Re: [TMIC] Update on Jim

[Akua]

HOORAAY!


What a difference a week can make. I am so thankful to have my honey 
on the road to recovery. The doctor said today that he will be at 
the hospital a couple more weeks and then to an in patient rehab. I 
am voting for Marlette which is where he had the rehab in 2005. I 
know many of the therapists he had have moved on to bigger and 
better things but the new ones will be good too and it is much 
closer than the over an hour ea way I have been driving each day. He 
is off the vent and ready to start building his muscles back 
up.Thank you all for your prayers and concern.GOD is so good. love 
ya carol and jim


--

Re: [TMIC] Update on Jim

[L T CHERPESKI]

Carol,

That is just the best news!  Way to go, Jim!  Keep up the good work, you'll be 
home in no time.  And Carol we really appreciate your updates.  God Bless

Linda
  - Original Message - 
  From: cjb...@aol.com 
  To: tmic-list@eskimo.com 
  Sent: Saturday, July 04, 2009 9:30 PM
  Subject: [TMIC] Update on Jim


  What a difference a week can make. I am so thankful to have my honey on the 
road to recovery. The doctor said today that he will be at the hospital a 
couple more weeks and then to an in patient rehab. I am voting for Marlette 
which is where he had the rehab in 2005. I know many of the therapists he had 
have moved on to bigger and better things but the new ones will be good too and 
it is much closer than the over an hour ea way I have been driving each day. He 
is off the vent and ready to start building his muscles back up.Thank you all 
for your prayers and concern.GOD is so good. love ya carol and jim


--
  Make your summer sizzle with fast and easy 
recipes for the grill.

Re: [TMIC] Update on Jim

[JHarper33]

So glad to hear he's doing better!
 
Barbara H.
_http://barbarah.wordpress.com_ (http://barbarah.wordpress.com) 
 
 
In a message dated 7/4/2009 11:30:53 P.M. Eastern Daylight Time,  
cjb...@aol.com writes:

What a difference a week can make. I am so thankful to have my honey on  
the road to recovery. The doctor said today that he will be at the hospital a  
couple more weeks and then to an in patient rehab. I am voting for Marlette 
 which is where he had the rehab in 2005. I know many of the therapists he 
had  have moved on to bigger and better things but the new ones will be good 
too  and it is much closer than the over an hour ea way I have been driving 
each  day. He is off the vent and ready to start building his muscles back 
up.Thank  you all for your prayers and concern.GOD is so good. love ya carol 
and  jim

 

Make your summer sizzle with _fast and easy  recipes_ 
(http://food.aol.com/grilling?ncid=emlcntusfood0005)  for the  grill.


**A Good Credit Score is 700 or Above. See yours in just 2 easy 
steps! 
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JulystepsfooterNO62)

Re: [TMIC] Class Reunions (way too honest)

[Janice]

  I would like to know what you are doing too.   Janice

- Original Message - 
From: "Kevin Wolfthal" 

To: ; 
Sent: Friday, July 03, 2009 6:49 PM
Subject: Re: [TMIC] Class Reunions (way too honest)




Would you mind sharing the core strengthening exercises you use?  I need 
to do
that also.  I lost maybe 50 pounds in the last six months, (mostly from 
stress after

having to give my Mom cpr), and I think I lost a lot of muscle.

Thanks,
Kevin




parkersw...@aol.com wrote:
That is so very sweet of you!  I needed that!   The Doc told me yesterday 
that I need to strengthen my core because I am having a lot of back 
issues.  So, my body is out of shape, but that is only temporary 
Terry is always very kind regarding my looks!  He is truly a sweetheart. 
xoxox



Dell Summer Savings: Cool Deals on Popular Laptops - Shop Now! 

[TMIC] Update on Jim

[CJBJWB]

What a difference a week can make. I am so thankful to have my honey on the 
 road to recovery. The doctor said today that he will be at the hospital a 
couple  more weeks and then to an in patient rehab. I am voting for Marlette 
which is  where he had the rehab in 2005. I know many of the therapists he 
had have moved  on to bigger and better things but the new ones will be good 
too and it is much  closer than the over an hour ea way I have been driving 
each day. He is off the  vent and ready to start building his muscles back 
up.Thank you all for your  prayers and concern.GOD is so good. love ya carol 
and  jim
**Make your summer sizzle with fast and easy recipes for the 
grill. (http://food.aol.com/grilling?ncid=emlcntusfood0005)

Re: [TMIC] Class Reunions (way too honest)

[Janice]

Wow I am really impressed. Good goin'!  
 Janice
  - Original Message - 
  From: rj_ran...@yahoo.com 
  To: bobby jim ; tmic-list@eskimo.com 
  Sent: Friday, July 03, 2009 1:09 AM
  Subject: Re: [TMIC] Class Reunions (way too honest)


  I have been doing light excercises at LA fitness for a while and my back 
feels great now. I still get pain. I remember not being able to push 5 pds with 
my legs and how painful it was to worl out with a 2 pnd weight. Now I can push 
over 200 with my legs. That's been a 4 year journey. 
  Sent from my Verizon Wireless BlackBerry



--
  From: "bobby jim" 
  Date: Thu, 2 Jul 2009 19:32:48 -0500
  To: ; ; 
  Subject: Re: [TMIC] Class Reunions (way too honest)


  Ah yes, back issues... I could go on and on with that one. 
Sh...;>)

  Ever heard of spondylolisthesisI've got it, between L2 and L3.
  oh well

  BobbyJim 
From: parkersw...@aol.com 
To: balmat...@aol.com ; tmic-list@eskimo.com 
Sent: Thursday, July 02, 2009 5:07 PM
Subject: Re: [TMIC] Class Reunions (way too honest)


That is so very sweet of you!  I needed that!   The Doc told me yesterday 
that I need to strengthen my core because I am having a lot of back issues.  
So, my body is out of shape, but that is only temporary  Terry is always 
very kind regarding my looks!  He is truly a sweetheart.  

xoxox

Re: [TMIC] Class Reunions (way too honest)

[Janice]

 I bet you still look great!! I do agree that this aging business is 
tough on the body!!   Janice
  - Original Message - 
  From: parkersw...@aol.com 
  To: k...@frontiernet.net ; tmic-list@eskimo.com 
  Sent: Thursday, July 02, 2009 10:59 AM
  Subject: Re: [TMIC] Class Reunions (way too honest)


  WELL HELL FRIENDS!!!  "I am up to 145lbs (I gained 10lbs). I wear size 10 
jeans and really don’t feel comfortable with my NEW body. I don’t like the way 
I look or feel. I do not like having a belly or the feel of my thighs rubbing 
together. You asked for honest and here it is. Aging is HELL"

  THAT'S ME IN A NUTSHELL AND I DON'T HAVE TM!   Yes, I will count my blessings!

  SPARKER   :)


--
  Dell Summer Savings: Cool Deals on Popular Laptops - Shop Now!

Re: [TMIC] Class Reunions (way too honest)

[Janice]

Kathy,
I want to know how your weekend went.I hope you really enjoyed yourself.
Anytime I leave the house, which,
naturally is much less than it used to be, I am nervous that something will go 
wrong and embarras me.Life is
just more difficult now.  Janice
  - Original Message - 
  From: LadyOwl1961 
  To: transverse myelitis 
  Sent: Thursday, July 02, 2009 7:28 AM
  Subject: Re: [TMIC] Class Reunions (way too honest)



  This past May I had 2 reunions. The first was my high schools' 100th Birthday 
and my 30th Reunion, the second was my Navy League (was a Wrenette, then 
Cadet) in the middle 70's. I made it to the Navy League one but did not make it 
back home in time for the High school one (got there the day it ended). Now I 
don't think of myself as vain but I did manage to squeeze myself into my size 8 
jeans (skinny jeans). "Size 8??? Skinny Jeans???"  You may all say, but this is 
coming from the girl who never weighed more than 125lbs (and that was when I 
was 9 months pregnant).  Once TM hit I managed to get up to that 125lbs again 
and could not lose it. I also found once I hit 45 EVERYTHING began to settle 
around my lower butt. I no longer have my nice perky boobs. I had the bags they 
came in. I have grey hairs popping up all over my head too fast for me to pluck 
them out. BUT I did go. It was funny because I saw every female (and some of 
the males) going through everything I was in the again process. Some looked a 
lot older, some looked younger, some were skinny when they had been a little 
chunky and some were fat that had been so skinny we thought they had Anorexia. 
We all had changed. The class clowns had grown up (all though one did not), we 
had matured, and grown up but we still saw each other as what we had been. I 
was the girl that all the guys had a crush on (did not find that out till now), 
a friend was still the drunk and another was the druggie (only prescription 
drugs now) the flirt was still the flirt and last but not least the asshole was 
still an asshole. I was also lucky enough to go with a few GOOD friends whom 
know all about my TM and when I was asked about it they helped explain. When I 
got tired and had to go home, they understood, when I wobbled, they understood 
a few people accused me of having too much to drink and were idiots about it 
but I just ignored their rudeness. I did have a fantastic conversation with a 
doctor (she lives in Finland now) about TM as she works with auto-immune 
patients and had never really met someone with it. Overall I had a great time 
and it was nice catching up with old friends. 

  Now a month later and going through my 3rd bout of TM I am up to 145lbs (I 
gained 10lbs). I wear size 10 jeans and really don't feel comfortable with my 
NEW body. I don't like the way I look or feel. I do not like having a belly or 
the feel of my thighs rubbing together. You asked for honest and here it is. 
Aging is HELL.  Medication side effects are HELL. TM is HELL.  If my Reunion 
was planned for now I would not go as it would take way too much out of me. I 
just don't like myself at this moment; I am too emotional and worried about my 
health. I cannot predict if it will be a good day and I only think I can carry 
the actress off on a good day. I have a family BBQ on the 4th and I am 
obsessing over it already and this is family. Mind you they do not understand 
and don't want to about TM so that makes me obsess a little more. So my advice 
is wait until the morning of the event and if you feel up to it go if not stay 
home. That is my plan for this weekend.

   

  Kathy

- Original Message - 
From: Janice 
To: transverse myelitis 
Sent: Wednesday, July 01, 2009 10:47 PM
Subject: [TMIC] Class Reunions


I have another question for you all that want to answer:

I will be having another class reunion shortly and graduating from the 
hometown high school, I was usually one of about 15 that
helped to plan it.We had around 500 in our graduating class.Anyway, 
I am debating whether or not to be a part of the
planning or even attending the reunion.This is the first reunion since 
I got clobbered with TM.  I still have to use a cane and 
would maybe need my wheelchair.I was fairly well known and I am afraid 
I would be answering questions all nite about TM. My question is:
 Would you let TM keep you from attending a reunion?Be honest.   If 
you were faced with this decision this weekend,
what would you do?

Janice 

Re: [TMIC] Class Reunions

[Janice]

It sounds like you have had foot problems all your life and I can see where TM 
would help you out with deadening the
pain.But, couldn't you have found a better way to do it?!   
  Janice   
  - Original Message - 
  From: balmat...@aol.com 
  To: mother...@gmail.com ; a...@artfarm.com 
  Cc: tmic-list@eskimo.com 
  Sent: Friday, July 03, 2009 3:47 PM
  Subject: Re: [TMIC] Class Reunions


  Oh My Gosh Trudy, 

  It is so true!  We as children learn to walk with much care from loving 
adults around us, but it's a natural thing for most children.  For the rest of 
the lives of so many it is just taken for granted and never really thought of 
until something changes that for them or somebody around them.  For many it is 
just a temporary problem like a broken leg or something similiar, but nothing 
more serious than that.  

  I also watch people walking.  I was born with club feet, had braces and 
learned to walk with them on.  After spraining and then breaking my ankle a 
couple of times as a kid, I had a lot of trouble with if most of my life with a 
lot of pain and 2 surgeries.  I had many castings, and several removable ones 
as well, so there were many times that walking wasn't as easy.  It wasn't taken 
for granted by me completely, but I remember feeling that walking could be 
modified for me and I wouldn't always be as active, but with care, I could do 
what I wanted most of the time in my pre-TM life. You know what? I have a lot 
of arthritis and had lots of pain in the foot prior to TM, but now without all 
the feeling in my foot, it doesn't hurt anymore.  One thing that has been good 
since TM.

  My grandparents worked very hard all of their lives.  My grandfather retired 
very close to when I got married and he was supposed to walk me down the aisle 
in my wedding.  He came home the last day of work, collapsed in his favorite 
chair and never left the house again.  He couldn't walk anymore, it broke our 
hearts.  He always told my grandmother that when he retired they would travel.  
They'd see relatives that they missed and enjoy themselves.  When we got 
married we promised ourselves we'd celebrate the special times, we'd try to 
prepare for the future, but we'd also enjoy each year with a vacation.  For 
many years it was camping trips to local parks, then we'd go further.  It 
graduated to more and better as we could afford it, but our kids grew up 
vacationing in campgrounds and loved it.  

  When TM hit, I thought to myself, well my kids are grown, I have good 
insurance, I have a decent marriage and have done many things that I wanted to 
in life.  If I can't do them now, at least I did them.   No regrets.

  Live in the manner that you can, do what you can, regrets are not fun. 

  Hugs, Barbara A


  -Original Message-
  From: Trudy Ogilvie 
  To: Akua 
  Cc: tmic-list@eskimo.com
  Sent: Fri, Jul 3, 2009 7:31 am
  Subject: Re: [TMIC] Class Reunions


  Akua wrote 




  "If I could get ANYWHERE, I would go" 


  I thought of all those on this list who would love so much to be able to go 
as Akua said, "anywhere". Here we are going on about "not" doing something and 
for "what" reason and there are friends of ours on this list who do not have 
the choice. 
   I have at times wanted to scream at my closest friends because they could 
just get up and go!! I can't carry a plate from the sink to the table. I have 
almost become obsessed with watching how people walk. How quickly they turn 
around and go thru a doorway with not a thought about it. As they say "it is 
what it is"  You know that "face" we put on for people mine is beginning to 
show alot of "wear & tears".  
  But as we have been finding out on this list people are realizing "talents 
and gifts" they never knew they had.


  Blessings
  Trudy
  "You are an unrepeatable oneness"  ... Karl Rahner


  P.S. Found a website for "different" types of greeting cards and not that 
expensive.  www.cardsbyanne.com







  On Thu, Jul 2, 2009 at 1:57 PM, Akua  wrote:

.
As I can get nowhere, it is moot.
I am paralyzed and wheelchair bound and perhaps because I can't "pass" 
there is no quibbling.
The hardest thing for me was to return to work  in a wheelchair and in pain 
, work  untold hours and week and then get fired. The next hardest ego thing 
and physical thing was to do poetry readings from a wheelchair.  I couldn't 
move/dance/gesture as I once did. It is harder to breathe and pull my range of 
voice/sound up that was the ego blow.

After that, I am just glad to be here.  The death/loss of friends at such 
early ages --- my sister says that we were the  "battering rams" and so have 
suffered more physically ---  makes  all who remain so very very precious to 
me. My college classmates raised money to help me come home. I would love, 
love, love to be at the next reunion.

Akua
-- 

Re: [TMIC] Unsubscribing for awhile

[L T CHERPESKI]

Hi Dan, 

It's so good to hear from you.  Happy 4th to you as well!  I've been thinking 
about all that delicious food you all cook up. Great dishes - Pam shared 
several recipes with me.

God Bless

Linda***TIAD***
  - Original Message - 
  From: montzma...@aol.com 
  To: jkste...@yahoo.com ; 
tmic-list@eskimo.com 
  Sent: Saturday, July 04, 2009 5:32 AM
  Subject: Re: [TMIC] Unsubscribing for awhile


 JK--I WISH YOU NOTHING BUT HAPPINESS AND GOOD LUCK IN YOUR 
CAREER

  THANK YOU FOR SAYING THE KIND WORDS ABOUT MY WIFE PAM!

  I WISH EVERYONE A HAPPY 4TH. OF JULY. !!!


  GOD BLESS ALL--- AND FROM PAM---TIAD!!!

  DAN




--
  Make your summer sizzle with fast and easy 
recipes for the grill.

Re: [TMIC] Class Reunions

[Janice]

Trudy, we have a lot in common - watching how life is so easy for 
others.   I am grateful that I can walk,
 but no one realizes the pain involved in just being upright.   It 
looks so easy for others.   I also have not
 graduated to carrying breakables yet.Maybe someday.
Janice
  - Original Message - 
  From: Trudy Ogilvie 
  To: Akua 
  Cc: tmic-list@eskimo.com 
  Sent: Friday, July 03, 2009 9:31 AM
  Subject: Re: [TMIC] Class Reunions


  Akua wrote




  "If I could get ANYWHERE, I would go"


  I thought of all those on this list who would love so much to be able to go 
as Akua said, "anywhere". Here we are going on about "not" doing something and 
for "what" reason and there are friends of ours on this list who do not have 
the choice. 
   I have at times wanted to scream at my closest friends because they could 
just get up and go!! I can't carry a plate from the sink to the table. I have 
almost become obsessed with watching how people walk. How quickly they turn 
around and go thru a doorway with not a thought about it. As they say "it is 
what it is"  You know that "face" we put on for people mine is beginning to 
show alot of "wear & tears".  
  But as we have been finding out on this list people are realizing "talents 
and gifts" they never knew they had.


  Blessings
  Trudy
  "You are an unrepeatable oneness"  ... Karl Rahner


  P.S. Found a website for "different" types of greeting cards and not that 
expensive.  www.cardsbyanne.com







  On Thu, Jul 2, 2009 at 1:57 PM, Akua  wrote:

.
As I can get nowhere, it is moot.
I am paralyzed and wheelchair bound and perhaps because I can't "pass" 
there is no quibbling.
The hardest thing for me was to return to work  in a wheelchair and in pain 
, work  untold hours and week and then get fired. The next hardest ego thing 
and physical thing was to do poetry readings from a wheelchair.  I couldn't 
move/dance/gesture as I once did. It is harder to breathe and pull my range of 
voice/sound up that was the ego blow.

After that, I am just glad to be here.  The death/loss of friends at such 
early ages --- my sister says that we were the  "battering rams" and so have 
suffered more physically ---  makes  all who remain so very very precious to 
me. My college classmates raised money to help me come home. I would love, 
love, love to be at the next reunion.

Akua
-- 

Re: [TMIC] Class Reunions

[Janice]

  I would love to have heard your explanation of what happened to you 
and the reaction of the person who
 asked!! I really wish our high school had been smaller and more 
intimate.  Janice
  - Original Message - 
  From: Jan Hargrove 
  To: Janice ; tmic-list 
  Sent: Thursday, July 02, 2009 12:16 PM
  Subject: Re: [TMIC] Class Reunions


Janice,

TM came to live at our house one year prior to my 40th reuniona 
girl in my sis's 
class, whose brother was in my class, and my sis came for the 
weekend...they 
went to all three day's events with me and when I tired they knew the 
signs and 
quietly took me home.

I still live in town where I went to high school so many of the local 
kids knew I'd
been paralyzed so there wasn't too much explaining I had to do, course 
I had my 
'fore mentioned guard dogs who did lots of explaining, if I was 
asked...

Since that time I've joined the group of locals who did planning for 
our 45th and 50th, 
then after our 50th we started meeting at Hideaway Pizza, owned by 
classmate, for 
pizza and beer one Thursday each month. We even have members who live 
300-500 
miles from here that come for pizzasecret is: if you're not 
there, you're fodder 
for discussion!!

As we begin to 'lose' members, we are seated en masse at the services 
then pro-
vide meals for the family and classmates.

I don't worry about being acceptedthose who come and don't know 
what's
with me just ask and I tell them enough that they're sorry they asked, 
and then
they don't ask again and warn others not to ask..it works every 
time..

I assume you realize that our class was +/- 150 members, so we've known 
most
every classmate and that makes returning for reunion especial.and 
naturally
we look for signs of aging, weight issues, balding or gray, 
etcThat's normal!

So I'm saying, Go!! Have Fun!! Don't sweat those who don't understand, 
you know 
you're okay and that's all that counts!!

!!! TIAD !! janh Stillwater, OK


--- On Wed, 7/1/09, Janice  wrote:



  I have another question for you all that want to answer:

  I will be having another class reunion shortly and graduating from 
the hometown high school, I was usually one of about 15 that
  helped to plan it.We had around 500 in our graduating class.
Anyway, I am debating whether or not to be a part of the
  planning or even attending the reunion.This is the first reunion 
since I got clobbered with TM.  I still have to use a cane and 
  would maybe need my wheelchair.I was fairly well known and I am 
afraid I would be answering questions all nite about TM. My question is:
   Would you let TM keep you from attending a reunion?Be 
honest.   If you were faced with this decision this weekend,
  what would you do?

  Janice  

Re: [TMIC] Unsubscribing for awhile

[L T CHERPESKI]

Oh my goodness, Jenna, we are going to miss you!  But how exciting for you to 
be getting back into your career.  I wish you the very best as you move on to 
your new life.  I was born and raised in Seattle and know Vancouver, WA and 
Portland, OR  very well.  Beautiful areas.  When you catch your breath please 
drop in and let us know how you're doing. I'm very excited for you!

Best wishes,
Linda  ***TIAD***
  - Original Message - 
  From: Jenna 
  To: TMIC 
  Sent: Friday, July 03, 2009 9:07 PM
  Subject: [TMIC] Unsubscribing for awhile


  I just want to let you all know I have to unsubscribe for awhile.  I have 
left GA and will be working my way to Vancouver WA.  I am going to be without 
internet from time to time.  And when I do get a chance to get online, I 
probably won't have much time.  

  But I need to tell you all how very much this group has meant to me, and the 
support I have gotten over the last OH MY GOODNESS 9 YEARS TO BE EXACT.I 
just realize the symptoms started the very end of June and I was in TX at the 
time on a family vacation.  Because we couldn't figure out what was wrong with 
me and why I kept becoming more and more numb, we headed back to GA.  We got on 
late on the 3rd of July. Obviously I had the slow onset TM.  I spent most of 
the 4th in the ER.  Being told things like, well you haven't had a stroke, and 
you don't have a brain tumor, but we don't know what is wrong with you.  You 
need to see a Neuro.  ASAP!!  I won't get into what a difficult time that was, 
because so many of us have been through it.  

  But here it is exactly 9 years later and I am so very much better and moving 
on with my life and trying to get back to the career I had, before I had kids.  

  I am going back to the Airline Training School, I went to in 1983.  I am 
ready to go back into the travel and tourism industries.  I had a great career, 
and now I just need current training to get back into it.  

  So I just wanted to say so long to you my dear and wonderful friends that I 
will miss very much reading everyday what is going on with you!  

  Dearest Jim Lubin, thank you, thank you, thank you, for starting this for all 
of us.  9 years ago it was so hard to find out anything about Transverse 
Myelitis.  The only reason I found you was because I had a brother in medical 
school at the time and he found Dr. Kerr, and what Hopkins was doing and that 
led me to TMA.  

  Those of you that I am close with know who you are!!  Because I don't post to 
the list that much just to the person.  I don't really know why I do it that 
way, but that is what I do.  

  Dear miss Kim Harrison, no more protest about me leaving, I will miss seeing 
you and you still have my sweater, so I have to come back to GA to get it!!!   
Got it girl???  I love you!!

  Jude, I care so very much about you and I am so happy you are doing better!  
Please keep in touch when you have time!!

  There are so many of you I want to say something to, but I just can't this is 
harder than I thought it would be!!

  The last person I have to say something about is Pam, she was such a 
wonderful friend.  I miss getting jokes from her and sending jokes to her!!  I 
miss you so very much!!  You are so right TIAD!!!   I am for the first time in 
45 years going to do what is best for me and not live to please others!!  


  I love you all and will miss you very much and after I get settled and if I 
am not over whelmed with being a 45 year old in school 7 hours a day 5 days a 
week, I will get back on the list again!  Jenna  

  P.S.  Any of you that might live near Vancouver, WA or Portland, OR let me 
know.  I would love to meet you while I am out in the great northwest!!

Re: [TMIC] Class Reunions

[Janice]

Trudy, I will be 63 in December and this is my 45th reunion too. Janice
  - Original Message - 
  From: Trudy Ogilvie 
  To: Janice 
  Cc: transverse myelitis 
  Sent: Thursday, July 02, 2009 11:19 AM
  Subject: Re: [TMIC] Class Reunions


  Janice,
  Not sure what year it is for you ... but my husband and I went to High School 
together and always went back when we could for reunions...when our 40th came 
up I was 2 yrs. into TM..  I didn't go  I couldn't face them.. I was tooo 
proud.. too vain... I was the captain of the cheerleaders and now I needed an 
ugly walker to get around..but I AM still the original "dancing fool"... I 
love to party and we always had a fantastic time..I do regret not going to it 
!! I have such great friends home! What the hell was I thinking!! I missed so 
much! .. My 45th (yes I'm 63 yrs. young) is coming up and I wouldn't miss it.  
I've decided to just say "I have a spinal cord injury" and most people will end 
it there..  And YES I will get out on that dance floor and my husband will hold 
me up and we women will get up and sing New York, New York and we will laugh 
and cry over the "good ol'days"  And like "ladyOwl"  said, we really haven't 
changed all that much.. we are very much the person we were way back when...  
so here I am. a great deal older but hopefully a great deal wiser.  
  Carpe Diem!!!
  Trudy


  "It is only with the heart that one can see rightly;
  what is essential 
  is invisible to the eye"
   
   Antoine de St. Exupery (from the book "The Little Prince")








  On Wed, Jul 1, 2009 at 11:47 PM, Janice  wrote:

I have another question for you all that want to answer:

I will be having another class reunion shortly and graduating from the 
hometown high school, I was usually one of about 15 that
helped to plan it.We had around 500 in our graduating class.Anyway, 
I am debating whether or not to be a part of the
planning or even attending the reunion.This is the first reunion since 
I got clobbered with TM.  I still have to use a cane and 
would maybe need my wheelchair.I was fairly well known and I am afraid 
I would be answering questions all nite about TM. My question is:
 Would you let TM keep you from attending a reunion?Be honest.   If 
you were faced with this decision this weekend,
what would you do?

Janice 

Re: [TMIC] Class Reunions

[Janice]

Thanks a lot.   I didn't know there was such a short, yet complete, 
explanation for TM.I will always you that!   Janice
  - Original Message - 
  From: LadyOwl1961 
  To: tmic-list@eskimo.com 
  Sent: Thursday, July 02, 2009 8:15 AM
  Subject: Re: [TMIC] Class Reunions


  Oh I forget to mention that when people ask me what TM is I explain that it 
is like MS but that I have the lesions on my spine not my brain. That is a 
simple way for them to understand. MS is very well known and it keeps most 
people from wanting more of an explaination
  Kathy
- Original Message - 
From: jharpe...@aol.com 
To: jan...@centurytel.net ; tmic-list@eskimo.com 
Sent: Thursday, July 02, 2009 8:02 AM
Subject: Re: [TMIC] Class Reunions


I agree with what several others have said: I'd do ahead and RSVP so they 
can make adequate preparations and then see how you feel when the time comes. 
Sometimes I am fine answering questions and want to spread awareness about TM 
that way: sometimes I can kind of close in on myself and not really want to get 
into it. I'd prepare a short response for anyone who asks (I think I used to 
say something like "I had an auto-immune attack on my spine") and then go 
further if they want to talk about it more and you feel like it, or change the 
subject if you don't.

But would I let the fact of having TM keep me from such a gathering? No. As 
others have said, a lot of people in your class will have gone through any 
number of situations, too, in the mean time.

Barbara H.
http://barbarah.wordpress.com

In a message dated 7/1/2009 11:47:46 P.M. Eastern Daylight Time, 
jan...@centurytel.net writes:
  I have another question for you all that want to answer:

  I will be having another class reunion shortly and graduating from the 
hometown high school, I was usually one of about 15 that
  helped to plan it.We had around 500 in our graduating class.
Anyway, I am debating whether or not to be a part of the
  planning or even attending the reunion.This is the first reunion 
since I got clobbered with TM.  I still have to use a cane and 
  would maybe need my wheelchair.I was fairly well known and I am 
afraid I would be answering questions all nite about TM. My question is:
   Would you let TM keep you from attending a reunion?Be honest.   
If you were faced with this decision this weekend,
  what would you do?

  Janice 



Dell Summer Savings: Cool Deals on Popular Laptops - Shop Now!

Re: [TMIC] Class Reunions

[Janice]

I am beginning to feel braver, but the planning meetings haven't even started 
yet.   By the time the reunion comes, I may need
all this bolstering again.  Janice
  - Original Message - 
  From: jharpe...@aol.com 
  To: jan...@centurytel.net ; tmic-list@eskimo.com 
  Sent: Thursday, July 02, 2009 8:02 AM
  Subject: Re: [TMIC] Class Reunions


  I agree with what several others have said: I'd do ahead and RSVP so they can 
make adequate preparations and then see how you feel when the time comes. 
Sometimes I am fine answering questions and want to spread awareness about TM 
that way: sometimes I can kind of close in on myself and not really want to get 
into it. I'd prepare a short response for anyone who asks (I think I used to 
say something like "I had an auto-immune attack on my spine") and then go 
further if they want to talk about it more and you feel like it, or change the 
subject if you don't.

  But would I let the fact of having TM keep me from such a gathering? No. As 
others have said, a lot of people in your class will have gone through any 
number of situations, too, in the mean time.

  Barbara H.
  http://barbarah.wordpress.com

  In a message dated 7/1/2009 11:47:46 P.M. Eastern Daylight Time, 
jan...@centurytel.net writes:
I have another question for you all that want to answer:

I will be having another class reunion shortly and graduating from the 
hometown high school, I was usually one of about 15 that
helped to plan it.We had around 500 in our graduating class.Anyway, 
I am debating whether or not to be a part of the
planning or even attending the reunion.This is the first reunion since 
I got clobbered with TM.  I still have to use a cane and 
would maybe need my wheelchair.I was fairly well known and I am afraid 
I would be answering questions all nite about TM. My question is:
 Would you let TM keep you from attending a reunion?Be honest.   If 
you were faced with this decision this weekend,
what would you do?

Janice 


--
  Dell Summer Savings: Cool Deals on Popular Laptops - Shop Now!

Re: [TMIC] Class Reunions

[Janice]

I hope you have a great time at the dinner.At the very least, I will have 
to use my cane.   I am not closed to the
idea of going.It isn't because of vanity that I have 2nd thoughts of going, 
it is that I don't want to become a
spectacle there.I know after a while things would calm down.   I just don't 
want to go through that.We'll see.
 Janice
  - Original Message - 
  From: lynne myers 
  To: Janice 
  Cc: tmic 
  Sent: Thursday, July 02, 2009 7:27 AM
  Subject: Re: [TMIC] Class Reunions



Janice,
I got TM shortly before my 25 year class reunion and did not attend 
that one.  Not so much out of  vanity but because at the time I didnt think I 
would be able to handle being out and about for that length of time.

My 30 year is coming up the end of this month.  I wont be able to 
attend the main reunion on saturday because of a conflict of dates with another 
event, but am planning on attending a smaller dinner on friday so atleast I 
will get to see some of the people.  I am thinking that for the short time I am 
at the dinner I may be able to get away with no one knowing anything is wrong 
with me, so shouldnt have to answer any questions.  Just hoping for a good day 
and good weather so I wont have to use my cane.
Lynne

--- On Wed, 7/1/09, Janice  wrote:


  From: Janice 
  Subject: [TMIC] Class Reunions
  To: "transverse myelitis" 
  Date: Wednesday, July 1, 2009, 11:47 PM


  I have another question for you all that want to answer:

  I will be having another class reunion shortly and graduating from 
the hometown high school, I was usually one of about 15 that
  helped to plan it.We had around 500 in our graduating class.
Anyway, I am debating whether or not to be a part of the
  planning or even attending the reunion.This is the first reunion 
since I got clobbered with TM.  I still have to use a cane and 
  would maybe need my wheelchair.I was fairly well known and I am 
afraid I would be answering questions all nite about TM. My question is:
   Would you let TM keep you from attending a reunion?Be 
honest.   If you were faced with this decision this weekend,
  what would you do?

  Janice  

Re: [TMIC] Unsubscribing for awhile

[kimr1999]

Sorry we were not able to see each other before you left but I don't think I could have handled seeing you and having to say good bye... you will always be my life line and go to person in my TM life and life in general.
 
... I can still remember the panic and fear when i relapsed last year and then this past January how you were there for me in the hospital daily and surgery day you will always be a true friend to all that know you and the lucky ones that will get to know you in the future
love and miss ya, hope to meet up with you in WA soon
kim Harrison love ya from Hottlanta!!!
-- Original message from Jenna : -- 


I just want to let you all know I have to unsubscribe for awhile.  I have left GA and will be working my way to Vancouver WA.  I am going to be without internet from time to time.  And when I do get a chance to get online, I probably won't have much time.  But I need to tell you all how very much this group has meant to me, and the support I have gotten over the last OH MY GOODNESS 9 YEARS TO BE EXACT.    I just realize the symptoms started the very end of June and I was in TX at the time on a family vacation.  Because we couldn't figure out what was wrong with me and why I kept becoming more and more numb, we headed back to GA.  We got on late on the 3rd of July. Obviously I had the slow onset TM.  I spent most of the 4th in the ER.  Being told things like, well you haven't had a stroke, and you don't have a brain tumor, but we don't know what is wrong with you.  You need to see a Neuro.  ASAP!!  I won't get into what a difficult time that was, because so many of us have been through it.  But here it is exactly 9 years later and I am so very much better and moving on with my life and trying to get back to the career I had, before I had kids.  I am going back to the Airline Training School, I went to in 1983.  I am ready to go back into the travel and tourism industries.  I had a great career, and now I just need current training to get back into it.  So I just wanted to say so long to you my dear and wonderful friends that I will miss very much reading everyday what is going on with you!  Dearest Jim Lubin, thank you, thank you, thank you, for starting this for all of us.  9 years ago it was so hard to find out anything about Transverse Myelitis.  The only reason I found you was because I had a brother in medical school at the time and he found Dr. Kerr, and what Hopkins was doing and that led me to TMA.  Those of you that I am close with know who you are!!  Because I don't post to the list that much just to the person.  I don't really know why I do it that way, but that is what I do.  Dear miss Kim Harrison, no more protest about me leaving, I will miss seeing you and you still have my sweater, so I have to come back to GA to get it!!!   Got it girl???  I love you!!Jude, I care so very much about you and I am so happy you are doing better!  Please keep in touch when you have time!!There are so many of you I want to say something to, but I just can't this is harder than I thought it would be!!The last person I have to say something about is Pam, she was such a wonderful friend.  I miss getting jokes from her and sending jokes to her!!  I miss you so very much!!  You are so right TIAD!!!   I am for the first time in 45 years going to do what is best for me and not live to please others!!  
 I love you all and will miss you very much and after I get settled and if I am not over whelmed with being a 45 year old in school 7 hours a day 5 days a week, I will get back on the list again!  Jenna  P.S.  Any of you that might live near Vancouver, WA or Portland, OR let me know.  I would love to meet you while I am out in the great northwest!!

Re: [TMIC] Unsubscribing for awhile

[Akua]

That wasn't me, Frank you've confused messages.
Akua


 > >I just want to let you all know I have to unsubscribe for awhile.

A lot of people have been leaving the list lately.

I have looked into this phenomenon, and find a direct correlation:

 A new sunspot is rapidly emerging in the sun's southern hemisphere 
and it is crackling with B-class solar flares.  The magnetic 
polarity of sunspot 1024 identifies it as a member of new Solar 
Cycle 24.  It appears to be the best offering yet of the young solar 
cycle.


Have a great 4th- may the peace be with you!!

pHranq3ue



--

Re: [TMIC] Unsubscribing for awhile

[Trudy Ogilvie]

...Jenna

As we Irish are known to say on one's departure (preferably with a wee bit
of whiskey)

"May the road rise up to meet you, May the wind be ever at your back, May
the sun shine warm upon your face, and the rains fall soft upon your
fields... And until we meet again, May God hold you in the palm of His Hand.

Trudy

P.S. I think our  pHranq3ue has had a "wee bit of something"..  hmmm...
you'd think he would share!   :)


On Fri, Jul 3, 2009 at 11:07 PM, Jenna  wrote:

> I just want to let you all know I have to unsubscribe for awhile.  I have
> left GA and will be working my way to Vancouver WA.  I am going to be
> without internet from time to time.  And when I do get a chance to get
> online, I probably won't have much time.
>
> But I need to tell you all how very much this group has meant to me, and
> the support I have gotten over the last OH MY GOODNESS 9 YEARS TO BE
> EXACT.I just realize the symptoms started the very end of June and I was
> in TX at the time on a family vacation.  Because we couldn't figure out what
> was wrong with me and why I kept becoming more and more numb, we headed back
> to GA.  We got on late on the 3rd of July. Obviously I had the slow onset
> TM.  I spent most of the 4th in the ER.  Being told things like, well you
> haven't had a stroke, and you don't have a brain tumor, but we don't know
> what is wrong with you.  You need to see a Neuro.  ASAP!!  I won't get into
> what a difficult time that was, because so many of us have been through it.
>
>
> But here it is exactly 9 years later and I am so very much better and
> moving on with my life and trying to get back to the career I had, before I
> had kids.
>
> I am going back to the Airline Training School, I went to in 1983.  I am
> ready to go back into the travel and tourism industries.  I had a great
> career, and now I just need current training to get back into it.
>
> So I just wanted to say so long to you my dear and wonderful friends that I
> will miss very much reading everyday what is going on with you!
>
> Dearest Jim Lubin, thank you, thank you, thank you, for starting this for
> all of us.  9 years ago it was so hard to find out anything about Transverse
> Myelitis.  The only reason I found you was because I had a brother in
> medical school at the time and he found Dr. Kerr, and what Hopkins was doing
> and that led me to TMA.
>
> Those of you that I am close with know who you are!!  Because I don't post
> to the list that much just to the person.  I don't really know why I do it
> that way, but that is what I do.
>
> Dear miss Kim Harrison, no more protest about me leaving, I will miss
> seeing you and you still have my sweater, so I have to come back to GA to
> get it!!!   Got it girl???  I love you!!
>
> Jude, I care so very much about you and I am so happy you are doing
> better!  Please keep in touch when you have time!!
>
> There are so many of you I want to say something to, but I just can't this
> is harder than I thought it would be!!
>
> The last person I have to say something about is Pam, she was such a
> wonderful friend.  I miss getting jokes from her and sending jokes to her!!
> I miss you so very much!!  You are so right TIAD!!!   I am for the first
> time in 45 years going to do what is best for me and not live to please
> others!!
>
> I love you all and will miss you very much and after I get settled and if I
> am not over whelmed with being a 45 year old in school 7 hours a day 5 days
> a week, I will get back on the list again!  Jenna
>
> P.S.  Any of you that might live near Vancouver, WA or Portland, OR let me
> know.  I would love to meet you while I am out in the great northwest!!
>
>
>
>

Re: [TMIC] Unsubscribing for awhile

[fr...@franksheldon.com]

> >I just want to let you all know I have to unsubscribe for awhile. 

A lot of people have been leaving the list lately.

I have looked into this phenomenon, and find a direct correlation:

 A new sunspot is rapidly emerging in the sun's southern hemisphere and it is 
crackling with B-class solar flares.  The magnetic polarity of sunspot 1024 
identifies it as a member of new Solar Cycle 24.  It appears to be the best 
offering yet of the young solar cycle. 

Have a great 4th- may the peace be with you!!

pHranq3ue

Re: [TMIC] Unsubscribing for awhile

[Akua]

I just want to let you all know I have to unsubscribe for awhile.  I 
have left GA and will be working my way to Vancouver WA.  I am going 
to be without internet from time to time.  And when I do get a 
chance to get online, I probably won't have much time.


Best of luck, Jenna!  Work well, know joy, be blessed!
Akua


--

Re: [TMIC] Unsubscribing for awhile

[MontzMagic]

JK--I WISH YOU NOTHING BUT HAPPINESS AND GOOD LUCK IN YOUR  
CAREER
 
THANK YOU FOR SAYING THE KIND WORDS ABOUT MY WIFE PAM!
 
I WISH EVERYONE A HAPPY 4TH. OF JULY. !!!
 
 
GOD BLESS ALL--- AND FROM PAM---TIAD!!!
 
DAN
 
 
**Make your summer sizzle with fast and easy recipes for the 
grill. (http://food.aol.com/grilling?ncid=emlcntusfood0005)