[TMIC] TMIC posts....
Hello everyone, Most of you know me from my group on FacebookTransverse Myelitis Folks. I have been a subscriber here on the TMIC since shortly after my onset of TM back in May 2008and I have gotten some decent bits of info from here and then, as most of you knowthings here on the TMIC kind of dwindled off for awhilebut recently there has been a resurgence of postings... For some, this has been a good thing For me, it's been nothing but a nightmare... At first I was subscribed to the daily digest and I was receiving 20 to 30 posts in my email I was kind of tired of that because 90% of the posts were nothing more than a few word answer to the original post. I still had to scroll through each and every post and mark them to delete them So, yesterday I subscribed to the digest postings where it would send me a culmination of posts from the last two days I got up this morning and I had 87 posts I had to scroll through each and every one of them to delete them I had originally subscribed to this group because on occasion I would find a good piece of info that was useful to me and to others I have not seen that much of that lately So, it is with regret that I am cancelling my subscription here and concentrating on my TM Folks group and my TM Network... At least in this way, I can read the original post and if the answers to that post aren't something that interests me, I can just scroll on past them on to the next post. I can also concentrate on finding good pertinent info to post to the group and also save it in the "Files" section for members to be able to refer to at a later date I know that the TMIC has been around for a long time.but personally, I like the "family" type of atmosphere of my group on Facebookwhere you can see pictures of the person and their kidsIt makes it more of a personal thing...after all, we are one large extended family SoI wish all of you continued success hereand for those that are still on Facebook too...I look forward to seeing you there... I just can't deal with having my email inbox inundated with 80 plus emails of which the majority of them have no pertinent info. My primary goal is to provide the members of my group, info that they will find useful and informative. Yes, there are always the posts where folks gripe about this or thatbut that is also part of my group...To be able to support those that need it. Thanks for the time that I have spent hereI'll miss some of you... Take care and god bless Kevin Weilacher.
Re: [TMIC] OT "suspicious" email
Hi Folks, Apparently I got hacked. I'm working on clearing this up right now. I apologize. From: Deborah Capen To: Gary Thomas Cc: "" ; tmic Sent: Tuesday, November 13, 2012 9:35 AM Subject: Re: [TMIC] OT "suspicious" email Got the same email from Regina Rummel also. Debbie Sent from my iPod. On Nov 13, 2012, at 6:44 AM, "Gary Thomas" wrote: >I got that same one and didn't open it. >Gary T. >- Original Message - >>From: rn11...@yahoo.com >>To: tmic >>Sent: Tuesday, November 13, 2012 6:54 AM >>Subject: [TMIC] OT "suspicious" email >> >> >>Hi Everyone >> I got an email from Kevin Weilacher at 10:30 pm 11/12. There was a link in >>it to an msnbc job.com local I received a similar letter from my brother >>this summer,didn't open the link. When I contacted him ,he said he never >>sent it. Turns out his computer was hacked. >>I tried to email Kevin,and my email was blocked from being sent, saying >>there was "suspicious activity on that account. >>Kevin,let me and the group know if this is from you. >> Cheryl
Re: [TMIC] Is anyone here?
Granted...the Facebook groups aren't for everyone...but a large majority of people are actively seeking out the groups now In the TM Folks group, the majority of the info posted, is TM related...and of course, there is the occasional post that takes a different turn off subject. Personally, I like off subject posts on occasion.it's kind of nice to hear about something non TM related once in awhile. It takes my mind off of the TM and gives me something new to think about... I don't like dwelling on TM 24/7 so when there is something new that's posted, it's kind of refreshing. As far as a person's mailbox getting filled upthat doesn't happen anymore. Facebook changed that. You now have to sign up to get daily posts in your mailbox Prior to that, you could set the parameters to not receive the posts to your mailbox. The way the groups are set up nowFacebook is a great way to network with others in your own area and also to go into the chat room and chat real time. It's all personal preferenceand Facebook works for me... From: Robert Pall To: hwyfli...@yahoo.com; tmic-list@eskimo.com Sent: Thursday, May 17, 2012 7:11 PM Subject: Re: [TMIC] Is anyone here? I have been on the Facebook TM rooms and found much too much chatting and not enough TM info. My mailbox was constantly filled with just chit chat. I hated when this happened in our group and I still do. I like to hear how people are doing but I do not want qan hour by hour dialogue. Sorry but the facebook group does not work for me! Rob in New Jersey -Original Message- From: kevin weilacher To: Bernie Pelow ; rn11974 ; TMIC Sent: Thu, May 17, 2012 5:31 pm Subject: Re: [TMIC] Is anyone here? Actually, The best Facebook group is the Transverse Myelitis Folks group... https://www.facebook.com/groups/TMFolk/ That is where you'll find the most activity and the majority of the old timers that were on this group It is a closed group meaning that only people that are members of that group can see what it being posted, that way we can chat about some of the more personal things regarding TM and not worry about the rest of your Facebook friends reading about it... and also, the group welcomes family members and caregivers with open arms... If they are interested in being active in someones dealings with TM, then they are welcome to join in and see for themselves what we are going through. I hope to see some of you there.. Kevin From: Bernie Pelow To: "rn11...@yahoo.com" ; TMIC Sent: Thursday, May 17, 2012 9:56 AM Subject: Re: [TMIC] Is anyone here? There is a specific group on Facebook called "People Living with Transverse Myelitis" that you can join. it's like this, but you can chat with people live without emails, and also share as we do here. I just got the invite on Facebook, or you can join and search "People Living with Transverse Myelitis" and click 'join' and it takes about a minute to be accepted. Looks interesting to me, and can't wait to chat with folks one on one without waiting hours or days for a reply. Might want to check it out. peace, Bernie in Texas
Re: [TMIC] Is anyone here?
Actually, The best Facebook group is the Transverse Myelitis Folks group... https://www.facebook.com/groups/TMFolk/ That is where you'll find the most activity and the majority of the old timers that were on this group It is a closed group meaning that only people that are members of that group can see what it being posted, that way we can chat about some of the more personal things regarding TM and not worry about the rest of your Facebook friends reading about it... and also, the group welcomes family members and caregivers with open arms... If they are interested in being active in someones dealings with TM, then they are welcome to join in and see for themselves what we are going through. I hope to see some of you there.. Kevin From: Bernie Pelow To: "rn11...@yahoo.com" ; TMIC Sent: Thursday, May 17, 2012 9:56 AM Subject: Re: [TMIC] Is anyone here? There is a specific group on Facebook called "People Living with Transverse Myelitis" that you can join. it's like this, but you can chat with people live without emails, and also share as we do here. I just got the invite on Facebook, or you can join and search "People Living with Transverse Myelitis" and click 'join' and it takes about a minute to be accepted. Looks interesting to me, and can't wait to chat with folks one on one without waiting hours or days for a reply. Might want to check it out. peace, Bernie in Texas
Re: [TMIC] In Memorium
In regards to Kenhis son was the one that had been informing us on Ken's situation and he was using Ken's email address... kenoliver...@hotmail.com I doubt that he kept that email address active after Ken passed but I don't know that for sure. This is the only email address I ever had for Ken while we were corresponding. If anyone knows Ken's sons email address, that would be the only way to make contact. Kevin From: Jan Hargrove To: Barbara H. ; tmic ; Lori Biehler Sent: Monday, April 2, 2012 10:11 AM Subject: Re: [TMIC] In Memorium I have hismother's name andemail..but I have no idea if she is still living. Name: Virginia Livingston E-mail: nana-...@webtv.net We corresponded for a while but only while she was grievingjanh --- On Sun, 4/1/12, Lori Biehler wrote: >From: Lori Biehler >Subject: Re: [TMIC] In Memorium >To: "Barbara H." , "tmic" >Date: Sunday, April 1, 2012, 3:09 PM > > >I think of Doc often, it has been so long since he passed and it was such an >unnecessary passing. I am sure he is at peace now, his pain made him a bit of >a pain . I have no clue how to reach his sons, they emailed me for a bit after >he died. >Lori >From: Barbara H. >Sent: Sunday, April 01, 2012 12:00 AM >To: tmic >Subject: [TMIC] In Memorium > As I was preparing the birthday list for this month, I saw that April was >the birthday month of two long-time TMIC members who have passed on: Ken >Oliver (birthday: April 1) who just passed away this last year I think, and >"Doc" (Roger: I am not sure of his last name) (birthday: April 24). I don't >have the contact information for any of their family members, but if any of >you do, they might appreciate hearing that we were thinking of their loved >ones and their loss and ours. > >Barbara H. >http://barbarah.wordpress.com/ >
Re: [TMIC] Blown Away
Akua, I suppose that it might be hard for some to contemplate a person's situation without actually "living in their shoes" so to speak. Unfortunately, there are those that don't realize that there is another way of life that some live, that is different from their own. It is apparent then, that they also don't realize that without resources, it is very hard to change the situation a person is in. If those resources don't exist, then a person is unfortunately confined to trying to make the best of what they have. Seems that there is some ignorance from within the disabled community against others that are disabled, as there is some ignorance from those that aren't disabled, against those of us that are. (ie: I hear the comment all the time..it's in your heador, if you exercised more you would get better) Just my point of view. Kevin https://www.facebook.com/groups/TMFolk/ From: "a...@artfarm.com" To: tmic-list@eskimo.com Sent: Saturday, March 31, 2012 9:41 PM Subject: [TMIC] Blown Away i'm dumbstruck at the question "why do I stay" coming from this group. I am paralyzed -- i would think folks here at least might understand what having a disability thrust on them late in life would mean. Or maybe i just didn't know that there were services that buy one's home, pack one up, and relocates them to more congenial and supportive communities. I never found such, but it could just be the limits of my imagination. Or maybe i'm the only person here without the money to just buy myself the solutions i need. I am obviously wrong on many counts.
Re: [TMIC] 35 Things you probably don't know about TM
Hey everyone... I'm the one that put this list togetherand if anyone wants a good copy of it...I have it in a PDF file that is nice and easy to print out... I had never thought about posting it here because I don't post on here much and I stay pretty busy with my Facebook group... From: Janice Nichols To: Roger & Terese Pratt ; 'Gary Thomas' ; 'john snodgrass' ; 'transverse myelitis' Sent: Wednesday, January 25, 2012 10:56 AM Subject: Re: [TMIC] 35 Things you probably don't know about TM Thanks, Gary. THis is great to be able to keep on hand. When people want to know about it, I am sure I forget a lot of this. I will keep it in my purse! Janice From: Roger & Terese Pratt Sent: Wednesday, January 25, 2012 9:42 AM To: 'Gary Thomas' ; 'john snodgrass' ; 'transverse myelitis' Subject: RE: [TMIC] 35 Things you probably don't know about TM I just did select all, then copy, and pasted it into a word document. – Roger in Kennewick , WA From:Gary Thomas [mailto:gbthomas8...@sbcglobal.net] Sent: Tuesday, January 24, 2012 7:59 PM To: john snodgrass; transverse myelitis Subject: Re: [TMIC] 35 Things you probably don't know about TM John. This is a good list. I would like to have it to copy without re-typing it . It came out (at least in my email) "scrunched" together. Is there a way to resend it in a better form. Thanks. Gary - Original Message - >From:john snodgrass >To:transverse myelitis >Sent:Tuesday, January 24, 2012 10:47 PM >Subject:[TMIC] 35 Things you probably don't know about TM > >seen this on facebook and didnt know if it was passed to this group or not. A >list to share with Dr's and family to help inform them about our condition. >john > > >35 Things you probably don't know about TM > >1. It is a cousin disorder to Multiple Sclerosis. http:// www.hopkinsmedicine.org/ neurology_neurosurgery/ specialty_areas/ project_restore/conditions/ > >2. Fairly rare disorder, only 2-5 people per million get it. > >3. Approx. 1400 new cases a year in the U.S. http://www.ninds.nih.gov/ >disorders/transversemyelitis/ detail_transversemyelitis.htm > >4. Roughly 33,000 people with TM in U.S. http://www.ninds.nih.gov/ >disorders/transversemyelitis/ detail_transversemyelitis.htm > >5. Transverse myelitis occurs in adults and children, in both genders, and in > all >races. http://www.ninds.nih.gov/ disorders/transversemyelitis/ >detail_transversemyelitis.htm > >6. Can be Acute (happening within hours) or Subacute (happening within days >or weeks) > >7. The inflammation that causes such extensive damage to nerve fibers of the >spinal cord may result from viral infections, abnormal immune reactions, or >insufficient blood flow through the blood vessels located in the spinal cord. >Transverse myelitis also may occur as a complication of syphilis, measles, >Lyme disease, and some vaccinations, including those for chickenpox and >rabies. > >8. Can be Idiopathic (no known cause) > >9. Typically a one time occurrence but there are some that have recurrent TM. > >10. 10% or better possibility of developing Multiple Sclerosis but the >possibility is fairly low if there is a normal brain MRI at TM >onset...http:// www.ncbi.nlm.nih.gov/pubmed/ 18080852 > >11.Most symptoms of TM are identical to MS > >12.Prevailing difference between TM and MS is that lesions are on spinal >nerve in >TM and on Brain in MS. > >13.Transverse myelitis is a neurological disorder caused by inflammation >across >both sides of one level, or segment, of the spinal cord. This damage causes >nervous system scars that interrupt communications between the nerves in >the spinal cord and the rest of the body. > >14. The inflammation and lesion created, is caused by the bodies own immune >system attacking the myelin coating of the spinal nerve. > >15.The segment of the spinal cord at which the damage occurs determines which >parts of the body are affected. Nerves in the cervical (neck) region control >signals to the neck, arms, hands, and muscles of breathing (the diaphragm). >Nerves in the thoracic (upper back) region relay signals to the torso and >some >parts of the arms. Nerves at the lumbar (mid-back) level control signals to >the >hips and legs. Finally, sacral nerves, located within the lowest segment of >the >spinal cord, relay signals to the groin, toes, and some parts of the legs. >Damage >at one segment will affect function at that segment and segments below it. In >patients with transverse myelitis, demyelination usually occurs at the >thoracic >level, causing problems with leg movement and bowel and bladder control, >which require signals from the lower segments of the spinal cord. >http://www.ninds.nih.gov/ disorders/transversemyelitis/ >detail_transversemyelitis.htm > >16.About one-third of people affect
Re: [TMIC] Power Balance Wristbands
Scam http://gizmodo.com/5723577/powerbalance-admits-their-wristbands-are-a-scam From: I Whiddett To: tmic-list@eskimo.com Sent: Tuesday, January 3, 2012 7:17 AM Subject: [TMIC] Power Balance Wristbands Hello Everyone - A Happy New Year to all. Just saw ice dancing king, Christopher Dean,praising these wristbands. I have no hopes of taking to the ice, although I did enjoy roller skating back in the day, but has anyone tried these bands for balance problems caused by TM damage? re the recent discussion on long pants under trousers, Marks and Spencers thermal long pants and camisoles are wonderful, only wish I had discovered them sooner. Iris UK
Re: [TMIC] Geron Halts Trial Because of No Money
Geron pulling out of the stem cell research for MS and TM is old news. There is new hope through Case Western Reserve University School Of Medicine (Cleveland Ohio)... They have some stem cell research currently going on to treat MS http://casemed.case.edu/dept/neurology/Research.html scroll down to where is says Translational Neurosciences Center Kevin NE Ohio (Canton) From: Akua To: tmic-list@eskimo.com Sent: Monday, November 28, 2011 10:01 PM Subject: Re: [TMIC] Geron Halts Trial Because of No Money Re: [TMIC] Geron Halts Trial Because of No Money ROFLOL!!! if only i were the rat they say i am > > > From: Akua >To: tmic-list@eskimo.com >Sent: Monday, November 28, 2011 4:56 PM >Subject: [TMIC] Geron Halts Trial Because of No Money > >Another option bits the dust. > >http://topnews.us/content/244764-lack-funds-halting-embryonic-stem-cells-trail > >Now on 10/20 they announced progress in the trials > >This is the stuff that worked on rats >"GRNOPC1 contains hESC-derived oligodendrocyte progenitor cells that have demonstrated remyelinating, nerve growth stimulating and angiogenic properties leading to restoration of function in rodent models of acute spinal cord injury. Preclinical studies have shown that administration of GRNOPC1 significantly improved locomotor activity and kinematic scores of rodents with spinal cord injuries when injected seven days after the injury. Histological examination of the injured spinal cords treated with GRNOPC1 showed improved axon survival and extensive remyelination surrounding the rodent axons. For more information about GRNOPC1, visit www.geron.com/GRNOPC1Trial . For further information about the Phase 1 clinical trial, including location of clinical sites, visit www.clinicaltrials.gov/ct2/show/NCT01217008." > > >(sniff) >-- --
Re: [TMIC] Neurology Now on TM
John, I totally get where you're coming from.right now I'm in a funk myselfI'm really kind of burned out on everythingI've been in a slump for a couple of weeks and have had to just sit back and relax lately... From: john snodgrass To: kevin weilacher ; pat cooley ; Akua Cc: "tmic-list@eskimo.com" Sent: Saturday, October 22, 2011 12:18 PM Subject: Re: [TMIC] Neurology Now on TM sometimes i get in such a mental situation that i could care less who knew what about TM ____ From: kevin weilacher To: pat cooley ; Akua Cc: "tmic-list@eskimo.com" Sent: Saturday, October 22, 2011 10:43 AM Subject: Re: [TMIC] Neurology Now on TM This is a note that I sent to Akua after she posted her note Akua, I have to tell youthat I've been writing to Neurology Now for the last year or more, asking them to do a story on TM and a long time ago they mentioned that they had considered it and I wrote them back and asked them if they would do a story that covered all aspects of TM...from the bad, with people that have had minimal recovery, such as you, to people that have had better recovery So that TM could be shown in all lights, so that it would more understood But of course, the magazine had to do a story on someone that had a more recognizable name such as Allenwhich in one way is goodbut it still doesn't give the "whole story". I was glad to see the articlebut kind of bummed that they chose to do the article the way they did... I was also glad to see that they did put the TM Network website in there as one of the information and reference websites since Greg and I have worked so hard at building it up. So, as you said Patwe all are very different in how TM affects each of usand I would have liked to have seen an article that showed thatbut the magazine only highlighted one person which is not a very good perspective on TM in general... I was very happy to see the coverage of TMdon't get me wrong.I just wish that it would have been an article that showed the good, bad and ugly... Oh wellat least it's a step in the right direction as far as getting some more awareness out there... Kevin N.E. Ohio (Canton) From: pat cooley To: Akua Cc: tmic-list@eskimo.com Sent: Saturday, October 22, 2011 10:15 AM Subject: Re: [TMIC] Neurology Now on TM One thing I have discovered that with TM we all are so different as to how TM affects us. I could cross my legs but I would have to help them get there with my hand. However, it would not be comfortable to keep them that way for more than a minute. Rucker is lucky that he can do so with comfor. Patti - Wisconsin On Fri, Oct 21, 2011 at 7:36 PM, Akua wrote: Neurology Now ( free sub) has an article on TM in its Oct/Nov 2011 issue focusing on Allen Rucker. >Kevin Sorbo is on the cover. > >I was glad to see the coverage! > >I was surprised at the picture of Rucker. I've told my friends who send me >vids about a "tell" , that I use to assess whether the person is in the same >state as I am: crossed legs. I can't move my legs, I am paralyzed, I tell >them. So when tehy asks why or whether I can do such and such I point out to >them that the guy who just got out the car from his wheel chair crossed his >legs at the ankle, for example. > >My legs splay, flop and gap and my feet don't always stay on the foot rests. >Which makes for danger if i don't notice, as more than once, I've rolled on >with an ankle stuck in a doorway. > >So it was a bit disconcerting to see this guy with his legs crossed, thigh >over thigh, like a walker, posed in his wheelchair. That's a thousand percent >more motion and control than I have. > >-- > >
Re: [TMIC] Neurology Now on TM
This is a note that I sent to Akua after she posted her note Akua, I have to tell youthat I've been writing to Neurology Now for the last year or more, asking them to do a story on TM and a long time ago they mentioned that they had considered it and I wrote them back and asked them if they would do a story that covered all aspects of TM...from the bad, with people that have had minimal recovery, such as you, to people that have had better recovery So that TM could be shown in all lights, so that it would more understood But of course, the magazine had to do a story on someone that had a more recognizable name such as Allenwhich in one way is goodbut it still doesn't give the "whole story". I was glad to see the articlebut kind of bummed that they chose to do the article the way they did... I was also glad to see that they did put the TM Network website in there as one of the information and reference websites since Greg and I have worked so hard at building it up. So, as you said Patwe all are very different in how TM affects each of usand I would have liked to have seen an article that showed thatbut the magazine only highlighted one person which is not a very good perspective on TM in general... I was very happy to see the coverage of TMdon't get me wrong.I just wish that it would have been an article that showed the good, bad and ugly... Oh wellat least it's a step in the right direction as far as getting some more awareness out there... Kevin N.E. Ohio (Canton) From: pat cooley To: Akua Cc: tmic-list@eskimo.com Sent: Saturday, October 22, 2011 10:15 AM Subject: Re: [TMIC] Neurology Now on TM One thing I have discovered that with TM we all are so different as to how TM affects us. I could cross my legs but I would have to help them get there with my hand. However, it would not be comfortable to keep them that way for more than a minute. Rucker is lucky that he can do so with comfor. Patti - Wisconsin On Fri, Oct 21, 2011 at 7:36 PM, Akua wrote: Neurology Now ( free sub) has an article on TM in its Oct/Nov 2011 issue focusing on Allen Rucker. >Kevin Sorbo is on the cover. > >I was glad to see the coverage! > >I was surprised at the picture of Rucker. I've told my friends who send me >vids about a "tell" , that I use to assess whether the person is in the same >state as I am: crossed legs. I can't move my legs, I am paralyzed, I tell >them. So when tehy asks why or whether I can do such and such I point out to >them that the guy who just got out the car from his wheel chair crossed his >legs at the ankle, for example. > >My legs splay, flop and gap and my feet don't always stay on the foot rests. >Which makes for danger if i don't notice, as more than once, I've rolled on >with an ankle stuck in a doorway. > >So it was a bit disconcerting to see this guy with his legs crossed, thigh >over thigh, like a walker, posed in his wheelchair. That's a thousand percent >more motion and control than I have. > >-- > >
[TMIC] The book is finished
For those of you that are only here in this groupI wanted to pass on that I had started the process at the beginning of the year to do a book of stories from a group of us that have TM... I put together a book of 20 stories and the book is now finished... Hey everyoneI just got this email from the publisher... It appears that it is done This is the email that I gotI am posting this because this gives you an opportunity to get the book at a 20% discountwhich I am encouraging you to use... PublishAmerica is proud to announce the recent release of Kevin D Weilacher's new book: Transverse Myelitis! Here's what the author says about the book: Transverse Myelitis: Our Stories is a culmination of stories from twenty people from all over the world that have been stricken with Transverse Myelitis.We just want people to know what hurdles we have to overcome in fighting this devastating disorder in hopes of finding a cure some day. We want to see the little children that become afflicted with TM, have the opportunity to be cured and lead a normal life that a child deserves to have. Not to be ridden with pain, diets of medications and a full calendar of doctors visits.Transverse Myelitis: Our Stories is dedicated to the doctors that are currently researching a cure, all of the people that contributed their story to this book and to all our TM brethren. A special dedication goes out to Mack Styron II for coming up with the idea of putting this book together.Kevin Weilacher & Mack Styron II We are offering you an opportunity to secure your personal copy of Kevin D Weilacher’s exceptional book today. Please click here: http://www.publishamerica.net/product44380.html to secure your copy of the book*, then click Add to Cart. For an introductory discount of 20%, use this coupon code: Discount20. So...if anyone wants a copy...there's the link The proceeds of this book are going towards research for a cure for TM... Thanks, Kevin Canton, OH
Re: [TMIC] gone to facebook
Hello all, I'm still a member here too...and read every single post that comes from this group and this group still has it's place in the TM Community...because for some, this is the type of correspondence that they are comfortable with... ButI started the TM Folks group on Facebook first of all, for those of us that were already on Facebook and wanted to connect that wayand second, is because the majority of the "newbies" that are younger and also the ones that are now coming on board.generally look to Facebook for a group that is pertinent to them... I have had literally dozens of people that have had TM for a long time...and have never reached out to any of the TM communities before...for whatever reason.., and now they have decided to reach out and they have gone to Facebook to look for others... When I made the TM Folks groupI made it so that it is a "closed" group...meaning that none of the posts that are made in there, can be seen by anyone other than the other membersso that assures us some privacy and saves some of our dignity toobecause some of the things that are talked about, are obviously, of a very personal nature. Other people within Facebook can search for 'Transverse Myelitis" and the group will appear,(except for the posts) but a person has to request to be allowed into the group, they can't just join... The one other thing that I like about the Facebook group...is that you can chat with others that are within the group.if there are others, that are online and they are on your "friends" list...you have a private group chat box, and you can chat away. The one drawback as Bobberino said...is that you do get inundated with emails...every time someone posts, an email gets sent out... but, that can be changed, by editing your settings in the groupIt's a very easy thing to do... Anyway, the group is extremely active...there is always something going on, information being put out there...or whatever... I didn't mean this to be a "sales pitch" for the group...I just wanted to explain so that folks understand a little more about the Facebook group... As I said, this group here still has it's placeand hopefully always will...because there are those that just feel more comfortable with this type of format... and I'll continue to be a member for as long as this group stays around too... Mindy Edwards-King and Greg Sapp are my co-admins on there... Thanks all and keep posting here... Kevin Weilacher N.E. Ohio (Canton) From: Jeron Rampersad To: bpe...@austin.rr.com; cherp...@msn.com; tmic-list@eskimo.com Sent: Tuesday, August 30, 2011 7:51 AM Subject: RE: [TMIC] gone to facebook Hey guys, I too am on facebook, but to me this seems more appropriate. I get honest and open discussions from you guys and that's something I need to have. On facebook your privacy is not kept and sometimes things I'll say on here aren't things that i would share naturally with family or friends that don't understand TM and the life that I am forced to endure. Also, with my current situation, going through a messy divorce and traveling by myself for the last few months, I'd like to be as discreet about my life as possible. I can only find solace here and you guys give more value to my life than the people I'd always pray would understand instead of thinking of me as a burden. So, I'm always going to be right here.where I found the most beautiful bunch of people on the planet. Jeron, from Planet Earth! Date: Tue, 30 Aug 2011 04:03:18 -0500 From: bpe...@austin.rr.com To: cherp...@msn.com; tmic-list@eskimo.com Subject: Re: [TMIC] gone to facebook Hi Linda et all, I'm still here with ya'll, but I do have the Facebook along with this. And I wouldn't dream of leaving this list either. This is where it all began, and it's like a warm blanket. I don't post much as it's always the same, day after day; nothing to report. But that has a good side I guess lol. Take care and God Bless! Peace, Bernie in burning Texas
Re: [TMIC] Definition
The problem that I see with what Nietzsche said, is that there are many people that are not "invalids" as I am assuming in his definitionas people that are disabled That are as much as or even more of a drain on society.and use it to their advantage.perhaps in different ways than being dependent on a physician or medicine, but a drain on society nonetheless...(our prison system for oneor those that work the system in regards to welfare) I see his view as being totally ridiculous Kevin N.E. Ohio (Canton) From: pat cooley To: Janice Nichols Cc: Roger & Terese Pratt ; tmic-list Sent: Wednesday, August 17, 2011 10:48 AM Subject: Re: [TMIC] Definition I second that, Janice. Patti On Wed, Aug 17, 2011 at 9:44 AM, Janice Nichols wrote: Nietzche is an ___hole! Sorry if I offended anyone, but I couldn't believeI I just read such a statement. Who of us earthlings can determine whose life is being invalid/not valid? Who makes that >decision - only healthy people? What a jerk!! >Janice > > > >-Original Message- From: Roger & Terese Pratt > Sent: Tuesday, August 16, 2011 3:14 PM > >To: tmic-list >Subject: [TMIC] Definition > > >This is how I feel some times as an invalid (or is that invalid as in not >valid). I know it is wrong, but if Nietzshe said it, it must have been >thought many times before. Just having a bad day, I'll be more up tomorrow. > >"The invalid is a parasite on society. In a certain state it is indecent to go >on living. To vegetate on in cowardly dependence on physicians and medicaments >after the meaning of life, the right to life, has been lost ought to entail >the profound contempt of society." >-Friedrich Nietzsche > >- Roger in Kennewick, WA > > >
Re: [TMIC] OT - Question
I personally know a guy that uses Dragon. He is a home inspector and he uses Dragon to help do his written reports after an inspection. He's been using it for quite some time and he says that it works great... Kevin N.E. Ohio (Canton) From: "a-ry...@comcast.net" To: Bernie Cc: tmic Sent: Tuesday, August 16, 2011 8:06 AM Subject: Re: [TMIC] OT - Question I've used "MacSpeech Dictate", the Mac implementation of the Dragon algorithms. It worked well until my voice became guttural. Alton, who is now 76 - Original Message - From: Bernie To: TMIC , ... Sent: Mon, 15 Aug 2011 21:15:31 - (UTC) Subject: [TMIC] OT - Question Has anyone used the Dragon Speech System for their computer? The one where you talk and the computer types? Or do you know anyone who has used it? I need to find out if it is worth the investment for me to do my biography before I shell out dollars only to find I've wasted them. Thanks folks! Peace, Bernie in Texas (where it's still cooking with no rain in sight!)
Re: [TMIC] Neurology Now
Yep...I've subscribed for a couple of years nowseems that there is usually one or two articles of interest in each issue... I also found the article about Jerry Mathers (Leave It To Beaver) interesting too Kevin NE Ohio (Canton) From: Akua To: tmic-list@eskimo.com Sent: Mon, June 20, 2011 3:23:33 PM Subject: [TMIC] Neurology Now Had a couple of articles that may be of interest to those with unusual symptoms: TSC tuberous Sclerosis and Cervical Dystonia. BTW sub is free. --
Re: [TMIC] Hello
Dalton, I'm sure that I can't totally understand how you must feel about this..I know it has to be devastating though...I know you loved teaching and that it was a large part of your life. If I can relate a little story about myselfI was in the Air Force for 20 yearsand it was my life. I lived and breathed it on a day to day basis I was "somebody" because I had a whole group of people I was responsible for and also responsible for getting things done and then I retiredand I was now "nobody" Basically starting out fresh in the civilian world.an environment that I had to adjust to and become accustomed to. After a couple of years I found my way into an excellent new career and had that old feeling back of being "somebody" again and then TM hit and I couldn't go back to work. That was a huge blow and even now after three years it still bothers me a bit But, my life was in my own hands...there wasn't anyone that was going to do anything about it except me... So, I taught myself a hobby...something that I would have never even delved into if it weren't for the fact that TM hit. I've been doing my wood carving now for about two years and it makes me happier than anything ever hasEven though I'm not running a shop or an office and I'm not in charge of a group of people anymore...I am in charge of myself and have learned that I must continue on regardless of my situation With my carvings, I now get the pleasure that people enjoy the things that I've made with my own two hands. SoI guess my point is this This is a tough setback for youthat much I understandbut, this is also a new door opening for you to pursue something maybe totally different and unique that you might have never thought you would try. My thoughts and prayers go out to you.and I wish you the very, very best... Something good will come to you... Take care, Kevin N.E. Ohio (Canton) From: Dalton Garis To: Carol E ; tmic-list@eskimo.com Sent: Thu, June 9, 2011 8:17:56 AM Subject: Re: [TMIC] Hello Hi Carol; This is Dalton. I just got terminated today. It seems I couldn't overcome the pull of TM, and my classroom work—that of which I was most proud—suffered. I have three months' notice. Last year they lightened the load and I did OK, but they said I worked too little. This year I taught three courses, teaching every day, and the pain, fatigue and med-head just made every day agony. It showed and the students complained. So, that's it. Up till now they have been very nice. But they don't keep persons around who can't pull the whole load. Not the way I wanted to go out. Thanks, Dalton From: Carol E Date: Tue, 7 Jun 2011 09:43:34 -0500 To: Subject: [TMIC] Hello Resent-From: Resent-Date: Tue, 7 Jun 2011 07:44:27 -0700 Just testing to see if I am still on the list. I'm not receiving messages. Carol Worrying does not empty tomorrow of its troubles; It empties today of its strengths.
Re: [TMIC] Fwd: Marine Speaks ....OT...!!!!
As someone that isn't able to work, I pass my time moderating a TM Support group that I created on Facebook, I also moderate a TM Support website that I helped create plus trying to help out others that are working on creating TM Awareness Days in their respective states. I am also quite active on a couple of other boards of interest and also am the V.P. of a non profit organization and work trying to make contacts with people in hopes of creating some fund raising. I go through probably more than 200 emails per dayI also spend my day deleting emails and answering many of them too... Now, I think that most everyone that wanted to, has voiced their opinion about Gunny's post...and these emails keep piling up on this topic Can we close this thread...? I think it has run it's course. From: john snodgrass To: transverse myelitis Sent: Thu, May 26, 2011 1:23:42 PM Subject: Re: [TMIC] Fwd: Marine Speaks perhaps i shouldn't read these responses when i am in such pain. people kill me,,,glad I aint one! --- On Thu, 5/26/11, Dalton Garis wrote: >From: Dalton Garis >Subject: Re: [TMIC] Fwd: Marine Speaks >To: "Patricia Cooley" , "'Jill Posner'" >, bgunny7...@aol.com >Cc: tmic-list@eskimo.com >Date: Thursday, May 26, 2011, 12:45 PM > > >I spend my day deleting, Patricia; > > >As a working economist, I get about 75 emails per day. And I look forward to >opening TM emails. Also, this one required that I open it and preview it >before >even finding out what it is. > > >I respect any Marine's or other service person's unparalleled sacrifice for >our >freedom. There are plenty enough places to take such discussions, but let's >not mess up what we have in our TM list. > > >Dalton > > > >From: Patricia Cooley >Date: Thu, 26 May 2011 11:27:36 -0500 >To: 'Jill Posner' , >Cc: >Subject: RE: [TMIC] Fwd: Marine Speaks >Resent-From: >Resent-Date: Thu, 26 May 2011 09:28:55 -0700 > > > >I have no objection to his post. If you don’t agree – just DELETE! > >From:Jill Posner [mailto:posnerj...@yahoo.com] >Sent: Thursday, May 26, 2011 11:17 AM >To: bgunny7...@aol.com >Cc: tmic-list@eskimo.com >Subject: Re: [TMIC] Fwd: Marine Speaks > >I don't think this sort of polemic is appropriate on this list serve. It >should >not be disseminated further! We are supposed to be about communication on TM >not on Bin Laden or Obama or political issues that are not related to health. >DESIST! > > > >--- On Thu, 5/26/11, bgunny7...@aol.com wrote: > >>From: bgunny7...@aol.com >>Subject: [TMIC] Fwd: Marine Speaks >>To: Tmic-list@eskimo.com >>Date: Thursday, May 26, 2011, 9:35 AM >> >
Re: [TMIC] Fwd: Marine Speaks
I didn't really have a problem with his post eitherand instead of sending such a scathing reply to the entire group, it would have been more appropriate to send him a personal message informing him of your dislike. For all the great things that Gunny has done for the TM community and for all of the great posts that he has posted on herean occasional post such as this is not so terrible. From: Patricia Cooley To: Jill Posner ; bgunny7...@aol.com Cc: tmic-list@eskimo.com Sent: Thu, May 26, 2011 12:27:36 PM Subject: RE: [TMIC] Fwd: Marine Speaks I have no objection to his post. If you don’t agree – just DELETE! From:Jill Posner [mailto:posnerj...@yahoo.com] Sent: Thursday, May 26, 2011 11:17 AM To: bgunny7...@aol.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Fwd: Marine Speaks I don't think this sort of polemic is appropriate on this list serve. It should not be disseminated further! We are supposed to be about communication on TM not on Bin Laden or Obama or political issues that are not related to health. DESIST! --- On Thu, 5/26/11, bgunny7...@aol.com wrote: >From: bgunny7...@aol.com >Subject: [TMIC] Fwd: Marine Speaks >To: Tmic-list@eskimo.com >Date: Thursday, May 26, 2011, 9:35 AM >
Re: [TMIC] hydrocodone
John, I have for about 2 1/2 years now...Also on MS Contin (timed release Morphine) as my main pain reliever and the hydro is for breakthrough pain... Kevin Weilacher N.E. Ohio (Canton) From: john snodgrass To: transverse myelitis Sent: Thu, April 14, 2011 10:03:57 AM Subject: [TMIC] hydrocodone has anyone been on hydrocodone for years?
Re: [TMIC] enough!
I understand the sensations...A few months ago, I started getting the sensation that my socks were bunched up inside my shoes When it first started, I was continually sitting down and taking my shoes off to check...and everytime, my socks were fine...not bunched up at all. Now, I know it's happening so I just try to ignore it. I brought this up to my neuro and he said that it was typical to have those type of sensations...very common in neurological disorders and unfortunately not too much that can be done about it. Kevin N.E. Ohio (Canton) From: PAMELA S To: jcs...@yahoo.com; TMC Group Sent: Wed, April 13, 2011 12:09:29 AM Subject: RE: [TMIC] enough! Okay, it's my hands and my feet and my legs!But, I got so sick of being called crazy when I tried to describe it. 20 years later it still drives me nuts, and I don't drink, I'm not using morphine etc. etc. etc. I Do wish caregivers had to experience just one hour of it. FYI...if you ever have to have a psych exam just to get a neurologist to take you seriouslymake sure you keep the record, or 7 years later you'll see the shrink again just to get the new resident whatever to take you seriously. I learned that the hard way. Wasting hard earned money to get someone to sign a paper saying those spiders ARE NOT in your head! Perhaps raid in the neurologist coffee:) (That is a joke, not a threat just in case someone should think otherwise) But, anyone who has lived with these sensations knows what I mean. Date: Tue, 12 Apr 2011 14:13:56 -0700 From: jcs...@yahoo.com Subject: RE: [TMIC] enough! To: vgor...@twmi.rr.com CC: tmic-list@eskimo.com even knowing whats going on I'm always rubbing and looking. --- On Tue, 4/12/11, vernon wrote: >From: vernon >Subject: RE: [TMIC] enough! >To: "'john snodgrass'" >Date: Tuesday, April 12, 2011, 5:10 PM > > > >That’s the way my hands feel > >From:john snodgrass [mailto:jcs...@yahoo.com] >Sent: Tuesday, April 12, 2011 3:43 PM >To: transverse myelitis >Subject: [TMIC] enough! > >my legs are creping me out today ,one feels like it has spider webs on it and >the other feels like bugs are crawling on it! > > >TM,gotta love it,, > > > >NOT! >
Re: [TMIC] Bee Clark
I second the AVG...I've been running it for years and it is second to none as far as keeping out 99% of the nasty stuff... For that stuff that does get through...I use Super AntiSpyware Free Edition...It also works excellent... http://www.superantispyware.com/ Kevin Weilacher N.E. Ohio (Canton) From: Bernie To: john snodgrass ; TMIC ; Bee Clark Sent: Mon, April 4, 2011 7:53:35 PM Subject: Re: [TMIC] Bee Clark some people have no ISP but AOL. thats just life. however,,,AOL is bad for problems of this nature so i wouldnt go overboard on making remarks aboout expelling anyone from anything,,the best recourse you can have if you dont want to read anything from me is to click on that little tiny button with DEL on it. people kill meglad I aint one! Every computer has an ISP. The Internet service provider (ISP) is a company that provides access to the Internet. All computers must have an ISP number, otherwise it would not be able to get on the Internet to send emails or whatever. Bee clark has been on the list and been in my address book for quite a while. It sounds like someone hacked into her computer and is using hers so they don't get caught. It could happen to any one of us, they just slip in a hidden Trojan and voila, they send the message from her computer. Hackers are and incorridgeable breed of %&^$#^ Bee, you need to find a program that looks for these types of things. I have been using AVG for a while now and have no more problems with anyone trying to tamper with my computer. AVG recognizes it automatically and locks it in a vault where it cannot get into your drive. You can set it to automatically scan daily if need be, but once a week works for me. Also, what carrier do you use for your email? Internet Explorer, Mozilla Firefox, or others? Mozilla Firefox is what I use and has made a big difference in spam, cookies, hackers, just about anything one can think of for the time. Hope this helps some; and most of the credit for this info goes to my daughter and her boyfriend Mike who knows all about tis stuff. It is what he does for a living. And here is the site to AVG, it also has a free version at this site: http://free.avg.com/us-en/download-avg-anti-virus-free and is the one I use. Good Luck! Peace, Bernie in Texas PS - Hackers are always trying to find new ways to beat the new systems, so try to keep a watch out for that; but between AVG and Firefox I think you'll be all right!
Re: [TMIC] Hello, from Jude
Hi Jude, It sure is good to hear from you again... Sorry to hear about the health issues though. Stay well and keep yourself out of that blasted hospital... I know you're not on Facebook very much but we have a wonderful group on there that I started a couple of months back...called TM Folk. I have you added on there as a member...you should stop by and check us out...Gracie and pretty much the rest of the gang is on there too...I think you would enjoy it... Take care of yourself.My thoughts and prayers are always with you... Kevin Weilacher N.E. Ohio (Canton) From:Jude Hoops [mailto:heyjude48...@aol.com] Sent: Monday, April 04, 2011 3:26 AM To: tmic-list@eskimo.com Subject: [TMIC] Hello, from Jude Hey friends, Home from the hospital again, treated for another bad UTI and blood infection. I am feeling well tonight and cannot sleep, so here I am saying “Hi” to everyone out there who is checking in to see what’s going on. I hope all has been well with everyone and hope to hear from some of you soon. Love ya, Jude
Re: [TMIC] Connected?
Yeah seriously... I quit drinking completely when this happened...I didn't want to chance anything with the meds I'm on. Kevin N.E. Ohio (Canton) From: Janice Nichols To: bobby jim ; fr...@franksheldon.com; john snodgrass ; transverse myelitis Sent: Tue, March 8, 2011 7:58:33 PM Subject: Re: [TMIC] Connected? How can you two drink with pain meds? I get knocked on my butt! Janice From: bobby jim Sent: Tuesday, March 08, 2011 6:17 PM To: fr...@franksheldon.com ; john snodgrass ; transverse myelitis Subject: Re: [TMIC] Connected? I prefer aged tequila gold, (as does Sandy Parker). Bobberino - Original Message - >From: fr...@franksheldon.com To: bobby jim ; john snodgrass ; transverse >myelitis > >Sent: Tuesday, March 08, 2011 7:43 >Subject: Re: [TMIC] Connected? > > >When I get pain, I focus on the specific spot where the pain is >putting >on a show, > >and I say to it: stop it, stop it, stop it..!!! >--- > >When my pain acts up, >I use DRUGS, > > >and if that doesn't work, > > >I use BOURBON > > >pH
Re: Re [TMIC] hyperbaric chamber treatment of wounds
Jan, Of course...it seems that in so many cases, the U.S. is a day late and a dollar short. Don't get me wrong, I love this country...but in so many instances, this being one of them, where it seems there is a bonifide treatment for people and it gets caught up in red tape and politics.. Oh well, we keep smiling and plugging along.... Kevin Weilacher N.E. Ohio (Canton) From: Jan Hargrove To: kevin weilacher ; Alton Ryder ; tmic-l...@eskimo.net Sent: Sun, January 16, 2011 2:19:25 PM Subject: Re [TMIC] hyperbaric chamber treatment of wounds Kevin, I'm told that in Europe the chamber is used for MS and many other ailments. I'm assuming that in U.S., if FDA doesn't approve it for that use, Medicare won't pay etc, etc Alton, I take a DVD with me each day and it's about the right length to get through the treatment. Also my tech enjoys watching the movies as he's monitoring the chamber, so we talk about movies as we watch. So far, I've not been bored, hope saying that doesn't jinx the rest of my treatments!! They took new measurements and pix on the 7th day of treatent and they can see progress! So, maybe it's worth missing out on the outside world for 6 weeks!! ;-) janh ____ From: kevin weilacher To: Alton Ryder ; tmic-l...@eskimo.net Sent: Sat, January 15, 2011 10:46:29 AM Subject: Re: [TMIC] hyperbaric chamber treatment of wounds The rock legend Ronnie Lane used to use a hyperbaric chamber for treatment of his MS and had success with itbut yet the MS Society still says that there is no benefit to it's use reference this great interview that Ronnie did many years agohttp://www.the-faces.com/lane/ints/1lane2.htm By the way, Ronnie passed away in 1997 due to pneumonia. From: Alton Ryder To: tmic-l...@eskimo.net Sent: Sat, January 15, 2011 11:06:30 AM Subject: Re: [TMIC] hyperbaric chamber treatment of wounds I took this treatment a couple of years ago for a wound that I had had for two decades. The results were astounding; it shrunk from four little toes wide and one high to one wide and a half high. However, instead of continuing until it was healed, the wound specialist followed the protocol and stopped after six weeks (the reason might have been rooted in Medicare's one-size-fits-all coverage. Yesterday we discussed restarting the hyperbaric chamber treatment. The only problem is boredom. You cannot bring flammable paper into a chamber, but you can watch a video through the transparent wall. Alton On Nov 21, 2010, at 11:19 AM, Jan Hargrove wrote: hyperbaric chamber
Re: [TMIC] hyperbaric chamber treatment of wounds
Politics and drug companies come to mindJust saying... From: Janice Nichols To: kevin weilacher ; Alton Ryder ; tmic-l...@eskimo.net Sent: Sat, January 15, 2011 12:32:06 PM Subject: Re: [TMIC] hyperbaric chamber treatment of wounds Why on earth wouldn’t they, the powers that be, try it on other spinal patients if even 1 did feel improvement? Who knows how many out there could be helped?! Is this such a horribly expensive treatment that it is only used on a few?Am I not understanding something? Janice From: kevin weilacher Sent: Saturday, January 15, 2011 10:46 AM To: Alton Ryder ; tmic-l...@eskimo.net Subject: Re: [TMIC] hyperbaric chamber treatment of wounds The rock legend Ronnie Lane used to use a hyperbaric chamber for treatment of his MS and had success with itbut yet the MS Society still says that there is no benefit to it's use reference this great interview that Ronnie did many years agohttp://www.the-faces.com/lane/ints/1lane2.htm By the way, Ronnie passed away in 1997 due to pneumonia. From: Alton Ryder To: tmic-l...@eskimo.net Sent: Sat, January 15, 2011 11:06:30 AM Subject: Re: [TMIC] hyperbaric chamber treatment of wounds I took this treatment a couple of years ago for a wound that I had had for two decades. The results were astounding; it shrunk from four little toes wide and one high to one wide and a half high. However, instead of continuing until it was healed, the wound specialist followed the protocol and stopped after six weeks (the reason might have been rooted in Medicare's one-size-fits-all coverage. Yesterday we discussed restarting the hyperbaric chamber treatment. The only problem is boredom. You cannot bring flammable paper into a chamber, but you can watch a video through the transparent wall. Alton On Nov 21, 2010, at 11:19 AM, Jan Hargrove wrote: hyperbaric chamber
Re: [TMIC] hyperbaric chamber treatment of wounds
The rock legend Ronnie Lane used to use a hyperbaric chamber for treatment of his MS and had success with itbut yet the MS Society still says that there is no benefit to it's use reference this great interview that Ronnie did many years agohttp://www.the-faces.com/lane/ints/1lane2.htm By the way, Ronnie passed away in 1997 due to pneumonia. From: Alton Ryder To: tmic-l...@eskimo.net Sent: Sat, January 15, 2011 11:06:30 AM Subject: Re: [TMIC] hyperbaric chamber treatment of wounds I took this treatment a couple of years ago for a wound that I had had for two decades. The results were astounding; it shrunk from four little toes wide and one high to one wide and a half high. However, instead of continuing until it was healed, the wound specialist followed the protocol and stopped after six weeks (the reason might have been rooted in Medicare's one-size-fits-all coverage. Yesterday we discussed restarting the hyperbaric chamber treatment. The only problem is boredom. You cannot bring flammable paper into a chamber, but you can watch a video through the transparent wall. Alton On Nov 21, 2010, at 11:19 AM, Jan Hargrove wrote: hyperbaric chamber
Re: Fw: [TMIC] I need help with member contacts. Will anybody help me?
I tried sending a message to her through Facebook too but I believe that it is linked through email anyway so it probably didn't go through. Kevin Weilacher N.E. Ohio (Canton) From: john snodgrass To: transverse myelitis Sent: Sat, January 8, 2011 5:20:17 PM Subject: Re: Fw: [TMIC] I need help with member contacts. Will anybody help me? i wonder if she is getting any type of mail at all --- On Sat, 1/8/11, celr...@aol.com wrote: >From: celr...@aol.com >Subject: Re: Fw: [TMIC] I need help with member contacts. Will anybody help me? >To: lbieh...@earthlink.net >Date: Saturday, January 8, 2011, 10:40 AM > > >THAT IS THE RESPONSE I GET > >JANE/SPLENDORA > >In a message dated 1/8/2011 7:49:36 A.M. Central Standard Time, >lbieh...@earthlink.net writes: >This is the response I get when I email Jude, does anyone know why? >> >>-Original Message- >>From: heyjude48...@aol.com >>Sent: Saturday, January 08, 2011 8:47 AM >>To: lbieh...@earthlink.net >>Subject: Re: [TMIC] I need help with member contacts. Will anybody help me? >> >>Hello, I am unavailable to read your message at this time. >> >>
Re: [TMIC] Fwd: FW: Best weather map ever.............
That is an awesome weather map Gunny...thank you for that. It's better than any than I have ever seen before.... Kevin Weilacher N.E. Ohio (Canton) From: "bgunny7...@aol.com" To: Tmic-list@eskimo.com Sent: Sat, January 8, 2011 12:10:06 PM Subject: [TMIC] Fwd: FW: Best weather map ever. Note: Forwarded message is attached.
Re: [TMIC] Was Writing to Gracie and Kevin,
Jude, Kevin herethanks, but all I'm doing is trying to get the word out to those that can helpin conjunction with Gunny (who just had a heart attack) and Greg Sapp and a new member, Mack Styron, we're working on a project that hopefully will do some good...Time will tell. Graciewhat can be said about Gracie...she is amazing...Words can't even express the good that she has done. Jude, thank you for your offer to help and we will definitely keep you in mind if the need arises that you can assist us with something... The best email to stay in touch with me is kdweilac...@gmail.cominstead of this one. I use this one for all my email lists and such...the other one for one on one personal contacts. Take care of yourself and we'll talk soon. Kevin Weilacher N.E. Ohio (Canton) From: Jude Hoops To: tmic-list@eskimo.com Sent: Sat, January 8, 2011 8:41:34 AM Subject: [TMIC] Was Writing to Gracie and Kevin, My Email got cut off, as it frequently does. The work you are doing is amazing. What can I do to help as far as writing Email and sending them to wherever you are wanting them to go? I so wish for news from both of you and the work you are doing, and from all of my TM friends, as I have lost my contact list and have tried everything to get it back. Is their a tmic-list help page or someone designated to help with these things? I will need Email addresses or you write to them and have them send me their addresses. But then, how and where do I save their addresses? Thank you so much, Jude H.
[TMIC] Looking for info
Hey everyone...I need some help. Does anyone remember where I can find the info on the embryonic stem cell research that is going on that basically outlines the fact that it isn't "killing any babies"? I'm sure I read something not that long ago and possibly it was something that Dr. Kerr wrote...or even did an interview on...I just don't remember..(thanks TM) and I can't find it. I need to find this info for someone that is preparing a presentation to a group of people. Kevin Weilacher N.E. Ohio (Canton)
Re: [TMIC] Semper Fi OT
Thanks for posting that Gunny Merry Christmas and God Bless. I thank all of our brave men and women that are protecting our freedoms and that wonderful red, white and blue... Kevin Weilacher N.E. Ohio (Canton) From: "bgunny7...@aol.com" To: Tmic-list@eskimo.com Sent: Tue, December 21, 2010 7:59:32 PM Subject: [TMIC] Semper Fi OT YouTube - Merry Christmas My Friend, A Marine's Christmas Poem
Re: [TMIC] Walking Again
granted, it's not walkingbut a Segway is transportation that would get me from point A to point B a lot better than what I'm doing now with my cane and my unstable legs I'd do a Segway in a New York minute as they say... Kevin Weilacher N.E. Ohio (Canton) From: Dalton Garis To: Akua ; tmic-list@eskimo.com Sent: Wed, December 15, 2010 12:51:40 PM Subject: Re: [TMIC] Walking Again Re: [TMIC] Walking Again . . . Or, Segway; For around $6,000.00, with a seat. How cool is that! A giro-balanced two wheeler with a seat, and that keeps its own balance! I’m in! Dalton From: Akua Date: Wed, 15 Dec 2010 00:20:23 -0500 To: Subject: [TMIC] Walking Again Resent-From: Resent-Date: Tue, 14 Dec 2010 21:20:32 -0800 So if you (I) one had money you could stand and walk tomorrow. Here's a growing list of where and how. It's back to money. ISRAEL Argo Medical Technologies, ReWalk $18,439 ( shown on GLEE!) JAPAN Honda Stride Managment Assist Bodyweight Support Assist Cyberdyne Hybrid Assistive Limb or HAL Walkmate walking support robot USA Berkeley Bionics eLEGS $50,000 Second Step The Gait Harness System® http://www.secondstepinc.com/ Easy Stand Glider http://www.easystand.com/videos/glider.cfm Other Leg Exercisers Flexiciser MotoMed --
Re: [TMIC] Fwd: It Has Begun!!! Refuse New Coins!!!! OT
This is a hoax http://www.snopes.com/politics/religion/dollarcoin.asp The "In God We Trust" inscription is on the edge of the coin instead of the face or the back. Kevin Weilacher N.E. Ohio (Canton) From: "pge...@aol.com" To: tmic-list@eskimo.com Sent: Mon, December 13, 2010 2:03:39 PM Subject: [TMIC] Fwd: It Has Begun!!! Refuse New Coins OT -Original Message- From: arnie mills To: rick chase ; andy fowler ; Susan I ; brandon mills ; barbra mills ; roland milton ; Robert Oldham ; patti Sent: Mon, Dec 13, 2010 10:34 am Subject: FW: It Has Begun!!! Refuse New Coins --- On Sun, 12/12/10, Patricia Mills wrote: >From: Patricia Mills >Subject: FW: It Has Begun!!! Refuse New Coins >To: >Date: Sunday, December 12, 2010, 9:50 PM > > > > > >Check this out true or false: >> >>http://www.politifact.com/truth-o-meter/statements/2010/feb/11/chain-email/e-mail-claims-god-we-trust-removed-dollar-coins/Check >> >> >> >> >> >> >>It has begun...Refuse new coins! >> >> True Americans will refuse these >>It has begun...Refuse new coins! >>REFUSE NEW COINS >>This simple action will make a strong statement. >> >> >> >>Please help do this.. Refuse to accept these when they are handedto you. >> >> >> I received one from the Post Office as change and I asked for a dollar >>billinstead.. >> >> >>The lady just smiled and said 'way to go' ,so she had read this e -mail. >> >> >>Please help out..ourworld is in enough trouble without this too! >> >> >>U.S.Government to Release New Dollar Coins >> >> >>You guessed it >>'IN GOD WE TRUST' IS GONE!!! >>If ever there was a reason to boycott something, THIS IS IT >> >>DO NOT ACCEPT THE NEW DOLLAR COINS AS CHANGE >> >>Together we can force them out of circulation.. >> >> >> >>Please send to all on your mailing list!!! >> >>Darlene >> >> >> I am using the Free version of SPAMfighter. >>SPAMfighter has removed 2499 of my spam emails to date. >> >>Do you have a slow PC? Try free scan! >> >> >>No virus found in this message. >>Checked by AVG - www.avg.com >>Version: 10.0.1170 / Virus Database: 426/3288 - Release Date: 11/29/10 >> >> >
Re: [TMIC] Amtriptyline
Amitriptyline is an antidepressant but is also used for chronic pain and for people with insomnia. I've added this one to my list of meds that have been tried and don't work with mebut again, that's meand we're all different. I didn't have any side effects from this either and there are quite a few side effects associated with itie: weight gain, dry mouth, changes in appetite, muscle stiffness, nausea, urinary retention and some others... Kevin Weilacher N.E. Ohio (Canton) From: Regina Rummel To: tmic-list@eskimo.com Sent: Mon, December 13, 2010 9:29:32 AM Subject: [TMIC] Amtriptyline I met a woman at the gym also afflicted with TM. The pain she suffers is close to a ten and yet, she walks with a cane and can do Tai Chi (sp?). I tried, but my balance is so bad, I just cannot do it, and dropped out of that class. The point I'm making is how differently TMers function. My pain is a five and I seem to handle it without pain meds, just Neurontin. And I'm not even sure Neurontin really helps. But I need a walker when I'm out. Sometimes I wonder if I would be willing to trade her pain with going shopping without needing a walker, or holding on to somebody's arm. Maybe. Maybe not. She swears by this Amtriptyline. She says that she takes it at bedtime and has no problem sleeping. Her brother who is a orthopedic surgeon gives it to his patients for sleeping. Are you familiar with this medication? Wishing you well. R
Re: [TMIC] Med Question
and then there are folks like me that Gabapentin..(Neurontin) didn't do a thingnot help the pain or burning nor even give me any side effects and I was up to 2800mg a day before my doc decided to take me off of it. Again, just goes to show you...that we are all different and react differently to meds and to TM. Here's hoping that the Gabapentin works for you and just adjusting the time of day that you take it helps with the drowsiness. Candy...like you saidI'd give up TM for acne anydayAcne can be successfully treated...TM's hit or miss it seems. Kevin Weilacher N.E. Ohio (Canton) From: CANDIS KALLEY To: tmic-list Sent: Sat, December 4, 2010 10:55:50 AM Subject: Re: [TMIC] Med Question Patti, I've been on gabapentin for awhile now. It does seem to help with the cold/burning in the feet along with several other things. It doesn't however take everything completely away all the time or even sometimes! There doesn't seem to be anything that does that! TM is worst than the weather in that if you don't like it stick around it can get worse! The gabapentin does seem to make me more drowsy no matter when or how I take it! I take 300 mg 3X daily! To prevent even worse afternoons, I take 300 mg in a.m. and 600 mg at bedtime! I must admit that the night sleep seems to be better! Within 30 minutes, I'm fast asleep and usually sleep 7 hrs straight thru! Sometimes this is bad because the bladder relaxes too much and in the morning I have to change the bed! TM in a way takes us all back to a 2nd childhood - learning to walk, toddling and falling, wearing diapers, changing clothes 2 or 3X daily, and changing beding in the morning! If it wasn't for all the pain, I'd feel like a 1 year old! Always wanted to do it over again but I had imagined starting back in the teens - I'd give TM up in heartbeat for a REAL BAD case of acne anyday! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: "Patricia Cooley" To: TMIC-LIST@eskimo.com Sent: Saturday, December 4, 2010 10:39:58 AM Subject: [TMIC] Med Question On Thursday I saw a new doctor, a physiatrist (sp), that my neuro recommended. I am very impressed with him and his care which was very thorough. When I mentioned my freezing/burning and pain n my feet, he gave me a script for gabapentin. My previous neuro always said there was nothing I could take. I know many of who have mentioned it previously. I took my first capsule last night when I went to bed. This morning I feel so groggy, like I had a night on the town last night. Is that common? Will it go away after I am on it for a while? Maybe I should take it earlier in the evening so the affect wears off by morning. He has also recommend that I saw a ortho who will evaluate me to see if a brace on my bad leg would help with my balance and walking. If it helps, I am game for anything. Thank you in advance for any advice you can give me. Patti - Wisconsin
Re: [TMIC] OT:Good News
Akua, What incredibly exciting good newsthat is awesome. I suppose I can say that we are all very proud to know you..!! Wonderful..! Kevin Weilacher NE Ohio (Canton) On Thu, Nov 18, 2010 at 9:06 PM, Akua wrote: I'm included in the new collection by Nikki Giovanni of the 100 best African American poems >My niece's article is on USA Today. > >http://www.usatodayeducate.com/staging/index.php/blog/a-queens-ny-that-is-girl-in-england-part-one > > >All praises for light in the the darkness and joy inside my tears! > >Akua Lezli Hope >New York >paraplegic from TM 11.14.2005 >-- > >
Re: [TMIC] {TMIC}sweating
Rob,
There again, heat and high humidity...and changes in barometric pressure (I can
tell a storm coming a day in advance..lol) give me fits...
You are so right though, one thing I have noticed in all the posts I have read
since TM hit me (May 2008) is how different TM affects so many of us...
All the little idiosyncrasies of it are amazing and I can see how some of the
docs have such a tough time treating us.
Kevin
N.E. Ohio (Canton)
From: Robert Pall
To: Patricia Cooley ; Janice Nichols
; kevin weilacher ;
rn11...@yahoo.com; tmic-list@eskimo.com
Sent: Wed, November 10, 2010 1:54:39 PM
Subject: RE: [TMIC] {TMIC}sweating
After 13+ year the only thing that really increases my discomforts is rain and
or high humidity. Hot and cold have no more effect on me now than before TM.
It
just continues to show that despite our similarities no two of us are exactly
the same.
Rob in New Jersey
From: Patricia Cooley [mailto:patticoole...@gmail.com]
Sent: Wednesday, November 10, 2010 1:32 PM
To: 'Janice Nichols'; 'kevin weilacher'; rn11...@yahoo.com;
tmic-list@eskimo.com
Subject: RE: [TMIC] {TMIC}sweating
I have been reading all your posts about sweating, and I guess I am an odd
case. I don’t have any problems with hot weather. I have always sweat more
in
my hair than anywhere else, even before TM. My problem is the cold. I am
always cold so I guess that is why the hot weather doesn’t affect me too much.
I do like sleeping in a cool room and like lots of blankets. I was told with
TM your internal thermostat is not working properly.
Patti - Wisconsin
From:Janice Nichols [mailto:jan...@centurytel.net]
Sent: Wednesday, November 10, 2010 12:09 PM
To: kevin weilacher; rn11...@yahoo.com; tmic-list@eskimo.com
Subject: Re: [TMIC] {TMIC}sweating
Ditto!Janice
From:kevin weilacher
Sent:Wednesday, November 10, 2010 11:42 AM
To:rn11...@yahoo.com ; tmic-list@eskimo.com
Subject:Re: [TMIC] {TMIC}sweating
I have been totally confused about the sweating issue ever since TM hit me
My lesions are L4, L5 and S1 and now since TM, the only place I sweat is my
head and when I sweat, I sweat profusely, I mean to the point that it drips
off
my nose and down the sides of my head...
I sweat no other place on my body, even during the summer on hot days outside.
I get warm, but I do not sweat. No underarm sweat, nothing.
From:"rn11...@yahoo.com"
To: tmic-list@eskimo.com
Sent: Wed, November 10, 2010 9:30:57 AM
Subject: [TMIC] {TMIC}sweating
HiEveryone,
I got tm at thethoracic level (T4-5),but when I perspire on my
face,one side gets red andmoist,the other stays pale and dry. No one
has
ever had an explanation forthis.A couple of docs even suggested that
maybe I always had this and justnoticed it after tm!
Cheryl inEasthampton,MA
Re: [TMIC] {TMIC}sweating
Patti,
It's true, your internal thermostat is out of whackeven though my head
sweats...my legs can't stand the cold, or even cool weather.
My feet are also problematic...they get cold very easy and stay cold for a
long,
long time.
Kevin
N.E. Ohio (Canton)
From: Patricia Cooley
To: Janice Nichols ; kevin weilacher
; rn11...@yahoo.com; tmic-list@eskimo.com
Sent: Wed, November 10, 2010 1:31:56 PM
Subject: RE: [TMIC] {TMIC}sweating
I have been reading all your posts about sweating, and I guess I am an odd
case. I don’t have any problems with hot weather. I have always sweat more in
my hair than anywhere else, even before TM. My problem is the cold. I am
always cold so I guess that is why the hot weather doesn’t affect me too much.
I do like sleeping in a cool room and like lots of blankets. I was told with
TM
your internal thermostat is not working properly.
Patti - Wisconsin
From:Janice Nichols [mailto:jan...@centurytel.net]
Sent: Wednesday, November 10, 2010 12:09 PM
To: kevin weilacher; rn11...@yahoo.com; tmic-list@eskimo.com
Subject: Re: [TMIC] {TMIC}sweating
Ditto! Janice
From:kevin weilacher
Sent:Wednesday, November 10, 2010 11:42 AM
To:rn11...@yahoo.com ; tmic-list@eskimo.com
Subject:Re: [TMIC] {TMIC}sweating
I have been totally confused about the sweating issue ever since TM hit me
My lesions are L4, L5 and S1 and now since TM, the only place I sweat is my
head
and when I sweat, I sweat profusely, I mean to the point that it drips off my
nose and down the sides of my head...
I sweat no other place on my body, even during the summer on hot days outside.
I
get warm, but I do not sweat. No underarm sweat, nothing.
From:"rn11...@yahoo.com"
To: tmic-list@eskimo.com
Sent: Wed, November 10, 2010 9:30:57 AM
Subject: [TMIC] {TMIC}sweating
Hi Everyone,
I got tm at the thoracic level (T4-5),but when I perspire on my face,one
side gets red and moist,the other stays pale and dry. No one has ever had an
explanation for this.A couple of docs even suggested that maybe I always had
this and just noticed it after tm!
Cheryl in Easthampton,MA
Re: [TMIC] {TMIC}sweating
Nope, he's just as confused as I am... lol
I was under the impression that most people were affected below the area of
their lesions too
My neurologist..( and he's good, don't get me wrong) has called me his medical
mystery because of all the odd things that have occurred with me.
Kevin
N.E. Ohio (Canton)
From: "rn11...@yahoo.com"
To: kevin weilacher
Cc: tmic-list@eskimo.com
Sent: Wed, November 10, 2010 12:57:38 PM
Subject: Re: [TMIC] {TMIC}sweating
Kevin,
Really weird;since you were hit at the lumbar level you shouldn't have
problems above that area. Did any doctor ever give you an explanation?
Cheryl
--- On Wed, 11/10/10, kevin weilacher wrote:
>From: kevin weilacher
>Subject: Re: [TMIC] {TMIC}sweating
>To: "rn11...@yahoo.com" , tmic-list@eskimo.com
>Date: Wednesday, November 10, 2010, 12:42 PM
>
>
>
>I have been totally confused about the sweating issue ever since TM hit me
>My lesions are L4, L5 and S1 and now since TM, the only place I sweat is my
>head
>and when I sweat, I sweat profusely, I mean to the point that it drips off my
>nose and down the sides of my head...
>
>I sweat no other place on my body, even during the summer on hot days outside.
>I
>get warm, but I do not sweat. No underarm sweat, nothing.
>
>
>
>
From: "rn11...@yahoo.com"
>To: tmic-list@eskimo.com
>Sent: Wed, November 10, 2010 9:30:57 AM
>Subject: [TMIC] {TMIC}sweating
>
>
>Hi Everyone,
>I got tm at the thoracic level (T4-5),but when I perspire on my face,one
>side gets red and moist,the other stays pale and dry. No one has ever had an
>explanation for this.A couple of docs even suggested that maybe I always had
>this and just noticed it after tm!
>
> Cheryl in Easthampton,MA
>
>
Re: [TMIC] {TMIC}sweating
Sorry, I forgot
That post was from me
Kevin
N.E. Ohio (Canton)
From: "rn11...@yahoo.com"
To: tmic-list@eskimo.com
Sent: Wed, November 10, 2010 9:30:57 AM
Subject: [TMIC] {TMIC}sweating
Hi Everyone,
I got tm at the thoracic level (T4-5),but when I perspire on my face,one
side gets red and moist,the other stays pale and dry. No one has ever had an
explanation for this.A couple of docs even suggested that maybe I always had
this and just noticed it after tm!
Cheryl in Easthampton,MA
Re: [TMIC] {TMIC}sweating
I have been totally confused about the sweating issue ever since TM hit me
My lesions are L4, L5 and S1 and now since TM, the only place I sweat is my
head
and when I sweat, I sweat profusely, I mean to the point that it drips off my
nose and down the sides of my head...
I sweat no other place on my body, even during the summer on hot days outside.
I
get warm, but I do not sweat. No underarm sweat, nothing.
From: "rn11...@yahoo.com"
To: tmic-list@eskimo.com
Sent: Wed, November 10, 2010 9:30:57 AM
Subject: [TMIC] {TMIC}sweating
Hi Everyone,
I got tm at the thoracic level (T4-5),but when I perspire on my face,one
side gets red and moist,the other stays pale and dry. No one has ever had an
explanation for this.A couple of docs even suggested that maybe I always had
this and just noticed it after tm!
Cheryl in Easthampton,MA
Re: [TMIC] personal problem
I keep a container of Prunes in my pantry and snack on them constantly throughout the week. They really are good and help keep me regular without having to take medications. You can get them flavored too, my favorite are orange flavored. From: Amanda Diskey To: tmic-list@eskimo.com Sent: Wed, October 13, 2010 7:32:43 AM Subject: [TMIC] personal problem I don't write very often, and I normally wouldn't talk to people about something so personal, but I don't know who else to ask. I have been having problems with constipation for a long time -- and it is only getting worse. As of right now I have been unable to go to the bathroom for five days. I have been taking Senokot and Miralax, plus I have been prescribed Lactulose by my neurologist. I take magnesium citrate pretty often, but it really makes me miserable when I take it. My legs get really tight and shake uncontrollably from being dehydrated. My stomach actually hurts today and I'm normally don't feel pain there. I have been to doctors and they were no help. It seems like they just take my money and run because they don't have the answer. When I went to the gynecologist she actually asked me why I thought I needed to have a Pap smear even though I told her I hadn't had one in over two years. She just didn't want to deal with me because I cannot stand up. I get this from a lot of doctors -- it seems like nobody wants to deal with me. I couldn't even find a regular family doctor-- a receptionist at one of the doctors offices I called actually told me that she didn't think the doctors there would be able to handle my case. She said that if I was a regular person that was just dealing with colds and other "normal" illnesses, that would be fine, but she didn't think they would know what to do to help me. Does anyone have any suggestions on what I could take to help me with this situation? I am getting very desperate for some relief! Thank you, Amanda Diskey
Re: [TMIC] Question
Idiopathic means that the idiots don't know what caused it. Seriously, Idiopathic means that there is no known cause for that specific TM. In other cases the TM can be pinned down to a certain cause such as a vaccination or having the flu or to being on a certain arthritis medication such as Enbrel. I have Idiopathic TM and the doctors have never been able to find anything that would have caused it. Prior to my getting TM I was healthy as a horse. No medications, very active lifestyle, no flu or vaccinations...nothing.. It just happened out of the blue, within a 2 hour time span I was paralyzed from the waist down. Lesion is L4, L5 and S1 which is the tailbone area. From: "jack...@att.blackberry.net" To: TMIC Sent: Thu, September 16, 2010 11:56:38 PM Subject: [TMIC] Question What's the difference between idopathic tm and just tm ? Diagnosed with idopathic tm 2007 -memphis tn. :) Sent via BlackBerry by AT&T
Re: [TMIC] chart
I like this one... http://www.apparelyzed.com/spinalcord.html From: Gerry Surette To: tmic-list@eskimo.com Sent: Tue, August 17, 2010 7:22:33 AM Subject: [TMIC] chart sometime ago someone posted a chart of the vertebrae ; I somehow misplaced the copy ; if anyone has a chart showing t1 C1 etc I would appreciate it. I recently had an MRI done and it showed some disturbing signs. thank you Gerry (Montreal)
Re: [TMIC] Miracle of Miracles!
Hi Reverend, I was prescribed Amitriptyline early on in this roller coaster ride called TM. My doc prescribed it to try and help with the nerve pain. In my case it didn't help. I gave it a 3 month try to see if it would work but there truly was no success at all. I know that it is an antidepressant but it is also regularly prescribed to help alleviate nerve pain. It certainly can't hurt to give it a try to see if it help in your given situation. The thing is with us TMr's, is that each of us is different in how the symptoms hit us and also how the medications affect us. Some meds will work for one person and not for another and vice versa. It is all trial and error for awhile until you find the combination of meds that work for your symptoms. Let us know what happens... Kevin N.E. Ohio (Canton) From: Rev. Craig Crossman To: tmic-list@eskimo.com Sent: Thu, August 12, 2010 5:14:24 PM Subject: [TMIC] Miracle of Miracles! I went to the clinic today and saw my nurse practitioner. Turns out she had taken quite bit of time to study up on TM; something my former doctor never bothered to do. So we were able to discuss intelligently my symptoms, my meds, and treatment options. What a difference! She upped my hydrocodone from 5mg to 10mg, scheduled me for PT (including hydrotherapy) and she added Amitriptyline HCL. This should help me sleep and also help with depression. Has anyone had any experience with this drug? What can I expect? God bless those who care and take the time to educate themselves about what we face. There are not many of them, but if you find one they are like gold. Rev. Craig Crossman First Baptist Church 615 W. Webster St. Colby, KS 67701 W - (785)462-2867/ Cell - (785)443-5154 revcross...@gmail.com www.firstbaptistcolby.org
Re: [TMIC] Gunny
I have personally toured the Funding Factory facilitythe place is amazing..and the sheer volume of ink cartridges that flow through there is way more than I would have thought in my wildest dreams. It's a cool place and the folks that I spoke with were very professional It just so happens that Funding Factory is in my home town and also, my cousin works there so when I get back there to visit my mom I can stop by and get a tour when ever I want to... From: Akua To: tmic-list@eskimo.com Sent: Wed, August 11, 2010 6:22:48 PM Subject: Re: [TMIC] Gunny Re: [TMIC] Gunny Hi Craig, try the link below to go to the TMA site for the laser cartridges. http://recycle.myelitis.org/ It explains all you need to know to recycle and benifit the TMA. Cindy McLeroy > >DRat! They don't accept epson! --
Re: [TMIC] music
Dang Gunny...I just pulled up his website and listened to some tracksthis guy straight out rips some blues... He's good..!! Pretty awesome that your brother taught him... From: "bgunny7...@aol.com" To: Tmic-list@eskimo.com Sent: Thu, May 27, 2010 3:23:47 PM Subject: [TMIC] music Anybody on the list living in the Tacoma Washington area, there's a kid from my hometown named Nick Vigarino playing in your area. He's about the best blues guitar player I've ever heard. If you get a chance, check him out. My brother Mike who recently died of brain cancer, taught Nick how to play. Believe me, you wont be dissapointed.
Re: [TMIC] Where TM struck
I was born and raised in Erie, PA which was at the time, a fairly industrial town, but I lived in a rural area. I was out in the sticks to coin a phrase. I left at 18 to join the Air Force and have lived in Texas, Arkansas, Florida, Nevada, New Mexico, Illinois, Colorado, Utah, a very short time in Nebraska and Ohio. I was vacationing in Niagara Falls Canada the week prior to TM hitting me and had stopped in Erie, PA to visit my mom on my way back to Ohio. We didn't make it back to Ohio on schedule as TM hit me our first night in Erie at 1:00am. Spent 8 days in the trauma center at the hospital before finally being able to get transferred back to Canton Ohio to a hospital there. What fun..... Kevin Weilacher N.E. Ohio (Canton) From: lynne myers To: tmic Sent: Thu, May 20, 2010 9:49:29 AM Subject: Re: [TMIC] Where TM struck I have lived in Michigan all my life. Have lived in fairly small towns the entire time although there were two factorys within a few blocks of where I grew up. Lynne --- On Wed, 5/19/10, kimr1999 wrote: >From: kimr1999 >Subject: Re: [TMIC] Where TM struck >To: jan...@centurytel.net, tmic-list@eskimo.com, ladyno...@aol.com >Date: Wednesday, May 19, 2010, 7:23 PM > > >I live in Atlanta, GA was on business trip in Dallas, TX when TM struck in 04 > >--- On Wed, 5/19/10, ladyno...@aol.com wrote: > > >>From: ladyno...@aol.com >>Subject: Re: [TMIC] Where TM struck >>To: jan...@centurytel.net, tmic-list@eskimo.com >>Date: Wednesday, May 19, 2010, 7:09 PM >> >> >> >>I live in Michigan, but I was in Minnesota, attending a wedding, when my TM >>struck >> >>Have a Blessed Day, Naomi >> >> >>-Original Message- >>From: Janice Nichols >>To: tmic-list@eskimo.com >>Sent: Tue, May 18, 2010 12:04 am >>Subject: [TMIC] Where TM struck >> >> >>I did not get many replies to my asking where people were living when TM >>struck them. Actually, it was really scattered. Sorry. >>Janice
[TMIC] Stem cell hoaxers finally backing off
I subscribe to an email list from a website called Repair Stem Cells.org which usually has some pretty good info about what's going on in the world of stem cell research. I just got this email today...finally, some of these hoaxsters that are taking peoples life savings under the guise of "curing" them with stem cells, are being rousted out... Hoaxers Backing Off Outrageous Claims! The claims that embryonic stem cells actually have a chance to help someone this century, are FINALLY beginning to show signs or cracking under the MASSIVE weight of evidence being reported around the world! Here are the details and names to prove it! Click the following link to view our May 2010 Edition: http://www.repairstemcells.org/Newsletters/NL050710.htm http://www.repairstemcells.org/
Re: [TMIC] Mike
Gunny, A big salute goes out to you and your brother...from another brother in arms.. I can't even imagine what it must have been like to have to bury your younger brother...I don't even know what to say... All the same old condolences have been said and what more can be said. Just know that my thoughts are with you and keep the good memories of your brother in mind... My best... Kev From: "bgunny7...@aol.com" To: Tmic-list@eskimo.com Sent: Fri, April 30, 2010 4:34:18 PM Subject: [TMIC] Mike We buried my brother today. It was a nice military funeral. Mike was in the Navy back in the 60's. Anyway, I wanted to thenk each and every one of you who supported me. I thought about sending thank you nores individually, but they would have become repetetive after awhile, so I thought a blanket thank you would suffice. Ya know, we're all connected in one way or another, but as you get older, and people around you start to die off, it gets a little harder to take. Especiallt when they're your brother or sister, and they're younger than you. First, you're there when they're born, then you're there when they die. Everything starts to come back when family is around, and the memories sometime become overwhelming. In any case, my heat felt thanks goes out to all of you. Semper Fi Gunny
Re: [TMIC] Mike
Gunny, I am so sorry.I can't believe that it was just the other day that you told me that the treatment was what was hitting him so hard... My thoughts and prayers are with you... Gunny, if you need anything...you know where I am and how to get in touch of me. From: "bgunny7...@aol.com" To: Tmic-list@eskimo.com Sent: Mon, April 26, 2010 10:20:01 AM Subject: [TMIC] Mike My younger brother Mike passed away at 12:40 AM this morning from brain cancer. He was 58.
Re: [TMIC] QUESTION ON LARNETON
This is a good point...and I have heard of situations where the oxygen fed hyperbaric chamber has been an effective treatment for quite a few diseases and disorders to include Multiple Sclerosis. Case in point, Ronnie Lane who was one of the founding members of the 60's band, The Small Faces developed MS and tried every treatment he could find and it was only when he found the chamber did he get any relief and actually started to get better. Here is an excerpt of an interview with Ronnie Lane that raises some very interesting information regarding the MS Society and other info. I will also provide a link to the entire interview, it is worth the read BOO: Well, no, it’s notall going to Florida. It’s all going to ARMS, to set up ARMS (In America). And Florida... Professor Neubauer is the doctor in Florida that has an HBO center. And, in fact, he’s the leading man on hyperbaric oxygen. LANE: He started it. DAVE: How long ago did this treatment come about, then? BOO: A long time ago! DAVE: It just hasn’t gotten that much attention... BOO: Well, what happened was there was a report made by a Dr. Fischer that was, I think, in 1978. That report came about (because) the MS Society hired Fischer to disprove Neubauer, and he couldn’t disprove Neubauer! I’ll show you a video in a minute. He couldn’t disprove him, and his report was completed in 1980, and it’s only just come out this year!I mean, what is it all about?! So, this whole concert is also a little bit of the rebel coming out of rock and roll!It’s not quite as straightforward! They know... LANE: One thing is for sure: there’s a bit more to this Multiple Sclerosis Society than meets the eye! Without a doubt! BOO: In thiscountry. LANE: Because they blocked going ahead for hyperbaric oxygen, and they’ve really got no right to because... BOO: They like the double –blind trial. Okay, they’re playing it super-safe. But, when ARMS was formed about six years ago... this is an English group of everybody who is fed upwith going to MS Society meetings, and they’re told "you’ve got a disease..." LANE: "...accept it!..." DAVE: "Leave it at that..." BOO: "You’re slowly going to become disabled. So, be a good boy now and go into your wheelchair, and make it easy on the people who have to look after you."That sort of whole mentality: "There’s nothing we can do for you." And that, to me, is killing somebody before they’ve even started. The whole "Action Research" is "Up you, MS Society!" And it’s all people and friends and relatives of people who have MS that started it. The person that’s going around now about hyperbaric oxygen, his wife died! Not from MS, but from septicemia, from bedsores. It’s disgusting, isn’t it? But, HBO helps the bedsores! It helps the skin heal. And, in fact, in Whipp's Cross Hospital and in Ascot, another hospital, they have HBO units where they put people who have bedsores into their HBO chamber, completely... Link to the entire interview http://www.the-faces.com/lane/1lane2.htm Now, as far as the Larneton goes...that stuff is bunk...too many discredits that I have found and read... Kevin Weilacher N.E. Ohio (Canton) From: Laura Beaudin To: Grace M. Cc: tmic-list@eskimo.com Sent: Sat, April 17, 2010 2:01:50 PM Subject: Re: [TMIC] QUESTION ON LARNETON Not necessarily. While I do believe that 99.8% of all "cures" out there are pure bunk, Big Pharma has a lot fo pull and they go out of their way to discredit anything natural. Do you know that there's an actual treatment that can almost cure CP if the chold is young enough? Pure oxygen in a hyperbaric chamber. There was a big study done in Quebec, but because no meds were needed, just oxygen, they pulled the plug on it. While it was a double-blind study, it wasn't hard to figure out who was getting O2 vs. air...kids who were completely immobile were walking and talking. My roomate was a student shadow and her student was in this trial, but on the placebo. Parents had to pay through the nose to go have it done in another province privately. So yes, there are sometimes cures that people don't know about because the pharma companies go out of their way to discredit and bash them so that people mistrust. My first question to myself is usually, can it hurt to try? If there's riskm, then yes, I'd be weary, but if it's something that wouldn't harm me regardless, bring it on. Laura "You can easily judge the character of a man by how he treats those who can do nothing for him." -James D. Miles- http://www.bananga.com ...empowering ourselves! On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options http://www.practical-homeschooling.org On 17/04/2010 11:53 AM, Grace M. wrote
Re: [TMIC] LARNETON - PART 2
Hi Sue and everyone... I had this same question asked of me on my TM Network siteit had to do with Larneton and another herbal product (I don't recall) but I had found this webpage referencing this from the Ministry of Health in New Zealand. Here is a link for you to read... http://www.moh.govt.nz/moh.nsf/0/22459AF3D41CA288CC257676007E651F Beware of these knuckleheads... Kevin Weilacher N.E. Ohio (Canton) From: Bob and Sue Mattis To: tmic-list@eskimo.com Sent: Sat, April 17, 2010 11:51:23 AM Subject: [TMIC] LARNETON - PART 2 Hello all.again. I’ve done a little more research on Larneton that I asked about in my other e-mail. Seems this Gordon’s HerbalResearchCenterthing is a hoax. Apparently they also have other sites where they promise that the same formula that cures everything from Guillian-Barre to Polymyalgia Rheumatica, to Burning Mouth Disease (what ever THAT is!)and on...and onand on.. Something should be done to stop scammers from doing this crap. Sue
Re: [TMIC] Walk Aide
Todd, Yeah, I've found after talking with so many people, that the variances in each of us with TM is pretty large as far as what works for one and what doesn't.. I'm coming up on two years pretty soon and if the opportunity ever arises again I'll definitely give the Walk Aide another shot. Who knows how I may respond after two years of walking and using that muscle group, however slight it may be. Quick story reverting back to my PT days...after the Walk Aide experiment, my neuro decided that it wouldn't hurt to add electro stim to my PT regimen so for 15 minutes prior to my PT exercises, my therapist would wire me up to the electro stim machine. This was on my left lower half of my leg since that is what I am having the primary issues with. The very first time she started turning the machine up and told me to let her know when it got uncomfortable...and she kept turning it up..and up..and up..and up.and she kept asking me, are you okay...? I would respond, yeah, I'm fine. I could feel the stim, but it didn't hurt and it wasn't making my muscles contract at all... Anyway, bottom lineshe ended up cranking up the machine all the way up and I still had no response from the machine. Now, I'm assuming the big electro stim machine has the capability to go higher and make a larger contraction than something like the Walk Aideand I was still getting nothing from it. Anyway, I did my electro stim anyway and just tried to make a conscious effort to make my muscles respond in conjunction the stim. Oh well Kevin Weilacher N.E. Ohio (Canton) From: Todd Tarno To: TMIC Sent: Sun, April 4, 2010 3:42:48 PM Subject: Re: [TMIC] Walk Aide Hey Kevin, I'm so sorry that the Walk Aide didn't work for you. I know that each person with TM is different, I too don't understand why you're able move your toes a little bit, that's all I'm able to do also, but it didn't work. Let me tell you a little about my visit. She, the Dr., didn't even bring in her computer into the room with her, because she didn't think she would be able to find a working muscle on a person with TM for eight years with a handheld electric unit. She did see that when I tried to move my toes, the muscles below my ankle was moving a little bit and that was a good sign. It showed that the muscle signal was getting to the brain. The muscle that's needed, need to be very close to the skin. My muscle that did work ( on my bad right leg ), she said is in a weird place, is on the right side back close to the knee. It's two fingers up from one of my moles. lol I would need the next cuff side, next HALF side would be perfect, because the unit needs to be in front of my leg, so it knows where my leg is. So, if when you try to move your toes and the muscles below the outside ankle are moving, that's a good sign. This isn't an exact science, but I believe that as our body heals itself, this unit could work for us. I don't think this unit would had worked a few earlier. I hope everyone tries the Walk Aide at least once, but if it doesn't work then maybe try again in a couple / few years. Todd in CC, TX TM @ T-4 to T-8 on April 1, 2002 --- On Fri, 4/2/10, kevin weilacher wrote: >From: kevin weilacher >Subject: Re: [TMIC] Walk Aide >To: "Todd Tarno" , "TMIC" >Date: Friday, April 2, 2010, 3:51 PM > > > > >While I was going to outpatient PT, I was notified by my therapist and neuro >that someone from Walkaide was going to be at the hospital doing >demonstrations on people with different disabilities (ie:stroke, spinal cord >injury, neurological etc..) and they requested me to be the one that they >tried it one with a neurological disability. > >I was the third person to be demonstrated on and the woman right before me >had, had a stroke and she had great success with the walk aide. I was kind of >excited but wasn't getting my hopes up... > >The guy wired me up with the device and started ramping up the electrical >charge...nothing at a lower settingstill nothing at a little higher >settingstill nothing higher yet... >He turned the device all the way up and my left foot still did not respond... >Oh well, at least it was a try. The guy was confused too because he said he > had never seen anyone that didn't get at least some response from it. >He even went on and hooked it up to a couple more people and it worked for >them and then he came back to me and hooked it up again...same result, >nothing.. >My left leg is pretty much dead I guess... > >I mean, I can move my toes a very small bit, but that's it. I can't lift my >foot at all... > >Maybe someday, they'll find something
Re: [TMIC] Walk Aide
While I was going to outpatient PT, I was notified by my therapist and neuro that someone from Walkaide was going to be at the hospital doing demonstrations on people with different disabilities (ie:stroke, spinal cord injury, neurological etc..) and they requested me to be the one that they tried it one with a neurological disability. I was the third person to be demonstrated on and the woman right before me had, had a stroke and she had great success with the walk aide. I was kind of excited but wasn't getting my hopes up... The guy wired me up with the device and started ramping up the electrical charge...nothing at a lower settingstill nothing at a little higher settingstill nothing higher yet... He turned the device all the way up and my left foot still did not respond... Oh well, at least it was a try. The guy was confused too because he said he had never seen anyone that didn't get at least some response from it. He even went on and hooked it up to a couple more people and it worked for them and then he came back to me and hooked it up again...same result, nothing.. My left leg is pretty much dead I guess... I mean, I can move my toes a very small bit, but that's it. I can't lift my foot at all... Maybe someday, they'll find something that will work on me. Kevin Weilacher N.E. Ohio (Canton) From: Todd Tarno To: TMIC Sent: Fri, April 2, 2010 2:14:26 PM Subject: [TMIC] Walk Aide www.walkaide.com Two years ago, I got new feeling in my bad leg and one year ago, I was able to move my toes on my bad leg for the first time since April 1, 2002. So yesterday I went to a Walk Aide office here in Corpus Christi, TX and it did left up my drop foot on my bad leg, but I still will need the walker for balance. I'm just glad to know that I'm a candidate for this unit. To bad that Medicare doesn't cover the $4,800 unit. I know there is a 50/50 chance it will work for people with Transverse Myelitis, but I would still try and if it doesn't work, might try again, once you have gotten new feeling in your bad leg.
Re: [TMIC] Weather
Janice, To me, it is an ideal place and as I said, I WILL be moving there someday. It is the desert, so you have to like the desert, which means that there isn't as much greenery for those that are used to it and of course the change of seasons isn't as evident. If you can get past those kinds of things...it's a pretty great placemy opinion of course.. Kevin Weilacher N.E. Ohio (Canton) From: Janice Nichols To: kevin weilacher ; Robert Pall ; tmic-list@eskimo.com Sent: Wed, March 31, 2010 10:12:59 AM Subject: Re: [TMIC] Weather Weather Kevin, Alamogordo sounds wonderful!I didn't know they had places like that. Janice From: kevin weilacher Sent: Tuesday, March 30, 2010 9:42 AM To: Robert Pall ; tmic-list@eskimo.com Subject: Re: [TMIC] Weather One other thing too, I notice that you are in NJ Rob, and as you can see I'm in Ohio. Many of us are in the cold part of the country and have these issues. I am, as soon as I possibly can, going to move back to the southwest. I lived in a town called Alamogordo New Mexico back in the 80's and it had the most ideal weather of anywhere I've ever seen and I've lived in a lot of places after spending 20 years in the Air Force. Average annual high temp of 76 degrees, average annual low temp of 47 degrees, 11 inches total precipitation per year and 4 inches of snow per year. Humidity averages only about 50% year around and also about 80% days of sunshine a year. The elevation is about 4,000 feet and within a 20 minute drive you can go into the mountains and be over 9,000 feet and have all the snow you want and it is 20 degrees cooler. Plus, I love southwest style cooking. As much as Ohio and PA are "home" to me because this is the part of the country where I was born and raised and where my family is, they can keep it. I'm tired of cold, snow and all the rest of the mess that goes with it. Kevin Weilacher N.E. Ohio (Canton) ________ From: Robert Pall To: kevin weilacher Sent: Tue, March 30, 2010 9:08:11 AM Subject: RE: [TMIC] Weather Thanks Kevin...just one more lousy side effect of TM! Rob From: kevin weilacher [mailto:hwyfli...@yahoo.com] Sent: Tuesday, March 30, 2010 10:06 AM To: Robert Pall; Transverse Myelytis Subject: Re: [TMIC] Weather Hi Rob and all, Yes, I think all of us TMr's should band together to become meteorologists. I think we could probably be better weather predictors than the weather folks on TV. What I have found now in the close to two years of TM, in the summertime I can tell even the slightest change in humidity and barometric pressure. In other words, if there is a storm brewing, my legs will let me know because they ache like no tomorrow. The humidity drives me nuts because now with TM the only part of me that sweats is my head and it sweats profusely, probably to make up for the rest of my body not sweating anymore. In the winter with the cold, the pain level multiplies many times. I can hardly stand to go outside for more than a few minutes and a ride in the car, even with the heater on, is sometimes almost unbearable. Also the cold makes my legs stiffen up like boards. A short walk to the end of the driveway to get the mail and then back to the house and I'll have a hard time stepping up the two small steps into the house. My knees will not want to bend, I'll literally have to grab ahold of the door frame and pull myself up into the house. Oh, and by the way, I use a cane to get around. I have pretty bad foot drop on my left foot but wear a brace for that. Now, right now during this time of the year I'm not noticing too many issues other than some of the normal pain and also in the Fall when the weather is decent, I don't have too many problems then either, other than the "normal" ones. So, I guess to answer your question, as far as I'm concerned, the weather does raise some problems with TM. Best to you, Kevin Weilacher N.E. Ohio (Canton) From: Robert Pall To: Transverse Myelytis Sent: Tue, March 30, 2010 8:29:31 AM Subject: [TMIC] Weather We are getting a huge amount of rain in the Tri-State area which started yesterday and is expected to end tomorrow. My question is one we have discussed numerous times …but if you will indulge me with your responses one more time. For me high humidity and rain seem to have a tremendous impact on how I feel. The banding in my legs feels twice as bad as normal…as do the numbness and pins and needles. Considering we have members in this group spread out throughout the country (other countries as well) I am interested in how weather and what type of weather (if any) makes TM worse for you. Rob in New Jersey
Re: [TMIC] Weather
One other thing too, I notice that you are in NJ Rob, and as you can see I'm in Ohio. Many of us are in the cold part of the country and have these issues. I am, as soon as I possibly can, going to move back to the southwest. I lived in a town called Alamogordo New Mexico back in the 80's and it had the most ideal weather of anywhere I've ever seen and I've lived in a lot of places after spending 20 years in the Air Force. Average annual high temp of 76 degrees, average annual low temp of 47 degrees, 11 inches total precipitation per year and 4 inches of snow per year. Humidity averages only about 50% year around and also about 80% days of sunshine a year. The elevation is about 4,000 feet and within a 20 minute drive you can go into the mountains and be over 9,000 feet and have all the snow you want and it is 20 degrees cooler. Plus, I love southwest style cooking. As much as Ohio and PA are "home" to me because this is the part of the country where I was born and raised and where my family is, they can keep it. I'm tired of cold, snow and all the rest of the mess that goes with it. Kevin Weilacher N.E. Ohio (Canton) ____ From: Robert Pall To: kevin weilacher Sent: Tue, March 30, 2010 9:08:11 AM Subject: RE: [TMIC] Weather Weather Thanks Kevin...just one more lousy side effect of TM! Rob ____ From: kevin weilacher [mailto:hwyfli...@yahoo.com] Sent: Tuesday, March 30, 2010 10:06 AM To: Robert Pall; Transverse Myelytis Subject: Re: [TMIC] Weather Hi Rob and all, Yes, I think all of us TMr's should band together to become meteorologists. I think we could probably be better weather predictors than the weather folks on TV. What I have found now in the close to two years of TM, in the summertime I can tell even the slightest change in humidity and barometric pressure. In other words, if there is a storm brewing, my legs will let me know because they ache like no tomorrow. The humidity drives me nuts because now with TM the only part of me that sweats is my head and it sweats profusely, probably to make up for the rest of my body not sweating anymore. In the winter with the cold, the pain level multiplies many times. I can hardly stand to go outside for more than a few minutes and a ride in the car, even with the heater on, is sometimes almost unbearable. Also the cold makes my legs stiffen up like boards. A short walk to the end of the driveway to get the mail and then back to the house and I'll have a hard time stepping up the two small steps into the house. My knees will not want to bend, I'll literally have to grab ahold of the door frame and pull myself up into the house. Oh, and by the way, I use a cane to get around. I have pretty bad foot drop on my left foot but wear a brace for that. Now, right now during this time of the year I'm not noticing too many issues other than some of the normal pain and also in the Fall when the weather is decent, I don't have too many problems then either, other than the "normal" ones. So, I guess to answer your question, as far as I'm concerned, the weather does raise some problems with TM. Best to you, Kevin Weilacher N.E. Ohio (Canton) From: Robert Pall To: Transverse Myelytis Sent: Tue, March 30, 2010 8:29:31 AM Subject: [TMIC] Weather We are getting a huge amount of rain in the Tri-State area which started yesterday and is expected to end tomorrow. My question is one we have discussed numerous times …but if you will indulge me with your responses one more time. For me high humidity and rain seem to have a tremendous impact on how I feel. The banding in my legs feels twice as bad as normal…as do the numbness and pins and needles. Considering we have members in this group spread out throughout the country (other countries as well) I am interested in how weather and what type of weather (if any) makes TM worse for you. Rob in New Jersey
Re: [TMIC] Weather
Hi Rob and all, Yes, I think all of us TMr's should band together to become meteorologists. I think we could probably be better weather predictors than the weather folks on TV. What I have found now in the close to two years of TM, in the summertime I can tell even the slightest change in humidity and barometric pressure. In other words, if there is a storm brewing, my legs will let me know because they ache like no tomorrow. The humidity drives me nuts because now with TM the only part of me that sweats is my head and it sweats profusely, probably to make up for the rest of my body not sweating anymore. In the winter with the cold, the pain level multiplies many times. I can hardly stand to go outside for more than a few minutes and a ride in the car, even with the heater on, is sometimes almost unbearable. Also the cold makes my legs stiffen up like boards. A short walk to the end of the driveway to get the mail and then back to the house and I'll have a hard time stepping up the two small steps into the house. My knees will not want to bend, I'll literally have to grab ahold of the door frame and pull myself up into the house. Oh, and by the way, I use a cane to get around. I have pretty bad foot drop on my left foot but wear a brace for that. Now, right now during this time of the year I'm not noticing too many issues other than some of the normal pain and also in the Fall when the weather is decent, I don't have too many problems then either, other than the "normal" ones. So, I guess to answer your question, as far as I'm concerned, the weather does raise some problems with TM. Best to you, Kevin Weilacher N.E. Ohio (Canton) From: Robert Pall To: Transverse Myelytis Sent: Tue, March 30, 2010 8:29:31 AM Subject: [TMIC] Weather Weather We are getting a huge amount of rain in the Tri-State area which started yesterday and is expected to end tomorrow. My question is one we have discussed numerous times …but if you will indulge me with your responses one more time. For me high humidity and rain seem to have a tremendous impact on how I feel. The banding in my legs feels twice as bad as normal…as do the numbness and pins and needles. Considering we have members in this group spread out throughout the country (other countries as well) I am interested in how weather and what type of weather (if any) makes TM worse for you. Rob in New Jersey
Re: [TMIC] OT My Mom
Kevin, This is the other Kevin here in OhioI don't often pipe up in here but I have to say that my thoughts and prayers are with you... You and your mom had gone through some very tough times lately and she was blessed to have you there with her. You did the very best you could for her. Kevin Weilacher N.E. Ohio (Canton) My Mom passed sometime during the night Friday night. I am struggling to absorb this. At least I had a few hours with her before she passed because she was brought home from the hospital during the day Friday. I told her I loved her many times. She was in such a weakened state she could barely nod, but she knew who I was and what I was saying. I thought..hoped I'd have a little more time with her, but at least she is not suffering anymore. Thank you all for your kindness during this difficult time. It is painful. Kevin
[TMIC] Concerning a weird email you may have gotten from me....
I'm sorryAt first I thought my email got spammed so I sent a report to Yahoo. I just got a response back. It turns out that it wasn't me, some other computer that has my email in it was apparently the culprit. It got ahold of my email address from that and then migrated all through my contact list. Here is a paraphrased response from Yahoo... "- Forwarded Message From: Yahoo! Mail To: kevin weilacher Sent: Sat, March 6, 2010 6:16:45 AM Subject: Re: Yahoo mail jacked up (KMM105397853V74198L0KM) Hello Kevin, Thank you for contacting Yahoo! Customer Care. Before I go into addressing your concern, I'd like to first apologize for the delay in my responding to your inquiry. We are committed to answering your questions as quickly and accurately as possible. However, we are currently receiving unusually high volumes which caused the delayed response. It appears you may have received a message due to a worm virus. This does not mean that your computer has been infected with the virus, but more than likely a computer that contains your email address within its address book has. These particular viruses spread by sending users an email from a seemingly reliable source asking them to open an attachment containing the virus. Once a user contracts the virus, it then spreads itself by sending out new infected messages using contacts from within their address book." So, Yahoo seems to have gotten it taken care of and we shouldn't have any more problems from this. I hope everyone just deleted the email that came from me. Kevin
Re: [TMIC] tmic hijacked
Thanks Mindy, I appreciate that...It's ironic because I work hard to keep knuckleheads like that off of the TM Network that I run with Greg Sapp. I probably get one or two a week that try to get on to the website that I deny membership to and here I go and get hit myself. Ay From: Mindy King To: tmic-list@eskimo.com Cc: Mindy King Sent: Tue, March 2, 2010 7:00:20 PM Subject: Re: [TMIC] tmic hijacked I just recognized it for what it was and didn't want folks on the list to think you were the one peddling Cialis and Viagra. Mindy the artisan On Mar 2, 2010, at 6:47 PM, kevin weilacher wrote: Just to let everyone know, I've reported the problem to Yahoo Mail Abuse. >I just want you to know that I am doing whatever I can to put a stop to it >immediately. > > > > ________ From: kevin weilacher >To: Mindy King ; tmic-list@eskimo.com >Cc: Mindy King >Sent: Tue, March 2, 2010 6:26:12 PM >Subject: Re: [TMIC] tmic hijacked > > >I don't know what happened...I use Yahoo internet mail and have all spam >filters in place. I also got a bunch of bounced messages... >I also use AVG anti virus and it is current and I haven't had any problems >lately... > >I apologize for the inconvenience and I will keep an eye on it. > > > > > > From: Mindy King >To: tmic-list@eskimo.com >Cc: Mindy King >Sent: Tue, March 2, 2010 5:29:13 PM >Subject: [TMIC] tmic hijacked > >looks like Kevin Weilacher's email has been hijacked I'm getting spam from his >address > > >Mindy the artisan > > >
Re: [TMIC] tmic hijacked
Just to let everyone know, I've reported the problem to Yahoo Mail Abuse. I just want you to know that I am doing whatever I can to put a stop to it immediately. From: kevin weilacher To: Mindy King ; tmic-list@eskimo.com Cc: Mindy King Sent: Tue, March 2, 2010 6:26:12 PM Subject: Re: [TMIC] tmic hijacked I don't know what happened...I use Yahoo internet mail and have all spam filters in place. I also got a bunch of bounced messages... I also use AVG anti virus and it is current and I haven't had any problems lately... I apologize for the inconvenience and I will keep an eye on it. From: Mindy King To: tmic-list@eskimo.com Cc: Mindy King Sent: Tue, March 2, 2010 5:29:13 PM Subject: [TMIC] tmic hijacked looks like Kevin Weilacher's email has been hijacked I'm getting spam from his address Mindy the artisan
Re: [TMIC] tmic hijacked
I don't know what happened...I use Yahoo internet mail and have all spam filters in place. I also got a bunch of bounced messages... I also use AVG anti virus and it is current and I haven't had any problems lately... I apologize for the inconvenience and I will keep an eye on it. From: Mindy King To: tmic-list@eskimo.com Cc: Mindy King Sent: Tue, March 2, 2010 5:29:13 PM Subject: [TMIC] tmic hijacked looks like Kevin Weilacher's email has been hijacked I'm getting spam from his address Mindy the artisan
[TMIC] REMI CLARET
http://newsmail.zroort.com/barbara.html
[TMIC] hamdi majri
http://missions.net.nz/soukaina.html
Re: [TMIC]
Just found this on Molistical... http://onesickmother.typepad.com/my_weblog/2009/07/solutions-by-nature-scam.html From: kevin weilacher To: Janice Nichols ; tmic-list@eskimo.com Sent: Sat, February 6, 2010 9:05:06 AM Subject: Re: [TMIC] Larneton is for a fact, a scam. http://www.moh.govt.nz/moh.nsf/0/22459AF3D41CA288CC257676007E651F Molistical, not sure but I would lay money on it being a scam also From: Janice Nichols To: tmic-list@eskimo.com Sent: Fri, February 5, 2010 9:28:05 PM Subject: [TMIC] Have any of you heard of the "natural" meds that are to "cure" TM? So far I have 2 names: Larneton and Molistical Know anything about them? Janice
Re: [TMIC]
Larneton is for a fact, a scam. http://www.moh.govt.nz/moh.nsf/0/22459AF3D41CA288CC257676007E651F Molistical, not sure but I would lay money on it being a scam also From: Janice Nichols To: tmic-list@eskimo.com Sent: Fri, February 5, 2010 9:28:05 PM Subject: [TMIC] Have any of you heard of the "natural" meds that are to "cure" TM? So far I have 2 names: Larneton and Molistical Know anything about them? Janice
[TMIC] Northeast Ohio / Wester PA TMr's
Hi Folks, I'm sending this out to those folks because I'm working on coordinating a get together. I live in Canton, Ohio and there are a couple more of us here in Canton and I know that there are a couple more TMr's in the Youngstown Ohio areaplus I know that there are some of us in the Pittsburgh PA area. I've been chatting with Grace Mitchell (she is a bit of a celebrity so to speak, as she was the subject of a segment on the Discovery Health Channel...here is a link to the first section of the segment...http://transversemyelitis.ning.com/video/grace-with-tmdevics-nmo ) and we would like to arrange a get together sometime in April with as many somewhat local members as we could. If anyone interested could send me a note either through here or my email kdweilac...@gmail.com and let me know. I want to start getting an interest level and head count so we can start making plans for this. I think this would be a great opportunity for a nice day trip to meet other somewhat local TMr's for some friendship, support and just an all around good time. I look forward to hearing back... Kevin Weilacher N.E. Ohio (Canton)
Re: [TMIC] Yooo...hooo....TMIC Members, where are you?
Hey Gracie and everyone... I've read through the posts.. I'm here...I don't post here often...too busy with my other projects usually or actually, my distracted attention span takes me in 5 different directions that I forget to post anything. As far as the weather/pain/cold/rain etc.living in Northeast Ohio certainly has given me some challenges with the cold in the winter time...the pain is a mummer bugger most times and in the summer the heat and humidity make me nuts. If I go outside and try to do any kind of activity, I fatigue and get exhausted in no time at all...plus, I start sweating and now with my TM, the only part of me that sweats anymore is my head. It sweats profusely If I had a choice at this point, I would be living somewhere near a place called Alamogordo NM. It is a small town in New Mexico and I lived there for three years back in the 80's when I was in the Air Force. That area has the most perfect weather in my eyes of any place that I've ever been. Average annual high temp of 76 degrees, average annual low temp of 47 degrees, 11 inches total precipitation per year and 4 inches of snow per year. Humidity averages only about 50% year around and also about 80% days of sunshine a year. The elevation is about 4,000 feet and within a 20 minute drive you can go into the mountains and be over 9,000 feet and have all the snow you want and it is 20 degrees cooler. Plus---I love southwest style food...not mexican, but southwest, there is a difference. It's a combination of American Indian, Mexican and Spanish. One of these days.. Kevin Weilacher N.E. Ohio (Canton) From: Grace M. To: tmic-list@eskimo.com Sent: Sun, January 31, 2010 7:02:39 PM Subject: [TMIC] Yooo...hoooTMIC Members, where are you? Where is everyone? The last msg that I got was from Frank, looking for pie recipes. Anyone out there?
Re: [TMIC] Medical Marijuana
Let's get Ohio off it's laurels also as far as how to use it.I'd stick it in my ear if it helped the pain/spasms/sleep etc.. Kevin Weilacher N.E. Ohio (Canton) From: Janice Nichols To: Robert Pall ; TMIC Sent: Tue, January 19, 2010 5:53:26 PM Subject: Re: [TMIC] Medical Marijuana Medical Marijuana Good for you - now work on marijuana for Missouri!Do you use it - smoke it - take it in pill form?? Janice From: Robert Pall Sent: Tuesday, January 19, 2010 7:19 AM To: TMIC Subject: [TMIC] Medical Marijuana New Jersey is now officially the 14th state to allow the use of medical marijuana…it is about time! Rob in New Jersey
[TMIC] Help getting in touch with Todd Tarno
Can I get the groups assistance getting Todd Tarno to get in touch with me. This is concerning the raffle that we had and he was the winner of. I've sent him multiple emails to the email address that shows up here on the group and I've also sent him a note on the TM Network and Facebook too. He has not responded to me yet and I need him to contact me so that I can get the correct measurements from him for the cane that he won in the raffle. I need to get it cut to the correct length and install the rubber tip on it and then get it shipped out to him. I'm obviously available here on the group, on Facebook and also on the TM Network too. Todd, if you're out there send me a note. Please..... Kevin Weilacher N.E. Ohio (Canton)
Re: [TMIC] Nerve Pain
Janice, Who would have ever thought that nerve pain or sensations would feel like that or hurt so bad. I remember as a kid having road rash from a few different bicycle crashes and I remember the nerve sensations from that, but that pain doesn't even hold a candle to what I'm experiencing now. And isn't it odd how each of us is affected differently in some ways, as you say that the weather doesn't bother you. This cold weather is really ramping up the sensations and the stiffness in my legs but then again, I also will have more pain on the following day of overdoing activities. This tailbone sensation really makes me crazy because besides the burning, at times it feels like I have a pair of rolled up socks jammed (excuse me for this) into the top of my butt crack and it makes it uncomfortable to walk or sit or anything. It's interesting too, you mention about the spasms. I have one muscle in particular that goes crazy and it does so more when I am laying flat although it does it at other times too, even when I am standing. The muscle runs from my left glute down through the back of my left leg to my knee. At times that muscle feels like it's running a marathon all by itself. I can lay my fingers on my skin and feel the muscle going to town. There are times that it does it so much, that the day afterward, that muscle is sore from the spasms. Crazy stuff, huh..? Good Luck with yourself also. Kevin Weilacher N.E. Ohio (Canton) ____ From: Janice Nichols To: kevin weilacher ; tmic-list@eskimo.com Sent: Tue, December 22, 2009 10:20:37 PM Subject: Re: [TMIC] Nerve Pain Kevin, You have described my sensations closer than anyone else. The weather does not seem to bother me. What is much worse is over doing activities on a day I feel really good and then paying for it the next day.My tailbone also feels much like yours. Whats up with that? I can not lay flat on my back with my legs flat-it causes spasms.Well, I am a mess and my husband has decided that we are never going to figure out my body, so we are just going to cope with it. Good luck with your body! Janice From: kevin weilacher Sent: Sunday, December 20, 2009 8:17 AM To: Janice Nichols ; tmic-list@eskimo.com Subject: Re: [TMIC] Nerve Pain Janice, My nerve pain runs from where my lesion is (L4,L5 and S1 which is right at the tailbone) all the way through my butt and down through the back of both of my legs down to my knees. The pain in the tailbone area is a real bad burning sensation and then when it gets down to the backs of my legs, it feels like my skin is literally being ripped apart. There are times when I will feel the backs of my legs with my fingers, just to check to make sure there isn't an open wound there because the sensation is so strong. The colder the weather also makes the sensation stronger and also in the summer if I have been outside doing any kind of physical activity. There are times that the sensations are so bad that I can't even lay on my back in bed because I can't stand having the backs of my legs or my butt touching the sheets and most times it is hard just to sit in a chair for any longer than a few minutes at a time and when I am sitting I don't sit flat on my butt, I have to sit cocked over to one side or the other. Does it get bad enough to get me down..?Short answeryes. Kevin Weilacher N.E. Ohio (Canton) From: Janice Nichols To: tmic-list@eskimo.com Sent: Sat, December 19, 2009 11:14:35 PM Subject: [TMIC] Okay, I have another question. When we talk about nerve pain, are we all talking about from top of back thighs down to bottom of calves? Or do you all have some other areas that are affected?Does it ever get bad enough that it makes you all down? Mine will do that-like a knife tearing down the leg. I just wondered if we all felt the same thing in the same areas. Janice
[TMIC] Santa's Jigsaw.....this is cool!
Merry ChristmasHappy Holidays...Happy New Years...Good TidingsBest Wishes and all the other well wishes that go along with this holiday season. Give this little puzzle a try, it's pretty cute. When you finish putting it together,watch what happens. Merry Christmas (hold "control" and click on:...) Click here: Santa's Jigsaw
Re: [TMIC] Nerve Pain
Janice, My nerve pain runs from where my lesion is (L4,L5 and S1 which is right at the tailbone) all the way through my butt and down through the back of both of my legs down to my knees. The pain in the tailbone area is a real bad burning sensation and then when it gets down to the backs of my legs, it feels like my skin is literally being ripped apart. There are times when I will feel the backs of my legs with my fingers, just to check to make sure there isn't an open wound there because the sensation is so strong. The colder the weather also makes the sensation stronger and also in the summer if I have been outside doing any kind of physical activity. There are times that the sensations are so bad that I can't even lay on my back in bed because I can't stand having the backs of my legs or my butt touching the sheets and most times it is hard just to sit in a chair for any longer than a few minutes at a time and when I am sitting I don't sit flat on my butt, I have to sit cocked over to one side or the other. Does it get bad enough to get me down..?Short answeryes. Kevin Weilacher N.E. Ohio (Canton) From: Janice Nichols To: tmic-list@eskimo.com Sent: Sat, December 19, 2009 11:14:35 PM Subject: [TMIC] Okay, I have another question. When we talk about nerve pain, are we all talking about from top of back thighs down to bottom of calves? Or do you all have some other areas that are affected?Does it ever get bad enough that it makes you all down? Mine will do that-like a knife tearing down the leg. I just wondered if we all felt the same thing in the same areas. Janice
Re: [TMIC] Age
I was 49 when it hit May 14th 2008 Kevin Weilacher N.E. Ohio (Canton) From: "aca...@aol.com" To: jan...@centurytel.net; tmic-list@eskimo.com Sent: Fri, December 11, 2009 9:46:23 AM Subject: Re: [TMIC] Age I guess I am the oldest. Age 67 in 2005
[TMIC] IDC Raffle
I'll make this short and sweet, if any of you recall, the IDC is having a raffle. It's been going on for a bit and I didn't keep posting reminders here on the TMIC because I didn't want to cross any lines with the TMA even though we're working together towards a common goal. Anyway, the raffle is down to the wire folks. The drawing is on December 15th. If you want a ticket or tickets we have to have your money in and enough time to get your tickets out to you. Bottom line, get your request in as soon as possible, probably no later than December 10th or 11th. There's still time...come one everyoneone final push... Link to the website raffle http://www.disabilitycoalition.org/raffle.shtml Kevin Weilacher N.E. Ohio (Canton)
[TMIC] International Disability Coalition Raffle
The IDC has their raffle going on until December 15th. That''s 28 days left to get your tickets to try and win the cane that's up for raffle. Even if your not interested in trying to win the cane, the tickets are only $1 each and the donations are going to a good cause...Dr. Kerr at Johns Hopkins Research Center for the advancement into stem cell research. The donation would be supporting our own cause. Head on over to the website and consider a donation for a great cause. http://disabilitycoalition.org/raffle.shtml Thanks everyone. Kevin Weilacher N.E. Ohio (Canton)
Re: [TMIC] Topamax.....MRI's....and Chiropractors
Hey Everybody, I've seen a few posts here where folks have been posting about Topamax. I guess I missed the initial post as to what the symptom was that they were taking Topamax for But, I'm just throwing my .02 in here...I also take Topamax. I was prescribed it when I was having such a rough time with Migraines that started after my TM hit. I actually went through a few different meds before my doc put me on Topamax and now I'm so thankful that he found something that worked. I take 100mg of Topamax a day (2/ 25mg tabs in the a.m and 2/25mg in the p.m.) I have no side effects whatsoever. No appetite suppression, no vibrating...nothing...except that my migraines are now under control. So, just as I've said before...it seems that meds affect each and every one of us differentlyit's so hard to say what's going to work well for one and not for another. Take neurontin for example... most people seem to get pain relief from it at some varying dosage level. It didn't do a damn thing for me...So, I continue on with grinning and bearing it...and take some MS Contin on really bad days... Kevin Weilacher N.E. Ohio (Canton) From: "roseofr...@aol.com" To: laura.beau...@gmail.com; balmat...@aol.com; tmic-list@eskimo.com Sent: Sat, November 14, 2009 12:13:27 PM Subject: Re: [TMIC] Topamax.MRI'sand Chiropractors Twelve years ago I was in an MRI machine for approx. 1-3/4 hours the first night and almost 4 hours the second night. It was a nightmare and they turned me claustrophobic. Thenabout one year agoI had to go again for my lumbarthey gave me a little sedation, wrapped me in a warm blanket, gave me ear plugs and I fell asleepI was only in there for approx. 30 minutes. The new machines are wonderful...! I guess you need to ask how old their machines are to know how long you will be in there. Topamax was also a nightmare for me so be really careful with that stuff. My entire body vibrated so badly it drove me nuts. The appetite suppression you get from taking it just wasn't worth it for me.I'd rather be pleasingly plump than vibrating out of my skin constantly. The vibrating stopped completely about two days after I stopped taking that med. Chiropractors are a blessing for me. I only go when the pain gets so bad I can't control it with pain meds at allthat tells me something is "out" and I need that adjustment. They usually use a heavy heating pad to relax your muscles before the adjustmentfound out I can't take that.it's too heavy for my lumbar...so we now just skip that part.I don't get into their gowns either I just get on that table, have him adjust me and I'm outta there. :-) Hugs, Lynn In a message dated 11/13/2009 8:56:30 P.M. Pacific Standard Time, laura.beau...@gmail.com writes: What I > don't get is that if it was a question of up-to-date technology, there would > be more people reporting the same time lines...makes me wonder if the > quality > is of any good... It's something I really want to look into, if anything, > for > curiosity's sake. > >Laura > >On 13/11/2009 7:20 PM, Barbara Alma > wrote: > >Wow Laura, maybe your provider has >>much more up to date technology than mine, but that's such >>an incredible difference. I had my last done last year or earlier >>this year, not sure. She ordered upper and lower thoracic and that >>took at least an hour and a half I think. The then decided to order a >>cervical one and that was at least another half hr. She didn't like >>what she saw, then really didn't like what she saw, but I wasn't about to >> go >>into surgery for any corrections as long as I'm able to function at this >>level. >> >> >>Hugs, Barbara A in >>Auburn CA >> >>-Original Message- >>From: >>Laura Beaudin >>To: >>Barbara Alma >>Sent: Fri, >>Nov 13, 2009 9:33 am >>Subject: Re: [TMIC] Topamax >> >> >>Top of the head to >>sacrum, I was in 30 minutes tops. Perhaps technology is changing? >>Dunno... >> >>On 13/11/2009 3:58 AM, Barbara Alma wrote: >> >>It depends on where they are >>> scanning. When I had upper and lower spine done they >>> scheduled 2 hours, otherwise only 45 minutes. It actually took >>> a bit longer, as they kept having to restart since I'd go into spasms, >>> lol. >>> >>> >>>Hugs, Barbara A in >>> Auburn CA >>> >>>-Original Message- >
[TMIC] IDC Raffles
I just want to throw out a friendly little reminder... I know most of you have seen my reminders on Facebook, but for those that aren't on Facebook here's a reminder. The raffles on the International Disability Coalition website are now happening. Head on over to the site... http://www.disabilitycoalition.org/ and click on the "Raffle" tab. Tickets are only $1 each Remember, we are supporting our own cause by participating in the raffles... Thanks everyonehave a great day and if you have any questions let me know. Kevin Weilacher N.E. Ohio (Canton)
Re: [TMIC] Happy Birthday Ella!
Yes...Happy Birthday Ella.my fellow Northeast Ohioan I hope you have a wonderful although chilly day Kevin Weilacher Northeast Ohio (Canton) From: Akua To: tmic-list@eskimo.com Sent: Sun, November 1, 2009 1:58:17 PM Subject: [TMIC] Happy Birthday Ella! Happy Birthday Ella! Happy Birthday Ella --
Re: [TMIC] Facebook
Got to admit, I'm a FaceBook'er also...been on there for awhile. I belong to quite a few different groups of interest but not so many games. The only one I'm active in any more is YoVille. I don't know why but I like buying and rearranging the stuff in my houses. I was on a couple of the farm games but my attention level is so short that I can't stay focused on these things. I bounce around between so many things during the day that I'm surprised I get much of anything done. I do like FaceBook for the fact that I am able to stay in touch with quite a few old friends as well as new. Plus there is a group that I belong to from my hometown that I enjoy.
Re: [TMIC] new therapy for paralyzed
After a quick glance at the website..I notice just a few things that make me wonder. First, He doesn't list any credentials. It doesn't appear that he's a doctor of any sort. He says he's a therapist. He doesn't even say what type of therapist. Second, a quick Google search brings up virtually nothing about him or this place. That's usually not a very good indicator. The website is designed and hosted by the guy himself. That's pretty second rate. Not very professional. This also may be nitpicking, but I noticed some misspellings. You typically won't find that in a website for a professional service. $6,000 for 2 hours a day for 5 days of treatment. Sure, he says that he has 100% success rate but I'm a skeptical S.O.B. especially when it comes to my health and my money. Sounds kind of hokey that manipulating the bottom of your feet with his thumbs and some lotion is going to work. Certainly, if this were the case, this would have been discovered a long time ago. I'd get an opinion from a degreed, qualified, and certified neurologist on this before I went forward with it. We all wish that it were this simple Amandaand if $6,000 were all it took to "fix us" I'm sure that more of us wouldn't be the walking wounded that we are. Be careful with this Kevin Weilacher N.E. Ohio (Canton) From: Amanda Diskey To: tmic-list@eskimo.com Sent: Thu, October 15, 2009 8:14:27 PM Subject: [TMIC] new therapy for paralyzed Hello all: I know I don't post often, but I came across something on the internet that I am unsure of and I would like your opinions. I found a therapist claiming to be able to help the paralyzed regain movement and sensation. He claims to be able to "turn the nerves back on" through a form of massage on your feet. I spoke with him on the phone yesterday and he called my house 4 times today. Check out the website below and let me know what you think! www.nsctherapyproject.com I thought it was interesting, but maybe I am too gullable
Re: [TMIC] Neurontin
Hi Kevin W...this is the other Kevin W..(Kevin Weilacher).. I tried Neurontin in the beginning but at a very low dosage..only 300 mg a day and had no pain relief or side effects. My current Neurologist is retrying me on Neurontin at a higher dosage which I'm currently at 1800mg and have been now for 2 months and again have had no relief or side effects. I suggested it to my neuro after reading about it on the TM boards, since I was taking MS Contin which is an opiate and I was kind of concerned with the "getting hooked" possibility. Well, I tell ya...after this go round with the Neurontin and having no luck again, I'm back to the MS Contin. It doesn't take away the pain totally but at least takes the edge off to where I'm able to wear pants and sit on my backside for a bit without it feeling like it's on fire. I was told by my doc that the dosage I'm on is low enough to not be concerned with getting hooked as long as I take it as prescribed. Of course, one problem with opiates is the hardening of the stool so you to develop a maintenance program with that. I guess from what I've read, each person has completely different results with Neurontin and I do know one thing that I've heard as a "side effect" is that it increases the possibility of suicidal thoughts in patients. Perhaps that is why the neuro's won't prescribe it to you.just a guess.. I wish you the best, I understand the pain situation and how finding something that works is especially important. Kevin Weilacher N.E. Ohio (Canton) From: Kevin Wolfthal To: tmic-list@eskimo.com Sent: Wed, October 7, 2009 3:38:52 AM Subject: [TMIC] Neurontin I have not tried Neurontin for my pain because every neurologist I've been to refused to give it to me when I asked about it. I don't know why. The pain in my hands and feet is getting so bad that if I can't get some relief I'm not sure what I will do. For those taking Neurontin, have you had any bad side effects? I tried Lyrica and Cymbalta but could not tolerate the side effects. I know many people on the tmic use Neurontin successfully. I am becoming bedridden from pain, I have to try something, but I also have to find a doctor who will work with me, obviously. Thanks, Kevin __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
[TMIC] Fund raising raffles for International Disability Coalition
I would like to make a call out to the members here...if you haven't had a chance to visit the IDC website (This is Gunny's website), please do.. http://www.disabilitycoalition.org In the past we have held raffles to raise funds to go to research into spinal cord injury and stem cell research. We are looking at starting that again instead of just asking for donations. I would like to ask any members here on the TMIC, if you make any type of crafts, paint or anything along that line, would you be willing to donate an item for the raffle. I feel that items donated and possibly made by members of the group, would be supporting our own cause. The raffle tickets would be inexpensive at only $1 or $2 each. I would be willing to start things off by donating one of my hand carved wood spirit face canes that I make. I have had a couple of other members suggest some interest in this also but we need continued interest. All funds raised would go to Johns Hopkins Hospital in support of Stem Cell research. Any questions, suggestions or anything else...please let me knowwe would really like to see this get going. Thanks, Kevin Weilacher N.E. Ohio (Canton)
[TMIC] Swine Flu questions answered by MS doctor
I posted earlier a link to Dr. Vollmer, Director of the Rocky Mountain MS Center answering questions about the swine flu. I recently found out that the link I posted is goofed up so I'm just posting the text of the questions. As follows Swine Flu and MS: A question and answer with Dr. Vollmer In the last week, swine flu has been a frequently discussed topic, and many people with MS have questions. Dr. Vollmer, Medical Director of the Rocky Mountain MS Center, has agreed to clarify some of these questions and issues as they relate to people with MS. Are people with MS more likely to experience complications from flu? People on chronic immunosuppressive therapy may be more susceptible to developing serious infections. Similarly, people who are more severely affected with MS, especially those who have limited mobility, may be more at risk of harm from respiratory complications. But otherwise, most people with MS are not more likely to develop serious infections. Another special consideration for people with MS is that infection with swine flu, like the seasonal flu, may increase the risk of an MS exacerbation. Are treatments for swine flu available? Yes, laboratory testing on these swine influenza A (H1N1) viruses so far indicate that oseltamivir (Tamiflu) and zanamivir (Relenza) are effective. Based on experience with seasonal flu, these drugs are more effective if used within 48 hours of onset of symptoms. Should people with MS who get swine flu be treated with antiviral therapy? Probably. As stated above, people with MS may be at more risk from flu infection. Discussing these factors with your primary care physician is a good idea and together you can make a decision about being treated with an antiviral therapy. Are there any special precautions that people with MS should take? Generally, no. However, it is certainly important for people with MS to follow basic hygiene principles, including frequent hand washing, coughing or sneezing into a tissue, not touching your eyes, nose or mouth, and avoiding close contact with possibly infected people. Taking these preventative measures greatly reduces all people’s chances of getting the flu – including those with MS – as swine flu is passed from person to person. What if someone with MS does not have symptoms of flu but has been exposed to a person who is known to be infected with swine flu? In some situations, antiviral therapies can be used to prevent infection in people who have been exposed to the virus. This preventive use of antivirals may be considered when someone has been in close contact (within six feet) with a person who has a confirmed case of swine flu. Additionally, those MS patients who have other health problems, such as heart disease, may be candidates for prophylactic therapy if exposed to probable infected cases. If an MS patient thinks he/she may have contracted swine flu (fever, aches and pains), what should he/she do? See your primary physician. Because antiviral therapies are more effective when used early, it important to consult your primary physician soon after you begin to experience symptoms. Generally, these drugs are most effective if started within 48 hours of onset of symptoms. Should injectable MS therapies or Tysabri be discontinued? No. You should continue to follow your physician’s treatment recommendations. Do you have any other recommendations for MS patients? At this point in time, practicing good hygiene is the most effective measure you can take to avoid the swine flu, particularly frequent hand washing or use of hand disinfectants, and avoiding close contact with individuals with cough or other symptoms suggestive of the flu. The good news is that the swine flu may turn out not to be an especially virulent virus. For more general information on swine flu, including its incubation period, patterns of infection, symptoms, and more information about specific treatments, visit the Center for Disease Control and Prevention’s website: www.cdc.gov
[TMIC] Swine Flu vaccination questions answered by MS doctor
For what it's worth...Dr. Vollmer, the Medical Director of the Rocky Mountain MS Center answered some questions pertaining to the swine flu vaccination as it relates to MS patients. This may apply to us TMr's also... http://brain.hastypastry.net/forums/showthread.php?t=67620 Kevin Weilacher N.E. Ohio (Canton)
Re: [TMIC] Netta
If this is her...it looks like she is on Facebook... http://en-gb.facebook.com/gnetta From: "bgunny7...@aol.com" To: Tmic-list@eskimo.com Sent: Sunday, September 20, 2009 9:27:33 AM Subject: [TMIC] Netta Anybody know how to get ahold of Netta gaynor?
Re: [TMIC] Stem Cell funding
LOL...Randyhow right you are From: "rj_ran...@yahoo.com" To: kevin weilacher ; Jim Lubin ; TMIC-LIST@eskimo.com Cc: bgunny7...@aol.com Sent: Saturday, September 19, 2009 11:31:37 AM Subject: Re: [TMIC] Stem Cell funding Sounds like poltics at its finest moments. Sent from my Verizon Wireless BlackBerry ____ From: kevin weilacher Date: Sat, 19 Sep 2009 07:14:56 -0700 (PDT) To: Jim Lubin; Subject: [TMIC] Stem Cell funding Yes...I do stand correctedI misspoke when I made the general statement on stem cell research. I guess my basic point is thisPresident Obama lifted the ban on funding on human embryonic stem cell research back in March I believe it was. From articles I've read, even though that ban was lifted, no federal funding has reached the researchers which has obviously slowed their progress. There was supposed to be 8.2 billion dollars made available for this. Now the researchers are having to rely on private funding and whatever grants they can find. Anything we can do as a nation of people, to help that situation out, certainly can't hurt. From: Jim Lubin To: kevin weilacher ; TMIC-LIST@eskimo.com Sent: Friday, September 18, 2009 5:47:43 PM Subject: Re: [TMIC] Who else knew this about Gunny..? (Richard Boyle) At 09:30 AM 9/17/2009, kevin weilacher wrote: It seems that since President Obama lifted the ban on stem cell research nothing else has happened because there has been a total lack of funding for continued research. Currently, it seems that the only way anything is going to get done is if we, ourselves takes this bull by the horns and do something for ourselves. That's because there never has been a ban on stem cell research. He lifted the ban on federal funding of stem cells from human embryonic sources. Jim Lubin jlu...@eskimo.com http://makoa.org/jim disAbility Resources:http://www.makoa.org
[TMIC] Stem Cell funding
Yes...I do stand correctedI misspoke when I made the general statement on stem cell research. I guess my basic point is thisPresident Obama lifted the ban on funding on human embryonic stem cell research back in March I believe it was. From articles I've read, even though that ban was lifted, no federal funding has reached the researchers which has obviously slowed their progress. There was supposed to be 8.2 billion dollars made available for this. Now the researchers are having to rely on private funding and whatever grants they can find. Anything we can do as a nation of people, to help that situation out, certainly can't hurt. From: Jim Lubin To: kevin weilacher ; TMIC-LIST@eskimo.com Sent: Friday, September 18, 2009 5:47:43 PM Subject: Re: [TMIC] Who else knew this about Gunny..? (Richard Boyle) At 09:30 AM 9/17/2009, kevin weilacher wrote: It seems that since President >Obama lifted the ban on stem cell research nothing else has happened >because there has been a total lack of funding for continued research. >Currently, it seems that the only way anything is going to get done is if >we, ourselves takes this bull by the horns and do something for >ourselves. That's because there never has been a ban on stem cell research. He lifted the ban on federal funding of stem cells from human embryonic sources. Jim Lubin jlu...@eskimo.com http://makoa.org/jim disAbility Resources: http://www.makoa.org
[TMIC] Who else knew this about Gunny..? (Richard Boyle)
He has been quite the proactive person over the years in trying to help get things done to help the TMA, to help Dr. Kerr and to help disabled peopled peopled in general. Over the last few months we've discovered that he's done some drumming for the 50's Doo-Wop group The Edsels, We found out that he also wrote a book called "Living With A Spinal Cord Injury, He founded the International Disability Coalition to try and help fund Dr. Kerr at Johns Hopkins who also just so happens to be his cousin. He also wants the IDC to be able to help disabled individuals with various things, such as supplies or assistance with things and he specifically spoke of a post he saw on here yesterday. Gunny sent me a note yesterday referencing the post from Akua and how she has to pay $88 a month to get someone to shop for her. That is utterly rediculous..!! Gunny would love to be able to have the means to provide a service to a person such as Akua with no charge to her either through volunteers or organizations donating their resources. Ultimately this is the type of thing we are shooting for. Anyway, I recently come across this bit of information. Click the link and read what it has to say...Extremely interesting. http://www.myelitis.org/articles/2605tmapr.htm How many of us knew that..? I didn't. When Gunny contacted me and asked me if I'd like to help him work on trying to get the IDC built up some more through a series of raffles and other ideas, I jumped at the chance. It seems that since President Obama lifted the ban on stem cell research nothing else has happened because there has been a total lack of funding for continued research. Currently, it seems that the only way anything is going to get done is if we, ourselves takes this bull by the horns and do something for ourselves. If anyone has any input, thoughts, ideas, criticisms etcplease let me know and they will be duly noted. Thanks, Kevin
[TMIC] Looking for TMr's from N.E. Ohio area
Who here on the list is from what is classified as the N.E. Ohio area. I have the 2007-2008 TMA directory and I'm sure that there have been some changes or updates. I'm looking at trying to start a NE Ohio TMA support group. I know there is an Ohio support group but I believe the closest area is Columbus. Honestly, that is a bit too far for me to drive for support meeting get togethers. I know Gunny is on here and I know about Ella in Elyriacan anyone help me out..? I think we could benefit from something like thisespecially in light of the recent posting from Gilly...where she said that she just recently met another TM'r. How many others are out there that would like to meet another TM'r and you might have someone in your "back yard" so to speak that you don't know about. Thanks, Kevin
Re: [TMIC] I met a TMer!!!!!
Gilly, that is wonderful...I know how cool it was for me when I met two other TMr's here locally for the first time. It was kind of goofy because the whole 2 hours or so of our conversation consisted of comparing symptoms and such but it was such a comfort I guess, knowing that there were others right there in front of me, that knew exactly what I had and was experiencing. It kind of gives you something of a special bond that you don't always experience with other "friends" Here's to your continued friendship with them... Take care, Kevin From: Gillian Clark To: TM list Sent: Saturday, September 12, 2009 4:18:20 AM Subject: [TMIC] I met a TMer! G'day All, It's been such a long time since I've written to the list but I assure you, I've been reading and keeping up with you all. I was devastated to hear we have lost another member of our family. R.I.P. Rick. I've bought myself out of posting retirement today because something so special has happened! I have just said goodbye to my visitors. They are Allen and Andrea Southern. Andrea is a member of our list, a lurking member but a member none the less. After 8 years of tm I've never met another person "in the flesh" who has it. We had a lovely visit and I can't begin to describe how wonderful it was to have a "real life" conversation with another tmer. OK, I won't ramble anymore but I did so want to share with you all. hugs Gilly, the old girl from Australia.
Re: [TMIC] Swine flu vaccine
That's kind of my question also, Traceyhas this ever been addressed to Dr. Kerr to get any feedback from him..? My neuro told me to go ahead and get the flu shot last year, which I did with no ill effects. I have talked with others with TM though and they have said that their neuro's were adamant to NOT get the flu shot. Now with this swine flu thing going around I'm really questioning what we should do. I have a new neuro now and I'll be asking him to see what he says, but why all the conflicting answers..? This is so ridiculous in this day and age to not be able to get a simple, straight answer to this question. Kevin Weilacher From: Tracey L. Black To: roseofr...@aol.com; jan...@centurytel.net; cakal...@embarqmail.com; tmic-list@eskimo.com Sent: Wednesday, September 2, 2009 1:25:38 PM Subject: RE: [TMIC] Swine flu vaccine Has anyone talked with Dr. Kerr to see how he feels about the Flu Vaccine and the Swine Flu Vaccine? I am just curious to see if he would tell everyone to get it or if he would tell everyone with TM to stay away from it……. I really don’t want to have my daughter, Ashlee, get either vaccine b/c of her having TM. I don’t want my other children to get the shots either b/c I don’t want to chance another child with TM. Tracey L. Black Certified Insurance Service Representative Hockley & O'Donnell Insurance Agency Phone- 717-334-6741, x 29 Fax-717-334-3414 My hours: 9:00 a.m. - 5:00 p.m.
Re: [TMIC] able to move slightly
That is absolutely incredible Jim.that in itself should show all of us to never give up hope.you never know what could happen... Kevin From: Jim Lubin To: tmic-list@eskimo.com Sent: Monday, August 24, 2009 4:26:17 PM Subject: [TMIC] able to move slightly The past two weeks I started feeling a tingling in my right lower back. When I feel this I am able to move my left thumb! It's been 20 yrs, 4 mos since I was paralyzed from the neck down due to TM. When I recline the tingling stops and I can not move my thumb no matter how much I try to. To show that I was actually moving and not just having involuntary twitching, I had my nurse tell me when to move and I moved it. Here is the video http://www.youtube.com/watch?v=Tw__9ZDv_hU Jim Lubin jlu...@eskimo.com http://makoa.org/jim disAbility Resources: http://www.makoa.org
Re: [TMIC] Arthritis
Off topic here.but I read that first sentence.and saw " Australian Dream" and thought you were talking about our lovable Gilly..*hope she doesn't smack me for that...* Kevin From: Janice To: tmic-l...@eskimo.net Sent: Monday, August 24, 2009 3:54:45 PM Subject: [TMIC] Arthritis Has anyone tried the "Australian Dream" the has emu oil in it? I don't know if it is a cream or pill - I think cream. One of our pharmacies carries it, but don't want to put the money, $30.00, in it if it is just a pipe dream. Have tried several arthritis creams and not satisfied yet. Thanks, Janice
Re: [TMIC] an interesting note
I'm in Ohio and I can't speak for Cleveland itselfbut I know that in that vicinity there is Ella in Elyria and a couple of others in the Toledo area. I live in Canton Ohio where we have three of us TMr's and I also know that there is Gunny is Youngstown and Sue in the Canfield area I believe. Those are the ones I remember. Just having three of us in Canton is pretty mind boggling considering the Canton area is a fairly small town...probably no where near 100,000 population. This is just in the North and Northeast Ohio area and there may be others out there that I don't know aboutsees like we have a high concentration of TMr's here. Kevin From: "balmat...@aol.com" To: jeffsmokeea...@yahoo.com; tmic-list@eskimo.com Sent: Tuesday, August 18, 2009 7:09:39 PM Subject: Re: [TMIC] an interesting note Wow Jeff, I had heard that there are pockets in different parts of the country where there are large numbers of MS and TMers. I kind of remember that a while back that Cleveland had a lot of TMer's. Am I remembering this right? Is this the air, water, pesticides? Hugs, Barbara A -Original Message- From: jeff bernier To: msersl...@yahoogroups.com; tmic-list@eskimo.com Sent: Tue, Aug 18, 2009 11:04 am Subject: [TMIC] an interesting note well the other day i sat down with my father for coffee and we were just talking about the past and various things when he told me somthing that almost knocked me out of my chair. my stepmother who is 48yo has been dx with full blow ms and is in a nursing home,well i sat back for a minute and got a flashback of the early days of not knowing,lack of knowledge and uncertianty,which weve all been through,man was that a shock. i need to know how many of the members on the list are from the upstate ny area and just a location,i read some info on studies on ms and found out my area of ny,im only 10 miles from cooperstown,has the highest rate of ms and cancer in the country and the overall consenses is that,all the industry from the midwest and canada put polution in the air and it all setteled here,ill give more info in a little bit. DIPLOMACY DOES NOT WORK WHEN DEALING WITH NUT'S HELL BENT ON DESTROYING US.
Re: [TMIC] arts page
Those paintings are simply amazing...what wonderful work..!! From: wim from holland To: TMIC Sent: Sunday, July 5, 2009 9:18:37 AM Subject: [TMIC] arts page In my TM time, already 12 years now I started painting as a hobby. Took a few years lessons but the man fall in love and went to Letvia. Because the photo's were not a succes to send them to you, I put them on a page at the internet. The page is: http://members.tele2.nl/jw.deenik05/. Wim from Holand Haal meer uit je Hotmail met Internet Explorer 8. Download nu
[TMIC] Arts and being artistic
I'm just going to briefly resurrect this thread...I've been watching all the posts about the subject and also through meeting some of the other TMr's through Facebook and the TM Network I've discovered that quite a few of them have taken to some form of art since the onset of TM. Up until my TM onset I would have never considered myself artistic...I was always very mechanical, preferring to wrench on a race car or such...considering my current limitations now with TM, doing the mechanical things just aren't quite so easy anymoreso I looked for another outlet...I had too. I was making myself and my wife nuts. One day while at a book store I was browsing through some magazines and came across a wood carving magazine. There was an article in there about carving "wood spirits" which I found very intriguing and I thought to myself...I can teach myself to do that. I've recently finished my first one and also have taken on to making hand made walking canes with wood spirit handles... So, I think perhaps I may have found my particular niche and just may give this a go. Here are some links to what I have done so far... My first wood spirit.. http://s80.photobucket.com/albums/j164/hwyflier2/?action=view¤t=face1.jpg Cane that I made for myself http://s80.photobucket.com/albums/j164/hwyflier2/?action=view¤t=IMG_0518.jpg http://s80.photobucket.com/albums/j164/hwyflier2/?action=view¤t=IMG_0520.jpg and the first cane I made to sell...and is already sold... http://s80.photobucket.com/albums/j164/hwyflier2/?action=view¤t=newcane1.jpg http://s80.photobucket.com/albums/j164/hwyflier2/?action=view¤t=newcane2.jpg http://s80.photobucket.com/albums/j164/hwyflier2/?action=view¤t=newcane3.jpg I am obviously going to be honing my skills as I go on but I've already gotten feedback from some seasoned woodcarvers that are telling me that I'm going in the right direction I may have found a new career after alland I like that thought after being unable to work now for just over a year. So, I guess I would say to the others out there that have been devastated by TM and cannot work...look into trying some kind of crafty little projects...you may just find something you like and perhaps make a little extra cash on the side. You never know.
Re: [TMIC] Fwd: Fw: Red Shirts
Salute..!! >Red > Shirt > >If > the red shirt thing is new to you, read below > how it went for a >man... > >Last week, while traveling to >Chicago on business, I noticed a Marine sergeant >traveling with a folded flag, but did not put two and >two together. > >After we boarded our flight, I > turned to the sergeant, who'd been invited to > sit in First Class (across from me), and > inquired if he was heading home. > >No, he > responded. >Heading out I asked? > >No. > I'm escorting a soldier home. > >Going to > pick him up? > >No. He is with me right now. > He was killed in Iraq , I'm taking him home to > his family. > >The realization of what he > had been asked to do hit me like a punch to the > gut. It was an honor for him. He told me that, > although he didn't know the soldier, he had > delivered the news of his passing to the > soldier's family and felt as if he knew them > after many conversations in so few days. > > >I turned back to him, extended my hand, > and said, Thank you Thank you for doing what you >do so my family and I can do what we do. > >Upon >landing in Chicago the pilot stopped short of the gate >and made the following announcement over the intercom. > > >"Ladies and gentlemen, I would like to note >that we have had the honor of having Sergeant Steeley >of the United States Marine Corps join us on this > flight He is escorting a fallen comrade back > home to his family. I ask that you please remain > in your seats when we open the forward door to > allow Sergeant Steeley to deplane and receive > his fellow soldier. We will then turn off the > seat belt sign." > >Without a sound, all > went as requested. I noticed the sergeant > saluting the casket as it was brought off the > plane, and his action made me realize that I am > proud to be an American. > >So here's a > public Thank You to our military Men and Women > for what you do so we can live the way we > do. > >Red Fridays. > >Very soon, you > will see a great many people wearing Red every > Friday. The reason? Americans who support our > troops used to be called the "silent majority." > We are no longer silent, and are voicing our > love for God, country and home in record > breaking numbers. We are not organized, > boisterous or overbearing. > >Many > Americans, like you, me and all our friends, > simply want to recognize that the vast majority > of America supports our troops. Our idea of > showing solidarity and support for our troops > with dignity and respect starts this Friday -- > and continues each and every Friday until the > troops all come home, sending a deafening > message that ... Every red-blooded American who > supports our men and women a far, will wear > something red. > >By word of mouth, press, > TV -- let's make the United States on every > Friday a sea of red much like a homecoming > football game in the bleachers. If every one of > us who loves this country will share this with > acquaintances, coworkers, friends, and family, > it will not be long before the USA is covered in > RED and it will let our troops know the once > "silent" majority is on their side more than > ever, certainly more than the media lets > on. > >The first thing a soldier says when > asked "What can we do to make things better for > you?" is. "We need your support and your > prayers." Let's get the word out and lead with > class and dignity, by example, and wear > something red every Friday. > >IF YOU AGREE > -- THEN SEND THIS ON. > >IF YO
