Re: [TMIC] An unpleasant subject.

[L T CHERPESKI]

Dear Mike,

I am so very sorry to hear that you have been diagnosed with this rare disease. 
 And, yes, one would certainly think that TM in itself is enough.  I have read 
your post 3 times, trying to absorb it. Most of us had never heard of TM when 
we were diagnosed with it, and I can imagine that most of us have little or no 
knowledge about this.  I did find a great deal of information on the Mayo 
Clinic site.  I prayed for you tonight, and please know that you will continue 
to be in my prayers.  You are going to beat this thing. Knowledge is Power.  
The University of Washington is among the very best, so you're in good hands.  
You will be in my thoughts as you meet with the doctor Friday. Please update 
when you can.  And thank you for sharing your email address and phone number.  
You've come to the right place for support. 

Take care,
Linda 
  - Original Message - 
  From: Jill Hammond 
  To: tmic-list@eskimo.com ; 
jlu...@eskimo.com ; Paula 
Lazzeri 
  Sent: Tuesday, August 18, 2009 9:12 PM
  Subject: [TMIC] An unpleasant subject.


  My dear TM family,  Just when you thought we had enough bad things happening, 
I manage to get diagnosed with Nasopharyngeal Carcinoma.   Nasopharyngeal 
Carcinoma is a cancer of the sinus.  It is very uncommon, not only in this 
country but in this part of the world.  It usually occurs in oriental males.  
Like my primary doctor says, "Leave it to you to get something weird".  I guess 
I am going to have to do some more research on the family genealogy to find out 
where this one came from.  Normal treatment for this type of cancer is 
chemotherapy and radiation.  We are, at this time, getting a primary cancer 
care doctor and from there one who will oversee the chemo and radiation.  I am 
going to beat this thing, but to do this I need all the help I can get.  If you 
would all put me in your prayers it would be appreciated.  I will do my best to 
keep everyone updated on a regular basis.  Emails and calls are welcome, Email 
address is 3jmhamm...@clearwire.net and home 
phone is 360 658 5878.  I am going to continue to work as I can, but I usually 
get pretty tired early in the afternoon.  I have an appointment on Friday with 
a doctor at the University of Washington,  and hope to know more by then. The 
really weird thing is that if you look this up online it comes back as being 
related, somehow, to Epstein-Bar Virus,  and notes an immune system problem.  
Sound familiar?  Does this mean I have been blessed once again?  I don't have 
the email address for Dr. Kerr, but I figure he might be interested in this. If 
someone would forward this, please  Take care everyone,   Mike

   

   

[TMIC] An unpleasant subject.

[Jill Hammond]

My dear TM family,  Just when you thought we had enough bad things
happening, I manage to get diagnosed with Nasopharyngeal Carcinoma.
Nasopharyngeal Carcinoma is a cancer of the sinus.  It is very uncommon, not
only in this country but in this part of the world.  It usually occurs in
oriental males.  Like my primary doctor says, "Leave it to you to get
something weird".  I guess I am going to have to do some more research on
the family genealogy to find out where this one came from.  Normal treatment
for this type of cancer is chemotherapy and radiation.  We are, at this
time, getting a primary cancer care doctor and from there one who will
oversee the chemo and radiation.  I am going to beat this thing, but to do
this I need all the help I can get.  If you would all put me in your prayers
it would be appreciated.  I will do my best to keep everyone updated on a
regular basis.  Emails and calls are welcome, Email address is
3jmhamm...@clearwire.net and home phone is 360 658 5878.  I am going to
continue to work as I can, but I usually get pretty tired early in the
afternoon.  I have an appointment on Friday with a doctor at the University
of Washington,  and hope to know more by then. The really weird thing is
that if you look this up online it comes back as being related, somehow, to
Epstein-Bar Virus,  and notes an immune system problem.  Sound familiar?
Does this mean I have been blessed once again?  I don't have the email
address for Dr. Kerr, but I figure he might be interested in this. If
someone would forward this, please  Take care everyone,   Mike

 

 

[TMIC] Support the TMA with your everyday purchases.

[Jim Lubin]

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everyday purchases. We've partnered with Capital One® Card Lab Connect to
bring you our newest fundraising program, which helps us earn money
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you'll be helping to spread the word when people see your unique card,
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The Transverse Myelitis Association is an all-volunteer, non-profit
organization dedicated to providing information, advocating for and
supporting research efforts for a spectrum of rare neuroimmunologic
diseases of the central nervous system.
Thank you for your support!
If you would like to help you can print this flyer

http://www.myelitis.org/fundraiser/TMA_creditcard.pdf 

Jim Lubin
Director, Information Technology/Webmaster 
Transverse Myelitis Association
jlu...@myelitis.org

http://www.myelitis.org

http://www.myelitis.org/HowToHelp
Confidentiality Notice: This
e-mail message, including any attachments, is for the sole use of the
intended recipient(s) and may contain information that is privileged,
confidential and/or exempt from disclosure under applicable law. If you
have received this communication in error, please immediately contact the
sender and destroy the material in its entirety.  Thank you.

Re: [TMIC] That banding feeling

[Janice]

Have you talked to your doc yet about this?I fullly understand asking 
the TM'ers first - they know more about it.   But surely
your doc can come up with a reason for this.   If you find out, please let 
us know, and I hope it never happens again.

Janice

- Original Message - 
From: 
To: "Priscilla Keene" ; "L T CHERPESKI" 
; 

Sent: Tuesday, August 18, 2009 4:48 AM
Subject: Re: [TMIC] That banding feeling


I too have banding but I also have something else similiar but more painful 
that happens from time to time and I don't understand it. Lately it has 
increased. It generally starts in one ankle and the sole of the foot and 
runs up my leg to my spine. It hurts one time and hurts so bad that I don't 
even realize that it just happened. I don't know what it is. I had it 
happen this time last year when I would stand and look down. It would hit 
my back of the neck and run down to my feet. Then I would feel like I was 
stranding on an electric grid for a little while. Latelky the souls of my 
feet have been hurting - soar all the time. I am up right now with pain in 
souls of both feet. What causes this?

Sent from my Verizon Wireless BlackBerry

-Original Message-
From: Priscilla Keene 

Date: Mon, 17 Aug 2009 21:05:39
To: L T CHERPESKI; 
Subject: Re: [TMIC] That banding feeling


I, too, have banding, but it has lessened over the 8 years I've had TM. It 
was extremely painful for the first few years, but now I only have pain 
below my right breast at night. My hands are paralyzed, and I can't unhook 
my bra so sometimes I have to sleep with it on, and that really hurts--I 
try to go to sleep asap! Lyrica helps me a lot with the banding.

~I've got that banding feeling,
ohohoh, that banding feeling
I've got that banding feeling
And it's not gone, gone, gone
It's not gone, gone, gone ohohohohoh!~
LOL
Have a wonderful day!
Priscilla





From: L T CHERPESKI 
To: jrush...@columbiaenergyllc.com; tmic-list@eskimo.com; 
heyjude48...@aol.com

Sent: Monday, August 17, 2009 11:20:58 PM
Subject: Re: [TMIC] That banding feeling


Hi Jude,

It's so good to see you posting. It's been too long and we've missed you. 
I'm getting pretty sick of this banding too. And I've had the same thing 
with the breathing. What's up with that?? The first time it happened I was 
actually a little scared. If I would mind my P's
and Q's and not try to do too much in one day, ALL of my aches and pains 
would be more manageable.well, maybe


love,
Linda
- Original Message - 

From: heyjude48...@aol.com
To: jrush...@columbiaenergyllc.com ; tmic-list@eskimo.com
Sent: Monday, August 17, 2009 6:09 PM
Subject: Re: [TMIC] That banding feeling


Hi Jeanne,

The banding has been exactly the same for me. It has been with me since 
day one and starts underneath my breasts and goes all the way around my 
abdomen. When it gets real bad, it continues downward until I feel 
completely enveloped by it. Sometimes it hurts so badly it hurts to even 
breathe.


I don't let TM or anything get me down, but I am beginning to feel angry, 
after seven years. I am pissed because I cannot work in the garden and go 
places without it being a big deal to get dressed, fix my hair and 
sometimes put on make up so the pain doesn't show so badly. I was told 
that I looked old when I am in pain...by a sweet 14 year old boy. "Thank 
you very much".


For the constipation problem, for years I have used Fish Oil capsules, one 
per day and I get them from the health food store or my pharmacy. They 
work like a dream. And I have the kind of bowel that moves the poop down 
to "the vault", but will not push it out, so I have done digital removable 
for ever and ever. It's not fun, but we need to do what we need to do...


Love and Prayers,
Jude

In a message dated 8/11/2009 1:09:43 P.M. Eastern Daylight Time, 
jrush...@columbiaenergyllc.com writes:
The banding came on immediately with the TM and has never left. Without 
the meds, it is excruciatingly painful and just heads south to my toes. 
Funny how you can hurt so bad and 'not feel'??? Explain that to someone?? 
::)) Gosh, I'm so happy you all are in my life..Jeanne


---Original Message---

From: laura.eich...@gmail.com
Date: 8/10/2009 10:56:05 PM
To: tmic-list@eskimo.com
Subject: [TMIC] That banding feeling
Those of you who got that banding feeling do you all just have TM or did 
you also get subsequently diagnosed with MS too? And if you did 
experience the banding feeling, did you experience it at the beginning of 
your TM (or MS) journey or somewhere down the road? :-)
Just wondering if TM'ers get the banding feeling or is it only those that 
get MS too. I had it at the start of my TM but it went away after a month 
or two. I had a very mild case of TM and as of yet not diagnosed with MS.

Thanks!

--
Laura

Re: [TMIC] my knee

[Janice]

I am very careful of my knee also. I am back into therapy now, again, and 
my PT is taking a really different
direction with working on leg strength because of the knee.I don't really 
feel any pain any more, but I feel just
enough to let me know to be careful.
 Janice
  - Original Message - 
  From: balmat...@aol.com 
  To: jan...@centurytel.net ; cherp...@msn.com ; tmic-list@eskimo.com 
  Sent: Tuesday, August 18, 2009 5:56 PM
  Subject: Re: [TMIC] my knee


  Hi Janice,

  Well, my doc told me that if the first shot that I got in April didn't work, 
and if this one did, it's possible that my PCP missed and it landed in the 
wrong spot.  If they both don't work, then we struck out.  Not likely both 
missed, and the shots would not help me.  Personally, I would be scared of the 
Prednisone pills for 10 years, as we've seen here how they can mess with the 
bones. 

  I've rested it for a couple of days now as it was really irritated after the 
exam, and it seems ready for some exercise now.  I'll see how it responds with 
the same amount of exercise I was doing prior to the shot, and then I'm back on 
target.  Then, I am hoping to be able to do more after the two weeks, but time 
will tell.  The key for me (as well as all of us) is to know when enough is 
enough.  I have had TM for 10 years, and I still don't always know until it's 
too late.  At least I'm mindful of my knee now.  Most of the time I overdo the 
spine, which if I do, I rest the knee as well, lol.

  Take care all, hugs, Barbara A

  -Original Message-
  From: Janice 
  To: L T CHERPESKI ; tmic-list@eskimo.com; balmat...@aol.com
  Sent: Tue, Aug 18, 2009 2:44 pm
  Subject: Re: [TMIC] my knee


  I have had the cortisone injections in the knee.The first one did not do 
much, so they got me on Prednisone pills
  for about  10 days.Not much improvement.Then, later on, they gave me 
another shot in the knee and there was
  improvement and then over some weeks, it really was pretty good. I think 
the doc's always tell you the shot is not
  a cure, but it sure helps.
  Janice
- Original Message - 
From: L T CHERPESKI 
To: tmic-list@eskimo.com ; balmat...@aol.com 
Sent: Monday, August 17, 2009 11:03 PM
Subject: Re: [TMIC] my knee


Barbara,

Well it's no big deal about not asking about the injection of cartilage, 
but it IS a big deal what you're going through.  My goodness.  Did you already 
have the Cortisone injection, if so please let us know if it helps.  I hope for 
your sake it does.  I'm impressed with your doctor for being totally honest 
with you by telling you not to expect this to be a magic pill.  Everybody has 
different issues, so the outcome is not necessarily the same for all. 

Hey, congratulations on those pounds you already lost.  Getting started is 
the hardest part, and looks like you're on your way.  It is a lot of hard work 
after the surgery, but you will feel sooo much better.  And "better" is good.  
I know you can do it!  Just keep focused on being able to be more active.

Please keep us posted.

hugs,
Linda
  - Original Message - 
  From: balmat...@aol.com 
  To: tmic-list@eskimo.com 
  Sent: Sunday, August 16, 2009 1:25 AM
  Subject: [TMIC] my knee


  I went to the orthopedist yesterday, and found out that I am indeed a 
candidate for a knee replacement.  I am 58 yrs old and he said that typically 
they like to wait till 60 or older because they do need replacing in 10-15 yrs 
on average.  With as much as I'd walk on it, I'd probably get a longer life 
though, as he said what happens is the screws get loose and they need to go in 
and re-do them.

  He also schedules about 2 months out, and it takes most people about 4-6 
months of rehab to be back to 100%.  I really didn't want to be recouperating 
over Christmas, so I opted to try a Cortisone injection to see if it would get 
me through a bit until I could get at least past the holidays.  I don't know if 
it'll work or not, but it's worth a try.  I should know soon if the shot is 
successful or not.   My nephew gets married the 28th of August, and I am hoping 
to go to the wedding without knee pain.

  I loved him.  I've had 2 DVT's in this leg and have torn muscles also in 
the past few years.  He told me that this is not going to fix all the problems 
that I am having with my leg.  It may help them since the knee will be 
stronger, won't buckle on me, and the muscles won't have to be compensating as 
much, but I shouldn't go into the replacement and expect it to be the magic 
pill.  But, I have serious circulation problems that will not be helped, so my 
feeling is I have to try to help as much as I can to get back to being able to 
walk more again and become more active, if possible.  I walked more and better 
up until a few years ago.

  I was so surprised that he didn't talk at all about my weight.  I could 
stand t

Re: [TMIC] an interesting note

[Janice]

Get this, guys,
I have a good friend that has seen me through everything for over 2 years with 
the myelitis.   Now her son, 36 years
old, has been diagnosed with myelitis.It has only affected his hand.My 
friend has MS and the doc's think he
may go into MS also eventually.That is quite a close coincidence.
Janice
  - Original Message - 
  From: kevin weilacher 
  To: balmat...@aol.com ; jeffsmokeea...@yahoo.com ; tmic-list@eskimo.com 
  Sent: Tuesday, August 18, 2009 6:28 PM
  Subject: Re: [TMIC] an interesting note


  I'm in Ohio and I can't speak for Cleveland itselfbut I know that in that 
vicinity there is Ella in Elyria and a couple of others in the Toledo area.
  I live in Canton Ohio where we have three of us TMr's and I also know that 
there is Gunny is Youngstown and Sue in the Canfield area I believe. Those are 
the ones I remember. 
  Just having three of us in Canton is pretty mind boggling considering the 
Canton area is a fairly small town...probably no where near 100,000 population.

  This is just in the North and Northeast Ohio area and there may be others out 
there that I don't know aboutsees like we have a high concentration of 
TMr's here.

  Kevin




--
  From: "balmat...@aol.com" 
  To: jeffsmokeea...@yahoo.com; tmic-list@eskimo.com
  Sent: Tuesday, August 18, 2009 7:09:39 PM
  Subject: Re: [TMIC] an interesting note


  Wow Jeff,

  I had heard that there are pockets in different parts of the country where 
there are large numbers of MS and TMers.  I kind of remember that a while back 
that Cleveland had a lot of TMer's.  Am I remembering this right?  Is this the 
air, water, pesticides?  

  Hugs, Barbara A 


  -Original Message-
  From: jeff bernier 
  To: msersl...@yahoogroups.com; tmic-list@eskimo.com
  Sent: Tue, Aug 18, 2009 11:04 am
  Subject: [TMIC] an interesting note


  well the other day i sat down with my father for coffee and we were just 
talking about the past and various things when he told me somthing that almost 
knocked me out of my chair.
  my stepmother who is 48yo has been dx with full blow ms and is in a nursing 
home,well i sat back for a minute and got a flashback of the early days of not 
knowing,lack of knowledge and uncertianty,which weve all been through,man was 
that a shock.
  i need to know how many of the members on the list are from the upstate ny 
area and just a location,i read some info on studies on ms and found out my 
area of ny,im only 10 miles from cooperstown,has the highest rate of ms and 
cancer in the country and the overall consenses is that,all the industry from 
the midwest and canada put polution in the air and it all setteled here,ill 
give more info in a little bit.
   
  DIPLOMACY DOES NOT
  WORK WHEN DEALING WITH
  NUT'S HELL BENT ON
  DESTROYING US. 

Re: [TMIC] an interesting note

[Janice]

Jeff,
That makes us midwesterners, I'm from Missouri, look pretty bad. So sorry.
Janice
  - Original Message - 
  From: balmat...@aol.com 
  To: jeffsmokeea...@yahoo.com ; tmic-list@eskimo.com 
  Sent: Tuesday, August 18, 2009 6:09 PM
  Subject: Re: [TMIC] an interesting note


  Wow Jeff,

  I had heard that there are pockets in different parts of the country where 
there are large numbers of MS and TMers.  I kind of remember that a while back 
that Cleveland had a lot of TMer's.  Am I remembering this right?  Is this the 
air, water, pesticides?  

  Hugs, Barbara A 


  -Original Message-
  From: jeff bernier 
  To: msersl...@yahoogroups.com; tmic-list@eskimo.com
  Sent: Tue, Aug 18, 2009 11:04 am
  Subject: [TMIC] an interesting note


  well the other day i sat down with my father for coffee and we were just 
talking about the past and various things when he told me somthing that almost 
knocked me out of my chair.
  my stepmother who is 48yo has been dx with full blow ms and is in a nursing 
home,well i sat back for a minute and got a flashback of the early days of not 
knowing,lack of knowledge and uncertianty,which weve all been through,man was 
that a shock.
  i need to know how many of the members on the list are from the upstate ny 
area and just a location,i read some info on studies on ms and found out my 
area of ny,im only 10 miles from cooperstown,has the highest rate of ms and 
cancer in the country and the overall consenses is that,all the industry from 
the midwest and canada put polution in the air and it all setteled here,ill 
give more info in a little bit.
   
  DIPLOMACY DOES NOT
  WORK WHEN DEALING WITH
  NUT'S HELL BENT ON
  DESTROYING US. 

Re: [TMIC] That banding feeling

[L T CHERPESKI]

Yeah, it's great, huh!

Linda

 Original Message - 
  From: Janice 
  To: L T CHERPESKI ; 
tmic-list@eskimo.com ; Priscilla 
Keene 
  Sent: Tuesday, August 18, 2009 3:39 PM
  Subject: Re: [TMIC] That banding feeling


  The things we learn about each other on this site!!!
  Janice
- Original Message - 
From: L T CHERPESKI 
To: tmic-list@eskimo.com ; Priscilla 
Keene 
Sent: Tuesday, August 18, 2009 12:07 AM
Subject: Re: [TMIC] That banding feeling


LOL  Priscilla - I'm sitting here singing your new SONG!  That's a good 
one. Umm, you can't unhook your bra - what bra??? I finally stopped wearing one 
except when I have to leave the house. shhh don't tell anyone

just me
  - Original Message - 
  From: Priscilla Keene 
  To: L T CHERPESKI ; 
tmic-list@eskimo.com 
  Sent: Monday, August 17, 2009 10:05 PM
  Subject: Re: [TMIC] That banding feeling


  I, too, have banding, but it has lessened over the 8 years I've had TM.  
It was extremely painful for the first few years, but now I only have pain 
below my right breast at night.  My hands are paralyzed, and I can't unhook my 
bra so sometimes I have to sleep with it on, and that really hurts--I try to go 
to sleep asap!  Lyrica helps me a lot with the banding.
  ~I've got that banding feeling,  
  ohohoh, that banding feeling
  I've got that banding feeling
  And it's not gone, gone, gone
  It's not gone, gone, gone  ohohohohoh!~
   LOL
  Have a wonderful day!
  Priscilla





--
  From: L T CHERPESKI 
  To: jrush...@columbiaenergyllc.com; tmic-list@eskimo.com; 
heyjude48...@aol.com
  Sent: Monday, August 17, 2009 11:20:58 PM
  Subject: Re: [TMIC] That banding feeling


  Hi Jude,

  It's so good to see you posting.  It's been too long and we've missed 
you.  I'm getting pretty sick of this banding too.  And  I've had the same 
thing with the breathing.  What's up with that??  The first time it happened I 
was actually a little scared.  If I would mind my P's
  and Q's and not try to do too much in one day, ALL of my aches and pains 
would be more manageable.well, maybe

  love,
  Linda 
- Original Message - 
From: heyjude48...@aol.com 
To: 
jrush...@columbiaenergyllc.com ; 
tmic-list@eskimo.com 
Sent: Monday, August 17, 2009 6:09 PM
Subject: Re: [TMIC] That banding feeling


  Hi Jeanne,

  The banding has been exactly the same for me.  It has been with 
me since day one and starts underneath my breasts and goes all the way around 
my abdomen.  When it gets real bad, it continues downward until I feel 
completely enveloped by it.  Sometimes it hurts so badly it hurts to even 
breathe.

  I don't let TM or anything get me down, but I am beginning to 
feel angry, after seven years.  I am pissed because I cannot work in the garden 
and go places without it being a big deal to get dressed, fix my hair and 
sometimes put on make up so the pain doesn't show so badly.  I was told that I 
looked old when I am in pain...by a sweet 14 year old boy. "Thank you very 
much".

  For the constipation problem, for years I have used Fish Oil 
capsules, one per day and I get them from the health food store or my pharmacy. 
 They work like a dream.  And I have the kind of bowel that moves the poop down 
to "the vault", but will not push it out, so I have done digital removable for 
ever and ever.  It's not fun, but we need to do what we need to do...

  Love and Prayers,
  Jude

  In a message dated 8/11/2009 1:09:43 P.M. Eastern Daylight Time, 
jrush...@columbiaenergyllc.com writes:
 The banding came on immediately with the TM and 
has never left.  Without the meds, it is excruciatingly painful and just heads 
south to my toes.  Funny how you can hurt so bad and 'not feel'???  Explain 
that to someone??  ::))  Gosh, I'm so happy you all are in my life..Jeanne

---Original Message---

From: 
laura.eich...@gmail.com
Date: 8/10/2009 10:56:05 PM
To: 
tmic-list@eskimo.com
Subject: [TMIC] That banding feeling

Those of you who got that banding feeling do you 
all just have TM or did you

Re: [TMIC] an interesting note

[kevin weilacher]

I'm in Ohio and I can't speak for Cleveland itselfbut I know that in that 
vicinity there is Ella in Elyria and a couple of others in the Toledo area.
I live in Canton Ohio where we have three of us TMr's and I also know that 
there is Gunny is Youngstown and Sue in the Canfield area I believe. Those are 
the ones I remember. 
Just having three of us in Canton is pretty mind boggling considering the 
Canton area is a fairly small town...probably no where near 100,000 population.

This is just in the North and Northeast Ohio area and there may be others out 
there that I don't know aboutsees like we have a high concentration of 
TMr's here.

Kevin





From: "balmat...@aol.com" 
To: jeffsmokeea...@yahoo.com; tmic-list@eskimo.com
Sent: Tuesday, August 18, 2009 7:09:39 PM
Subject: Re: [TMIC] an interesting note


Wow Jeff,
 
I had heard that there are pockets in different parts of the country where 
there are large numbers of MS and TMers.  I kind of remember that a while back 
that Cleveland had a lot of TMer's.  Am I remembering this right?  Is this the 
air, water, pesticides?  
 
Hugs, Barbara A 


-Original Message-
From: jeff bernier 
To: msersl...@yahoogroups.com; tmic-list@eskimo.com
Sent: Tue, Aug 18, 2009 11:04 am
Subject: [TMIC] an interesting note


 
well the other day i sat down with my father for coffee and we were just 
talking about the past and various things when he told me somthing that almost 
knocked me out of my chair.
my stepmother who is 48yo has been dx with full blow ms and is in a nursing 
home,well i sat back for a minute and got a flashback of the early days of not 
knowing,lack of knowledge and uncertianty,which weve all been through,man was 
that a shock.
i need to know how many of the members on the list are from the upstate ny area 
and just a location,i read some info on studies on ms and found out my area of 
ny,im only 10 miles from cooperstown,has the highest rate of ms and cancer in 
the country and the overall consenses is that,all the industry from the midwest 
and canada put polution in the air and it all setteled here,ill give more info 
in a little bit.
 
DIPLOMACY DOES NOT
WORK WHEN DEALING WITH
NUT'S HELL BENT ON
DESTROYING US. 



  

Re: [TMIC] an interesting note

[balmatmic]

Wow Jeff,



I had heard that there are pockets in different parts of the country where 
there are large numbers of MS and TMers.? I kind of remember that a while back 
that Cleveland had a lot of TMer's.??Am I remembering this right?? Is this the 
air, water,?pesticides?? 



Hugs, Barbara A?


-Original Message-
From: jeff bernier 
To: msersl...@yahoogroups.com; tmic-list@eskimo.com
Sent: Tue, Aug 18, 2009 11:04 am
Subject: [TMIC] an interesting note







well the other day i sat down with my father for coffee and we were 
just?talking about the past and various things when he told me somthing that 
almost knocked me out of my chair.

my stepmother who is 48yo has been dx with full blow ms and is in a nursing 
home,well i sat back for a minute and got a flashback of the early days of not 
knowing,lack of knowledge and uncertianty,which weve all been through,man was 
that a shock.

i need to know how many of the members on the list are from the upstate ny 
area?and just a location,i read some info on studies on ms and found out my 
area of ny,im only 10 miles from cooperstown,has the highest rate of ms and 
cancer in the country and the overall consenses is that,all the industry from 
the midwest and canada put polution in the air and it all setteled here,ill 
give more info in a little bit.
?
DIPLOMACY DOES NOT
WORK WHEN DEALING WITH
NUT'S HELL BENT ON
DESTROYING US. 

Re: [TMIC] my knee

[balmatmic]

Hi Linda, 



Thanks for your email and encouragement.



Hugs, Barbara A


-Original Message-
From: L T CHERPESKI 
To: tmic-list@eskimo.com; balmat...@aol.com
Sent: Mon, Aug 17, 2009 9:03 pm
Subject: Re: [TMIC] my knee





Barbara,

?

Well it's no big deal about not asking about the injection of cartilage, but it 
IS a big deal what you're going through.? My goodness.? Did you already have 
the Cortisone injection, if so please let us know if it helps.? I hope for your 
sake it does.??I'm impressed with your doctor for being totally honest with you 
by telling you not to expect this to be a magic pill.? Everybody has different 
issues, so the outcome is not necessarily the same for all. 

?

Hey,?congratulations on those pounds you already lost.? Getting started is the 
hardest part, and looks like you're on your way.??It is?a lot of hard work 
after the surgery, but you will feel sooo much better.? And "better" is 
good.??I know you can do it!??Just keep focused on being able to be more active.

?

Please keep us posted.

?

hugs,

Linda


- Original Message - 

From: balmat...@aol.com 

To: tmic-list@eskimo.com 

Sent: Sunday, August 16, 2009 1:25 AM

Subject: [TMIC] my knee




I went to the orthopedist yesterday, and found out that I am indeed a candidate 
for a knee replacement.??I am 58 yrs old and he said that typically they like 
to wait till 60 or older because they do need replacing in 10-15 yrs on 
average.? With as much as I'd walk on it, I'd probably get a longer life 
though, as he said what happens is the screws get loose and they need to go in 
and re-do them.

?

He also schedules about 2 months out, and it takes most people about 4-6 months 
of rehab to be back to 100%.? I really didn't want to be recouperating over 
Christmas, so I opted to try a Cortisone injection to see if it would get me 
through a bit until I could get at least past the holidays.? I don't know if 
it'll work or not, but it's worth a try.? I should know soon if the shot is 
successful or not.?? My nephew gets married the 28th of August,?and I am hoping 
to go to the wedding without knee pain.

?

I loved him.? I've had 2 DVT's in this leg and have torn muscles also in the 
past few years.? He told me that this is not going to fix all the problems that 
I am having with my leg.? It may help them since the knee will be stronger, 
won't buckle?on me,?and the muscles?won't have to be compensating as much, but 
I shouldn't go into the replacement and expect it to be the magic pill.? But, I 
have serious circulation problems that will not be helped, so my feeling is I 
have to try to help as much as I can to get back to being able to walk more 
again and become more active, if possible.? I walked more and better up until a 
few years ago.

?

I was so surprised that he didn't talk at all about my weight.? I could stand 
to lose a good bit of weight, and am going to be making a valiant effort at 
that.? I've already started and have lost the few pounds that I have gained 
back over the past few months.? The yo-yo thing, not good.? It will make it 
much easier on my knees now and in the future, as well as the rehab when the 
day comes to try to get back up on the new knee.? Yikes, that's going to take 
some work!? Hope I'm up to it.?

?

Linda, I'm very sorry, but I forgot to ask about the injection of cartilage.? 
There was so much going on between my husband asking about healthcare and the 
knee that we were in his office for almost an hour.

?

Hugs to all, Barbara A

?

?

?

?

?

Re: [TMIC] my knee

[balmatmic]

Hi Janice,



Well, my doc told me that if the first shot that I got in April didn't work, 
and if this one did, it's possible that my PCP missed and it landed in the 
wrong spot.? If they both don't work, then we struck out.? Not likely both 
missed, and the shots would not help me.? Personally, I would be scared of the 
Prednisone pills for 10 years, as we've seen here how they can mess with the 
bones.?


I've rested it for a couple of days now as it was really irritated after the 
exam, and it seems ready for some exercise now.? I'll see how it responds with 
the same amount of exercise I was doing prior to the shot, and?then I'm back on 
target.? Then, I am hoping to be able to do more after the two weeks, but time 
will tell.? The key for me (as well as all of us) is to know when enough is 
enough.? I have had TM for 10 years, and I still don't always know until it's 
too late.? At least I'm mindful of my knee now.? Most of the time I overdo the 
spine, which if I do, I rest the knee as well, lol.



Take care all, hugs, Barbara A

-Original Message-
From: Janice 
To: L T CHERPESKI ; tmic-list@eskimo.com; balmat...@aol.com
Sent: Tue, Aug 18, 2009 2:44 pm
Subject: Re: [TMIC] my knee




I have had the cortisone injections in the knee.??? The first one did not do 
much, so they got me on Prednisone pills

for about? 10 days.??? Not much improvement.??? Then, later on, they gave me 
another shot in the knee and there was

improvement and then over some weeks, it really was pretty good. I think 
the doc's always tell you the shot is not

a cure, but it sure helps.

Janice


- Original Message - 

From: L T CHERPESKI 

To: tmic-list@eskimo.com ; balmat...@aol.com 

Sent: Monday, August 17, 2009 11:03 PM

Subject: Re: [TMIC] my knee





Barbara,

?

Well it's no big deal about not asking about the injection of cartilage, but it 
IS a big deal what you're going through.? My goodness.? Did you already have 
the Cortisone injection, if so please let us know if it helps.? I hope for your 
sake it does.??I'm impressed with your doctor for being totally honest with you 
by telling you not to expect this to be a magic pill.? Everybody has different 
issues, so the outcome is not necessarily the same for all. 

?

Hey,?congratulations on those pounds you already lost.? Getting started is the 
hardest part, and looks like you're on your way.??It is?a lot of hard work 
after the surgery, but you will feel sooo much better.? And "better" is 
good.??I know you can do it!??Just keep focused on being able to be more active.

?

Please keep us posted.

?

hugs,

Linda


- Original Message - 

From: balmat...@aol.com 

To: tmic-list@eskimo.com 

Sent: Sunday, August 16, 2009 1:25 AM

Subject: [TMIC] my knee




I went to the orthopedist yesterday, and found out that I am indeed a candidate 
for a knee replacement.??I am 58 yrs old and he said that typically they like 
to wait till 60 or older because they do need replacing in 10-15 yrs on 
average.? With as much as I'd walk on it, I'd probably get a longer life 
though, as he said what happens is the screws get loose and they need to go in 
and re-do them.

?

He also schedules about 2 months out, and it takes most people about 4-6 months 
of rehab to be back to 100%.? I really didn't want to be recouperating over 
Christmas, so I opted to try a Cortisone injection to see if it would get me 
through a bit until I could get at least past the holidays.? I don't know if 
it'll work or not, but it's worth a try.? I should know soon if the shot is 
successful or not.?? My nephew gets married the 28th of August,?and I am hoping 
to go to the wedding without knee pain.

?

I loved him.? I've had 2 DVT's in this leg and have torn muscles also in the 
past few years.? He told me that this is not going to fix all the problems that 
I am having with my leg.? It may help them since the knee will be stronger, 
won't buckle?on me,?and the muscles?won't have to be compensating as much, but 
I shouldn't go into the replacement and expect it to be the magic pill.? But, I 
have serious circulation problems that will not be helped, so my feeling is I 
have to try to help as much as I can to get back to being able to walk more 
again and become more active, if possible.? I walked more and better up until a 
few years ago.

?

I was so surprised that he didn't talk at all about my weight.? I could stand 
to lose a good bit of weight, and am going to be making a valiant effort at 
that.? I've already started and have lost the few pounds that I have gained 
back over the past few months.? The yo-yo thing, not good.? It will make it 
much easier on my knees now and in the future, as well as the rehab when the 
day comes to try to get back up on the new knee.? Yikes, that's going to take 
some work!? Hope I'm up to it.?

?

Linda, I'm very sorry, but I forgot to ask about the injection of cartilage.? 
There was so much going on between my husband asking about healthc

Re: [TMIC] Linda Needs Some Help

[balmatmic]

I will look for this as well, as I have arthritis in my hands.  I have used Icy 
Hot on my back, knee and legs when things get bad, but wouldn't use on my hands 
because I didn't ever want it close to my face in case while sleeping, and I 
can't sleep in gloves.  



I just looked at the website and it looks like they have at Walgreens, which is 
the only store listed in my area.  They have a Empty Jar Guarantee, so have 
nothing to lose, you can get a refund.  Sounds like it's worth a try to me.  
Thanks for the info.



Hugs to all, Barbara A



 
-Original Message-
From: lynne myers 
To: tmic 
Sent: Tue, Aug 18, 2009 5:28 am
Subject: Re: [TMIC] Linda Needs Some Help








I get mine at our local drug store, but they also have a website.

www.australiandream.com/

--- On Tue, 8/18/09, L T CHERPESKI  wrote:



From: L T CHERPESKI 
Subject: Re: [TMIC] Linda Needs Some Help
To: "tmic" , "lynne myers" 
Date: Tuesday, August 18, 2009, 12:06 AM


 

Lynne, is this something we could find at a local drug store, or did you have 
to special order it?  I'm really glad to hear you've found something that works.

 

Linda


- Original Message - 

From: lynne myers 

To: tmic 

Sent: Sunday, August 16, 2009 7:17 AM

Subject: Re: [TMIC] Linda Needs Some Help








The gluco
samine never did much for me either, but my husband swears by it.  A few years 
ago I found a cream called Australian Dream.  Its made out of emu oil and it 
really helps with the arthritis in my hands.  I use it a couple of times a day.

Lynne

--- On Sun, 8/16/09, L T CHERPESKI  wrote:



From: L T CHERPESKI 
Subject: Re: [TMIC] Linda Needs Some Help
To: "'Deborah Nord Capen'" , tmic-list@eskimo.com, 
"Patricia Cooley" 
Date: Sunday, August 16, 2009, 12:08 AM


 

Deborah, I didn't know this came in a gel either.  I could sure use some of 
that on my hands and other achy areas too.  Do you just buy it at the drug 
store?  A few months ago I bought a tube of some kind of cream for arthritis 
and it really does nothing.  I don't even want to think about how much money 
I've spent over the years on products that claim to help with joint pain.  It 
would really be nice to find something that gives some relief.

 

Linda

 

Re: [TMIC] my knee

[Janice]

I have had the cortisone injections in the knee.The first one did not do 
much, so they got me on Prednisone pills
for about  10 days.Not much improvement.Then, later on, they gave me 
another shot in the knee and there was
improvement and then over some weeks, it really was pretty good. I think 
the doc's always tell you the shot is not
a cure, but it sure helps.
Janice
  - Original Message - 
  From: L T CHERPESKI 
  To: tmic-list@eskimo.com ; balmat...@aol.com 
  Sent: Monday, August 17, 2009 11:03 PM
  Subject: Re: [TMIC] my knee


  Barbara,

  Well it's no big deal about not asking about the injection of cartilage, but 
it IS a big deal what you're going through.  My goodness.  Did you already have 
the Cortisone injection, if so please let us know if it helps.  I hope for your 
sake it does.  I'm impressed with your doctor for being totally honest with you 
by telling you not to expect this to be a magic pill.  Everybody has different 
issues, so the outcome is not necessarily the same for all. 

  Hey, congratulations on those pounds you already lost.  Getting started is 
the hardest part, and looks like you're on your way.  It is a lot of hard work 
after the surgery, but you will feel sooo much better.  And "better" is good.  
I know you can do it!  Just keep focused on being able to be more active.

  Please keep us posted.

  hugs,
  Linda
- Original Message - 
From: balmat...@aol.com 
To: tmic-list@eskimo.com 
Sent: Sunday, August 16, 2009 1:25 AM
Subject: [TMIC] my knee


I went to the orthopedist yesterday, and found out that I am indeed a 
candidate for a knee replacement.  I am 58 yrs old and he said that typically 
they like to wait till 60 or older because they do need replacing in 10-15 yrs 
on average.  With as much as I'd walk on it, I'd probably get a longer life 
though, as he said what happens is the screws get loose and they need to go in 
and re-do them.

He also schedules about 2 months out, and it takes most people about 4-6 
months of rehab to be back to 100%.  I really didn't want to be recouperating 
over Christmas, so I opted to try a Cortisone injection to see if it would get 
me through a bit until I could get at least past the holidays.  I don't know if 
it'll work or not, but it's worth a try.  I should know soon if the shot is 
successful or not.   My nephew gets married the 28th of August, and I am hoping 
to go to the wedding without knee pain.

I loved him.  I've had 2 DVT's in this leg and have torn muscles also in 
the past few years.  He told me that this is not going to fix all the problems 
that I am having with my leg.  It may help them since the knee will be 
stronger, won't buckle on me, and the muscles won't have to be compensating as 
much, but I shouldn't go into the replacement and expect it to be the magic 
pill.  But, I have serious circulation problems that will not be helped, so my 
feeling is I have to try to help as much as I can to get back to being able to 
walk more again and become more active, if possible.  I walked more and better 
up until a few years ago.

I was so surprised that he didn't talk at all about my weight.  I could 
stand to lose a good bit of weight, and am going to be making a valiant effort 
at that.  I've already started and have lost the few pounds that I have gained 
back over the past few months.  The yo-yo thing, not good.  It will make it 
much easier on my knees now and in the future, as well as the rehab when the 
day comes to try to get back up on the new knee.  Yikes, that's going to take 
some work!  Hope I'm up to it. 

Linda, I'm very sorry, but I forgot to ask about the injection of 
cartilage.  There was so much going on between my husband asking about 
healthcare and the knee that we were in his office for almost an hour.

Hugs to all, Barbara A

Re: [TMIC] That banding feeling

[Janice]

The things we learn about each other on this site!!!
Janice
  - Original Message - 
  From: L T CHERPESKI 
  To: tmic-list@eskimo.com ; Priscilla Keene 
  Sent: Tuesday, August 18, 2009 12:07 AM
  Subject: Re: [TMIC] That banding feeling


  LOL  Priscilla - I'm sitting here singing your new SONG!  That's a good one. 
Umm, you can't unhook your bra - what bra??? I finally stopped wearing one 
except when I have to leave the house. shhh don't tell anyone

  just me
- Original Message - 
From: Priscilla Keene 
To: L T CHERPESKI ; tmic-list@eskimo.com 
Sent: Monday, August 17, 2009 10:05 PM
Subject: Re: [TMIC] That banding feeling


I, too, have banding, but it has lessened over the 8 years I've had TM.  It 
was extremely painful for the first few years, but now I only have pain below 
my right breast at night.  My hands are paralyzed, and I can't unhook my bra so 
sometimes I have to sleep with it on, and that really hurts--I try to go to 
sleep asap!  Lyrica helps me a lot with the banding.
~I've got that banding feeling,  
ohohoh, that banding feeling
I've got that banding feeling
And it's not gone, gone, gone
It's not gone, gone, gone  ohohohohoh!~
 LOL
Have a wonderful day!
Priscilla






From: L T CHERPESKI 
To: jrush...@columbiaenergyllc.com; tmic-list@eskimo.com; 
heyjude48...@aol.com
Sent: Monday, August 17, 2009 11:20:58 PM
Subject: Re: [TMIC] That banding feeling


Hi Jude,

It's so good to see you posting.  It's been too long and we've missed you.  
I'm getting pretty sick of this banding too.  And  I've had the same thing with 
the breathing.  What's up with that??  The first time it happened I was 
actually a little scared.  If I would mind my P's
and Q's and not try to do too much in one day, ALL of my aches and pains 
would be more manageable.well, maybe

love,
Linda 
  - Original Message - 
  From: heyjude48...@aol.com 
  To: jrush...@columbiaenergyllc.com ; tmic-list@eskimo.com 
  Sent: Monday, August 17, 2009 6:09 PM
  Subject: Re: [TMIC] That banding feeling


Hi Jeanne,

The banding has been exactly the same for me.  It has been with me 
since day one and starts underneath my breasts and goes all the way around my 
abdomen.  When it gets real bad, it continues downward until I feel completely 
enveloped by it.  Sometimes it hurts so badly it hurts to even breathe.

I don't let TM or anything get me down, but I am beginning to feel 
angry, after seven years.  I am pissed because I cannot work in the garden and 
go places without it being a big deal to get dressed, fix my hair and sometimes 
put on make up so the pain doesn't show so badly.  I was told that I looked old 
when I am in pain...by a sweet 14 year old boy. "Thank you very much".

For the constipation problem, for years I have used Fish Oil 
capsules, one per day and I get them from the health food store or my pharmacy. 
 They work like a dream.  And I have the kind of bowel that moves the poop down 
to "the vault", but will not push it out, so I have done digital removable for 
ever and ever.  It's not fun, but we need to do what we need to do...

Love and Prayers,
Jude

In a message dated 8/11/2009 1:09:43 P.M. Eastern Daylight Time, 
jrush...@columbiaenergyllc.com writes:
   The banding came on immediately with the TM and has 
never left.  Without the meds, it is excruciatingly painful and just heads 
south to my toes.  Funny how you can hurt so bad and 'not feel'???  Explain 
that to someone??  ::))  Gosh, I'm so happy you all are in my life..Jeanne

  ---Original Message---

  From: laura.eich...@gmail.com
  Date: 8/10/2009 10:56:05 PM
  To: tmic-list@eskimo.com
  Subject: [TMIC] That banding feeling

  Those of you who got that banding feeling do you all 
just have TM or did you also get subsequently diagnosed with MS too? And if you 
did experience the banding feeling, did you experience it at the beginning of 
your TM (or MS) journey or somewhere down the road? :-)
  Just wondering if TM'ers get the banding feeling or 
is it only those that get MS too. I had it at the start of my TM but it went 
away after a month or two. I had a very mild case of TM and as of yet not 
diagnosed with MS. 
  Thanks!

  -- 
  Laura


 
 
   
   
   
   



--


<>

RE: [TMIC] an interesting note

Hi Jeff - I live on Long Island, dx TM in 2002 and MS in 2008. Recurring
Remitting at present

 

Bernie



From: jeff bernier [mailto:jeffsmokeea...@yahoo.com] 
Sent: Tuesday, August 18, 2009 2:04 PM
To: msersl...@yahoogroups.com; tmic-list@eskimo.com
Subject: [TMIC] an interesting note

 

well the other day i sat down with my father for coffee and we were just
talking about the past and various things when he told me somthing that
almost knocked me out of my chair.

my stepmother who is 48yo has been dx with full blow ms and is in a
nursing home,well i sat back for a minute and got a flashback of the
early days of not knowing,lack of knowledge and uncertianty,which weve
all been through,man was that a shock.

i need to know how many of the members on the list are from the upstate
ny area and just a location,i read some info on studies on ms and found
out my area of ny,im only 10 miles from cooperstown,has the highest rate
of ms and cancer in the country and the overall consenses is that,all
the industry from the midwest and canada put polution in the air and it
all setteled here,ill give more info in a little bit.
 

DIPLOMACY DOES NOT
WORK WHEN DEALING WITH
NUT'S HELL BENT ON
DESTROYING US. 

 

[TMIC] an interesting note

[jeff bernier]

well the other day i sat down with my father for coffee and we were 
just talking about the past and various things when he told me somthing that 
almost knocked me out of my chair.
my stepmother who is 48yo has been dx with full blow ms and is in a nursing 
home,well i sat back for a minute and got a flashback of the early days of not 
knowing,lack of knowledge and uncertianty,which weve all been through,man was 
that a shock.
i need to know how many of the members on the list are from the upstate ny 
area and just a location,i read some info on studies on ms and found out my 
area of ny,im only 10 miles from cooperstown,has the highest rate of ms and 
cancer in the country and the overall consenses is that,all the industry from 
the midwest and canada put polution in the air and it all setteled here,ill 
give more info in a little bit.
 DIPLOMACY DOES NOT
WORK WHEN DEALING WITH
NUT'S HELL BENT ON
DESTROYING US. 


  

Re: [TMIC] EASY STAND

[Akua]

Thanks so much Cody!
this is just the kind of information I need!
I was entranced by the one that lets you "walK" aorund! I would so 
love to be vertical again.

Standing would be just like a ride!
I hope I could transfer, unassisted, but evenif I couldn't it seems 
like a great tool.

Here's hoping Medicare will cover it.
Akua




AkuaYes I am paralized from T-3/4. It helps with maintaining 
muscle and bone strength in my legs and my arms, blood flow and 
blood pressure, range of motion in my hips, and it helps me mentally 
to know I am doing something positive. It helps me with my arms and 
hips because the standing  frame allows my legs to move back and 
forth as I move the hand grips/glides back and forth in the top of 
the frame. Basically the hand grips on top are connected to the foot 
shoes on the bottom of the frame with a resistance cannister in 
between, The reisstance cannisters look like shock abssorbers and 
you can dial in the the amount of resistance you want. I know all of 
this may sound complicated but it is a pretty simple operation. I 
transfer onto the seat from my wheelchair without using my sliding 
board. I think they sell for around $5K. My insurance company paid 
for it and I have had it for eight years. I am glad you ask about it 
because I have been kinda lazy lately. You can see a picture of mine 
at the following web site 
http://www.easystand.com/evolv-glider/index.cfm.. 
Let me know if you have any more questions.Cody in Austin 


- Original Message -
From: Akua
To: Cody
Sent: Monday, August 17, 2009 8:15 PM
Subject: Re: [TMIC] EASY STAND

are you paralyzed?
Does this help"
In what way?

Thanks

AkuaI have one if you have questions, I will try to answer 
themCody in Austin


- Original Message -

From: Akua

To: tmic-list@eskimo.com

Sent: Monday, August 17, 2009 11:36 AM

Subject: [TMIC] EASY STAND


Anyone use an easy stand or equivalent?

www.easystand.com


--

Re: [TMIC] EASY STAND

[Laurie Zissimos]

 Akua - I also have one at home.? I am a T-7 with TM for 3.5 yrs and I have had 
my bike for about 1.5 years.? It's great because as Cody said it is simple to 
operate.? If you can't use the handle bar grips, someone can stand in front of 
you and do the pushing.? Your legs and hips still get a work out, just not your 
upper body.? Insurance paid for mine also, but the price was $11,000.?? Laurie 
in Baltimore


 


 

-Original Message-
From: Cody 
To: TMIC ; Akua 
Sent: Mon, Aug 17, 2009 10:47 pm
Subject: Re: [TMIC] EASY STAND
















AkuaYes I am paralized from T-3/4. It helps 
with maintaining muscle and bone strength in my legs and my arms, blood flow 
and 
blood pressure, range of motion in my hips, and it helps me mentally to know I 
am doing something positive. It helps me with my arms and hips because?the 
standing ?frame allows my legs to move back and forth as I move the hand 
grips/glides?back and forth in the top of the frame. Basically the hand 
grips on top are connected to the foot shoes on the bottom of the 
frame?with a resistance cannister in between, The reisstance cannisters 
look like shock abssorbers?and you can dial in the the amount of resistance 
you want. I know all of this may sound complicated but it is a pretty simple 
operation. I transfer onto the seat from my wheelchair without using my sliding 
board.?I think they sell for around $5K. My insurance company paid for it 
and I have had it for eight years. I am glad you ask about it because I have 
been kinda lazy lately.?You can see a picture of mine at the following web 
site http://www.easystand.com/evolv-glider/index.cfm.. Let me know if you have 
any more questions.Cody in 
Austin?



  
- Original Message - 

  
From: 
  Akua 

  
To: Cody 

  
Sent: Monday, August 17, 2009 8:15 
  PM

  
Subject: Re: [TMIC] EASY STAND

  



  
are you paralyzed?

  
Does this help"

  
In what way?

  



  
Thanks

  



  
AkuaI have one if you have 
questions, I will try to answer themCody in Austin


- Original Message -


From: Akua


To: tmic-list@eskimo.com


Sent: Monday, August 17, 2009 11:36 AM


Subject: [TMIC] EASY STAND






Anyone use an easy stand or equivalent?


www.easystand.com


--


  



  



-- 


  
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http://www.akuahaiku.blogspot.com
http://www.akualezli.blogspot.com
http://imagecarve.blogspot.com/
http://lowgourmet.blogspot.com

  




 

Re: [TMIC] Linda Needs Some Help

[lynne myers]

I get mine at our local drug store, but they also have a website.
www.australiandream.com/

--- On Tue, 8/18/09, L T CHERPESKI  wrote:


From: L T CHERPESKI 
Subject: Re: [TMIC] Linda Needs Some Help
To: "tmic" , "lynne myers" 
Date: Tuesday, August 18, 2009, 12:06 AM


 

Lynne, is this something we could find at a local drug store, or did you have 
to special order it?  I'm really glad to hear you've found something that works.
 
Linda

- Original Message - 
From: lynne myers 
To: tmic 
Sent: Sunday, August 16, 2009 7:17 AM
Subject: Re: [TMIC] Linda Needs Some Help






The glucosamine never did much for me either, but my husband swears by it.  A 
few years ago I found a cream called Australian Dream.  Its made out of emu oil 
and it really helps with the arthritis in my hands.  I use it a couple of times 
a day.
Lynne

--- On Sun, 8/16/09, L T CHERPESKI  wrote:


From: L T CHERPESKI 
Subject: Re: [TMIC] Linda Needs Some Help
To: "'Deborah Nord Capen'" , tmic-list@eskimo.com, 
"Patricia Cooley" 
Date: Sunday, August 16, 2009, 12:08 AM


 
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Deborah, I didn't know this came in a gel either.  I could sure use some of 
that on my hands and other achy areas too.  Do you just buy it at the drug 
store?  A few months ago I bought a tube of some kind of cream for arthritis 
and it really does nothing.  I don't even want to think about how much money 
I've spent over the years on products that claim to help with joint pain.  It 
would really be nice to find something that gives some relief.
 
Linda
 



  

Re: [TMIC] That banding feeling

[rj_rankin]

I too have banding but I also have something else similiar but more painful 
that happens from time to time and I don't understand it. Lately it has 
increased. It generally starts in one ankle and the sole of the foot and runs 
up my leg to my spine. It hurts one time and hurts so bad that I don't even 
realize that it just happened. I don't know what it is. I had it happen this 
time last year when I would stand and look down. It would hit my back of the 
neck and run down to my feet. Then I would feel like I was stranding on an 
electric grid for a little while. Latelky the souls of my feet have been 
hurting - soar all the time. I am up right now with pain in souls of both feet. 
What causes this?
Sent from my Verizon Wireless BlackBerry

-Original Message-
From: Priscilla Keene 

Date: Mon, 17 Aug 2009 21:05:39 
To: L T CHERPESKI; 
Subject: Re: [TMIC] That banding feeling


I, too, have banding, but it has lessened over the 8 years I've had TM.  It 
was extremely painful for the first few years, but now I only have pain below 
my right breast at night.  My hands are paralyzed, and I can't unhook my bra so 
sometimes I have to sleep with it on, and that really hurts--I try to go to 
sleep asap!  Lyrica helps me a lot with the banding.
~I've got that banding feeling,  
ohohoh, that banding feeling
I've got that banding feeling
And it's not gone, gone, gone
It's not gone, gone, gone  ohohohohoh!~
 LOL
Have a wonderful day!
Priscilla





From: L T CHERPESKI 
To: jrush...@columbiaenergyllc.com; tmic-list@eskimo.com; heyjude48...@aol.com
Sent: Monday, August 17, 2009 11:20:58 PM
Subject: Re: [TMIC] That banding feeling


Hi Jude,

It's so good to see you posting.  It's been too long and we've missed you.  I'm 
getting pretty sick of this banding too.  And  I've had the same thing with the 
breathing.  What's up with that??  The first time it happened I was actually a 
little scared.  If I would mind my P's
and Q's and not try to do too much in one day, ALL of my aches and pains would 
be more manageable.well, maybe

love,
Linda 
- Original Message - 
>From: heyjude48...@aol.com 
>To: jrush...@columbiaenergyllc.com ; tmic-list@eskimo.com 
>Sent: Monday, August 17, 2009 6:09 PM
>Subject: Re: [TMIC] That banding feeling
>
>
>Hi Jeanne,
> 
>The banding has been exactly the same for me.  It has been with me since day 
>one and starts underneath my breasts and goes all the way around my abdomen.  
>When it gets real bad, it continues downward until I feel completely enveloped 
>by it.  Sometimes it hurts so badly it hurts to even breathe.
> 
>I don't let TM or anything get me down, but I am beginning to feel angry, 
>after seven years.  I am pissed because I cannot work in the garden and go 
>places without it being a big deal to get dressed, fix my hair and sometimes 
>put on make up so the pain doesn't show so badly.  I was told that I looked 
>old when I am in pain...by a sweet 14 year old boy. "Thank you very much".
> 
>For the constipation problem, for years I have used Fish Oil capsules, one per 
>day and I get them from the health food store or my pharmacy.  They work like 
>a dream.  And I have the kind of bowel that moves the poop down to "the 
>vault", but will not push it out, so I have done digital removable for ever 
>and ever.  It's not fun, but we need to do what we need to do...
> 
>Love and Prayers,
>Jude
>
>In a message dated 8/11/2009 1:09:43 P.M. Eastern Daylight Time, 
>jrush...@columbiaenergyllc.com writes:
> The banding came on immediately with the TM and has never left.  Without the 
>meds, it is excruciatingly painful and just heads south to my toes.  Funny how 
>you can hurt so bad and 'not feel'???  Explain that to someone??  ::))  Gosh, 
>I'm so happy you all are in my life..Jeanne
>> 
>>---Original Message---
>>
>>From: laura.eich...@gmail.com
>>Date: 8/10/2009 10:56:05 PM
>>To: tmic-list@eskimo.com
>>Subject: [TMIC] That banding feeling
>>Those of you who got that banding feeling do you all just have TM or did you 
>>also get subsequently diagnosed with MS too? And if you did experience the 
>>banding feeling, did you experience it at the beginning of your TM (or MS) 
>>journey or somewhere down the road? :-)
>>Just wondering if TM'ers get the banding feeling or is it only those that get 
>>MS too. I had it at the start of my TM but it went away after a month or two. 
>>I had a very mild case of TM and as of yet not diagnosed with MS. 
>>Thanks!
>>
>>-- 
>>Laura
>>
>>
>>
>
>