Re: [TMIC] PAM AND CARDS

[L T CHERPESKI]

Hi Dan, Happy Fathers Day!

It's so good to hear from you.  Thank you for sharing your thoughts and 
feelings for Pam with us.  It helps to keep us close.  I hope you will feel 
comfortable staying in touch with us, it helps us to know how you are doing, 
and I know it would warm Pam's heart to know that our special friendships 
continue.

Will you still be seeing the grandkids the middle of July? I've seen pictures, 
and Dan, you and Pam have a beautiful family.  Your time with them will always 
be treasured.

Ok Dan, if Pam said to watch MAMMA MIA she meant it!  And you'll love it, 
especially because of Pam.

Please drop by and let us know how you're doing.  You are a part of Pam and 
it's nice to be able to hold on to that.

Love and Prayers,
LindaTIAD
  - Original Message - 
  From: montzma...@aol.com 
  To: tmic-list@eskimo.com 
  Sent: Sunday, June 21, 2009 12:47 PM
  Subject: [TMIC] PAM AND CARDS


  I JUST WANT. TO THANK THE TM ASSOCIATION FOR SENDING ME A CARD OF SYMPAYHY.  
IT WAS GREATLY APPRECIATED. I WANTED TO THANK LINDA C. FOR HER WONDERFUL CARD 
WITH A BEAUTIFUL LETTER IN IT. THEY REALLY TOUCHED ME. I JUST PUT ON AN ELVIS 
MOVIE FOR PAM AND MYSELF. (VIVA LAS VEGAS WITH ANN MARGRET). SHE LIKED MOST OF 
THEM AND WE HAVE A HAND FULL OF HIS MOVIES. I PACKED UP ALOT OF MOVIES BUT I 
DID KEEP MAMA MIA-SHE SAID I HAD TO WATCH IT FOR SURE. I ERASED THE NAMES OF 
HER FRIENDS IN THE MAIL LIST SHE HAD. I DID NOT DO THIS TO BE MEAN OR UGLY 
NASTY ETC. I DID IT BECAUSE I DID NOT WANT TO CONTACT PEOPLE WHEN MAYBE ITS NOT 
A GOOD IDEA. I FIGURED I WOULD KEEP AN EYE OPEN ON THE LETTERS COMING IN FROM 
PEOPLE ON TMIC. IF A LETTER IS DIRECTED  ABOUT PAM OR MYSELF I WOULD RESPOND 
BACK  THAT WAY.  2ND TRY AT THE LITTLE CHAPEL TODAY THAT PAM LOVED. IT WAS 
8:00AM AND IT WAS LOCKED. WELL I SAW SOME MEN WAITING FOR THE CHURCH TO OPEN 
AND HAVE (SAY) MASS AT 9:00.  1-MAN SAID WE ARE WAITING AND HOPING SOMEONE WILL 
OPEN THE NOW NEW ASSERY CHURCH HELD IN A BLDG. THE OLD CHURCH WAS TORN DOWN 
FROM KATRINA. IT SITS ON A BAYOU. VERT BEAUTIFUL SITE. LIL CHAPLE AND MAYBE A 
NEW CHURCH. SO I SAID A PRAY AND LEFT. ON SUNDAY THEY HAVE 2-MASSES-9-11 
AM-WELL I LEARNED THAT MUCH TODAY. I MUST GET INTO THE CHAPEL AND BURN SOME 
CANDLES FOR PAM AND THE FAMILY. I SAID TO MYSELF COMING HOME I WILL GO NEXT 
SUNDAY AND LEAVE FOR 10:00 AND ALL SOULD BE WELL.. I PULLED UP IN THE DRIVEWAY 
AND BOOM A GREAT IDEA HIT FROM OUT OF NOWHERE. WHY CAN'T I GO TO NEXT SUNDAYS 
MASS AT 9:00AM IT ABOUT 10 MILES OR SO AWAY BUT I COULD GIVE THAT CHURCH WELL 
NEED MONEY ALTHOUGH SMALL AS IT MAY BE AND THEN GO AND LITE THE CANDLES.  
THANKS PAM I KNOW SHE PUT THAT INTO MY HEAD. I WILL TRY HARD TO DO IT. MY 
CHURCH IS ONLY A 1/2 MILE FROM HOME BUT THIS CHURCH NEEDS THE MONEY. ITS A 
LONELY FATHERS DAY BUT I STILL CHAT TO PAM AND WE HAVE THE MOVIE. IT'S A COLD 
COLD BEER DAY TODAY LOL. WILL BE ABOUT 97 DEGREES ALL WEEK HERE. MY NEIGHBOR 
HAS SOME GIFTS FROM PAM FOR ME AND I TOLD HIM I WOULD GET THEM FROM HIM TODAY 
.HOWEVER HE  IS  A GONE PECAN RIGHT NOW. WAITING FOR SON TO CALL ME I GUESS 
AFTER HIS SHIFT IS OVER AS A COP.  HEY SON DO NOT GIVE THOSE DAD TICKETS TODAY! 
GUYS HAVE A GREAT FATHERS DAY AND LADIES THANKS FOR YOUR EAR.
  DANTIAD ---PAM---LOVE YOU PAM!!!


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steps!

Re: [TMIC] Checking In

[JHarper33]

Always good to hear from you, Larry! Hope you're doing  well.
 
Barbara H.
_http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) 
 
 
In a message dated 6/21/2009 8:19:23 P.M. Eastern Daylight Time,  
okielar...@yahoo.com writes:

This is Larry from Oklahoma checking in for the first time in a  while. 
First off, happy fathers day all of you dads out there, bio dads,  step dads, 
foster dads or just stand in dads. There is not  enough dads in this world so 
keep up the good work!
 
Second, I've been checking the archives almost daily since my last  post 
(which was another email address) and I'm never surprised at  the love, 
support and concern this group has for each other. It's so  good to see how 
this 
has group concerns for those going through so much  like when Jude was having 
so much trouble with her health or helping  another go through the grief of 
losing a family member, or losing one of  our own such as Pam or Doc or 
Dennis. That's why I  love you so much.
 
Last but not least Thanks for being here, each and everyone of you!  Talk 
with you soon.
 
P.S. Happy Summer Solstice  Phanque!



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Re: [TMIC] Checking In

[Alle111]

Hey Larry,
Nice to hear from you. We'll be here when you get back, take  care 
..Ella
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Re: [TMIC] from Jude, Please read

[jrushton]

 You are a very wonderful and caring person and often one of the drawbacks
of writing is that the words come across wrong or in a way that is hurtful
but not meant to be so, dear one, let this pass and we will all try harder
to take care of each other in very tender ways.  Jeanne
 
---Original Message---
 
From: heyjude48...@aol.com
Date: 6/21/2009 7:18:41 PM
To: tmic-list@eskimo.com
Subject: [TMIC] from Jude, Please read
 
I am so sorry if I have ever hurt your feelings or made you feel bad about
anything.  It was never my intention to do that.  I simply have a big mouth,
and my medication makes it easy to do just that.
 
I love every damn one of  you and couldn't live in this world without you.
 
Thanks for being there for me.
 
TFBTFM,
Judy




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 <<01_tile.jpg>><<01_side.gif>>

Re: [TMIC] Transverse Myelitis Network

[Heyjude48458]

I know that I have been affected  by the loss of my dear friend, and hope
that I haven't offended  anyone.  I love you all so much and could not live
my life without  any one of you.  Each of you have made a difference to me
and helped  me through the times I was in the hospital and when I broke my
legs.   You will never know how I feel about each and every
one of you.

Pam was not the only friend I have  here on the List...that is for sure.  I
love all of you and I mean  that with all of my heart.

Maybe it might not seem like it,  but it is true...From the bottom of my
heart,

FTBOMH,
Judy


In a message dated 6/17/2009 10:01:02 P.M. Eastern Daylight Time,
patticoo...@wi.rr.com writes:


I  HAVE ALWAYS FELT VERY WELCOME BY EVERYONE ON THIS SITE, EVEN THOUGH  I
DO NOT SUFFER FROM SO MANY OF THE PAIN AND SUFFERING SO MANY OF  YOU DO.  I
DO HAVE PAIN BUT NOTHING I CAN’T LIVE WITH SINCE I HAVE  NO CHOICE.  IT IS
THE COMMUNICATION WITH ALL OF YOU THAT HAS HELPED  ME SO VERY MUCH.  I WANT
TO SAY THANKS TO YOU ALL.  I MYSELF  HAVE FOUND THAT SINCE WE LOST PAM, I
HAVE BEEN DOWN IN THE DUMPS WHEN I  REALLY HAVE NO REASON TO BE.  I THINK A
LITTLE DEPRESSION HAS  SETTLED ON ALL OF US.  I KNOW IT HAS ME.  I FIND MYSELF
FEELING MORE SORRY FOR MYSELF THAN I HAVE IN A LONG TIME.  I MISS  MY DAILY
E-MAILS FROM PAM WITH HER FUNNY JOKES.  I THINK AS A  RESULT WE ARE ALL A
LITTLE TESTY WITH EACH OTHER.  I KNOW PAM WOULD  WANT US ALL TO GET ALONG.  I
HOPE THAT TIME WILL HEAL US ALL.   AT LEAST I SO HOPE SO.
BLESSINGS  TO ALL OF YOU.
***TIAD**   AND LET’S HOPE IT IS A BETTER ONE FOR
US ALL.
PATTI  - WISCONSIN

From: Jill Z  [mailto:jillybean60...@yahoo.com]
Sent: Wednesday, June 17,  2009 6:05 PM
To: ladyno...@aol.com; heyjude48...@aol.com;  tmic-list@eskimo.com; Tracey
L. Black
Subject: RE: [TMIC]  Transverse Myelitis Network

Well said  Tracy!

Jill

---  On Wed, 6/17/09, Tracey L. Blackwrote:


From: Tracey  L. Black 
Subject: RE: [TMIC]  Transverse Myelitis Network
To: ladyno...@aol.com, _heyjude48...@aol.com_ (mailto:heyjude48...@aol.com)
,  tmic-list@eskimo.com
Date: Wednesday, June 17, 2009, 1:14  PM


As a  caretaker/mother of a daughter who has had TM for 4 years now;  this
saddens me to read this. I am also a member of the one  Yahoo TM site b/c
for me it seems like it involves more children  than adults and I can identify
more with their issues. Since my  daughter was inflicted at the age of 11
and is now 15 ½, I get  lots of answers from the other site but also stay on
this one b/c I want to know what the future may hold for my
daughter as  an adult. I know that we&  ALL have been saddened by the
passing of Pam but this should not be a time to bicker and a  time for people to
quit the site b/c they feel as though they  are traitors for checking out
another site. There have been  numerous times that I have tried to unsubscribe
and for some  reason, it never works. Maybe I am supposed to stay on this
site  for another reason. I know I don’t write very much and maybe  this
email will just be taken with a grain of salt. Fortunately,  my daughter seems
to have a much lighter case of TM than a lot  of others on this site. With
that in mind, I still continue to  read everyone’s emails b/c they make me
feel so much more  blessed that my daughter didn’t get inflicted as badly as
others  although she does deal with one or two of the symptoms. I can’t
imagine what most of you feel on a daily basis with the pain,  fatigue, banding,
sweats, cold feelings etc. My daughter hasn’t  had any pain, other than at
onset, and that was more of the  tingling than anything. She is the typical
15 year old and  walks, with assistance through high school every day (except
for  now b/c school is over) and she still hangs out with her  friends, she
helps me around the house and she even babysits the  4 year old and 1 year
old boys next door. She was confined to  her wheelchair at one time but
thanks to Dr. Kerr for helping us  get into the Kennedy Krieger Institute for
Spinal Cord Injuries,  she has been walking for about 2 years. Time has flown
by over  the last 4 years that it is hard to remember life before TM. I 
hope that everyone continues to stay on this site b/c it is full  of great
information and great people that are willing to answer  any question that is
ever asked. No one judges anyone for asking  questions.
As Pam would say  !!TIAD!!!

Tracey  L. Black
Certified  Insurance Service Representative
Hockley  & O'Donnell Insurance Agency
Phone-  717-334-6741, x 29
Fax-717-334-3414
My  hours:  9:00 a.m. - 5:00 p.m.
Thank  you for providing information to us. Please be aware that no
coverage is bound and no change to your insurance program is  confirmed until
verified by a licensed agent during regular  business hours. If you do not hear
from us within 1 business day,  please re-contact us in case your
information has not been  retained

From:  ladyno...

Re: [TMIC] Checking In

[jrushton]

What a very special note, Larry.  Thank you from the bottom of my heart. 
Jeanne

---Original Message---
 
From: Larry Okie
Date: 6/21/2009 7:18:59 PM
To: tmic-list@eskimo.com
Subject: [TMIC] Checking In
 
This is Larry from Oklahoma checking in for the first time in a while. First
off, happy fathers day all of you dads out there, bio dads, step dads,
foster dads or just stand in dads. There is not enough dads in this world so
keep up the good work!
 
Second, I've been checking the archives almost daily since my last post
(which was another email address) and I'm never surprised at the love,
support and concern this group has for each other. It's so good to see how
this has group concerns for those going through so much like when Jude was
having so much trouble with her health or helping another go through the
grief of losing a family member, or losing one of our own such as Pam or Doc
or Dennis. That's why I love you so much.
 
Last but not least Thanks for being here, each and everyone of you! Talk
with you soon.
 
P.S. Happy Summer Solstice Phanque!


 <<01_backg2.jpg>><<01_header2.gif>>

[TMIC] Checking In

[Larry Okie]

This is Larry from Oklahoma checking in for the first time in a while. First 
off, happy fathers day all of you dads out there, bio dads, step dads, foster 
dads or just stand in dads. There is not enough dads in this world so keep up 
the good work!
 
Second, I've been checking the archives almost daily since my last post (which 
was another email address) and I'm never surprised at the love, support and 
concern this group has for each other. It's so good to see how this has group 
concerns for those going through so much like when Jude was having so much 
trouble with her health or helping another go through the grief of losing a 
family member, or losing one of our own such as Pam or Doc or Dennis. That's 
why I love you so much.
 
Last but not least Thanks for being here, each and everyone of you! Talk with 
you soon.
 
P.S. Happy Summer Solstice Phanque!


  

[TMIC] from Jude, Please read

[Heyjude48458]

 
 
I am so sorry if I have ever hurt  your feelings or made you feel bad about 
anything.  It was never my  intention to do that.  I simply have a big 
mouth, and my medication  makes it easy to do just that.
 
I love every damn one of  you  and couldn't live in this world without you.
 
Thanks for being there for  me.
 
TFBTFM,
Judy


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fingertips. 
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Re: [TMIC] Fathers Day,

[Janice]

Carol, I agree.   You are a great couple! How long have you been 
married?janice
  - Original Message - 
  From: Catherine 
  To: cjb...@aol.com ; Transverse Mylitis Group 
  Sent: Sunday, June 21, 2009 5:23 PM
  Subject: Re: [TMIC] Fathers Day,


   
   
  
Carol and Jim,

I sense a love between both of you that is so very strong, 
a comfort in this world of so many upsets.  I continue to pray for you both and 
that things will be as they are suppose to.  Keep smiling and blowing those 
kisses.

Catherine



“The moral test of government is how that government treats 
those who are in the dawn of life, the children; those who are in the twilight 
of life, the elderly; and those who are in the shadows of life, the sick, the 
needy and the handicapped,”Hubert Humphrey







From: "cjb...@aol.com" 
To: cjb...@aol.com
Cc: jhomen...@sbcglobal.net; jah...@cox.net
Sent: Sunday, June 21, 2009 2:43:54 PM
Subject: [TMIC] Fathers Day,

Yesterday when I got to the hospital they told me that Jim 
had breathed for
an hour on his own that morning. As you can imagine that 
was the best news I
have heard.in a long time. I am not sure what that means in 
the scheme of things
(moving him or not etc.) but it sure gives me hope! They 
will decide tomorrow
morning. I will pack tonite when I get home from there,I 
went to church and Eric
and Cindy and girls went there this am and are now on there 
way home to
Kzoo.Jodi and Dave have been there this afternoon and may 
be gone by the time I
get there. Jim needs to rest and I will sit quietly in his 
room ready to smile
and blow him kisses, when, he wakes up. Keep the prayers 
coming. Til next
time. carol and jim



A Good Credit Score is 700 or Above. See yours in just 2 
easy steps! 
   
  
   


<>

Re: [TMIC] Warming sensations

[jrushton]

EXACTLY!!! :)   But it is really important that we do share in that it may
be something someone can explain or help with!  j

---Original Message---
 
From: rj_ran...@yahoo.com
Date: 6/21/2009 4:40:41 PM
To: Janice;  bradebi;  tmic-list;  jrushton
Subject: [TMIC] Warming sensations
 
Lately I have started getting an odd warming sensation in the left side of
my left calf muscle. It doesnte hurt at all. It starts and is gone about 30
later. Pardon the description but it feels exactly like warm pee running
down my leg. I look and even feel. Then as quickly as it is there its gone.
Has only happened inside the house. How bizzare. -- imagine trying to
describe this to anyone outside this group lol
Sent from my Verizon Wireless BlackBerry


From: "Janice" 
Date: Sun, 1 Jan 2006 01:03:17 -0600
To: bradebi; tmic-list;
jrushton
Subject: Re: [TMIC]

   I am right in there with you guys.   So hot all the time - even with my
clonidine patch.   Doc is getting a call in the morning
   to do something about this.   Has been a got weekend even though I spent
my time in cool places.   Janice
- Original Message - 
From: bradebi 
To: tmic-list ; jrushton 
Sent: Saturday, June 20, 2009 8:28 PM
Subject: Re: [TMIC]


Jeanne I apologize I didn't reply to this before todayI am in the
process of moving..and have been looking for a cute little cabin.. 
It sure is a mess isn't it?...I am so tired of being so hot all the time.
sheese were I live it doesn't get very hot, but to me it is burning me up.. 
 It's pouring down wet old sweat! "..LOL that's cuteI think of it in the
same way...it starts on my scalp and I can feel it run all way down to my
bra...then nothing..I haven't gotten really cold here yet.
I am interested in the bra you are saying here?...were do you get it?..
sorry guys! LOLI have been wearing sports bra's because the band hits me
in a different spot.
How are your legs?...can you walk?
Debi
 
 
 
     
From: jrushton
Date: 6/18/2009 6:26:41 PM
To: bradebi;  tmic
Subject: Re: [TMIC]
 
My injury is the exact same area as yours, Debi, and since it happened my
thermometer hasn't worked right.  I didn't used to seat hardly at all and
now right out of the blue, sweat just pours down my face and chest! It's not
pretty sweat. It's pouring down wet old sweat!  I also wake almost every
night and have to take the blankets off of me because I'm so warm.  During
the day, I get hot and cold so I never know!  
 
I did find I have to wear a special kind of bra that doesn't cause too much
pressure under my breasts due to the 'band'.  It can be so horribly painful
and I have found a brand of bra that seems to help.  They are the Lilyette
and the fabric is wonderful against the skin. You can get them with support
or not.
 
Time to go..  I hope this helped a little???  Jeanne
 
  ---Original Message---
 
From: bradebi
Date: 6/12/2009 9:27:32 PM
To: transverse myelitis;  Janice
Subject: Re: [TMIC]
 
 
 
 
 
    
Hi Janice
I get very hot when it is only in the 70 or 80's  for no reason I can just
be on the computer or watching TV and I will get real hot so much that I
sweat a lot..(I soak my blouse) but I only sweat on my face neck and breasts
.my lesion is at nipple level  T4  my  banding is where my bra snaps...so it
feels like my bra is way to tight.
In the cold weather I get more spastic and tight it hurts to bend knees and
ankles. I still have the  banding in winter too...and if my husband puts the
furnace up to high I will over heat...I love to go out in the snow with just
what I have on and bear foot and watch all the steam come off me..its a riot
..
Debi
TM spastic paraplegic T4 incomplete
South Lake Tahoe Ca.
 
 
 
 
 
 
From: Janice
Date: 6/11/2009 6:41:35 PM
To: transverse myelitis
Subject: [TMIC]
 
This is Janice,
 
I have 2 questions:
 
1. With hot weather coming, do any of you have a problem with all of a
sudden being really hot?  I know some
of you had a problem with the cold last winter, but does your body change in
summer and you get hit with being hot instead
of cold?I really have a problem with heat - especially with humidity.  I
get hot, then weak.   Not good.
 
2.  Several of you have mentioned the tight "band" around your body.  I am
not sure this band is in the same place for
everyone.Also, has there been any change in the band with those of you
who have had TM for a long time?  
 
 
 
 
 



 <>

Re: [TMIC] Fathers Day,

[Catherine]

Carol and Jim,I sense a love between both of you that is so very strong, a comfort in this world of so many upsets.  I continue to pray for you both and that things will be as they are suppose to.  Keep smiling and blowing those kisses.Catherine “The moral test of government is how that government treats those who are in the dawn of life, the children; those who are in the twilight of life, the elderly; and those who are in the shadows of life, the sick, the needy and the handicapped,”    Hubert HumphreyFrom: "cjb...@aol.com" To: cjb...@aol.comCc: jhomen...@sbcglobal.net; jah...@cox.netSent:
 Sunday, June 21, 2009 2:43:54 PMSubject: [TMIC] Fathers Day,Yesterday when I got to the hospital they told me that Jim had breathed foran hour on his own that morning. As you can imagine that was the best news Ihave heard.in a long time. I am not sure what that means in the scheme of things(moving him or not etc.) but it sure gives me hope! They will decide tomorrowmorning. I will pack tonite when I get home from there,I went to church and Ericand Cindy and girls went there this am and are now on there way home toKzoo.Jodi and Dave have been there this afternoon and may be gone by the time Iget there. Jim needs to rest and I will sit quietly in his room ready to smileand blow him kisses, when, he wakes up. Keep the prayers coming. Til nexttime. carol and jimA Good Credit Score is 700 or Above. See yours in just 2 easy
 steps!  

  

[TMIC] Warming sensations

[rj_rankin]

Lately I have started getting an odd warming sensation in the left side of my 
left calf muscle. It doesnte hurt at all. It starts and is gone about 30 later. 
Pardon the description but it feels exactly like warm pee running down my leg. 
I look and even feel. Then as quickly as it is there its gone. Has only 
happened inside the house. How bizzare. -- imagine trying to describe this to 
anyone outside this group lol
Sent from my Verizon Wireless BlackBerry

-Original Message-
From: "Janice" 

Date: Sun, 1 Jan 2006 01:03:17 
To: bradebi; tmic-list; 
jrushton
Subject: Re: [TMIC]


   I am right in there with you guys.   So hot all the time - even with my 
clonidine patch.   Doc is getting a call in the morning
   to do something about this.   Has been a got weekend even though I spent my 
time in cool places.   Janice
  - Original Message - 
  From: bradebi 
  To: tmic-list ; jrushton 
  Sent: Saturday, June 20, 2009 8:28 PM
  Subject: Re: [TMIC]


Jeanne I apologize I didn't reply to this before todayI am in the 
process of moving..and have been looking for a cute little cabin.. 
It sure is a mess isn't it?...I am so tired of being so hot all the 
time..sheese were I live it doesn't get very hot, but to me it is burning me 
up.. " It's pouring down wet old sweat! "..LOL that's cuteI think of it in 
the same way...it starts on my scalp and I can feel it run all way down to my 
bra...then nothing..I haven't gotten really cold here yet.
I am interested in the bra you are saying here?...were do you get 
it?...sorry guys! LOLI have been wearing sports bra's because the band hits 
me in a different spot.
How are your legs?...can you walk?
Debi



     
From: jrushton
Date: 6/18/2009 6:26:41 PM
To: bradebi;  tmic
Subject: Re: [TMIC]

My injury is the exact same area as yours, Debi, and since it happened 
my thermometer hasn't worked right.  I didn't used to seat hardly at all and 
now right out of the blue, sweat just pours down my face and chest! It's not 
pretty sweat. It's pouring down wet old sweat!  I also wake almost every night 
and have to take the blankets off of me because I'm so warm.  During the day, I 
get hot and cold so I never know!  

I did find I have to wear a special kind of bra that doesn't cause too 
much pressure under my breasts due to the 'band'.  It can be so horribly 
painful and I have found a brand of bra that seems to help.  They are the 
Lilyette and the fabric is wonderful against the skin. You can get them with 
support or not.

Time to go..  I hope this helped a little???  Jeanne

  ---Original Message---

From: bradebi
Date: 6/12/2009 9:27:32 PM
To: transverse myelitis;  Janice
Subject: Re: [TMIC]





    
Hi Janice
I get very hot when it is only in the 70 or 80's  for no reason I can 
just be on the computer or watching TV and I will get real hot so much that I 
sweat a lot..(I soak my blouse) but I only sweat on my face neck and 
breasts..my lesion is at nipple level  T4  my  banding is where my bra 
snaps...so it feels like my bra is way to tight.
In the cold weather I get more spastic and tight it hurts to bend knees 
and ankles. I still have the  banding in winter too...and if my husband puts 
the furnace up to high I will over heat...I love to go out in the snow with 
just what I have on and bear foot and watch all the steam come off me..its a 
riot...
Debi
TM spastic paraplegic T4 incomplete
South Lake Tahoe Ca.






From: Janice
Date: 6/11/2009 6:41:35 PM
To: transverse myelitis
Subject: [TMIC]

This is Janice,

I have 2 questions:

1. With hot weather coming, do any of you have a problem with all of a 
sudden being really hot?  I know some
of you had a problem with the cold last winter, but does your body 
change in summer and you get hit with being hot instead
of cold?I really have a problem with heat - especially with 
humidity.  I get hot, then weak.   Not good.

2.  Several of you have mentioned the tight "band" around your body.  I 
am not sure this band is in the same place for
everyone.Also, has there been any change in the band with those of 
you who have had TM for a long time?  




   
   
   

Re: [TMIC] Fathers Day,

[Akua]

GREAT NEWS!
HEAL JIM HEAL!
Happy Father's Day!

Akua

--

Re: [TMIC] PAM AND CARDS

[Akua]

Dear Dan,
Happy Father's Day!

I wish you healing and ease. Thank you for sharing  here, your 
journey as you so generously shared your beloved with us.


TIAD!!!
Akua
--

Re: [TMIC]

[Janice]

   I am right in there with you guys.   So hot all the time - even with my 
clonidine patch.   Doc is getting a call in the morning
   to do something about this.   Has been a got weekend even though I spent my 
time in cool places.   Janice
  - Original Message - 
  From: bradebi 
  To: tmic-list ; jrushton 
  Sent: Saturday, June 20, 2009 8:28 PM
  Subject: Re: [TMIC]


Jeanne I apologize I didn't reply to this before todayI am in the 
process of moving..and have been looking for a cute little cabin.. 
It sure is a mess isn't it?...I am so tired of being so hot all the 
time..sheese were I live it doesn't get very hot, but to me it is burning me 
up.. " It's pouring down wet old sweat! "..LOL that's cuteI think of it in 
the same way...it starts on my scalp and I can feel it run all way down to my 
bra...then nothing..I haven't gotten really cold here yet.
I am interested in the bra you are saying here?...were do you get 
it?...sorry guys! LOLI have been wearing sports bra's because the band hits 
me in a different spot.
How are your legs?...can you walk?
Debi



     
From: jrushton
Date: 6/18/2009 6:26:41 PM
To: bradebi;  tmic
Subject: Re: [TMIC]

My injury is the exact same area as yours, Debi, and since it happened 
my thermometer hasn't worked right.  I didn't used to seat hardly at all and 
now right out of the blue, sweat just pours down my face and chest! It's not 
pretty sweat. It's pouring down wet old sweat!  I also wake almost every night 
and have to take the blankets off of me because I'm so warm.  During the day, I 
get hot and cold so I never know!  

I did find I have to wear a special kind of bra that doesn't cause too 
much pressure under my breasts due to the 'band'.  It can be so horribly 
painful and I have found a brand of bra that seems to help.  They are the 
Lilyette and the fabric is wonderful against the skin. You can get them with 
support or not.

Time to go..  I hope this helped a little???  Jeanne

  ---Original Message---

From: bradebi
Date: 6/12/2009 9:27:32 PM
To: transverse myelitis;  Janice
Subject: Re: [TMIC]





    
Hi Janice
I get very hot when it is only in the 70 or 80's  for no reason I can 
just be on the computer or watching TV and I will get real hot so much that I 
sweat a lot..(I soak my blouse) but I only sweat on my face neck and 
breasts..my lesion is at nipple level  T4  my  banding is where my bra 
snaps...so it feels like my bra is way to tight.
In the cold weather I get more spastic and tight it hurts to bend knees 
and ankles. I still have the  banding in winter too...and if my husband puts 
the furnace up to high I will over heat...I love to go out in the snow with 
just what I have on and bear foot and watch all the steam come off me..its a 
riot...
Debi
TM spastic paraplegic T4 incomplete
South Lake Tahoe Ca.






From: Janice
Date: 6/11/2009 6:41:35 PM
To: transverse myelitis
Subject: [TMIC]

This is Janice,

I have 2 questions:

1. With hot weather coming, do any of you have a problem with all of a 
sudden being really hot?  I know some
of you had a problem with the cold last winter, but does your body 
change in summer and you get hit with being hot instead
of cold?I really have a problem with heat - especially with 
humidity.  I get hot, then weak.   Not good.

2.  Several of you have mentioned the tight "band" around your body.  I 
am not sure this band is in the same place for
everyone.Also, has there been any change in the band with those of 
you who have had TM for a long time?  




   
   
   
<>

Re: [TMIC] Listen

[Janice]

Good idea, Linda!   Come on, Gunny.  janice
  - Original Message - 
  From: L T CHERPESKI 
  To: Tmic-list@eskimo.com ; bgunny7...@aol.com 
  Sent: Saturday, June 20, 2009 7:48 PM
  Subject: Re: [TMIC] Listen


  Well my goodness, Gunny, aren't you just full of surprises!  The original 
drummer - do you still play??  You need to do a little song and put it on You 
Tube for all of us to enjoy!

  hugs
  LindaTIAD
- Original Message - 
From: bgunny7...@aol.com 
To: Tmic-list@eskimo.com 
Sent: Saturday, June 20, 2009 4:23 PM
Subject: [TMIC] Listen


Just sittin here reminiscin. I know some of you do and some of you don't, 
but this is the first song I was ever on. Yeah, I was thr original drummer way 
back in 1959. There's only two originals here on this tape. Marshall Sewel on 
the lft, and Harry Green the guy with the galsses and the white hair, next to 
Marshall. This is the PBS broadcast.YouTube - The Edsels - Rama Lama Ding Dong 



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Re: [TMIC] Listen

[Janice]

Okay, Gunny.How great this is!!!   I'm impressed with you and your music - 
I do love the old stuff!   Did you
go into the sheriff's dept after the band?Tell me about you.  Janice
  - Original Message - 
  From: kevin weilacher 
  To: bgunny7...@aol.com ; Tmic-list@eskimo.com 
  Sent: Sunday, June 21, 2009 8:44 AM
  Subject: Re: [TMIC] Listen


  Well Gunny...I'm part of the group that didn't know. You are a man of many 
talents I guess..
  I do know that the Edsels were from Youngstown so I see this all makes sense. 
How cool this is...I'm so glad you posted this. I love Doo-Wop anyway, but to 
know that I'm in the presence of a celebrityI'm honored.

  So, by the way...when are we ever gonna be able to get together..?   We just 
had a nice dinner get together of the three of us and spouses here in Canton 
with TM. It would be nice to add to that and have a bit of a "party".
  Let me know and maybe we can start coordinating with Sue over your way and 
Ellie up in Elyria and have a N.E. Ohio group.
  Take care and be well,
  Kevin Weilacher


--
  From: "bgunny7...@aol.com" 
  To: Tmic-list@eskimo.com
  Sent: Saturday, June 20, 2009 6:23:25 PM
  Subject: [TMIC] Listen


  Just sittin here reminiscin. I know some of you do and some of you don't, but 
this is the first song I was ever on. Yeah, I was thr original drummer way back 
in 1959. There's only two originals here on this tape. Marshall Sewel on the 
lft, and Harry Green the guy with the galsses and the white hair, next to 
Marshall. This is the PBS broadcast.YouTube - The Edsels - Rama Lama Ding Dong 


--
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Re: [TMIC] Play this

[Janice]

Thank you, Gunny.   That was well done.We just have to remember what it 
says.Janice
  - Original Message - 
  From: bgunny7...@aol.com 
  To: Tmic-list@eskimo.com 
  Sent: Saturday, June 20, 2009 3:28 PM
  Subject: [TMIC] Play this


  May You Be Blessed Movie 


--
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[TMIC] PAM AND CARDS

[MontzMagic]

I JUST WANT. TO THANK THE TM ASSOCIATION FOR SENDING ME A CARD OF  
SYMPAYHY.  IT WAS GREATLY APPRECIATED. I WANTED TO THANK LINDA C. FOR HER  
WONDERFUL 
CARD WITH A BEAUTIFUL LETTER IN IT. THEY REALLY TOUCHED ME. I JUST PUT  ON 
AN ELVIS MOVIE FOR PAM AND MYSELF. (VIVA LAS VEGAS WITH ANN MARGRET). SHE  
LIKED MOST OF THEM AND WE HAVE A HAND FULL OF HIS MOVIES. I PACKED UP ALOT OF 
 MOVIES BUT I DID KEEP MAMA MIA-SHE SAID I HAD TO WATCH IT FOR SURE. I  
ERASED THE NAMES OF HER FRIENDS IN THE MAIL LIST SHE HAD. I DID NOT DO THIS TO  
BE MEAN OR UGLY NASTY ETC. I DID IT BECAUSE I DID NOT WANT TO CONTACT 
PEOPLE  WHEN MAYBE ITS NOT A GOOD IDEA. I FIGURED I WOULD KEEP AN EYE OPEN ON 
THE 
 LETTERS COMING IN FROM PEOPLE ON TMIC. IF A LETTER IS DIRECTED  ABOUT PAM  
OR MYSELF I WOULD RESPOND BACK  THAT WAY.  2ND TRY AT THE LITTLE  CHAPEL 
TODAY THAT PAM LOVED. IT WAS 8:00AM AND IT WAS LOCKED. WELL I SAW SOME  MEN 
WAITING FOR THE CHURCH TO OPEN AND HAVE (SAY) MASS AT 9:00.  1-MAN SAID  WE 
ARE WAITING AND HOPING SOMEONE WILL OPEN THE NOW NEW ASSERY CHURCH HELD  IN A 
BLDG. THE OLD CHURCH WAS TORN DOWN FROM KATRINA. IT SITS ON A BAYOU. VERT  
BEAUTIFUL SITE. LIL CHAPLE AND MAYBE A NEW CHURCH. SO I SAID A PRAY AND  
LEFT. ON SUNDAY THEY HAVE 2-MASSES-9-11 AM-WELL I LEARNED THAT MUCH TODAY. I  
MUST GET INTO THE CHAPEL AND BURN SOME CANDLES FOR PAM AND THE FAMILY. I SAID 
TO  MYSELF COMING HOME I WILL GO NEXT SUNDAY AND LEAVE FOR 10:00 AND ALL 
SOULD BE  WELL.. I PULLED UP IN THE DRIVEWAY AND BOOM A GREAT IDEA HIT FROM OUT 
OF  NOWHERE. WHY CAN'T I GO TO NEXT SUNDAYS MASS AT 9:00AM IT ABOUT 10 
MILES OR SO  AWAY BUT I COULD GIVE THAT CHURCH WELL NEED MONEY ALTHOUGH SMALL 
AS 
IT MAY BE  AND THEN GO AND LITE THE CANDLES.  THANKS PAM I KNOW SHE PUT 
THAT INTO MY  HEAD. I WILL TRY HARD TO DO IT. MY CHURCH IS ONLY A 1/2 MILE FROM 
HOME BUT THIS  CHURCH NEEDS THE MONEY. ITS A LONELY FATHERS DAY BUT I STILL 
CHAT TO PAM AND WE  HAVE THE MOVIE. IT'S A COLD COLD BEER DAY TODAY LOL. 
WILL BE ABOUT 97 DEGREES  ALL WEEK HERE. MY NEIGHBOR HAS SOME GIFTS FROM PAM 
FOR ME AND I TOLD HIM I WOULD  GET THEM FROM HIM TODAY .HOWEVER HE  IS  A 
GONE PECAN RIGHT NOW.  WAITING FOR SON TO CALL ME I GUESS AFTER HIS SHIFT IS 
OVER AS A COP.  HEY  SON DO NOT GIVE THOSE DAD TICKETS TODAY! GUYS HAVE A 
GREAT FATHERS DAY AND  LADIES THANKS FOR YOUR EAR.
DANTIAD ---PAM---LOVE YOU PAM!!!
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[TMIC] Fathers Day,

[CJBJWB]

Yesterday when I got to the hospital they told me that Jim had breathed for 
 an hour on his own that morning. As you can imagine that was the best news 
I  have heard.in a long time. I am not sure what that means in the scheme 
of things  (moving him or not etc.) but it sure gives me hope! They will 
decide tomorrow  morning. I will pack tonite when I get home from there,I went 
to church and Eric  and Cindy and girls went there this am and are now on 
there way home to  Kzoo.Jodi and Dave have been there this afternoon and may be 
gone by the time I  get there. Jim needs to rest and I will sit quietly in 
his room ready to smile  and blow him kisses, when, he wakes up. Keep the 
prayers coming. Til next  time. carol and jim
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Re: [TMIC] Listen

[kevin weilacher]

Well Gunny...I'm part of the group that didn't know. You are a man of many 
talents I guess..
I do know that the Edsels were from Youngstown so I see this all makes sense. 
How cool this is...I'm so glad you posted this. I love Doo-Wop anyway, but to 
know that I'm in the presence of a celebrityI'm honored.

So, by the way...when are we ever gonna be able to get together..?   We just 
had a nice dinner get together of the three of us and spouses here in Canton 
with TM. It would be nice to add to that and have a bit of a "party".
Let me know and maybe we can start coordinating with Sue over your way and 
Ellie up in Elyria and have a N.E. Ohio group.
Take care and be well,
Kevin Weilacher



From: "bgunny7...@aol.com" 
To: Tmic-list@eskimo.com
Sent: Saturday, June 20, 2009 6:23:25 PM
Subject: [TMIC] Listen

Just sittin here reminiscin. I know some of you do and some of you don't,
but this is the first song I was ever on. Yeah, I was thr original drummer way
back in 1959. There's only two originals here on this tape. Marshall Sewel on
the lft, and Harry Green the guy with the galsses and the white hair, next to
Marshall. This is the PBS broadcast.YouTube - The Edsels - Rama
Lama Ding Dong 



Download the AOL Classifieds Toolbar for local deals at your fingertips.


  

Re: [TMIC] Play this

[Celrods]

IT IS BEAUTIFUL AND PEACEFUL.  THANK YOU SO MUCH FOR SHARING.
 
FOR PAM TIAD
 
JANE
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