Re: [TMIC] Oprah

[Larry Throne]

I may be dating my self but I believe the county western singer Donna Fargo had TM in the late 70's but think she has gotten quite a bit of return.  The guy on Montel was Allen Rucker.  Nice guy and I enjoyed his book.  He might be someone to contact about contacting Opra, 60 minutes, ect.Larry in Oklahoma

 


From: "Westgold" <[EMAIL PROTECTED]>To: <[EMAIL PROTECTED]>, Subject: Re: [TMIC] OprahDate: Sat, 22 Sep 2007 23:04:53 -0400



Hi everybody --- Is Cody the most famous person with TM?  That guy who was on Montel is also well-known, we should also be telling Oprah about him.  (She really likes people who have written books.)  A famous person with any disease always helps raise the profile and raise more research dollars.  I have sarcoidosis, and hardly anybody heard about it until 60 Minutes did a spot on model & former MTV VJ Karen Duffy and her struggle with it, and the book she wrote.  Then Bernie Mac came out & said he had it too.  A spot on 60 Minutes would be great for TM too!  
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Re: [TMIC] Oprah

[Westgold]

Hi everybody --- Is Cody the most famous person with TM?  That guy who was on 
Montel is also well-known, we should also be telling Oprah about him.  (She 
really likes people who have written books.)  A famous person with any disease 
always helps raise the profile and raise more research dollars.  I have 
sarcoidosis, and hardly anybody heard about it until 60 Minutes did a spot on 
model & former MTV VJ Karen Duffy and her struggle with it, and the book she 
wrote.  Then Bernie Mac came out & said he had it too.  A spot on 60 Minutes 
would be great for TM too!  

[TMIC] Oprah

[gbthomas8374]

I wrote to Oprah about Cody Unser being on her show.  

I guess the benefit of exposing people to TM is 1) perhaps it would result in 
more funding being made available for research   2) more doctors will be 
familiar with TM and recognize symptoms more quickly and 3) others might be 
aware not to take for granted their health and be more understanding of those 
with disorders.

One example of this 3rd point is 
when I came back to work after being off with my initial TM experience.  I 
found out that a co-worker, a big Indy 500 fan, knew about Cody Unser and thus 
was a little aware of TM when others at work had not a clue.  So, it is nice 
when others are introduced to TM, not to give  sympathy but to better 
understand that we may not always be able to be at our "best" but rather are 
just trying to make it through the day.

Gary in Michigan

Re: [TMIC] re: TM & Oprah

[Carol]

Yes, I think it would be good for MANY people to write to Oprah.  I wrote 
probably about 1 year ago and never heard anything back.  I was never 
notified by the group if anyone else wrote or not.


Carol in Culver, IN


- Original Message - 
From: "Kevin Wolfthal" <[EMAIL PROTECTED]>

To: 
Sent: Saturday, September 22, 2007 6:40 PM
Subject: [TMIC] re: TM & Oprah





Naomi,

Thank you!
I also wrote to Cody Unser.  She and her Mom both emailed me back.  Cody 
is very interested in

doing this.

I know this has been tried before, but it can't hurt to try again.  I 
think we need to bombard

Oprah with requests.

Take care,
Kevin

ps:  Here's the Oprah link to write to: 
http://www.oprah.com/email/reach/email_showideas.jhtml

[TMIC] re: TM & Oprah

[Kevin Wolfthal]

Naomi,

Thank you!
I also wrote to Cody Unser.  She and her Mom both emailed me back.  Cody 
is very interested in

doing this.

I know this has been tried before, but it can't hurt to try again.  I 
think we need to bombard

Oprah with requests.

Take care,
Kevin

ps:  Here's the Oprah link to write to:  
http://www.oprah.com/email/reach/email_showideas.jhtml

Re: [TMIC] Itching

[JHarper33]

 
It almost sounds like an allergic reaction to something. You  might try an 
antihistamine (if it's ok with your other medicines) and see if it  helps.
 
I had hives (itchy whelps) once while on amoxicillen. I'd  taken it with no 
problem before. It was miserable -- itchy red whelps everywhere  -- eventually 
even my lips were swollen. It was over a weekend so I took  Benadryl, which 
helped, but also knocked me out. I ended up having to go to the  ER on Monday, 
not because it was an emergency, but because when I called my  doctor's office 
he was out. If I had known I'd be doing that, I would have gone  ahead and 
gone in over the weekend. He gave me a shot of something, I don't  remember 
what, 
and referred me to a dermatologist. I don't remember what the  treatment was, 
but it took a while to work out of my system.
 
An allergic reaction can cause breathing problems -- if there  is any sign of 
that happening, call 911 right away.
 
Barbara H.
_http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) 
 
 
In a message dated 9/22/2007 2:53:06 PM Eastern Daylight Time,  
[EMAIL PROTECTED] writes:

To everyone:
While I was in the hospital I got this terrible red rash & it  is still going 
on.  I have an appt. w/ my dermatologist the first  week of Oct.  I itch all 
the time everywhere and when I scatch  whelps like come up.  Also, even my 
watch touching me, if it hits  the bed too hard or something, it causes a red 
spot.  I washed my  face this morning and my husband said you have a red face 
with whelps on  it.  StrangeI don't know what is going on.  I am in misery  
itching...Any similar stories???  Natalie  M.



 



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Re: [TMIC] Itching

[Stacy Harim]

hi Natalie,

I thought I had gotten a rash when I was in the hospital and then it continued 
to spread.  It was between my legs on the skin.  I was prescribed powder and it 
took care of it.  It is different than what yiu have I am sure.

Stacy
  - Original Message - 
  From: natalie mizenko 
  To: Transverse Myellitis 
  Sent: Saturday, September 22, 2007 2:41 PM
  Subject: [TMIC] Itching


To everyone:
While I was in the hospital I got this terrible red rash & it is still 
going on.  I have an appt. w/ my dermatologist the first week of Oct.  I itch 
all the time everywhere and when I scatch whelps like come up.  Also, even my 
watch touching me, if it hits the bed too hard or something, it causes a red 
spot.  I washed my face this morning and my husband said you have a red face 
with whelps on it.  StrangeI don't know what is going on.  I am in misery 
itching...Any similar stories???  Natalie M. 
   



--
  Be a better Globetrotter. Get better travel answers 
from
 someone who knows.
  Yahoo! Answers - Check it out. 

[TMIC] Itching

[natalie mizenko]

To everyone:
  While I was in the hospital I got this terrible red rash & it is still going 
on.  I have an appt. w/ my dermatologist the first week of Oct.  I itch all the 
time everywhere and when I scatch whelps like come up.  Also, even my watch 
touching me, if it hits the bed too hard or something, it causes a red spot.  I 
washed my face this morning and my husband said you have a red face with whelps 
on it.  StrangeI don't know what is going on.  I am in misery itching...Any 
similar stories???  Natalie M.
  

   
-
Be a better Globetrotter. Get better travel answers from someone who knows.
Yahoo! Answers - Check it out.

Re: [TMIC] one of our felloe TM'ers

[natalie mizenko]

To all:
  I had Botox injections for my neck back in the late 80's - it was 
experimental then.  I had it done once and it did not work for my neck.  Every 
body is different tho.  Natalie M.
  
  

[EMAIL PROTECTED] wrote:   Bernie
The first thing I thought of when I read your post was my neuro asking me if I 
wanted to try botox injections. Have you looked into this to reduce the spasms?
Patti - Michigan

 Bernard Pelow wrote: 

=
*This is scary for me. For the last few months my right leg has been 
contracting to where I can hardly get the knee past 90 degrees anymore, 
no matter how much I massage and stretch my leg. And when I have spasms 
now, the leg tries to straighten out, and it causes a lot more pain than 
usual. Is this a normal procedure for someone in this condition? I 
really do NOT want another surgery, especially to lose my leg.
Peace,
Bernie in Texas*

>
> Hi Ella,
> Just wanted to let you know that Red is having his left 
> leg amputated tomorrow, September 20th, around 2:00 in the afternoon. 
> The doctors think it best to go above the knee since his leg is 
> contracted.
>



   
-
 Check out  the hottest 2008 models today at Yahoo! Autos.

Re: [TMIC] L'Shona Tova

[ACAROE]

Trudy,   Thank you  too.I am sorry you are with pain all the time.  My  
biggest problem is my rear end.   I have a constant burning sensation  , no 
matter what I sit on.   Go explain that to people.   Anyhow,  no use in 
complaining.  It wont change things.Just put a smile on your face and have 
a big 
glass of wine and I find that helps  alot.
Take care,  Rosalie



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RE: [TMIC] L'Shona Tova

[Trudy]

Rosalie,

Thank you! and may you have a happy, holy Yom Kippur. I wish all of us would
have one day set aside to ask for forgiveness!! I know the world would be a
better place.

TM hit me in 2001.. I don't remember "normal" anymore. and I used to hold in
my feelings and found it to be a huge mistake. Not that I am a constant
complainer, but one of my friends just a few months ago could not believe
that I am in constant pain from my waist down. So now I just jokingly say
when someone asks how are you?  Oh, you know how it is,  you gotta get up
and get out of bed each day!! So then if they REALLY want to know how I am.
"sit down, dear, this is going to take awhile".  :-)

I was so upset with my neurologist one day I said. "O.K. now I want you to
tell me how I am feeling, what is happening to my legs!!! Do you really
understand ?? It helped me a little to get that out..

Take care. and know that each day I ask the God of my Faith to be with and
give you strength and courage!

Trudy

 

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Friday, September 21, 2007 7:41 PM
To: tmic-list@eskimo.com
Subject: [TMIC] L'Shona Tova

 

For all of you that are Jewish and everyone else, have a Happy and Healthy
New Year.  May the coming year bring us all peace and a feeling of well
being and perhaps a little more medical insight into our problems.

I, for one, have not felt "normal" since Labor Day weekend 2005.  If
one more person tells me what a great attitude I have I am going to bop them
one.  I never let my feelings show on the outside so they never know what it
is like to live with TM.  Thank goodness for this list of understanding
people.  I may not write to often but I empathize with all of you.  

By the way, had drinks with a TMer who lives near me.  We met without
the spouses and had a wonderful talking session.  Finally put a face to
someone on the list.

Stay well, Rosalie

PS  Lets try to get all of those non-handicapped people out of our parking
spaces.  That is one of my biggest pet peeves.





  _  

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and Make AOL Your
  Homepage.

Re: [TMIC] OT: Spiritual perspective on disabilities

[Grace M.]

*This is just beautiful.  Thank you so much for posting it.*
**
*Grace*

[TMIC] OT: Spiritual perspective on disabilities

[JHarper33]

I receive a daily e-mail devotional made up of the writings of Elisabeth  
Elliot (they are posted daily at 
_http://www.backtothebible.org/authors-attic.html_ 
(http://www.backtothebible.org/authors-attic.html) ).  The one this 
morning, dealing with disabilities, was one I thought many TMers  could benefit 
from. 
It's from her book Keep a Quiet Heart in a chapter  entitled "There Are No 
Accidents."
 
 
 
"There Are No Accidents"
Elisabeth Elliot
 
My friend Judy Squier of Portola Valley, California, is one of the most  
cheerful and radiant women I know. I met her first in a prayer meeting at the  
beginning of a conference. She was sitting in a wheel chair, and I noticed  
something funny about her legs. Later that day I saw her with no legs at all. 
In  
the evening she was walking around with crutches. Of course I had to ask her  
some questions. She was born with no legs; she had artificial ones which she  
used sometimes, but they were tiresome, she said (laughing) and she often left  
them behind. When I heard of a little baby boy named Brandon Scott, born 
without  arms or legs, I asked if she would write to his parents. She did:  
"The first thing I would say is that all that this entails is at least one  
hundred times harder on the parents than the child. A birth defect by God's  
grace does not rob childhood of its wonder, nor is a child burdened by high  
expectations. Given a supportive, creative, and loving family, I know 
personally  
that I enjoyed not a less-than-average life nor an average life, but as I've  
told many, my life has been not ordinary but extra-ordinary.  
"I am convinced without a doubt that a loving Heavenly Father oversees the  
creative miracles in the inner sanctum of each mother's womb (Psalm 139), and  
that in His sovereignty there are no accidents.  
"'What the caterpillar calls the end of the world, the Creator calls a  
butterfly.' As humanity we see only the imperfect, underside of God's tapestry  
of 
our lives. What we judge to be 'tragic--the most dreaded thing that could  
happen,' I expect we'll one day see as the awesome reason for the beauty and  
uniqueness of our life and our family. I think that's why James 1:2 is a  
favorite verse of mine. Phillips' translation put it this way: 'When all kinds  
of 
trials and temptations crowd into your lives, my brothers, don't resent them  
as 
intruders but welcome them as friends.'  
"I love Joni Eareckson Tada's quote. When I saw it on the front of Moody  
Monthly, October 1982, I was convinced she'd penned the words for my epitaph.  
Now my husband David is aghast to hear me say I want it on my tombstone! Glory  
be!  
People with disabilities are God's best visual aids to demonstrate who He  
really is. His power shows up best in weakness. And who by the world's 
standards 
 is weaker than the mentally or physically disabled? As the world watches, 
these  people persevere. They live, love, trust and obey Him. Eventually the 
world is  forced to say, "How great their God must be to inspire this kind of  
loyalty."  
"Being Christian didn't shield my family from the pain and tears that came  
with my birth defect. In fact, ten years ago when David and I interviewed our  
parents for a Keepsake Tape, I was stunned to hear my mother's true feelings. 
I  asked her to tell the hardest thing in her life. Her response: 'the day 
Judy Ann  was born and it still is' And yet when we as a family look back 
over the  years, our reflections are invariably silenced by the wonder of God's 
handiwork.  Someday I hope to put it in a book and I know it will be to the 
glory of God.  
"Getting married and becoming a mother were dreams I never dared to dream,  
but God, the doer of all miracles intended that my life be blessed with an  
incredible husband and three daughters. Emily is nine, Betsy will soon be 
seven,  
and Naphtalie Joy is four. I've decided that every handicapped person needs 
at  least one child. They are fantastic helpers and so willing to let me 
'borrow  their legs' when I need help.  
"You as a family have been chosen in a special way to display His unique  
Masterwork. I pray that your roots of faith will grow deep down into the  
faithfulness of God's Loving Plan, that you will exchange your inadequacy for  
the 
Adequacy of Jesus' resurrection power, and that you will be awed as you  
witness 
the fruits of the Spirit manifested in your  family."



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Re: [TMIC] one of our felloe TM'ers

[pjv1234]

Bernie
The first thing I thought of when I read your post was my neuro asking me if I 
wanted to try botox injections. Have you looked into this to reduce the spasms?
Patti - Michigan

 Bernard Pelow <[EMAIL PROTECTED]> wrote: 

=
*This is scary for me. For the last few months my right leg has been 
contracting to where I can hardly get the knee past 90 degrees anymore, 
no matter how much I massage and stretch my leg.  And when I have spasms 
now, the leg tries to straighten out, and it causes a lot more pain than 
usual. Is this a normal procedure for someone in this condition? I 
really do NOT want another surgery, especially to lose my leg.
Peace,
Bernie in Texas*

>
> Hi Ella,
> Just wanted to let you know that Red is having his left 
> leg amputated tomorrow, September 20th, around 2:00 in the afternoon.  
> The doctors think it best to go above the knee since his leg is 
> contracted.
>