDM Cycle 4 overdue
i. Submitted on 8/31
b. Upcoming Data Curation Schedule
i. Cycle 5, Second, CDM v4.1, distributed 10/8, due 10/29
ii. Cycle 6, Initial, CDM v4.1, distributed 1/7, due 1/28
5. DROC #40: Predictive Models for Acute Kidney Injury using PCORnet CDM
a. #711 - External Validation for Acute Kidney Injury(AKI) Predictive 
Models using PCORnet CDM data
i. Overview of the R code - Sing Song
6. PCORnet 2.0 / PCRF
a. News? 
7. milestone:text-notes-1 De-identification
a. Monthly calls - looking for increased participation
b. Report from call on 9/6?
8. NextD 
a. #713 - NextD Data Refresh; based on CDM v4.0
b. Tentative due date 11/2/18
9. milestone:snow-shrine-2 , milestone:snow-shrine-3
a. Jim will report back next week on action items based on upcoming 
calls.
b. #411 - Align SNOW SHRINE terminology with ARCH and ACT ontology for 
interoperation of query 
i. SNOW SHRINE metadata published at 
https://www.unmc.edu/pathology/informatics/tdc
ii. Meds metadata assumes RXCUI (IN,MIN,PIN) > Orderable drugs 
RXCUI (SCD.GPCK,SBD,SBPCK) > NDC codes 
iii. October 1 SNOW SHRINE metadata release - update of 
ICD-10-CM and RXNORM/NDC to current code sets.
c. WISC/Bill - Cert Update?
d. ACT vs. SNOW update?
e. Some concerns about lab metadata were being investigated. Jay 
Pederson to provide an update when back.
10. Other topics?

__
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gpc-dev / RCR September 4 agenda and meeting notes

[Verhagen, Laurel A]

Hi everyone, 

Below find the tentative agenda for our meeting today (Tuesday, Sept 4) at 
11:00 CT. 
 
https://global.gotomeeting.com/meeting/join/817393381 access code: 817-393-381. 
Marshfield will be taking notes.
  
https://docs.google.com/document/d/1ZYLHO-btmJR6Xtxsf1bHXFRCbmlcAXEgFLeraOakVBQ/edit

Let me know if you have anything to add. 

Thanks,
Laurel
--

1. Convene, take roll, review records and plan next meeting(s) 
a. 11:00 a.m. Central Time.
Meeting ID and access code: 817-393-381; call +1 (571) 317-3131
b. Roll; comments on the agenda? (ref SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences
i. all 13 GPC DevTeams represented? KUMC, UIOWA, WISC, MCW, 
MCRI, UMN, UNMC, UTHSCSA, UTSW, MU, IU, Utah
ii. Cancer RCR project sites? UFL, VUMC, MUSC
iii. Today's scribe: Marshfield/Eric
c. Comments on last week's notes? (#12)
Recent tickets opened/closed - FYI (i.e. not intended for 
discussion)
Opened - none
Closed -
d. Next meeting(s):  September 4 - Iowa? KUMC?
2. milestone:cancer-rcr-1
a. news?
3. RCR - Aim 3 cancer-rcr-3 / Grouse-3
a. news?
4. PCORnet CDM v4.1 (milestone:pcornet-cdm-4 due July 13) 
a. Status of progress by site: 
i. WISC - Update?
5. PCORnet 2.0 / PCRF
a. Re-budgeting. Update?
6. milestone:text-notes-1 De-identification
a. news?
7. milestone:snow-shrine-2 , milestone:snow-shrine-3
a. #411 - Align SNOW SHRINE terminology with ARCH and ACT ontology for 
interoperation of query
i. SNOW SHRINE metadata published at 
https://www.unmc.edu/pathology/informatics/tdc
b. Cert Update? 
c. ACT vs. SNOW update?
8. Other topics?

__
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retaining, distributing, disclosing or using any information contained within.  
Please contact the sender and advise of the erroneous delivery by return e-mail 
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gpc-dev / RCR August 28 agenda and meeting notes

[Verhagen, Laurel A]

Hi everyone, 

Next gpc-dev meeting is Tuesday, August 28 at 11:00 CT.  
https://global.gotomeeting.com/meeting/join/817393381 access code: 817-393-381. 
MU will be taking notes.

Tentative agenda is linked and below:  
https://docs.google.com/document/d/1M9qj0bYGCUwdzppqsXYkR2-Xn0_CT1vrnFqHplX4Kgs/edit#

Let me know if you have anything to add. 

Thanks,
Laurel
--
1. Convene, take roll, review records and plan next meeting(s) 
a. 11:00 a.m. Central Time.
​   Meeting ID and access code: 817-393-381; call +1 (571) 317-3131
b. Roll; comments on the agenda? (ref SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences
i. all 13 GPC DevTeams represented? KUMC, UIOWA, WISC, MCW, 
MCRI, UMN, UNMC, UTHSCSA, UTSW, MU, IU, Utah
ii. Cancer RCR project sites? UFL, VUMC, MUSC
iii. Today's scribe: MU/Todd
c. Comments on last week’s notes? (#12)
Recent tickets opened/closed - FYI (i.e. not intended for 
discussion)
Opened - none
Closed - 
#691 Patient preferred spoken language
#242 CDM v2 SNOMED CT Conditions compliance
#182 Complete LOINC standardization of CDM v1 and share 
metadata with GPC
#709 CDM v4.1 dose_admin_units and route valuesets do 
not follow PCORnet v.1...
d. Next meeting(s):  September 4 - Marshfield? Iowa?

2. milestone:cancer-rcr-1
a. need list of people who contributed: 
https://docs.google.com/spreadsheets/d/1d6FMfYa3IQF5PATNfNEbar5qVLNu306yt52LONJTEtY/edit#gid=0
i. UMN - Bryan will review, per Tim
ii. VAND: Brian G - DONE EMAIL SENT 8/21
iii. Drnoc: Brian G - DONE EMAIL SENT 8/22

3. RCR - Aim 3 cancer-rcr-3 / Grouse-3
a. #677 Develop and test Aim 3 SAS code (Ref: Using GROUSE for Analysis 
slides: Aim 3 framework, status)
b. Anything new?

4. PCORnet CDM v4.1 (milestone:pcornet-cdm-4 due July 13) 
a. Data Curation Tracker on iMeet
b. Status of progress by site: 
i. WISC - Update?
c. Upcoming Data Curation Schedule
i. Cycle 5, Second, CDM v4.1, distributed 10/8, due 10/29
ii. Cycle 6, Initial, CDM v4.1, distributed 1/7, due 1/28

5. PCORnet 2.0 / PCRF
a. Re-budgeting. Update? 

6. milestone:text-notes-1 De-identification
a. Discussion around governance/organizational approvals
i. Complimentary to the technical work of implementing code 
from MCW (and small tweaks by KUMC)

7. milestone:snow-shrine-2 , milestone:snow-shrine-3
a. #411 - Align SNOW SHRINE terminology with ARCH and ACT ontology for 
interoperation of query - Jim Campbell provided query XML
i. SNOW SHRINE metadata published at 
https://www.unmc.edu/pathology/informatics/tdc
ii. Volunteer(s) to look at this in the next month/August 31ish
1. MCW - Andrew per Brad
2. Marshfield
b. Cert Update? 
c. ACT vs. SNOW update?

8. Other topics?

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gpc-dev / RCR August 21 agenda and meeting notes

[Verhagen, Laurel A]

Well… I have a support ticket in to try to figure out why my messages keep 
auto-encrypting.

I’ll plan to include the google doc link for notes in the chat of GoToMeeting 
tomorrow. (Or attempt one more send if this makes it through.) I also deleted 
the link to the google doc from item 2, which aims to track those individuals 
contributing on RCR aim 1.

Let me know if you have items to add….

Thanks,
Laurel
--


1.   Convene, take roll, review records and plan next meeting(s)

a.   11:00 a.m. Central Time.
​Meeting ID and access code: 
817-393-381; call +1 
(571) 317-3131

b.  Roll; comments on the agenda? (ref 
SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences

   i.  all 13 
GPC DevTeams 
represented? KUMC, CMH, UIOWA, WISC, MCW, MCRI, UMN, UNMC, UTHSCSA, UTSW, MU, 
IU, Utah

 ii.  Cancer 
RCR project sites? UFL, VUMC, MUSC

iii.  Today's 
scribe: UTHSCSA

c.   Comments on last week’s notes? 
(#12)
Recent tickets 
opened/closed - FYI 
(i.e. not intended for discussion)

d.  Next meeting(s):  August 28 - MU? Marshfield? Iowa?

   i.  Note 
scribe rotation 
appendix

2.   
milestone:cancer-rcr-1

a.   All - need list of people who contributed - update before 8/21

3.   RCR - Aim 3 
cancer-rcr-3
 / Grouse-3

a.   Status of RCR aim 3 Data 
Submissions
 by site

   i.  
Closed/done: #693 
UIOWA, #697 MU, 
#698 UTSW, 
#699 MCW; 
#695 UNMC; 
#696 Marshfield

b.  #677 
Develop and test Aim 3 SAS 
code (Ref: Using 
GROUSE for 
Analysis
 slides: Aim 3 framework, 
status)

c.   Data integration is complete.

4.   Sickle Cell Pilot Study Follow-up

a.   Data submissions/updates: Iowa, Marshfield,

5.   PCORnet CDM v4.1 
(milestone:pcornet-cdm-4
 due July 13)

a.   Data Curation 
Tracker
 on iMeet - updated 8/10

b.  Status of progress by site:

   i.  KUMC - 
Approved

 ii.  CMH - n/a

iii.  UIOWA - 
Approved

   iv.  WISC - 
Pending

 v.  IU - 
Approved

c.   Upcoming Data Curation Schedule

   i.  Cycle 5, 
Second, CDM v4.1, distributed 10/8, due 10/29

 ii.  Cycle 6, 
Initial, CDM v4.1, distributed 1/7, due 1/28

6.   PCORnet 2.0 / PCRF

a.   SOW available? Updates?

7.   
milestone:text-notes-1
 De-identification

a.   Discussion around governance/organizational approvals slated for 8/28

   i.  
Complimentary to the technical work of implementing code from MCW (and small 
tweaks by KUMC)

8.   
milestone:snow-shrine-2
 , 
milestone:snow-shrine-3

gpc-dev / RCR August 21 agenda and meeting notes

[Verhagen, Laurel A]

Attempt #3 to get this agenda out. Scribe will be UTHSCSA.

Google doc for notes: 
https://docs.google.com/document/d/1fl548ThQwr9KTdEppdBhXaEgzmtHsLh2K7QDKBlqLNE/edit

Let me know if you have topics to add.

Thanks,
Laurel
--

1.   Convene, take roll, review records and plan next meeting(s)

a.   11:00 a.m. Central Time.
​Meeting ID and access code: 
817-393-381; call +1 
(571) 317-3131

b.  Roll; comments on the agenda? (ref 
SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences

   i.  all 13 
GPC DevTeams 
represented? KUMC, CMH, UIOWA, WISC, MCW, MCRI, UMN, UNMC, UTHSCSA, UTSW, MU, 
IU, Utah

 ii.  Cancer 
RCR project sites? UFL, VUMC, MUSC

iii.  Today's 
scribe: UTHSCSA

c.   Comments on last week’s notes? 
(#12)
Recent tickets 
opened/closed - FYI 
(i.e. not intended for discussion)

d.  Next meeting(s):  August 28 - MU? Marshfield? Iowa?

   i.  Note 
scribe rotation 
appendix

2.   
milestone:cancer-rcr-1

a.   All - need list of people who contributed - update before 8/21: 
https://docs.google.com/spreadsheets/d/1d6FMfYa3IQF5PATNfNEbar5qVLNu306yt52LONJTEtY/edit#gid=0

3.   RCR - Aim 3 
cancer-rcr-3
 / Grouse-3

a.   Status of RCR aim 3 Data 
Submissions
 by site

   i.  
Closed/done: #693 
UIOWA, #697 MU, 
#698 UTSW, 
#699 MCW; 
#695 UNMC; 
#696 Marshfield

b.  #677 
Develop and test Aim 3 SAS 
code (Ref: Using 
GROUSE for 
Analysis
 slides: Aim 3 framework, 
status)

c.   Data integration is complete.

4.   Sickle Cell Pilot Study Follow-up

a.   Data submissions/updates: Iowa, Marshfield,

5.   PCORnet CDM v4.1 
(milestone:pcornet-cdm-4
 due July 13)

a.   Data Curation 
Tracker
 on iMeet - updated 8/10

b.  Status of progress by site:

   i.  KUMC - 
Approved

 ii.  CMH - n/a

iii.  UIOWA - 
Approved

   iv.  WISC - 
Pending

 v.  IU - 
Approved

c.   Upcoming Data Curation Schedule

   i.  Cycle 5, 
Second, CDM v4.1, distributed 10/8, due 10/29

 ii.  Cycle 6, 
Initial, CDM v4.1, distributed 1/7, due 1/28

6.   PCORnet 2.0 / PCRF

a.   SOW available? Updates?

7.   
milestone:text-notes-1
 De-identification

a.   Discussion around governance/organizational approvals slated for 8/28

   i.  
Complimentary to the technical work of implementing code from MCW (and small 
tweaks by KUMC)

8.   
milestone:snow-shrine-2
 , 
milestone:snow-shrine-3

a.   #411 - Align SNOW SHRINE terminology with

gpc-dev / RCR August 21 agenda and meeting notes

[Verhagen, Laurel A]

This is a secure message. Click here 
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gpc-dev / RCR August 21 agenda and meeting notes

[Verhagen, Laurel A]

This is a secure message. Click here 
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  to read your message; it will expire and no longer be accessible after 
2018-09-11 15:05 CDT  If this is your first secure message you will be prompted 
to register after opening.   How to register can be found in HELP link below.  
For further assistance, please contact our support staff at 1-800-782-8581 ext. 
93456 Option 3 or complete the https://www3.marshfieldclinic.org/proofpointsupport/default.aspx?brand=mcrf";>On-Line
 Request Form  to be contacted within one business day.  
Title: Proofpoint Encryption

























 




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  Help



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RE: GPC sickle cell project - Missouri

[Verhagen, Laurel A]

Marshfield submitted using the link below.

Thanks, 
Laurel

-Original Message-
From: Gpc-dev [mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Taylor, 
Bradley
Sent: Tuesday, August 14, 2018 3:46 PM
To: Gryzlak, Brian M; Singh, Ashima; gpc-dev@listserv.kumc.edu
Cc: Panepinto, Julie
Subject: Re: GPC sickle cell project - Missouri

If you could add it to this GPC REDCap project, we can grab it form there

https://urldefense.proofpoint.com/v2/url?u=https-3A__redcap.gpcnetwork.org_surveys_-3Fs-3D9THT8A7F7E&d=DwIGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=hdcuKZnFYLTz9VQDkHADyXLxRB0x3nFZoJ2QnbWyylg&s=8EAhvCpdzrgB7ZOPDPRy4n2-8q5YgbCXZ9JcA_FInrA&e=


From: Gpc-dev  on behalf of "Gryzlak, Brian 
M" 
Date: Tuesday, August 14, 2018 at 3:36 PM
To: "Singh, Ashima" , "gpc-dev@listserv.kumc.edu" 

Cc: "Panepinto, Julie" 
Subject: RE: GPC sickle cell project - Missouri

ATTENTION: This email originated from a sender outside of MCW. Use caution when 
clicking on links or opening attachments.

Ashima –
Can you advise us on how to submit the data to MCW?
Thanks!
Brian

From: Gpc-dev  On Behalf Of Singh, Ashima
Sent: Tuesday, August 14, 2018 3:04 PM
To: gpc-dev@listserv.kumc.edu
Cc: Panepinto, Julie 
Subject: GPC sickle cell project - Missouri

Hi,
We noticed certain issues with the data shared by Missouri.

  1.  It appears that prescription information and encounters for pediatric is 
limited. Does the data selectively includes only some of pediatric information?
  2.  We noticed a large number of adult patients were lost to follow-up, i.e. 
they did not have any encounter with the institution for 2 or more years. Could 
you comment if this is due to adults seeking care at other institutions ?

We would really appreciate if the MU team could check for the above.
Thanks!
Ashima

Ashima Singh, MS, PhD
Research Scientist, Department of Pediatrics
Hematology-Oncology Division
Medical College of Wisconsin
Milwaukee, WI 53226
Phone: 414-955-5772
Email: ashimasi...@mcw.edu

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gpc-dev / RCR August 14 agenda and meeting notes

[Verhagen, Laurel A]

Hi everyone,

Below find the tentative agenda for the 14 August gpc-dev call at 11:00 a.m. 
Central.
 Jarrah from IU will be our scribe.

Let me know if you have anything to add.

Thanks,
Laurel
--

1.   Did Convene, take roll, review records and plan next meeting(s)

a.   11:00 a.m. Central Time.
​Meeting ID and access code: 
817-393-381; call +1 
(571) 317-3131

b.  Roll; comments on the agenda? (ref 
SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences

   i.  all 13 
GPC DevTeams 
represented? KUMC, CMH, UIOWA, WISC, MCW, MCRI, UMN, UNMC, UTHSCSA, UTSW, MU, 
IU, Utah

 ii.  Cancer 
RCR project sites? UFL, VUMC, MUSC

iii.  Today's 
scribe: Jarrah/IU

c.   Comments on last week’s notes? 
(#12)
Recent tickets 
opened/closed - FYI 
(i.e. not intended for discussion)

   i.  
Opened/Closed - #710 - UNMC shared 
code

d.  Next meeting(s):  August 21 - MU? UTHSCSA?

   i.  Note 
scribe rotation 
appendix

2.   
milestone:cancer-rcr-1

a.   Final report due to PCORI on 8/17 (but to KUMC by 8/10)

3.   RCR - Aim 3 
cancer-rcr-3
 / Grouse-3

a.   Status of RCR aim 3 Data 
Submissions
 by site

   i.  
Closed/done: #693 
UIOWA, #697 MU, 
#698 UTSW, 
#699 MCW; 
#695 UNMC; 
#696 Marshfield

b.  #677 
Develop and test Aim 3 SAS code
Ref: Using GROUSE 
for 
Analysis
 slides: Aim 3 framework, 
status

   i.  Revised 
ETA Friday 7/27; resolved 7/31.

4.   Sickle Cell Pilot Study Presentation - Dr. Panepinto from MCW (~20 
minutes)

5.   PCORnet CDM v4.1 
(milestone:pcornet-cdm-4
 due July 13)

a.   Data Curation Cycle 5 (Distributed 7/2; Due 8/6) CDM v4.1

   i.  Updated 
CDM, parseable file & value set appendix on 
iMeet

b.  Data Curation 
Tracker
 on iMeet - last update 8/2

c.   Status of progress by site

   i.  KUMC - 
ETA 8/8 for resubmission

 ii.  CMH - n/a

iii.  UIOWA - 
Resubmitt

RE: gpc-dev / RCR August 7 agenda and meeting notes

[Verhagen, Laurel A]

Our schedule scribe will be out of the office tomorrow. Would MU or UNMC be 
willing to pick this up?

Thanks,
Laurel

From: Gpc-dev [mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Verhagen, 
Laurel A
Sent: Monday, August 06, 2018 1:25 PM
To: gpc-dev@listserv.kumc.edu
Subject: gpc-dev / RCR August 7 agenda and meeting notes

Trying to resend, since the agenda was send securely again… Please see below.

Thanks,
Laurel

From: Verhagen, Laurel A
Sent: Monday, August 06, 2018 1:09 PM
To: gpc-dev@listserv.kumc.edu
Subject: gpc-dev / RCR August 7 agenda and meeting notes

Hi everyone,

Below find the tentative agenda for the 7 August gpc-dev call at 11:00 a.m. 
Central<https://urldefense.proofpoint.com/v2/url?u=https-3A__docs.google.com_document_d_1HXH2CKNmW2peL0YKegP9M8o8eIWQNApCYEhkjSMExL8_edit&d=DwMGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=lLJVw8dX6pwEjABl5Y3gtJIARjj-oLfk5m2DtqrGkyA&s=6UzDc6LjfumPAl_o4qQ9L4G7o7cOLur1ndXSaeSmgxs&e=>.
 Jarrah from IU will be our scribe.

Let me know if you have anything to add.

Thanks,
Laurel
--

1.   Convene, take roll, review records and plan next meeting(s)

a.   11:00am Central Time.
​Meeting ID and access code: 
817-393-381<https://urldefense.proofpoint.com/v2/url?u=https-3A__global.gotomeeting.com_meeting_join_817393381&d=DwMGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=lLJVw8dX6pwEjABl5Y3gtJIARjj-oLfk5m2DtqrGkyA&s=PmMujHjLdKj5hOuouQkprT7ht6sh_bt04hT_AokUyaA&e=>;
 call +1 (571) 317-3131

b.  Roll; comments on the agenda? (ref 
SoftwareDev#tracking<https://urldefense.proofpoint.com/v2/url?u=https-3A__informatics.gpcnetwork.org_trac_Project_wiki_SoftwareDev-23tracking&d=DwMGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=lLJVw8dX6pwEjABl5Y3gtJIARjj-oLfk5m2DtqrGkyA&s=iZey5Lp2RtGwGgwcIe2d2wRkht1iZFsMEEtHTvP5fBU&e=>)
Reminder - put site after your name in GoToMeeting preferences

   i.  all 12 
GPC 
DevTeams<https://urldefense.proofpoint.com/v2/url?u=https-3A__informatics.gpcnetwork.org_trac_Project_wiki_DevTeams&d=DwMGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=lLJVw8dX6pwEjABl5Y3gtJIARjj-oLfk5m2DtqrGkyA&s=VB_Cr8slwN5OCe7_aLLLZbCwQwMdHn0_zQtVj3Jzk9g&e=>
 represented? KUMC, CMH, UIOWA, WISC, MCW, MCRI, UMN, UNMC, UTHSCSA, UTSW, MU, 
IU, Utah

 ii.  Cancer 
RCR project sites? UFL, VUMC, MUSC

iii.  Today's 
scribe: Jarrah/IU

c.   Comments on last week’s notes? 
(#12<https://urldefense.proofpoint.com/v2/url?u=https-3A__informatics.gpcnetwork.org_trac_Project_ticket_12&d=DwMGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=lLJVw8dX6pwEjABl5Y3gtJIARjj-oLfk5m2DtqrGkyA&s=vIdxXoK6_mM2kdfbh-jkstOpkbvLHvr2jiRbKHcs5eE&e=>)
Recent tickets 
opened/closed<https://urldefense.proofpoint.com/v2/url?u=https-3A__informatics.gpcnetwork.org_trac_Project_timeline&d=DwMGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=lLJVw8dX6pwEjABl5Y3gtJIARjj-oLfk5m2DtqrGkyA&s=LY_qH-O6T9n5a59UMrcpclLStbQEYotf7hKTO2eshJ0&e=>
 - FYI (i.e. not intended for discussion)

   i.  Closed - 
#708 Kidney Health CRG Pilot - information 
gathering<https://urldefense.proofpoint.com/v2/url?u=https-3A__informatics.gpcnetwork.org_trac_Project_ticket_708&d=DwMGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=lLJVw8dX6pwEjABl5Y3gtJIARjj-oLfk5m2DtqrGkyA&s=5oFd6Yqy0i44iezySpGWyqkdEscVIJB2peLmHuzbRY4&e=>

 ii.  Opened - 
none

d.  Next meeting(s):  August 14 - MU? UNMC?

   i.  Note 
scribe rotation 
appendix<https://urldefense.proofpoint.com/v2/url?u=https-3A__docs.google.com_document_d_1ttXUveymyAZ9Hs0c84LXPjgHgz1bJ2IOaytuN3uJHjE_edit-23heading-3Dh.7048noacdrce&d=DwMGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrboZc0kb2NWGliRjTa4b3xxXo7HiAVoZaxWlIgfPM_ia9&m=lLJVw8dX6pwEjABl5Y3gtJIARjj-oLfk5m2DtqrGkyA&s=aqC2avh94hcstttjH3X70cbmSo3xlvgTX1FIW1z65s0&e=>

2.   
milestone:cancer-rcr-1<https://urldefense.proofpoint.com/v2/url?u=https-3A__informati

gpc-dev / RCR August 7 agenda and meeting notes

[Verhagen, Laurel A]

Trying to resend, since the agenda was send securely again… Please see below.

Thanks,
Laurel

From: Verhagen, Laurel A
Sent: Monday, August 06, 2018 1:09 PM
To: gpc-dev@listserv.kumc.edu
Subject: gpc-dev / RCR August 7 agenda and meeting notes

Hi everyone,

Below find the tentative agenda for the 7 August gpc-dev call at 11:00 a.m. 
Central<https://docs.google.com/document/d/1HXH2CKNmW2peL0YKegP9M8o8eIWQNApCYEhkjSMExL8/edit>.
 Jarrah from IU will be our scribe.

Let me know if you have anything to add.

Thanks,
Laurel
--

1.   Convene, take roll, review records and plan next meeting(s)

a.   11:00am Central Time.
​Meeting ID and access code: 
817-393-381<https://global.gotomeeting.com/meeting/join/817393381>; call +1 
(571) 317-3131

b.  Roll; comments on the agenda? (ref 
SoftwareDev#tracking<https://informatics.gpcnetwork.org/trac/Project/wiki/SoftwareDev#tracking>)
Reminder - put site after your name in GoToMeeting preferences

   i.  all 12 
GPC DevTeams<https://informatics.gpcnetwork.org/trac/Project/wiki/DevTeams> 
represented? KUMC, CMH, UIOWA, WISC, MCW, MCRI, UMN, UNMC, UTHSCSA, UTSW, MU, 
IU, Utah

 ii.  Cancer 
RCR project sites? UFL, VUMC, MUSC

iii.  Today's 
scribe: Jarrah/IU

c.   Comments on last week’s notes? 
(#12<https://informatics.gpcnetwork.org/trac/Project/ticket/12>)
Recent tickets 
opened/closed<https://informatics.gpcnetwork.org/trac/Project/timeline> - FYI 
(i.e. not intended for discussion)

   i.  Closed - 
#708 Kidney Health CRG Pilot - information 
gathering<https://informatics.gpcnetwork.org/trac/Project/ticket/708>

 ii.  Opened - 
none

d.  Next meeting(s):  August 14 - MU? UNMC?

   i.  Note 
scribe rotation 
appendix<https://docs.google.com/document/d/1ttXUveymyAZ9Hs0c84LXPjgHgz1bJ2IOaytuN3uJHjE/edit#heading=h.7048noacdrce>

2.   
milestone:cancer-rcr-1<https://informatics.gpcnetwork.org/trac/Project/milestone/cancer-rcr-1>

a.   Final report due to PCORI on 8/17 (but to KUMC by 8/10)

b.  Any updates?

3.   RCR - Aim 3 
cancer-rcr-3<https://informatics.gpcnetwork.org/trac/Project/milestone/cancer-rcr-3>
 / Grouse-3

a.   Nearly there with Aim 3/ maybe a quicker back and forth to complete

b.  Status of RCR aim 3 Data 
Submissions<https://informatics.gpcnetwork.org/trac/Project/wiki/GROUSE?version=56>
 by site

   i.  
Closed/done: #693<https://informatics.gpcnetwork.org/trac/Project/ticket/693> 
UIOWA, #697<https://informatics.gpcnetwork.org/trac/Project/ticket/697> MU, 
#698<https://informatics.gpcnetwork.org/trac/Project/ticket/698> UTSW, 
#699<https://informatics.gpcnetwork.org/trac/Project/ticket/699> MCW

 ii.  
Open/Pending:

1.   #695<https://informatics.gpcnetwork.org/trac/Project/ticket/695> UNMC 
- integration complete

2.   #696<https://informatics.gpcnetwork.org/trac/Project/ticket/696> 
Marshfield: integration complete

c.   #677<https://informatics.gpcnetwork.org/trac/Project/ticket/677> 
Develop and test Aim 3 SAS code
<https://informatics.gpcnetwork.org/trac/Project/ticket/677>Ref: Using GROUSE 
for 
Analysis<https://docs.google.com/presentation/d/1scQ5KfSTMIoBwgPu0-_o8-Gik24jlCk-i9ix2ErcgNo/edit>
 slides: Aim 3 framework, 
status<https://docs.google.com/presentation/d/1scQ5KfSTMIoBwgPu0-_o8-Gik24jlCk-i9ix2ErcgNo/edit#slide=id.g37ca31954b_1_10>

   i.  Revised 
ETA Friday 7/27; resolved 7/31?

d.  Any updates?

4.   PCORnet CDM v4.1 
(milestone:pcornet-cdm-4<https://informatics.gpcnetwork.org/trac/Project/milestone/pcornet-cdm-4>
 due July 13)

a.   Data Curation Cycle 5 (Distributed 7/2; Due 8/6) CDM v4.1

   i.  Updated 
CDM, parseable file & value set appendix on 
iMeet<http://r20.rs6.net/tn.jsp?f=0010dYIDkJmRA9Dm1IV13MKlEVhmvoOYfGLPR_M9lq1sxTuKPZpHwWLiQpyKLjxD9vjxWjS1-NeYwCFNe7w3ZSHEerZIIbGrnB01MCreRf7GeECV8kGKXoAAOJuPeupg0sikpbzR9WqzfQ0cM5adnI2silcIFAqJTHOXQE9iXpryQBqMCCgc7NFuMPyWTf4I9n2wc2UAo83J6RnxykOVb0SMMbz3pRS4bzOUHadMeejYksl3TVrWWdSC7hjIfaB2TNturEziTlIG_70LcEOWjxtx4rKxKjTSN_fIdMh9JB4GHyRYC3iuA3AUQCxLQy3ENefixSXdd8Bdb7tmw93AybsHDH33YikbSjcnVZgQYIYK1gVEc_x6rFU1r4QDlPILIsb9AYjU7G9DiAR1bpW9Q9Y1o-eWvG-SBEsfAPdcStKIjpbo9AAJypxrpuL058lDnQKZ2qh_Ar7BbKGv9ydaf2lJ_WsMIHmsG2S3HgsoLJfWcleabILmlmtUX0FGkRKO0ZC3ZofRCgrX

gpc-dev / RCR August 7 agenda and meeting notes

[Verhagen, Laurel A]

This is a secure message. Click here 
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  to read your message; it will expire and no longer be accessible after 
2018-08-28 13:09 CDT  If this is your first secure message you will be prompted 
to register after opening.   How to register can be found in HELP link below.  
For further assistance, please contact our support staff at 1-800-782-8581 ext. 
93456 Option 3 or complete the https://www3.marshfieldclinic.org/proofpointsupport/default.aspx?brand=mcrf";>On-Line
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Title: Proofpoint Encryption




























 




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  Help



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gpc-dev / RCR July 31 agenda and meeting notes

[Verhagen, Laurel A]

Hi everyone,

Below find the tentative agenda for the 31 July GPC-DEV call at 11:00 a.m. 
Central.
 Reid from Utah will be our scribe.

**Debbie mentioned this sent securely, which was not the intent. I’m trying to 
resend…

Thanks,
Laurel
--

1.   Convene, take roll, review records and plan next meeting(s)

a.   11:00am Central Time.
​Meeting ID and access code: 
817-393-381; call +1 
(571) 317-3131

b.  Roll; comments on the agenda? (ref 
SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences

   i.  all 12 
GPC DevTeams 
represented? KUMC, CMH, UIOWA, WISC, MCW, MCRI, UMN, UNMC, UTHSCSA, UTSW, MU, 
IU, Utah

 ii.  Cancer 
RCR project sites? UFL, VUMC, MUSC

iii.  Today's 
scribe: Reid/Utah per 7/17

c.   Comments on last week’s notes? 
(#12)
Recent tickets 
opened/closed - FYI 
(i.e. not intended for discussion)

   i.  Closed - 
#698 UTSW aim 3 
rcr, #699 MCW aim 3 
rcr

 ii.  Opened - 
#708 (below), #709 
(below)

d.  Next meeting(s):  IU? MU?

   i.  Note 
scribe rotation 
appendix

2.   
milestone:cancer-rcr-1

a.   Final report due to PCORI on 8/17 (but to KUMC by 8/10)

3.   RCR - Aim 3 
cancer-rcr-3
 / Grouse-3

a.   Nearly there with Aim 3/ maybe a quicker back and forth to complete

b.  Status of RCR aim 3 Data 
Submissions
 by site

   i.  
Closed/done: #693 
UIOWA, #697 MU, 
#698 UTSW, 
#699 MCW

 ii.  Pending:

1.   #695 UNMC 
- integration complete

2.   #696 
Marshfield: integration complete

c.   #677 
Develop and test Aim 3 SAS code
Ref: Using GROUSE 
for 
Analysis
 slides: Aim 3 framework, 
status

  i.  Revised 
ETA Friday 7/27

4.   #708 Kidney Health CRG 
Pilot

a.   Sites missing updates:

   i.  IU

 ii.  MCW

iii.  MU

   iv.  Iowa - R?

 v.  UMN

   vi.  WISC

5.   Pilot Award: Brimhall - check-in about datasets

a.   Nebraska - update?

6.   PCORnet CDM v4.1 
(milestone:pcornet-cdm-4
 due July 13)

a.   Data Curation Cycle 5 (Distributed 7/2; Due 8/6) CDM v4.1

   i.  Updated 
CDM, parseable file & value set appendix on 
iMeet

gpc-dev / RCR July 31 agenda and meeting notes

[Verhagen, Laurel A]

This is a secure message. Click here 
https://securemail.mcrf.mfldclin.edu/formpostdir/securereader?id=zXduiTeNBrlU13ht0UGk5gAyc1YI3qTQ&brand=cf225b4
  to read your message; it will expire and no longer be accessible after 
2018-08-21 16:12 CDT  If this is your first secure message you will be prompted 
to register after opening.   How to register can be found in HELP link below.  
For further assistance, please contact our support staff at 1-800-782-8581 ext. 
93456 Option 3 or complete the https://www3.marshfieldclinic.org/proofpointsupport/default.aspx?brand=mcrf";>On-Line
 Request Form  to be contacted within one business day.  
Title: Proofpoint Encryption




























 




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  Help



Disclaimer: This email and its contents are confidential and intended solely for the use of the addressee. If you have received this email in error, please notify the sender and delete the email.


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gpc-dev / RCR July 24 agenda and meeting notes

[Verhagen, Laurel A]

Hi everyone,

Below find the tentative agenda for the 24 July GPC-DEV call at 11:00 a.m. 
Central.
 Bill from WISC will be our scribe.

Sorry for getting this out so late!

Thanks,
Laurel
--

1.   Convene, take roll, review records and plan next meeting(s)

a.   11:00am Central Time.
​Meeting ID and access code: 
817-393-381; call +1 
(571) 317-3131

b.  Roll; comments on the agenda? (ref 
SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences

   i.  all 12 
GPC DevTeams 
represented? KUMC, CMH, UIOWA, WISC, MCW, MCRI, UMN, UNMC, UTHSCSA, UTSW, MU, 
IU, Utah

 ii.  Cancer 
RCR project sites? UFL, VUMC, MUSC

iii.  Today's 
scribe: Bill/Wisc per 7/17

c.   Comments on last week’s notes? 
(#12)
Recent tickets 
opened/closed - FYI 
(i.e. not intended for discussion)

   i.  Closed…. 
#697 MU for RCR Aim 
3, #693 
Iowa for RCR Aim 3, 
#286 Heron CPT, LOINC hierarchy not in sync with 
UMLS

d.  Next meeting(s):  Reid/Utah on 7/31

   i.  Note 
scribe rotation 
appendix

2.   
milestone:cancer-rcr-1

a.   Nothing new based on Trac?

3.   RCR - Aim 3 
cancer-rcr-3
 / Grouse-3

a.   Status of RCR aim 3 Data 
Submissions
 by site

   i.  
#693 UIOWA: 
integration complete, per #693 on 7/16

 ii.  
#695 UNMC

1.   Received hash file

iii.  
#696 Marshfield: 
question about identifier mismatch between files.

   iv.  
#697 MU: 
integration complete, per #697 on 7/16

 v.  
#698 UTSW: owner: 
KUMC

   vi.  
#699 MCW: owner: 
KUMC; Received crosswalk with date_off(date_shift) Jun 25.

b.  #677 
Develop and test Aim 3 SAS code
Ref: Using GROUSE 
for 
Analysis
 slides: Aim 3 framework, 
status

   i.  ETA July 
12 - update from KUMC?

4.   Pilot Award: Brimhall - check-in about datasets

a.   Marshfield - missing order times, just had order date, specimen 
date/time, etc.

   i.  Laura 
clarified that UTHSCSA and KUMC fill datetime in the CDM field for order date.

b.  Nebraska -

5.   PCORnet 2.0/PCRF

a.   PCRF Kick-off & Planning call on Friday, July 20th.

6.   PCORnet CDM v4.1 
(milestone:pcornet-cdm-4
 due July 13)

a.   Data Curation Cycle 5 (Distributed 7/2; Due 8/6) CDM v4.1

   i.  Updated 
CDM, parseable file & value set appendix on 
iMeet

gpc-dev / RCR July 17 agenda and meeting notes

[Verhagen, Laurel A]

Hi everyone,

Below find the current agenda for the 17 July GPC-DEV 
call
 at 11:00 a.m. Central. UIOWA will be our scribe. Jim Campbell will be 
providing a brief demo.

Meeting 
Link
571-317-3131, Access Code: 817-393-381
Audio PIN: Shown after joining the meeting
Meeting ID: 817-393-381
Thanks,
Laurel
--

1.Convene, take roll, review records and plan next meeting(s)

a.11:00am Central Time.
​Meeting ID and access code: 
817-393-381; call +1 
(571) 317-3131

b.Roll; comments on the agenda? (ref 
SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences

  i.all 12 GPC 
DevTeams 
represented? KUMC, CMH, UIOWA, WISC, MCW, MCRI, UMN, UNMC, UTHSCSA, UTSW, MU, 
IU, Utah

ii.Cancer RCR project sites? UFL, 
VUMC, MUSC

   iii.Today's scribe: Nick/Iowa per 10 
July

   iv.GPC queries to discuss? Sickle 
Cell, IBT, LSS, others?

c.Comments on last week’s notes? 
(#12)
Recent tickets 
opened/closed - FYI 
(i.e. not intended for discussion)

  i.#687 KUMC GROUSE integration 
for CancerRCR Aim 3:.. Closed

d.Next meeting(s):  24 July - Utah? WISC?

  i.Note scribe rotation 
appendix

2.
milestone:cancer-rcr-1

a.Brian regrets

3.RCR - Aim 3 
cancer-rcr-3
 / Grouse-3

a.Status of RCR aim 3 Data 
Submissions
 by site

  i.
#693 UIOWA: owner: 
KUMC

ii.
#695 UNMC

1.CDM patient_num_hash - not consistent in old and new version

2.Lav and Yesh working through this.

   iii.
#696 MCRI: received 
Jun 12; Daryl @ KUMC “having some difficulty reading the sas files” Jun 27

   iv.
#697 MU: Lav @ KUMC 
doing quality checks

v.
#698 UTSW: owner: 
KUMC

   vi.
#699 MCW: owner: 
KUMC; Received crosswalk with date_off(date_shift) Jun 25.

b.#677 Develop 
and test Aim 3 SAS code
Ref: Using GROUSE 
for 
Analysis
 slides: Aim 3 framework, 
status

  i.ETA July 12?

4.Pilot Award: Brimhall - check-in about datasets

a.Marshfield - missing times; new file submitted 7/16.

  i.Asked Laura for clarification 
if anything else (panel names, etc.) was needed. Response that it’s nice to 
have, but not in scope.

b.Nebraska - ?

5.
milestone:text-notes-1
 De-identification

a.Nothing new based on Trac?

6.
milestone:snow-shrine-2
 , 
milestone:snow-shrine-3

a.#411 - Align SNOW SHRINE terminology with ARCH and ACT ontology for 
interoperation of 
query - Jim 
Campbell provided query XML

b.

gpc-dev / RCR July 10 agenda and meeting notes

[Verhagen, Laurel A]

Hi everyone,

Sorry to get this out late! Below find the current agenda for the 10 July 
GPC-DEV 
call
 at 11:00 Central. UMN will be our scribe.

Meeting 
Link
571-317-3131, Access Code: 817-393-381
Audio PIN: Shown after joining the meeting
Meeting ID: 817-393-381
Thanks,
Laurel
--


1.   Convene, take roll, review records and plan next meeting(s)

a.   11:00am Central Time.
​Meeting ID and access code: 
817-393-381; call +1 
(571) 317-3131

b.  Roll; comments on the agenda? (ref 
SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences

   i.  all 12 
GPC DevTeams 
represented? KUMC, CMH, UIOWA, WISC, MCW, MCRI, UMN, UNMC, UTHSCSA, UTSW, MU, 
IU, Utah

 ii.  Cancer 
RCR project sites? UFL, VUMC, MUSC

iii.  Today's 
scribe: Andrew/UMN per 3 July

   iv.  GPC queries 
to discuss? Sickle Cell, IBT, LSS, others?

c.   Comments on last week’s notes? 
(#12)
Recent tickets 
opened/closed - FYI 
(i.e. not intended for discussion)

   i.  #706 
(GPC Pilot Grant Project (Neena Sharma) Data Request - MCW and UIOWA) 
created

 ii.  
#705 - KUMC CDM 
NAACCR Death Date Mismatch Closed.

d.  Next meeting(s):  July 17 Scribe: Utah? UIOWA?
Note scribe rotation 
appendix

2.   
milestone:cancer-rcr-1

a.   Anything pending?

3.   RCR - Aim 3 
cancer-rcr-3
 / Grouse-3

a.   Status of RCR aim 3 Data 
Submissions
 by site

   i.  
#695 UNMC

1.   CDM - received Jun 28; Lav @ KUMC doing quality checks - birthdays 
don’t line up between CDM and i2b2; different builds?

a.   Resolved?

2.   Missing CDM patient_num_hash and date_shift

 ii.  
#696 MCRF: received 
Jun 12;  MCRI doesn’t populate Dispensing or PRO

1.   NAACCR?

iii.  
#697 MU: Lav @ KUMC 
doing quality checks

b.  #677 
Develop and test Aim 3 SAS 
code Ref: Using 
GROUSE for 
Analysis
 slides: Aim 3 framework, 
status

   i.  ETA 10 
July; stretch goal: 3 July

4.   #706 (GPC Pilot Grant Project (Neena Sharma) Data Request - MCW and 
UIOWA) created

a.   MCW

b.  UIOWA

5.   
milestone:text-notes-1
 De-identification

a.   Anything new?

6.   
milestone:snow-shrine-2
 , 
milestone:snow-shrine-3

a.   Jim Campbell to present some sample queries

b.  SNOW SHRINE metadata published at 
https://www.unmc.edu/pathology/informatics/tdc

   i.  Full and 
Delta relea

gpc-dev / RCR June 19 agenda and meeting notes

[Verhagen, Laurel A]

Hi everyone,

Below find the agenda for the 19 June GPC-DEV 
call
 at 11am Central. MU will be our scribe.

Meeting 
Link
571-317-3131, Access Code: 817-393-381
Audio PIN: Shown after joining the meeting
Meeting ID: 817-393-381
Thanks,
Laurel
--

1.Convene, take roll, review records and plan next meeting(s)

a.11:00am Central Time.
​Meeting ID and access code: 
817-393-381; call +1 
(571) 317-3131

b.Roll; comments on the agenda? (ref 
SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences

  i.all 12 GPC 
DevTeams 
represented? KUMC, CMH, UIOWA, WISC, MCW, MCRF/MCRI, UMN, UNMC, UTHSCSA, UTSW, 
MU, IU, Utah

ii.Cancer RCR project sites? UFL, 
VUMC, MUSC

   iii.Today's scribe: MU/Todd

c.Comments on last week’s notes? 
(#12)
Recent tickets 
opened/closed - FYI 
(i.e. not intended for discussion)

  i.None this week

d.Next meeting(s):  July 3 Scribe: MCW?
Note scribe rotation 
appendix

2.RCR - Aim 1

a.Nothing new

3.RCR - Aim 3 
cancer-rcr-3
 / Grouse-3

a.#677 Develop 
and test Aim 3 SAS 
code

  i.Using GROUSE for 
Analysis
 slides: Aim 3 framework, 
status

b.Status of RCR aim 3 data by site - New 
Grid 
posted

  i.
#687 KUMC - DONE; 
GROUSE integration in progress

ii.
#693 UIOWA - 
missing CDM

   iii.
#695 UNMC - missing 
i2b2 metadata; Missing CDM

   iv.
#696 MCRI - DONE

v.
#697 MU - missing 
Med_Admin

   vi.
#698 UTSW missing 
i2b2 metadata

  vii.
#699 MCW - missing 
date_shift, missing Med_Admin

c.Any other RCR business? If no, RCR attendees can drop off.

4.Next D

a.MU - Updated SES file; Mosa sent mail this was sent on 6/4/18. A’lona 
confirms she received this file.

b.#682 - 
Address issues

  i.Iowa - Labs, Prescribing, 
Dispensing (missing titles)

ii.MU - Demo, Encounters, LABs

   iii.UNMC - Vitals - DONE

   iv.UTSW - Labs, Prescribing

5.PCORnet CDM v4.1

a.All network partners should implement v4.1 prior to the Data Curation 
Cycle 5 in July. (Distributed 7/2; Due 8/6)

  i.Updated CDM, parseable file & 
Value Set Appendix available on 
iMeet

gpc-dev / RCR June 11 agenda and meeting notes

[Verhagen, Laurel A]

Hi everyone,

Below find the agenda for the 11 June GPC-DEV 
call
 at 11:00 Central. UTHSCSA will scribe.

Meeting 
Link
571-317-3131, Access Code: 817-393-381
Audio PIN: Shown after joining the meeting
Meeting ID: 817-393-381


Thanks,
Laurel
--


1.Convene, take roll, review records and plan next meeting(s)

a.11:00am Central Time.
​Meeting ID and access code: 
817-393-381; call +1 
(571) 317-3131

b.Roll; comments on the agenda? (ref 
SoftwareDev#tracking)
Reminder - put site after your name in GoToMeeting preferences

  i.all 12 GPC 
DevTeams 
represented? KUMC, CMH, UIOWA, WISC, MCW, MCRF/MCRI, UMN, UNMC, UTHSCSA, UTSW, 
MU, IU, Utah

ii.Cancer RCR project sites? UFL, 
VUMC, MUSC

   iii.Today's scribe: UTHSCSA (email 
from Laura on 6/6)

c.Comments on last week’s notes? 
(#12)
Recent tickets 
opened/closed - FYI 
(i.e. not intended for discussion)

  i.None this week

d.Next meeting(s):  June 19 Scribe: MU?
Note scribe rotation 
appendix

e.Motion to cancel June 26 due to i2b2 meeting?

2.RCR - Aim 1

a.Nothing new

3.RCR - Aim 3 
cancer-rcr-3
 / Grouse-3

a.#677 Develop 
and test Aim 3 SAS 
code

  i.Using GROUSE for 
Analysis
 slides: Aim 3 framework, 
status

b.Status of RCR aim 3 data by site

  i.
#687 KUMC GROUSE 
integration

ii.
#693 GROUSE UIOWA 
i2b2/CDM: owner: KUMC

   iii.
#695 UNMC CDM

1.Yesh - CDM extract  to be done May 30th 2018.

   iv.
#696 submit MCRF 
CDM; invite request 6/6

v.
#697 integrate MU 
i2b2, CDM datamarts; owner: KUMC

   vi.
#698 update UTSW 
i2b2, CDM datamarts; owner: KUMC

  vii.
#699 integrate MCW 
CDM, i2b2; owner: KUMC

1.Date shift regulatory clearance
Alex: Currently approved to send date offsets only for previously approved 
cohort.

4.Next D

a.MU - send corrected SES file ASAP

b.#682 - 
Address issues

  i.Iowa - Labs, Prescribing, 
Dispensing

ii.MU - Demo, Encounters, SES, LABs

   iii.UNMC - Vitals - DONE

   iv.UTSW - Labs, Prescribing

5.PCORnet CDM v4.1

a.All network partners should implement v4.1 prior to the Data Curation 
Cycle 5 in July. (Distributed 7/2; Due 8/6)

  i.Updated CDM, parseable file & 
Value Set Appendix available on 
iMeet

RE: format for GROUSE i2b2 datamart submission from SQL Server

[Verhagen, Laurel A]

In case you didn't receive notification, I've attached our scripts to ticket 
#644.

Thanks,
Laurel

From: Gpc-dev [mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Dan 
Connolly
Sent: Wednesday, April 11, 2018 11:28 AM
To: Smith, Nicholas C; McNeeley, Todd Alexander; French, Tony
Cc: Daryl Budine; ,
Subject: format for GROUSE i2b2 datamart submission from SQL Server

Nick (UIOWA), Todd (MU), Tony (IU), let me know whether this makes sense to 
you...

Please send us tab-delimited files.

This is based on positive experience with data submitted by Marshfield in Aug 
2017.

This control file is in Oracle syntax, but I think it's a reasonably clear spec:

LOAD DATA
INFILE 'concept_dimension_base.dat'
TRUNCATE
INTO TABLE BLUEHERONDATA_MCRI.CONCEPT_DIMENSION
FIELDS TERMINATED BY X'09'
   (CONCEPT_PATHCHAR ,
CONCEPT_CD  CHAR ,
NAME_CHAR   CHAR ,
UPDATE_DATE timestamp '-MM-DD HH24:MI:SS.FF',
DOWNLOAD_DATE   timestamp '-MM-DD HH24:MI:SS.FF',
IMPORT_DATE timestamp '-MM-DD HH24:MI:SS.FF',
SOURCESYSTEM_CD CHAR
   )


Aug 2017 Marshfield submission details are in
https://informatics.gpcnetwork.org/trac/Project/ticket/595#comment:31

--
Dan
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RE: CDM table export question

[Verhagen, Laurel A]

Hi Brian,

I talked with Dan about this a little at the LEC. Our plan was to zip the SAS 
datasets that we use for running PCORnet queries and send them via the KUMC 
Secure FTP site for RCR. We would likely need to add a processing step to 
ensure that the correct study IDs were sent.

https://informatics.gpcnetwork.org/trac/Project/ticket/647

Let me know if we need to explore a different approach?

Thanks,
Laurel

Laurel Verhagen | Office of Research Computing and Analytics | Marshfield 
Clinic Research Institute | 715-221-6433 | 
verhagen.lau...@marshfieldresearch.org

From: Gpc-rcr [mailto:gpc-rcr-boun...@listserv.kumc.edu] On Behalf Of Gryzlak, 
Brian M
Sent: Wednesday, November 29, 2017 1:34 PM
To: gpc-dev@listserv.kumc.edu; gpc-...@listserv.kumc.edu
Subject: [Gpc-rcr] CDM table export question

Hi everyone,

UIOWA is exploring the optimal format for sites to export and share PCORnet CDM 
table files for the RCR project.   Potential issues we are anticipating include 
file size limitations, data export errors (e.g., using a delimiter that is also 
included in a field value), etc.

Currently our understanding is that most or all sites are using SQL Server or 
Oracle databases.  So we are hoping to issue guidance on these platforms and 
the running option seems to be CSV file format.

Is anyone aware of standards issued by PCORnet that may address the preferred 
means by which CDM files should be exported for eventual consumption by SQL?  
Or does anyone have experience in exporting CDM tables for consumption by 
another party?

Thanks,
Brian


Brian M. Gryzlak, MSW, MA
Project Coordinator
2127 Westlawn  319.335.4897 (primary)
S533 Pharmacy  319.353.3857
The University of Iowa
Iowa City, IA 52242
brian-gryz...@uiowa.edu

Health Effectiveness Research Center 
(HERCe)




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RE: [PCORnet CDRN PMs] Fwd: PCORnet Front Door HFpEF (FD0053) PMP2 Request Distribution

[Verhagen, Laurel A]

This was one of the longest running for Marshfield as well.

Thanks,
Laurel

From: Gpc-dev [mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Debbie 
Yoshihara
Sent: Thursday, November 02, 2017 8:47 AM
To: Phillip Reeder; Hillary Sandoval; 'Brittany Zschoche'; 
gpc-dev@listserv.kumc.edu
Subject: Re: [PCORnet CDRN PMs] Fwd: PCORnet Front Door HFpEF (FD0053) PMP2 
Request Distribution


Hi Phillip,



Yeah, just for reference, we run SAS against our Netezza files.

It took 21 hours clock time.

Since we have a hard reboot every 24 hours, this query

just made it.  And I agree, it's one of the longest running

queries.



--- Debbie




Debbie Yoshihara
Informatics Specialist
Biomedical Informatics Services - SMPH-IT
Institute for Clinical and Translational Research (ICTR)
School of Medicine and Public Health, UW-Madison
matrixed employee of UW Health


From: Gpc-dev 
mailto:gpc-dev-boun...@listserv.kumc.edu>> 
on behalf of Phillip Reeder 
mailto:phillip.ree...@utsouthwestern.edu>>
Sent: Thursday, November 2, 2017 8:33:11 AM
To: Hillary Sandoval; 'Brittany Zschoche'; 
gpc-dev@listserv.kumc.edu
Subject: Re: [PCORnet CDRN PMs] Fwd: PCORnet Front Door HFpEF (FD0053) PMP2 
Request Distribution

For those who have successfully completed this query, how long did SAS take to 
complete?  Its been running for 24 hours here at UTSW and seems to be making 
progress so I don't want to kill the process.  There were files created at 
5:00AM and log entries at 8:30, so I know it's still alive.  But this is by far 
the longest running SAS query I've run.

Phillip

From: Gpc-dev 
mailto:gpc-dev-boun...@listserv.kumc.edu>> 
on behalf of Hillary Sandoval mailto:hsando...@kumc.edu>>
Date: Wednesday, November 1, 2017 at 9:36 AM
To: 'Brittany Zschoche' 
mailto:gpc-site...@listserv.kumc.edu>>, 
"gpc-dev@listserv.kumc.edu" 
mailto:gpc-dev@listserv.kumc.edu>>, 
"'gpc...@listserv.kumc.edu'" 
mailto:gpc...@listserv.kumc.edu>>
Subject: FW: [PCORnet CDRN PMs] Fwd: PCORnet Front Door HFpEF (FD0053) PMP2 
Request Distribution


Hello everyone,



Just a reminder that if you received a request to complete query 
fd0053_pmp2_wp003 and have not responded yet, please respond by COB tomorrow. 
If you are unable to do this you can still respond up until 11/10, but your 
data will not be included in the report provided to the requestor.



Please see below for details. From my records, I believe Marshfield, Iowa and 
MU have already completed this.



Thank you,
Hillary



From: PCORnet DRN OC [mailto:dr...@pcornet.org]
Sent: Wednesday, November 1, 2017 9:11 AM
To: PCORnet Query Fulfillment mailto:q...@pcornet.org>>
Subject: [PCORnet CDRN PMs] Fwd: PCORnet Front Door HFpEF (FD0053) PMP2 Request 
Distribution



Dear PCORnet colleagues,

As a reminder, we are requesting responses to the Front Door Heart Failure with 
Preserved Ejection Fraction (HFpEF) query (fd0053_pmp2_wp003) by COB Tomorrow, 
November 2nd in order to be included in the report. Sites that are unable to 
respond by November 2nd will still have until Friday, November 10th to respond 
to the query, however their data will not be included in the report that will 
be provided to the requester.

Many thanks to the sites that have already submitted their responses.

For general questions, please contact the DRN OC at 
dr...@pcornet.org.

For questions specific to the query, please contact the Query Fulfillment team 
at q...@pcornet.org.

Best wishes,

The PCORnet DRNOC and Query Fulfillment Teams



-- Forwarded message --
From: PCORnet DRN OC mailto:dr...@pcornet.org>>
Date: Fri, Oct 27, 2017 at 10:32 AM
Subject: PCORnet Front Door HFpEF (FD0053) PMP2 Request Distribution
To:
Cc: PCORnet Query Fulfillment mailto:q...@pcornet.org>>

Dear PCORnet colleagues,



The Query Fulfillment team is pleased to announce the distribution of the Front 
Door Heart Failure with Preserved Ejection Fraction (HFpEF) (FD0053) query 
request. For specific details about this request, please see the Request 
Details section below.



This query request will be distributed as a PCORnet Modular Program 2 (PMP2) 
package on October 27, 2017. The full workplan and metadata are available here: 
https://pcornet.imeetcentral.com/p/ZgAAkfHa



A response to this request will count as 17 queries.



Who is the requester?

Adam Devore, Duke University and AstraZeneca



How will the results be used?

AstraZeneca is considering the development of a Pragmatic Clinical Trial (PCT) 
among Heart Failure patients and is interested in the feasibility of using 
PCORne

RE: PCORI CDM Lab Issue

[Verhagen, Laurel A]

I'd love to hear what UW is doing, as they are at 100% for lab ranges. Debbie, 
can you help?

We were also dinged for this, but the problem may be different. The SCILHS ETL 
included normal ranges for selected labs. We may not have pulled the most 
recent version of i2p? The version we ran was limited to the shorter list of 
labs, not the newer direction to include all data. Our labs are stored with a 
local coding system that can be linked to LOINC. The challenge is that we have 
multiple local codes, with different ranges, for a single LOINC. Still looking 
into this...

Thanks,
Laurel

From: Gpc-dev [mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Phillip 
Reeder
Sent: Thursday, August 31, 2017 4:07 PM
To: gpc-dev@listserv.kumc.edu
Subject: PCORI CDM Lab Issue

Our CDM report showed us failing the check 3.10 for "LAB_NAME is a common 
measure* or LAB_LOINC is not null and RESULT_NUM is not null and 
NORM_MODIFIER_LOW, NORM_RANGE_LOW, NORM_MODIFIER_HIGH, and NORM_RANGE_HIGH are 
all populated per CDM specifications.**"

The difference between 3.09 and 3.10 seems to be the normal ranges, but we do 
have normal ranges in our data as we used the i2p code to generate the lab 
results.  Did anyone else have an issue like this with their last EDC report?  
Does anyone understand the SAS code well enough to help me figure out why this 
check was failing for us?

Thanks,
Phillip



UT Southwestern


Medical Center



The future of medicine, today.


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PCORnet CDRN's - We should talk!

[Verhagen, Laurel A]

Hi GPC-DEV,

Is anyone interested in participating on CDRN technical discussions to 
represent GPC? There may be value in collaboration.

Thanks,
Laurel

From: Schmidt,Erik C [mailto:caved...@ufl.edu]
Sent: Thursday, June 22, 2017 1:32 PM
To: Verhagen, Laurel A; Greenlee, Robert T PHD
Subject: FW: PCORnet CDRN's - We should talk!

Good afternoon from a fellow CDRN!

I’m hard at work setting up a technical discussion group for CDRN’s and have 
had extremely positive response – and I realized that I have yet to hear back 
from anyone at GPC. Hopefully your technical team would be interested in 
participating. Initially, we’re simply setting up a distribution list where all 
of the CDRN’s can collaborate, share tools, and discuss challenges in the data 
processing/characterization process. Ultimately, I hope to put together an 
annual ‘summit’ where we can all get together for a couple of days to meet, 
have presentations, and exchange war stories.

I truly believe that we all have a lot that we can learn from one another by 
simply sharing, and I’m hopeful that your CDRN will be interested in 
participating in the discussions!

Thanks in advance, and please let me know who should be included from your 
institution!

Erik Schmidt
OneFlorida CDRN


From: Erik Schmidt mailto:caved...@ufl.edu>>
Date: Friday, June 9, 2017 at 4:03 PM
To: Erik Schmidt mailto:caved...@ufl.edu>>
Subject: PCORnet CDRN's - We should talk!

Good afternoon, everyone! (Contacts for all CDRN’s are BCC’ed on this email.)

My name is Erik Schmidt and I’m part of the technical team on the OneFlorida 
CDRN.

There seems to be very little technical communication between CDRN’s. I suspect 
that we’re all doing similar work, facing similar challenges, and ultimately 
developing similar tools to work with our data and pass characterization. In 
other words, there’s a lot of duplication of effort and very little 
coordination. It seems to me that we should have some mechanism to share ideas 
and have discussions, with the goal of helping each other to a common goal.

I’d like to start by asking each CDRN if they would be interested in 
participating in ongoing technical discussions, and ultimately for contact 
information for your technical resources who might be best equipped to 
participate in these discussions. I’m even hopeful of putting together some 
sort of ‘CDRN Technical Summit’ in the near future, possibly here at our 
University of Florida campus.

Please let me know who you’d like to include from your CDRN. Once I’ve heard 
from everyone, I’ll reach back out to that group and we can hopefully start 
something that will benefit all of us!

Thank you very much for your time, and hopefully your interest!

Erik Schmidt
OneFlorida CDRN
University of Florida


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GPC-Dev meeting 6/20 - Canceled

[Verhagen, Laurel A]

Hi everyone,

Due to lack of email traffic in the past week, we will CANCEL the GPC-DEV 
meeting tomorrow (6/20) at 11:00.

Please use this extra time to get caught up on requests for your site, 
specifically the following:


* GROUSE - 
#595

* Ht/Wt data request - 
#570

* SHRINE Cert Renewal: 
#605, 
#606, 
#607, 
#608, 
#609, 
#610, 
#611, 
#612, 
#613, 
#614, 
#615, 
#616

* DCQ Cycle 3 - CDM v3.1 Diagnostic Query is available on 
iMeetCentral

Report progress via Trac as appropriate.

Thanks,
Laurel

Laurel Verhagen | Biomedical Informatics Research Center | Marshfield Clinic 
Research Institute | 715-221-6433 | 
verhagen.lau...@marshfieldresearch.org

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RE: Share CDM Data Characterization (EDC) report with GPC customers such as Next-D

[Verhagen, Laurel A]

Hi Dan,

Sorry - #571 seemed very Next-D focused. I didn't see this was a request for 
all sites.

Can you provide more information about how the EDC reports will be used? Is 
this intended for potential external customers prior to an award of funding?

Thanks,
Laurel

From: Gpc-dev [mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Dan 
Connolly
Sent: Monday, February 27, 2017 11:38 AM
To: 
Subject: RE: Share CDM Data Characterization (EDC) report with GPC customers 
such as Next-D

Thanks, Rita, for submitting CMH's EDC report.

We're down to 3 remaining sites: UTHSCSA, WISC, MCRF.

Are there any barriers I can remove?

--
Dan



From: Dan Connolly
Sent: Tuesday, January 24, 2017 1:32 PM
To: mailto:gpc-dev@listserv.kumc.edu>>
Cc: Mei Liu
Subject: Share CDM Data Characterization (EDC) report with GPC customers such 
as Next-D
Please use this redcap survey to submit them:
https://redcap.gpcnetwork.org/surveys/?s=9LT4KE8NFD
We are collecting EDC reports from GPC sites to share with prospective GPC 
customers; for example, the Next-D researchers.

These reports will not be shared publicly.

For context, see #571 characterization of data from next-d GPC 
sites.
--
Dan

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RE: Where is the grouse/obfuscate.py file?

[Verhagen, Laurel A]

Hi Debbie,

It's on ticket 401: 
https://informatics.gpcnetwork.org/trac/Project/ticket/401#comment:6

Thanks,
Laurel

From: Gpc-dev [mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Debbie 
Yoshihara
Sent: Thursday, January 26, 2017 8:12 AM
To: gpc-dev
Subject: Where is the grouse/obfuscate.py file?


Hi,



I looked in TRAC #526 but I didn't find it.

Where can I find this file to make the PATIENT_NUM_HASH?



-- Debbie Yoshihara


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RE: insurance etc. for obesity cohort: DROC request, IRB protocol

[Verhagen, Laurel A]

Hi Dan,

Thanks for your review and documentation. Much appreciated.

Table 7 lists ‘Household Income’ as data gathered from Survey 2, not from the 
EHR at each site (column 1). As  geocoding data is based on addresses, which 
come from the EHR, how would you categorize that ask?

Thanks,
Laurel

From: Dan Connolly [mailto:dconno...@kumc.edu]
Sent: Thursday, January 19, 2017 3:13 PM
To: Verhagen, Laurel A
Cc: ; gpc-honest-brok...@kumc.edu; Suarez, Olivia L; 
'Alex Bokov'
Subject: insurance etc. for obesity cohort: DROC request, IRB protocol

Laurel,

You asked about an IRB amendment regarding insurance and such for the obesity 
survey. Alex answered that it's covered by the GPC DSA. I just double-checked, 
and I concur.

The GPC 
DSA<https://urldefense.proofpoint.com/v2/url?u=https-3A__informatics.gpcnetwork.org_trac_Project_wiki_GovernanceMaterials-23DSA&d=DgMGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrbqse0CnDMUgS4P3-3HOTSAwE8Vfvoc1Wm0NCYFbuU-_5&m=9vXZDzDC5gRqNuneRfzeGivurEVOxsyTY_JnveASLyg&s=FHSaApr6Auzytya1w7PPUetMoNGHfnrj_jPqbV9yZTY&e=>
 involves an approved DROC request. The relevant one seems to be #6 from Dan 
Hale 08/18/2015. That request makes no explicit mention of insurance, though it 
does refer to "global IRB protocol for the obesity study".

In Table 7.  Outcomes/Data and Possible Correlations of that protocol, under  
Data gathered from the EHR at each site, I find: Type of insurance.

ref:

  *   15-404H, Hale, Form BB, 04-21-15, 
NS.docx<https://urldefense.proofpoint.com/v2/url?u=https-3A__informatics.gpcnetwork.org_trac_Project_attachment_ticket_249_15-2D404H-252C-2520Hale-252C-2520Form-2520BB-252C-252004-2D21-2D15-252C-2520NS.docx&d=DgMGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrbqse0CnDMUgS4P3-3HOTSAwE8Vfvoc1Wm0NCYFbuU-_5&m=9vXZDzDC5gRqNuneRfzeGivurEVOxsyTY_JnveASLyg&s=jeD7WUa0J9JpbQST2jJ6XttQJ4Ch_TQjT7QakIW6pb4&e=>​<https://urldefense.proofpoint.com/v2/url?u=https-3A__informatics.gpcnetwork.org_trac_Project_raw-2Dattachment_ticket_249_15-2D404H-252C-2520Hale-252C-2520Form-2520BB-252C-252004-2D21-2D15-252C-2520NS.docx&d=DgMGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrbqse0CnDMUgS4P3-3HOTSAwE8Vfvoc1Wm0NCYFbuU-_5&m=9vXZDzDC5gRqNuneRfzeGivurEVOxsyTY_JnveASLyg&s=hYUwTv861aH4ZuQ4HTkGuHTljV4YkgjzFzl_4UaGuXo&e=>
 attached to 
#249<https://urldefense.proofpoint.com/v2/url?u=https-3A__informatics.gpcnetwork.org_trac_Project_ticket_249&d=DgMGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrbqse0CnDMUgS4P3-3HOTSAwE8Vfvoc1Wm0NCYFbuU-_5&m=9vXZDzDC5gRqNuneRfzeGivurEVOxsyTY_JnveASLyg&s=cuVvLk2wZUxygS9R113SHbGAdIv23PfSE3ctgZhehNs&e=>
--
Dan

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Hackathon4 - Notes

[Verhagen, Laurel A]

Hi everyone,

Here's a link to notes for the hackathon: 
https://docs.google.com/document/d/1my_DK394M70TFBPpAJcaVocPQL9Ber5j4Wcku4OaEvo/edit?usp=sharing

If you have issues with editing, let me know.

Thanks,
Laurel

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RE: GPC PBS Table 1 - Data Checks Requested

[Verhagen, Laurel A]

These are separate questions regarding the Study Specific Data Characterization 
for the Bariatric study.

Marshfield investigated and provided a response to David and Jane on 12/28. We 
were flagged for item 82 - 'high smoking diagnosis at baseline' and item 83 - 
'high psychotic disorder diagnosis at baseline.'

Thanks,
Laurel

From: Gpc-dev [mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Melody 
Bell
Sent: Monday, January 02, 2017 11:44 AM
To: Dan Connolly
Cc: gpc-dev@listserv.kumc.edu
Subject: Re: GPC PBS Table 1 - Data Checks Requested

Hello Dan and Russ,

Phillip submitted the complete CDM report for UTSW on Friday, please let us 
know if you have questions.

Thank you & Happy New Year
Melody

Melody G. Bell

On Jan 2, 2017, at 10:34 AM, Dan Connolly 
mailto:dconno...@kumc.edu>> wrote:
Russ, do you have what you need from Marshfield, UTSW and UIOWA?

Those are the sites that were outstanding as of the 20 Dec gpc-dev call.

--
Dan

From: Dan Connolly
Sent: Tuesday, December 20, 2016 1:38 PM
To: Buzalko, Russell J; 
gpc-dev@listserv.kumc.edu; Phillip Reeder
Subject: RE: GPC PBS Table 1 - Data Checks Requested
Phillip and company, what's the status at UTSW on this?

--
Dan

From: Gpc-dev 
[gpc-dev-boun...@listserv.kumc.edu] 
on behalf of Buzalko, Russell J 
[russell.buza...@unmc.edu]
Sent: Monday, December 12, 2016 10:28 AM
To: gpc-dev@listserv.kumc.edu
Subject: FW: GPC PBS Table 1 - Data Checks Requested
For GPC Bariatric Surgery Study Sites:

Please see the request from Dave Arterburn with a suspense date of December 
30th.

Sorry for the blast email.

Thank you,

Russ

Russell J. Buzalko, Ph.D.
Assistant Professor
UNMC Department of Emergency Medicine
402.559.6687

From: Arterburn, David [mailto:arterbur...@ghc.org]
Sent: Monday, December 12, 2016 6:28 AM
To: McClay, James C mailto:jmcc...@unmc.edu>>; 
bzscho...@kumc.edu; Buzalko, Russell J 
mailto:russell.buza...@unmc.edu>>
Cc: Anau, Jane mailto:ana...@ghc.org>>; 
mct...@upmc.edu; Pardee, Roy 
mailto:parde...@ghc.org>>; Sturtevant, Jessica 
mailto:jessica_sturtev...@harvardpilgrim.org>>;
 Horgan, Casie 
(casie_hor...@harvardpilgrim.org) 
mailto:casie_hor...@harvardpilgrim.org>>
Subject: GPC PBS Table 1 - Data Checks Requested

Dear GPC team,

Attached you will find detailed Table 1 data for GPC sites in the PBS Aim 1 
individual-level query.  Adult and adolescent results are on two separate tabs; 
results that appear to be outliers (as compared to other sites' results) are 
highlighted red.  These are also summarized in the "DataChecks-Summary" tab.  
These items should be double-checked and any information you have sent back to 
Jane and I by December 30, 2016.

Please let me know if you have any questions. Thanks,

--David

David Arterburn, MD, MPH, FACP
SENIOR INVESTIGATOR | Group Health Research Institute
GENERAL INTERNAL MEDICINE | Group Health Physicians
AFFILIATE PROFESSOR | Department of Medicine | University of Washington
PHONE 206-287-4610
APPOINTMENTS 206-287-2095 OR s...@ghc.org
FAX 206-287-2871
E-MAIL arterbur...@ghc.org
www.grouphealthresearch.org
Metropolitan Park East
1730 Minor Avenue, Ste. 1600
Seattle, WA 98101




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RE: PopMedNet MDQ with Oracle SID

[Verhagen, Laurel A]

Hi Jim,

I can't speak for other sites, but with Marshfield there wasn't concern about 
connecting the DataMart Client to our CDM database. We have a similar 
connection in place/previously approved for Sentinel "Summary Requests."

Setting it up for MS SQL server was straight-forward. We just created a custom 
local account with access to the 'PopMedNet' database on the server with the 
appropriate port. This is something that our team could add; we didn't need to 
work through administrators.

Sorry to not be more help!

Thanks,
Laurel

From: McClay, James C [mailto:jmcc...@unmc.edu]
Sent: Wednesday, December 21, 2016 10:43 AM
To: Verhagen, Laurel A; Dan Connolly; Tim Meyer
Cc: GPC-DEV@LISTSERV.KUMC.EDU
Subject: RE: PopMedNet MDQ with Oracle SID

Thanks Laurel,
If everyone else already completed the MDQ. What is the special sauce to make 
it work? Did everyone else have any concerns about linking to their database 
server?

Jim

James McClay, MD
jmcc...@unmc.edu<mailto:jmcc...@unmc.edu>
402-559-3587

From: Verhagen, Laurel A [mailto:verhagen.lau...@mcrf.mfldclin.edu]
Sent: Wednesday, December 21, 2016 10:26 AM
To: Dan Connolly mailto:dconno...@kumc.edu>>; Tim Meyer 
mailto:meye0...@umn.edu>>; McClay, James C 
mailto:jmcc...@unmc.edu>>
Cc: GPC-DEV@LISTSERV.KUMC.EDU<mailto:GPC-DEV@LISTSERV.KUMC.EDU>
Subject: RE: PopMedNet MDQ with Oracle SID

Hi Dan,

The Menu-Drive Query that is due today (12/21) was only distributed to Group 2 
sites that did not complete the MDQ during cycle 1. KUMC does not need to take 
any action.

Thanks,
Laurel

From: Gpc-dev [mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Dan 
Connolly
Sent: Wednesday, December 21, 2016 10:13 AM
To: Tim Meyer; McClay, James C
Cc: GPC-DEV@LISTSERV.KUMC.EDU<mailto:GPC-DEV@LISTSERV.KUMC.EDU>
Subject: RE: PopMedNet MDQ with Oracle SID

As far as I know, KUMC hasn't started on this menu-driven-query stuff. Were we 
supposed to? Did I miss a clue?

--
Dan

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RE: PopMedNet MDQ with Oracle SID

[Verhagen, Laurel A]

Hi Dan,

The Menu-Drive Query that is due today (12/21) was only distributed to Group 2 
sites that did not complete the MDQ during cycle 1. KUMC does not need to take 
any action.

Thanks,
Laurel

From: Gpc-dev [mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Dan 
Connolly
Sent: Wednesday, December 21, 2016 10:13 AM
To: Tim Meyer; McClay, James C
Cc: GPC-DEV@LISTSERV.KUMC.EDU
Subject: RE: PopMedNet MDQ with Oracle SID

As far as I know, KUMC hasn't started on this menu-driven-query stuff. Were we 
supposed to? Did I miss a clue?

--
Dan

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RE: which sites have payer data?

[Verhagen, Laurel A]

Marshfield hasn’t had a use case to load insurance coverage into i2b2. Are 
there definitions to align insurance carriers with the categories listed by 
Alex? Dan alludes to this being part of visit details. That’s a cleaner 
approach than trying to establish eligibility windows, which is what we do with 
other collaborations, like the HCSRN (Health Care Systems Research Network, 
previously HMORN).


Because we’re not participating in NEXT-D, Marshfield has tabled work with 
geocode data. We’re assisting to integrate geocoding data into our main data 
warehouse. Once available, we’ll build out our ETL to populate i2b2 following 
whatever standard GPC establishes.

Thanks,
Laurel

From: gpc-dev-boun...@listserv.kumc.edu 
[mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Dan Connolly
Sent: Monday, October 24, 2016 4:09 PM
To: Alex Bokov; gpc-dev@listserv.kumc.edu
Cc: 'Hanrahan Larry P'; Ann Davis
Subject: RE: which sites have payer data?

Reviewing our 
babel
 terms and counts, I see KUMC has Primary Payer and Secondary Payer under UHC 
visit details. That's only for inpatient visits.

Perhaps the data for other visits is in Epic somewhere. Our ETL development 
calendar is pretty full thru January or February.

--
Dan

From: Dan Connolly
Sent: Monday, October 24, 2016 4:02 PM
To: Alex Bokov; gpc-dev@listserv.kumc.edu
Cc: 'Hanrahan Larry P'; Ann Davis
Subject: which sites have payer data?
Who has payer data?

Let's start the discussion in email.

Actually, this info should be on babel; what do you find when you look there?


--
Dan

From: 
gpc-dev-boun...@listserv.kumc.edu 
[gpc-dev-boun...@listserv.kumc.edu] on behalf of Alex Bokov [bo...@uthscsa.edu]
Sent: Monday, October 24, 2016 3:46 PM
To: gpc-dev@listserv.kumc.edu
Cc: 'Hanrahan Larry P'; Ann Davis
Subject: Re: gpc-dev 25 Oct agenda and meeting notes

If it's not too late, I would like to add these questions that came from the 
Obesity paper-writing group (v2.0):

  1.  To do a verbal poll of each site during the call to see if who has payer 
data in their i2b2 
(Medicare/Medicaid/BCBS/Self-Pay/Commercial/Government/Contract/Other), and how 
feasible it would be for each site which does not, to get it into their i2b2.
  2.  To find out how close we are to linking median income, education 
attained, family size, and poverty rate from the census data to patients based 
on their geocodes.
  3.  How long each site thinks it would take them to pull these data elements 
corresponding to the patients for which they originally submitted databuilder 
files.

Can that fit on tomorrow's agenda? Thanks.



-- Alex




Alex F. Bokov, Ph.D. Clinical Informatics Research Division UT Health Science 
Center at San Antonio
On 10/24/2016 10:54 AM, Dan Connolly wrote:
What else for tomorrow?

  *   gpc-dev 25 Oct shared 
notes;
 scribe: CMH
current snapshot:




1.Convene, take roll, review records and plan next meeting

a.​Meeting ID and access code: 
817-393-381;
 call +1 (571) 317-3131

b.roll: all 
12DevTeams
 represented? KUMC, CMH, UIOWA, WISC, MCW, MCRF, UMN, UNMC, UTHSCSA, UTSW, MU, 
IU
Reminder - put institution after your name in GoToMeeting preferences

  i.today's scribe: 
CMH

c.comments on the agenda? On last week’s notes? No. 
(#12

RE: pandas for Breast Cancer data manipulation: confirm installation

[Verhagen, Laurel A]

Dan,

Is there any approved  workaround? While the installation process may be quick, 
 I need to get approval for click agreements prior to install.

Thanks,
Laurel

From: gpc-dev-boun...@listserv.kumc.edu 
[mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Dan Connolly
Sent: Friday, September 30, 2016 10:52 AM
To: 
Subject: pandas for Breast Cancer data manipulation: confirm installation

For the 8 sites participating in the breast cancer data collection, please 
install 
pandas
 (if you have not already) and confirm that you can read and write relevant CSV 
files, e.g. your cohort with a study_id column:

import pandas as pd
cohort = pd.read_csv("my_cohort.csv")
print len(cohort)

Please confirm by making a note in #297 collect breast cancer data from GPC 
sites
 or by email to me and/or gpc-dev.

I estimate installation should take 10 minutes or less. If it's not working 
after 15 minutes, let me know and I'll figure something out.

References:

  *   GPC Breast Cancer Second Data 
Pull
  *   #214 breast cancer linked study database available for 
analysis
--
Dan

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RE: Locked out of DataMart Client

[Verhagen, Laurel A]

Hi George, 

Use this email for technical support questions related to your account: 
pcornet...@popmednet.org

Thanks, 
Laurel

-Original Message-
From: gpc-dev-boun...@listserv.kumc.edu 
[mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Kowalski, George
Sent: Wednesday, August 10, 2016 2:32 PM
To: gpc-dev@listserv.kumc.edu
Subject: Locked out of DataMart Client

Anyone know whom to contact  support to unlock my account for the datamart 
client  ?

I tried supp...@popmednet.org

They referred me to h...@pcornet.org . No answer from 
them and we have results to return .

Thanks

G


George Kowalski
Biomedical Informatics Software Engineer Clinical & Translational Science 
Institute Medical College of Wisconsin
9200 West Wisconsin Avenue, Suite L722A
Milwaukee, Wisconsin USA 53226
 414.805.7318 (office) / gkowal...@mcw.edu

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RE: GPC DEID Data Request: Immunoglobulin G Levels and the pattern of infection

[Verhagen, Laurel A]

Hi all,

UNMC – thanks so much for your assistance in this discussion.

I think at this point, direction should be coming from the requestor and/or 
KUMC, as the facilitator of the requests. A main question that has not been 
addressed is whether sites are allowed to localize the query. Again the 
specifications appear to be vague and the babel example seems to be incorrect, 
based on Jim Campbell’s review.

Have any other DROC-approved sites (KUMC, IU, UIOWA, MCW, Marshfield, MU, UNMC, 
UTHSCSA) submitted data for this request? If so, how did you address the Ig G 
requirement?

Thanks,
Laurel

From: Campbell, Walter S [mailto:wcamp...@unmc.edu]
Sent: Thursday, July 07, 2016 10:51 AM
To: Campbell, James R; Verhagen, Laurel A
Cc: Sravani Chandaka (schand...@kumc.edu); Tamara McMahon; 
gpc-dev@listserv.kumc.edu; Gardner, Bret J; McClay, James C
Subject: RE: GPC DEID Data Request: Immunoglobulin G Levels and the pattern of 
infection

Hi Laurel,
I am out this week, as well.  How quickly do you need this information?  I can 
get it to you on Monday if that is not too late.  Otherwise, I can task one of 
the "minions" to get it sooner.

Please advise.

W. Scott Campbell, PhD, MBA
Assistant Professor
Director of Public Health Laboratory Informatics and
Pathology Laboratory Informatics
Department of Pathology/Microbiology
University of Nebraska Medical Center
985900 Nebraska Medical Center
Omaha NE  68198-5900
402-559-9593 (office)
402-350-7851 (mobile)

From: Campbell, James R
Sent: Wednesday, July 06, 2016 2:34 PM
To: Verhagen, Laurel A; Campbell, Walter S
Cc: Sravani Chandaka (schand...@kumc.edu<mailto:schand...@kumc.edu>); Tamara 
McMahon; gpc-dev@listserv.kumc.edu<mailto:gpc-dev@listserv.kumc.edu>; Gardner, 
Bret J; McClay, James C
Subject: Re: GPC DEID Data Request: Immunoglobulin G Levels and the pattern of 
infection
Laurel
Glad to do so!  I am looking out over Loch Ness on a fair Scottish eve as I 
type and so am directing Scott Campbell to organize the UNMC minions and send a 
list of LOINC codes that would be appropriate to the query.  I have no RELMA 
access in my current situation but would otherwise be happy to reply.

Scott, please work with Bret and Jay to prepare a value set for Laurel and 
GPC-DEV to use for this query.
Jim

James R. Campbell MD
campb...@unmc.edu<mailto:campb...@unmc.edu>
Office: 402-559-7505
Secretary: 402-559-7299
Pager: 402-888-1230

On Jul 6, 2016, at 12:34 PM, Verhagen, Laurel A 
mailto:verhagen.lau...@mcrf.mfldclin.edu>> 
wrote:
Jim,

Thanks for your expertise! Is it possible to share the LOINC codes used at UNMC 
for this request?

Laurel

From: Campbell, James R [mailto:campb...@unmc.edu]
Sent: Wednesday, July 06, 2016 12:01 PM
To: Verhagen, Laurel A
Cc: Sravani Chandaka (schand...@kumc.edu<mailto:schand...@kumc.edu>); Tamara 
McMahon; gpc-dev@listserv.kumc.edu<mailto:gpc-dev@listserv.kumc.edu>
Subject: Re: GPC DEID Data Request: Immunoglobulin G Levels and the pattern of 
infection

Laurel
The LOINC parts code (LP14672-2) is only valid as a defining 'atom' in LOINC 
and should be ignored for retrieving valid IgG levels from your lab data.  I 
assume this was a simple misinterpretation of the meaning of the LOINC part.
Jim

James R. Campbell MD
campb...@unmc.edu<mailto:campb...@unmc.edu>
Office: 402-559-7505
Secretary: 402-559-7299
Pager: 402-888-1230

On Jul 5, 2016, at 4:24 PM, Verhagen, Laurel A 
mailto:verhagen.lau...@mcrf.mfldclin.edu>> 
wrote:
Hi Sravani and Tamara,

I’m wondering if one of you can help answer a question related to the PI 
CONNECT query.

The Cohort definition doesn’t specify coding for the IgG levels. Marshfield 
doesn’t populate LP14672-7, which is used in the sample query on babel.

Is it appropriate to substitute another test? If so, does the PI want to 
provide a list of approved codes or can this be localized without PI 
involvement?

I do have data for LOINC 
2465-3<https://urldefense.proofpoint.com/v2/url?u=http-3A__s.details.loinc.org_LOINC_2465-2D3.html-3Fsections-3DComprehensive&d=CwMGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrbqse0CnDMUgS4P3-3HOTSAwE8Vfvoc1Wm0NCYFbuU-_5&m=K46w4rQwaUJuGxCIYEtVubiGOtWo53CRIGSeaPr-Ftw&s=ocg6T0ZpCjvNLbTsVKIRadFm-9n4_0LyZyDIiRV_36Q&e=>
  IgG [Mass/​volume] in Serum or Plasma, as well as several panels that contain 
the component:

MEMBER OF THESE PANELS
   34550-4Immunoglobulin panel [Mass/​volume] - 
Serum
   47289-4IgG and IgG subclass panel [Mass/​volume] 
- Serum
   55121-8Multiple sclerosis panel - Serum and CSF
   55295-0Protein electrophoresis and 
Immunoglobulins panel - Serum

We also have a couple of CPT codes that might be relevant – 82784, 82787.

Looking for guidance on how to proceed—or whether Marshfield would be out, 
bec

RE: GPC DEID Data Request: Immunoglobulin G Levels and the pattern of infection

[Verhagen, Laurel A]

Jim,

Thanks for your expertise! Is it possible to share the LOINC codes used at UNMC 
for this request?

Laurel

From: Campbell, James R [mailto:campb...@unmc.edu]
Sent: Wednesday, July 06, 2016 12:01 PM
To: Verhagen, Laurel A
Cc: Sravani Chandaka (schand...@kumc.edu); Tamara McMahon; 
gpc-dev@listserv.kumc.edu
Subject: Re: GPC DEID Data Request: Immunoglobulin G Levels and the pattern of 
infection

Laurel
The LOINC parts code (LP14672-2) is only valid as a defining 'atom' in LOINC 
and should be ignored for retrieving valid IgG levels from your lab data.  I 
assume this was a simple misinterpretation of the meaning of the LOINC part.
Jim

James R. Campbell MD
campb...@unmc.edu<mailto:campb...@unmc.edu>
Office: 402-559-7505
Secretary: 402-559-7299
Pager: 402-888-1230

On Jul 5, 2016, at 4:24 PM, Verhagen, Laurel A 
mailto:verhagen.lau...@mcrf.mfldclin.edu>> 
wrote:
Hi Sravani and Tamara,

I’m wondering if one of you can help answer a question related to the PI 
CONNECT query.

The Cohort definition doesn’t specify coding for the IgG levels. Marshfield 
doesn’t populate LP14672-7, which is used in the sample query on babel.

Is it appropriate to substitute another test? If so, does the PI want to 
provide a list of approved codes or can this be localized without PI 
involvement?

I do have data for LOINC 
2465-3<https://urldefense.proofpoint.com/v2/url?u=http-3A__s.details.loinc.org_LOINC_2465-2D3.html-3Fsections-3DComprehensive&d=CwMGaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrbqse0CnDMUgS4P3-3HOTSAwE8Vfvoc1Wm0NCYFbuU-_5&m=K46w4rQwaUJuGxCIYEtVubiGOtWo53CRIGSeaPr-Ftw&s=ocg6T0ZpCjvNLbTsVKIRadFm-9n4_0LyZyDIiRV_36Q&e=>
  IgG [Mass/​volume] in Serum or Plasma, as well as several panels that contain 
the component:

MEMBER OF THESE PANELS
   34550-4Immunoglobulin panel [Mass/​volume] - 
Serum
   47289-4IgG and IgG subclass panel [Mass/​volume] 
- Serum
   55121-8Multiple sclerosis panel - Serum and CSF
   55295-0Protein electrophoresis and 
Immunoglobulins panel - Serum

We also have a couple of CPT codes that might be relevant – 82784, 82787.

Looking for guidance on how to proceed—or whether Marshfield would be out, 
because we’re missing LP14672-7.

Thanks,
Laurel

From: 
gpc-honest-brokers-boun...@listserv.kumc.edu<mailto:gpc-honest-brokers-boun...@listserv.kumc.edu>
 [mailto:gpc-honest-brokers-boun...@listserv.kumc.edu] On Behalf Of Tamara 
McMahon
Sent: Friday, June 17, 2016 1:54 PM
To: 
gpc-honest-brok...@listserv.kumc.edu<mailto:gpc-honest-brok...@listserv.kumc.edu>;
 gpc-dev@listserv.kumc.edu<mailto:gpc-dev@listserv.kumc.edu>
Subject: GPC DEID Data Request: Immunoglobulin G Levels and the pattern of 
infection

All,

The GPC received a de-identified data request from Dr. Kate Sullivan of the 
PI-CONNECT PPRN.  This query contains labs and diagnosis (ICD-9 codes).  The 
query is located on Babel at Shared\PI-Connect\PIConnect[6-17-2016].   Attached 
is a description of the search and output criteria.  The stratification does 
not need to be included in the query.

Data files should be created using the data builder. You can read about the 
data builder output and how it is 
made<https://urldefense.proofpoint.com/v2/url?u=https-3A__informatics.gpcnetwork.org_trac_Project_wiki_BuilderSaga-23builder-2Dsql-2Dguide&d=CwMFAg&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrbqse0CnDMUgS4P3-3HOTSAwE8Vfvoc1Wm0NCYFbuU-_5&m=1s3q4ZJyND4-iDjqR8VdH3Q5iMWtjrMQmY0D8x20n1A&s=g2vp7MaK6nOY0kvXVBsVaiC0zWtpZ5XEPpL6CVHAqFc&e=>
 and about the data 
summary<https://urldefense.proofpoint.com/v2/url?u=https-3A__informatics.gpcnetwork.org_trac_Project_wiki_BuilderSaga-23DataSummary&d=CwMFAg&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrbqse0CnDMUgS4P3-3HOTSAwE8Vfvoc1Wm0NCYFbuU-_5&m=1s3q4ZJyND4-iDjqR8VdH3Q5iMWtjrMQmY0D8x20n1A&s=coDOqgi-3PrCK_xu38j5D9EZvZtg0VNiIOIXpPSWtHs&e=>.

Submit the data via this 
survey<https://urldefense.proofpoint.com/v2/url?u=https-3A__redcap.gpcnetwork.org_surveys_-3Fs-3DN9MEMP84HX&d=CwMFAg&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrbqse0CnDMUgS4P3-3HOTSAwE8Vfvoc1Wm0NCYFbuU-_5&m=1s3q4ZJyND4-iDjqR8VdH3Q5iMWtjrMQmY0D8x20n1A&s=mzY4n_a86rCyjUkVkfh3f5FJPAe4HS3OY3KfQOQf83Q&e=>.

Note: I am unavailable next week but will be on the GPC-Dev call 6/28 to 
discuss any questions about this query or data request.

The following institutions have DROC approval and can submit their data at any 
time.

KUMC
Indiana
Iowa
MCW
Marshfield
Missouri
Nebraska
UTHSC-SA

The following sites do not have DROC approval yet.  Please do not submit until 
approval is in place for your institution.

Minnesota
UTSW
Wisconsin

The following sites are not required to ru

RE: GPC DEID Data Request: Immunoglobulin G Levels and the pattern of infection

[Verhagen, Laurel A]

Hi Sravani and Tamara,

I’m wondering if one of you can help answer a question related to the PI 
CONNECT query.

The Cohort definition doesn’t specify coding for the IgG levels. Marshfield 
doesn’t populate LP14672-7, which is used in the sample query on babel.

Is it appropriate to substitute another test? If so, does the PI want to 
provide a list of approved codes or can this be localized without PI 
involvement?

I do have data for LOINC 
2465-3  
IgG [Mass/​volume] in Serum or Plasma, as well as several panels that contain 
the component:

MEMBER OF THESE PANELS
   34550-4Immunoglobulin panel [Mass/​volume] - 
Serum
   47289-4IgG and IgG subclass panel [Mass/​volume] 
- Serum
   55121-8Multiple sclerosis panel - Serum and CSF
   55295-0Protein electrophoresis and 
Immunoglobulins panel - Serum

We also have a couple of CPT codes that might be relevant – 82784, 82787.

Looking for guidance on how to proceed—or whether Marshfield would be out, 
because we’re missing LP14672-7.

Thanks,
Laurel

From: gpc-honest-brokers-boun...@listserv.kumc.edu 
[mailto:gpc-honest-brokers-boun...@listserv.kumc.edu] On Behalf Of Tamara 
McMahon
Sent: Friday, June 17, 2016 1:54 PM
To: gpc-honest-brok...@listserv.kumc.edu; gpc-dev@listserv.kumc.edu
Subject: GPC DEID Data Request: Immunoglobulin G Levels and the pattern of 
infection

All,

The GPC received a de-identified data request from Dr. Kate Sullivan of the 
PI-CONNECT PPRN.  This query contains labs and diagnosis (ICD-9 codes).  The 
query is located on Babel at Shared\PI-Connect\PIConnect[6-17-2016].   Attached 
is a description of the search and output criteria.  The stratification does 
not need to be included in the query.

Data files should be created using the data builder. You can read about the 
data builder output and how it is 
made
 and about the data 
summary.

Submit the data via this 
survey.

Note: I am unavailable next week but will be on the GPC-Dev call 6/28 to 
discuss any questions about this query or data request.

The following institutions have DROC approval and can submit their data at any 
time.

KUMC
Indiana
Iowa
MCW
Marshfield
Missouri
Nebraska
UTHSC-SA

The following sites do not have DROC approval yet.  Please do not submit until 
approval is in place for your institution.

Minnesota
UTSW
Wisconsin

The following sites are not required to run the query.

CMH

Each site that provides data will be reimbursed $500.

Regards,
Tamara McMahon
Director, Engineering & Product Experience
Medical Informatics, University of Kansas Medical Center


__
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RE: UNMC Breast Cancer cohort consented patients -- how to send CDMV3 info for procedures,etc?

[Verhagen, Laurel A]

Hi Jay,

Ticket #448, comment 
30 
includes a link to the survey for submitting your 
data<*?survey:%20diagnoses%20and%20procedures%20for%20consented%20Breast%20Cancer%20Study%20patients>.
 I found most of the specifics on the REDCap survey. For Marshfield, I created 
a zip file with two csvs - one for diagnoses and one for procedures.

If these have been reviewed or require revision, I haven't heard it yet...

Thanks,
Laurel

From: gpc-dev-boun...@listserv.kumc.edu 
[mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Pedersen, Jay G
Sent: Friday, June 24, 2016 11:19 AM
To: gpc-dev@listserv.kumc.edu
Subject: UNMC Breast Cancer cohort consented patients -- how to send CDMV3 info 
for procedures,etc?

Hi,

I need a bit of direction.

Per the GPC meeting discussion on obtaining information on 
procedures,conditions,diagnoses from the CDMV3 table for consented patients in 
the breast cancer cohort ...

UNMC personnel have extracted this information into an Excel spreadsheet with 3 
sheets for procedures, conditions, diagnoses.  However, I am uncertain of the 
format that is being requested (is an xlsx spreadsheet file good enough?) and 
how to go about submitting the information.  The only thing I know is that it 
is to be sent to Betsy, and I am not sure how to go about that.

Can anyone point me to appropriate information?  I have not found the 
information in ticket #448.

Jay Pedersen, M.A.
Department of Pathology/Microbiology
University of Nebraska Medical Center
985900 Nebraska Medical Center
Omaha NE  68198-5900
402-559-9487 (office)
402-739-3496 (mobile)

The information in this e-mail may be privileged and confidential, intended 
only for the use of the addressee(s) above. Any unauthorized use or disclosure 
of this information is prohibited. If you have received this e-mail by mistake, 
please delete it and immediately contact the sender.

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gpc-dev 21 Jun agenda and meeting notes

[Verhagen, Laurel A]

Hi all,

Below find the agenda for the gpc-dev call tomorrow at 11:00 a.m. Central.


· gpc-dev 21 June shared 
notes;
 scribe: UTHSCSA

If you have questions or additions, please let me know.

Thanks,
Laurel
--
https://docs.google.com/document/d/1xpAhMCD-y5or8vOQ_bDnQfnVRdh6N4bdSmzmnWw1nEQ/edit

1.Convene, take roll, review records and plan next meeting
a.​Meeting ID and access code: 
817-393-381; call +1 
(571) 317-3131
b.roll: all 12 
DevTeams 
represented? KUMC, CMH, UIOWA, WISC, MCW, MCRF, UMN, UNMC, UTHSCSA, UTSW, MU, IU
Reminder - put institution after your name in GoToMeeting preferences
otoday's scribe: UTHSCSA
c.comments on the agenda? on last week’s notes 
(#12)?
d.Next Meeting: 28 June; scribe?
oNote LRU 
schedule, 
which nominates UIOWA, WISC, ??
e.Recent tickets 
opened/closed - FYI
o#103 subject 
of observation (e.g. maternal findings relevant to 
child) closed 
wontfix
o#513 ~3% 
missing breast-cancer diagnosis data due to opt-out at 
UMN
f. GPC Feasibility Queries - FYI
oNational Diabetes Amputation/LEA
· Participating sites: UTSW, IU, MIZZOU, and MCW
· Issue reported by Dan Hood (IU/Regenstrief) - resolution on DROC call?
· Survey to submit 
results - DUE 6/28/19
oImmunoglobulin G Levels and the pattern of 
infection
· De-identified Data Builder file - $500 reimbursement
· Sites approved by DROC: KUMC, IU, UIOWA, MCW, Marshfield, MU, UNMC, 
UTHSCSA; not yet approved by DROC: UMN, UTSW, WISC
· Due date?
2.Obesity Trial updates
a.#489 
antibiotic study post-award 
processes
oDC: to invite Dan Hale to join a gpc-dev call in an effort to close some 
gaps between us and the ABX study. 8 June 
invitation
oAttachment Study 
Protocol_ABX_updated_3.8.2016.doc​
 added to #492
b.#514 JM to 
discuss with bariatric study developers to see if we can get away without 
RX_DAYS_SUPPLY.
3.Breast Cancer Cohort - 
Milestone:cohort-char-bc-db
 due 5 Sep
a.#448 all 
diagnoses and procedures for breast cancer 
cohort
oDUE 6/20/16 - later for 1C sites.
oKUMC,
oVolunteer to go next?
b.#358 NAACCR 
ETL: update all sites to include summary of treatment 
etc.
ohow many sites can we get started? How many can we get all the way to 
babel?
· Done: KUMC, UIOWA, UMN
· UTSW - Phillip will verify; should be done.
· MCW/George - need to work on this; didn’t use KU code.
o#169 (MCW cancer tumor registry terms out of date on GPC term sharing 
service ...) 
reopened
4.ADAPTABLE update
a.#353 accrue 
first patient to ADAPTABLE 
study
b.Any news?
5.Geocoding (next-d)
a.#509 (geocoding ETL code: establish shared version control 
repository)
b.13 Jun update: https://github.com/mcneeleyta/i2b2
6.
Milestone:data-domains3
 new DCQ
a.#473 PCORnet 
CDMv3 SAS prep-to-research 
Readiness; DUE 
6/24/16
oSite check - any issues?
· KUMC - pass
· CMH - done, per 6/14?
· UIOWA -
· WISC -
· MCW - pass
· MCRF - waiting on DUA, per 6/14?
· UMN -
·

RE: CDM v3 procedures/encounter EPIC installations

[Verhagen, Laurel A]

For now, as long as we have an explanation for "deviating" from expectations, 
I'm more concerned with building out additional CDM tables to prepare for the 
second round of Data Characterization queries (this summer)... rather than 
addressing the Encounter domain.

Others may disagree on that approach?

Thanks,
Laurel

From: Debbie Yoshihara [mailto:dlyos...@wisc.edu]
Sent: Friday, June 10, 2016 11:26 AM
To: Verhagen, Laurel A; 'gpc-dev@listserv.kumc.edu'
Subject: Re: CDM v3 procedures/encounter EPIC installations


Thanks Laurel for your insight!

Sounds like leaving things as they are and explaining things in the ADD is the 
way to go.



 Debbie Yoshihara

________
From: Verhagen, Laurel A 
mailto:verhagen.lau...@mcrf.mfldclin.edu>>
Sent: Friday, June 10, 2016 11:09:57 AM
To: Debbie Yoshihara; 'gpc-dev@listserv.kumc.edu'
Subject: RE: CDM v3 procedures/encounter EPIC installations

Hi Debbie,

Marshfield isn't an Epic site, but I can tell you that our approach from the 
beginning was to artificially create encounters based on patient, date, 
provider, place of service - rather than trying to pull events, which we've 
found on other projects/network collaborations to generate noise.

We've discussed this with the coordinating center as part of our Data 
Characterization review. Their direction is that for the CDM every encounter 
should be a patient-provider interaction. Our numbers were inflated by things 
like demographics records. Our ratio of procedures to encounters was further 
thrown off by our Dental records, because our CDT dental procedures don't count 
for their analysis.

>From what I've seen, encounter definition is one of the items that requires 
>guidance/recommendations at the DRN OC/coordinating center level. For that 
>reason, we haven't made any adjustments yet (but we are open to doing so).

I'm not sure if this is helpful, but it's our experience... If you have any 
questions, please let me know.

Thanks,
Laurel

From: 
gpc-dev-boun...@listserv.kumc.edu<mailto:gpc-dev-boun...@listserv.kumc.edu> 
[mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Debbie Yoshihara
Sent: Friday, June 10, 2016 10:59 AM
To: 'gpc-dev@listserv.kumc.edu'
Subject: CDM v3 procedures/encounter EPIC installations


Hi,



We've noticed that we have a lot of procedures but they are not tied to any 
encounters in EPIC.

So our PX/Encounter is very low.



What did other GPC sites do about this?

1) Leave it as it is

2) Tie procedures to encounters using dates

3) Other



We were going to leave it as it is, but if other sites had some way of 
associating procedures

to encounters, we'd like to try it.



Thanks,

Debbie Yoshihara


The contents of this message may contain private, protected and/or privileged 
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e-mail message and any attachments or copies, and you are prohibited from 
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Please contact the sender and advise of the erroneous delivery by return e-mail 
or telephone. Thank you for your cooperation.

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retaining, distributing, disclosing or using any information contained within.  
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RE: CDM v3 procedures/encounter EPIC installations

[Verhagen, Laurel A]

Hi Debbie,

Marshfield isn't an Epic site, but I can tell you that our approach from the 
beginning was to artificially create encounters based on patient, date, 
provider, place of service - rather than trying to pull events, which we've 
found on other projects/network collaborations to generate noise.

We've discussed this with the coordinating center as part of our Data 
Characterization review. Their direction is that for the CDM every encounter 
should be a patient-provider interaction. Our numbers were inflated by things 
like demographics records. Our ratio of procedures to encounters was further 
thrown off by our Dental records, because our CDT dental procedures don't count 
for their analysis.

>From what I've seen, encounter definition is one of the items that requires 
>guidance/recommendations at the DRN OC/coordinating center level. For that 
>reason, we haven't made any adjustments yet (but we are open to doing so).

I'm not sure if this is helpful, but it's our experience... If you have any 
questions, please let me know.

Thanks,
Laurel

From: gpc-dev-boun...@listserv.kumc.edu 
[mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Debbie Yoshihara
Sent: Friday, June 10, 2016 10:59 AM
To: 'gpc-dev@listserv.kumc.edu'
Subject: CDM v3 procedures/encounter EPIC installations


Hi,



We've noticed that we have a lot of procedures but they are not tied to any 
encounters in EPIC.

So our PX/Encounter is very low.



What did other GPC sites do about this?

1) Leave it as it is

2) Tie procedures to encounters using dates

3) Other



We were going to leave it as it is, but if other sites had some way of 
associating procedures

to encounters, we'd like to try it.



Thanks,

Debbie Yoshihara

__
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retaining, distributing, disclosing or using any information contained within.  
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RE: PCORnet Menu-Driven Queries (MDQ) required?

[Verhagen, Laurel A]

Hi Dan,

Thanks for revisiting this! I did some digging and all I could find was a link 
to the Query FAQs<https://pcornet.imeetcentral.com/p/aQAB8FNh>. Menu-driven 
is the model for our other PMN networks. It does look to be optional for 
PCORnet. Sorry for the confusion.

Thanks,
Laurel

From: Dan Connolly [mailto:dconno...@kumc.edu]
Sent: Monday, May 02, 2016 1:29 PM
To: Verhagen, Laurel A
Cc: 
Subject: PCORnet Menu-Driven Queries (MDQ) required?

Laurel,

Last week, you said something along the lines of "Everyone will need to have 
popmednet v5.2". That was the first I had heard that this MDQ stuff might be 
required as opposed to opt-in. Can you provide background/context?

--
Dan

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RE: [gpc-informatics] #473: PCORnet CDMv3 SAS prep-to-research Readiness

[Verhagen, Laurel A]

Justin, 

The Diagnostic Query (DQ) shouldn't require the Annotated Data Dictionary... 
just the Data Characterization Query. Did James indicate otherwise?

Thanks, 
Laurel

-Original Message-
From: GPC Informatics [mailto:d...@madmode.com] 
Sent: Thursday, April 28, 2016 12:22 PM
To: bzscho...@kumc.edu; Verhagen, Laurel A; jd...@umn.edu; dconno...@kumc.edu; 
b...@uthscsa.edu; ngra...@kumc.edu; mprit...@kumc.edu; nate.apa...@cerner.com; 
mo...@health.missouri.edu; campb...@unmc.edu; kwa...@uwhealth.org; 
ashok.mudgapa...@unmc.edu; jmcc...@unmc.edu; m...@wisc.edu; 
jay.peder...@unmc.edu
Cc: gpc-dev@listserv.kumc.edu; darcy.lou...@duke.edu
Subject: Re: [gpc-informatics] #473: PCORnet CDMv3 SAS prep-to-research 
Readiness

#473: PCORnet CDMv3 SAS prep-to-research Readiness
-+
 Reporter:  bzschoche|   Owner:  lv
 Type:  enhancement  |  Status:  assigned
 Priority:  major|   Milestone:  data-domains3
Component:  data-stds|  Resolution:
 Keywords:   |  Blocked By:  381, 486
 Blocking:   |
-+

Comment (by jdale):

 UMN submitted the DQ results today (4/28/16) minus the ETL annotated data  
dictionary. In all the chaos of trying to get the query to run we  overlooked 
it.  We verified with James Topping from Duke it was ok to  submit the results 
right now and the ETL document when complete.

 Our previous issues were definitely related to writing the SAS temp files  to 
network storage vs local.  We increased the size of the local disk to  
accommodate the large SAS temp files and that made all the difference.

--
Ticket URL: 
<https://urldefense.proofpoint.com/v2/url?u=http-3A__informatics.gpcnetwork.org_trac_Project_ticket_473-23comment-3A55&d=BQICaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrbqse0CnDMUgS4P3-3HOTSAwE8Vfvoc1Wm0NCYFbuU-_5&m=0kO7xHBpQhRLAiWz9dsSQ3ypUjJXaihjed7X3XahWYA&s=Oze0gEDZPiTyLhGMxLzL9Si0_Z0HdI95qyeaZzWovN0&e=
 > gpc-informatics 
<https://urldefense.proofpoint.com/v2/url?u=http-3A__informatics.gpcnetwork.org_&d=BQICaQ&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrbqse0CnDMUgS4P3-3HOTSAwE8Vfvoc1Wm0NCYFbuU-_5&m=0kO7xHBpQhRLAiWz9dsSQ3ypUjJXaihjed7X3XahWYA&s=9Lon3fWbAi1nkYOw0iBP98r6jvRhcli72ak9KmLKp2Q&e=
 > Greater Plains Network - Informatics

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RE: SAS views for CDM v3 data characterization query

[Verhagen, Laurel A]

Late reply, but I wanted to mention that at Marshfield our exposure with Oracle 
is limited to a reconciliation process between our production data tables and 
our data warehouse (Netezza and supplemental MS SQL).

We have found that dates and times are not the most straight forward to format 
on Oracle. Generally speaking, we've always had to pull it down in SAS in order 
to manipulate.

Our work with this was mentioned on ticket 
#381:
One complexity is SAS wants numeric values for the time fields. Values 
containing a colon (HH:MM) are considered character fields. There didn't seem 
to be a good way to store this via SQL without a lookup table for joining HH:MM 
to a count of seconds after midnight. We adjusted this on the SAS Dataset(s).

Thanks,
Laurel

From: gpc-dev-boun...@listserv.kumc.edu 
[mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of French, Tony
Sent: Wednesday, April 13, 2016 2:55 PM
To: Michael Prittie; Wanta Keith M; GPC-DEV@LISTSERV.KUMC.EDU
Cc: Hood, Daniel Robert; Ring, Nate
Subject: RE: SAS views for CDM v3 data characterization query

Thanks everyone for your earlier replies!  They were all very helpful!

One other thing that I just noticed in the SCILHS Oracle code, as well as the 
KUMC fork, is that the times are being stored in 12 hour format (HH:MI).  I 
would have expected 24 hour format (HH24:MI).  In addition, I would have 
thought that the dates would have been truncated where the times are being 
stored separately.  That said, I've not found any definitive documentation to 
know for sure.

I'm guessing that most sites have already posted their results with the 12 hour 
format, so I'm going to go ahead and post our diagnostic query results now and 
hopefully post the characterization results by the end of the week. We'll then 
circle back to correct the 12/24 hour format later , if needed.


--Tony




From: Michael Prittie [mailto:mprit...@kumc.edu]
Sent: Wednesday, April 13, 2016 2:01 PM
To: French, Tony; Wanta Keith M; 
GPC-DEV@LISTSERV.KUMC.EDU
Cc: Ring, Nate; Hood, Daniel Robert
Subject: Re: SAS views for CDM v3 data characterization query

Hi Tony,
The data-step-views don't contain any of CDM data, they simply point to the 
original data source and define any data-type conversions to apply.  Originally 
we were running the DQ directly against our Oracle database, but keep coming up 
with data type complaints in the result PDF.  The data-step-views resolved 
these issues for us.  If you have any question about our data-step-view SAS 
code that we have up on GitHub let me know.  Angela Bos had put together an 
excellent set of instructions on configuring everything for the DQ using 
data-step-views.  If I can find them I'll forward them on.

Best,

Michael Prittie
Biomedical Informatics Software Engineer
Division of Medical Informatics
University of Kansas Medical Center

From: "French, Tony" mailto:adfre...@regenstrief.org>>
Date: Wednesday, April 13, 2016 at 12:37 PM
To: Michael Prittie mailto:mprit...@kumc.edu>>, Wanta Keith 
M mailto:kwa...@uwhealth.org>>, 
"GPC-DEV@LISTSERV.KUMC.EDU" 
mailto:GPC-DEV@LISTSERV.KUMC.EDU>>
Cc: "Ring, Nate" mailto:nar...@iupui.edu>>, "Hood, Daniel 
Robert" mailto:danh...@regenstrief.org>>
Subject: RE: SAS views for CDM v3 data characterization query

Michael and all,

We are stuck on the _TIME column conversions.  We are using Oracle and have 
those columns defined as varchar2(5) based on the RDBMS specs.  We have chosen 
to run SAS directly against Oracle, at least for now.  However, we are unclear 
on how to map the varchar2(5) columns to a format that SAS will automatically 
map to as  numeric.  I believe that's likely the exact purpose of the data step 
views that Michael mentioned below, correct?  Does the data step attempt to 
read the CDM V3 schema from oracle (oracdata) and then write the transformed 
data to the local file system as sasdata?

Has anyone had success at making the conversion using Oracle Views directly, so 
that the data isn't duplicated a third time?

We are exploring both approaches in parallel, but are not clear as to how to 
format the column(s) in Oracle (via  a view) so that SAS will make the correct 
transformation to numeric.



Thanks,
Tony



Tony French  |  Software Development Manager
   Tools and Shared Resources
   Center for Biomedical Informatics
[cid:image001.png@01D195A3.D4F8D460]
1101 West Tenth Street
Indianapolis, IN, 46202
Tel 317-274-9087 | Fax: 317-274-9305
Twitter: @Regenstrief  |  
Facebook.com/regenstriefinstitute

RE: gpc-dev agenda item for 3/8

[Verhagen, Laurel A]

Hi Brad,

MCRF is currently transitioning to CNExT from an internally-developed registry 
software. I'm still trying to get an updated timeline for this. Once the data 
conversion is complete, we're expecting a Transmit file (NAACCR output format) 
with all back data and to use the output files going forward.

Thanks,
Laurel

From: gpc-dev-boun...@listserv.kumc.edu 
[mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of McDowell, Bradley D
Sent: Thursday, March 03, 2016 11:08 AM
To: 
Subject: gpc-dev agenda item for 3/8

Our oncology registry uses the CNExT software, and we were wondering if other 
sites also use this tool. It would be helpful to know how other sites transfer 
data from that system to i2b2. Could we discuss this at the 3/8 dev group call?

Brad


Bradley D. McDowell, Ph.D.
Director, Population Research Core
Holden Comprehensive Cancer Center

5240 MERF | The University of Iowa | Iowa City, IA | 52242
Office: 319-384-1768

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RE: Issue with time fields in PCORnet SAS Diagnosis Query results

[Verhagen, Laurel A]

Hi Michael,

Excellent question! Unfortunately, I don't have a great answer for you. We 
chose to deviate from the CDM specification in order to get the queries to run. 
Our approach is included at the bottom of #381, comment 
8<https://informatics.gpcnetwork.org/trac/Project/ticket/381#comment:8>. Let me 
know if you'd like more information on that.

On the Annotated Data Dictionary (ADD) submitted with the Data Characterization 
query output, the Technical Infrastructure tab specifically asked:

"(4)   All SAS file distribution queries will assume that fields are specified 
as noted in the CDM documentation. This is especially important for fields 
specified as SAS time or SAS date types. What technical approach have you taken 
to enable you to run SAS file distribution queries against your DataMart?"

Similar to the Data Characterization work that UNMC completed in Phase 1 with 
PCORnet CDM v1, there will be a meeting to discuss the Empirical Data 
Characterization Report. (We expect that file this week!) I anticipate that we 
will discuss the time field question then.

Prior to that meeting, James might be able to provide better guidance?

Thanks,
Laurel

From: Michael Prittie [mailto:mprit...@kumc.edu]
Sent: Tuesday, March 01, 2016 3:15 PM
To: Verhagen, Laurel A; gpc-dev@listserv.kumc.edu
Subject: Issue with time fields in PCORnet SAS Diagnosis Query results

Hi Laurel,
As you might know we're working on our i2b2 to PCORnet CDMv3 ETL here at KUMC 
(based on the SCHILS transform).  While doing so, we ran into the same issues 
you listed in the ticket 
#381<https://urldefense.proofpoint.com/v2/url?u=https-3A__informatics.gpcnetwork.org_trac_Project_ticket_381-23comment-3A8&d=BQMF-g&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrbqse0CnDMUgS4P3-3HOTSAwE8Vfvoc1Wm0NCYFbuU-_5&m=ykKr2fa7LSaAU_3vxkT80bMIUVSGRh1fV0OuD4zInr8&s=DiqxhnsNP4e3f-KPk1e_2-SUbr_Ijmo0uYNNamNlELc&e=>.
  Most were simple enough to correct, with the exception of the time field 
errors.  The CDMv3 specification clearly states that time fields should be 5 
character text fields (i.e. "HH:MM"), but the SAS code seems to expect numeric 
fields.  Nathan and Dan suggested I reach out to you to see you handled this at 
Marshfield, and if you ever heard back from PCORI on this.

Thanks!

Michael Prittie
Biomedical Informatics Software Engineer
Division of Medical Informatics
University of Kansas Medical Center

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GPC - PCORnet Diagnostic Query

[Verhagen, Laurel A]

Hi everyone,

FYI - expect to be contacted to either: 1.)  confirm that you're ready for the 
SAS Diagnostic Query or 2.) provide an updated readiness date.

The below is an excerpt from the document James references.

DataMart

PCORnet Demo Project Participation

When do you plan to implement CDM v3.0 in SAS?

Jan 2016

Feb 2016

Mar 2016

Apr 2016

May 2016

June 2016

July 2016

ADAPTABLE 11/24/15 directory

Bariatric (grant submission)

Antibiotic (grant submission)

weeks 1 & 2

weeks 3 & 4

weeks 1 & 2

weeks 3 & 4

weeks 1 & 2

weeks 3 & 4

weeks 1 & 2

weeks 3 & 4

weeks 1 & 2

weeks 3 & 4

weeks 1 & 2

weeks 3 & 4

weeks 1 & 2

weeks 3 & 4

C4 GPC (U of Nebraska)

X

X



1/1/2016





























C4 GPC (UT San Antonio)

X

X

X

1/1/2016





























C4 GPC (UT SW Med Ctr)

X

X

X

1/1/2016





























C4 GPC (University of Kansas)

X

X



1/1/2016





























C4 GPC (Marshfield Clinic)

X

X



1/15/2016





























C4 GPC (University of Iowa)

X

X

X

1/31/2016





























C4 GPC (UW Madison)



X



1/31/2016





























C4 GPC (Children's Mercy)





X

1/31/2016





























C4 GPC (Indiana U Regenstrief)

X





3/1/2016





























C4 GPC (Med Coll Wisconsin)

X

X

X

3/31/2016





























C4 GPC (U of Minnesota AHC)







1/1/2016






























Thanks,
Laurel

From: James Topping [mailto:james.topp...@duke.edu]
Sent: Wednesday, February 03, 2016 2:58 PM
To: Verhagen, Laurel A
Subject: RE: PCORnet Diagnostic Query - C4 GPC

Laurel-

So, we have a schedule that we just posted this week at
https://pcornet.imeetcentral.com/p/aQACnLBq<https://urldefense.proofpoint.com/v2/url?u=https-3A__pcornet.imeetcentral.com_p_aQACnLBq&d=BQMFAg&c=KNVzINr6WAqWApikNSnyDeOu0ck0iFwcrMz92MxUhIs&r=A2PXk2ZGVGBzoEOQMwrrbqse0CnDMUgS4P3-3HOTSAwE8Vfvoc1Wm0NCYFbuU-_5&m=kqhCDbBteNymx965ewwRYyNYqVDqvGrSp2PHvm4FIP0&s=-HPHfYaL_InjE8_zrSwfowZfhghMijNqGtrYNmgJsug&e=>

This is very likely to change, and we'll know a lot more about how realistic 
this is once we work through the early waves of this process- but you can see 
the plan is to have the process started with the majority over a couple of 
months.

James

From: Verhagen, Laurel A [mailto:verhagen.lau...@mcrf.mfldclin.edu]
Sent: Wednesday, February 03, 2016 3:30 PM
To: James Topping
Subject: RE: PCORnet Diagnostic Query - C4 GPC

Hi James,

Thanks-this is very helpful! Is there an targeted date to have all 
networks/sites complete the Diagnostic Query?

Thanks,
Laurel

From: James Topping [mailto:james.topp...@duke.edu]
Sent: Wednesday, February 03, 2016 1:58 PM
To: Verhagen, Laurel A
Cc: Darcy Louzao, Ph.D.; Greenlee, Robert T PHD; Laura Qualls; 
b...@uthscsa.edu<mailto:b...@uthscsa.edu>
Subject: RE: PCORnet Diagnostic Query - C4 GPC

Laurel-

UTHSCSA was part of the February 2 diagnostic query group since they indicated 
they were ready (from the November survey), and the due date for them will be 
2/16/16- 2 weeks from the day it was sent.

Going forward, we are giving a heads up to sites prior to sending the query- in 
this case 2/8/16, due 2/22/16.   If a site is not ready, they just need to let 
us know and provide a revised readiness date, and we will slot them into a 
later group.  The first group didn't have this opportunity prior to the query 
coming out, but if their readiness date needs to be changed, just let us know.

James



From: Verhagen, Laurel A [mailto:verhagen.lau...@mcrf.mfldclin.edu]
Sent: Wednesday, February 03, 2016 11:36 AM
To: James Topping
Cc: Darcy Louzao, Ph.D.; Greenlee, Robert T PHD; Laura Qualls; 
b...@uthscsa.edu<mailto:b...@uthscsa.edu>
Subject: PCORnet Diagnostic Query - C4 GPC

Hi James,

Can you help with this question?

Thanks,
Laurel

From: Bos, Angela [mailto:b...@uthscsa.edu]
Sent: Wednesday, February 03, 2016 10:32 AM
To: Verhagen, Laurel A; 
prakash-nadka...@uiowa.edu<mailto:prakash-nadka...@uiowa.edu>; Thomas F Mish 
mailto:m...@wisc.edu>> (m...@wisc.edu<mailto:m...@wisc.edu>); 
Wanta Keith M (kwa...@uwhealth.org<mailto:kwa...@uwhealth.org>); Fothergill, 
Rita, R (rfotherg...@cmh.edu<mailto:rfotherg...@cmh.edu>); 
wcteach...@cmh.edu<mailto:wcteach...@cmh.edu>
Cc: gpc-dev@listserv.kumc.edu<mailto:gpc-dev@listserv.kumc.edu>; Greenlee, 
Robert T PHD
Subject: RE: PCORnet Diagnostic Query - UIOWA, WISC, CMH

Hi Laurel,

UTHSCSA received the SAS diagnostic query request yesterday. But I see that we 
were not slated for the Feb 8th query request. Does the Feb 22nd deadline apply 
to us?

-Angela | UTHSCSA


From: 
gpc-dev-boun...@listserv.kumc.edu<mailto:gpc-dev-boun...@listserv.kumc.edu> 
[mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Verhagen, Laurel A
Sent

PCORnet Diagnostic Query - UIOWA, WISC, CMH

[Verhagen, Laurel A]

Hi everyone,

DRN OC continues to roll out the SAS Diagnostic Query, which requires PCORnet 
CDM v3, based on SAS readiness dates collected in November. (This query is 
available on Central Desktop/iMeet Central and linked from ticket 
#374<https://informatics.gpcnetwork.org/trac/Project/ticket/374#comment:2>.)

The next three sites selected from GPC include: UIOWA, WISC, CMH.

The deadline to return the diagnostic query will be around 2/22 (2 weeks) 
according to Dr. Louzao.

Please let me know if your site is ready to receive the SAS query. If your site 
is not ready, please provide your revised SAS readiness date. Let me know if 
you have any questions.

Thanks,
Laurel

From: Darcy Louzao, Ph.D. [mailto:darcy.lou...@duke.edu]
Sent: Tuesday, February 02, 2016 1:14 PM
To: Greenlee, Robert T PHD; Verhagen, Laurel A
Cc: James Topping; Laura Qualls
Subject: PCORnet Diagnostic Query

Good afternoon,
Based on the SAS readiness dates you provided in late 2015, we plan to send the 
Diagnostic Query next Monday, February 8th to the following data partners. 
Please let us know if you are not ready and would like to revise your dates 
accordingly.

C4 GPC (University of Iowa)

C4 GPC (UW Madison)

C4 GPC (Children's Mercy)


Thank you,
Darcy


Darcy M. Louzao Ph.D.
Project Leader
Duke Clinical Research Institute
ph: 919-668-8017 | cell: 336-255-3231

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