Re: [TMIC] To: Barbara in Auburn, CA
Thanks, Roger.That helps several of us. I am not familiar with your name - are you new to this website? Always glad to see new names. Janice, Missouri From: Roger Pratt Sent: Tuesday, March 09, 2010 8:37 PM To: tmic Subject: Re: [TMIC] To: Barbara in Auburn, CA Barbara, The way my doctor explained it to me is that the MRI shows the lesion while it is inflamed and that later MRIs don't show it because the swelling is gone and scar tissue has replaced where the myelin was damaged and does not necessarily show up. The damage is still there, thus the TM diagnosis still remains. With most TM there is only the swelling once, but the effects remain. - Roger in Kennewick, WA - Original Message - From: Regina Rummel To: undisclosed recipients: Sent: Tuesday, March 09, 2010 8:58 AM Subject: [TMIC] To: Barbara in Auburn, CA Hi Barbara, I reread your answer to Randy with interest. You were told you had TM and then that you didn't. But what puzzles me is that your neuros tell you that "the lesion isn't there anymore". That must mean that you had it in the first place, doesn't it? Lesions in the spine from my understanding don't disappear, so what happened to it? It's a "puzzlement", isn't it? To me anyway. Incidentally, I now use the Bcc line as Bobby Jim advises us to do. Bobby, why is it a good idea? R
Re: [TMIC] To: Barbara in Auburn, CA
Barbara, The way my doctor explained it to me is that the MRI shows the lesion while it is inflamed and that later MRIs don't show it because the swelling is gone and scar tissue has replaced where the myelin was damaged and does not necessarily show up. The damage is still there, thus the TM diagnosis still remains. With most TM there is only the swelling once, but the effects remain. - Roger in Kennewick, WA - Original Message - From: Regina Rummel To: undisclosed recipients: Sent: Tuesday, March 09, 2010 8:58 AM Subject: [TMIC] To: Barbara in Auburn, CA Hi Barbara, I reread your answer to Randy with interest. You were told you had TM and then that you didn't. But what puzzles me is that your neuros tell you that "the lesion isn't there anymore". That must mean that you had it in the first place, doesn't it? Lesions in the spine from my understanding don't disappear, so what happened to it? It's a "puzzlement", isn't it? To me anyway. Incidentally, I now use the Bcc line as Bobby Jim advises us to do. Bobby, why is it a good idea? R
Re: [TMIC] To: Barbara in Auburn, CA
As I unnerstand, the inflammation subsides so the lesion seems to heal. What is not replaced is the myelin that covers the damaged nerves, ergo the persistence of symptoms and maladies. BobbyJim in Elvisland From: Barbara Alma To: tmic-list@eskimo.com Sent: Tuesday, March 09, 2010 15:15 Subject: Fwd: [TMIC] To: Barbara in Auburn, CA Hi Regina, I wish that I had some wisdom to share with you, but I really don't know what happens, unless that in some way, the lesion may just heal. The damage sure remains though, I can attest to that much. Hugs, Barbara A in Auburn CA -Original Message- From: Regina Rummel To: undisclosed recipients: ; Sent: Tue, Mar 9, 2010 8:58 am Subject: [TMIC] To: Barbara in Auburn, CA Hi Barbara, I reread your answer to Randy with interest. You were told you had TM and then that you didn't. But what puzzles me is that your neuros tell you that "the lesion isn't there anymore". That must mean that you had it in the first place, doesn't it? Lesions in the spine from my understanding don't disappear, so what happened to it? It's a "puzzlement", isn't it? To me anyway. Incidentally, I now use the Bcc line as Bobby Jim advises us to do. Bobby, why is it a good idea? R
Re: [TMIC] re OT my Mom..update
Hospitals are hellacious--- noisy and intrusive. For me it stank and was nauseating and frightening. I feel for anyone who is in one. Can you change the air? Can you bring her something living--- a plant some green? Does she like flowers? Are they offering her food she likes? I remember BEGGING for real fruit and fresh vegetables and a decent cup of coffee. I had unlit incense by my bed to mediate the smell ( from the roommate) Does she get any sunlight--- I remember sticking my fingers in sunlight, being HUNGRY for sunlight. Is she read to? Does she read? So many things heal that are not drugs. --
Re: [TMIC] To: Barbara in Auburn, CA
Never heard of that. But, we know the myelin does not grow back. The inflamation is to be gone after the doc's take you off Prednisone.I was told, at that point, that the attack of TM was gone from my body and it was just a matter of recovering and regaining strength (hopefully). I thought the lesions were always in the spine, but maybe they do heal but not to any advantage to the body. I think we need to hear from FranK - are you out there and willing to jump in and help us? Janice From: rn11...@yahoo.com Sent: Tuesday, March 09, 2010 1:43 PM To: Regina Rummel Cc: tmic-list@eskimo.com Subject: Re: [TMIC] To: Barbara in Auburn, CA Hi, I got tm on 8/13/95.An mri showed a "lesion" T4-T5. When I had another mri a year later the "lesion" was gone. Where did it go? Beats me. I never thought to ask the doc about it;does anyone out there know? Cheryl Easthampton,MA. --- On Tue, 3/9/10, Regina Rummel wrote: From: Regina Rummel Subject: [TMIC] To: Barbara in Auburn, CA To: Date: Tuesday, March 9, 2010, 11:58 AM Hi Barbara, I reread your answer to Randy with interest. You were told you had TM and then that you didn't. But what puzzles me is that your neuros tell you that "the lesion isn't there anymore". That must mean that you had it in the first place, doesn't it? Lesions in the spine from my understanding don't disappear, so what happened to it? It's a "puzzlement", isn't it? To me anyway. Incidentally, I now use the Bcc line as Bobby Jim advises us to do. Bobby, why is it a good idea? R
Re: Fwd: [TMIC] To: Barbara in Auburn, CA
Barb, Did you feel any improvement at all at the time the lesion may have healed? Any changes? Janice From: Barbara Alma Sent: Tuesday, March 09, 2010 3:15 PM To: tmic-list@eskimo.com Subject: Fwd: [TMIC] To: Barbara in Auburn, CA Hi Regina, I wish that I had some wisdom to share with you, but I really don't know what happens, unless that in some way, the lesion may just heal. The damage sure remains though, I can attest to that much. Hugs, Barbara A in Auburn CA -Original Message- From: Regina Rummel To: undisclosed recipients: ; Sent: Tue, Mar 9, 2010 8:58 am Subject: [TMIC] To: Barbara in Auburn, CA Hi Barbara, I reread your answer to Randy with interest. You were told you had TM and then that you didn't. But what puzzles me is that your neuros tell you that "the lesion isn't there anymore". That must mean that you had it in the first place, doesn't it? Lesions in the spine from my understanding don't disappear, so what happened to it? It's a "puzzlement", isn't it? To me anyway. Incidentally, I now use the Bcc line as Bobby Jim advises us to do. Bobby, why is it a good idea? R
Re: [TMIC] TM and Me
Well, we are really happy to have a new member - except for the fact that you have TM to get here! Tell us your story of your attack of TM and how you are doing, if you don't mind. We have all done the same and know each other's stories. It seems that we all have many similarities and yet we are all left at different levels with TM. Please do not be shy about jumping in with any of the topics that come up.We all are just honest in our opinions and as you will be told over and over, "there is nothing that has not been discussed or asked in this group". We are very open and probably have many of the same problems that you do. Anyway, we are really glad you found us and we hope we can help in some way. It will help take away some of the "isolation" feelings that many of us had in having such a rare disease. Hope to hear from you. Janice, from Missouri From: j ra Sent: Tuesday, March 09, 2010 2:44 PM To: tmic-list@eskimo.com Subject: [TMIC] TM and Me I'm so glad to have found this site. I was diagnosed with TM in October 2008. My battle continues. Jeron o'Hara Rampersad Hotmail: Trusted email with Microsoft’s powerful SPAM protection. Sign up now.
Fwd: [TMIC] To: Barbara in Auburn, CA
Hi Regina, I wish that I had some wisdom to share with you, but I really don't know what happens, unless that in some way, the lesion may just heal. The damage sure remains though, I can attest to that much. Hugs, Barbara A in Auburn CA -Original Message- From: Regina Rummel To: undisclosed recipients: ; Sent: Tue, Mar 9, 2010 8:58 am Subject: [TMIC] To: Barbara in Auburn, CA Hi Barbara, I reread your answer to Randy with interest. You were told you had TM and then that you didn't. But what puzzles me is that your neuros tell you that "the lesion isn't there anymore". That must mean that you had it in the first place, doesn't it? Lesions in the spine from my understanding don't disappear, so what happened to it? It's a "puzzlement", isn't it? To me anyway. Incidentally, I now use the Bcc line as Bobby Jim advises us to do. Bobby, why is it a good idea? R I wish that I had some wisdom to share with you, but I really don't know what happens, unless that in some way, the lesion may just heal. The damage sure remains though, I can attest to that much. Hugs, Barbara A in Auburn CA -Original Message- From: Regina Rummel To: undisclosed recipients: ; Sent: Tue, Mar 9, 2010 8:58 am Subject: [TMIC] To: Barbara in Auburn, CA Hi Barbara, I reread your answer to Randy with interest. You were told you had TM and then that you didn't. But what puzzles me is that your neuros tell you that "the lesion isn't there anymore". That must mean that you had it in the first place, doesn't it? Lesions in the spine from my understanding don't disappear, so what happened to it? It's a "puzzlement", isn't it? To me anyway. Incidentally, I now use the Bcc line as Bobby Jim advises us to do. Bobby, why is it a good idea? R
[TMIC] TM and Me
I'm so glad to have found this site. I was diagnosed with TM in October 2008. My battle continues. Jeron o'Hara Rampersad _ Hotmail: Trusted email with Microsoft’s powerful SPAM protection. https://signup.live.com/signup.aspx?id=60969
Re: [TMIC] To: Barbara in Auburn, CA
Hi, I got tm on 8/13/95.An mri showed a "lesion" T4-T5. When I had another mri a year later the "lesion" was gone. Where did it go? Beats me. I never thought to ask the doc about it;does anyone out there know? Cheryl Easthampton,MA. --- On Tue, 3/9/10, Regina Rummel wrote: From: Regina Rummel Subject: [TMIC] To: Barbara in Auburn, CA To: Date: Tuesday, March 9, 2010, 11:58 AM Hi Barbara, I reread your answer to Randy with interest. You were told you had TM and then that you didn't. But what puzzles me is that your neuros tell you that "the lesion isn't there anymore". That must mean that you had it in the first place, doesn't it? Lesions in the spine from my understanding don't disappear, so what happened to it? It's a "puzzlement", isn't it? To me anyway. Incidentally, I now use the Bcc line as Bobby Jim advises us to do. Bobby, why is it a good idea? R
[TMIC] To: Barbara in Auburn, CA
Hi Barbara, I reread your answer to Randy with interest. You were told you had TM and then that you didn't. But what puzzles me is that your neuros tell you that "the lesion isn't there anymore". That must mean that you had it in the first place, doesn't it? Lesions in the spine from my understanding don't disappear, so what happened to it? It's a "puzzlement", isn't it? To me anyway. Incidentally, I now use the Bcc line as Bobby Jim advises us to do. Bobby, why is it a good idea? R
