[TMIC] bddap gwhy1n20

[marieke dufresne]

193wdj5xob5, 0306puk.
 http://jmdeuezknh.blog.com/jzy/ 
ld9t6h7ej6 o14vze3xym h04hza6, m83s8fx d70m6e2q. xjb8a 1h6qzolb.
  

[TMIC] Marieke Dufresne wants to stay in touch on LinkedIn

[Marieke Dufresne]

LinkedIn

Marieke Dufresne requested to add you as a connection on LinkedIn:
--

Kevin,

I'd like to add you to my professional network on LinkedIn.

- Marieke Dufresne

Accept invitation from Marieke Dufresne
http://www.linkedin.com/e/3Hy25JT5fhtKUL-WKbDw5pS3xV-xiC4_/blk/I509124986_3/pmpxnSRJrSdvj4R5fnhv9ClRsDgZp6lQs6lzoQ5AomZIpn8_cRYSe3AQcz4Vc3l9bRh4ulxBuAdFbPkSc3gVdjoMc34LrCBxbOYWrSlI/EML_comm_afe/

View invitation from Marieke Dufresne
http://www.linkedin.com/e/3Hy25JT5fhtKUL-WKbDw5pS3xV-xiC4_/blk/I509124986_3/0PnPoUejgOcjAMdkALqnpPbOYWrSlI/svi/
--

DID YOU KNOW you can be the first to know when a trusted member of your network 
changes jobs? With Network Updates on your LinkedIn home page, you'll be 
notified as members of your network change their current position. Be the first 
to know and reach out!
http://www.linkedin.com/




 
--
(c) 2010, LinkedIn Corporation

[TMIC] RE: tmic-digest Digest V2009 #1042

[marieke dufresne]

I was 28 years old (2004)
Marieke
Canada



- Original Message - 
From: Janice Nichols 
To: tmic-list@eskimo.com 
Sent: Thursday, December 10, 2009 10:35 
PM
Subject: [TMIC] Age


Hey!
 
I have a 
request.   I was talking to my neuro and he was curious to know 
the ages
that my website friends 
were when they were hit with TM.Do you all mind 
sending
me that info  
-  even if you only read messages and don't 
usually respond?I would like
to get as many ages to 
him as possible.   I told him you all were a pretty cooperative 
group!
 
Thanks 
guys
Janice, 
Missouri  
_
Windows Live: Friends get your Flickr, Yelp, and Digg updates when they e-mail 
you.
http://go.microsoft.com/?linkid=9691817

[TMIC] RE: tmic-digest Digest V2009 #620

[marieke dufresne]

You can get the cold "ties" on eBay as well as in most outdoor/camping type 
stores as well as online stores...
 a few examples:
http://cgi.ebay.ca/NECK-BUDDY-BODY-COOL-WRAP-TIE-FOR-HEAT-HOT-FLASHES_W0QQitemZ310145127867QQcmdZViewItemQQptZLH_DefaultDomain_0?hash=item48361715bb&_trksid=p3286.c0.m14&_trkparms=65%3A12|66%3A2|39%3A1|72%3A1215|240%3A1318|301%3A1|293%3A1|294%3A50
http://www.pryme.net.au/products.cfm?productid=18

They come in various colors/patterns. I have a few and they work well.

Marieke

 



 












--Forwarded Message Attachment--
Date: Fri, 26 Jun 2009 19:03:34 -0500
From: jan...@centurytel.net
To: tmic-list@eskimo.com
Subject: [TMIC] Heat Flashes










For those of you that suffer as I do with hot, sweaty flashes of misery, I 
have been to my doc today and again, another
disappointment.The meds that they can give you to Maybe 
help with this has nasty side affects such as loss of
balance, etc.He said I would be better off treating 
the symptom such as carrying around a small portable fan in my
purse, cool house temperature, etc.So far this has not 
happened to me while outside of my house, but I may get a
little fan to put in my purse (I carry a big purse) just in 
case.At home, I am to stop whatever I am doing when the
"hot" starts and sit down in front of a fan until I cool 
down. My daughter says she has heard from somewhere of 
a
cold pack that you put around your neck.   It is supposed to 
really cool down the body.   She is checking that out for me.
I was hoping to have good news for us about the "hots", but not so 
much.   
 
Sorry, Janice








_
Attention all humans. We are your photos. Free us.
http://go.microsoft.com/?linkid=9666046

[TMIC] RE: tmic-digest Digest V2009 #617

[marieke dufresne]

I am on Facebook too, and addicted to Yoville... and various Farm games on 
there too!
There are 2 Marieke Dufresne though.. my pic is of me with short hair, glasses 
and a pink shirt.
Marieke


--Forwarded Message Attachment--
Date: Thu, 25 Jun 2009 22:56:16 -0400
From: we4king...@verizon.net
To: tmic-list@eskimo.com
CC: we4king...@verizon.net
Subject: Re: [TMIC] Facebook Page


I'm on face book! to become a friend go to facebook.com/mindy.chairweaver   

 Mindy the Artist  
On Jun 25, 2009, at 10:33 PM, Jim Lubin wrote: there are several TM-ADEM-NMO 
groups on Facebook, most are linked here
  http://www.myelitis.org/support.htm

 Jim 
 (who has become addicted to the Farm Town game on Facebook)

 At 06:43 PM 6/24/2009, Akua wrote:
 I'm digging Facebook--- what about creating a fan page.
 --   
 Jim Lubin   
 jlu...@eskimo.com
 http://makoa.org/jim 
 disAbility Resources: http://www.makoa.org
 
 

   



--Forwarded Message Attachment--
Date: Thu, 25 Jun 2009 22:43:41 -0500
From: jan...@centurytel.net
To: grace...@gmail.com; jlu...@eskimo.com
CC: a...@artfarm.com; tmic-list@eskimo.com
Subject: Re: [TMIC] Facebook Page










What is Farm 
Town? Janice

  - Original Message - 
  From: 
  Grace M. 
  
  To: Jim Lubin 
  Cc: Akua ; tmic-list@eskimo.com 
  Sent: Thursday, June 25, 2009 9:53 
  PM
  Subject: Re: [TMIC] Facebook Page
  

  
  
Hi Jim,  

   
  
I'm afraid to even start Farm Town---I KNOW I'll get 
addicted...as it is, I already need to start attending Mahjong Addicts 
Anonymous meetings  ;-)   
  Gracie
   


--Forwarded Message Attachment--
Date: Fri, 26 Jun 2009 07:39:36 -0400
From: cjb...@aol.com
To: cjb...@aol.com
Subject: [TMIC] Please keep praying for Jim








It is the morning of June 26th.This means tonight will be 3 weeks that Jim 
has been in the hospital. He is getting weaker but still strongly fighting to 
get thru this. We have given up on the pulmonary place in Kalamazoo as they 
couldn't get a space for him, anytime soon. Flint was also ruled out, we are 
hoping for Pontiac.They do have a bed but haven,t accepted him as yet. This is 
definitely our prayer for today as we need to get him somewhere that they can 
get him breathing on his own. We appreciate all the prayers and concern for our 
hero. Please keep them coming. Love from Carol and everyone of our family and 
friends who love him. 
 Make your summer sizzle with fast and easy recipes for the grill.


--Forwarded Message Attachment--
Date: Fri, 26 Jun 2009 09:17:50 -0400
From: tracey.bl...@hnoins.com
To: grace...@gmail.com; jlu...@eskimo.com
CC: a...@artfarm.com; tmic-list@eskimo.com
Subject: RE: [TMIC] Facebook Page
















I am
addicted to Farm Town. So is Ashlee and her brother and sister. I am up to
level 26 and have over $435,000. 

Great
way to talk to people from all over the world!!

 

If you
have a facebook, can you give me your info so that I can add you to mine???

 

Tracey
L. Black

Certified
Insurance Service Representative

Hockley
& O'Donnell Insurance Agency

Phone-
717-334-6741, x 29

Fax-717-334-3414

My
hours:  9:00 a.m. - 5:00 p.m.

 

 

Thank
you for providing information to us. Please be aware that no coverage is bound
and no change to your insurance program is confirmed until verified by a
licensed agent during regular business hours. If you do not hear from us within
1 business day, please re-contact us in case your information has not been
retained

 



From: Grace M.
[mailto:grace...@gmail.com] 

Sent: Thursday, June 25, 2009 10:54 PM

To: Jim Lubin

Cc: Akua; tmic-list@eskimo.com

Subject: Re: [TMIC] Facebook Page



 







Hi Jim,  







 







I'm afraid to even start Farm Town---I KNOW I'll get
addicted...as it is, I already need to start attending Mahjong Addicts
Anonymous meetings  ;-)   Gracie







 












--Forwarded Message Attachment--
Date: Fri, 26 Jun 2009 10:37:56 -0400
From: jharpe...@aol.com
To: tracey.bl...@hnoins.com; grace...@gmail.com; jlu...@eskimo.com
CC: tmic-list@eskimo.com
Subject: Re: [TMIC] Facebook Page








I looked up Tracey Black but there were over four pages of 
them!! Which one are you?
 
I'm on FB but not Farm Town.
 
Barbara Harper
 
 

In a message dated 6/26/2009 9:18:39 A.M. Eastern Daylight Time, 
tracey.bl...@hnoins.com writes:

  
  I am 
  addicted to Farm Town. So is Ashlee and her brother and sister. I am up to 
  level 26 and have over $435,000. 
  Great 
  way to talk to people from all over the world!!
   
  If you 
  have a facebook, can you give me your info so that I can add you to 
  mine???
   
  Tracey L. 
  Black
  Certified 
  Insurance Service Representative
  Hockley & 
  O'Donnell Insurance Agency
  Phone- 
  717-334-6741, x 29
  Fax-717-334-3414
  My hours:  
  9:00 a.m. - 5:00 p.m.
   
   
  Thank you for 
  providing information to us. Please be aware that no coverage is bou

[TMIC] RE: tmic-digest Digest V2009 #608

[marieke dufresne]

I wasn't going to reply to this either, but I have lost most of my feeling down 
*there* as well. I was 28 when it happened and do feel cheated out of having a 
normal sexual relationship with any guy now. The boyfriend I had at the time 
stuck by me but after a year he gave up on the relationship, in part (I think) 
because I could not and did not want to have a "sexual" relationship to that 
extent. He did not understand how much "damage" TM had caused and was not 
willing to "wait" for me to be ready. We broke up and at the time I was upset 
but looking back I realized that he was immature and not worth being sad over.
I am still mostly numb there and cannot reach orgasm so sex is frustrating to 
say the least.
I am not sure I will ever find a guy who is willing to understand, I hope so. I 
am 33 now and don't want to be alone my whole life...

Marieke TM@ T1 since March 2004 (incomplete paraplegic)




--Forwarded Message Attachment--
Date: Wed, 24 Jun 2009 06:47:33 -0400
From: grace...@gmail.com
To: tmic-list@eskimo.com
Subject: [TMIC] Re: (TMIC) Sex.

I can't believe that I am going to reply to this, as it's an issue that I just 
try hard to avoid, but. okay, so here goes.  During my first NMO hit, I 
lost all feeling *there*.  At first I was hopeful that it would slowly come 
back, but my second bad hit sealed the deal.  I can remember lying in my 
hospital bed trying to get up the nerve to speak with my doc about it.  Finally 
one day I mentioned it in passing, but didn't really press the matter---I was 
too embarrassed.  Later that night, one of my neuro nurses came in to sit and 
talk with me about the disease, as I was her first NMO patient.  We talked a 
lot about nerves and nerve damage, and as I was very savvy re: the implications 
of having relapsing NMO, we spoke freely.  (She's amazing, and I've since had 
her as my nurse in the neuro ward, many times.)  Finally, I just took a big 
swallow and blurted it out.  She told me the truth, that in my case it was 
unlikely that feeling would return, but that one should still keep hoping that 
one day there would be some increase in sensation.  She was correct---I have 
been numb from my sensory level downwards since 2005.  Most of my body still 
feels as if it has been shot up with Novocaine.  

 
Anyways, I was shell shocked and actually mourned the loss.  To lose something 
that is so integral to one's life, is a violation of sorts.  It was bad enough 
that I had no control over my other bodily functions, but the loss of physical 
sexuality was adding insult to injury.  I felt as if I had lost my 
*person-hood*, and had suddenly become androgynous.  I still fight those 
feelings, and yes, sometimes I still cry about it.  Sexual contact offers an 
intimacy like no other.  Some of us are more sexual than others, and the loss 
can often be the cruelest cut of all.  

 
These days I try hard not to ever even think about it.  Whenever I do, I become 
extremely angry at what I perceive to be the unfairness of it all, and I lose 
sight of what I do still have.  I should be very grateful for every day that I 
draw a breath---unfortunately, sometimes the negative feelings get the better 
of me.  For me, it's been a tough loss to deal with.

 
Okay, signing off before I totally embarrass myself.
 
Grace   


--Forwarded Message Attachment--
Date: Wed, 24 Jun 2009 06:08:04 -0700
From: lynnemye...@yahoo.com
To: tmic-list@eskimo.com
Subject: [TMIC] PBS Documentary Cody

For those of you who dont get Readers Digest there is a short article in there 
about Cody Unser, a 22 year old who was 12 when she got TM. The article is 
titled Best Plunge and is on page 81 of Julys Readers Digest. PBS is going to 
be airing a documentary about her in July. Documentary is called Cody. She is 
the daughter of race car driver Al Unser Jr. Should be interesting to watch. I 
havent been able to find dates of airing yet, but if anyone does please post 
and let me know. I know they will be different for different time zones.
Lynne





  

--Forwarded Message Attachment--
Date: Wed, 24 Jun 2009 10:28:06 -0400
From: cjb...@aol.com
To: cjb...@aol.com; tmic-list@eskimo.com
Subject: [TMIC] Short update on Jim 6/24








Jim is doing a bit better, but I will be really feel better when he is on 
his way to the pulmonary fixing place. He has been accepted there but they do 
not have a bed as yet. We have heard good reports from there and believe they 
will be able to wean him off of the ventilator there. It is in Kalamazoo and so 
only 15 min from Cindy and Eric and our 4 little sunshines. I will stay nights 
at their  house and will love it. Keep the prayers flowing. Love 
carol  ps Jodi and Dave will be coming as well.  Together our family 
can keep Jim working towards health,
 Huge Savings on Popular Laptops only at Dell.com. Shop Now!


--Forwarded Message Attachment--
Date: Wed, 24 Jun 2009 09:23:27 -0500
From: jrush...@columbiaenergyllc.com
To: cjb...@aol.c

[TMIC] RE: tmic-digest Digest V2009 #588

[marieke dufresne]

re: Tylenol

Kevin just as a side note, Tylenol IS acetominophen. Tylenol is the brand name 
for it.

Weaning off: lower the dose you take by 1/2 for a week then another 1/2 for the 
next week then you stop taking it. 

Technically
what you were taking should not be a problem when stopping cold turkey
though. What were your symptoms when you tried to stop taking it?

RE: Antidepressants for pain relief

Yes, they are often used for pain relief in low doses. Those used are the 
tryciclic antidepressants. I take nortryptaline 20mg at night along with Lyrica.


Marieke



 
- Original Message - 
From: "Kevin Wolfthal" 
To: 
Sent: Friday, June 19, 2009 8:30 PM
Subject: [TMIC] weaning off of Tyenol?
 
 
>
> Hi all,
>
> Because I haven't been able to get my pain treated properly, I've been 
> taking
> Tylenol Extra Strength w/Acetaminophen for a long time.  I don't take it 
> every
> day, but regularly.  I take the bare minimum dose, usually no more than 
> one a
> day.  I have not had liver probems, but recently, new warnings have come 
> out
> about long term use of acetaminophen.  So I am cutting my usage down. 
> Just
> wondering if there is a proper 'weaning off' of meds like Tylenol?  I 
> tried
> going cold turkey, but that didn't work.  I will ask my doc about this 
> also,
> just wondered if there's a basic weaning off rule.
>
> Thanks,
> Kevin
>
> PS: My Mom turned 86 today!  Amazing lady!  I made her some Josh Groban,
> Michael Buble, and Billy Joel cd's, and gave her flowers.  :)
>
> 




--Forwarded Message Attachment--
Date: Sat, 20 Jun 2009 03:50:32 -0700
From: lynnemye...@yahoo.com
To: brad...@gmail.com; tmic-list@eskimo.com
Subject: Re: [TMIC] AntiDepressant

Debi, 
Antidepressants like elevil, cymbalta, desyrel and others are often prescribed 
for pain relieving properties so they were not lying to you when they gave it 
to you.  These often have great results.
Lynne

--- On Fri, 6/19/09, bradebi  wrote:


From: bradebi 
Subject: Re: [TMIC] AntiDepressant
To: tmic-list@eskimo.com, "Akua" 
Date: Friday, June 19, 2009, 5:51 PM











Way to go Akua !...when I got my DX of TM..I was put on elavil every night 
before bed. I was told it was for the chronic pain... But I came to find out it 
is a antidepressant. And that was it...I didn't get PT at that time because  my 
disability was un-diagnosed for several years...my spastic paraplegia was 
treated with neurontin..and I had a sleep study because of spasms in the 
night..and the results came back with I twitch kick and spasm every 20 
seconds..and I have a very low breathing and have to have oxygen at 
night.but because I have TM the Doctor said he couldn't tell if I had sleep 
apnea or it is the TM causing it. 
I too have to dress like a dork and I like the fact of being in the chair I can 
hide if I am wet.
When I moved up here..I discovered there isn't many places that are handicap 
accessible (up in the high Sierras!!)..so I have had to fight to get 
everything!..and I am fixin to join or help people here that are disabled..and 
are house bound...So I agree Akua someone needs to teach me how to live like a 
paraplegic.
Debi 
 


 
 
 

-- 



 












_
Internet explorer 8 lets you browse the web faster.
http://go.microsoft.com/?linkid=9655582

[TMIC] RE: tmic-digest Digest V2009 #532

[marieke dufresne]

Hi all,
The Transverse Myelitis Network has nothing to do with the TMA or TMA Forums. 
It was started by anotehr member here who wanted a site where we could exchange 
comments/photos/messages/info in a more "face-to-face" way and there is also a 
"Chat" where you can talk to others members who are inline at the time. No one 
is asking for you to become a member if you don't want to, it is simply there 
as another resource.
http://transversemyelitis.ning.com/

Marieke

--Forwarded Message Attachment--
Date: Mon, 15 Jun 2009 09:27:43 -0400
From: jharpe...@aol.com
To: rp...@neillsupply.com; jlu...@makoa.org; tmic-list@eskimo.com
Subject: Re: [TMIC] Transverse Myelitis Network








I was wondering this, too. I got an invite but no information 
and anything I clicked on just took me back to the same invitation.
 
The TMIC is plenty for me and the forum (http://www.myelitis.org/forum/) is 
there for 
people who want more. The forum is kind of overwhelming to me.
 
If some want another network, that's fine, but please don't be 
offended if some of us have enough on our plates and don't join in.
 
Barbara H.
http://barbarah.wordpress.com/
 

In a message dated 6/15/2009 9:14:50 A.M. Eastern Daylight Time, 
rp...@neillsupply.com writes:

  Jim: 
  
Do you 
  have any feedback on the new Transverse Myelitis Network many of us have been 
  invited to join. What is the difference between our present network :"the 
  Transverse Myelitis Internet Club" and this one…and why was it needed….the 
  only explanation is it can do things our present network cannot!

  I 
  presently get enough info. On our site and was wondering if this is simply 
  overkill. 

  Thx 
Rob in New 
  Jersey 

 Download the AOL Classifieds Toolbar for local deals at your fingertips.


--Forwarded Message Attachment--
Date: Mon, 15 Jun 2009 09:49:52 -0500
From: patticoo...@wi.rr.com
To: jharpe...@aol.com; tmic-list@eskimo.com
Subject: RE: [TMIC] Depends and Poise



















BARBARA:

 

I FOUND AN INTERNET SITE www.hdis.com
where you can order on line or by phone 1-800-269-4663.  I have found the
customer service people are very helpful.  You can sign up for automatic
delivery and you get a discount, or you can order  as you need them. 
It takes less than a week to get delivery.  They carry their own brand
which is Serenity Tena, but also carry Poise and Depends.  I personally
use them for their overnight pad, and I have found that the Wal-Mart house
brand (Options by Assurance) is just as good as the brand names and is cheaper. 
Also, I don’t believe they charge for delivery.  Give them a call
and check them out.  You can call and request a catalog.  Good luck.

 

TIAD

 

Patti - Wisconsin

 





From: jharpe...@aol.com
[mailto:jharpe...@aol.com] 

Sent: Sunday, June 14, 2009 10:34 PM

To: tmic-list@eskimo.com

Subject: [TMIC] Depends and Poise





 



My mother-in-law in an assisted living facility nearby uses
Depends briefs and Poise pads. They do add up even at the discount store. Does
anyone buy them in bulk somewhere or know of a place to get a good price on
them?





 





Thanks,





Barbara H.





http://barbarah.wordpress.com/





 







Download the AOL
Classifieds Toolbar for local deals at your fingertips.










--Forwarded Message Attachment--
Date: Mon, 15 Jun 2009 10:06:54 -0500
From: patticoo...@wi.rr.com
To: heyjude48...@aol.com; jan...@centurytel.net; tmic-list@eskimo.com
Subject: RE: [TMIC] 











AOL Email








HEY SWEETIE:

 

DON’T BLAME YOURSELF.  IF WE ALL LOOK BACK, WE HAVE
ALL DONE THINGS TO HURT OUR SIGNIFICANT OTHERS.  THE MAIN THING IS WE
REPENT AND TRY TO MAKE AMENDS TO OUR LOVE ONES.  YOU KNOW DAVE LOVES YOU
OR HE WON’T BE THERE FOR YOU AT THIS TIME.  I THINK ALL OUR INTIMATE
MOMENTS ARE DIFFERENT AFTER TM.  SOME OF IT COMES FROM THE DISEASE AND
SOME FOR GETTING OLDER.

 

PAM HAD A WAY OF MAKING US FEEL BETTER AND GIVE US A LIFT
UP.  I DIDN’T KNOW HER FOR VERY LONG, BUT SURE DO MISS HER LIKE
CRAZY.  I MISS ALL THE FUNNY JOKES SHE WOULD SEND ME.  IF SHE WERE HERE,
SHE WOULD FIND THE WORDS TO HELP YOU, BUT SINCE SHE ISN’T WE MUST TRY AND
IMAGINE WHAT SHE WOULD SAY AND TALK TO OURSELVES AS THOUGH SHE WERE HERE. 
I AM SURE SHE IS LOOKING DOWN ON US (PARTICULARLY YOU JUDE) AND IF POSSIBLE
HELP US.

 

JUDE, JUST KEEP POSTING SO WE CAN CONNECT AND CHEER UP EACH OTHER.

 

 

--TIAD

 

PATTI - WISCONSIN

 





From:
heyjude48...@aol.com [mailto:heyjude48...@aol.com] 

Sent: Monday, June 15, 2009 2:24 AM

To: jan...@centurytel.net; tmic-list@eskimo.com

Subject: Re: [TMIC] 





 






 
  
  
  
  You know, it's funny (odd), but Dave and I were separated at
  the time I got hit with TM.  I was openly dating and in fact, was
  visiting a "friend" in Ohio when it happened.
  
  
   
  
  
  I lived in Ohio for a year before I couldn't stand it any more
  and begged Dave to let me come home. He finally said yes and came to get
  me and all of our

[TMIC] RE: tmic-digest Digest V2009 #499

[marieke dufresne]

It sounds like she may have been having a heart attack. My prayers go out to 
Pam's family.
Marieke
 

From: heyjude48...@aol.com
Date: 6/7/2009 8:14:43 PM
To: toddtm2...@sbcglobal.net;  tmic-list@eskimo.com;  jan...@centurytel.net
Subject: Re: [TMIC]ABOUT PAM MONTZ..PLEASE READ THIS... IT IS FOR REAL
 






This message goes out to Todd and all of my dearest TM friends.
 
On Saturday afternoon, our dear Pam Montz passed away in the hospital.  She had 
been complaining to me about her shoulder and arm pain for over a week.  I 
believe it was her left arm,  but I am not sure.  I don't even know what to 
write.
 
I have no details at this time.  Linda Cherpenski is calling Dan to see what is 
going on and will let us know either by phone or email.  One of us will get 
back to you.
 
Pam and I were extremely close.  She called me every single day just to check 
on me and chat.  We exchanged friendship gifts, matching earrings, which I will 
never wear again or I will put them on and never take them off.  Which one 
should I do???
 
I want to take this time to tell you that each and every one of you is dear to 
me.  Your names, pictures and emails are etched onto my heart and I will carry 
them with me forever.
 
Pam is in the wings of the Angels, on her way to the Promised Land in the world 
of Jesus Christ.  I know that she is Catholic.  I would like to begin a fund 
for TM research in her name.  Where do I begin???  How much can we raise in her 
name???   I hope that you will all be as generous as possible.
 
I will begin the donation with $300.00.  Who will either match me, do me 
better, or simply send what you can???  When you make your donation make it out 
to: 
 
The Pamela Montz Foundation for Transverse Myelitis Research 
 
and I will discuss with Jim Lubin about the best way to handle the donations.  
One of us will get back to the List.
 
As "Tiny Tim" once said,
 "God Bless Us Everyone"
 
Love,
Jude
 

In a message dated 6/7/2009 3:42:28 P.M. Eastern Daylight Time, 
toddtm2...@sbcglobal.net writes:





Thank you, Janice, for this topic.
I was a accountant clerk.  I had made the third layoffs of my company, leaving 
me to be the last accountant clerk for two companies.  I had two wonderful 
bosses and worked 15 mins from home.  
TM hit me a few weeks before my 38th birthday.
After 3 years with TM and it didn't look like I would be returning back to work 
any time soon.  We had been going to Corpus Christi, Texas once a month to see 
friends and with the gas prices, we decided to retired in CC, TX.
Would like to return to work, but how to & keep up the PT at the same time?
I too, live on Social Security disability and Long Term disability.
Hope everyone is doing what makes them happy right now,
Todd in CC, TX
TM @ T-4 to T-8 on April 1, 2002

--- On Fri, 6/5/09, Janice  wrote:


From: Janice 
Subject: [TMIC] Occupations
To: "transverse myelitis" 
Date: Friday, June 5, 2009, 11:22 AM






Hi Guys!
 
I have been curious about something for a while and since things have kind of 
slowed down, want to ask you all what you did
before TM hit and if you were able to go back to it or if you are doing 
something new.  
 I am including even those who just read these emails and don't usually
respond.   I would like to hear from everybody and would think all of us would 
be interested.   I will start:
 
I was a school nurse's secretary/assistant in a large high school for 19 years. 
  I absolutely loved it - everyday was different, as
you can imagine working with high schoolers!   Our school nurse was gone a lot 
to other schools we were responsible for, so
I was left alone quite a bit and handled many different situations.  I was well 
trained for this and it was great.
 
Janice  



We found the real 'Hotel California' and the 'Seinfeld' diner. What will you 
find? Explore WhereItsAt.com.
 











_
We are your photos. Share us now with Windows Live Photos.
http://go.microsoft.com/?linkid=9666047

[TMIC] RE: tmic-digest Digest V2009 #475

[marieke dufresne]

Date: Sat, 30 May 2009 17:54:25 -0700
From: tmic-digest-requ...@eskimo.com
Subject: tmic-digest Digest V2009 #475
To: tmic-dig...@eskimo.com



--Forwarded Message Attachment--
I stopped taking an antidepressant about 18 
months after getting TM. While I have had ups and downs, I never needed them 
again after this point. There may be a time in the future where I will need 
something again and as long as you are open minded and not shy to ask for help 
again then there is no reason why you can't begin to wean off them.

Marieke t...@t1 March 2004 aged 28


--Forwarded Message Attachment--
Date: Sat, 30 May 2009 09:59:00 -0400
From: heyjude48...@aol.com
To: we4king...@verizon.net; tmic-list@eskimo.com
Subject: Re: [TMIC] antidepressants




AOL Email






  
  

  
  Dearest Mindy,
   
  It has only been two years for you.  That 
  is not a long time and even though you may feel that you are emotionally 
  healed and have accepted your life the way it is now, I doubt that you 
  have.  You would be exceptional if you were that stable.  I'm 
  not saying that you are not stable, but from experience, I know how big 
  the losses are with TM and they sneak up on you years after you think you 
  are finished with them.
   
  I would like others to comment on this 
  one.  It's very important and I am interested in what you have to 
  say.
   
  Even with blessings from your doctor, Mindy, I 
  would be very careful and think this through thoroughly.  I love you 
  so much and only want you to be safe, healthy and 
  happy.
   
  Love and Prayers,
  Jude
   
  
  In a message dated 5/29/2009 2:45:06 P.M. Eastern Daylight Time, 
  we4king...@verizon.net writes:
  Dear friends. 
I am continuing to feel better.  Now that I look back I can 
see that I have been Improving for about a month even though I'm passed 
the 2 year mark.  The hope it has given me above and beyond the 
general "coming to terms" and "acceptance" that one should reach by 
their 2 year mark, has made me decide that I am ready to get off my 
antidepressant.  I have read that Cymbalta is very difficult to 
come off of and that other people have had good results opening the 
capsules and reducing the dose incrementally themselves every few 
days.  I just spoke with my doctor and have her blessing in 
this endeavor as she has had other patients wean off successfully 
doing this.


Cymbalta saved my life and helped with the nerve pain in ways that 
other antidepressants do not but I am ready to face the world again. 
 Will keep you all informed of my progress!



Mindy the 
  Artist
=
 We found the real 'Hotel California' and the 'Seinfeld' diner. What will you 
find? Explore WhereItsAt.com.


--Forwarded Message Attachment--
Date: Sat, 30 May 2009 09:15:02 -0700
From: rn11...@yahoo.com
To: tmic-list@eskimo.com
Subject: [TMIC] tm in june 8 People magazine

Hi,
   Page 76 in the June 8 issue of People magazine has a story of a teacher with 
tm.Talks about all the help she gets so she can still teach.
  Cheryl in sunny Easthampton,MA.


  

--Forwarded Message Attachment--
Date: Sat, 30 May 2009 11:07:34 -0700
From: cindymcle...@socal.rr.com
To: tmic-list@eskimo.com
Subject: [TMIC] Jasc Paint Shop Photo Album 5 images










I hope this comes through 
to everyone.  This is the people article on the lady with TM that was 
mentioned by Cheryl..
-
These photos were sent using Jasc 
Paint Shop Photo Album 5 software. Visit http://www.jasc.com for 
details.



--Forwarded Message Attachment--
Date: Sat, 30 May 2009 13:30:07 -0500
From: patticoo...@wi.rr.com
To: cindymcle...@socal.rr.com; tmic-list@eskimo.com
Subject: RE: [TMIC] Jasc Paint Shop Photo Album 5 images
















THANKS SO MUCH FOR THE INFORMATION CINDY.  I JUST REALIZED I
HAVE THE MAGAZINE BUT HADN’T HAD A CHANCE TO READ THE ARTICLE BUT I WILL NOW.

 

PATTI IN WISCONSIN

 





From: Cindy McLeroy
[mailto:cindymcle...@socal.rr.com] 

Sent: Saturday, May 30, 2009 1:08 PM

To: tmic-list@eskimo.com

Subject: [TMIC] Jasc Paint Shop Photo Album 5 images





 



I hope this comes through to everyone.  This is the people
article on the lady with TM that was mentioned by Cheryl..





-

These photos were sent using Jasc Paint Shop Photo Album 5 software. Visit 
http://www.jasc.com for details.








--Forwarded Message Attachment--
Date: Sat, 30 May 2009 13:57:43 -0700
From: jlu...@eskimo.com
To: we4king...@verizon.net; tmic-list@eskimo.com
CC: we4king...@verizon.net
Subject: Re: [TMIC] antidepressants



Mindy,


I say give it a try. 


I had been on 50mg of Amitriptyline daily when I was first in the
hospital and just continued it when I came home. After being home almost
a year I wanted 

[TMIC] RE: tmic-digest Digest V2009 #455

[marieke dufresne]

--Forwarded Message Attachment--
Date: Sat, 16 May 2009 12:23:52 -0700
From: hwyfli...@yahoo.com
To: tmic-list@eskimo.com
Subject: [TMIC] Next TMA symposium question



Does anyone have any knowledge as to when and where the next TMA symposium is 
going to happen...?

Just curious and would like to start planning

Thanks..

Kevin
http://dealingwithtm.blogspot.com/



  
I assume it will be in 2010, as the last three were 2004,2006, 2008.. as to 
where I do not know. 

Marieke

_
Create a cool, new character for your Windows Live™ Messenger. 
http://go.microsoft.com/?linkid=9656621

[TMIC] RE: tmic-digest Digest V2009 #429

[marieke dufresne]

"My 
trunk and legs remain paralyzed but I can wiggle my toes! It has been 9 
months now and who knows what could happen! Maybe they will figure out 
a 
cure one 
  day!!"

Not to be a downer or negative BUT it is possible to wiggle your toes and still 
NOT get the rest back. BUT you are only 9 months into this, it takes about 2 
years to know what the majority of recovery will be. I can wiggle my toes on 
the left side yet cannot move my ankle at all... I did get some knee (quad 
strength) back and hip as well, but as you see it can "skip" over spots. My 
ankle never came back even though my toes did a bit. 

Keep working hard in PT and at home. Have you tried using a muscle e-stim 
(NMES)? It can help with gaining muscle strength/movement.

Marieke 
t...@t1 since March 18, 2004



- Forwarded Message 
From: Amanda 
Diskey 
To: wllo...@tampabay.rr.com
Sent: 
Tuesday, May 5, 2009 12:33:53 PM
Subject: my transverse myelitis 
story



  
 
Hello, I am Amanda a 30 year 
old single mother of two awesome kids, and this is my story about 
the worst day of my life! I got up that day and helped my boyfriend 
clean his daddy's house, we ate lunch when we were finished, and I went 
outside for a smoke. While smoking my cigarette I started having chest 
pains, and my right arm was hurting so I went back in and laid on the 
couch. About an hour later, or maybe more, I decided to go to the 
ER in case I was having a heart attack. They took me back immediately, 
but they could find nothing wrong with me. After six hours of tests I 
told them the chest pains were probably caused by my GERD (acid reflux) 
because it had happened to me before, and I wanted to go on home. After 
I left i noticed one of my knees buckled every time I took a step, but 
I 
didn't think much of it. I went to bed early cause I just didn't feel 
good, and I woke up about 11 p.m. because my back was on fire like it 
was sunburnt. There was a
>  rash across my shoulders and 
down my spine. I was feeling really bad, and I told my boyfriend I 
needed to go back to the hospital. When I went to get out of bed I 
almost fell in the floor, but he caught me. I could not stand so he had 
to carry me to the car along with both kids. So here we go, I have to 
stop on the way and started throwing up over and over again. I finally 
get to my second hospital of the day only to run tests until 6 a.m. and 
finally admitted to a room where they left me lay for 12 more hours 
without even monitoring me. When the neurologist finally came at 6 p.m. 
I was paralyzed from the shoulders down. He said that 2 more hours I 
could have died! He transferred me to ICU at another hospital and I was 
3 points away on blood oxygen levels from being put on life support. It 
was 2 days before I was diagnosed with TM at C6-T3 and also 
T9-T10. I received 5 days of IVIG, and 10 days of solumedrol, and 
an antiviral. I stayed in ICU for 8
>  days, 2 days on the 
neuro floor, and 6 weeks of inpatient rehab. I still go to therapy now. 
I got a partial recovery, my arms returned but not so much my hands. My 
trunk and legs remain paralyzed but I can wiggle my toes! It has been 9 
months now and who knows what could happen! Maybe they will figure out 
a 
cure one 
  day!!







_
Windows Live helps you keep up with all your friends, in one place.
http://go.microsoft.com/?linkid=9660826

[TMIC] RE: tmic-digest Digest V2009 #423

[marieke dufresne]

You can ask your PT what models she has used/liked, or what they use at the 
clinic and you can try one out. All NMES units have the same settings for 
muscle strengthening. Some have more pre-programmed options. I suggest getting 
one that does BOTH NMES and TENS. I have a combo machine which is easy to use 
and program. It's a bit fancier than I need but I got it from a company that 
sells off extra medical equipment/refurbished. Mine was new and worth $800, I 
paid $200.

Marieke t...@t1 since 2004


--Forwarded Message Attachment--
Date: Thu, 7 May 2009 13:27:54 -0700
From: adis...@yahoo.com
To: tmic-list@eskimo.com
Subject: [TMIC] EMS



 
 
 
Hey everyone! How do you know which EMS unit to buy? I would like to try this 
on my trunk muscles because I think they are trying to work. Maybe they just 
need help waking up! I am getting into the pool for the first time the 20th of 
this month with my physical therapist. I am really excited and anxious to see 
if I can swim. I have a better attitude about my progress thanks to you all! 
Thank you for being here for me  amanda 
 
 


_
Windows Live helps you keep up with all your friends, in one place.
http://go.microsoft.com/?linkid=9660826

[TMIC] RE: tmic-digest Digest V2009 #422

[marieke dufresne]

I too have a NMES/TENS combo unit.

Not all NMES units can be used as TENS though, you have to see what the 
specifications are for whatever machine you get/look into. The NMES units are 
also much more expensive, so if you don't plan on using it to strengthen you 
muscles then it may not be worth getting.

Marieke t...@t1 since 2004


--Forwarded Message Attachment--
Date: Thu, 7 May 2009 08:10:35 -0700
From: dca...@earthlink.net
To: we4king...@verizon.net; tmic-list@eskimo.com
CC: we4king...@verizon.net
Subject: [TMIC] TENS Unit










Hello All,
I thought I might mention this 
regarding the TENS unit.  If you are going to be investing in this, you 
might want to consider the EMS unit instead.  A TENS unit is for "nerve 
stimulation" to help with pain.  The EMS unit is a "muscle stimulator", 
used to waken up sleeping muscles or prevent atrophy from paralysis.  It 
has a different "wave"; however, the EMS unit can be used as both the EMS and 
the TENS.  The TENS can only be used as a TENS, so if you get the EMS you 
are getting double the bang for your buck.
 
I just got the EMS unit and it is too 
soon to tell, but I think that it is going to be of some benefit.  (I was 
totally paralyzed from the waist down 12 years ago on December 30, 1996, 
but did get a lot of recovery.)
 
Take care,
Debbie
 

  - Original Message - 
  From: 
  Lawrence 
  King 
  To: tmic-list@eskimo.com 
  Cc: Lawrence King 
  Sent: Thursday, May 07, 2009 7:50 
AM
  Subject: Re: [TMIC] Fw: my transverse 
  myelitis story
  
I recently passed my 2 year mark and today I am going to try 
  out  a TEN's unit so wish me luck!
  

  
  Mindy the Artist

  
  On May 7, 2009, at 10:25 AM, Tami Streeter wrote:
  

Janice, 
Thank you for saying this about the 2 year mark.  I am getting close to 
it and found myself getting nervous and down thinking “this is it”.  
You guys keep me going!


Thanks,
Tami




From: Patricia Cooley [mailto:patticoo...@wi.rr.com] 
Sent: Thursday, May 07, 2009 9:21 
AM
To: 'Janice'; 'Amanda Diskey'; pjv1...@chartermi.net; tmic-list@eskimo.com
Subject: RE: [TMIC] Fw: my transverse 
myelitis story

YOU ARE 
RIGHT JANICE.  I GUESS AS LONG AS I AM DRAWING A BREATHE I WILL HOPE 
AND WORK TOWARDS ANY IMPROVEMENT NO MATTER HOW LONG IT TAKES.  
 THANKS FOR THE ENCOURAGEMENT.

PATTI 
IN WISCONSIN



From: Janice [mailto:jan...@centurytel.net] 
Sent: Wednesday, May 06, 2009 8:38 
PM
To: Patricia Cooley; 'Amanda Diskey'; 
pjv1...@chartermi.net; tmic-list@eskimo.com
Subject: Re: [TMIC] Fw: my transverse 
myelitis story


Amanda and 
Patti,



 When you 
think of the "2-year mark", don't be too disappointed if you are not where 
you want to be.   I let it be a big thing 
for

me and 
was panicky when 2 years came and I wasn't where I wanted to be and 
felt there would be no more recovery.

Recovery still 
happens.   Your body doesn't know 2 years from 
butkus!The doc's are only saying the biggest hunk 
of

recovery comes 
"a b o u t"  then.  There will be more. 
Also, I think something happens in the adjustment to your body.   
You

begin to accept, 
but are still working for improvement.   At least, that was the 
way it is for me at 28 months of TM.

Janice

  
  - 
  Original Message -
  
  From: Patricia 
  Cooley
  
  To: 'Amanda Diskey' ; pjv1...@chartermi.net ; tmic-list@eskimo.com
  
  Sent: Wednesday, May 06, 2009 10:37 
  AM
  
  Subject: RE: [TMIC] Fw: my transverse 
  myelitis story
  
  
  AMANDA:
  IT IS 
  OBVIOUS THAT YOU HAVE BEEN PUT THROUGH THE WRINGER.  I AM SO SORRY 
  FOR ALL YOU HAVE SUFFERED.  I WAS DIAGNOISED WITH TM LAST JUNE.  
  WHEN IT HAPPENED I WAS UNABLE TO MOVE MY LEGS AND HAD NO FEELING.  IN 
  THE LAST 11 MONTHS I HAVE COME A LONG, LONG WAY.  THE BIGGEST CHANGE 
  HAS BEEN IN THE LAST 2-3 MONTHS.  I HAD BEEN ABLE TO USE A WALKER, BUT I 
FIGURED I WOULD NEVER BE 
  ABLE TO USE A CANE.  BUT, ALL OF A SUDDEN I FIND THAT I CAN USE A 
  CANE AND EVEN WALK WITHOUT A WALKER OR CANE.  I DO NEED TO GRAB 
  HOLD OF FURNITURE OR THE WALL, BUT I AM ABLE TO WALK SHORT 
  DISTANCES.  SO PLEASE DON’T GIVE UP.  KEEP UP WITH YOUR 
  THERAPY.  I THINK IN MY CASE I WAS FORTUNATELY DISGNOISED IMMEDIATELY 
  AND PUT ON STEROIDS RIGHT AWAY.
  EVERYONE 
  HAS SAID THAT IMPROVEMENT COULD HAPPEN WITHIN THE FIRST 2 YEARS, SO WE 
  HAVE A LONG WAY TO GO BEFORE WE REACH THAT POINT.  DON’T GIVE 
  UP.  WE ARE HERE FOR EACH OTHER SO KEEP US 
  POSTED.
  
  PATTI 
  IN WISCONSIN
  
  
  
  
  
  
  
  
  
  From: "pjv1...@chartermi.net" 
To: tmic-list@eskimo.com; 

[TMIC] RE: tmic-digest Digest V2009 #373

[marieke dufresne]

RE: DVT, are Deep Vein Thrombosis. 

Basically, CLOTS in the vein that block it and can also break away and travel 
up in your blood stream. Very dangerous as it can go to your lungs or heart or 
brain and this can kill you. When you get DVT they put you on blood thinners to 
get rid of them and then usually you have to take another type to decrease the 
chance of getting more. People who do not move around much/are paralyzed tend 
to get them. It is important to try to move around as much as possible. If you 
can flex your ankle do it every hour to keep the blood moving so that it is not 
in stasis. You can also wear TED stockings during the day, these help as well. 
Keeping your feet elevated too. You'll know if you have one, there will be 
pain, redness, swelling in the area it is situated in. You may also see a large 
bruise. 
People who fly long distances and don't get up to walk around are also prone to 
getting one.

Marieke RN
TM @T1 since March 2004




--Forwarded Message Attachment--
Date: Thu, 30 Apr 2009 21:07:25 -0500
From: jan...@centurytel.net
To: mother...@msn.com; tmic-list@eskimo.com; balmat...@aol.com
Subject: Re: [TMIC] wow, you work too hard Trudy










Barbara,
Your situation seems to be the closest to my situation that I have read 
yet.  I am referring to your paragraph 2.Also, use
baclofen (2 at dinner, 1 at 8:00pm) and have no problem sleeping 
too.   What would we do without really good husbands!?!.
 
You mentioned DVT's in your legs.   What are those?   
Are they painful?  I have never heard of 
that.Janice

_
Find info faster and easier with Internet Explorer 8.
http://go.microsoft.com/?linkid=9655583

[TMIC] RE: tmic-digest Digest V2009 #361

[marieke dufresne]

Barbara,
I agree with Heather.. get a second TV and/or computer. Better yet, get a 
Laptop and WIFI so you can use it anywhere even outside.
Marieke (who loves her MacBook!)

Date: Tue, 28 Apr 2009 20:06:54 -0700
From: tmic-digest-requ...@eskimo.com
Subject: tmic-digest Digest V2009 #361
To: tmic-dig...@eskimo.com



--Forwarded Message Attachment--

tmic-digest Digest  Volume 2009 : Issue 361
 
Today's Topics:
  Re: [TMIC] misc   [ balmat...@aol.com ]
  Re: [TMIC] misc   [ "Pieter and Heather" 

To: balmat...@aol.com

Sent: Mon, 27 Apr 2009 5:01 am

Subject: RE: [TMIC] misc







Barbara...your response just made a lousy Monday morning at work a little nicer 
...thank you ...now get busy living your life and stop feeling sorry for 
yourself.


 


All the best!


Rob






From: balmat...@aol.com [mailto:balmat...@aol.com] 

Sent: Saturday, April 25, 2009 9:33 PM

To: Robert Pall; tmic-list@eskimo.com

Subject: Re: [TMIC] misc









Hello Rob and all,


 I am so glad that you sent in this email today.  I think it just may be 
the "kick in the butt" that I need to get out of my bedroom and on with my 
life.  I am still kind of in a funk, not as bad as the usual winter funk, but 
still haven't been able to totally bring myself out of it either.  I know that 
the state of the economy and politics have been consuming too much of my life 
recently, and with my hubby retiring last year, as the saying goes, twice as 
much hubby and half as much money.  Could not be truer than these days, as if 
we could have known, he'd still be working and we'd still be preparing for his 
retirement.

 I have been reading most of the postings on TMIC, but not responding to 
some that I know that I should have.  For this, I am apologizing to the newbies 
and to those that I could have possibly given some support.

 Rob, I will try, no, I WILL, to take your words to heart and start LIVING 
my life the way I used to, and used to tell others to as well, and that is to 
the fullest extent as possible.  TM should not define us. 



Hugs to all, Barbara A in Auburn, CA, where the sun is shining and there is a 
nest of baby birds outside of my bedroom window.  The sounds are so sweet.














Green cleaning products -- do they work as well? Find out now! 


 Can't afford a new spring wardrobe?  Go shopping in your closet instead! 


--Forwarded Message Attachment--
Date: Tue, 28 Apr 2009 10:36:59 -0600
From: pieterheat...@shaw.ca
To: balmat...@aol.com; rp...@neillsupply.com; tmic-list@eskimo.com
Subject: Re: [TMIC] misc










Barbara,
 
Any chance you could get a second TV or second 
computer just for yourself?  Just a thought. 
 
Heather in Calgary 

  - Original Message - 
  From: 
  balmat...@aol.com 
  To: rp...@neillsupply.com ; tmic-list@eskimo.com 
  Sent: Monday, April 27, 2009 11:03 
  PM
  Subject: Re: [TMIC] misc
  
Hi Rob,

Thanks for your message, and 
  I'm so glad I could improve your day with mine to you.  I am sending 
  this message to the whole group, so they can see what's up with me as 
  well.

I really am not feeling sorry for myself.  I am not sleeping 
  well, I wake up so many times at night with my legs in pain, once I finally 
  get to sleep.  It is at least 3am before my legs settle down enough to 
  get to sleep for a bit, unless I take a Vicodin.  I usally sleep for 
  anything between 15 minutes and an hour on many nights, and this goes on 
until 
  anytime between 10am and noon, when I finally drag my butt out of bed.  I 
  am exhausted.  I take a Vicodin usually 3 days a week, just to catch up 
  on some sleep.  I need to use some of my marijuana tincture at 
  night or a brownie on more nights, but that doesn't always 
  work.  Between the two, if one of these methods is used almost every 
  night, I should be better off in the sleep category.  I lowered my daily 
  dosage of Neurontin over the past year and my pain level has increased.  
  My Neurontin dosage was up pretty high at 5200/day, and I really wanted 
  it lower! ed, so I was able to lower 3600/day now, but I am paying the 
  price during the night.  I also went on Lyrica at 50/mg 
  3x/day.

My husband retired last year and became interested in politics 
  for the first time in his life, so he watches the news a lot.  It's on so 
  much of the day, and then he watches the History Channel, Military 
  Channel and CARTOONS!!  He's always watched some cartoons, but it's 
  just too much, so after I do what I need to and sit out in the family room 
for 
  a bit, I leave the area.  I just can't stand it.  He also uses 
  the computer, but while on the TV.  If I ask to change the channel, 
  it usually annoys him, so it's often easier to just let it go.  

I 
  know that we all have our own living situations, and he's really a great guy. 
   He just has his own things that annoy me, and I have mine that do the 
  same to him.  And, I re

[TMIC] RE: tmic-digest Digest V2009 #358

[marieke dufresne]

Janice,
I sent you the 3 links from my YouTube account

Here is part 1 for others who want to see again. You can get the other 2 parts 
by looking in my account or on the right next to this video.
http://www.youtube.com/watch?v=1QFmF6Bh1gg&feature=related

Marieke

Date: Sun, 26 Apr 2009 08:36:23 -0700
From: tmic-digest-requ...@eskimo.com
Subject: tmic-digest Digest V2009 #358
To: tmic-dig...@eskimo.com



--Forwarded Message Attachment--

tmic-digest Digest  Volume 2009 : Issue 358
 
Today's Topics:
  Re: [TMIC] Re: Janice--what is NMO?   [ "Janice"  ]
  Re: [TMIC] let me clarify [ "Janice"  ]


--Forwarded Message Attachment--
Date: Sat, 25 Apr 2009 22:32:03 -0500
From: jan...@centurytel.net
To: jrush...@columbiaenergyllc.com; grace...@gmail.com; tmic-list@eskimo.com
Subject: Re: [TMIC] Re: Janice--what is NMO?












What special were you 
on?When was it? What a great 
thing to do - this disease needs to be brought to attention, along with 
TM.

  - Original Message - 
  From: 
  jrushton 
  To: Grace M. ; tmic 
  Sent: Saturday, April 25, 2009 7:54 
  AM
  Subject: Re: [TMIC] Re: Janice--what is 
  NMO?
  

  

  
Gracie, Janice 
should watch that special you were on!!  Janice, Gracie is our 
movie star, doncha know???  Jeanne
 

---Original 
Message---
 

From: Grace M.
Date: 4/25/2009 
8:45:27 AM
To: tmic-list@eskimo.com
Subject: [TMIC] Re: 
Janice--what is NMO?
 
Hello 
Janice,  
 
What is 
NMO?  NMO is extremely rare, much more so than TM from other causes 
or Multiple Sclerosis.  It's a particularly devastating 
neuroimmunological disease of the central nervous system.  It 
consists of repeated attacks of  LETM (Longitudinal Extensive 
Transverse Myelitis) and Optic Neuritis.  Sixty per cent of 
patients will also present with brain lesions during the course of 
their 
disease, though not in a pattern consistent with MS.  Within five 
years, fifty per cent of patients will already be permanently blind in 
at least one eye (Often bilaterally.) and permanently paralyzed in at 
least one limb (Often more.)  Within that same time frame, 
estimates say that 33% of patients will expire during an acute 
attack.  It's a BCell mediated disease in the presence of an 
autoimmune antibody called the NMO IgG (Current research 
is attempting to establish whether or not the antibody itself, 
is pathological.)  Unlike TM or MS, our lesions are 
inordinately long (Covering three segments of cord or more.) and often 
present with necrosis and cavitations.  Also, unlike MS patients, 
we do not have the option of *riding out an attack*, but need 
medical intervention immediately.  Most neuros have not heard of 
it, let alone seen or treated a case, so the majority of us end up at 
the larger teaching and research facilities.
 
I'm one of 
the lucky ones.  I still walk, and can still see.  Many of the 
members of our Advocacy Group are already chairbound, bed fast, 
blind, and more than a few are vented.  We have also lost members 
since our launching in 2006.  It's not a walk in the 
park.
 
Mr. Siegel (President of 
the TMA) has been instrumental in the growth and direction of 
our small group of patients.  Not only does he offer great 
insight, but gives me those much needed pep talks whenever I am 
overwhelmed by the seriousness of it all.  He will be publishing a 
seperate directory for NMO patients very shortly.  I will be 
forever indebted to him for his support and help.  
 
 
Hope this 
helps to explain.
Gracie 
 

  

  
  








--Forwarded Message Attachment--
Date: Sat, 25 Apr 2009 22:33:31 -0500
From: jan...@centurytel.net
To: jrush...@columbiaenergyllc.com; cjb...@aol.com; tmic-list@eskimo.com
Subject: Re: [TMIC] let me clarify












That gives me a whole 
different picture of what I was 
thinking!!!
Janice

  - Original Message - 
  From: 
  jrushton 
  To: cjb...@aol.com ; tmic 
  Sent: Saturday, April 25, 2009 4:05 
  PM
  Subject: Re: [TMIC] let me clarify
  

  

  
Good thing you clarified 
that.:)
 

---Original 
Message---
 

From: cjb...@aol.com
Date: 4/25/2009 
4:29:16 PM
To: tmic-list@eskimo.com
Subject: [TMIC] let 
me clarify
 
The pool boy is for keeping it clean, not for my 

[TMIC] RE: tmic-digest Digest V2009 #339

[marieke dufresne]

Hi,
I use a TENS and MNES machine (mine is combo, so I can use it either for Pain 
relief with the TENS or for building muscle with the MNES settings). I got it 
from a company that sells refurbished or extra medical equipement. The machine 
I got is worth $800+, I got it for $230. The TENS works well when I have pain, 
mostly for my lower back and butt. The NMES I used on part of my quad that 
needed "help" in building muscle, it worked a bit, I have used it for otehr 
muscles too and it does work, but you have to use it consistently to build any 
muscle...

Marieke RN (AFTER I got TM!)
t...@t1, March 18, 2004.
I walk with a long leg brace and use a cane.

Date: Fri, 24 Apr 2009 07:48:26 -0700
From: tmic-digest-requ...@eskimo.com
Subject: tmic-digest Digest V2009 #339
To: tmic-dig...@eskimo.com



--Forwarded Message Attachment--

tmic-digest Digest  Volume 2009 : Issue 339
 
Today's Topics:
  Re: [TMIC] T.e.n.s. Unit  [ CANDIS KALLEY 
To: tmic-list@eskimo.com
Sent: Friday, April 24, 2009 12:03:49 AM GMT -05:00 US/Canada Eastern
Subject: Re: [TMIC] T.e.n.s. Unit
 
Wow!
Wow!
 
Thank you for the information and insight!
 
 
>I got one from Dr./insurance didn't cover $250.  I went on Ebay and 
>Amazon - cost 29.99 up.  I got 2 at the cost of $39.99 ea. plus 
>shipping.  They do as good as the Dr/insurance type just not as 
>fancy - the difference is name and prescription.  Besides, I can get 
>the pads and extra wires on Ebay at a fraction of the cost of the 
>Dr/insurance type which only takes their type of pad & wires. 
>
>Prayers and thoughts for you and yours,
>
>Candy K.
>
>- Original Message -
>From: "Akua" 
>To: tmic-list@eskimo.com
>Sent: Thursday, April 23, 2009 10:20:55 PM GMT -05:00 US/Canada Eastern
>Subject: Re: [TMIC] T.e.n.s. Unit
>
>
>No one dismissed it.
>I was denied that therapy by a DR.
>
>It is  on the list  of if i hit the lottery.
>--
 
 
-- 
http://www.akuadesigns.etsy.com
http://www.artfarmpaperwworks.etsy.com
http://www.akua.artfire.com
http://Akuadesigns.ShopHandmade.com
http://en.dawanda.com/shop/AkuaDesigns
http://www.artfarm.com
http://www.absolutearts.com/portfolios/a/akualezli/
http://www.zencrochet.blogspot.com/
http://www.healrecover.blogspot.com
http://www.akuahaiku.blogspot.com
http://www.akualezli.blogspot.com
http://imagecarve.blogspot.com/
http://lowgourmet.blogspot.com


--Forwarded Message Attachment--
Date: Fri, 24 Apr 2009 07:54:20 -0400
From: cakal...@embarqmail.com
To: tmic-list@eskimo.com
Subject: Re: [TMIC] using a T.E.N.S try unit



I was given the option of the implanted stimulator also.  BUT, since I'm 
alleric to so many things AND I had a "botched" surgery just 3 months before TM 
came to stay, I was reluctant to have surgery.  ALSO, I wasn't certain it would 
work.  SO the TENS seemed like the best solutions and it does help!

Prayers and thoughts for you and yours,

Candy K.

- Original Message -
From: "Janice" 
To: "CANDIS KALLEY" , "tmic-list" 

Sent: Thursday, April 23, 2009 11:30:20 PM GMT -05:00 US/Canada Eastern
Subject: Re: [TMIC] using a T.E.N.S try unit

 


I don't use a tens.  I use spinal cord stimulator that is implanted in my back 
hip.   It stops most of the pain before it reaches my
brain telling me that I have pain.   Very similar to the tens.   It helps with 
pain and with stamina.   Janice

- Original Message - 
From: CANDIS KALLEY 
To: tmic-list 
Sent: Thursday, April 23, 2009 6:48 PM
Subject: Re: [TMIC] using a T.E.N.S try unit



I'm not Marieke and I'm not from Canada but I swear by tens.  I know it helps 
with my back and neck pain level bringing it down a notch or 2.  I get out of 
bed and reach for my tens before even a cup of coffee. 

I know TENS is not for everyone BUT I think anyone should try it before 
dismissing it.


Prayers and thoughts for you and yours,

Candy K.

- Original Message -
From: "Pieter and Heather" 
To: cjb...@aol.com, tmic-list@eskimo.com
Sent: Thursday, April 23, 2009 7:30:22 PM GMT -05:00 US/Canada Eastern
Subject: Re: [TMIC] using a T.E.N.S try unit





Carol,
I'm glad it has helped Jim so much.  Marieke also from Canada uses the Tens 
machine with much success as well.  I'm sure she will chime in soon and say the 
same.  It helps a lot of people.
Heather in Calgary

- Original Message - 
From: cjb...@aol.com 
To: tmic-list@eskimo.com 
Sent: Thursday, April 23, 2009 5:14 PM
Subject: [TMIC] using a T.E.N.S try unit


Hi friends, I just read the message about being told it was bogus to use an 
electric shock like device. My husband jim has had TM since May 2005. A church 
friend who is a physical therapist suggested Jim try it, we had a tens unit 
from awhile back to help with pain. George told Jim where to place the pads to 
help the hamstring. In less than a week he went from 20% to 75% movement. Its 
to early to be sure how much movement he will get, but he is certain its not 
bogus. We will keep you all posted, ca

[TMIC] RE: tmic-digest Digest V2009 #266

[marieke dufresne]

When I was in rehab, there was a guy who went in the pool with his Foley and a 
leg bag. You don't want to risk disconnecting it and clamping it as that may 
not hold and if so you could get a nasty infection.
Ask what your MD has to say or call a rehab hospital and see what they usually 
do.

Marieke TM @T1 March 18, 2004


  Re: [TMIC] Swimming   [ "jrushton" http://go.microsoft.com/?linkid=9650730

[TMIC] RE: tmic-digest Digest V2009 #255

[marieke dufresne]

I was paralyzed at T1 completely at first. Some came back, some did not. The 
left leg didn't come back enough to be functional without a full length leg 
brace for support.
I can move my knee and hip, but my quads are not strong enough to
hold my knee enough to walk. I have no movement at all in my ankle, so
drop foot is a real problem. My brace goes from my thigh to the bottom
of my foot. Without it I cannot walk.

If you look in this blog post I wrote 3 yrs ago, click on KAFO, you can see 
sort of what mine looks like.
http://nurse-to-be08.blogspot.com/2006/08/getting-ready.html

Have fun on your travels!!!

Marieke :)

--Forwarded Message Attachment--
Date: Thu, 9 Apr 2009 20:50:22 -0500
From: jan...@centurytel.net
To: marieke...@hotmail.com; tmic-list@eskimo.com
Subject: Re: [TMIC] RE: tmic-digest Digest V2009 #247










Okay, you all are making me feel braver 
about traveling.   Also, I have a great husband to help 
me.   Marieke, you surprised me when you said you wear a 
brace.   How did that come about and how does it help 
you?  
Janice

  - Original Message - 
  From: 
  marieke 
  dufresne 
  To: tmic-list@eskimo.com 
  Sent: Thursday, April 09, 2009 3:45 
  PM
  Subject: [TMIC] RE: tmic-digest Digest 
  V2009 #247
  
I have travelled by plane alone and with my boyfriend (now ex). 
  Last time I went alone was from Montreal QC, Canada to Seattle, WA. Took 2 
  planes there and 2 back. (Mtl to Toronto to Seattle there, Seattle to 
  Vancouver BC to Mtl back). The long rides were 6 hrs, the short was 1.5 hrs 
  (Mtl-TO) and 30 min (SeaTac to Van). 

I travel with my wheelchair and 
  bring my cane and wear my long leg brace. When I travel alone I usually get 
  bumped to FIRST Class for FREE! I ask for seats close to the bathroom (and 
  often they figure since I am alone I will need more help as I am in a chair, 
  and they have more time to help when in 1st class). 

The first time I 
  travelled alone I was nervous about going through security, the only time 
they 
  ever gave me problems was going from Mtl to TO to Seattle. The Mtl security 
  (US side) was ok really, but one lady there wanted me to take off my brace... 
  um, I need to take off my shoes/pants.. I just looked at them and said, it's 
a 
  brace that surrounds my leg, no hollow parts, I can't hide anything there. I 
  was pissed, not b/c that they wanted to check it, that's fine, but it was her 
  attitude that really got to me. She was rude and talked like I was "mentally 
  challenged". Um , hello, I may be in a wheelchair, but I am perfectly capable 
  of making conversation! Grrr... 

Don't let the difficulties of 
  travelling stop you! It sounds harder than it is, and I was plenty worried, 
  but it turned out just fine and I had a great flight! (the attendents were so 
  very nice and helpful and it doesn't hurt that I look under 18 
  sometimes!).

Marieke 33yo, t...@t1 since March 18, 2004


  
   
_
Experience all of the new features, and Reconnect with your life.
http://go.microsoft.com/?linkid=9650730

[TMIC] RE: tmic-digest Digest V2009 #247

[marieke dufresne]

I have travelled by plane alone and with my boyfriend (now ex). Last time I 
went alone was from Montreal QC, Canada to Seattle, WA. Took 2 planes there and 
2 back. (Mtl to Toronto to Seattle there, Seattle to Vancouver BC to Mtl back). 
The long rides were 6 hrs, the short was 1.5 hrs (Mtl-TO) and 30 min (SeaTac to 
Van). 

I travel with my wheelchair and bring my cane and wear my long leg brace. When 
I travel alone I usually get bumped to FIRST Class for FREE! I ask for seats 
close to the bathroom (and often they figure since I am alone I will need more 
help as I am in a chair, and they have more time to help when in 1st class). 

The first time I travelled alone I was nervous about going through security, 
the only time they ever gave me problems was going from Mtl to TO to Seattle. 
The Mtl security (US side) was ok really, but one lady there wanted me to take 
off my brace... um, I need to take off my shoes/pants.. I just looked at them 
and said, it's a brace that surrounds my leg, no hollow parts, I can't hide 
anything there. I was pissed, not b/c that they wanted to check it, that's 
fine, but it was her attitude that really got to me. She was rude and talked 
like I was "mentally challenged". Um , hello, I may be in a wheelchair, but I 
am perfectly capable of making conversation! Grrr... 

Don't let the difficulties of travelling stop you! It sounds harder than it is, 
and I was plenty worried, but it turned out just fine and I had a great flight! 
(the attendents were so very nice and helpful and it doesn't hurt that I look 
under 18 sometimes!).

Marieke 33yo, t...@t1 since March 18, 2004

Date: Thu, 9 Apr 2009 12:38:45 -0700
From: tmic-digest-requ...@eskimo.com
Subject: tmic-digest Digest V2009 #247
To: tmic-dig...@eskimo.com



--Forwarded Message Attachment--

tmic-digest Digest  Volume 2009 : Issue 247
 
Today's Topics:
  Re: [TMIC] Lack of Communication  [ Trudy Ogilvie  ]


--Forwarded Message Attachment--
Date: Thu, 9 Apr 2009 14:44:48 -0400
From: mother...@gmail.com
To: pieterheat...@shaw.ca
CC: tmic-list@eskimo.com
Subject: Re: [TMIC] Lack of Communication

Heather I have found that sometimes you just have to do what you have to do!!  
I flew alone to be with my mom when she was in her late 80's and I was so glad 
that I did. Everyone was so kind and helpful. I too use a walker and sometimes 
a cane!  Long trips are awful but my son is getting married in Lima, Peru in 
November and I am definitely going to be there! I have hand controls on my car 
because I do not have any real control over my legs. All rental cars have 
handicapped equipped cars. And they are not allowed to charge extra for the 
device. There are different types but it's so easy, you catch on very quickly. 
Tho it sounds like you have lots of people to ferry you around. Have a 
wonderful time!! I love it when our family gets together! Cherish those moments!
Again, ENJOY!!!Trudy 


On Thu, Apr 9, 2009 at 1:20 AM, Pieter and Heather  
wrote:






Janice et al, 
 
I will be flying.  I have done this 
before.  I take my walker and my cane.  I get a bulkhead seat.  
Hubby and I were back to Ontario last fall.  However, he just doesn't feel 
like going this soon. However, my Mom is 85 so I feel I want to go.  My 
daughter, 2 sisters and all their families are there as well as my husbands 
four 
sisters.  So there will be lots of people to visit as well as my old 
friends.  My only problem is that when I get there I have to rely on others 
to ferry me around.  I can only drive with the left foot accelorator.  
It is a four hour flight which seems quite long.  I also take my air/gel 
filled seat cushion from my wheelchair.  It is 5 1/2 yrs old now and still 
going strong. (knock on wood).  Without this cushion I would have a 
terrible time trying to sit for that length of time.  I'm s ready to 
get off the plane when we land.  I do not need to change planes or anything 
so that is another good thing. I have found that everyone involved with air 
travel has so far been really good.  Oops. with one exception.  Last 
fall I flew back east first and my husband followed a week later.  Going 
through security here in Calgary my WalkAide set off the security and I had to 
take it off the leg, explain to them what it was etc etc.  Wires, batteries 
etc.  Almost missed my flight.  This time I have located the booklet 
on it and will keep it handy.  Last fall I misplaced it just prior to 
packing.  I actually had it packed.  Then decided to take a different 
carry-on piece of luggage and could not for the life of me figure out where the 
booklet went.  I found it in January this year when I was moving some 
things around to do with our luggage.  NOW  I know where it 
is.   Of course with the memory problems that we have (well some of us 
have) with TM I could forget where it is by that time.  LOL 
 
Heather in Calgary 

  - Original Message - 
  From: 
  Janice 
  
  To: Pieter and Hea

[TMIC] RE: tmic-digest Digest V2009 #246

[marieke dufresne]

The cold makes me spastic as well. I hate living where I am, the winters are 
LONG and COLD! Winter starts in early November and ends in late April. Our Fall 
is wet and damp, another thing that makes me spastics and so is our Spring! You 
just can't win!! LOL

Marieke RN, TM @T1 since March 18 2004... waiting for June/July/August!


--Forwarded Message Attachment--
Date: Thu, 9 Apr 2009 12:10:22 -0600
From: pieterheat...@shaw.ca
To: kenoliver...@hotmail.com; tmic-list@eskimo.com
Subject: Re: [TMIC] RE: tmic-digest Digest V2009 #237










Ken,
The cold air really bothers me too.  That is 
why in the winter I stay pretty much inside.  Just go from car to store to 
house.  Cold causes spasms and the muscles just 'freeze' up. 
Hope you stay warm now.  I guess that even in 
NM it gets cold.
Heather in Calgary 

  - Original Message - 
  From: 
  Kenneth Oliver 
  To: tmic-list@eskimo.com 
  Sent: Wednesday, April 08, 2009 10:00 
  PM
  Subject: [TMIC] RE: tmic-digest Digest 
  V2009 #237
  
 
 None 
  of you have mentioned what cold does.  This evening I was waiting for my 
  son
to fix my Hoveround 
  wheel and I had a window open and the door, here in NM when the 
  
sun goes down it  cools 
  off fast.  I was stuck to the recliner until I got the chair 
  fixed.
in the mean time it 
  cooled of and I got a chill that had me in a spasm from my neck to 
  my 
feet.  This is 
  after 28yrs of TM.
Ken In 
  NM
 

  
   
_
Experience all of the new features, and Reconnect with your life.
http://go.microsoft.com/?linkid=9650730<><>

[TMIC] RE: tmic-digest Digest V2009 #226

[marieke dufresne]

Temperature Regulation:
http://www.apparelyzed.com/temperature.html

Temperature 
  Regulation
A normal, healthy human is able to maintain a constant 
  body temperature of approximately 98.6F despite the temperature 
  of the environment. In a hot environment, the body sends a signal 
  to the brain via the spinal cord to say the body is overheating, 
  the brain then sends a signal back down the spinal cord and tells 
  the body to cool itself by perspiration which evaporates and 
cools 
  the skin. In cold weather, the body senses the lower temperature 
  and our brain tells us to put more clothes on to warm ourselves 
  up.
Most people with complete spinal cord injuries do 
  not sweat below the level of the injury and many quadriplegics 
cannot 
  even sweat above the injury (even though they may sweat due to 
autonomic 
  dysreflexia). With loss of the ability to sweat or vasoconstrict 
  within affected dermatomes the patient 
  becomes poikilothermic and needs careful control of their 
environmental 
  conditions. Therefore, if a high paraplegic or quadriplegic is in 
  an outside temperature over 90 F, especially when the humidity is 
  high, the body temperature will begin to rise. Likewise in a cold 
  environment, the body may not be able to get the messages through 
  to the brain that the body is cooling down, and if left 
untreated, 
  the person will soon become hypothermic.
This also applies to those with "incomplete" spinal cord injuries, 
though it may be to a lesser degree, but not necessarily so.The feeling that 
our legs are on fire or ice cold (when they are not) is due to neuropathic 
pain/sensations, not temperature regulation. The burning feeling may be brought 
on by overheating, but as noted by many of us here, it is a constant whether we 
get hot or not...
Marieke RN, TM @T1 since March 2004







_
Experience all of the new features, and Reconnect with your life.
http://go.microsoft.com/?linkid=9650730

[TMIC] RE: tmic-digest Digest V2009 #218

[marieke dufresne]

RE: ACAI for weight loss

Marketers of these products make claims that açai provides increased energy 
levels, improved sexual performance, improved digestion, detoxification, high 
fiber content, high antioxidant content, improved skin appearance, improved 
heart health, improved sleep, and reduction of cholesterol levels. More dubious 
claims include reversal of diabetes and other chronic illnesses, as well as 
expanding size of the penis and increasing men's sexual virility and sexual 
attractiveness to women. Açai is most commonly marketed as a weight loss 
product.
As of March 2009, there are no controlled studies backing up any of these 
claims. According to ABC News correspondent Susan Donaldson, these products 
have not been evaluated (in the US) by the FDA, and their efficacy is 
questionable.

more info...

http://www.drugs.com/npp/acai.html

no documented uses proven to work for Weight loss, but it is safe to take with 
any and all meds...

Marieke RN, TM since 2004 @T1

--Forwarded Message Attachment--
Date: Fri, 3 Apr 2009 13:27:58 -0700
From: regina...@sbcglobal.net
To: tmic-list@eskimo.com
Subject: [TMIC] ACAI



Anyone overweight tried ACAI (prononced ah-sa-ee)?
 
Supposed to reduce hunger, and raise energy levels.
 
In my case, devoutly to be wished.
 
Hey Jude, so glad you're out of the hospital.  
Love you bunches.
Regina

--Forwarded Message Attachment--
Date: Fri, 3 Apr 2009 20:10:59 -0500
From: jan...@centurytel.net
To: regina...@sbcglobal.net; tmic-list@eskimo.com
Subject: Re: [TMIC] ACAI










Does anyone know if this stuff really works for raising energy levels and 
is it okay to take no matter what meds you are taking?
Just curious.   I can always use an energy boost and who wouldn't 
want to lose a few 
pounds!   Janice




  - Original Message - 
  From: 
  Regina 
  Rummel 
  To: tmic-list@eskimo.com 
  Sent: Friday, April 03, 2009 3:27 
PM
  Subject: [TMIC] ACAI
  

  
  Anyone overweight tried ACAI (prononced ah-sa-ee)?
   
  Supposed to reduce hunger, and raise energy levels.
   
  In my case, devoutly to be wished.
   
  Hey Jude, so glad you're out of the hospital.  
  Love you bunches.
  Regina




_
Reinvent how you stay in touch with the new Windows Live Messenger.
http://go.microsoft.com/?linkid=9650731

[TMIC] RE: tmic-digest Digest V2009 #183

[marieke dufresne]

I have my doubts as well..
http://www.cellmedicine.com/locations.asp

and what does "Johns Hopkins affiliate" really mean?

In any case they don't use other people's stem cells. They harvest some from 
the patient themselves and "purify" them to be used..

I am not sure how legit their "results" are, they can say anything since they 
do not answer to anyone!

As far as the two Canadian sisters who went to China for stem cell treatment in 
2006 (and spent a HUGE fortune), they actually did not get much return of 
function, a bit in their hands.. and that is the latest report (January 2009).

I would wait and see what new developments happen in North America before 
forking over that kind of money in another country.

Marieke TM (@T1, March 2004)
RN



_
Reinvent how you stay in touch with the new Windows Live Messenger.
http://go.microsoft.com/?linkid=9650731

[TMIC] RE: tmic-digest Digest V2009 #172

[marieke dufresne]

Not sure what this whole diatribe/fight is about, but in defense of the 
http://transversemyelitis.ning.com/ site. It was strated by a few people who 
wanted to document THEIR TM fight and wanted a place where they could have 
"live" chat. There are links to the transverse myelitis site and and all info 
is linked form there. NO one is trying to "steal" people away from the TMA 
site. I help Jim Lubin run the TMA site site, moderate and answer questions. I 
do the same on the ning.com site. AGAIN no is FORCED to join either site! And 
yes there ARE 9 pages of members (we have 188 members currently), many of whom 
belong to the TMA site, as ewll as various Facebook sites and Yahoo. 
Does it really matter if we belong to MORE than ONE site?
Honestly, this is childless and not needed on this list.

I enjoy hearing from members on ALL sites, I rarely post on here myself, but do 
when I feel I can help out. I mean no disrespect or harm, but felt that it had 
to be cleared up a bit for those of us who do belong to various TM sites.

Marieke TM since March 18, 2004 (5 years this week)



--Forwarded Message Attachment--
Date: Fri, 20 Mar 2009 09:55:46 -0400
From: montzma...@aol.com
To: tmic-list@eskimo.com
Subject: [TMIC] GUNNY!!!








WHAT ARE YOU DOING GUNNY? ABOUT A YEAR AGO YOU 
WANTED TO TAKE OVER THE DEVICS SITE. GRACIE FAUGHT YOU TOOTH AND NAIL WITH HELP 
FROM OTHERS. THANK GOODNESS YOU LOST.
NOW YOUR SENDING E-MAILS TO PEOPLE ON THE LIST 
TO JOIN A FACEBOOK SITE. WHAT THE HECK IS NING.COM, I WENT THERE 
TOO.
I WENT TO THE SITE THERE WAS NINE PAGES OF 
PEOPLE ON THE SITE .I WAS ON THE THIRD PAGE.WE ONLY SAW FIVE PEOPLE WE KNEW 
FROM 
THE TMA SITE MR LUBIN WORKED SO HARD FOR.US TO HAVE THIS WONDERFUL SITE WHICH 
YOU NEVER POST TO HARDLY AT ALL IF ANY.
WHY DO YOU HAVE TO BE SO DEMANDING AND WANT 
CONTROL OF EVERYTHING, IT REALLY HAS ALOT OF US TICKED OFF.
THE FACE BOOK SITE AND THE NING.COM IS MORE 
ABOUT JUST CHATTING NOT ABOUT TM AT ALL, I DID SEE SOME TMERS USING THAT SITE 
BUT ONLY A FEW.
I WANT TO KNOW IF YOU JUST CAN START A SITE 
AFTER SOMEONE ELSE HAS DONE IT, ARE IF YOU HAVE TO GET PERMISSION.
I KNOW THEIRS A YAHOO SITE TOO. I DID NOT 
GO THERE.
I KNOW FROM YOU THAT YOU WANT THE COALITION TO 
BE BETTER THAN THE TM SITE. I THOUGHT IT WAS FOR ALL OF US WORKING 
TOGETHER?
I ALSO KNOW THE THINGS YOU TOLD ME, I DO NOT 
LIKE IDLE GOSSIP, SO YOU SHOULD NOT HAVE TOLD ME PERSONAL THINGS ABOUT PEOPLE 
ON 
THE LIST.
THAT IS WHY I AM NO LONGER A REP FOR THE 
COALITION. I HOPE EVERYONE ON THE COALITION KNOWS WHAT YOUR TRYING TO DO. THATS 
TO BE IN CHARGE OF EVERYTHING, WELL ITS NOT GOING TO HAPPEN GUNNY. WE WILL 
FIGHT 
YOU TOOTH AND NAIL ALSO.
YOU DID NOT E-MAIL ME TO GO TO YOUR NEW SITE, 
YOU KNEW I WOULD OF BLASTED YOU, YOU HAVE A BIG MOUTH BUT ARE A PATHETIC MAN 
WHO 
HAS THE RIGHT TO THINK HE HAS TO RUN THINGS JUST BECAUSE YOU FOUND OUT DR. KERR 
IS YOUR COUSIN.
I DO NOT THINK HE WOULD LIKE WHAT YOUR DOING. HE 
IS A MAN WHO WANTS TO HELP EVERYONE NOT THE COALITION BEING THE HOT TAMALE LIKE 
YOU WANT.
IT JUST APPAULS ME THAT YOUR SUCH A CONTROL 
FREAK.
OTHERS ON THE LIST ARE GOING TO CALL AND SEE IF 
WHAT YOU HAVE DONE IS LEGALLY RIGHT.
PEOPLE HAVE THE RIGHT TO GO TO ANY SITE THATS 
CALLED FREEDOM .I HAVE NO PROBLEM WITH THAT.
I WAS WRITTEN A E-MAIL BY A GUY NAMED KEVIN AND 
A SAPPS, TRYING TO GET ME TO GO TO THOSE SITES NOT THE TMA REAL SITE. I WENT 
AND 
SAW SOME PEOPLE FROM OUR SITE BUT THEY STILL USE THE ONE MR. LUBIN 
STARTED. THATS FINE BUT FOR YOUR FRIENDS TO TELL ME THEY STARTED THE SITE 
AND YOUR ON IT BIG TIME TO SAY THEY DID IT FOR ALL THE FIGHTING ON THIS SITE. 
THERE WILL BE DIFFERENCE OF OPINIONS THAT IS LIFE GUNNY.
IT MAKES ME SICK TO MY STOMACH. IT ALSO DOES 
ALOT OF OTHER TM MEMBERS I HAVE CHATTED WITH.
YOU ASKED ME TO DO THINGS WELL DEMANDED BECAUSE 
YOU SAID PEOPLE THOUGHT YOU HAD STOLE MONEY FROM THEM IN THE 
RAFFLES.
I HAVE NEVER ACCUSED YOU OF THAT BUT YOU DID 
MAKE A BIG MESS WITH THE LAST RAFFLE THAT JUDE AND I PAID FOR THE COMPUTER AND 
I 
THINK YOU SAID ANOTHER MAN WAS GOING TO PUT IN. 
JUDE IS HAVING SURGERY TODAY DO NOT BOTHER HER 
AT ALL, I MEAN IT. SHE WANTS TO KNOW WHO THE WOMAN WAS WHO WON THE COMPUTER AS 
I 
DO. YOU GAVE ME SOME RIDICOULOUS STORY, I JUST DROPPED IT. BUT SINCE YOUR DOING 
THIS TO OUR SITE I WANT TO KNOW THE TRUTH. I KNOW I WILL GET THE SAME BS AS 
LAST 
TIME.THAT IS WHY SO MANY PEOPLE DO NOT WANT TO WORK WITH YOU GUNNY.YOU NEED TO 
GET YOUR PRIORITIES STRAIGHT, THE SITE AND THE COALITION IS SUPPOSED TO WORK 
TOGETHER, NOT WHAT YOU WANT.
I HOPE YOU GET WHAT I AM SAYING, IF NOT I 
WILL KEEP SAYING IT, YOUR NOT GOD NOR ANYONE JUST A PERSON WITH TM LIKE ALL OF 
US WHO HAVE PROBLEMS IN LIFE .I KNOW I DO I TOLD YOU.
THE DIFFERENCE BETWEEN YOU AND ME IS I PLAY FAIR 
YOU DO NOT .I TELL IT LIKE IT IS, NOT WHAT YOU WANT IT TO BE.
I STILL WANT TO KNOW WHERE YOU GOT NINE PAGES OF 
PEOPLE WITH TM THAT ONLY WE SAW FIVE

[TMIC] RE: tmic-digest Digest V2009 #159

[marieke dufresne]

Frank: Go to the Doctor ASAP!
Marieke RN! :)

 
Voting will continue till 9pm  EDST tonight, March 14. 
 
Tomorrow morning I will count up the results and take the winning advice- 
doctor ( with X-Ray), martinis, physiotherapy, no rugs, or foot drop apparatus.
 
Sleep well
 
pH


--Forwarded Message Attachment--
Date: Sat, 14 Mar 2009 18:18:34 -0600
From: cherp...@msn.com
To: mother...@gmail.com; fr...@franksheldon.com
CC: tmic-list@eskimo.com
Subject: Re: [TMIC] When God











Ok Frank, here's my vote.  Since it's Saturday, it probably would be 
best if you get some rest, and of course you would rest much better with the 
martinis.  Follow same program tomorrow if desired.  Then on Monday go 
to doctor w/ X-Ray and do what doctor tells you to do!  sounds pretty fair 
to me.
 
I'm quite sure you'll sleep well tonight after your liquid refreshments
 
Linda

  - Original Message - 
  From: fr...@franksheldon.com 
  To: Trudy Ogilvie 
  Cc: tmic 
  Sent: Saturday, March 14, 2009 3:18 
  PM
  Subject: Re: [TMIC] When God
  

> I am so sorry about the arm! 

Voting will 
  continue till 9pm  EDST tonight, March 14. 

Tomorrow morning I 
  will count up the results and take the winning advice- doctor ( with X-Ray), 
  martinis, physiotherapy, no rugs, or foot drop apparatus.

Sleep 
  well

pH


_
Reinvent how you stay in touch with the new Windows Live Messenger.
http://go.microsoft.com/?linkid=9650731<><><>

[TMIC] RE: tmic-digest Digest V2009 #152

[marieke dufresne]

Wim,
Gefeliciteerd!
Marieke in Canada


---Original Message---
 



From: wim from holland
Date: 3/10/2009 5:58:58 AM
To: TMIC
Subject: [TMIC] update granddad
 I'll try again.
 
On this photo she had the same pose as we saw her on a photo in the womb. 
Vingers in het mouth and a hand besides her head.
 
The first time I sended more but they did not came trough.
 
Wim from Holland



Plan je feest, nodig mensen uit en deel je foto's met Windows Live Events 
 












--
_
Chat with the whole group, and bring everyone together.
http://go.microsoft.com/?linkid=9650735

[TMIC] RE: tmic-digest Digest V2009 #112

[marieke dufresne]

If your lesion is high you will likely get this, whether or not you have MS 
(It's just more common in MS). It is permanent though and will not go away.
Marieke
 

From: Jill Z
Date: 2/26/2009 9:47:34 PM
To: tmic-list@eskimo.com
Subject: [TMIC] For you MSr's
 




I know some of us TMr's turned into MSr's and I was just wondering have any of 
you experienced that "Lhermette's sign" when you bend your neck forward and get 
electric down your legs?  And does that ever go away???
Thanks,
Jill in Chicago
TM '04
MS '09 :(


 












--Forwarded Message Attachment--
Date: Thu, 26 Feb 2009 23:43:24 -0500
From: gor...@earthlink.net
To: tmic-list@eskimo.com
Subject: [TMIC] Prealt










Prealt mimics the venom molecule of the 
Conus magus sea snail.  It is not regulated as an opioid, good news 
if it works.  It is delivered via intrathecal pump.  They do not, of 
course, know how it works.
 
Anyone on this and any comments on it if you 
are?  The pain clinic offered this as an alternative to narcotics and for 
its potential effectiveness on central nerve pain.


--Forwarded Message Attachment--
Date: Fri, 27 Feb 2009 00:36:41 -0500
From: we4king...@verizon.net
To: tmic-list@eskimo.com
CC: we4king...@verizon.net
Subject: Re: [TMIC] For you MSr's


I have L'hermettes sign on top of the sensation that I have my finger stuck in 
a light socket 24/7.  Imagine that, electrocution with electric bursts... but I 
don't have MS.

 Mindy the ArtistTM March 1, 2007C4-C5  
On Feb 26, 2009, at 10:47 PM, Jill Z wrote:I know some of us TMr's turned into 
MSr's and I was just wondering have any of you experienced that "Lhermette's 
sign" when you bend your neck forward and get electric down your legs?  And 
does that ever go away??? Thanks, Jill in Chicago TM '04 MS '09 :(



_
So many new options, so little time. Windows Live Messenger.
http://www.microsoft.com/windows/windowslive/products/messenger.aspx

[TMIC] RE: tmic-digest Digest V2009 #111

[marieke dufresne]

Amanda, you can take a max dose of 100-120mg a day of Baclofen and/or ask for 
Tizanidine (Zanaflex) as well. I take 100mg of Baclofen a day (20-20-20-40) and 
2mg of Zanaflex at night as well. I used to take more Zanaflex throughout the 
day too.
Marieke TM @T1 2004










--Forwarded Message Attachment--
Date: Thu, 26 Feb 2009 16:56:29 -0800
From: adis...@yahoo.com
To: tmic-list@eskimo.com
Subject: [TMIC] Muscle Spasms





  

--Forwarded Message Attachment--
Date: Thu, 26 Feb 2009 19:37:45 -0700
From: cherp...@msn.com
To: jrush...@columbiaenergyllc.com; tmic-list@eskimo.com; bernie.butc...@.com
Subject: Re: [TMIC] Is anybody there??













 
Linda
 
- Original Message - 

  From: Butcher, Bernard G (NY80) 

  To: jrushton ; tmic 
  
  Sent: Thursday, February 26, 2009 12:35 
  PM
  Subject: RE: [TMIC] Is anybody 
  there??
  

  yes
   
  BERNARD 
  BUTCHER
   

  
  
  From: jrushton 
  [mailto:jrush...@columbiaenergyllc.com] 
Sent: Thursday, February 
  26, 2009 12:06 PM
To: tmic
Subject: [TMIC] Is anybody 
  there??


  
  

  
 

  

  
  








--Forwarded Message Attachment--
Date: Thu, 26 Feb 2009 19:47:22 -0800
From: jillybean60...@yahoo.com
To: tmic-list@eskimo.com
Subject: [TMIC] For you MSr's

I know some of us TMr's turned into MSr's and I was just wondering have any of 
you experienced that "Lhermette's sign" when you bend your neck forward and get 
electric down your legs?  And does that ever go away???
Thanks,
Jill in Chicago
TM '04
MS '09 :(


_
So many new options, so little time. Windows Live Messenger.
http://www.microsoft.com/windows/windowslive/products/messenger.aspx

[TMIC] RE: tmic-digest Digest V2009 #99

[marieke dufresne]

I know Gillian Clark is fine, though not sure how close or far she is from the 
wildfires...
Marieke

--Forwarded Message Attachment--
Date: Sat, 14 Feb 2009 15:21:19 -0800
From: jmh1...@sbcglobal.net
To: tmic-list@eskimo.com
Subject: [TMIC] Aussie Members


 
Has anyone heard from our Aussie members since the fires hit Australia?  
My geography IQ of Australia is at least -100, thus I don't know if any of
our membership lives in or near the areas of the fires.
 
If any one hears, please pass the word on to the list.
 
Thanks,
janh
_
The new Windows Live Messenger. You don’t want to miss this.
http://www.microsoft.com/windows/windowslive/products/messenger.aspx

[TMIC] RE: tmic-digest Digest V2009 #98

[marieke dufresne]

To unsubscribe follow the directions here:
http://www.myelitis.org/tmic/

Unsubscribe from TMIC-LIST

To unsubscribe from the list, send email to tmic-list-requ...@eskimo.com, with 
the Subject unsubscribe. That's all that's needed.
To unsubscribe from the digest, send email to tmic-digest-requ...@eskimo.com, 
with the Subject unsubscribe. That's all that's needed.

Note: AOL users & some other mailer may require something written in the 
message body before it will send.
--Forwarded Message Attachment--
Date: Thu, 12 Feb 2009 06:42:24 -0800
From: adelechen...@rogers.com
To: tmic-list@eskimo.com
Subject: [TMIC] cancel e-mail notification.



Hello, I mistakingly subscribed to e-mail notification and I would like to be 
removed from this service.
 
I am very satisfied with your tm forum though and would like to remain a member.
 
I have tried to change my preferences on my own but I am not having any luck.
 
Please advise.
 
many thanks in advance and I am sorry for the inconvenience.
Adele Chenier



_
So many new options, so little time. Windows Live Messenger.
http://www.microsoft.com/windows/windowslive/products/messenger.aspx

[TMIC] RE: tmic-digest Digest V2009 #79

[marieke dufresne]

RE: Camp

It would be nice to have an "adult" Camp. The symposia is too expensive for 
many, and there are no activities many people would like to try, that could be 
offered at a "Camp".
I also belong to another group for children and adults (and their families) 
with a Brachial Plexus Injury and they hold a Camp every 2 years, with 
activities for BOTH adult and kids, meetings/info session/demonstrations... I 
went for the first time in 2007 and had a blast! They too offer 'scholarships' 
for people who can't afford it, and get donations from private 
donations/organizations/stores...
It would be worth looking into maybe, see how many people are interested. Look 
for various places that offer disabled activities/rooms...

Just a thought!
Marieke RN
TM @ T1 since March 2004


--Forwarded Message Attachment--
Date: Sat, 31 Jan 2009 16:32:11 -0500
From: fr...@franksheldon.com
To: dca...@earthlink.net; tmic-list@eskimo.com
Subject: Re: [TMIC] Victory Junction

> I know there are a few parents on the list who have children between the > 
> ages of 6-16. 
 
Sounds great!
 
One question-If  I have a child below the age of 16 who doesn't have tm 
(totally healthy), but I do ( Age unknown), can we still sign up for the camp???
 
F


--Forwarded Message Attachment--
Date: Sat, 31 Jan 2009 13:39:43 -0800
From: dca...@earthlink.net
To: fr...@franksheldon.com; tmic-list@eskimo.com
Subject: Re: [TMIC] Victory Junction










Sorry, only for kids that have TM to give 
them the opportunity to meet other kids with TM.  We get our chance to meet 
others during the symposia, so this one is for the kids:-)
 

  - Original Message - 
  From: 
  fr...@franksheldon.com 
  To: Deborah Nord Capen ; tmic-list@eskimo.com 
  Sent: Saturday, January 31, 2009 1:32 
  PM
  Subject: Re: [TMIC] Victory 
Junction
  

> I know there are a few parents on the list who have 
  children between the > ages of 6-16. 

Sounds great!

One 
  question-If  I have a child below the age of 16 who doesn't have tm 
  (totally healthy), but I do ( Age unknown), can we still sign up for the 
  camp???

F



--Forwarded Message Attachment--
Date: Sat, 31 Jan 2009 19:04:39 -0500
From: wolft...@optonline.net
To: tmic-list@eskimo.com
Subject: [TMIC] OT:  Shower mod questions

Does anyone know of a handheld shower sprayer where the water flow can 
be completely
shut off from the handheld sprayer?  In doing some searches, I found 
what looks
like a nice unit:  Moen Home Care Hand Held Shower, but it only turns 
the spray
lower.
 
Thanks!
Kevin


--Forwarded Message Attachment--
Date: Sun, 1 Feb 2009 03:21:58 +
From: kimr1...@bellsouth.net
To: dca...@earthlink.net; fr...@franksheldon.com; tmic-list@eskimo.com
Subject: Re: [TMIC] Victory Junction









Just a suggestion..For Adults Shepherd Center in Atlanta offers an 
"Adventures Skill Camp" in May. Check out the site www.shepherd.org/asw 
 
They offer a fullly handicap accessable camp ground, Water Skiing, Tubbing, Jet 
Skis' rock wall climbing, zip line, water polo, scub lessons,wheel chair ruby, 
fishing, archery, canoe, kayak, if your able to "safely to the activitives 
Sherpherd will find a way for you to do these, Camp fires at night with 
marshmellow roast, skits, plays,  I belive they take as young as teens also,







Adventure Skills Workshop
May 2009

Jackson's Gap, Alabama 
 

Contact: Ashleigh Koontz 

404-350-7786

For more information: www.shepherd.org/asw 

 
-- Original message from "Deborah Nord Capen" 
: -- 





Sorry, only for kids that have TM to give them the opportunity to meet other 
kids with TM.  We get our chance to meet others during the symposia, so this 
one is for the kids:-)
 

- Original Message - 
From: fr...@franksheldon.com 
To: Deborah Nord Capen ; tmic-list@eskimo.com 
Sent: Saturday, January 31, 2009 1:32 PM
Subject: Re: [TMIC] Victory Junction


> I know there are a few parents on the list who have children between the > 
> ages of 6-16. 

Sounds great!

One question-If  I have a child below the age of 16 who doesn't have tm 
(totally healthy), but I do ( Age unknown), can we still sign up for the camp???

F







--Forwarded Message Attachment--
Date: Sun, 1 Feb 2009 00:29:15 -0500
From: jharpe...@aol.com
To: tmic-list@eskimo.com
Subject: [TMIC] February birthdays








Happy Birthday to the February kids! Hope it's a great one!
 
Please send any additions or corrections to tmic-l...@eskimo.com.
 
2-1 Jeanne Rushton (jrush...@columbiaenergyllc.com)
 
2/2 Ursula (uma...@t-online.de)
 
2/2 Lisa in TN (lsim...@aol.com)
 
2-5 Tita in Delaware (te...@flash.net 
) 
 
2-6 Barbara Alma (balmat...@aol.com) 

 
2-7 Barbara in Texas (babbsie1...@yahoo.com)
 
2-9  Frank (ftrascr...@aol.com)
 
2/11 Mary (mster...@yahoo.com 
)
 
2-11 Deb Casey (casey...@myway.com)
 
2/15 Jill (jillybean60...@yahoo.com)
 
02/16 David T. Gibson (david-gib...@uiowa.edu )
 
2/16 Diane Aja  (diane...@comcast.net)(returned)
 
2-17 JOAN FINK (mafi..

[TMIC] RE: tmic-digest Digest V2009 #74

[marieke dufresne]

Yes, depending on WHERE his lesion is/was bladder and bowel problems at a part 
of any spinal cord injury, TM Included!

Marieke RN
t...@t1

Date: Thu, 29 Jan 2009 06:56:59 -0800
From: tmic-digest-requ...@eskimo.com
Subject: tmic-digest Digest V2009 #74
To: tmic-dig...@eskimo.com



--Forwarded Message Attachment--

tmic-digest Digest  Volume 2009 : Issue 74
 
Today's Topics:
  [TMIC] Bladder control[ "Sally Wilkinson" http://www.microsoft.com/windows/windowslive/messenger.aspx

[TMIC] RE: tmic-digest Digest V2009 #40

[marieke dufresne]

I am thinking of Jude and family as well.
Marieke

Date: Wed, 21 Jan 2009 15:34:28 -0800
From: tmic-digest-requ...@eskimo.com
Subject: tmic-digest Digest V2009 #40
To: tmic-dig...@eskimo.com



--Forwarded Message Attachment--

tmic-digest Digest  Volume 2009 : Issue 40
 
Today's Topics:
  [TMIC] JUDE!  [ montzma...@aol.com ]
  RE: [TMIC] JUDE!  [ "Tami Streeter"  ]
  [TMIC][ ptpatti200...@aol.com ]
  [TMIC] Jude   [ Kevin Wolfthal mailto:montzma...@aol.com] 

Sent: Wednesday, January 21, 2009
9:41 AM

To: tmic-list@eskimo.com

Subject: [TMIC]
JUDE!



 



I JUST SPOKE WITH JUDE., ITS NOT GOOD NEWS AT ALL.THE DR.
JUST LEFT AND TOLD HER THE INFECTION IS THRU HER WHOLE BODY. THEY NOW ARE
CALLING IN A INFECTIOUS DISEASE DR,
WELL ITS TO LATE.





SHE TOLD ME FOR ALL WHO PRAY TO PRAY FOR
HER.SHE DOES NOT THINK THERE IS ANYTHING THEY CAN DO FOR HER.





SHE DOES NOT WANT DAVE TO KNOW YET WHAT
THE DOCTOR TOLD HER. DAVE MADE A COMMENT TO HER THAT HE IS AFFRAID OF LOOSING
HER.





SHE WANTS US TO HELP DAVE THRU THIS.





ELLA, PATTI AND I HE KNOWS THE BEST. I
PROMISED WE WOULD BE THERE FOR HIM. I HAVE CALLED HIM AND E-MAILED HIM.SHE IS
SUFFERING SO BAD I CANNOT HARDLY SEE THE KEYBOARD FROM TRYING NOT TO CRY.





SHE IS IN MC CLAIRNES HOSPITAL HER ROOM IS
1205. THE HOSPITAL NUMBER IS 810-342-2173 ITS HARD FOR HER TO GET TO THAT
PHONE.





HER CELL SHE HAS WITH HER ITS
810-252-5841.IF SHE DOES NOT ANSWER SHE IS SLEEPING ARE IN SEVERE PAIN.





I AM SO SAD BUT I KNEW THIS WOULD HAPPEN
EVNTUALLY.JUDE DOES NOT WANT US CRYING ABOUT HER BUT TO JUST REMEMBER HER.





SHE WILL ALWAYS BE WITH ME, SHE IS MY
ANGEL AND WILL BE IN MY HEART ALWAYS .I WISH I COULD BE WITH HER BUT I CANNOT.





I HOPE PATTI SEES THIS AND COULD GO AND
SING TO HER, SHE LIKES THAT AND SEEING PATTI. I AM GOING TO WRITE PATTI JUST IN
CASE SHE DID NOT GET THIS MESSAGE! NO
MATTER WHAT HAPPENS I HOPE JUDE GOES QUIETLY IN HER SLEEP WITH NO PAIN.





BUT SHE DIED TWICE ON US BEFORE SO WE JUST
HAVE TO WAIT THIS OUT





   
GOD BLESS JUDE AND DAVE AND OUR TM FAMILY!





 

















A Good Credit Score is 700 or Above. See
yours in just 2 easy steps!










--Forwarded Message Attachment--
Date: Wed, 21 Jan 2009 12:43:23 -0500
From: ptpatti200...@aol.com
To: tmic-list@eskimo.com
Subject: [TMIC] 


I talked with Jude for a few minutes before her cell phone battery went dead.   
We talked about her worries for her husband Dave.  Their pastor is going to 
visit her this afternoon so she is going to talk with him about her concerns 
for Dave.  

I'm not able to visit Jude today as I have an appointment for a colonoscopy at 
a different hospital in two hours, but I will go and see her tomorrow.  

 I am praying for her comfort and for strength for both Jude and Dave.



Patti - Michigan

 Which stars will make the biggest headlines in 2009? Get Hollywood 
predictions, celebrity photos and more with the PopEater Toolbar. 


--Forwarded Message Attachment--
Date: Wed, 21 Jan 2009 15:10:24 -0500
From: wolft...@optonline.net
To: tmic-list@eskimo.com
Subject: [TMIC] Jude

Prayers going out to Jude and her husband.
 
Kevin

_

[TMIC] RE: tmic-digest Digest V2009 #34

[marieke dufresne]

I sent them an email, to their account... with links with info and pics.
Marieke

Date: Sat, 17 Jan 2009 10:11:26 -0800
From: tmic-digest-requ...@eskimo.com
Subject: tmic-digest Digest V2009 #34
To: tmic-dig...@eskimo.com



--Forwarded Message Attachment--

tmic-digest Digest  Volume 2009 : Issue 34
 
Today's Topics:
  Re: [TMIC] OT- The Numbers-OT [ balmat...@aol.com ]
  [TMIC] The Spinal Cord[ heyjude48...@aol.com ]
  Re: [TMIC] The Spinal Cord[ kevin weilacher http://www.reeve.uci.edu/anatomy/scns.php

I think I also need to post this website in the TM Resources section of the TM 
Network. 

Kevin
http://dealingwithtm.blogspot.com/
http://transversemyelitis.ning.com/
From: "heyjude48...@aol.com" 
To: TMIC-LIST@eskimo.com
Sent: Saturday, January 17, 2009 4:09:03 AM
Subject: [TMIC] The Spinal Cord



AOL Email
 
 




  
  

  
  Hello Dear Ones,
   
  A short while ago there was a new member who 
  asked about where on his/her body  their lesion was.  They new 
  enough to say, for instance, mine is at T3. But, they weren't sure where 
  that area is on the spinal cord.
   
  I was wondering if that person's question had 
  gotten answered.  I don't recall a discussion on a topic like that, 
  but is that something we need to discuss? (Instead of jokes, jokes, 
  jokes)
   
  I have been thinking about how and when it is 
  that I get myself in trouble writing something confusing and it is when I 
  get bored.  What about you?
   
  By the way, the answer to that question could 
  have been by giving the person a link so that they would learn to do 
their 
  own research, or we might do the research ourselves and have one or more 
  people offer a discussion on the topic.
   
  I have two questions:  Did that member ever get an answer to their 
question?  
  
  Or do I need to get busy and help 
  them out?
   
  God loves you and so do 
  I,
  Jude
   
   


A Good Credit Score is 700 or Above.  See yours in just 2 easy steps!


  

--Forwarded Message Attachment--
Date: Sat, 17 Jan 2009 08:18:49 -0800
From: jmh1...@sbcglobal.net
To: heyjude48...@aol.com; tmic-list@eskimo.com
Subject: Re: [TMIC] The Spinal Cord

I think that information is available on the TMA website.  janh










But, they weren't sure where that area is on the spinal cord.
 
By the way, the answer to that question could have been by giving the person a 
link so that they would learn to do their own research.
 
  
 

 
 





A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

--Forwarded Message Attachment--
Date: Sat, 17 Jan 2009 10:02:28 -0600
From: jrush...@columbiaenergyllc.com
To: heyjude48...@aol.com; tmic-list@eskimo.com
Subject: Re: [TMIC] The Spinal Cord















I don't recall the question but I don't get all of the TMIC e-mail for some 
reason.  I do so hope the person got an answer.  I just can't imagine this 
group not helping.  Does anyone else remember?  It would sure be an easy one to 
answer!  I hope you are doing well, dear Jude!!  Hugs for everyone..j
 

---Original Message---
 

From: heyjude48...@aol.com
Date: 1/17/2009 3:09:30 AM
To: TMIC-LIST@eskimo.com
Subject: [TMIC] The Spinal Cord
 






Hello Dear Ones,
 
A short while ago there was a new member who asked about where on his/her body  
their lesion was.  They new enough to say, for instance, mine is at T3. But, 
they weren't sure where that area is on the spinal cord.
 
I was wondering if that person's question had gotten answered.  I don't recall 
a discussion on a topic like that, but is that something we need to discuss? 
(Instead of jokes, jokes, jokes)
 
I have been thinking about how and when it is that I get myself in trouble 
writing something confusing and it is when I get bored.  What about you?
 
By the way, the answer to that question could have been by giving the person a 
link so that they would learn to do their own research, or we might do the 
research ourselves and have one or more people offer a discussion on the topic.
 
I have two questions:  Did that member ever get an answer to their question?  
Or do I need to get busy and help them out?
 
God loves you and so do I,
Jude
 
 





A Good Credit Score is 700 or Above. See yours in just 2 easy steps!
 









_
Keep in touch and up to date with friends and family. Make the connection now.
http://www.microsoft.com/windows/windowslive/

[TMIC] RE: tmic-digest Digest V2009 #20

[marieke dufresne]

RE: IVIG, I had it after the first 3 weeks of TM. I had it every day for 5 
days. There is no reason to have it more often UNLESS you have a recurring 
autoimmune disorder, ie: if your TM is recurring. No point if you had ONE 
attack many years ago, it would not change anything now.
I got some movement back following the IVIG, but no one knows if it was due to 
that or the steroids or
Marieke RN
TM @T1 since March 2004

Date: Sun, 11 Jan 2009 14:28:43 -0800
From: tmic-digest-requ...@eskimo.com
Subject: tmic-digest Digest V2009 #20
To: tmic-dig...@eskimo.com



--Forwarded Message Attachment--

tmic-digest Digest  Volume 2009 : Issue 20
 
Today's Topics:
  [TMIC] Washington Post article/Intra  [ "Trudy Ogilvie" From: "Trudy Ogilvie" 
>To: "C E" 
>CC: tmic-list@eskimo.com
>Subject: [TMIC] Washington Post article/Intravenous immune globulin
>Date: Sun, 11 Jan 2009 13:16:24 -0500
>
>Did anyone get a chance to read the Washington Post article I sent out. A
>young teenager was given intravenous immune globulin." at Children's
>hospital after he was diagnosed with Transverse Myelitis, when the steroids
>didn't work. Two weeks later he walked out and has made the basketball team
>at his college. I asked my neuro about this and she said that it was too
>late for me, but if I insisted she would help me work with Medicare (they
>really give you a hard time!) to give it a try. Tho she said I would have 
>to
>have these infusions every 8 weeks or so for the rest of  my life? She did
>say that she doubted very much that it would help at all. Has anyone
>here ever had these infusions...??
>
>Carol I was wondering if you could talk to your neuro?   Just a thought!
>
>Also I use the same quote as you but it's only on my Hotmail account.. It
>was nice to see it again!
>Trudy

_
Keep in touch and up to date with friends and family. Make the connection now.
http://www.microsoft.com/windows/windowslive/

[TMIC] RE: tmic-digest Digest V2008 #501

[marieke dufresne]

RE: SNOW... for all those of you who LIKE it, please come and TAKE OURS in 
Montreal, QC!
I had to go out today and nearly wiped out on the ice! I seriously hate snow 
and would love to live somewhere HOT! LOL
Marieke TM @ T1 since March 2004

Date: Fri, 12 Dec 2008 04:17:51 -0800
From: tmic-digest-requ...@eskimo.com
Subject: tmic-digest Digest V2008 #501
To: tmic-dig...@eskimo.com



--Forwarded Message Attachment--

tmic-digest Digest  Volume 2008 : Issue 501
 
Today's Topics:
  Re: [TMIC] SNOW!  [ "Trudy Ogilvie"  ]
  Re: [TMIC] SNOW!  [ heyjude48...@aol.com ]


--Forwarded Message Attachment--
Date: Thu, 11 Dec 2008 22:21:58 -0500
From: mother...@gmail.com
To: suret...@sympatico.ca
CC: patticoo...@wi.rr.com; tmic-list@eskimo.com
Subject: Re: [TMIC] SNOW!!

Gerry,You've got the prayers and positive thoughts... especially with this 
group...  That's exactly how I like my snow in front of a fireplace.. 
tonight we are getting deluged with rain here in Northern Va. With all that we 
have yet to do for Christmas I guess rain is the best thing right now...
Take care of yourself and know you are in my prayers..  Trudy


On Thu, Dec 11, 2008 at 3:13 PM, Gerry Surette  wrote:

We in Montreal have received 10 inches of snow 3 inches of freezing rain then 
another 3 inches of snow. tonight and tomorrow  another 8 inches of snow. I 
love seeing it on the ground it is beautiful; being housebound it is a joy to 
see it I regret the number of people who have to go out in this. please keep me 
in your prayers as my white blood count cell count has gone down to 22,000. the 
critical level is 25,000. I can bleed uncontrolably. I have been prescribed an 
anti rejection transplant pills which is suppose to prevent this. I had my 
spleen removed  on April 29th. but Apparantly didn't work. I need all the 
prayes and positive thouths. otherwise I feel great for the shape I am in. gerry





From: "Patricia Cooley" 

To: , 

Subject: RE: [TMIC] SNOW!!

Date: Thu, 11 Dec 2008 10:59:03 -0600



Enjoy it Pam.  We just had a 7 to 12 inch snow fall on Tuesday and it is

COLD - in the low to mid 20's.  We are scheduled to have over 100 inches of

snow this year.  We would be glad to send some to you so you can continue to

enjoy.  The kids would love it.  I am waiting for Spring.  Hopefully, I

won't be so cold.







Patti in Wisconsin







From: montzma...@aol.com [mailto:montzma...@aol.com]

Sent: Thursday, December 11, 2008 8:04 AM

To: tmic-list@eskimo.com

Subject: [TMIC] SNOW!!







ITS SNOWING HERE. THE KIDS ARE OUT OF SCHOOL. YESTERDAY IT WAS IN THE 70S.

THATS La. WEATHER FOR YOU! IT WILL FREEZE TONIGHT THEN

BE IN THE 50S FOR THE WEEKEND.



HAD A SCORT ON YESTERDAY TODAY I AM ALL BUNDLED UP.



ALOT OF WRECKS THOUGH JUST FENDER BENDERS.WE DO NOT KNOW HOW TO DRIVE IN

THIS WEATHER.MY HUSBAND HAD A FIT DRIVING TO WORK AS SO MANY OTHERS DID.



THIS IS GREAT!!! LAST TIME WE HAD SNOW WAS IN 2004 BUT

IT DID NOT STAY ON THE GROUND ARE ON OUR ROOFS.



ALL THE KIDS ARE SO EXCITED!!!



   TIAD PAM!!











  _



Make your life easier with all your friends, email, and favorite sites in

one place. Try

  it now.












--Forwarded Message Attachment--
Date: Thu, 11 Dec 2008 21:16:29 -0700
From: cherp...@msn.com
To: suret...@sympatico.ca; mother...@gmail.com
CC: patticoo...@wi.rr.com; tmic-list@eskimo.com
Subject: Re: [TMIC] SNOW!!











Gerry,
It is awesome to be inside all warm and cozy and look outside 
at the beautiful winter wonderland. God is quite the artist.
 
Many prayers coming your way.  Please excuse my memory, 
but do you also have ITP?  My little granddaughter has it and it has been a 
battle for years.  The doctors wanted to remove her spleen at one time, but 
my daughter really wanted to wait.  Her blood count did finally come up to 
50,000 but it still goes up and down.  Are you still on the anti-rejection 
medication?  If not, what is the next step?  Will the doctors try 
IVIG?
 
Please keep us posted as you know we need to know how you're 
doing.  Continued prayers and positive thoughts.  Try to get lots of 
rest.
 
Hugs,
Linda in Eagle, ID where it is supposed to snow 
tomorrow.  It's only 18 degrees now so it should be a really "fluffy" 
snow.  We need it - we haven't even had rain!

  - Original Message - 
  From: Trudy Ogilvie 
  To: Gerry Surette 
  Cc: patticoo...@wi.rr.com ; tmic-list@eskimo.com 
  Sent: Thursday, December 11, 2008 8:21 
  PM
  Subject: Re: [TMIC] 
  SNOW!!
  
Gerry, 
  You've got the 
  prayers and positive thoughts...

[TMIC] RE: tmic-digest Digest V2008 #485

[marieke dufresne]

Hi, sorry to correct you Janh, but I think either you or your neuro was 
mistaken..

RE: Banding VS l'Hermitte's sign
These are two different things.
L'Hermittes sign is the name given to an electric shock-like sensation felt. 
Typically, the electric shock-like sensation radiates from the neck downwards 
and lasts for a very short duration; usually less than a second. The sensations 
can repeat indefinitely so that it might feel almost continuous.

The areas affected by Lhermitte's sign are usually the arms and / or the legs, 
although the sensations can radiate to the trunk.
Lhermitte's sign gets its name from the person who first characterized it, 
Jacques Jean Lhermitte, and is sometimes (rarely) known as 'barbers chair 
phenomenon'.

This is because of the way that Lhermitte's response is triggered; by flexing 
the neck forwards. When the head moves in this way, the electric shock like 
sensations are triggered.

BANDING: (most common in MS hence the MS HUG name)
What Causes the "MS Hug?"

It is caused by a lesion on the spinal cord and is technically classified as a 
neuropathic pain called a “paresthesia,” which refers to any abormal sensation. 
The sensation itself is the result of tiny muscles between each rib 
(intercostal muscles) going into spasm. These muscles have the job of holding 
our ribs together, as well as keeping them flexible and aiding in movement, 
like forced expiration.
What Does It Feel Like?

Like many MS symptoms, the “MS hug” feels different for different people – it 
also feels different in the same people on different days or at different times 
of day. It can be:
As low as the waist or as high as the chest; rarely it can be felt as high as 
the shoulders and neck
Focused in one small area (usually on one side or in the back) or go all the 
way around the torso
Worse when fatigued or stressed
Present in “waves” lasting seconds, minutes or hours or can be steady for 
longer periods of time
Described as sharp pain, dull pain, burning pain, tickling, tingling, a 
crushing or constricting sensation or intense pressure.

As you can see they are two different things with two very different causes.

Marieke, RN
TM @ T1 since 2004


That band is called L'Hermitte's and one of my doctors told me it's where the 
"break"
in nerves were..that it essentially was the nerve endings trying to find a 
connection...
I think that is an over-simplified explanation so I'd comprehendI had 
it so bad
that at times I thought I wouldn't be able to breathe..I thought it might 
be the bra-
God getting even with me for hating bras!!  It finally 'went away' but returns 
when I've overdone or have let myself get too tired. It no longer is as strong 
as in the beginning
so just know that time will help!
My 2¢  janh in OK

--- On Thu, 12/4/08, jrushton <[EMAIL PROTECTED]> wrote:


 In response to:


 
 Jeanne, when I was the hospital I had a band around my waist like a steel 
band.  After some time out of the hospital and for
many years it has been a band of pain. No medication relieved it.  It was 
especially bad when i laid on my back.
Ken in N.M.

 
It is pretty horrible, isn't it, Ken?  This is the first real relief I've 
gotten from it since the onset.  Just don't give up...we can't...j



_

[TMIC] RE: tmic-digest Digest V2008 #477

[marieke dufresne]

Patti, I have it up on YouTube. It's Grace, who posts on this site. It's in 3 
parts.
http://www.youtube.com/watch?v=1QFmF6Bh1gg
http://www.youtube.com/watch?v=k1wdFSx_LOw
http://www.youtube.com/watch?v=KA-tDVzp5QI


--Forwarded Message Attachment--
Date: Wed, 3 Dec 2008 12:57:59 -0600
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: RE: [TMIC] House








House








Darn I missed it.  There was a program on Discovery Health
several months ago ( I think it was called Mystery Diagnosis) that featured a
women who could not get out of bed.  After many doctors and tests , they said
it was TM, but this woman sometime later had Devics.

 

Patti in Wisconsin

 





From: Robert Pall
[mailto:[EMAIL PROTECTED] 

Sent: Wednesday, December 03, 2008 12:12 PM

To: tmic

Subject: [TMIC] House





 

Once again
on "House" last night Transverse Myelitis was mentioned….even though
House quickly ruled it out! 

Rob in New
Jersey 








--Forwarded Message Attachment--
Date: Wed, 3 Dec 2008 12:21:21 -0700
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] House




House





Patti in Wisconsin
That was our friend Grace in the Mystery 
Diagnosis.
Heather in Calgary 

  - Original Message - 
  From: 
  Patricia 
  Cooley 
  To: 'Robert Pall' ; 'tmic' 

  Sent: Wednesday, December 03, 2008 11:57 
  AM
  Subject: RE: [TMIC] House
  

  
  Darn 
  I missed it.  There was a program on Discovery Health several months ago 
  ( I think it was called Mystery Diagnosis) that featured a women who could 
not 
  get out of bed.  After many doctors and tests , they said it was TM, but 
  this woman sometime later had Devics.
   
  Patti 
  in Wisconsin
   
  
  
  From: Robert Pall 
  [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, December 03, 2008 
  12:12 PM
To: tmic
Subject: [TMIC] 
  House
   
  Once again 
  on "House" last night Transverse Myelitis was mentioned….even though House 
  quickly ruled it out! 
  Rob in New 
  Jersey 
_

[TMIC] RE: tmic-digest Digest V2008 #422

[marieke dufresne]

Hi Jude, I can help you understand the "why can someone walk yet not feel.." 
It's because motor nerves and sensory nerves are TWO different pathways. So 
it's possible for the sensory path to be destroyed, yet have the motor path 
remain intact.
For me, my right leg feels touch but not pain (or not much) and not 
temperature, but I have full motor function. My left leg is paralyzed almost 
completely, yet I can feel pain and temp on that side, though light touch I 
don't feel (only I feel it in a few spots).

Marieke RN, TM @ T1 March 2004





AOL Email






  
  

  
  Yippee!  Way to go 
  Terry!  I know how hard you have worked for this and how long it has 
  taken you.  You deserve this good news.
   
  I am wondering...do you also have 
  sensation with the ability to walk?  Or, have you always had 
  it?  Never had it? 
   
  For the life of me, I don't 
  understand it when people say that they are walkers but have no sensation 
  and have to watch with every step where their feet are placed.  It 
  must be so difficult.
   
  I shed tears of joy for you 
  Terry...and for you Sparker...you know how much I love 
  you.
   
  God Bless You again and 
  again,
  Jude
   
  






 


Get the Moviefone Toolbar. Showtimes, theaters, movie news & more!
_

[TMIC] RE: tmic-digest Digest V2008 #411

[marieke dufresne]

re: Solu-Medrol
I had it for 5 days (I think most of us had it when we had the acute attack of 
TM). It can cause nightmares, and make you anxious, makes your glucose (blood 
sugar) rise, so be careful of what you eat. The side effects disappear once you 
stop it though. It's very effective in bringing down the inflammation.
http://www.drugs.com/cdi/solu-medrol-solution.html

Tegretol:
I never used it, but others I know have.
http://www.drugs.com/cdi/tegretol.html

Marieke, RN
TM since 2004 @ T1




--Forwarded Message Attachment--
Date: Wed, 12 Nov 2008 10:19:18 -0800
From: [EMAIL PROTECTED]
To: tmic-list@eskimo.com; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL 
PROTECTED]
Subject: [TMIC] Question from Randy



Randy  asked me to forward this.  Anyone what to tell him their experience with 
Solu-Medrol? 
 Jenna
[EMAIL PROTECTED]



Ok u might forward this to group. I have no forward ability on blackberry. They 
are treating me with IV methyprnisolone (solu-medrol) and added tergetal for 
the facial pain. Could someone look up, explain or add personal experiences 
from the methyprnisolone.
From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>
To: Jenna <[EMAIL PROTECTED]>
Sent: Wednesday, November 12, 2008 9:01:11 AM
Subject: Re: October TM meeting

Great news the doc says that it  isn't ms. The facial nerves are inflamed but 
the brain stem is ok. Theyu don't knw the cause but believe it is an ear 
infection that attacked the nervous system. But it isn't a nuro problem per 
say. The steriods seem to be working. They also have a better ENT going to look 
at me. They say that I will probably have to have surgery on inner ear. But 
that is left up to the ENT.


_

[TMIC] RE: tmic-digest Digest V2008 #376

[marieke dufresne]

Hope all goes well for Pam. I don't understand why she has had this done many 
times.. she should be wearing an AFO (ankle-foot-orthosis) then to prevent this 
from happening again then.
Marieke RN.  TM @T1 since 2004

Date: Thu, 23 Oct 2008 15:06:39 -0700
From: [EMAIL PROTECTED]
Subject: tmic-digest Digest V2008 #376
To: [EMAIL PROTECTED]



--Forwarded Message Attachment--

tmic-digest Digest  Volume 2008 : Issue 376
 
Today's Topics:
  [TMIC] I just talked to Pm[ [EMAIL PROTECTED] ]
  Re: [TMIC] About Pam  [ [EMAIL PROTECTED] ]
  Re: [TMIC] I just talked to Pm[ [EMAIL PROTECTED] ]
  [TMIC] Fwd: FW: FAVORITE EMAIL[ [EMAIL PROTECTED] ]


--Forwarded Message Attachment--
Date: Wed, 22 Oct 2008 16:51:02 -0400
From: [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Subject: [TMIC] I just talked to Pm






She is doing fine (and thanks you for your calls) but this Friday she will be 
having surgery on the her left (?) leg for a heel/chord stretch. I just talked 
to her and forgot already but something about her toes are turning under. Her 
therapist had come in so I will call her laterElla


Play online games for FREE at Games.com! All of your favorites, no registration 
required and great graphics –  
check it out!


--Forwarded Message Attachment--
Date: Wed, 22 Oct 2008 19:41:26 -0400
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] About Pam






Pam,
 
I'm so glad to hear from you.  Thank you for the update 
on Pam.  I tried to call her a couple of times, but I could not get the 
number to work.  I will try again.  If you talk to her again, tell her 
I send my love and prayers.  I am also praying for you.
 
I will be going home on Friday, and I am certainly looking 
forward to it.  I have been in this facility for 3 months receiving 
therapy.  I have made a little progress.  I am now able to feed myself 
most meals.  I'm still unable to eat soup alone, LOL.
 
I hope your IV antibiotics do the trick.  I was given IV 
Vancomycin when I was last in the hospital.  That's when I found out I was 
allergic to it.  It made me break out in hives, and itch something 
terrible.
 
Keep the faith, and know that we all are praying for you and 
Pam.
 
Pray for a Cure
God Bless you 
 
Naomi
C4-incomplete, quadriplegic since July 2005
due to Transverse 
Myelitis



Play online games for FREE at Games.com! All of your favorites, no registration 
required and great graphics –  
check it out!


--Forwarded Message Attachment--
Date: Wed, 22 Oct 2008 20:19:58 -0400
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; TMIC-LIST@eskimo.com
Subject: Re: [TMIC] I just talked to Pm




AOL Email






  
  

  
   
  Hi guys,
   
  The leg muscles in her leg are shortening and 
  pulling her foot and toes under.  The surgery will involve (if I got 
  it straight) cutting the muscle in the back of her leg, above her 
  heel.  She says that she has had this procedure many times and it is 
  no big deal, but it sounds like no fun to me.  I am not sure that I 
  completely understand the whole thing...maybe someone else will 
  explain it better.
   
  Peace and Prayers,
  Jude
  
  In a message dated 10/22/2008 4:51:27 P.M. Eastern Daylight Time, 
  [EMAIL PROTECTED] writes:
  She is doing fine (and thanks 
you for your calls) but this Friday she will be having surgery on the 
her left (?) leg for a heel/chord stretch. I just talked to her and 
forgot already but something about her toes are turning under. Her 
therapist had come in so I will call her 
laterElla





Play online games for FREE at Games.com! All of your favorites, no 
registration required and great graphics – check 
it 
out!


Play online games for FREE at Games.com! All of your favorites, no registration 
required and great graphics –  
check it out!


--Forwarded Message Attachment--
Date: Thu, 23 Oct 2008 16:51:21 -0400
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; 
[EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: [TMIC] Fwd: FW: FAVORITE EMAIL








 
 


  
  
  From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED], 
  [EMAIL PROTECTED], [EMAIL PROTECTED], [EMAIL PROTECTED], 
  [EMAIL PROTECTED], [EMAIL PROTECTED], [EMAIL PROTECTED], 
  [EMAIL PROTECTED], [EMAIL PROTECTED], [EMAIL PROTECTED], 
  [EMAIL PROTECTED], [EMAIL PROTECTED], [EMAIL PROTECTED], 
  [EMAIL PROTECTED]
Sent: 10/23/2008 1:34:15 P.M. Eastern Daylight 
  Time
Subj: FW: FAVORITE EMAIL

   
  
   
   
  
  
  From: 
  [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: 
  Thursday, October 23, 2008 1:21 PM
To: Nicole 
  Padden
Subject: Fw: FAVORITE EMAIL
   
  Sent via BlackBerry by AT&T
  
  
  
  From: "Bob Bumbalough" 
  <[EMAIL P

[TMIC] RE: tmic-digest Digest V2008 #362

[marieke dufresne]

What does this have to do with TRANSVERSE MYELITIS?? Please.. let's leave 
politics OUT of these massages!

Marieke

Date: Tue, 14 Oct 2008 06:56:48 -0700
From: [EMAIL PROTECTED]
Subject: tmic-digest Digest V2008 #362
To: [EMAIL PROTECTED]



--Forwarded Message Attachment--

tmic-digest Digest  Volume 2008 : Issue 362
 
Today's Topics:
  [TMIC] Fwd: 143 days Makes Sense  [ [EMAIL PROTECTED] ]
  Re: [TMIC] Fwd: 143 days Makes Sense  [ CANDIS KALLEY <[EMAIL PROTECTED] ]


--Forwarded Message Attachment--
Date: Tue, 14 Oct 2008 09:43:49 -0400
From: [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Subject: [TMIC] Fwd: 143 days Makes Sense








 
 


  
  
  From: NALL ASSOC
To: [EMAIL PROTECTED], [EMAIL PROTECTED], 
  [EMAIL PROTECTED], [EMAIL PROTECTED], [EMAIL PROTECTED], 
  [EMAIL PROTECTED], [EMAIL PROTECTED], [EMAIL PROTECTED], 
  [EMAIL PROTECTED], GAYLON123, [EMAIL PROTECTED], 
  [EMAIL PROTECTED], [EMAIL PROTECTED], [EMAIL PROTECTED], 
  [EMAIL PROTECTED], RedBaron12491, Dnall3946, [EMAIL PROTECTED], 
  [EMAIL PROTECTED], [EMAIL PROTECTED], [EMAIL PROTECTED], 
  [EMAIL PROTECTED]
Sent: 10/13/2008 10:42:44 P.M. Eastern Daylight 
  Time
Subj: Fwd: 143 days Makes Sense

   
   



  
  
  New MapQuest Local shows what's happening at your destination. Dining, 
  Movies, Events, News & more. Try it out! 
  
-
Forwarded Message: 

  


  

  
  
Subj:
143 days Makes Sense 
  
Date:
10/13/2008 2:04:02 P.M. Eastern Daylight Time
  
From:
[EMAIL PROTECTED]
  
To:
[EMAIL PROTECTED], [EMAIL PROTECTED]
  
Sent from the Internet (Details)
   
  
  

  

  
  
  
   
  
  
  
 
  
  
  
   
  
   
  
  
   
  





  
  
  
  
  
  
  
  
  This 
  really makes sense.

You couldn't 
  get a job at McDonalds and become district manager after 143 days of 
  experience.

You couldn't become chief of surgery after 143 days of 
  experience of being a surgeon.

You couldn't get a job as a teacher 
  and be the superintendent after 143 days of experience.

You 
  couldn't join the military and become a colonel after 143 days of 
  experience.

You couldn't get a job as a reporter and become the 
  nightly news anchor after 143 days of 
  experience.

BUT

'From the time Barack Obama was sworn in 
  as a United State Senator, to the time he announced he was forming a 
  Presidential exploratory committee, he logged 143 days of experience in 
  the Senate.
  
  
  
  
  

That's 
  how many days the Senate was actually in session and 
  working. 

After 
  143 days of work experience, Obama believed he was ready to be Commander 
  In Chief, Leader of the 
  Free World  143 days.

We all have to start somewhere. The 
  senate is a good start, but after 143 days, that's all it is -- a 
  start.

And strangely, a large sector of the American public is 
  okay with this and campaigning for him. 
We wouldn't accept this 
  in our own line of work, yet some are okay with this for the President of 
  the United States of America? 

Come on folks, we are not 
  voting for the next American Idol!

Please, 
  please forward this before it's too 
  late
  
   
  
  
  
  McCain 
  or Obama? Stay updated on coverage of the Presidential race while you browse 
- 
  Download Now! 



New MapQuest Local shows what's happening at your destination. Dining, Movies, 
Events, News & more. Try it out! 


--Forwarded Message Attachment--
Date: Tue, 14 Oct 2008 09:49:17 -0400
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] Fwd: 143 days Makes Sense



I for one, as a member of this family, believe in the saying "NEVER BORROW 
MONEY OR TALK POLITICS WITH FRIENDS OR FAMILY!"
That's all I've got to say.


Life is short! Break the rules! Forgive quickly! Kiss slowly! 
Love truly, Laugh uncontrollably . 
And never regret anything that made you smile.


Prayers and thoughts for you and yours,

Candy K.


- Original Message -
From: [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Sent: Tuesday, October 14, 2008 8:43:49 AM (GMT-0500) America/Bogota
Subject: [TMIC] Fwd: 143 days Makes Sense



 
 




From: NALL ASSOC
To: [EMAIL PROTECTED], [EMAIL PROTECTED], [EMAIL PROTECTED], [EMAIL PROTECTED], 
[EMAIL PROTECTED], [EMAIL PROTECTED], [EMAIL PROTECTED], [EMAIL PROTECTED], 
[EMAIL PROTECTED], GAYLON123, [EMAIL PROTECTED], [EMAIL PROTECTED], [EMAIL 
PROTECTED], [EMAIL PROTECTED], [EMAIL PROTECTED], RedBaron12491, Dnall3946, 
[EMAIL PROTECTED], [EMAIL PROTECTED], [EMAIL PROTECTED], [EMAIL PROTECTED], 
[EMAIL PROTECTED]
Sent: 10/13/2008 10:42:44 P.M. Eastern Daylight Time
Subj: Fwd: 1

[TMIC] RE: tmic-digest Digest V2008 #352

[marieke dufresne]

Add me to the October birthday list, LOL. October 14
Marieke Dufresne!

Date: Wed, 1 Oct 2008 07:40:10 -0700
From: [EMAIL PROTECTED]
Subject: tmic-digest Digest V2008 #352
To: [EMAIL PROTECTED]



--Forwarded Message Attachment--

tmic-digest Digest  Volume 2008 : Issue 352
 
Today's Topics:
  RE: [TMIC] October Birthdays  [ "Patricia Cooley" <[EMAIL PROTECTED] ]


--Forwarded Message Attachment--
Date: Wed, 1 Oct 2008 09:37:31 -0500
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: RE: [TMIC] October Birthdays



















Happy Birthday to all!

 

Pat in Wisconsin

 





From: [EMAIL PROTECTED]
[mailto:[EMAIL PROTECTED] 

Sent: Tuesday, September 30, 2008 11:10 PM

To: tmic-list@eskimo.com

Subject: [TMIC] October Birthdays





 



Cooler weather, leaves changing, football games, apple crisp...and
lots of birthdays are hallmarks of October! Best wishes and happy birthday to
the October kids!





 





Please send any additions or corrections to [EMAIL PROTECTED]







10-3  Lauren Graham ([EMAIL PROTECTED])





 





10/4 Neil McNeil ([EMAIL PROTECTED])





 





10-7 Naomi ([EMAIL PROTECTED])





 





10/08 Rudy Aceves ([EMAIL PROTECTED]
)





 





10/8 Tim Holder ([EMAIL PROTECTED])





 





10/11  Lori B. ([EMAIL PROTECTED])





 





10-11  Kate  ([EMAIL PROTECTED])





 





10-12 Diana Gray ([EMAIL PROTECTED])





 





10/14 Lanora ([EMAIL PROTECTED])





 





10/16 Sandy Parker ([EMAIL PROTECTED])





 





10/16 Linda Cherpeski ([EMAIL PROTECTED])





 





10 - 21  Renee A. in CT ([EMAIL PROTECTED])





 





10-21 Cody Kidwell ([EMAIL PROTECTED])





 





10-22  Matthew ([EMAIL PROTECTED])

  (Rachel's brother)





 





10-23 Keith ([EMAIL PROTECTED]
)





 





10-25 Debby Jones ([EMAIL PROTECTED])





 





10-26 Jim Lubin [EMAIL PROTECTED]






 





10-26 Bernie Pelow ([EMAIL PROTECTED])





 





10/27Robin ([EMAIL PROTECTED])





 





10/27 Krissy ([EMAIL PROTECTED])





 





10-28 Netta Ganor ([EMAIL PROTECTED])





 





10/31 Jennifer Spence ([EMAIL PROTECTED])





 

















Looking for simple solutions to
your real-life financial challenges? Check
out WalletPop for the latest news and information, tips and calculators.









_

[TMIC] RE: tmic-digest Digest V2008 #295

[marieke dufresne]

Hi all,

RE: Discovery Health Show.. I put it up on YouTube for any who want to watch 
it. It is in 3 parts.
http://www.youtube.com/watch?v=1QFmF6Bh1gg
http://www.youtube.com/watch?v=k1wdFSx_LOw&feature=related
http://www.youtube.com/watch?v=KA-tDVzp5QI&feature=related

And I too use TENS. I use it on my lower back actually, when I do my 8 hr 
shifts at the hospital and I am sore/pain. Works very well to decrease my pain 
levels.

Marieke, RN
[EMAIL PROTECTED] since March 18 2004
http://nurse-to-be08.blogspot.com




_
If you like crossword puzzles, then you'll love Flexicon, a game which combines 
four overlapping crossword puzzles into one!
http://g.msn.ca/ca55/208

[TMIC] Mystery ER now on YouTube

[marieke dufresne]

Mystery ER now on YouTube
I got them from Jim through email, and uploaded to YouTube. It's in 3 parts. 
They are still "processing". Part 1 is up though, the other 2 should be up 
within a few minutes (5:55 PM ET).

http://www.youtube.com/watch?v=1QFmF6Bh1gg
http://www.youtube.com/watch?v=k1wdFSx_LOw&feature=user
http://www.youtube.com/watch?v=KA-tDVzp5QI&feature=user

If it disappears, it's b/c they got taken down (not by me, but YT.. so far I 
have not had that happen, but ya never know)

Marieke RN!
TM @ T1 since 2004

_

[TMIC] RE: tmic-digest Digest V2008 #283

[marieke dufresne]

You need to see a doctor ASAP if you have not had a bowel movement in 2 
weeks... GO to the ER now, if you can't get to your doctor today/tomorrow. This 
can be very serious.

Marieke RN, TM @T1 since March 18, 2004


Forwarded Message Attachment--
Date: Mon, 14 Jul 2008 12:16:29 -0400
From: [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Subject: [TMIC] 







i know this network is very impersonabal (thats what i put it into it though) 
so, i don't mind asking about personal questions. i am serious bowel issues. i 
haven't gone to the bathroom in 2 weeks tomorrow. i am scared to death 
auto-dysflexia will set in & my head will start pounding & i 
The i’m Talkaton. Can 30-days of conversation change the world? Find out now.

_

[TMIC] RE: tmic-digest Digest V2008 #275

[marieke dufresne]

Neurontin = trade name
gabapentin = generic name
Same drug

Marieke RN
TM @ T1, 2004


--Forwarded Message Attachment--
Date: Mon, 7 Jul 2008 07:48:52 -0400
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]
CC: tmic-list@eskimo.com
Subject: RE: [TMIC]










I was told that they are - I was prescribed Neuronton & 
my meds company (Medco) sent me Gabapentin
 
BERNARD 
BUTCHER
 



From: Colleen [mailto:[EMAIL PROTECTED] 

Sent: Sunday, July 06, 2008 4:56 PM
To: 'Gerry Surette'; 
[EMAIL PROTECTED]
Cc: 
tmic-list@eskimo.com
Subject: RE: [TMIC]




 
Isn’t gabapentin and neurontin the same 
thing?  Colleen in NJ
-Original Message-
From: Gerry Surette 
[mailto:[EMAIL PROTECTED] 
Sent: Sunday, July 06, 2008 1:25 PM
To: 
[EMAIL PROTECTED]
Cc: tmic-list@eskimo.com
Subject: RE: 
[TMIC]
 
 
 
Have yiou tried gabapentin; Why are you taking 8 10 
other meds. I am not an 
md but you should certainly check with your md. re side 
effects. Why do you 
want to try lyrica? gabapentin workes the same way as 
lyrica with no side 
effects. to me and this is my personal opinion the less 
drugs you take the 
better it is.
>From: robert hennessy 
<[EMAIL PROTECTED]>
>To: 

>Subject: [TMIC] Date: Sun, 6 Jul 2008 12:31:30 
-0400
> 
>thanks to everyone who replied. let me clarify some 
of the meds i take. 
>3600 milligrams of nuerotonin/day, baclofen, 
zanaflex, fioricet, i also 
>take coumadin, so asperin is out of question. i also 
take about 9-10 other 
>drugs for various things. do you think a switch to 
lyrica would be worth my 
>time? b/c it will take awhile to get weened off the 
nuerotonin.
>_
>Need to know now? Get instant answers with Windows 
Live Messenger.
>http://www.windowslive.com/messenger/connect_your_way.html?ocid=TXT_TAGLM_WL_messenger_072008
 
 
 
 
-- 
No virus found in this incoming 
message.
Checked by AVG. 
Version: 7.5.524 / Virus Database: 270.4.5/1537 - 
Release Date: 7/6/2008 5:26 AM
 


--Forwarded Message Attachment--
Date: Mon, 7 Jul 2008 09:04:35 -0400
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]
CC: tmic-list@eskimo.com
Subject: RE: [TMIC]

yes I believe they are the same; Gabapentin is the generict of neuronton. 
but much less expensive
 
>From: "Butcher, Bernard G (NY80)" <[EMAIL PROTECTED]>
>To: <[EMAIL PROTECTED]>,"Gerry Surette" 
><[EMAIL PROTECTED]>,<[EMAIL PROTECTED]>
>CC: 
>Subject: RE: [TMIC]
>Date: Mon, 7 Jul 2008 07:48:52 -0400
>
>I was told that they are - I was prescribed Neuronton & my meds company
>(Medco) sent me Gabapentin
>
>BERNARD BUTCHER
>
>
>
>
>From: Colleen [mailto:[EMAIL PROTECTED]
>Sent: Sunday, July 06, 2008 4:56 PM
>To: 'Gerry Surette'; [EMAIL PROTECTED]
>Cc: tmic-list@eskimo.com
>Subject: RE: [TMIC]
>
>
>
>
>
>Isn't gabapentin and neurontin the same thing?  Colleen in NJ
>
>-Original Message-
>From: Gerry Surette [mailto:[EMAIL PROTECTED]
>Sent: Sunday, July 06, 2008 1:25 PM
>To: [EMAIL PROTECTED]
>Cc: tmic-list@eskimo.com
>Subject: RE: [TMIC]
>
>
>
>
>
>
>
>Have yiou tried gabapentin; Why are you taking 8 10 other meds. I am not
>an
>
>md but you should certainly check with your md. re side effects. Why do
>you
>
>want to try lyrica? gabapentin workes the same way as lyrica with no
>side
>
>effects. to me and this is my personal opinion the less drugs you take
>the
>
>better it is.
>
> >From: robert hennessy <[EMAIL PROTECTED]>
>
> >To: 
>
> >Subject: [TMIC] Date: Sun, 6 Jul 2008 12:31:30 -0400
>
> >
>
> >thanks to everyone who replied. let me clarify some of the meds i take.
>
>
> >3600 milligrams of nuerotonin/day, baclofen, zanaflex, fioricet, i also
>
>
> >take coumadin, so asperin is out of question. i also take about 9-10
>other
>
> >drugs for various things. do you think a switch to lyrica would be
>worth my
>
> >time? b/c it will take awhile to get weened off the nuerotonin.
>
> >_
>
> >Need to know now? Get instant answers with Windows Live Messenger.
>
> >http://www.windowslive.com/messenger/connect_your_way.html?ocid=TXT_TAG
>LM_WL_messenger_072008
>
>
>
>
>
>
>
>
>
>--
>
>No virus found in this incoming message.
>
>Checked by AVG.
>
>Version: 7.5.524 / Virus Database: 270.4.5/1537 - Release Date: 7/6/2008
>5:26 AM
>
>
>


--Forwarded Message Attachment--
Date: Mon, 7 Jul 2008 09:40:59 -0400
From: [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Subject: [TMIC] TMA Newsletter
















Hi all,

I felt so compelled to write after reading the first few
pages of the newsletter. Normally when the newsletter arrives, it sits on my
desk for a bit and then I slowly read through it and it takes quite a while for
me to finish it. This time, I set it on the desk and this morning I decided to
start reading and I couldn’t put it down.

The story and the letters were so inspiring. 

This TM affliction affects all of us in totally different
ways, yet there are s

[TMIC] RE: tmic-digest Digest V2008 #271

[marieke dufresne]

I switched to Lyrica as Neurontin just wasn't working well enough for me 
anymore. I was on 3600mg of Neurontin and now take 300-450mg Lyrica a day with 
NO side effects, whereas the Neurontin was affecting my concentration. I was 
also on Baclofen and Zanaflex, for spasms/spasticity, Florinef and Amatine, for 
my LOW blood pressure Nortryptaline, for pain at night, Senokot and Colace, 
Bisacodyl suppository for bowel, oxybutynin for bladder. As well Naproxyn or 
Relpax for migraines. I now no longer take the Zanaflex as unfortunatly it was 
causing my upper body to weaken (good arm was turning to uselessness). 

Marieke TM @T1, March 18 2004. Walk with a cane and a long leg brace for left 
leg.
RN ! (graduated 2008)

--Forwarded Message Attachment--
Date: Sun, 6 Jul 2008 12:31:30 -0400
From: [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Subject: [TMIC] 







thanks to everyone who replied. let me clarify some of the meds i take. 3600 
milligrams of nuerotonin/day, baclofen, zanaflex, fioricet, i also take 
coumadin, so asperin is out of question. i also take about 9-10 other drugs for 
various things. do you think a switch to lyrica would be worth my time? b/c it 
will take awhile to get weened off the nuerotonin. 
Need to know now? Get instant answers with Windows Live Messenger. IM on your 
terms.


--Forwarded Message Attachment--
Date: Sun, 6 Jul 2008 13:24:37 -0400
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]
CC: tmic-list@eskimo.com
Subject: RE: [TMIC]

Have yiou tried gabapentin; Why are you taking 8 10 other meds. I am not an 
md but you should certainly check with your md. re side effects. Why do you 
want to try lyrica? gabapentin workes the same way as lyrica with no side 
effects. to me and this is my personal opinion the less drugs you take the 
better it is.
>From: robert hennessy <[EMAIL PROTECTED]>
>To: 
>Subject: [TMIC] Date: Sun, 6 Jul 2008 12:31:30 -0400
>
>thanks to everyone who replied. let me clarify some of the meds i take. 
>3600 milligrams of nuerotonin/day, baclofen, zanaflex, fioricet, i also 
>take coumadin, so asperin is out of question. i also take about 9-10 other 
>drugs for various things. do you think a switch to lyrica would be worth my 
>time? b/c it will take awhile to get weened off the nuerotonin.
>_
>Need to know now? Get instant answers with Windows Live Messenger.
>http://www.windowslive.com/messenger/connect_your_way.html?ocid=TXT_TAGLM_WL_messenger_072008


--Forwarded Message Attachment--
Date: Sun, 6 Jul 2008 10:33:18 -0500
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: RE: [TMIC]















Good answer, Gerry.  As an RN, I have seen way too much of this and always feel 
it's poor MD control, not the fault of the patient.  
 
Jeanne in Dayton
 
---Original Message---
 

From: Gerry Surette
Date: 7/6/2008 12:26:29 PM
To: [EMAIL PROTECTED]
Cc: tmic-list@eskimo.com
Subject: RE: [TMIC]
 
 
Have yiou tried gabapentin; Why are you taking 8 10 other meds. I am not an
md but you should certainly check with your md. re side effects. Why do you
want to try lyrica? gabapentin workes the same way as lyrica with no side
effects. to me and this is my personal opinion the less drugs you take the
better it is.
>From: robert hennessy <[EMAIL PROTECTED]>
>To: 
>Subject: [TMIC] Date: Sun, 6 Jul 2008 12:31:30 -0400
>
>thanks to everyone who replied. let me clarify some of the meds i take.
>3600 milligrams of nuerotonin/day, baclofen, zanaflex, fioricet, i also
>take coumadin, so asperin is out of question. i also take about 9-10 other
>drugs for various things. do you think a switch to lyrica would be worth my
>time? b/c it will take awhile to get weened off the nuerotonin.
>_
>Need to know now? Get instant answers with Windows Live Messenger.
>http://www.windowslive.com/messenger/connect_your_way.html?ocid=TXT_TAGLM_WL_messenger_072008
 
 
 











_
Try Chicktionary, a game that tests how many words you can form from the 
letters given. Find this and more puzzles at Live Search Games!
http://g.msn.ca/ca55/207

[TMIC] RE: tmic-digest Digest V2008 #218

[marieke dufresne]

RE: House episode where Amber dies:

It wasn't the Amantadine that killed her per se though, it is because it is 
excreted (gotten rid of) in the kidneys and her kidneys were damaged from the 
bus crash. Since her kidneys could not filter out the drug it built up in her 
system and turned toxic.

Marieke (now an RN!.. well Grad Pending License. LOL)

Date: Wed, 21 May 2008 08:02:51 -0700
From: [EMAIL PROTECTED]
Subject: tmic-digest Digest V2008 #218
To: [EMAIL PROTECTED]

--Forwarded Message Attachment--

tmic-digest Digest  Volume 2008 : Issue 218
 
Today's Topics:
  Re: [TMIC] 19 year TM Anniversary [ [EMAIL PROTECTED] ]
  [TMIC] OT-House   [ "Carol" <[EMAIL PROTECTED]> ]
  Re: [TMIC] OT-House   [ "Lynn Pouliot" <[EMAIL PROTECTED]> ]
  RE: [TMIC] OT-House   [ "Butcher, Bernard G (NY80)" mailto:[EMAIL PROTECTED] 

Sent: Tuesday, May 20, 2008 10:16 AM
To: Carol; 
tmic-list@eskimo.com
Subject: Re: [TMIC] OT-House



It was amantadine.  A medication that helps to 
lessen flu symptoms if taken right away.  I believe it is also given to 
people who can't get a flu shot to prevent the flu.
 
Lynn (in RI)

  - Original Message - 
  From: 
  Carol 
  
  To: tmic-list@eskimo.com 
  Sent: Tuesday, May 20, 2008 7:17 AM
  Subject: [TMIC] OT-House
  

  What was the medication that Amber took that 
  caused her death?
   
  Carol in Culver, 
IN
--Forwarded Message Attachment--
Date: Tue, 20 May 2008 07:45:32 -0500
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] 19 year TM Anniversary













Barbara, you just could not have said it better...thank you, and thank you, 
Jim, for coming into our lives..
 
Jeanne  
 

---Original Message---
 

From: [EMAIL PROTECTED]
Date: 5/20/2008 12:00:23 AM
To: [EMAIL PROTECTED];  tmic-list@eskimo.com
Subject: Re: [TMIC] 19 year TM Anniversary
 
Hi Jim,
 
I have to say that I don't do the poor me thing.  I do, once in a great while, 
wish that I was in a body that didn't ache so much and have a little pity 
party.  However, I've never wished my TM on another person and I know that 
there are always others out there that are in worse shape than myself.  When I 
am having a pity party, I generally come onto TMIC and read some emails and get 
over it pretty quickly.
 
I have to say that if I had to get something - that at least it was something 
where the people are so easy to get along with and the information that we are 
able to access from the TMIC is so valuable to all of us.  It's like saying 
that we are sorry that somebody had to get TM but glad that they found TMIC.  
All thanks to you Jim.
 
Big warm hugs to you, Barbara A 





Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL 
Food.
 








--Forwarded Message Attachment--
Date: Wed, 21 May 2008 06:02:05 -0400
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] 19 year TM Anniversary - my thanks to TMIC






Jeanne,
 
Your comment was very nice, but I mean it from the heart.  When I 
first got my TM my family told me to please, not to go onto the TM website for 
the time being.  That the info on the site was not optimistic and the 
people on the TMIC even had some pretty poor outcomes.  I made this 
promise, and I only did therapy and listened to my doctors.  When 
I first came into the TMIC I lingered for a few weeks.  It was hard to hear 
about some of the stories, as I was starting to get a decent recovery.  
>From paralysis from waist to toes, I had begun walking with a walker, so that 
was looking ok for me at that point, and hopefully more to come.
 
TMIC really made me feel a part of a community and not alone with this 
crappy TM.  I didn't know anyone else who had TM, so this was my only 
contact with anyone who had my kind of limitations who could help to teach me 
how to deal with all of it.  Mentally, I thought I was ok, but I 
wasn't.  I didn't think I needed anti-depressants, but I did.  I 
thought if I could get back to work all would be ok with me, so that's where my 
emphasis was.
 
I pushed myself to go back to work, although there were a few on TMIC who 
tried to encourage me not to.  I didn't have the energy to do it, and 
really didn't have the energy to do work and therapy, so my therapy 
suffered.  That wasn't the brightest thing I could have done.  I was a 
terrible employee, but my boss was so wonderful, allowing me to work when I 
could, at the office and at home.  It took me at least 2x as long to 
accomplish a task as it used to, as I didn't have the concentration to handle 
things properly.  It took me to totally crash to realize that I couldn't do 
my therapy and work.  In order to mentally handle it, I finally 
admitted to myself that I wasn't going to wake up one morning and not have TM, 
so I called my doc and quit working and went on a disability leave of 
absence once again, this tim

[TMIC] RE: tmic-digest Digest V2008 #185

[marieke dufresne]

re: Zanaflex.
I have been on it for 4 years, I am on quite high doses of it and it helps, 
though I wish I did not havr to take it at all. It really lowers my blood 
pressure and worsens my orthostatic hypotension. If you increase your dosage be 
sure to do it slowly over a period of up to 3 weeks, this allows your body to 
adjust to it and the possible side effects.

Marieke

Date: Wed, 23 Apr 2008 13:28:21 -0700
From: [EMAIL PROTECTED]
Subject: tmic-digest Digest V2008 #185
To: [EMAIL PROTECTED]

--Forwarded Message Attachment--

tmic-digest Digest  Volume 2008 : Issue 185
 
Today's Topics:
  [TMIC] TM ON THE NEWS HERE IN NEW OR  [ [EMAIL PROTECTED] ]
  [TMIC] JUDE!  [ [EMAIL PROTECTED] ]
  [TMIC] Pam's work for TM  [ <[EMAIL PROTECTED]> ]
  Re: [TMIC] Pam's work for TM  [ "jrushton" <[EMAIL PROTECTED] ]
  [TMIC] Archives   [ <[EMAIL PROTECTED]> ]
  [TMIC] New Medication [ "Robert Pall" <[EMAIL PROTECTED] ]
  Re: [TMIC] New Medication [ "Grace M." <[EMAIL PROTECTED]> ]
  [TMIC] Eagle vs Invacare Shower Whee  [ Akua <[EMAIL PROTECTED]> ]
--Forwarded Message Attachment--
Date: Wed, 23 Apr 2008 09:04:04 -0400
From: [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Subject: [TMIC] TM ON THE NEWS HERE IN NEW 
ORLEANS!!








WELL I FINALLY GOT THE BIGGEST NEWS PROGRAM TO DO A SEGMANT ON THE MORNING 
NEWS . IT WAS ON MONDAY MORNING. I WAS SHOCKED. 
I CONTACTED ONE OF THE ANCHORS MR. ERIC PAULSEN. HE WROTE ME BACK. HE SAID 
HE WOULD LOVE TO DO A INTERVIEW WITH ME. I TOLD HIM ALL ABOUT TM. HE NEVER 
HEARD 
OF IT.
I ASKED IF HE COULD HAVE MY DOCTORS ON TV.HE SAID HE WOULD BUT SO MUCH WAS 
GOING ON HE WOULD GET BACK TO ME , THAT WAS FRIDAY THE 18TH.TO MY SURPRISE HE 
HAD IT ON WITH DR. LUTZ MONDAY THE 21 ST.
WE HAVE SO MUCH GOING ON THE FRENCH QUARTER FEST ALL THE STARS WHERE HERE 
FOR A PLAY AND OPRAH ALSO .I DID MEET HER AND SHE TOLD ME TO WRITE TO HER AND 
SHE WOULD DO A SHOW ON TM. SHE DID SAY IT WOULD BE AWHILE.SHE HAS SO MANY SHOWS 
TAPED. SHE ALSO HAS OTHER OBLIGATIONS, PLUS SHE IS INVOLVED WITH THE 
PRESIDENTIAL CAMPAIGN.ITS STILL GOOD NEWS. SO KEEP YOUR FINGERS CROSSED.SHE HAS 
THE LETTER .I HAVE FRIENDS WHO KNOW EVERYONE AND THATS HOW I MET OPRAH AND SAT 
IN THE PRESS BOX
THE PRESIDENT WAS HERE FOR TWO DAYS. NOW ITS THE JAZZ FEST, FOR TWO WEEKS 
STARTING THURSDAY TILL SUNDAY THEN AGAIN THURSDAY TILL SUNDAY. SO MANY STARS 
WILL BE HERE. SOME LIKE BILLY JOEL AND SO MANY PEOPLE JOHN GOODMAN DELTA BURKE 
WHO LIVES HERE BRAD PITT AND HIS WIFE HAVE A HOME HERE.SO MANY BANDS THAT ARE 
GREAT. FAITH HILL HER HUSBAND TIM GRAFF TOO MANY TO NAME.ITS AS BIG AS MARD 
GRA.
I AM GOING TO ASK MY HUSBANDS COUSINS WHO HAVE FOOD AND DRINK BOOTHS THEIR 
FOR A DONATION FOR TM .I ALSO AM GOING THEIR 2 DAYS THE WEATHER IS GOING TO BE 
NICE THIS WEEK I DO NOT KNOW YET ABOUT NEXT WEEK .I AM GUTSY AND I WILL GO TO 
EVERY BOOTH AND HOPE THEY WILL DONATE TO THE TM COALITION FOR TM.
I HOPE TO GET TO MEET SOME OF THE STARS. MY FRIENDS WILL BE THERE THAT KNOW 
SO MANY POLITICIANS THEY WILL MEET THE STARS SO I HOPE I CAN ALSO.
ALL I CAN DO IS TRY.HOPE AND PRAY SOME WILL DONATE TO OUR CAUSE.
I AM GIVING A BUFFET -DANCE AT THE ELKS CLUB HERE IN SLIDELL.IT WILL BE 
FREE FOR THE LODGE AND THE BAND ARE DJ.THE FOOD I HAVE TO GO TO RESTAURANTS 
THAT 
I GO TO ALOT, I HOPE THEY WILL ALL HELP OUT. I KNOW MOST OF THE FIREMEN MY 
NEIGHBOR IS THE FIRE CHIEF IN SLIDELL, HE HAS ALOT OF PULL ALSO .I HAVE ALOT TO 
DO.
JUDE SUGGESTED WE DEDICATE IT TO DOC, I THINK THAT WOULD BE A GREAT 
IDEA.
I AM NOW THE REP FOR LA. I AM TRYING MY BEST. I HOPE THAT WE CAN GET THIS 
DISEAE KNOWN TO EVERYONE .I HAVE SPEECHES PLANED AT SCHOOLS.AND OTHER PLACES .I 
WILL SPEAK AGAIN TO THE ELKS CLUB I AM NOT SHY BUT I DO NOT FEEL I AM A GREAT 
SPEAKER.
JUDE IS GOING TO HELP ME.IF ANYONE LIKE CAROL CAN HELP I NEED IT.
GUNNY IS A BIG HELP AND I NEED TO CONTACT RICK IN TN.
EVERYONE PLEASE PRAY FOR THIS ALL TO WORK WE REALLY NEED THIS. TOMORROW MC 
CAIN IS GOING TO BE HERE. I CANNOT GO TO THAT LECTURE BUT MY FRIEND BILL WILL 
BE 
THERE AND HOPEFULLY WITH HIM AND THE MORNING NEWS SHOW THERE IT WILL BE 
ADDRESSED. I HOPE SO.THAT IS MY NEWS ITS A START.IF EVERYONE IN A DIFFERENT 
STATE WROTE THEIR NEWS REPORTERS AND ASK IF A SEGMANT COULD BE ON THE NEWS THIS 
DISEASE WOULD BE REALLY KNOWN ABOUT .THATS WHAT WE NEED. IF I CAN DO IT I KNOW 
SO MANY OTHERS COULD DO A BETTER JOB THAN ME.IT JUST TAKES A LETTER ARE A PHONE 
CALL AND FAITH.

MY MOTTO IS NEVER SAY NEVER AND 
TIAD!!
   
TIAD PAM
PS--I HOPE ALL THAT IS GOING TO THE SYMPOSEUM WILL HAVE A GREAT TIME. WISH 
I COULD BE THERE


Need a new ride? Check out the largest site for U.S. used car listings at AOL 
Autos.
--Forwarded Message Attachment--
Date: W

[TMIC] RE: tmic-digest Digest V2008 #178

[marieke dufresne]

re: Chicken pox/shingles

Yes, mild case as a child
Yes, very mild case 2.5 months before TM hit
No
Date: Sat, 19 Apr 2008 16:12:33 -0700
From: [EMAIL PROTECTED]
Subject: tmic-digest Digest V2008 #178
To: [EMAIL PROTECTED]

--Forwarded Message Attachment--

tmic-digest Digest  Volume 2008 : Issue 178
 
Today's Topics:
  Re: [TMIC] Questions  [ sal r <[EMAIL PROTECTED]> ]
  Re: [TMIC] Questions  [ "Diane" <[EMAIL PROTECTED]> ]
  Re: [TMIC] Questions  [ <[EMAIL PROTECTED]> ]
  Re: [TMIC] Questions  [ [EMAIL PROTECTED] ]
  Re: [TMIC] Questions  [ Akua <[EMAIL PROTECTED]> ]
  RE: [TMIC] Questions  [ Pat Pampel <[EMAIL PROTECTED]> ]
  Re: [TMIC] Questions  [ Lawrence King <[EMAIL PROTECTED] ]
  Re: [TMIC] Questions  [ sal r <[EMAIL PROTECTED]> ]
  Re: [TMIC] Questions  [ Jan Hargrove <[EMAIL PROTECTED] ]
--Forwarded Message Attachment--
Date: Sat, 19 Apr 2008 13:48:48 -0700
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] Questions

Oh yeah you can not get shingles if youve never had the chickenpox...

Jan Hargrove <[EMAIL PROTECTED]> wrote:1)   Light case as a child.  2)  
Yes, soon after i had tm..within 6 months. Didn't suffer because I was 
still numb.  3)  No
janh
jrushton <[EMAIL PROTECTED]> wrote:  Hi, everyone (again!)  
   I have three questions for those who would be willing to respond: 1)  
Did you ever have chicken pox? 2)  Did you ever suffer from shingles? 
3)  Did you have a flare-up of shingles prior to your being stricken with TM?   
  These are a few of the theories with TM and I'm just curious to see if any of 
'us' have experienced any or all of these. Jeanne in Dayton 
 
  


 



  Be a better friend, newshound, and 
know-it-all with Yahoo! Mobile.  Try it now.--Forwarded Message Attachment--
Date: Sat, 19 Apr 2008 16:56:54 -0400
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] Questions












1.  Yes
2.  No
3.  N/A
Diane in Canada

  - Original Message - 
  From: 
  jrushton 
  To: tmic 
  Sent: Saturday, April 19, 2008 1:31 
  PM
  Subject: [TMIC] Questions
  

  

  
Hi, everyone (again!)
 
I have three questions for those who would be willing to 
respond:
 
1)  Did you ever have chicken pox?
 
2)  Did you ever suffer from shingles?
 
3)  Did you have a flare-up of shingles prior to your being 
stricken with TM?
 
These are a few of the theories with TM and I'm just curious to see 
if any of 'us' have experienced any or all of these.
 
Jeanne in Dayton
 
 

  

  
  




--Forwarded Message Attachment--
Date: Sat, 19 Apr 2008 14:08:42 -0700
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] Questions

Yes
No
No
 
Patti
 jrushton <[EMAIL PROTECTED]> wrote: 
> Hi, everyone (again!)
> 
> 
> 
> I have three questions for those who would be willing to respond:
> 
> 
> 
> 1)  Did you ever have chicken pox?
> 
> 
> 
> 2)  Did you ever suffer from shingles?
> 
> 
> 
> 3)  Did you have a flare-up of shingles prior to your being stricken with
> TM?
> 
> 
> 
> These are a few of the theories with TM and I'm just curious to see if any
> of 'us' have experienced any or all of these.
> 
> 
> 
> Jeanne in Dayton
> 
> 
> 
>  
--Forwarded Message Attachment--
Date: Sat, 19 Apr 2008 17:23:36 -0400
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] Questions







1. Yes, as a child.
2. No
3. No
 
Barbara H.
http://barbarah.wordpress.com/
 
In a message dated 4/19/2008 3:31:52 PM Eastern Daylight Time, 
[EMAIL PROTECTED] writes:

  


  
Hi, everyone (again!)
 
I have three questions for those who would be willing to 
respond:
 
1)  Did you ever have chicken pox?
 
2)  Did you ever suffer from shingles?
 
3)  Did you have a flare-up of shingles prior to your being 
stricken with TM?
 
These are a few of the theories with TM and I'm just curious to see 
if any of 'us' have experienced any or all of these.
 
Jeanne in Dayton
 

 


Need a new ride? Check out the largest site for U.S. used car listings at AOL 
Autos.
--Forwarded Message Attachment--
Date: Sat, 19 Apr 2008 17:39:46 -0400
From: [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Subject: Re: [TMIC] Questions


Re: [TMIC] Questions



 
1)  Did you ever have chicken pox?  YES
 
2)  Did you ever suffer from shingles?  NO
 
3)  Did you have a flare-up of shingles prior to your
being

[TMIC] RE: tmic-digest Digest V2008 #158

[marieke dufresne]

Spasms vs Spastic :
Spasm:  is a sudden, involuntary contraction of a muscle, a group of muscles, 
or a hollow organ, or a similarly sudden contraction of an orifice. It is 
sometimes accompanied by a sudden burst of pain,
but is usually harmless and ceases after a few minutes. Spasmodic
muscle contraction may also be due to a large number of medical
conditions, however, including the dystonias.

Spastic: The term generally originates from spasticity, a medical condition 
characterized by hypertonia, or a high degree of muscle tightness. Spasticity 
underlies spastic diplegia and many other forms of cerebral palsy.

Spasms come and go.. being spastic, like your leg means that the muscle DOES 
not know how to relax at all, when put into action, so to speak. Like when your 
MD held your leg up and it stays there and/or slowly lowers without you doing 
any of the work.

The baclofen will help with this and can improve your walking ability (if you 
are able to walk). 
The most COMMON side effects persist or become bothersome:
Constipation; dizziness; drowsiness; fatigue; headache; nausea; sleeplessness.
Your body will become accustomed to this and you start at a low dose in any 
case, and titrate up slowly to be able to adjust.

Meloxicam is for your arthritis... it's an NSAID (nonsteroidal 
anti-inflammatory drug)
The most COMMON side effects persist or become bothersome:
Constipation; diarrhea; dizziness; gas; headache; heartburn; nausea;
stomach upset; trouble sleeping.

FYI www.drugs.com for when you want to look up drugs.

Marieke

Date: Fri, 4 Apr 2008 08:34:27 -0700
From: [EMAIL PROTECTED]
Subject: tmic-digest Digest V2008 #158
To: [EMAIL PROTECTED]

--Forwarded Message Attachment--

tmic-digest Digest  Volume 2008 : Issue 158
 
Today's Topics:
  [TMIC] med question - meloxicam and   [ randy rankin <[EMAIL PROTECTED]> ]
  [TMIC] RE: tmic-digest Digest V2008   [ marieke dufresne <[EMAIL PROTECTED] ]
--Forwarded Message Attachment--
Date: Thu, 3 Apr 2008 17:02:03 -0700
From: [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Subject: [TMIC] med question - meloxicam and baclofen

Ok - what's the scoop on these drugs. Have any of you all taken them?  Did 
they help? Where there any significant side effects? I was sent to a 
bone doc. to have a look.  He wants me to try baclofen for spasms, (i 
didn't know that I was having them - everyone else says that I'm not have 
spasms - I'm so confussed on the term spasms. - first neuro talked about my 
legs being spastic because they wouldn't move - he pick them up and the right 
leg would stick in mid area lol - he'd have to push it back down. When I 
mentioned "spasm" later, everyone would look at me oddly and say that I wasn't 
having spasms. Now this guy is giving me meds for spasms and says that my right 
leg shows signs of spasticity) He said my vert was great - mild 
degeneration in mid T and at L-5 S-1 - which I already knew about. The 
'arthritis' is
 genetic/ "getting older" he said - but it is unusual for my age. He said my 
2001 car accident didn't have anything to do with it - but my chiro told me in 
01 that it would come in time because it almost always shows up in a few years 
after a major collision. Anyway - what's the scoop on all these meds. before I 
decide to go ahead and take them I just wanted find out if it is worth the 
time.  

  You rock. That's why Blockbuster's offering you one month of Blockbuster 
Total Access, No Cost.--Forwarded Message Attachment--
Date: Fri, 4 Apr 2008 02:56:50 +
From: [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Subject: [TMIC] RE: tmic-digest Digest V2008 #156








re: Gaylon & Nurisng School

Hi,
I am Marieke, 32 yrs old, TM since 2004 (hit me at T1, so I was totally 
paralyzed from mid-chest down). I now walk with a cane and a long (full, KAFO) 
brace. I take meds 4x a day,  for spasticity, neuro pain, low BP, bowels, 
bladder... AND I will be graduating from nursing school in 5 weeks! I have 4 
weeks of clinical left (16 days) and a week of exams and then a few weeks off 
then I start work (cross your fingers I have an interview next week).

I will not lie, nursing school is hard, freaking hard! Not just because of the 
course work, but because of TM and what it's left me with (or without) I get 
physically exhausted and basically have NO energy for anything else. Especially 
now that I have had 4 days a week of clinical... My back hurts, my leg (good 
side) hurts, more so after the 4 days of 8 hr shifts on my feet. While it's 
true you can choose where you want to work when you are done, you still have to 
be able to get through school and it's requirements in clinical (skills as well 
as required hours). When I started I had no idea if I would be able to get 
through ONE day of clinical a week the first year, let alone 2 days (in 2nd 

[TMIC] RE: tmic-digest Digest V2008 #156

[marieke dufresne]

re: Gaylon & Nurisng School

Hi,
I am Marieke, 32 yrs old, TM since 2004 (hit me at T1, so I was totally 
paralyzed from mid-chest down). I now walk with a cane and a long (full, KAFO) 
brace. I take meds 4x a day,  for spasticity, neuro pain, low BP, bowels, 
bladder... AND I will be graduating from nursing school in 5 weeks! I have 4 
weeks of clinical left (16 days) and a week of exams and then a few weeks off 
then I start work (cross your fingers I have an interview next week).

I will not lie, nursing school is hard, freaking hard! Not just because of the 
course work, but because of TM and what it's left me with (or without) I get 
physically exhausted and basically have NO energy for anything else. Especially 
now that I have had 4 days a week of clinical... My back hurts, my leg (good 
side) hurts, more so after the 4 days of 8 hr shifts on my feet. While it's 
true you can choose where you want to work when you are done, you still have to 
be able to get through school and it's requirements in clinical (skills as well 
as required hours). When I started I had no idea if I would be able to get 
through ONE day of clinical a week the first year, let alone 2 days (in 2nd 
year) and 4 days in 3rd! BUT I made it... somehow... not sure how! LOL

If you think that you can get through the clinical days your school requires 
(and yeah, a lot of those days are spent standing/walking) then go for it!

Feel free to email me or ask me any questions.
Marieke 
[EMAIL PROTECTED]
[EMAIL PROTECTED]


Date: Thu, 3 Apr 2008 11:15:30 -0700
From: [EMAIL PROTECTED]
Subject: tmic-digest Digest V2008 #156
To: [EMAIL PROTECTED]

--Forwarded Message Attachment--

tmic-digest Digest  Volume 2008 : Issue 156
 
Today's Topics:
  Re: [TMIC] When do you know if it is  [ "jrushton" <[EMAIL PROTECTED] ]
  [TMIC] urogenital system operation[ neda fotouhie <[EMAIL PROTECTED]> ]
--Forwarded Message Attachment--
Date: Thu, 3 Apr 2008 10:24:59 -0500
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] When do you know if it is time to quit!















My last day was a year last Sept.  The TM hit 5/2005 and I was determined I 
could get right back to work as soon as I could stand and move with a cane, by 
golly!  It actually set me back a bit because I pushed myself too hard.
 
The best way is to go on line.  If I was starting out, I would go to the 
college and go into the nursing department and talk to one of the advisors.  
They would be wonderful in getting you started.  You will have your parallels 
that you'll need to get out of the way.  You'll need to get your school 
transcripts and you will get credit for a lot you've already taken in the 
maths, sciences, and humanities.  Some classes you can probably challenge and 
may not even need to take them.  All of these things your advisor can help you 
with.  The biggest part is walking through that college door to get started! 
You may go into the program thinking you want to go in a certain field and 
halfway through change your mind which is perfectly all right!  You can't 
always tell until you get into your studies and clinicals and see what is 
actually done.
 
 I wish you ALL of the best in whichever direction you decide upon!!  Please 
keep me up to date on your decision??  Jeanne 
 

---Original Message---
 

From: [EMAIL PROTECTED]
Date: 4/3/2008 12:13:13 PM
To: [EMAIL PROTECTED]
Subject: Re: [TMIC] When do you know if it is time to quit!
 
Thanks for the reply Jeanne,  how many years has it been since you had to quit 
your head nursing job?And what is the best way to get just how many 
different fields a person can specialize in ,  in the health care field? 
 

In a message dated 4/3/2008 12:56:52 P.M. Eastern Daylight Time, [EMAIL 
PROTECTED] writes:





Yes, I do, Galon.  Nurses put miles on (not literally, but it feels like it!) 
and even more so in a hospital setting.  Most all of the medical field is 
computerized with way more sitting at the computer and not nearly as much 
moving around working with paper and charts but there is still a lot of moving 
and walking.  
 
Also, there are the hospitals, etc. that have gone to the longer shifts but 
then you get a longer period of time that you have off.  They are also the ones 
that pay the best.  In the clinical settings, you get more regular hours and 
days but the pay is not as good.  Drawbacks in each.  BUT!!  I don't regret one 
second of all of the time I was able to be a nurse.  Life is way to short to 
give up your dream and you may be able to work it out just great!  
 
There are so many fields in nursing you can get into and I do so encourage you 
to look into it further! 
 
I don't think you would put on as many miles being a radiologist and you might 
really enjoy that, also!  All sorts of directions you can go!  The world is 
open to you!
 
My motto??  JUST DO IT!!!  And think of the cheering squad you have here 
through T

[TMIC] RE: tmic-digest Digest V2008 #145

[marieke dufresne]

re Premature: I was 3 months premaure.. teeny tiny at 2 lbs 5 ounces
Marieke (TM at T1, since March 18th 2004)

Date: Tue, 1 Apr 2008 11:43:46 -0700
From: [EMAIL PROTECTED]
Subject: tmic-digest Digest V2008 #145
To: [EMAIL PROTECTED]

--Forwarded Message Attachment--

tmic-digest Digest  Volume 2008 : Issue 145
 
Today's Topics:
  Re: [TMIC] queston[ [EMAIL PROTECTED] ]
  Re: [TMIC] Premature? [ [EMAIL PROTECTED] ]
  [TMIC] birthday   [ "ROBERT DIEHL" <[EMAIL PROTECTED] ]
  Re: [TMIC] Premature? [ "Diane" <[EMAIL PROTECTED]> ]
  [TMIC] Martha or Maxine   [ Jan Hargrove <[EMAIL PROTECTED] ]
  Re: [TMIC] Premature? [ "jrushton" <[EMAIL PROTECTED] ]
  Re: [TMIC] April Birthdays[ "jrushton" <[EMAIL PROTECTED] ]
  Re: [TMIC] This Is a Test [ "jrushton" <[EMAIL PROTECTED] ]
  Re: [TMIC] Premature? [ "jrushton" <[EMAIL PROTECTED] ]
--Forwarded Message Attachment--
Date: Tue, 1 Apr 2008 06:56:07 -0400
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]
CC: tmic-list@eskimo.com
Subject: Re: [TMIC] queston








Rob,
 
 
 
 I had an incident  starting in January of 
this year.  My legs started tingling and burning, then my arms started, 
which I never had before.  Very Scary!  I went for 2 MRI's, one of the 
brain and one cervical.  Nothing new in the scans.  But I did show 
very bad sinus problems.  I was on an antibiotic and about  1 week 
after the symptoms started to go away.  My whole body felt inflamed for 
almost 2 months.  Then day by day I started feeling better.  I am 
starting again with the sinus problem and starting to tingle in my back.  I 
have an appointment with my doctor on 4/7.  I had sinus infection in the 
beginning.  Have you been sick lately or completely run down.  Those 
are the 2 things that make me worse.
 
 
   
Linda in Pa
 


Create a Home Theater Like the Pros. Watch the video on AOL Home.
--Forwarded Message Attachment--
Date: Tue, 1 Apr 2008 07:11:54 -0400
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]
CC: tmic-list@eskimo.com
Subject: Re: [TMIC] Premature?






NO, I WAS 16 POUNDS 4 OUNCES.  WHEN I WAS GROWING UP THERE WERE 
NO VACCINES EXCEPT POLIO, THEREFORE I HAD IT ALL-CHICKEN POX, 3-DAY 
MEASLES, 
GERMAN MEASLES, MUMPS, AND WHEN I WAS 16 I HAD MONO.
 
   
LINDA IN PA


Create a Home Theater Like the Pros. Watch the video on AOL Home.
--Forwarded Message Attachment--
Date: Tue, 1 Apr 2008 08:28:52 -0400
From: [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Subject: [TMIC] birthday








robert diehl
birthday 4/21/32
--Forwarded Message Attachment--
Date: Tue, 1 Apr 2008 09:50:51 -0400
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]
CC: tmic-list@eskimo.com
Subject: Re: [TMIC] Premature?








16 pounds ?  I'd like to meet your mother.
I was 9 lbs & I had all the same diseases as you plus scarlet fever in 
my 20s.
Diane in Canada
 

  - Original Message - 
  From: 
  [EMAIL PROTECTED] 
  To: [EMAIL PROTECTED] 
  Cc: tmic-list@eskimo.com 
  Sent: Tuesday, April 01, 2008 7:11 
  AM
  Subject: Re: [TMIC] Premature?
  

  NO, I WAS 16 POUNDS 4 OUNCES.  WHEN I WAS GROWING UP THERE WERE 
  NO VACCINES EXCEPT POLIO, THEREFORE I HAD IT ALL-CHICKEN POX, 3-DAY 
  MEASLES, GERMAN MEASLES, MUMPS, AND WHEN I WAS 16 I HAD MONO.
   

 
  LINDA IN PA



  
  
  Create a Home Theater Like the Pros. Watch the video on AOL 
Home.
--Forwarded Message Attachment--
Date: Tue, 1 Apr 2008 08:13:52 -0700
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: [TMIC] Martha or Maxine



  My middle name is MAXINE!!!

janh--Forwarded Message Attachment--
Date: Tue, 1 Apr 2008 09:18:55 -0500
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] Premature?













Not me!  Back then they let babies go until they were college age, if 
necessary!  I was 9lbs. 8 oz. And today am not too big and only 5'3"!!!
 
Good question!
 
Jeanne 
 

---Original Message---
 

From: sal r
Date: 4/1/2008 12:00:13 AM
To: tm
Subject: [TMIC] Premature?
 Does anybody recall being premature when they were born?  I was 6 weeks 
premature. 


No Cost - Get a month of Blockbuster Total Access now. Sweet deal for Yahoo! 
users and friends. 
 








--Forwarded Message Attachment--
Date: Tue, 1 Apr 2008 09:16:45 -0500
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] April Birthdays













Thank you so much for sharing this with us!!
 
HAPPY, HAPPY BIRTHDAY TO ALL OF YOU!!!
 
Jeanne 
 
 

---Original Message---
 

From: [EMAIL PROTECTED]
Date: 3/31/2008 11:09:55 PM
To: tmic-list@eskimo.com
Subjec

[TMIC] RE: tmic-digest Digest V2008 #143

[marieke dufresne]

re Jude... My mom had open heart surgery last year and ended up with an MRSA 
infection that attacked the bone (which is called osteomyeltis btw), she had 2 
courses of vancomycin, and then 3 rounds of oral meds b/c there was one pocket 
that was still filling up with pus and whatnot. MRSA is quite common and i's 
getting nastier. I am currently a 3rd year nursing student (graduate in 6 
weeks) and work on a Cardiac Surgery & Neurosurgery floor and we get many 
patients' with MRSA infections after. It's not fun.
I wish Jude well.
Marieke (TM @ T1 since March 18th, 2004)

Date: Mon, 31 Mar 2008 21:15:11 -0700
From: [EMAIL PROTECTED]
Subject: tmic-digest Digest V2008 #143
To: [EMAIL PROTECTED]

--Forwarded Message Attachment--

tmic-digest Digest  Volume 2008 : Issue 143
 
Today's Topics:
  Re: [TMIC] queston[ Jenna <[EMAIL PROTECTED]> ]
  Re: [TMIC] JUDE!  [ [EMAIL PROTECTED] ]
  Re: [TMIC] JUDE'S HOME ADDRESS[ [EMAIL PROTECTED] ]
  [TMIC] This Is a Test [ [EMAIL PROTECTED] ]
  Re: [TMIC] This Is a Test [ "Grace M." <[EMAIL PROTECTED]> ]
  Re: [TMIC] This Is a Test [ [EMAIL PROTECTED] ]
  Re: [TMIC] This Is a Test (for all)   [ Lawrence King <[EMAIL PROTECTED] ]
  Re: [TMIC] This Is a Test (for all)   [ [EMAIL PROTECTED] ]
  [TMIC] April Birthdays[ [EMAIL PROTECTED] ]
--Forwarded Message Attachment--
Date: Mon, 31 Mar 2008 09:27:17 -0700
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] queston



Rob,  Get it checked out.  I know you are scared.  All of us that have had 
relapses were scared too.  But the sooner you see the Dr. the better.  Let us 
know how you are doing, ok!  And just so you know I have had times where my 
symptoms increased and it was a relapses and times when it wasn't.  So it is 
really hard to tell. 
 Jenna 



- Original Message 
From: Robert Pall <[EMAIL PROTECTED]>
To: tmic-list@eskimo.com
Sent: Monday, March 31, 2008 9:00:31 AM
Subject: [TMIC] queston


Need a little help! After more than 10 years I started having new 
symptoms in my left (the good one) leg. My left leg has always had pins & 
needles…but this weekend I had the burning (freezing) sensation and although it 
has not gotten worse..it has not gone back to what I call normal. I have e 
mailed Dr. Kerr and hopefully he will supply some in sight. I also want to 
thank members on the list who have given me names of Nerros in New Jersey that 
they use and are happy with…I will contact at least one of them. In all honesty 
I am somewhat afraid! I thought I have been dealing with TM in as positive way 
as is possible. I just don't know if I could handle another episode especially 
if It requires hospitalization. 
I know all of us do not have one day that is exactly the same as the 
previous one…but have any of you experienced new feelings (good or bad) that 
was not a result of a relapse? If this continues I doubt if I can continue 
working as the discomfort does not allow me to concentrate on my work. I can 
only focus on the new feeling of burning!
Thank you for any insight you can provide. 
Rob in New Jersey 


  OMG, Sweet deal for Yahoo! users/friends: Get A Month of Blockbuster 
Total Access, No Cost. W00t--Forwarded Message Attachment--
Date: Mon, 31 Mar 2008 13:26:25 -0400
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] JUDE!!






I just got off the phone with Jude.can't add much to what Pam has 
already told us. they have her on Vancomycin which is "the" antibiotic for 
MRSA along with seven other antibiotics.  They will do a six week course 
and then take a break and then another six week course of the antibiotics.  
The infection is in the bone and blood stream.  She told me if this doesn't 
work and it turns septic then it's "bye-bye."
Jude knows what's waiting for her on the other side if that happens so she 
is really handling all of this well.  She was cheerful with meeven got 
her to laugh once.  :-)
She started getting sleepy so I let her go with the promise I would call in 
a few days.
Dave is retired as of today and they are both happy about that.Jude is 
planning on spending some quality time with him now.
 
Please keep those cards, letters, etc. heading her waythey mean so much 
to her
but especially keep lifting her in prayer.
 
Love to all,  Lynn
 


Create a Home Theater Like the Pros. Watch the video on AOL Home.
--Forwarded Message Attachment--
Date: Mon, 31 Mar 2008 13:28:27 -0400
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] JUDE'S HOME ADDRESS






Dave and Judy Hoops
6067 East Francis Road
Mt. Morris,  MI  48458


Create a Home Theater Like the Pros. Watch the video on AOL Home.
--Forwarded Message Attachment--
Date: Mon, 31 Mar

[TMIC] RE: tmic-digest Digest V2008 #89

[marieke dufresne]

Hi all,
Yup Heather is right!
In spinal cord lesions, it is "normal" to not sweat below the level of injury. 
Also, your body has a hard time adjusting to temp changes and where the nerve 
damage is you can get blotchy skin when it gets too hot...
Take a look at this site, very good info to be found!
http://www.apparelyzed.com/temperature.html
Marieke (TM @T1, March 2004)
http://nurse-to-be08.blogspot.com

Date: Thu, 20 Mar 2008 18:39:11 -0700
From: [EMAIL PROTECTED]
Subject: tmic-digest Digest V2008 #89
To: [EMAIL PROTECTED]

--Forwarded Message Attachment--

tmic-digest Digest  Volume 2008 : Issue 89
 
Today's Topics:
  Re: [TMIC] (no subject)   [ Heather & Pieter <[EMAIL PROTECTED] ]
  [TMIC] Fwd: TODAY SHOW scheduled for  [ CANDIS KALLEY <[EMAIL PROTECTED] ]
  Re: [TMIC] (no subject)   [ [EMAIL PROTECTED] ]
  [TMIC] Sweating   [ "[EMAIL PROTECTED]" <[EMAIL 
PROTECTED] ]
  [TMIC] Fwd: Sweating  [ [EMAIL PROTECTED] ]
--Forwarded Message Attachment--
Date: Thu, 20 Mar 2008 12:04:59 -0600
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]
CC: tmic-list@eskimo.com
Subject: Re: [TMIC] (no subject)










Hi Linda,
 
I don't seem to sweat below my lesion 
at T8 - T10.  I think that was mentioned on the TM Forum at one point and 
Marieke said that with spinal chord injuries a person doesn't sweat below the 
lesion.  
 
Heather in Calgary 

  - Original Message - 
  From: 
  [EMAIL PROTECTED] 
  To: [EMAIL PROTECTED] 
  
  Cc: tmic-list@eskimo.com 
  Sent: Thursday, March 20, 2008 6:37 
  AM
  Subject: Re: [TMIC] (no subject)
  

  Hi Jeanne,
   I also have the band 24 hours a day.  Mine 
  is T4-T5 area.  That is where my lesion is in my spinal cord.  I 
  also get a lot of tingling on the left side of that area.  The grease 
  line I was talking was actually a very greasy to the touch line 
  . 
   As the numbness was ascending so was the grease 
  line. It was around my waist and moved upward until it stopped around 
  T4-T5.  Another strange thing I experienced was a few weeks in, I had to 
  rub off a lot of dead skin on both legs.  Very Weird!  It doesn't 
  sound like any one else had these things.  Anybody have a problem with 
  not sweating in affected areas?
   
  
  Linda in Pa



  
  
  Create a Home Theater Like the Pros. Watch the video on AOL Home.
  
  

  No virus found in this incoming message.
Checked by AVG. 
  
Version: 7.5.519 / Virus Database: 269.21.7/1336 - Release Date: 3/20/2008 
  9:48 AM

--Forwarded Message Attachment--
Date: Thu, 20 Mar 2008 17:44:12 -0400
From: [EMAIL PROTECTED]
To: tmic-list@eskimo.com; [EMAIL PROTECTED]
Subject: [TMIC] Fwd: TODAY SHOW scheduled for March 25 on AUTOIMMUNE EPIDEMIC

I received the following from Devis's group.  Thought maybe some of you would 
be interested.

- Original Message - 


From: [EMAIL PROTECTED] 
To: [EMAIL PROTECTED] 
Sent: Monday, March 17, 2008 3:09 PM
Subject: TODAY SHOW scheduled for March 25 on AUTOIMMUNE EPIDEMIC

Hello All,

THE TODAY SHOW's segment on THE AUTOIMMUNE EPIDEMIC is now scheduled to air 
next Tuesday morning, March 25th.  

Thanks for your patience.

All the best,

Donna



www.donnajacksonnakazawa.com
THE AUTOIMMUNE EPIDEMIC: Bodies Gone Haywire in a World out of Balance

"In this important book, Donna Jackson Nakazawa sounds the alarm about the rise 
of autoimmune disorders... I encourage every American to read this book and 
learn about the choices you can make to reduce the spread and impact of this 
growing epidemic."
U.S. Senator John F. Kerry





**
It's Tax Time! Get tips, forms, and advice on AOL Money & Finance.
(http://money.aol.com/tax?NCID=aolprf000301) 
--~--~-~--~~~---~--~~
You received this message because you are subscribed to the Google Groups 
"Devic's support" group. 
To post to this group, send email to [EMAIL PROTECTED] 
To unsubscribe from this group, send email to [EMAIL PROTECTED] 
For more options, visit this group at 
http://groups.google.com/group/Devics-support?hl=en 
-~--~~~~--~~--~--~---

--Forwarded Message Attachment--
Date: Thu, 20 Mar 2008 18:22:16 -0400
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]
CC: tmic-list@eskimo.com
Subject: Re: [TMIC] (no subject)






Thanks for the response.  My feet are hot all the time!!!  It is 
hard in the winter when I have to wear shoes.  I could not wear a pair of 
heels to save my life.  I have tried in the shoe store and have to hold on 
or I will fall over!   I am so glad for the response, at least 
there is one other person who has the grease line, whatever it is.
 

Linda in Pa


Create a Home Theater Like the Pros. Watch the video on AOL Home.
--Forwarded Message Attachment--
Date: Thu,

[TMIC] RE: tmic-digest Digest V2008 #45

[marieke dufresne]

re: Jude and C Diff (not C Biff)...
It's a GI problem where your normal flora is killed off due to various 
antibiotics and you produce mass amounts of foul, smelly, diarrhea. C Diff is 
short for Clostridium Difficile.
http://www.phac-aspc.gc.ca/c-difficile/index-eng.php
It is a very common problem we have here where I am in Montreal, QC. I had it 
when I was first in hospital with TM after I had been on antibiotics for a UTI. 
It was hell and now working as a student nurse I am surrounded by it all the 
time. She will now have to be careful when she is on any antibiotics that can 
set it off.
Marieke

Date: Wed, 13 Feb 2008 11:04:40 -0800
From: [EMAIL PROTECTED]
Subject: tmic-digest Digest V2008 #45
To: [EMAIL PROTECTED]

--Forwarded Message Attachment--

tmic-digest Digest  Volume 2008 : Issue 45
 
Today's Topics:
  Re: [TMIC] Pray for Jude  [ "L T CHERPESKI" <[EMAIL PROTECTED]> ]
  Re: [TMIC] Pray FOR JUDE  [ Jenna <[EMAIL PROTECTED]> ]
  Re: [TMIC] Pray FOR JUDE  [ "L T CHERPESKI" <[EMAIL PROTECTED]> ]
  Re: [TMIC] Pray for Jude  [ [EMAIL PROTECTED] ]
  [TMIC] Fwd: Update on friend...   [ [EMAIL PROTECTED] ]
--Forwarded Message Attachment--
Date: Tue, 12 Feb 2008 19:33:26 -0700
From: [EMAIL PROTECTED]
To: tmic-list@eskimo.com; [EMAIL PROTECTED]
Subject: Re: [TMIC] Pray for Jude











Rick, I totally agree with you. Jude is one of the sweetest people. I'm so 
glad you were able to talk to her. I have emailed her, but not spoken with her 
directly. (I have the address of the hospital but not the phone number - I 
could 
probably get it online) I can't find anything on CBIFF either.  I just 
repeated your wonderful prayer - Amen
 
GOD BLESS JUDE AND OUR ENTIRE TM FAMILY
Linda (ID)

  - Original Message - 
  From: [EMAIL PROTECTED] 
  
  To: tmic-list 
  Sent: Tuesday, February 12, 2008 10:55 
  AM
  Subject: [TMIC] Pray for Jude
  
I just spoke to an angel with the heart of a lion. This poor 
  girl still hurst so bad and has some really scarys stuff going on. She says 
  now that she has CBIFF. I looked everywhere on the web and came up with 
  nothing. She says it is from all the different types of antibiotics they had 
  her on. If someone knows what CBIFF stands for please look it up. She is one 
  of the sweetest people I have ever talked to. And she was real suprised to 
get 
  a call from me. Dave was there but was leaving when I called. Jude we love 
you 
  and miss you. God Jesus please ease  Jude, you are the master healer and 
  we know you can heal her. Amen Rick

--
GOD BLESS US 
ALL>


--Forwarded Message Attachment--
Date: Tue, 12 Feb 2008 19:28:54 -0800
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] Pray FOR JUDE


Rick,  I loved your e-mail, and I am praying, I have been praying for a few 
weeks now!  Jude, we love you and want you to be better!
 Jenna



- Original Message 
From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>
To: tmic-list 
Sent: Tuesday, February 12, 2008 8:59:22 PM
Subject: [TMIC] Pray FOR JUDE

If this group of brothers annd sisters are not too busy we have a crisis on our 
hands. We have a fallen member and if you are too proud to pray then answer 
that it never hit you like it has Jude..She needs every prayer we can muster up 
and more , she need her family. If you delete another message from me about 
Jude then your on my s list and thats not a good good place to be. 
I don't preach  but I promise I need prayers for my Jude. Don't simply see my 
mesage and write it off if you do the the worst wiil come to you. Jude is 
special and she earned our respect, if you delete me one more time congrats. 
you made then shit list . Get
 on your knees tonight and pray you never hurt like Jude does. Prayers work 
whats wrong with with you people. We're not asking for your money , we need you 
praise  for a Godly women , surely you have a prayer. I'll  beat the bush no 
more.Rick
--
GOD BLESS US ALL>




  Be a better friend, newshound, and 
know-it-all with Yahoo! Mobile.  Try it now.--Forwarded Message Attachment--
Date: Tue, 12 Feb 2008 21:09:28 -0700
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; tmic-list@eskimo.com; [EMAIL PROTECTED]
Subject: Re: [TMIC] Pray FOR JUDE









Jenna, I loved Rick's email too, and I have been praying for Jude for weeks 
also.  I know there are also people on the Devic's site who have been 
praying for her as well.  I just pray that God will give these doctors the 
wisdom to find a treatment that works, and treat her immediately.
 
Linda (ID)

  - Original Message - 
  From: Jenna 
  To: [EMAIL PROTECTED] ; 
  tmic-list 
  Sent: Tuesday, February 12, 2008 8:28 
  PM
  Subject: Re: [TMIC] Pray FOR JUDE
  

  
  
  Rick,  I loved your e-mail, and I am praying, I have been praying 
  for a few weeks now!  Jude, we love you and want you to be 
  better!
 Jenna 
  


  - 
  Original Message 
F

[TMIC] RE: tmic-digest Digest V2008 #30

[marieke dufresne]

Sending a card would be a great thing to do, if you get her address please post 
it and let us know.
btw, Necrotic is what you meant to say I think. That is scary stuff, but 
unfortunatly I see this all the time in the hospitals where I work. Staph 
infections are nasty things, especially now where it is usually MRSA type.
Marieke
Date: Mon, 28 Jan 2008 06:29:48 -0800
From: [EMAIL PROTECTED]
Subject: tmic-digest Digest V2008 #30
To: [EMAIL PROTECTED]

--Forwarded Message Attachment--

tmic-digest Digest  Volume 2008 : Issue 30
 
Today's Topics:
  Re: [TMIC] JUDE!  [ "jrushton" <[EMAIL PROTECTED] ]
--Forwarded Message Attachment--
Date: Mon, 28 Jan 2008 07:28:08 -0600
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] JUDE!!!















Great idea about the cards, Linda!
Prayer is so amazing!
 
Jeanne in Dayton, WA  where it is snowing and black ice! 
 
 

---Original Message---
 

From: L T CHERPESKI
Date: 1/27/2008 8:57:32 PM
To: tmic-list@eskimo.com;  [EMAIL PROTECTED]
Subject: Re: [TMIC] JUDE!!!
 

Thank you for letting us know Pam.  Jude has been such an inspiration to all of 
us here in the TM Family.  My candle is lit and I have prayed and prayed for 
complete healing.  I have also asked Patti for Jude's address - maybe we could 
flood her with cards of love and support and hopefully lift her spirits. It 
would mean a lot to Dave also.
 
I think all of us are so very thankful that you and Patti are near Jude and are 
able to see her.
 
Linda (Eagle,ID) 

- Original Message - 
From: [EMAIL PROTECTED] 
To: tmic-list@eskimo.com 
Sent: Sunday, January 27, 2008 9:11 AM
Subject: [TMIC] JUDE!!!


DEAR FRIENDS, THIS IS VERY HARD FOR ME TO SAY. JUDE HAS HAD TO HAVE EMERGENCY 
SURGERY. SHE WAS TAKEN FROM THE HOME AND WAS PUT IN THE HOSPITAL. SHE WAS VERY 
ILL.SHE IS NOW BACK AT A NEW HOME .IT WAS STAFF INFECTION THAT NEVER SHOULD OF 
HAPPENED.THEY WAITED TO LONG TO TEND TOTHE BED SORES PROPERLY..
NOW SHE WAS TOLD THEY FOUND A BLACK SPOT ON HER BONE.ITS STAFF IN THE BONE. 
THAT IS NOT GOOD.SHE WAS TOLD ITS NARCISTIC THAT IS NOT GOOD AT ALL. I MIGHT OF 
SPELLED IT WRONG BUT MOST OF YOU KNOW WHAT THIS IS.
SHE SEES THE SURGEON ON TUESDAY.SHE IS GETTING UP AND IN HER WHEELCHAIR WITH A 
SPECIAL LIFT.SHE ASKED ME TO TELL EVERYONE.SHE IS AWARE THAT THIS IS VERY 
SERIOUS.
DAVE IS BESIDE HIMSELF FOR THE FEAR OF LOOSING HER SHE TOLD ME.
SHE ASKED THAT WE ALL PRAY FOR HER AND LIGHT A CANDLE IF POSSIBLE. I HAD TO 
MAKE AN EXCUSE TO GET OFF THE PHONE WITH HER I WAS SO UPSET. I DID NOT WANT TO 
CRY WITH HER ON THE PHONE WITH ME .I AM DOING WHAT SHE ASKED ME TO.
I THINK MAYBE WE CAN ALL PRAY ON OUR OWN, BUT IT WOULD BE NICE IF WE SET A TIME 
THAT WE ALL SAID A PRAYER FOR HER AT THE SAME TIME.
 GOD BLESS JUDE AND OUR TM FAMILY!
   SINCERELY TIAD PAM





Start the year off right. Easy ways to stay in shape in the new year. 
 








_

<>

[TMIC] RE: tmic-digest Digest V2008 #23

[marieke dufresne]

Hi Michelle,
You say that your daughter lost her eyesight? It sounds more like she has ADEM, 
or NMO rather than TM, which is similar, but can affect the eyes as well. Has 
anyone looked into that?
I hope that you are able to get some answers.
Best wishes,
Marieke
(TM @ T1 since March 2004)

Date: Mon, 21 Jan 2008 02:07:53 -0800
From: [EMAIL PROTECTED]
Subject: tmic-digest Digest V2008 #23
To: [EMAIL PROTECTED]

--Forwarded Message Attachment--

tmic-digest Digest  Volume 2008 : Issue 23
 
Today's Topics:
  Re: [TMIC] Re: [Transverse Myelitis   [ sal r <[EMAIL PROTECTED]> ]
  [TMIC] Re. Subscribe  [ Kenneth Oliver <[EMAIL PROTECTED] ]
  RE: [TMIC] Re. Subscribe  [ Larry Throne <[EMAIL PROTECTED]> ]
  [TMIC] Re. The Thought for Jan. 20,   [ Kenneth Oliver <[EMAIL PROTECTED] ]
--Forwarded Message Attachment--
Date: Sat, 19 Jan 2008 16:29:54 -0800
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; 
tmic-list@eskimo.com
Subject: Re: [TMIC] Re: [Transverse Myelitis Support] New to list - HELP Please 
Tampa  Jacksonville

hi michelle here is a website you can go to and get more information about a 
experimental therapy going on in Florida. 
http://locomotor.phhp.ufl.edu/contactus.htm

CANDIS KALLEY <[EMAIL PROTECTED]> wrote:Michelle,  I am so sorry you 
are having so much trouble finding a neuro.  Most doctors and neuros don't even 
know about TM or any of the  related diseases.  What if you called John Hopkins 
- Pediatric Neurology: 410.955.4259
 Adult & Pediatric Neurosurgery: 410.955.6406  Maybe they can refer you to 
a neuro in your area or close
 by.I'm confused. Are you in Chicago?  I believe that several people on the 
support website live in the Chicago area.  Maybe they can refer you to their 
neuro.  OR are you in Gainsville?  I would give you the name of my neuro - who 
knew about TM but only knew about it but not very knowledgable on TM 2 years 
ago, but thats almost 400 miles from Gainsville, but if all else fails, write 
me and I will give you the info.I would think that the university up thin 
Gainsville would have someone knowledgable on neuro disorders or at least 
curious about it.  Sounds as if you have some of the doctors that fall in the 
range of "not knowing and don't have the time to dig or don't care to dig into 
what could be".  I do know that we have several in our group from the Tampa and 
Jacksonville area. Maybe they will answer and give you their neuro's info.  I 
wish that I could find the original
 website that I had 2 years ago and 2 computers ago.  But I did find the NINDS 
website: 
http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyelitis.htm
  which states that the spinal fluid "contains more protein than usual and an 
increased number of leukocytes (white blood cells), indicating possible 
infection".  I wish that I could be of more help.  If I can, or you think I 
can, please let me know.  Prayers and thoughts for you and yours,  Candy K.  
- Original Message -
From: "Michelle B" <[EMAIL PROTECTED]>
To: [EMAIL PROTECTED]
Sent: Saturday, January 19, 2008 3:42:26 PM (GMT-0600) America/Chicago
Subject: Re: [Transverse Myelitis Support] New to list

  Candy,

We have been to so many Neurologists and they all just send her away with a 
follow up appt in hopes she'll get better on her own and with therapy. I get so 
frustrated because no one knows what happened or they say it is 
psychological...I know there is something wrong and get no help so I have been 
researching a lot. It is hard to find a Pediatric Neurologist in this area that 
will take the time. 
What exactly is found in the Spinal Tap fluid? She has had one done. I have a 
large 3 inch binder full of all of her medical records. 
In October she was fitted for HKAFO leg braces that go from her waist to her 
toes and assist her in standing but due to
 her not being able to have the strength or stamina she doesn't get upright 
much, if she does we worry about her passing out sometimes.

Michelle
Check out her website...www.caringbridge.org/visit/brittanybarrett

CANDIS KALLEY <[EMAIL PROTECTED]> wrote:


Michelle, 

I am so sorry to hear about your daughter. 

Has your daughter had a Spinal Tap? There is a protein in the fluid that points 
to TM. It took 3 MRI's to find my leisons and then it wasn't even the Neurogist 
that found the leisons but the MRI tech. Then it was in for another MRI 
without/with contrast. 

Dr. Kerr at John Hopkins is the leader in the field of TM. My neuro consulted 
with Dr.'s at John Hopkins but only after my insistance. Has your daughter's 
neuro done the same? The John Hopkins website has a direct line for doctors for 
consulations. 

I waited 5 or 6 days for a diagnosis while
 given every test known was ran. Other than TM, I'm in good health and I know 
alot of what I don't have. Hopefully, your daughter's doctor(s) have done the 
same. 

[TMIC] RE: tmic-digest Digest V2008 #8

[marieke dufresne]

re: Cranberry and Coumadin.
As long as your INR is within the range it is supposed to be in then there is 
no problem. Continue doing as you are and advise your MD that this is what you 
have been doing for 2 yrs with no problems, but if the INR were to get too high 
then you should cut down/stop taking them.
Also too many leafy green (dark green) are not recommended when on Coumadin...
Marieke

Date: Mon, 7 Jan 2008 19:33:02 -0800
From: [EMAIL PROTECTED]
Subject: tmic-digest Digest V2008 #8
To: [EMAIL PROTECTED]

--Forwarded Message Attachment--

tmic-digest Digest  Volume 2008 : Issue 8
 
Today's Topics:
  Re: [TMIC] Angry here.[ "Carol" <[EMAIL PROTECTED]> ]
  Fw: [TMIC]Question Regarding Coumadi  [ Jenna <[EMAIL PROTECTED]> ]
  [TMIC] TM Atlanta Meeting [ Jenna <[EMAIL PROTECTED]> ]
  [TMIC] Fw: FW: Be Sure To Cancel Fir  [ "Dex Packard" <[EMAIL PROTECTED]> ]
--Forwarded Message Attachment--
Date: Sun, 6 Jan 2008 13:39:47 -0500
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] Angry here.










Hi Grace,
Sorry to hear that people 
have nothing better to do than chastise someone for writing in all caps.  
Even though I personally find it a little harder to read, I do not delete those 
messages.  I just take more time in reading them.  Everyone's messages 
are important to me.  
Carol in Culver, IN
 

  - Original Message - 
  From: 
  Grace M. 
  
  To: tmic-list@eskimo.com 
  Sent: Friday, January 04, 2008 12:08 
  PM
  Subject: [TMIC] Angry here.
  

  Hi 
  Guys,
   
  You know, 
  there are several of us who need to write in caps, due to severe vision 
  problems.  Though I don't use caps, I do use large font.  I have to, 
  in order to see what I am writing.  Recently, one of the long 
  term members of the TMIC, who is also a personal friend of mine, received 
  an extremely obnoxious email regarding this.  (Complete with 
  *language*.)  You know, this little group is for the most 
  part---wonderful.  It was the very first site that I discovered 
  at the time of my NMO diagnosis, and I have been made to feel at home 
  here.  It's like having a virtual *family*.  This 
  unnecessary haranguing, of a long standing member, has left a very bad taste 
  in my mouth.  Think of it this way:  In the big scheme of 
  things, say, ten years from now, is it really going to *matter* if 
  someone had to use caps in order to communicate?   I know that I, 
  for one, will certainly not be thinking about something as trivial as that 
  whenever I prepare to meet my Maker.  Let's put it to rest, okaye? 
  
   
  Grace 
  
--Forwarded Message Attachment--
Date: Sun, 6 Jan 2008 11:26:43 -0800
From: [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Subject: Fw: [TMIC]Question Regarding Coumadin


Hi everyone!  This was sent to me and he aked if I could post it to the group.  
I looked in up online and found that the Cranberry Extract Pills call also call 
blood thinning.  Does anyone who takes it or has knowledge of it have any more 
information. Thanks
 Jenna



- Forwarded Message 
From: robert hennessy <[EMAIL PROTECTED]>
To: Jenna <[EMAIL PROTECTED]>
Sent: Sunday, January 6, 2008 1:31:18 PM
Subject: RE: [TMIC] Listen



Jenna-You seem like a really nice person
I don't normally write much on this organization but could you forward my 
inquiry onto others. I was reading the precautions on my coumadin prescription 
& it said not to ingest any cranberry products. (juice, etc) This really 
wouldn't be a big deal except I really need to take cranberry extract pills 3 X 
a day to help alleviate burning in my urinary tract system. I have been taking 
these two (coumadin & cranberry extract) for months now & haven't suffered any 
adverse effects. Do you or anyone else have any suggestions for something other 
than cranberry that I could take? Or should I just continue on taking it? Thank 
you very much- Bobby







Date: Sat, 5 Jan 2008 14:05:16 -0800
From: [EMAIL PROTECTED]
Subject: Re: [TMIC] Listen
To: [EMAIL PROTECTED]; Tmic-list@eskimo.com






Hi Gunny!  Thanks for posting this.  How have you been?
 Jenna 



- Original Message 
From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>
To: Tmic-list@eskimo.com
Sent: Saturday, January 5, 2008 4:49:28 PM
Subject: [TMIC] Listen


NPR Media Player 





Start the year off right. Easy ways to stay in shape in the new year. 



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--Forwarded Message Attachment--
Date: Sun, 6 Jan 2008 16:20:24 -0800
From: [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Subject: [TMIC] TM Atlanta Meeting


Hi,
 
Here is the next meeting in the Atlanta area for anymore with TM or a family 
member or friend.  Please e-mail me and let me know if you would like to jo

[TMIC] RE: tmic-digest Digest V2007 #310

[marieke dufresne]

Hello all,
I do not post often to this email group (mostly post on the TMA site itself). I 
just wanted to share some good news! I got a letter from school (I am in  my 
3rd and last yr of nursing school) stating that I won the Gail Hodson Award for 
Nursing. It's based on clinical skills/interaction with patients, grades and 
giving back to the school/dept, like volunteering. It's worth $200. I am so 
happy and excited! The awards ceremony is Nov 22. I can't wait!
Marieke (TM @ T1, March 18, 2004)
http://nurse-to-be08.blogspot.com

Date: Wed, 7 Nov 2007 11:42:26 -0800
From: [EMAIL PROTECTED]
Subject: tmic-digest Digest V2007 #310
To: [EMAIL PROTECTED]

--Forwarded Message Attachment--

tmic-digest Digest  Volume 2007 : Issue 310
 
Today's Topics:
  Re: [TMIC] wheelchair accessory   [ <[EMAIL PROTECTED]> ]
  Re: [TMIC] wheelchair accessory   [ Jan Hargrove <[EMAIL PROTECTED] ]
  [TMIC] folding grab bar   [ Alton Ryder <[EMAIL PROTECTED]> ]
  [TMIC] infra red sauna[ wim from holland  ]
--Forwarded Message Attachment--
Date: Tue, 6 Nov 2007 18:35:17 -0800
From: [EMAIL PROTECTED]
To: tmic-list@eskimo.com; [EMAIL PROTECTED]
Subject: Re: [TMIC] wheelchair accessory

Isn't there a saying about a boy and his toys?  I'm glad your having fun.
My neighbor has one of those new leaf blowers that he uses without a cord.  He 
walks up and down the sidewalk showing off his powers.
Patti - Michigan
 
 Alton Ryder <[EMAIL PROTECTED]> wrote: 
 
=
We have three large maple trees in our yard. Shade in summer and  
stunning beauty in October. And a ton of leaves in November.
 
I strapped the power head of the shop vacuum to the arm of the  
wheelchair, plugged in the long, outdoor extension cord, and roared  
off to blow leaves, wig-wagging to clear a strip about six feet wide.
 
It violated the tranquility of our home, but I felt that for once I  
was doing something useful.
 
 
Alton
--Forwarded Message Attachment--
Date: Tue, 6 Nov 2007 18:04:31 -0800
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] wheelchair accessory

Congrats for this job well done!!   janh

Alton Ryder <[EMAIL PROTECTED]> wrote:We have three large maple trees in 
our yard. Shade in summer and stunning beauty in October. And a ton of leaves 
in November.  I strapped the power head of the shop vacuum to the arm of the 
wheelchair, plugged in the long, outdoor extension cord, and roared off to blow 
leaves, wig-wagging to clear a strip about six feet wide.It violated the 
tranquility of our home, but I felt that for once I was doing something useful.
  Alton 

--Forwarded Message Attachment--
Date: Tue, 6 Nov 2007 21:40:47 -0500
From: [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Subject: [TMIC] folding grab bar

A few months ago I installed grab bars on the wall on each side of  
the toilet. When they are not being used, they fold up against the  
wall. Each bar is a loop with the bottom offset inward and below the  
top - I use the lower level initially and switch to the upper to  
transfer to my walker or the wheelchair.
 
The bars are made by Healthcraft Products of Ottawa, models PT-WR32R  
and PT-WR32L.
http://www.healthcraftproducts.com/ptrail.htm
 
I bought the pair from ActiveForever for 342.70 including shipping,  
but I cannot find the web reference. Here's another source:
http://www.acessinc.com/cart/shopexd.asp?id=1503
 
These bars are STURDY. They are speced at 350 pounds each. I know I  
have lurched against them and dragged myself up by pulling.
 
I recommend them.
 
 
Alton
--Forwarded Message Attachment--
Date: Wed, 7 Nov 2007 11:42:53 +0100
From: [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Subject: [TMIC] infra red sauna







Hi everyone

 

Are there people with TM who have expirence with a infra red sauna? Because i 
have problems with also heat, swetting is a lot less below the DX parts. Also a 
hot tub did not give me more energy but made my leggs worse. But in cold times, 
as they come up now, it lookes a very nice idea for warming up my body. The 
question for me is than, can I stand up and come out again.

 

Wim from Holland

Windows Live Mail: Nu 2gb aan opslag - dat zijn maar liefst 1000 foto's - en 
nog steeds gratis! Windows Live Mail
--Forwarded Message Attachment--
Date: Wed, 7 Nov 2007 06:34:42 -0700
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: RE: [TMIC] infra red sauna

















Hi Wim

 

I used to use an infra red sauna at the gym I was going
to.  At first it seemed to be just fine, but then after a few visits, it
definitely made my legs worse.   As in, the banding increased and
they were not wanting to walk well.  But as for the sweat – I was surprised
that even my lower legs were wet with water!  Good luck with your
decision.

 

Janet

 





From: wim from holland
[mailto:[EMAIL PROTECTED] 

Sent: November 7, 2007 3:43 AM

To: TMIC

Subject: [T

RE: [TMIC] Anyone else?

[marieke dufresne]

Hi Natalie,
About the dry mouth, what meds are you on? Many of them have this as a side 
effect, especially Ditropan (for the bladder).

Marieke



From: natalie mizenko <[EMAIL PROTECTED]>
To: Transverse Myellitis 
Subject: [TMIC] Anyone else?
Date: Thu, 9 Aug 2007 16:53:19 -0700 (PDT)

To the group:
  Has anyone ever experienced a very dry mouth, especially through the 
night and in the morning.  Also, last night my arms were hurting me so 
badly, and I have not been anywhere but hom.  Especially from my elbow to 
my wrist.  I have a knot under the skin on both arms in that area.  They 
were worse last night & this morn. but today they were some better, after 
all I ended up taking a pain pill.  This has never occurred so badly.  I've 
been noticing the mouth, but not the arms, til last night.  Natalie M.




-
Fussy? Opinionated? Impossible to please? Perfect.  Join Yahoo!'s user 
panel and lay it on us.


_
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simple, and safer than ever and best of all – it’s still free. Try it today! 
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RE: [TMIC] Marieke's Spinal Cord Injury Info

[marieke dufresne]

You are welcome...
marieke



From: Regina Rummel <[EMAIL PROTECTED]>
To: tmic-list@eskimo.com
Subject: [TMIC] Marieke's Spinal Cord Injury Info
Date: Thu, 9 Aug 2007 14:35:38 -0700 (PDT)

The info is great, so easy to read and understand.  The graphics are also 
great!

  Thank you.
  R


_
Former Police Officer Paul Gillespie’s TAKE BACK THE INTERNET tips and 
tricks, watch the video now  http://safety.sympatico.msn.ca/

RE: [TMIC] Jim Lubin? Spinal info.

[marieke dufresne]

Not sure if this may help too...
http://www.apparelyzed.com/spinal_cord_injury.html
marieke



From: "Grace M." <[EMAIL PROTECTED]>
To: tmic-list@eskimo.com
Subject: [TMIC] Jim Lubin? Spinal info.
Date: Thu, 9 Aug 2007 12:03:40 -0400

Hi Jim,

I could not for the life of me remember your email address.  Do you 
remember

the detailed spinal chart showing nerve roots and functions that you shared
with the list some time ago?   Would it be possible for Tim and I to use it
at our site?  We have a lot of members who are having a difficult time
understanding the spine, and that one is perfect for the layman.  Would you
consider posting it for us?

Grace


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Share More On Messenger with a Windows Live Space 
http://spaces.live.com/?mkt=en-ca

Re: [TMIC] A new member Jim Belz,and his wife Carol, active Secretary

[marieke dufresne]

Hi,
I should introduce myself too. I am 31, I was 28 when I got TM in March 
2004. I was paralyzed from the breastbone down too, at T1. I spent 10 weeks 
at the Montreal General as I managed to get C.Diff and had some GI problems 
after that that had to be sorted out before I was strong enough for Rehab. I 
then spent 8 months at the Montreal Rehab Institute where I went from being 
in a wheelchair to walking with a long leg brace and a walker, to the leg 
brace and canadian crutches to where I am now, a Cane and the brace of 
course!


I went back to work 6 months after being paralyzed, taught pre-k from my 
wheelchair. That February 2005 I got a GI problem again, partially brought 
on by stress, by fatigue, and the flu and ended up in the hospital for 3 
weeks again! When I got out I decided that's it, I am going back to school 
to do what I really want! Nursing. Sounds crazy right? I was still in a 
chair, was able to walk and stand but not for any long lengths of time. I 
applied and got in to Dawson College. All they knew what that I used a cane 
and a leg brace and of course the reason why I was paralyzed.


When June rolled around and school ended on the Friday, I decided that by 
Monday I would NOT use the chair anymore, UNLESS it was for the mall or any 
long distance type thing. And that Monday that is exactly what I did.


I started nursing school in Spetember 2005 and am about to start my 3rd and 
final year! I do 8hr clinical days just like the others, no special favours 
or treatment. I do everything my classmates do and they even come to me for 
help! I won an award last semester for clinical work and for being a 
helpfull, compassionate classmate. It was an award that means a lot to me as 
it was chosen by my clinical group mates. We were all asked to nominate 
someone and they all chose me, it menat so much because I still sometimes 
feel as if i have to prove myself over and over again.


Nursing is NOT easy when you are healthy, the hours are bad and long, you 
often work hard and no one tells you thank you, but when they do it feels 
great! Now try nursing when you have a disability, take Neurontin, Baclofen, 
Zanaflex which all make your BP drop, have to self-cath and have a slow 
bowel so must wake up 45min earlier that you should have to, and have to 
take BP meds to increase your BP to be able to function while on your feet! 
(Yeah, I take 2 types and so far mediocre results).


In my spare time, I blog about my life, moderate the TMA site and a student 
nurse site.. and sleep...

Anyhow, I wrote a book! Sorry about the long read!
Marieke :)
http://nurse-to-be08.blogspot.com



From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>
To: [EMAIL PROTECTED], tmic-list@eskimo.com
Subject: Re: [TMIC] A new member Jim Belz,and his wife Carol, active 
Secretary

Date: Wed, 08 Aug 2007 17:16:32 -0400

Welcome,

I know how you must feel.  I had retired from medicine and was doing a 
little writing, living the good life when TM hit me in Aug 2000.  When I'm 
"down" I dig up all those activities I'd seen myself doing in my retirement 
at 53 y.o..


It could be a lot worse!!

Count your blessings!!

F



_
Former Police Officer Paul Gillespie’s TAKE BACK THE INTERNET tips and 
tricks, watch the video now  http://safety.sympatico.msn.ca/

Re: [TMIC] Wheelchairs

[marieke dufresne]

The doctor and nurse shortage is worse in Quebec as they are the LOWEST paid 
in all of Canada. They are recruited to work in Ontario (nurses are highest 
paid there) and the USA especially. And yes, most MDs do not want to be GPs 
as they are the lowest paid specialty. I have 4-5 friends who graduated MeD 
School in the last 3 years, one of them became a GP and she did her 
residency in Ontario and stayed there to practice.. The others all went into 
specialties that will bring in more $$.
I am in nursing school and plan on stayiing in Qc, ONLY because I have TM 
and am getting very good care here and am not sure i would be well accepted 
in hospitals that do not know me. Having been in clinical rotation in 4 
hospitals here in Montreal, I know that it can be tough to be accepted when 
you have a disability, but that I have proven myself capable and have gotten 
job offers already. But yes, in  a perfect system, there would be no waiting 
times, no shortages and much better wages and working conditions.


Marieke (Mtl, QC)



From: Heather & Pieter <[EMAIL PROTECTED]>
To: TM Internet Chat ,Regina Rummel 
<[EMAIL PROTECTED]>

Subject: Re: [TMIC] Wheelchairs
Date: Mon, 06 Aug 2007 13:04:44 -0600

Hi Regina,

I'm not sure either of which is the better system.  I understand that if 
you can afford the insurance in the USA that you are well taken care of.  
However I also understand that it can be quite expensive for the premiums.


You are right that you do wait for a long time some surgeries.  A lot of 
them actually.  Some people who need hip or knee surgery wait for up to a 
year and maybe more in some cases.  That is crazy.


Yes, there are NOT enough doctors here in Canada.  Not sure exactly why.  I 
have read that some of the doctors who are new are going into specialized 
medicines or even research as they do not want to be GP's because of the 
hours etc.  I have gone to the same GP now for 40 yrs and he is only a 
couple years older than me.  Says he will be around for another 10 yrs.  
Not sure about that though.  He has moved 3 times in those years within the 
mostly downtown area of Calgary.  However, with Calgary growing so doggone 
fast these days rental prices etc are so high downtown that he has moved 
outside the downtown core.  He said that the overhead was getting to be so 
high that he moved.  It is actually the same timewise for me to get to him 
but actually easier as it is a quieter area and I don't have to pay for 
parking and there is more parking so that makes me quite happy.  I only go 
to see him once a year even with TM.  I see the physiatrist once every six 
months since TM and that is okay too.  You say that housing etc is high 
where you are for the young doctors and I think that combined with setting 
up an office of their own is high too.


I do not know what on earth the answer is.  I just wish there were more 
young people getting into the  medical field.  We are short of nursing 
staff here too as well as many of the nursing homes are desparate for help. 
 It doesn't seem to be just in Calgary either as most of my family live in 
Ontario and they are having the same problems with nursing, doctors too.


Heather in Calgary


  - Original Message -
  From: Regina Rummel
  To: Heather & Pieter
  Sent: Sunday, August 05, 2007 6:43 PM
  Subject: Re: [TMIC] Wheelchairs


  Frank & Heather,
  I am trying to figure out whether you are better off in Canada or us in 
the US.  The more I try to educate myself, the more confused I become.
  You both seem satisfied with your health care system.  That's good.  But 
we hear about many in Canada who have to wait a long time for surgery.  
That's bad.  And one of you (don't remember who) said that there aren't 
enough doctors in Canada.  How come?  Is it because of that $150,000 cap 
Frank talks about?
  Incidentally, I'm told (where I live) that young doctors are having a 
hard time getting started because homes are horribly expensive.  Taxes and 
insurance for doctors also very high, and so on...
  All this talk about reforming health care we hear from our presidential 
candidates is very interesting.  I don't think we need to worry about 
socialized medicine.  There is too much money in the status quo.

  Cynical as always.
  R


  Heather & Pieter <[EMAIL PROTECTED]> wrote:
Frank,

You should only be paying 6% GST now. That changed when the 
Conservatives

got in.

In Alberta we pay only the 6% GST and no provincial sales tax. Not 
sure

about the income tax or what the "Cap" on Doctors are.

Right now I pay $64.00 (42.00 extended medical single + $22.00 alberta
health care single) per month for health care insurance through my old
employer (who is now paying me the Long Term Disability). All I pay 
for my
medications is 20% with my Blue Cross Insurance picking up the other 
80%. I
can claim those payments on my income tax every year. When I have any 
kind

of tests MRI's, bloo

Re: [TMIC] Wheelchairs

[marieke dufresne]

No, a power chair is controlled by a set speed (the one you choose), it will 
not act like a manual chair.

Marieke



From: Kevin Wolfthal <[EMAIL PROTECTED]>
To: Tmic-list@eskimo.com
Subject: Re: [TMIC] Wheelchairs
Date: Sat, 04 Aug 2007 17:07:22 -0400





Oops, I meant speed of descent.   My bad.

Kevin




Kevin Wolfthal wrote:



There is a long ramp going out of an emergency exit in my building. It
is the only wheelchair access  to the building.   The ramp goes to
the sidewalk.  If using a power wheelchair down the ramp, will it tend to 
speed

up like a non-power wheelchair?  Or can you control the speed of ascent?
I wouldn't want to shoot out to the street, it's US-1, otherwise known as 
the

Boston Post Road, a major and very busy street.

Kevin













Heather & Pieter wrote:
I'm no longer in a wheelchair but do remember that was the way my husband 
was taught to do it with me in the chair.  Go backwards down a stair.

 Heather in Calgary

- Original Message -
*From:* Larry Throne 
*To:* [EMAIL PROTECTED]  ;
tmic-list@eskimo.com 
*Sent:* Saturday, August 04, 2007 8:00 AM
*Subject:* Re: [TMIC] Wheelchairs



If I am having someone help me down a ramp, I prefer them to tip
me backwards and wheel me down only on my back wheels.  It that is
not possible I go backwards with help.  Unless I know this is an
ADA ramp then I can do it my self.

Larry in Oklahoma







From: /natalie mizenko <[EMAIL PROTECTED]
>/
To: /Transverse Myellitis mailto:tmic-list@eskimo.com>>/
Subject: /Re: [TMIC] Wheelchairs/
Date: /Fri, 3 Aug 2007 16:43:52 -0700 (PDT)/

Pam,
When u get paralyzed, how do you get back to walking??  I cud
not walk at all if I tried.  I am totally paralyzed from T12
down.  Last weekend it was sorta funny in a way.  I had been
feeling better, had a break in my hard pain the day before.  
   On Sat. nite my husband said "Let's watch a movie

downstairs"?  Well, it is only a full step and downstairs is
carpeted.  It is like a sunroom in a way but we always have
used it like a den. It does have some wall between the
windows.  Anyway, he uses these 2 ramp things that he use to
drive the automatic mower upon to work on it and get into the
storage bldg.  Anyways, we've done it before w/ my loner w/c,
but not w/ this new one.  He was taking me down very slowly
and when we got to the bottom I flipped out and landed face
down.  But one leg had come in the front and one in the back.
 So, my head actually hit my leg mostly.  Anyways, my husband

picked me up (200 lbs. or a little, little less I am) and put
me in the recliner.  We still don't know what happened.  I
think my foot pedals are very low on this one so they don't
wack the walls and they hit fast and out I went.  It is funny
to think about it now.  I was a little shaken up at the time.
 Sorry for the novel, Natalie M.




*/[EMAIL PROTECTED]/* wrote:

MY HUSBAND IS ANGRY AND BITTER ALSO AT TIMES. WE WHERE
18 WHEN WE GOT MARRIED, HIGH SCHOOL SWEETHEARTS. I WAS
THE ONE WHO ALWAYS GOT CALLED BY EVERYONE WHEN SOMEONE
WAS ILL I STILL AM. WE WILL BE MARRIED 38 YEARS JAN.31 
ST.

I AM BETTER OFF THAN YOU AND HE DOES NOT UNDERSTAND
WHY ME. WHAT UPSETS ME AS I AM SURE WE NEED THEM MORE
FOR THINGS WE CAN NO LONGER DO.
HE IS BETTER ABOUT IT NOW BUT HE DOES HAVE HIS MOMENTS.
I AM LIKE YOU I DO THINGS AND THINK POSITIVE. I KNOW I
CAN DO SO MUCH MORE THAN YOU AND I ADMIRE YOUR COURAGE
AND STRENGTH .I FEEL THERE IS A REASON FOR EVERYTHING.
I AM GOING TO BE 56 NEXT MONTH. I HAVE HAD MANY
EPISODES OF TM THRU THE LAST 15 YEARS. I GET PARALYZED
AT ANYTIME. BUT I ALSO HAD MANY MANY GREAT YEARS.
I PRAY AND HOPE YOU NEVER HAVE ANOTHER EPISODE.
OUR HUSBANDS ALSO HAVE TO VENT.
I KNOW THEY DO A SURGERY SIMILAR BUT ON YOUR COLON A
COLONOSCOPY. HER WHOLE IS TINY AND SHE JUST WEARS A
BIGGER BANDAID ON IT. SHE TRAINED HER BODY TO DO THAT.
I ALSO KNOW A GIRL WHO HAS NO BLADDER. SHE URINATES
WHEN SNE HAS A BOWEL MOVEMENT. THERE IS SO MUCH
TECHNOLOGY NOW I THINK WE WILL BE OK.
KEEP UP THAT GREAT ATTITUDE, I KNOW YOU WILL DO FINE
WITH YOUR SURGERY.
  GOD BLESS YOU TIAD PAM




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