Re: [TMIC] My TM experience

[L T CHERPESKI]

Welcome to all of the newbies and thank you for posting your TM experiences.  I 
was gone for 4 days (then add another day to recuperate!) and I am trying to 
plow through 278 emails.  I am going to read each of your posts again and reply 
individually.  Please forgive me - I'm not usually this slow.  
I'm really looking forward to getting to know each one of you.

Linda in Eagle, ID
  - Original Message - 
  From: Janice 
  To: Deb Monteleone ; 
tmic-list@eskimo.com 
  Sent: Sunday, March 08, 2009 9:39 PM
  Subject: Re: [TMIC] My TM experience


  Hi Deb!
  This is Janice from Missouri

  I have had TM for 2 years and am still trying to be able to tell just 
  "before" over doing it, that I have over done it!   With me, there is more 
  nerve pain and I fall easily.  Very irritating!   It just takes time to 
  learn your new body.
  I don't know if there are any actual stages to recovery.   We are all too 
  different and the intensity of what hit us varies too much.  I have been 
  told by doctors that the disease is usually divided into thirds  -  Bottom 
  third is no improvement  -  Middle third is moderate improvement and some 
  independence  -  Top third is almost complete or complete recovery. I 
  have also been told that 3-5 people out of a million will contract this 
  disease - pretty rare.   Most recovery takes place the first 2 years with 
  some after that.  Must be something "special" about us.  This sure 
  is a great group to "talk" to and so open and helpful.   I know that I want 
  to be a part of this group - I have already been helped and feel I can ask 
  anything.

  When I was first hospitalized with this, I assumed that it would be short 
  term and that as soon as I recovered from all the other breakdowns my body 
  had, I would be fine.   I had no idea and the doctors never told me that 
  this was my new life.   I am still showing some improvements, but I can tell 
  I will never quite reach the "top" third.  You guys will be hearing from 
  me for a long time!


  - Original Message - 
  From: "Deb Monteleone" mailto:aiki...@optonline.net>>
  To: mailto:tmic-list@eskimo.com>>
  Sent: Sunday, March 08, 2009 7:33 PM
  Subject: [TMIC] My TM experience


  > Hi, my name is Deb.
  >
  > I am glad some of you are giving the history of your experience with TM. 
  > I am fairly new to it and I am still trying to deal with it and figure 
  > things out.  I have been part of this group since about August 2008 but 
  > have not participated much.  I am still hopeful of making a good recovery 
  > and I sensed that this group is mostly, if not all, comprised of people 
  > who have not recovered fully.  When first joining I had asked the 
  > question, does anyone know what the stages of recovery are and no one 
  > answered.
  >
  > My episode started June 2008, five days after my 52nd birthday.  I woke up 
  > one morning and noticed my feet were numb.  I tried wiggling my toes but 
  > nothing happened, I jumped out of bed thinking my feet would be blue from 
  > lack of circulation.  To my surprise, they looked fine.  I walked around 
  > and nothing changed, so I went to work with numb feet.  In the next five 
  > days, the numbness progressed up to my waist.  I could still walk but I 
  > started using a cane.
  >
  >
  >
  > Within the 1st two weeks (can't remember exact times anymore) I woke up in 
  > the middle of the night with an excruciating pain on my side.  I couldn't 
  > even move.  My husband (my hero) called 911; I thought maybe my appendix 
  > burst.  The emergency room ignored the fact that I was numb and had to 
  > walk with a cane, they were just focusing on the pain in my side.  They 
  > found nothing, next day I went to my primary care doctor; they took one 
  > look at me and called a Neurologist, who saw me that day.  The Neurologist 
  > took one look at me and told me I had TM and I would be having a lifestyle 
  > change (boy, I had no idea what he was really referring to).  He said the 
  > pain in the side was a referred pain from the TM (it happened again the 
  > next weekend, off to the hospital for morphine).  I went on IV steroids 
  > for three days, then oral ones for seven days.  Three days after the end 
  > of the steroids I couldn't walk (left leg went limp), bladder shut down as 
  > did bowels.  Went to hospital for 5 days of IV steroids, then off to Rehab 
  > for 2 ½ weeks.  Then home to deal with my new "lifestyle".
  >
  > It took me about a month to accept that my life was really changing and 
  > this was not something that would be better in a month or two.  I had the 
  > support and help of my 75 year old mother (she moved in with us for two 
  > months) and my husband.  At this time I was using a walker and trying to 
  > learn how to walk again and get balance back.
  >
  >
  > I feel I am still making prog

[TMIC] Fw: What Love Means to 4-8 year olds

[Janice]

I really enjoyed this and hope you guys do to.  Janice
>> 



?


?



?













What Love means to a 4-8 year old 


Slow down for three minutes to read this. It is so worth
it. Touching words from the mouth of babes. 


A group of professional people posed this question to a
group of 4 to 8 year-olds, 'What does love mean?' 


The answers they got were broader and deeper than anyone
could have imagined See what you think: 
?







'When my grandmother got arthritis, she couldn't
bend over and paint her toenails anymore. 
So my grandfather does it for her all the time, even when
his hands got arthritis too. That's love.' 

Rebecca- age 8 








'When someone loves you, the way they say your name is
different. 
You just know that your name is safe in their mouth.' 

Billy - age 4 








'Love is when a girl puts on perfume and a boy puts on
shaving cologne and they go out and smell each other.' 

Karl - age 5 








'Love is when you go out to eat and give somebody most
of your French fries without making them give you any of
theirs.' 

Chrissy - age 6 








'Love is what makes you smile when you're
tired.' 

Terri - age 4 








'Love is when my mommy makes coffee for my daddy and
she takes a sip before giving it to him, to make sure the
taste is OK.' 

Danny - age 7 








'Love is when you kiss all the time. Then when you get
tired of kissing, you still want to be together and you talk
more. 
My Mommy and Daddy are like that. They look gross when they
kiss' 

Emily - age 8 








'Love is what's in the room with you at Christmas
if you stop opening presents and listen.' 

Bobby - age 7 (Wow!) 








'If you want to learn to love better, you should start
with a friend who you hate,' 

Nikka - age 6 
(we need a few million more Nikka's on this planet) 








'Love is when you tell a guy you like his shirt, then
he wears it everyday.' 

Noelle - age 7 








'Love is like a little old woman and a little old man
who are still friends even after they know each other so
well.' 

Tommy - age 6 








'During my piano recital, I was on a stage and I was
scared. I looked at all the people watching me and saw my
daddy waving and smiling. 


He was the only one doing that. I wasn't scared
anymore.' 

Cindy - age 8 








'My mommy loves me more than anybody 
You don't see anyone else kissing me to sleep at
night.' 

Clare - age 6 








'Love is when Mommy gives Daddy the best piece of
chicken.' 

Elaine-age 5 








'Love is when Mommy sees Daddy smelly and sweaty and
still says he is handsomer than Brad Pitt.' 

Chris - age 7 








'Love is when your puppy licks your face even after you
left him alone all day.' 

Mary Ann - age 4 








'I know my older sister loves me because she gives me
all her old clothes and has to go out and buy new ones.'


Lauren - age 4 








'When you love somebody, your eyelashes go up and down
and little stars come out of you' (what an image) 

Karen - age 7 








'Love is when Mommy sees Daddy on the toilet and she
doesn't think it's gross.' 

Mark - age 6 








'You really shouldn't say 'I love you'
unless you mean it. But if you mean it, you should say it a
lot. People forget.' 

Jessica - age 8 








And the final one 


The winner was a four year old child whose next door
neighbor was an elderly gentleman who had recently lost his
wife. 


Upon seeing the man cry, the little boy went into the old
gentleman's yard, climbed onto his lap, and just sat
there. 


When his Mother asked what he had said to the neighbor, the
little boy said, 

'Nothing, I just helped him cry' 




When there is nothing left but God, that is when you find
out that God is all you need. 
Heavenly Father, please bless all my friends in whatever it

is that You know they may be needing this day! And may their
life be full of Your peace, prosperity and power as he/she
seeks to have a closer relationship with You. Amen. 









?




?



Need a job? Find employment help in your area.



 

Re: [TMIC] FW: Fw: How to Dance in the Rain

[L T CHERPESKI]

Thank you for sharing this Rob.  It really touched my heart too.  I loved when 
the elderly man said "she doesn't know me, but I still know who she is" - now 
that's true love.

Linda in Eagle, ID
  - Original Message - 
  From: Robert Pall 
  To: tmic 
  Sent: Thursday, March 12, 2009 8:21 AM
  Subject: [TMIC] FW: Fw: How to Dance in the Rain


  I never send these type of emails ...but this one touched my heart and I 
believe many of you will relate as well!

  Rob in New Jersey



--
  From: Teresa Todd [mailto:teresa.t...@vericore.com] 
  Sent: Thursday, March 12, 2009 9:51 AM
  To: Jeff and Pam Steele; Betty Tomasello; Kady Watkins; Robert Pall; ANITA 
WILSON; Smokie Gaussiran; Carol Chatelain; Jennifer Butler; Julie Schultz; 
Perry Goings; Reg Barner; Derrick Turnley; Sandra Rogers
  Subject: FW: Fw: How to Dance in the Rain






  Teresa Todd

  Director of Client Development

  VeriCore LLC

  Louisiana

  Toll Free: 800-433-4903 Ext 1182

  Fax: 704-948-5604

  teresa.t...@vericore.com


  How to Dance in the Rain



  It was a busy morning, about 8:30, when an elderly gentleman in his 80's 
arrived to 
  have stitches removed from his thumb. He said he was in a hurry as he had an 
  appointment at 9:00 am.  I took his vital signs and had him take a seat, 
knowing 
  it would be over an hour before someone would to able to see him. I saw him

  looking at his watch and decided, since I was not busy with another patient, 
I would 
  evaluate his wound. On exam, it was well healed, so I talked to one of the 
  doctors, got the needed supplies to remove his sutures and redress his wound. 
  While taking care of his wound, I asked him if he had another doctor's 
appointment this 
  morning, as he was in such a hurry.  The gentleman told me no, that he needed 
to go to 
  the nursing home to eat breakfast with his wife. I inquired as to her health. 
He told me that 
  that she was a victim of Alzheimer's Disease.  As we talked, I asked if she 
would be upset if he was 
  a bit late.  He replied that she no longer knew who he was, that she had ot 
recognized him in five years now.
  I was surprised, and asked him, 'And you still go every morning, even though 
she doesn't know who you are?' 
  He smiled as he patted my hand and said, 'She doesn't know me, but I still 
know who she is.'  I had to 
  hold back tears as he left, I had goose bumps on my arm, and thought, 'That 
is the kind of love I want in my life.'  True love is neither physical, nor 
romantic.  True love is an acceptance of all that is, has been, will 
  be, and will not be.





  With all the jokes and fun that are in e-mails, sometimes there is one that 
comes along 
  that has an important message. This one I thought I could share with you.



  The happiest people don't necessarily have the best of everything; they just 
make the best of everything 
  they have.



  'Life isn't about how to survive the storm, but how to dance in the rain.'



















  !







































--


  This message (including any attachments) contains confidential information 
intended for a specific individual (s) and purpose, and is protected by law.  
If you are not the intended recipient, you should delete this message and are 
hereby notified that any disclosure, copying, or distribution of this message 
or the taking of any action based on it, is strictly prohibited.  NC permit 
4058 & 4527.

Re: [TMIC] Jude is back in the hospital

[L T CHERPESKI]

Thank you Ella.  I did talk with Jude this morning.  I reached her at a good 
time as they had just given her some really good pain medicine - this has to be 
the first time I have talked to Jude when she wasn't in excruciating pain!  
They started an IV for the UTI, but she told me they had already tried that 
antibiotic and it didn't work.  So she is confused.  She was told it needs to 
be cleared up because her surgery date is March 20th. Then the pain med kicked 
in and she needed to sleep. She says hi to everyone and sends her love.

Linda in Idaho
  - Original Message - 
  From: alle...@aol.com 
  To: tmic-list@eskimo.com 
  Sent: Thursday, March 12, 2009 10:30 AM
  Subject: [TMIC] Jude is back in the hospital


  It sure is quiet here but I talked to Pam and she said Jude is  back in the 
  hospital with another UTI that could not be treated at home. She  will be in 
  for 4 - 5 days and if you'd like, here is here  information.

  MeClearon (?) Hospital
  1-810-342-3181 (direct to her room)
  Room 916/ bed 1

  Pam said you may have to give her a few minutes because she is  very drousy. 
  Have a good day all..Ella


--
  Worried about job security? Check out the 5 safest jobs in a 
recession.

[TMIC] MS

[Janice]

I am curious to know how many of you with TM also are dealing with MS.I 
know there are similarities between the two, but I think some of you may have 
actually been diagnosed with both.   One first and later on, the other.

Just curious, Janice

RE: [TMIC] Implantable pumps

[Butcher, Bernard G (NY80)]

Good question - I would also like info - - - my neuro wants me to get
one for Baclofen
 
BERNARD BUTCHER
 



From: gor...@earthlink.net [mailto:gor...@earthlink.net] 
Sent: Thursday, March 12, 2009 12:49 PM
To: tmic-list@eskimo.com
Subject: [TMIC] Implantable pumps


I want to get some feedback on the implantable pump (intrathecal) that
provides meds directly into the spine.
 
Any problems with infection?
Cost on Medicare - 80/20  or 100%  ?
Convenient to have, or a pain with upkeep, maintenance, whatever
problems you may have had?
Did it work (regardless of the med, but it would be nice to  know)?
 
I  am looking at pain relief, and probably anti-spasmodic being
delivered via this device.  Thanks for your input.  mt

[TMIC] Implantable pumps

[gorbat]

I want to get some feedback on the implantable pump (intrathecal) that provides 
meds directly into the spine.

Any problems with infection?
Cost on Medicare - 80/20  or 100%  ?
Convenient to have, or a pain with upkeep, maintenance, whatever problems you 
may have had?
Did it work (regardless of the med, but it would be nice to  know)?

I  am looking at pain relief, and probably anti-spasmodic being delivered via 
this device.  Thanks for your input.  mt

[TMIC] Jude is back in the hospital

[Alle111]

It sure is quiet here but I talked to Pam and she said Jude is  back  in the 
hospital with another UTI that could not be treated at home.  She  will be in 
for 4 - 5 days and if you'd like, here is here   information.

MeClearon (?) Hospital
1-810-342-3181 (direct to her  room)
Room 916/ bed 1

Pam said you may have to give her a few minutes  because she is  very drousy. 
Have a good day  all..Ella
**Worried about job security? Check out the 5 safest jobs in a 
recession. 
(http://jobs.aol.com/gallery/growing-job-industries?ncid=emlcntuscare0002)

[TMIC] MS List

[Trudy Ogilvie]

I know there's a great MS list available to anyone who wishes to join. I
went to the MS website and there's quite a few and could not find the one Iam
looking for. I know it's YAHOO but there are quite a few lists...  any
ideas..
Thanks
Trudy

[TMIC] FW: Fw: How to Dance in the Rain

[Robert Pall]

I never send these type of emails ...but this one touched my heart and I
believe many of you will relate as well!
 
Rob in New Jersey



From: Teresa Todd [mailto:teresa.t...@vericore.com] 
Sent: Thursday, March 12, 2009 9:51 AM
To: Jeff and Pam Steele; Betty Tomasello; Kady Watkins; Robert Pall;
ANITA WILSON; Smokie Gaussiran; Carol Chatelain; Jennifer Butler; Julie
Schultz; Perry Goings; Reg Barner; Derrick Turnley; Sandra Rogers
Subject: FW: Fw: How to Dance in the Rain



 

 

Teresa Todd

Director of Client Development

VeriCore LLC

Louisiana

Toll Free: 800-433-4903 Ext 1182

Fax: 704-948-5604

teresa.t...@vericore.com


How to Dance in the Rain



It was a busy morning, about 8:30, when an elderly gentleman in his 80's
arrived to 
have stitches removed from his thumb. He said he was in a hurry as he
had an 
appointment at 9:00 am.  I took his vital signs and had him take a seat,
knowing 
it would be over an hour before someone would to able to see him. I saw
him

looking at his watch and decided, since I was not busy with another
patient, I would 
evaluate his wound. On exam, it was well healed, so I talked to one of
the 
doctors, got the needed supplies to remove his sutures and redress his
wound. 
While taking care of his wound, I asked him if he had another doctor's
appointment this 
morning, as he was in such a hurry.  The gentleman told me no, that he
needed to go to 
the nursing home to eat breakfast with his wife. I inquired as to her
health. He told me that 
that she was a victim of Alzheimer's Disease.  As we talked, I asked if
she would be upset if he was 
a bit late.  He replied that she no longer knew who he was, that she had
ot recognized him in five years now.
I was surprised, and asked him, 'And you still go every morning, even
though she doesn't know who you are?' 
He smiled as he patted my hand and said, 'She doesn't know me, but I
still know who she is.'  I had to 
hold back tears as he left, I had goose bumps on my arm, and thought,
'That is the kind of love I want in my life.'  True love is neither
physical, nor romantic.  True love is an acceptance of all that is, has
been, will 
be, and will not be.

 

 

With all the jokes and fun that are in e-mails, sometimes there is one
that comes along 
that has an important message. This one I thought I could share with
you.

 

The happiest people don't necessarily have the best of everything; they
just make the best of everything 
they have.

 

'Life isn't about how to survive the storm, but how to dance in the
rain.'



















!



































  



This message (including any attachments) contains confidential
information intended for a specific individual (s) and purpose, and is
protected by law.  If you are not the intended recipient, you should
delete this message and are hereby notified that any disclosure,
copying, or distribution of this message or the taking of any action
based on it, is strictly prohibited.  NC permit 4058 & 4527.

[TMIC] hi

[ACAROE]

just a test
**Worried about job security? Check out the 5 safest jobs in a 
recession. 
(http://jobs.aol.com/gallery/growing-job-industries?ncid=emlcntuscare0002)