Re: [TMIC] tmic-list group

[Barbara H.]

Sounds good. Will the messages at this address be archived somewhere or would 
that cost something? Every now and then I still search the archives for a 
previous conversation.

Barbara H.

Sent from my iPad

> On Aug 9, 2015, at 2:57 PM, Jim Lubin  wrote:
> 
> I started a new email listgroup on googlegroups if anyone wants to continue 
> the tmic-list. You can join at 
> 
> https://groups.google.com/d/forum/tmic-list
> 
> I think I will discontinue the tmic-list@eskimo.com before the next renewal 
> in 5 months.

Re: [TMIC] tmic-list group

[Barbara H.]

That makes sense to use a free service, especially with this one not being 
terribly active. 

Barbara H.

Sent from my iPad

> On Jul 5, 2015, at 2:48 AM, Jim Lubin  wrote:
> 
> wondering if it is worth continuing to pay for it. $42 every 6 months.
> everyone seems to have moved to other groups.
> 
> I might be able to move all the subscribed email addresses to another, free 
> system using google groups, but the address would change to 
> tmic-l...@myelitis.org.
> 
> 
>> On Sat, Jul 4, 2015 at 9:32 PM, Pat Voorheis  wrote:
>> Hi Jim,
>> There was a little bit of activity a few months ago between a few of us.  I 
>> am on Face Book also.  
>> It was good to see your name today, because I was thinking about you this 
>> morning. I'm glad TMIC was available 11 years ago when I was diagnosed with 
>> TM and thank you for its availability.  
>> 
>> Patti - Michigan
>> 
>> 
>> 
>>> On Jul 4, 2015, at 1:02 PM, Jim Lubin  wrote:
>>> 
>>> is anyone still using the tmic-list@eskimo.com?
> 

Re: [TMIC] tmic-list group

[Barbara H.]

Every now and then there's a few emails here but it's mostly quiet.

Barbara H.

Sent from my iPad

> On Jul 4, 2015, at 1:02 PM, Jim Lubin  wrote:
> 
> is anyone still using the tmic-list@eskimo.com?
> 

Re: [TMIC]

[Barbara H.]

I did see that he had passed away mentioned on a Facebook page a while
back. I was so sorry to hear of it. I do remember him participating here in
the past. I can only imagine what you are going through - it was hard to
lose my mother several years ago, but I think to lose a son or daughter
would be that much harder because we expect that they'll outlive us. I pray
for God's grace and comfort for you.

Psalm 119:76: "Let, I pray thee, thy merciful kindness be for my comfort,
according to thy word unto thy servant."

Barbara H.


On Wed, Mar 12, 2014 at 4:57 PM,  wrote:

> I just realized I had not seen much activity. I am not sure this is going
> to the group, I hope so. Some of you were probably friends with Dennis
> Rabalais. He passed away on Jan. 29, 2014. He had been sick for so many
> years, I know he is in a better place. But as a mother I surely do miss
> him. Today for no reason I have cried all day. I feel like my heart is
> broken and it is painful. I thank all of you that talked to Dennis for
> being his friend. I will try to keep an eye out for any of your post.
>
>
> Bless all of you,
> Rebecca Rabalais
>
>
>
>

Re: [TMIC] SSDI - Doc

[Barbara H.]

There used to be - I was poking around the site just now and couldn't find
it. A man named Roger (I can't remember his last name) who went by Doc on
here before he passed away made up a list of very specific tips for
applying.

There is a section on the forum for dealing with disability, and I found
this link there - not sure if it is Doc's but it looks helpful:
http://myelitis.org/resources/disabilityapp.htm

Something else that's odd - I don't see any link to the TMIC on the TMA web
site. There is a link for individual state support groups and the message
board, or forum, at myelitis.org/forum, but not this list.

Barbara H.


On Sat, Jan 4, 2014 at 4:22 PM, cindy mcleroy wrote:

>  Year's ago an attorney from Texas wrote a message on how to qualify for
> SSDI.  He gave the section of the SSDI rules that would allow many of us to
> qualify first time.  Does anyone remember the message and how I can find it
> again.
>
> Thanks,
> Cindy McLeroy
>
>

[TMIC] End of birthday lists

[Barbara H.]

Hello all,

Some of you may remember how the birthday lists started many years ago.
Someone found an online site that would send e-cards to others as a support
for a charity, so many of us sent in our names and birthdays so as to use
the site to raise funds for the TMA. Not surprisingly, the site died after
a while. A girl on the TMIC named Carrie and I had accumulated the birthday
names and lists, and after she left the list, I continued to send them out
once a month.

I've decided to stop doing so, for a number of reasons.

1) Not many people are here any more. Many are on Facebook and it is easy
to send birthday greetings there.

2) I don't think many (if any) people use the birthday list to send
individual greetings to anyone on it. (A few of you have faithfully sent
happy birthdays on TMIC to those celebrating each month as a whole, and I
have appreciated that.)

3) Since all mail that goes through the TMIC is archived online, I have
wondered if it is a problem to have lists of names and e-mails there, if
that increases anyone's spam content.

4) I have been sending out individual birthday greetings to everyone on the
list, and more and more of them are returned to me because the address is
no longer active.

5) For those who are no longer on the TMIC, I don't know if they welcome
the birthday greetings or if they don't want me to "bug" them any more.

So for all of those reasons, plus the amount of time involved, I have
decided to stop sending the birthday lists out each month. I've just
finished updating it with the latest information I have - if anyone else
wants to take it over, I'll be happy to send you the list.

I'm still here on the TMIC and plan to continue to be. I wish all of you a
very happy and healthy 2014.

Love,

Barbara H.

[TMIC] December Birthdays

[Barbara H.]

Happy birthday to those celebrating in December!

12-2 Meghan (bluemeg...@hotmail.com)

12/2 Ashlee Black (tracey.bl...@hnoins.com)

12/3  Janice (jannic...@gmail.com)

12-3 Wim from Holland (wim_from_holl...@hotmail.com)

12- 4 Jan Burgess (ja...@rogers.com)

12-7 Patti in Wisconsin (patticoole...@gmail.com)

12-8 Lori Malloy (jorlcummi...@earthlink.net)

12-15  Alton Ryder(a-ry...@comcast.net)

12-18 Rod Jenke (rktje...@chariot.com.au)

12/23 Roger Pratt (r.c.pr...@frontier.com)

12-25 Gilly (Also gillycl...@yahoo.com.au, and trinketgi...@gmail.com), (
mingalett...@activ8.net.au)

12-27 (subers...@msn.com)

12/31 Janet (j.d...@shaw.ca)

[TMIC] November Birthdays

[Barbara H.]

Happy Birthday to those born in November!

Please send any additions or corrections to tmic-list@eskimo.com

11-01 Ella (elbanks...@aol.com)

11-2 Jeff (jeffsmokeea...@yahoo.com)

11-03 Gina (gina1103c...@aol.com)

11-6 Margaret Monson (mag...@telus.net)

11-8 Diane (mon...@sympatico.ca)

11-12 Marie (chestnutr...@gtcom.net)

11/13  Kevin (wolft...@optonline.net)

11-17 Becky opi...@bellsouth.net

11/20 Cossy (cos...@yahoo.com)

11/22 Judy Hoops (heyjude48...@aol.com)

11-25 Gunny (bgunny7...@aol.com)

11-27 Jack McMillan at rebarj...@aol.com

11-30 Louise Flagg (fla...@webtv.net)

[TMIC] October Birthdays

[Barbara H.]

Happy Birthday to those celebrating in October!

Please send any additions or corrections to tmic-list@eskimo.com

10-3-97  Lauren Graham (grahamsn...@aol.com)

10/4 Neil McNeil (n...@hotmail.com)

10-7 Naomi (ladyno...@aol.com)

10/08 Rudy Aceves (race...@vengrp.com )

10/9 Assunta Rene (robert...@hotmail.it)

10/11  Lori B. (lbieh...@earthlink.net)

10-11  Kate  (nicwi...@cox.net)

10-12 Diana Gray (graymyfat...@aol.com)

10/14 Marieke Dufresne! (marieke...@hotmail.com)

10/14 Lanora (noni...@hotmail.com)

10/16 Sandy Parker (parkersw...@aol.com)

10/16 Linda Cherpeski (cherp...@msn.com)

10-21 Renee A. in CT (littlem...@aol.com)

10-21 Cody Kidwell (c...@austin.rr.com)

10/21 Candy K (cakal...@embarqmail.com)

10-23 Keith (leboo...@cfl.rr.com )

10-25 Debby Jones (ladybutl...@comcast.net)

10-26 Jim Lubin (jlu...@eskimo.com)

10-26 Bernie Pelow ((bpe...@austin.rr.com)

10/27 Robin (moldr3...@aol.com)

10/27 Krissy (ladykri...@comcast.net)

10-28 Netta Ganor (net...@isdn.net.il)

[TMIC] September Birthdays

[Barbara H.]

Happy Birthday to those born in September!

Please send any additions or corrections to tmic.l...@eskimo.com.

We also want to take a moment to remember Pam Montz, faithful list member
who passed away a few years ago. Her birthday was 9/9.

9/5 Mavis White (Errol's wife) (eamjwh...@bigpond.com )

09-06 Jake DeGrand (judidegra...@yahoo.com)

9-8 Mary Davidson (keebe...@aol.com)

9/8 Terry Parker (parkersw...@aol.com)* *

9/12  R. J. Rankin (rj_ran...@yahoo.com)

9-16  Mary Eden Cochran (coch6...@bellsouth.net)

9-17 Bill Wimberly- (*bwimbe...@bellsouth.net*)

09/20 Rob Pall (robthe...@aol.com)

9-23 Karen  (Mushroo) (mush...@juno.com)(*mushr...@hotmail.com*)

9-24  Suzi in Seattle *(ss1...@aol.com*)

9/26 Allen Rucker *a...@allenrucker.com*

9/30 Patti Enstrom (pge...@aol.com )

Re: [TMIC]

[Barbara H.]

I found out what the problem was with the link below - somehow the
quotation mark became part of the link and then went to the wrong place.
The right link is http://myelitis.org/tmic/index.html (may have to copy and
paste - I am not sure if it will make a direct link.


On Sun, Aug 18, 2013 at 1:21 PM, Janice Nichols  wrote:

>   I tried the “myelitis.org/tmic/index.html”. It did not work for
> me.Should I just stay with my
> original TMIC email address?
>
> Janice
>

Re: [TMIC]

[Barbara H.]

The TMIC email address is the same as it always has been. Only the web site 
address is changed, and that only affects people here if they are looking info 
up in the web site or looking through the archives. Nothing has changed in the 
day to day TMIC mailing system. 

Sent from my iPhone

On Aug 18, 2013, at 1:21 PM, "Janice Nichols"  wrote:

> I tried the “myelitis.org/tmic/index.html”. It did not work for me.
> Should I just stay with my
> original TMIC email address?   
>  
> Janice

Re: [TMIC] Testing

[Barbara H.]

Thanks all. I know the list gets quiet some times, but I wanted to see if
the web site's being down affected the list. I checked with Jim Lubin, and
he said that they had changed servers and hadn't had a chance to change all
the settings yet, but this link should work for the web site in the
meantime: http://myelitis.org/tmic/index.html

Barbara H.



On Sat, Aug 17, 2013 at 4:13 PM, Cindy McLeroy wrote:

> **
> I think it's the link that is not working, not the emails.  I can't get it
> either.  And I've poked around on the myelitis.org site and can't find it.
>
>
> - Original Message -
> *From:* margaret shearer 
> *To:* Janice Nichols 
> *Cc:* Barbara H.  ; tmic 
> *Sent:* Saturday, August 17, 2013 12:23 PM
> *Subject:* Re: [TMIC] Testing
>
> Still working over the pond!
>
>
> Sent from Margaret's iPad
>
> On 17 Aug 2013, at 17:16, "Janice Nichols"  wrote:
>
>   Still working!Just really, really quiet right now.
> Janice
>
>
>  *From:* Barbara H. 
> *Sent:* Saturday, August 17, 2013 8:44 AM
> *To:* tmic 
> *Subject:* [TMIC] Testing
>
>   Just testing to see if the list is still working. I was looking up the
> TMIC site (http://myelitis.org/tmic/) in order to send the link to
> someone, and it says, "File not found." I messaged Jim Lubin about it but
> he is on the West coast and may not see it for a while. Just thought I'd
> check to see if it was still working.
>
> Barbara
> http://barbarah.wordpress.com
>
>

[TMIC] Testing

[Barbara H.]

Just testing to see if the list is still working. I was looking up the TMIC
site (http://myelitis.org/tmic/) in order to send the link to someone, and
it says, "File not found." I messaged Jim Lubin about it but he is on the
West coast and may not see it for a while. Just thought I'd check to see if
it was still working.

Barbara
http://barbarah.wordpress.com

[TMIC] August Birthdays!

[Barbara H.]

Happy Birthday to the August kids! August is one of our biggest birthday
months.

Please send any additions or corrections to:

8/1 Peachi (pkeene2...@aol.com)

8/1 Cindy McLeroy (cindymcle...@socal.rr.com)

8-1 Stacy Firth (safi...@dow.com )

8-3 Larry Throne (lbthr...@hotmail.com )

8-10 Sean Indiveri (sindiv...@hotmail.com)

8-11 Raylene Gökeri (mrs_gok...@yahoo.com

8-11 Michelle Maricic (mmari...@aol.com)

8/11 Dalida S. Ortiz de Garcia (py...@yahoo.com)

08/17 Sandra (Harth) Brassil (sbras...@aol.com)

8-17 Kim (jnks...@huntel.net)

8-19 Saroj (sarojkumar...@gmail.com)

8-21 Barbara H. (barbara...@gmail.com)

8-23-00 Cole (neilandwe...@rogers.com)

8-29 Kathleen (kathleen.kar...@gmail.com)

8- 31 Robin in Ontario(Brampton)(rjohnson1...@rogers.com )

Re: [TMIC] RE: Books & Movies

[Barbara H.]

If you look people up on Goodreads.com, you can peruse what they've been
reading. One of my recent favorites is Unbroken by Lauren Hillenbrand. Also
the Mitford series by Jan Karon (At Home in Mitford is the first).

My kids are big into the Marvel comics films, so we've enjoyed the Iron Man
films, The Avengers, Captain America, etc. They have a lot of classic
English love stories on Netflix: Pride and Prejudice, Sense and
Sensibility, Wives and Daughters, Emma, North and South (the British one
based on the book by Elizabeth Gaskell, not the one based in America. The
book was great as well).

I don't watch or read many mysteries, but we have watched many TV shows
that are based on Mysteries: Castle, Chuck, White Collar. They have those
on Netflix as well, possibly on Hulu too.

Barbara H.

On Sat, Jun 29, 2013 at 11:29 AM,  wrote:

> **
> Hi All,
>
> I hope that you are all having a really nice summer and that TM's ugly
> face is not showing itself too much to you.
>
> Just wondering if any of you could recommend something good to read this
> summer.  I've run out of everything that I have and am too sick to get to
> the library, but if you give me some titles I can call and have them
> delivered.  I like mysteries, English love stories, funny books and am
> pretty much game for anything that comes highly recommended.  Also, if you
> have seen any good movies I'd be interested in hearing about them too.  We
> haven't seen any of the new ones, in fact, we haven't been to a movie in 10
> years.
>
> Thanks, I hope to hear from you soon.
>
> Love & Hugs,
> Jude
>
>
>

[TMIC] July Birthdays

[Barbara H.]

Happy Birthday to the July kids!

Please send any additions or corrections to tmic-list@eskimo.com.

7-5 Sumer (fjs181...@aol.com)

7/5 Richard Ashford 

7-14 Julie (chi...@cox.net)

7-24 Kevin Weilacher (hwyfli...@yahoo.com)

7-25 Peggy Wilson (pwi1991...@aol.com)

7-25 (jennapa...@aol.com)

7-27 Linda (lp...@aol.com)

7/30 Dex Packard (d...@centurytel.net)

Re: [TMIC] are you still receiving me?

[Barbara H.]

I was responding to Rob - he was asking whether we were receiving his emails. 

Barbara H. 

Sent from my iPhone

On Jun 24, 2013, at 8:01 PM, "Janice Nichols"  wrote:

> Barbara, just got this email and the email you sent about TM.   You are loud 
> and clear.
> Janice
>  
> From: Barbara H.
> Sent: Monday, June 24, 2013 6:08 PM
> To: Robert Pall
> Cc: tmic-list@eskimo.com
> Subject: Re: [TMIC] are you still receiving me?
>  
> Still receiving your e-mails. I think I got something that was odd looking 
> from your address but just deleted it.
> 
> Barbara H.
> http://barbarah.wordpress.com
> 
> On Thu, Jun 20, 2013 at 8:24 AM, Robert Pall  wrote:
>> I was hacked and had to change my password...sorry if I caused any of you 
>> problems.
>> Rob in NJ
> 
>  

Re: [TMIC] are you still receiving me?

[Barbara H.]

Still receiving your e-mails. I think I got something that was odd looking
from your address but just deleted it.

Barbara H.
http://barbarah.wordpress.com

On Thu, Jun 20, 2013 at 8:24 AM, Robert Pall  wrote:

> I was hacked and had to change my password...sorry if I caused any of you
> problems.
> Rob in NJ
>

Re: [TMIC]

[Barbara H.]

Hi Janice,

Mine did not start out with severe pain. It started with a hard to define,
numb but not totally numb feeling in my left arm which then spread to my
legs. It progressed to pretty painful banding around the affected arm, like
a too-tight blood pressure cuff. That gradually went away. The only pain I
have now is occasional muscle spasms in my back.

Barbara H.
http://barbarah.wordpress.com

On Mon, Jun 24, 2013 at 10:38 AM, Janice Nichols wrote:

>   Hello!
>
> When I have read the stories of how TM first attacked you all, some/many
> have said that you had a severe pain around the
> middle of your body – banding.And for some, it has stayed with you.
> I would like a response from all of you as to whether
> or not your TM started with the severe pain or not. Also, is it still
> with you today or did it get better with time/meds.
> I would like to be able to give my doc some kind of percentage of how TM
> has hit myself and others.   Would really appreciate
> responses.
>
> Thanks,
>
> Janice
>

[TMIC] June Birthdays

[Barbara H.]

Happy Birthday to the first-of-summer kids! Hope you have a great day!

Please send any additions or corrections to tmic-list@eskimo.com.

We also remember those with birthdays from this month who have passed on
Tom Carr (6/2) and Dennis Galvin (6/25).

6-1 Akua (a...@artfarm.com)

6-5 Tobe Kanon (spirita...@verizon.net)

6/11 Marabeth (mes...@earthlink.net)

6-11 Sharon Marsden (dorightra...@yahoo.com)

6-17 Cheryl (rn11...@yahoo.com)

6-19 Tom in Delaware (t-...@usa.com)

6-19 Debbie Capen (dnca...@gmail.com )

6-22 Ann Moran (annmo...@gofree.indigo.ie)

6-22 Gerry (suret...@sympatico.ca)

6-24 Lynne (lynnemye...@yahoo.com)

6-25 Errol White (eamjwh...@bigpond.com )

6-28 Kim Harrison (kimharrison...@comcast.net)

6-29  Pauline (prha...@aol.com)

6/30 Bobby Jim (elbobber...@earthlink.net)

Re: [TMIC] RE: May Birthday List

[Barbara H.]

I sent the May list out at the beginning of May. I'm planning to send the June 
list out tomorrow. 

Barbara H. 

Sent from my iPhone

On May 31, 2013, at 11:49 AM, heyjude48...@aol.com wrote:

> Hi Everybody,
>  
> Who has the May Birthday list?  I haven't seen it yet and today is the last 
> day in May.
>  
> Thank you,
> Jude
> Michigan

Re: [TMIC] Fwd: The Yellow Shirt (don't delete) From Jude TMIC

[Barbara H.]

In the guidelines for the TMIC on the TMIC web site (posted here:
http://myelitis.org/tmic/#guidelines) it specifically says "Please *do
not*forward or post long jokes or fictional stories." It would be
better to
forward this kind of thing just to people whose e-mail addresses you have
whom you think might really want it.

Plus you have to remember that everything that goes through the TMIC is
archived online, so all those e-mail addresses you copied in your forward
are now public.

Barbara H.

On Sun, May 19, 2013 at 10:56 PM,  wrote:

> **
> This was sent to me by my very best friend, read and forward, for the
> chain hasn't been broken yet.  I love you,
> Jude  TIAD
> Michigan
>
>
>  --
> From: ccraterl...@aol.com
> To: angel_...@yahoo.com, dbparatroo...@aol.com, scottbingha...@hotmail.com,
> buford...@aol.com, gmrlsm...@yahoo.com, honda...@att.net,
> heyjude48...@aol.com, jackykalvai...@ymail.com, jeannie.d...@gm.com,
> jessicakalvai...@yahoo.com, jwally...@att.net, vickiekess...@aol.com,
> michelestja...@gmail.com, ppros...@med.umich.edu, s...@toast2.net,
> vsell...@bellsouth.net
> Sent: 5/19/2013 9:11:36 P.M. Eastern Daylight Time
> Subj: The Yellow Shirt (don't delete)
>
> A wonderful story!
>
>
>
>
> *Subject:* *Fwd: The Yellow Shirt (don't delete)*
>
>
>
>*Wonderful Story!*
>
> The yellow shirt had long sleeves, four extra-large pockets trimmed in
> black thread and snaps up the front. It was faded from years of wear,
> but still in decent shape. I found it in 1963 when I was home from
> college on Christmas break, rummaging through bags of clothes Mom
> intended to give away.
>
> 'You're not taking that old thing, are you?' Mom said when she saw
> me packing the yellow shirt. 'I wore that when I was pregnant with
> your brother in 1954!'
>
> 'It's just the thing to wear over my clothes during art class, Mom.
> Thanks!' I slipped it into my suitcase before she could object.
> The yellow shirt be came a part of my college wardrobe. I loved it.
>
> After graduation, I wore the shirt the day I moved into my new
> apartment and on Saturday mornings when I cleaned.
>
> The next year, I married. When I became pregnant, I wore the yellow
> shirt during big-belly days. I missed Mom and the rest of my family,
> since we were in Colorado and they were in Illinois .. But, that shirt
> helped. I smiled, remembering that Mother had worn it when she was
> pregnant, 25 years earlier.
>
> That Christmas, mindful of the warm feelings the shirt had given
> me, I patched one elbow, wrapped it in holiday paper and sent it to Mom.
> When Mom wrote to thank me for her 'real' gifts, she said the
> yellow shirt was lovely. She never mentioned it again..
>
> The next year, my husband, daughter and I stopped at Mom and Dad's
> to pick up some furniture. Days later, when we uncrated the kitchen
> table, I noticed something yellow taped to its bottom. The shirt!
>
> And so the pattern was set.
>
> On our next visit home, I secretly placed the shirt under Mom and Dad's
> mattress I don't know how long it took for her to find it, but almost
> two years passed before I discovered it under the base of our
> living-room floor lamp. The yellow shirt was just what I needed
> now while refinishing furniture. The walnut stains added character.
>
> In 1975 my husband and I divorced. With my three children, I prepared
> to move back to Illinois ... As I packed, a deep depression overtook
> me. I wondered if I could make it on my own. I wondered if I would
> ind a job. I paged through the Bible, looking for comfort. In
> Ephesians, I read, 'So use every piece of God's armour to resist the
> enemy whenever he attacks, and when it is all over, you will be standing
> up.'
>
> I tried to picture myself wearing God's armour, but all I saw was the
> stained yellow shirt.. Slowly, it dawned on me.. Wasn't my mother's
> love a piece of God's armour? My courage was renewed.
>
> Unpacking in our new home, I knew I had to get the shirt back to
> Mother. The next time I visited her, I tucked it in her bottom dresser
> drawer
>
> Meanwhile, I found a good job at a radio station. A year later I
> discovered the yellow shirt hidden in a rag bag in my cleaning closet.
>
> Something new had been added. Embroidered in bright green across
> the breast pocket were the words 'I BELONG TO PAT.'
>
> Not to be outdone, I got out my own embroidery materials and added
> an apostrophe and seven more letters.
>
> Now the shirt proudly proclaimed, 'I BELONG 

Re: [TMIC] whats going on?

[Barbara H.]

**
You're still coming through to the list. Did you have to resubscribe? I've
been dropped various times over the years for unknown reasons and had to
resubscribe, I assume just due to a glitch. One other idea is that perhaps
your account has been hacked and someone has been sending out e-mails under
your name - you might want to change your e-mail account password just in
case.

Barbara H.



>  *From:* Robert Pall [mailto:robthe...@aol.com]
> *Sent:* Thursday, May 16, 2013 12:49 PM
> *To:* tmic-list@eskimo.com
> *Subject:* [TMIC] whats going on?
>
> ** **
>
> I just received an email starting I was dropped from this list due to
> excessive bounced emails. I have no idea what this is about as I do not
> send that much in...and to the best of my knowledge I have never had an
> email bounced.
>
> Rob in New Jersey
>

Re: [TMIC] CONCUSSION

[Barbara H.]

Ouch! Glad nothing was broken - hope you feel better soon!

Barbara H.

On Sat, May 11, 2013 at 9:55 AM, Gary Thomas wrote:

> **
> I'm glad nothing was broken, Janice!  I hope it doesn't happen again--can
> it, if you have vertigo?
> Gary in Michigan
>
> - Original Message -
> *From:* Janice Nichols 
> *To:* tmic-list@eskimo.com
> *Sent:* Saturday, May 11, 2013 4:26 AM
> *Subject:* [TMIC] CONCUSSION
>
>  Hey Guys!
>
> Well, now I know what a concussion feels like – it hurts!   Monday
> evening I fell in the house on our ceramic tile (hard stuff).My husband
> called 911 and they transported
> us to the hospital.I had passed out before I fell, so had nothing to
> brace the fall.   Eddy was just a few steps behind me but couldn’t get to
> me in time to stop the fall.   Anyway,
> I fell right on my face – huge bump immediately.The ER gave me
> an IV to put in meds for pain (!!!) and nausea.That helped quite a
> bit.   Then they did a cat scan and found
> I had no broken bones.   Doc’s were shocked, but pleased.   I really do
> have a hard head!They then sent us back home and I have been very quiet
> ever since.   Doc’s think I may have
> had vertigo.
>
> I look a lot like a raccoon  -  eyes really black and purple and forehead
> and bridge of nose really swollen.   I am a mess, but relatively little
> pain for having such a concussion.   Each day
> we are checking out the changes in shape and color in my face.
>
> Just thought I would keep you guys up with my adventures.
> Janice
>
>

Re: [TMIC] RE: My Buddy List

[Barbara H.]

I have mine disabled, perhaps others do too. When I am doing something
online I don't like to be interrupted by a chat box popping up and someone
wanting to talk right then.

Barbara

On Tue, May 7, 2013 at 4:12 PM,  wrote:

> **
> I hate to keep bugging you all, but I have another quick question.  I have
> AOL and have listed you all as "Buddies", but when you are online none of
> your names show up.  They used to, but I haven't seen them for a long time
> now.
>
> Especially for those of you with AOL, can you figure out what I'm doing
> wrong?  Will you write back and give me a few pointers, please?  I don't
> like sitting here, knowing you are all out there and I don't know it.
>
> Thank you very much,
> Love and hugs,
> Jude TIAD
>
>

Re: [TMIC] SPAM

[Barbara H.]

All of the mail that goes through TMIC is stored publicly on the archives 
online. 

Barbara H. 


On May 4, 2013, at 6:52 PM, Susan Kleinz  wrote:

> I don't know what a spam folder is, but someone posted one of my comments to 
> this group on the main Transverse Myelitis website.  My whole name and 
> everything.
> I never wanted this.  I just got home from the hospital.  Big setback.  Is 
> there any way to get my name off this website?  Whoever did that to me is not 
> nice.
> On May 3, 2013, at 12:11 PM, Janice Nichols  wrote:
> 
>> Hi TM’ers!
>>  
>> It seems several people are getting our website mail put in their spam 
>> folders.I guess we all better keep checking spam when looking for 
>> anything
>> from this website.   Hopefully, this can be fixed or will just die out.
>>  
>> Janice
> 

Re: [TMIC]

[Barbara H.]

Hope he's doing ok. My husband had one of those earlier this year --
they're pretty rough.

Barbara H.

On Thu, May 2, 2013 at 7:12 PM, Rebecca Rabalais wrote:

> **
> Yes. This is Dennis' mom. He is in the hospital as of now with an UTI.
>

Re: [TMIC] Re: Attention -The TMIC List

[Barbara H.]

Yes we understood, that was a way of saying yes, we're getting the emails.
Obviously we wouldn't have answered if we hadn't gotten the e-mail.

Barbara H.

On Fri, May 3, 2013 at 11:41 AM,  wrote:

> **
> The question wasn't if you were still here, but it was are you still
> getting our mail and also to alert you to the fact that a lot of the mail
> is going into our spam folders.  I'll explain in another letter to the list.
>
> Jude H.
>
>  In a message dated 5/3/2013 11:35:16 A.M. Eastern Daylight Time,
> barbara...@gmail.com writes:
>
> Me too, Rob! I've been here since 1996, I believe.
>
> Barbara H.
>
> On Fri, May 3, 2013 at 9:37 AM, Robert Pall  wrote:
>
>> I have never left!
>> Rob in New Jersey
>>
>>
>>
>>  -Original Message-
>> From: Janice Nichols 
>> To: Heyjude48458 ; tmic-list 
>> Sent: Thu, May 2, 2013 4:46 pm
>> Subject: Re: [TMIC] Re: Attention -The TMIC List
>>
>>   Sorry I am late to respond.Maybe we could ask all who read/respond
>> to our website to let us know by just stating a “yes” or “no” to whether or
>> not they are still a part of us.
>>  We do need to have some idea who is still getting our emails. Would
>> you all please do so?
>> Janice
>>
>>  *From:* heyjude48...@aol.com
>> *Sent:* Tuesday, April 30, 2013 8:38 PM
>> *To:* tmic-list@eskimo.com
>> *Subject:* [TMIC] Re: Attention -The TMIC List
>>
>>  Hi  Everyone,
>>
>> How are you doing tonight?  It's Jude Hoops and I am writing to let you
>> know that eskimo.com may be having a problem with our emails.  It seems
>> that some of the people who don't want to receive mail are telling AOL that
>> our mail is Spam instead of just unsubscribing to the list.  It is because
>> of their negligence that we may not get any more emails.
>>
>> This list has been around for at least 12 years and I don't know how long
>> before I signed on that it had been up and running.  I know the Quad list
>> is going to another site, but I haven't heard anything about us.
>>
>> Does anyone else know anything about this?  If you do will you please let
>> me know.  I'm very worried about it.  I know that the list doesn't function
>> the way that it used to but it is still important to me that we all stay in
>> touch.
>>
>> Oh, do any of you have the list of May Birthdays?  It usually comes
>> around before the 1st and I haven't seen it yet for this month.
>>
>> What do you think we should do?  (Again, I don't know if it applies to us
>> too, or just the Quad list)
>>
>> And one other thing, do any of you mind  if I use Pam's sign off of
>> TIAD?  I just can't seem to help myself, it just keeps her alive in my
>> heart.
>>
>> TIAD,
>> Jude Hoops
>> Michigan
>>
>
>

Re: [TMIC] Re: Attention -The TMIC List

[Barbara H.]

Me too, Rob! I've been here since 1996, I believe.

Barbara H.

On Fri, May 3, 2013 at 9:37 AM, Robert Pall  wrote:

> I have never left!
> Rob in New Jersey
>
>
>
>  -Original Message-
> From: Janice Nichols 
> To: Heyjude48458 ; tmic-list 
> Sent: Thu, May 2, 2013 4:46 pm
> Subject: Re: [TMIC] Re: Attention -The TMIC List
>
>   Sorry I am late to respond.Maybe we could ask all who read/respond
> to our website to let us know by just stating a “yes” or “no” to whether or
> not they are still a part of us.
>  We do need to have some idea who is still getting our emails. Would
> you all please do so?
> Janice
>
>  *From:* heyjude48...@aol.com
> *Sent:* Tuesday, April 30, 2013 8:38 PM
> *To:* tmic-list@eskimo.com
> *Subject:* [TMIC] Re: Attention -The TMIC List
>
>  Hi  Everyone,
>
> How are you doing tonight?  It's Jude Hoops and I am writing to let you
> know that eskimo.com may be having a problem with our emails.  It seems
> that some of the people who don't want to receive mail are telling AOL that
> our mail is Spam instead of just unsubscribing to the list.  It is because
> of their negligence that we may not get any more emails.
>
> This list has been around for at least 12 years and I don't know how long
> before I signed on that it had been up and running.  I know the Quad list
> is going to another site, but I haven't heard anything about us.
>
> Does anyone else know anything about this?  If you do will you please let
> me know.  I'm very worried about it.  I know that the list doesn't function
> the way that it used to but it is still important to me that we all stay in
> touch.
>
> Oh, do any of you have the list of May Birthdays?  It usually comes around
> before the 1st and I haven't seen it yet for this month.
>
> What do you think we should do?  (Again, I don't know if it applies to us
> too, or just the Quad list)
>
> And one other thing, do any of you mind  if I use Pam's sign off of TIAD?
> I just can't seem to help myself, it just keeps her alive in my heart.
>
> TIAD,
> Jude Hoops
> Michigan
>

[TMIC] Re: May Birthdays

[Barbara H.]

So I realized after I went to bed that it wasn't May yet and I wasn't late 
after all - I don't usually send these out til the first of the month. 

Barbara H. 

Sent from my iPhone

On Apr 30, 2013, at 11:06 PM, "Barbara H."  wrote:

> I apologize for being late with these - my husband had a detached retina 
> yesterday, and we've been spending time at different doctors offices, then he 
> had surgery today. It's been a whirlwind. It didn't even click that this was 
> May 1 til I saw Jude's note. But thankfully we didn't miss anyone since no 
> one's birthday was on the 1st.
> 
> Happy Birthday to all the May kids! Please send any additions or corrections 
> to tmic-list@eskimo.com.
> 
> We also remember this month Jim Belz, May 11, who has passed away.
> 
> 5/5 Linda Garrett  (limoga43...@yahoo.com)
> 
> 5/7 Dennis Rabalais (dennis_rabalais20...@yahoo.com) 
> 
> 5-11 Lynn (roseofr...@aol.com) 
> 
> 5- 19 Maureen Wroblewski Hallagan (walterhalla...@msn.com)
> 
> 5/31 Wendy Wood (ww...@optonline.net)
> 

[TMIC] May Birthdays

[Barbara H.]

I apologize for being late with these - my husband had a detached retina
yesterday, and we've been spending time at different doctors offices, then
he had surgery today. It's been a whirlwind. It didn't even click that this
was May 1 til I saw Jude's note. But thankfully we didn't miss anyone since
no one's birthday was on the 1st.

Happy Birthday to all the May kids! Please send any additions or
corrections to tmic-list@eskimo.com.

We also remember this month Jim Belz, May 11, who has passed away.

5/5 Linda Garrett  (limoga43...@yahoo.com)

5/7 Dennis Rabalais (dennis_rabalais20...@yahoo.com)

5-11 Lynn (roseofr...@aol.com)

5- 19 Maureen Wroblewski Hallagan (walterhalla...@msn.com)

5/31 Wendy Wood (ww...@optonline.net)

[TMIC] April Birthdays

[Barbara H.]

Happy Birthday to those born in April! Please send any additions or
corrections to tmic-list@eskimo.com.

We also remember three who had birthdays this month who have passed on: Ken
(kenoliver...@hotmail.com) was on April 1, Jeron Rampersad (
rumc...@hotmail.com) on April 3, and Doc (doc...@insightbb.com) on April
24.

4/10 Marie Dipietro deer...@aol.com

4/18 Bernard Butcher (bernie.butc...@honeywell.com)

4/20 Dianna (carg...@cs.com)

04/20 Todd Tarno (toddtm2...@sbcglobal.net)

4/21 Robert Diehl (sawmil...@verizon.net)

4-25 Shelia (sc...@aol.com)

4-29 Dalton H. Garis (malugss...@gmail.com)

[TMIC] March Birthdays

[Barbara H.]

Happy Birthday to the March kids!

Please send any additions or corrections to tmic-list@eskimo.com.

And please join me in remembering Mike Hammond, whose birthday was 3/8, who
passed away a few years ago.

3-3 Marsha Scholes  (marshab...@comcast.net)

03.05 Bettie Imus (bettie5...@aol.com)

3-7 Sue Mattis (bobsue6...@adelphia.net)

3-15 Sandra Melville (luth...@comcast.net)

3-17 Joy S. (joyst...@aol.com)

3-19  Betty Clark (beecl...@aol.com)

3/24 john h (JOHNLOVESKARAOKE)

3/26 Jane Elrod (celr...@aol.com)

3/30 Gary (gbthomas8...@sbcglobal.net)

3-31 Jan H (jmh1...@sbcglobal.net)

Re: [TMIC] Baclofen Pump

[Barbara H.]

I'm so glad the trial went so well for you! I hope you have good results
with the surgery.

Barbara H.

On Fri, Mar 1, 2013 at 11:24 AM, Robert Pall  wrote:

> I went for the trial for the Baclofen Pump a few weeks ago and I was
> amazed at the result. After injecting a small dosage of Baclofen directly
> into my spinal, with 1/2 hour the spasticity in my legs was greatly
> reducedand it continued to lessen over the next 2 hours. The entire
> trial lasted less than 4 hours and is a requirement prior to getting the
> pump.
>I have decided to go ahead with surgery for the pump. I will be in the
> hospital for 24 hours and then transported to a rehab center for approx. 2-3
> days.
> The thought of having this device inserted into my body is not a
> pleasant one...although I have been assured I won't even know it is
> there. My decision is based solely on the fact that if I do not do it I
> will second guess myself the rest of my life. I am having the surgery
> done on June 27th. For the people in the NJ TM support group I hope to
> have the next meeting Mid April where I can discuss it in greater detail.
> In addition there will be a walk for TM on April 13th at Cooper Park in
> Pennsauken NJ. Anyone wishing to attend please let me know. Last year more
> than 200 people attended the walk and it raised over $10,000.
>
> All the best!
> Rob in New Jersey
>
>

Re: [TMIC] Hi group.

[Barbara H.]

Hi, Dennis, and welcome. I'm so sorry you ended up paralyzed and in a
nursing home. Depression is understandable. I hope we can be of help,
either with answers to questions or just moral support.

Barbara H.
http://barbarah.wordpress.com

On Thu, Feb 14, 2013 at 1:54 AM, dennis rabalais <
dennis_rabalais20...@yahoo.com> wrote:

> Hi group. My name is Dennis Rabalais. I am 39 years old and I have TM. I
> was paralyzed at 29 years old. It started out with West Nile virus and
> inturn started the onset of TM. I 've lived in nursing homes since then.
> It's been very troubling, something I cannot understand why it happened, or
> even how. I've gone through major depression and still going through it.
> Well, that's my story. Nice to meet all y'all. God bless and have a great
> night!
> Sent from Yahoo! Mail on Android
>

Re: [TMIC] AGE AND STATE

[Barbara H.]

I was 38 and near Atlanta, GA at the time TM struck. 

Barbara H. 

Sent from my iPhone

On Feb 12, 2013, at 8:17 PM, "Janice Nichols"  wrote:

> I am requesting a quick answer from all of you, whether you just read the 
> posts or usually respond to comments, questions, etc. A long time ago, I 
> asked TM’ers to give me
>  
> the age at which TM struck you.   Since then we have added a lot of 
> people to the group and I would really like another tally.Also, would you 
> mind giving the state you were
>  
> living in when TM struck?I would add these up and figure out what the 
> average age TM struck and what state seems to be most prominent. Thank 
> you.
>  
>  
> Janice – age 60 – Missouri

Re: [TMIC] RE:Pam Kinkade

[Barbara H.]

Do you mean Pam Montz? I don't have any letters but you can search the archives 
of the TMIC at http://www.mail-archive.com/tmic-list%40eskimo.com/maillist.html 
for her past emails here. 

Barbara H. 

Sent from my iPhone

On Feb 11, 2013, at 6:57 PM, heyjude48...@aol.com wrote:

> 
> Hello All,
>  
> Does anyone have old letters from Pam Kinkade?  I would like to write a book 
> about her and her struggle with TM, her attitude, friends and her life.  
> Mistakenly I erased all her letters from my computer.  I had hundreds of 
> them.  We wrote several times a day.
>  
> I really will appreciate your help on this.  It means a great deal to me.  If 
> you could send them to me it would be wonderful.  We are all great people but 
> she and I shared something special.  She was such a good person maybe all of 
> you feel that way.
>  
> Also I need Dan's email address if anyone still has it.
>  
> For those of you that still keep those records if you have emails from me 
> that I can read, please send them to me too.  Of course, only the meaningful 
> ones.
>  
> Thank you for your help.
>  
> Jude
> Michigan
>  
>  

[TMIC] February birthdays

[Barbara H.]

Happy Birthday to those born in February!

Please send any additions or corrections to tmic-list@eskimo.com.

2-1 Jeanne Rushton (jrush...@columbiaenergyllc.com)

2/2 Ursula (uma...@t-online.de)

2/2 Lisa in TN (lsim...@aol.com)

2-5 Tita in Delaware (t-...@usa.com)

2-6 Barbara Alma (balmat...@aol.com)

2-7 Barbara in Texas (babbsie1...@yahoo.com)

2/11 Mary (mster...@yahoo.com )

2-11 Deb Casey (casey...@myway.com)

2/15 Jill (jillybean60...@yahoo.com)

2-17 Joan Fink (2-17 mafi...@yahoo.com)

2/26 Patti - Michigan (pjv1...@chartermi.net)

2/27 Cindy (rdavi...@san.rr.com)

Re: [TMIC] Healing broken bones

[Barbara H.]

Jude, have they said why your bones aren't healing? Do you have diabetes?

Barbara H.

>
>
> From: 
> Date: Friday, 18 January 2013 5:10 PM
> To: 
> Subject: [TMIC] Healing broken bones
> Resent-From: 
> Resent-Date: Fri, 18 Jan 2013 14:10:24 -0800
>
> *Do any of you remember anything about healing broken bones besides
> electrical stimulation and the oxygen chamber?*
> **
> *I haven't "googled" it yet, but will do so now.  If anyone comes up with
> something in the meantime, please let me know.*
> **
> *Thanks,*
> *Jude in Michigan*
>

Re: [TMIC] neurologist

[Barbara H.]

I think we do so by praying as we read, for God to help us understand, then
by reading verses in context rather than stringing isolated verses
together. The church I went to as a teenager strongly advocated reading the
Bible through, and that has been the biggest help to me. There are seeming
opposites in the Bible that hold each other in balance, and a lot of error
comes in when people tip one way or the other.

Barbara H.

On Fri, Jan 18, 2013 at 1:01 PM,  wrote:

> **
> *Janet,*
> **
> *I hope you ran out of that neurologists office really fast!  And, I
> assume you never went back.  *
> **
> *Barbarah,*
> **
> *You are right too.  That's why I find the Bible so confusing.  How is
> one supposed to figure out how to discover it without misconstruing the
> meaning?*
> **
> *Jude in Michigan*
> **
>
>  In a message dated 1/18/2013 11:27:09 A.M. Eastern Standard Time,
> barbara...@gmail.com writes:
>
> That is maddeningly ridiculous and sounds more like the idea of karma. Job
> was afflicted even though God Himself said he had done nothing wrong. In
> John 9:1-4 it says, "As [Jesus] passed by, he saw a man blind from birth. And
> his disciples asked him, 'Rabbi, who sinned, this man or his parents, that
> he was born blind?' Jesus answered, 'It was not that this man sinned, or
> his parents, but that the works of God might be displayed in him.'"
>
> I once wrote up an extensive list of reasons the Bible gives for suffering:
> http://barbarah.wordpress.com/2007/07/16/scriptural-reasons-for-suffering/
>
> Barbara H.
>
> On Fri, Jan 18, 2013 at 11:03 AM, Janet Dunn  wrote:
>
>>  The last neuro that I went to told me that when you are not living a
>> good life, then God will afflict you.  When you  straighten up your life
>> and live the way you are supposed to, a way that is pleasing to God, then
>> He will stop the affliction.  He told me to go home and be grateful that my
>> affliction has not caused more damage, and that God has allowed me to get
>> to where I am.  geesh, thanks buddy.
>>
>> Janet
>>
>>
>>
>

Re: [TMIC] neurologist

[Barbara H.]

That is maddeningly ridiculous and sounds more like the idea of karma. Job
was afflicted even though God Himself said he had done nothing wrong. In
John 9:1-4 it says, "As [Jesus] passed by, he saw a man blind from birth. And
his disciples asked him, 'Rabbi, who sinned, this man or his parents, that
he was born blind?' Jesus answered, 'It was not that this man sinned, or
his parents, but that the works of God might be displayed in him.'"

I once wrote up an extensive list of reasons the Bible gives for suffering:
http://barbarah.wordpress.com/2007/07/16/scriptural-reasons-for-suffering/

Barbara H.

On Fri, Jan 18, 2013 at 11:03 AM, Janet Dunn  wrote:

>  The last neuro that I went to told me that when you are not living a
> good life, then God will afflict you.  When you  straighten up your life
> and live the way you are supposed to, a way that is pleasing to God, then
> He will stop the affliction.  He told me to go home and be grateful that my
> affliction has not caused more damage, and that God has allowed me to get
> to where I am.  geesh, thanks buddy.
>
> Janet
>
>
>

Re: [TMIC] neurologist

[Barbara H.]

I think it depends on one's needs. I've had TM for 17 years and haven't
seen a neurologist in about 14 years. I got to an acceptable plateau (can
walk and pretty well function as a homemaker and volunteer, have some
issues with fatigue, balance, and muscle spasms. I don't think I could hold
down a job for various reasons, but I've been able to raise my children,
keep my home, and help out in various areas at church and my kids' schools).
I am not on any TM-related medications, so when we moved to another state,
I didn't seek out a new neuro. It helped that my PCP was knowledgeable
about TM and willing to refer me to anyone I wanted to see -- it was
through him I was referred to a urologist for problems in that realm. If I
had problems that only a neuro could help with or was on certain
medications that it would be best for him to monitor, I'd see one, and I'd
encourage anyone with any of those needs to keep seeing one, but otherwise
there is no need to see him every year just to hear that everything is the
same, which is about where we were when I last saw him. Of course, if new
problems or questions crop up, I wouldn't hesitate to seek one out.

Barbara H.
http://barbarah.wordpress.com

On Thu, Jan 17, 2013 at 11:21 AM, Robert Pall  wrote:

> I disagree with all of you who are saying that you have either stopped
> going to a neurologist or see one very infrequently. I saw Dr Kerr at John
> Hopkins for the first 10 years after coming down with TM. I go to my
> neurologist at least once per year to insure that my meds are the best
> they can be. New Medications and procedures happen all of the timeby
> seeing a neuro I assure myself that I am getting the best treatment
> possible. Just last week I changed to a new neurologist, Douglas Holland
> in West Long Branch NJ. Not only did he prescribe medical marijuana for me
> he also set up a test to inject baclofin directly into my spine and see
> over a period of 4 hours if it makes a noticeable improvement. If it does
> we may consider the baclofin pumpif it does not we will explore other
> options to help me better cope with my pain and discomfort.
> I head up the New Jersey TM support group. The main benefit of a
> support group is comparing doctors and medicines that others are seeing
> or taking and perhaps get some new ideas regarding treatment. At our last
> 2 meetings we had as a guest speaker the head of physical therapy who
> gave us many ideas of simple things we could do in our own homes to
> exercise as well as hospital treatments that could prove beneficial.
> I have had TM for over 15 yearsand I have fought this condition
> every single day. I cannot walk very wellbut I have learned that I can
> swim pretty good. I now swim one mile a day..and even if this is doing
> nothing for my TM it is at least giving me a great cardio workout.
> Finally I purchased a Golden Retriever..this 60lb dog forces me to walk
> at lease 1 hour every day.
> Start living or start dying!
>
> All the best!
> Rob in NJ
>
>
>
>
>

[TMIC] January birthdays

[Barbara H.]

Happy Birthday to those celebrating in January! And Happy New Year, too!

Please send any additions or corrections to tmic-list@eskimo.com.

1/8 Nancy Williams   (willj...@aol.com)

1-8 Sandi (sam...@fidmail.com)

1-17 Ginna Hamilton (ginnahamil...@yahoo.com)

1/20 Kay Cole (k...@cole.gen.nz)

1-21 Blaine Frye (xring...@mwt.net)

1/21 Carol Easterday (snow121...@hotmail.com)

1/23 Grace (grace...@gmail.com)

1-27 Pat S. (w2sm...@aol.com)

1-28 Holly (r...@aol.com)

1-28 Sally (thenavigato...@aol.com)

Re: [TMIC] December birthdays

[Barbara H.]

My step-father's birthday is a few days after Christmas and he often gets
"two-for-one" presents, too.

Barbara H.

On Sun, Dec 2, 2012 at 10:15 AM,  wrote:

> I used to think it a bummer that my birthday was ten days before
> Christmas,
> but now I see that Roger and Gilly have theirs much closer.
>
> Alton, who as a kid would get two-for-one presents
>

[TMIC] December birthdays

[Barbara H.]

Happy Birthday to those born in December. "May your days be merry and
bright!"

Please send any additions or corrections to: tmic-list@eskimo.com

12-2 Meghan (bluemeg...@hotmail.com)

12/2 Ashlee Black (tracey.bl...@hnoins.com)

12/3  Janice (jan...@centurytel.net)

12-3  Wim from Holland (wim_from_holl...@hotmail.com)

12- 4 Jan Burgess (ja...@rogers.com)

12-7 Patti in Wisconsin ((wpcoo...@gmail.com)

12-8 Lori Malloy (jorlcummi...@earthlink.net)

12-15 Alton Ryder(a-ry...@comcast.net)

12/23 Roger Pratt (r.c.pr...@frontier.com)

12-25 Gilly (gillyma...@aapt.net.au)

12/31 Janet (j.d...@shaw.ca)

[TMIC] October birthdays

[Barbara H.]

Wow, I'm sorry I am so late with these! It's been busy and time got away
from me. But I hope all of you born in October have a wonderful birthday.

Please send any additions or corrections to tmic-list@eskimo.com.

10-3  Lauren Graham (grahamsn...@aol.com)

10/4 Neil McNeil (n...@hotmail.com)

10-7 Naomi (ladyno...@aol.com)

10/08 Rudy Aceves (race...@vengrp.com )

10/9 Assunta Rene (robert...@hotmail.it)

10/11  Lori B. (lbieh...@earthlink.net)

10-11  Kate  (nicwi...@cox.net)

10-12 Diana Gray (graymyfat...@aol.com)

10/14 Marieke Dufresne! (marieke...@hotmail.com)

10/14 Lanora (noni...@hotmail.com)

10/16 Sandy Parker (parkersw...@aol.com)

10/16 Linda Cherpeski (cherp...@msn.com)

10-21  Renee A. in CT (littlem...@aol.com)

10-21 Cody Kidwell (c...@austin.rr.com)

10/21 Candy K (cakal...@embarqmail.com)

10-23 Keith (leboo...@cfl.rr.com )

10-25 Debby Jones (ladybutl...@comcast.net)

10-26 Jim Lubin jlu...@eskimo.com

10-26 Bernie Pelow ((bpe...@austin.rr.com)

10/27 Robin (moldr3...@aol.com)

10/27 Krissy (ladykri...@comcast.net)

10-28 Netta Ganor (net...@isdn.net.il)

Re: [TMIC] Looking for input.

[Barbara H.]

My doctor encouraged something called double voiding - going to the bathroom, 
then coming back in a few minutes to go again. It's frustrating sometimes not 
to be able to get it all done at once, but it helps. 

Barbara H. 
Http:// barbarah.wordpress.com

Sent from my iPhone

On Sep 9, 2012, at 9:10 PM, "Janice Nichols"  wrote:

> I did self cathing for about 2 years.I no longer have to do it.I can 
> now clear my bladder on my own.  
> Keep us posted.
> Janice
>  
>  
> From: Ibridgets
> Sent: Saturday, September 08, 2012 6:56 PM
> To: jan...@centurytel.net
> Cc: jcs...@yahoo.com ; xbeecla...@gmail.com ; j.d...@shaw.ca ; 
> tmic-list@eskimo.com
> Subject: Re: [TMIC] Looking for input.
>  
> I will be calling the TX urogynecology association on Monday to make an appt 
> and see how quickly I can get in. Apparently she has some type of therapy she 
> can do in her office and if that doesn't work it will be self cath. I will 
> let u all know how it works as soon as I have my first appt and will let u 
> know how this appt goes and I am praying for all of us.
> 
> 
> Sent via the Samsung Galaxy S™ II Skyrocket™, an AT&T 4G LTE smartphone.
> 
> 
>  Original message 
> Subject: Re: [TMIC] Looking for input. 
> From: Janice Nichols  
> To: Bridget Skinner  
> CC: john snodgrass ,Elizabeth Clark 
> ,Janet Dunn ,tmic-list@eskimo.com 
> 
> 
> Well at least you have found some answers.   That is always a plus.  Let 
> me know how the bladder retention goes – I think most of us have a problem in 
> some way with our
> bladders and it will be interesting to see what they find with you. Thank 
> you for sharing – we appreciate it.
> Janice
>  
> From: Bridget Skinner
> Sent: Saturday, September 08, 2012 5:49 PM
> To: Janice Nichols
> Cc: john snodgrass ; Elizabeth Clark ; Janet Dunn ; tmic-list@eskimo.com
> Subject: Re: [TMIC] Looking for input.
>  
> I wanted to let you know as promised that i FINALLY got insurance in place 
> and I saw my neurologist. I have something called myoclonus and am being 
> treated for the jerking. The twitching in my fingers is because of my brain 
> knowing how to type fast and my spine is keeping it to do so. I understand 
> what he told me but it is difficult to explain. But, the jerking and the 
> twitching are different. The inflammation from the TM did a number on my 
> spine but at least the jerking isn't as scary knowing it can, and is, being 
> treated. I feel relieved and hope the medication works. I have a referral to 
> see someone about my bladder retention issues also.Thank you for your 
> support. 
> 
> On Tue, Jun 26, 2012 at 7:46 AM, Janice Nichols  wrote:
> Bridget,
> Are you sure you can’t get into the doc until August?Have you told them 
> your symptoms and they stillrefuse until August?   How about seeing your 
> yearly doc you saw before TM?   He/she
> could probably get you in way before August.
> I have taken both Neurontin and Lyrica.I am back on Neurontin after 
> trying Lyrica.Lyrica caused a lot of swelling in feet and ankles.Some 
> prefer it and have no problems. As far as the
> urinating problem  -  I think most of us have that problem.The important 
> thing is that you are able to completely void your bladder. Do you have 
> problemswetting during the night or are
> you able to feel enough to wake up to go to the bathroom?  Again, the 
> important part is voiding the bladder.
>  
> I think it is important to get into the doc soon.You can call his office, 
> ask to speak to his/her nurse and explain what is happening to you.   Be 
> adamant that you need to be seen quickly
> after having convulsions/seizures.I would think that would get their 
> attention, if not, find a doc who will see you.   Your first neurologist will 
> send the info on you to the new one.
>  
> Good luck and please keep in touch with us with your progress with these 
> issues.
> Janice
>  
>  
> From: Bridget Skinner
> Sent: Monday, June 25, 2012 9:32 PM
> To: john snodgrass
> Cc: Janice Nichols ; Elizabeth Clark ; Janet Dunn ; tmic-list@eskimo.com
> Subject: Re: [TMIC] Looking for input.
>  
> Thank you so much for replyingit's so nice to hear other experiences. I 
> am so sorry what you are going through and I totally understand the million 
> other symtoms that come along as soon as you lose one. I too am on 80 mg of 
> baclofen (seems like the magic number) and have been for awhile.  It is 
> possible, I guess, that after awhile your body starts to tolerate the meds. 
> They started me on baclofen when I was still in the hospital. I was just 
> starting to feel parts of my l

[TMIC] August Birthdays

[Barbara H.]

August is one of the biggest birthday months for TMers! Happy Birthday to
my fellow August birthday celebrants!

Please send any additions or corrections to tmic-list@eskimo.com.

8/1 Peachi (pkeene2...@aol.com)

8/1 Cindy McLeroy (cindymcle...@socal.rr.com)

8- 1 Stacy Firth (safi...@dow.com )

8-3 Larry Throne (lbthr...@hotmail.com )

8-10 Sean Indiveri (sindiv...@hotmail.com)

8-11 Raylene Gökeri (mrs_gok...@yahoo.com)

8-11 Michelle Maricic (mmari...@aol.com)

8-11  Dalida S. Ortiz de Garcia (py...@yahoo.com)

08/17 Sandra (Harth) Brassil (sbras...@aol.com)

8-17 Kim (jnks...@huntel.net)

8-19 Saroj (sarojkumar...@gmail.com)

8-21 Barbara H. (barbara...@gmail.com)

8-23 Cole (neilandwe...@rogers.com)

8-29 Kathleen (kathleen.kar...@gmail.com)

8- 31 Robin in Ontario(Brampton)(rjohnson1...@rogers.com )

[TMIC] July Birthdays

[Barbara H.]

Happy Birthday to the July kids! Hope you enjoyed the fireworks! :-)

Please send any additions or corrections to tmic-list@eskimo.com.

7-5 Sumer (fjs181...@aol.com)

7/5 Rick in tn (ashfo...@att.net)

7-14 Julie (chi...@cox.net)

7-15  Sandi Siegel (ssie...@myelitis.org)

7-24 Kevin Weilacher (hwyfli...@yahoo.com)

7-25 Peggy Wilson (pwi1991...@aol.com)

7-25 (jennapa...@aol.com)

7-25 Michelle Balliet (chelley...@aol.com)

7-27 Linda (lp...@aol.com)

7/29 Hildred (missprissgran...@aol.com)

7/30 Dex Packard (d...@centurytel.net)

Re: [TMIC] Looking for input.

[Barbara H.]

I haven't really noticed if spasms are worse, but my main problem with the
heart is that it just drains me of energy. I'm much more easily fatigued in
the heat, but I am stiffer in the cold and am almost home-bound when it is
icy due to balance and footing problems.

Barbara H.
http://barbarah.wordpress.com

On Mon, Jun 25, 2012 at 1:29 AM, Janet Dunn  wrote:

>  Hello Everyone - not sure who is on here anymore.
>
> I have written in before, several times in fact, bemoaning the issues that
> I have with the cold cold winters that we get up here in northeastern BC.
>
> Now, it is the heat.  My question is this:  does excessive heat cause
> issues like the cold does?  I have never noticed it before, but this year I
> quit taking Lyrica, and I cannot get the spasming in my leg to stop, no
> matter what I try.  I am wondering if stopping the lyrica has contributed
> to the increase in pain, or if it is heat related?
>
> Thanks for your input.
>
> Janet
>

[TMIC] June Birthdays

[Barbara H.]

Happy Birthday to those born in June!

We also remember two TMers who have passed on whose birthdays were this
month: Tom Carr (halfj...@sbcglobal.net) on 6-2 and Dennis Galvan (
dennis_gal...@uccsn.nevada.edu) on 6-25.

Please send any additions or corrections to tmic-list@eskimo.com

6-1 Akua (a...@artfarm.com)

6-5 Tobe Kanon (spirita...@verizon.net)

6/11 Marabeth (mes...@earthlink.net)

6-11  Sharon Marsden (dorightra...@yahoo.com)

6-17  Cheryl (rn11...@yahoo.com)

6-19 Tom in Delaware (t-...@usa.com)

6-19 Debbie Capen (dca...@earthlink.net)

6-22 Ann Moran (annmo...@gofree.indigo.ie)

6-22 Gerry (suret...@sympatico.ca)

6-24 Lynne (lynnemye...@yahoo.com)

6-25  Errol White (eamjwh...@bigpond.com )

6-28 Kim Harrison (kimharrison...@comcast.net)

6-29 Pauline (prha...@aol.com)

6/30 Bobby Jim (elbobber...@earthlink.net)

Re: [TMIC] the list

[Barbara H.]

Sorry, it's an automated process you have to do yourself. Here are the
instructions from the TMIC web site at http://www.myelitis.org/tmic/:

Unsubscribe from TMIC-LIST
To unsubscribe from the list, send email to
tmic-list-requ...@eskimo.com,
with the Subject *unsubscribe*. That's all that's needed.

To unsubscribe from the digest, send email to
tmic-digest-requ...@eskimo.com,
with the Subject *unsubscribe*. That's all that's needed.

Note: AOL users & some other mailer may require something written in the
message body before it will send. Note that the subscribe/unsubscribe
address *is different from* the regular TMIC address.


On Thu, May 17, 2012 at 1:18 PM, Leslie Ballard wrote:

>
> PLEASE REMOVE ME FROM EVERYONES LIST! I hav requested that in the past but
> keep getting e mails. Thank you in advance!
> --
>  On Thu, May 17, 2012 11:33 AM CDT Candy wrote:
>
>  >Hi. I am a new member and finding it very hard to find anyone using the
> actual website. I do not like Facebook. Was hoping the forum used on the
> site would stay current with folks given their experiences and treatment. I
> use to blond to a site for sarcoidosis called "team inspire". they have a
> great set up for communicating and being able to talk with an individual
> off line.
>  >Having new health issues are scary and hope to find others who have
> similar problems. I am sitting at my infusion center getting my first
> rutaxin treatment. God bless all
>  >Candy
>  >
>  >Sent from my iPad
>  >
>  >On May 17, 2012, at 9:32 AM, "rn11...@yahoo.com" 
> wrote:
>  >
>  >> Hi Rob,
>  >> I'm still here,but seldom get posts from the tmic site. Sadly,it seems
> almost everyone has moved to facebook.
>  >> I'm not a fan of that site,so I just don't post much anymore. If I
> post on tmic, I get few replies.
>  >> I do wish facebook would go away (fat chance of that) so we could have
> our group back. I miss everyone! There was a nice feel to our tmic group.
>  >> I hope you are doing okay.
>  >> Cheryl
>  >>
>  >> From: Robert Pall 
>  >> To: tmic-list@eskimo.com
>  >> Sent: Thursday, May 17, 2012 8:33 AM
>  >> Subject: [TMIC] Is anyone here?
>  >>
>  >> Hi...lately the only mail I receive is from"friends living with TM"
> I just left that facebook room because I was getting far to many chats.
> Is our network still active or has everyone joined another group. This is
> where I started and this is where I belong.
>  >> I would love to hear back from all of the "active" members and see how
> they are doing!
>  >> Rob in New Jersey
>  >>
>  >>
>
>

Re: [TMIC] Is anyone here?

[Barbara H.]

Still here! :-) It seems like the list here goes pretty quiet for several
days in a row and then will have a flurry of mail for a few days.

I'm about the same -- walking, but not always steady, balance issues,
bathroom issues, fatigue and muscle spasms, but overall doing well.

Barbara H.
http://barbarah.wordpress.com

On Thu, May 17, 2012 at 8:33 AM, Robert Pall  wrote:

> Hi...lately the only mail I receive is from"friends living with TM" I
> just left that facebook room because I was getting far to many chats. Is
> our network still active or has everyone joined another group. This is
> where I started and this is where I belong.
> I would love to hear back from all of the "active" members and see how
> they are doing!
> Rob in New Jersey
>

[TMIC] May Birthdays

[Barbara H.]

Happy Birthday to those born in May!

Please send any additions or corrections to tmic-list@eskimo.com.

5/5 Linda Garrett  (limoga43...@yahoo.com)

5/7 Dennis Rabalais (dennis_rabalais20...@yahoo.com)

5-11 Lynn (roseofr...@aol.com)

5-12 mother...@msn.com

5- 19 Maureen Wroblewski Hallagan (walterhalla...@msn.com)

5/31 Wendy Wood (ww...@optonline.net)

[TMIC] Exercising with limited mobility

[Barbara H.]

I saw this link today and thought some of you might be interested. I've
been reading SparkPeople.com for a while now and getting their daily
e-mails, and one recent one had this link to exercises for those with
limited mobility:

http://www.sparkpeople.com/resource/lifestyle_center_detail.asp?id=19

I haven't looked into it much more than a quick perusal yet, but I was
interested because when I've tried different workout DVDs or systems, I've
haven't found any that I can do all of (I can walk but can't run, am
wobbly, have balance problems, and my knees and ankles give out). I've
found a couple of walking DVDs that are helpful (that show different
stretches and steps to break up the monotony) and can do some of the
exercises on the Biggest Loser Ultimate Workout for the Kinect game system,
but at several points have to adapt somehow because I can't follow the
routine at points.

I was exercising regularly for the first time in ages last year but injured
my back just before Thanksgiving, and haven't gotten back into a routine.
That's one thing I discovered: exercising helped some muscles immensely but
also seemed to set off muscle spasms in my back. It also helped increased
stamina and energy levels, so I need to get back into it and find exercises
I can do.

Anyway -- I want to look into these more but thought I'd go ahead and pass
them along.

Barbara H.
http://barbarah.wordpress.com

[TMIC] In Memorium

[Barbara H.]

As I was preparing the birthday list for this month, I saw that April was
the birthday month of two long-time TMIC members who have passed on: Ken
Oliver (birthday: April 1) who just passed away this last year I think, and
"Doc" (Roger: I am not sure of his last name) (birthday: April 24). I don't
have the contact information for any of their family members, but if any of
you do, they might appreciate hearing that we were thinking of their loved
ones and their loss and ours.

Barbara H.
http://barbarah.wordpress.com

[TMIC] April Birthdays

[Barbara H.]

Happy Birthday! May all your April showers bring May flowers!

(Please send any additions or corrections to tmic-list@eskimo.com.)

04/03 Jeron Rampersad (rumc...@hotmail.com)

4/10 Marie Dipietro (deer...@aol.com)

4/18 Bernard Butcher (bernie.butc...@honeywell.com)

4/20 Dianna (carg...@cs.com)

04/20 Todd Tarno (toddtm2...@sbcglobal.net)

4/21 Robert Diehl (sawmil...@verizon.net)

4-25 Shelia (sc...@aol.com)

4-29 Dalton H. Garis (malugss...@gmail.com)

[TMIC] March Birthdays

[Barbara H.]

Happy Birthday to those born in March!

Please send any additions or corrections to tmic-list@eskimo.com.

3-3 Marsha Scholes  (marshab...@comcast.net)

03.05 Bettie Imus (bettie5...@aol.com)

3-7 Sue Mattis (bobsue6...@adelphia.net)

3-15  Sandra Melville (luth...@comcast.net)

3-17  Joy S. (joyst...@aol.com)

3-19  Betty Clark (beecl...@aol.com)

3/24 john h (JOHNLOVESKARAOKE)

3/26 Jane Elrod (celr...@aol.com)

3/30 Gary (gbthomas8...@sbcglobal.net)

3-31 Jan H. (jmh1...@sbcglobal.net)

Re: [TMIC] Please help!

[Barbara H.]

Hi Sally,

I don't know if anyone has answered you privately.  I haven't seen an
answer come through the list, so here goes:

To Unsubscribe, send an e-mail to
tmic-list-requ...@eskimo.comwith
"Unsubscribe" in the subject line. It's automated, so you don't need
to write anything more unless your e-mail provider requires something in
the body of the e-mail.

Please note that this is different from the regular TMIC e-mail

TMIC list email :tmic-list@eskimo.com
Subscribe/Unsubscribe e-mail:
tmic-list-requ...@eskimo.com
.

I think that's where most people make a mistake.

Barbara

On Thu, Jan 26, 2012 at 9:01 AM, Sally Wilkinson <
sally.wilkin...@genesisdesign.uk.com> wrote:

> This is Sally Wilkinson in the UK. I am not the brightest cookie in the
> jar, as I have been trying to unsubscribe since before Christmas! I am the
> wife of a TM'er, and can not spare the time to read the posts at work
> anymore for fear of my MD catching me. Plus my husband has his own TM
> people he talks to.
>
> ** **
>
> All the very best to all of you,( and good-bye soon I hope.) Someone said
> Jim Lubin could help? As the only breadwinner in my house I really do need
> to escape please!
>
> ** **
>
> Sally Wilkinson
>
> Business Development Manager
>
> Genesis Design
>
> The Barn Ipsden Oxfordshire OX10 6AS
>
> +44(0)1491 682277
>
> sally.wilkin...@genesisdesign.uk.com
>
> www.genesisdesign.uk.com
>
> ** **
>
> [image: Description: Description: 
> Twitter]
> 
>
> ** **
>
> Genesis Portfolio 
>
> ** **
>
<>

[TMIC] January Birthdays

[Barbara H.]

Happy Birthday to the New Year's kids from January!

Please send any additions or corrections to tmic-list@eskimo.com.

1/8 Nancy Williams   (willj...@aol.com)

1-8 Sandi (sam...@fidmail.com)

1-17 Ginna Hamilton (ginnahamil...@yahoo.com)

1/20 Kay Cole (k...@cole.gen.nz)

1-21 Blaine Frye (xring...@mwt.net)

1/21 Carol Easterday snow121...@hotmail.com

1/23 Grace (grace...@gmail.com)

1-27 Pat S. (w2sm...@aol.com)

1-28 Holly (r...@aol.com)

1-28 Sally (thenavigato...@aol.com)

Re: [TMIC] Cody in icu

[Barbara H.]

I'm so sorry he has been having problems, but I am glad to hear that he
seems to be doing better. Hope the improvement continues and he's able to
come home soon.

Barbara H.
http://barbarah.wordpress.com

On Wed, Dec 7, 2011 at 4:50 PM, Cody  wrote:

>   Hi all,  Just got in from the hospital. He is off the ventilator, still
> has feeding tube but they are going to do a swallow test and he may get off
> of it tonight or tomorrow. They have not found any sign that he is having
> any neurological problems and I felt like hugging the doctor. They still
> have some of the test that haven’t came in yet from the spinal tap, but he
> said he wasn’t expecting anything. He was doing well enough I came home to
> get some things done..Judy
>
>
>

[TMIC] December Birthdays

[Barbara H.]

Happy Birthday to those born in December!

Please send any additions or corrections to tmic-list@eskimo.com.

12-2 Meghan (bluemeg...@hotmail.com)

12/2 Ashlee Black (tracey.bl...@hnoins.com)

12/3  Janice (jan...@centurytel.net)

12-3 Wim from Holland (wim_from_holl...@hotmail.com)

12-4 Jan Burgess (ja...@rogers.com)

12-7 Patti in Wisconsin (patticoo...@wi.rr.com)(wpcoo...@gmail.com)

12-8 Lori Malloy (jorlcummi...@earthlink.net)

12-15  Alton Ryder(a-ry...@comcast.net)

12-18 Rod Jenke (rktje...@chariot.com.au)

12/23 Roger Pratt (r.c.pr...@frontier.com)

12-25 Gilly (mingalett...@activ8.net.au)

12/31 Janet (j.d...@shaw.ca)

Re: OT - Re: [TMIC] re marieke dufresne

[Barbara H.]

She's been on TMIC for years. The latest e-mail address I have for her is
marieke...@hotmail.com)

Barbara H.

On Sun, Nov 13, 2011 at 1:23 AM, Bernie  wrote:

>  *Who is this person Marieke DuFresne?
> Bernie
> *
>



On Sat, Nov 12, 2011 at 9:08 AM, wim from holland <
wim_from_holl...@hotmail.com> wrote:

>  marieke...@hotmail.com this email adress was in my computer, don't now
> if it is the latest.
>
> --
> From: suret...@sympatico.ca
> To: tmic-list@eskimo.com
> Date: Thu, 10 Nov 2011 16:40:42 -0500
> Subject: [TMIC] re marieke dufresne
>
>
>  does anyone have her email please?
>

Re: [TMIC] Ella's Address

[Barbara H.]

Same thing happened to me but she did respond a few hours later from that
address.

Barbara H.

On Tue, Nov 1, 2011 at 10:33 PM, Akua  wrote:

> I just sent Ella a Happy Birthday  note and got a spam reply.
>
> She must have a new address or her  email has been hacked.
>
> Akua
> --
>
>

[TMIC] November Birthdays

[Barbara H.]

Happy Birthday to those celebrating in November!

Please send any additions or corrections to tmic-list@eskimo.com.

11-01 Ella (elbanks...@aol.com)

11-2 Jeff (jeffsmokeea...@yahoo.com)

11-03 Gina (gina1103c...@aol.com)

11-6 Margaret Monson (mag...@telus.net)

11-8 Diane (mon...@sympatico.ca)

11-12 Marie (chestnutr...@gtcom.net)

11/13  Kevin (wolft...@optonline.net)

11-17 Becky opi...@bellsouth.net

11/18 Drema (dho.d...@comcast.net)

11/20 Cossy (cos...@yahoo.com)

11/22 Judy Hoops (heyjude48...@aol.com)

11-25 Gunny (bgunny7...@aol.com)

11-27 Jack McMillan at rebarj...@aol.com

11-30 Louise Flagg (fla...@webtv.net)

Re: [TMIC] No Messages

[Barbara H.]

I don't know -- there have been several. Did you get accidentally
unsubscribed and have to resubscribe? That has happened to me several times.
You can check the messages that have come through TMIC at the archives here:
http://www.mail-archive.com/tmic-list%40eskimo.com/maillist.html

Barbara H.
http://barbarah.wordpress.com

On Sat, Oct 29, 2011 at 11:46 AM, Carol E  wrote:

>  I have not received 1 message for a month.  What happened?
>
> *Carol *
> Worrying does not empty
> tomorrow of its troubles;
> It empties today of its strengths.
>
>

Re: [TMIC] How can a spouse help?

[Barbara H.]

On Mon, Oct 10, 2011 at 12:08 PM, Barbara H.  wrote:

> Dear Andrea,
>
> I'm so sorry to hear that your family is going through this. It definitely
> takes a while to adjust. I would echo what others have said about seeing a
> neurologist to let him know whatever meds he is on aren't helping with the
> pain. It may lessen over time -- for me pain was only an occasional thing,
> not constant, but after 16+ years it's not a regular problem any more.
> Physical therapy helped me immensely with movement and balance -- I don't
> know if help in those areas would help with pain as well.
>
> I mainly just wanted to encourage you not to take his anger personally.
> Different people react differently to TM, and anger can be a stage of grief
> in adjusting to what he has lost. Should he take it out on you? No, and
> hopefully some day soon he will see that. But you are the closest person to
> him and the one with whom he can most easily let down his guard, so you tend
> to be the recipient.
>
> We're here for you -- whether you have questions or just need to vent.
>
> Barbara H.
> http://barbarah,wordpress.com
>


>
> On Mon, Oct 10, 2011 at 9:38 AM, Andrea wrote:
>
>>  Dear TM support group,
>>
>> ** **
>>
>> My husband became ill with TM in May 2011 and his symptoms have remained
>> constant. He is in extreme pain from his chest down to his toes. The pain
>> can be burning, tingling, icy, stabbing… He is now saying that he wants to
>> end his life because he can no longer endure the suffering. He says that I
>> am no help and do not understand what he is going through. This is correct.
>> I do not understand. Because he looks normal, it is easy to forget that he
>> is in constant pain.  This is why I went online to see if I can find a group
>> that does understand and can possibly provide hope for him. I realise there
>> is no guarantee that the symptoms will go away, but after reading your
>> online stories, it looks like it can be possible.
>>
>> ** **
>>
>> Additionally, what can a spouse do to provide more support? He has had the
>> symptoms for almost 6 months and every day plays like a broken record. I ask
>> every day how he is and he unleashes a long list of painful symptoms.
>> Besides taking his meds, is there any other therapy I can arrange for him
>> that may provide relief? I feel useless. He is angry that I am not doing
>> more, but I do not know what I can do besides taking care of the home and
>> kids without burdening him with additional tasks.
>>
>> ** **
>>
>> Any advice would be greatly appreciated.
>>
>> Warm regards,
>>
>> Andrea
>>
>> ** **
>>
>
>

Re: [TMIC] My son Chris OFF TOPIC

[Barbara H.]

Oh my Jane...I am so very, very sorry

Barbara H.

On Thu, Oct 6, 2011 at 6:10 PM,  wrote:

> **
> MY SON CHRIS DIED LAST NIGHT.  HE WAS DIABETIC AND DID NOT TAKE CARE OF
> HIMSELF.  HE WAS 36 YEARS OLD.   I DON'T KNOW HOW I WILL BE ABLE TO BURY
> HIM.  THE LORD WILL MAKE A WAY SOMEHOW.
> MY SECOND DAUGHTER PAM DIED LAST DEC 1, 2010.
>
> SORRY I JUST NEED TO EXPRESS MYSELF
>
> JANE/SPLENDORA TX
>
>

[TMIC] October Birthdays

[Barbara H.]

Happy Birthday to the October kids!

Please send any additions or corrections to tmic-list@eskimo.com.

10-3  Lauren Graham (grahamsn...@aol.com)

10/4 Neil McNeil (n...@hotmail.com)

10-7 Naomi (ladyno...@aol.com)

10/08/1974 Rudy Aceves (race...@vengrp.com )

10/8 Tim Holder (thol...@fbclr.org)

10/9 Assunta Rene ( robert...@hotmail.it)

10/11/56  Lori B. (lbieh...@earthlink.net)

10-11  Kate  (nicwi...@cox.net)

10-12 Diana Gray ( graymyfat...@aol.com)

10/14 Marieke Dufresne! (marieke...@hotmail.com)

10/14 Lanora (noni...@hotmail.com)

10/16 Sandy Parker ( parkersw...@aol.com)

10/16 Linda Cherpeski (cherp...@msn.com)

10-21   Renee A. in CT (littlem...@aol.com)

10-21 Cody Kidwell ( c...@austin.rr.com)

10/21 Candy K (cakal...@embarqmail.com)

10-23-60 Keith (leboo...@cfl.rr.com )

10-25 Debby Jones ( ladybutl...@comcast.net)

10-26 Jim Lubin jlu...@eskimo.com

10/27 Robin (moldr3...@aol.com)

10/27 Krissy ( ladykri...@comcast.net)

10-28 Netta Ganor (net...@isdn.net.il)

10/31 Jennifer Spence (jenniferspe...@cogeco.ca)

Re: [TMIC] OFF TOPIC; my cancer marker results

[Barbara H.]

So glad to hear that! Thanks for letting us know.

Barbara H.
http://barbarah.wordpress.com

On Thu, Sep 22, 2011 at 4:15 PM, rn11...@yahoo.com wrote:

> Hi Everyone,
>Got my blood work results today. My CA2729 (a cancer "marker") has gone
> from 112 down to 53.8 . The letrozole seems to be working!
>Thank you for the prayers,I really appreciate it.
>   Cheryl
>

[TMIC] Is Living With Illness Choosing to Give In?

[Barbara H.]

Just saw a really neat article on a friend's Facebook: Is Living With
Illness Choosing to Give In?

http://invisibleillnessweek.com/2011/09/06/is-living-with-illness-choosing-to-give-in/

It's not directly TM related but I would guess many can identify with it..

Barbara H.
http://barbarah.wordpress.com

Re: [TMIC] September birthdays

[Barbara H.]

If you (and anyone else) will let me know when your birthday is, I'd be glad
to add it on. I don't know these things unless someone tells me. Every month
I add to the birthday list "Please send any *additions* or corrections to
tmic-list@eskimo.com." (Or you can send it to me privately -- I just put the
TMIC address so everyone will be aware of it.

If you've sent it before and I missed it, my apologies. But I'd be happy to
correct that now.

Barbara H.

On Thu, Sep 1, 2011 at 2:37 PM, randy rankin  wrote:

> thanks for birthday wish.
> as usually, my name gets left off the list lol - 4th year in a row lol
> but it just reminds how old that i'm getting
>
> *From:* Barbara H. 
> *To:* tmic 
> *Sent:* Wednesday, August 31, 2011 11:01 PM
> *Subject:* [TMIC] September birthdays
>
> Happy Birthday to the September kids -- hope you each have wonderful
> birthdays!
>
> Please send any additions or corrections to tmic-list@eskimo.com.
>
> Most of you remember Pam Montz -- her birthday was 9/9, but she passed away
> not too long ago. I don't know if her husband kept her e-mail open (it was
> montzma...@aol.com), but you might keep her family in your thoughts and
> prayers and maybe even send a note if you feel led to do so.
>
> 9/5 Mavis White (Errol's wife) (eamjwh...@bigpond.com )
>
> 09-06 Jake DeGrand (judidegra...@yahoo.com)
>
> 9-8 Mary Davidson (keebe...@aol.com)
>
> 9/8 Terry Parker (parkersw...@aol.com)
>
> 9-16  Mary Eden Cochran (coch6...@bellsouth.net)
>
> 9-17 Bill Wimberly- (bwimbe...@bellsouth.net)
>
> 09/20 Rob Pall (robthe...@aol.com)
>
> 9-23 Karen  (Mushroo) (mush...@juno.com)(mushr...@hotmail.com)
>
> 9-24  Suzi in Seattle (ss1...@aol.com)
>
> 9/26 Allen Rucker a...@allenrucker.com
>
> 9/30 Patti Enstrom (pge...@aol.com )
>
>
>
>
>
>

[TMIC] September birthdays

[Barbara H.]

Happy Birthday to the September kids -- hope you each have wonderful
birthdays!

Please send any additions or corrections to tmic-list@eskimo.com.

Most of you remember Pam Montz -- her birthday was 9/9, but she passed away
not too long ago. I don't know if her husband kept her e-mail open (it was
montzma...@aol.com), but you might keep her family in your thoughts and
prayers and maybe even send a note if you feel led to do so.

9/5 Mavis White (Errol's wife) (eamjwh...@bigpond.com )

09-06 Jake DeGrand (judidegra...@yahoo.com)

9-8 Mary Davidson (keebe...@aol.com)

9/8 Terry Parker (parkersw...@aol.com)

9-16  Mary Eden Cochran (coch6...@bellsouth.net)

9-17 Bill Wimberly- (bwimbe...@bellsouth.net)

09/20 Rob Pall (robthe...@aol.com)

9-23 Karen  (Mushroo) (mush...@juno.com)(mushr...@hotmail.com)

9-24  Suzi in Seattle (ss1...@aol.com)

9/26 Allen Rucker a...@allenrucker.com

9/30 Patti Enstrom (pge...@aol.com )

Re: [TMIC] gone to facebook

[Barbara H.]

I'm still here, too. I don't comment as much -- if someone else has already
said what I might have said, then I don't usually chime in. The TMIC as a
whole is not nearly as active as it was when I first joined back some...oh,
14-15 years ago. I'm coming up on my 16th "anniversary" with TM on Sept. 1.
I think one reason is that there is a lot of information available online
now, and that's a good thing. When I first contracted TM, I didn't have a
computer, and the local library had a two-page spread in one medical book,
and that was it. TM was the first thing I searched for when we did get a
computer, and this group was the first concrete link I found. It was a
godsend, really, to have somewhere to post questions and compare notes. But
now that so much more information is online, people may be getting their
questions answered in their own research.

And I think, too, for some of us who have been here a while, we've gotten
our basic questions answered (even if the answer in some cases is that there
is no known answer), so there's not as much to talk about. The main reason I
stay on now is to be of help if anyone else has a question or just needs
some empathy and support.

Too, as Roger said, some have gone on to other means of communication now. I
think the TM message board or bulletin board was pretty active for a while,
and now Facebook is where many people go to interact online. I was in the
group there for a while, but left -- the 50+ messages Bobby Jim referred to
were just too much for me. When I first came online, TMIC was about the only
thing I "did" online besides an occasional e-mail to family who had e-mail.
But now nearly everybody has e-mail, many friends are on Facebook, I've
found several blogs I read as well as news and entertainment -- now I have
to be careful not to let computer time eat up too much of my day. And I
don't know, but I think that may be the biggest reason some folks aren't as
active.

When I send out birthday greetings, if an e-mail bounces back to me, I'll
make a note of it so I don't post that non-working e-mail again next time,
but I don't delete the name in case they come back. It is sad every month to
see that there are almost as many inactive names there as there are active
now. I miss hearing from some of those folks and wonder how they are.

But I truly think as long as there is a TMIC, there will be some of us here.
We just need to wave every now and then. :-)

Barbara H.
http://barbarah.wordpress.com

Re: OT Re: [TMIC] Hope You're Safe

[Barbara H.]

My oldest son is in RI. This is the first time he will have weathered
something like this away from home. Praying for all in Irene's path.

Barbara H.
http://barbarah.wordpress.com

On Sat, Aug 27, 2011 at 11:14 PM, Kevin Wolfthal wrote:

>
> Irene just starting to hit here in Connecticut. My town in
> direct path. Prayers to all.
>
> Kevin
>
>
>
>
>
>
> Akua wrote:
>
>> I freaked out yesterday when i saw the map on TV.
>> Called friends and family in my hometown, NYC.
>> Hope you're safe Dalton!
>>
>> My family in Queens has a generator and has stocked up on food.
>> My friend in lower manhattan has decided to stay, my friend
>> uptown has stocked.
>>
>> I love my hometown and pray all goes well. There has never ever
>> been an evacuation there before.
>>
>> That all be well.
>> Akua
>>
>
>

Re: [TMIC] Re: MOM

[Barbara H.]

There is such a thing as recurrent transverse myelitis: the Johns Hopkins
site describes it as "the presence of more than one episode meeting the
criteria for TM with intervening improvement and excluding the presence of
multiple sclerosis. More than half of these recurrent cases have an unknown
cause." (
http://www.hopkinsmedicine.org/neurology_neurosurgery/specialty_areas/transverse_myelitis/about-tm/recurrent-tm.html).


But that may not be what is going on here, either. I don't know if TM
affects CO2 level -- unless it's affecting her diaphragm and therefore her
breathing. Hopefully they'll be able to figure out what's wrong.

BTW, Tracy, all you have to do to send a message to the group is to send it
to tmic-list@eskimo.com. The tmic addresses with "request" in them are
automated addresses where people join or leave the group.

Barbara H.
http://barbarah.wordpress.com

On Tue, Aug 16, 2011 at 7:40 PM, Laura Beaudin wrote:

> Hi Tracy,
> TM is not a progressive condition beyond the initial acute attack.
> Afterward, either you recover, or you don't. Sounds like something else is
> attacking her...have they ruled out Guillain-Barree? Malignant MS? Tumors?
> So many things can cause this.
> Laura
>
>
>
>
>
> On Tue, Aug 16, 2011 at 1:52 PM, Todd Tarno wrote:
>
>> Hey Tracy,
>> TM is usually is a ONE time hit.
>> If it's TM again, there is a name for it, but
>> sorry I don't remember the name before TM.
>> When asking questions on the TM list,
>> TMIC 
>> Where did her TM hit on her spinal cord?
>> The higher it hits ( level C ), the more problems with breathing.
>> I don't know anything about the CO 2 being high.  Sorry :(
>> Please share her systems with us, so that we
>> may be able to tell if it might be or not TM.
>> We all will be praying for her at this time,
>> Todd in Corpus Christi, TX
>> TM since April 1, 2002 @ T-4 to T-8
>>
>>
>> --- On *Tue, 8/16/11, Tracy Lea Bell * wrote:
>>
>>
>> From: Tracy Lea Bell 
>> Subject: Re: [TMIC] Re:
>> To: "Blaine Frye" 
>> Cc: "tmic-list-requ...@eskimo.com" , "
>> tmic-list@eskimo.com" , "lettersfor1g...@rambler.ru"
>> 
>> Date: Tuesday, August 16, 2011, 9:42 AM
>>
>> I have several things to ask and I hope anyone can help...my mom has been
>> in the hospital for two weeks and now has been moved to ICU. Every day
>> something new pops up.  They have no idea what is wrong now her CO 2 is so
>> high she can hardly breath... She has had TM for a year now and they keep
>> saying it's not the TM and I just don't know how TM progresses...I don't
>> know how to send this to the whole group
>>
>> Thank you Tracy
>>
>>
>>
>>
>

[TMIC] August Birthdays

[Barbara H.]

Happy Birthday to the many celebrating this month!

Please send any additions or corrections to tmic-list@eskimo.com.

8/1 Peachi (pkeene2...@aol.com)

8/1/ Cindy McLeroy (cindymcle...@socal.rr.com)

8-1 Stacy Firth (safi...@dow.com )

8-3 Larry Throne (lbthr...@hotmail.com )

8-10 Sean Indiveri (sindiv...@hotmail.com)

8-11-69 Raylene Gökeri (mrs_gok...@yahoo.com)

8-11 Michelle Maricic (mmari...@aol.com)

8-11 Dalida S. Ortiz de Garcia (py...@yahoo.com)

8/14/58 Paula (gle...@fcgnetworks.net )(returned)

8-16-44 phyllisj...@webtv.net

08/17 Sandra (Harth) Brassil (sbras...@aol.com)

8-17 Kim (jnks...@huntel.net)

8-19 Saroj (sarojkumar...@gmail.com)

8-21 Barbara H. (barbara...@gmail.com)

8-23 Cole (neilandwe...@rogers.com)

8-29 Kathleen (kathleen.kar...@gmail.com)

8- 31 Robin in Ontario(Brampton)(rjohnson1...@rogers.com )

Re: [TMIC] member of list passes away

[Barbara H.]

I am so sorry to hear about Mary's passing. Thanks for letting us know. I
know it is so hard to lose someone you care about. My thoughts and prayers
are with you.

Barbara H.

On Fri, Jul 1, 2011 at 4:43 PM,  wrote:

> **
> Dear friends, I am Sarah Weil, Mary T Thompson's partner.  Mary passed away
> on 6/14/11.  I know she enjoyed getting these posts, she hadn't been well
> enough to use her computer for awhile, but she told me she tried to help
> other TM folks with a dose of info and reality checks when needed.  Mary
> could be blunt at times, but her heart was always in the right place. She
> cared very much about others struggling with this disease.  All the best to
> all of you.  sincerely,  Sarah
>

[TMIC] July Birthdays

[Barbara H.]

Happy Birthday to the midsummer kids! Hope you have a great one!

Please send any additions or corrections to tmic-list@eskimo.com

7-5- Sumer (fjs181...@aol.com)

7/5. Rick in tn (ashfo...@att.net)

7-14 Julie (chi...@cox.net)

7-15  Sandi S. (ssie...@myelitis.org)

7-24 Kevin Weilacher (hwyfli...@yahoo.com)

7-25 Peggy Wilson (pwi1991...@aol.com)

7-25  (jennapa...@aol.com)

7-25 Michelle Balliet (chelley...@aol.com)

7-27 Linda (lp...@aol.com)

7/29/49 Hildred (missprissgran...@aol.com)

7/30/30 Dex Packard (d...@centurytel.net)

Re: [TMIC] Hello

[Barbara H.]

Wow, Dalton. That's hard, but it sounds like from your other posts that
things are working our for the best in the long run.

Barbara H.

On Thu, Jun 9, 2011 at 8:17 AM, Dalton Garis  wrote:

> Hi Carol;
>
> This is Dalton.  I just got terminated today.  It seems I couldn't overcome
> the pull of TM, and my classroom work—that of which I was most
> proud—suffered.  I have three months' notice.  Last year they lightened the
> load and I did OK, but they said I worked too little.  This year I taught
> three courses, teaching every day, and the pain, fatigue and med-head just
> made every day agony.  It showed and the students complained.  So, that's
> it.
>
> Up till now they have been very nice.  But they don't keep persons around
> who can't pull the whole load.
>
> Not the way I wanted to go out.
>
> Thanks,
>
> Dalton
>
>
>
> From: Carol E 
> Date: Tue, 7 Jun 2011 09:43:34 -0500
> To: 
> Subject: [TMIC] Hello
> Resent-From: 
> Resent-Date: Tue, 7 Jun 2011 07:44:27 -0700
>
> Just testing to see if I am still on the list.  I'm not receiving messages.
>
>
>
> *Carol *
> Worrying does not empty
> tomorrow of its troubles;
> It empties today of its strengths.
>
>
>
>

Re: [TMIC] I need you guys....

[Barbara H.]

I'm so sorry, Jeron. No offense to your wife -- I know it is hard to watch
someone suffer, but I just can't understand leaving.

I know it is not quite the same, but we're here for you. I'll be praying for
you, I know others are as well.

Barbara H.

On Fri, Jun 17, 2011 at 4:24 PM, Jeron Rampersad wrote:

>  Hi guys,
> Sorry I have been away for so long. I've been through hell since January
> 1st this year with my complications with TM. I started having really bad
> spasms then and I just thought they were normal, but here was our little
> friend TM acting up again through an infection I managed to pick up in
> Brazil. I was treated and got better and my wife and I were relocated to the
> Caribbean, where we are from, by her company just after that. We moved and
> things settled nicely for a while, but with TM a while is all you have. I
> got another attack. I've been hospitalised on 7 separate occasions since
> then just to deal with pain, because sadly neurology is not a practised
> science in the caribbean. My wife endured all the while at my side. At least
> she did for a while.
> She finally got fed up of it all, seeing me spasm out of control in loads
> of pain must have been hard. She left me in mid April and I have been trying
> to cope since, but it's really hard. I love my wife and hate that I put her
> through so much, but I never thought she would have left. We haven't spoken
> in a month now and I have medical bills piling up and it's getting scary
> now. I just need to catch a break. It's more challenging now than when I was
> first hit by TM, because for the first time in my life I'm truly alone. I
> know my faith is being tested; I wish I knew what God wanted from me. I need
> you guys.
> Jeron
>

[TMIC] June birthdays

[Barbara H.]

Happy birthday to the June kids!

Please send any additions or corrections to tmic-list@eskimo.com.

We also remember deceased members Tom Carr, whose birthday was June 2, and
Dennis Galvin, whose birthday was June 25.

6-1 Akua (a...@artfarm.com)

6-5 Tobe Kanon (spirita...@verizon.net)

6/5 Mindy King (we4king...@verizon.net)

6/11 Marabeth (mes...@earthlink.net)

6-11  Sharon Marsden (dorightra...@yahoo.com)

6-17  Cheryl (rn11...@yahoo.com)

6-19 Tom in Delaware (t-...@usa.com)

6-19   Debbie Capen (dca...@earthlink.net)

6-22 Ann Moran (annmo...@gofree.indigo.ie)

6-22 Gerry (suret...@sympatico.ca)

6-24 Lynne (lynnemye...@yahoo.com)

6-25 Errol White (eamjwh...@bigpond.com )

6-28 Kim Harrison (kimharrison...@comcast.net)

6-29  Pauline (prha...@aol.com)

6/30 Bobby Jim (elbobber...@earthlink.net)

Re: [TMIC] OT - Asking for prayers

[Barbara H.]

I'm sorry to hear this, Bernie. I have been and will be praying.

Barbara H.
http://barbarah.wordpress.com

On Thu, May 26, 2011 at 6:56 PM, Bernie  wrote:

>  *To All TMIC family;
>I need all the prayers for my childrens mother, my ex-wife Sally.  We
> are very good friends and have a better relationship than when we were
> married. Here is a short version she wrote explaining what has been
> happening to her. many of you know she was diagnosed with Stage IV breast
> cancer years ago: here is her latest condition.  She needs all our prayers
> to survive this for any length of time.
> Thank you and Sincerely,
> Bernie*
>
> *Have been on a couple of different oral chemotherapies since first
> discovering the cancer in 2005 - Arimidex for a long time, 'til it
> apparently stopped working (when I had the double mastectomy in late 2008),
> and Xeloda, which also did not work.  This week I'll have my second round of
> Taxotere.  Couple of weeks after the first round, my hair started falling
> out, so now I'm shaved bald!
> I've lost about 80 pounds, which is skinniest I"ve been in about 30 years!
>   I look normal to myself because spent greater portion of my life closer to
> this weight, but my appearance is apparently shocking to those who haven't
> seen me in awhile.
> I get short of breath easily and my voice is hoarse most of the time.
> I've already outlived the median life expectancy of 3 years for my
> diagnosis (stage 4 breast cancer), so plan to keep it up as long as I can!
> Chemo makes me tired, so I sleep a lot.
> It's a funny kind of limbo...
> Now I see why didn't want to write this - it's depressing!   How does one
> write about cancer in an upbeat way?
> Anyway, I don't spend time wringing my hands & moaning.   Enjoy myself
> doing what I want each day and I get lots of rest!
> That's all for now..  Pray for me and keep my in your happy thoughts.
>
> *
>

Re: [TMIC] tornado concern

[Barbara H.]

I just cannot imagine what that kind of devastation is like. In our house in
eastern TN it was very tense listening to the storm and waiting through the
hours of the tornado warnings and watches. The power wobbled a couple of
times but thankfully never went out. But I can only imagine whatever feeling
we had were multiplied exponentially by those who were actually hit by the
tornadoes. My heart goes out to them, and I'll be praying, Randy.

Barbara H.
http://barbarah.wordpress.com

On Tue, May 3, 2011 at 11:05 AM, randy rankin  wrote:

> This isn't a TM item but I've gotten connected to many of you.
> LOT'S of people and communities where serious hurt, killed, and damaged.
> Many many people lost everything.
> In Alabama, we had more tornados that i can count. 3 where F4s at times,
> and one made it to F5.
> 1 mile from my brother's home near Hunstville, 6 where killed. In
> Rainsville close to 40 (39 I think) and people are still missing.
> Near my homeplace many lost everything. It was 1/2 to a mile wide and at
> times bigger.
> There is still no power or water in many areas.  Entire forests are gone -
> it often took the trees. In some places it pulled the grass out of the
> ground and removed the top soil and left a wide long brown barren trail.
> The REASON for this email is twofold.
>
> My cousin Kathy Studdard would NOT leave her cats and go to the shelter.
> She lost most of her cats anyway.  Her house was swept - and I DO mean swept
> away - like a big brown.  The blocks on the foundation were gone and it even
> removed the porch entirely.  She was taken to Atlanta with internal injuries
> and now we are getting news that is not good and we are afraid that we are
> going to loose her.  I'm not going to say 'prayer' ect and have a few send
> me multiple emails about what site is for ect. Just send warm thoughts or
> whatever you feel like doing.  Our family is just crushing under this
> situation. Even if she survives, this gorgeous lady with such awonderful
> husband and children and solid career is never going to be the same.  The
> power of this torando was so great that it removed a large oak tree with a
> plus 3 foot wide base and dropped it in a nearby field.  It didn't 'knock it
> over'.  It took the ENTIRE tree and set it back down on the other side of
> the road - ROOTS and all.
> I got another family that is also in serious need and I will send that in
> the next email if you are gracious enough to read.
>

[TMIC] May Birthdays

[Barbara H.]

Happy Birthday to all those celebrating in May!

And we remember Jim Belz, who passed away a couple of years ago, I think,
whose birthday was May 11.

Please send any additions or corrections to

5/5 Linda Garrett  (limoga43...@yahoo.com)

5/7 Dennis Rabalais (dennis_rabalais20...@yahoo.com)

5-11 Lynn (roseofr...@aol.com)

5-12 mother...@msn.com

5-19 Maureen Wroblewski Hallagan (walterhalla...@msn.com)

5/31 Wendy Wood (ww...@optonline.net)

[TMIC] Responding to e-mails

[Barbara H.]

I don't want to ruffle anyone's feathers, but it would be really helpful if
people would read through the responses to a post before responding. A case
in point is the one from Bee Clark -- almost as soon as the first e-mail
came through (at least in my inbox), it proved to be a scam and Bee
responded herself that her account was hacked and the e-mail was not from
her. But now as people log into their accounts they are responding to the
first e-mail and telling the rest of the list it is a scam when we know that
already and it has been resolved. When you see something like that, go ahead
and read the first responses to see if it has been taken care of so the list
isn't flooded with many people saying the same thing. I know some people
think the list has been too quiet, but I don't think any of us wants to read
multiple people saying the same thing over and over for hours or days.

Just sharing my two cents. :-)

Barbara H.
http:barbarah.wordpress.com

[TMIC] April Birthdays

[Barbara H.]

A short birthday list this month! That just means more cake for all of you.
:-)

Please send any additions or corrections to tmic-list@eskimo.com.

***Also, this month held the birthdays of two former TMIC members who have
passed on: Ken Oliver (4/1), who just passed away a short time ago, and Doc
(4/24). If any of you know their loved ones, I'm sure they'd appreciate
thoughts, prayers, and maybe even a little note on this day when remembering
the loss of their loved ones is particularly hard.***

04/03 Jeron Rampersad (rumc...@hotmail.com)

4/10 Marie Dipietro deer...@aol.com

4/18 Bernard Butcher (bernie.butc...@honeywell.com)

4/20 Dianna (carg...@cs.com)

04/20 Todd Tarno (toddtm2...@sbcglobal.net)

4/21 Robert Diehl (sawmil...@verizon.net)

4-25 Shelia (sc...@aol.com)

[TMIC] March Birthdays

[Barbara H.]

Happy Birthday to the March kids!

And we remember long time TMIC member Mike Hammond, whose birthday was 3/8,
who passed away not too long ago.

3-3 Marsha Scholes  (marshab...@comcast.net)

03.05. Bettie Imus (bettie5...@aol.com)

3-7 Sue Mattis (bobsue6...@adelphia.net)

3-15  Sandra Melville (luth...@comcast.net)

3-17 Joy S. (joyst...@aol.com)

3/24 john h (JOHNLOVESKARAOKE)

3/26 Jane Elrod (celr...@aol.com)

3/30 Gary (gbthomas8...@sbcglobal.net)

3-31 Jan H (jmh1...@sbcglobal.net)

Re: [TMIC] antibiotics

[Barbara H.]

I'm so sorry about that! Do you have diabetes? I know that can cause
slowness in healing, but I am sure there are other things as well that can
affect it.

I was on at least a couple of rounds of antibiotics, maybe more, I can't
remember, with a stubborn bout of cellulitis a couple of years ago with no
problems. Sometimes antibiotics can cause stomach issues - destroying the
"good" bacteria and causing diarrhea, and they advise eating yogurt to
combat that, but I did fine without it. But I don't think they affect TM.

Barbara H.
http://barbarah.wordpress.com

On Thu, Feb 10, 2011 at 4:14 AM, Gillian Clark
wrote:

>  G'day all,
> I'm looking for some advice.
> Almost 8 weeks ago, I had a nasty fall, gashed my leg and spent a night in
> hospital getting almost every test known to man or beast.
>
> The gash has still not healed, getting there, and I'm about to be put on
> yet another course of antibiotics.  It has not taken me long has it for this
> to suddenly spark a little something in my poor old brain.  I'm thinking
> that being on continuous antibiotics for 8 weeks is not what a tm patient
> should be doing.
>
> I look forward to any and all suggestions.
>
> Many thanks in advance
> Hugs
> Gilly.
>

[TMIC] February Birthdays

[Barbara H.]

Happy Birthday to the February kids!

Please send any additions or corrections to:

2-1 Jeanne Rushton (jrush...@columbiaenergyllc.com)

2/2 Ursula (uma...@t-online.de)

2/2 Lisa in TN (lsim...@aol.com)

2-5 Tita in Delaware (te...@flash.net )

2-6 Barbara Alma (balmat...@aol.com)

2-7 Barbara in Texas (babbsie1...@yahoo.com)

2-9  Frank (ftrascr...@aol.com)

2/11 Mary (mster...@yahoo.com )

2-11 Deb Casey (casey...@myway.com)

2/15 Jill (jillybean60...@yahoo.com)

2-17 JOAN FINK (2-17 mafi...@yahoo.com)

2-20 Norma (dgti...@aol.com)

2/26 Patti - Michigan (pjv1...@chartermi.net)

2/27 Cindy (rdavi...@san.rr.com)

[TMIC] Ken Oliver

[Barbara H.]

Those of you on Facebook may already know, but Ken Oliver passed away
yesterday evening. He was a long-time TMIC member and I think the oldest of
us. He will be missed.

Barbara H.

Re: [TMIC] I need help with member contacts. Will anybody help me?

[Barbara H.]

She must have some kind of automated response system set up without
realizing it. If someone who knows her could call her and help her figure
out how to turn that off, that would help immensely, I'm sure she's
frustrated thinking nobody is responding when it's just not getting through.

Barbara H.
http://barbara.wordpress.com

On Sat, Jan 8, 2011 at 4:31 PM, Janice Nichols wrote:

> That is the response I always get too.She just isn't getting anything
> from us.
> Janice
>
> -Original Message- From: Lori Biehler
> Sent: Saturday, January 08, 2011 7:49 AM
> To: TMIC
> Subject: Fw: [TMIC] I need help with member contacts. Will anybody help me?
>
>
> This is the response I get when I email Jude, does anyone know why?
>
> -Original Message- From: heyjude48...@aol.com
> Sent: Saturday, January 08, 2011 8:47 AM
> To: lbieh...@earthlink.net
> Subject: Re: [TMIC] I need help with member contacts. Will anybody help me?
>
> Hello, I am unavailable to read your message at this time.
>
>
>

[TMIC] Re: January Birthdays (1/9)

[Barbara H.]

On Fri, Jan 7, 2011 at 12:14 AM, Barbara H.  wrote:

>
>
>
>> 1/9 Julienne (julesin...@aol.com)
>>
>> 1/13 Debi (brade...@hotmail.com)
>>
>> 1-17 Jenna Stentz (jkste...@yahoo.com )
>>
>> 1/20 Kay Cole (k...@cole.gen.nz)
>>
>> 1-21 Blaine Frye (xring...@mwt.net)
>>
>> 1/21 Carol Easterday snow121...@hotmail.com
>>
>> 1/23 Grace (grace...@gmail.com)
>>
>> 1-27 Pat S. (w2sm...@aol.com)
>>
>> 1-28 Holly (r...@aol.com)
>>
>> 1-28 Sally (thenavigato...@aol.com)
>>
>>
>
>

[TMIC] Re: January Birthdays (1/8)

[Barbara H.]

On Sat, Jan 1, 2011 at 1:41 AM, Barbara H.  wrote:

>
> 1/8 Nancy Williams (willj...@aol.com)
>
> 1-8 Sandi (sam...@fidmail.com)
>
> 1/9 Julienne (julesin...@aol.com)
>
> 1/13 Debi (brade...@hotmail.com)
>
> 1-17 Jenna Stentz (jkste...@yahoo.com )
>
> 1/20 Kay Cole (k...@cole.gen.nz)
>
> 1-21 Blaine Frye (xring...@mwt.net)
>
> 1/21 Carol Easterday snow121...@hotmail.com
>
> 1/23 Grace (grace...@gmail.com)
>
> 1-27 Pat S. (w2sm...@aol.com)
>
> 1-28 Holly (r...@aol.com)
>
> 1-28 Sally (thenavigato...@aol.com)
>
>

Re: [TMIC] Careful OT

[Barbara H.]

Wow -- that's scary. I am glad they were able to help you before it got
worse. Good advice!!

Take care.

Barbara H.
http://barbarah.wordpress.com

On Thu, Jan 6, 2011 at 4:09 PM,  wrote:

>  Monday night around 11:30 I had a horrendous Heart attack. Went to North
> Side Hospital by ambulance  where they put a stent in on a 95% clogged
> artery. Gotta go back on the 28th for them to do an 80% clogged one. So, if
> you smoke, STOP. If you eat fatty foods, STOP. If your messin up your life,
> STOP. This ain't no game. Felt like mule kicked me in the chest.
>

Re: [TMIC] REHAB

[Barbara H.]

It sounds like I had a different experience from the rest of you with rehab.
After my initial 8-day stay in the hospital while they ran tests and
diagnosed TM, my neurologist wanted me to go into a 10-day stay in the rehab
unit of the hospital. My insurance wouldn't cover that. I couldn't drive
myself to outpatient rehab and my husband had to go back to work, so I had
no transportation or help to get there, so they paid for a physical
therapist to come to my home 2 or 3 times a week for about three months. It
seems to me like that would have cost them more, but I don't know --
probably not as hospital stays are expensive.

The girl who came was sweet -- she didn't mind if my kids came in and
watched or tried to do the same exercises. She was short and petite and I am
tall and...not petite...and I did wonder if she could handle it if I
fell. Thankfully
we didn't have to find out. She was great -- answered questions and gave me
specific exercises for my concerns.

I liked being at home because I didn't want to be in the hospital away from
the family, and because I felt my adjustments could be tailored to the
obstacles I would face in my own home rather than just general instruction
in the hospital. I did wonder occasionally if I missed something by not
being in rehab at the hospital, but it was out of my hands anyway.

My only quibble was that it only lasted until I was able to walk in a stable
fashion with a walker. I was thrilled with that, but felt I could have used
some more fine-tuning. It never occurred to us at the time that we could try
to push for that with the insurance company.

But I do believe that physical therapy was the best thing for my recovery,
next to prayer and God's grace.

Barbara H.
http://barbarah.wordpress.com

[TMIC] January Birthdays

[Barbara H.]

Happy Birthday and Best wishes for the New Year!

Please send any additions or corrections to tmic-l...@eskimo.com.

1- 7 Lauren (sugal...@adelphia.net)

1/8 Nancy Williams (willj...@aol.com)

1-8 Sandi (sam...@fidmail.com)

1/9 Julienne (julesin...@aol.com)

1/13 Debi (brade...@hotmail.com)

1-17 Jenna Stentz (jkste...@yahoo.com )

1/20 Kay Cole (k...@cole.gen.nz)

1-21 Blaine Frye (xring...@mwt.net)

1/21 Carol Easterday snow121...@hotmail.com

1/23 Grace (grace...@gmail.com)

1-27 Pat S. (w2sm...@aol.com)

1-28 Holly (r...@aol.com)

1-28 Sally (thenavigato...@aol.com)

[TMIC] Ken Oliver

[Barbara H.]

Many of you who are on Facebook know this already, but long-time TMIC member
Ken Oliver has been in the hospital since early December with what seemed to
be a kidney infection which then moved into his bloodstream. He was doing
better but needed rehab to build up his strength. His son posted this update
last night and gave permission to send it to the TMIC:

Here is an update on his condition. Rehab didn't work out and Dad took a
turn for the worse. We talked to the Dr. on Saturday and he told us that
since Dad is taking in little food and refusing most treatment, hospice is
the best option. He was moved to hospice this evening at the same facility
where he was to do rehab.I'm sure the family would appreciate your prayers
during this difficult time. I think Ken is 85, and by my reckoning I think
he has been the oldest TMIC member for a long time, or at least one of the
oldest. His e-mail address is kenoliver...@hotmail.com -- I don't know if
perhaps his son could receive e-mails for him and share them with him, but I
know they're able to receive updates on Ken's Facebook page.

Barbara H.

Re: [TMIC] off topic

[Barbara H.]

Oh Jane -- I am so, so sorry. I cannot imagine -- both of my parents have
passed on, and as hard as that is, I don't think it can compare with losing
a child. My heart, thoughts, and prayers are with you and your family.

Barbara H.
http://barbarah.wordpress.com

On Thu, Dec 2, 2010 at 12:11 PM,  wrote:

>  Since you are all part of my cyber family I wanted to ask for prayer for
> my family and me.  My daughter died yesterday. She was 41 and diabetic, on
> dialysis, poor health.  Her daughter was with her and it was sudden.  She
> didn't say anything just collapsed and that was it. She had been through
> s much all her life and now she is at rest with the Lord. Her name is
> Pamela Caldwell.  No more needles and hospitals. Please forgive me if I
> offend anyone but I needed to talk.
>
> Jane/Splendora Tx
>