[TMIC] cortisone injections
Hi, My mum has cortisone injections in her spine for severe back pain that she suffers from. It was suggested that it may be helpful for the pain I'm having from the TM. I wonder if anyone has tried this and if they found it helpful? Would it be worth trying? Thanks. Kathryn Keen PS: Thanks Jude for the well-wishes. I hope you can get a bit of good fortune now; I can't imagine how hard it must be for you to have been in plaster all that time - on top of everything else - you sure are brave.
Re: [TMIC] Lidocaine
I used Lidocaine patches when I was in rehab - took one patch, cut it in two and put one on each knee - can't really say one way or the other. Probably would say it didn't help much. I have used a whole one on my back but I sleep on my back and it gets all wadded up. Hildred
[TMIC] MS ,BUT I WONT LEAVE
WELL,I HAVE AN MRI FOR NEXT WEEK,THEN THEY WILL MAKE THE DX OF MS DEPENDING ON THE RESULTS,MY LAST TAP CAME BACK + FOR ALL THE JUNK THEY SUSPECTED,IM NOT LOOKING FORWARD TO IT,MS SOUNDS SO FINAL.EVEN THOUGH IT OPENS A WHOLE NEW WORLD OF TREATMENTS AND OPTIONS,AND THE FIGHTS WITH THE INS COMPANIES WONT BE AS TOUGH,ILL NEVER LEAVE ANY OF YOU GUYS ON HERE,IVE BEEN ON THE LIST SINCE FEB 2000 AND IVE LEARNED SO MUCH FROM EVERYONE AND EVEN GOTTEN INTO A FEW DEBATES OVER THE YEARS,BUT I WANT TO THANK ALL OF YOU FOR THE DIFFERENCE YOUVE MADE IN MY LIFE.THATS WHAT SETS EVERYONE ON THE LIST APART FROM EVERYONE ELSE. AGAIN THANKS TO YOU ALL JEFF Get your email and more, right on the new Yahoo.com
[TMIC] BOWELS
I HAVE A ROUTINE EVERY OTHER DAY, WAKE UP, USE DUCOLAX SUPPOSITORY, WAIT ABOUT 15 MINUTES AND HEAD FOR THE THRONE. IT TAKE 30 MINUTES TO AN HOUR TO FINISH, BUT WORKS WELL FOR ME. I ALSO DRINK COFFEE WHILE WAITING FOR IT TO WORK BEFORE GOING TO THE THRONE ROOM AND WHILE IN THERE. WARM FLUIDS HELP THE DIGESTIVE SYSTEM GET STARTED. WITH THIS ROUTINE, I ONLY HAVE TWO OR THREE ACCIDENTS A YEAR, AND THAT IS BECAUSE I COULD NOT GET BACK HONE TO MY THRONE IN TIME WHEN THINGS WERE A BIT OUT OF WHACK THAT PARTICULAR DAY, FOR SOME REASON. IF YOU RECALL, YOU HAD THESE OCCASIONAL DAYS BEFORE TM, BUT WERE ABLE TO GET TO A BATHROOM IN TIME. JUST MY 2 CENTS, HERE. BOB FROM SPRING, TX - Original Message - From: To: [EMAIL PROTECTED];[EMAIL PROTECTED];TMIC-LIST@eskimo.com Sent: 8/8/2006 4:45:07 PM Subject: Re: [TMIC] HMO's The only medicine that work for me is Bisacodyl (suppositories) I can last 9 day with no bowl movements, but daily use of bisacodyl is helping a lot it work among 30 min to 1hr, and am always ready with it starts doing its job, sitting on my specail chair, spend almost an hour but most of the time works great for me. Juan In a message dated 8/8/2006 2:39:30 P.M. Pacific Standard Time, [EMAIL PROTECTED] writes: I had one of those a couple of years ago. I was s glad they offered pills instead of the liquid. As Ann said -- the "fun" part starts with those pills. :-) The procedure itself is a breeze. I was afraid of having an "accident" on the way (though I didn't see how anything could have been left) so took a change of clothes and a towel to put on the seat of the car "just in case," but all was ok. From the time I started the pills I tried to stay no more than 3 steps from the bathroom. I put in a video I had been wanting to see for a while to help take my mind off things, which helped, except that now whenever I see that video I think about getting ready for a colonoscopy. :-) But just for a few minutes. Hope all goes well tomorrow and that everything is fine! Barbara H. http://barbarah.wordpress.com/ In a message dated 8/8/2006 4:30:47 PM Eastern Standard Time, [EMAIL PROTECTED] writes: I am having a colonoscopy tomorrow due to awful bowell problems for over 1 month. I start my fun laxative pills (no more nasty liquid) in one hour. Have been fasting since 9:00am. Procedure tomorrow at 11:40am My probs are probably antibiotic related (antibiotic colitis caused by being on antibiotics for over two months), but doc wants to do one anyways for precaution. This should be fun. HaHa -Sandy B. in Charlotte Juan M Flores11773 Two Towers Dr El Paso, TX 79936Tel: (915) 856-3392
Re: [TMIC] HMO's
The only medicine that work for me is Bisacodyl (suppositories) I can last 9 day with no bowl movements, but daily use of bisacodyl is helping a lot it work among 30 min to 1hr, and am always ready with it starts doing its job, sitting on my specail chair, spend almost an hour but most of the time works great for me. Juan In a message dated 8/8/2006 2:39:30 P.M. Pacific Standard Time, [EMAIL PROTECTED] writes: I had one of those a couple of years ago. I was s glad they offered pills instead of the liquid. As Ann said -- the "fun" part starts with those pills. :-) The procedure itself is a breeze. I was afraid of having an "accident" on the way (though I didn't see how anything could have been left) so took a change of clothes and a towel to put on the seat of the car "just in case," but all was ok. From the time I started the pills I tried to stay no more than 3 steps from the bathroom. I put in a video I had been wanting to see for a while to help take my mind off things, which helped, except that now whenever I see that video I think about getting ready for a colonoscopy. :-) But just for a few minutes. Hope all goes well tomorrow and that everything is fine! Barbara H. http://barbarah.wordpress.com/ In a message dated 8/8/2006 4:30:47 PM Eastern Standard Time, [EMAIL PROTECTED] writes: I am having a colonoscopy tomorrow due to awful bowell problems for over 1 month. I start my fun laxative pills (no more nasty liquid) in one hour. Have been fasting since 9:00am. Procedure tomorrow at 11:40am My probs are probably antibiotic related (antibiotic colitis caused by being on antibiotics for over two months), but doc wants to do one anyways for precaution. This should be fun. HaHa -Sandy B. in Charlotte Juan M Flores11773 Two Towers Dr El Paso, TX 79936Tel: (915) 856-3392
Re: [TMIC] HMO's
I had one of those a couple of years ago. I was s glad they offered pills instead of the liquid. As Ann said -- the "fun" part starts with those pills. :-) The procedure itself is a breeze. I was afraid of having an "accident" on the way (though I didn't see how anything could have been left) so took a change of clothes and a towel to put on the seat of the car "just in case," but all was ok. From the time I started the pills I tried to stay no more than 3 steps from the bathroom. I put in a video I had been wanting to see for a while to help take my mind off things, which helped, except that now whenever I see that video I think about getting ready for a colonoscopy. :-) But just for a few minutes. Hope all goes well tomorrow and that everything is fine! Barbara H. http://barbarah.wordpress.com/ In a message dated 8/8/2006 4:30:47 PM Eastern Standard Time, [EMAIL PROTECTED] writes: I am having a colonoscopy tomorrow due to awful bowell problems for over 1 month. I start my fun laxative pills (no more nasty liquid) in one hour. Have been fasting since 9:00am. Procedure tomorrow at 11:40am My probs are probably antibiotic related (antibiotic colitis caused by being on antibiotics for over two months), but doc wants to do one anyways for precaution. This should be fun. HaHa -Sandy B. in Charlotte
Re: [TMIC] Crazy Question
I was hit with TM on Labor Day Weekend 1997. I sat on the couch watching the news about Princess Diana's death and wondering what was wrong with me. I thought I must have pinched a nerve or something. I became totally numb from my lower ribs on the left side to the tips of my toes, as if I had been divided down the middle. I lost bladder control. I was still able to walk by dragging my leg. The neuro said "Transverse Myelitis" and I had never heard of it before. I found this group and I knew early on that I was one of the "lucky ones". It was later that I came to the conclusion that many of the "lucky ones" turned out to have MS. I'm sure you know that with MS you have little flare ups as well as big flare ups (exacerbations). And with MS there are treatments now. It wasn't always like that so we are very fortunate. It could be a lot worse. You aren't crazy. (At least I don't think you are) Have you called your neuro with these little flare ups? Feel free to email me privately if you wish. Good luck to you in your journey. Sharon --from Arizona TM 1997 to MS 1998 It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant http://health.groups.yahoo.com/group/MSersLife/ - Original Message From: Jill Z <[EMAIL PROTECTED]>To: tmic-list@eskimo.comSent: Monday, August 7, 2006 8:15:52 PMSubject: [TMIC] Crazy Question Although I feel I'm VERY fortunate to be able to walk unassisted, I feel like I have "little flare-ups" from time to time with my left leg and right foot going numb and even feeling like a raw/burning feeling. Is that normal? I also feel like a tingly feeling in my head sometimes? I don't know if it's just driving me crazy and I need an ativan or is it just the TM reminding me that it's there lurking and ready to come back or even turn into MS. This has been for about a week or two now. I was diagnosed in Dec. 2005 and have made great strides since then thank God. Jill 36, Chicago T 10-11
Re: [TMIC] HMO's
The fun part you are having right now. Tomorrow will be a breeze. ann in Virginia
Re: [TMIC] Fwd: Anybody aware of this medicine? Pls note bold, big and underline info.
I didn't realize Effexor and Cymbalta were the same. Thanks. Sharon --from Arizona TM 1997 to MS 1998 It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant http://health.groups.yahoo.com/group/MSersLife/ - Original Message From: [EMAIL PROTECTED]To: [EMAIL PROTECTED]; Sharon Marsden <[EMAIL PROTECTED]>; tmic-list@eskimo.comSent: Saturday, August 5, 2006 6:35:53 AMSubject: Re: [TMIC] Fwd: Anybody aware of this medicine? Pls note bold, big and underline info. I started taking Effexor, an equivalent to Cymbalta, six weeks ago. It helped by either decreasing the pain or making it bearable mentally. I don't care how it works, I was at the end of my rope and Effexor is the knot that lets me hang on. I researched both Cymbalta and Effexor before discussing with my doctor. He had samples of Effexor and agreed that they work the same. I obtained samples for the first 6 wks and just received another 10 wk supply. I've noticed that Cymbalta is spending a lot of money on advertisements. Patti Mid Michigan Sharon Marsden <[EMAIL PROTECTED]> wrote: > Yes. My doctor gave me samples of Cymbalta. I started it about 3 weeks ago and I am seeing a difference in my leg pain. I've been having severe burning aching leg pain, especially at night. I take the Cymbalta at bedtime and I am sleeping better. I still have pain but it's better. Now I just have to figure out how to pay for it. :) I'm also on Neurontin, Baclofen and Klonopin. But Cymbalta is making the most difference.> > Sharon --from Arizona TM 1997 to MS 1998 > It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant> http://health.groups.yahoo.com/group/MSersLife/> > > > > > - Original Message > From: [EMAIL PROTECTED]> To: [EMAIL PROTECTED]; tmic-list@eskimo.com> Sent: Sunday, July 30, 2006 10:36:10 AM> Subject: [TMIC] Fwd: Anybody aware of this medicine? Pls note bold, big and underline info.> > > > > Juan M Flores> 11773 Two Towers Dr > El Paso, TX 79936> Tel: (915) 856-3392> Return-path: <[EMAIL PROTECTED]>> From: [EMAIL PROTECTED]> Full-name: Flores917> Message-ID: <[EMAIL PROTECTED]>> Date: Sun, 30 Jul 2006 00:42:06 EDT> Subject: Anybody aware of this medicine? Pls note bold, big and underline info.> To: [EMAIL PROTECTED], tmic-list@eskimo.com,> [EMAIL PROTECTED]> MIME-Version: 1.0> Content-Type: multipart/alternative; boundary="-1154234526"> X-Mailer: 9.0 Security Edition for Windows sub 5319> The Benefits Of Cymbalta > The benefits of Cymbalta will really be an individual experience, although these newer drugs tend to carry a lot of benefits and not nearly the amount of side effects as antidepressants in the past. One of the greatest benefits, if Cymbalta works for you, is that it seems to work more quickly than other antidepressants. As mentioned above, many people have to wait eight to sixteen weeks to even begin to feel the effects of any antidepressant. With Cymbalta a good deal of people have begun to see improvement in just a handful of days, or two to three weeks, which is a much more acceptable time frame. This is a huge benefit for people who are suffering from major depressive disorder as they don’t have to waste three to four more months of their life being depressed, if the medication does not seem to be working for them they can try something else. > Relieving depression is a huge benefit to the life of anyone who suffers from major depressive disorder, or any type of depression that his or her doctor deems worthy of medicating. Depression can be as crippling as any physical disease, and stopping or even relieving the extent of the symptoms will be the single best benefit of any drug, including Cymbalta.> For neuropathy pain, just having a medication that helps is a benefit enough. Some people really experience a difference in just a couple weeks, and taking that pain away can really transform a person’s life over night. Cymbalta works to basically marinate your neurons in these brain chemicals, and that helps to relieve pain. Often, when attempting to relieve nerve pain other medications are used in conjunction with Cymbalta to repair nerve tissue to relieve pain both short term and long term. Cymbalta is a very beneficial drug for many people who suffer from the awful nerve pain associated with diabetes and other diseases.> Precautions To Consider When Taking Cymbalta> You will, of course, want to discuss your overall health with your prescribing doctor when considering Cymbalta, as they’ll need to weigh the risks and benefits associated with your taking this particular drug. Like any drug, Cymbalta may not be right for everyone, so you and your doctor will have to work together to decide if this one is right for you.> If you have taken an MAOI type drug such as Marplan, Nardil, or Parnate in the last two weeks you’ll want to wait awhile until you begin to take Cymb
Re: [TMIC] HMO's
I am having a colonoscopy tomorrow due to awful bowell problems for over 1 month. I start my fun laxative pills (no more nasty liquid) in one hour. Have been fasting since 9:00am. Procedure tomorrow at 11:40am My probs are probably antibiotic related (antibiotic colitis caused by being on antibiotics for over two months), but doc wants to do one anyways for precaution. This should be fun. HaHa -Sandy B. in Charlotte -Original Message- From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Cc: TMIC-LIST@eskimo.com; [EMAIL PROTECTED] Sent: Tue, 8 Aug 2006 11:57 AM Subject: Re: [TMIC] HMO's > sore inside the anal cavity (caused by the ischema > bone) that bleeds profusely when I perform my normal bowel program. Get thee to a doctor pronto for a colonoscopy! In 1984 I had anal bleeding with every BM; I assumed it was a return of delicate hemorrhoids. Then on a trip to Norway on business I dumped a pint of blood in the shower. I figured that was a long ways for Betty to swim to see me, and when I got back I saw my doctor. A colonoscopy showed extensive cancer. I didn't deserve my good fortune; surgery got it all out, and for 24 years I've been clean. Alton, 22 years in remission and counting = Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free.
Re: [TMIC] New Treatment
Has anyone tried Cymbalta? I've been on it for about a month and my severe nighttime leg pains and my pain level has probably been cut to 1/3 of what it had been. I take 60 mgs.of Cymbalta at bedtime, with 60 mg. of Baclofen, .5 Klonopin and 800 mg. Neurontin. It's been such a relief to get some sleep finally. It's been a rough road with the pain and I finally have some relief. The pain isn't gone but now I have hope for even less pain. Just my thoughts Sharon --from Arizona TM 1997 to MS 1998 It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant http://health.groups.yahoo.com/group/MSersLife/ - Original Message From: L T CHERPESKI <[EMAIL PROTECTED]>To: [EMAIL PROTECTED]Cc: TM List Sent: Friday, August 4, 2006 8:57:21 PMSubject: Re: [TMIC] New Treatment Frank - I'm sorry to hear that you have been in so much pain - I don't know what's going on with all this pain either, but I have also joined the higher pain club. I am really anxious to see how this works for you. And yes, WOW. Good luck! Linda in Eagle, Idaho - Original Message - From: [EMAIL PROTECTED] To: tmIC-list@eskimo.com Sent: Friday, August 04, 2006 3:24 PM Subject: [TMIC] New Treatment I saw my Montreal doctor recently.I've been really depressed from my constant pain( #1 to 3) for the past months. We talked and talked, then he suggested a " LIDOCAINE INFUSION"On Sept 13th, I'll go into the lab at the MGH and be hooked up to an IV solution of lidocaine. It will run into my body for a number of hours. Usually by the end the central pain will be decreased, or totally gone. The pain will be releaved for hours up to months.WOULDN'T IT BE NICE TO BE PAIN FREE FOR WEEKS and WEEKS.I'm very excitedYou might mention this treatment to your neuro. If they need info, they could write Dr. Mark Ware, Montreal General Hospital, Cedar Ave., Montreal, QC, Canada.WOWF
Re: [TMIC] baclofen 30 MG A DAY
Maybe you aren't taking enough? I take 80 mgs. a day and I take a Klonopin too. Baclofen helps me but the Klonopin combined with it makes it work better. Sharon --from Arizona TM 1997 to MS 1998 It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant http://health.groups.yahoo.com/group/MSersLife/ - Original Message From: [EMAIL PROTECTED]To: tmic-list@eskimo.comSent: Friday, August 4, 2006 1:07:22 PMSubject: [TMIC] baclofen 30 MG A DAY HELP NEED SOMETHING FOR SPAZMS.this makes them WORSE what are you guys taking ?? THANKS SOO MUCH
Re: [TMIC] HMO's
> sore inside the anal cavity (caused by the ischema > bone) that bleeds profusely when I perform my normal bowel program. Get thee to a doctor pronto for a colonoscopy!In 1984 I had anal bleeding with every BM; I assumed it was a return of delicate hemorrhoids. Then on a trip to Norway on business I dumped a pint of blood in the shower. I figured that was a long ways for Betty to swim to see me, and when I got back I saw my doctor. A colonoscopy showed extensive cancer.I didn't deserve my good fortune; surgery got it all out, and for 24 years I've been clean.Alton, 22 years in remission and counting
Re: [TMIC] Crazy Question
Yes, it's very normal to have little flare-ups. I would often fear another attack was coming on during the first year or two, but in my case, it never got quite to the extent the first attack reached. I was seeing my neuro often the first several months and he would assure me that it was just a flare-up. He said that the TM affects the nervous system in such a way that it's like it is oversensitive to stimuli, so even things like not getting enough sleep or having a cold or having stress (even "good" stress, like getting ready for company to come) could make symptoms flare up a bit. But some times there was no reason that I knew of -- things would just get worse for a while. Even now, almost 11 years later, though I've kind of reached a plateau, there will be some days when I'll wonder what in the world is going on with me. I kind of think of it as riding the waves (though I'm not surfer and can't even swim :-) ) -- but I try to tell myself, "This is just a flare-up -- just ride it out for a while and things will be normal again." Of course, after TM hits, "normal" is different from what it was before anyway. :-) That said, though, don't hesitate to call your dr. if things are flaring up to the point where it is scaring you. And ask about different medications -- Kathryn mentioned Baclofen. That didn't do much for me, but it helps a lot of people. I was on Tegretol for a while -- my neuro said it was used for epilepsy patients but had a "quieting effect" on the nervous system in general, so was sometimes used for TM patients. It really did help, but they have to check your liver functions often when you're on it. I decided to get off of it because I was afraid of long-tern liver damage (though that may be unfounded, I don't know). But I wouldn't hesitate to try it again if I felt I needed it. We all have different body chemistries and different things, or different combinations of things, will be helpful to different people. Barbara H. http://barbarah.wordpress.com/ In a message dated 8/7/2006 11:16:36 PM Eastern Standard Time, [EMAIL PROTECTED] writes: Although I feel I'm VERY fortunate to be able to walk unassisted, I feel like I have "little flare-ups" from time to time with my left leg and right foot going numb and even feeling like a raw/burning feeling. Is that normal? I also feel like a tingly feeling in my head sometimes? I don't know if it's just driving me crazy and I need an ativan or is it just the TM reminding me that it's there lurking and ready to come back or even turn into MS. This has been for about a week or two now. I was diagnosed in Dec. 2005 and have made great strides since then thank God. Jill 36, Chicago T 10-11
[TMIC] REJOIN!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! [EMAIL PROTECTED]
PAMELA MONTZ
[TMIC] OT Health Care
Our Health Care System Two patients limp into two different medical clinics with the same symptoms. Both have trouble walking and appear to require a hip replacement. The first patient is examined within the hour, is x-rayed the same day and has a time booked for surgery the following week. The second sees his family doctor after waiting a week for an appointment, then waits eight weeks to see a specialist, then gets an x-ray, which isn't reviewed for another week, and finally has his surgery scheduled for six weeks from then. Why the different treatment for the two patients? The first is a Golden Retriever. The second is a Senior Citizen.
