Re: [TMIC] Re: tmic-digest Digest V2008 #478

[L T CHERPESKI]

oh F, I so totally agree!

Linda
  - Original Message - 
  From: [EMAIL PROTECTED] 
  To: jrushton ; [EMAIL PROTECTED] ; TMIC 
  Sent: Friday, December 05, 2008 2:27 PM
  Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #478



  >   Talking about looking pregnant and I'm a male.  My belly bloated > up 
so bad, that people said I looked like I was pregnant with twins. 

  Many gain abdominal girth while on cortisone/prednisone, or soon after.  The 
bloat is secondary to the cortisone which causes increases in the lipoid cells. 
 This results in weight gain, increase in blood pressure, borderline diabetes, 
and hyperlipidemia ( increased cholesterol or triglycerides).  This group has 
been named the Metabolic Syndrome.

  I was attacked by this beast several years ago, but decided to go on vacation 
to mexico, the change in diet, increased activity made my diabetes, 
hypertension, weight and lipids go down.

  My suggestion: When given a new diagnosis, go on VACATION !!!

  F

Re: [TMIC] Re: tmic-digest Digest V2008 #478

[Jenna]

I know I just keep gaining...it is freaking me out!!!

 Jenna





From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>
To: jrushton <[EMAIL PROTECTED]>; Kenneth Oliver <[EMAIL PROTECTED]>; TMIC 

Sent: Thursday, December 4, 2008 10:19:15 PM
Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #478


Oh my gosh! same here I feel like the "Stay Puff Marshmellow Gal"! I gained 
90 lbs when I got sick 4 years ago and have yet to lose any of it, 
 
 
-- Original message from "jrushton" <[EMAIL PROTECTED]>: 
-- 


In response to: 

I spent nine weeks in the hospital from Jan. to April in 1981.  I haven't heard 
anyone
talking about a swollen belly. I was 235 with 42  waist when I got this.  When 
in
the hospital I swelled so when discharged I was 205 with 60 inch waist.  It 
stayed like that
for many weeks, and when it finally went down any nervous excitement would make 
it blow up,
this went on for over 20 yrs. When it blew up the band of pain was sometimes 
nearly
unbearable.
Ken in N.M.
 
Ken, to this day I still have a poofy tummy that I did not have before TM and 
sometimes it is worse than others.  Each doctor I mentioned it to just shrugged 
their shoulders so I didn't give it any more thought.  I'm glad you mentioned 
it...Jeanne


  

Re: [TMIC] Re: tmic-digest Digest V2008 #478

[Jenna]

But honey I know you do it and do it over and over again!!!  You are so amazing 
as are so many on this list!!!

 Jenna





From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>
To: jrushton <[EMAIL PROTECTED]>; TMIC 
Sent: Thursday, December 4, 2008 11:02:21 PM
Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #478


Hear ya!!!  the fatigue is hard to deal with working full time and hard to 
explain to others somedays it hurts just to get out of bed but we do... then to 
go and work out! please workout anymore is just getting off the couch and 
being able to balance with my walker without falling on my face.. 
-- Original message from "jrushton" <[EMAIL PROTECTED]>: 
-- 


In response to:
 
Oh my gosh! same here I feel like the "Stay Puff Marshmellow Gal"! I gained 
90 lbs when I got sick 4 years ago and have yet to lose any of it, 
 
Kim, it's not like we can go out and run around the block or through the woods, 
right???  Heck, we can't even tell if we're holding our tummy in or not!  We 
could try some of that stuff that Oprah is advertising so much now (Acai?) 
except I saw a picture of it in a bowl and it looks like a bowl of purple 
intestines!!  Jeanne


  

Re: [TMIC] Re: tmic-digest Digest V2008 #478

[JHarper33]

Doc's info. about SS is here:
 
_http://www.myelitis.org/tmic/resources/ssd-tm.htm_ 
(http://www.myelitis.org/tmic/resources/ssd-tm.htm) 
 
Barbara H.
 
 
In a message dated 12/5/2008 7:04:48 P.M. Eastern Standard Time,  
[EMAIL PROTECTED] writes:

In response to:
 
 
Jeanne,
 
When I went on SS Disability, I got my full benefits and then the  next year 
Medicare 
kicked in...The month before I was hit wih tm...,my disability was  for 
another health 
problem.so when I reached 65, nothing changed.  I would  assume that's 
true for
all.if it isn't, someone will speak up and tell it like  they see it! 
 As to whether 
you would get your hubby's SS, I would assume that would follow  same rules 
for 
all folks, you get whichever is higher.  There again, I'm no  authority!!   I 
think you 
can work and still receive SS, but there are limits.
 
This question would have been answered correctly and quickly had we  not lost 
our
SS genius a few tears back!  Doc could talk SS backwards and  forwards, and 
helped 
many of our members get their SS Disability.
 
He is missed!!!
 
janh
 
I'm sorry I missed Doc.  Some people have such a  hard time getting the 
disability even started, don't they??
 
I really tried to find and understand what it says  on-line but couldn't find 
anything close to what I needed.  I know  you can do into their office and 
talk to someone but that's not always a  good idea, I'm thinking, because 
sometimes that puts a hick-up by your  name!   j



**Make your life easier with all your friends, email, and 
favorite sites in one place.  Try it now. 
(http://www.aol.com/?optin=new-dp&icid=aolcom40vanity&ncid=emlcntaolcom0010)

Re: [TMIC] Re: tmic-digest Digest V2008 #478

[jrushton]

In response to:

  Jeanne,

  When I went on SS Disability, I got my full benefits and then the next 
year Medicare 
  kicked in...The month before I was hit wih tm...,my disability was for 
another health 
  problem.so when I reached 65, nothing changed.  I would assume that's 
true for
  all.if it isn't, someone will speak up and tell it like they see 
it!  As to whether 
  you would get your hubby's SS, I would assume that would follow same 
rules for 
  all folks, you get whichever is higher.  There again, I'm no authority!!  
 I think you 
  can work and still receive SS, but there are limits.

  This question would have been answered correctly and quickly had we not 
lost our
  SS genius a few tears back!  Doc could talk SS backwards and forwards, 
and helped 
  many of our members get their SS Disability.

  He is missed!!!

  janh

  I'm sorry I missed Doc.  Some people have such a hard time getting the 
disability even started, don't they??

  I really tried to find and understand what it says on-line but couldn't 
find anything close to what I needed.  I know you can do into their office and 
talk to someone but that's not always a good idea, I'm thinking, because 
sometimes that puts a hick-up by your name!  j 

[TMIC] Check out my Facebook profile

[Ken Oliver]

Hi tmic-list,

I invited you to join Facebook a while back and wanted to remind you that once 
you join, we'll be able to connect online, share photos, organize groups and 
events, and more.

Thanks,
Ken

To sign up for Facebook, follow the link below:
http://www.facebook.com/p.php?i=1613683094&k=XXCU42WXWZYMZGDBUEYTY&r

Re: [TMIC] Hello i need your urgent assistance..

[Gillian Clark]

The rule is, never send money!
  - Original Message - 
  From: Westgold 
  To: tmic-list@eskimo.com 
  Sent: Saturday, December 06, 2008 7:13 AM
  Subject: Re: [TMIC] Hello i need your urgent assistance..


  This is a scam, I have received these before.  DO NOT SEND HIM ANY MONEY.  
- Original Message - 
From: robert hennessy 
To: tmic-list@eskimo.com 
Sent: Friday, December 05, 2008 3:18 PM
Subject: [TMIC] Hello i need your urgent assistance..


Hello,
Sorry I didn't inform you about my traveling to UK for a program, am 
presently in London and i am stranded here because i misplaced my wallet on my 
way to the hotel where my money and other valuable things were kept.I will like
you to assist me with a soft loan urgently with the sum of 1,850 GB Pounds 
to sort-out my hotel bills and get myself back home. I will appreciate whatever 
you can afford, i will pay back as soon as i return.So please use the details 
below to transfer the money to me through Western Union money transfer because 
i was told that is the only way i could be able to get it fast and leave. This 
is the detail below
 
 
Name : Robert Hennessy
Address:Kenilworth Road,
Hampton-in-Arden Solihull,
West Midlands
B92 0LW
Country :England
Test Question :Year of birth?
Answer : 1981
Amount Sent: ?
 
 
kindly help me to make the transfer as soon as you receive this email and 
once you have it sent, send me the money transfer control number with details 
used in sending it. Also i have my passport to prove my identity at Western 
union here when receiving the money.
 
 
Hope to hear from you soon.


Suspicious message? There’s an alert for that. Get your Hotmail® account 
now. 






No virus found in this incoming message.
Checked by AVG - http://www.avg.com 
Version: 8.0.176 / Virus Database: 270.9.14/1832 - Release Date: 12/5/2008 
9:57 AM

Re: [TMIC] Hello i need your urgent assistance..

[Lawrence King]

Like any of us with our medical and prescription costs have roughly  
$2000 to spare! (throw away!!)

Mindy the Artist

On Dec 5, 2008, at 3:18 PM, robert hennessy wrote:


Hello,
Sorry I didn't inform you about my traveling to UK for a program,  
am presently in London and i am stranded here because i misplaced  
my wallet on my way to the hotel where my money and other valuable  
things were kept.I will like
you to assist me with a soft loan urgently with the sum of 1,850 GB  
Pounds to sort-out my hotel bills and get myself back home. I will  
appreciate whatever you can afford, i will pay back as soon as i  
return.So please use the details below to transfer the money to me  
through Western Union money transfer because i was told that is the  
only way i could be able to get it fast and leave. This is the  
detail below



Name : Robert Hennessy
Address:Kenilworth Road,
Hampton-in-Arden Solihull,
West Midlands
B92 0LW
Country :England
Test Question :Year of birth?
Answer : 1981
Amount Sent: ?


kindly help me to make the transfer as soon as you receive this  
email and once you have it sent, send me the money transfer control  
number with details used in sending it. Also i have my passport to  
prove my identity at Western union here when receiving the money.



Hope to hear from you soon.
Suspicious message? There’s an alert for that. Get your Hotmail®  
account now.

Re: [TMIC] Hello i need your urgent assistance..

[kimr1999]

Seem "HINKEY" that his $$ and wallet was stolen but not his passport to pick up the money... HUM  
 
-- Original message from "Westgold" <[EMAIL PROTECTED]>: -- 




This is a scam, I have received these before.  DO NOT SEND HIM ANY MONEY.  

- Original Message - 
From: robert hennessy 
To: tmic-list@eskimo.com 
Sent: Friday, December 05, 2008 3:18 PM
Subject: [TMIC] Hello i need your urgent assistance..



Hello,Sorry I didn't inform you about my traveling to UK for a program, am presently in London and i am stranded here because i misplaced my wallet on my way to the hotel where my money and other valuable things were kept.I will likeyou to assist me with a soft loan urgently with the sum of 1,850 GB Pounds to sort-out my hotel bills and get myself back home. I will appreciate whatever you can afford, i will pay back as soon as i return.So please use the details below to transfer the money to me through Western Union money transfer because i was told that is the only way i could be able to get it fast and leave. This is the detail below  Name : Robert HennessyAddress:Kenilworth Road,Hampton-in-Arden Solihull,West MidlandsB92 0LWCountry :EnglandTest Question :Year of birth?Answer : 1981Amount Sent: ?  kindly help me to make the transfer as soon as you receive this email and once you have it sent, send me the money transfer control number with details used in sending it. Also i have my passport to prove my identity at Western union here when receiving the money.  Hope to hear from you soon.

Suspicious message? There’s an alert for that. Get your Hotmail® account now. 



No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.9.14/1832 - Release Date: 12/5/2008 9:57 AM

Re: [TMIC] Re: tmic-digest Digest V2008 #478

[Jan Hargrove]

Jeanne,
 
When I went on SS Disability, I got my full benefits and then the next year 
Medicare 
kicked in...The month before I was hit wih tm...,my disability was for another 
health 
problem.so when I reached 65, nothing changed.  I would assume that's true 
for
all.if it isn't, someone will speak up and tell it like they see it!  
As to whether 
you would get your hubby's SS, I would assume that would follow same rules for 
all folks, you get whichever is higher.  There again, I'm no authority!!   I 
think you 
can work and still receive SS, but there are limits.
 
This question would have been answered correctly and quickly had we not lost our
SS genius a few tears back!  Doc could talk SS backwards and forwards, and 
helped 
many of our members get their SS Disability.
 
He is missed!!!
 
janh
 
 
--- On Fri, 12/5/08, jrushton <[EMAIL PROTECTED]> wrote:




In response to:  Also, a question about Disability
 





 
 
I have to laugh at all of the clothes and styles, now, Todd.  The pants are 
worn so low that if I were to walk two feet, they would fall down because of my 
tummy!
 
 
QUESTION FOR EVERYONE  When you are on disability, does it go on forever or 
is there a time when it quits and you change over to just plain Social 
Security?  Can you work and still draw disability?  Also, Jack wanted me to ask 
you, if something happened to him, would I then get his SS and lose my 
disability?  I tried to find answers on-line but couldn't.  Thank you all..
 
Jeanne and Jack in Dayton where Jack is out pheasant hunting... Pheasants???  
Not to worry...

Re: [TMIC] Re: tmic-digest Digest V2008 #478

[[EMAIL PROTECTED]]

>   Talking about looking pregnant and I'm a male.  My belly bloated > up 
> so bad, that people said I looked like I was pregnant with twins. 

Many gain abdominal girth while on cortisone/prednisone, or soon after.  The 
bloat is secondary to the cortisone which causes increases in the lipoid cells. 
 This results in weight gain, increase in blood pressure, borderline diabetes, 
and hyperlipidemia ( increased cholesterol or triglycerides).  This group has 
been named the Metabolic Syndrome.

I was attacked by this beast several years ago, but decided to go on vacation 
to mexico, the change in diet, increased activity made my diabetes, 
hypertension, weight and lipids go down.

My suggestion: When given a new diagnosis, go on VACATION !!!

F

Re: [TMIC] Re: tmic-digest Digest V2008 #478

[jrushton]

In response to:  Also, a question about Disability

  Talking about looking pregnant and I'm a male.  My belly bloated up so 
bad, that people said I looked like I was pregnant with twins.  Once the 
bloated came back down, I had put on 20 lbs.  I was only at 135 lbs before TM, 
now at 160, it's hard to get rid of it, especially around the holidays.
  Trying to keep the weight off,
  Todd in CC, TX

  I have to laugh at all of the clothes and styles, now, Todd.  The pants 
are worn so low that if I were to walk two feet, they would fall down because 
of my tummy!


  QUESTION FOR EVERYONE  When you are on disability, does it go on 
forever or is there a time when it quits and you change over to just plain 
Social Security?  Can you work and still draw disability?  Also, Jack wanted me 
to ask you, if something happened to him, would I then get his SS and lose my 
disability?  I tried to find answers on-line but couldn't.  Thank you all..

  Jeanne and Jack in Dayton where Jack is out pheasant hunting... 
Pheasants???  Not to worry... 

Re: [TMIC] Re: tmic-digest Digest V2008 #478

[Todd Tarno]

Talking about looking pregnant and I'm a male.  My belly bloated up so bad, that people said I looked like I was pregnant with twins.  Once the bloated came back down, I had put on 20 lbs.  I was only at 135 lbs before TM, now at 160, it's hard to get rid of it, especially around the holidays.
Trying to keep the weight off,
Todd in CC, TX
--- On Thu, 12/4/08, jrushton <[EMAIL PROTECTED]> wrote:
From: jrushton <[EMAIL PROTECTED]>Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #478To: [EMAIL PROTECTED], "TMIC" Date: Thursday, December 4, 2008, 8:36 PM


In response to:
 
To this day I have a poofy tummy and have never once contributed it to the disease.  I thought I had just gained weight over the years.  Isn't that strange?
 
Jude
 
Well, I know that it is very normal that as we grow older and as soon as I started 'the change' it was harder and harder to keep the weight off but then I was able to do all sorts of things to help.  But when TM hit and I came home from ICU/PT/Rehab, I thought I had become pregnant somewhere in those three weeks...6 months worth!!!  At 58 years old no less !  Amazing!  j

Re: [TMIC] Hello i need your urgent assistance..

[Westgold]

This is a scam, I have received these before.  DO NOT SEND HIM ANY MONEY.  
  - Original Message - 
  From: robert hennessy 
  To: tmic-list@eskimo.com 
  Sent: Friday, December 05, 2008 3:18 PM
  Subject: [TMIC] Hello i need your urgent assistance..


  Hello,
  Sorry I didn't inform you about my traveling to UK for a program, am 
presently in London and i am stranded here because i misplaced my wallet on my 
way to the hotel where my money and other valuable things were kept.I will like
  you to assist me with a soft loan urgently with the sum of 1,850 GB Pounds to 
sort-out my hotel bills and get myself back home. I will appreciate whatever 
you can afford, i will pay back as soon as i return.So please use the details 
below to transfer the money to me through Western Union money transfer because 
i was told that is the only way i could be able to get it fast and leave. This 
is the detail below
   
   
  Name : Robert Hennessy
  Address:Kenilworth Road,
  Hampton-in-Arden Solihull,
  West Midlands
  B92 0LW
  Country :England
  Test Question :Year of birth?
  Answer : 1981
  Amount Sent: ?
   
   
  kindly help me to make the transfer as soon as you receive this email and 
once you have it sent, send me the money transfer control number with details 
used in sending it. Also i have my passport to prove my identity at Western 
union here when receiving the money.
   
   
  Hope to hear from you soon.

--
  Suspicious message? There’s an alert for that. Get your Hotmail® account now. 


--



  No virus found in this incoming message.
  Checked by AVG - http://www.avg.com 
  Version: 8.0.176 / Virus Database: 270.9.14/1832 - Release Date: 12/5/2008 
9:57 AM

[TMIC] RE: tmic-digest Digest V2008 #485

[marieke dufresne]

Hi, sorry to correct you Janh, but I think either you or your neuro was 
mistaken..

RE: Banding VS l'Hermitte's sign
These are two different things.
L'Hermittes sign is the name given to an electric shock-like sensation felt. 
Typically, the electric shock-like sensation radiates from the neck downwards 
and lasts for a very short duration; usually less than a second. The sensations 
can repeat indefinitely so that it might feel almost continuous.

The areas affected by Lhermitte's sign are usually the arms and / or the legs, 
although the sensations can radiate to the trunk.
Lhermitte's sign gets its name from the person who first characterized it, 
Jacques Jean Lhermitte, and is sometimes (rarely) known as 'barbers chair 
phenomenon'.

This is because of the way that Lhermitte's response is triggered; by flexing 
the neck forwards. When the head moves in this way, the electric shock like 
sensations are triggered.

BANDING: (most common in MS hence the MS HUG name)
What Causes the "MS Hug?"

It is caused by a lesion on the spinal cord and is technically classified as a 
neuropathic pain called a “paresthesia,” which refers to any abormal sensation. 
The sensation itself is the result of tiny muscles between each rib 
(intercostal muscles) going into spasm. These muscles have the job of holding 
our ribs together, as well as keeping them flexible and aiding in movement, 
like forced expiration.
What Does It Feel Like?

Like many MS symptoms, the “MS hug” feels different for different people – it 
also feels different in the same people on different days or at different times 
of day. It can be:
As low as the waist or as high as the chest; rarely it can be felt as high as 
the shoulders and neck
Focused in one small area (usually on one side or in the back) or go all the 
way around the torso
Worse when fatigued or stressed
Present in “waves” lasting seconds, minutes or hours or can be steady for 
longer periods of time
Described as sharp pain, dull pain, burning pain, tickling, tingling, a 
crushing or constricting sensation or intense pressure.

As you can see they are two different things with two very different causes.

Marieke, RN
TM @ T1 since 2004


That band is called L'Hermitte's and one of my doctors told me it's where the 
"break"
in nerves were..that it essentially was the nerve endings trying to find a 
connection...
I think that is an over-simplified explanation so I'd comprehendI had 
it so bad
that at times I thought I wouldn't be able to breathe..I thought it might 
be the bra-
God getting even with me for hating bras!!  It finally 'went away' but returns 
when I've overdone or have let myself get too tired. It no longer is as strong 
as in the beginning
so just know that time will help!
My 2¢  janh in OK

--- On Thu, 12/4/08, jrushton <[EMAIL PROTECTED]> wrote:


 In response to:


 
 Jeanne, when I was the hospital I had a band around my waist like a steel 
band.  After some time out of the hospital and for
many years it has been a band of pain. No medication relieved it.  It was 
especially bad when i laid on my back.
Ken in N.M.

 
It is pretty horrible, isn't it, Ken?  This is the first real relief I've 
gotten from it since the onset.  Just don't give up...we can't...j



_