[TMIC] difficulties
Difficulties Difficult challenges can come into your life when you least expect them, and when you can ill afford them. Yet there they are, bullying their way into your world. If you try to ignore them or deny them, they just get bigger and more problematic. The more you let them worry you and get you down, the more helpless they make you. A life full of challenge is often stressful and uncomfortable, but it is vastly better than the alternative, which is a life full of nothing. Your own particular challenges may seem extremely unfair, and they probably are. But that doesn't make them any less real, nor does it make you any less obligated to confront and endure them. Accept the challenges when they appear, and you're well on the way to overcoming them. Though they bring disruption and pain, they also bring growth and power. Sometimes what is best for us, is not what we would choose. Life is difficult and in it we find unimaginable joy. Accept it all and live it for all it's worth.
[TMIC] A special blessing
This is a reiki blessing that I received from someone ... I wish this for all of us... May today there be peace within. May I trust that I am exactly where I am meant to be. May I not forget the infinite possibilities that are born of faith in me and others. May I use the gifts that I have received, and pass on the love that has been given to me. May I be content with myself just the way I am. Let this knowledge settle into my bones, and allow my soul the freedom to sing, dance, praise and love. It is there for each and every one of us.
[TMIC] I know it's not Friday....
but here's the best laugh you'll get all week -- Turn up your speakers and enjoy -- this bird has more rhythm than most people -- http://www.maniacworld.com/bird-loves-ray-charles.html
Re: [TMIC] Embrionic Stem Cell Discussion
They just throw those unused blastocytes in the garbage, they end up in some medical waste dump somewhere. Would you rather than that, than see those cells being used to help cure a lot of horrible diseases? You say that you support organ donation -- isn't giving these blastocytes a chance to help save somoene's life similar to organ donation? Don't you think they would rather do some good with whatever life they have, rather than just be thrown in a dump? - Original Message - From: ptpatti200...@aol.com To: tmic-list@eskimo.com Sent: Thursday, March 26, 2009 12:01 PM Subject: [TMIC] Embrionic Stem Cell Discussion I want to take a stand in the discussion regarding the use of human embryos for research or healing. I started following the healing possibilities before I ever heard of TM, because my husband has been diabetic for twenty years. My husband's stand was that he would not use any method that involved human embryo's even if it means he will die of the complications of diabetis. Good for him! (Hard for me.) Then along came TM and I now read of stem cell research with the hopes of us both benefitting from the outcome. However, I take my own stand - I do not want to use any method that consists of the use of embryonic stems cells and I regret the use of human embryos of any stage being used for research. I visited Jude yesterday and she asked me what TMIC was discussing. When I told her it was regarding the use of different stages of embryos for research and healing she said she would allow her body to die before she would accept any treatment that used human embryo's. We discussed that we have many extra adult stem cells that we would like to donate to research. I do not want my tax dollars to support embryonic research or baby abortions of any kind. I also quit donating blood after TM, however, I've signed for organ donation and figure it will be a doctor's decision whether or not to accept. Patti - Michigan one of God's creation -- Need a job? Find employment help in your area. -- No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.283 / Virus Database: 270.11.29/2024 - Release Date: 03/26/09 07:12:00
Re: [TMIC] stem cell
Hi -- there have been many success stories all over the world with stem cells, I am so glad our new president decided to let the researchers get back to it in a big way. You can google stem calls + various diseases, or stem cells + success, etc, and you'll get a lot of stuff. There were twin girls who went to China for stem cells a couple years ago, and they were helped tremendously. You used to be able to find their stories by googling stem cells + twins + Toronto -- try that. I personally believe that now that the research is back under way full steam, we will be seeing amazing things happening in just a year or two. Too bad those 8 years of research were lost because of dumdum. - Original Message - From: Amanda Diskey To: tmic-list@eskimo.com Sent: Tuesday, March 24, 2009 2:12 PM Subject: [TMIC] stem cell I found a hospital in Panama City, Panama affiliated with Johns Hopkins, and they say they can treat me with stem cells. The lady I spoke with says they have treated one person with TM and got good results. The cost is $30,000. What do you all think? -- No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.283 / Virus Database: 270.11.26/2020 - Release Date: 03/24/09 09:19:00
[TMIC] Friday funnies from doctors
1. A man comes into the ER and yells, "My wife's going to have her baby in the cab!" I grabbed my stuff, rushed out to the cab, Lifted the lady's dress, and began to take off her underwear. Suddenly I noticed that there were several cabs ---and I was in the wrong one. Submitted by Dr. Mark MacDonald,San Francisco 2. At the beginning of my shift I placed a stethoscope on an elderly and slightly deaf female patient's anterior chest wall. "Big breaths," I instructed. "Yes, they used to be," replied the patient. Submitted by Dr. Richard Byrnes, Seattle , WA 3. One day I had to be the bearer of bad news when I told a Wife that her husband had died of a massive myocardial infarct. Not more than five minutes later, I heard her reporting to the rest of the family that he had died of a "massive internal fart". Submitted by Dr. Susan Steinberg 4. During a patient's two week follow-up appointment with his cardiologist, he informed me, his doctor, that he was having trouble with one of his medications. "Which one?" I asked. "The patch, the Nurse told me to put on a new one every six hours and now I'm running out of places to put it!" I had him quickly undress and discovered what I hoped I wouldn't see. Yes, the man had over fifty patches on his body! The instructions now include removal of the old patch before applying a new one. Submitted by Dr. Rebecca St. Clair,Norfolk , VA 5. While acquainting myself with a new elderly patient, I asked, "How long have you been bedridden?" After a look of complete confusion she answered"Why, not for about twenty years - when my husband was alive." Submitted by Dr. Steven Swanson- Corvallis , OR 6. I was performing rounds at the hospital one morning and while checking up on a woman I asked, "So how's your breakfast this morning?" "It's very good, except for the Kentucky Jelly. I can't seem to get used to the taste" the patient replied. I then asked to see the jelly and the woman produced a foil packet labeled "KY Jelly." Submitted by Dr. Leonard Kransdorf,Detroit, MI 7. A nurse was on duty in the Emergency Room when a young woman with purple hair styled into a punk rocker Mohawk, sporting a variety of tattoos, and wearing strange clothing, entered. It was quickly determined that the patient had acute appendicitis, so she was scheduled for immediate surgery. When she was completely disrobed on the operating table, the staff noticed that her pubic hair had been dyed green, and above it there was a tattoo that read, "Keep off the grass. "Once the surgery was completed, the surgeon wrote a short note on the patient's dressing, which said, "Sorry, had to mow the lawn." Submitted by RN no name
RE: [TMIC] Rick Ashford
hi -- I'm sorry, I missed the original post -- what happened to Rick and his family? Can someone please post his email address... thanks
Re: [TMIC] Question?
yes, you need serious antibiotics immediately. this is much more serious than a bladder infection, and if you don't bomb it immediately your kidneys can be damaged. I know. Go right now to the dr. today. Quoting CANDIS KALLEY : > Never have had a kidney infection, I'm wondering if I have one now. I've got > a HORRIBLE backache on the left side just above my hip bone and it's tender > to the touch; I break out sweating for no reason - running 99.8 which is a > fever for me; I've lost my bladder control, what little I had - I go to the > bathroom, wash my hands or walk just a few steps and the urine just starts > flowing. I'm also much more tired than usual. > > Can anyone give me a clue? > > Candy K. > > >
Re: [TMIC] Hello i need your urgent assistance..
This is a scam, I have received these before. DO NOT SEND HIM ANY MONEY. - Original Message - From: robert hennessy To: tmic-list@eskimo.com Sent: Friday, December 05, 2008 3:18 PM Subject: [TMIC] Hello i need your urgent assistance.. Hello, Sorry I didn't inform you about my traveling to UK for a program, am presently in London and i am stranded here because i misplaced my wallet on my way to the hotel where my money and other valuable things were kept.I will like you to assist me with a soft loan urgently with the sum of 1,850 GB Pounds to sort-out my hotel bills and get myself back home. I will appreciate whatever you can afford, i will pay back as soon as i return.So please use the details below to transfer the money to me through Western Union money transfer because i was told that is the only way i could be able to get it fast and leave. This is the detail below Name : Robert Hennessy Address:Kenilworth Road, Hampton-in-Arden Solihull, West Midlands B92 0LW Country :England Test Question :Year of birth? Answer : 1981 Amount Sent: ? kindly help me to make the transfer as soon as you receive this email and once you have it sent, send me the money transfer control number with details used in sending it. Also i have my passport to prove my identity at Western union here when receiving the money. Hope to hear from you soon. -- Suspicious message? There’s an alert for that. Get your Hotmail® account now. -- No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.9.14/1832 - Release Date: 12/5/2008 9:57 AM
[TMIC] Wednesday funny
Hi -- this will give you all a good laugh. It's from columnist Dave Berry's colonoscopy journal... I called my friend Andy Sable, a gastroenterologist, to make an appointment for a colonoscopy. A few days later, in his office, Andy showed me a color diagram of the colon, a lengthy organ that appears to go all over the place, at one point passing briefly through Minneapolis . Then Andy explained the colonoscopy procedure to me in a thorough, reassuring and patient manner. I nodded thoughtfully, but I didn't really hear anything he said, because my brain was shrieking, quote, 'HE'S GOING TO STICK A TUBE 17,000 FEET UP YOUR BEHIND!' I left Andy's office with some written instructions, and a prescription for a product called 'MoviPrep,' which comes in a box large enough to hold a microwave oven. I will discuss MoviPrep in detail later; for now suffice it to say that we must never allow it to fall into the hands of America 's enemies. I spent the next several days productively sitting around being nervous. Then, on the day before my colonoscopy, I began my preparation. In accordance with my instructions, I didn't eat any solid food that day; all I had was chicken broth, which is basically water, only with less flavor. Then, in the evening, I took the MoviPrep. You mix two packets of powder together in a one-liter plastic jug, then you fill it with lukewarm water. (For those unfamiliar with the metric system, a liter is about 32 gallons.) Then you have to drink the whole jug. This takes about an hour, because MoviPrep tastes - and here I am being kind - like a mixture of goat spit and urinal cleanser, with just a hint of lemon. The instructions for MoviPrep, clearly written by somebody with a great sense of humor, state that after you drink it, 'a loose, watery bowel movement may result.' This is kind of like saying that after you jump off your roof, you may experience contact with the ground. MoviPrep is a nuclear laxative. I don't want to be too graphic, here, but: Have you ever seen a space-shuttle launch? This is pretty much the MoviPrep experience, with you as the shuttle. There are times when you wish the commode had a seat belt. You spend several hours pretty much confined to the bathroom, spurting violently. You eliminate everything. And then, when you figure you must be totally empty, you have to drink another liter of MoviPrep, at which point, as far as I can tell, your bowels travel into the future and start eliminating food that you have not even eaten yet. After an action-packed evening, I finally got to sleep. The next morning my wife drove me to the clinic. I was very nervous. Not only was I worried about the procedure, but I had been experiencing occasional return bouts of MoviPrep spurtage. I was thinking, 'What if I spurt on Andy?' How do you apologize to a friend for something like that? Flowers would not be enough. At the clinic I had to sign many forms acknowledging that I understood and totally agreed with whatever the heck the forms said. Then they led me to a room full of other colonoscopy people, where I went inside a little curtained space and took off my clothes and put on one of those hospital garments designed by sadist perverts, the kind that, when you put it on, makes you feel even more naked than when you are actually naked. Then a nurse named Eddie put a little needle in a vein in my left hand. Ordinarily I would have fainted, but Eddie was very good, and I was already lying down. Eddie also told me that some people put vodka in their MoviPrep. At first I was ticked off that I hadn't thought of this, but then I pondered what would happen if you got yourself too tipsy to make it to the bathroom, so you were staggering around in full Fire Hose Mode. You would have no choice but to burn your house. When everything was ready, Eddie wheeled me into the procedure room, where Andy was waiting with a nurse and an anesthesiologist. I did not see the 17,000-foot tube, but I knew Andy had it hidden around there somewhere. I was seriously nervous at this point. Andy had me roll over on my left side, and the anesthesiologist began hooking something up to the needle in my hand. There was music playing in the room, and I realized that the song was 'Dancing Queen' by ABBA. I remarked to Andy that, of all the songs that could be playing during this particular procedure, 'Dancing Queen' had to be the least appropriate. 'You want me to turn it up?' said Andy, from somewhere behind me. 'Ha ha,' I said. And then it was time, the moment I had been dreading for more than a decade. If you are squeamish, prepare yourself, because I am going to tell you, in explicit detail, exactly what it was like. I have no idea. Really. I slept through it. One moment, ABBA was yelling 'Dancing Queen, feel the beat of the tambourine,' and the next moment, I was back in the other room, waking up in a very mellow mood. Andy was looking down at me and asking me how I felt. I felt excellent. I felt even more exc
[TMIC] How To Tell If Your Cat Is Plotting To Kill You
http://www.catswhothrowupgrass.com/kill.php Have a good laugh today
Re: [TMIC] neuro report - went to my primary neuro - back in hospital - questions
Let's hope that Dr. Homes is as good as Dr. House -- he could solve all your problems in an hour! Seriously, we are all praying hard for you -- keep the faith! - Original Message - From: Trudy Ogilvie To: [EMAIL PROTECTED] Cc: TM Group Sent: Monday, November 10, 2008 10:49 PM Subject: Re: [TMIC] neuro report - went to my primary neuro - back in hospital - questions Randy, What's most important is that you believe in this guy Homes... and that's huge. You are already ahead of the game. So glad the gabapentin helped. You can also help by doing some deep breathing exercises and a little morning meditation (on whatever you want) Your body is going thru a tough time and you can calm it down a bit just breathing right and giving it some "quiet time". Meanwhile, we'll keep sending you lots of good vibes & thoughts and prayers and whatever else we can do for you ... we will... take care Trudy
Re: [TMIC] neuro report
Hi -- I got a virus in my inner ears a couple years ago, you can research labyrinthitis. I had very bad vertigo and dizzy spells when I tilted my head in certain ways. They put me on Dramamine/Gravol because there is no treatment for a virus, I just had to wait for my body to heal it. It was over 9 months before I could stop these meds. It finally went away, but came back the next year. At that time I got an MRI and some tests to test my balance and inner ear damage. They tilt you and shoot water into your ears, etc. But this shows exactly what the problem is. It sounds like that is what you might need any ENT guy should be able to arrange these tests for you, they're done in a hospital. If these tests are negative, then it's not an inner ear problem. But if it is, there are treatments to reposition the balance crystals in the inner ears, the dr can show you. Google the Epley Method -- Nobody should have to live with vertigo! It's so scary! - Original Message - From: randy rankin To: Betty ; TM Group ; Kim Cc: [EMAIL PROTECTED] Sent: Wednesday, November 05, 2008 8:22 PM Subject: [TMIC] neuro report I wasn't fond of the neuro. I should have tried to get back into with Hormez. I don't think I'll ever go back to Piedmont for anything. I was an awefull, awefull expereince. The good news was that the MRI showed nothing wrong with my brain. The not good news was that my trigimnal nerve was inflamed but i couldn't understand if the neuro was saying that this WAS trigiminal neurolgia or not??? - He said both?? - what does that mean? It either is or it isn't. He said that trigeminal neurolgia was a symptom of a problem and that it could not be treated but only the pain could be managed. He said that the gabapentin would help but in time, it will not work and I willl just have to increase the dosage. He said that I had to find the CAUSE of the problem. He believed that the cause had something to do with my ear but that he was not an ear specialist. But the ear specialist SENT me. He also said that it could be TMJ but I don't know what that has to do with an inflamed nerve in my brain and face. So, here I am, still in pain with no answers. The vertigo is still there - worse than ever. He said that that had to be an inner ear problem. So now, I am trying to find a denist/oral surgeon/TMJ specialist AND back to my ear doctor?? I feel so lost. -- No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.175 / Virus Database: 270.9.0/1770 - Release Date: 11/5/2008 5:36 PM
Re: [TMIC] About Prayer
AOL EmailWe all pray for you everyday, Jude. Jesus will take care of you. Don't worry, you didn't break *all* the commandments -- I'm sure you've never killed anyone! - Original Message - From: [EMAIL PROTECTED] To: TMIC-LIST@eskimo.com Sent: Sunday, October 26, 2008 4:16 AM Subject: [TMIC] About Prayer I agree that this forum is no place for either politics or religion. There are plenty of sites for either of those topics and people debate with a vengeance for what they believe. Visit those sites if that's what you're looking for. When I ask for you to pray for me I am completely sincere. My father was a deacon in the church and I was raised to believe in God and the Bible. I have certainly not always followed the Ten Commandments...not even one of them. Although the older I get the stronger my belief in God as my higher power becomes. Of course, I realize that I am no saint. My belief system is growing as my need for something to hang on to grows. The closer to death I become, the easier it is to believe in the Bible and the acts therein. When I was taken to the hospital the last two times, the doctors and nurses had to use the paddles on me and that is extremely sobering to hear about. I was literally a heartbeat away from death and I had no near death experience which makes it even more scary. Facing death makes believing in something like the Bible and God easier to conceive of. The immediacy and finality of death brought with it the need for something strong and bigger than we human beings. I needed Jesus and His Gift to hang on to. Without Him and the story of the Bible, I could find nothing to believe in. There are millions of books in libraries around the world. But no other book is opened and read more often than the Bible. Of course other religions have their own books of Prayer and belief in a Redeemer. To each, his own. I want to be prayed for. I need to be prayed for. And I appreciate every single prayer sent to Heaven on my behalf. I will pray for you as well if you believe as I do. Even if you don't believe like me I will pray for your peace of mind and health for your body. I promise never to belay this topic again. I think enough has been said by this big voice. So, continue to pray for me...for relief from this constant barrage of pain, for relief of the infections coursing through my blood, and for relief of the pressure sores and the infections that started it all. Thank you, from your constant admirer, Jude . -- Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! -- No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.175 / Virus Database: 270.8.3/1746 - Release Date: 10/25/2008 5:55 PM
Re: [TMIC] FLU SEASON APPROACHING.. SKIP THAT VACCINE AND DO THIS....
Or is it that you just don't know or care ;) - Original Message - From: <[EMAIL PROTECTED]> To: <[EMAIL PROTECTED]>; Sent: Monday, September 15, 2008 5:12 PM Subject: Re: [TMIC] FLU SEASON APPROACHING.. SKIP THAT VACCINE AND DO THIS There is a recent medical report that shows that using cannabis every day prevents colds and the flu. F No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.169 / Virus Database: 270.6.21/1672 - Release Date: 9/15/2008 9:21 AM
Re: [TMIC] FLU SEASON APPROACHING.. SKIP THAT VACCINE AND DO THIS....
Hi everybody. A lot of research seems to show that there is a higher incidence of MS in people from the North latitudes *because* they do not get enough sunshine. It is vital that we all supplement, unless you have a job where you're outside all day. There is an easy blood test that will tell you your Vitamin D level, ask your dr for it. I hardly ever go out, and so I started taking vitamin D supplements when they started talking about them here in Canada about 3 years ago. I took 400 mg a day. Then last year I heard more info, so I started taking 1400 a day. I had the test during my physical last month, and I am LOW. Even with all that supplementation I am still low. So I've started taking 2400 mg a day now, divided into two doses. We should all be taking it year-around, not just to help stave off the flu. I get mine from puritan.com, it's very cheap and they ship immediately. take care -- Michelle - Original Message - From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Monday, September 15, 2008 1:19 PM Subject: [TMIC] FLU SEASON APPROACHING.. SKIP THAT VACCINE AND DO THIS Hi Everyone ~ When I was writing to Linda this morning about her sinuses it reminded me of something that I want to let you all know.. Most people think they get sick with colds and flu in the winter because of the cold weather. Nothing could be further from the truth. The reason people get sick more often in the winter is because they don't get the usual 15-30 minutes of sunshine a day, (without sunscreen...!), that our bodies need to produce the Vitamin D we need to avoid getting sick. The solution..take a vitamin D3 tablet every day from Fall into late Spring everyone around you will be dropping down sick and you should be just fine. At the very least, if you do get sick , you won't be as sick as everyone else. The reason I said to skip that vaccine is quite simple. It DOESN'T WORK. The formula they have made this year for the flu vaccine was made from the flu strain that went around last year. Flu germs mutate every year. So... since this years flu strain has mutated.what good does it do to get a vaccine to protect you from last years flu strain?? Doesn't make sense when you think about it now does it...? Okay.take your Vitamin D3 and call me in the morning. :-) Hugs, Lynn -- Pt...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com. -- No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.169 / Virus Database: 270.6.21/1672 - Release Date: 9/15/2008 9:21 AM
Re: [TMIC] Blonde's
er probably because they weren't "real" blondes --- - Original Message - From: Robert Pall To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Tuesday, August 19, 2008 11:33 AM Subject: RE: [TMIC] Blonde's Great blonde joke. People raced into my office because I just started laughing...soon thereafter the whole office was laughing...except for the blondes...they did not see anyhting funny or wrong with it! Rob in New Jersey -- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Tuesday, August 19, 2008 11:01 AM To: tmic-list@eskimo.com Subject: [TMIC] Blonde's God, I love a good blonde joke... A blonde woman was speeding down the road in her little red sports Car and was pulled over by a woman police officer who was also a Blonde. The blonde cop asked to see the blonde driver's license. She dug through her purse and was getting progressively more agitated. 'What does it look like?' she finally asked. The policewoman replied, 'It's square and it has your picture on it.' The driver finally found a square mirror in her purse, looked at it and handed it to the police woman. 'Here it is,' she said. The blonde officer looked at the mirror, then handed it back saying, 'Okay, you can go. I didn't realize you were a cop.' It's only a deal if it's where you want to go. Find your travel deal here. No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.6.5/1620 - Release Date: 8/19/2008 6:04 AM
Re: [TMIC] Bed Sores
Hi everybody. Please don't take bed sores lightly. Don't forget that Christopher Reeve *died* of complications from a bed sore, and he had the best possible care. Our dear Jude is also in her situation because of bed sores, that is what started her downslide. They are truly life-threatening. It isn't enough to take something to stop the pain. They are still there. There are lots of things you can use to help prevent and treat them -- just google "bed sores". Don't just take an advil and hope they go away, they won't. Just look what poor Jude is going through. They're much easier to prevent than to heal once they've taken hold. Bless you all -- michelle
Re: [TMA-New-England] RE: [TMIC] knee pain!
Hi everybody. I have very bad arthritis, no cartilage in my knees at all. I started with Glucosamine many years ago, but I didn't get any help until I added Chondroitin. Then I really noticed an improvement (after about 3-4 months), and xrays after a year or so showed that little bit of cartilage had actually grown back. After a few years of that, I found out about Shark cartilage, and started on that. It has helped even more -- I don't know what I'd do without it. But you have to take a LOT. I used Bell's, but I believe the other ones available are about the same dosage. You need to start with 12 a day, for at least 3 months, then if you have relief you can cut back a bit. Otherwise keep going longer with the 12 a day. But don't stop, if you stop your pain will all come back and you'll have to start over again (I know). I have been on the Bell's Shark Cartilage for about 6 years now, and continue to take a daily dosage of 2 caps (plus 2 glucosamine). I didn't get total relief, although many people do, but I hurt *much* less than I did before I started on the Shark. take care -- Michelle
Re: [TMIC] did you all see house? TM was mentiond - I thought that was cool
Well, I might be wrong. But I got the impression that House considered the transverse myelitis as one of a set of symptoms this week, and not a full-blown disease of its own. Because he said to give antibiotics for the TM, and then to continue running tests for other things. Like the TM was just one of the guy's symptoms. I believe TM can be considered an inflammation of the spine, in which case I suppose someone could have that in addition to some other problems. What do you guys think? I'm sure they must have excellent doctors advising House, because they use such fancy terms all the time. They must know that tons of medical professionals watch that show, and so have to be really accurate all the time. - Original Message - From: Grace M. To: tmic-list@eskimo.com Sent: Friday, May 16, 2008 10:37 AM Subject: Re: [TMIC] did you all see house? TM was mentiond - I thought that was cool : If they had reason to believe that the TM was caused by an underlying infection, they would prescribe antibiotics. There are many diseases that present with TM as a symptom, my own (NMO) included. Grace -- No virus found in this incoming message. Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.16/1446 - Release Date: 5/16/2008 7:42 AM
Re: [TMIC] did you all see house? TM was mentiond - I thought that was cool
Yes, I was gonna write you guys to ask about this. I had it on tape and listened to it again. One of the drs suggested TM, and House said very clearly, "you start him on antibiotics for transverse myelitis". They mention TM often as a "possibility" for a lot of the patients who come in, but they always dismiss it very quickly. They also mention sarcoidosis for almost every patient, but it never is. I'm still waiting for them to have a show about someone with sarcoidosis, as that is what I have. It can be very mysterious, and would make a great show. Showcase is rerunning all the old episodes, and last night they showed the episode with the black college student who they dx'd with TM, so I listened more carefully to it this time. They believed that he had TM that was caused by an infection, but he had no active infection in his body. So they talked about the possibility of an old infection that was gone, but the damage lingered on. When they learned he had just been in Jamaica, House assumed (with no evidence at all) that the TM may have been caused by pesticide poisoning on the pot there, so he started the kid on some drug for that. He had a terrible reaction to that, so that was scrapped. Then they discovered that he had a radioactive keychain, and they never mentioned TM again. He died from radiation poisoning. This was the first patient House had that didn't make it. The first time I saw this episode, I thought they introduced the radiation because they didn't want to show someone dying from TM. But after listening more closely last night, he never really had TM at all, it was just radiation poisoning. take care everybody -- Michelle - Original Message - From: Carol To: randy rankin ; TM Group Sent: Thursday, May 15, 2008 7:16 PM Subject: Re: [TMIC] did you all see house? TM was mentiond - I thought that was cool Yes, I saw it and heard it loud and clear. And correct me if I am wrong, but I think I heard them say when they were getting ready to treat the TM, they were going to treat it with and antibiotic. Is that what you heard? I guess a doctor did not write the lines or I was not aware that it was treatable with an antibiotic. Carol in Culver, IN - Original Message - From: randy rankin To: TM Group Sent: Monday, May 12, 2008 9:25 PM Subject: [TMIC] did you all see house? TM was mentiond - I thought that was cool Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. -- No virus found in this incoming message. Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.16/1434 - Release Date: 5/15/2008 7:24 AM
Re: [TMIC] Misunderstood
Hello -- Sorry, Patti -- you do not understand how my program works at all. What you said is wrong. It is not MLM or a pyramid in any way. You do not call people and ask them to send you money. Last year I was looking for people to help me return phone calls from people who answered my ads, because there were so many I couldn't keep up with them. Maybe that is what you saw. I needed some people to help me call the lists of people who answered my ads, and invite them to listen to the information call. That's all we have to do -- invite people to come to a live call where they hear how this program works. We do not ask people for money. There is no selling or explaining, they explain everything on the call so we don't have to. If anyone would like to check it out, please lte me know & I'll be happy to book you for a call, they're held everyday. It is a private club where we all help each other learn how to leverage our money and make it grow by inviting others to join our club. It has been going for over 6 years and has over 55,000 members in 16 countries. It is very solid. I just found it last summer, and am averaging $10,000 a month. All we have to do is invite people to listen to the live call which explains exactly how it works, and it is their choice to join or not. If someone you invited to the call joins, you get their sign-up money. It is very straightforward. There is no way to fail unless you don't invite anybody. Everybody is an equal member, there are no multi-levels where some people make more money than others. Everybody is equal and has an equal chance to succeed. The more people you invite to the information call, the more will join, and the more money you will receive. Very straightforward. This is totally different from other things you may have seen. Not everything on the web is a scam, I personally know a lot of people making $100K or more on the web every year. It's a perfectly legitimate way to make a living, and perhaps the only way to make a good living for those who are disabled or in pain. I've been trying to make a good living on the web for almost 10 years, since I can't go out to work anymore. I tried a lot of different things, and this is by far the easiest and best. It was a great blessing to me when my friend told me about this last summer, and we all pass on this blessing by helping as many people as we can by throwing out financial lifelines to those who need more money in their lives. If you don't like this concept of people helping people to leverage their money, I'll be glad to get you set up in one of the businesses I was doing last year before I found this one. They're more "real", with real products that you have to sell, etc. It will take more work to make a decent amount of money, but I'll be happy to teach you how to do one or two of them. I made $108,000 in 2006-7 with a couple of those businesses. I have learned a lot in my 10 years on the web. You can do well also, if you have someone who will teach you how to do it the right way. I am offering to help anybody who would like to make some extra money. I know how hard it is to make money when you're disabled in any way. And recently there have been more than the usual number of posts from people saying they can't afford special medical treatments, PT, pool time, extra nursing care, etc. I just want to offer my help. I didn't expect to get shot down. My heart is pure -- I would never tell you dear souls about any business that is a scam. I have a few perfectly legitimate businesses to show you, if anyone are interested. If you're not, that's fine too. but please don't prejudge before you even know the real story. take care -- Michelle
Re: [TMIC] Misunderstood
MisunderstoodHello everybody. I have been reading all your stories, and want you to know that I pray for all of you everyday. I do not have TM, I joined this list because my dear friend has it. I am disabled with arthritis and sarcoidosis. Because I can't go out anymore, I have learned to make a very good living working on the internet, sitting down. I will make over $100K this year from my chair. If there are any of you who would like to get a little business going on the web, to either supplement your benefits or so you'll be able to quit your job, please let me know. I'll be very happy to help you in any way I can, I do understand your situations. I know that some of you cannot afford PT or other therapies that would help you. It's easy to bring in a couple thousand a month, or you can do more and bring in more. I will work with you to help you meet your income needs. Please contact me privately if you are interested in learning more. Send me your number & I'll give you a call. [EMAIL PROTECTED] take care -- Michelle
Re: [TMIC] JUDE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
This is appalling. I told you guys last month that you have to contact the ombudsman of the place where she is, they all have them. I know that one person called, but you need to call again. You need to call everyday! The ombudsman's job is make sure that things like this don't happen to patients, but you have to keep him informed! He probably talked to the staff once after you called before, and then he forgot about Jude. Call everyday!! This is criminal, and someone should take photos and keep records, because there could be a malpractice suit here. Jude cannot get this help for herself, you guys who are close to her have to take charge and DEMAND that she get better care, or they will just put her into a corner to die. It may already be too late to save her, (Don't forget, Christopher Reeve died ultimately of a bedsore, and he had the best care that money could buy), but at least we can help make Jude comfortable now. There is NO EXCUSE for what is happening to her!!! Whoever called the ombudsman before, could you please post the phone number & name to this list so we can all call on Jude's behalf? We don't know where she is or how to call the administration. thanks you -- - Original Message - From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Friday, March 28, 2008 2:20 PM Subject: [TMIC] JUDE WELL ITS NOT THE NEWS WE WANT TO HEAR.THE STAPH AND MSRA HAS WENT TO HER BLOODSTREAM.THIS HAPPENED A FEW DAYS AGO. THEY TOLD HER THEY HAD NO IDEA WHAT ANTIBIOTIC TO USE. SHE TOLD THEM SHE DID NOT WANT TO DIE IN THE HOME. SHE WOULD GO HOME WITH HOSPICE. I COULD BARELY TALK FROM FEAR OF CRYING. SHE TOLD ME DO NOT CRY.SHE WANTED TO WAIT BEFORE SHE TOLD ME TO TELL THE LIST. THEN LATER THAT DAY THEY TOLD HER SHE WOULD LIVE. THEY ARE TRYING DIFFERENT ANTIBIOTICS, SHE IS WEAK AND IN SO MUCH PAIN. I JUST GOT OFF THE PHONE WITH HER. SHE HAD DIAHREA ALL NIGHT. THEY LET HER LAY IN IT FOR ALONG TIME.SHE TOLD THEM SHE NEEDED TO BE CLEANED AND PUT A NEW DRESSING ON HER OPEN SORE. WELL THE AIDE DID NOT TELL THE RN THAT THE SORE WAS NOT COVERED AT ALL. JUDE LAYED LIKE THAT WITH THE OPEN SORE. THIS IS MALPRACTICE TO ME, NO WONDER THE STAPH AND MSRA WENT TO HER BLOODSREAM. I CANNOT BELIEVE THE NIGHT RN DID NOT GO AND CHECK JUDE,THIS IS APPALLING TO ME. THIS NURSING HOME AND THE HOSPITAL SHE IS IN IS HORRIBLE. I HOPE DAVE SAYS SOMETHING TO THEM. I TRIED TO REACH HIM BUT GOT NO ANSWER.IT SEEMS TO ME THEY HAVE NO CLUE WHAT TO DUE EXCEPT IGNORE JUDE, FIRST THE HOME NOW THE HOSPITAL .I DO NOT KNOW HOW MUCH MORE SHE CAN TAKE. MAYBE ITS TIME FOR SOMEONE TO CALL THE HOSPITAL AND MAKE A BIG STINK. I WANT TO BUT I AM WAITING TO HERE FROM DAVE. JUDE TOLD ME SHE DOES NOT THINK SHE IS GOING TO MAKE IT. I AM TRYING MY BEST TO WRITE THIS. MY HEART IS BREAKING. THIS NEVER SHOULD OF HAPPENED.THE HOME MESSED UP NOW THE HOSPITAL. MY GOD WHAT ELSE DOES SHE HAVE TO GO THRU. SHE WAS READY TO GIVE HELL TO THE DAY RN THAT CAME IN. EXCUSE MY LANGUAGE BUT WE GOT OFF THE PHONE BECAUSE THE NURSE HAD COME IN.THIS MAKES ME SO TICKED OFF IT COULD OF BEEN PREVENTED. ALL WE CAN DO IS PRAY FOR OUR JUDE. I AM AS I DO EVERYDAY. I SEND CARDS FLOWERS GIFTS LIKE SO MANY OF YOU DO.WE HAVE TO KEEP THE FAITH BUT JUDE IS SPIRITUALLY READY TO GO TO HEAVEN. I WILL LET YOU KNOW WHAT DAVE LETS ME DO IF I CATCH HIM BEFORE HE GOES TO WORK. MONDAY IS HIS LAST DAY OF WORK HE RETIRES .THIS IS NOT HOW IT WAS SUPPOSED TO BE. I AM LOST FOR WORDS WHICH NEVER HAPPENS TO ME. I NFEEL LIKE BREAKING SOMETHING , I AM ALL CRIED OUT. I AM GOING TO PRAY FOR JUDE BUT I HOPE SHE GOES HOME WITH HOSPICE SINCE THE HOSPITAL IS NOT DOING THEIR JOB. GOD BLESS OUR JUDE AND OUR TM FAMILY!! TIAD PAM -- Create a Home Theater Like the Pros. Watch the video on AOL Home. -- No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.1/1348 - Release Date: 3/28/2008 10:58 AM
[TMIC] Wim??
Wim, are you still on this list? Someone on another list I belong to needs a document translated from Dutch to English, it's about her husband's pension. Would you be able to help? thanks, Michelle
Re: [TMIC] Listening, attention, and solitude
Hi everybody -- have you considered that maybe it's the medication that is making you impatient? Modern antidepressants (as opposed to the tricyclics) have a bit of stimulant in them, as do many pain pills. If you're taking more than one pill, or if you're sensitive to stimulants, you might be getting a jolt like 5 cups of coffee -- and that would give anybody the "jitters". - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Thursday, March 06, 2008 11:13 AM Subject: Re: [TMIC] Listening, attention, and solitude Hi Barbara ~ I could have written that letter you just wrote I am in EXACTLY, word for word, the same situation...! To add a little to what you said. this morning while I'm trying to place an order online Bill started talking to me and there was no way I could listen to him and finish my order. I had to stop.listen to him.go back to my order...stop ...listen to him...go back to my order. I cannot walk and chew gum at the same time any more...! The solitute you mentioned...? Amen to that...! Had a friend over for lunch yesterday and he always stays way too long.I was squirming in my chair waiting for him to go back to work so I could just go lie down. Ain't TM life grand...? :-) Love ya, Lynn -- It's Tax Time! Get tips, forms and advice on AOL Money & Finance. -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.21.6/1315 - Release Date: 3/6/2008 9:07 AM
Re: [TMIC] gel cushion
That looks so soft and thin, doesn't it just squash flat like a pancake when you sit on it? - Original Message - From: <[EMAIL PROTECTED]> To: "Westgold" <[EMAIL PROTECTED]>; <[EMAIL PROTECTED]>; Sent: Wednesday, February 27, 2008 9:28 AM Subject: Re: [TMIC] gel cushion Try Tempur-pedic ! Expensive but worth it! F -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.21.1/1301 - Release Date: 2/27/2008 8:35 AM
Re: [TMIC] reITP
We are all praying for you, Gerry. I believe we *all* pray for *all* of us everyday --- but we will say a very special prayer for you for this treatment. Enjoy those pain-free days -- then ask your doc for some of *those* drugs in a doggie bag when you leave the hospital . at least find out what they are! many prayers & blessings, Michelle - Original Message - From: "Gerry Surette" <[EMAIL PROTECTED]> To: Sent: Wednesday, February 27, 2008 11:45 AM Subject: [TMIC] reITP Hi everyone' As some of you know I will be entering the hospital next monday morning for an intravenous gamaglobin including a bone maroow transplant. Thuis will last five days. To backrack my plelete count is very very low. I have ITP whereby my white blood cells are killing each other off. The risk are not so high. Those of us who have TM have gone through much worst. the news is this: It is related to TM> ;;; I thought it was a new complication to my life but doing some research I discovered that ITP is a directed result to TM in some people. \\\The good part of all this is that I will be so drugged up for four days that I will not feel the pain I have been experiencing for the last 7 years. It is better then cannibus. God bless One week of total bliss. no pain. just HIGH please keep me in your thoughs and prayers. Again my church is praying for Jude.The lord is with us each and everyone of us. Just look around you. your wife; your girlfriend; He sent them to us to help; comfort and don't forget to nag us as well. lol gerry [EMAIL PROTECTED] -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.21.1/1301 - Release Date: 2/27/2008 8:35 AM
Re: [TMIC] gel cushion
This looks good, but doesn't seem thick enough. I am not in a wheelchair, but I need a cushion on my steno chair to raise me up a bit for the computer. Since I am heavy (262#), every cushion I have tried, no matter what it says on the box, just smashes flat like a pancake under me. The only ones that don't squash are hard uncomfortable kapock or whatever, and they give me a numb bum! Has anybody found anything this is really comfortable and yet doesn't squash flat when you sit on it? thanks, Michelle - Original Message - From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Tuesday, February 26, 2008 6:47 PM Subject: [TMIC] gel cushion Has anyone ever ordered this or something similiar?? I'd be interested in your comments. Thanks, Barbara A Click here: Orthopedic Cushion and pillows from Dr. Leonard's Healthcare
Re: [TMIC] JUDE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
This is horrible. Every hospital has an ombudsman, whose job is to speak on behalf of those who cannot or will not speak for themselves, and to intervene in problems between patients and staff. Just call the hospital and ask to speak to the ombudsman, and tell him or her what is going on here. It will be taken care of. Nobody should be left to cry in pain And if the staff doesn't like what you've done and think they might like to take it out on poor Jude, tell that to the ombudsman too. She needs people to intervene on her behalf now -- NOW is the time to do something, before it is too late. - Original Message - From: MontzMagic To: tmic-list@eskimo.com Sent: Sunday, February 24, 2008 10:30 AM Subject: [TMIC] JUDE I AM SO UPSET. I CALLED HER LAST NIGHT. I COULD HEAR THAT SHE WAS IN PAIN AND CRYING.THEY WHERE GOING TO COME AND REPOSITION HER AND GIVE HER HER PAIN MED.DAVE HAD LEFT SO SHE COULD GET HER REST. THERE IS ONE AID THERE THAT DOES LIKE HER, WHO COULD NOT LIKE JUDE? SHE SAID SHE HAD BEEN WAITING SO LONG AND JUST WANTED TO GO HOME AND DIE, I TOLD JUDE TO GO OVER HER HEAD. SHE SAID SHE WOULD BE MEANER TO HER .I ASKSKD HER TO PRESS THE NURSE BUTTON AND PUT ME ON SPEAKER PHONE. .I WOULD OF TOLD THAT AID OFF.THIS IS JUST HORRIBLE .I TRIED NOT TO CRY BUT I DID ALONG WITH JUDE, SHE DOES NEED THIS, ITS MALPRACTICE,I ASKED JUDE IF SHE CALLED DAVE, SHE SAID NO SHE WAS GOING TO WAIT. I TOLD HER TO CALL HIM. THIS POOR WOMAN HAS BEEN THRU SO MUCH .FINALLY SOMEONE HAD CAME AND SHE SAID SHE WOULD TAKE CARE OF HER, I GOT A LONG DISTANCE CALL FROM MY SON AND HE HAS PROBLEMS HIS WIFE HAS A EYE DISEASE AND I LOST TRACK OF TIME. IT WAS TOO LATE TO CALL HER BACK. I WAS SURE HER MEDS HAD KICKED IN AND SHE SHOULD OF BEEN SLEEPING. I WILL CALL DAVE AND NOT LET THAT AID GO TO HER ROOM TO CARE FOR HER.IF PEOPLE WANT TO BE IN THE MEDICAL FEILD THEY SHOULD HAVE COMPASSION, IF THEY DO NOT GET ANOTHER JOB. I WILL CALL JUDE LATER AFTER I SPEAK WITH DAVE. HE NEEDS TO GO TO THE SUPERVISOR. PLEASE PRAY FOR HER SHE REALLY NEEDS IT.THIS IS HORRIBLE, IF YOU HAVE HER NUMBER ARE ADDRESS CALL HER AND KEEP IN TOUCH SHE NEEDS THIS.SEND A CARD ANYTHING WILL HELP HER. GOD BLESS JUDE AND OUR TIAD FANILY PAM WHO IS REALLY UPSET -- Supercharge your AIM. Get the AIM toolbar for your browser. -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.21.0/1296 - Release Date: 2/24/2008 12:19 PM
[TMIC] I hate my job!
When you have a "I Hate My Job" day, try this: On your way home from work, stop at your pharmacy and go to the thermometer section and purchase a rectal thermometer made by Johnson & Johnson. Be sure you get this brand. When you get home, lock your doors, draw the curtains and disconnect the phone so you will not be disturbed. Change into very comfortable clothing and sit in your favorite chair. Open the package and remove the thermometer. Now, carefully place it on a table or a surface so that it will not become chipped or broken. Now the fun part begins. Take out the literature from the box and read it carefully. You will notice that in small print there is a statement: "Every Rectal Thermometer made by Johnson & Johnson is personally tested and then sanitized." Now, close your eyes and repeat out loud five times, "I am so glad I do not work in the thermometer quality control department at Johnson & Johnson."
Re: [TMIC] OT? - Ladies - Makeup question - HELP
hi -- I also used to sweat like a you-know-what when I was taking anti-depressants many years ago. I tried everything. The only makeup that doesn't come off and run into your eyes when you sweat is the "waterproof" makeup, like Revlon Color Stay. You also have to use waterproof mascaras, and waterproof eye shadows, etc. The Color Stay stuff was the best I could find at that time, they may have better things available now. But you need a really good creamy remover to remove it at night, and baby oil to remove waterproof mascara. The only problem with this type of makeup is that it is quite thick, and looks a little pasty on the face. Try to find a perfect color match, that will help. Or some other companies may have better stuff now. - Original Message - From: CANDIS KALLEY To: transversemyelitissupport ; tmic-list Sent: Saturday, January 26, 2008 1:11 PM Subject: [TMIC] OT? - Ladies - Makeup question - HELP Ladies I have a question. Has anyone found a makeup that doesn't come off when you sweat? I have a friend that was a beautician and she said to try one of the mineral makeups. I'm tired of looking like a crippled bag woman. It's bad enough to have to find pull-on flat shoes that will stay while "dragging" one foot and also try to find fashionable looking/fitting clothes that you can pull on or that have BIG buttons. To think of all the heels that I gave away - let alone the work and dressy clothes! Some days I look in the mirror and could just cry! It's bad enough to be getting older but to look and act twice your age just gets too me. I know this sounds vain, but I've never looked this bad except for a week or two after an operation. Prayers and thoughts for you and yours, Candy K. -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.12/1245 - Release Date: 1/26/2008 3:45 PM
Re: [TMIC] Living with TM videos on YouTube
Hi everybody. I just went there, and Video Log 2 has somebody else now, a photographer talking about his TM, he didn't give his name. Is it someone on this list? I didn't see the Hands-Free Computing, but sure would like to. Can someone tell me how to find it? I've never used YouTube before, can we search for things by name, etc? thanks -- I pray that your all have a better year in 2008. In Toronto we have a gorgeous fresh layer of clean white snow today -- looks like a great fresh start. take care -- Michelle - Original Message - From: Jim Lubin To: Jenna ; tmic-list@eskimo.com Sent: Tuesday, January 01, 2008 1:34 PM Subject: Re: [TMIC] Living with TM videos on YouTube If you scroll down to the "Video Log 2" section and click on "see more", I'm in the "Hands Free Computing" video done by the Christopher Reeves Paralysis Foundation. That one is in English but my segment was smaller. http://www.youtube.com/transversemyelitis At 05:50 PM 12/31/2007, Jenna wrote: Wow Jim, that is so cool. Now we need a video of you in english too! Jim Lubin [EMAIL PROTECTED] http://makoa.org/jim disAbility Resources: http://www.makoa.org -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.17.13/1206 - Release Date: 1/1/2008 12:09 PM
Re: [TMIC] Merry Christmas?
man, that site is a riot! Thanks so much for sharing!! I am going to pass it along to all my friends. - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Thursday, December 27, 2007 4:08 PM Subject: Re: [TMIC] Merry Christmas? Frank, you can keep up with Christmas by checking periodically with this site: http://isitchristmas.com/ :-) It did say "Yes" on Christmas Day. Barbara H. http://barbarah.wordpress.com/ In a message dated 12/27/2007 4:03:23 PM Eastern Standard Time, [EMAIL PROTECTED] writes: Frank, You are still around. Haven't seen you here for a long time. Yep, it was Christmas. Hope you did get some of those Humbug candies for Christmas. Heather in Calgary - Original Message - From: <[EMAIL PROTECTED]> To: Sent: Tuesday, December 25, 2007 9:11 AM Subject: [TMIC] Merry Christmas? > Is it really Christmas?? > > I had no idea... > > I kept hearing those kind of songs on the radio, but didn't pay much > attention. > > That would explain all the lights, ribbons, and wreaths across the street. > > it would explain all those quasi-religious TV shows, too. > > My God, it is Dec 25th > > K, so what are you going to give me?? > > BaH, Humbug > > pH > > PS: In Montreal there are delicious hard candies called "Humbugs" -- See AOL's top rated recipes and easy ways to stay in shape for winter. -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.17.11/1200 - Release Date: 12/27/2007 1:34 PM
[TMIC] Christmas Blessings
Michelle West ([EMAIL PROTECTED]) has sent you a Jacquie Lawson electronic greeting card. Please click on the following link to see your card. If your e-mail program has not displayed this as a link, then please copy the following into the Address or Location bar of your Internet browser. http://www.jacquielawson.com/viewcard.asp?code=1376087512123&source=jl999 Alternatively, please visit http://www.jacquielawson.com and select the Pick Up Card option in the menu. Then enter your card code, which is: 1376087512123 If you have any problem at all viewing your card, please click here: http://www.jacquielawson.com/help_1.asp
[TMIC] on case you didn't get it
Hi everybody -- here is the text from the Rev. Billy Graham newsletter I just sent to the group, in case you weren't able to receive it with all the pictures & everything take care -- Michelle How Can I Avoid Falling into Despair? By Billy Graham, Tribune Media Services Q: I have been disabled almost all my life, and the older I get the harder it is to keep up a smiling front. My faith sustains me most of the time, but I admit I sometimes fall into self-pity and despair. But how can I avoid it, when I know I'm never going to get better? -- J.W. A: I know yours has not been an easy road, but the most important thing I can tell you is that God has not abandoned you, and His love surrounds you every moment of the day. You can depend on God's promise: "Never will I leave you; never will I forsake you" (Hebrews 13:5). Listen: As long as we focus only on ourselves and our own problems (and for many of us they are minor compared with the challenges you face), we will always slip into self-pity and despair. But when we focus on God and His love for us, our problems will grow smaller, and we will find strength to meet them -- and even with joy. The Bible says, "Cast all your anxiety on him because he cares for you" (1 Peter 5:7). How do we keep our focus on Christ? One way is by making His Word, the Bible, part of our lives every day. Through it we not only learn how God wants us to live, but we discover how great His love is for us -- a love so deep that His only Son was willing to endure the cross. No matter how much we suffer, Christ suffered far more than we ever will -- and that is the proof of His love. May God strengthen your faith as you commit your way to Christ every day. And remember: Someday all the pains of this life will be over, and you will not only be better -- you will be whole, for you will be in heaven with Christ forevermore. Send your queries to "My Answer," c/o Billy Graham, Billy Graham Evangelistic Association, 1 Billy Graham Parkway, Charlotte, N.C., 28201; call 1-(877) 2-GRAHAM, or visit the Web site for the Billy Graham Evangelistic Association: www.billygraham.org. Read more about By Billy Graham, Tribune Media Services at ArcaMax.com.
[TMIC] Fw: Billy Graham for Friday December 21, 2007
FREE Ezine from ArcaMax, Inc. - Original Message - From: ArcaMax Billy Graham To: [EMAIL PROTECTED] Sent: Friday, December 21, 2007 12:04 AM Subject: Billy Graham for Friday December 21, 2007 Having trouble seeing this email? View the most recent issue or stories from previous issues. More from ArcaMax.com! Funnies | Puzzle Games | Quizzes | Unsubscribe Christmas Trivia www.ArcaMax.com | News | Books | Comics | Games | Subscribe | My Account Billy Graham For MICHELLE Friday December 21, 2007 . How Can I Avoid Falling into Despair? . Tasty Holiday Recipes -- How Can I Avoid Falling into Despair? By Billy Graham, Tribune Media Services Q: I have been disabled almost all my life, and the older I get the harder it is to keep up a smiling front. My faith sustains me most of the time, but I admit I sometimes fall into self-pity and despair. But how can I avoid it, when I know I'm never going to get better? -- J.W. A: I know yours has not been an easy road, but the most important thing I can tell you is that God has not abandoned you, and His love surrounds you every moment of the day. You can depend on God's promise: "Never will I leave you; never will I forsake you" (Hebrews 13:5). Listen: As long as we focus only on ourselves and our own problems (and for many of us they are minor compared with the challenges you face), we will always slip into self-pity and despair. But when we focus on God and His love for us, our problems will grow smaller, and we will find strength to meet them -- and even with joy. The Bible says, "Cast all your anxiety on him because he cares for you" (1 Peter 5:7). How do we keep our focus on Christ? One way is by making His Word, the Bible, part of our lives every day. Through it we not only learn how God wants us to live, but we discover how great His love is for us -- a love so deep that His only Son was willing to endure the cross. No matter how much we suffer, Christ suffered far more than we ever will -- and that is the proof of His love. May God strengthen your faith as you commit your way to Christ every day. And remember: Someday all the pains of this life will be over, and you will not only be better -- you will be whole, for you will be in heaven with Christ forevermore. Send your queries to "My Answer," c/o Billy Graham, Billy Graham Evangelistic Association, 1 Billy Graham Parkway, Charlotte, N.C., 28201; call 1-(877) 2-GRAHAM, or visit the Web site for the Billy Graham Evangelistic Association: www.billygraham.org. Read more about By Billy Graham, Tribune Media Services at ArcaMax.com. Comment on this Story | Printer Friendly | Send Story to a Friend | Top Tasty Holiday Recipes There's still plenty of time to get creative with the cooking this Christmas. Bring something special to the table with recipes for the following: Homemade Marshmallows by Zola Gorgon Christmas Punch Holiday Shrimp Scampi Submit your own holiday recipe and read others here. You can get free recipes like these delivered to you by e-mail every day of the week with a subscription to the ArcaMax Recipes bundle. It includes everything from weekly menu planners to gourmet meals from Wolfgang Puck. Subscribe to the Recipes bundle instantly. Find out more before subscribing. -- From the ArcaMax editors Recent Stories Did God Give My Mother a Glimpse of Heaven? How Can We Convince the Older Members of Our Chuch to Bring in Younger People? What is The Blood of Jesus? When Should I Stop Covering for Someone Who's Doing Wrong? Should I Marry a Man With a Drug Problem? More Archived Stories More From ArcaMax Publishing Newsletters: Comics - Knowledge - Lifestyles - News - More Classic Books: Fiction - Non Fiction - Short Stories - Sci Fi - More More: Quizzes - Sudoku - Crossword - Weather - Sports - Columns Ad Free Newsletter ArcaMax publications are now available in an "advertising-free" format. Please click here for details. Quick Clicks Stop saying, 'I'm tired of working to make other people rich...' GOT INK? SAVE Up To 90% on Ink Cartridges 3 for 1 Pricing: Read more World Wide Data Entry Workers Needed - Work At Home. Details here Dream Job: Paid Surveys, Focus Groups at Home Improve Your Chess Game. Start Whipping Your Opponents Quicker Than Ever Before New Type-At-Home program: Start earning in 30 minutes - Anyone can How
Re: [TMIC] folding grab bar
Hi everybody -- hope you're all having a good weekend. I cannot install any traditional grab bars because I am in an apartment -- but I have seen those with big suctions cups on the ends. They say they won't leave a mark. Has anybody used these, and do they REALLY stick and hold? I'm talking about the good ones, they're about $100 each. I'm afraid that if I really leaned on one (I'm a big girl) that it might come loose. Anybody have experience with these? thanks --
Re: [TMIC] Scooter
Hi everybody. Has anyone successfully gotten a free scooter from those places that advertise them on TV, like The Scooter Store? They say that if they approve you, and your insurance will not pay, you get it free -- Or will insurance pay even if you social worker says you don't deserve one? It's the opinion of your *doctor* that the insurance company listens to, right?? - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Thursday, October 25, 2007 5:12 PM Subject: Re: [TMIC] Scooter Somehow, these social workers and Durable Medical Equipment people don't understand that people also want to have a "Quality of Life". In order to do that, we need to be mobile. This is why equipment with wheels are made. Sure, there are those who need scooters in their home for sure, but they aren't the only ones who benefit from them. I had the same problem when I wanted a wheelchair. She told me since I can get around my house without it that I didn't need it. But I asked her if I was supposed to be house bound for the rest of my life or if I were supposed to try and have some quality to my life and go to a shopping mall, amusement park or county fair, etc. Sure, we all have our limitations, but don't let anyone discount what you can do and try not to let them stop you from doing it if you can help it. OK, I've vented also. I'll get off my soapbox now! Hugs to all, Barbara A -- See what's new at AOL.com and Make AOL Your Homepage. -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.503 / Virus Database: 269.15.10/1092 - Release Date: 10/25/2007 1:14 PM
Re: [TMIC] OT OT OT more taken than given
How can you say this, Jude??! This is not fair at all. I sent you ALL the information the first time you asked me, it was 3 weeks or so ago. But then you wrote me on Monday night and told me you'd been in the hospital 3 times and wasn't able to check it out yet. We just emailed about this two nights ago! You said you got my information and would check it out when you feel better. How can you judge if you didn't even check it out! It is NOT a scam, it is a legitimate way to make money from home. I am making over $10,000 a month, I just received another $3,500 this afternoon. I am so busy with this I do not have enough time to call all the people who answer my ads and request information -- I just need some helpers to call these people and give them the information. I know that many of you cannot make ends meet on your disability payments, I am trying to *help* you by offering you easy work you can do from home to bring in some extra money. All you have to do is call people and give them the information, each call only takes about 5 minutes. If someone you talk to signs up, I will give you a 50% commission. It's perfectly straightforward. You were so nice when you wrote me about this on Monday, Jude, I don't know why you have suddenly turned face when you haven't even had a chance to check it out yet. I am just trying to help people who need to bring in a little extra money. It is a perfectly legitimate job I am offering people, just helping me return phone calls -- ABSOLUTELY NO SELLING INVOLVED! please contact me privately if you are interested and I will give you ALL the information. I don't think it's right to post all that on the list, so write me privately. take care -- Michelle [EMAIL PROTECTED]
Re: [TMIC] OT OT OT more taken than given
Hi everybody. For all you new members, if anyone wants to make some really good money from home to supplement your benefits, I still need a few people to help me return phone calls to people who have requested information about starting a home business. So many people answer my ads, I cannot keep up with them. This will not interfere with your benefits. All you need is a flat-rate long distance plan, about $20 a month, there are no other charges. Please let me know if you are interested. I pay a 50% commission on each person you find who signs up, $250 to $1750. I'll work with you & teach you exactly how to do it, but all you have to do is call people and invite them to attend a call where they can learn about the business. I'll give you the names to call. You can make the calls anytime, whenever you feel up to it. take care -- Michelle
Re: [TMIC] officially TM
Hi -- I just wanted to remind everybody that if you need to supplement your disability payments, I still need some people to help me make phone calls for my business. All you'd have to do is call lists of people, and invite them to attend a live telephone presentation. No selling! If someone you send to a call signs up, I pay 50% commission, $250 to $1750, depending on which level they sign up for. Your earning is unlimited, and just depends on the number of calls you make. You don't have to pay anything, all you'd need is a flat-rate long distance plan, since you'd be calling people all over the US (and Canada too if your plan includes that). The best one I found was from Sprint, only $20 a month for unlimited calls in North America. Please let me know if you'd like some more information. Your first step would be to attend the call yourself so you see what it is like, I'll send you the schedule. thanks, Michelle - Original Message - From: Alton Ryder To: Lawrence King Cc: tmic-list@eskimo.com Sent: Wednesday, October 03, 2007 3:53 PM Subject: Re: [TMIC] officially TM > I don’t have the financial resources to pay for access to such equipment Fitness facilities belonging to a hospital might permit use if 1) they get a doctor's order, 2) you pay a nominal fee. Alton -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.488 / Virus Database: 269.14.0/1046 - Release Date: 10/3/2007 10:08 AM
Re: [TMIC] Oprah
Hi everybody --- Is Cody the most famous person with TM? That guy who was on Montel is also well-known, we should also be telling Oprah about him. (She really likes people who have written books.) A famous person with any disease always helps raise the profile and raise more research dollars. I have sarcoidosis, and hardly anybody heard about it until 60 Minutes did a spot on model & former MTV VJ Karen Duffy and her struggle with it, and the book she wrote. Then Bernie Mac came out & said he had it too. A spot on 60 Minutes would be great for TM too!
Re: [TMIC] Unidentified subject!
Hello Robert & everybody. I have been wanting to talk to you all about this topic Robert brought up. As you know, I do not have TM, I joined this list because my closest friend has it. I have sarcoidosis and very bad arthritis, and I am practically housebound. I haven't been able to go out to work since 1981, and have been forced to make a living from home (sitting down). I tried a lot of different things, including writing for magazines, writing books, and I had a mail order business for 25 years. But I didn't make that much money until I started working on the internet about 9 years ago. It took me a while to figure it all out, but now I am making almost $10,000 a month on the web. I would be very happy to help any of you get a good business started, and teach you exactly how to do it. I'm a very good sponsor, and very sensitive to your situation since I am disabled too. I don't know how some of you live on disability payments, that wouldn't even be enough to pay my rent. I have been doing more than one business, but one is *really* hot right now, so I am concentrating on it. To come in the regular way, where you would earn a minimum of $500 for each person you bring in, the cost to get started would be $720. If you cannot swing that, I do need some "helpers", people to make phone calls for me, to invite guests to a live call where they can learn about the opportunity. I already have two helpers, but I can use an unlimited number. I pay a commission of 50% of whatever the person pays me to come in -- so that would be $250, $750 or $1750 for you when someone you find signs up with me. You wouldn't have to pay anything to be my helper, but you would have to have a flat-rate long distance plan, as you'll be calling people all over north America. The best one I could find was from Sprint, only $20 a month for unlimited north American calls. If you don't like making phone calls, I have a couple other businesses where you wouldn't have to do that, but I wouldn't be able to bring you into any of those for no upfront money. But I'll be very happy to help anyone who would like to get a good internet business going -- If you are interested, please drop me a line at [EMAIL PROTECTED] . take care -- Michelle - Original Message - From: "robert hennessy" <[EMAIL PROTECTED]> To: Sent: Friday, August 31, 2007 5:18 PM Subject: [TMIC] Unidentified subject! i am a 26 year old guy who wants to talk (preferebly) to a female. I was 20 when i was stricken with TM. I managed to graduate from college in 5 years with a B.S. in Psychology. I'm not having much luck finding a job. The daily struggles I have accepted, but sometimes I get frustrated. Please help _
[TMIC] OT The Wooden Bowl
Because you are special! Love and blessings, Michelle " I guarantee you will remember the tale of the Wooden Bowl tomorrow, a week from now, a month from now, a year from now. The Wooden Bowl A frail old man went to live with his son, daughter-in-law, and four-year old grandson. The old man's hands trembled, his eyesight was blurred, and his step faltered. The family ate together at the table. But the elderly grandfather's shaky hands and failing sight made eating difficult. Peas rolled off his spoon onto the floor. When he grasped the glass, milk spilled on the tablecloth. The son and daughter-in-law became irritated with the mess. "We must do something about father," said the son. "I've had enough of his spilled milk, noisy eating, and food on the floor." So the husband and wife set a small table in the corner. There, Grandfather ate alone while the rest of the family enjoyed dinner. Since Grandfather had broken a dish or two, his food was served in a wooden bowl! When the family glanced in Grandfather's direction, sometime he had a tear in his eye as he sat alone. Still, the only words the couple had for him were sharp admonitions when he dropped a fork or spilled food. The four-year-old watched it all in silence. One evening before supper, the father noticed his son playing with wood scraps on the floor. He asked the child sweetly, "What are you making?" Just as sweetly, the boy responded, "Oh, I am making a little bowl for you and Mama to eat your food in when I grow up." The four-year-old smiled and went back to work. The words so struck the parents so that they were speechless. Then tears started to stream down their cheeks. Though no word was spoken, both knew what must be done. That evening the husband took Grandfather's hand and gently led him back to the family table. For the remainder of his days he ate every meal with the family. And for some reason, neither husband nor wife seemed to care any longer when a fork was dropped, milk spilled, or the tablecloth soiled. On a positive note, I've learned that, no matter what happens, how bad it seems today, life does go on, and it will be better tomorrow. I've learned that you can tell a lot about a person by the way he/she handles four things: a rainy day, the elderly, lost luggage, and tangled Christmas tree lights. I've learned that, regardless of your relationship with your parents, you'll miss them when they're gone from your life. I've learned that making a "living" is not the same thing as making a "life.." I've learned that life sometimes gives you a second chance. I've learned that you shouldn't go through life with a catcher's mitt on both hands. You need to be able to throw something back. I've learned that if you pursue happiness, it will elude you. But if you focus on your family, your friends, the needs of others, your work and doing the very best you can, happiness will find you. I've learned that whenever I decide something with an open heart, I usually make the right decision. I've learned that even when I have pains, I don't have to be one. I've learned that every day, you should reach out and touch someone. People love that human touch -- holding hands, a warm hug, or just a friendly pat on the back. I've learned that I still have a lot to learn.! I've learned that you should pass this on to everyone you care about. I just did. NOTICE AT THE END, THE DATE THE CANDLE WAS STARTED. GONNA GIVE YOU GOOSE BUMPS. I am not going to be the one who lets it die. I found it believable -- angels have walked beside me all my life--and they still do. The Candle Of Love, Hope & Friendship () |---| |---| |---| This candle was lit on September,15, 1998. Someone who loves you has helped keep it alive by sending it to you. Don't let The Candle of Love, Hope and Friendship die! Pass It On To All Of Your Friends and Everyone You Love! Please keep this candle alive Don't walk in front of me, I may not follow. Don't walk behind me, I may not lead. Just walk beside me and be my friend.
[TMIC] A Beautiful use of the Alphabet !!!!!
THIS IS A BEAUTIFUL USE OF THE ALPHABET Although things are not perfect; Because of trials or pain; Continue in thanksgiving; Do not begin to blame; Even when the times are hard; Fierce winds are bound to blow; God is forever able; H old on to what you know; Imagine life without His love; Joy would cease to be; Keep thanking Him for all the things; Love imparts to thee; Move out of "Camp Complaining"; No weapon that is known; O n earth can yield the power; Praise can do alone; Quit looking at the future; Redeem the time at hand; Start every day with worship; To "thank" is a command; Until we see Him coming; Victorious in the sky; We'll run the race with gratitude; Xalting God most high; Yes, there'll be good times & yes some will be bad, but... Zion waits in glory...where no one is ever sad! "I am too blessed to be stressed!" The shortest distance between a problem and a solution is the distance between your knees and the floor. The one who kneels to the Lord can stand up to anything. God's Love and peace be with you forever, GOD LOVES YOU ... You never know who's heart you will touch, when you share a piece of your own. May God richly bless you!
[TMIC] $20.00
$20.00 Sometimes we just need to be reminded! A well-known speaker started off his seminar by: holding up a $20.00 bill. In the room of 200, he asked, "Who would like this $20 bill?" Hands started going up. He said, "I am going to give this $20 to one of you but first, let me do this. He proceeded to crumple up the $20 dollar bill. He then asked, "Who still wants it?" Still the hands were up in the air. Well, he replied, "What if I do this?" And he dropped it on the ground and started to grind it into the floor with his shoe. He picked it up, now crumpled and dirty. "Now, who still wants it?" Still the hands went into the air. My friends, we have all learned a very valuable lesson. No matter what I did to the money, you still wanted it because it did not decrease in value. It was still worth $20. Many times in our lives, we are dropped, crumpled, and ground into the dirt by the decisions we make and the circumstances that come our way. We feel as though we are worthless. But no matter what has happened or what will happen, you will never lose your value. Dirty or clean, crumpled or finely creased, you are still priceless to those who DO LOVE you. The worth of our lives comes not in what we do or who we know, but by WHO WE ARE and WHOSE WE ARE. You are special - Don't EVER forget it." If you do not pass this on, you may never know the lives it touches, the hurting hearts it speaks to, or the hope that it can bring. Count your blessings, not your problems. "And remember: amateurs built the ark .. professionals built the Titanic. If God brings you to it - He will bring you through it.
[TMIC] Never regret a day in your life
The Fern and the Bamboo. One day I decided to quit I quit my job, my relationship, my spirituality. I felt I had let down those I loved the most and I wanted to quit my life. I went to the woods to have one last talk with God. "God", I said. "Can you give me one good reason not to quit?" His answer surprised me... " Look around", He said. "Do you see the fern and the bamboo?" "Yes", I replied. "When I planted the fern and the bamboo seeds, I took very good care of them. I gave them light. I gave them water. The fern quickly grew from the earth. Its brilliant green covered the floor. Yet nothing came from the bamboo seed. But I did not quit on the bamboo. In the second year the Fern grew more vibrant and plentiful. And again, nothing came from the bamboo seed. But I did not quit on the bamboo". He said. "In the third year, there was still nothing from the bamboo seed. But I would not quit. In the fourth year, again, there was nothing from the bamboo seed. But again, I would not quit. He said. "Then in the fifth year a tiny sprout emerged from the earth. Compared to the fern it was seemingly small and insignificant. But just 6 months later the bamboo rose to over 100 feet tall. It had spent the five years growing roots. Those roots made it strong and gave it what it needed to survive. I would not give any of my creations a challenge it could not handle." He said to me. "Did you know, my child, that all this time you have been struggling, you have actually been growing roots. I would not quit on the bamboo. I will never quit on you. Do not compare yourself to others." He said. "The bamboo had a different purpose than the fern, yet, they both make the forest beautiful." "Your time will come," God said to me. " You will rise high!" "How high should I rise?" I asked. "How high will the bamboo rise?" He asked in return. "As high as it can?" I questioned. "Yes." He said, "Give me glory by rising as high as you can." I left the forest and brought back this story. I hope these words can help you see that God will never give up on you Never regret a day in your life. Good days give you Happiness. Bad days give you Experiences. Both are essential to life. Keep going... Happiness keeps you Sweet, Trials keep you Strong, Sorrows keep you Human, Failures keep you Humble, Success keeps You Glowing, But Only God keeps You Going! Have a great day! The Son is shining!! God is so big He can cover the whole world with his Love. But He can also be so small that He can curl up inside your heart.
Re: [TMIC] coincidence??
I recall Michael J Fox telling a reporter a few years ago that 3 people who worked on his first sitcom came down with Parkenson's disease. I believe that there is a LOT more about these diseases that science has yet to discover. So much research money is needed.
Re: [TMIC] OT: Doctor won't refill medications.
Good for you! Go get 'em tiger!! - Original Message - From: Kevin Wolfthal To: [EMAIL PROTECTED] ; Tmic-list@eskimo.com Sent: Thursday, June 21, 2007 11:37 AM Subject: Re: [TMIC] OT: Doctor won't refill medications. Hi Pam, There IS an elevator. The problem is not the elevator, it is that when the elevator door opens in the lobby of my building, in order to get outside, you have to get down two sets of stairs to get to the sidewalk. The elevator does not go down to street level, and the door persons are not allowed to touch anyone to help them unless they are visually impaired. There is one long passageway that goes to a long ramp that goes out to the street for people in wheelchairs, but when they get out there, it is illegal to park cars on that street not to mention dangerous to stop a car, because of the high amount of traffic. This is the oldest high-rise building built in my city,(50 years old) and the laws didn't exist to protect disabled folks that exist now. I am looking to move to a building that is disabled-friendly. This placw never will be, but I WILL make them met every current code I can, short of tearing it down and rebuilding it. Like putting in the four handicapped parking spaces that don't exist. Take care, Kevin [EMAIL PROTECTED] wrote: HERE ITS A LAW ALL BUILDINGS MUST HAVE HANDICAP SPOTS AND IN APARTMENTS YOU OR ASSIGNED ONE CLOSE TO YOUR APARTMENT. IF ITS A 2 STORY DWELLING THEY HAVE TO HAVE A ELEVATOR FOR PEOPLE WITH WHEELCHAIRS JUST LIKE THE HOSPITALS AND DOCTORS OFFICE.WHAT YOU DID WAS DEFINATELY A EYE OPENER FOR YOUR BUILDING. MY HUSBAND IS A PLUMBING CONTRACTOR BUT HE IS A CODE INSPECTOR SO I KNOW ALL ABOUT THE REGULATIONS HERE. YOU MIGHT WANT TO FIND OUT IF YOUR STATE REQUIRES A ELEVATOR WHERE YOU LIVE. IF THEY DID THE OUTSIDE FOR YOU I BET THEY SHOULD HAVE A ELEVATOR. I WOULD CONTACT YOUR CODES DEPARTMENT WHERE YOU LIVE AND SEE WHAT IS REQUIRED, ALL STATES OR DIFFERENT BUT IF YOU HAVE ACCESS TO A WALKER AND HANDICAPP USE FOR THAT YOU MIGHT JUST GET THEM TO PUT A ELEVATOR IN. JUST A SUGGESTION. TAKE CARE PAM See what's free at AOL.com. -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.472 / Virus Database: 269.9.1/857 - Release Date: 6/20/2007 2:18 PM
Re: [TMIC] China
Yes! It was two girls from Toronto. If you go to google and put in something like "Stem Cell therapy + China + Toronto" (without the quote marks) you will get their stories. They have been on TV and in the paper here, they are thrilled with their results. You can see even more about them by doing a search on our two main newspaper sites thestar.com and torontosun.com take care -- Michelle - Original Message - From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Thursday, June 14, 2007 8:10 PM Subject: [TMIC] China Does anyone know anybody who actually went to China for stem cell therapy. If so, do you know the results. Thanks, Rosalie -- See what's free at AOL.com. -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.472 / Virus Database: 269.8.16/849 - Release Date: 6/14/2007 12:44 PM
Re: [TMIC] grocery delivery
thanks for posting this, Sandy, this is very valuable info. Social service agencies usually have lists of places like this in the various areas. Church groups & Synagogues also often have lists of places to help, as well as volunteers who might help. Did everybody get my email "Grocery Delivery For All" that I sent an hour or so ago? If not, please look in your bulk folder for it -- I give a link where anyone can order groceries on the web for free delivery, no matter where you live. If you didn't get it through the list, please send me an email & I'll send it to you personally. [EMAIL PROTECTED] take care -- Michelle - Original Message - From: "Sandy Heidel" <[EMAIL PROTECTED]> To: "cakalley" <[EMAIL PROTECTED]>; "Akua" <[EMAIL PROTECTED]> Cc: Sent: Wednesday, June 13, 2007 4:52 PM Subject: Re: [TMIC] grocery delivery I have not joined in on this since going to the grocery store is still one of those things I CAN do one day a week. But in many Wisconsin communities they have a program called "Market Basket" or something like that. If I understand it correctlyyou get a large box of groceries at a discount and there are volunteers who deliver them. I think its set up that you can pick them up for yourself. But when I was looking at it a few years ago they were looking for volunteers who would not only belong to the program but also deliver the boxes to those who could not get out. Also...in some areas, more everyday, there are CSAs. Those are Community Supported Agriculture farms that grow vegies and fruits for members who pay up front and get a box of fresh produce every week. Its like having your own garden without the dirt, sweat, blisters and bending. The ones around cities I understand deliver to your door...more for working people who like to come home and find a cooler with fresh vegies on the back steps than disabled folks who cant travel...but you get the deal. My two cents, Sandy in hot, hot, too hot Wisconsin. Did I mention its rather hot today?
[TMIC] Grocery delivery for all!
Hello everybody -- I knew I could find something to help *everybody*, I just had to do a little thinking. Forgive me, I forgot that I represent this company, I could have given you this link when we first started talking about this, but it slipped my almost-60 mind Everybody, no matter where you live, can get groceries through this link... please feel free to pass it along to your friends. Or you can place orders for others who do not have a computer. http://www.amazon.com/b?%5Fencoding=UTF8&node=16310101&tag=shoppingangel-20&linkCode=ur2&camp=1789&creative=9325 They carry 22,000 non-perishable items, and shipping is free. You might still be able to find a fruit store or butcher shop in your city who will bring you perishables, but at least you won't have to lose weight for lack of Special K, canned fruit, tuna, canned meats, etc. I have to be honest, I do rep this company, and will make $3 each time someone opens an account -- if you would rather not go through my link, just go to Amazon.com and click on Groceries. Take care everybody -- thanks -- Michelle
Re: [TMIC] grocery delivery
hi -- Rochester is a good-sized city -- please get out the yellow pages and call around to the closest produce stores & small grocers, you'll be amazed at how many offer delivery. I am in Toronto, and I wrote a whole book on places that deliver a few years ago -- there were *hundreds* of stores, even tho most do not announce it (they don't want to be swamped). But if you tell them your situation, I know you'd find someone who would fill up a cart for you & have somebody bring it over. Even if they charge $10, it's cheaper than hiring that person to shop for you. I pay $10 to GroceryGateway.com, for any size order. I don't know what I would do without them! take care -- Michelle - Original Message - From: "Akua" <[EMAIL PROTECTED]> To: Sent: Tuesday, June 12, 2007 6:28 PM Subject: Re: [TMIC] grocery delivery LOL! What part of America are you in? There's nothing free around here and freelancers charge my elderly neighbors $20 hour plus gas to do their shopping. An entreprenuer brings a small "store" to our apartment building twice a week where she charges $1 for two apples or 4 bananas, 75 cents for a zuccchini, etc. There aren't any small grocery stores around, this is downtown Rochester and those who are ambulatory make their way to a drugstore ( Eckerd's? Walgreen?) that carries some junkfood. I'm making a list for the social entrepreneur incubator maybe i could get funding to meet some of my needs. Akua Hi everybody --- for those of you who do not have big grocery stores that deliver in your city, call around to all the fruit stores, small corner grocery stores and places like that. You'll be surprised at how many will deliver for $5 or something like that... and many are free. take care -- Michelle -- http://www.healrecover.blogspot.com http://www.akualezli.blogspot.com -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.472 / Virus Database: 269.8.13/843 - Release Date: 6/10/2007 1:39 PM
Re: [TMIC] grocery delivery
Hi everybody --- for those of you who do not have big grocery stores that deliver in your city, call around to all the fruit stores, small corner grocery stores and places like that. You'll be surprised at how many will deliver for $5 or something like that... and many are free. Until we got a big place where I could order my groceries on the internet for delivery, I used to use a fruit store down the street. They didn't have meat, but they had some frozen foods, lots of produce, breads, canned goods, etc. It was fine. We're supposed to be eating more produce anyway, right?? But some local butchers also probably deliver, so just call around. take care -- Michelle - Original Message - From: "Akua" <[EMAIL PROTECTED]> To: Sent: Tuesday, June 12, 2007 3:40 PM Subject: Re: [TMIC] Allen Rucker on Montel Williams Tuesday June 12 >Candy wrote: I do believe in the message that the Montel show was trying to convey - individuals define themselves no matter what life throws at you. You need to learn to take what God has dealt you and help whomever and wherever you can. I believe in the philosphy that we all are put on this earth for a reason, we may never know why and it may not be immediate in the changing. We all are just one small piece of the puzzle and the whole picture isn't clear until all the pieces are put together as a whole. Well, that's my 2 cents on this subject. Amen. As to Spreading the Word: mailings? Brochures we could print out and send to hospitals? Information flyers in pdf form that people could print out? The Reeves Foundation was the best source of information with that wonderful handbook on SCI I ache to save someone some of the hell I went through with administrivia--- if I had the wherewithall, I could create a better/competitive home health care agency for this market, better transportation for the disabled, shopping services ( there are NO grocery stores which deliver in this city--- but there is a pet food store that does!) I started to create a list on accessible housing--- the one I got while in the nursing home from the local Center for Disability Rights and HUD, was wildly inaccurate including phone numbers that didn't work and complexes that no longer existed.. Akua -- http://www.healrecover.blogspot.com http://www.akualezli.blogspot.com -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.472 / Virus Database: 269.8.13/843 - Release Date: 6/10/2007 1:39 PM
[TMIC] Metamucil
Hi everybody --I'd like to put in a good word for good-ole Metamucil, it's a miracle product. Many people do not realize it, but *whatever* your bowel problems are, it will help you. If your movements are too soft, it will firm them up. If they're too hard and you have constipation, it will soften them. It's such a great product!! You might have to take it 2-3 times a day, but it's pretty cheap. Be sure you get the Smooth texture one, the regular is horrible -- and be sure that the water you mix it in is fridge-cold, otherwise it will just gum up before you can drink it. Mix & drink immediately. The only problem with taking Metamucil is that you can't take it within a couple hours of any medication or supplements. Anything that's in your stomach when you take it can get caught up in it and get swept out of the body. So you have to arrange your schedule so you take it either an hour before or a couple hours after any medications. (And if you need to lose weight, take it right after you eat, it will sweep many calories out with it.) take care -- Michelle - Original Message - From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Friday, June 01, 2007 8:27 PM Subject: Re: [TMIC] Renal problems Dear Franque et al, For four years I had diarrhea every time I ate a meal; the doctor said I had Crohn's disease, but I was in denial of having that and ignored him. Then I changed meds--from a high dosage of neurontin to lyrica and cymbalta. Now I have chronic constipation and I think the meds are to blame. I haven't been back to that doctor and don't plan to. Priscilla in TN -- See what's free at AOL.com. -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.472 / Virus Database: 269.8.6/828 - Release Date: 6/1/2007 11:22 AM
Re: [TMIC] Re: Who's got what?
This is the loveliest group of kind and caring people I have ever been a part of. I don't have TM either, I have Sarcoidosis -- but I am here because my closest friend has TM. I want to learn as much as I can about TM so that maybe I can help her, and often we discuss various treatments & things that someone writes in about. I feel that we *all* contribute in some way or another to the group, and that is its purpose. Helping each other. MS is not TM, but many of the problems that the Missus has are similar. I love Bob's posts about her, what a wonderful guy he is! It's the *emotional* and *supportive* help that we give each other that is important. I hope this list will always welcome anyone who is interested in learning about this disease. This is one heck of a great group! I pray for you all everyday -- Michelle - Original Message - From: Jan Hargrove To: [EMAIL PROTECTED] ; tmic-list ; Bobby Jim Sent: Sunday, May 13, 2007 9:32 AM Subject: Re: [TMIC] Re: Who's got what? Here's my thinking, Bobby Jim has been at least with us 10 of the 11years I've been here, and he is a valued member of this group...his lady may have progressed to MS, but Bobby Jim is still here as a caregiver and a great friend and member of this family!!! My 2 ¢ janh
[TMIC] Actiq
Hi everybody -- has anyone ever tried Actiq (fentanyl) for TM pain? If so, how does it work, and how much did you take? There's a big article about it in Newsweek this week. take care -- Michelle
Re: [TMIC] Health question
Can we talk about being paralyzed and just being unable to move? My friend cannot move her legs, cannot roll over in bed, cannot hold the phone or use her hands to type, etc, but she is not paralyzed -- if you touch her or stick a pin in her she can feel it. How do you differentiate thes conditions? - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Monday, March 26, 2007 7:57 PM Subject: Re: [TMIC] Health question You know, I have new symptoms as well and worry about them greatly, but I believe that so little is known about paraplegism that most Dr.'s and even Neuro's don't know how to deal with them. I have been calling my doctor since last week for an answer and the answer is always the same, "Doctor has not come to a conclusion yet. We are waiting for the lab work to come back." I've not heard of this "butterfly" symptom in the four years I have been on the List, and yet here it is, mentioned twice in one set of emails. I wonder if there is anything new going on in the world. Is there anyone out there who is already paralyzed who feels like they are being paralyzed all over again beginning at the toes and traveling all the way up to the original ending spot? My original site stopped at T3 and fortunately did not affect my arms except for some slight tremor, but this time it feels like my arms are going to be paralyzed too. Please email me or the list if you have been through this. Bless Us All, Jude -- AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.446 / Virus Database: 268.18.18/734 - Release Date: 3/26/2007 2:31 PM
Re: [TMIC] Health question
Hi --- my friend had this fluttering under her skin for months before she woke up one morning and couldn't hardly walk. She described it as ants moving under her skin, it drove her crazy sometimes. When he would rub it, it would just move somewhere else. She saw all kinds of doctors, nobody knew anything. But it turned out that this was her first symptom of the TM. - Original Message - From: Candis Kalley To: tmic-list ; transversemyelitissupport Sent: Monday, March 26, 2007 4:53 PM Subject: [TMIC] Health question I have been having "flutterings", which are like the small muscle spasms I have in my legs and arms, over my left breast area. This just started in the last week - or at least that I am aware of. Does anyone have the same or does anyone think I should contact my Neuro? I have been under some stress due to doing taxes and finding out that I owe $3500 to IRS. Little did I know that the Disability Insurance is taxable which I think is unjust - if I had my car stolen or totaled, I don't think that insurance amount is taxable! Also due to the amount of the Disability Insurance amount, I don't qualify for any additional credits. I had plenty of deductions due to meds, Medical Health Insurance payments, special equipment not covered under insurance, etc. and got the amount from $7500 to the $3500 amount, BUT still more than I think I should pay. Then today I went to pay my credit card that I use for personal items (groceries, meds, gas, etc.) and found that some where along the line, my credit card number has been stolen. I have $500+ in different charges with such items as Islamic Refugee Relief, hobby store, etc. The Credit Card company is looking into it but does that mean that possibly the FBI or CIA will be visiting me? I check my credit card and bank balances at least weekly. All this has happened since last Friday, 3/23. Anyway, back to the original question - should I be alarmed? I don't want to appear neurotic to the doctor but I also don't want to ignore any "signals" that my body is trying to send to me. Thanks, Candy K. Candis Kalley [EMAIL PROTECTED] EarthLink Revolves Around You. -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.446 / Virus Database: 268.18.18/734 - Release Date: 3/26/2007 2:31 PM
Re: [TMIC] Re: tmic-digest Digest V2007 #90
I think there are a lot of very talented people on this list! My friend is also a published author, with several books. This is her newest book, on breast cancer... http://www.DancingWithFear.org Yes, after she survived breast cancer, 5 years later she got TM. She wonders if perhaps the radiation might have done something to bring on the TM... - Original Message - From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Monday, March 19, 2007 9:55 AM Subject: [TMIC] Re: tmic-digest Digest V2007 #90 DEAR CANDY, I AGREE WITH YOU ON THE BOOK. HE DID A GREAT JOB AND I KNOW EVERYONE IS PROUD OF HIM. YOUR CORRECT HE DID NOT IN MY OPINION TOUCH ON TM AND HOW IT EFFECTS US ALL DIFFERENTLY. I THINK WITH HIS BOOK AND IF SOMEONE ELSE WROTE ON ALL THE ASPECTS OF TM IT COULD POSSIBLY HELP US ALL ALOT MORE. I WAS VERY GOOD IN SCHOOL AND I HAD A POEM I WROTE PUT IN A BOOK BY SENIORS. I HAVE SPOKE ABOUT THIS TO MY DOCTORS. THEY SAID I COULD DO A BOOK GET PERMISSION TO HAVE PEOPLE ON THE LIST IN IT AND LET PEOPLE KNOW WHAT TM REALLY IS.LET THEM NO ABOUT THE TM SITE. I AM A PERSON WHO GETS BORED EASILY. IT WOULD TAKE ALOT OF MY TIME ALSO. I WOULD THEN HAVE TO FIND OUT WHO TO CONTACT. I KNOW I CAN DO IT,MY DOCTORS SAID THEY WOULD HELP ME IF I WAS REALLY SERIOUS.MY HUSBAND THINKS ITS A GREAT IDEA. NOW I DO SO MANY THINGS TAKE HARP LESSONS, I PAINT AND AM ON LADIES COMMITEES AND MY FUN THINGS.THE COUNTRY CLUB MY BONCO ONCE A MONTH JUST DOING THINGS WITH MY FRIENDS. WE WHERE HIT REALLY HARD BY KATRINA. MY HUSBANDS COUSIN DID A CD ON IT. HE PLAYS THE GUITAR AND SINGS. MY HUSBAND ALSO WAS IN A BAND AND PLAYED THE GUITAR AS WAS MY BROTHER.WE ALL HELPED HIM OUT I PLAYED THE PIANO FOR THE LYRICS, I DID NOT DO ALOT. IT WAS CALLED AFTER THE MATH.MY HUSBANDS COUSINS DESIGNED THE COVER GOT THE RECORDING STUDIO. THEY PUT ALOT OF WORK IN IT. ITS DOING GREAT HERE. THEY HAVE ALOT OF CONNECTIONS I KNOW THEY WOULD HELP ME ALSO. I THINK THERE IS SOMEONE MORE QUALIFIED THAN ME TO WRITE IT. I HAVE BEEN THINKING OF A TITLE.WHO KNOWS I MIGHT GIVE IT A SHOT. ITS JUST I GET BORED AND I THINK I WOULD TAKE ALONG TIME IN GETTING IT DONE. PLUS I AM TALENTED IN MANY WAYS BUT I WROTE POETRY NOT A BOOK. IT WOULD BE A CHALLENGE THOUGH. IF I DECIDED TO REALLY DO THIS I WOULD NEED ALOT OF MEMBERS STORIES AND INPUT. I DO HOPE SOMEONE WILL DO ONE WHO IS MORE OF A WRITER THAN ME. CONGRATULATIONS FOR THE FIRST BOOK WROTE, IT HAD GREAT REVIEWS. BEST WISHES TO ALL PAM -- AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.446 / Virus Database: 268.18.14/727 - Release Date: 3/19/2007 11:49 AM
Re: [TMIC] numb hand
Call your doctor immediately. My friend started out slightly numb, and within a couple months now she cannot even type or feed herself, she can't hold a thing. I don't know if anything can be done to stop it once it starts, but call your doctor immediately. - Original Message - From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Sunday, February 25, 2007 1:31 PM Subject: [TMIC] numb hand Has anyone woken up at night with a numb hand? Twice in the last week, I've woken up during the night with my left hand numb. The first time I just chalked it off as being b/c I'd fallen asleep laying on my back on an ice pack for a couple of hours. But when it happened again last night, I got a little more concerned. Part of what makes me more concerned is that for the last couple of weeks, my upper spine has been feeling a bit weird. My TM lesion is T6 - T8, but now I'm starting to worry about something higher in my back. Now that I think about it, when I was jumping (lightly) on the little trampoline at PT, I felt this funny feeling in my upper spine (like maybe it was sort of jamming together). Then at water exercise, I've started participating in the jumping jacks that sort of does the same thing to my upper spine. Of course, it's not like jumping on the ground b/c the water cushions the movement, but maybe my body isn't ready for this. Any experiences with these kinds of things? Sally
Re: [TMIC] Subscription
I know -- sometimes it prints my posts, and other times I get it back with "access denied". There doesn't seem to be any rhyme or reason! Like my second post this morning about how to enlarge the type was denied, although the original one went through. Who can I talk to about this? How is in charge of this list, and how can I reach him/her privately? thanks, Michelle - Original Message - From: ROBERT COOK To: Regina Rummel ; tmic-list@eskimo.com Sent: Friday, January 26, 2007 2:29 PM Subject: RE: [TMIC] Subscription YOU MADE IT HERE NOW - Original Message - From: Regina Rummel To: tmic-list@eskimo.com Sent: 1/26/2007 12:00:33 PM Subject: [TMIC] Subscription I have tried and tried and even had someone yesterday help me again. For some reason, I have been accessing your group for over a year and am not allowed to participate. Please advise at what I am doing wrong. Thanks! Regina
Re: [TMIC] Subscription
I have the same probelm -- most times I try to post I get "access denied" -- how can we become full members so we are never denied the right to post?? - Original Message - From: Regina Rummel To: tmic-list@eskimo.com Sent: Friday, January 26, 2007 12:59 PM Subject: [TMIC] Subscription I have tried and tried and even had someone yesterday help me again. For some reason, I have been accessing your group for over a year and am not allowed to participate. Please advise at what I am doing wrong. Thanks! Regina
Re: [TMIC] fine print and old eyes
Hi everybody. There are two ways you increase the size of the print you see on your own computer. Try the easy one first -- it will increase the size of all type in the emails you receive, and also the print on most website you visit. Just open your browser, Internet Explorer. In the toolbar at the top, select VIEW. Then TEXT SIZE. Click on Largest. If this is still not big enough for you to read easily, let me know. There is a way to increase the size of everything dramatically by using special settings so that people with various disabilities can still use the computer. I'll find out how you can do this if the above-mentioned setting change isn't enough. take care, Michelle - Original Message - From: "ROBERT COOK" <[EMAIL PROTECTED]> To: "Alton Ryder" <[EMAIL PROTECTED]>; "TMIC list" Sent: Thursday, January 25, 2007 6:06 PM Subject: RE: [TMIC] fine print and old eyes ALTON SOME TIME WAY BACK I SENT TO THE LIST AN EASY MEANS OF ENLARGING THE FONT OF E-MAIL WITH JUST A CLICK/ROLL OF YOUR MOUSE. IT WAS SOME COMBINATION OF THE CONTROL BUTTON AND ANOTHER, BUT I FORGET. MAYBE SOMEONE WILL REMEMBER AND SEND IT OUT TO THE MEMBER, AGAIN, AND YOU CAN THEN USE IT. IT WAS QUICK AND SIMPLE BOB [Original Message] From: Alton Ryder <[EMAIL PROTECTED]> To: TMIC list Date: 1/25/2007 4:46:25 PM Subject: [TMIC] fine print and old eyes When 11 point type is viewed on a big screen at maximum resolution, it appears as very fine print. Namely, on my screen at this moment is a note by an long-time TM'er; the 11 point body of his note appears with the text, "was", only .07 inches tall. My old eyes cannot read that without glasses plus leaning forward to get near the screen. There are two solutions: larger type or a lower resolution screen. Changing the screen resolution is in conflict with my style of computer usage. Changing the type size for each message received is not worthwhile for mailing list messages. I am sure that I am not alone with this problem. So I would like to ask contributers to compose their messages with 14 point type or larger. This message, and others I create, is 14 point. Alton
Re: [TMIC] medications and supplements
Hi everybody. You are right about omega-3 oils -- they are a *very* powerful anti-inflammatory. This is a hot field of research right now, as they prove that so many of our medical problems and pains are caused by inflammation in the body. People with TM and similar diseases have serious inflammation on the spine and throughout the body. You can get a *free* bottle of the most powerful type of omega-3 anti-inflammatory supplement -- from the New Zealand Green-lipped mussel -- at this site. Just pay $6.95 for shipping for a month's supply. If it will work for you, you should notice some improvement in a month. It's definitely worth a try. http://www.UltimatePainRelief.com take care -- Michelle - Original Message - From: "Kathryn Keen" <[EMAIL PROTECTED]> To: "Jenna Stentz" <[EMAIL PROTECTED]>; "TM List" Sent: Wednesday, January 17, 2007 7:47 PM Subject: [TMIC] medications and supplements I was interested in the claims made in Jenna's post on Glyconutrients, (http://www.vitalcarbs4life.com/ http://www.glycoscience.org/) but felt it sounded a bit like a sales pitch. I did a web search and found many sites selling the same thing with the almost the same wording as one another. It sounded a bit like a pyramid selling scheme. None seem to actually describe the product they're selling in any details, or give prices or ingredient lists etc. but all make these really huge claims. I also came upon this site, which gave a different perspective, and refuted claims about some of the studies: http://www.ratbags.com/rsoles/comment/mannatech.htm http://www.ratbags.com/rsoles/comment/mannatech060910.pdf Having said that though, Jenna, I'm not disputing your claims, and would be very interested in any treatment or supplement that actually works. Like everyone else here, I'd love to be cured or at least to find something that relieves the suffering a bit (or a lot!). I have noticed since being struck down by TM that I sometimes get huge sugar cravings and eat lollies when I do. I never used to have a sweet tooth, but now I do. I don't pig-out on them all the time, (because my legs are already wasted heaps from a yr in a wheelchair, and I don't want to have to put on extra weight for them to have to try to hold up, as I'm now managing to walk a bit now with a Canadian crutch), but the sugar-craving is something I've noticed. I wonder if that's something to do with the claims of the sites on the Glyconutrients about sugars? Maybe it's just coincidence, but I did wonder if my body may be needing more sugars or something, when I had these real cravings for something sweet. One doctor I saw while having a scan done suggested to me that fish oil supplements and glucosamine are useful in demylenating diseases, as they will help protect it in some way. I take the fish oil, as I'm a vegetarian (not any more I guess :), and think maybe I've been missing out on something in the diet. (Although no way I could bring myself to eat meat though).. But I haven't tried the glucosamine yet as it's too expensive, and I'm only barely struggling to make ends meet as it is. Has anyone tried the glucosamine? None of these things is actually a 'cure' or anything, but just maybe a maintenance thing to try to keep as well as possible, under the circumstances. I do get a bit worried at some of the quackery that targets sick people, who are desperate for cures or relief, and are probably an easy target for unscrupulous people to make money out of. But if anything would give some relief, then it would be great. I just don't want to be ripped off, because it's so hard to manage with being sick anyway. I agree with others that have written in here, with the pain. I've found the constant pain is the worst part of this. My back pain just won't go away. Some days it's not as bad as others, but it's always there. I find when I've tried to push myself to do more, I tend to pay for it over the following days with heaps more pain and fatigue. After the back pain, the legs and feet are next worst, with the pain and frozen feeling and banding. But all my joints seem so incredibly painful at times too. It's just relentless. Then there's the spasms and twitching legs; and not being able to go to the loo without heaps of laxatives every day, or to even push properly. I'm taking 200mg Tramadol morning and night for the pain, and Neurontin (which I can barely afford, so only take a little, as it's not on the PBS for neuropathic pain here, and costs almost $100 a packet at most chemists), and Baclofen for the spasticity, (which has made a huge difference for me). I still sometimes need to take Endone in the middle of the day if the pain becomes too severe. I've tried going off the Tramadol, as I don't want to become dependant on it, but the pain is just unbearable when I do. 200mg Tramadol is the biggest dose available and is long acti
[TMIC] Toronto Woman gets stem cell therapy
AOL EmailHello everybody -- I hope you all had a good weekend. We finally had some snow here in Toronto! I just found out about a Toronto woman who was paralyzed. She went to China for stem cell therapy, and now she has feeling returning to her legs. I saw her on TV and she was so thrilled with the results. Here is a report about her, and at the bottom of the story is a link to her blog, where she tells everything about what happened. It is fascinating. This is the miracle so many people need. http://www.citynews.ca/news/news_5821.aspx If you go to google, and put this into the search box stem cells + Toronto + China you will find stories of some other Toronto people who also went for this treatment. They are starting to get real results from stem cells... imagine what the next 5-10 years will bring! There is always hope. take care -- Michelle - Original Message - From: ROBERT COOK To: TMIC-LIST@eskimo.com Sent: Monday, January 15, 2007 8:44 AM Subject: [TMIC] Embryonic Use AYE !!! BUT IN EITHER EVENT, IN MY LIFE TIME?
Re: [TMIC] Stem Cells
Frank, we'd love a report on how those lidocaine injections worked for you, and how long, etc -- can you please update us with the whole scoop? thanks, Michelle - Original Message - From: <[EMAIL PROTECTED]> To: <[EMAIL PROTECTED]>; Sent: Sunday, January 14, 2007 10:48 AM Subject: Re: [TMIC] Stem Cells jude, i believe the first trials will be on new afflictees, 3 months or less, no matter what their age. we will not be left out in the cold. I have a big fire burning in the fireplace, 4 cords of firewoodsplit and stacked just outside the . and you are all welcome!
Re: [TMIC] Stem cells
Hi everybody. I look at it *exactly* like organ donation, which is allowed and blessed in all faiths. Since these extra unused embryos are going to be discarded anyway (in a way kinda similar to a dead adult body being put into the grave, gone forever), why not allow them to "donate" cells that will help so many people before they are thrown away? Adults have the chance to donate before their dead body is gone forever, I think giving the embryos the same chance/option is a true blessing. How many people they can help!! - Original Message - From: Jim Lubin To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; Tmic-list@eskimo.com Sent: Friday, January 12, 2007 1:31 PM Subject: Re: [TMIC] Stem cells I feel the same way as Barbara does and have tried to explain it many times. It's not so much our religious beliefs as regarding an embryo, from the time of fertilization, a human life entitled to a right to live just as any other human. Those who don't consider an embryo a human life have no problem destroying embryos for research. I think the law currently recognizes embryos as property of the sperm and egg donors that created it and not a life. As Gunny pointed out usable stem cells have been found in embryonic fluid. That is a tremendous scientific breakthrough which has been down played by the media. The media wants to focus on controversy to fit a political agenda. The media constantly wrongly says that some people are against all forms of stem cell research, when no one is. Some people, such as myself, are against only stem cell research which involve harming a viable human embryo. After listening to Dr Kerr a couple times I have changed my opinion a little. Doug said he wants to use the IVF embryos that are malformed that would not result in a viable pregnancy. That seems fine to me. Those embryos could be declared dead (such as would be the case before organ donation) and then be used. I still can't get myself to go along with using otherwise still viable embryos just because they are left over and not going to be used in IVF. Jim At 08:12 AM 1/12/2007, [EMAIL PROTECTED] wrote: In a message dated 1/12/2007 1:29:54 AM Eastern Standard Time, [EMAIL PROTECTED] writes: In my not so humble opinion re this stem cell controversy, the only problem comes from those whose religious beliefs prevent them from looking at medical advances right in the eye and taking advantage of them. Bobberino in redneck Elvisland (Sigh). No, that's not it at all. As many have explained many times in as kind and as gracious a way as possible, it's a matter of regarding embryonic life as real and with as much of a right to live as we have. But -- the point of these posts was to celebrate that there is a way to obtain stem cells without using embryos, not to bring up all those old arguments again. Barbara H. http://barbarah.wordpress.com/ Jim Lubin [EMAIL PROTECTED] http://makoa.org/jim disAbility Resources: http://www.makoa.org -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.410 / Virus Database: 268.16.7/618 - Release Date: 1/6/2007
Re: [TMIC] No e-mail
AOL EmailAnd I haven't been able to post for the last week -- but maybe this one will go through. Who is in charge of this list I can get this straightened out? Please contact me -- I got a message stating that I was denied access to post. [EMAIL PROTECTED] thanks! Michelle - Original Message - From: Trudy To: [EMAIL PROTECTED] ; TMIC-LIST@eskimo.com Sent: Friday, December 01, 2006 10:39 AM Subject: [TMIC] No e-mail I have not received any TM e-mail now in two days? Anyone else experiencing this?? Trudy -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.409 / Virus Database: 268.14.17/553 - Release Date: 11/27/2006
Re: [TMIC] GRACE.....an update....
Thanks for passing along this update. I have seen several different sets of The Bible on tape or CD, just check with Amazon or half.com -- or even ebay. Please also tell Grace that there is excellent software that will allow her to keep on the computer. I have a friend who is blind, and she loves her reader. She also talks into it to write emails and articles. I will find out which reader Lauren uses if Grace is interested in getting one. Please tell her that our prayers are with her -- best, Michelle - Original Message - From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Wednesday, November 22, 2006 9:50 AM Subject: [TMIC] GRACE.an update Many of you have inquired about Grace. I received this letter from her this morning and she gave me permission to forward it to the list.so here goes: Dearest Lynn, I'm so sorry that I haven't written lately. It is my eyes---they are going quickly now, and it is very difficult for me to read my emails and even more so to type them. There are two magnifying glasses here on my desk and I frequently have to depend on them, and sometimes, even with their help, I still can't see to read my mails. For now, books, including my Bible, are a thing of the past, as even with my glasses on, and a large print Bible, I still can't comfortably read and often become distraught whenever I try and am unsuccessful. During the day, I open all of the drapes and turn on every single lamp, as the dimness is so diconcerting for me. The thing that I hate the most, is that I am very much behind on my Devic's worktons of unanswered emails and queries, the newly diagnosed, those just fresh out of a relapse, people looking for neuros, people with medication questions, and those just needing a hand to hold theirs, that my dear friend Tim (The founder of our site.), is bearing the brunt of it. Most days I try, but quickly become frustrated by my vision. You know Lynn, I used to think that it was the paralysis that I feared the most, but now I am not so sure of that as previously. One very good thing has come from this experience with serious illness, however, and that is that the small things, the little things that upset so many, are now in perspective for me. In the grand scheme of things, the *small stuff* just doesn't matter. For this new perspective, I am grateful. Dearest Lynn, I think of you so often throughout the day. Your most generous and unselfish gift, came at a time whenever I was most in need. The day that I received your card in the mail, I immediately burst into tears, but they were happy ones, Lynn. Grateful tears. Thanks to you, I will have enough medications to get me through until such time as I qualify for Canadian OHIP. Because I always relapse whenever my prednisone is reduced, I was in a state of great fear. I knew that if it were to stop altogether, that it would only be a matter of weeks, if not days, before I was hit again. God bless you for your loving kindness. You are certainly one of God's stewards. I love you, GraceP.SYou may certainly forward this mail to the list and give them an update. Just please, take my address off of it. Soon, I'll be ready to get back into the swing of things again. Please tell everyone that I miss them. -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.409 / Virus Database: 268.14.10/541 - Release Date: 11/20/2006
[TMIC] joining
Hello my friend is out of rehab now and wants to join the list, but nobody seems to know how to do that! I don't even remember how I first joined. If the owner can please contact her, she wants to join right away -- [EMAIL PROTECTED] thanks so much, Michelle
Re: [TMIC] good & bad doctors
Title: AOL Email Hello Jude & Everybody. I assume that every state has a registry or medical board of some kind. I am in Ontario, and the Ontario Medical Assn maintains a website that lists all the doctors in the province, their specialities, and if they are taking new patients. When my old GP retired last year, I spent an hour on the website and the phone, and found a great new GP, even closer to my home. So you might start your search by seeing if you state has something like this. If you cannot find someone in a month, I'm sure your old dr would give you some more meds -- it would be criminal if she didn't. Bless you all -- I pray for you all every night. Michelle - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; TMIC-LIST@eskimo.com Sent: Friday, November 03, 2006 3:31 AM Subject: Re: [TMIC] good & bad doctors Hi Michelle, Your email came at the perfect time for me. I learned yesterday that my doctor is discharging me from her practice because I take up too much of her time and she doesn't feel as though she is doing me any good. She said exactly what you say, almost word for word. I feel lost and scared that I will run out of medication before I find another doctor. She is giving me a month to do it. The difficulty lies with knowing who to select. No one will give me any names of doctors who treat SCI patients. I will call my insurance company in the morning and have them send me a booklet with available doctors in it. My doctor recommended that I find an Internist. That was big of her. Anyway, your words are right on the money and I just wanted to tell you how right you are. Peace, Jude No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.409 / Virus Database: 268.13.26/516 - Release Date: 11/3/2006
[TMIC] good & bad doctors
Hello -- I belong to several groups for cat health, and a couple of them have set up a FILE accessible from the group's home page at Yahoo. In this file we list vets we recommend. This group could do something similar -- list good and not-so-good doctors. Personally I believe that some doctors are exactly like some vets. When some vets come across a case that might turn out to be difficult for them or the owner of the cat, they often recommend just putting the cat down. I have seen this esp in diabetic cats. If the vet doesn't want to have to deal with possible complications, he tells the owner that it's difficult to treat, and kitty should just be put down. In reality, diabetes is very easy to treat in 95% of cats -- that vet just didn't want to deal with it. I believe that some human doctors also don't want to deal with rare incurable illnesses. It might take a lot of time, and they might look bad if they can't do anything. Drs like this of course don't put people to sleep -- but they often ignore them or treat them badly or pass them on to someone else. Someone might be a very good dr, he just doesn't want to deal with a difficult case that he will probably not be able to make better. With TM and other diseases, you need a dr who is a good detective, one who will never stop looking for ways to help you -- and enjoy the process. Those are the best doctors. take care -- Michelle - Original Message - From: Larry Throne To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Sent: Wednesday, November 01, 2006 8:31 PM Subject: Re: [TMIC] TM diagnosis Natalie and TM family, It seems like I keep reading about this type of attitude with doctors over and over on the tmic. It has brought me to a point of worry about others who may not be not getting the correct treatment in a timely manner. Do we (this groups members) have an obligation to at least note the doctors name and where they are practicing medicine? I don't want to imply that these doctors are bad people or bad doctors. They just don't have the education or training to recognize this disorder. Maybe we could help prevent someone from having to encounter multiple visits to a doctor that doesn't understand TM. I don't know how the rest of the group feels about this but maybe it is something we can discuss. Just my 2.3 cents. Larry in Oklahoma where it is beginning to look a lot like autumn! Larry Throne, MSW From: "Natalie Boyles" <[EMAIL PROTECTED]>To: "Tracey L. Black" <[EMAIL PROTECTED]>CC: tmic-list@eskimo.comSubject: Re: [TMIC] TM diagnosisDate: Wed, 1 Nov 2006 18:50:45 -0500 Hi Tracey, TM effects people to different degrees. Your daughter hopefully is one of the more fortunate TMers. I have been sent to Hershey Med several times. Last time there the neurologist told me there was no such thing as TM and wondered what doctor had told me I had TM. I told him it was two doctors, one in Lebanon and one at Johns Hopkins. Did someone at Hershey actually give a TM diagnosis? Please let me know who it was. The doc I saw who would not say I had TM or admit to there being TM, did put MS on my insurance form, but he would not say to me if I had that either. He did tell me he would not need to see me again,which I thought was very strange. thanks Natalie On 11/1/06, Tracey L. Black <[EMAIL PROTECTED]> wrote: I also am really new to this whole process. My 12 year old daughter is the one that has been diagnosed with TM as well as Guillain Barre. She seems to not have half of the issues that everyone else on here has. Feb 1 will be 2 years since she was first flown to the Hershey Medical. Ashlee Black - 12/2/93 Tracey L. Black Certified Insurance Service Representative Hockley & O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.408 / Virus Database: 268.13.14/502 - Release Date: 10/27/2006
Re: [TMIC] MRI is good
Great news Jill. When I had one for my inner ear problems a couple years ago my neuro was so happy to report "THERE'S NOTHING THERE!" You'd think that over the years they would learn to say this in a better way .. take care -- Michelle - Original Message - From: Jill Z To: tmic-list@eskimo.com Sent: Saturday, October 28, 2006 6:26 PM Subject: [TMIC] MRI is good I want to thank everyone for their thoughts and prayers about the MRI yesterday. I couldn't wait til Monday and I found out the results today via my friend at work: 1) I have a brain 2) it has no lesions 3) it's unremarkable YAY!!! Now I can go to my halloween party and enjoy myself and have a cocktail to celebrate that at least. Jill in Chicago www.greatamericanbeanbag.com No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.408 / Virus Database: 268.13.14/502 - Release Date: 10/27/2006
Re: [TMIC] bladder and UTI
Hello --- If you're not already taking cranberry juice, it is very helpful to start. I used to get these bladder infections all the time, and they can travel up into the kidneys if not caught soon enough. But since I started taking the cranberry juice, I hardly ever have one. It prevents the bacteria from sticking to the wall of the bladder, so they can't go forth and multiply. Cranberry drinks will help, but we don't really want all that sugar. The best thing you can use is 100% pure unsweetened cranberry juice, available at health food stores or some supermarkets in 1 qt glass bottles. It's quite tart, but you will get used to it. I truly like it now. (Don't take it right after eating something sweet or right after brushing your teeth, it tastes so much worse then.) Take a couple tablespoons in the morning and most importantly, a couple right before bed. They also sell capsules, but they are so small, it seems like you'd have to take a lot of them to get the equivalent of 2 tablespoons of the pure juice. You can also mix the juice in your smoothie if you have one, etc. This has been proven in dozens of studies to really work, and is so much better for you than constantly taking antibiotics to cure the infections. Cranberry juice has also been proven to help prvent strokes. Any dark red fruit or veggie contains tons of antioxidants -- cranberries are one of the healthiest things you can take, for many reasons. best, Michelle - Original Message - From: Diane To: Linda Cc: TM Sent: Sunday, October 01, 2006 2:32 PM Subject: Re: [TMIC] bladder and UTI Linda, I have the same problem + catherization - no feeling. I pay close attention to odour, colour & pressure above the pelvic bone. Any change is my signal to see my dr. Diane in Canada who just got over still another UTI. Linda wrote: I've been reading all the post's concerning UTI and the bladder, etc. My question is.(and this may be a really DUMB one) How do you know if you have UTI if you can not feel, do not feel normal from the waist down? What I mean is, I have feeling, I can walk, but when it comes to FEELING, I do not have it(such as relations with my husband), etcI am almost at my 4 year mark, I was completely paralyzed from the waist down, I have come a long way, but I do have a neurogenic bladder, I am on detrol, and I try to go to the bathroom every 2 hours and I have been told to double void. Would I be able to have the sensations that goes along with UTI, such as burning? I don't think I have this, but sometimes the stream is so little, I know that I am not emptying completely. Linda Garrett Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.
Re: [TMIC] Re: Brain stuff or not
I have inner ear damage from an attack of labyrinthitis a few years ago. Last year I had a bad attack (dizziness and spaciness in my head) while waiting in my opthamologist's office. First they asked if I had eaten or if I was dieting, and when they learned that I had indeed eaten, they asked if I was afraid to be seeing the eye doctor! Looks like we all get treated like children at times. take care -- I pray for you all everybay -- Michelle - Original Message - From: <[EMAIL PROTECTED]> To: "Natalie Boyles" <[EMAIL PROTECTED]> Cc: <[EMAIL PROTECTED]>; "TM list" Sent: Tuesday, September 19, 2006 2:50 PM Subject: Re: [TMIC] Re: Brain stuff or not Frank tells it like it is. When I went to ER with my TM attack the doctor kept asking if I was dieting. That's how he wanted to explain my tremors, spasms and paralysis. My husband took me to another hospital. Patti --- Natalie Boyles <[EMAIL PROTECTED]> wrote: LOL Frank! Are you really serious about taking ones husband along so the doctor will believe them? I never drag my husband along if I can help it.Heonly gets a few days off as is. And, I am a grown woman and I feel it would be like taking along a parent or guardian. Please tell me doctors do not think like that. Sounds like a scene out of "Gone from the Wind." "Why Brett,I think she is haven a case of the vapors." This has given me a good laugh, oh my. Patti, Frank is cool, I guess he is maybe telling us how it is. Are you? Natalie On 9/18/06, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote: > > You should tread lightly F. In defense of women, is there a difference > between men who are in pain and men who are a PAIN? > > Patti > "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> wrote: > > neurotic housewife? > > > > Your problem is that you're a female. > > > > Most doctors know that any symptoms reported by women are due to > neurosis, symptoms reported by men are secondary to some disease > process. > > > > I know that doesn't help. > > > > Have you tried taking your husband with you to the doctor's?? > > > > Good Luck > > > > F > >
Re: [TMIC] OT Carpal Tunnel Syndrome
Hi Kevin -- please be sure that you get a few opinions before you have CTS surgery. Make sure that's what it is. And if you decide to go ahead, get a damn good surgeon. My neighbor had this surgery a few years ago -- she was a seamstress, and at the age of about 60 it all caught up to her. After the surgery her hands were so weak, so lost all grip strength. She couldn't sew, couldn't put on makeup, couldn't even open a bottle of pop, and was always coming over for me to open her pop for her. I must say that she was diabetic, and that may have affected her healing -- and I don't know if she did any physiotheraphy. But just please be super careful. CTS can be treated with splints and meds, I hope you saw a specialist in this area to help you. take care -- Michelle - Original Message - From: Kevin Wolfthal To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Monday, September 18, 2006 9:40 AM Subject: Re: [TMIC] OT Carpal Tunnel Syndrome That's the problem. After all the MRI's, EMG'S, etc, the best answer I ever got was that the lesion is 'somewhere in my mid-back'. I never had hand problems until a few years ago, but I've had TM since 1988, so I'm thinking I do have carpal tunnel. But this question is why I've put the surgery off for so long. Kevin [EMAIL PROTECTED] wrote: Where was your lesion? I would be concerned that your symptoms are from the TM. My lesion was T8-9 and I have all those symptoms you mention in my hands. (and everywhere else below the waist standing with arms down) Sandy Brassil -Original Message- From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Sun, 17 Sep 2006 11:14 PM Subject: [TMIC] OT Carpal Tunnel Syndrome Hi all, Hope everyone had a good weekend. I was wondering if anyone has had surgery for carpal tunnel syndrome and how successful it was? I have it in both hands, with severe numbness, weakness, stiffness, pain. Are these symptoms you had? I'm also concerned that cts is the correct diagnosis because of the TM, but I've had EMG's and other tests which showed cts, as well as ulnar nerve damage. I know that someone on the list wrote that they had cts, but don't remember the details. Thanks all, Kevin Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more.
Re: [TMIC] Re: Caps and craps
hello all -- even if you cannot use rich text, which allows you to choose the size of the font you send out, you can adjust the size of the emails that come to you. Open Outlook, at the top click on View, and then on Text Size -- choose Larger. Then no matter what size people write in, you SEE it as much larger. This is a godsend. take care -- Michelle - Original Message - From: bobby jim hijar To: Krissy Z ; Natalie Boyles Cc: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Thursday, September 14, 2006 8:23 PM Subject: [TMIC] Re: Caps and craps Not all e-mail systems allow the sender to control the size of the font. I've read in more than one place that AOL is one of those weird and very proprietary e-mailers that give their subscribers limited choices. For one, they can't use Outlook Express. Yuck.!!! EVERYBODY should use at least font size 14.. always. And Tahoma is a heck of a lot more legible than Times New Roman. Verdana is another good one. Bobberino From: Krissy Z To: Natalie Boyles Cc: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Thursday, September 14, 2006 9:31 AM Subject: Re: [TMIC] Re: tmic-digest Digest V2006 #185 yeah I was there when they wrote itand it seems most of those old emails agree with me...I was just saying something that's been stated before...you can always make the type bigger rather than use caps tooI don't meant to start a flame war to me, this has been brought up by others in the past on this list.Natalie Boyles <[EMAIL PROTECTED]> wrote: Hi Krissy, I am sending a link to the list. It helps with telling why some people use caps. http://www.mail-archive.com/search/[EMAIL PROTECTED]&query=writing+in+caps The caps are nothing personal. It is easier for some TMer's to type in caps as they have trouble typing due to their health problems. Natalie Boyles On 9/13/06, Krissy Z <[EMAIL PROTECTED]> wrote: I've been quiet for a while about this, but you think you could cool the Caps lock? In the internt world its considered yelling :( hard to read too alot of times...ty..[EMAIL PROTECTED] wrote: TO HEY JUDE, I GOT AND SAW YOUR TELLING US YOU WHERE LEAVING AND THAT YOU WHERE COMING BACK , I DID NOT MISS WHAT YOU WROTE. PAM
Re: [TMIC] Vibrations
Hello everybody. When "House" did that episode on the young man with TM, his first symptom was severe electric shocks, so bad that they knocked him over. For my friend, the very first symptom she had was an itching under the skin. When she would rub it, it would move somewhere else. She said it was almost like ants under the skin sometimes, and it drove her crazy. She saw several doctors, and nobody had a clue what it was. It wasn't until her leg was almost paralyzed one morning when she woke up did they know it was more serious. Did any of you have this itching under the skin? Or what were your very first symptoms? Have a good weekend -- I pray for you all everyday -- take care - Michelle - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Friday, August 25, 2006 8:27 AM Subject: Re: [TMIC] Vibrations For me, I would call the tingling-vibration thing and the "electrical shock" thing different things. I used to get the horrible shock feeling in my arms, sometimes in my feet. I play the flute. I couldn't play for a while after TM, but when I started practicing again and getting my strength back up, I would get the "electrical shocks" shooting down my arms. For me it was very painful. I can't stand it. It only happens every once in a while now. As for the tingling/vibrations, I still have that constantly in my feet and hands and sometimes everywhere. It doesn't hurt, more annoying than anything else. I've learned to live with it. Now, for the pain, I wish I could learn to live with that. It's so exhausting. I take 100mg ultram twice a day, to cut the edge off. That's the only thing that works for me. -Original Message-From: [EMAIL PROTECTED]To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.comSent: Thu, 24 Aug 2006 6:02 PMSubject: Re: [TMIC] Vibrations I used to tell people that it was like holding on to a low voltage electric fence. I once touched an electric fence as a kid. Although the tingling/vibrations aren't as strong, that was the only way I could think of to explain it. - Roger in Kennewick, WA - Original Message - From: Jill Z To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Thursday, August 24, 2006 2:21 PM Subject: [TMIC] Vibrations Pam, The vibration feeling is like someone hit your spine and nerves all the way down with a tuning fork. YOU FEEL IT EVERYWHERE. Almost like a little electrical shock in a way. I would feel it with every step I took and God forbid if someone patted me on the back...It was hard to smile. It doesn't hurt but it's such a weird sensation. Maybe not everyone gets that feeling? Jill in Chicago
[TMIC] new research
Back to Story - Help Drug combination fuels hope for MS fight By MARIA CHENG, AP Medical WriterFri Jul 21, 4:54 PM ET Four years ago, 28-year-old multiple sclerosis patient Karen Ayres was wheelchair-bound and paralyzed. "I was trapped in a body that wouldn't do anything," she says. Now, following an experimental drug treatment, she has regained mobility and is studying for a doctoral degree. Ayres was one of 27 patients with aggressive MS who was treated in an open trial with a course of cancer-drug mitoxantrone and copaxone, which is used to treat relapsing MS. Like Ayres, many of the other patients in the study experienced results so remarkable that some MS experts, while expressing caution, are now taking a second look at the preliminary experiment. A three-year controlled study is being launched at 10 centers across the United Kingdom to further investigate the potential of the drug combination. The results of the initial trial, led by Dr Mike Boggild at the Walton Centre in Liverpool, will be published next month in the Journal of Neurology. Mitoxantrone is an anti-cancer drug so powerful that it is potentially toxic and can only be used safely in the short term. So, Boggild and his colleagues combined its use with copaxone - a notoriously slow-acting drug. "We decided to overlap the treatments because we wanted to give some time to copaxone to build up its effect," says Boggild. What happened next was dramatic. "Patients who were just the worst of the worst did remarkably well," Boggild said. "We think we've tapped into an unexpected synergy between the two drugs that gives you more than the sum of the parts," he says. With a few exceptions, Boggild says most of the patients treated with the drug combination are now essentially "trouble-free." Though one patient developed acute leukemia - a known side effect to mitoxantrone treatment - Boggild says the majority of patients haven't had disease relapses. Patients were first given a limited course of mitoxantrone, before being started on copaxone, usually a few months later. In Ayres' case, recovery was rapid. "From barely being able to wave my hand to walking out of the rehabilitation center took a few weeks," she says. While the study has clearly generated some impressive results, many experts say more time is needed. "It's a small study with no control group," says Dr Robyn Wolintz, co-director of the MS Center at Maimonedes Medical Center in New York. "They also gave different people different doses of mitoxantrone, and that's not standard," says Wolintz, explaining that changing the dosages and the frequency of the treatment makes it difficult to reproduce these results to verify the drugs' efficacy. "We're talking about an early, small study," says David Harrison, of the MS Society in the United Kingdom. Though Harrison characterized the results as "encouraging," he believes it is necessary to conduct a large-scale comparative investigation to establish how the mitoxantrone-copaxone combination ranks against other known and potential drug cocktails. Still, some experts believe Boggild and his colleagues have stumbled upon a valid hypothesis. "Single drugs are not what gets the job done," says Dr John Richert, vice-president of research department in the United States' National MS Society. "It really is likely that more and more combination therapies will be used." For patients with particularly aggressive MS, the proposed treatment may provide some hope. "The people who could benefit from this have nothing else at their disposal," says Wolintz. And unfortunately, medicine is far from an exact science. "Many physicians make their decisions based on incomplete data," says Richert. "Even though there's not sufficient data to make any kind of formal recommendation, there is enough data to say that it is reasonable to make this option available to physicians and their patients when they've weighed all the pros and cons of the situation." For patients like Ayres, who still takes daily injections of copaxone, life without the treatment is unimaginable. "When I was lying in my hospital bed, not even able to twitch my toes, I was jealous of anyone who could walk," she told The Associated Press. Despite the potential side effects, which include leukemia and cardiac problems, Ayres says the treatment was worth the risk. "I didn't have a lot of options," she says, "and to be completely normal now was worth everything that I went through." Copyright © 2006 The Associated Press. All rights reserved. The information contained in the AP News report may not be published, broadcast, rewritten or redistributed without the prior written authority of The Associated Press. Copyright © 2006 Yahoo! Inc. All rights reserved. Questions or Comments Privacy Policy -Terms of Service - Copyright/IP Policy - Ad Feedback Drive traffic to your site all day long http:
Re: [TMIC] "HOUSE"
Hello everybody -- "House" is the name of the best medical drama ever. It is amazing. Every week this crack team of superspecialists gets one patient who nobody else can figure of what's wrong with. They write his symptoms on a whiteboard, and strategize and throw ideas around. It is truly fascinating to watch the *process* that their genius medical minds go through as they try one diagnosis, reject it, and then try another and another. (Your doctors probably went through some of the same things too when you first went in with symptoms!) Sometimes it turns out to be something very simple, and sometimes very complex. (The first episode turned out to be african sleeping sickness. The patient herself had never been to africa, so they doubted the diagnosis, until they learned that she had an affair with someone who went to africa, and got it that way.) Only that one black kid with the TM has died -- but he died of radiation poisoning, not TM -- they saved all the other ones. Watching their genius minds work is what is so fascinating. They are now rerunning the whole season throughout the summer, Tuesday nights from 8-10 EST on FOX. This is the second season, the first season is on DVD already. My friend with TM finds this the most fascinating show ever, because now that she's been through seeing multiple doctors and had an unbelievable number of tests, she understands the show perfectly. I have sarcoidosis, and they have not done a show on that yet. However, when someone comes in, they usually mention sarcoidosis as a possibility, but then quickly dismiss it. Darn. That disease can also be fascinatingmaybe next season! Take care everybody -- Michelle - Original Message - From: Butcher, Bernie [S&FS] To: Carol E ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Thursday, June 22, 2006 8:24 AM Subject: RE: [TMIC] OT-"HOUSE" Is that the name of the show, just "HOUSE" ? never heard of it - what network? Bernie Butcher [EMAIL PROTECTED] From: Carol E [mailto:[EMAIL PROTECTED] Sent: Wednesday, June 21, 2006 9:55 PMTo: [EMAIL PROTECTED]; tmic-list@eskimo.comSubject: Re: [TMIC] OT-"HOUSE" I have never watched House. Guess I will have to start. Carol in Culver, IN - Original Message - From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Wednesday, June 21, 2006 3:33 PM Subject: [TMIC] OT-"HOUSE" Did anyone see "House" last night? The patient was diagnosed with TM which was a result of an extremely high exposure to radiation; consequently, the patient died. Dr. House has mentioned TM several times. Priscilla in TN
Re: [TMIC] OT-"HOUSE"
Hello -- that was a repaet, I saw it when it was originally on too. They did not say that they thought the TM was caused by the radiation exposure. They thought the TM was caused by pesticides on marijuana the kid smoked in jamaica, and started treating him accordingly. When that treatment didn't work, they started looking for some infection he may have had that was gone (hence no white blood cells), but the effects lingered on. This is what they assumed was causing the TM. It was only then that they discovered the radiation exposure too. I do not believe they ever thought that the disease was caused by the radiation. I believe that they didn't want to show him dying of any *disease* -- House has NEVER lost a patient on the show before -- so they added the radiation so that the kid could die of something *other* than a disease that House would have been able to find. So they got the drama of someone dying on the show, but it wasn't because House couldn't solve the problem. That is my favorite show, I just love it!! take care everybody -- Michelle - Original Message - From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Wednesday, June 21, 2006 3:33 PM Subject: [TMIC] OT-"HOUSE" Did anyone see "House" last night? The patient was diagnosed with TM which was a result of an extremely high exposure to radiation; consequently, the patient died. Dr. House has mentioned TM several times. Priscilla in TN
[TMIC] bad pain
Hello everybody -- I hope you are all doing well today. My friend has been back in the hospital in Montreal for almost 2 weeks now. Her pain in her back is unbearable, she describes it as fire. She says that they have tried everything, but most meds they tried did nothing at all, and the ones that do work a bit only last for an hour or so, and then she has to wait and wait for another dose. I just spoke to her and she said that sitting in the wheelchair for hours is torture, and yet they are so busy there nobody can find time to put her into bed. She has been crying and begging to go to bed for over 3 hours now. She cannot move at all to even reposition herself in the chair. Laying in bed also causes great pain after a while, because she can't move at all, and staying in the same position for hours is unbearable. I CAN'T BELIEVE THEY CAN'T FIND SOME PAIN RELIEF FOR HER!! This is criminal! Have any of you been in this situation, or perhaps you know someone who has been? What can be done?? She has had TM for only a little over a year -- and has become totally disabled in that time. At the beginning of last year she was just fine except for some itching under her skin. Do any of you know some secret special drug or procedure that might help her? She could live a good life in the wheelchair if only something could be done about the horrible pain. If you have any hope at all, please let me know & I will pass it along to her. thank you all so much -- Bless you! Michelle
Re: [TMIC] Dry Mouth?
Hello everybody. If you are on antidepressants, they cause dry mouth big time. Get into the habit of always having a glass of ice water handy wherever you go, and hard candies also help a lot. Keep some by the phone, by every chair, and by the bed. Sometimes you wake up in the middle of the night coughing from the dryness. Just take a candy. To save on calories, use sugar-free candies -- or stock up on those tiny little "MINI Christmas Mix" candies that come out every year, they're the perfect size for a quick mouth refresh, about 1/3 inch cubes, and come in lovely fruit flavors. You can also hide them in your cheek when talking. Keep little containers of them all over the house. Keep them sealed & dry, as summer humidity will cause them to stick together, which is a royal pain when you just want to grab a quick one. (Just whack them with something if they do.) take care -- Michelle in Toronto - Original Message - From: Sharon Marsden To: tmic-list@eskimo.com Sent: Tuesday, June 06, 2006 12:49 PM Subject: [TMIC] Dry Mouth? Did I already ask this? I have developed a very dry mouth over the past 4 months. I started Baclofen in January. I've researched and haven't found a connection between Baclofen and dry mouth. My doc had me tested for Sjogren's and, thankfully, it was negative. I've seen research showing that neurological damage can cause dry mouth. Does anyone here know anything about that? Thanks Sharon Sharon --from Arizona TM 1997 to MS 1998 It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant http://health.groups.yahoo.com/group/MSersLife/ __Do You Yahoo!?Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
