Re: [TMIC] Children with TM (was Needing help...)

[jrushton]

What a wonderful group we have here on TMIC!!  j 
 
---Original Message---
 
From: kimr1...@bellsouth.net
Date: 1/14/2009 1:18:19 PM
To: jharpe...@aol.com;  tmic-list@eskimo.com
Subject: Re: [TMIC] Children with TM (was Needing help...)
 
The Transverse Myelitis Network
 
try this link

 
 
http://transversemyelitis.ning.com/?xgsi=1




-- Original message from jharpe...@aol.com: -- 


There is a little girl named Rachel with TM whose mom used to be on here.
Her brothers started a Reading For Rachel program. the web site is here
which includes a video of Rachel:http://www.readingforrachel.org/ She's 9
years old now and contracted TM when she was less than a year.
 
There is a family camp coming up in August for children with TM:
http://www.myelitis.org/forum/viewtopic.php?f=106&t=3294
 
The TM Message forums have one forum for children with TM and another for
teens with TM:
http://www.myelitis.org/forum/
 
There is a little boy named Cole whose parents, I believe, are Neil and
Wendy (hope I have that right!) Maybe they'll see this. In fact, I think I
ll change the subject to Children with TM so that hopefully they will.
Photos of him are here:
http://www.myelitis.org/gallery/thumbnails
php?album=search&type=full&search=Cole
 
Hope that helps!
 
Barbara H.
http://barbarah.wordpress.com/
 
In a message dated 1/14/2009 1:43:57 P.M. Eastern Standard Time,
wolft...@optonline.net writes:


Cody Unser is an inspirational young woman who was struck with TM
in her teens.
Here is her website:  
http://www.cufsf.org/content
asp?CustComKey=346548&CategoryKey=350032&pn=Page&DomName=cufsf.org

Also, Netta Ganor is on the TMIC, and is a wonderful young woman with TM. 
I don't have her address, but I'm sure someone will.

Kevin


jrushton wrote:
> Hi, everyone,  I recently found out about a little girl in the third 
> grade that is really having a tough time with her TM and needs to find 
> some other children or even someone that might have been stricken with 
> TM when they were young and are older now.  I am getting the details 
> to see how she can 'chat' with someone but this is my first step.  
> Sure hope someone can help her..  Jeanne in Dayton
>
> 
>








A Good Credit Score is 700 or Above. See yours in just 2 easy steps!
 

[TMIC] Atlanta, GA area TM’ers

[kimr1999]

There are 6 of us in the Atlanta area (west side of the city) that have been meeting once a month for the last year and a half. We are planning our January support group meeting for Saturday 1/24 and looking for new attendees before we chose a location. We have been meeting in Douglasville and Hiram and need to know the area’s of town you are coming from in able to pick a location in the Atlanta area to meet. We are extending the invitation to anyone who would like to join us for some lunch, TM conservations/help and support. 
We encourage you to bring your care giver/partner/spouse, ect as TM has also effected there lives and, it gives them a chance to express there feelings and concenns.
 
 
 
Thank you
 
Kim
Jenna
Betty
Susan
Randy
Martha
 
 

Re: [TMIC] OT: NO SISSY Friend

[Trudy Ogilvie]

Great sentiment!!  I especially like #8[?]  Thanks for thinking of us!
and Hugs to you too!Trudy

On Wed, Jan 14, 2009 at 2:26 AM,  wrote:

>  I really liked the sentiment of this message.  If you don't like it, just
> delete it.  Hugs to all, Barbara
>
>
>
> None of that Sissy Crap
>
> Are you tired of those sissy 'friendship' poems that always sound good,
> but never actually come close to reality?
>
> Well, here is a series of promises that actually speak of true friendship.
>
> You will see no cutesy little smiley faces on this card - Just the stone
> cold truth of our great friendship.
>
>
> 1. When you are sad --I will jump on the person who made you sad like a
> spider monkey jacked up on Mountain Dew!!
>
> 2. When you are blue -- I will try to dislodge whatever is choking you.
>
> 3. When you smile -- I will know you are plotting something that I must be
> involved in.
>
> 4. When you're scared -- we will high tail it out of here.
>
> 5. When you are worried -- I will tell you horrible stories about how much
> worse it could be until you quit whining, ya big baby
>
> 6. When you are confused -- I will use little words.
>
> 7. When you are sick --Stay away from me until you are well again. I don't
> want whatever you have.
>
> 8. When you fall -- I'll pick you up and dust you off-- After I laugh my
> butt off!!
>
> 9. This is my oath...I pledge it to the end. 'Why?' you may ask -- because
> you are my FRIEND!
>
>
> Friendship is like peeing in your pants
>
> Everyone can see it, But only you can feel the true warmth.
>
> Send this to 10 of your closest friends,
>
> Then get depressed because you can only think  Of 4.
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
> Looking for a car that's sporty, fun and fits in your budget? Read reviews
> on AOL Autos.
>
>
>
>
>
>
>
> Looking for a car that's sporty, fun and fits in your budget? Read
> reviews on AOL Autos.
>
>
>
>
>
> No virus found in this incoming message.
> Checked by AVG.
> Version: 7.5.524 / Virus Database: 270.6.0/1601 - Release Date:
> 8/8/2008 9:02 AM
>
>
>
>
>  --
> *A Good Credit Score is 700 or Above. See yours in just 2 easy 
> steps!
> *
>
>
>
> --
> *A Good Credit Score is 700 or Above. See yours in just 2 easy 
> steps!
> *
>
<<360.gif>>

Re: [TMIC] OT- The Numbers-OT

[Balmatmic]

Crowds..
 
I'm sorry, but for anyone with a mobility issue, being in a  crowd can be a 
nightmare.  Even if you are in a chair!  If you walk,  you get bumped around, 
and then you have to worry about balance issues.   Sorry, but falling into 
somebody I don't know, and then landing on the dirty  ground doesn't seem like 
fun.  If in a chair, you see way too many butts,  don't want to even think 
about 
how many butts you'd be looking at.  
 
So, if you really want to see the Inauguration, it will be on  TV, where you 
can be nice and warm, have your snacks and drinks at your  side, and your very 
own clean bathroom.  If you want a crowd, you can have  a party or go to one! 
 
 
That's my take!  The only crowd that I  purposely get involved in is when I 
decide to go to Disneyland or  DisneyWorld.  Otherwise, I avoid them like the 
plague.
 
Take care and stay warm.  Hugs to all, Barbara  A
 
 
 
 
In a message dated 1/14/2009 1:55:06 P.M. Pacific Standard Time,  
fr...@franksheldon.com writes:

Dear  Gang,

Well, As you know, I received my invitation from the Inaugural  Committee a 
while ago, then I learned about the numbers:

Approx..  2,000,000 people

Approx.. 5,000 porta potties

Therefore: 400  people to one potty

The average "visitation" to a potty takes 4  minutes

Therefore: 1600 minutes for everyone to go once

So 1600  minutes divided by 60 minutes in an hour:  26.6 hours for everyone 
to  "visit" once.

I don't think I'm  going

Frank



**A Good Credit Score is 700 or Above. See yours in just 2 easy 
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[TMIC] Stem cell report correction

[Regina Rummel]

Sorry everybody, the article was on yesterday's S.F. Chronicle (Jan. 13)

[TMIC] Stem cells from human testes

[Regina Rummel]

Check out today's San Francisco Chronicle (Jan. 13)

"Stanford researchers have  isolated powerful stem cells from human testes and 
say the cells could ultimately yield a wide variety of human tissues including 
cells of the nervous system, the liver, heart, skin and blood vessels... 
etc."

Renee A. Reijo-Pera is the Stanford stem cell researcher.

Re: [TMIC] OT- The Numbers-OT

[Trudy Ogilvie]

No, you've got to go . are you sure it's 5,000?  I thought it was 15,000
 Isn't there something you can do! This is going to be awesome. This will be
thee most historic event ever!!  And of course you are used to the cold. I
think they're trying to scare us with all the numbers being thrown around.
Hoping we bedroom people won't show up!  All bridges going into town are
closed.It is incredible. I don't do well in a crowded metro car...  Did it
once for breast cancer and won't do it again. We were like sardines! I could
hardly breathe So I will watch it at home on my television. They are
predicting sun but COLD...
I do hope you get to go!
Trudy
I

On Wed, Jan 14, 2009 at 4:54 PM, fr...@franksheldon.com <
fr...@franksheldon.com> wrote:

> Dear Gang,
>
> Well, As you know, I received my invitation from the Inaugural Committee a
> while ago, then I learned about the numbers:
>
> Approx.. 2,000,000 people
>
> Approx.. 5,000 porta potties
>
> Therefore: 400 people to one potty
>
> The average "visitation" to a potty takes 4 minutes
>
> Therefore: 1600 minutes for everyone to go once
>
> So 1600 minutes divided by 60 minutes in an hour:  26.6 hours for everyone
> to "visit" once.
>
> I don't think I'm going
>
> Frank
>
>

Re: [TMIC] Needing help...??

[jrushton]

Oh, Mary Anne, maybe this is exactly what she needs!  If she can help a
little girl that is even younger than her, it may help her feel better about
what is going on!  This would be so wonderful.

How is your little girl?  I just cannot imagine having this happen to little
ones.  They are so helpless and can't tell you what hurts and it truly does
hurt.  Thank you so very much for offering your help.  I'm waiting for an
answer from Sophie's mom and if it works right, I will be forwarding all of
the wonderful e-mails I've received.  Thank you, again!  Jeanne in Dayton,
WA 
 
---Original Message---
 
From: Mary Anne Egan
Date: 1/14/2009 12:58:40 PM
To: jrushton
Subject: Re: [TMIC] Needing help...??
 
my daughter is in first grade and got TM when she was a baby...I would be
happy to help if she does not feel that my daughter is "too young".
Mary Anne in NJ


On Tue, Jan 13, 2009 at 10:51 PM, jrushton 
wrote:

Hi, everyone,  I recently found out about a little girl in the third grade
that is really having a tough time with her TM and needs to find some other
children or even someone that might have been stricken with TM when they
were young and are older now.  I am getting the details to see how she can 
chat' with someone but this is my first step.  Sure hope someone can help
her..  Jeanne in Dayton






-- 
Mary Anne Egan
The Stettler Group, Inc.
mae...@thestettlergroup.com
(908) 806-3001
(908) 806-3113 Fax

 <><>

[TMIC] OT- The Numbers-OT

[fr...@franksheldon.com]

Dear Gang,

Well, As you know, I received my invitation from the Inaugural Committee a 
while ago, then I learned about the numbers:

Approx.. 2,000,000 people

Approx.. 5,000 porta potties

Therefore: 400 people to one potty

The average "visitation" to a potty takes 4 minutes

Therefore: 1600 minutes for everyone to go once

So 1600 minutes divided by 60 minutes in an hour:  26.6 hours for everyone to 
"visit" once.

I don't think I'm going

Frank

[TMIC] Re: child with TM

[jrushton]

Will do for sure, Marieke!  Great idea!  Thank you so much!!  Jeanne in
Dayton 
 
---Original Message---
 
From: marieke dufresne
Date: 1/14/2009 10:21:12 AM
To: jeanne rushton
Subject: child with TM
 
Hi Jean,
i suggest that you post this request on the TMA message board under children
with TM. I know there are teens on there that got it as children who post
once in a while.
Marieke

http://www.myelitis.org/forum/viewforum.php?f=12






 <><>

Re: [TMIC] Needing help...??

[jrushton]

You know, Debbie...I almost got in touch with you before I sent the e-mail
to TMIC!  You are such a blessing as are all of you on TMIC!  I will pass
this info on to Sophia's mom!  Thank you!  j 
 
---Original Message---
 
From: Deborah Nord Capen
Date: 1/14/2009 11:16:44 AM
To: jrushton
Subject: Re: [TMIC] Needing help...??
 
Hi Jeanne,
I don't have the information readily available, but you might want to
contact Jeanne Hamilton in Illinois (she is in the TMA Membership Directory)
  There are several parents of children with TM who are available for help. 
Due to her age and privacy issues, we do not have any groups specifically
for children, but for the parents of children.  There is a parents support
group that you can find at the website at www.myelitis.org under "support
groups".
 
She definitely needs to sign up for the Victory Junction Children's and
Family Camp this summer!!  Please, if you can send me her information I will
contact the Mom to discuss this with her.  She will meet others who are her
age (and older), as well as Dr. Kerr, Dr. Kaplan and Dr. Pidcock, who will
be at the camp.  And it is absolutely free to attend for the children and
the families (this includes any siblings she has).  The only cost is the
travel expense to get there.
 
Please let me know how I can help.
Take care,
Debbie
 
- Original Message - 
From: jrushton 
To: tmic 
Sent: Tuesday, January 13, 2009 7:51 PM
Subject: [TMIC] Needing help...??


Hi, everyone,  I recently found out about a little girl in the third grade
that is really having a tough time with her TM and needs to find some other
children or even someone that might have been stricken with TM when they
were young and are older now.  I am getting the details to see how she can 
chat' with someone but this is my first step.  Sure hope someone can help
her..  Jeanne in Dayton



 

Re: [TMIC] Needing help...??

[jrushton]

Thank you, dear one!  One more name for Sophia!  I will pass this on to the
mom.  Isn't it just amazing how all of the TM'ers pull together at times
like this?  This is what TMIC is all about!!  j 
 
---Original Message---
 
From: montzma...@aol.com
Date: 1/14/2009 7:18:07 AM
To: jrush...@columbiaenergyllc.com
Subject: Re: [TMIC] Needing help...??
 
WHAT ABOUT CODY, JUST A THOUGHT.HE WENT THRU SO MUCH AND LAST I HEARD ,
WHICH I HAVE NOT SEEN ANY POSTS LATELY HE POSSIBLYCAN HELP HER.
IF NOT YOU CAN TRY THE SITE TM FOR CHILDREN. I NEVER HEARD OF IT BEFORE.
I BET ASHLEES MOM WOULD KNOW .ASHLEE IS DOING GREAT LAST UPDATE. SHE IS A
TROOPER SHE ALSO COULD HELP THIS LITTLE
GIRL!
TIAD PAM






A Good Credit Score is 700 or Above. See yours in just 2 easy steps!
 <><>

RE: [TMIC] Needing help...??

[jrushton]

Thank you SO much, Sue!  This is wonderful and I will send this on to the
mother as soon as I find out how Sophia wants to communicate. The mom would
probably really appreciate being in touch with other parents in the same
situation.  Thank you, again!  j 
 
---Original Message---
 
From: Bob and Sue Mattis
Date: 1/14/2009 7:09:53 AM
To: 'jrushton'
Subject: RE: [TMIC] Needing help...??
 
Hi Jeanne,
 
There are 2 children that I’ve become close to in the last few years.  There
is Cole Ross from Canada (neilandwe...@rogers.com) who’s parents are Neil
and Wendy.  He developed TM as an infant and I believe is 10 or 11 now. 
Also there is Maria Hoge from Pennsylvania (ho...@msn.com) who’s parents are
Pam and Morgan.  Pam and I are co-chair for the PA support group.  Maria
also was struck as an infant and is now I believe also around 9, 10etc. 
Pam is a nurse and is so knowledgeable about all the care involved for a
child with TM.  Wendy is also what I consider an expert on the subject as
she has been the primary caregiver for Cole as well.  I would think either
child would relate well, but probably Maria would be a little more receptive
to an on-line, phone, or snailmail relationship with another.  You know how
“boys” are.  But either way, I would contact the parents and see what you
could set up.  I know there is another child (Rachael) that the Reading for
Rachael program is for on the TM website, but I don’t know the family
personally.  Hope this helps!
Sue – Harborcreek, PA
 
 
-Original Message-
From: jrushton [mailto:jrush...@columbiaenergyllc.com] 
Sent: Tuesday, January 13, 2009 10:52 PM
To: tmic
Subject: [TMIC] Needing help...??
 
Hi, everyone,  I recently found out about a little girl in the third grade
that is really having a tough time with her TM and needs to find some other
children or even someone that might have been stricken with TM when they
were young and are older now.  I am getting the details to see how she can 
chat' with someone but this is my first step.  Sure hope someone can help
her..  Jeanne in Dayton
  


 
 

Re: [TMIC] Children with TM (was Needing help...)

[kimr1999]

The Transverse Myelitis Network
 
try this link
 
 
http://transversemyelitis.ning.com/?xgsi=1
-- Original message from jharpe...@aol.com: -- 

There is a little girl named Rachel with TM whose mom used to be on here. Her brothers started a Reading For Rachel program. the web site is here which includes a video of Rachel:http://www.readingforrachel.org/ She's 9 years old now and contracted TM when she was less than a year.
 
There is a family camp coming up in August for children with TM:
http://www.myelitis.org/forum/viewtopic.php?f=106&t=3294
 
The TM Message forums have one forum for children with TM and another for teens with TM:
http://www.myelitis.org/forum/
 
There is a little boy named Cole whose parents, I believe, are Neil and Wendy (hope I have that right!) Maybe they'll see this. In fact, I think I'll change the subject to Children with TM so that hopefully they will. Photos of him are here:
http://www.myelitis.org/gallery/thumbnails.php?album=search&type=full&search=Cole
 
Hope that helps!
 
Barbara H.
http://barbarah.wordpress.com/
 

In a message dated 1/14/2009 1:43:57 P.M. Eastern Standard Time, wolft...@optonline.net writes:
Cody Unser is an inspirational young woman who was struck with TMin her teens.Here is her website:  http://www.cufsf.org/content.asp?CustComKey=346548&CategoryKey=350032&pn=Page&DomName=cufsf.orgAlso, Netta Ganor is on the TMIC, and is a wonderful young woman with TM. I don't have her address, but I'm sure someone will.Kevinjrushton wrote:> Hi, everyone,  I recently found out about a little girl in the third > grade that is really having a tough time with her TM and needs to find > some other children or even someone that might have been stricken with > TM when they were young and are older now.  I am getting the details > to see how she can 'chat' with someone but this is my first step.  > Sure hope someone can help her..  Jeanne in Dayton>>     >


A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

Re: [TMIC] Children with TM (was Needing help...)

[JHarper33]

There is a little girl named Rachel with TM whose mom used to  be on here. 
Her brothers started a Reading For Rachel program. the web site is  here which 
includes a video of Rachel:_http://www.readingforrachel.org/_ 
(http://www.readingforrachel.org/)  She's 9  years old now and contracted TM 
when she was less 
than a year.
 
There is a family camp coming up in August for children with  TM:
_http://www.myelitis.org/forum/viewtopic.php?f=106&t=3294_ 
(http://www.myelitis.org/forum/viewtopic.php?f=106&t=3294) 
 
The TM Message forums have one forum for children with TM  and another for 
teens with TM:
_http://www.myelitis.org/forum/_ (http://www.myelitis.org/forum/) 
 
There is a little boy named Cole whose parents, I believe, are  Neil and 
Wendy (hope I have that right!) Maybe they'll see this. In fact, I  think I'll 
change the subject to Children with TM so that hopefully they will.  Photos of 
him are here:
_http://www.myelitis.org/gallery/thumbnails.php?album=search&type=full&search=
Cole_ 
(http://www.myelitis.org/gallery/thumbnails.php?album=search&type=full&search=Cole)
 
 
Hope that helps!
 
Barbara H.
_http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) 
 
 
In a message dated 1/14/2009 1:43:57 P.M. Eastern Standard Time,  
wolft...@optonline.net writes:



Cody Unser is an inspirational young woman who was struck with  TM
in her teens.
Here is her website:   
http://www.cufsf.org/content.asp?CustComKey=346548&CategoryKey=350032&pn=Page&;
DomName=cufsf.org

Also,  Netta Ganor is on the TMIC, and is a wonderful young woman with TM. 
I  don't have her address, but I'm sure someone  will.

Kevin


jrushton wrote:
> Hi, everyone,  I  recently found out about a little girl in the third 
> grade that is  really having a tough time with her TM and needs to find 
> some other  children or even someone that might have been stricken with 
> TM when  they were young and are older now.  I am getting the details 
> to  see how she can 'chat' with someone but this is my first step.  
>  Sure hope someone can help her..  Jeanne in Dayton
>
>
>



**A Good Credit Score is 700 or Above. See yours in just 2 easy 
steps! 
(http://pr.atwola.com/promoclk/10075x1215855013x1201028747/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De
cemailfooterNO62)

Re: [TMIC] Needing help...??

[Kevin Wolfthal]

Cody Unser is an inspirational young woman who was struck with TM
in her teens.
Here is her website:  
http://www.cufsf.org/content.asp?CustComKey=346548&CategoryKey=350032&pn=Page&DomName=cufsf.org


Also, Netta Ganor is on the TMIC, and is a wonderful young woman with TM. 
I don't have her address, but I'm sure someone will.


Kevin







jrushton wrote:
Hi, everyone,  I recently found out about a little girl in the third 
grade that is really having a tough time with her TM and needs to find 
some other children or even someone that might have been stricken with 
TM when they were young and are older now.  I am getting the details 
to see how she can 'chat' with someone but this is my first step.  
Sure hope someone can help her..  Jeanne in Dayton

[TMIC] Elder's Meditation of the Day - January 14

[Jan Hargrove]

I thought I would share today's meditation with you, as I think it speaks to 
what we're all about here on the tmicjanh 
 
 





 

 




Elder's Meditation of the Day - January 14


"It is a native tradition to sit in a circle and talk-to share what is in your 
heart." 

--John Peters (Slow Turtle), WAMPANOAG 

The talking circle is also a listening circle. The talking circle allows one 
person to talk at a time for as long as they need to talk. So much can be 
gained by listening. Is it a coincidence that the Creator gave us one mouth and 
two ears? The power of the circle allows the heart to be shared with each 
other. What we share with each other also heals each other. When we talk about 
our pain in the circle, it is distributed to the circle, and we are free of the 
pain. The talking circle works because when the people form a circle, the Great 
Mystery is in the center. 
My Creator, give me the courage to share, and the courage to listen. 


 
 






 



 
 
 

Re: [TMIC] Needing help...??

[kevin weilacher]

Don't know if this will help out but Rich in Philly got TM when he was like 15. 
He's now in his mid 30's I think...
He might be willing to chat with her if she would like...
He can be reached on Facebook and MySpace.
Here are the links to his profiles...
http://www.facebook.com/home.php?ref=home#/profile.php?id=1523776858
http://profile.myspace.com/index.cfm?fuseaction=user.viewProfile&friendID=187928717

I know he won't mind anyone contacting him.
Kevin






From: jrushton 
To: tmic 
Sent: Tuesday, January 13, 2009 10:51:38 PM
Subject: [TMIC] Needing help...??

  
Hi, everyone,  I recently found out about a little girl in the third grade that 
is really having a tough time with her TM and needs to find some other children 
or even someone that might have been stricken with TM when they were young and 
are older now.  I am getting the details to see how she can 'chat' with someone 
but this is my first step.  Sure hope someone can help her..  Jeanne in Dayton