RE: [TMIC] question - knee replacement

[Patricia Cooley]

I AM SO GLAD FOR YOU.  A LITLE SQUEEK IS A GOOD EXCHANGE FOR ALL THE PAIN
AND LACK OF MOBIIITY YOU HAD BEFORE.  I KNOW MY HUSBAND'S DOUBLE KNEE
REPLAEMENT IN 2006 WAS THE BEST THING HE COULD HAVE DONE.  KEEP UP THE GOOD
WORK AND LET US NOW HOW YOU CONTINUE TO DO.

 

PATTI - WISCONSIN

 

From: Maggie [mailto:magiema...@hotmail.com] 
Sent: Monday, January 10, 2011 2:00 PM
To: balmat...@aol.com; patticoole...@gmail.com; rp...@neillsupply.com;
tmic-list@eskimo.com
Subject: RE: [TMIC] question - knee replacement

 

I know this is a very late reply, but for what it is worth . . .
 
I had a partial knee replacement - Avon - on my right knee on March 26,
2009.  It was the best thing I did!  
 
I had severe arthritis and bone on bone.  So at 47 years of age, my doctor
suggested the Avon partial replacement.
 
Before my surgery I was very limited to what I could do.  I was to minimize
the amount of walking and avoid stairs.  The only exercise I was permitted
was swimming and golf if I took a cart.  I was in constant pain.
 
When I woke from surgery, my knee ached.  But within a few hours after the
surgery, I literally had no pain at all.  The nurses would not believe me so
I had to lie and tell them that my pain level was around 3 on a scale of 1
to 10.  That seemed to make them happy and they would leave me alone and not
try to force pain meds on me.
 
My surgery was at 1:00 PM on Thursday and I spent the day in bed.  On friday
morning, they removed my catheter and I used the walker twice, once to get
to washroom to wash up and the second time to actually use the washroom.
After that I was on crutches.
 
Because of the 14 surgeries I had on my right knee prior to the partial
replacement, I had a great deal of scar tissue which hampered my mobility.
I relied on my crutches for 10 weeks and then went to a cane for almost 4
weeks.
 
I have full mobility and aside from a "squeek" I have absolutely no pain. 
 
Best thing I ever did.
 
Margaret
 

  _  

To: patticoole...@gmail.com; rp...@neillsupply.com; tmic-list@eskimo.com
Subject: Re: [TMIC] question - knee replacement
From: balmat...@aol.com
Date: Wed, 8 Dec 2010 18:16:19 -0500

Hi Patti,

 

I'm not sure if he is right or wrong, but my physical therapist told me that
I probably have hypersensitivity.  I am not sure if that had anything to do
with the pain issue, but I don't think so.  I think it's due to the fact
that I don't walk well and that I wouldn't be able to do the rehab as well
or in the same manner as somebody who is walking much better.  I know that
they keep you comfortable with pain meds, but I went through plenty with my
shoulder, needing to put pressure on it just to be able to ambulate about a
little.  I still needed to get back and forth to the bathroom, on and off a
toilet, etc and that's just the minimum.  

Wow, it seems like a double replacement is rather common.  Although I cannot
imagine doing 2 at once, it may be nice if you need to do them. to get the
pain and rehab over with all at once.  And.then on with your life!

 

Hugs, Barbara A in Auburn CA

 

-Original Message-
From: Patricia Cooley 
To: 'Barbara Alma' ; RPall ;
tmic-list 
Sent: Wed, Dec 8, 2010 7:04 am
Subject: RE: [TMIC] question

Barbara my husband had double knee replacement in 2006.  Whatever pain he
had must not have been too bad as he didn't complain.  I think the one thing
that made it easier for him is doing your pre-surgery exercised to
strengthen leg muscles.  A month before surgery he a given a 3-ring binder
with all the excises listed.  He did them faithfully all day so his body was
ready for the demand surgery would put on his legs.  In fact, he only went
to P.T. for about 3-4 weeks, as they said they couldn't do any more for him
and Medicare wouldn't pay for it any more.  He was driving again in less
than 4 weeks.  Of course, he didn't have any other health problems, which
might make a big difference.

 

Good luck with whatever you decide to do.

 

Patti - Wisconsin

 

From: Barbara Alma [mailto:balmat...@aol.com  ] 
Sent: Wednesday, December 08, 2010 2:04 AM
To: rp...@neillsupply.com; tmic-list@eskimo.com
Subject: Re: [TMIC] question

 

Hi Rob,

 

After having trouble with what I thought was my leg due to 2 DVT's and poor
circulation, I found out that 

I am not totally bone on bone yet, but there is a lot of arthritis, which
means I could get the replacement.  I'm only 59, so figure if I can put it
off for awhile, I will.  As much as I walk, I'll probably never wear it out.


 

I was actually on schedule for a knee replacement last year when I asked to
see a physical therapist in order to best improve the strength in my body so
I could get through the rehab in the best way possible.  The therapist told
me that the knee is no walk in the park.  It is extremely painful, after the
surgery, but especially the rehab.  I don't understand what you mean about
rehab differently.  From what I understand, and I really didn

RE: [TMIC] question - knee replacement

[Maggie]

I know this is a very late reply, but for what it is worth . . .
 
I had a partial knee replacement - Avon - on my right knee on March 26, 2009.  
It was the best thing I did!  
 
I had severe arthritis and bone on bone.  So at 47 years of age, my doctor 
suggested the Avon partial replacement.
 
Before my surgery I was very limited to what I could do.  I was to minimize the 
amount of walking and avoid stairs.  The only exercise I was permitted was 
swimming and golf if I took a cart.  I was in constant pain.
 
When I woke from surgery, my knee ached.  But within a few hours after the 
surgery, I literally had no pain at all.  The nurses would not believe me so I 
had to lie and tell them that my pain level was around 3 on a scale of 1 to 10. 
 That seemed to make them happy and they would leave me alone and not try to 
force pain meds on me.
 
My surgery was at 1:00 PM on Thursday and I spent the day in bed.  On friday 
morning, they removed my catheter and I used the walker twice, once to get to 
washroom to wash up and the second time to actually use the washroom.  After 
that I was on crutches.
 
Because of the 14 surgeries I had on my right knee prior to the partial 
replacement, I had a great deal of scar tissue which hampered my mobility.  I 
relied on my crutches for 10 weeks and then went to a cane for almost 4 weeks.
 
I have full mobility and aside from a "squeek" I have absolutely no pain. 
 
Best thing I ever did.
 
Margaret
 


To: patticoole...@gmail.com; rp...@neillsupply.com; tmic-list@eskimo.com
Subject: Re: [TMIC] question - knee replacement
From: balmat...@aol.com
Date: Wed, 8 Dec 2010 18:16:19 -0500


Hi Patti,
 
I'm not sure if he is right or wrong, but my physical therapist told me that I 
probably have hypersensitivity.  I am not sure if that had anything to do with 
the pain issue, but I don't think so.  I think it's due to the fact that I 
don't walk well and that I wouldn't be able to do the rehab as well or in the 
same manner as somebody who is walking much better.  I know that they keep you 
comfortable with pain meds, but I went through plenty with my shoulder, needing 
to put pressure on it just to be able to ambulate about a little.  I still 
needed to get back and forth to the bathroom, on and off a toilet, etc and 
that's just the minimum.  

Wow, it seems like a double replacement is rather common.  Although I cannot 
imagine doing 2 at once, it may be nice if you need to do them. to get the pain 
and rehab over with all at once.  And.then on with your life!
 
Hugs, Barbara A in Auburn CA


-Original Message-
From: Patricia Cooley 
To: 'Barbara Alma' ; RPall ; 
tmic-list 
Sent: Wed, Dec 8, 2010 7:04 am
Subject: RE: [TMIC] question






Barbara my husband had double knee replacement in 2006.  Whatever pain he had 
must not have been too bad as he didn’t complain.  I think the one thing that 
made it easier for him is doing your pre-surgery exercised to strengthen leg 
muscles.  A month before surgery he a given a 3-ring binder with all the 
excises listed.  He did them faithfully all day so his body was ready for the 
demand surgery would put on his legs.  In fact, he only went to P.T. for about 
3-4 weeks, as they said they couldn’t do any more for him and Medicare wouldn’t 
pay for it any more.  He was driving again in less than 4 weeks.  Of course, he 
didn’t have any other health problems, which might make a big difference.
 
Good luck with whatever you decide to do.
 
Patti - Wisconsin
 

From: Barbara Alma [mailto:balmat...@aol.com] 
Sent: Wednesday, December 08, 2010 2:04 AM
To: rp...@neillsupply.com; tmic-list@eskimo.com
Subject: Re: [TMIC] question
 

Hi Rob,

 

After having trouble with what I thought was my leg due to 2 DVT's and poor 
circulation, I found out that 

I am not totally bone on bone yet, but there is a lot of arthritis, which means 
I could get the replacement.  I'm only 59, so figure if I can put it off for 
awhile, I will.  As much as I walk, I'll probably never wear it out.  

 

I was actually on schedule for a knee replacement last year when I asked to see 
a physical therapist in order to best improve the strength in my body so I 
could get through the rehab in the best way possible.  The therapist told me 
that the knee is no walk in the park.  It is extremely painful, after the 
surgery, but especially the rehab.  I don't understand what you mean about 
rehab differently.  From what I understand, and I really didn't go into it all 
the way, you have exercises and walking.  He told me that a very painful part 
is straightening the knee, as it will want to be bent to be in less pain, but 
not good since you develop scar tissue very quickly and if not careful, you 
will not be able to straighten it fully.  I had a couple of visits and from the 
exercises that I was doing for my legs I no longer had the pain that I was 
having.  

 

At the time I also was having a lot of pain with my shoulder over for a year 
and a half at tha

[TMIC] Signing on again

[Patricia Cooley]

Hi Jude:

 

It has been brought to our attention that you may need to sign up again to
continue getting all our e-mails.  I am listing below step by step as to how
to do it.  Hopefully, Dave will be able to do it for you.  If you have a
problem, let me know.

 

1.Go to www.myelitis.org

2.   On the left side of the screen, click on "Support Groups"

3.   Scroll down to "Under E-Mail Group" and click on it

4.   Scroll down to "Transverse Myelitis Internet Group" and click on it

5.   Scroll down to "Subscribe to TMIC-LIST "

6.   Under that heading you will see send e-mail to
"tmic-list-requ...@eskimo.com and click on it.

7.   In the subject line type "Subscribe" type your e-mail address in
the body and then hit "send" and that should register you again.

 

I hope this works for you, if not let me know.

 

[TMIC] Jude

[Bernie]

Hey Folks,
I heard from Jude this morning, the letter is below.  It sounds 
like she needs try and become a TMIC member again.  Anyone who knows how 
to do this, (I forgot) please email Jude personally and David can help 
her set it up.  Thanks, we need Jude back on our list!

Peace,
Bernie
PS - I don't have Jim Lubins address either


Hi Bernie, my old and very dear friend,
 It has been so long since I have heard from you and part of it is my 
fault because I have lost my address book and don't know how to begin 
another.  I don't have addresses for anyone so if you would send me Jim 
Lubin or someone like that or ask them to contact me I wouldndeeply 
appreciate it.  I can't write to the List only answer those Email sent 
to me.  Thank you very much.  I hope this finds you well and feeling up 
to par.  I miss my cookies (smiley face) and so appreciated them.  I 
wish I could do something nice for you but all I have to offer you are 
my deepest feelings of true friendship and mutual comrades at arms in 
the battle with TM.
I have no address book so will only be able to write when you write me.  
Don't forget and get mad at me for not writing.  Plus my typing ability 
has gone to pot and I keep hoping it will come back with practice.  I 
love you Bernie Pelow.  Keep me up with the latest news like who broke 
their leg and things of that nature.

Your friend for many years now,
Jude
--
"Wakan Tanan Kici Un" - Lakota for "May the Great Spirit Walk With You."