RE: [TMIC] Swollen Hands

[Bob and Sue Mattis]

Deana,
My TM did not affect my hands, however, I would say that eventhough your
local emergency room might not "have a clue" in regards to a TM issue, I
believe that is your best response if doctors are otherwise not
available.  It's possible it's a problem not related to his TM, and
swelling, heat and redness should not be ignored regardless of the
origin. Let us know how you make out.
Sue Mattis
 
-Original Message-
From: Deana Lehman [mailto:[EMAIL PROTECTED] 
Sent: Monday, October 15, 2007 11:27 AM
To: tmic-list@eskimo.com
Subject: [TMIC] Swollen Hands
 
My husband had an acute, idiopathic TM attack August 9th of 2007.  He
has regained some use of right hand and arm, but the left one is
stubborn and today is swollen about 3 times normal size with
considerable heat and redness.  Both doctors we might consult are gone,
and our rural emergency room won't have a clue.  Can anyone help with a
suggestion?  Also-in your experience, does working the hand too much or
not enough cause more swelling?  Thanks for your help.
 
 

RE: [TMIC] Lots to chat about

[LifeIsJoy]

To Patti in MichiganMy doc wrote a script for a walker and I got the
kind that has four wheels and a seatwhen you tire, you sit down and
restthen get up and go again.  You might look into that.  Dee in Arizona

 

From: Trudy [mailto:[EMAIL PROTECTED] 
Sent: Monday, October 15, 2007 3:21 PM
To: [EMAIL PROTECTED]; 'tmic-list-at-eskimo.com'
Subject: RE: [TMIC] Lots to chat about

 

Patti,

I am taking the same meds. two 75mg of Lyrica. Cymbalta 90mg. I take the
Cymbalta in the a.m. I just thought that I would like that boost for the
pain during the day. I have my neuro appointment in Dec. will let you know
if there are any changes. I also have vicodin for when the pain gets too
much. That usually happens if I work longer hours than I should and when I
travel. Sitting in planes, cars etc. makes my legs crazy. My pain is from
the waist down. I know it will never go away completely but at least I can
function. 

Hope this helps

Trudy

 

 

-Original Message-
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Sunday, October 14, 2007 10:09 PM
To: tmic-list-at-eskimo.com
Subject: [TMIC] Lots to chat about

 

I've been checking in to see what's going on too!

I had my annual neuro appt last week and have to say he sure is interested
in the amount of pain I deal with.  Last year my Neuro gave me samples of
Lyrica that I never took due to various posts from others and the cost that
I will incur if I can't get samples.  So this is the route he would like me
to take:

   1. replace my 2400mg of daily gabapenton with 75mg twice daily

   2. increase 60mg Cymbalta to 90mg for 2 weeks, then to 120mg daily

   3. increase Baclofen from 10mg every 6 hours to to every 4 to 5 hrs

   4. Take 5mg Valium if needed on a rare basis

I know this is a lot of changes, however, I'm going to do them one step at a
time.

 

I decided to take the plunge and try the Lyrica immediately.  Literally! My
Neuro assured me again that I could switch from the gabapentin to the Lyrica
without any effects so I did it that evening and the change went fine.  I
had a slight headache for about 1/2 hour for the first 3 doses and that was
the only side effect.  I just went thru the big weather change from 90
degrees to a 50 degree with rain and tolerated it better than I could have
imagined. I'm not out of pain, but I'm not ready to cut my leg off either.  

 

I have taken the Baclofen often than at 6 hours twice and it helps to know
that I can take them as soon as my back muscles start to spasm.  That is a
big relief.

 

Now, specifically for those of you who take CymbaltaIs ther a time of
day to take it that works better for you?  I asked my Neuro if it mattered
and his answer was not unless it keeps you awake.  I  don't have trouble
falling asleep, just staying asleep.  I wonder if the Cymbalta is the
culprit.

 

My Neuro also wrote me an RX for a walker so I can walk distances without
the muscle spasms.  I paid attention to the questions and answers recently
so I think I have that covered.

 

Does anyone have any suggestions or comments on my news?

 

Patti - Michigan  

 

Re: [TMIC] Five Year Plan

[Jenna Stentz]

Ann,
 
I just wanted to let you know.  Acupuncture did work for me.  I am off all pain 
meds.  Just give it time and make sure you have someone that really understands 
what is going on with you.
 
Good luck, Jenna


 
- Original Message 
From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Sent: Monday, October 15, 2007 8:27:28 PM
Subject: [TMIC] Five Year Plan


The medical community has had me for the first five years.  I have decided that 
I am not wild about their plan since obviously there is none so am devising my 
own.  My neuro is so busy that he will see me only twice a year so I am going 
to Charlotte, NC to see a new neuro that a friend of mine knows.  Am busy 
making a list of all of my problems which to some will see little but to me I 
want them better.  If any of you have any suggestions, feel free to become a 
part of my medical community. 
 
l. Feet feel like marbles with duct tape wrapped around them.  (Am finding that 
message helps a lot)
 
2. Legs feel like wooden solders.  (Message helps}
 
3  Pain right side and hip..  (Heating pad only thing that helps)
 
4. Right buttocks not happy.  (no suggestions Maybe loose weight.
 
5 Banding under boobs.  ( does not happen often but is getting worse)
 
6.Have you ever seen a little balloon inside a big one?  That is how my right 
side feels sometimes if this makes sense.
 
I walk with the cane and am finding I am hurting more when I walk.  If I could 
stay seated all the time I would be a happy camper
 
I am taking 2400 gabapentin and Tramadol when needed.  Have tried baclofen and 
cymbalta but could not take either.  My plan right now is to try everything 
that was suggested in the Spring newsletter. Pain doctor is being quite helpful 
with this.  This is an interesting article if you all have not seen it  Medical 
approach to the management of neuropathic pain.  Am trying acupuncture.. Jury 
still out on this.
 
Trudy in case you read this I am coming to Va. Beach in November for a bridge 
tournament.  Know you live in the eastern part of Virginia but am not sure 
where.  Do you happen to be in Va. Beach?  
 
Ann in Roanoke   (I am usually never chatty.)






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Re: [TMIC] Lots to chat about

[ashfordrichard]

Lynn,Hi this Rick, Lyrica couldn't touch  my pain I require something stronger 
but I tried Cymbalta also and also felt like my heart was going to bounce out 
of my chest. I would be careful with Cymbalta if I had any doubt about having 
heart problems. I liked the feeling Cymbalta gave me but didn't like the heart 
racing,I guess that makes sense. It may be a compound drug and one part of it 
makes your heart race. Zoloft works for me. Thanks Rick. Hey everybody I'm 
still here. PS. Cymbalta is a morning Drug in my opinion.

--
GOD BLESS US ALL>


-- Original message --
From: "Lynn Pouliot" <[EMAIL PROTECTED]>
>
> Hi Patti,
> 
> I hope this plan works out for you.  It is great that your neuro is taking 
> such an interest in your pain.  Some of the neuros you hear about don't seem 
> to care very much.
> I have been taking Lyrica for about a year.  It has done pretty well for me. 
> My legs are in much less pain than they were before starting it.  I was 
> taking tegratal and switched right away to Lyrica with no problems.   I 
> tried cymbalta a few months ago.  I found I had to take it in the morning. 
> When I took it at night I was awake most of the night and felt that my heart 
> was racing.  When I switched to mornings I had no problems.  Unfortunately 
> it caused such dry mouth I couldn't stand it.  I think because I already 
> have dry mouth from the bladder meds and this just made it unbearable.  Hope 
> this helps.
> 
> Lynn in RI (cool and sunny)
> - Original Message - 
> From: <[EMAIL PROTECTED]>
> To: "tmic-list-at-eskimo.com" 
> Sent: Sunday, October 14, 2007 10:09 PM
> Subject: [TMIC] Lots to chat about
> 
> 
> > I've been checking in to see what's going on too!
> > I had my annual neuro appt last week and have to say he sure is interested 
> > in the amount of pain I deal with.  Last year my Neuro gave me samples of 
> > Lyrica that I never took due to various posts from others and the cost 
> > that I will incur if I can't get samples.  So this is the route he would 
> > like me to take:
> >   1. replace my 2400mg of daily gabapenton with 75mg twice daily
> >   2. increase 60mg Cymbalta to 90mg for 2 weeks, then to 120mg daily
> >   3. increase Baclofen from 10mg every 6 hours to to every 4 to 5 hrs
> >   4. Take 5mg Valium if needed on a rare basis
> > I know this is a lot of changes, however, I'm going to do them one step at 
> > a time.
> >
> > I decided to take the plunge and try the Lyrica immediately.  Literally! 
> > My Neuro assured me again that I could switch from the gabapentin to the 
> > Lyrica without any effects so I did it that evening and the change went 
> > fine.  I had a slight headache for about 1/2 hour for the first 3 doses 
> > and that was the only side effect.  I just went thru the big weather 
> > change from 90 degrees to a 50 degree with rain and tolerated it better 
> > than I could have imagined. I'm not out of pain, but I'm not ready to cut 
> > my leg off either.
> >
> > I have taken the Baclofen often than at 6 hours twice and it helps to know 
> > that I can take them as soon as my back muscles start to spasm.  That is a 
> > big relief.
> >
> > Now, specifically for those of you who take CymbaltaIs ther a time of 
> > day to take it that works better for you?  I asked my Neuro if it mattered 
> > and his answer was not unless it keeps you awake.  I  don't have trouble 
> > falling asleep, just staying asleep.  I wonder if the Cymbalta is the 
> > culprit.
> >
> > My Neuro also wrote me an RX for a walker so I can walk distances without 
> > the muscle spasms.  I paid attention to the questions and answers recently 
> > so I think I have that covered.
> >
> > Does anyone have any suggestions or comments on my news?
> >
> > Patti - Michigan
> >
> > 
> 
> 

[TMIC] Five Year Plan

[AnnDillon]

The medical community has had me for the first five years.  I have  decided 
that I am not wild about their plan since obviously there is none so am  
devising my own.  My neuro is so busy that he will see me only twice a  year so 
I am 
going to Charlotte, NC to see a new neuro that a friend of mine  knows.  Am 
busy making a list of all of my problems which to some will see  little but to 
me I want them better.  If any of you have any suggestions,  feel free to 
become a part of my medical community. 
 
l. Feet feel like marbles with duct tape wrapped around them.  (Am  finding 
that message helps a lot)
 
2. Legs feel like wooden solders.  (Message helps}
 
3  Pain right side and hip..  (Heating pad only thing that  helps)
 
4. Right buttocks not happy.  (no suggestions Maybe loose  weight.
 
5 Banding under boobs.  ( does not happen often but is getting  worse)
 
6.Have you ever seen a little balloon inside a big one?  That is how  my rig
ht side feels sometimes if this makes sense.
 
I walk with the cane and am finding I am hurting more when I walk.  If  I 
could stay seated all the time I would be a happy camper
 
I am taking 2400 gabapentin and Tramadol when needed.  Have tried  baclofen 
and cymbalta but could not take either.  My plan right now is to  try 
everything that was suggested in the Spring newsletter. Pain doctor is being  
quite 
helpful with this.  This is an interesting article if you all have  not seen it 
 
Medical approach to the management of neuropathic pain.   Am trying 
acupuncture.. Jury still out on this.
 
Trudy in case you read this I am coming to Va. Beach in November for a  
bridge tournament.  Know you live in the eastern part of Virginia but am  not 
sure 
where.  Do you happen to be in Va. Beach?  
 
Ann in Roanoke   (I am usually never  chatty.)



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Re: [TMIC] Lots to chat about

[Lynn Pouliot]

Hi Patti,

I hope this plan works out for you.  It is great that your neuro is taking 
such an interest in your pain.  Some of the neuros you hear about don't seem 
to care very much.
I have been taking Lyrica for about a year.  It has done pretty well for me. 
My legs are in much less pain than they were before starting it.  I was 
taking tegratal and switched right away to Lyrica with no problems.   I 
tried cymbalta a few months ago.  I found I had to take it in the morning. 
When I took it at night I was awake most of the night and felt that my heart 
was racing.  When I switched to mornings I had no problems.  Unfortunately 
it caused such dry mouth I couldn't stand it.  I think because I already 
have dry mouth from the bladder meds and this just made it unbearable.  Hope 
this helps.


Lynn in RI (cool and sunny)
- Original Message - 
From: <[EMAIL PROTECTED]>

To: "tmic-list-at-eskimo.com" 
Sent: Sunday, October 14, 2007 10:09 PM
Subject: [TMIC] Lots to chat about



I've been checking in to see what's going on too!
I had my annual neuro appt last week and have to say he sure is interested 
in the amount of pain I deal with.  Last year my Neuro gave me samples of 
Lyrica that I never took due to various posts from others and the cost 
that I will incur if I can't get samples.  So this is the route he would 
like me to take:

  1. replace my 2400mg of daily gabapenton with 75mg twice daily
  2. increase 60mg Cymbalta to 90mg for 2 weeks, then to 120mg daily
  3. increase Baclofen from 10mg every 6 hours to to every 4 to 5 hrs
  4. Take 5mg Valium if needed on a rare basis
I know this is a lot of changes, however, I'm going to do them one step at 
a time.


I decided to take the plunge and try the Lyrica immediately.  Literally! 
My Neuro assured me again that I could switch from the gabapentin to the 
Lyrica without any effects so I did it that evening and the change went 
fine.  I had a slight headache for about 1/2 hour for the first 3 doses 
and that was the only side effect.  I just went thru the big weather 
change from 90 degrees to a 50 degree with rain and tolerated it better 
than I could have imagined. I'm not out of pain, but I'm not ready to cut 
my leg off either.


I have taken the Baclofen often than at 6 hours twice and it helps to know 
that I can take them as soon as my back muscles start to spasm.  That is a 
big relief.


Now, specifically for those of you who take CymbaltaIs ther a time of 
day to take it that works better for you?  I asked my Neuro if it mattered 
and his answer was not unless it keeps you awake.  I  don't have trouble 
falling asleep, just staying asleep.  I wonder if the Cymbalta is the 
culprit.


My Neuro also wrote me an RX for a walker so I can walk distances without 
the muscle spasms.  I paid attention to the questions and answers recently 
so I think I have that covered.


Does anyone have any suggestions or comments on my news?

Patti - Michigan

RE: [TMIC] Lots to chat about

[Trudy]

Patti,

I am taking the same meds. two 75mg of Lyrica. Cymbalta 90mg. I take the
Cymbalta in the a.m. I just thought that I would like that boost for the
pain during the day. I have my neuro appointment in Dec. will let you know
if there are any changes. I also have vicodin for when the pain gets too
much. That usually happens if I work longer hours than I should and when I
travel. Sitting in planes, cars etc. makes my legs crazy. My pain is from
the waist down. I know it will never go away completely but at least I can
function. 

Hope this helps

Trudy

 

 

-Original Message-
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Sunday, October 14, 2007 10:09 PM
To: tmic-list-at-eskimo.com
Subject: [TMIC] Lots to chat about

 

I've been checking in to see what's going on too!

I had my annual neuro appt last week and have to say he sure is interested
in the amount of pain I deal with.  Last year my Neuro gave me samples of
Lyrica that I never took due to various posts from others and the cost that
I will incur if I can't get samples.  So this is the route he would like me
to take:

   1. replace my 2400mg of daily gabapenton with 75mg twice daily

   2. increase 60mg Cymbalta to 90mg for 2 weeks, then to 120mg daily

   3. increase Baclofen from 10mg every 6 hours to to every 4 to 5 hrs

   4. Take 5mg Valium if needed on a rare basis

I know this is a lot of changes, however, I'm going to do them one step at a
time.

 

I decided to take the plunge and try the Lyrica immediately.  Literally! My
Neuro assured me again that I could switch from the gabapentin to the Lyrica
without any effects so I did it that evening and the change went fine.  I
had a slight headache for about 1/2 hour for the first 3 doses and that was
the only side effect.  I just went thru the big weather change from 90
degrees to a 50 degree with rain and tolerated it better than I could have
imagined. I'm not out of pain, but I'm not ready to cut my leg off either.  

 

I have taken the Baclofen often than at 6 hours twice and it helps to know
that I can take them as soon as my back muscles start to spasm.  That is a
big relief.

 

Now, specifically for those of you who take CymbaltaIs ther a time of
day to take it that works better for you?  I asked my Neuro if it mattered
and his answer was not unless it keeps you awake.  I  don't have trouble
falling asleep, just staying asleep.  I wonder if the Cymbalta is the
culprit.

 

My Neuro also wrote me an RX for a walker so I can walk distances without
the muscle spasms.  I paid attention to the questions and answers recently
so I think I have that covered.

 

Does anyone have any suggestions or comments on my news?

 

Patti - Michigan  

 

RE: [TMIC] where is the chatter

[pjv1234]

Congratulations Moma Trudy.  I am a grandma to just one so I know the 
excitement you are experiencing.  Being a grandma takes away some of the TM 
hurt.  You cannot spoil a baby!  I hope you are ready for an explosion of 
digital pictures on you computer.

Patti - Michigan

 Trudy  <[EMAIL PROTECTED]> wrote: 

=
 

 

I just returned from a week in San Mateo, Calif. I am a grandmother for the
very first time and spent a week just spoiling my grandson, Declan. He's
beautiful and a true miracle. I can't wait till he comes for Christmas here
in Virginia. Since the "other" grandmother already has 6 grandchildren I had
to come up with a name for me!! After much thought I decided to be called
Moma - now Moma does stand for Museum of Modern Art - and I have been known
to do some "eccentric" New Yorker type

escapades - and at times I have been called a real "piece of work".. so Moma
it is. :-)

I hope all is well with everyone!

Trudy 

Re: [TMIC] where is the chatter

[Jenna Stentz]

Trudy,

Very funny.  Congrat's on becoming a Moma for the first time!

Jenna



- Original Message 
From: Trudy <[EMAIL PROTECTED]>
To: Jenna Stentz <[EMAIL PROTECTED]>; LifeIsJoy <[EMAIL PROTECTED]>; L T 
CHERPESKI <[EMAIL PROTECTED]>; [EMAIL PROTECTED]; Grace M. <[EMAIL PROTECTED]>
Cc: tmic-list@eskimo.com
Sent: Monday, October 15, 2007 11:23:31 AM
Subject: RE: [TMIC] where is the chatter


 
 
I just returned from a week in San Mateo, Calif. I am a grandmother for the 
very first time and spent a week just spoiling my grandson, Declan. He’s 
beautiful and a true miracle. I can’t wait till he comes for Christmas here in 
Virginia. Since the “other” grandmother already has 6 grandchildren I had to 
come up with a name for me!! After much thought I decided to be called Moma – 
now Moma does stand for Museum of Modern Art – and I have been known to do some 
“eccentric” New Yorker type
escapades – and at times I have been called a real “piece of work”…. so Moma it 
is… J
I hope all is well with everyone!
Trudy


   

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Re: [TMIC] Lots to chat about

[Grace M.]

>
> *Hi Patti,*


*I take my Cymbalta as soon as I wake up in the morning.  I've never had a
bit of trouble with it.  It's the only drug that has helped me with my
depression and it has the added benefit of helping with the neuropathic
pain.*
**
*Grace*

[TMIC] Swollen Hands

[Deana Lehman]

My husband had an acute, idiopathic TM attack August 9th of 2007.  He
has regained some use of right hand and arm, but the left one is
stubborn and today is swollen about 3 times normal size with
considerable heat and redness.  Both doctors we might consult are gone,
and our rural emergency room won't have a clue.  Can anyone help with a
suggestion?  Also-in your experience, does working the hand too much or
not enough cause more swelling?  Thanks for your help.

 

 

RE: [TMIC] where is the chatter

[Trudy]

 

 

I just returned from a week in San Mateo, Calif. I am a grandmother for the
very first time and spent a week just spoiling my grandson, Declan. He's
beautiful and a true miracle. I can't wait till he comes for Christmas here
in Virginia. Since the "other" grandmother already has 6 grandchildren I had
to come up with a name for me!! After much thought I decided to be called
Moma - now Moma does stand for Museum of Modern Art - and I have been known
to do some "eccentric" New Yorker type

escapades - and at times I have been called a real "piece of work".. so Moma
it is. :-)

I hope all is well with everyone!

Trudy 

[TMIC] the weather

[ACAROE]

Hi All,   Glad to see people  are back emailing.  I thought Iwas off the list 
for a while.  Well I  am back to Florida from New York.  I need the warm 
weather as Iam sure alot  of you guys do.Problem is when it is warm, most 
places are  highly air conditioned.   The top half of me is warm but my feet 
are  
always cold, especially when air conditioning hits any part of my body.  It  
is a strange sensation to feel really warm and your feet feel like they are in 
a  bucket of ice.  Well, stay warm or cool everyone, whatever suits you.   
Rosalie



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Re: [TMIC] what's up?

[Grace M.]

*Heya Ms. J,*
**
*Of course things fell apart!!   Surely you did not think that your two
favorite cohorts would remain idle during your absence?  It's time to get
back to business Sweetness.don't forget that you, Frank, and I have a
soiree to attend.;-)*
**
*I love you and miss you and pray that this last procedure will help you.
Please keep us posted this time---there was much worrying and fingernail
biting from this quarter.*
**
*XOXOXO*
*Gracie*
**
**

RE: [TMIC] where is the chatter

[pjv1234]

Hi Dee
I love your e mail name! Welcome to the TMIC group. We're glad to have you with 
us, however, sorry about the circumstances that brought you here.  As you can 
imagine by the recent posts there is usually more going on whether it is 
requests for help and hope or something that gets us laughing and quipping.  We 
learn from new TMers and oldies alike since our doctors try different 
combinations of meds and therapies.  Step right in and tell us about yourself.  
It seems like the "old TMers" are gritting their teeth right now.  The big 
weather changes get to a lot of us.  Michigan just had record breaking  heat 
and humidity in the 90's. This was followed by drops to just above freezing.  
Many of us have a temperature range where we function our best.  Anything 
higher or lower causes us  additional discomfort and we get quiet.  That's why 
we're all asking where everyone is - we just want to know if you quiet because 
you're busy or because you're gritting your teeth!  Again, Welcome!
Patti - Michigan

LifeIsAJoy <[EMAIL PROTECTED]> wrote: 
=
I'm new but I ;am here, too.   
Dee

 

From: L T CHERPESKI [mailto:[EMAIL PROTECTED] 
Sent: Saturday, October 13, 2007 7:18 PM
To: [EMAIL PROTECTED]; Grace M.
Cc: tmic-list@eskimo.com
Subject: Re: [TMIC] where is the chatter

 

Hi Ann and Grace,

 

I'm here too - that makes 3 of us.  Where is everybody?  I hope
everybody is ok.

 

Linda

- Original Message - 

From: Grace M.   

To: [EMAIL PROTECTED] 

Cc: tmic-list@eskimo.com 

Sent: Friday, October 12, 2007 1:49 PM

Subject: Re: [TMIC] where is the chatter

 


Hi Ann,

 

I'm here and was wondering the same thing.   Hope all are well.

 

Grace 

Re: [TMIC] what's up?

[Jenna Stentz]

Jude,
You are so funny!  I have been so busy with my kids stuff and trying to work a 
part time job that I just bearly get a chance to read e-mail.  
But I am thankful for the ones that are here.

Jenna



- Original Message 
From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>
To: tmic-list@eskimo.com
Sent: Monday, October 15, 2007 2:26:00 AM
Subject: [TMIC] what's up?


  
What Happened???
 
I go away for a few days;
take a break from the List for a few days
and everything falls apart...
 
What's up???
 
Y'all can't think of anything to say to 
one another?
Did no one do anything worth writing about?
Did y'all spend the whole weekend taking bubble baths 
and 
reading the new Stephen King novel,
LISEY'S  STORY ???
 
C'MON, GIVE IT UP...
MAKE IT UP IF YOU HAVE TO
I HAPPEN TO KNOW THREE PERSONS 
WHO LIVE QUITE LIVELY
PRETEND FANTASY LIVES
SPANNING THE GLOBE, 
GOING BACK AND FORTH IN TIME...
 
hey, it cuts the boredom
and
adds a bit of spice to this life
 
make it a priority to get to know
all of the TM'ers
in your State...
 
gotta'  run,
J






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