Re: [TMIC] WHEN A MEDICARE CLAIM IS DENIED

[Akua]

Great info.
I need help at home and am going hungry to
get food--- I pay an additional $88 a month
to get someone to shop for me... and the
other help i need goes wanting as
I am limited to assistance for just two hours a week

Now I will call and ask again for Medicare
support for paying for assistance and maybe
I can get more assistance.

Thank you!
Akua
--

Re: [TMIC] weird sensations

[Jill Z]

Kathy,
Apply for PUBLIC AID  All the illegals get it!!!  And they get our MEDICARE 
TOO!  Take it from me...I work in a hospital.  I don't know how it's done, but 
it can be done somehow.
You cannot be denied healthcare yet and you deserve it.  Just don't give them 
your SS#.
Jill's two cents in Chicago

--- On Tue, 9/15/09, LadyOwl1961  wrote:


From: LadyOwl1961 
Subject: Re: [TMIC] weird sensations
To: tmic-list@eskimo.com
Date: Tuesday, September 15, 2009, 10:26 AM




Morning All: 
    Well it is day three of this vibrating feeling. I did not take 
Lyrica yesterday morning or this morning but continue to take it at night or I 
will never sleep.  I wake up during the night feeling like I am going to bounce 
right off the bed. The only good thing is that it does not last as long as it 
was.  I can now add tired all the time to what I am feeling but I am sure that 
is just from the lack of a good nights’ sleep. I am beginning to feel worse and 
worse as each day passes. This is really messing with my head. 
    Frank the reason I cannot see is a doctor and am not eligible for 
any type of disability, or medical care is because I am a Canadian who married 
an American in 1999 and only have permanent residency in the USA. I am not in 
Canada for 153 days a year so I am unable to have Canadian health care or claim 
disability. My husband is a contract worker in the States (only type of 
employment available right now) and health care through the company is so 
expensive and we do not get much coverage. An example of this is my TM was 
acting up and I tripped and banged my toe into the wall, it became so swollen I 
could not walk, since we had health coverage at the time Hubby took me in to 
Urgent Care, the Doctor took a look, ordered a x ray, and sent me home with a 
boot.  About 2 weeks later we get the bill, this service cost $260.00 and we 
had to pay $190.00. So for paying over $450.00 a month for 6 months we still 
had no real difference in heath
 care. I am sooo lucky to have a family doctor in Canada who lets me pay for a 
visit so I can keep my medications up. Also I am so lucky to live not far from 
Canada that we can afford to go up there a few times a year to get my 
medications. I am really frustrated with the American system of health care. 
Being born and raised in Canada and living in the USA for ten years has really 
made me realize I had it so lucky in Canada. I get very mad at the commercials 
putting the Canadian Health Care system down. Yes we did have to wait a little 
longer for some tests but whenever I HAD to have a test I had it within a week. 
 An example of this was with my Breast Cancer. I found a lump, got in to see my 
doctor within 3 days, within a week was at specialist and had all the tests 
done within another week and started on Chemo within a month. I was not charged 
anything. I did not have to dip into my savings, retirement fund or be billed 
ANYTHING. Even most of my
 medications were covered.  All this for an extra cost through work of $87.00 a 
month for extended Health Care. I had a semi private coverage meaning I was 
only in a room with one other person while hospitalized as well as so many more 
benefits as eye and dental care. 
    I am terrified right now concerning my husbands’ and my heath. My 
husband has not seen a doctor in about 8 years because my health has taken up 
all of our benefits. We have eaten up most of our retirement fund due to this 
economy and trying to survive. We just get ahead of the game and then something 
happens (Hubby gets laid off, I get sick, I need meds, dog gets sick or our 11 
year old car needs fixing) to set us back into the hole again. I laugh when 
they tell people with TM to avoid stress as it just seems to live with me. 
Right now my husband is trying to get a job in Canada so that at least he knows 
if I get really sick I will be taken care of. I am hoping he gets one there so 
that he can re-coup his 401K so that he can have some type of life when he 
retires. Maybe he should just divorce me and me move back to Canada and go on 
Social Assistance so as not to be this burden on him any longer. I love him 
more than life itself
 but it seems like the only solution for me here. Anyway maybe all this stress 
is why I am vibrating, who knows but the only thing I do know is I am scared of 
what is going on with me and really wish I was living back in Canada and 
covered. I would not even mind a month wait to get into a doctor just because I 
know I would not have to live on the street to pay for the treatments needed.
 
Kathy who is frustrated, hurting, depressed and scared.. 

- Original Message - 
From: Jill Z 
To: LadyOwl 
Sent: Tuesday, September 15, 2009 6:43 AM
Subject: Re: [TMIC] weird sensations






Kathy,
How are you now?  
Jill in Chicago

--- On Mon, 9/14/09, LadyOwl  wrote:


From: LadyOwl 
Subject: [TMIC] weird sensations
To: tmic-list@eskimo.com
Date: Monday, September 14, 2009

Re: [TMIC] Looking for TMr's for support groups

[L T CHERPESKI]

Linda Cherpeski - Eagle, Idaho (Boise area)
  - Original Message - 
  From: Patricia Cooley 
  To: 'Butcher, Bernie (S&FS)' ; 'Robert 
Pall' ; 'Janice' ; 
'Jill Z' ; 
'Catherine' ; 'Laura 
Beaudin' 
  Cc: 'kevin weilacher' ; 'Transverse Mylitis 
Group' 
  Sent: Tuesday, September 15, 2009 8:28 AM
  Subject: RE: [TMIC] Looking for TMr's for support groups


  Patti  - S.E. Wisconsin

   

  From: Butcher, Bernie (S&FS) [mailto:bernie.butc...@honeywell.com] 
  Sent: Tuesday, September 15, 2009 6:48 AM
  To: Robert Pall; Janice; Jill Z; Catherine; Laura Beaudin
  Cc: kevin weilacher; Transverse Mylitis Group
  Subject: RE: [TMIC] Looking for TMr's for support groups

   

  Barney - LI, NY

   


--

  From: Robert Pall [mailto:rp...@neillsupply.com] 
  Sent: Tuesday, September 15, 2009 7:44 AM
  To: Janice; Jill Z; Catherine; Laura Beaudin
  Cc: kevin weilacher; Transverse Mylitis Group
  Subject: RE: [TMIC] Looking for TMr's for support groups

   

  Rob-Marlboro New Jersey

   


--

  From: Janice [mailto:jan...@centurytel.net] 
  Sent: Monday, September 14, 2009 11:20 PM
  To: Jill Z; Catherine; Laura Beaudin
  Cc: kevin weilacher; Transverse Mylitis Group
  Subject: Re: [TMIC] Looking for TMr's for support groups

  Janice  -  Columbia, Missouri

- Original Message - 

From: Jill Z 

To: Catherine ; Laura 
Beaudin 

Cc: kevin weilacher ; Transverse Mylitis 
Group 

Sent: Sunday, September 13, 2009 9:54 PM

Subject: Re: [TMIC] Looking for TMr's for support groups

 

  Jill From Chicago

  --- On Sun, 9/13/09, Laura Beaudin 
mailto:laura.beau...@gmail.com>> wrote:


  From: Laura Beaudin 
mailto:laura.beau...@gmail.com>>
  Subject: Re: [TMIC] Looking for TMr's for support groups
  To: "Catherine" mailto:camoa...@yahoo.com>>
  Cc: "kevin weilacher" 
mailto:hwyfli...@yahoo.com>>, "Transverse Mylitis Group" 
mailto:tmic-list@eskimo.com>>
  Date: Sunday, September 13, 2009, 8:29 PM

  ...and I'm Laura from Edmonton, Alberta. :)

  On Sun, Sep 13, 2009 at 7:25 PM, Catherine 
mailto:camoa...@yahoo.com>> wrote:
  > Kevin,
  >
  > That is a wonderful idea.  Why don't we all just say where we are 
from .. as
  > I have seen here.  Several support groups may start.  Thank you for 
a great
  > idea
  >
  > So I will start...
  >
  > Catherine, caretaker   Central Mass.
  >
 

 

[TMIC] WHEN A MEDICARE CLAIM IS DENIED

[ROSEOFRENO]

When a Medicare Claim Is Denied
Judith Stein, JD
The Center for Medicare Advocacy, Inc.

any seniors  assume that they have no choice but to pay when their Medicare 
claims are  declined in whole or in part. In fact, denied or underpaid 
claims can be  appealed -- and more than half of these appeals are successful.  
APPEALS THAT WORK 
When your Medicare claim is denied or approved for less than the full 
amount,  you have 120 days to request a “redetermination” of the decision. The  
Medicare Redetermination Request Form (Form CMS-20027) is available on  the 
Medicare and Medicaid Web site 
(_www.cms.hhs.gov/cmsforms/downloads/cms20027.pdf_ 
(http://link.bls.bottomlinesecrets.com/r/UHZ45L/HDIYM/KSK6O/5VZ1V/NSXAM/28/h/) 
) or by calling  800-633-4227.  
The written claim denial that you originally received includes instructions 
 for where and how to submit this form. The claim denial includes an 
explanation  as to why your claim was denied or why payment for your treatment 
wasn
’t covered  in full. You will need to contest this explanation to win your 
appeal. Ask your  doctor to write a letter responding to the points raised 
in the denial and  explaining why the health care is necessary. Include a 
copy of this letter with  your appeals form, and keep a copy for your records.  
Common reasons for denial of treatment and how to fight them...  
REASON FOR DENIAL: The treatment, prescription or medical service is  
unlikely to cause your health condition to improve. (The denial likely  falls 
into this category if the notice you received includes words or phrases  such 
as “stable,” “chronic,” “not improving” or “no restorative potential.”) 
How to fight: The Medicare program is required to  look at your total 
condition and health-care needs, not just a specific  diagnosis or your chance 
for full or partial recovery. Ask your doctor to write  a letter explaining 
why the medical care is needed.  
Example: Medicare denied home health care to a  patient with Lou Gehrig’s 
disease, an incurable degenerative condition, because  the care would not 
help her improve. The patient successfully appealed, arguing  -- with her doctor
’s help -- that while having a nurse visit her home would not  improve her 
condition, it could slow the disease’s progression and is needed to  
otherwise care for her various health issues. 
REASON FOR DENIAL: You are likely to require care for a very long  time... 
or have already received treatment for a very long time without  a 
resolution of the problem.  
How to fight: Point out that Medicare coverage is  not limited to 
treatments that work quickly. As long as your doctor continues to  order this 
treatment for you, Medicare should continue to cover it. Include a  letter from 
your doctor explaining that the treatment is having some positive  effect or 
expressing an expectation that it will. (Medicare rules do limit how  many days
’ coverage is available in a nursing home or a hospital but not for  home 
care.)  
REASON FOR DENIAL: You do not qualify for Medicare-covered home care  
because you are not homebound.  
How to fight: According to Medicare rules,  “homebound” does not mean that 
you are completely unable to leave your home, nor  does it mean that you 
are confined to a bed. You can be considered homebound  even if you leave your 
home to obtain medical care or attend occasional family  gatherings. You 
must require assistance and considerable effort to get out of  the house.  
Ask your care provider (which could be a family member, a home health  
professional or a doctor) to write a letter describing in detail how difficult  
it is for you to leave your home, and include this with the appeals form.  
REASON FOR DENIAL: The dosage level of a prescription is greater than  the 
dosage normally prescribed... or the drug prescribed is not  normally 
prescribed for your health problem. 
How to fight: Have your doctor write a letter  explaining why the unusual 
dosage or drug is medically necessary for you. If  possible, have the doctor 
cite published reports of similar usage.  
Example: Your doctor might explain that you are  allergic to the drug 
normally prescribed for your health problem. 
REASON FOR DENIAL: Technical errors were made in the original  Medicare 
claim. The rejection might cite a “coding error” or “incorrect  Medicare 
recipient number.”  
How to fight: Ask the health-care provider that  submitted the claim to 
correct the problem and resubmit. 
DON’T GIVE UP 
If your Medicare appeal is denied, you have the right to file as many as 
four  more appeals. Your odds of success improve the further you pursue the 
fight.  While the initial “redetermination” appeal is made to the same group 
that  initially denied your claim, later appeals are made to increasingly 
independent  arbiters.  
Appeal #2: You have 180 days from the date your  redetermination request is 
denied to request that a Qualified Independent  Contractor (QIC) make a “
reconsideration de

[TMIC] SKIP THE NEEDLESS TESTS...

[ROSEOFRENO]

Skip the needless  tests 

If you've been listening to me, then hopefully you've  managed to avoid the 
needless, endless cycle of preventive tests -- because the  latest evidence 
shows exactly what I feared: millions of Americans are being  exposed to 
massive doses of radiation for "routine" tests that most of them  don't need. 

While I knew this was a problem, I was still stunned when I  saw the 
numbers in the New England Journal of Medicine: 4 million  Americans under the 
age 
of 65 get high doses of radiation from medical imaging  tests. 

That's bad enough -- but that's not even the worst of it. Some  400,000 of 
them get massive doses of radiation in excess of what nuclear power  plant 
employees are allowed over the course of an entire year. 

The  researchers believe these tests cause tens of thousands of new cancers 
every  year. 

If there is anyone you should trust less than a lawyer, it's a  doctor with 
his own testing equipment. They practically print their own money  with 
these things. 

Typical scenario: Your doctor sends you for a test,  and you breathe a big 
sigh of relief when it comes back negative. Meanwhile,  you've just been 
exposed to enough radiation to start your own power plant, and  something 
inside you starts to grow. 

Then somewhere down the road, you  get another test. Still negative -- but 
that tumor gets some more juice, and  you're on your way to a cancer 
diagnosis. 

Finally, one day, the test  comes back and confirms it, and maybe you think 
"good thing I have such a great  doctor, he knew something was wrong and 
kept sending me for tests until we found  it." 

Sorry pal, he didn't find it. He CAUSED it. 

But hey, at  least you helped him get another Mercedes. 

Always willing to put your  doctor to the test, 

William Campbell Douglass II, M.D. 

Re: [TMIC] Re: Fwd: SOUL SISTER...YOU HAVE GOT TO SEE THIS...!!! IT'S JIM ...

[ROSEOFRENO]

 
How funnycamera shy.  :-)
It's great to hear the pain isn't as bad as it  was
you're welcome for the prayers and we will keep
you lifted Jim.  
Prayers go up...blessings come down
   Love, Lynn
 
 
In a message dated 9/15/2009 11:36:19 A.M. Pacific Daylight Time,  
jlu...@eskimo.com writes:

Update:
Yes I am still being able to slightly move my thumb and  other finger, but 
only when I have been sitting upright and even then no all  the time. I have 
not been having all the pain I was having like when it first  started. We 
tried to do a video again yesterday but when we had the camera  ready and 
recording I wasn't able to move it. Camera shy I guess. :-)  
Thanks for all the prayers!

Jim

At 10:04 AM 9/15/2009,  roseofr...@aol.com wrote:

M ornin' Jim ~
I felt I should share this with  you..  I am still in touch with some 
TMers that
left the  list.  and Deborah is one of them  she started a prayer  
list and 
asked me to join.which I did.  When I saw your video I  just had to 
share it
with her.  I wanted you to know that you are  now on our prayer team list.
We are so excited for you.you are very  much loved you know.  :-)
I hope you are still movingand I sure hope your pain  has subsided
I'm hoping to see an update from you soon.as I am  sure everyone on the
list is hoping for Jim.!
Love  ya,  Lynn

In a message dated 9/14/2009  12:03:49 P.M. Pacific Daylight Time, 
damo...@verizon.net writes:


That’s incredible! It seems so small,  but we know it’s s 
big – we’ll put him on the prayer list to  keep this movement moving!


Thank you for sharing !!!


Love Deborah, your soul sister  xo



 







From: roseofr...@aol.com [_ mailto:roseofr...@aol.com_ 
(mailto:roseofr...@aol.com) ] 

Sent: Monday, September 14, 2009 11:53 AM

To: damo...@verizon.net

Subject: SOUL SISTER...YOU HAVE GOT TO SEE THIS...!!! IT'S JIM  
LUBIN








The past two weeks I started feeling a tingling in my  right lower back. 
When I feel this I am able to move my left thumb! It's  been 20 yrs, 4 mos 
since I was paralyzed from the neck down due to TM.  When I recline the 
tingling stops and I can not move my thumb no matter  how much I try to.


To show that I was actually moving and not just having involuntary  
twitching, I had my nurse tell me when to move and I moved it. Here is the  
video 
_http://www.youtube.com/watch?v=Tw__9ZDv_hU_ 
(http://www.youtube.com/watch?v=Tw__9ZDv_hU) 




Jim  Lubin

jlu...@eskimo.com

_http://makoa.org/jim_ (http://makoa.org/jim)  

disAbility Resources: _http://www.makoa.org_ (http://www.makoa.org/)   



Return-Path:  
Received: from rly-df06.mx.aol.com  (rly-df06.mail.aol.com [172.19.156.19]) 
by air-df06.mail.aol.com (v125.7)  with ESMTP id MAILINDF061-5574aae938785; 
Mon, 14 Sep 2009 15:03:49  -0400
Received: from vms173019 (vms173019pub.verizon.net [206.46.173.19])  by 
rly-df06.mx.aol.com (v125.7) with ESMTP id  MAILRELAYINDF062-5574aae938785; 
Mon, 14 Sep 2009 15:03:35 -0400
Received:  from deb62e8d22365d ([71.126.240.210]) by  
vms173019.mailsrvcs.net
(Sun Java(tm) System Messaging Server  6.3-7.04 (built Sep 26 2008; 32bit))
with ESMTPA id  <0kpz00edf69k0...@vms173019.mailsrvcs.net>  for
roseofr...@aol.com; Mon, 14 Sep 2009 14:03:34 -0500  (CDT)
From: "Deborah Capuano" 
To:  
References:  
Subject: RE: SOUL SISTER...YOU HAVE  GOT TO SEE THIS...!!!  IT'S JIM
LUBIN
Date:  Mon, 14 Sep 2009 15:03:17 -0400
Message-id:  <1c27d4c22f3b4474837ba42eb0519...@deb62e8d22365d>
MIME-version:  1.0
Content-type:  multipart/alternative;
boundary="=_NextPart_000_001A_01CA354C.7E923C60"
X-Mailer:  Microsoft Office Outlook 11
X-MIMEOLE: Produced By Microsoft MimeOLE  V6.00.2900.5579
Thread-index:  Aco1U2eXiuYO/xBPT+W4HhW+CNocHwAGmQKw
In-reply-to:  
X-AOL-IP:  206.46.173.19

That’s  incredible! It seems so small, but we know it’s s big –
 we’ll  put him on the prayer list to keep this movement moving!
Thank you  for sharing !!!
Love Deborah, your soul sister xo

 


From:  roseofr...@aol.com [_  mailto:roseofr...@aol.com_ (mailto:ROSEOFREN
o...@aol.com) ] 
Sent: Monday, September 14, 2009  11:53 AM
To: damo...@verizon.net
Subject: SOUL  SISTER...YOU HAVE GOT TO SEE THIS...!!! IT'S JIM  
LUBIN


The past two weeks I started feeling a  tingling in my right lower back. 
When I feel this I am able to move my left  thumb! It's been 20 yrs, 4 mos 
since I was paralyzed from the neck down due  to TM. When I recline the 
tingling stops and I can not move my thumb no  matter how much I try to.

To show that I was actually moving and not  just having involuntary 
twitching, I had my nurse tell me when to move and I  moved it. Here is the 
video 
_http://www.youtube.com/watch?v=Tw__9ZDv_hU_ 
(http://www.youtube.com/watch?v=Tw__9ZDv_hU) 


Jim  Lubin
jlu...@eskimo.com
_http://ma

[TMIC] Re: Fwd: SOUL SISTER...YOU HAVE GOT TO SEE THIS...!!! IT'S JIM LUBIN....!!!!!!!!

[Jim Lubin]

Update:
Yes I am still being able to slightly move my thumb and other finger, but
only when I have been sitting upright and even then no all the time. I
have not been having all the pain I was having like when it first
started. We tried to do a video again yesterday but when we had the
camera ready and recording I wasn't able to move it. Camera shy I guess.
:-) 
Thanks for all the prayers!
Jim
At 10:04 AM 9/15/2009, roseofr...@aol.com wrote:
M
ornin' Jim ~
   I felt I should share this with you..  I am still
in touch with some TMers that
left the list.  and Deborah is one of them  she started
a prayer list and 
asked me to join.which I did.  When I saw your video I just had
to share it
with her.  I wanted you to know that you are now on our prayer team
list.
We are so excited for you.you are very much loved you know. 
:-)
   I hope you are still movingand I
sure hope your pain has subsided
I'm hoping to see an update from you soon.as I am sure everyone on
the
list is hoping for Jim.!
   Love ya,  Lynn
 
In a message dated 9/14/2009 12:03:49 P.M. Pacific Daylight Time,
damo...@verizon.net writes:



That’s incredible! It seems so
small, but we know it’s s big – we’ll put him on the prayer
list to keep this movement moving!


Thank you for sharing !!!


Love Deborah, your soul sister xo


 



From: roseofr...@aol.com
[
mailto:roseofr...@aol.com] 

Sent: Monday, September 14, 2009 11:53 AM

To: damo...@verizon.net

Subject: SOUL SISTER...YOU HAVE GOT TO SEE THIS...!!! IT'S JIM
LUBIN


 


 

The past two weeks I started feeling a tingling in my
right lower back. When I feel this I am able to move my left thumb! It's
been 20 yrs, 4 mos since I was paralyzed from the neck down due to TM.
When I recline the tingling stops and I can not move my thumb no matter
how much I try to.

To show that I was actually moving and not just having involuntary
twitching, I had my nurse tell me when to move and I moved it. Here is
the video

http://www.youtube.com/watch?v=Tw__9ZDv_hU



Jim
Lubin  


jlu...@eskimo.com


http://makoa.org/jim 

disAbility Resources:
http://www.makoa.org



 
Return-Path: 
Received: from rly-df06.mx.aol.com (rly-df06.mail.aol.com
[172.19.156.19]) by air-df06.mail.aol.com (v125.7) with ESMTP id
MAILINDF061-5574aae938785; Mon, 14 Sep 2009 15:03:49 -0400
Received: from vms173019 (vms173019pub.verizon.net [206.46.173.19]) by
rly-df06.mx.aol.com (v125.7) with ESMTP id
MAILRELAYINDF062-5574aae938785; Mon, 14 Sep 2009 15:03:35 -0400
Received: from deb62e8d22365d ([71.126.240.210]) by
vms173019.mailsrvcs.net
 (Sun Java(tm) System Messaging Server 6.3-7.04 (built Sep 26 2008;
32bit))
 with ESMTPA id <0kpz00edf69k0...@vms173019.mailsrvcs.net>
for
 roseofr...@aol.com; Mon, 14 Sep 2009 14:03:34 -0500 (CDT)
From: "Deborah Capuano" 
To: 
References: 
Subject: RE: SOUL SISTER...YOU HAVE GOT TO SEE THIS...!!!  IT'S
JIM
 LUBIN
Date: Mon, 14 Sep 2009 15:03:17 -0400
Message-id: <1c27d4c22f3b4474837ba42eb0519...@deb62e8d22365d>
MIME-version: 1.0
Content-type: multipart/alternative;
 boundary="=_NextPart_000_001A_01CA354C.7E923C60"
X-Mailer: Microsoft Office Outlook 11
X-MIMEOLE: Produced By Microsoft MimeOLE V6.00.2900.5579
Thread-index: Aco1U2eXiuYO/xBPT+W4HhW+CNocHwAGmQKw
In-reply-to: 
X-AOL-IP: 206.46.173.19
That’s incredible! It seems so
small, but we know it’s s big – we’ll put him on the prayer list
to keep this movement moving!
Thank you for sharing !!!
Love Deborah, your soul sister xo
 


From: roseofr...@aol.com
[
mailto:roseofr...@aol.com] 
Sent: Monday, September 14, 2009 11:53 AM
To: damo...@verizon.net
Subject: SOUL SISTER...YOU HAVE GOT TO SEE THIS...!!! IT'S JIM
LUBIN
 
 
The past two weeks I started feeling a tingling in my
right lower back. When I feel this I am able to move my left thumb! It's
been 20 yrs, 4 mos since I was paralyzed from the neck down due to TM.
When I recline the tingling stops and I can not move my thumb no matter
how much I try to.
To show that I was actually moving and not just having involuntary
twitching, I had my nurse tell me when to move and I moved it. Here is
the video

http://www.youtube.com/watch?v=Tw__9ZDv_hU

Jim
Lubin  

jlu...@eskimo.com
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org




Jim
Lubin  

jlu...@eskimo.com
http://makoa.org/jim

disAbility Resources:
http://www.makoa.org

[TMIC] Fwd: SOUL SISTER...YOU HAVE GOT TO SEE THIS...!!! IT'S JIM LUBIN....!!!!!!!!

[ROSEOFRENO]

 
Mornin' Jim ~
   I felt I should share this with you..  I  am still in touch with 
some TMers that
left the list.  and Deborah is one of them   she started a prayer 
list and 
asked me to join.which I did.  When I saw your video  I just had to 
share it
with her.  I wanted you to know that you are now on our  prayer team list.
We are so excited for you.you are very much loved you  know.  :-)
   I hope you are still movingand I sure hope  your pain has 
subsided
I'm hoping to see an update from you soon.as I am sure  everyone on the
list is hoping for Jim.!
   Love ya,  Lynn
 
In a message dated 9/14/2009 12:03:49 P.M. Pacific Daylight Time,  
damo...@verizon.net writes:

 
That’s  incredible! It seems so small, but we know it’s s big –
 we’ll put  him on the prayer list to keep this movement  moving! 
Thank you for sharing  !!! 
Love Deborah, your  soul sister xo 
 
  

 
From:  roseofr...@aol.com [mailto:roseofr...@aol.com] 
Sent: Monday, September 14, 2009 11:53  AM
To:  damo...@verizon.net
Subject:  SOUL SISTER...YOU HAVE GOT TO SEE THIS...!!! IT'S JIM  
LUBIN
 
 

The past two weeks I  started feeling a tingling in my right lower back. 
When I feel this I am able  to move my left thumb! It's been 20 yrs, 4 mos 
since I was paralyzed from the  neck down due to TM. When I recline the 
tingling stops and I can not move my  thumb no matter how much I try to.

To show that I was actually moving  and not just having involuntary 
twitching, I had my nurse tell me when to move  and I moved it. Here is the 
video 
_http://www.youtube.com/watch?v=Tw__9ZDv_hU

_ (http://www.youtube.com/watch?v=Tw__9ZDv_hU) 
Jim  Lubin
jlu...@eskimo.com
_http://makoa.org/jim_ (http://makoa.org/jim)   
disAbility Resources: _http://www.makoa.org


_ (http://www.makoa.org/) 





--- Begin Message ---
That's incredible! It seems so small, but we know it's s big -
we'll put him on the prayer list to keep this movement moving!

Thank you for sharing !!!

Love Deborah, your soul sister xo

 

  _  

From: roseofr...@aol.com [mailto:roseofr...@aol.com] 
Sent: Monday, September 14, 2009 11:53 AM
To: damo...@verizon.net
Subject: SOUL SISTER...YOU HAVE GOT TO SEE THIS...!!! IT'S JIM
LUBIN

 

 

The past two weeks I started feeling a tingling in my right lower back. When
I feel this I am able to move my left thumb! It's been 20 yrs, 4 mos since I
was paralyzed from the neck down due to TM. When I recline the tingling
stops and I can not move my thumb no matter how much I try to.

To show that I was actually moving and not just having involuntary
twitching, I had my nurse tell me when to move and I moved it. Here is the
video http://www.youtube.com/watch?v=Tw__9ZDv_hU




Jim Lubin   
jlu...@eskimo.com
http://makoa.org/jim 
disAbility Resources: http://www.makoa.org  




--- End Message ---

Re: [TMIC] weird sensations

[LadyOwl1961]

Morning All:

Well it is day three of this vibrating feeling. I did not take 
Lyrica yesterday morning or this morning but continue to take it at night or I 
will never sleep.  I wake up during the night feeling like I am going to bounce 
right off the bed. The only good thing is that it does not last as long as it 
was.  I can now add tired all the time to what I am feeling but I am sure that 
is just from the lack of a good nights' sleep. I am beginning to feel worse and 
worse as each day passes. This is really messing with my head. 

Frank the reason I cannot see is a doctor and am not eligible for 
any type of disability, or medical care is because I am a Canadian who married 
an American in 1999 and only have permanent residency in the USA. I am not in 
Canada for 153 days a year so I am unable to have Canadian health care or claim 
disability. My husband is a contract worker in the States (only type of 
employment available right now) and health care through the company is so 
expensive and we do not get much coverage. An example of this is my TM was 
acting up and I tripped and banged my toe into the wall, it became so swollen I 
could not walk, since we had health coverage at the time Hubby took me in to 
Urgent Care, the Doctor took a look, ordered a x ray, and sent me home with a 
boot.  About 2 weeks later we get the bill, this service cost $260.00 and we 
had to pay $190.00. So for paying over $450.00 a month for 6 months we still 
had no real difference in heath care. I am sooo lucky to have a family doctor 
in Canada who lets me pay for a visit so I can keep my medications up. Also I 
am so lucky to live not far from Canada that we can afford to go up there a few 
times a year to get my medications. I am really frustrated with the American 
system of health care. Being born and raised in Canada and living in the USA 
for ten years has really made me realize I had it so lucky in Canada. I get 
very mad at the commercials putting the Canadian Health Care system down. Yes 
we did have to wait a little longer for some tests but whenever I HAD to have a 
test I had it within a week.  An example of this was with my Breast Cancer. I 
found a lump, got in to see my doctor within 3 days, within a week was at 
specialist and had all the tests done within another week and started on Chemo 
within a month. I was not charged anything. I did not have to dip into my 
savings, retirement fund or be billed ANYTHING. Even most of my medications 
were covered.  All this for an extra cost through work of $87.00 a month for 
extended Health Care. I had a semi private coverage meaning I was only in a 
room with one other person while hospitalized as well as so many more benefits 
as eye and dental care. 

I am terrified right now concerning my husbands' and my heath. My 
husband has not seen a doctor in about 8 years because my health has taken up 
all of our benefits. We have eaten up most of our retirement fund due to this 
economy and trying to survive. We just get ahead of the game and then something 
happens (Hubby gets laid off, I get sick, I need meds, dog gets sick or our 11 
year old car needs fixing) to set us back into the hole again. I laugh when 
they tell people with TM to avoid stress as it just seems to live with me. 
Right now my husband is trying to get a job in Canada so that at least he knows 
if I get really sick I will be taken care of. I am hoping he gets one there so 
that he can re-coup his 401K so that he can have some type of life when he 
retires. Maybe he should just divorce me and me move back to Canada and go on 
Social Assistance so as not to be this burden on him any longer. I love him 
more than life itself but it seems like the only solution for me here. Anyway 
maybe all this stress is why I am vibrating, who knows but the only thing I do 
know is I am scared of what is going on with me and really wish I was living 
back in Canada and covered. I would not even mind a month wait to get into a 
doctor just because I know I would not have to live on the street to pay for 
the treatments needed.

 

Kathy who is frustrated, hurting, depressed and scared.. 

  - Original Message - 
  From: Jill Z 
  To: LadyOwl 
  Sent: Tuesday, September 15, 2009 6:43 AM
  Subject: Re: [TMIC] weird sensations


Kathy,
How are you now?  
Jill in Chicago

--- On Mon, 9/14/09, LadyOwl  wrote:


  From: LadyOwl 
  Subject: [TMIC] weird sensations
  To: tmic-list@eskimo.com
  Date: Monday, September 14, 2009, 8:53 AM


  Hi all.. 
  Haven't written in much but as of yesterday I have been very scared 
and nervous because of a weird sensation I have been getting.. I was on Face 
Book (my usual haunt) between 2 and 3 pm when my body began to vibrate. I was 
shaking from head to toe. Not a big shake but a very small one that even my 
husband could see from a few feet away. It felt almo

RE: [TMIC] ANOTHER SHOCKING WARNING ABOUT SWINE FLU VACCINE

[Patricia Cooley]

Janice I saw my neuro last week and he said the same thing.  He admitted
that he has NEVER had any kind of flu shot and will not have any now.  He
mentioned that in the middle 70's when we had a big outbreak of flu, they
rushed a flu vaccine on the market and there were many, many cases of guinea
barre (sp) from the flu shots, with many needing a ventilator.  I do know
that with TM you are more prone to complications, so needless to say, I will
NOT be getting kind of flue shots.  I guess that is a decision we all have
to make with the advice from our doctor.

 

Patti - Wisconsin

 

From: Janice [mailto:jan...@centurytel.net] 
Sent: Monday, September 14, 2009 10:28 PM
To: roseofr...@aol.com; tmic-list@eskimo.com
Subject: Re: [TMIC] ANOTHER SHOCKING WARNING ABOUT SWINE FLU VACCINE

 

Just found out from my neuro today that he does not want me taking the swine
flu shot.

Janice

- Original Message - 

From: roseofr...@aol.com 

To: tmic-list@eskimo.com 

Sent: Monday, September 14, 2009 11:15 AM

Subject: [TMIC] ANOTHER SHOCKING WARNING ABOUT SWINE FLU VACCINE

 

Another Shocking Warning About Swine Flu Vaccine

 

http://articles.mercola.com/sites/articles/archive/2009/09/08/Another-Shocki
ng-Warning-About-Swine-Flu-Vaccine.aspx 

RE: [TMIC] Looking for TMr's for support groups

[Patricia Cooley]

Patti  - S.E. Wisconsin

 

From: Butcher, Bernie (S&FS) [mailto:bernie.butc...@honeywell.com] 
Sent: Tuesday, September 15, 2009 6:48 AM
To: Robert Pall; Janice; Jill Z; Catherine; Laura Beaudin
Cc: kevin weilacher; Transverse Mylitis Group
Subject: RE: [TMIC] Looking for TMr's for support groups

 

Barney - LI, NY

 

  _  

From: Robert Pall [mailto:rp...@neillsupply.com] 
Sent: Tuesday, September 15, 2009 7:44 AM
To: Janice; Jill Z; Catherine; Laura Beaudin
Cc: kevin weilacher; Transverse Mylitis Group
Subject: RE: [TMIC] Looking for TMr's for support groups

 

Rob-Marlboro New Jersey

 

  _  

From: Janice [mailto:jan...@centurytel.net] 
Sent: Monday, September 14, 2009 11:20 PM
To: Jill Z; Catherine; Laura Beaudin
Cc: kevin weilacher; Transverse Mylitis Group
Subject: Re: [TMIC] Looking for TMr's for support groups

Janice  -  Columbia, Missouri

- Original Message - 

From: Jill Z   

To: Catherine   ; Laura
  Beaudin 

Cc: kevin weilacher   ; Transverse
  Mylitis Group 

Sent: Sunday, September 13, 2009 9:54 PM

Subject: Re: [TMIC] Looking for TMr's for support groups

 


Jill From Chicago

--- On Sun, 9/13/09, Laura Beaudin  wrote:


From: Laura Beaudin 
Subject: Re: [TMIC] Looking for TMr's for support groups
To: "Catherine" 
Cc: "kevin weilacher" , "Transverse Mylitis Group"

Date: Sunday, September 13, 2009, 8:29 PM

...and I'm Laura from Edmonton, Alberta. :)

On Sun, Sep 13, 2009 at 7:25 PM, Catherine  wrote:
> Kevin,
>
> That is a wonderful idea.  Why don't we all just say where we are from ..
as
> I have seen here.  Several support groups may start.  Thank you for a
great
> idea
>
> So I will start...
>
> Catherine, caretaker   Central Mass.
>

 

RE: [TMIC] Looking for TMr's for support groups

Barney - LI, NY

 



From: Robert Pall [mailto:rp...@neillsupply.com] 
Sent: Tuesday, September 15, 2009 7:44 AM
To: Janice; Jill Z; Catherine; Laura Beaudin
Cc: kevin weilacher; Transverse Mylitis Group
Subject: RE: [TMIC] Looking for TMr's for support groups

 

Rob-Marlboro New Jersey

 



From: Janice [mailto:jan...@centurytel.net] 
Sent: Monday, September 14, 2009 11:20 PM
To: Jill Z; Catherine; Laura Beaudin
Cc: kevin weilacher; Transverse Mylitis Group
Subject: Re: [TMIC] Looking for TMr's for support groups

Janice  -  Columbia, Missouri

- Original Message - 

From: Jill Z   

To: Catherine   ; Laura Beaudin
  

Cc: kevin weilacher   ; Transverse
Mylitis Group   

Sent: Sunday, September 13, 2009 9:54 PM

Subject: Re: [TMIC] Looking for TMr's for support groups

 

Jill From Chicago

--- On Sun, 9/13/09, Laura Beaudin  wrote:


From: Laura Beaudin 
Subject: Re: [TMIC] Looking for TMr's for support groups
To: "Catherine" 
Cc: "kevin weilacher" , "Transverse Mylitis Group"

Date: Sunday, September 13, 2009, 8:29 PM

...and I'm Laura from Edmonton, Alberta. :)

On Sun, Sep 13, 2009 at 7:25 PM, Catherine  wrote:
> Kevin,
>
> That is a wonderful idea.  Why don't we all just say where we are from
.. as
> I have seen here.  Several support groups may start.  Thank you for a
great
> idea
>
> So I will start...
>
> Catherine, caretaker   Central Mass.
>

 

RE: [TMIC] Looking for TMr's for support groups

[Robert Pall]

Rob-Marlboro New Jersey



From: Janice [mailto:jan...@centurytel.net] 
Sent: Monday, September 14, 2009 11:20 PM
To: Jill Z; Catherine; Laura Beaudin
Cc: kevin weilacher; Transverse Mylitis Group
Subject: Re: [TMIC] Looking for TMr's for support groups


Janice  -  Columbia, Missouri

- Original Message - 
From: Jill Z   
To: Catherine   ; Laura Beaudin
  
Cc: kevin weilacher   ; Transverse
Mylitis Group   
Sent: Sunday, September 13, 2009 9:54 PM
Subject: Re: [TMIC] Looking for TMr's for support groups

Jill From Chicago

--- On Sun, 9/13/09, Laura Beaudin  wrote:



From: Laura Beaudin 
Subject: Re: [TMIC] Looking for TMr's for support groups
To: "Catherine" 
Cc: "kevin weilacher" , "Transverse Mylitis
Group" 
Date: Sunday, September 13, 2009, 8:29 PM


...and I'm Laura from Edmonton, Alberta. :)

On Sun, Sep 13, 2009 at 7:25 PM, Catherine 
wrote:
> Kevin,
>
> That is a wonderful idea.  Why don't we all just say where we
are from .. as
> I have seen here.  Several support groups may start.  Thank
you for a great
> idea
>
> So I will start...
>
> Catherine, caretaker   Central Mass.
>