[TMIC] Provigil

[akua]

Just saw a TV story on it the day before yesterday

http://abcnews.go.com/GMA/video/provigil-brian-drug-awake-focused-24-hours-16810963

I'm interested--- this heat has keep me exhausted!

RE: [TMIC] Re: Provigil for TM?

[Deb Monteleone]

Hey Dalton,

 

When I first went back to work under all the medications it was horrible.
Was falling asleep driving, had to pay 150% to any and all tasks and after
about two sentences talking with someone I would fade out.  Thought I would
not be able to work.

 

My support group mentioned Provigil so asked my Neurologist.  He wanted me
to try Nuvigil, some trouble with insurance but they said yes and that was
about 2 + years ago.

 

What a difference it made pretty much immediately.  Now I drive like my old
self, looking around, changing lanes and no drowsiness.  At work, oh my, I
could carry on conversations, mostly follow in meetings and be able to do
things like program macros using VB.  It was like day and night.  I do take
Klonopin and Cymbalta at night so it doesn't really affect my sleep.

 

I hope you will be able to try it.

 

Make it a great day,

Deb

 

From: Dalton Garis [mailto:malugss...@gmail.com] 
Sent: Thursday, July 19, 2012 10:32 AM
To: bobberino; Cindy McLeroy; Susan Kleinz; celr...@aol.com
Cc: tmic-l...@eskimo.net
Subject: [TMIC] Re: Provigil for TM?

 

Fellow sufferers;

 

Have any of you heard of Provigil?  Used for narcolepsy, it has found use by
MS patients to counter the extreme fatigue common with MS; and our situation
is often similar in some respects.

 

I get this fatigue, sometimes so bad that I stumble from lunch, slurring my
speech, and collapse on anything available and must be carried to a bed.

 

Would Provigil be useful??

 

Who has heard of this med?

 

Dalton H. Garis

Flushing, Queens

New York, USA

Mobile: 718-838-0437

Landline: 917-285-2047

Re: [TMIC] Re: Provigil for TM?

[Dalton Garis]

Thank you very much for these articles.

I have found a place online that sells 200mg pro vigil for around
$1.56/pill.  Any interest?  Because I have no insurance and am paying around
$6.00/day for my medications already (let's see how Keppra works to control
my seizures!).

Best,

DG

Dalton H. Garis
Flushing, Queens
New York, USA
Mobile: 718-838-0437
Landline: 917-285-2047

From:  Deborah Nord Capen 
Date:  Thursday, 19  January 2012 12:02 PM
To:  
Cc:  
Subject:  RE: [TMIC] Re: Provigil for TM?
Resent-From:  
Resent-Date:  Thu, 19 Jul 2012 09:07:36 -0700

Here are some informative articles about fatigue and TM, and the use of
Provigil.
 
http://www.myelitis.org/newsletters/j2/journal-2-10.htm
http://www.myelitis.org/newsletters/v5n1/newsletter5-1-02.htm
The above articles from the TMA Journals address fatigue issues for patients
with TM.  Provigil has been discussed at many of the previous symposia as
well.  
 
 
http://www.youtube.com/watch?v=M_wsNfjwsHk&feature=gv
The above link will take you to one of the videos during the 2004 Symposium
in which Dr. Schapiro discussed fatigue in TM.
 
Hope these help answer your questions.  Yes, Provigil has been proven to be
helpful in patients with TM experiencing extreme fatigue.
Debbie

From: Dalton Garis [mailto:malugss...@gmail.com]
Sent: Thursday, July 19, 2012 7:32 AM
To: bobberino; Cindy McLeroy; Susan Kleinz; celr...@aol.com
Cc: tmic-l...@eskimo.net
Subject: [TMIC] Re: Provigil for TM?
 

Fellow sufferers;

 

Have any of you heard of Provigil?  Used for narcolepsy, it has found use by
MS patients to counter the extreme fatigue common with MS; and our situation
is often similar in some respects.

 

I get this fatigue, sometimes so bad that I stumble from lunch, slurring my
speech, and collapse on anything available and must be carried to a bed.

 

Would Provigil be useful??

 

Who has heard of this med?

 

Dalton H. Garis

Flushing, Queens

New York, USA

Mobile: 718-838-0437

Landline: 917-285-2047

Re: [TMIC] Re: Provigil for TM?

[Linda Egli]

I  was dx with TM 2004 & used Provigil for extreme fatigue.  Took the med about 
6 months & it helped, but stopped because of bad side effects.  I could not 
sleep more than 2-3 hours a night because it kept me awake & it really made me 
foggy in thinking.  Nothing has really helped since.  Just try to pace myself, 
avoid going out in the heat, & some days just have to live in my recliner when 
fatigue is very bad.
Linda E.


 From: Dalton Garis 
To: bobberino ; Cindy McLeroy 
; Susan Kleinz ; celr...@aol.com 
Cc: tmic-l...@eskimo.net 
Sent: Thursday, July 19, 2012 9:32 AM
Subject: [TMIC] Re: Provigil for TM?
 

Fellow sufferers;

Have any of you heard of Provigil?  Used for narcolepsy, it has found use by MS 
patients to counter the extreme fatigue common with MS; and our situation is 
often similar in some respects.

I get this fatigue, sometimes so bad that I stumble from lunch, slurring my 
speech, and collapse on anything available and must be carried to a bed.

Would Provigil be useful??

Who has heard of this med?

Dalton H. Garis
Flushing, Queens
New York, USA
Mobile: 718-838-0437
Landline: 917-285-2047

Re: [TMIC] RE: Provigil for TM?

[Lori Biehler]

I have used provigil for 11 years, works great for TM.
Lori

-Original Message- 
From: rasbu...@roadrunner.com

Sent: Thursday, July 19, 2012 12:10 PM
To: john snodgrass ; transverse myelitis
Subject: Re: [TMIC] RE: Provigil for TM?

My neurologist prescribed for me after about a month and half after TM 
onset.  It did so help with the fatique and my head was so much more alert 
and clear.  I felt like I could take on the day! It wasn't something i had 
to take for a while to feel the effect and did not leave me jittery as 
caffeine would.

 john snodgrass  wrote:

thats that one that takes a while to get into your system isnt it?



From: "Harlow, Diane" 
To: Dalton Garis ; bobberino 
; Cindy McLeroy ; 
Susan Kleinz ; "celr...@aol.com" 

Cc: "tmic-l...@eskimo.net" 
Sent: Thursday, July 19, 2012 10:37 AM
Subject: [TMIC] RE: Provigil for TM?


Hi - I am new to the group. Diagnosed with TM in 2010 and struggle with 
extreme fatigue. I have used Provigil and Nuvigil for the last year. The 
medication gives me a better quality of life. I still have fatigue, but it 
does help me make it through the day. The only struggle I have had is with 
insurance. They are very hesitant to pay, because it is a very expensive 
medication. I finally got it approved, but it took a while.


Good luck



From: Dalton Garis [mailto:malugss...@gmail.com]
Sent: Thursday, July 19, 2012 9:32 AM
To: bobberino; Cindy McLeroy; Susan Kleinz; celr...@aol.com
Cc: tmic-l...@eskimo.net
Subject: [TMIC] Re: Provigil for TM?


Fellow sufferers;

Have any of you heard of Provigil?  Used for narcolepsy, it has found use by 
MS patients to counter the extreme fatigue common with MS; and our situation 
is often similar in some respects.


I get this fatigue, sometimes so bad that I stumble from lunch, slurring my 
speech, and collapse on anything available and must be carried to a bed.


Would Provigil be useful??

Who has heard of this med?

Dalton H. Garis
Flushing, Queens
New York, USA
Mobile: 718-838-0437
Landline: 917-285-2047
Confidentiality Warning: This e-mail contains information intended only for 
the use of the individual or entity named above. If the reader of this 
e-mail is not the intended recipient or the employee or agent responsible 
for delivering it to the intended recipient, any dissemination, publication 
or copying of this e-mail is strictly prohibited. The sender does not accept 
any responsibility for any loss, disruption or damage to your data or 
computer system that may occur while using data contained in, or transmitted 
with, this e-mail.If you have received this e-mail in error, please 
immediately notify us by return e-mail. Thank you.

Re: [TMIC] RE: Provigil for TM?

[rasbury1]

My neurologist prescribed for me after about a month and half after TM onset.  
It did so help with the fatique and my head was so much more alert and clear.  
I felt like I could take on the day! It wasn't something i had to take for a 
while to feel the effect and did not leave me jittery as caffeine would.  
 john snodgrass  wrote: 
> thats that one that takes a while to get into your system isnt it?


 From: "Harlow, Diane" 
To: Dalton Garis ; bobberino ; 
Cindy McLeroy ; Susan Kleinz ; 
"celr...@aol.com"  
Cc: "tmic-l...@eskimo.net"  
Sent: Thursday, July 19, 2012 10:37 AM
Subject: [TMIC] RE: Provigil for TM?
 

Hi - I am new to the group. Diagnosed with TM in 2010 and struggle with extreme 
fatigue. I have used Provigil and Nuvigil for the last year. The medication 
gives me a better quality of life. I still have fatigue, but it does help me 
make it through the day. The only struggle I have had is with insurance. They 
are very hesitant to pay, because it is a very expensive medication. I finally 
got it approved, but it took a while.
 
Good luck



 From: Dalton Garis [mailto:malugss...@gmail.com] 
Sent: Thursday, July 19, 2012 9:32 AM
To: bobberino; Cindy McLeroy; Susan Kleinz; celr...@aol.com
Cc: tmic-l...@eskimo.net
Subject: [TMIC] Re: Provigil for TM?


Fellow sufferers;

Have any of you heard of Provigil?  Used for narcolepsy, it has found use by MS 
patients to counter the extreme fatigue common with MS; and our situation is 
often similar in some respects.

I get this fatigue, sometimes so bad that I stumble from lunch, slurring my 
speech, and collapse on anything available and must be carried to a bed.

Would Provigil be useful??

Who has heard of this med?

Dalton H. Garis
Flushing, Queens
New York, USA
Mobile: 718-838-0437
Landline: 917-285-2047
Confidentiality Warning: This e-mail contains information intended only for the 
use of the individual or entity named above. If the reader of this e-mail is 
not the intended recipient or the employee or agent responsible for delivering 
it to the intended recipient, any dissemination, publication or copying of this 
e-mail is strictly prohibited. The sender does not accept any responsibility 
for any loss, disruption or damage to your data or computer system that may 
occur while using data contained in, or transmitted with, this e-mail.If you 
have received this e-mail in error, please immediately notify us by return 
e-mail. Thank you.

Re: [TMIC] RE: Provigil for TM?

[susan zieke]

I have used provigil in the past for sleepiness, I have sleep  apnea  
as well as TM, it worked okay for a while and then I couldn't tell. I  
use it occasionally if I need to drive more than 30 minutes. It is a  
CNS stimulant and I can't believe the press it is getting for non  
specified use. The drug companies are little different from the guy on  
the street selling speed and the ABC report makes it sound like such a  
great thinginstead of a drug they haven't studied much. Sue



On Jul 19, 2012, at 9:37 AM, Harlow, Diane wrote:

Hi - I am new to the group. Diagnosed with TM in 2010 and struggle  
with extreme fatigue. I have used Provigil and Nuvigil for the last  
year. The medication gives me a better quality of life. I still have  
fatigue, but it does help me make it through the day. The only  
struggle I have had is with insurance. They are very hesitant to  
pay, because it is a very expensive medication. I finally got it  
approved, but it took a while.


Good luck

From: Dalton Garis [mailto:malugss...@gmail.com]
Sent: Thursday, July 19, 2012 9:32 AM
To: bobberino; Cindy McLeroy; Susan Kleinz; celr...@aol.com
Cc: tmic-l...@eskimo.net
Subject: [TMIC] Re: Provigil for TM?

Fellow sufferers;

Have any of you heard of Provigil?  Used for narcolepsy, it has  
found use by MS patients to counter the extreme fatigue common with  
MS; and our situation is often similar in some respects.


I get this fatigue, sometimes so bad that I stumble from lunch,  
slurring my speech, and collapse on anything available and must be  
carried to a bed.


Would Provigil be useful??

Who has heard of this med?

Dalton H. Garis
Flushing, Queens
New York, USA
Mobile: 718-838-0437
Landline: 917-285-2047
Confidentiality Warning: This e-mail contains information intended  
only for the use of the individual or entity named above. If the  
reader of this e-mail is not the intended recipient or the employee  
or agent responsible for delivering it to the intended recipient,  
any dissemination, publication or copying of this e-mail is strictly  
prohibited. The sender does not accept any responsibility for any  
loss, disruption or damage to your data or computer system that may  
occur while using data contained in, or transmitted with, this e- 
mail.If you have received this e-mail in error, please immediately  
notify us by return e-mail. Thank you.

Re: [TMIC] RE: Provigil for TM?

[Janice Nichols]

Diane,
Glad you are a part of us now.   Looking forward to responses from  you. 
Maybe we can help each other!
Janice, TM 5 years


From: Harlow, Diane 
Sent: Thursday, July 19, 2012 9:37 AM
To: Dalton Garis ; bobberino ; Cindy McLeroy ; Susan Kleinz ; celr...@aol.com 
Cc: tmic-l...@eskimo.net 
Subject: [TMIC] RE: Provigil for TM?

Hi - I am new to the group. Diagnosed with TM in 2010 and struggle with extreme 
fatigue. I have used Provigil and Nuvigil for the last year. The medication 
gives me a better quality of life. I still have fatigue, but it does help me 
make it through the day. The only struggle I have had is with insurance. They 
are very hesitant to pay, because it is a very expensive medication. I finally 
got it approved, but it took a while.

Good luck



From: Dalton Garis [mailto:malugss...@gmail.com] 
Sent: Thursday, July 19, 2012 9:32 AM
To: bobberino; Cindy McLeroy; Susan Kleinz; celr...@aol.com
Cc: tmic-l...@eskimo.net
Subject: [TMIC] Re: Provigil for TM?


Fellow sufferers;

Have any of you heard of Provigil?  Used for narcolepsy, it has found use by MS 
patients to counter the extreme fatigue common with MS; and our situation is 
often similar in some respects.

I get this fatigue, sometimes so bad that I stumble from lunch, slurring my 
speech, and collapse on anything available and must be carried to a bed.

Would Provigil be useful??

Who has heard of this med?

Dalton H. Garis
Flushing, Queens
New York, USA
Mobile: 718-838-0437
Landline: 917-285-2047
Confidentiality Warning: This e-mail contains information intended only for the 
use of the individual or entity named above. If the reader of this e-mail is 
not the intended recipient or the employee or agent responsible for delivering 
it to the intended recipient, any dissemination, publication or copying of this 
e-mail is strictly prohibited. The sender does not accept any responsibility 
for any loss, disruption or damage to your data or computer system that may 
occur while using data contained in, or transmitted with, this e-mail.If you 
have received this e-mail in error, please immediately notify us by return 
e-mail. Thank you. 

RE: [TMIC] Re: Provigil for TM?

[Deborah Nord Capen]

Here are some informative articles about fatigue and TM, and the use of
Provigil.
 
http://www.myelitis.org/newsletters/j2/journal-2-10.htm 
http://www.myelitis.org/newsletters/v5n1/newsletter5-1-02.htm 
The above articles from the TMA Journals address fatigue issues for patients
with TM.  Provigil has been discussed at many of the previous symposia as
well.  
 
 
http://www.youtube.com/watch?v=M_wsNfjwsHk
 &feature=gv 
The above link will take you to one of the videos during the 2004 Symposium
in which Dr. Schapiro discussed fatigue in TM.
 
Hope these help answer your questions.  Yes, Provigil has been proven to be
helpful in patients with TM experiencing extreme fatigue.
Debbie
From: Dalton Garis [mailto:malugss...@gmail.com] 
Sent: Thursday, July 19, 2012 7:32 AM
To: bobberino; Cindy McLeroy; Susan Kleinz; celr...@aol.com
Cc: tmic-l...@eskimo.net
Subject: [TMIC] Re: Provigil for TM?
 
Fellow sufferers;
 
Have any of you heard of Provigil?  Used for narcolepsy, it has found use by
MS patients to counter the extreme fatigue common with MS; and our situation
is often similar in some respects.
 
I get this fatigue, sometimes so bad that I stumble from lunch, slurring my
speech, and collapse on anything available and must be carried to a bed.
 
Would Provigil be useful??
 
Who has heard of this med?
 
Dalton H. Garis
Flushing, Queens
New York, USA
Mobile: 718-838-0437
Landline: 917-285-2047

Re: [TMIC] Provigil

[john snodgrass]

i reckon medicine is personality driven.some take little,some take none,others 
take a boat load

function dictates.




 From: Regina Rummel 
To: tmic-list@eskimo.com 
Sent: Thursday, July 19, 2012 10:52 AM
Subject: [TMIC] Provigil
 

Provigil never worked for me. 

[TMIC] Provigil

[Regina Rummel]

Provigil never worked for me.

Re: [TMIC] RE: Provigil for TM?

[john snodgrass]

thats that one that takes a while to get into your system isnt it?


 From: "Harlow, Diane" 
To: Dalton Garis ; bobberino ; 
Cindy McLeroy ; Susan Kleinz ; 
"celr...@aol.com"  
Cc: "tmic-l...@eskimo.net"  
Sent: Thursday, July 19, 2012 10:37 AM
Subject: [TMIC] RE: Provigil for TM?
 

Hi - I am new to the group. Diagnosed with TM in 2010 and struggle with extreme 
fatigue. I have used Provigil and Nuvigil for the last year. The medication 
gives me a better quality of life. I still have fatigue, but it does help me 
make it through the day. The only struggle I have had is with insurance. They 
are very hesitant to pay, because it is a very expensive medication. I finally 
got it approved, but it took a while.
 
Good luck



 From: Dalton Garis [mailto:malugss...@gmail.com] 
Sent: Thursday, July 19, 2012 9:32 AM
To: bobberino; Cindy McLeroy; Susan Kleinz; celr...@aol.com
Cc: tmic-l...@eskimo.net
Subject: [TMIC] Re: Provigil for TM?


Fellow sufferers;

Have any of you heard of Provigil?  Used for narcolepsy, it has found use by MS 
patients to counter the extreme fatigue common with MS; and our situation is 
often similar in some respects.

I get this fatigue, sometimes so bad that I stumble from lunch, slurring my 
speech, and collapse on anything available and must be carried to a bed.

Would Provigil be useful??

Who has heard of this med?

Dalton H. Garis
Flushing, Queens
New York, USA
Mobile: 718-838-0437
Landline: 917-285-2047
Confidentiality Warning: This e-mail contains information intended only for the 
use of the individual or entity named above. If the reader of this e-mail is 
not the intended recipient or the employee or agent responsible for delivering 
it to the intended recipient, any dissemination, publication or copying of this 
e-mail is strictly prohibited. The sender does not accept any responsibility 
for any loss, disruption or damage to your data or computer system that may 
occur while using data contained in, or transmitted with, this e-mail.If you 
have received this e-mail in error, please immediately notify us by return 
e-mail. Thank you. 

Re: [TMIC] Re: Provigil for TM?

[john snodgrass]

i seen it on tv but haven't heard of any of our sort using it



 From: john snodgrass 
To: "tmic-l...@eskimo.net"  
Sent: Thursday, July 19, 2012 10:48 AM
Subject: Re: [TMIC] Re: Provigil for TM?
 





 From: Dalton Garis 
To: bobberino ; Cindy McLeroy 
; Susan Kleinz ; celr...@aol.com 
Cc: tmic-l...@eskimo.net 
Sent: Thursday, July 19, 2012 10:32 AM
Subject: [TMIC] Re: Provigil for TM?
 

Fellow sufferers;

Have any of you heard of Provigil?  Used for narcolepsy, it has found use by MS 
patients to counter the extreme fatigue common with MS; and our situation is 
often similar in some respects.

I get this fatigue, sometimes so bad that I stumble from lunch, slurring my 
speech, and collapse on anything available and must be carried to a bed.

Would Provigil be useful??

Who has heard of this med?

Dalton H. Garis
Flushing, Queens
New York, USA
Mobile: 718-838-0437
Landline: 917-285-2047

Re: [TMIC] Re: Provigil for TM?

[john snodgrass]

 From: Dalton Garis 
To: bobberino ; Cindy McLeroy 
; Susan Kleinz ; celr...@aol.com 
Cc: tmic-l...@eskimo.net 
Sent: Thursday, July 19, 2012 10:32 AM
Subject: [TMIC] Re: Provigil for TM?
 

Fellow sufferers;

Have any of you heard of Provigil?  Used for narcolepsy, it has found use by MS 
patients to counter the extreme fatigue common with MS; and our situation is 
often similar in some respects.

I get this fatigue, sometimes so bad that I stumble from lunch, slurring my 
speech, and collapse on anything available and must be carried to a bed.

Would Provigil be useful??

Who has heard of this med?

Dalton H. Garis
Flushing, Queens
New York, USA
Mobile: 718-838-0437
Landline: 917-285-2047

[TMIC] RE: Provigil for TM?

[Harlow, Diane]

Hi - I am new to the group. Diagnosed with TM in 2010 and struggle with extreme 
fatigue. I have used Provigil and Nuvigil for the last year. The medication 
gives me a better quality of life. I still have fatigue, but it does help me 
make it through the day. The only struggle I have had is with insurance. They 
are very hesitant to pay, because it is a very expensive medication. I finally 
got it approved, but it took a while.

Good luck


From: Dalton Garis [mailto:malugss...@gmail.com]
Sent: Thursday, July 19, 2012 9:32 AM
To: bobberino; Cindy McLeroy; Susan Kleinz; celr...@aol.com
Cc: tmic-l...@eskimo.net
Subject: [TMIC] Re: Provigil for TM?

Fellow sufferers;

Have any of you heard of Provigil?  Used for narcolepsy, it has found use by MS 
patients to counter the extreme fatigue common with MS; and our situation is 
often similar in some respects.

I get this fatigue, sometimes so bad that I stumble from lunch, slurring my 
speech, and collapse on anything available and must be carried to a bed.

Would Provigil be useful??

Who has heard of this med?

Dalton H. Garis
Flushing, Queens
New York, USA
Mobile: 718-838-0437
Landline: 917-285-2047
Confidentiality Warning: This e-mail contains information intended only for the 
use of the individual or entity named above. If the reader of this e-mail is 
not the intended recipient or the employee or agent responsible for delivering 
it to the intended recipient, any dissemination, publication or copying of this 
e-mail is strictly prohibited. The sender does not accept any responsibility 
for any loss, disruption or damage to your data or computer system that may 
occur while using data contained in, or transmitted with, this e-mail.If you 
have received this e-mail in error, please immediately notify us by return 
e-mail. Thank you.

[TMIC] Re: Provigil for TM?

[Dalton Garis]

Fellow sufferers;

Have any of you heard of Provigil?  Used for narcolepsy, it has found use by
MS patients to counter the extreme fatigue common with MS; and our situation
is often similar in some respects.

I get this fatigue, sometimes so bad that I stumble from lunch, slurring my
speech, and collapse on anything available and must be carried to a bed.

Would Provigil be useful??

Who has heard of this med?

Dalton H. Garis
Flushing, Queens
New York, USA
Mobile: 718-838-0437
Landline: 917-285-2047