Re: [TMIC] osteoporosis
Hi Roger, Good to hear from you. First of all I notice you are from Kennewick WA. I live in Bothell and worked at Plaza Ins for 31 years. Did you have your insurance with Plaza and do you know Tom Allen?? Small world if you do. I actually had seizures prior to TM. I also have Sjogrens Syndrome (an autoimmune disease I have been treated for since 1988) The seizures continued 3 years into TM. The doctors always related the seizures to the autoimmune disease. I finally had the ambulatory 24-hour test (fun) and it showed that I had a lot of seizure activity during the 24 hours. Therefore I was put on Lamictal, which can be a very dangerous drug, but I was put on it very slowly. I have tolerated it well. And have not had any more seizures since the beginning of the med. Thank goodness. The doctors really don't know for sure - but I had never had a seizure until I had the first autoimmune disease (Sjorgrens). No answers, really. I have learned, unfortunately, that if you have more than 2 seizures you are labled as having epilepsy. Epilepsy only means several seizures during a short period of time. Not one or two over a period of years. My doctors don't know any more than! yours! Nice huh. Please write back - I'd like to know if you are the same person we had insured all those years at Plaza Ins. The best to you with your health Linda (Cherpeski) Bothell, WA P.S. How long have you had TM and where are your lesions? -- Original message -- From: "ROGER C PRATT" <[EMAIL PROTECTED]> Hi Linda, I don't post often, but read all the posts everyday. I don't know how osteoporosis is for men, but I do know about seizures. I had seizures for two years before my TM diagnosis (none since). I was put on a number of medications (Febatol, Tegretol, Dilantin, Depakote) which I had allergic reactions to (rashes) when I tried to get to therapeutic dosages. I was finally put on primidone, and that was discontinued when I was diagnosed with TM. I have often wondered if the seizures were early signs of TM since I only passed out on my first seizure and only had jerking seizures from then on. Once I got steroids by IV for 3 days, the seizures stopped. I've had muscle spasms off and on, but no seizures. My doctors don't know (at least can't explain) what the relationship was between the seizures and TM. Interesting question. Do your doctors have any explanations. All my best, Roger - Kennewick, WA - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Cc: TMIC-list@eskimo.com Sent: Monday, April 03, 2006 9:29 PM Subject: Re: [TMIC] osteoporosis Well Patti, your post certainly made me think twice. I don't have an answer to your question, but I do know research has come a long way in treating osteoporosis. Do you know our ages, when TM came to live with us and menopause are the same? I have not had a bone density test and I was having seizures for 2 years prior to being put on seizure medicine (Lamictal) and had no idea that osteo could be caused by anti seizure meds. I have to say now I am a little concerned. I have 2 doctor appts coming up - I will have to ask, I guess to relieve my mind - or give me something else to worry about : - ) Please let us know what the doctor says. Linda - Bothell, WA -- Original message -- From: <[EMAIL PROTECTED]> > I had a bone density test two weeks ago and now have an appointment with an > endocrinologist because of additional bone loss. I've done some research and > read on WebMD of the possibility that osteo can be caused by anti seizure meds. > I haven't found any info on Neurontin/gabapenten regarding osteo. > I have been taking osteo meds since age 48 when a bone density test came back > abnormal. A tests at 50 showed no additional loss and at 52 I had improvement. > TM and menopause happened simultaneously at age 53, my density test at 54 showed > no change. Now, at age 56 the numbers are dropping. > I know menopause can be the culprit, but do any of you know anything about anti > seizure meds and bone loss? What can the endocrinol! ! ogist help with (besides > telling me to stop caffeine)? > > Patti - Michigan >
[TMIC] Foods to Fight Fatigue
Original page: http://www.webmd.com/content/Article/93/102493.htm Foods to Fight Fatigue By Dulce Zamora WebMD Feature Reviewed By Cynthia Haines, MDIf you're beat and need to drum up some energy, you are not alone. But the right foods and nutrition can supply the oomph you're missing. Part 1 of a three-part series. Part 2: Energy for SalePart 3: Energy Thieves Tired. Drained. Pooped. No matter how you put it, you're beat and need to drum up some energy. You are not alone. Many people have trouble getting in gear in the morning, experience the afternoon slump, or just want to crash on the couch in the evening. The exhaustion can be a constant problem for some folks. According to the CDC, 2.2 million Americans experience marked fatigue lasting at least six months. Sluggishness can be caused by many factors, but experts say poor nutrition is a big culprit. A well-balanced diet, on the other hand, can boost energy. "Food is truly our body's fuel," says Cindy Moore, MSRD, director of nutrition therapy for The Cleveland Clinic. "What we choose as our fuel is going to absolutely impact the performance of our bodies." How do we fill up our personal tanks, and how well do they make our engine run? The experts weigh in on how major food and drink sources and habits affect energy levels. The Forgotten Meal At the beginning of the day, most people dash off to work or school without a thought to their body's dietary needs. Who has time to eat in the morning anyway? "Breakfast is an easy meal to forget," says Mary Ellen Camire, PhD, professor of food science and human nutrition at the University of Maine. "But if people are skipping breakfast and find they're tired by midmorning, then it's time to re-evaluate that eating habit." Research shows breakfast improves alertness and concentration, helps shed pounds by preventing overeating during the day, and prevents obesity, diabetes, and heart disease. To get these benefits and to prepare the body for the day, the American Dietetic Association recommends carbohydrates for energy and protein for endurance. Some quick options include: Whole grain bagel with cheese Cereal with fruit and yogurt Whole-grain toast with peanut butter and fruit Hard-boiled egg sliced into a whole-wheat pita Scrambled eggs, toast, and fruit Oatmeal with raisins For the really busy bee, Camire says choices include breakfast bars, frozen omelets and breakfast sandwiches, oatmeal packets to go, and whole-grain cereals in prepackaged plastic bowls. Be mindful, though, of the sugar and fat content of your morning meal. A study in the November 2003 issue of Pediatrics found children who ate sugary breakfasts were hungrier and ate more at lunch.Complex Carbohydrate Charge Healthy eating doesn't stop in the morning. A well-balanced diet throughout the day is an essential source of sustained energy. The American Medical Association recommends that 50% to 60% of overall food intake come from carbohydrates, 30% from fat, and the rest from protein. Although carbohydrates have gotten a bad reputation, the nutrient is still the body's preferred source of energy, says Dave Grotto, RD, director of nutrition at the Block Center for Integrative Cancer Care in Evanston, Ill. Low-carb diets, he says, initially boost energy, but deplete it in the long run. The best way to maximize the body's potential for energy is to eat a combination of complex and simple carbohydrates. Complex carbohydrates, which are slow burning, should represent the bulk of the carbohydrates we eat, says Grotto. Foods such as whole grains and starchy vegetables such as potatoes, squash, pumpkin, and carrots fall into this category. This does not mean ignoring simple carbohydrates with a faster burn, such as the sugar fructose, found in fruits, vegetables, and honey. They can provide an immediate source of energy. Simple sugars found in candy bars, soft drinks, and cookies can also provide a quick boost, but then a big letdown afterward. "You are going to get a rise in energy from the original hit of the sugar, but then, particularly for diabetics, sugar can drop below the baseline where it started," says John W. Finley, associate editor of the Journal of Agriculture and Food Chemistry, a publication of the American Chemical Society. He says the peak effect of sugar normally lasts 30 minutes to an hour, depending on the dose. Anything beyond that is reportedly psychological. Without the complex carbohydrates to sustain the blood sugars, the body loses steam. "A diet that is based in complex carbohydrates seems to have less of that peak and valley of blood sugar effect," says Grotto. It is also important to make sure your complex carbohydrates have fiber, says Dee Sandquist, MSRD, a spokesperson for the American Dietetic Association. "Fiber helps the carbohydrates t
[TMIC] Fwd: 2 New Stores Help The Transverse Myelitis Association at iGive.com (April 5, 2006)
Title: iGive.com Newsletter for April 5, 2006 Please add iGive.com to your address book (or "buddy", "safe", "approved", or "trusted sender" lists) to ensure you will continue to receive important iGive.com notifications in your inbox. Our e-mail address is: [EMAIL PROTECTED] April 5, 2006Home | the Mall | My Stats | My Settings | Login Hi Kris! Warm weather is near, and your favorite iGive stores are busy stocking their virtual shelves with all the necessities of spring and summer. We've gathered more coupons and sales than we can possibly fit in a single e-mail, so be sure to bookmark these iGive.com pages for new savings and free shipping deals that help The Transverse Myelitis Association! * Sales & Coupons * Free Shipping Deals * Gift Cards & Gift Certificates Double Donation Days! Bare Necessities 6.4% Donations!(normally 3.2%) We've doubled the donation at Bare Necessities! Now through April 16th, receive 6.4% donations on every purchase. Use this link to get 10% off your entire purchase too! Bigger Donations! Yves Rocher 7.6% Donations!(normally 7.2%) Shop by April 14th for Bigger Donations of 7.6%! Plus, receive free shipping on orders of $25+ (a $4.95 value) and buy now, pay later convenience! See site for details.*** eBags 4.8% Donation!(normally 2.8%) Every purchase at eBags.com means a special 4.8% donation to your cause! Shop through the end of the year to enjoy these special donations. Use this link to receive free shipping on your entire order! (cannot be combined with other offers) Free Shipping FREE SHIPPING AT DRUGSTORE.COM! 4.8% Donation* Save up to 40% or more off your favorite brands, including philosophy, Dove and Nature Made! Plus get free shipping on your 1st nonprescription order of $25+! Sale ends April 28th.*** FREE SHIPPING AT STAPLES! 1.2% Donation Save up to 50% off select Staples Brand products, this week only! Plus receive free delivery on most orders over $50. 2 New Stores Casual MaleBig & Tall 2.8% Donation FAO Schwartz **2% Donation ** You suggested it, we added it! Spring Savings EXPERIENCE PARIS WITH EXPEDIA.COM! 0.8% Donation*Paris: The Mysteries in Art experience. Be intrigued and explore the mysteries of the best-selling novel with the Da Vinci Tour, castle tours and wine tastings int he Loire Valley, dinner at the Eiffel Tower, and a cruise along the Seine River! Book through May 31st; see site for details.*** SAVE 30% AT BLAIR.COM! 4.8% Donation* Now through April 15th, save 30% off any single item at Blair! Plus take advantage of the exlusive, online only offer for 99 cent standard shipping per item. See site for details.*** FREE SCANPAN GIFT AT CHEF'S! 4% Donation*Purchase a Scanpan 6.5-Qt. Dutch Oven and receive a free 10" Open Saute Pan ($125 value). Offer ends April 30th.*** SAVE $5 OFF MAGAZINES! 14% Donation Take $5 OFF on a large selection of magazine titles including Marie Claire, Food & Wine, Cooking Light, Time, and others! Use coupon code springmags at checkout, through April 30th.*** $10 OF SUPPLIES AT PETCO! 3.6% Donation*Get $10 off your online pet supply order of $55 or more through April 20th. Just select promotion code AFFREG during checkout. Editor's Picks 2.8% Donation* 2.4% Donation* 3.2% Donation Your Stats Your e-mail: [EMAIL PROTECTED] Your cause: The Transverse Myelitis AssociationYou've raised: $0.00 for your chosen causes.Your current cause has raised: $1785.08 Total raised for all causes: $1,983,612 Free $5 Donations! For a limited time, iGive.com is giving away FREE $5 donations for each new member who joins iGive & shops within 45 days! Tell your friends to join & shop! SubscriptionsManage your newsletter subscriptions & format preferences here. * See "Exceptions" for donation rules and/or breakdown of donations on different products at this store. "Exceptions" aredisplayed on our website, and in the small Coupon Window which appears after clicking on any of our participating stores. Special offers featured in this newsletter are subject to terms, conditions, and expiration dates as decided by the online merchants.We encourage you to visit each merchant's Web site for details on featured offers. Any problems, questions, or concerns? Contact us !This e-newsletter is sent to people who have registered at iGive.com to support member-listed worthy causes through online shopping.Money raised through shopping may be tax-deductible for members. Worthy causes listed at iGive.com have been listed by membersfor their own and other members' use. A listing at iGive.com is not an endorsement of iGive.com by the cause, nor an endorsement of thecause b
[TMIC] OT, OT
Hey, where is everyone? It's almost 8:30 p.m. and there is absolutely nobody around! What? Is there a PTA meeting or something? You know, Dave and I don't have children so when something like this comes up, we don't know anything about it. Dave went ahead and left for work at the usual time of around 4 p.m. There was nothing special to keep him home except for a small pin-sized open pressure sore on my butt. He looked it over, made the call and decided it didn't warrant his taking the night off. It's really hurting right now and I ought to put this computer up and get the weight of it off of my lap, adding to the pressure. My casts hurt too. It's time for evening pain medication... One of these days, when stem-cell research is behind us and 'plegics are walking all over the place, pain medication, in all kinds of addictive forms, will be a thing of the past. As will, of course, all other diseases of the body and soul. And...all things will be right with the world. And, maybe we will be lucky enough to be still living. My nickel's worth. Jude
Re: [TMIC] osteoporosis
Hi Linda, I don't post often, but read all the posts everyday. I don't know how osteoporosis is for men, but I do know about seizures. I had seizures for two years before my TM diagnosis (none since). I was put on a number of medications (Febatol, Tegretol, Dilantin, Depakote) which I had allergic reactions to (rashes) when I tried to get to therapeutic dosages. I was finally put on primidone, and that was discontinued when I was diagnosed with TM. I have often wondered if the seizures were early signs of TM since I only passed out on my first seizure and only had jerking seizures from then on. Once I got steroids by IV for 3 days, the seizures stopped. I've had muscle spasms off and on, but no seizures. My doctors don't know (at least can't explain) what the relationship was between the seizures and TM. Interesting question. Do your doctors have any explanations. All my best, Roger - Kennewick, WA - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Cc: TMIC-list@eskimo.com Sent: Monday, April 03, 2006 9:29 PM Subject: Re: [TMIC] osteoporosis Well Patti, your post certainly made me think twice. I don't have an answer to your question, but I do know research has come a long way in treating osteoporosis. Do you know our ages, when TM came to live with us and menopause are the same? I have not had a bone density test and I was having seizures for 2 years prior to being put on seizure medicine (Lamictal) and had no idea that osteo could be caused by anti seizure meds. I have to say now I am a little concerned. I have 2 doctor appts coming up - I will have to ask, I guess to relieve my mind - or give me something else to worry about : - ) Please let us know what the doctor says. Linda - Bothell, WA -- Original message -- From: <[EMAIL PROTECTED]> > I had a bone density test two weeks ago and now have an appointment with an > endocrinologist because of additional bone loss. I've done some research and > read on WebMD of the possibility that osteo can be caused by anti seizure meds. > I haven't found any info on Neurontin/gabapenten regarding osteo. > I have been taking osteo meds since age 48 when a bone density test came back > abnormal. A tests at 50 showed no additional loss and at 52 I had improvement. > TM and menopause happened simultaneously at age 53, my density test at 54 showed > no change. Now, at age 56 the numbers are dropping. > I know menopause can be the culprit, but do any of you know anything about anti > seizure meds and bone loss? What can the endocrinol! ogist help with (besides > telling me to stop caffeine)? > > Patti - Michigan >
[TMIC] OT: Check this out!
This Wednesday, at two minutes and three seconds after 1:00 in the morning, the time and date will be 01:02:03 04/05/06. That won't happen again for another 1,000 years. You may now return to your (normal ?) life. Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.
Re: [TMIC] Doing the Right Thing
Actually, One of the studies was informational only, and I had to fill out several questionnaires. The other was with Dr. Kaplin, the psychiatrist that works with Dr. Kerr. He and Dr. Kerr were doing a study on the extreme prevalence of Major Depression on victims of MS, TM, and "other spinal cord injuries". They included clinical interviews/diagnosis, and some standardized testing for mental functioning, a spinal tap, and then a follow-up six months later, with repeats of all, plus an overnight stay in the hospital with a test on the effects of a chemical over time, via blood draws. It was awesome. They are having another symposium this summer, I am advised. I will definitely go. Cora > > Hi Cora, > > Kudos to you for following through > and actually doing something physical to advance the science of stem cell > research. > > What kinds of studies will you be involved in? How exciting for you to > be > on the cutting edge of technology and for you to know the right people, > in the > right place, at the right time. > > I hope you will keep us all informed of the goings on during the clinical > testing. > > I had been selected to be in a study of pain relief at Brigham and Young > College at Harvard Medical School, but it required constant travel back > and > forth and started by removing all of us from the pain medication we are > each > presently taking. They were going to pay almost $2000.00 to each > applicant > selected, but I had to turn them down when I broke both legs. I received > another > letter just last week, so if anyone (women only) is interested, let me > know > and I will send the information. > > If anyone out there can advise me of a way to help our cause from my > hospital bed, using my computer, please let me know. If writing to > people or > companies, I might need some help in formulating letters etc. > > Thank you again Cora, and best of everything to you. > > Peace, > Jude > > > > > > > > > > > > > > > > > > > > > > > > >
