Re: [TMIC] I met a TMer!!!!!

[Janice]

Gilly,
I think we are all a little unconventional and that is a good thing - we look 
at life a little differently now.Don't be
shy with us. 
Janice
  - Original Message - 
  From: Gillian Clark 
  To: TM list 
  Sent: Sunday, September 13, 2009 1:55 AM
  Subject: Re: [TMIC] I met a TMer!


  That's very kind of you Jan :)), I just don't often to have something 
constructive to say these days.  I think too maybe I'm a bit too unconventional 
in my approach to help many of the new people.  Of course, I didn't really need 
to tell you that, did I?  :))

  hugs
  Gilly
- Original Message - 
From: Jan Hargrove 
To: TM list ; Gillian Clark 
Sent: Sunday, September 13, 2009 12:40 AM
Subject: Re: [TMIC] I met a TMer!


  G'Day to you, too!

  I'm so glad for you that you've met another tmer in 'real' life..but 
I'm asking you to please not go into retirement again and never speak up!!  We 
miss you!!
  Hugs, janh


  --- On Sat, 9/12/09, Gillian Clark  wrote:


G'day All,

It's been such a long time since I've written to the list but I 
assure you, I've been reading and keeping up with you all.  I was devastated to 
hear we have lost another member of our family.  R.I.P.  Rick.

I've bought myself out of posting retirement today because 
something so special has happened!  I have just said goodbye to my 
visitors.  They are Allen and Andrea Southern.  Andrea is a member of our list, 
a lurking member but a member none the less.

After 8 years of tm I've never met another person "in the flesh" 
who has it.

We had a lovely visit and I can't begin to describe how wonderful 
it was to have a "real life" conversation with another tmer.

OK, I won't ramble anymore but I did so want to share with you all.

hugs
Gilly, the old girl from Australia. 

Re: [TMIC] ANOTHER SHOCKING WARNING ABOUT SWINE FLU VACCINE

[Janice]

Just found out from my neuro today that he does not want me taking the swine 
flu shot.
Janice
  - Original Message - 
  From: roseofr...@aol.com 
  To: tmic-list@eskimo.com 
  Sent: Monday, September 14, 2009 11:15 AM
  Subject: [TMIC] ANOTHER SHOCKING WARNING ABOUT SWINE FLU VACCINE


  Another Shocking Warning About Swine Flu Vaccine


  
http://articles.mercola.com/sites/articles/archive/2009/09/08/Another-Shocking-Warning-About-Swine-Flu-Vaccine.aspx
 

Re: [TMIC] Looking for TMr's for support groups

[Janice]

Janice  -  Columbia, Missouri
  - Original Message - 
  From: Jill Z 
  To: Catherine ; Laura Beaudin 
  Cc: kevin weilacher ; Transverse Mylitis Group 
  Sent: Sunday, September 13, 2009 9:54 PM
  Subject: Re: [TMIC] Looking for TMr's for support groups


Jill From Chicago

--- On Sun, 9/13/09, Laura Beaudin  wrote:


  From: Laura Beaudin 
  Subject: Re: [TMIC] Looking for TMr's for support groups
  To: "Catherine" 
  Cc: "kevin weilacher" , "Transverse Mylitis 
Group" 
  Date: Sunday, September 13, 2009, 8:29 PM


  ...and I'm Laura from Edmonton, Alberta. :)

  On Sun, Sep 13, 2009 at 7:25 PM, Catherine  wrote:
  > Kevin,
  >
  > That is a wonderful idea.  Why don't we all just say where we are 
from .. as
  > I have seen here.  Several support groups may start.  Thank you for 
a great
  > idea
  >
  > So I will start...
  >
  > Catherine, caretaker   Central Mass.
  >

   

Re: [TMIC] Looking for TMr's for support groups

[ACAROE]

Rosalie Green   Delray Beach, Fla. from Oct. to May.  
 
 
In a message dated 9/14/2009 6:49:16 P.M. Eastern Daylight Time,  
cakal...@embarqmail.com writes:



Candy K.  - SW FL - Naples, FL


Prayers and thoughts for you and  yours,

Candy K.

- Original Message -
From: "Debi"  
To: tmic-list@eskimo.com, "Barbara H."  
Sent: Monday, September 14, 2009 3:11:43 PM  GMT -05:00 US/Canada Eastern
Subject: Re: [TMIC] Looking for TMr's for  support groups

Debi  Wall--South Lake Tahoe California
 
 
---Original  Message---
 
 
From: _Barbara H._ (mailto:barbara...@gmail.com) 
Date: 9/13/2009  8:05:25 PM
To: _tmic-l...@eskimo.com_ (mailto:tmic-list@eskimo.com) 
Subject: Re: [TMIC]  Looking for TMr's for support groups

 
There is a list of established support  groups for various states and 
countries here:
_http://www.myelitis.org/support.htm#3_ 
(http://www.myelitis.org/support.htm#3) 

Barbara  H.
_http://barbarah.wordpress_ (http://barbarah.wordpress/) ,com

On Sun, Sep 13, 2009 at 9:25 PM, Catherine <_camoa...@yahoo.com_ 
(mailto:camoa...@yahoo.com) > wrote:

 
 
Kevin,

That is a wonderful idea.  Why don't we all just  say where we are from .. 
as I have seen here.  Several support  groups may start.  Thank you for a 
great idea

So I will  start...

Catherine, caretaker   Central Mass.


 

 From: kevin weilacher  <_hwyfli...@yahoo.com_ (mailto:hwyfli...@yahoo.com) 
>
To: _tmic-l...@eskimo.com_ (mailto:tmic-list@eskimo.com) 
Sent: Saturday, September 12, 2009  4:59:53 PM
Subject:  [TMIC] Looking for TMr's from N.E. Ohio area

Who  here on the list is from what is classified as the N.E. Ohio area.
I  have the 2007-2008 TMA directory and I'm sure that there have been some  
changes or updates.
I'm looking at trying to start a NE Ohio TMA  support group. I know there 
is an Ohio support group but I believe the  closest area is Columbus. 
Honestly, that is a bit too far for me to  drive for support meeting get 
togethers.
I know Gunny is on here and  I know about Ella in Elyriacan anyone help 
me out..?
I think we  could benefit from something like thisespecially in light 
of the  recent posting from Gilly...where she said that she just recently met 
 another TM'r. How many others are out there that would like to meet  
another TM'r and you might have someone in your "back yard" so to speak  that 
you 
don't know  about.

Thanks,
Kevin

Re: [TMIC] Looking for TMr's for support groups

[CANDIS KALLEY]

Candy K. - SW FL - Naples, FLPrayers and thoughts for you and yours,Candy K.- Original Message -From: "Debi" To: tmic-list@eskimo.com, "Barbara H." Sent: Monday, September 14, 2009 3:11:43 PM GMT -05:00 US/Canada EasternSubject: Re: [TMIC] Looking for TMr's for support groups








Debi Wall--South Lake Tahoe California
 

---Original Message---
 

From: Barbara H.
Date: 9/13/2009 8:05:25 PM
To: tmic-list@eskimo.com
Subject: Re: [TMIC] Looking for TMr's for support groups
 There is a list of established support groups for various states and countries here:http://www.myelitis.org/support.htm#3Barbara H.http://barbarah.wordpress,com
On Sun, Sep 13, 2009 at 9:25 PM, Catherine  wrote:



Kevin,That is a wonderful idea.  Why don't we all just say where we are from .. as I have seen here.  Several support groups may start.  Thank you for a great ideaSo I will start...Catherine, caretaker   Central Mass.



From: kevin weilacher To: tmic-list@eskimo.comSent: Saturday, September 12, 2009 4:59:53 PMSubject: [TMIC] Looking for TMr's from N.E. Ohio area
Who here on the list is from what is classified as the N.E. Ohio area.I have the 2007-2008 TMA directory and I'm sure that there have been some changes or updates.I'm looking at trying to start a NE Ohio TMA support group. I know there is an Ohio support group but I believe the closest area is Columbus. Honestly, that is a bit too far for me to drive for support meeting get togethers.I know Gunny is on here and I know about Ella in Elyriacan anyone help me out..?I think we could benefit from something like thisespecially in light of the recent posting from Gilly...where she said that she just recently met another TM'r. How many others are out there that would like to meet another TM'r and you might have someone in your "back yard" so to speak that you don't know about.Thanks,Kevin
 







<>

Re: [TMIC] Looking for TMr's for support groups

[Akua]

Akua in Corning, NY
--
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http://www.akualezli.blogspot.com
http://imagecarve.blogspot.com/
http://lowgourmet.blogspot.com

Re: [TMIC] Looking for TMr's for support groups

[Parkerswebe]

Sandy Parker, Caregiver
Ventura County, CA

Re: [TMIC] Looking for TMr's for support groups

[Debi]

Debi Wall--South Lake Tahoe California

---Original Message---
 
From: Barbara H.
Date: 9/13/2009 8:05:25 PM
To: tmic-list@eskimo.com
Subject: Re: [TMIC] Looking for TMr's for support groups
 
There is a list of established support groups for various states and
countries here:
http://www.myelitis.org/support.htm#3

Barbara H.
http://barbarah.wordpress,com


On Sun, Sep 13, 2009 at 9:25 PM, Catherine  wrote:

Kevin,

That is a wonderful idea.  Why don't we all just say where we are from .. as
I have seen here.  Several support groups may start.  Thank you for a great
idea

So I will start...

Catherine, caretaker   Central Mass.





From: kevin weilacher 
To: tmic-list@eskimo.com
Sent: Saturday, September 12, 2009 4:59:53 PM
Subject: [TMIC] Looking for TMr's from N.E. Ohio area


Who here on the list is from what is classified as the N.E. Ohio area.
I have the 2007-2008 TMA directory and I'm sure that there have been some
changes or updates.
I'm looking at trying to start a NE Ohio TMA support group. I know there is
an Ohio support group but I believe the closest area is Columbus. Honestly,
that is a bit too far for me to drive for support meeting get togethers.
I know Gunny is on here and I know about Ella in Elyriacan anyone help
me out..?
I think we could benefit from something like thisespecially in light of
the recent posting from Gilly...where she said that she just recently met
another TM'r. How many others are out there that would like to meet another
TM'r and you might have someone in your "back yard" so to speak that you don
t know about.

Thanks,
Kevin







 <>

Re: [TMIC] weird sensations

[Catherine]

Kathy,

Do you think your pharmacist might be able to answer a few of your questions.  
I know that mine is very helpful.

Catherine





From: Patricia Cooley 
To: LadyOwl ; tmic-list@eskimo.com
Sent: Monday, September 14, 2009 12:37:23 PM
Subject: RE: [TMIC] weird sensations

 
Kathy  -  It might take several days or longer for the Lyrica to
get out of your body, since you have been taking it for awhile. I know I was
taking a supplement I found on the internet for people with TM and it did a
number on my liver.  My doctor agreed I should stop and it may take several
months for my body to rid itself of it.  Once I stopped taking it, my liver 
finally
went back to normal but it took awhile.
 
Patti – S.E. Wisconsin
 
From:LadyOwl
[mailto:k...@frontiernet.net] 
Sent: Monday, September 14, 2009 10:55 AM
To: tmic-list@eskimo.com
Subject: Re: [TMIC] weird sensations
 
I did not take my lyrica this morning and body has already started
reacting ... I really hate this.. feels like I am going to bounce right out of
my chair..
Kathy
>
>>
>- Original Message - 
>>
>From:roseofr...@aol.com 
>>
>To:k...@frontiernet.net >; tmic-list@eskimo.com 
>>
>Sent:Monday, September 14, 2009 10:38 AM
>>
>Subject:Re: [TMIC] weird sensations
>>
> 
>>
>Kathleen
>~
>>
>  
>I had the same reaction when I was taking Topamax.
>>
>Felt
>like I was going to vibrate right off my bed and out the
>>
>window. 
>:-)  I would just stay in bed until it passed.
>>
>When
>I stopped taking the Topamax the vibrating stopped 
>>
>also.
>>
>  
>Gunny is probably right...it's probably your Lyrica.
>>
>I
>would decrease my dosage and see what happens.
>>
>  
>~ Lynn


  

[TMIC] ANOTHER SHOCKING WARNING ABOUT SWINE FLU VACCINE

[ROSEOFRENO]

 
 
Another Shocking Warning About Swine Flu Vaccine



_http://articles.mercola.com/sites/articles/archive/2009/09/08/Another-Shock
ing-Warning-About-Swine-Flu-Vaccine.aspx_ 
(http://articles.mercola.com/sites/articles/archive/2009/09/08/Another-Shocking-Warning-About-Swine-Flu-Vaccin
e.aspx)   

Re: [TMIC] Looking for TMr's for support groups

[Catherine]

Thank You Barbara

Catherine





From: Barbara H. 
To: tmic-list@eskimo.com
Sent: Sunday, September 13, 2009 11:05:14 PM
Subject: Re: [TMIC] Looking for TMr's for support groups

There is a list of established support groups for various states and countries 
here:
http://www.myelitis.org/support.htm#3

Barbara H.
http://barbarah.wordpress,com


On Sun, Sep 13, 2009 at 9:25 PM, Catherine  wrote:

Kevin,
>
>That is a wonderful idea.  Why don't we all just say where we are from .. as I 
>have seen here.  Several support groups may start.  Thank you for a great idea
>
>So I will start...
>
>Catherine, caretaker   Central Mass.
>
>
>
>

From: kevin weilacher 
>To: tmic-list@eskimo.com
>Sent: Saturday, September 12, 2009 4:59:53 PM
>Subject: [TMIC] Looking for TMr's from N.E. Ohio area
>
>
>Who here on the list is from what is classified as the N.E. Ohio area.
>I have the 2007-2008 TMA directory and I'm sure that there have been some 
>changes or updates.
>I'm looking at trying to start a NE Ohio TMA support group. I know there is an 
>Ohio support group but I believe the closest area is Columbus. Honestly, that 
>is a bit too far for me to drive for support meeting get togethers.
>I know Gunny is on here and I know about Ella in Elyriacan anyone help me 
>out..?
>I think we could benefit from something like thisespecially in light of 
>the recent posting from Gilly...where she said that she just recently met 
>another TM'r. How many others are out there that would like to meet another 
>TM'r and you might have someone in your "back yard" so to speak that you don't 
>know about.
>
>Thanks,
>Kevin
>
>
>



  

Re: [TMIC] weird sensations

[ROSEOFRENO]

 
Kathy...do you take anything else other than the  Lyrica...?
Such as over-the-counter meds of any kind...?
I'm just wondering if maybe the Lyrica could be  reacting
with something else you are taking.
 
Apparently, since many of us have experienced this  and
are on different meds, it must have something to do  with
our compromised central nervous system.
We must be on overdrive or something.
   ~ Lynn
 
 
In a message dated 9/14/2009 8:55:15 A.M. Pacific Daylight Time,  
k...@frontiernet.net writes:

I did not take my lyrica this morning and body has already started  
reacting ... I really hate this.. feels like I am going to bounce right out of  
my 
chair..
Kathy

- Original Message - 
From:  _roseofr...@aol.com_ (mailto:roseofr...@aol.com)  
To: _k...@frontiernet.net_ (mailto:k...@frontiernet.net)  ; 
_tmic-l...@eskimo.com_ (mailto:tmic-list@eskimo.com)  
Sent: Monday, September 14, 2009 10:38  AM
Subject: Re: [TMIC] weird  sensations


Kathleen ~
   I had the same reaction when I was taking  Topamax.
Felt like I was going to vibrate right off my bed and out  the
window.  :-)  I would just stay in bed until it  passed.
When I stopped taking the Topamax the vibrating stopped  
also.
   Gunny is probably right...it's probably your  Lyrica.
I would decrease my dosage and see what  happens.
   ~  Lynn




 

Re: [TMIC] weird sensations

[LadyOwl]

I did not take my lyrica this morning and body has already started reacting ... 
I really hate this.. feels like I am going to bounce right out of my chair..
Kathy
  - Original Message - 
  From: roseofr...@aol.com 
  To: k...@frontiernet.net ; tmic-list@eskimo.com 
  Sent: Monday, September 14, 2009 10:38 AM
  Subject: Re: [TMIC] weird sensations


  Kathleen ~
 I had the same reaction when I was taking Topamax.
  Felt like I was going to vibrate right off my bed and out the
  window.  :-)  I would just stay in bed until it passed.
  When I stopped taking the Topamax the vibrating stopped 
  also.
 Gunny is probably right...it's probably your Lyrica.
  I would decrease my dosage and see what happens.
 ~ Lynn

Re: [TMIC] Looking for TMr's for support groups

[Barbara H.]

*I do, too, but I thought the link to already established support groups
might be helpful for some -- saves the time and effort of starting one.

Barbara H.*

On Mon, Sep 14, 2009 at 11:32 AM, Patricia Cooley wrote:

>  I think letting people know where you re from is an excellent idea.  I
> also sign off with my name and location, since my name is so common.
>
>
>
> Patti – S.E. Wisconsin
>
>
>
> *From:* Barbara H. [mailto:barbara...@gmail.com]
> *Sent:* Sunday, September 13, 2009 10:05 PM
> *To:* tmic-list@eskimo.com
> *Subject:* Re: [TMIC] Looking for TMr's for support groups
>
>
>
> There is a list of established support groups for various states and
> countries here:
> http://www.myelitis.org/support.htm#3
>
> Barbara H.
> http://barbarah.wordpress,com
>
> On Sun, Sep 13, 2009 at 9:25 PM, Catherine  wrote:
>
> Kevin,
>
> That is a wonderful idea.  Why don't we all just say where we are from ..
> as I have seen here.  Several support groups may start.  Thank you for a
> great idea
>
> So I will start...
>
> Catherine, caretaker   Central Mass.
>
>
>  --
>
> *From:* kevin weilacher 
> *To:* tmic-list@eskimo.com
> *Sent:* Saturday, September 12, 2009 4:59:53 PM
> *Subject:* [TMIC] Looking for TMr's from N.E. Ohio area
>
> Who here on the list is from what is classified as the N.E. Ohio area.
> I have the 2007-2008 TMA directory and I'm sure that there have been some
> changes or updates.
> I'm looking at trying to start a NE Ohio TMA support group. I know there is
> an Ohio support group but I believe the closest area is Columbus. Honestly,
> that is a bit too far for me to drive for support meeting get togethers.
> I know Gunny is on here and I know about Ella in Elyriacan anyone help
> me out..?
> I think we could benefit from something like thisespecially in light of
> the recent posting from Gilly...where she said that she just recently met
> another TM'r. How many others are out there that would like to meet another
> TM'r and you might have someone in your "back yard" so to speak that you
> don't know about.
>
> Thanks,
> Kevin
>
>
>
>
>
>
>

[TMIC] Update on Mike

[Jan Hargrove]

Jill,

So glad that Mike's treatment has begun!! Also super that it went 
smoothly...so now you know what's going on and next week you'll get the 
second part under your belt.  I'm not making light of what Mike has to face, 
but in my opinion the unknown is most often more frightning than the reality!! 
Please know that our thoughts and prayers continue!!
Hugs, janh

 






Hi Everyone,
 
We finally got Mike’s schedule for radiation and chemo.  Mike had his fist 
radiation treatment Thursday.  The anticipation of the unknown was the most 
stressful part of the treatment, but the 20 minute session went relatively 
smooth.  Eight consecutive weeks have been scheduled thus far and will overlap 
with chemo.  Next Tuesday the 15th starts his first chemo treatment.  The first 
appointment is going to last six hours starting at 9am….the next two 
consecutive days are scheduled at 2pm and last 2 to 3 hours.  The crib board 
will be on hand for anyone that wants to take him on….he would love the 
company!!!.
 
Both Mike and I are very please with the Oncology facility on 13th street .  
The doctors and support staff have been very accommodating and helpful in every 
possible way.  We both know that the next few weeks are going to be very rough, 
but with the support of family, friends and a whole lot of prayers, Mike is 
going to gain strength through YOU……Keep the prayers going.  I’ll keep you 
posted, HUGS, Jill and Mike  

Re: [TMIC] weird sensations

[Laurie Zissimos]

I've experienced the vibrating as well when I have too much Lyrica.? In fact, I 
can't even talk right as my bottom lip shakes and my tongue doesn't work 
right.? It's almost like drinking too much caffien.? Very weird feeling.? 
Perhaps its the combo of Lyrica and caffien.? Only time and patience clears it 
up.



Laurie from Baltimore


-Original Message-
From: roseofr...@aol.com
To: k...@frontiernet.net; tmic-list@eskimo.com
Sent: Mon, Sep 14, 2009 11:38 am
Subject: Re: [TMIC] weird sensations




Kathleen ~

?? I had the same reaction when I was taking Topamax.

Felt like I was going to vibrate right off my bed and out the

window.? :-)? I would just stay in bed until it passed.

When I stopped taking the Topamax the vibrating stopped 

also.

?? Gunny is probably right...it's probably your Lyrica.

I would decrease my dosage and see what happens.

?? ~ Lynn

Re: [TMIC] weird sensations

[ROSEOFRENO]

Kathleen ~
   I had the same reaction when I was taking  Topamax.
Felt like I was going to vibrate right off my bed and out  the
window.  :-)  I would just stay in bed until it  passed.
When I stopped taking the Topamax the vibrating stopped 
also.
   Gunny is probably right...it's probably your  Lyrica.
I would decrease my dosage and see what happens.
   ~ Lynn

Re: [TMIC] Looking for TMr's for support groups

[ROSEOFRENO]

 
Lynn ~ Reno, NV
 
In a message dated 9/14/2009 5:22:05 A.M. Pacific Daylight Time,  
kimr1...@bellsouth.net writes:

Kim, - Atlanta, GA


 

 From: jrushton  
To: Jill Z  ; tmic  
Sent: Monday, September 14, 2009 9:01:14  PM
Subject: Re: [TMIC]  Looking for TMr's for support groups


Jeanne R from Dayton,  WA
 
 
---Original  Message---
 
 
From: _Jill Z_ (mailto:jillybean60...@yahoo.com) 
Date: 9/13/2009  9:55:00 PM
To: _Catherine_ (mailto:camoa...@yahoo.com) ;  _Laura Beaudin_ 
(mailto:laura.beau...@gmail.com) 
Cc: _kevin  weilacher_ (mailto:hwyfli...@yahoo.com) ;  _Transverse Mylitis 
Group_ (mailto:tmic-list@eskimo.com) 
Subject: Re: [TMIC]  Looking for TMr's for support groups

 
Jill From Chicago

--- On Sun, 9/13/09,  Laura Beaudin   wrote:

From: Laura  Beaudin 
Subject: Re: [TMIC]  Looking for TMr's for support groups
To: "Catherine"  
Cc: "kevin weilacher"  , "Transverse Mylitis Group"  

Date: Sunday, September 13, 2009,  8:29 PM

...and I'm Laura from Edmonton, Alberta.  :)

On Sun, Sep 13, 2009 at 7:25 PM, Catherine <_camoa...@yahoo.com_ 
(http://us.mc343.mail.yahoo.com/mc/compose?to=camoa...@yahoo.com) >  wrote:
> Kevin,
>
> That is a wonderful  idea.  Why don't we all just say where we are from 
..  as
> I have seen here.  Several support groups may  start.  Thank you for a 
great
> idea
>
> So  I will start...
>
> Catherine, caretaker    Central Mass.
>

RE: [TMIC] Looking for TMr's for support groups

[Patricia Cooley]

I think letting people know where you re from is an excellent idea.  I also
sign off with my name and location, since my name is so common.

 

Patti - S.E. Wisconsin

 

From: Barbara H. [mailto:barbara...@gmail.com] 
Sent: Sunday, September 13, 2009 10:05 PM
To: tmic-list@eskimo.com
Subject: Re: [TMIC] Looking for TMr's for support groups

 

There is a list of established support groups for various states and
countries here:
http://www.myelitis.org/support.htm#3

Barbara H.
http://barbarah.wordpress,com

On Sun, Sep 13, 2009 at 9:25 PM, Catherine  wrote:

Kevin,

That is a wonderful idea.  Why don't we all just say where we are from .. as
I have seen here.  Several support groups may start.  Thank you for a great
idea

So I will start...

Catherine, caretaker   Central Mass.

 

  _  

From: kevin weilacher 
To: tmic-list@eskimo.com
Sent: Saturday, September 12, 2009 4:59:53 PM
Subject: [TMIC] Looking for TMr's from N.E. Ohio area

Who here on the list is from what is classified as the N.E. Ohio area.
I have the 2007-2008 TMA directory and I'm sure that there have been some
changes or updates.
I'm looking at trying to start a NE Ohio TMA support group. I know there is
an Ohio support group but I believe the closest area is Columbus. Honestly,
that is a bit too far for me to drive for support meeting get togethers.
I know Gunny is on here and I know about Ella in Elyriacan anyone help
me out..?
I think we could benefit from something like thisespecially in light of
the recent posting from Gilly...where she said that she just recently met
another TM'r. How many others are out there that would like to meet another
TM'r and you might have someone in your "back yard" so to speak that you
don't know about.

Thanks,
Kevin

 

 

 

RE: [TMIC] need advice

[Patricia Cooley]

HI WIM.  I DON'T TAKE JUST OMEGA 3, BUT I TAKE FLAX SEED OIL CAPSULES THAT
HAS OMEGA 3 IN IT.   EVERYONES BODY WORKS DIFFERENTLY, SO THE SAME IS NOT
GOOD FOR EVERYONE.  ALSO, I TAKE ONE ACIDOLPHILUS CAPSULE EACH DAY AND IT
WORKS TO PREVENT DIARRHEA  AND HELPS TO STAY REGULAR.  IT WORKS BOTH WAYS.
I USED TO HAVE TO TAKE A STOOL SOFTENER EVERY FEW DAYS, BUT SINCE I ADDED
THE ACIDOLPHILUS I HAVEN'T HAD TO TAKE THEM.

 

PATTI - WISCONSIN

 

From: wim from holland [mailto:wim_from_holl...@hotmail.com] 
Sent: Monday, September 14, 2009 7:29 AM
To: limoga43...@yahoo.com; TMIC
Subject: RE: [TMIC] need advice

 

The day I started to take Omega3 capsules of 1000mg my bowl is more compact,
darker en the use of toilet paper went down a lot. Almost clean after the
bowl. Normaly to keep the bowl smooth going I use lactulose. that
combination worked for me the best.
 
Wim.
 

  _  

Date: Sat, 12 Sep 2009 13:43:13 -0700
From: limoga43...@yahoo.com
To: tmic-list@eskimo.com
Subject: [TMIC] need advice


I have had TM for nearly 7 years now, and as embarrassing as it is to admit,
my bowels and bladder are not getting better, in fact at times they are
worse.I take Metamucil faithfully every morning and for some time that
helped my bowels, but lately it is notI feel the urge and can not hold
it in and have an accidentany suggestions or any good thoughts as what
to do? I don't know whether to take the metamucil 2 times a day or add
something else. I am on meds for my bladder and so far so good there. I am
scheduled to see our medical doctor next week, but thought maybe someone
might have some ideas to help me till then.

Thanks.Linda in Ohio

 

  _  

SMS "vrienden" naar 3010 en ontvang gratis de juiste instellingen voor
Hotmail en Messenger op je mobiele telefoon
 

Re: [TMIC] Looking for TMr's for support groups

[Laurie Zissimos]

Laurie from Baltimore.??? FYI, I've found that some of the support group 
data is "dated" or incorrect.? You might have better luck contacting the 
National Org if you have a problem.? 





-Original Message-
From: Barbara H. 
To: tmic-list@eskimo.com
Sent: Sun, Sep 13, 2009 11:05 pm
Subject: Re: [TMIC] Looking for TMr's for support groups


There is a list of established support groups for various states and countries 
here:
http://www.myelitis.org/support.htm#3

Barbara H.
http://barbarah.wordpress,com


On Sun, Sep 13, 2009 at 9:25 PM, Catherine  wrote:




Kevin,

That is a wonderful idea.? Why don't we all just say where we are from .. as I 
have seen here.? Several support groups may start.? Thank you for a great idea

So I will start...

Catherine, caretaker?  Central Mass.




From: kevin weilacher 
To: tmic-list@eskimo.com
Sent: Saturday, September 12, 2009 4:59:53 PM
Subject: [TMIC] Looking for TMr's from N.E. Ohio area


Who here on the list is from what is classified as the N.E. Ohio area.
I have the 2007-2008 TMA directory and I'm sure that there have been some 
changes or updates.
I'm looking at trying to start a NE Ohio TMA support group. I know there is an 
Ohio support group but I believe the closest area is Columbus. Honestly, that 
is a bit too far for me to drive for support meeting get togethers.
I know Gunny is on here and I know about Ella in Elyriacan anyone help me 
out..?
I think we could benefit from something like thisespecially in light of the 
recent posting from Gilly...where she said that she just recently met another 
TM'r. How many others are out there that would like to meet another TM'r and 
you might have someone in your "back yard" so to speak that you don't know 
about.

Thanks,
Kevin

RE: [TMIC] Looking for TMr's for support groups

[Janet Dunn]

I'm Janet 

Fort St John BC
Canada




-Original Message-
From: Laura Beaudin [mailto:laura.beau...@gmail.com] 
Sent: September 13, 2009 6:30 PM
To: Catherine
Cc: kevin weilacher; Transverse Mylitis Group
Subject: Re: [TMIC] Looking for TMr's for support groups

...and I'm Laura from Edmonton, Alberta. :)

On Sun, Sep 13, 2009 at 7:25 PM, Catherine  wrote:
> Kevin,
>
> That is a wonderful idea.  Why don't we all just say where we are from ..
as
> I have seen here.  Several support groups may start.  Thank you for a
great
> idea
>
> So I will start...
>
> Catherine, caretaker   Central Mass.
>

RE: [TMIC] weird sensations

[Patricia Cooley]

Kathy  -  It might take several days or longer for the Lyrica to get out of
your body, since you have been taking it for awhile. I know I was taking a
supplement I found on the internet for people with TM and it did a number on
my liver.  My doctor agreed I should stop and it may take several months for
my body to rid itself of it.  Once I stopped taking it, my liver finally
went back to normal but it took awhile.

 

Patti - S.E. Wisconsin

 

From: LadyOwl [mailto:k...@frontiernet.net] 
Sent: Monday, September 14, 2009 10:55 AM
To: tmic-list@eskimo.com
Subject: Re: [TMIC] weird sensations

 

I did not take my lyrica this morning and body has already started reacting
... I really hate this.. feels like I am going to bounce right out of my
chair..

Kathy

- Original Message - 

From: roseofr...@aol.com 

To: k...@frontiernet.net ; tmic-list@eskimo.com 

Sent: Monday, September 14, 2009 10:38 AM

Subject: Re: [TMIC] weird sensations

 

Kathleen ~

   I had the same reaction when I was taking Topamax.

Felt like I was going to vibrate right off my bed and out the

window.  :-)  I would just stay in bed until it passed.

When I stopped taking the Topamax the vibrating stopped 

also.

   Gunny is probably right...it's probably your Lyrica.

I would decrease my dosage and see what happens.

   ~ Lynn

Re: [TMIC] weird sensations

[LadyOwl]

Yes please.. this is really starting to bug me.. can't even trust myself to get 
into the shower even though I have a shower seat..
Thanks
  - Original Message - 
  From: bgunny7...@aol.com 
  To: k...@frontiernet.net 
  Sent: Monday, September 14, 2009 8:58 AM
  Subject: Re: [TMIC] weird sensations


  I had the same reaction when I was on Lyrica. It may be that your body isn't 
used to the increase, or, it may be that your body has become accustomed to the 
dosage, and needs more. Want me to ask Doug?

[TMIC] weird sensations

[LadyOwl]

Hi all.. 
Haven't written in much but as of yesterday I have been very scared and nervous 
because of a weird sensation I have been getting.. I was on Face Book (my usual 
haunt) between 2 and 3 pm when my body began to vibrate. I was shaking from 
head to toe. Not a big shake but a very small one that even my husband could 
see from a few feet away. It felt almost like I had too much caffeine or 
something. I could hardly get out of my chair. My legs felt very heavy and I 
had this vibration going up and down them. Even my hands, arms and trunk had 
it. I made it to the couch with hubby right by my side because I was not able 
to control my legs as much as I usually am. They felt so heavy and thick like I 
was walking through water waist high and someone was giving me electrical 
shocks. I was hoping after walking a little bit the feeling would subside but 
it didn't. I went on the deck for a smoke ( okay I know I should not smoke but 
it is my only vice besides Face Book ) and had to step over the patio door 
bottom (can't think of the proper name right now) and had a very hard time 
lifting my feet over it and it is only a 1/4 to a 1/2 inch high. After about 
another 15 minutes we finally decided I should go lay down in bed. I stayed 
there till 7 pm until the vibrating settled down enough that I felt save enough 
and strong enough to walk to the living room. I kept getting this vibrating 
feeling come back strong for about 30 to 40 minutes then weaken off slowly the 
rest of the evening and now it seems to be starting up again today. Hubby is 
laid off right now and we have no health so no getting to a doctor for me. I am 
wondering if any of you have had this feeling and what you did about it? I am 
on 2 lyrica a day and my medication has not changed in well over a year (except 
when I had to take more Lyrica earlier this year).  I am really hoping this 
feeling just resolves itself but am very interested if any of have had this 
feeling. 
Thanks
Kathleen Moorhead Blaschko (as I am known on Face Book)

Re: [TMIC] Looking for TMr's for support groups

[Celrods]

JANE IN SPLENDORA TX

RE: [TMIC] need advice

[wim from holland]

The day I started to take Omega3 capsules of 1000mg my bowl is more compact, 
darker en the use of toilet paper went down a lot. Almost clean after the bowl. 
Normaly to keep the bowl smooth going I use lactulose. that combination worked 
for me the best.

 

Wim.
 


Date: Sat, 12 Sep 2009 13:43:13 -0700
From: limoga43...@yahoo.com
To: tmic-list@eskimo.com
Subject: [TMIC] need advice






I have had TM for nearly 7 years now, and as embarrassing as it is to admit, my 
bowels and bladder are not getting better, in fact at times they are 
worse.I take Metamucil faithfully every morning and for some time that 
helped my bowels, but lately it is notI feel the urge and can not hold it 
in and have an accidentany suggestions or any good thoughts as what to do? 
I don't know whether to take the metamucil 2 times a day or add something else. 
I am on meds for my bladder and so far so good there. I am scheduled to see our 
medical doctor next week, but thought maybe someone might have some ideas to 
help me till then.
Thanks.Linda in Ohio

_
25GB gratis online harde schijf
http://skydrive.live.com

Re: [TMIC] Looking for TMr's for support groups

[kimr1999]

Kim, - Atlanta, GA





From: jrushton 
To: Jill Z ; tmic 
Sent: Monday, September 14, 2009 9:01:14 PM
Subject: Re: [TMIC] Looking for TMr's for support groups


   
Jeanne R from Dayton, WA
 
---Original Message---

From: Jill Z
Date: 9/13/2009 9:55:00 PM
To: Catherine;  Laura Beaudin
Cc: kevin weilacher;  Transverse Mylitis Group
Subject: Re: [TMIC] Looking for TMr's for support groups

Jill From Chicago

--- On Sun, 9/13/09, Laura Beaudin  wrote:


From: Laura Beaudin 
Subject: Re: [TMIC] Looking for TMr's for support groups
To: "Catherine" 
Cc: "kevin weilacher" , "Transverse Mylitis Group" 

Date: Sunday, September 13, 2009, 8:29 PM


...and I'm Laura from Edmonton, Alberta. :)

On Sun, Sep 13, 2009 at 7:25 PM, Catherine  wrote:
> Kevin,
>
> That is a wonderful idea.  Why don't we all just say where we are from .. as
> I have seen here.  Several support groups may start.  Thank you for a great
> idea
>
> So I will start...
>
> Catherine, caretaker   Central Mass.
>

RE: [TMIC] Looking for TMr's from N.E. Ohio area

[Bob and Sue Mattis]

Sue Mattis - Harborcreek, PA  (near Erie)
Co-chair of the PA support group with Pam Hoge
 
We are always open to getting together with folks from other states as
well.  In fact
the first time I ever met with anyone with TM was back in 2001 in
Youngstown, Ohio
with some of the OHIO group.  The borders of a state don't dictate what
TM'ers we 
can "hang" with.  We'd love to get together with anyone!  :-)
 
Sue
 
-Original Message-
From: kevin weilacher [mailto:hwyfli...@yahoo.com] 
Sent: Saturday, September 12, 2009 5:00 PM
To: tmic-list@eskimo.com
Subject: [TMIC] Looking for TMr's from N.E. Ohio area
 
Who here on the list is from what is classified as the N.E. Ohio area.
I have the 2007-2008 TMA directory and I'm sure that there have been
some changes or updates.
I'm looking at trying to start a NE Ohio TMA support group. I know there
is an Ohio support group but I believe the closest area is Columbus.
Honestly, that is a bit too far for me to drive for support meeting get
togethers.
I know Gunny is on here and I know about Ella in Elyriacan anyone
help me out..?
I think we could benefit from something like thisespecially in light
of the recent posting from Gilly...where she said that she just recently
met another TM'r. How many others are out there that would like to meet
another TM'r and you might have someone in your "back yard" so to speak
that you don't know about.

Thanks,
Kevin