Re: [TMIC] anyone live in te Vegas area

[Janice Nichols]

Tammy, welcome.This group has people all over the US and many other 
countries.Doesn't matter - it is like living next door with this website.   
I am from
Missouri.   Don't know of others who may live near you.Hope there is.
Janice



From: Tammy Wilber 
Sent: Wednesday, August 11, 2010 6:42 PM
To: lynne myers 
Cc: tmic 
Subject: Re: [TMIC] anyone live in te Vegas area 


I just moved to Vegas and was wondering of anyone in this list serve lives in 
the area. I don't know to many people


Thank you,


Tammy Wilber
Rehab Liaison
National Seating & Mobility
Cell: 206-714-1253
Website: www.nsm-seating.com
Email:
twil...@nsm-seating.com



On Aug 11, 2010, at 2:52 PM, lynne myers  wrote:


The MagCitrate is also great for digestion.

--- On Wed, 8/11/10, randy rankin  wrote:


  From: randy rankin 
  Subject: Re: [TMIC] arghhh!!!
  To: "Janet Dunn" , "john snodgrass" 
, "transverse myelitis" 
  Date: Wednesday, August 11, 2010, 11:37 AM


  Baclofen was a big turning point for me - didn't know about MgCitrate 
- got to check that out 




--
  From: Janet Dunn 
  To: randy rankin ; john snodgrass 
; transverse myelitis 
  Sent: Wed, August 11, 2010 2:44:06 AM
  Subject: RE: [TMIC] arghhh!!!


  Hey John, Randy, 



  I’ve been there too.  Besides Percodan and Baclofen, I also use a 
good healthy dose of Magnesium Citrate.  About 400 – 500 mgs – it is a natural 
muscle relaxant.  And it helps with the sleep issue.



  Gotta love TM.  Gotta.  NOT!



  Janet



  From: randy rankin [mailto:rj_ran...@yahoo.com] 
  Sent: August 10, 2010 9:48 PM
  To: john snodgrass; transverse myelitis
  Subject: Re: [TMIC] arghhh!!!



  Hey John, been there - understand what you're going through. I'm not 
sure what will work for you. mix of meds and p.t. (eventhough my first neuro 
said p.t. wouldn't do any good) made a big difference but it took several years 
of constant determination. 




--

  From: john snodgrass 
  To: transverse myelitis 
  Sent: Tue, August 10, 2010 11:13:59 PM
  Subject: [TMIC] arghhh!!!

bed at 8 up at 10 spasm city!

more pain meds.

now just burning legs.

gotta be up at 4.

slept 2.5 hours last night.

whats this?

getting sleepy.

good.
   






   

Re: [TMIC] arghhh!!!!!!!

[Janice Nichols]

Knowing that each of us is not alone is worth everything. I don't have much 
faith that our afflictions will change, but with taking newer and better drugs 
and exercising our
bodies as much as we can, I feel at least we are doing the best we can.   We 
need to stick together and help give out any drug information that we find 
works - even
home remedies - if they work.  I am not in a good place right now - body is 
relapsing and getting weaker, so maybe I am grasping at whatever is out there.  
  So glad
I am a part of this group.
Janice

From: john snodgrass 
Sent: Wednesday, August 11, 2010 5:01 PM
To: lynne myers 
Cc: transverse myelitis 
Subject: Re: [TMIC] arghhh!!!


  i guess theres a slim chance that some of us will have healing to our 
nerves,my neuro said that they have been known in some cases to just heal 
spontainiously over timeslim chance but a chance yet.

  my mind keeps thinking things will change.

  im sure they will, i just have to be prepaired for good or bad.

  after all it's me and Im the only one who can deal with my own thoughts.

  it is good to be in this company of people because it helps me to have 
thoughts that i otherwise would not have in the encouragments and knowing i am 
not alone.

  --- On Wed, 8/11/10, lynne myers  wrote:


From: lynne myers 
Subject: Re: [TMIC] arghhh!!!
To: "tmic" 
Date: Wednesday, August 11, 2010, 5:52 PM


  The MagCitrate is also great for digestion.

  --- On Wed, 8/11/10, randy rankin  wrote:


From: randy rankin 
Subject: Re: [TMIC] arghhh!!!
To: "Janet Dunn" , "john snodgrass" 
, "transverse myelitis" 
Date: Wednesday, August 11, 2010, 11:37 AM


Baclofen was a big turning point for me - didn't know about 
MgCitrate - got to check that out 





From: Janet Dunn 
To: randy rankin ; john snodgrass 
; transverse myelitis 
Sent: Wed, August 11, 2010 2:44:06 AM
Subject: RE: [TMIC] arghhh!!!


Hey John, Randy, 



I’ve been there too.  Besides Percodan and Baclofen, I also use 
a good healthy dose of Magnesium Citrate.  About 400 – 500 mgs – it is a 
natural muscle relaxant.  And it helps with the sleep issue.



Gotta love TM.  Gotta.  NOT!

 

Janet 

 

From: randy rankin [mailto:rj_ran...@yahoo.com] 
Sent: August 10, 2010 9:48 PM
To: john snodgrass; transverse myelitis
Subject: Re: [TMIC] arghhh!!!

 

Hey John, been there - understand what you're going through. 
I'm not sure what will work for you. mix of meds and p.t. (eventhough my first 
neuro said p.t. wouldn't do any good) made a big difference but it took several 
years of constant determination. 






From: john snodgrass 
To: transverse myelitis 
Sent: Tue, August 10, 2010 11:13:59 PM
Subject: [TMIC] arghhh!!!

  bed at 8 up at 10 spasm city!

  more pain meds.

  now just burning legs.

  gotta be up at 4.

  slept 2.5 hours last night.

  whats this?

  getting sleepy.

  good. 
 

 

 


 

 

Re: [TMIC] RE: tmic-digest Digest V2010 #364

[john snodgrass]

very well put.

just another real life experience.

one of my family Dr's told me to research things and if i find anything that we 
haven't tried to tell her and she would do anything that I wanted to that we 
might find relief.

she is one of 4 family Dr's that i have other than the neurologist and of 
course my sis-n-law RN.

I appreciate your vent because it is about the same story all over the world.

I pray that you/we find things that make even a small difference. 

you know the precept:"man born of woman is of a few days and full of trouble."

I pat you on the back and say do what you can as hard as you can when you can 
and rest when you have to.

I'll send ya a bill for my expert medical opinion..


oopsI oue you still for yours!

rest my friend
--- On Wed, 8/11/10, Rev. Craig Crossman  wrote:

From: Rev. Craig Crossman 
Subject: [TMIC] RE: tmic-digest Digest V2010 #364
To: tmic-list@eskimo.com
Date: Wednesday, August 11, 2010, 8:32 PM




 
 






John, 

    Welcome
to the club of “pharmaceutical non-responders.” 

    I
take 12-16 50mg doses of Tramadol and 6-8 hydrocodone daily, and I might as
well be taking either aspirin or sugar pills. And the only thing that helps me
sleep at all (albeit only 2-3 hours/night) are 6-8 Tylenol PM’s each
night. 

    And
yes, I am aware I am probably damaging my liver. I have tried taking just the
sleep aid diphenhydramine HCl 25mg in the same number. It just does not work
for me. 

    Going
to clinic in the morning. I can no longer walk at all without my cane, and even
then I am very unsteady. I cannot close my hands in order to grasp things. And
my lips and other parts of my face have numbness. Of course I really expect my
PCP to say “H, well, I just don’t know. Let’s run a
lot of unnecessary tests that won’t prove a darn thing but at least it
makes me feel like I’m doing something.” Of course, at the only
clinic we have in town all you can see is a nurse practitioner, not a
physician. For a doctor you have to travel 2-3.5 hours. Nothing against NP’s;
but since most doctors don’t know anything about TM, I find NP’s
and PA’s even less likely to have any positive solutions. 

    OK,
nuf ranting for one day. 

Craig 

   



From:
tmic-digest-requ...@eskimo.com [mailto:tmic-digest-requ...@eskimo.com] 

Sent: Wednesday, August 11, 2010 4:57 PM

To: tmic-dig...@eskimo.com

Subject: tmic-digest Digest V2010 #364 



   

   



 




  

[TMIC] RE: tmic-digest Digest V2010 #364

[Rev. Craig Crossman]

John,

Welcome to the club of "pharmaceutical non-responders."

I take 12-16 50mg doses of Tramadol and 6-8 hydrocodone daily,
and I might as well be taking either aspirin or sugar pills. And the only
thing that helps me sleep at all (albeit only 2-3 hours/night) are 6-8
Tylenol PM's each night.

And yes, I am aware I am probably damaging my liver. I have
tried taking just the sleep aid diphenhydramine HCl 25mg in the same number.
It just does not work for me.

Going to clinic in the morning. I can no longer walk at all
without my cane, and even then I am very unsteady. I cannot close my hands
in order to grasp things. And my lips and other parts of my face have
numbness. Of course I really expect my PCP to say "H, well, I just
don't know. Let's run a lot of unnecessary tests that won't prove a darn
thing but at least it makes me feel like I'm doing something." Of course, at
the only clinic we have in town all you can see is a nurse practitioner, not
a physician. For a doctor you have to travel 2-3.5 hours. Nothing against
NP's; but since most doctors don't know anything about TM, I find NP's and
PA's even less likely to have any positive solutions.

OK, nuf ranting for one day.

Craig

 

From: tmic-digest-requ...@eskimo.com [mailto:tmic-digest-requ...@eskimo.com]

Sent: Wednesday, August 11, 2010 4:57 PM
To: tmic-dig...@eskimo.com
Subject: tmic-digest Digest V2010 #364

 

 

Re: [TMIC] anyone live in te Vegas area

[Tammy Wilber]

I just moved to Vegas and was wondering of anyone in this list serve lives in 
the area. I don't know to many people

Thank you,

Tammy Wilber
Rehab Liaison
National Seating & Mobility
Cell: 206-714-1253
Website: www.nsm-seating.com
Email:
twil...@nsm-seating.com


On Aug 11, 2010, at 2:52 PM, lynne myers  wrote:

The MagCitrate is also great for digestion.

--- On Wed, 8/11/10, randy rankin  wrote:

From: randy rankin 
Subject: Re: [TMIC] arghhh!!!
To: "Janet Dunn" , "john snodgrass" , 
"transverse myelitis" 
Date: Wednesday, August 11, 2010, 11:37 AM

Baclofen was a big turning point for me - didn't know about MgCitrate - got to 
check that out 

From: Janet Dunn 
To: randy rankin ; john snodgrass ; 
transverse myelitis 
Sent: Wed, August 11, 2010 2:44:06 AM
Subject: RE: [TMIC] arghhh!!!

Hey John, Randy,
 
I’ve been there too.  Besides Percodan and Baclofen, I also use a good healthy 
dose of Magnesium Citrate.  About 400 – 500 mgs – it is a natural muscle 
relaxant.  And it helps with the sleep issue.
 
Gotta love TM.  Gotta.  NOT!
 
Janet
 
From: randy rankin [mailto:rj_ran...@yahoo.com] 
Sent: August 10, 2010 9:48 PM
To: john snodgrass; transverse myelitis
Subject: Re: [TMIC] arghhh!!!
 
Hey John, been there - understand what you're going through. I'm not sure what 
will work for you. mix of meds and p.t. (eventhough my first neuro said p.t. 
wouldn't do any good) made a big difference but it took several years of 
constant determination.
 
From: john snodgrass 
To: transverse myelitis 
Sent: Tue, August 10, 2010 11:13:59 PM
Subject: [TMIC] arghhh!!!

bed at 8 up at 10 spasm city!

more pain meds.

now just burning legs.

gotta be up at 4.

slept 2.5 hours last night.

whats this?

getting sleepy.

good.
 
 





  

[TMIC] HEAL!

[Akua]

 theres a slim chance that some of us will have healing to our 
nerves,my neuro said that they have been known in some cases to just 
heal spontainiously over timeslim chance but a chance yet.



it's what i pray for.
--

Re: [TMIC] arghhh!!!!!!!

[john snodgrass]

taking 20 mg of baclofin 4 times a day.
 
perhaps i need more

--- On Wed, 8/11/10, randy rankin  wrote:


From: randy rankin 
Subject: Re: [TMIC] arghhh!!!
To: "Janet Dunn" , "john snodgrass" , 
"transverse myelitis" 
Date: Wednesday, August 11, 2010, 11:37 AM






Baclofen was a big turning point for me - didn't know about MgCitrate - got to 
check that out 





From: Janet Dunn 
To: randy rankin ; john snodgrass ; 
transverse myelitis 
Sent: Wed, August 11, 2010 2:44:06 AM
Subject: RE: [TMIC] arghhh!!!







Hey John, Randy, 
 
I’ve been there too.  Besides Percodan and Baclofen, I also use a good healthy 
dose of Magnesium Citrate.  About 400 – 500 mgs – it is a natural muscle 
relaxant.  And it helps with the sleep issue.
 
Gotta love TM.  Gotta.  NOT!
 
Janet
 


From: randy rankin [mailto:rj_ran...@yahoo.com] 
Sent: August 10, 2010 9:48 PM
To: john snodgrass; transverse myelitis
Subject: Re: [TMIC] arghhh!!!
 


Hey John, been there - understand what you're going through. I'm not sure what 
will work for you. mix of meds and p.t. (eventhough my first neuro said p.t. 
wouldn't do any good) made a big difference but it took several years of 
constant determination. 

 




From: john snodgrass 
To: transverse myelitis 
Sent: Tue, August 10, 2010 11:13:59 PM
Subject: [TMIC] arghhh!!!




bed at 8 up at 10 spasm city!

more pain meds.

now just burning legs.

gotta be up at 4.

slept 2.5 hours last night.

whats this?

getting sleepy.

good.
 
 



  

Re: [TMIC] Gunny

[kevin weilacher]

I have personally toured the Funding Factory facilitythe place is 
amazing..and the sheer volume of ink cartridges that flow through there is way 
more than I would have thought in my wildest dreams.

It's a cool place and the folks that I spoke with were very professional
It just so happens that Funding Factory is in my home town and also, my cousin 
works there so when I get back there to visit my mom I can stop by and get a 
tour when ever I want to...







From: Akua 
To: tmic-list@eskimo.com
Sent: Wed, August 11, 2010 6:22:48 PM
Subject: Re: [TMIC] Gunny

 Re: [TMIC] Gunny 
Hi Craig, try the link below to go to the TMA site for the laser cartridges.
   http://recycle.myelitis.org/
It explains all you need to know to recycle and benifit the TMA.
Cindy McLeroy
>
>DRat! They don't accept epson!


-- 



  

Re: [TMIC] Gunny

[Akua]

Hi Craig, try the link below to go to the TMA site for the laser cartridges.
   http://recycle.myelitis.org/
It explains all you need to know to recycle and benifit the TMA.
Cindy McLeroy

DRat! They don't accept epson!



--

Re: [TMIC] arghhh!!!!!!!

[john snodgrass]

i guess theres a slim chance that some of us will have healing to our nerves,my 
neuro said that they have been known in some cases to just heal spontainiously 
over timeslim chance but a chance yet.
 
my mind keeps thinking things will change.
 
im sure they will, i just have to be prepaired for good or bad.
 
after all it's me and Im the only one who can deal with my own thoughts.
 
it is good to be in this company of people because it helps me to have thoughts 
that i otherwise would not have in the encouragments and knowing i am not alone.

--- On Wed, 8/11/10, lynne myers  wrote:


From: lynne myers 
Subject: Re: [TMIC] arghhh!!!
To: "tmic" 
Date: Wednesday, August 11, 2010, 5:52 PM






The MagCitrate is also great for digestion.

--- On Wed, 8/11/10, randy rankin  wrote:


From: randy rankin 
Subject: Re: [TMIC] arghhh!!!
To: "Janet Dunn" , "john snodgrass" , 
"transverse myelitis" 
Date: Wednesday, August 11, 2010, 11:37 AM






Baclofen was a big turning point for me - didn't know about MgCitrate - got to 
check that out 





From: Janet Dunn 
To: randy rankin ; john snodgrass ; 
transverse myelitis 
Sent: Wed, August 11, 2010 2:44:06 AM
Subject: RE: [TMIC] arghhh!!!







Hey John, Randy, 
 
I’ve been there too.  Besides Percodan and Baclofen, I also use a good healthy 
dose of Magnesium Citrate.  About 400 – 500 mgs – it is a natural muscle 
relaxant.  And it helps with the sleep issue.
 
Gotta love TM.  Gotta.  NOT!
 
Janet
 


From: randy rankin [mailto:rj_ran...@yahoo.com] 
Sent: August 10, 2010 9:48 PM
To: john snodgrass; transverse myelitis
Subject: Re: [TMIC] arghhh!!!
 


Hey John, been there - understand what you're going through. I'm not sure what 
will work for you. mix of meds and p.t. (eventhough my first neuro said p.t. 
wouldn't do any good) made a big difference but it took several years of 
constant determination. 

 




From: john snodgrass 
To: transverse myelitis 
Sent: Tue, August 10, 2010 11:13:59 PM
Subject: [TMIC] arghhh!!!




bed at 8 up at 10 spasm city!

more pain meds.

now just burning legs.

gotta be up at 4.

slept 2.5 hours last night.

whats this?

getting sleepy.

good.
 
 




  

Re: [TMIC] pause from the cause

[lynne myers]

Yes have tried it, it is one of the many meds that I react to.  Am having 
surgery on my wrist on Sept. 15 and after lenghlty discussions with doctors and 
anesthesiology am going to be recovering with only regular tylenol for pain.  
Not looking forward to it at all.

--- On Tue, 8/10/10, Akua  wrote:

From: Akua 
Subject: Re: [TMIC] pause from the cause
To: "lynne myers" 
Date: Tuesday, August 10, 2010, 5:58 PM


Re: [TMIC] pause from the
causeHave you tried naltrexone  low dose naltrexone helps me a
lot!
I gave up pain meds while in the hospital because days
disappeared
and wrestled with great pain until i found LDN.




Cheryl,

I understand what you are saying about the pain.  I am also
unable to take any pain medication, so have just been trying to learn
to live with it, which is more successful some days than others.

Lynne

--- On Sat, 8/7/10, Janice Nichols
 wrote:



From: Janice Nichols 

Subject: Re: [TMIC] pause from the cause

To: rn11...@yahoo.com

Cc: tmic-list@eskimo.com

Date: Saturday, August 7, 2010, 7:19 PM


Seems like there should be something you can
do.    Hope this is short lived.
Janice


From: rn11...@yahoo.com
Sent: Friday, August 06, 2010 8:52 PM
To: Janice Nichols
Cc: tmic-list@eskimo.com
Subject: Re: [TMIC] pause from the
cause





-- 
 
 



  

Re: [TMIC] arghhh!!!!!!!

[john snodgrass]

after 2 and a half years of this I wish i had some of this info 2 years ago.
 
good points here and gonna test and research with it all.
 
after all if we dont help each other we arent going to get any help evidently.
 
thanks to all.
 
keep em coming!

--- On Wed, 8/11/10, lynne myers  wrote:


From: lynne myers 
Subject: Re: [TMIC] arghhh!!!
To: "tmic" 
Date: Wednesday, August 11, 2010, 5:52 PM






The MagCitrate is also great for digestion.

--- On Wed, 8/11/10, randy rankin  wrote:


From: randy rankin 
Subject: Re: [TMIC] arghhh!!!
To: "Janet Dunn" , "john snodgrass" , 
"transverse myelitis" 
Date: Wednesday, August 11, 2010, 11:37 AM






Baclofen was a big turning point for me - didn't know about MgCitrate - got to 
check that out 





From: Janet Dunn 
To: randy rankin ; john snodgrass ; 
transverse myelitis 
Sent: Wed, August 11, 2010 2:44:06 AM
Subject: RE: [TMIC] arghhh!!!







Hey John, Randy, 
 
I’ve been there too.  Besides Percodan and Baclofen, I also use a good healthy 
dose of Magnesium Citrate.  About 400 – 500 mgs – it is a natural muscle 
relaxant.  And it helps with the sleep issue.
 
Gotta love TM.  Gotta.  NOT!
 
Janet
 


From: randy rankin [mailto:rj_ran...@yahoo.com] 
Sent: August 10, 2010 9:48 PM
To: john snodgrass; transverse myelitis
Subject: Re: [TMIC] arghhh!!!
 


Hey John, been there - understand what you're going through. I'm not sure what 
will work for you. mix of meds and p.t. (eventhough my first neuro said p.t. 
wouldn't do any good) made a big difference but it took several years of 
constant determination. 

 




From: john snodgrass 
To: transverse myelitis 
Sent: Tue, August 10, 2010 11:13:59 PM
Subject: [TMIC] arghhh!!!




bed at 8 up at 10 spasm city!

more pain meds.

now just burning legs.

gotta be up at 4.

slept 2.5 hours last night.

whats this?

getting sleepy.

good.
 
 




  

RE: [TMIC] arghhh!!!!!!!

[john snodgrass]

thanks for the info.
 
will bring this med stuff up to my Dr. i take neuronton and baclofin and 
hydrocodone and another nerve pill one more cant hurt.
 I have heard some say that one neuronton knocks them out. i reckon my bio 
makeup or the pain itself makes the difference for me. i take this stuff 4 
times a day and as far as feeling giddy from drugs its like i am not taking 
anything, but I can function when i otherwise could not.
 
and I'll buy some muscle rub.
 
first i heard of that for the burning legs but it makes sense.
 
John

P.S.
 

Brasil?
 
cool!
 
glad to meet you.
 
that's not in Kentucky is it   ;)
 
 
 
--- On Wed, 8/11/10, j ra  wrote:


From: j ra 
Subject: RE: [TMIC] arghhh!!!
To: jcs...@yahoo.com, "Transverse Myelytis" 
Date: Wednesday, August 11, 2010, 1:22 PM




I for one can't blame my lack of sleep on TM. I had Insomnia for 14 years now. 
I take sleeping pills everynight or else I get just around 15 to 20 minutes 
sleep, no more. I use a drug called Doxylamine Succinate 50 mg for my sleeping 
problems (it's highly restricted here in Brasil, but my doctors get them for me 
and bring them to my house). It doesn't provide any sort of pain relief 
ofcourse, but with my neurontin and tandrilax it works well to keep me out for 
the night. The burning legs situation is different for everyone I'm sure, but I 
use bengay ultra or A535 for that. Give those a try, they really aren't too bad.
Regards,
Jeron



Date: Tue, 10 Aug 2010 20:13:59 -0700
From: jcs...@yahoo.com
To: tmic-list@eskimo.com
Subject: [TMIC] arghhh!!!





bed at 8 up at 10 spasm city!

more pain meds.

now just burning legs.

gotta be up at 4.

slept 2.5 hours last night.

whats this?

getting sleepy.

good.




  

Re: [TMIC] arghhh!!!!!!!

[lynne myers]

The MagCitrate is also great for digestion.

--- On Wed, 8/11/10, randy rankin  wrote:

From: randy rankin 
Subject: Re: [TMIC] arghhh!!!
To: "Janet Dunn" , "john snodgrass" , 
"transverse myelitis" 
Date: Wednesday, August 11, 2010, 11:37 AM

Baclofen was a big turning point for me - didn't know about MgCitrate - got to 
check that out 





From: Janet Dunn 
To: randy rankin ; john snodgrass ; 
transverse myelitis 
Sent: Wed, August 11, 2010 2:44:06 AM
Subject: RE: [TMIC] arghhh!!!







Hey John, Randy, 
 
I’ve been there too.  Besides Percodan and Baclofen, I also use a good healthy 
dose of Magnesium Citrate.  About 400 – 500 mgs – it is a natural muscle 
relaxant.  And it helps with the sleep issue.
 
Gotta love TM.  Gotta.  NOT!
 
Janet
 


From: randy rankin [mailto:rj_ran...@yahoo.com] 
Sent: August 10, 2010 9:48 PM
To: john snodgrass; transverse myelitis
Subject: Re: [TMIC] arghhh!!!
 


Hey John, been there - understand what you're going through. I'm not sure what 
will work for you. mix of meds and p.t. (eventhough my first neuro said p.t. 
wouldn't do any good) made a big difference but it took several years of 
constant determination. 

 




From: john snodgrass 
To: transverse myelitis 
Sent: Tue, August 10, 2010 11:13:59 PM
Subject: [TMIC] arghhh!!!




bed at 8 up at 10 spasm city!

more pain meds.

now just burning legs.

gotta be up at 4.

slept 2.5 hours last night.

whats this?

getting sleepy.

good.
 
 


  


  

Fw: [TMIC] Gunny

[Cindy McLeroy]

- Original Message - 
From: Cindy McLeroy 
To: Rev. Craig Crossman ; tmic-list@eskimo.com 
Sent: Wednesday, August 11, 2010 12:54 PM
Subject: Re: [TMIC] Gunny


Hi Craig, try the link below to go to the TMA site for the laser cartridges.
   http://recycle.myelitis.org/
It explains all you need to know to recycle and benifit the TMA.
Cindy McLeroy
  - Original Message - 
  From: Rev. Craig Crossman 
  To: tmic-list@eskimo.com 
  Sent: Wednesday, August 11, 2010 8:32 AM
  Subject: [TMIC] Gunny


  Gunny,

  I misplaced the address for the laser cartridges.

   

  Rev. Craig Crossman

  First Baptist Church

  615 W. Webster St.

  Colby, KS 67701

  W - (785)462-2867/ Cell - (785)443-5154

  revcross...@gmail.com

  www.firstbaptistcolby.org

   

[TMIC] Turning Change into Money

[Akua]

Last  weekend I worked on turning change into money. It is irksome 
that people do not treat change as money. I had  tried to convince my 
aide, who had gotten static from the big grocery store's cashiers,
that it was ridiculous to duck her head and be apologetic about 
presenting REAL Money.


Was she apologetic when presenting other clients' food stamps? No she 
said because

it was a plastic card that is slid through.

Well, i countered, in a time of unemployment and uncertainty, she was 
not to take any guff
for giving them hard cash. If they had a problem, have them call me. 
This is still legal tender in the U.S.


Dear Gerry,  your wondrous plastic holders made it more  palatable 
for her  to present the change.
Though (sigh) despite the fact that i wrote down how much each roll 
held and how much it added up to, i still spent an inordinate amount 
of  time explaining and reexplaining.  35 x 5= 1.75 and

10 of them is $17.50.  but progress was made!

Thank you so much Gerry  as  thus far I've bundled up about $100 
worth of change --- nearly two
week's groceries, which has eased my economic constriction a bit. I 
treated myself to  organic cocoa, a quart of goat's milk and a 
container of hummus.  These little plastic  things are 
wonderful!!!


Thank you for hearing my cry of frustration and need and answering 
it. Bless you!

Akua


--

Re: [TMIC] Gunny

[Cindy McLeroy]

Hi Craig, try the link below to go to the TMA site for the laser cartridges.
   http://recycle.myelitis.org/
It explains all you need to know to recycle and benifit the TMA.
Cindy McLeroy
  - Original Message - 
  From: Rev. Craig Crossman 
  To: tmic-list@eskimo.com 
  Sent: Wednesday, August 11, 2010 8:32 AM
  Subject: [TMIC] Gunny


  Gunny,

  I misplaced the address for the laser cartridges.

   

  Rev. Craig Crossman

  First Baptist Church

  615 W. Webster St.

  Colby, KS 67701

  W - (785)462-2867/ Cell - (785)443-5154

  revcross...@gmail.com

  www.firstbaptistcolby.org

   

RE: [TMIC] arghhh!!!!!!!

[j ra]

I for one can't blame my lack of sleep on TM. I had Insomnia for 14 years now. 
I take sleeping pills everynight or else I get just around 15 to 20 minutes 
sleep, no more. I use a drug called Doxylamine Succinate 50 mg for my sleeping 
problems (it's highly restricted here in Brasil, but my doctors get them for me 
and bring them to my house). It doesn't provide any sort of pain relief 
ofcourse, but with my neurontin and tandrilax it works well to keep me out for 
the night. The burning legs situation is different for everyone I'm sure, but I 
use bengay ultra or A535 for that. Give those a try, they really aren't too bad.
Regards,
Jeron

Date: Tue, 10 Aug 2010 20:13:59 -0700
From: jcs...@yahoo.com
To: tmic-list@eskimo.com
Subject: [TMIC] arghhh!!!

bed at 8 up at 10 spasm city!

more pain meds.

now just burning legs.

gotta be up at 4.

slept 2.5 hours last night.

whats this?

getting sleepy.

good.

  

[TMIC] RE: tmic-digest Digest V2010 #361

[Gerry Surette]

been there ; still there although taking 300 mg of quinne-odan helps somewhat. 
i wake up with my toes curled upwards. the pain is awesome. I then rub a535 on 
my feet and the pain subsides and my toes become normal. I am usually up for an 
hour or so I can get into bed. that is repeated about 4 or 5 times during the 
night  haven't had a full 6 to 8 hours sleep straight  about 6 years. p.s you 
should see my collection of books I have.
 


Date: Wed, 11 Aug 2010 08:32:38 -0700
From: tmic-digest-requ...@eskimo.com
Subject: tmic-digest Digest V2010 #361
To: tmic-dig...@eskimo.com



--Forwarded Message Attachment--

tmic-digest Digest  Volume 2010 : Issue 361
 
Today's Topics:
  Re: [TMIC] Fact Sheet on TM   [ CANDIS KALLEY  ]
  Re: [TMIC] August Birthdays   [ "L T CHERPESKI"  ]
  Re: [TMIC] arghhh!!!  [ randy rankin  ]
  RE: [TMIC] arghhh!!!  [ "Janet Dunn"  ]


--Forwarded Message Attachment--
Date: Tue, 10 Aug 2010 07:53:34 -0400
From: cakal...@embarqmail.com
To: TMIC-LIST@eskimo.com
Subject: Re: [TMIC] Fact Sheet on TM





Todd, I have my info on an Excel spreadsheet.  I then did a sort on med column 
then dr. column which then put all the med names in alpha order by the doctor.  
Then each dr. can see at a glance who is prescribing what.

 


Life is short! Break the rules! Forgive quickly! Kiss slowly! 
Love truly, Laugh uncontrollably . 
And never regret anything that made you smile.


Prayers and thoughts for you and yours,

Candy K.

- Original Message -
From: "Todd Tarno" 
To: "CANDIS KALLEY" 
Sent: Monday, August 9, 2010 4:04:08 PM GMT -05:00 US/Canada Eastern
Subject: Re: [TMIC] Fact Sheet on TM







Thanks Candy,
This is a wonderful ideal, since I do have more than one doctor.
You just had to ADD another column to my medication list. LOL
Thanks for the info.
Todd

--- On Sat, 8/7/10, CANDIS KALLEY  wrote:


From: CANDIS KALLEY 
Subject: Re: [TMIC] Fact Sheet on TM
To: "Todd Tarno" 
Date: Saturday, August 7, 2010, 4:08 PM





I also have a column of which dr. prescribed the med.

Life is short! Break the rules! Forgive quickly! Kiss slowly! 
Love truly, Laugh uncontrollably . 
And never regret anything that made you smile.


Prayers and thoughts for you and yours,

Candy K.

- Original Message -
From: "Todd Tarno" 
To: "TMIC" 
Sent: Saturday, August 7, 2010 2:50:05 PM GMT -05:00 US/Canada Eastern
Subject: Re: [TMIC] Fact Sheet on TM






My medication speadsheet has the following:
 
Medication, Date Started, Dose, Times of Day w/time of the day M, D, & N ( 
Morning, Dinner & Night), Type of Med.
 
I believe this will cover everthing. lol
Todd in CC, TX

--- On Sat, 8/7/10, CANDIS KALLEY  wrote:


From: CANDIS KALLEY 
Subject: Re: [TMIC] Fact Sheet on TM
To: "tmic-list" 
Date: Saturday, August 7, 2010, 10:40 AM






Patti, you may also want to make a sheet on all the meds you are on.  Also, the 
vitamins and supplements that you may be taking.
 
I keep an Excel spreadsheet so that I can change dosages and add or delete meds 
as needed.  I also list the dates of start/end, plus the Dr. info.
 
This is much easier as I have found that on every visit, the questionaire asks 
for "current" meds.  This way, I print the list before the visit and just say 
"See attached".  Much Much easier!
 
Candy K.


- Original Message -
From: "Patricia Cooley" 
To: "Rev. Craig Crossman" , tmic-list@eskimo.com
Sent: Saturday, August 7, 2010 11:22:15 AM GMT -05:00 US/Canada Eastern
Subject: RE: [TMIC] Fact Sheet on TM





THANKS SO MUCH FOR THIS INFO.  SINCE I MOVED SEVERAL MONTHS AGO, I WILL NEED TO 
CONNECT WITH A NEW PCP, NEUROLOGIST, AND UROLOGIST VERY SOON.  SINCE THIS IS A 
SMALL TOWN, I WAS AFRAID THEY WOULD NOT BE AWARE OF TM.  I PRINTED IT OFF AND 
WILL BE SURE TO TAKE WITH ME AT MY FIRST APPOINTMENT.
 

THANKS AGAIN. 




PATTI - WISCONSIN 





From: Rev. Craig Crossman [mailto:revcross...@gmail.com] 
Sent: Friday, August 06, 2010 3:08 PM
To: tmic-list@eskimo.com
Subject: [TMIC] Fact Sheet on TM




Many of you have probably already read this Fact Sheet. I find it helpful to 
give any physician or PA or NP that is my primary care provider since 90% of 
them have no idea what TM is, and it seems many don’t want to take the time to 
find out about it as well. What is even more aggravating is that my new 
neurologist (the only one within three hours travel) has no experience with it 
either. So she’ll get a copy as well. 

http://www.ninds.nih.gov/disorders/transversemyelitis 



Rev. Craig Crossman 

First Baptist Church 

615 W. Webster St. 

Colby, KS 67701 

W - (785)462-2867/ Cell - (785)443-5154 

revcross...@gmail.com 

www.firstbaptistcolby.org 







--Forwarded Message Attachment--
Date: Tue, 10 Aug 2010 20:13:59 -0700
From: jcs...@yahoo.com
To: tmic-list@eskimo.com
Subject: [TMIC] arghhh!!!





bed at 8 up at 10 spasm city!

more pain meds.

now just burning legs.

gotta be up at 4.

slep

Re: [TMIC] arghhh!!!!!!!

[randy rankin]

Baclofen was a big turning point for me - didn't know about MgCitrate - got to 
check that out 






From: Janet Dunn 
To: randy rankin ; john snodgrass ; 
transverse myelitis 
Sent: Wed, August 11, 2010 2:44:06 AM
Subject: RE: [TMIC] arghhh!!!


Hey John, Randy, 
 
I’ve been there too.  Besides Percodan and Baclofen, I also use a good healthy 
dose of Magnesium Citrate.  About 400 – 500 mgs – it is a natural muscle 
relaxant.  And it helps with the sleep issue.
 
Gotta love TM.  Gotta.  NOT!
 
Janet
 
From:randy rankin [mailto:rj_ran...@yahoo.com] 
Sent: August 10, 2010 9:48 PM
To: john snodgrass; transverse myelitis
Subject: Re: [TMIC] arghhh!!!
 
Hey John, been there - understand what you're going through. I'm not sure what 
will work for you. mix of meds and p.t. (eventhough my first neuro said p.t. 
wouldn't do any good) made a big difference but it took several years of 
constant determination. 

 



From:john snodgrass 
To: transverse myelitis 
Sent: Tue, August 10, 2010 11:13:59 PM
Subject: [TMIC] arghhh!!!
bed at 8 up at 10 spasm city!

more pain meds.

now just burning legs.

gotta be up at 4.

slept 2.5 hours last night.

whats this?

getting sleepy.

good. 


  

[TMIC] Gunny

[Rev. Craig Crossman]

Gunny,

I misplaced the address for the laser cartridges.

 

Rev. Craig Crossman

First Baptist Church

615 W. Webster St.

Colby, KS 67701

W - (785)462-2867/ Cell - (785)443-5154

revcross...@gmail.com

www.firstbaptistcolby.org