[TMIC] Fwd: I Had To Share This Song
This was sent to me by a good friend. I hope you enjoy it as much as I did. Have a blessed day! Jude From: ccraterl...@aol.com To: dbparatroo...@aol.com, bod...@aol.com, clhack...@att.net, denise.gol...@yahoo.com, dermin...@comcast.net, gmrlsm...@yahoo.com, honda...@att.net, heyjude48...@aol.com, vickiekess...@aol.com, lbi...@sbcglobal.net, michelestja...@gmail.com, s...@toast2.net, vsell...@bellsouth.net Sent: 11/3/2013 3:38:11 P.M. Eastern Standard Time Subj: I Had To Share This Song LISTEN ALL THE WAY TO THE END. Enjoy this is SOOO true... Click on the link: _THIS IS OUR SONG_ (http://www.youtube-nocookie.com/embed/6dbBfXCMbH4?rel=0";) < A HREF="_http://www.youtube-nocookie.com/embed/6dbBfXCMbH4?rel=0%22_ (http://www.youtube-nocookie.com/embed/6dbBfXCMbH4?rel=0";) " TARGET="_blank"> Image removed by sender. Image removed by sender. Image removed by sender. No virus found in this message. Checked by AVG - http://www.avg.com/Version: 2013.0.3392 / Virus Database: 3222/6648 - Release Date: 09/08/13 <><>
[TMIC] Re: My Big Move
Hi Everyone, We just moved and I want you all to have my new mailing address and new phone number. Our new address is: Jude & Dave Hoops 129 West Lakeview Avenue Flint, MI. 48503 Our phone number is: 810-407-6311 Note: For some reason the post office requires that everything is spelled out completely and not abbreviated. "West" has to be spelled out, as well as, "Avenue". There is another 129 Lakeview Avenue, and I guess they get them mixed up a lot, so make sure, if you write, to spell everything out completely. I hope to hear from some or even all of you soon. I miss hearing from you. I see you on Facebook, but it's not the same as getting a written note in my mailbox. What have you been talking about in my absence? The move took a couple of weeks and I didn't have a computer the whole time. It felt like I was living back in the "olden" days. Thanks for letting me take up some of your precious time. I love you all and please remember to drop me a line just so I know that you are still alive and well. Love & Hugs, Jude
Re: October Birthdays [TMIC]
Hi All ~ I want to say: A Very Happy Birthday To all Those Born In October!! Love, Jude
[TMIC] Re: TM & Exhaustion
Hi Friends, Are any of you suffering with exhaustion? I am so tired all of the time that I can't stand it. What do you do to rid yourself of this malady? I hope that you have had a nice summer and you are looking forward to a beautiful fall. Winter will soon be here and it will be freezing cold here in Michigan. How does your TM make you feel in the cold weather? I love you, Jude
[TMIC] Fwd: Fw: Fwd: $5.37 (too funny) Jude
Hi All ~ This is just for giggles ~ Love, Jude From: ly3...@gmail.com To: alice.laush...@gmail.com Sent: 9/8/2013 11:03:52 P.M. Eastern Daylight Time Subj: Fwd: Fw: Fwd: $5.37 (too funny) are you feeling old,, this might cheer you up. $5.37. That's what the kid behind the counter at Taco Bell said to me. I dug into my pocket and pulled out some lint and two dimes and something that used to be a Jolly Rancher. Having already handed the kid a five-spot, I started to head back out to the truck to grab some change when the kid with the Emo hairdo said the harshest thing anyone has ever said to me. He said, "It's OK. I'll just give you the senior citizen discount." I turned to see who he was talking to and then heard the sound of change hitting the counter in front of me. "Only $4.68" he said cheerfully. I stood there stupefied. I am 48, not even 50 yet? A mere child! Senior citizen? I took my burrito and walked out to the truck wondering what was wrong with Emo. Was he blind? As I sat in the truck, my blood began to boil. Old? Me? I'll show him, I thought. I opened the door and headed back inside. I strode to the counter, and there he was waiting with a smile. Before I could say a word, he held up something and jingled it in front of me, like I could be that easily distracted! What am I now? A toddler? "Dude! Can't get too far without your car keys, eh?" I stared with utter disdain at the keys. I began to rationalize in my mind. "Leaving keys behind hardly makes a man elderly! It could happen to anyone!" I turned and headed back to the truck. I slipped the key into the ignition, but it wouldn't turn. What now? I checked my keys and tried another. Still nothing. That's when I noticed the purple beads hanging from my rearview mirror. I had no purple beads hanging from my rearview mirror. Then, a few other objects came into focus. The car seat in the back seat. Happy Meal toys spread all over the floorboard. A partially eaten doughnut on the dashboard. Faster than you can say ginkgo biloba, I flew out of the alien vehicle. Moments later I was speeding out of the parking lot, relieved to finally be leaving this nightmarish stop in my life. That is when I felt it, deep in the bowels of my stomach: hunger! My stomach growled and churned, and I reached to grab my burrito, only it was nowhere to be found. I swung the truck around, gathered my courage, and strode back into the restaurant one final time. There Emo stood, draped in youth and black nail polish. All I could think was, "What is the world coming to?" All I could say was, "Did I leave my food and drink in here?" At this point I was ready to ask a Boy Scout to help me back to my vehicle, and then go straight home and apply for Social Security benefits. Emo had no clue. I walked back out to the truck, and suddenly a young lad came up and tugged on my jeans to get my attention. He was holding up a drink and a bag. His mother explained, "I think you left this in my truck by mistake." I took the food and drink from the little boy and sheepishly apologized. She offered these kind words: "It's OK. My grandfather does stuff like this all the time." All of this is to explain how I got a ticket doing 85 in a 40. Yes, I was racing some punk kid in a Toyota Prius. And no, I told the officer, I'm not too old to be driving this fast. As I walked in the front door, my wife met me halfway down the hall. I handed her a bag of cold food and a $300 speeding ticket. I promptly sat in my rocking chair and covered up my legs with a blanky. The good news was I had successfully found my way home. -*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*- READ BELOW ! Just in case you weren't feeling too old today. The people who are starting college this fall were born in 1991. They are too young to remember the space shuttle blowing up. Their lifetime has always included AIDS. The CD was introduced two years before they were born. They have always had an answering machine. They have always had cable. Popcorn has always been microwaved. They never took a swim and thought about Jaws. They don't know who Mork was or where he was from. They never heard: 'Where's the Beef?', 'I'd walk a mile for a Camel ', or 'de plane Boss, de plane'. McDonald's never came in Styrofoam containers. They don't have a clue how to use a typewriter. Pass this on to the other old fogies on your list. Notice the larger type? That's for those of us who have trouble reading. P.S. Save the earth.. It's the only planet with chocolate. No
[TMIC] RE: Happy Birthday, September
Happy Birthday Dear Pam. I love you!! And, Happy Birthday To Those Born In September!! Love & Hugs, Jude
[TMIC] RE: Adaptive Controls on Cars
Hi Everyone, How was your summer? Did you have a good one? What did you do for fun and recreation? Did you go away or did you stay at home with your families? I was wondering if you could tell me if any of you have adaptive driving controls on your cars or vans? If so, were they covered by your insurance companies? Have you had any trouble getting your drivers license? Thanks so much, Jude
[TMIC] Fwd: TMIC] Laugh for today
Hi All, This came off the Quad list. It's kind of cute and not long at all. Humor is good for the soul. Love, Jude From: wheelch...@aol.com To: poaj...@sbcglobal.net, quad-l...@eskimo.com Sent: 8/12/2013 7:31:58 P.M. Eastern Daylight Time Subj: Re: [QUAD-L] Laugh for today Humor is Healthyand cures! Best Wishes In a message dated 8/12/2013 5:30:56 P.M. Central Daylight Time, poaj...@sbcglobal.net writes: Friend of mine sent this to me, it was just too great not to be shared. http://biggeekdad.com/2013/08/geriatric-traffic-jam/ Joan
Fwd: [TMIC] Honey to Treat Infections
Hi, This was sent to me by my friends on the Quad list, in case there are any people out there with pressure sores. Jude From: donpric...@yahoo.com To: quad-l...@eskimo.com Sent: 8/12/2013 11:26:11 A.M. Eastern Daylight Time Subj: [QUAD-L] Honey to Treat Infections By VALERIE ELLIOTT PUBLISHED: 17:43 EST, 10 August 2013 | UPDATED: 18:16 EST, 10 August 2013 'Super honey': A new type of honey has produced amazing results treating wounds and infections A new honey has been produced that has had ‘amazing’ results treating wounds and infections. The bio-engineered product Surgihoney was tested on babies, new mothers, cancer patients and the elderly for over a year in Hampshire hospitals. Wounds and ulcers, including those infected with the superbug MRSA, healed within days, while the number of women who suffered infections after giving birth by caesarean section has halved. It has also healed the wounds of soldiers returning from Afghanistan, and been used to treat acne and to protect the skin of cancer patients fitted with a catheter for chemotherapy. Read more: http://www.dailymail.co.uk/health/article-2389121/Doctors-discover-super-hon ey-amazing-power-treat-soldiers-wounds-kill-superbug-infections.html
RE: Senate passes a bill [TMIC]
Hi all, The US Senate has just passed a bill declaring September as the "National Spinal Cord Injury Awareness Month" asking the American people to "stand up for those who can't". For those of us who aren't on Facebook, I wanted to let you know what's going on. I don't know if it's been on the television yet or not, so I thought I'd send you a note. Have a great evening, Jude
RE: Happy Birthday [TMIC]
Happy Birthday to all those born in August!!! Love, Jude
[TMIC] Re: Michigan TM Walk, Run & Roll
Hi Everyone, I just wanted to let everyone know that there is going to be a Michigan Walk, Run & Roll event going on at Harderwyk Ministries, Holland, Michigan. I don't have the date, but if you go to: _www.crowdrise.com_ (http://www.crowdrise.com) you can find out all of the information. Sorry about not having the date, but my letter got swallowed up somewhere in cyberspace when my computer lost the power due to a heavy rainstorm. Thankfully I did get the other information, but then forgot to write and let you know until just now. You have to laugh at my memory...I do. Love & Hugs, Jude
Re: [TMIC] Hobbies, Creative Outlets, Amputation
Hi Everybody~ What are you all doing this summer to pass the time? I've been writing back and forth with a couple of other members and they have sent me pictures of the things that they do for creative hobbies, places they've been and things they like to do. I'm stuck here in bed, in this hot,clammy weather and need some inspiration to get me through these long days. Whatever you're doing to make yourselves happy, will you send me a note and maybe some pictures of what you're doing? Does anyone know of another person who has had a leg or an arm taken off? I want to talk or write to someone who lives with an amputated limb. I am possibly going to have my leg removed, but I can't make that decision without talking to someone who has had it done. Love & Hugs, Jude
[TMIC] RE: TM & Weather
Hi All, Have a question...how does the weather affect your TM? I have a friend who is moving from Florida and isn't sure where she is going yet. She wants to find a place where she is free from pain and where her husband can find work. I told her about Michigan, but don't know about other states. What can you all tell her? She is on Facebook, but I can pass on all of your information on to her. Thank you, Jude Michigan
[TMIC] RE: Books & Movies
Hi All, I hope that you are all having a really nice summer and that TM's ugly face is not showing itself too much to you. Just wondering if any of you could recommend something good to read this summer. I've run out of everything that I have and am too sick to get to the library, but if you give me some titles I can call and have them delivered. I like mysteries, English love stories, funny books and am pretty much game for anything that comes highly recommended. Also, if you have seen any good movies I'd be interested in hearing about them too. We haven't seen any of the new ones, in fact, we haven't been to a movie in 10 years. Thanks, I hope to hear from you soon. Love & Hugs, Jude
[TMIC] RE: June Birthdays
Hi Everyone, I have lost my Buddy List on AOL where I store all of my addresses and it is the only place where I can see everyone's email address. I want to send some birthday cards and need to have the rest of the birthdays for this month. I know that Rose has one coming up, but can't remember the rest. Please send me the remaining email addresses. Thank you! Jude Michigan
[TMIC] RE: To Those Of You Born In June!
Happy! Birthday! To! All Of You! Born! In! JUNE! Love & Hugs! Jude!
[TMIC] RE: May Birthday List
Hi Everybody, Who has the May Birthday list? I haven't seen it yet and today is the last day in May. Thank you, Jude Michigan
Fwd: [TMIC] Re: NO E-MAIL
Hi Dee, It's Jude, There hasn't been anything going on, most of everybody we know has gone to Facebook. I can't think of any more questions to ask the list in order to generate more mail and I don't know what to do about it. If you have any suggestions I sure would like to hear them. I have tried so hard to keep this list active, but it seems like something that isn't going to happen. I've been here for 12 years and this list has become a part of my heart. What can we do to change things? Any ideas? I'm going to forward this to the whole group, but you can answer me at my email address anytime. I want other people to begin making this list a priority. And I hope it happens soon. And, anyone else who has an idea about how to make this group active again, please write to me too. I love you all so much. Love & Hugs, Jude, TIAD From: jlu...@eskimo.com To: deer...@aol.com CC: tmic-list@eskimo.com Sent: 5/28/2013 8:01:40 P.M. Eastern Daylight Time Subj: [TMIC] Re: NO E-MAIL you might have to subscribe again. send a message to _tmic-list-request@eskimo.com_ (mailto:tmic-list-requ...@eskimo.com) with the subject subscribe On Tue, May 28, 2013 at 3:15 PM, <_DeeRERE@aol.com_ (mailto:deer...@aol.com) > wrote: I HAVE NOT RECIEVED ANY E-MAIL FOR TWO WEEKS. I HOPE I AM STILL ON THE LIST. I HAVE BEEN A MEMBER FOR 14 YEARS. MARIE
[TMIC] RE: Brittle Bone Disease
Hi Everybody, I was wondering if there is anyone out there who has Brittle Bone Disease like I do. This would only apply to people who cannot walk, because when a person is able to stand, that's the way to build bone. Because I can't walk, my bones have turned to what the Dr's call material. Is there anyone out there who suffers from the same disease that I have? Thanks, Jude Michigan TIAD (Remembering Pam Montz)
[TMIC] Re: My Quotes
Regarding the Inspirational Quotes of the Day, I've been informed of the fact that these kinds of messages aren't supposed to be sent through the TMIC mail. The Guidelines tell us that, but I didn't think about them when I began sending the quotes. I apologize to those who were affected by my actions. It won't happen again. I was only trying to generate mail and interaction between members of the group. Love & Hugs, Jude
[TMIC] Fwd: The Yellow Shirt (don't delete) From Jude TMIC
This was sent to me by my very best friend, read and forward, for the chain hasn't been broken yet. I love you, Jude TIAD Michigan From: ccraterl...@aol.com To: angel_...@yahoo.com, dbparatroo...@aol.com, scottbingha...@hotmail.com, buford...@aol.com, gmrlsm...@yahoo.com, honda...@att.net, heyjude48...@aol.com, jackykalvai...@ymail.com, jeannie.d...@gm.com, jessicakalvai...@yahoo.com, jwally...@att.net, vickiekess...@aol.com, michelestja...@gmail.com, ppros...@med.umich.edu, s...@toast2.net, vsell...@bellsouth.net Sent: 5/19/2013 9:11:36 P.M. Eastern Daylight Time Subj: The Yellow Shirt (don't delete) A wonderful story! Subject: Fwd: The Yellow Shirt (don't delete) Wonderful Story! The yellow shirt had long sleeves, four extra-large pockets trimmed in black thread and snaps up the front. It was faded from years of wear, but still in decent shape. I found it in 1963 when I was home from college on Christmas break, rummaging through bags of clothes Mom intended to give away. 'You're not taking that old thing, are you?' Mom said when she saw me packing the yellow shirt. 'I wore that when I was pregnant with your brother in 1954!' 'It's just the thing to wear over my clothes during art class, Mom. Thanks!' I slipped it into my suitcase before she could object. The yellow shirt be came a part of my college wardrobe. I loved it. After graduation, I wore the shirt the day I moved into my new apartment and on Saturday mornings when I cleaned. The next year, I married. When I became pregnant, I wore the yellow shirt during big-belly days. I missed Mom and the rest of my family, since we were in Colorado and they were in Illinois .. But, that shirt helped. I smiled, remembering that Mother had worn it when she was pregnant, 25 years earlier. That Christmas, mindful of the warm feelings the shirt had given me, I patched one elbow, wrapped it in holiday paper and sent it to Mom. When Mom wrote to thank me for her 'real' gifts, she said the yellow shirt was lovely. She never mentioned it again.. The next year, my husband, daughter and I stopped at Mom and Dad's to pick up some furniture. Days later, when we uncrated the kitchen table, I noticed something yellow taped to its bottom. The shirt! And so the pattern was set. On our next visit home, I secretly placed the shirt under Mom and Dad's mattress I don't know how long it took for her to find it, but almost two years passed before I discovered it under the base of our living-room floor lamp. The yellow shirt was just what I needed now while refinishing furniture. The walnut stains added character. In 1975 my husband and I divorced. With my three children, I prepared to move back to Illinois ... As I packed, a deep depression overtook me. I wondered if I could make it on my own. I wondered if I would ind a job. I paged through the Bible, looking for comfort. In Ephesians, I read, 'So use every piece of God's armour to resist the enemy whenever he attacks, and when it is all over, you will be standing up.' I tried to picture myself wearing God's armour, but all I saw was the stained yellow shirt.. Slowly, it dawned on me.. Wasn't my mother's love a piece of God's armour? My courage was renewed. Unpacking in our new home, I knew I had to get the shirt back to Mother. The next time I visited her, I tucked it in her bottom dresser drawer Meanwhile, I found a good job at a radio station. A year later I discovered the yellow shirt hidden in a rag bag in my cleaning closet. Something new had been added. Embroidered in bright green across the breast pocket were the words 'I BELONG TO PAT.' Not to be outdone, I got out my own embroidery materials and added an apostrophe and seven more letters. Now the shirt proudly proclaimed, 'I BELONG TO PAT'S MOTHER.' But I didn't stop there. I zig-zagged all the frayed seams, then had a friend mail the shirt in a fancy box to Mom from Arlington , VA. We enclosed an official looking letter from 'The Institute for the Destitute,' announcing that she was the recipient of an award for good deeds.. I would have given anything to see Mom's face when she opened the box. But, of course, she never mentioned it.. Two years later, in 1978, I remarried. The day of our wedding, Harold and I put our car in a friend's garage to avoid practical jokers. After the wedding, while my husband drove us to our honeymoon suite, I eached for a pillow in the car to rest my head. It felt lumpy. I unzipped the case and found, wrapped in wedding paper, the yellow shirt. Inside a pocket
[TMIC] Re: What do you know about these two places?
Hi All, Sorry to bother you, but I was peeking in at the mail from the Quad list and they were talking about two places that I know nothing about. One is The United Spinal Association and the other is the American Association on Health and Disability. Have any of you heard of these two places? And, if you have, what do you know about them? I'm curious as to whether there is any new information regarding TM from either of these two places. And, if there are any new devices, products, the sort of things that we can use on a daily basis. I'm wondering if you know if there is a charge to join either of these places, or if we can access them without paying anything. I'm hoping that they can offer us something new. I know that there has been some good news on the MS side, and am hoping that there is good news for us as well. Thanks so much, Jude
[TMIC] RE: Will you do me a favor?
Hi Everybody, Can you do me a favor and tell me if you were at home or were you out of town when you got hit with TM? I'm taking a survey for a friend of mine who is interested in writing a book about Transverse Myelitis and she might want to add a few of our stories so people can have a true idea of what it's like to live with TM on a daily basis. Will you keep that in mind and let me know if you would want to include your story in the book. I have to let her know in a week. I told her it would take me that long to see if my friends would be interested. Thanks for your time and I hope to hear from you soon. Hugs, Jude Michigan
[TMIC] RE: Rob & AOL
Hi All, It's Jude, I want you to know that once again I found some of your mail, this time from Tima and Janice, in my spam mail. It drives me crazy that I might be missing mail, but I check my spam mail every time I read mail. I just wanted those of you who have AOL to know that you might be missing mail if you're not checking your spam folders. And, people have been having a hard time getting mail through to Rob in New Jersey. If you have his address, send him a short note just to see if it gets to him and if it doesn't send me a quick note so I can figure out how to contact AOL. I don't have a paid account with them anymore though, so I can't call them. If anyone else does have a paid account I wish you would take on the responsibility of calling them. It would take a lot off of my shoulders. Thank you all so very much, Jude Michigan
[TMIC] RE: Your mail on TMIC
Hi Rob, I read your note on the TMIC Digest, but never received anything from you in my regular mail and we both have AOL. I know that the Quad List was having problems with their mail going into their Spam Folders. I don't know if that is what's happening with your mail, but I check my spam folder every time I open my mail. I'm not sure what you can do about this, except maybe contact AOL and tell them what's going on. I would but I don't have a paid account anymore and because of that, I can't call them. I'd hate to not get mail from you anymore, are you getting mine? I wonder how much other mail I'm not getting. When you call AOL will you please mention that to them? It would help me a great deal, and I appreciate it so much. I hope you get things straightened out. If I can do anything for you just let me know. Have a great day, Jude _heyjude48458@aol.com_ (mailto:heyjude48...@aol.com)
[TMIC] Fwd: Your Inspirational Quote of the Day Jude
Don't forget to do your mathematics now! Love you, Jude From: inspirationalda...@tamtamtap.com Reply-to: re...@tamtamtap.com To: heyjude48...@aol.com Sent: 5/13/2013 2:24:36 P.M. Eastern Daylight Time Subj: Your Inspirational Quote of the Day Judith Inspirational Quote of the Day (Mon, 13 May 2013) To solve the human equation, we need to add love, subtract hate, multiply good, and divide between truth and error. Janet Coleman Please feel free to forward this email to your friends, you can also add us to your contacts and click on not-spam to make sure these inspirational newsletters get to your inbox. If you would no longer like to receive e-mail from us you can _Click Here_ (http://un.tamtamtap.com/bin/un/a57dO189c3O2f346Oa2O6c1Oae77a4aOaGV5anVkZTQ4NDU4QGFvbC5jb20) or write us at: PO Box 105603 #21320 Atlanta, GA 30348 1-855-351-6595 (http://tr.tamtamtap.com/bin/td/a57dO189c3O2f346Oa2O6c1Oae77a4aOaGV5anVkZTQ4NDU4QGFvbC5jb20)
[TMIC] Re: Who Lives Here?
Who lives at: 15 Pomeroy St. Easthampton, Maine. 01027-2719 I want to thank you for sending me the TMIC directory and can't for the life of me remember who you are. Thanks, Jude
[TMIC] Fwd: Your Inspirational Quote of the Day Judith
This is true, providing nothing bad happens to you! Enjoy! From: inspirationalda...@rocketeit.com Reply-to: re...@rocketeit.com To: heyjude48...@aol.com Sent: 5/8/2013 2:14:14 P.M. Eastern Daylight Time Subj: Your Inspirational Quote of the Day Judith Inspirational Quote of the Day (Wed, 08 May 2013) Everything you want should be yours: the type of work you want; the relationships you need; the social, mental, and aesthetic stimulation that will make you happy and fulfilled; the money you require for the lifestyle that is appropriate to you; and any requirement that you may (or may not) have for achievement or service to others. If you don't aim for it all, you'll never get it all. To aim for it requires that you know what you want. Richard Koch Please feel free to forward this email to your friends, you can also add us to your contacts and click on not-spam to make sure these inspirational newsletters get to your inbox. If you would no longer like to receive e-mail from us you can _Click Here_ (http://un.rocketeit.com/bin/un/e34dO18722O2f346Oa2O6c1O1aadce4aOaGV5anVkZTQ 4NDU4QGFvbC5jb20) or write us at: PO Box 29502 #50467 Las Vegas, NV 89126 1-877-726-8201 (http://tr.rocketeit.com/bin/td/e34dO18722O2f346Oa2O6c1O1aadce4aOaGV5anVkZTQ4NDU4QGFvbC5jb20)
[TMIC] RE: My Buddy List
I hate to keep bugging you all, but I have another quick question. I have AOL and have listed you all as "Buddies", but when you are online none of your names show up. They used to, but I haven't seen them for a long time now. Especially for those of you with AOL, can you figure out what I'm doing wrong? Will you write back and give me a few pointers, please? I don't like sitting here, knowing you are all out there and I don't know it. Thank you very much, Love and hugs, Jude TIAD
[TMIC] Re: Our Buddy Lists
Hi Everyone! I just want to ask all of you who still keep email addresses if you would please add me to your Buddy Lists. I used to see so many people on my Buddy List, but now it's dwindled to two people. We need to be better "hooked up" to each other and instead of having to look everyone up in my address book, it would be nice to only have to click on a name to "chat" or send and "IM". I think it would be fun! If you decide to add my name or the name of anyone else, we have to notify the other person, that way we will all be on the same page, so to speak. Let me know how you feel about doing this. I've been thinking about it for a few days and think it's a good idea. Guys included too. Love and hugs, Jude tiad
[TMIC] Re: Check spam folders for mail from eskimo.com -TMIC
Hello All, It's me again. I just want to mention again that it's important for everyone to check their spam folders for email from TMIC, because members from the quad list, instead of unsubscribing from the list, told their mail providers that their mail from eskimo.com was spam. So now a lot of our mail is going into our spam folders. That was one of the reasons I wrote last time, but I don't think I made it clear enough. So make sure you check your spam folders for more mail you might be missing out on. And, if you have any ideas about how to change what's happening, let me know, because I'll do whatever I can to help the list. I want to keep on hearing from everyone. Even though it is only about 13 of us that are still mailing to the list. I don't know what to do about getting more people back on the list. And, one more thing...if anyone has an address for Patti Voorheis, will you please send it to me? I really need to contact her, but my mail keeps coming back as not delivered. Thank you very much, Jude H. TIAD
[TMIC] Re: Pattie Voorheis
Hi Pattie, I had to send this to the list because everything I send to you comes back as mail undeliverable and I don't know what else to do. Will you please send me your address so that I can record it and check it against what I already have. I miss talking with you and can't afford to call, so I hope you don't mind that I'm doing it this way. I hope that I haven't offended you in some way. Please answer as soon as you can. I appreciate it. Love and hugs, Jude TIAD
[TMIC] Re: Pain Medication Jude, Michigan
Hi All, I'm trying this color combination for a change. I went to the Dr. for the third time today for the trial on the pain pump and he used Fentanyl this time. Again, I had no results, absolutely nothing! I go back next Wed for the fourth time and he's going to use a larger dose of Fentanyl. I don't know what he's expecting to find, because I had no kind of pain relief at all. Does anyone have a suggestion on what kind of pain medication he should try? I'm at a loss. So far we've used Ocycodone and Dilaudid. What kind of experiences have you had with pain meds...the strong ones? Please let me know, I'm at my wit's end! Thank you and know that I think of you every day. Jude, TIAD Michigan
[TMIC] Fwd: Inspirational Quote of the Day Jude, Michigan
From: inspirationalda...@northgmv.com Reply-to: re...@northgmv.com To: heyjude48...@aol.com Sent: 5/2/2013 4:12:49 P.M. Eastern Daylight Time Subj: Inspirational Quote of the Day Judith Inspirational Quote of the Day (Thu, 02 May 2013) The world ain't all sunshine and rainbows. It's a very mean and nasty place and I don't care how tough you are it will beat you to your knees and keep you there permanently if you let it. You, me, or nobody is gonna hit as hard as life. But it ain't about how hard ya hit. It's about how hard you can get it and keep moving forward. How much you can take and keep moving forward. That's how winning is done! Now if you know what you're worth then go out and get what you're worth. But ya gotta be willing to take the hits, and not pointing fingers saying you ain't where you wanna be because of him, or her, or anybody! Cowards do that and that ain't you! You're better than that! Rocky Balboa Please feel free to forward this email to your friends, you can also add us to your contacts and click on not-spam to make sure these inspirational newsletters get to your inbox. If you would no longer like to receive e-mail from us you can _Click Here_ (http://un.northgmv.com/bin/un/6e88O1846eO2f346Oa2O6c1Oc28c0232OaGV5anVkZTQ4NDU4QGFvbC5jb20) or write us at: Customer Service PO Box 803338 #50467 Chicago, IL 60680 Toll Free: 1-866-907-2964 (http://tr.northgmv.com/bin/td/6e88O1846eO2f346Oa2O6c1Oc28c0232OaGV5anVkZTQ4NDU4QGFvbC5jb20)
[TMIC] Re: May Birthdays
Hi All, I want to say Happy Birthday to all my friends born in May! May you have the happiest birthday that you've ever had, And that you have many, many reasons to be glad. And if you aren't happy about this birthday, don't be sad. That's all I have to say! This is silly, don't be mad! Love you, Jude, TIAD
[TMIC] Re: Attention -The TMIC List
Hi Everyone, How are you doing tonight? It's Jude Hoops and I am writing to let you know that eskimo.com may be having a problem with our emails. It seems that some of the people who don't want to receive mail are telling AOL that our mail is Spam instead of just unsubscribing to the list. It is because of their negligence that we may not get any more emails. This list has been around for at least 12 years and I don't know how long before I signed on that it had been up and running. I know the Quad list is going to another site, but I haven't heard anything about us. Does anyone else know anything about this? If you do will you please let me know. I'm very worried about it. I know that the list doesn't function the way that it used to but it is still important to me that we all stay in touch. Oh, do any of you have the list of May Birthdays? It usually comes around before the 1st and I haven't seen it yet for this month. What do you think we should do? (Again, I don't know if it applies to us too, or just the Quad list) And one other thing, do any of you mind if I use Pam's sign off of TIAD? I just can't seem to help myself, it just keeps her alive in my heart. TIAD, Jude Hoops Michigan
[TMIC] Fwd: Inspirational Quote of the Day Jude Hoops
Hi All, I get an inspirational quote of the day and thought you might be interested in reading it So here it is... TIAD Jude From: inspirationalda...@rocketeit.com Reply-to: re...@rocketeit.com To: heyjude48...@aol.com Sent: 4/29/2013 4:18:19 P.M. Eastern Daylight Time Subj: Inspirational Quote of the Day Judith Inspirational Quote of the Day (Mon, 29 Apr 2013) Dreams are renewable. No matter what our age or condition, there are still untapped possibilities within us and new beauty waiting to be born. Dale E. Turner Please feel free to forward this email to your friends, you can also add us to your contacts and click on not-spam to make sure these inspirational newsletters get to your inbox. If you would no longer like to receive e-mail from us you can _Click Here_ (http://un.rocketeit.com/bin/un/18deO1836eO2f346Oa2O6c1O1badce4aOaGV5anVkZTQ 4NDU4QGFvbC5jb20) or write us at: PO Box 29502 #50467 Las Vegas, NV 89126 1-877-726-8201 (http://tr.rocketeit.com/bin/td/18deO1836eO2f346Oa2O6c1O1badce4aOaGV5anVkZTQ4NDU4QGFvbC5jb20)
[TMIC] Re: Transverse Myelitis
Hi Everyone! It's Jude Hoops. I was just reading the quad list and they are talking about their injuries at what level they are injured, how it happened and when it happened. Do you think that that would be something we could do too? I think it might be interesting to know how we were all injured or got sick and how long ago it was. We've all been on this list for a long time now and I was wondering whether any of us had gotten any better over the years. Let me know what you think. Just write a small paragraph about how you came to have TM, what level your injury is at and if you have seen any improvement over the years. I love you all so much and have been thinking of you. Hugs, Jude (TIAD)
[TMIC] Re: Medtronic Pain Pump
Hi All, To those of you that have pain pumps, what kind of medicine do you have going through it? How many trials did you have to go through before they found something that worked for you? Can I call you to talk about it? Will you send me your phone number? Who is it that is going through the trial now? I can't remember. I think it's Deb, but not sure. Thank you, I love you, TIAD Jude _heyjude48458@aol.com_ (mailto:heyjude48...@aol.com)
[TMIC] Re: Facebook Mailing
Hi Everyone, I want to let everyone know that I have now taken myself off of all of the mailing lists from Facebook. You can reach me at this address any time, any day and I will answer your letter right away. Thank you all so much for understanding. I hope you keep the lines of communication open and remember that we are friends. I hope you all are doing well and want you to know that if you ever need anything I'll be right here...just like ET. Love you all, Jude, Remember, TIAD
[TMIC] Re: tmic-digest Digest V2013 #190
You know, Betty...I think about the same things all the time. It isn't fun getting older and the thought of not being able to do things for myself is unbearable. You have it easier than me though, because you can walk, but all in all, the future is kind of difficult for us TM'ers to face. I'd like to wish you a happy anniversary, but I know it isn't one you really want to celebrate. I do wish you all the best that life has to offer and hope that you continue to do all of the things you need to do to keep yourself going. Enjoy life to the fullest! Remember, TIAD. Love, Jude In a message dated 4/17/2013 7:09:46 P.M. Eastern Daylight Time, tmic-digest-requ...@eskimo.com writes: tmic-digest Digest Volume 2013 : Issue 190 Today's Topics: [TMIC] Hi!!! [ Shirley Gurnell ] _http://www.ou-zaharistoyanov.com/duqiw/vwuiqnzcjkbgjpr.cr_ (http://www.ou-zaharistoyanov.com/duqiw/vwuiqnzcjkbgjpr..cr) 4/9/2013 12:37:51 PM 4/9/2013 12:37:51 PM s.gurnell So today is my "lucky (???) seven" year anniversary with TM. At this time seven years ago, I was inside an MRI machine for over an hour trying to hold as still as possible while my legs continued to spasm about every three minutes. By far, the worse, most painful day of my life. Though usually fairly optimistic and more on the positive side of my feelings, I find myself in a more pensive and reflective state today. Wondering what the next ten-to-twenty years look like... will I still be able to function well enough on my own, without assistance? Will I be able to keep the ugly monster at bay and not let it completely destroy my outlook on life? Can I continue to find enough joy in my daily existence? I know I will have to forcibly take the reins and get myself out regularly so as to not become a recluse in my own home. I have realized since I had to "retire" from my job six years ago because of TM, other people's lives have gone on and most have little time to waste coming to visit or entertain me. I must make the effort if I want to maintain any relationships outside my own home and family. Of course, my fervent and continuing prayer is that by some miracle, a cure and treatment will be found that will help everyone saddled with either TM or MS. As I begin another year of pain, medications, limitations, etc., I wish everyone peace of mind and soul. Hugs to all, Betty (in Northern California)
[TMIC] Re: Happy Birthday
Hi There, Happy Birthday To Everyone Born In April Love, Jude Hoops
[TMIC] Fwd:TMIC Meditation Invitation
Kevin and all, I stole this from the Quad list...it's an invitation to meditate. Kevin has been talking about Meditation on Facebook, so I thought you all might be interested in this. Love you, Jude From: bobbie...@aol.com To: quad-l...@eskimo.com Sent: 3/10/2013 7:06:32 P.M. Eastern Daylight Time Subj: [QUAD-L] Dose anybody meditate? Hi All, I'd like to invite you all to FREE a guided 21 day meditation challenge. It starts Monday March 11th Just go to _www.meditationchallenge@chopra.com_ (http://www.meditationchalle...@chopra.com/) and click "sign up" Each day you will be set an email with a 15 minute guided meditation, you do the meditation when you have the time, if you forget, or don't get around to doing a meditation one day, don't quit. Just play catch-up or skip that day you missed. I teach meditation and can tell you meditation dose decrees pain levels, lower blood pressure, raise self esteem, help you sleep better and so, so much more.Bobbie Smile Everyday
[TMIC] RE: TMIC Membership Directory
Hi Gang, If there is anyone out there who happens to have an extra TMIC Directory may I please have it? I don't care if it's a few years old. If you could see it in your heart to send it to me I will surely appreciate it. I called sandy Siegel and asked him to send me one but he said that the board asked him not to send them out anymore so I am left without one. I can't seem to access the TMA site. So if you would help me I will be a happy camper. Thank you, Jude Michigan
[TMIC] RE: Overlay Mattress, Pressure Sore, Jude and Dave
Hello Again Everyone, 2-27-12 I have a couple of questions. I have a mattress overlay and it went flat all of a sudden the other day. Our insurance won't pay for another one until May and we can't afford to buy another one. Do you have any ideas of what I can do for a few months? My bed has a huge dip in it under my butt so I can't go without something. When I just sit in my bed without anything I can't even reach up to my side table.. I can't eat or do my bowel program so it is really necessary. Regarding my pressure sore. We have to find some money to order Duoderm. Does anyone have an extra sheet that we can have until Dave gets paid next month? The pressure sore is going to get huge if I can't find one. It is too hard to get out and go to the hospital with my two broken legs. And with Dave having cancer it's hard for him to lift me into the chair. It feels like I'm being a baby or asking for too much, but we are kind of in a desperate situation. And, I'm going to come right out and ask: If any of you have money left over at the end of the month would you please send us some? When things turn around we will do the same for you. I wait every day for the phone call from the bank telling us to get out of the house. We are filing for bankruptcy but Dave hasn't had the energy to go back to the attorney. Thanks for listening to me. I love you all. Jude Mighigan. And whatever you do: Don't forget to Smile...
[TMIC] Re: Lyrica, Psychiatric Evaluations
Hello Everyone, As you know I am having the Medtronic pain pump put in. I went for my first consultation yesterday. Before they put in the pump I have to have a psychiatric consultation to see if I'm going to be a good candidate. I'm sure it's been a long time, but has anyone had a psychiatric consultation before. I need to know what to expect. I don't know why but I'm kind of nervous about it. I have my heart set on having this surgery because if I don't then I will have to have my leg amputated. There are no other Dr.s who want to continue with oral medication. I also have to go on Lyrica instead of Oxycodone. Has anyone taken Lyrica for pain, not depression? I appreciate your answers and look forward to reading them, Thanks, I love you, Jude, Michigan
[TMIC] RE: Pamela Monts
Hello All, When I wrote before I asked you for information regarding Pam Kinkaid. What I should have said is Pamela Montz. Her maiden name was Kinkaid. Sorry for the mix up. If you have mail from her that you are willing to share with me I will appreciate it very much. I do have a link to TMIC which I can use if I have to, but it would be easier for me and would give me more insight if I got her mail from you. I understand if you don't want to share with me, but I can't write the book without your help. Thank you so much, Jude Michigan
[TMIC] RE: Pamela Montz
Hello, When I wrote yesterday I asked for information about Pam Kinkaid. I was wrong and should have said Pamela Montz. Do any of you have emails from Pam that you will be willing to share with me so I can write a book about her. She was an amazing person, full of life, happiness and great love for people. I appreciate your help. Love and Hugs, Jude Michigan
[TMIC] RE:Pam Kinkade
Hello All, Does anyone have old letters from Pam Kinkade? I would like to write a book about her and her struggle with TM, her attitude, friends and her life. Mistakenly I erased all her letters from my computer. I had hundreds of them. We wrote several times a day. I really will appreciate your help on this. It means a great deal to me. If you could send them to me it would be wonderful. We are all great people but she and I shared something special. She was such a good person maybe all of you feel that way. Also I need Dan's email address if anyone still has it. For those of you that still keep those records if you have emails from me that I can read, please send them to me too. Of course, only the meaningfu l ones. Thank you for your help. Jude Michigan
[TMIC] Re: Getting Older, TM, The Pain Pump
Hello All, I was just wondering...how has your TM changed since you have gotten older? Is there more or less pain? Are you able to get around like you used to? Are you hampered more now than you used to be? In what ways. What helps you with your pain besides medication? Do you use things like Ben Gay or topical ointments or anything? Do any of you, besides Bernie, have a pain pump? I am going for my first consultation on the 9th. I looked it up and know all about it, but I want to know about it first hand. Thank you all for your answers. I am considering asking the Quad list too. What do you think? Does anyone have those addresses? If so, may I have a few please? Especially if they have the pump. Love you, Jude Michigan, where we are wearing a winter blanket of snow...
[TMIC] RE: TMIC February Birthdays
February Birthdays 2-1 Jeanne Rushton _jrushton@columbiaenergyllc.com_ (mailto:jrush...@columbiaenergyllc.com) 2-2 Ursula Mauro _umauro@t-online.de_ (mailto:uma...@t-online.de) 2-2 Lisa _Lsimso7@aol.com_ (mailto:lsim...@aol.com) 2-5 Tita _t-n-t@usa.com_ (mailto:t-...@usa.com) 2-6 Barbara Alma _babsie1982@yahoo.com_ (mailto:babsie1...@yahoo.com) 2-11 Mary _msterpho@yahoo.com_ (mailto:mster...@yahoo.com) 2-15 Jill _jillybeans60452@yahoo.com_ (mailto:jillybeans60...@yahoo.com) 2-17Joan Fink _MAFINK2@yahoo.com_ (mailto:mafi...@yahoo.com) 2-26Patti Vorheis _pjv1234@chartermi.net_ (mailto:pjv1...@chartermi.net) 2-27 Cindy _rdavi...@san.rr.com_ (mailto:rdavi...@san.rr.com)
[TMIC] RE: Jude and Medtronic
To anyone who thinks I told Medtronic your name and email address...I did no such thing! I wrote an email to the list telling you all about the upcoming webinar on Spasms that Medtronic is hosting. I only said that if you were interested to let me know and I would send the information. Somehow, there was someone who thought I had sent all of your addresses to Medtronic. I never would do such a thing. That is something that goes beyond stupid. I'll admit to making mistakes but I'm not that silly. Please be reassured that I did not do that. Thank you so much. Jude, Michigan
[TMIC] Re: Medtronic Webinar for Spastisity
Hello All, Please watch your mailbox for a letter from Medtronic. They are having a Webinar for spasticity on Feb. 12th. If you want the information let me know and I will send it to you. This will be great for anyone with problems with spasms. Take Care, Jude Michigan
[TMIC] Fwd: [QUAD-L] Standing wheelchair' anyone have one ? If so pros and cons?
I got this from the TM quad list. They're talking about standing wheelchairs. Do any of you have one. I want one real bad. Jude From: davekrehb...@earthlink.net To: wheelch...@aol.com, quad-l...@eskimo.com Sent: 1/28/2013 1:41:39 P.M. Eastern Standard Time Subj: RE: [QUAD-L] Standing wheelchair' anyone have one ? If so pros and cons? I definitely plan to get a standing wheelchair. Before my accident five years ago, I was 6 feet tall. These days, I'm looking up at everybody. I did some therapy in a standing frame at a local rehab facility, and it was an incredibly emotional experience. The world looks like an entirely different place when you're standing at your traditional height. I understand the standing frames and standing wheelchairs have many other benefits: strengthening bones, increasing flexibility, assisting with digestion, and other benefits related to blood pressure. My plan is to try to raise some funds to build a shed, so that I can get a standing frame or standing wheelchair as well as a generator. I absolutely concur that you need to be evaluated properly. The physical therapist did not start me in a standing frame... they started with a tilt table. Raising your head so far up in the air is a challenge when you been sitting down and lying down for so long. But my insurance covers this... and I hope yours does too. Take care, Dave Krehbiel From: wheelch...@aol.com [mailto:wheelch...@aol.com] Sent: Friday, January 25, 2013 9:59 AM To: shellbell5...@aim.com; quad-l...@eskimo.com Subject: Re: [QUAD-L] Standing wheelchair' anyone have one ? If so pros and cons? I personally hope that in everyone's life, they have the opportunity to try out a standing wheelchair. Some of the benefits can be overwhelming. However, I usually advise that a Standing Evaluation, with an Occupational Therapist to determine if and how long one can stand, vertical. Some with low blood pressure may pass out with a quick stand. Some can not operate a manual stander because of strength issues. A motorized stander might work better then a manual unit. By all means, if you meet the perimeters... Go For It. Best Wishes In a message dated 1/23/2013 9:41:49 P.M. Central Standard Time, _shellbell5705@aim.com_ (mailto:shellbell5...@aim.com) writes: Hi to everyone, So, long story short, UCP agreed to either make my kitchen accessible OR purchase A standing wheelchair.I have been looking at the standing wheelchairs and there is even one That is manual. Are they much bigger than a regular electric chair ? and if ya have one what are your thoughts and or experiences and the pluses or minuses? ? (I understand the benefit ti standing Ii stand daily in my standing frame, oh and sores are not a issue) . thanks everyone!!! N shelly C6C7 incomplete Sent from my iPad
[TMIC] Fwd: Post Traumatic Stress Disorder
This comes from our friend, Kevin. Do any of you suffer from Post Traumatic Stress Disorder? From: notification+pz==f...@facebookmail.com Reply-to: g+412xnq3c00q50b3d004nqj74n7vz00bw1sfh29...@groups.facebook.com To: tmf...@groups.facebook.com Sent: 1/28/2013 9:51:36 A.M. Eastern Standard Time Subj: [Transverse Myelitis Folks] There are some of us that suffer from forms of... _Kevin D. Weilacher posted in Transverse Myelitis Folks_ (http://www.facebook.com/n/?groups/TMFolk/permalink/473204612741039/&mid=7708da4G5e350529G5356 387G96&bcode=1.1359384696.AbnAxWsvcTVZgZeS&n_m=heyjude48...@aol.com) (http://www.facebook.com/n/?profile.php&id=718959149&mid=7708da4G5e350529G5356387G96&bcode=1.1359384696.AbnAxWsvcTVZgZeS&n_m=heyjude48...@aol.com) _Kevin D. Weilacher_ (http://www.facebook.com/n/?profile.php&id=718959149&mid=7708da4G5e350529G5356387G96&bcode=1.1359384696.AbnAxWsvcTVZgZeS&n_m= heyjude48...@aol.com) 9:51am Jan 28 There are some of us that suffer from forms of PTSD If you're not sure if there's a chance that you might.look over this list and if you find that there are quite a few items that affect youIt could be a good indication to go see your doc and talk about this What are the signs of PTSD? A wide variety of symptoms may be signs you are experiencing PTSD: Feeling upset by things that remind you of what happened Having nightmares, vivid memories, or flashbacks of the event that make you feel like it’s happening all over again Feeling emotionally cut off from others Feeling numb or losing interest in things you used to care about Becoming depressed Thinking that you are always in danger Feeling anxious, jittery, or irritated Experiencing a sense of panic that something bad is about to happen Having difficulty sleeping Having trouble keeping your mind on one thing Having a hard time relating to and getting along with your spouse, family, or friends It’s not just the symptoms of PTSD but also how you may react to them that can disrupt your life. You may: Frequently avoid places or things that remind you of what happened Consistent drinking or use of drugs to numb your feelings Consider harming yourself or others Start working all the time to occupy your mind Pull away from other people and become isolated - Some factors can increase the likelihood of a traumatic event leading to PTSD, such as: The intensity of the trauma Being hurt or losing a loved one Being physically close to the traumatic event Feeling you were not in control Having a lack of support after the event _View Post on Facebook_ (http://www.facebook.com/n/?groups/TMFolk/permalink/473204612741039/&mid=7708da4G5e350529G5356387G96&bcode=1.1359384696.AbnAxWs vcTVZgZeS&n_m=heyjude48...@aol.com) · _Edit Email Settings_ (http://www.facebook.com/n/?settings&tab=notifications§ion=group_notification&mid=7708 da4G5e350529G5356387G96&bcode=1.1359384696.AbnAxWsvcTVZgZeS&n_m=heyjude48458 @aol.com) · Reply to this email to add a comment.
Re: [TMIC] Tonight, Today, tomorrow
I too have foot drop. If I do not wear my boots all of the time, my feet drop all the way to the bed. I think that my right ankle is broken, but the MRI only showed arthritis. Jude, Michigan In a message dated 1/27/2013 12:50:43 P.M. Eastern Standard Time, malugss...@me.com writes: Nikki; This is about the foot-drop. I had this too. It was two years until I could wear shoes again. But even after short distances I am in danger of tripping because I can't keep my feet up. When it was really bad I remembered that my old pair of cowboy boots had a high heel and a leather upper that was stiff. I tried them on. The leather upper was stiff enough that my foot did not drop so much. And also, the high heel meant that even with the drop in the toe my foot was still level with the ground! I could walk again and not fall down! Borrow someone's cowboy boots and try them on. They could be a solution and a darn better-looking one than a foot brace! I now have six pair of hand-made M. L. Leddy Western Boots from Fort Worth, Texas. They look great and allow me to walk around a little once again! DG Dalton Garis Flushing, Queens New York, USA (718) 838-0437 On 27 Jan 2013, at 12:40 PM, Nikki Macleod wrote: > I was supposed to get married not long after TM hit so it was all cancelled. I have a very loving partner who I have been with since I was 16 years old, he's my rock and so supportive. We had to move from our home to a bungalow so when we did this we moved closer to my family and friends. Am not currently receiving PT but do my own exercises on my arms but they are very weak. I am waiting for an operation on my feet as I have severe foot drop and other deformities. > Nikki > > Sent from my iPad > > On 26 Jan 2013, at 23:10, "Janice Nichols" wrote: > >> I really hate that you were so young when TM hit. Are you married? Do have any family around you?Are you doing any physical therapy? >> Janice >> >> >> -Original Message- From: Nikki Macleod >> Sent: Saturday, January 26, 2013 2:43 PM >> To: tmic-list@eskimo.com >> Subject: [TMIC] Tonight, Today, tomorrow >> >> >> I feel as though TM has robbed me of all of my hopes and dreams. I'm 25 yrs old (23 when TM hit) and I had my dream job and had just graduated from uni. I miss my job terribly I worked in early years and it was my passion. I miss the interaction I had with the children, parents, colleagues, and basically the big wide world. I loved going to the gym but I am now paralysed from the shoulders down so this is now also a no go area. I loved the buzz it gave you and found it relaxing. I didn't actually know how much I'd miss driving, managing my toileting needs and how it had robbed me of all of my independence, confidence and self-esteem and send me spiralling into a pit of deep dark depression. But, I am slowly regaining my confidence, setting up fundraising days for my new wheelchair and I have started to write a book. TM will only beat you if you let it!! >> Sent from my iPad >> >> >> >
[TMIC] Re: Questions from a TM'er
Hi all, There are a few questions from another TM'er (to coin a word). Remember the, who? what? where? when? and why of your answers please. 1. Does anyone get massages? Do they help? 2. Are there any special utensils that you use if you can't use your hands easily? 3. Do any of you travel much? 4. Is there special clothing you wear? 5. Special shoes? 6. Does anyone play sports? 7. Do any of you have a special focus on life? 8. What are your favorite tv shows? 9. What medical supply companies do you use? Please include the links. 10. What kind of durable medical equipment do you have? Thanks, Jude
Re: [TMIC] Our Memories
Thanks Betty, I'm always looking for new things to do during the day. I'm tired of FB and need to start doing things to rev up my brain again. Thanks for including the link. That makes all the difference when one goes looking for something. Love you, Jude In a message dated 1/26/2013 7:35:35 P.M. Eastern Standard Time, xbeecla...@gmail.com writes: If you've never seen them before, there are many on-line games on "gamehouse.com" that can help with memory... my personal favorite is Super TextTwist. It is a really good game you can play by yourself. You're given six random letters and have to make as many 3-6 letter words as you can in a given amount of time. They show you how many words of each number of letters can be made and as long as you get at least one of the 6-letter words, even if you don't get the rest, you pass on to the next series of letters. As the clock runs out, it shows you the words you missed, so it helps you learn words (and spelling). It's keeps a running score until you fail to get a 6-letter word, so you play against yourself to see how high a score you can achieve. Here's the link to Super TextTwist: _http://www.gamehouse.com/online-games/super-texttwist-online_ (http://www.gamehouse.com/online-games/super-texttwist-online) Betty On 1/26/2013 3:18 PM, Janice Nichols wrote: I do have memory problems. Not just forgetting names of things, but situations that happened a week ago, or the day after I see a movie, I forget what it was.Eventually I think of it, but it is scary for my husband to be talking about an incident, and I don’t remember it. We have a card game we play with another couple that is called Quiddler. You start with 3 cards and work up to having 10 cards dealt to you. You make words out of your cards dealt to you or discarded by others. It does make you think and it is very addicting. We love it. Janice From: _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) Sent: Friday, January 25, 2013 9:55 PM To: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Cc: _heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) Subject: [TMIC] Our Memories How is your memory these days? Have you experienced memory loss? If so, how does it affect your life? Does your faulty memory affect your life with your loved ones? Memory loss has to do with the myelin sheath. The myelin sheath coats the neurons in the spinal column to cement memories. TM destroys the myelin sheath, so that our memories become clouded or we have no memories at all. The more we repeat things we need to remember, the thicker the layer of myelin forms around the neurons. Brain games such as Scrabble, Seduki, Boggle, Crossword Puzzles,and other games help us to reform the myelin sheath... Any thoughts on this? Many hugs, Jude
Re: [TMIC] Tonight, Today, Tomorrow
I hope it's ok to butt in, I haven't had a drink since I first tried one shortly after coming down with TM. It knocked me for a loop! Almost fell out of my chair, threw up for hours and said never again! I was never a big drinker, but that one drink did it for me! Jude In a message dated 1/26/2013 7:09:56 P.M. Eastern Standard Time, xbeecla...@gmail.com writes: I don't know it affects you, but whenever I have any alcohol, it interferes with the effectiveness of my pain medication. I was never a lush - a glass of wine or a beer occasionally, or a mixed drink or champagne at parties and holidays - but ever since TM, I can't drink anything without the pain breaking through way sooner than it should. I tried several times thinking it was just a coincidence or I was overly fatigued prior to the drink, but it happens every time no matter what. Kinda puts a damper on celebrations now, but I've resigned myself to NOT imbibe - it just isn't worth the discomfort! Betty On 1/26/2013 2:41 PM, Janice Nichols wrote: Linda, I have a good friend who has tremors in his hands too.You are right, he says a good stiff drink makes a difference with his tremors! You are making the best of what TM has done to you and that is saying a lot!!Keep it up and keep responding. Janice From: _Linda Egli_ (mailto:le...@sbcglobal.net) Sent: Saturday, January 26, 2013 11:10 AM To: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Subject: Re: [TMIC] Tonight, Today, Tomorrow I lost a wonderful job working in a local Public Health Department. I had worked there for 12 years & loved every minute of the job. I went to the doctor with severe numbness & loss of motor function, I then saw a neurologist & after a 36 years as a nurse, my career was over. I left work that day & was never able to return - very hard to deal with & probably took 2-3 yeas to finally accept. I miss dancing; I was not the greatest but I enjoyed it. The main thing I miss now is only having partial use of my hands. About 2 years into TM I developed essential tremors in both hands (especially the right hand & I am right handed). I take Primidone but it really doesn't help a lot. The main thing that helps the tremors is alcohol & I can't drink every 4-6 hours, (but some days I try). Between the severe numbness & tremors, using my hands can be difficult. I had always enjoyed sewing, needlework, crocheting, scrap booking, & just anything involving arts & crafts. I got rid of 95% of my craft & sewing items because I could not stand not being able to use them (I had a whole room for crafts). I have found I can do jigsaw puzzles - the 3-D ones with larger foam pieces or a little crocheting if I keep it at 15 -20 minutes. I try to be positive as much as possible, knowing there are many people with much worse difficulty than me. On a good note, I have a wonderful supportive husband (helps with laundry & tries to help cooking), good medical coverage, & am able to afford someone in to help with the house 3 days weekly. Life is what you make of it. Linda E. From: john snodgrass __ (mailto:jcs...@yahoo.com) To: transverse myelitis __ (mailto:tmic-list@eskimo.com) Sent: Saturday, January 26, 2013 5:44 AM Subject: Re: [TMIC] Tonight, Today, Tomorrow i was a work-a-holic i sure miss that! From: _"heyjude48...@aol.com"_ (mailto:heyjude48...@aol.com) __ (mailto:heyjude48...@aol.com) To: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Cc: _heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) Sent: Friday, January 25, 2013 10:32 PM Subject: [TMIC] Tonight, Today, Tomorrow Hi everybody, Tonight, sitting here doing nothing, I'm wondering how Transverse Myelitis has affected your life. What has it stolen from you. Maybe everything, maybe nothing. I'm sure it is a personal thing. Some people choose to focus on life and believe that everything in life happens for a reason. I love life and refuse to let TM steal one minute. Life is made up of many joyous moments and I choose to focus on those moments, not TM. Because of my love for life, I refuse to feel sorry for myself. I've learned to be outspoken about my TM and I've become a demanding person because of TM. I hate that I've had to give up driving and remember how it used to feel heading down the highway with my arm resting on the window turned all the way down. Always remember that today could be potentially the best day of your life. Never take today for granted. When you wake up each morning remember to thank God for giving you another day. Always end the day with a positive thought. No matter how hard thing were, Tomorrow is a fresh opportunity to make it better. (unknown)
Re: [TMIC] I WILL LOOK SOMWHERE ELSE FOR AN ANSWER,THANK YOU
Jeff, It's not that I was offended, I just didn't know how to answer you. I'm looking for my book on TM. Dave can't find it. It's called Living With Transverse Myelitis, but I don't know who wrote it. Love, Jude In a message dated 1/26/2013 12:09:12 A.M. Eastern Standard Time, jeffsmokeea...@yahoo.com writes: I can tell from the lack of response,that the subject i posted on earlier re:SEXUAL FUNCTION,is somthing no one wants to get into,I apologise to those i may have offended.I have been a member of TMIC and MSERS list for 13 years for those that did ask.
Re: [TMIC] I WILL LOOK SOMWHERE ELSE FOR AN ANSWER,THANK YOU
I agree with Cindy, Jeff. I am looking for my book on TM that will answer your question. Jude In a message dated 1/26/2013 12:21:06 A.M. Eastern Standard Time, jan...@centurytel.net writes: Jeff, Please don’t think this is too personal a topic for this site - it isn’ t. It has been brought up before with more responses from men, but that was quite a while ago. You have offended no one and please keep asking whatever is on your mind. Janice From: _jeff bernier_ (mailto:jeffsmokeea...@yahoo.com) Sent: Friday, January 25, 2013 11:09 PM To: _MSersLife@yahoogroups.com_ (mailto:msersl...@yahoogroups.com) ; _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Subject: [TMIC] I WILL LOOK SOMWHERE ELSE FOR AN ANSWER,THANK YOU I can tell from the lack of response,that the subject i posted on earlier re:SEXUAL FUNCTION,is somthing no one wants to get into,I apologise to those i may have offended.I have been a member of TMIC and MSERS list for 13 years for those that did ask.
Re: [TMIC] I WILL LOOK SOMWHERE ELSE FOR AN ANSWER,THANK YOU
I wasn't offended, I just didn't know how to answer your question, being a woman it is difficult to know what to say. It's been so long since Dave and I have had sex, it's hard to remember. Jude In a message dated 1/26/2013 10:09:36 A.M. Eastern Standard Time, skle...@cox.net writes: not offended, just don't know anything. The movie, The Sessions, is fabulous, and about a man in an iron lung who is able to have sex. - and it's true! Susan in Phoenix On Jan 25, 2013, at 10:09 PM, jeff bernier wrote: I can tell from the lack of response,that the subject i posted on earlier re:SEXUAL FUNCTION,is somthing no one wants to get into,I apologise to those i may have offended.I have been a member of TMIC and MSERS list for 13 years for those that did ask.
Re: [TMIC] Our Memories
Jane, Will you remind me please who you are? What is your last name so I can make an address book addition for you. Thank you, Jude In a message dated 1/25/2013 11:42:15 P.M. Eastern Standard Time, celr...@aol.com writes: My memory is shot. Jane/Splendora Tx In a message dated 1/25/2013 9:55:34 P.M. Central Standard Time, heyjude48...@aol.com writes: How is your memory these days? Have you experienced memory loss? If so, how does it affect your life? Does your faulty memory affect your life with your loved ones? Memory loss has to do with the myelin sheath. The myelin sheath coats the neurons in the spinal column to cement memories. TM destroys the myelin sheath, so that our memories become clouded or we have no memories at all. The more we repeat things we need to remember, the thicker the layer of myelin forms around the neurons. Brain games such as Scrabble, Seduki, Boggle, Crossword Puzzles,and other games help us to reform the myelin sheath... Any thoughts on this? Many hugs, Jude
[TMIC] Our Memories
How is your memory these days? Have you experienced memory loss? If so, how does it affect your life? Does your faulty memory affect your life with your loved ones? Memory loss has to do with the myelin sheath. The myelin sheath coats the neurons in the spinal column to cement memories. TM destroys the myelin sheath, so that our memories become clouded or we have no memories at all. The more we repeat things we need to remember, the thicker the layer of myelin forms around the neurons. Brain games such as Scrabble, Seduki, Boggle, Crossword Puzzles,and other games help us to reform the myelin sheath... Any thoughts on this? Many hugs, Jude
[TMIC] Tonight, Today, Tomorrow
Hi everybody, Tonight, sitting here doing nothing, I'm wondering how Transverse Myelitis has affected your life. What has it stolen from you. Maybe everything, maybe nothing. I'm sure it is a personal thing. Some people choose to focus on life and believe that everything in life happens for a reason. I love life and refuse to let TM steal one minute. Life is made up of many joyous moments and I choose to focus on those moments, not TM. Because of my love for life, I refuse to feel sorry for myself. I've learned to be outspoken about my TM and I've become a demanding person because of TM. I hate that I've had to give up driving and remember how it used to feel heading down the highway with my arm resting on the window turned all the way down. Always remember that today could be potentially the best day of your life. Never take today for granted. When you wake up each morning remember to thank God for giving you another day. Always end the day with a positive thought. No matter how hard thing were, Tomorrow is a fresh opportunity to make it better. (unknown)
Re: [TMIC] Unidentified subject!
Hi Deb, I had no idea you were involved with TMIC in that capacity. I never knew that about you. Surprise, surprise! I am trying to get people involved with us and am struggling to come up with things to discuss. You say that you try to make sure that topics are not talked about over and over, but it's hard to come up with things that are new. What am I supposed to do. At least there are a few more people writing in now. Or is it only that I have just come back? Have people been writing back and forth that you know of? Please let me know. I appreciate your attention. Thank you, Jude, Midhigan In a message dated 1/25/2013 8:00:48 P.M. Eastern Standard Time, dnca...@gmail.com writes: Hi Jude, No, it has nothing to do with getting spammed. I live on the computer. I do all my work on the computer, I build computers, create the websites, proofread all the TMA articles, etc. I know how to get rid of spam. It is just a matter of hitting the delete button. I have been part of the original tmic list almost since the first emails started going back and forth, back in January, 1997. I have watched people sign up with the list, I have watched people die on the list, I have to talk to people with TM on the phone and internet every single day. That is part of my job. I also have met my closest and dearest friends because of the tmic list. I have monitored the list for 16 years. When there is objectionable material, I notify the proper people, and those emails are deleted so that others who may search the archives for information will not read the objectionable material. I also know that every time an infected email enters my computer (one that has a virus), it has come from somebody on the list who has had their address book hacked. So, when these emails come in to the list, we simply unsubscribe them from the list, so that they are unable to send any more emails to the list until they get their computers fixed. Once they realize that they have not received tmic list emails, it has probably been after they have removed their viruses, and they resubscribe. So, notifying everybody on the list is really just not necessary. I just know when to sit back and not get involved and have learned from my own personal bad experiences when to back off so as not to get insulted by people who think I am “butting in” too much. I also know that some of the same problems and issues that people are experiencing have been discussed and discussed over and over, and people neglect to take advantage of all the wealth of information that has been stored in the archives from all the previous email conversations over the past 16 years, and if they are not going to read all the valuable information, rather ask the same questions over and over on the list, why bother trying to explain again? Anyway, I am sorry that I have created such a long email, but I just wanted you to understand where I am coming from, and it has nothing to do with you, just “experience” has taught me to stay in the background. Take care, Debbie From: heyjude48...@aol.com [mailto:heyjude48...@aol.com] Sent: Friday, January 25, 2013 4:05 PM To: dnca...@gmail.com Subject: Re: [TMIC] Unidentified subject! Ok, Deb, I do not understand what you're saying. Are you not going to send messages to the group anymore? Is it because you are worried about getting spammed? I have only been spammed a handful, if that, many times over all the years I've been on the computer. We really need your input on TMIC. You're a valuable person with a lot of good information to share. I will understand if you don't want to continue with us, but each person makes a difference and your words count. Your friend, Jude Here's to the nights that turned into mornings, with the friends that turned into family. (unknown) In a message dated 1/25/2013 12:33:41 P.M. Eastern Standard Time, _dncapen@gmail.com_ (mailto:dnca...@gmail.com) writes: Hello Jude, First, thank you for not copying the list with my email and private concerns. Some people on the list do not have their computers properly protected with anti-virus software, thus their computers are repeatedly hacked. Also, some people have the option marked “automatically add all people to address book”, so my email address gets entered into all these anonymous computers, and when they get a virus, I (and hundreds of other people) receive an infected email. If people wish to be on the internet, they should be responsible for protecting their own computers from these infections, and when one person sends an infected email to the list, suddenly about 20 people will send an email to the list that they need to ignore all messages sent by that one person because it is infected. So, I figure that eventually people will “get it” and I don’t
Re: [TMIC] question about sexual function
This one is for the guys... In a message dated 1/25/2013 5:59:56 P.M. Eastern Standard Time, jeffsmokeea...@yahoo.com writes: serious question here, is it possible for a paraplegic to engage in sex and achieve ejaculation after 13 years without having done it,has anyone on here had this problem and what did they do to resolve it. jeff Tm 2000,Ms 2005
Fwd: [TMIC] question about sexual function
This question is for the guys... From: jeffsmokeea...@yahoo.com To: tmic-list@eskimo.com, msersl...@yahoogroups.com Sent: 1/25/2013 5:59:56 P.M. Eastern Standard Time Subj: [TMIC] question about sexual function serious question here, is it possible for a paraplegic to engage in sex and achieve ejaculation after 13 years without having done it,has anyone on here had this problem and what did they do to resolve it. jeff Tm 2000,Ms 2005
Re: [TMIC] Re: reviving the list
Regina, Would you mind sending us the link? Is _www.Foix-Alajounine.com_ (http://www.Foix-Alajounine.com) correct? In a message dated 1/25/2013 5:50:07 P.M. Eastern Standard Time, regina...@sbcglobal.net writes: Okay Rick, TM can be caused by a spinal cord problem. Google Foix-Alajounine for details. Foix-Alajounine or AVM in the spinal cord will cause TM if not fixed. Mine was not fixed, I didn't even know that this congestion was happening in my spinal cord until after I was diagnosed with TM and treated for it. Much later, when I felt that I was getting worse, I insisted on an MRI until I got one and sure enough, it showed an AVM in the spinal cord. I was told to have surgery ASAP to avoid a spinal stroke. I was operated for it in 2007. This young neurologist I saw a year ago explained it all to me after checking my hospital records. The problem is that you can have this AVM for many years and not know it. It hurt me to think that if I had had it taken care of earlier, TM would be something I'd never heard of. Luckily (if you can call it lucky) I was already on social security when all this was going on, had just retired. Putting up with this disease and having to struggle with insurance and finances shouldn't happen to any of us. I wish you well. --- On Fri, 1/25/13, heyjude48...@aol.com wrote: From: heyjude48...@aol.com Subject: Re: [TMIC] Re: reviving the list To: el...@att.net Cc: tmic-list@eskimo.com Date: Friday, January 25, 2013, 2:05 PM Hi Rick, I too was too late to file for Social Security Disability. I hadn't worked for two years when I was hurt, and it wasn't an accident that caused it, so I had no recourse. I just recently talked to an attorney again and she said the same thing. I wish Jimmy Carter was still the President. At least he was taking care of our welfare. Your friend, Jude In a message dated 1/25/2013 5:00:04 P.M. Eastern Standard Time, el...@att.net writes: One neurologist suggested that maybe the tm was before that injury to the cord. Dr. Kerr wouldn't go along with that diaganosis and kept his first diagnosis that the injury developed into transvere myelitis. I reserched the tm archives to find many cases of spinal cord injuries that turned into tm. So its not exclusivly the imutm.ned system that helps tm develope. So research your drs. findings because there may be other reasons that you developed tm. Those findings gave me what I needed to claim Workers Comp. benefits which before that I had no claim to Workers Comp. Insurance. Wc fianally settled with me out of court. In retrospect I could have claimed Socil Security Dis. Ins. I found this out later after 11 years passed my hospitazation insurance canceded on me. Now here I set with no insurance what so ever. These may be things that newbies need to know when trying to understand SS laws. SS only goes back on your work history for 10 years. I didn't know this until it was 11 years later then I was to late. So be careful in your financial interest and planning your future. Your Tn buddy Rick From: "heyjude48...@aol.com" To: el...@att.net Cc: tmic-list@eskimo.com Sent: Friday, January 25, 2013 3:32 PM Subject: Re: [TMIC] Re: reviving the list Wow Rick, That was some story. None of us had it easy, like you say. I think it's weird that your TM didn't show itself for 30 days. I think that's unusual. Did your Dr's say anything about that? Just wondering... Love you, Jude In a message dated 1/25/2013 3:48:48 P.M. Eastern Standard Time, el...@att.net writes: Hey tmicers. I was injured in 1998 when trying to lift a heavy roll of carpet, that was late june 30 days later my right foot went numb and later that same week I felt tremendous pain in my left leg and I couldn't walk on it that night I sat in hot water most of the night, the next morning both legs were usless. I went to the emergency room in Memphis in extremely bad pain to find out my bladder had quit working. A foley was put in and my bladder drained more than 2500 ml. after that my pain settled down. I was bagged, given demerol several times and put in ccu. Then after mri they found a spinal cord tear at t-10 effecting everything below that point. I was placed on steriods and antibiotics and other things. I was kept there for thirty days under neuroligy care. I have yet to regain anything. I later was told after visiting Dr. Kerr that the spinal cord bleed contributed to transverse myelitis. Thats when I found this list of helpers. That was just a crazy time trying to keep with all that tm trows at you. and thats pretty much where I stand now in 2013. Rick In a message dated 1/24/2013 12:11:00 P.M. Eastern Standard Time, el...@att.net writes: Rob I'm with you. I like making new friends but the old ones on this site have the most up to date news on
Re: [TMIC] Internal Thermometer
I like "walking on broken glass", that is a good analogy of what TM feels like to a lot of people. Jude, Michigan, in the snow fall. In a message dated 1/25/2013 1:10:10 P.M. Eastern Standard Time, jcs...@yahoo.com writes: i think that is one of the things that is hard to deal with,although we all have a lot of the same going on we each have our own differences that are unique to us that cannot be matched in great numbers. just more broken glass to walk on From: Roger & Terese Pratt To: "heyjude48...@aol.com" ; "tmic-list@eskimo.com" Sent: Friday, January 25, 2013 12:42 PM Subject: Re: [TMIC] Internal Thermometer This was more of a problem when I first was attacked by TM, but I still have decreased sense of hot and cold on my right side. One thing that has been a mystery to me is that I now seem to sweat a lot with any increase in activity. Why this is strange is because when I first got TM I didn't sweat any below where my TM hit (C2 - C4 in my neck). Then I started sweating a lot just on my head and then it progressed slowly down over the next 10 to 15 years. Weird, huh? - Roger in Kennewick, WA From: "heyjude48...@aol.com" To: tmic-list@eskimo.com Sent: Friday, January 25, 2013 9:30 AM Subject: [TMIC] Internal Thermometer Hello All, My internal thermometer is compromised by TM. I am constantly asking Dave to turn up the heat, or turn the heat down. Does anyone else have this problem? I can't stand it...it has the potential to cause problems in our marriage. Love you, Judy Michigan Dance like no one's watching, Sing like no one's listening, Love like you'll never be hurt, Play like there's no winners, Behave like mom's watching, Give like you have plenty, and Smile...(unknown"
[TMIC] Re: Rick
Rick, You may need to join the list again. To do that go to: _www.tmic-list-request@eskimo.com_ (http://www.tmic-list-requ...@eskimo.com) and then, wait for a confirmation letter and then write your letter, send it to _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) . and then on the subject line put Submit. You should be ok with those directions. I can't call you 'cause we can't afford it. Write back if you need further help. Your good friend, Jude In a message dated 1/25/2013 1:37:00 P.M. Eastern Standard Time, el...@att.net writes: Jude my mail is not getting out to the list. Rick
Re: [TMIC] Stress
Oh Jan, I'm so sorry to hear about your situation. It must be hard to have to spend so much of your life in the hospital and then in therapy. I'm also sorry to hear about the death of your loved one. Is it your husband that you are talking about or someone else? It certainly doesn't matter to anyone here, I'm sure. It looks as though it is difficult for you to type and maybe you don't have the strength. We understand if you don't answer right away. Just remember that you are in our prayers. Your old friend, Jude, Michigan, where it's blowing snow. We have almost 8" today. 8" sounds funny doesn't it? In a message dated 1/25/2013 1:45:25 P.M. Eastern Standard Time, jmh1...@sbcglobal.net writes: Hargrove PO Box 1239 Stillwater,OK 74074 The loss of my soul mate a year ago in February has left me usless to me and my family plus I've spent multiple stays at the hospitals here in hospitals and in OKC both heart hospital for surgery and then in Long Term Care Center...I.ve been taking intravenios antibiotics hoping to keep my leg at the LTAC Excuse my spelling..I must stop for now a I'm worn out. There's more to come but not today. With love, jh writing...there's more to tell, but not now. From: "heyjude48...@aol.com" To: jmh1...@sbcglobal.net Cc: tmic-list@eskimo.com Sent: Wed, January 23, 2013 1:53:05 PM Subject: Re: [TMIC] Stress Jan, I had Janice send you a note from me. I hope you got it. If not, let me know. I need your spelling of your last name, address and phone number for my address book. I promise not to share it with anyone. I may want to send you a card or call you sometime. I love you. Jude, Michigan In a message dated 1/22/2013 11:15:31 P.M. Eastern Standard Time, jmh1...@sbcglobal.net writes: My dear Jude, I'm so glad that you are putting life back into the TMIC!!! I've quit trying to keep up with the facebook pages... I look forward to reading from old friends,altho I won't be talking much yet.I promise to read what's written and I'll join in the writing when I'm able So glad you're back in our world!! Hugs, janh From: "heyjude48...@aol.com" To: robthe...@aol.com Cc: tmic-list@eskimo.com Sent: Tue, January 22, 2013 8:40:51 PM Subject: Re: [TMIC] Stress There are only 16 of us though and I am trying to come up with topics for us to discuss. Actually, I am looking through our FB sites to try and come up with them. So anything you have to offer will mean a lot to me. I need your help. Jude, Michigan No decision is a decision not to make a decision... In a message dated 1/22/2013 9:34:38 P.M. Eastern Standard Time, robthe...@aol.com writes: I for one am thrilled to see all of the emails again.maybe facebook is not the forum for us...especially the older ones of us!!! Rob in NJ -Original Message- From: Robert Pall To: Heyjude48458 ; ashfordrichard ; pjv1234 ; a-ryder ; bpelow ; xbeeclarkx ; ladylinda48 ; LadyNotes ; akua ; kay ; patticooley38 ; Bgunny7682 ; r.c.pratt ; snow121100 ; j.dunn ; jannic ; jcsnod ; jefshps ; jlubin ; malugssuak ; Thenavigator10 Cc: tmic-list Sent: Tue, Jan 22, 2013 9:26 pm Subject: Re: [TMIC] Stress I take 60 mg of Cymbalta every morning...it helps both fibroneuralga as well as anxiety, depression and stress ...I also take 20 mg of diazapan to sleep each night. Rob in New Jersey -Original Message- From: Heyjude48458 <_Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) > To: ashfordrichard <_ashfordrichard@bellsouth.net_ (mailto:ashfordrich...@bellsouth.net) >; pjv1234 <_pjv1234@chartermi.net_ (mailto:pjv1...@chartermi.net) >; a-ryder <_a-ryder@comcast.net_ (mailto:a-ry...@comcast.net) >; bpelow <_bpelow@yahoo.com_ (mailto:bpe...@yahoo.com) >; xbeeclarkx <_xbeeclarkx@gmail.com_ (mailto:xbeecla...@gmail.com) >; ladylinda48 <_ladylinda48@yahoo.com_ (mailto:ladylind...@yahoo.com) >; LadyNotes <_LadyNotes@aol.com_ (mailto:ladyno...@aol.com) >; akua <_akua@artfarm.com_ (mailto:a...@artfarm.com) >; kay <_...@cole.gen.nz_ (mailto:k...@cole.gen.nz) >; patticooley38 <_patticooley38@gmail.com_ (mailto:patticoole...@gmail.com) >; Bgunny7682 <_Bgunny7682@aol.com_ (mailto:bgunny7...@aol.com) >; r.c.pratt <_r.c.pratt@verizon.net_ (mailto:r.c.pr...@verizon.net) >; snow121100 <_snow121100@hotmail.com_ (mailto:snow121...@hotmail.com) >; j.dunn <_j.dunn@shaw.ca_ (mailto:j.d...@shaw.ca) >; jannic <_jannic@centurytel.net_ (mailto:jan...@centurytel
Re: [TMIC] Re: reviving the list
Hi Rick, I too was too late to file for Social Security Disability. I hadn't worked for two years when I was hurt, and it wasn't an accident that caused it, so I had no recourse. I just recently talked to an attorney again and she said the same thing. I wish Jimmy Carter was still the President. At least he was taking care of our welfare. Your friend, Jude In a message dated 1/25/2013 5:00:04 P.M. Eastern Standard Time, el...@att.net writes: One neurologist suggested that maybe the tm was before that injury to the cord. Dr. Kerr wouldn't go along with that diaganosis and kept his first diagnosis that the injury developed into transvere myelitis. I reserched the tm archives to find many cases of spinal cord injuries that turned into tm. So its not exclusivly the imutm.ned system that helps tm develope. So research your drs. findings because there may be other reasons that you developed tm. Those findings gave me what I needed to claim Workers Comp. benefits which before that I had no claim to Workers Comp. Insurance. Wc fianally settled with me out of court. In retrospect I could have claimed Socil Security Dis. Ins. I found this out later after 11 years passed my hospitazation insurance canceded on me. Now here I set with no insurance what so ever. These may be things that newbies need to know when trying to understand SS laws. SS only goes back on your work history for 10 years. I didn't know this until it was 11 years later then I was to late. So be careful in your financial interest and planning your future. Your Tn buddy Rick From: "heyjude48...@aol.com" To: el...@att.net Cc: tmic-list@eskimo.com Sent: Friday, January 25, 2013 3:32 PM Subject: Re: [TMIC] Re: reviving the list Wow Rick, That was some story. None of us had it easy, like you say. I think it's weird that your TM didn't show itself for 30 days. I think that's unusual. Did your Dr's say anything about that? Just wondering... Love you, Jude In a message dated 1/25/2013 3:48:48 P.M. Eastern Standard Time, el...@att.net writes: Hey tmicers. I was injured in 1998 when trying to lift a heavy roll of carpet, that was late june 30 days later my right foot went numb and later that same week I felt tremendous pain in my left leg and I couldn't walk on it that night I sat in hot water most of the night, the next morning both legs were usless. I went to the emergency room in Memphis in extremely bad pain to find out my bladder had quit working. A foley was put in and my bladder drained more than 2500 ml. after that my pain settled down. I was bagged, given demerol several times and put in ccu. Then after mri they found a spinal cord tear at t-10 effecting everything below that point. I was placed on steriods and antibiotics and other things. I was kept there for thirty days under neuroligy care. I have yet to regain anything. I later was told after visiting Dr. Kerr that the spinal cord bleed contributed to transverse myelitis. Thats when I found this list of helpers. That was just a crazy time trying to keep with all that tm trows at you. and thats pretty much where I stand now in 2013. Rick In a message dated 1/24/2013 12:11:00 P.M. Eastern Standard Time, el...@att.net writes: Rob I'm with you. I like making new friends but the old ones on this site have the most up to date news on Transverse Myelitis and thats what drew me here back in 1998. I was one of the first. Back then Drs.told me i'd never make it this far. Well, how do ya like me now? Tm for 15 years. Rick in
Re: [TMIC] Re: reviving the list
Wow Rick, That was some story. None of us had it easy, like you say. I think it's weird that your TM didn't show itself for 30 days. I think that's unusual. Did your Dr's say anything about that? Just wondering... Love you, Jude In a message dated 1/25/2013 3:48:48 P.M. Eastern Standard Time, el...@att.net writes: Hey tmicers. I was injured in 1998 when trying to lift a heavy roll of carpet, that was late june 30 days later my right foot went numb and later that same week I felt tremendous pain in my left leg and I couldn't walk on it that night I sat in hot water most of the night, the next morning both legs were usless. I went to the emergency room in Memphis in extremely bad pain to find out my bladder had quit working. A foley was put in and my bladder drained more than 2500 ml. after that my pain settled down. I was bagged, given demerol several times and put in ccu. Then after mri they found a spinal cord tear at t-10 effecting everything below that point. I was placed on steriods and antibiotics and other things. I was kept there for thirty days under neuroligy care. I have yet to regain anything. I later was told after visiting Dr. Kerr that the spinal cord bleed contributed to transverse myelitis. Thats when I found this list of helpers. That was just a crazy time trying to keep with all that tm trows at you. and thats pretty much where I stand now in 2013. Rick In a message dated 1/24/2013 12:11:00 P.M. Eastern Standard Time, el...@att.net writes: Rob I'm with you. I like making new friends but the old ones on this site have the most up to date news on Transverse Myelitis and thats what drew me here back in 1998. I was one of the first. Back then Drs.told me i'd never make it this far. Well, how do ya like me now? Tm for 15 years. Rick in
[TMIC] Internal Thermometer
Hello All, My internal thermometer is compromised by TM. I am constantly asking Dave to turn up the heat, or turn the heat down. Does anyone else have this problem? I can't stand it...it has the potential to cause problems in our marriage. Love you, Judy Michigan Dance like no one's watching, Sing like no one's listening, Love like you'll never be hurt, Play like there's no winners, Behave like mom's watching, Give like you have plenty, and Smile...(unknown"
Re: [TMIC] Fight Cold and the Flu
Glendon, I'm sorry, your name is familiar, but I don't remember who you are. Will you please send me your full name, address and telephone number for my files. I promise that I won't share them with anyone. I only want them in case I want to send you a card or call you sometime. It's really good to hear from you, please write more. Why don't you refresh our memories and tell us your story again. I'd like to hear it. Are you a walker? Thank you my friend, Judy, Michigan In a message dated 1/24/2013 11:32:15 P.M. Eastern Standard Time, goatdodd...@gmail.com writes: Don't get a flu-shot !!! That's how I got TM... Glendon.. On Friday, 25 January 2013, wrote: What are some of the tips you all have to combat the cold and flu this year? I have come up with a few: First and foremost...we ought to launder our gloves and mittens once a week if we have been out anywhere where we might pick up germs. Places like door handles, railings and ATM's are known to be covered with them. Laundering them each week or running an antibacterial wipe over them daily will help us overcome the flu and cold season. Second...Use Essential oils, Aromatherapy helps to calm the immune system and invigorates or helps you sleep, depending upon the scent. Third...eat well, even when you don't feel like it. Eat foods that are good for you like : Salmon with omega 3 fatty acids Yogurt, with calcium for bone growth Oatmeal, for fiber Chicken Breasts, for protein Fourth, For chest congestion, sinuses, and indigestion add: Thyme to your food. Add 1 T. to hot tea, Boil 2-3 T. to create an antimicrobiotic steam to inhale, Sprinkle on food to suppress chest congestion, sinuses and indegestion. Love you all, Jude -- respectfully, Glendon R. - (a.k.a Goat Dodders) ...Living with Transverse-Myelitis since 2007, in Brisbane, Queensland, Australia... email: _goatdodders@gmail.com_ (mailto:goatdodd...@gmail.com) web-blog: _www.bloodywishfulthinking.blogspot.com_ (http://www.bloodywishfulthinking.blogspot.com/) twitter: _www.twitter.com/@GoatDodders_ (http://www.twitter. com/@GoatDodders) facebook: _www.facebook.com/bloody.wishful.thinking_ (http://www.facebook.com/bloody.wishful.thinking)
[TMIC] Re: TM Group
Betty, I know I asked everyone for their ideas, but since they are yours, will you please ask them, maybe one per day or when you see that the mails are dwindling? I have a few ideas of my own and will ask them occasionally. I don't want to become the moderator for the group. My initial intention was to get the group started emailing again. Love you, Jude In a message dated 1/25/2013 12:32:12 A.M. Eastern Standard Time, xbeecla...@gmail.com writes: Hi Jude, Because of my compulsion to make lists, quite a while back I began keeping information folks shared in their posts so I could look back if I had questions - or just plain couldn't remember. I've attached my spreadsheet because I thought it might help you in starting some topics of conversation or passing on helpful info/lists/charts for new TM'ers. The first page is a list of TM'ers - their email address, name, spouse (or parent of child with TM), age (if given - but I haven't updated them as each year has passed), blood type (there was a series of posts at one time about whether certain blood types were more prone to TM, but not a lot of responses), birthday, city/state/country, date diagnosed, which area of spine affected, medications used and dosage, and occupation and/or website address. You'll notice it's alphabetic by the person's e-mail address and there is some color-coding... pink background = those now deceased (the ones at the bottom of the page - I never knew their e-mail address, only their names); grey background = those who've unsubscribed or been removed. The second page is a list of doctors TM'ers have received care from or recommended, which hospitals they work out of & who recommended them. There are also links to the Johns Hopkins Neurology & Neurosurgery website, Dr. Greenberg's website & a website to locate a neurosurgeon in your state and see their ratings & contact information. The third page is a list of medications TM'ers have indicated they have taken, what dosage (if given), what procedure they had that it was indicated for and what additional diagnosis they were given. The fourth page is a list of supplements TM'ers take besides their pain and/or nerve medication. The last page is a chart of blood types, including the percentage of the population that has that blood type. As for topics for discussion... I was thinking you might consider some of the following: * Exercises - what do TM'ers do for exercise? Go to a gym? YMCA? Therapy? At-home program? And what specific exercises help specific areas of the body affected by TM. * Massage - does it help? Can your body handle it? (personally, I don't like anyone rubbing my body 'cause it sends weird sensations through me). * Utensils / Tools / Gadgets found to be helpful - and where to get them. * Traveling. What hotels cater well to the disabled, tips for flying and/or driving, etc. * Clothing - what works best for you? Cotton / Polyester / Wool / Silk? Can you still wear the same clothing you wore before TM? Do synthetics make your skin crawl? Do you have to wear diabetic socks because regular ones are too tight? * Shoes - what have you found that works best for your balance issues? I hope some of this information helps. It's great to see so many coming back to this group. Hugs to you, my friend! Betty Clark P.S. - my address is: 2642 Wild Bill Way Santa Rosa, CA 95407 phone: 707-575-9501
Re: [TMIC] Re: Broken Bones
Wow, that's a lot of breaks. Do you also have brittle bone disease like I do? What did you do for the 5 months with a walking boot on it. I have one for my broken leg, but it leaves me with sores on my leg where it rubs on it. Hugs, Jude In a message dated 1/25/2013 12:55:50 A.M. Eastern Standard Time, kimharrison7...@att.net writes: I fell last year and broke my leg, ankle, heel and foot. because I can't take anything on my feet lucky for me orthor knew about TM and in place of surgery he put a "walking boot on it) funny still could not walk LOL had to wear it for 5 months but when the TM burning started up I could take it off for a little while From: "heyjude48...@aol.com" To: kimharrison7...@att.net Cc: tmic-list@eskimo.com Sent: Thu, January 24, 2013 10:19:14 PM Subject: Re: [TMIC] Re: Subscribe Kim, I feel so bad for you that you can't wear socks or anything on your feet. Mine tingle and the toes are broken on my right foot so they hurt, but I can still keep my feet warm with socks and leg warmers. Jude, Michigan. In a message dated 1/24/2013 10:14:48 P.M. Eastern Standard Time, kimharrison7...@att.net writes: My wish is for someday to be able to wear sock or shoes.. and winter is a pain barefoot, but the pain of anything touching my feet is unbearable.. From: "heyjude48...@aol.com" To: jan...@centurytel.net Cc: tmic-list@eskimo.com Sent: Thu, January 24, 2013 9:08:56 PM Subject: Re: [TMIC] Re: Subscribe I am wearing socks and leg warmers right now along with my TED boots that hold my feet up in bed. Plus, I have a sheet and two blankets on, and a quilt when I go to bed. Jude Michigan In a message dated 1/24/2013 4:46:29 P.M. Eastern Standard Time, jan...@centurytel.net writes: My feet are cold most of the time. I am assuming that is natural for TM - anyone else? Janice From: _Kim Harrison_ (mailto:kimharrison7...@att.net) Sent: Wednesday, January 23, 2013 6:29 PM To: _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) ; _jcsnod@yahoo.com_ (mailto:jcs...@yahoo.com) Cc: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Subject: Re: [TMIC] Re: Subscribe Thank you Jude.. our Cheerleader !! How is the cold effecting ya'all.. I HATE it... everything stings and hurts more and worse is I can not wear sholes for socks so TM legs stick and feet are freezing... anyone else? From: "heyjude48...@aol.com" To: jcs...@yahoo.com Cc: tmic-list@eskimo.com Sent: Wed, January 23, 2013 7:24:07 PM Subject: Re: [TMIC] Re: Subscribe I'm happy that you guys are glad to see us active again. I am working my = off to keep us up and running. Neither Jim Lubin or Sam Siegel are interested in doing anything with us anymore so it is just me trying like hell to keep things interesting. However, I am running out of ideas to talk about and need your help. I just got an email today from a lady who is interested in joining us, so I sent her the info. Help! Jude In a message dated 1/23/2013 5:51:24 P.M. Eastern Standard Time, jcs...@yahoo.com writes: i wollowed with why and how and the thought came to me,,it doesnt matter how or why if i knew,,it would still hurt. From: Robert Pall To: heyjude48...@aol.com; i.whidd...@sky.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 1:56 PM Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 To: i.whiddett Cc: tmic-list Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, _i.whiddett@sky.com_ (mailto:i.whidd...@sky.com) writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. Whe
Re: [TMIC] Re: Subscribe
Thanks Pattie, That was good advise. In a message dated 1/25/2013 10:20:07 A.M. Eastern Standard Time, patticoole...@gmail.com writes: Jude I had shingles in 1992. I don't remember any pain as bad as that, even after going through labor 3 times. The pain I have with TM is child's play compared to shingles. Mine started with pain in the middle of my back going up my right shoulder. I thought it was from work as they had just installed a whole new area for my work station. Plus we had a lot going on at work and thought it was stress. Also my oldest daughter was causing strees and worry. After 4 days of pain that just got worse, when I out of the shower on the 5th day, I noticed red spots on my right side and knew right away what it was. The doctor confirmed it and gave me pain pills and some cream. It did get worse and for the next 4 days I was in a drug haze thankfully. Finally I was able to get up and eat. The pain off and on lasted for months, and the red marks turned into pox like blisters. It took months for it to go away,, but the redness lasted over a year. I know there is a shot to help make the shingles mild but by the time I soon the doc it was too late for the shot. So if anyone suspecs shingles, I say get to the doctor asap, it makes a difference. Pattti - Wisconsin On Thu, Jan 24, 2013 at 8:04 PM, <_Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) > wrote: I didn't know there was a shot for shingles. My mother had them before she got cancer. From the way she described it, they were painful and itchy. Jude, Michigan In a message dated 1/24/2013 4:44:52 P.M. Eastern Standard Time, _jannic@centurytel.net_ (mailto:jan...@centurytel.net) writes: For me, I do not believe it was stress that created TM. It struck at a great time for us. We were getting ready to travel, etc., after my husband had been retired for 4 months and really looking forward to our new future.At 4 months of retirement, you-know-who struck and totally changed our lives. I had had a flu shot - but that was 3-4 months before TM.I had not been sick at all for a long time before TM either. I think it is like MS or any other disease like that - it hits when it hits. For the first 2 years after TM struck, my doc did not want me to get a flu shot. But now I get one yearly and he wants me too. Have also had a shingles shot and pnuemonia shot. No problems. Janice From: _Robert Pall_ (mailto:robthe...@aol.com) Sent: Wednesday, January 23, 2013 12:56 PM To: _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) ; _i.whiddett@sky.com_ (mailto:i.whidd...@sky.com) Cc: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message----- From: Heyjude48458 <_Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) > To: i.whiddett <_i.whiddett@sky.com_ (mailto:i.whidd...@sky.com) > Cc: tmic-list <_tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) > Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, _i.whiddett@sky.com_ (mailto:i.whidd...@sky.com) writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had happened! So, thanks for taking on board what seems to be a lone voice from the UK and for all the kind words of encouragement and advice. Just to be sure I am a "proper" member, my details are:- Iris Whiddett 98 Eastwood Road Rayleigh EssexEngland Tel: 01268 771642 Regards Iris UK
[TMIC] Fight Cold and the Flu
What are some of the tips you all have to combat the cold and flu this year? I have come up with a few: First and foremost...we ought to launder our gloves and mittens once a week if we have been out anywhere where we might pick up germs. Places like door handles, railings and ATM's are known to be covered with them. Laundering them each week or running an antibacterial wipe over them daily will help us overcome the flu and cold season. Second...Use Essential oils, Aromatherapy helps to calm the immune system and invigorates or helps you sleep, depending upon the scent. Third...eat well, even when you don't feel like it. Eat foods that are good for you like : Salmon with omega 3 fatty acids Yogurt, with calcium for bone growth Oatmeal, for fiber Chicken Breasts, for protein Fourth, For chest congestion, sinuses, and indigestion add: Thyme to your food. Add 1 T. to hot tea, Boil 2-3 T. to create an antimicrobiotic steam to inhale, Sprinkle on food to suppress chest congestion, sinuses and indegestion. Love you all, Jude
Re: [TMIC] Unidentified subject!
Who are you and what is this email address for? I know you mentioned your email address, but not everyone knows who you are without your name. I think you are Cheryl, but I'm not sure. Jude In a message dated 1/24/2013 10:20:49 P.M. Eastern Standard Time, rn11...@yahoo.com writes: _http://www.polideportivoberja.es/components/com_content/wmnw.html_ (http://www.polideportivoberja.es/components/com_content/wmnw.html) rn11...@yahoo.com
Re: [TMIC] Re: Subscribe
Kim, I feel so bad for you that you can't wear socks or anything on your feet. Mine tingle and the toes are broken on my right foot so they hurt, but I can still keep my feet warm with socks and leg warmers. Jude, Michigan. In a message dated 1/24/2013 10:14:48 P.M. Eastern Standard Time, kimharrison7...@att.net writes: My wish is for someday to be able to wear sock or shoes.. and winter is a pain barefoot, but the pain of anything touching my feet is unbearable.. From: "heyjude48...@aol.com" To: jan...@centurytel.net Cc: tmic-list@eskimo.com Sent: Thu, January 24, 2013 9:08:56 PM Subject: Re: [TMIC] Re: Subscribe I am wearing socks and leg warmers right now along with my TED boots that hold my feet up in bed. Plus, I have a sheet and two blankets on, and a quilt when I go to bed. Jude Michigan In a message dated 1/24/2013 4:46:29 P.M. Eastern Standard Time, jan...@centurytel.net writes: My feet are cold most of the time. I am assuming that is natural for TM - anyone else? Janice From: _Kim Harrison_ (mailto:kimharrison7...@att.net) Sent: Wednesday, January 23, 2013 6:29 PM To: _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) ; _jcsnod@yahoo.com_ (mailto:jcs...@yahoo.com) Cc: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Subject: Re: [TMIC] Re: Subscribe Thank you Jude.. our Cheerleader !! How is the cold effecting ya'all.. I HATE it... everything stings and hurts more and worse is I can not wear sholes for socks so TM legs stick and feet are freezing... anyone else? From: "heyjude48...@aol.com" To: jcs...@yahoo.com Cc: tmic-list@eskimo.com Sent: Wed, January 23, 2013 7:24:07 PM Subject: Re: [TMIC] Re: Subscribe I'm happy that you guys are glad to see us active again. I am working my = off to keep us up and running. Neither Jim Lubin or Sam Siegel are interested in doing anything with us anymore so it is just me trying like hell to keep things interesting. However, I am running out of ideas to talk about and need your help. I just got an email today from a lady who is interested in joining us, so I sent her the info. Help! Jude In a message dated 1/23/2013 5:51:24 P.M. Eastern Standard Time, jcs...@yahoo.com writes: i wollowed with why and how and the thought came to me,,it doesnt matter how or why if i knew,,it would still hurt. From: Robert Pall To: heyjude48...@aol.com; i.whidd...@sky.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 1:56 PM Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 To: i.whiddett Cc: tmic-list Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, _i.whiddett@sky.com_ (mailto:i.whidd...@sky.com) writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had happened! So, thanks for taking on board what seems to be a lone voice from the UK and for all the kind words of encouragement and advice. Just to be sure I am a "proper" member, my details are:- Iris Whiddett 98 Eastwood Road Rayleigh EssexEngland Tel: 01268 771642 Regards Iris UK
Re: [TMIC] Facebook
Roger, I find that audio books put me to sleep in no time, and that's unusual because I used to love it when I was read to. I miss the whole experience so much. Jude, Michigan In a message dated 1/24/2013 5:02:18 P.M. Eastern Standard Time, r.c.pr...@frontier.com writes: I too have trouble reading. I find that I tend to speed read (skim). I used to love to read, but now I get audio books so I can slow down. - Roger in Kennewick, WA From: Cindy McLeroy To: heyjude48...@aol.com; patticoole...@gmail.com; malugss...@gmail.com Cc: tmic-list@eskimo.com Sent: Thursday, January 24, 2013 1:20 PM Subject: Re: [TMIC] Facebook I love to read but for the last 10 years or so I have extreme difficulty concentrating on reading a book. It seems I have to read 10 pages, go back 5, read 10 more, go back 5. Think every book I get through I must have read it at least twice. Do others have this problem? Cindy - Original Message - From: _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) To: _patticooley38@gmail.com_ (mailto:patticoole...@gmail.com) ; _malugssuak@gmail.com_ (mailto:malugss...@gmail.com) Cc: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Sent: Wednesday, January 23, 2013 10:17 AM Subject: Re: [TMIC] Facebook I disagree, unless at 61 I am one of the younger ones. I enjoy the words and the pictures. I collect a lot of the (to me) inspirational photos. I get a lot out of them, maybe because I haven't been reading as much as I used to. I have to get back to my books. Jude In a message dated 1/23/2013 11:39:25 A.M. Eastern Standard Time, _patticooley38@gmail.com_ (mailto:patticoole...@gmail.com) writes: I AGREE COMPLETELY DALTON. PATTI On Wed, Jan 23, 2013 at 10:09 AM, Dalton Garis <_malugssuak@me.com_ (mailto:malugss...@me.com) > wrote: For my situation, I don't need Facebook; But i see that for the young they really like to send pictures to each other. WE, on the other hand, grew up READING things rather than VIEWING things, and that is the difference. We read and the younger set views. It is WORDS ON A PAGE for us, but for the younger set they IMAGE more. dg Dalton Garis Flushing, Queens New York, USA _(718) 838-0437_ ()
Re: [TMIC] Stress
Janice, I remember the massages the nurses gave me when I was in the hospital. They were the best, and the warm blankets were heaven. I keep forgetting to have Dave warm mine up. I'm afraid to sleep with an electric blanket, but I recall them as being wonderful. Jude, Michigan In a message dated 1/24/2013 5:01:24 P.M. Eastern Standard Time, jan...@centurytel.net writes: Cindy, you have clearly been through a very hellish time. When the time comes, there are special places in heaven for people like you. So glad you have such support from family and friends. I did too – nearly dying twice in the hospital I was in for over 9 weeks. My floor social worker sent in a woman to massage my neck and back and she truly relaxed me. When she left, she shut the door and the nurses did not let anyone in my room until dinner. It was truly a relaxing experience – at least for a while.I don’t plan on getting sick again! Janice From: _Cindy McLeroy_ (mailto:cindymcle...@socal.rr.com) Sent: Tuesday, January 22, 2013 11:42 PM To: _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) ; _dncapen@gmail.com_ (mailto:dnca...@gmail.com) Cc: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Subject: Re: [TMIC] Stress Jude, you are talking about stress. I spent part of 2010 and all of 2011 going from the hospital to the skilled nursing facilities (SNF) because of a server broken leg. I had more than 6/7 surgeries, was bedridden where I was not able to raise up higher than 20%. That made eating almost impossible and I lost over 30 pounds. I was told by my PC that I almost died 3 times. I have to leave my dog and cat. Luckily I had a friend that took my dog and gave her great care. I had billing problems with the SNF and they tried to refuse me the second time I needed to go there. I had to have one surgery without anything to put me under. I got to listen to everything in the operating room. Lucky for me I have no sensation. I had no one at home to take care of bills, etc. I had to figure out how to do that in the hospital or SNF. I am not including the really awful stuff. I am a single woman and had no partner to help me through all this. But I had many friends and family that put on the yellow gowns (I had MRSA and was in isolation) to come in my room and cheer me up. My stress level was very high. My blood pressure was very low - 92 over 47 on good days. Thank God the most of that is behind me. I had great doctors, great family and great friends to get me though this. We all deal with what comes our way, in our own way. I will pray for Dave. Cindy - Original Message - From: _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) To: _dncapen@gmail.com_ (mailto:dnca...@gmail.com) Cc: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Sent: Tuesday, January 22, 2013 8:01 PM Subject: Re: [TMIC] Stress There are about 16 of us who email regularly. I had no idea that anyone else was even receiving our notes. If the membership is truly that high then I expect more people to participate. Jude in Michigan In a message dated 1/22/2013 10:25:50 P.M. Eastern Standard Time, _dncapen@gmail.com_ (mailto:dnca...@gmail.com) writes: Where did you come up with the 16 number? I believe that about 100 people receive the list emails. Debbie Sent from my iPod. On Jan 22, 2013, at 7:40 PM, _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) wrote: There are only 16 of us though and I am trying to come up with topics for us to discuss. Actually, I am looking through our FB sites to try and come up with them. So anything you have to offer will mean a lot to me. I need your help. Jude, Michigan No decision is a decision not to make a decision... In a message dated 1/22/2013 9:34:38 P.M. Eastern Standard Time, _robthecfo@aol.com_ (mailto:robthe...@aol.com) writes: I for one am thrilled to see all of the emails again.maybe facebook is not the forum for us...especially the older ones of us!!! Rob in NJ -Original Message- From: Robert Pall <_robthecfo@aol.com_ (mailto:robthe...@aol.com) > To: Heyjude48458 <_Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) >; ashfordrichard <_ashfordrichard@bellsouth.net_ (mailto:ashfordrich...@bellsouth.net) >; pjv1234 <_pjv1234@chartermi.net_ (mailto:pjv1...@chartermi.net) >; a-ryder <_a-ryder@comcast.net_ (mailto:a-ry...@comcast.net) >; bpelow <_bpelow@yahoo.com_ (mailto:bpe...@yahoo.com) >; xbeeclarkx <_xbeeclarkx@gmail.com_ (mailto:xbeecla...@gmail.com) >; ladylinda48 <_ladylinda48@yahoo.com_ (mailto:ladylind...@yahoo.com) >; LadyNotes <_LadyNotes@aol.com_ (mailto:ladyno...@aol.com) >; akua <_akua@artfarm.com_ (mailto:a...@artfarm.com) >; kay <_...@cole.gen.nz_ (mailto:k...@cole.gen.nz) >; pat
Re: [TMIC] Re: Subscribe
I am wearing socks and leg warmers right now along with my TED boots that hold my feet up in bed. Plus, I have a sheet and two blankets on, and a quilt when I go to bed. Jude Michigan In a message dated 1/24/2013 4:46:29 P.M. Eastern Standard Time, jan...@centurytel.net writes: My feet are cold most of the time. I am assuming that is natural for TM - anyone else? Janice From: _Kim Harrison_ (mailto:kimharrison7...@att.net) Sent: Wednesday, January 23, 2013 6:29 PM To: _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) ; _jcsnod@yahoo.com_ (mailto:jcs...@yahoo.com) Cc: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Subject: Re: [TMIC] Re: Subscribe Thank you Jude.. our Cheerleader !! How is the cold effecting ya'all.. I HATE it... everything stings and hurts more and worse is I can not wear sholes for socks so TM legs stick and feet are freezing... anyone else? From: "heyjude48...@aol.com" To: jcs...@yahoo.com Cc: tmic-list@eskimo.com Sent: Wed, January 23, 2013 7:24:07 PM Subject: Re: [TMIC] Re: Subscribe I'm happy that you guys are glad to see us active again. I am working my = off to keep us up and running. Neither Jim Lubin or Sam Siegel are interested in doing anything with us anymore so it is just me trying like hell to keep things interesting. However, I am running out of ideas to talk about and need your help. I just got an email today from a lady who is interested in joining us, so I sent her the info. Help! Jude In a message dated 1/23/2013 5:51:24 P.M. Eastern Standard Time, jcs...@yahoo.com writes: i wollowed with why and how and the thought came to me,,it doesnt matter how or why if i knew,,it would still hurt. From: Robert Pall To: heyjude48...@aol.com; i.whidd...@sky.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 1:56 PM Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 To: i.whiddett Cc: tmic-list Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, _i.whiddett@sky.com_ (mailto:i.whidd...@sky.com) writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had happened! So, thanks for taking on board what seems to be a lone voice from the UK and for all the kind words of encouragement and advice. Just to be sure I am a "proper" member, my details are:- Iris Whiddett 98 Eastwood Road Rayleigh EssexEngland Tel: 01268 771642 Regards Iris UK
Re: [TMIC] Re: Subscribe
I didn't know there was a shot for shingles. My mother had them before she got cancer. From the way she described it, they were painful and itchy. Jude, Michigan In a message dated 1/24/2013 4:44:52 P.M. Eastern Standard Time, jan...@centurytel.net writes: For me, I do not believe it was stress that created TM. It struck at a great time for us. We were getting ready to travel, etc., after my husband had been retired for 4 months and really looking forward to our new future.At 4 months of retirement, you-know-who struck and totally changed our lives. I had had a flu shot - but that was 3-4 months before TM.I had not been sick at all for a long time before TM either.I think it is like MS or any other disease like that - it hits when it hits. For the first 2 years after TM struck, my doc did not want me to get a flu shot. But now I get one yearly and he wants me too. Have also had a shingles shot and pnuemonia shot.No problems. Janice From: _Robert Pall_ (mailto:robthe...@aol.com) Sent: Wednesday, January 23, 2013 12:56 PM To: _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) ; _i.whiddett@sky.com_ (mailto:i.whidd...@sky.com) Cc: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 To: i.whiddett Cc: tmic-list Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, _i.whiddett@sky.com_ (mailto:i.whidd...@sky.com) writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had happened! So, thanks for taking on board what seems to be a lone voice from the UK and for all the kind words of encouragement and advice. Just to be sure I am a "proper" member, my details are:- Iris Whiddett 98 Eastwood Road Rayleigh EssexEngland Tel: 01268 771642 Regards Iris UK
Re: [TMIC] Facebook
Dalton, You have more email addresses than Carter has liver pills. I don't know how to keep up with your emails. What the heck are you up to? Big bear hug, Jude In a message dated 1/24/2013 4:27:00 P.M. Eastern Standard Time, malugss...@me.com writes: I do. My mind immediately wanders with all the images suggested by the words. Always have been this way. Can't concentrate on anything. Amazing that I was able to get past high school! Dg Dalton Garis Flushing, Queens New York, USA (718) 838-0437 On 24 Jan 2013, at 4:20 PM, Cindy McLeroy <_cindymcle...@socal.rr.com_ (mailto:cindymcle...@socal.rr.com) > wrote: I love to read but for the last 10 years or so I have extreme difficulty concentrating on reading a book. It seems I have to read 10 pages, go back 5, read 10 more, go back 5. Think every book I get through I must have read it at least twice. Do others have this problem? Cindy - Original Message - From: _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) To: _patticooley38@gmail.com_ (mailto:patticoole...@gmail.com) ; _malugssuak@gmail.com_ (mailto:malugss...@gmail.com) Cc: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Sent: Wednesday, January 23, 2013 10:17 AM Subject: Re: [TMIC] Facebook I disagree, unless at 61 I am one of the younger ones. I enjoy the words and the pictures. I collect a lot of the (to me) inspirational photos. I get a lot out of them, maybe because I haven't been reading as much as I used to. I have to get back to my books. Jude In a message dated 1/23/2013 11:39:25 A.M. Eastern Standard Time, _patticooley38@gmail.com_ (mailto:patticoole...@gmail.com) writes: I AGREE COMPLETELY DALTON. PATTI On Wed, Jan 23, 2013 at 10:09 AM, Dalton Garis <_malugssuak@me.com_ (mailto:malugss...@me.com) > wrote: For my situation, I don't need Facebook; But i see that for the young they really like to send pictures to each other. WE, on the other hand, grew up READING things rather than VIEWING things, and that is the difference. We read and the younger set views. It is WORDS ON A PAGE for us, but for the younger set they IMAGE more. dg Dalton Garis Flushing, Queens New York, USA _(718) 838-0437_ (tel:(718)%20838-0437) =
Re: [TMIC] Facebook
Yet you have such a command of the English language. Beautiful... Jude In a message dated 1/24/2013 4:27:00 P.M. Eastern Standard Time, malugss...@me.com writes: I do. My mind immediately wanders with all the images suggested by the words. Always have been this way. Can't concentrate on anything. Amazing that I was able to get past high school! Dg Dalton Garis Flushing, Queens New York, USA (718) 838-0437 On 24 Jan 2013, at 4:20 PM, Cindy McLeroy <_cindymcle...@socal.rr.com_ (mailto:cindymcle...@socal.rr.com) > wrote: I love to read but for the last 10 years or so I have extreme difficulty concentrating on reading a book. It seems I have to read 10 pages, go back 5, read 10 more, go back 5. Think every book I get through I must have read it at least twice. Do others have this problem? Cindy - Original Message - From: _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) To: _patticooley38@gmail.com_ (mailto:patticoole...@gmail.com) ; _malugssuak@gmail.com_ (mailto:malugss...@gmail.com) Cc: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Sent: Wednesday, January 23, 2013 10:17 AM Subject: Re: [TMIC] Facebook I disagree, unless at 61 I am one of the younger ones. I enjoy the words and the pictures. I collect a lot of the (to me) inspirational photos. I get a lot out of them, maybe because I haven't been reading as much as I used to. I have to get back to my books. Jude In a message dated 1/23/2013 11:39:25 A.M. Eastern Standard Time, _patticooley38@gmail.com_ (mailto:patticoole...@gmail.com) writes: I AGREE COMPLETELY DALTON. PATTI On Wed, Jan 23, 2013 at 10:09 AM, Dalton Garis <_malugssuak@me.com_ (mailto:malugss...@me.com) > wrote: For my situation, I don't need Facebook; But i see that for the young they really like to send pictures to each other. WE, on the other hand, grew up READING things rather than VIEWING things, and that is the difference. We read and the younger set views. It is WORDS ON A PAGE for us, but for the younger set they IMAGE more. dg Dalton Garis Flushing, Queens New York, USA _(718) 838-0437_ (tel:(718)%20838-0437) =
Re: [TMIC] Facebook
Cindy, I haven't been able to read for a very long time. At first, I thought it was my glasses, but after getting new ones, the problems still exist. I have the same difficulties that Cindy does. Seems like I read paragraphs 2 or 3 times before I "get" it. I used to have 3 books going at a time, but not now. There is a book on the table beside me collecting dust. It's all I can do to work a puzzle in my puzzle books. Jude, Michigan In a message dated 1/24/2013 4:21:26 P.M. Eastern Standard Time, cindymcle...@socal.rr.com writes: I love to read but for the last 10 years or so I have extreme difficulty concentrating on reading a book. It seems I have to read 10 pages, go back 5, read 10 more, go back 5. Think every book I get through I must have read it at least twice. Do others have this problem? Cindy - Original Message - From: _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) To: _patticooley38@gmail.com_ (mailto:patticoole...@gmail.com) ; _malugssuak@gmail.com_ (mailto:malugss...@gmail.com) Cc: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Sent: Wednesday, January 23, 2013 10:17 AM Subject: Re: [TMIC] Facebook I disagree, unless at 61 I am one of the younger ones. I enjoy the words and the pictures. I collect a lot of the (to me) inspirational photos. I get a lot out of them, maybe because I haven't been reading as much as I used to. I have to get back to my books. Jude In a message dated 1/23/2013 11:39:25 A.M. Eastern Standard Time, _patticooley38@gmail.com_ (mailto:patticoole...@gmail.com) writes: I AGREE COMPLETELY DALTON. PATTI On Wed, Jan 23, 2013 at 10:09 AM, Dalton Garis <_malugssuak@me.com_ (mailto:malugss...@me.com) > wrote: For my situation, I don't need Facebook; But i see that for the young they really like to send pictures to each other. WE, on the other hand, grew up READING things rather than VIEWING things, and that is the difference. We read and the younger set views. It is WORDS ON A PAGE for us, but for the younger set they IMAGE more. dg Dalton Garis Flushing, Queens New York, USA _(718) 838-0437_ (tel:(718)%20838-0437)
Re: [TMIC] neurologist
Deb, May I ask who you are? What's your full name. address and phone number? I am updating my TMIC address book and promise to never share your information with anybody. I may want to send you a card or call you sometime. Thank you for posting. It really means a lot. Love you, Jude Michigan In a message dated 1/24/2013 6:45:45 P.M. Eastern Standard Time, aiki...@optonline.net writes: I see my neurologist every 3 -4 months, as that is a requirement when receiving Tysabri infusions for MS. Blood work is done every 3 months and Brain MRI every 6 months, all these are requirements for Tysabri. It is a monthly infusion that can possibly cause a deadly brain infection, hence all the follow-up. It is the only MS medication that truly works the best and after doing shots every day for a year with Copaxone I take the chance that all the tests would catch the virus before it did damage. I do have TM for 4.5 years now, they diagnosed it as being caused by MS. My lesion is at T8-10, I believe. Had to learn to stand, walk, so steps again. Ended up with a cane and walking slower and more unsteady than before TM. I would watch how people walked and especially how they went up and down stairs. My symptoms and pain are pretty much the same as most in this group. It definitely makes a difference who your Neurologist is. Mine diagnosed TM about 5-10 minutes after I first walked through his door. I had 3 days of steroid infusions, starting that day (had them stay late for me), then oral steroids. It was a few weeks after that when I lost control of my leg muscles. This time went into his office in a wheelchair and he put me in hospital for 5 days of intravenous steroids 3x day, then off to Re-hab for few weeks. Finally home, where I never stopped trying to improve and I still concentrate on walking better, etc. If only the pain would stop I could deal with the rest; fatigue, cognitive, unable to do all I did before TM. I am still improving minutely but I can’t stop believing and trying to walk normal again and praying that pain reduction would go along with that. For me, my Neurologist is like my PCP; I see him, email him when things change and he gives me all my meds (which is a lot). I have constant very painful nerve pain in both legs, feet being the worst. He is a MS specialist and the office is a MS Center. I also get tested for my optical nerve, cognitive abilities and my gait once a year. I feel blessed to have my doctor. He is available by email anytime, including nights, weekends and of course by phone during the day and an emergency number. He listens to my symptoms, adjusts meds when necessary and marks any differences in my sensations and movements. Seeing my Neurologist on a regular basis also makes me feel secure that someone who is very competent and understanding of my condition is watching over me and knows my history if God forbid something happens again. Wow, didn’t realize all this would come out. That is what’s great about this group; it’s a safe comfortable place to say what you need to because you all understand. It’s so nice to have emails from this group again. Make it a great day, Deb From: Barbara H. [mailto:barbara...@gmail.com] Sent: Thursday, January 17, 2013 11:33 AM To: Robert Pall Cc: tmic-list@eskimo.com Subject: Re: [TMIC] neurologist I think it depends on one's needs. I've had TM for 17 years and haven't seen a neurologist in about 14 years. I got to an acceptable plateau (can walk and pretty well function as a homemaker and volunteer, have some issues with fatigue, balance, and muscle spasms. I don't think I could hold down a job for various reasons, but I've been able to raise my children, keep my home, and help out in various areas at church and my kids' schools). I am not on any TM-related medications, so when we moved to another state, I didn't seek out a new neuro. It helped that my PCP was knowledgeable about TM and willing to refer me to anyone I wanted to see -- it was through him I was referred to a urologist for problems in that realm. If I had problems that only a neuro could help with or was on certain medications that it would be best for him to monitor, I'd see one, and I'd encourage anyone with any of those needs to keep seeing one, but otherwise there is no need to see him every year just to hear that everything is the same, which is about where we were when I last saw him. Of course, if new problems or questions crop up, I wouldn't hesitate to seek one out. Barbara H. _http://barbarah.wordpress.com_ (http://barbarah.wordpress.com/) On Thu, Jan 17, 2013 at 11:21 AM, Robert Pall <_robthecfo@aol.com_ (mailto:robthe...@aol.com) > wrote: I disagree with all of you who are saying that you have either stopped going to a neurologist or see one very infrequently. I saw Dr Kerr at John Hopkins for
Re: [TMIC] reviving the list
You are in, my friend. Jude. In a message dated 1/24/2013 12:02:18 P.M. Eastern Standard Time, el...@att.net writes: Hi TMIC LIST. I've tried to post and am having a little trouble. I need to test this mail to see if I'm getting in. Okay am I getting in on all the conversation? Rick From: "heyjude48...@aol.com" To: kandyd...@yahoo.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 10:12 PM Subject: Re: [TMIC] reviving the list Hi Candy, It's good to hear from you again. It's been years. I guess there must be room for 3 groups. I don't know. Maybe it's the fact that on Facebook one can see what the other person looks like. That aspect was fun for me at first...seeing everyone for the first time. Incredible, almost like meeting a long lost friend. But, then, lately, I have kind of been appalled by the fact that instead of truly voicing their opinions about a given subject all people do is make one line comments about nothing. I can't explain it. People are wonderful and very supportive and I love them all so, but TMIC just seems better to me. It's getting late, I'll talk to you soon. Send me your full name, address and phone number for my address book. I may want to send you a card or call you some time. I will never give out your info to anyone. Love and Hugs, Jude, Michigan In a message dated 1/23/2013 11:03:32 P.M. Eastern Standard Time, kandyd...@yahoo.com writes: What are the 3 groups? I also started here and since no one was talking, I moved to FB (which I don't really like). Why are there so many groups? Seems there should only be one. Thanks Candy From: "heyjude48...@aol.com" To: s.gurn...@xtra.co.nz Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 10:17 PM Subject: Re: [TMIC] reviving the list Hi Shirley, Thank you for the well wishes...however, I am confused. On one hand you say we are doing a good job, but then you say (the way I read it) that Facebook is better because the groups are closed. Please help me out. Judy Michigan Dare to dream, dare to fly, dare to be the ever chosen one to touch the sky...(unknown) In a message dated 1/23/2013 9:49:01 P.M. Eastern Standard Time, s.gurn...@xtra.co.nz writes: Good afternoon Jude, Janice, Cheryl, Dalton and many more members that are coming back to the site. I think a big thank you is in order to Jude and Janice for their contribution to the club of TMer’s that prefer this way of communicating, well done. I’m a silent observer, I am one of the Global Moderators of the TMA site, so my time goes into the Board Index sites, plus helping newbies out both there and FB. The 3 TM groups on FB are well patronized and are closed to the public, which is a lot more private for us, as some of our problems can be rather personal. I look forward to catching up with some of you again, either here or FB. Take Care everybody. Shirley Gurnell (NZ) Life is short, Smile at everyone, Hug or shake hands with people, Bless all that you know, Pray for everyone, Laugh uncontrollably, Live long... God is great, God is good, Let us thank Him, For this group... Life is short, Smile at everyone, Hug or shake hands with people, Bless all that you know, Pray for everyone, Laugh uncontrollably, Live long...
[TMIC] Re: reviving the list
Catch us up, Rick...what happened, how did you progress and what can you do now? It's been so long, I'm going to ask everyone for their stories. Love you, Jude In a message dated 1/24/2013 12:11:00 P.M. Eastern Standard Time, el...@att.net writes: Rob I'm with you. I like making new friends but the old ones on this site have the most up to date news on Transverse Myelitis and thats what drew me here back in 1998. I was one of the first. Back then Drs.told me i'd never make it this far. Well, how do ya like me now? Tm for 15 years. Rick in TN.
[TMIC] Re: Rick(el...@att.net)
To subscribe: _tmic-list-request@eskimo.com_ (mailto:tmic-list-requ...@eskimo.com)and in the main line, put Subscribe, and you can also include it in the body of the letter if you want. To write to the list, send it to: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) . That ought to do it. We have been talking about this winter and having the flu and bad colds. Next, I am going to discuss what roll does Stress have in your life. Love you, Jude In a message dated 1/24/2013 12:24:21 P.M. Eastern Standard Time, el...@att.net writes: Jude I'm hving hell trying to post to the list. Explain again how to do it. I guess I have to resubscribe or some thing.Rick
Re: [TMIC] reviving the list
Hi Candy, It's good to hear from you again. It's been years. I guess there must be room for 3 groups. I don't know. Maybe it's the fact that on Facebook one can see what the other person looks like. That aspect was fun for me at first...seeing everyone for the first time. Incredible, almost like meeting a long lost friend. But, then, lately, I have kind of been appalled by the fact that instead of truly voicing their opinions about a given subject all people do is make one line comments about nothing. I can't explain it. People are wonderful and very supportive and I love them all so, but TMIC just seems better to me. It's getting late, I'll talk to you soon. Send me your full name, address and phone number for my address book. I may want to send you a card or call you some time. I will never give out your info to anyone. Love and Hugs, Jude, Michigan In a message dated 1/23/2013 11:03:32 P.M. Eastern Standard Time, kandyd...@yahoo.com writes: What are the 3 groups? I also started here and since no one was talking, I moved to FB (which I don't really like). Why are there so many groups? Seems there should only be one. Thanks Candy From: "heyjude48...@aol.com" To: s.gurn...@xtra.co.nz Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 10:17 PM Subject: Re: [TMIC] reviving the list Hi Shirley, Thank you for the well wishes...however, I am confused. On one hand you say we are doing a good job, but then you say (the way I read it) that Facebook is better because the groups are closed. Please help me out. Judy Michigan Dare to dream, dare to fly, dare to be the ever chosen one to touch the sky...(unknown) In a message dated 1/23/2013 9:49:01 P.M. Eastern Standard Time, s.gurn...@xtra.co.nz writes: Good afternoon Jude, Janice, Cheryl, Dalton and many more members that are coming back to the site. I think a big thank you is in order to Jude and Janice for their contribution to the club of TMer’s that prefer this way of communicating, well done. I’m a silent observer, I am one of the Global Moderators of the TMA site, so my time goes into the Board Index sites, plus helping newbies out both there and FB. The 3 TM groups on FB are well patronized and are closed to the public, which is a lot more private for us, as some of our problems can be rather personal. I look forward to catching up with some of you again, either here or FB. Take Care everybody. Shirley Gurnell (NZ) Life is short, Smile at everyone, Hug or shake hands with people, Bless all that you know, Pray for everyone, Laugh uncontrollably, Live long... God is great, God is good, Let us thank Him, For this group... Life is short, Smile at everyone, Hug or shake hands with people, Bless all that you know, Pray for everyone, Laugh uncontrollably, Live long...
Re: [TMIC] Re: Subscribe
s he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 To: i.whiddett Cc: tmic-list Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, _i.whiddett@sky.com_ (mailto:i.whidd...@sky.com) writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had happened! So, thanks for taking on board what seems to be a lone voice from the UK and for all the kind words of encouragement and advice. Just to be sure I am a "proper" member, my details are:- Iris Whiddett 98 Eastwood Road Rayleigh Essex England Tel: 01268 771642 Regards Iris UK
Re: [TMIC] reviving the list
Hi Shirley, Thank you for the well wishes...however, I am confused. On one hand you say we are doing a good job, but then you say (the way I read it) that Facebook is better because the groups are closed. Please help me out. Judy Michigan Dare to dream, dare to fly, dare to be the ever chosen one to touch the sky...(unknown) In a message dated 1/23/2013 9:49:01 P.M. Eastern Standard Time, s.gurn...@xtra.co.nz writes: Good afternoon Jude, Janice, Cheryl, Dalton and many more members that are coming back to the site. I think a big thank you is in order to Jude and Janice for their contribution to the club of TMer’s that prefer this way of communicating, well done. I’m a silent observer, I am one of the Global Moderators of the TMA site, so my time goes into the Board Index sites, plus helping newbies out both there and FB. The 3 TM groups on FB are well patronized and are closed to the public, which is a lot more private for us, as some of our problems can be rather personal. I look forward to catching up with some of you again, either here or FB. Take Care everybody. Shirley Gurnell (NZ) Life is short, Smile at everyone, Hug or shake hands with people, Bless all that you know, Pray for everyone, Laugh uncontrollably, Live long... God is great, God is good, Let us thank Him, For this group... Life is short, Smile at everyone, Hug or shake hands with people, Bless all that you know, Pray for everyone, Laugh uncontrollably, Live long...
Re: [TMIC] Re: Subscribe
Kim, So glad to see you. I have to wear leg warmers and socks. I get too cold too easily. Once I get chilled it takes a ton of blankets for me to get warmed up again and it takes hours. It also bothers me to get too warm...then I'm likely to have an attack of autonomicdisreflexia. Almost had one the other evening, but I took an Oxycodone and it never developed. Jude In a message dated 1/23/2013 7:29:27 P.M. Eastern Standard Time, kimharrison7...@att.net writes: Thank you Jude.. our Cheerleader !! How is the cold effecting ya'all.. I HATE it... everything stings and hurts more and worse is I can not wear sholes for socks so TM legs stick and feet are freezing... anyone else? From: "heyjude48...@aol.com" To: jcs...@yahoo.com Cc: tmic-list@eskimo.com Sent: Wed, January 23, 2013 7:24:07 PM Subject: Re: [TMIC] Re: Subscribe I'm happy that you guys are glad to see us active again. I am working my = off to keep us up and running. Neither Jim Lubin or Sam Siegel are interested in doing anything with us anymore so it is just me trying like hell to keep things interesting. However, I am running out of ideas to talk about and need your help. I just got an email today from a lady who is interested in joining us, so I sent her the info. Help! Jude In a message dated 1/23/2013 5:51:24 P.M. Eastern Standard Time, jcs...@yahoo.com writes: i wollowed with why and how and the thought came to me,,it doesnt matter how or why if i knew,,it would still hurt. From: Robert Pall To: heyjude48...@aol.com; i.whidd...@sky.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 1:56 PM Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 To: i.whiddett Cc: tmic-list Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, _i.whiddett@sky.com_ (mailto:i.whidd...@sky.com) writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had happened! So, thanks for taking on board what seems to be a lone voice from the UK and for all the kind words of encouragement and advice. Just to be sure I am a "proper" member, my details are:- Iris Whiddett 98 Eastwood Road Rayleigh Essex EnglandTel: 01268 771642 Regards Iris UK
Re: [TMIC] Re: Subscribe
I'm happy that you guys are glad to see us active again. I am working my = off to keep us up and running. Neither Jim Lubin or Sam Siegel are interested in doing anything with us anymore so it is just me trying like hell to keep things interesting. However, I am running out of ideas to talk about and need your help. I just got an email today from a lady who is interested in joining us, so I sent her the info. Help! Jude In a message dated 1/23/2013 5:51:24 P.M. Eastern Standard Time, jcs...@yahoo.com writes: i wollowed with why and how and the thought came to me,,it doesnt matter how or why if i knew,,it would still hurt. From: Robert Pall To: heyjude48...@aol.com; i.whidd...@sky.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 1:56 PM Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 To: i.whiddett Cc: tmic-list Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, _i.whiddett@sky.com_ (mailto:i.whidd...@sky.com) writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had happened! So, thanks for taking on board what seems to be a lone voice from the UK and for all the kind words of encouragement and advice. Just to be sure I am a "proper" member, my details are:- Iris Whiddett 98 Eastwood Road Rayleigh Essex EnglandTel: 01268 771642 Regards Iris UK
[TMIC] Re: Stress
Wow...thanks Roger for your points on imagery, distraction, and age progression. Those are all valid things to think about. Yours, Jude In a message dated 1/22/2013 11:09:04 P.M. Eastern Standard Time, r.c.pr...@frontier.com writes: First of all, let me say to Jude that I am really sorry to hear about Dave. My prayers are with you. Stress - what a difficult topic. As I mentioned in a previous e-mail, I have gone through 3 different illnesses that I believe are all related (auto-immune problems). All I can say is that stress has made all the symptoms/residuals (whatever you want to call them) worse. Just when I think things are getting better, a bunch of stresses hit and then everything seems to go to hell-in-a-handbasket. So we all know that stress is a bad thing. Some suggestions that I try to use for pain relief also seem to help with stress. These include: · Visual imagery and distraction: Imagery involves concentrating on mental pictures of pleasant scenes or events or mentally repeating positive words or phrases to reduce pain. Distraction techniques focus your attention away from negative or painful images to positive mental thoughts. This may include activities as simple as watching television or a favorite movie, reading a book or listening to a book on tape, listening to music, or talking to a friend. * Age progression/regression: Use your mind’s eye to project yourself forward or backward in time to when you are pain-free (or stress-free) or experiencing much less pain (or stress). Then instruct yourself to act "as if" this image were true. I know that at first I thought this was a bit lame, the old mind over matter silliness, but it can help some. As others have said, I also place a lot of importance on faith and prayer. I beieve very strongly that God loves us, and talking to Him helps a lot. Just some thoughts - Roger in Kennewick, WA