Re: [TMIC] improvement

[JHarper33]

I think I probably had the biggest or most dramatic  improvements within the 
first six months, but there has been slow and steady  improvement ever since 
(11 1/2 years later). Just recently I was in charge of a  ladies' luncheon at 
church that, in previous years, knocked me out for the rest  of the weekend, 
but this year I had a bunch of errands to do afterward and  thought I was going 
to "crash" once I ever got still -- I was amazed that the  fatigue levels were 
so much better when that's one thing that has carried on  long-term. However, 
walking around Wal-Mart or the mall does me in -- not only  all the walking, 
but I get really hot in both places, and that just saps my  energy.
 


 
 
Barbara H. 
_http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) 
 
 







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[TMIC] Comfortable shoes

[Regina Rummel]

Some of the physical therapists I work out with wear Keen shoes.  They swear by 
them.  I noticed that the front is wide and round which would give toes lots of 
room to breathe.  I don't drive and have to wait for my daughter to take me to 
the store that carries them.  In the meantime, I wondered if any of you are 
wearing that brand, or heard of Keen shoes.
  R

[TMIC] Carpal Tunnel questions

[Kevin Wolfthal]

Dear Friends,

Place this under the 'feel like tearing your hair out' category.

Last year I had a neurologist and an orthopedist tell me I
have carpal tunnel syndrome in both hands.  This was after
having MRI's and EMG's.

Then I went to a hand surgeon.  He sent me for another
EMG because my (former) neurologist 'lost' the EMG
results.  (I noticed they still accepted the $1200.00
for the EMG from my insurance, who I reported
them to but said they can do nothing).

The new EMG apparently shows nerve problms
in many nerves in my arms, so the hand surgeon
doesn't think it's CTS anymore and can't help me.
So now I have to start over with new tests, new
neurologist...

I just read that one of my BP meds, metoprolol,
can cause numbness in the hands as a side effect.
I'm having a physical on Monday and will ask
about this.

I know I've asked about carpal tunnel syndrome before,
so please forgive me for asking again.  If anyone has
had CTS, would you mind relating your experience
from symptoms to diagnosis and correction?  Were
you ever told that other nerves in your arms were
affected?

Thanks all,
Kevin

RE: [TMIC] hot feet/shoes/croc style and I'm back

[Tim Holder (Work)]

Doesn't that just figure.  Hehehe!!!

 

Tim Holder

Worship Leader for 

Celebrate Recovery

[EMAIL PROTECTED]

(501)224-7171 ext. 1454

Fellowship Bible Church

1901 Napa Valley Drive

Little Rock, AR 72212-3913

 

 

 

 



From: Sandra Brassil [mailto:[EMAIL PROTECTED] 
Sent: Friday, June 29, 2007 2:32 PM
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: RE: [TMIC] hot feet/shoes/croc style and I'm back

 

My favorite shoes are Easy Spirit brand.  All my shoes are easy spirit.
They are extremely comfortable!   I have actually asked to be a
spokesmodel for them.  My feet are asleep and hurt all the time.  Any
little extra strap or something kills me.  I just love the Easy Spirit
shoes!!  Women only.  No Mens, sorry.

 

Sandy Brassil

Accounting Assistant

Alveolus, Inc.

"Inspiring the Breath of Life"

 

9013-A Perimeter Woods Drive

Charlotte, NC  28216

Phone:  (704) 926-4854

Fax:  (704) 926-4895

[EMAIL PROTECTED]  

http://www.alveolus.com  

 

This email may contain confidential or privileged information.  If you
are not the intended recipient, please advise me (by return email) that
you received this email by mistake.  Afterward, I respectfully request
that you erase this email without reading it or sending it to anyone
else.  Thank you. 

 



From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Friday, June 29, 2007 9:13 AM
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] hot feet/shoes/croc style and I'm back

 

So sorry about the wheelchair fiasco! But glad you had a good time. I've
been a little afraid to try crocs because my balance is such a problem
-- any shoes besides my very flat flexible ones throw me off. But I
might see if I can try some out, I've heard such great things about
them.

 

Glad you're back safe and sound!

 

Barbara H.

http://barbarah.wordpress.com/  

 

In a message dated 6/29/2007 1:49:16 AM Eastern Daylight Time,
[EMAIL PROTECTED] writes:

Hello all,

 

I'm back from a great time with the grandchildren in Orlando.
It was touch and go for the first day or two.  We were all tired from
the cross country flight, arriving past midnight and the airlines lost
my wheelchair, yet again.  We had a very tight connection, only 40
minutes, so I didn't have them gate check/retrieve it for me in Denver
where we connected, but asked them to check it all the way through to
Orlando.  When we arrived in Orlando, the chair was left in Denver.
That took almost 2 hours to figure out, so by the time we got into our
rental car, with an airline wheelchair, it was 3am.  Then, after
checking into our resort, almost 4am before we could crawl into bed.  At
least our body clocks were on west coast time, so not too bad.  

 

The next day I was eager to hit Disney's Wild Animal Park, so we
arrived around noon to a crowd of people and a lot of heat and humidity.
My husband was cranky, as well as the youngest grandson.  Not the best
way to start a vacation, but it got better from there.  We really
enjoyed spending the time with them, and think they did too.  We are all
very lucky people to have each other and to be able to spend special
time together.  We're looking forward to some more time this summer, as
we have to work around the school calendar.  I've grown to hate that
darned calendar.   

 

I bought some "croc type" shoes while away, and just love them.
They are so comfy and lightweight.  Like walking on air, no
weight at all to them.  I also wore them in the swim pool since my feet
are very sensitive to the pressure on the bottom of the pool.  The shoes
made the difference, and I even managed to do some "faux swimming" in
them.  I never really learned how to swim, and now don't have the leg
strength to do so properly.  I have a lousy kick, but even with the
shoes on, it didn't feel any different.  I highly recommend them.  I
bought a generic brand, Sahara, for $12 in Orlando.  I was chicken and
got the navy ones, but I think I'll invest in a colorful one next.  My
left foot is the hottest, and it does feel a bit hot and sticky on the
bottom only.  It's definately tolerable though, and the little nubby
things on the sole don't bother at all.  I cannot wear the strap though,
as the fastener irritates my ankle.

 

It looks like the list has been pretty busy, so it'll take me a
while till I can get through our old emails.

 

Hugs to all, 

 

Barbara Alma

 

 



See what's free at AOL.com
 . 

RE: [TMIC] hot feet/shoes/croc style and I'm back

[Sandra Brassil]

My favorite shoes are Easy Spirit brand.  All my shoes are easy spirit.
They are extremely comfortable!   I have actually asked to be a
spokesmodel for them.  My feet are asleep and hurt all the time.  Any
little extra strap or something kills me.  I just love the Easy Spirit
shoes!!  Women only.  No Mens, sorry.

 

Sandy Brassil

Accounting Assistant

Alveolus, Inc.

"Inspiring the Breath of Life"

 

9013-A Perimeter Woods Drive

Charlotte, NC  28216

Phone:  (704) 926-4854

Fax:  (704) 926-4895

[EMAIL PROTECTED]  

http://www.alveolus.com  

 

This email may contain confidential or privileged information.  If you
are not the intended recipient, please advise me (by return email) that
you received this email by mistake.  Afterward, I respectfully request
that you erase this email without reading it or sending it to anyone
else.  Thank you. 

 



From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Friday, June 29, 2007 9:13 AM
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] hot feet/shoes/croc style and I'm back

 

So sorry about the wheelchair fiasco! But glad you had a good time. I've
been a little afraid to try crocs because my balance is such a problem
-- any shoes besides my very flat flexible ones throw me off. But I
might see if I can try some out, I've heard such great things about
them.

 

Glad you're back safe and sound!

 

Barbara H.

http://barbarah.wordpress.com/  

 

In a message dated 6/29/2007 1:49:16 AM Eastern Daylight Time,
[EMAIL PROTECTED] writes:

Hello all,

 

I'm back from a great time with the grandchildren in Orlando.
It was touch and go for the first day or two.  We were all tired from
the cross country flight, arriving past midnight and the airlines lost
my wheelchair, yet again.  We had a very tight connection, only 40
minutes, so I didn't have them gate check/retrieve it for me in Denver
where we connected, but asked them to check it all the way through to
Orlando.  When we arrived in Orlando, the chair was left in Denver.
That took almost 2 hours to figure out, so by the time we got into our
rental car, with an airline wheelchair, it was 3am.  Then, after
checking into our resort, almost 4am before we could crawl into bed.  At
least our body clocks were on west coast time, so not too bad.  

 

The next day I was eager to hit Disney's Wild Animal Park, so we
arrived around noon to a crowd of people and a lot of heat and humidity.
My husband was cranky, as well as the youngest grandson.  Not the best
way to start a vacation, but it got better from there.  We really
enjoyed spending the time with them, and think they did too.  We are all
very lucky people to have each other and to be able to spend special
time together.  We're looking forward to some more time this summer, as
we have to work around the school calendar.  I've grown to hate that
darned calendar.   

 

I bought some "croc type" shoes while away, and just love them.
They are so comfy and lightweight.  Like walking on air, no
weight at all to them.  I also wore them in the swim pool since my feet
are very sensitive to the pressure on the bottom of the pool.  The shoes
made the difference, and I even managed to do some "faux swimming" in
them.  I never really learned how to swim, and now don't have the leg
strength to do so properly.  I have a lousy kick, but even with the
shoes on, it didn't feel any different.  I highly recommend them.  I
bought a generic brand, Sahara, for $12 in Orlando.  I was chicken and
got the navy ones, but I think I'll invest in a colorful one next.  My
left foot is the hottest, and it does feel a bit hot and sticky on the
bottom only.  It's definately tolerable though, and the little nubby
things on the sole don't bother at all.  I cannot wear the strap though,
as the fastener irritates my ankle.

 

It looks like the list has been pretty busy, so it'll take me a
while till I can get through our old emails.

 

Hugs to all, 

 

Barbara Alma

 







See what's free at AOL.com
 . 

Re: [TMIC] Hello to all

[natalie mizenko]

Gunny,
  I like your idea of handling things.  The thing is, I was giving baths daily 
& no one told me how bad I was til after they were there.  The same hospital is 
coming at 2:00pm to talk about their home health to me.  I should tell them - 
this one is on your hospital.  Natalie M.
  
  

Gunny <[EMAIL PROTECTED]> wrote: body{font-family: 
Geneva,Arial,Helvetica,sans-serif;font-size:9pt;background-color: 
#ff;color: black;}You can use the same catheters if you soak them in 
"Betadine" after each use, then wrap them in a sterile gauze pad, and put them 
in saran wrap or something of that nature. Suggest to your husband, just 
suggest, that he grab someone by the throat and hang them out a window till he 
gets what he wants. Just my way of doing things, but it does get results.   


  -Original Message- 
From: natalie mizenko 
Sent: Jun 29, 2007 12:12 PM 
To: Gunny 
Subject: Re: [TMIC] Hello to all 

  Gunny,
  I told my husband I wanted to see what they looked like and he came up w/ a 
brillant idea.  His phone camera.  He said let's give it a try.  2 photos from 
it and I couldn't believe what they had done to me.  Now, they want to be my 
home health - nope.
  My home health I was using would only give me a catether to reuse after my 
caths from my cathing company in Tulsa ran out.  I told them no, I'm not using 
a reusable catheter.  I said Medicare told me I could use my cathing company 
still who supplies me w/ sterile throw away caths (all in one bag system) but 
they would not pay them for any catheters.  The refused to be my home health 
provider anymore and had been off and on for 4 years.  My home health nurse had 
to call me in the hospital and tell me she was so sorry the chiefs had made 
this decision and she didn't want me to hear it from anyone and my aide is so 
upset about it all anyway.  I think I call the medical board and tell them how 
they do business.  Thanks, Natalie M.
  
  

Gunny <[EMAIL PROTECTED]> wrote: body{font-family: 
Geneva,Arial,Helvetica,sans-serif;font-size:9pt;background-color: 
#ff;color: black;}  Why don't you sue them for negligence. It might be 
trivial to them, but then again, it might wake them up!   


  -Original Message- 
From: natalie mizenko 
Sent: Jun 28, 2007 3:50 PM 
To: Transverse Myellitis 
Subject: [TMIC] Hello to all 

  Hi there,
  Well, I had to go back to the hospital after only 1 day at home.  Once again 
for excruiating pain from my feet to my hips.  This has been some of the worse 
pain I've ever had.  Then, after staying there 2 weeks, I got 2 bedsores and 
I've never, never had any.  I was at Baylor Rehab. for 7 weeks and never got 
one, because they would turn me at night.  I am so furious at them.  Now, they 
want to be my home health provider.  Geez.  My husband and I can take care of 
me - I'm sick of hospital people right now.  How's everyone?  I'm sitting up 
now in my chair as I have to be ready to go to Little Rock (one hour away) to 
see my urologist.  Later, Natalie M.
  

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Re: [TMIC] Hello to all

[natalie mizenko]

Katherine,
  Thanks for the info.  Do you still take the Echinacea & vitamins?  I have 
never used marijana for the pain.  Actually, don't have access to any - if I 
did- I think I would try anything.  
   
  It kills my husband to see me in such pain and have to leave home time and 
time again for 20 years to go to the hospital, as in 1987 I was injured in a 
car wreck and lived w/ 3 cracked discs before I went to the world's largest 
spinal clinic for them to find out what I had.  Chronic to severe pain many 
times had already set in; even after surgeries, still the pain remained.  
Finally, many years later it got better and then I started having back pain; 
many steriod shots; burning of nerves helped L4/L5; but then I woke up one 
morning feeling like I had a watermelon in my rectum.  My back was hurting 
terribly also.  My spinal surgeon in Little Rock, an hour from here diagnosed 
me w/ a herniated disc at L5/S1; after lst surgery I developed instantly Cauda 
Equina Syndrome, and had a neurogenic bladder; learned to cath then; and still 
the rectal pain progressed to the front of my pelvic floor.  I had 2 other back 
surgeries in same area and finally the 3rd one he had to fuse it.
  He couldn't cut it down anymore.  Finally, life for my husband and I looked 
bright for once in 20 years and out of the blue I fell one night on the 
bathroom floor returning to bed and could not walk on one of my legs (not the 
leg I feel on - strange).  Within days, I was hospitalized in the ER in L.R. 
and saw my spinal doc.  He said it's not your fusion Natalie, even tho it 
shifted just a little - something else is going on.  I went to a terrible rehab 
for 2 weeks while he was on vacation and went back in to the hosp. when he 
returned.  Had to having immediate surgery to have my dorsal column stimulator 
removed that was 14 years old, so I could undergo an MRI.  Results my dr. 
thought I had Transverse Myelitis, by now both legs were paralyzed.  A 
Neurologist there thought I'd had a stroke.  Baylor Rehab. did 2 MRI's while I 
was there and both confirmed it as Transverse Myelitis.  Back to severe pain 
and now being paralyzed.  I handle it well when my pain is not at a 8 to
 10 or beyond.  My husband doesn't.  I asked him last night why is he so quick 
to cuss anymore over small things that happen like when I'm getting into my 
showever chair or toilet chair like last night my shoe feel off and he said the 
GD word.  I said I don't like you saying those things.  He said I'm not saying 
them to you - it is to what is going on at the moment.  Finally, he looked 
right into my eyes and said "I am so angry that you are in the shape  you are & 
I can't do anything to reverse it."  So, I get mad now on little things easy 
Natalie.  It touched me greatly.  However, I told him; you have to get over the 
anger in order to go on with happiness in our lives.  Making bright days 
brighter and don't recall the bad days.  They are gone.  Forget them as you 
can.  Sorry for the novel.  Natalie
  
  

the_anti_fan <[EMAIL PROTECTED]> wrote:   Hi, Natalie-
  I have experienced the same type of pain in which you described.  I was 
stricken with TM in October, 1998.  Western medicine has its' limitations.  I 
began to utilize 'alternative' parishioners to manage pain.  I had started a 
business that was doing well, in home pet care, two years prior to the onset of 
TM.  I had no family to fall back on and I HAD to get better and back on my 
feet.  Accupuncture has been a TREMENDOUS help to me regarding pain.  I also 
tried golden seal and Echinacea along with really good (not from a drug store) 
vitamins with trace minerals) and even marijuana all made a significant 
difference in pain management.  Accupuncture is tremendous.
   
  Hang tough.  and know that you are not alone.
   
  Katherine in Chicago.


   
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[TMIC] Re: tmic-digest Digest V2007 #218

[MontzMagic]

NATALIE THERE IS NO EXCUSE FOR YOU TO GET BED SORES. I HAVE NEVER HAD ONE  
BUT I KNOW FROM BEING A NURSE WE CHANGED OUR PATIENTS DURING THE DAY AND THE  
NIGHT.
YOU SHOULD OF CALLED A NURSE TO REPOSITION YOU. THATS THERE JOB.
IT IRRITATES ME HOW SOME NURSES JUST DO WHAT THEY WANT OR LET THE AIDS DO  
THEIR WORK. ALOT OF NURSES DO NOT PUT YOU ON A BED PAN, THEY THINK THATS 
BENEATH 
 THEM WELL I DID ITS MY JOB. I KNOW ALOT OF NURSES WHO WILL AND SOME WHO WILL 
 NOT.
I AM SURE YOUR HUSBAND CAN TAKE BETTER CARE OF YOU. I AM SO DISAPPOINTED IN  
OUR MEDICAL PROFESSION I COULD JUST GO TO ANY HOSPITAL HERE AND BLAST THEM  .
I HOPE YOUR FEELING BETTER. IF YOU EVER HAVE TO GO BACK TO THE HOSPITAL ASK  
WHEN YOU WANT TO BE REPOSITIONED. ITS THERE JOB TO DO IT ,IF THEY DO NOT ASK 
TO  SPEAK TO THE CHARGE NURSE AND YOU STILL GET NO RESULTS GO OVER THERE HEADS 
TO  THE CEO.
THEY REALLY WILL GET YOU RESULTS THEN.
I AM LUCKY I HAVE GREAT DOCTORS AND I WORKED AT THE HOSPITAL I GO TO BUT  
ONCE I DID GO TO THE CEO AND BOY HEADS ROLLED.
   BEST WISHES PAM



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Re: [TMIC] hot feet/shoes/croc style and I'm back

[JHarper33]

 
So sorry about the wheelchair fiasco! But glad you had a good  time. I've 
been a little afraid to try crocs because my balance is such a  problem -- any 
shoes besides my very flat flexible ones throw me off. But I  might see if I 
can 
try some out, I've heard such great things about  them.
 
Glad you're back safe and sound!
 
Barbara H.
_http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) 
 
In a message dated 6/29/2007 1:49:16 AM Eastern Daylight Time,  
[EMAIL PROTECTED] writes:

Hello all,
 
I'm back from a great time with the grandchildren in  Orlando.  It was touch 
and go for the first day or two.  We were all  tired from the cross country 
flight, arriving past midnight and the airlines  lost my wheelchair, yet again. 
 
We had a very tight connection, only 40  minutes, so I didn't have them gate 
check/retrieve it for me in Denver where  we connected, but asked them to 
check it all the way through to Orlando.   When we arrived in Orlando, the 
chair 
was left in Denver.  That took  almost 2 hours to figure out, so by the time we 
got into our rental car, with  an airline wheelchair, it was 3am.  Then, 
after checking into our resort,  almost 4am before we could crawl into bed.  At 
least our body  clocks were on west coast time, so not too bad.  
 
The next day I was eager to hit Disney's Wild Animal Park,  so we arrived 
around noon to a crowd of people and a lot of heat and  humidity.  My husband 
was 
cranky, as well as the youngest grandson.   Not the best way to start a 
vacation, but it got better from there.  We  really enjoyed spending the time 
with 
them, and think they did too.  We  are all very lucky people to have each 
other and to be able to spend special  time together.  We're looking forward to 
some more time this summer, as  we have to work around the school calendar.  
I've grown to hate that  darned calendar.   
 
I bought some "croc type" shoes while away, and just love  them.  They are 
so comfy and lightweight.  Like walking on  air, no weight at all to 
them.  I also wore them in the swim pool since  my feet are very sensitive to 
the 
pressure on the bottom of the pool.   The shoes made the difference, and I 
even managed to do some "faux swimming"  in them.  I never really learned how 
to 
swim, and now don't have the leg  strength to do so properly.  I have a lousy 
kick, but even with the shoes  on, it didn't feel any different.  I highly 
recommend them.  I  bought a generic brand, Sahara, for $12 in Orlando.  I was 
chicken and  got the navy ones, but I think I'll invest in a colorful one next. 
  My left foot is the hottest, and it does feel a bit hot and sticky on the  
bottom only.  It's definately tolerable though, and the little nubby  things 
on the sole don't bother at all.  I cannot wear the strap though,  as the 
fastener irritates my ankle.
 
It looks like the list has been pretty busy, so it'll take  me a while till I 
can get through our old emails.
 
Hugs to all, 
 
Barbara Alma



 



** See what's free at http://www.aol.com.