RE: [TMIC] re marieke dufresne

2011-11-12 Thread wim from holland

marieke...@hotmail.com this email adress was in my computer, don't now if it is 
the latest.
 From: suret...@sympatico.ca
To: tmic-list@eskimo.com
Date: Thu, 10 Nov 2011 16:40:42 -0500
Subject: [TMIC] re marieke dufresne











does anyone have her email please?  
  

RE: [TMIC] OT - this is scary

2011-07-16 Thread wim from holland

We do follow this every day on the news. We can't imagine that is still all 
politics to hold all the plans back, because not only the US is infold, the 
hole world is. We here in Holland has to deal with cit backs on social 
security, healthcare and higher taxes. Not that we like it, but those were 
nessary. Not that we agreed to all the choises, but one way or the other, you 
have to make them. You have to do something at the guild for eaach person of 
more than $130.000, we here get nervous of a guild for each of $15.000. It is 
no longer left or right, democrat or republican, we can't go live on as nothing 
happend. When your econemy goes down, it effects the whole world. Money will 
tumbling down in falluw, banks will go down and everyone sooner or later will 
lost a part of his money.
 
Wim
 



Date: Sat, 16 Jul 2011 02:01:52 -0500
From: bpe...@austin.rr.com
To: bpe...@austin.rr.com; grodg...@austin.rr.com; tmic-list@eskimo.com
Subject: [TMIC] OT - this is scary


Have any of you folks seen this?  SCARY!

http://news.yahoo.com/economic-outlook-grim-no-debt-deal-reached-194155807.html
  

RE: [TMIC] Bladder/Spasms

2011-05-23 Thread wim from holland

For me a sign tot go to the toilet. Mostly at the end of the day, need to empty 
my bowl. Somes olso with a full blader.
 
Wim
 


From: jan...@centurytel.net
To: tmic-l...@eskimo.net
Date: Sun, 22 May 2011 17:20:48 -0500
Subject: [TMIC] Bladder/Spasms





Got a quick question  -  
 
Have any of you noticed that when you are sitting for a while and your legs 
start spasming, if you go to the bathroom, it settles down?   I don’t know
if it is my imagination or if that is something to this.
 
Haven’t heard from anyone for a while – everything okay?
 
Take care,
 
Janice

RE: [TMIC] They're baaack

2011-04-29 Thread wim from holland

For the morning cramps, what helped me a bit is taken fishoil tablets (Omaga3) 
1000mg a day. Not completely gone but a lot less.
 
Wim.
 


Date: Wed, 27 Apr 2011 20:40:44 +0400
Subject: Re: [TMIC] They're baaack
From: malugss...@gmail.com
To: molokai...@gmail.com; jcs...@yahoo.com
CC: tmic-list@eskimo.com; tmic-digest-requ...@eskimo.com





Well, the cramping-spasticity-contractions—whatever-yoy-wanna-call-them, came 
back this morning. 


The first sign was that I knocked over a perfectly good, and totally full, cup 
of coffee all over the kitchen table, including on my meds.  By the time I got 
to work my limb coordination was diminishing.


But I got through the lecture—barely!  Then informed my reassuring, but 
write-it-all-down-for-future-reference boss that I was heading home early.


OK now, just sore and embarrassed.  It is hard to be better than normal as 
worse than normal as both situations land me in trouble.


Dalton


Abu Dhabi, United Arab Emirates
Office: +971-02-607-5070/5297
Mobile: +971-50-668-5760 



From: James Berg 
Date: Tue, 26 Apr 2011 09:51:27 -1000
To: john snodgrass 
Cc: transverse myelitis 
Subject: Re: [TMIC] revisiting an old issue
Resent-From: 
Resent-Date: Tue, 26 Apr 2011 12:52:04 -0700


thanks for the input


On Tue, Apr 26, 2011 at 9:08 AM, john snodgrass  wrote:





ativan along with hydrocodone use to ease the banding but that does not have 
much effect anymore for me

--- On Tue, 4/26/11, James Berg  wrote:


From: James Berg 
Subject: Re: [TMIC] revisiting an old issue
To: "john snodgrass" 
Cc: "transverse myelitis" 
Date: Tuesday, April 26, 2011, 2:28 PM






I am having a bad day--the thrumming is at its worst and the banding has gotten 
wider and tighter--to the point I couldn't eat dinner or breakfast this 
morning.  Baclofen does nothing.  It took four glasses of red wine and two 
alergy pills to get me to sleep.  Being in the chair now is making the banding 
pain worse.
 
any suggestions?


On Tue, Apr 26, 2011 at 1:11 AM, john snodgrass  wrote:





I remember hearing the concern of thrumming in the legs.


You know,,like the sound that a power transformer makes except it's a feeling,a 
buzzing or even sometimes like energy going up and down your leg or legs.


I gert this a lot and when it is real bad it is from the top of my head to the 
bottom of my feet.


sometimes it even feels like something poking at the bottom of my feet from the 
inside trying to get out.


perhaps i could harness it and drive a car with it!


I am taking the maximum dosage of baclofen and neurontin and was wondering if 
anyone ever ran across something to either slow this part down or even stop it.


sometimes it will last all day and can go from irritating to depressing.


most of the time when this does stop that's when the burning begins.


this on top of the wast banding and pain can drive me to thinking thoughts that 
are not normal for me.


 thoughts like,,perhaps i should find some marijuana and smoke it or perhaps i 
should drink enough to pass out or maybe i should punch someone and they will 
knock me out!


my Doc's know about it but have no answer.


losing insurance on may 5th.





  

RE: [TMIC] new treatment for MS and maybe more

2011-04-19 Thread wim from holland

Sounds well, it gives the impression that this kind of deseases, the side 
affects are almost history. Still I am in a wheelchair and struggle every day 
with TM. Thats reality of the day. For ten years I read such developments and 
still no medication that came out of this studies. I am just realistic, not 
pessimistic. Still have hope that one day it will be there, but I know thats it 
not tomorrow. Still enjoying life, booked two vacations to Spain, one end of 
May, the other end of August.
 
Wim
 
 
> Date: Mon, 18 Apr 2011 22:36:20 -0400
> From: wolft...@optonline.net
> To: tmic-list@eskimo.com
> Subject: [TMIC] new treatment for MS and maybe more
> 
> 
> http://www.disabled-world.com/health/autoimmunediseases/ms/compound.php
> 
  

RE: [TMIC] OT ?

2011-03-30 Thread wim from holland

Baclofen helps for spasm, when I first started and I heard more of the group 
talking about it, you can have trouble with short memory, but that slowly 
improves. Nothing of that you can find back in the discription closed in. What 
also a caused spasm is a full bowl, notice after relieving that it is better. 
Full bladder makes it also worse. Keep the legs warm (blacket) if you sit stil 
all the time and afford draft. Nice in spring to let the wind through your 
house, but for people who does not move a lot, the muscles get cold and spasm 
will follow then, specially when the warm up again. Thats the reason when spasm 
comes after a while in bed or with cold legs crowl up to the partner.
 
Wim
 


From: em...@telephonelady.com
To: tmic-list@eskimo.com
Subject: RE: [TMIC] OT ?
Date: Tue, 29 Mar 2011 21:47:03 -0400










Regarding Baclofin…..the physical therapist suggested that my husband ask his 
doctor for Baclofin due to the spasms in his legs.  The spasms are effecting 
his progress in physical therapy.  Can you give me the skinny on what are the 
side effects?  He recommends 10 mg 3X per day.  
 
Emily Meyers
 




From: tracyleab...@yahoo.com [mailto:tracyleab...@yahoo.com] 
Sent: Tuesday, March 29, 2011 9:02 PM
To: john snodgrass; transverse myelitis
Subject: Re: [TMIC] OT ?
 
I am on baclofin. myself...whole nether story but her doctor has not even 
suggested that. 
Sent from my Verizon Wireless BlackBerry




From: john snodgrass  

Date: Tue, 29 Mar 2011 17:51:51 -0700 (PDT)

To: transverse myelitis

Subject: Re: [TMIC] OT ?

 





I'm not sure weather it was the maximum dose of baclofin or the maximum dose of 
gabapentin that slowed the burning down but since i have maxed out both of them 
I have noticed that my feet and legs don't burn as bad as often. also maxing 
out the gabapentin has really helped with the spasms in my legs.

 

not done away with them but sure has helped.



--- On Tue, 3/29/11, tracyleab...@yahoo.com  wrote:


From: tracyleab...@yahoo.com 
Subject: Re: [TMIC] OT ?
To: "Janice Nichols" , "wim from holland" 
, "TMIC" 
Date: Tuesday, March 29, 2011, 8:37 PM

Yes I am very very involved. I am the oldest and she is my heart.. She just was 
diagnosed eight months ago. It came on so fast which I understand is how it 
happens. She is 61. She has this burning in her feet that is horrible she says 
it feels like they are burning and she can not get them cool enough. She trys 
to ice them down but that is not working anymore. 

Sent from my Verizon Wireless BlackBerry




From: "Janice Nichols"  

Date: Tue, 29 Mar 2011 19:22:34 -0500

To: ; wim from holland; 
TMIC

Subject: Re: [TMIC] OT ?

 



Tracy, can you tell me a little about her?How old is she, how long has she 
had TM, what part of her did it hit, has there been any improvement?   I 
was 60 when TM hit me

and my daughter and husband were invaluable. What is your situation, can 
you spend time with her? How is her attitude?  Sorry for all the 
questions, but it will help us to

help you.

Janice, in Missouri

 



 


From: tracyleab...@yahoo.com 

Sent: Tuesday, March 29, 2011 7:09 PM

To: Janice Nichols ; wim from holland ; TMIC 

Subject: Re: [TMIC] OT ?

 

I'm new to this, but have been getting all of the emails for awhile...my mom 
has TM and it was a very fast thing that I am trying to get a grasp on and 
understand Any advice would be greatly appreciatedTracy bell 

Sent from my Verizon Wireless BlackBerry




From: "Janice Nichols"  

Date: Tue, 29 Mar 2011 18:59:46 -0500

To: wim from holland; TMIC

Subject: Re: [TMIC] OT ?

 



Things have been pretty quiet on the website.One of these days a subject 
will come up that will start a ruckus.  Also, apparently some

of our members spend more time on Facebook too.    Hope you are doing well.

Janice



 


From: wim from holland 

Sent: Tuesday, March 29, 2011 5:17 PM

To: TMIC 

Subject: [TMIC] OT ?

 

Did not get any mail the last week. Everybody gardening, or sitting lazy in the 
sun hole day?
 
Wim
  

[TMIC] OT ?

2011-03-29 Thread wim from holland

Did not get any mail the last week. Everybody gardening, or sitting lazy in the 
sun hole day?
 
Wim   

RE: [TMIC] Kangen water

2011-03-23 Thread wim from holland

Suggestion can have some effect for a short time, the biggest effect will be 
the losing of $4000. There is no cure for TM, some meds will help with the 
side-effect. These meds are proven and you can find info all over on the 
internet. My opinion, don't give your money away, hold it back for a holliday.
 
What I could find on the internet, that it is special ionized water, used for 
fine machinery. In the comments prices are spoken of betrween $19.99 and $1000. 
What the amount is, I don't know. Maybe you have filled a swimming pool for 
$4000. On health sides, there is only an article of the need to clean your 
system by drinking that water, the most expencife bottle there is $19.99. 
 
Look futher on the internet, I found it, you can find it with Google. Keep your 
money in your pocket please.
 
Wim.
 



Date: Wed, 23 Mar 2011 13:25:17 -1000
From: molokai...@gmail.com
To: tmic-list@eskimo.com
Subject: [TMIC] Kangen water


My son is raving about the health benefits of Kangen water.  does anyone know 
anything about it?  I am trying to prevent him from spending $4000 on a bogus 
idea.
 
I have started my own experiment with it but am getting it from a local health 
food outlet.  In the meantime mayber some one has knowledge they would like to 
share?  

RE: [TMIC] OT

2011-03-05 Thread wim from holland

Sorry for this lost in the family. We also lost a child very young, what helped 
me a lot is knowing that his soul is still present in the family. From Derek 
Ogilvie I learned that it was not just in my mind, his soul is realy there. I 
can't hear him, not see him but I feel he is there. You can talk to him and 
sometimes I hear a voice in my mind with a simple answer. Lately, now both my 
parents are gone, I noticed the present of my mother. My daughter had a strange 
expirence that she was confert in the night by my father. Non of my family is 
spiritual. We are just a normal Dutch family with both feet on the ground. It 
happend to us. We learned from eachother expirence after a while, from the 
shows of Derek Ogilvie we learned that we were not the only one and you don't 
need a six sence to communicate with them, just do. He will be around as long 
they live.
 
To the family, I looked at it as it put a hole in your living ground with sharp 
edges. The longer you live, the larger your living ground will be. The hole 
stays the same, only the sharp edges dissapear later on slowly. The lost never 
dissapear. It happened to us by oue second child, a son. After him we had two 
other children. They were no replaments, just a younger brother and sister. Our 
disseast kid held always his place in the family also with his brothers and 
sister. We trusted on God, he did this not to us for a second time. 
 
Much strenged to you and your family in those hard days and coming time.
 
Wim


Date: Wed, 2 Mar 2011 06:55:57 -0800
From: rn11...@yahoo.com
To: tmic-list@eskimo.com
Subject: [TMIC] OT






My friends,
  My great-grandson Joshua James Bigelow (born 11/19/10) died of SIDS on 2/28. 
We are devastated.
   Cheryl
  

RE: [TMIC] Bladder

2011-02-24 Thread wim from holland

Maybe, I am no expert. But is it an idea to drink not less, but a lot more 
during the day. Your bladder get streched more, capable to have more inside, 
then maybe after a while you reach the early morning.
 
Wim
 


From: jan...@centurytel.net
To: wim_from_holl...@hotmail.com; tmic-l...@eskimo.net
Subject: Re: [TMIC] Bladder
Date: Mon, 14 Feb 2011 22:39:13 -0600







I do not cath at all any more.I can clear out my bladder completely.
Problem is, I make a lot of urine during the nite and can have problems
feeling the urge to get up and go to the bathroom.Bladder is still 
partially asleep.  I clear out my bladder just before getting into bed, and 
usually  get up 2-3 times during the nite to empty the bladder.My lower 
intake of liquids doesn’t seem to help.  But, it is getting better.
Janice


 

From: wim from holland 
Sent: Monday, February 14, 2011 6:02 PM
To: jan...@centurytel.net ; tmic-l...@eskimo.net 
Subject: RE: [TMIC] Bladder
 
I wonder, is your bladder enough empty, before you go to bed. Do you cath 
before sleeping? My bladder improved also a little after a few years. Before 
between the cath nothing came out, after a few years I was able to let some out 
in between, what was an improvement also for the spasm.
 
Wim
 


From: jan...@centurytel.net
To: tmic-l...@eskimo.net
Date: Sat, 12 Feb 2011 13:42:01 -0600
Subject: [TMIC] Bladder




Hi!!  Seems like things have been really quiet with our group.  
Hope it isn’t because of health, just busy people.   
 
Just wanted to tell those of you still having problems with the bladder that, 
after 4 years, I am definitely improving. I am having some “dry” nights – 
not always, but definitely more
than before.Actually some are dry and some are drier.  There is always 
hope.Those of you who are worried about the “2-year” improvement time, the 
improvement still happens
after the 2 years. Actually, I wonder if some of the 
problem is the baclofen that many of us take to ward off the leg spasms. We 
need the baclofen to be able to sleep, but it
puts us into a deep enough sleep that we can’t feel the urge to pee.  And, the 
urge to pee now feels different than the urge did before I got TM.   I, for 
one, am not going to stop taking baclofen.Couldn’t sleep without it and the 
frustration of the spasms is not worth a “dry” pad.Oh well, just wanted to 
let you “newbies” know that improvement keeps coming – we just have to be
patient.
 
Janice
 
  <><><>

RE: [TMIC] Bladder

2011-02-14 Thread wim from holland

I wonder, is your bladder enough empty, before you go to bed. Do you cath 
before sleeping? My bladder improved also a little after a few years. Before 
between the cath nothing came out, after a few years I was able to let some out 
in between, what was an improvement also for the spasm.
 
Wim
 


From: jan...@centurytel.net
To: tmic-l...@eskimo.net
Date: Sat, 12 Feb 2011 13:42:01 -0600
Subject: [TMIC] Bladder





Hi!!  Seems like things have been really quiet with our group.  
Hope it isn’t because of health, just busy people.   
 
Just wanted to tell those of you still having problems with the bladder that, 
after 4 years, I am definitely improving. I am having some “dry” nights – 
not always, but definitely more
than before.Actually some are dry and some are drier.  There is always 
hope.Those of you who are worried about the “2-year” improvement time, the 
improvement still happens
after the 2 years. Actually, I wonder if some of the 
problem is the baclofen that many of us take to ward off the leg spasms. We 
need the baclofen to be able to sleep, but it
puts us into a deep enough sleep that we can’t feel the urge to pee.  And, the 
urge to pee now feels different than the urge did before I got TM.   I, for 
one, am not going to stop taking baclofen.Couldn’t sleep without it and the 
frustration of the spasms is not worth a “dry” pad.Oh well, just wanted to 
let you “newbies” know that improvement keeps coming – we just have to be
patient.
 
Janice
 
  <><><>

RE: [TMIC] grandson

2011-01-16 Thread wim from holland

Meet my new born grandson Sybren Nils, also with his sister Tess Sophie. Born 
on januari 2e.
 

  
[TMIC] grandson
http://cid-b5f2d6495df39b69.skydrive.live.com/redir.aspx?page=browse&resid=B5F2D6495DF39B69!123&type=5&Bpub=SDX.Photos&Bsrc=Photomail&authkey=2q0HLVv2rdU%24


Subject: RE: [TMIC] grandson
Date: Sun, 16 Jan 2011 17:45:21 -0500
From: bernie.butc...@honeywell.com
To: jan...@centurytel.net; wim_from_holl...@hotmail.com; tmic-list@eskimo.com








While we are on the OT  topic of grandchildren, Meet Colin Bernard born 8/19/10!
 

Bernie




From: Janice Nichols [mailto:jan...@centurytel.net] 
Sent: Saturday, January 15, 2011 9:16 PM
To: wim from holland; TMIC
Subject: Re: [TMIC] grandson
 



Would love to see them.   Hope you find a way to do it.

Janice



 


From: wim from holland 

Sent: Saturday, January 15, 2011 6:38 PM

To: TMIC 

Subject: [TMIC] grandson

 

Tried to send a mail with pictures of my new born grandson. But it did not came 
true.

RE: [TMIC] grandson

2011-01-16 Thread wim from holland

Did a retry with pictures, small enough. Is it Windows 7, that makes trouble or 
the server overthere?
 


Subject: RE: [TMIC] grandson
Date: Sun, 16 Jan 2011 17:45:21 -0500
From: bernie.butc...@honeywell.com
To: jan...@centurytel.net; wim_from_holl...@hotmail.com; tmic-list@eskimo.com








While we are on the OT  topic of grandchildren, Meet Colin Bernard born 8/19/10!
 

Bernie




From: Janice Nichols [mailto:jan...@centurytel.net] 
Sent: Saturday, January 15, 2011 9:16 PM
To: wim from holland; TMIC
Subject: Re: [TMIC] grandson
 



Would love to see them.   Hope you find a way to do it.

Janice



 


From: wim from holland 

Sent: Saturday, January 15, 2011 6:38 PM

To: TMIC 

Subject: [TMIC] grandson

 

Tried to send a mail with pictures of my new born grandson. But it did not came 
true. 

RE: [TMIC]

2010-12-30 Thread wim from holland

Janice
 
Normaly I could say, just fine, not better or worse. After all this time it was 
very study. But last summer I overstreched my hamstrings by a fall. A very 
stupid one, sitting on the bed I reached too far for clothes on the floor and 
slide from the bed. I jused after that time my wheelchair all the day, because 
standing and walking with crutches was too painfull. Now after recovering, it 
is hard to get back to what I could do before. I hope in summer when we go to 
Spain I can get it back in the warm sun and dayly in the swimming pool.  
 
Wim
 



From: jan...@centurytel.net
To: wim_from_holl...@hotmail.com; tmic-list@eskimo.com
Subject: Re: [TMIC] 
Date: Mon, 27 Dec 2010 10:31:41 -0600







Wim, it is great hearing from you again!How are you doing – besides 
learning to be grandparents.
Janice


 

From: wim from holland 
Sent: Monday, December 27, 2010 9:03 AM
To: TMIC 
Subject: [TMIC] 
 
Gelukkig Nieuwjaar!!
 
Happy new year everybody, hopefully this will be the year that makes an end to 
TM, and if not, don't give up hope and keep the head up. Last two years were 
very strange. We become grandparents, but we also became orphans this year. 
Next year our second grand child will be born. 
 
Wim from Holland. 
  

[TMIC]

2010-12-27 Thread wim from holland

Gelukkig Nieuwjaar!!
 
Happy new year everybody, hopefully this will be the year that makes an end to 
TM, and if not, don't give up hope and keep the head up. Last two years were 
very strange. We become grandparents, but we also became orphans this year. 
Next year our second grand child will be born. 
 
Wim from Holland. 

[TMIC] healthcare

2010-03-23 Thread wim from holland

Congratulations with your new healthcare system. It is almost a copy of the 
Dutch system. Our minister of heathcare had been a few times in America and the 
White House to excplain the benefids of the system. At the end it will makes it 
all cheaper for customer, gouverment and insuerance companies. It provides 
healthcare for everyone. For those who had not healthcare and get an accident, 
taxpayers had to pay for it. Also people because of not having healthcare 
waited much too long to see a doctor, at the end ended in a hospital with much 
higher costs, wich came at the shoulders of the taxpayers.

 

Here in Holland, because the insuerance companies demand you take the cheapest 
possible medications, the price of these is now so much lower, that Gemans and 
Belges come to Holland for the free medications, only Spain and Portugal are 
cheaper.

 

Wim from Holland
  
_
Alles over Windows
http://www.windows.nl/About.aspx

[TMIC]

2010-02-07 Thread wim from holland

Never found a cause. My TM had a slow start and began years before the big 
bang. First tintling in one leg, went away. Than balance problem, lost my 
ballfeeling this tennis, was too sone or to late. Kids begin to complain about 
my driving, drove with shocks, brake too fast. Than sexuality lost, could not 
contain an erection and 6 month after that the big bang. In hospital with 
conclusion TM.

 

Now I found a piece on internet about Cysticercosis or neurocysticercosis, and 
everything fell in its place. Gone talk with my neuro about it, can take a 
while before I see his, takes a few moth to get an appointment.

 

Wim
  
_
Download gratis emoticons voor Messenger
http://www.rulive.nl/aspx/emoticons.aspx

RE: [TMIC] OT: sorry...

2009-12-28 Thread wim from holland

Go for Lactulose. One thing, it will make you more gazzy, but it will make the 
bowl softer and easy to come out. Good feabers and frute will help also, but I 
use it already for more then 10 years and it really does the job.

 

Wim from Holland
 
> Date: Wed, 23 Dec 2009 07:15:31 -0500
> From: wolft...@optonline.net
> To: tmic-list@eskimo.com
> Subject: [TMIC] OT: sorry...
> 
> 
> Forgive me for bothering the board again. I have
> nowhere else to turn right now, and I know you
> have all experienced most everything.
> 
> Along with my recent anxiety has come digestive
> problems. Getting to the bathroom has also
> become harder because my mobility is worse. I am
> getting a new wheelchair for that reason.
> Constipation and terrible gas. Of course,
> this makes my tm symptoms and anxiety worse.
> I tried prune juice which has helped before, not
> this time. Gas-X helps a little. I welcome all thoughts.
> 
> Kevin
> 
  
_
Wil jij ook onbeperkte opslagruimte? Gebruik Hotmail
http://mail.live.com

RE: [TMIC] Age

2009-12-15 Thread wim from holland

Now I am 56, has TM on the age of 43.

 

Wim
 


From: jan...@centurytel.net
To: tmic-list@eskimo.com
Date: Thu, 10 Dec 2009 23:35:27 -0600
Subject: [TMIC] Age


Hey!
 
I have a request.   I was talking to my neuro and he was curious to know the 
ages
that my website friends were when they were hit with TM.Do you all mind 
sending
me that info  -  even if you only read messages and don't usually respond?I 
would like
to get as many ages to him as possible.   I told him you all were a pretty 
cooperative group!
 
Thanks guys
Janice, Missouri  
_
Kakker, Party of Nerd: download ze gratis voor in je Messenger
http://buddytest.rulive.nl/default.aspx?src=taglines

RE: [TMIC] need advice

2009-09-14 Thread wim from holland

The day I started to take Omega3 capsules of 1000mg my bowl is more compact, 
darker en the use of toilet paper went down a lot. Almost clean after the bowl. 
Normaly to keep the bowl smooth going I use lactulose. that combination worked 
for me the best.

 

Wim.
 


Date: Sat, 12 Sep 2009 13:43:13 -0700
From: limoga43...@yahoo.com
To: tmic-list@eskimo.com
Subject: [TMIC] need advice






I have had TM for nearly 7 years now, and as embarrassing as it is to admit, my 
bowels and bladder are not getting better, in fact at times they are 
worse.I take Metamucil faithfully every morning and for some time that 
helped my bowels, but lately it is notI feel the urge and can not hold it 
in and have an accidentany suggestions or any good thoughts as what to do? 
I don't know whether to take the metamucil 2 times a day or add something else. 
I am on meds for my bladder and so far so good there. I am scheduled to see our 
medical doctor next week, but thought maybe someone might have some ideas to 
help me till then.
Thanks.Linda in Ohio

_
25GB gratis online harde schijf
http://skydrive.live.com

RE: [TMIC] Death

2009-09-12 Thread wim from holland

The fact that I had TM made me see the future in an other way. I always step on 
two thougths. One , you will getting old, the other, I hope that I am not 
getting old, because this way I need more and more help, can't do less and less 
on my own. Before I can't do anything on my own I hope I leave this planet. The 
first said to me, you have to hold on as long as possible for your wife, kids 
and grandkids.

 

Personal, I don't have a problem if I not waking up the next morning. I did 
read a book about people who had a nearly death expiriment. Some during a 
operation, some after an accident. They are all alike and conferm what my 
belive is based what the bible said.  The book is written by a hart surgent, 
who spook with his patients after they were dead for a few moments. They speak 
about a warm peacefull feeling, feel the love in there harts. Some see there 
own operation, some drift away to a warm peacefull light, meeting relatifs who 
died before.

 

the most beautifull story is about a kid nearly dead by drowning,  who mets a 
girl, wich seemes to be her sister Liane, she did not know she had one. The kid 
got answers on all het questions, the light she saw, is that God. No , het 
sister answered, it is just his breath. The white persons she saw, are those 
angels? No, other souls who are visible for you now, ones you are back you 
can't see them, but they are also around you, I am also around you now and 
then. After she was brought back to life she spook with her parents who admid 
she had a sister two years before her birth, she died after an illness. And her 
name was indeed Liane. 

 

Because the writer has also a medical background, he explains a lot of matters. 
Fact is that non believers are starting to go to church, now and then, a lot 
quit there job and start working in heathcare or socialcare. Believers who go 
the church on regular base, are going less to church but are more active on 
social matters. The book explains that every soul has an eternal life. The 
writer is a dutch doctor called Pim van Lommel, can't find the book in Engish 
yet. 

 

Wim from Holland

 

 


From: jan...@centurytel.net
To: tmic-l...@eskimo.net
Date: Fri, 11 Sep 2009 12:01:26 -0500
Subject: [TMIC] Death




TM'ers,
I have only been on this website about a year, but lately it seems that we are 
losing several members.Maybe Frank can weigh
in on this one.Are these people dying because of TM, or is it that they 
have had it for so many years and they are elderly?
Or  is it because TM brings on other complications? What do you all 
know about this? I am really getting
concerned.
 
Janice
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RE: [TMIC] TAMIFLU....and....ANTIOXIDANTS

2009-09-11 Thread wim from holland

Here in Holland is also a small outbreak of the new flew. But, because flew is 
a illness the most of us already head, it seams in practice that the mexican 
flew is a mild one. Only the youngest generation and the oldest and people with 
other illnesses gets the Tamiflu here, people who normaly gets a flew shot are 
given now also for the Mexican flew. For all the other it is e few days in bed 
if they get it. At the same time the group who gets the flew, has a better 
resistance for all this kinds a flew in the future, like the group born before 
1957 .

 

Wim from Holland





From: roseofr...@aol.com
Date: Sun, 6 Sep 2009 16:03:25 -0400
To: tmic-list@eskimo.com
CC: roseofr...@aol.com
Subject: [TMIC] TAMIFLUandANTIOXIDANTS



Tamiflu linked to "bizarre" reactions 

Dear Friend, 

It's yet another case of the cure being worse than the disease. 

In the UK, more than half of the kids who have taken Tamiflu -- the antibiotic 
weapon of choice to combat the H1N1 virus -- have experienced side effects. 

Although most of these side effects have been minor (such as stomach cramps and 
nausea), as many as one in five of these kid have had disturbing, 
"neuropsychiatric" reactions to the drug. 

Reports say that kids have had an inability to think clearly, have suffered 
from nightmares, and have behaved "strangely." 

Unfortunately, these reactions are nothing new. The dangers of Tamiflu are 
well-documented. It's even been linked to the deaths of some children and 
teenagers. 

It's really no wonder. The drug is not just an antibiotic, like so many assume 
it is -- it's a neuraminidase inhibitor that blocks viral enzymes that can 
assist the flu virus in infecting the respiratory tract. 

In the U.S., the FDA has acknowledged that there have been as many as 1,800 
reports of kids experiencing abnormal behavior when they're given Tamiful. In 
Japan, they've actually banned the use of Tamiflu by kids. 

But because the UK is in such a cold panic over swine flu, they're handing out 
Tamiflu like candy. Believe it or not, there's even a telephone hotline and 
website where people can order a prescription without having to consult a 
doctor. 

So far, as many as 150,000 people have been prescribed the drug in this manner. 

No wonder so many kids are having so many side effects. At the first sign of a 
runny nose or a headache, their parents are pumping them full of Tamiflu, 
thanks to Dr. Web. 

All of these risks in order to reduce the flu symptoms by less than two days. 
That's right: according to the makers of Tamiflu, clinical tests have shown 
that the drug only has the ability to reduce the duration of symptoms by about 
36 hours. 

It just doesn't add up. 



Pop goes the antioxidants 

If you're looking for an antioxidant boost, you might want to head to the 
movies. After all, this is where you'd be likely to eat lots of popcorn, which, 
according to a new study, has a hefty dose of antioxidants. 

Who knew you could battle cancer while taking in a matinee? 

Researchers at the University of Scranton in Pennsylvania examined whole-grain 
snacks and cereals (not the sugary death bombs that I'm always warning you 
about) and found them to be just as rich in polyphenols as they are in fiber. 

Originally, it was thought that the high fiber content in these foods was what 
made them such effective weapons against cancer and heart disease. Turns out 
it's really a double-whammy of fiber and polyphenols. 

Raisin bran packed the biggest antioxidant punch, weighing in at a whopping 524 
milligrams of antioxidants per serving. The surprise is that the antioxidant 
content is found in the grains that these foods are made from. 

Researchers found that popcorn is the king of antioxidant content when it comes 
to snack foods, so munch on... just go easy on that movie-theater liquid they 
call "butter." 

Always giving your brain some healthy snacks to chew on, 

William Campbell Douglass II, M.D. 






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RE: [TMIC] for constipation

2009-08-12 Thread wim from holland

Use Lactulose already 11 years and it does the job, makes you gassy but because 
it speeds up the natural process you will notice, it does not smell. Not the 
gas and the bowl. Start on 15 ml at the last meal, in 2 hours you will 
expirence what it will do.  I use 50ml a day, but that is because I use fishoil 
capsules, wich makes the bowl harder. They are sold here in bottles of 1 liter 
for 14 euro's. But my insurance pays it, so thats not my worry.

 

Wim from Holland
 


Date: Wed, 12 Aug 2009 03:04:32 -0500
From: bpe...@austin.rr.com
To: tmic-list@eskimo.com
Subject: [TMIC] for constipation

Use Lactulose... in fact I am gonna ask my doc for some, just hope it is not 
really expensive
Namaste,
Bernie

http://en.wikipedia.org/wiki/Lactulose
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RE: [TMIC] question

2009-08-10 Thread wim from holland

I had trouble with the bowl, after 6 month TM. Went in the hospital for a week, 
I was complete filled up, and to less came out. After It was done, I was put on 
Lactulose, every day use. The spasme went much better. I still am on use of 
Lactolose, it has been 12 years now.

 

Wim
 
> Date: Sun, 9 Aug 2009 17:16:01 -0400
> From: wolft...@optonline.net
> To: tmic-list@eskimo.com
> Subject: [TMIC] question
> 
> 
> Has anyone ever noticed that constipation, or not moving
> your bowels regularly for any reason, can make other symptoms
> worse, such as spasms?
> 
> Kevin
> 

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RE: [TMIC] personal messages

2009-08-01 Thread wim from holland

Only when you open a deeper conversation with a person, not related to TM , 
press the reply button and not reply all. most of us expect to pick out some 
information, or simular stories wich helps them to deal with TM. It is good to 
know a person deeper, his point of few, nothing wrong with that, but keep it 
personal. It is the same as when you have a party with a lot of guest, all of 
coming interest you speak out loud, man or femail matters you keep in person.

 

Wim from Holland
 


To: tmic-list@eskimo.com
Date: Sat, 1 Aug 2009 18:54:07 -0400
From: parkersw...@aol.com
Subject: [TMIC] personal messages

The personal messages are our way of getting personal with our friends here on 
the TM site.  Why not?  We all want to get to know each other with or w/o TM, 
don't we?  Regardless of what we say, we are one big family and we forgive, 
forget and move on!  

Sparker








 






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[TMIC] OT: music moment

2009-07-14 Thread wim from holland

For my brother in laws 50th aneversery, my 2 sons, 2 nefews and there mother 
payed Hotel Claifornia for him. It is now on You Tube

 

All 4 of them play or played in bands as gitarists and singers. On the left and 
middle my oldest and youngest son, they play in 'The Real Thing' and 'MANoMAN' 
both local bands. The drummer here is no longer in a band, the 12 string player 
plays in 'Textures', plays also in the US and the are all over Europe and 
Russia with the band.

 

Wim from Holland

 

http://www.youtube.com/watch?v=s_iD_oj2ZBI&eurl=http%3A%2F%2Fomatit%2Ehyves%2Enl%2F%3Fref%3Dnewscrap%26pageid%3D3JTWVB0WRDICGCG0W&feature=player_embedded

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RE: [TMIC] Blured vision

2009-07-11 Thread wim from holland

I got my blured vision in the time the first signs were there month for TM. 
Only I did not know what was happening to me. Around a few month before. Meds 
did not make the difference. It got worse after the TM. I only take Baclofen, 
no pain meds. The most logical explenation for the eye-site problem was the 
age, around 43. But just a year before my eyes were checked by the medical 
serveces of my company. 

 

This discussion has come by every few years, look into the archives and you 
will see, that what we has found out. Blured vion is TM related, and medication 
has very little to do with that. Some meds will make a little difference, the 
mail course is TM. Also the age. Most of us are in the 40's or older. Yes guys, 
you are getting old. So it is a difficult discussion with the doctors, they 
simply keep it on the age, while we know, compairing this problem with 
eachother that it is also TM related.

 

Wim from Holland
 


From: ladyno...@aol.com
Date: Tue, 7 Jul 2009 21:46:22 -0400
To: tmic-list@eskimo.com; quad-l...@eskimo.com
Subject: [TMIC] Blured vision


During the course of my medication regimen, I had taken medication that has 
caused me to have blurred vision. I know there has been others who have 
complained about having their vision impaired due to medication. My question is 
this: has anyone stopped taking the medication and have their vision improve or 
return to normal?
 
Naomi
C-4 Quadriplegic, since July 2, 2005
Due to Transverse Myelitis



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[TMIC] arts page

2009-07-05 Thread wim from holland

In my TM time, already 12 years now I started painting as a hobby. Took a few 
years lessons but the man fall in love and went to Letvia. Because the photo's 
were not a succes to send them to you, I put them on a page at the internet.

 

The page is: http://members.tele2.nl/jw.deenik05/.

 

Wim from Holand

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[TMIC] no luck on arts

2009-07-01 Thread wim from holland

I tried, made them smaller al the pictures, send them one by one. But none came 
through. I will send them in person for all who want to see. Maybe if I have 
time, put them on the internet on a page that anyone can reach, will try not 
only in dutch, but also in English.

 

Wim from Holland.

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[TMIC] arts

2009-07-01 Thread wim from holland

I also started doing arts since TM. It comes with periods, sometimes a year 
nothing and then a few paintings in a short period. I started small but at the 
end I tried some larger ones, and it is nice to do. But there is one problem 
with kids who has to decorate there new homes, since they are one there own, 
some paintings, especially the larger ones are all confiscated by the kids. I 
am proud fo it ofcourse, luckely I still have the pictures.  The two i send you 
are the largest ones, 80 x 100cm (32 x 40 inch).
 
I copied them from photo's of the internet. They are both original from Evard 
Munch. Both were been stolen out of the Swedisch museum and found back 5 years 
later. But I had nothing to do with that, they are named "The Madonna" and "The 
Cry".

 

Tanks to Jim, who told me that the pictures and mails ate limited to 40k, I 
send them in two separate  mails. Think I send you more, in the mail what it 
is, most of them are from pictures or photo's, with the help of a photo 
projector. 

 
Wim from Holland


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[TMIC] mail blocked?

2009-06-30 Thread wim from holland

In the discussion of arts, I send two pictures of my work to share it with you, 
things I learned to do during the TM period. 

 

Send it twice but none of them came through. Are they blocked or cencored, one 
of them was the Madonna to the painting of Edvard Munch.

 

Wim from Holland

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RE: [TMIC] Sex

2009-06-28 Thread wim from holland

It is good now and then to pick up this subject again. All growen up people and 
we have all to deal with it. Nobody is an exeption in that, to talk about it is 
just like subject like 'going to the toilet'. Nobody seen you doing it, but 
verery body knows and understands it happens.

 

My TM is between t6 - t10. You can say threre is no sex at all. Tm struck me at 
the age of 43, lucky we had 3 kids already. From that period on ( 6 month 
before) sex became more and more a problem and from the day of TM there was 
none. Because of the spasme I had du the temp differences, nice laying against 
to each other was also not possible, after a minut my legs started to spasm and 
I was kicking her. After a while also the lust was gone. Sometimes I forsed my 
self to concentrate on it, but it ended with thinking on shopping lists and 
bills I had to pay. 

 

Lucky for me, my wife had seen that the love was still the same, but only the 
sex part was gone, we had both our tears about that. Now 12 years later we are 
still married, show our love in many ways to each other ( don't forget that 
part). Kids are all out of the house and we can do what we like, within all 
restricktions of the TM. The not understanding part of the outside world hits 
us harder as what we made out of it.

 

Wim from Holland.
 


From: bgunny7...@aol.com
Date: Thu, 25 Jun 2009 10:02:40 -0400
To: Tmic-list@eskimo.com
Subject: [TMIC] Sex


Some Interesting points have been brought up in this discussion, so I'm gonna 
chime in. Understand, I'm only speaking for myself, but there may be some 
points to ponder here. Ok, when I first got married again, and she came to 
Ohio, things went well the first night we were together,  but, after I got to 
see her demeanor and attitude, things went quickly down the tubes. It didn't 
take long for her to tell me she hated me, and wished I was dead. I suppose 
part of that was because I forced her to go to work. In any case, with me, not 
all men, physical attraction was the main purpose to get involved. One needs to 
take time to find out what kind of person lives inside the one you want to tie 
up with, and, is that the same person that's projected to the world, or are 
they different? Are they one person at home, and another to the outside world. 
If so, then that's a phoney. Since this wonderful probelm of TM has so 
graciously decided to rule my life, I've begun to see that looks don't mean a 
helluva lot. Oh, not the physicality doesn't matter, but it shouldn't be 
uppermost. In your youth, maybe, but as you age, you take on a different 
outlook. I know for myself, attitude plays a big role. If your a weasel of a 
person, nothings gonna happen, no matter how hard I try, or what pill I take. 
If, and if, I feel the desire, and your receptive, possibly. Also, age plays a 
role in this. I find the oder I get, the less desire I have. As far as feelings 
go, meaning sensation, if my partner has diminished sensation, I'll do what it 
takes to try and get some back. It's like, if you don't use it, you lose it 
syndrome. Maybe that'll work, maybe it wont, but, if you have feelings for you 
partner, you'll at least try. Men have a way of thinking, well, I can't feel 
anything or if you can't feel anything, what's the use. Oh yeah, what about at 
least giving it a shot. Your mind may come into play here in that, you remember 
what it was like, maybe it'll be that way again. But, if you don't try. you'll 
never know. One thing I've found out through my trek in life is, men need to 
know they're needed, and women need to know they're loved. If those two needs 
are met, the rest should fall into place. If you love each other, then damnit, 
show it. It's never too late to experiment. Take those old tapes that are 
playing in your mind, instilled by parents who say, certain sexual techniques 
if you will, are taboo, and throw em in the shit can. There's nothing taboo 
about loving someone, and showing them that you do. I gotta do more thinking on 
this matter, but these are the thoughts that have been running through my mind 
since this subject came up.



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[TMIC] Tysabri (natalizumab)

2009-05-31 Thread wim from holland

Is there anyone who has expirence with this new kind of drug. It is defeloped 
for MS but what good is for that group, sometimes helps for TM patients.

 

Wim from Holland.

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RE: [TMIC] Lottery and Dreams

2009-04-27 Thread wim from holland

Every week I become a millionair, and dream how it could be in my house I 
bought in Portugal, a nice warm climat with a swimmingpool. So much to dream, 
and so less to spend when the numbers are falling... Up to next week, dreaming 
a full week before the numbers are falling again. 

 

Get tired by the idear to actualise it, buying a house flying up and down, 
shopping for all the new stuff and decorate it, arranging people for gardening, 
household and pool... Glad I have another week not to coop with all those 
problems.. :-)

 

Wim from Holland
 
> Date: Sat, 25 Apr 2009 11:45:32 -0700
> From: a...@artfarm.com
> To: tmic-list@eskimo.com
> Subject: [TMIC] Lottery and Dreams
> 
> >
> > Speaking of dreams, I dreamed I was roller skating last night - it was =
> > wonderful and though some may think it silly, it gives me hope.
> >
> > Thanks,
> >
> > Tami
> 
> Beautiful, Tami!
> I too treasure my walking, running, dancing dreams and have a
> very changed list for Lottery winnings from the one I had pre-TM.
> 
> I want to fix me, but until that happens, I would love a smooth driveway,
> a path into my yard, a ramp with the right inclination, an IBot, a
> masseuse, a lift to see again the second floor of my house, and my
> basement, a chauffeur... as awful as TM is, money would make so many
> things easier to bear
> 
> Akua
> 

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[TMIC] update granddad

2009-03-10 Thread wim from holland

I'll try again.

 

On this photo she had the same pose as we saw her on a photo in the womb. 
Vingers in het mouth and a hand besides her head.

 

The first time I sended more but they did not came trough.

 

Wim from Holland

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[TMIC] granddad

2009-03-05 Thread wim from holland

Just a short note from Holland. My oldest son has become a father, so I am a 
grandfather now. It felt like I had my own child again in my arms. She is the 
most beautifull girl I have ever seen since my own daugther. Here name is Tess. 
This little sunshine I like to share it with all of you. Life is so much nicer 
to live now, it is more a rich feeling I ever could inmagine.

 

Wim from Holland

 

 

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RE: [TMIC] Bladder control

2009-01-29 Thread wim from holland

That is the same I said in the beginning of TM, because I hatet the 
catherisasion in the hospital. Untill I learned to do it myself, instead of 
sitting on the toilet half the night, just before sleeping and sleep the hole 
night in one peace. In a few days I did not mind to do it, at all. It brought 
back the rest in my body and legs. He is lucky that his bladder stays closed, 
because it can also the other way around, as you could read.
 
he just has to put a knob over in his mind. I caterise three times a day, right 
out of bed in the morning, just before dinner and before going to sleep. 
Between, just like your husband, little pees. When the bladder is full, it 
opens not so well as it is been half full, is my expirence. Ones he is on that, 
there will be much more rest during the day, and he will be more active for 
pleasure instead of using all his power to go to the toilet the hole day.
 
Wim from Holland.



From: sally.wilkin...@genesisdesign.uk.comto: tmic-l...@eskimo.comdate: Thu, 29 
Jan 2009 14:40:02 +Subject: [TMIC] Bladder control



Hi Guys
 
Am I right in thinking that bladder control can be an issue with TM? My TM 
husband thinks its not, and that his visits to the loo 7-10 times a night and 
needing to suddenly pee urgently at any time have nothing to do with his TM!
 
Kind regards
 
Sally in the UK
 
Sally Wilkinson
Business Development Manager
Genesis Design
The Barn Ipsden Oxfordshire OX10 6AS
+44(0)1491 682277
sally.wilkin...@genesisdesign.uk.com
 
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RE: [TMIC] constipation

2009-01-20 Thread wim from holland

Regina
 
I use Lactulose for 12 years now. It is good and safe. It keeps the bowel soft 
and easy to come out. It contains natural sugers wich make the proces fastener. 
If you use it a while you will notice that the bowel also hardly smell. It 
makes you more windy as normal, but because the fast process, here also no 
smell. 
 
I started with Lactulose, after a bowel bloccade, wich kept me in hospital for 
a week, and very painfull. In Hospital they gave me 90ml a day, during the 
bloccade. After that they recommand that I went on with Lactolose. Now I use 
normaly 30ml ones a day. But because of the fishoil I also take, it went up to 
50ml a day. Take it just before a meal and some drink after. It workes very 
well.
 
Wim from Holland.



Date: Sun, 18 Jan 2009 12:47:15 -0800From: regina...@sbcglobal.netto: 
tmic-l...@eskimo.comsubject: [TMIC] constipation



Years ago, the doctor prescribed LACTULOSE to my mother after she had a stroke 
leaving her with major problems including a horrible case of constipation.  He 
said that it doesn't irritate your bowels.  
 
Wondering if any of you even heard of it.
 
Kevin, I would like to hear more about the herb you recommend.
R
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RE: [TMIC] IVIG

2009-01-12 Thread wim from holland

You are right about the biopsy, ones having TM doctors like to know if they can 
find out what caused it. But whatever the cause was, damage is done and that 
knowledge brings you noghing any further.
 
The IVIG, as I understand, having solumedrol or stuff like that by IV, has 
beter results as oral medication. Most of the time you get a high dose for 
three or five days and in some cases medication to build it off. It is bad 
stuff, but most of us had a good benefit.
 
Wim from Holland.> Date: Sun, 11 Jan 2009 17:57:18 -0500> From: 
wolft...@optonline.net> To: marieke...@hotmail.com; tmic-list@eskimo.com> 
Subject: [TMIC] IVIG> > > Does IVIG reduce inflammation? I think a doctor wants 
to try it on me, > but they> want me to have a nerve biopsy first and I don't 
want to because I've > read that> a nerve biopsy can cause permanent numbness 
in the biopsy site, and I don't> want or need any more numbness. However, I may 
get desperate enough> to do this because I don't want to live this way if 
there's a chance of > improvement.> > Kevin> > > > > > > marieke dufresne 
wrote:> > RE: IVIG, I had it after the first 3 weeks of TM. I had it every day 
> > for 5 days. There is no reason to have it more often UNLESS you have a > > 
recurring autoimmune disorder, ie: if your TM is recurring. No point > > if you 
had ONE attack many years ago, it would not change anything now.> > I got some 
movement back following the IVIG, but no one knows if it > > was due to that or 
the steroids or> > Marieke RN> > TM @T1 since March 2004> >> > 
> > 
Date: Sun, 11 Jan 2009 14:28:43 -0800> > From: tmic-digest-requ...@eskimo.com> 
> Subject: tmic-digest Digest V2009 #20> > To: tmic-dig...@eskimo.com> >> >> >> 
> --Forwarded Message Attachment--> >> > tmic-digest Digest Volume 2009 : Issue 
20> > > > Today's Topics:> > [TMIC] Washington Post article/Intra [ "Trudy 
Ogilvie"  > RE: [TMIC] Washington Post article/I [ "Gerry 
Surette"  > > >> >> > --Forwarded Message Attachment--> > 
Date: Sun, 11 Jan 2009 13:16:24 -0500> > From: mother...@gmail.com> > To: 
snow121...@hotmail.com> > CC: tmic-list@eskimo.com> > Subject: [TMIC] 
Washington Post article/Intravenous immune globulin> >> > Did anyone get a 
chance to read the Washington Post article I sent > > out. A young teenager was 
given intravenous immune globulin." at > > Children's hospital after he was 
diagnosed with Transverse Myelitis, > > when the steroids didn't work. Two 
weeks later he walked out and has > > made the basketball team at his college. 
I asked my neuro about this > > and she said that it was too late for me, but 
if I insisted she would > > help me work with Medicare (they really give you a 
hard time!) to give > > it a try. Tho she said I would have to have these 
infusions every 8 > > weeks or so for the rest of my life? She did say that she 
doubted > > very much that it would help at all.> > Has anyone here ever 
had these infusions...??> >> > Carol I was wondering if you could talk to your 
neuro? Just a thought!> >> > Also I use the same quote as you but it's only on 
my Hotmail account.. > > It was nice to see it again!> > Trudy> >> >> >> >> > 
--Forwarded Message Attachment--> > Date: Sun, 11 Jan 2009 15:47:55 -0500> > 
From: suret...@sympatico.ca> > To: mother...@gmail.com> > CC: 
tmic-list@eskimo.com> > Subject: RE: [TMIC] Washington Post article/Intravenous 
immune globulin> >> > yes I have had that treatment twice; having had ItP this 
procedure helped > > raise my white blood cell count. It didn't help me 
otherwise; the treament > > last 4 to 5 hours intravenously from 3 to 5 days at 
a strech. If you go to > > the hospital to have the trreatments my hemotologist 
recemmended I have > > someone with me on my way home. Scince the "bag" is 
keept cold prior to use > > they usually cover you up with a blanket. otherwise 
I had no side effects. > > the nurse who gave me the treatment was gorgeous so 
the day went by fast> > > > > > >From: "Trudy Ogilvie" > > 
>To: "C E" > > >CC: tmic-list@eskimo.com> > >Subject: 
[TMIC] Washington Post article/Intravenous immune globulin> > >Date: Sun, 11 
Jan 2009 13:16:24 -0500> > >> > >Did anyone get a chance to read the Washington 
Post article I sent out. A> > >

RE: [TMIC] UNSUBSCRIBE

2009-01-09 Thread wim from holland

Unsubscribe from TMIC-LIST
To unsubscribe from the list, send email to tmic-list-requ...@eskimo.com, with 
the Subject unsubscribe. That's all that's needed. 
To unsubscribe from the digest, send email to tmic-digest-requ...@eskimo.com, 
with the Subject unsubscribe. That's all that's needed. 
Note: AOL users & some other mailer may require something written in the 
message body before it will send. 

 
> Date: Fri, 9 Jan 2009 16:20:33 -0500> To: tmic-list@eskimo.com> From: 
> david-gib...@uiowa.edu> Subject: [TMIC] UNSUBSCRIBE> > 
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[TMIC] Gelukkig Nieuwjaar

2009-01-01 Thread wim from holland

Gelukkig Nieuwjaar!
 
 
Happy 2009 everbody
 
 
Wim from Holland.
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RE: [TMIC] Too Cold

2008-12-01 Thread wim from holland

Try an electric underlayer, wich can set on and off in parts. I use only the 
legs side, wich helps. My wife goes earlier to bed as I am, and I step in a 
warm bed in this cold days. As soon as I get sleepy, I put it off to avoid 
burning legs at night.
 
Wim



From: [EMAIL PROTECTED]: Sat, 29 Nov 2008 01:39:49 -0500To: [EMAIL PROTECTED]: 
[TMIC] Too Cold






Hi All,
 
Is anyone else out there suffering from that bone-chilling cold that settles 
deeply into your bones and nothing you do helps to warm you up?
 
I began to get cold earlier in the evening and have had Dave put mega blankets 
on me until they are so heavy I can barely lift them.  I now have a queen sized 
silk blanket doubled on top of all of my other covers on my small hospital bed.
 
This kind of cold came with the Transverse Myelitis and I don't believe it will 
ever go away.  At least there is no kind of medication to warm me up that I 
know of.  Does anyone out there have a clue?
 
I know that some of you have also felt this chilling cold.  What do you do to 
combat it?  It is ridiculous the lengths I go to in order to be able to sleep, 
but am so uncomfortable that I can't.
 
At least I am tired enough to give it a go...
Jude
 


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[TMIC] OT: new president

2008-11-05 Thread wim from holland

Concratulations America with your new President.
 
As you know, the most of us in Europe is glad that Obama is the man now for 4 
years. Good also that so many bring out there vote, so it is a democratic 
dission of all Americans. We trust here that he will place the best man on the 
right place, and also are sucjestions here, we would not be surpriced that he 
will take one or two Republicans in his gouverment.
 
McCain had an support from only 10% here, we consider the man as ultra right. 
As you had to know that the Democrats are to compair with our parties who are 
right from the center. And with over 40% lefties it is not strange that Obama 
was for us the best choise.
 
Wim from Holland.
 

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[TMIC] Healthcare and President

2008-10-26 Thread wim from holland

Also for not Americans, it is important who will be president of the US. Not 
only the financial management in the world, also for health care. It makes a 
big diference if there is somebody in charche that make it possible that for 
this group of TM'rs scientists can do there work and that there is enought 
money to do so. If you want to fight a war, do it in the labs. If they can get 
1% of the money cancer cures, and lot of others are cumming closer by.
 
Don't let the US become a third world nation, by going on , on this path, but 
make it back the number 1 in the world. Is it to much for the richest country 
in the world, to ask for there people to have heathcare for all, heathy food 
and a roof on top of there heads?
 
Aids groups of doctors and dentists are now working in the US, in staed of 
Africa to give free heath care for the 51 million who do not has heathcare in 
your country. Don't you shame your self. See that you get your info, not from 
Foxnews, but from BBC and CNN. Look what is really going on. And choose for a 
President wich can those matters make better. You need a change...
 
Wim from Holland
 
PS. This is also a good subject to discus on the TMIC group in my poit of few.
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[TMIC] OT: house problems

2008-10-05 Thread wim from holland

Just curious, are there people also of our group who are in trouble now with 
the new financial crises in the States?
 
Wim
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RE: [TMIC] no emails

2008-09-24 Thread wim from holland

Glad seeing the list is stil working. Indeed it was very quiet for days.
 
Wim



Date: Wed, 24 Sep 2008 05:26:48 -0700From: [EMAIL PROTECTED]: [EMAIL 
PROTECTED]: [TMIC] no emails




have I been shooed off the list or is it just very quiet???
Tobe  :O)
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RE: [TMIC] new friend

2008-09-09 Thread wim from holland

Also welcome from Holland. Your friends are world wide as you see..
 
Wim



Date: Tue, 9 Sep 2008 13:40:13 -0700From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: 
[TMIC] new friend




my name is amanda and i am newly diagnosed with tm. i am still in the hospital 
in rehab. hope this gets through to the list. i could use sum friends.
 
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RE: [TMIC]

2008-09-03 Thread wim from holland

You must slowly build up the level of Baclofen. Maybe after a time on 10mg a 
day you can go higher.  The body has to coopthe that level and it takes some 
time. You can't say in a few weeks it is everything or nothinng. Just be 
patient. A pump if fot those on a high level when the pills are not enough 
anymore. Don't go to fast for that, there is also a netive site on a pump.
 
Wim



Subject: RE: [TMIC]Date: Wed, 3 Sep 2008 09:18:56 -0400From: [EMAIL PROTECTED]: 
[EMAIL PROTECTED]; tmic-list@eskimo.com






Hi Wim – I think you are right about Baclofen – I think it is doing a number on 
me. I am very weak now – it’s very hard to get up from sitting & my lower back 
is in pain.
It’s even difficult to sit up straight. I don’ think it’s from exercise 
although I am taking a break from it now fof the most part. I spoke to my neuro 
yesterday & she said I could go from 20mg/day to 10mg. She also said it should 
get better over time (?). She also said the pump will help because it injects a 
tiny amount into my spine only, not a larger amount into my system like the 
pills 
 

Barney




From: wim from holland [mailto:[EMAIL PROTECTED] Sent: Wednesday, September 03, 
2008 8:57 AMTo: Butcher, Bernard G (NY80); tmic-list-at-eskimo.comSubject: RE: 
[TMIC]
 
I am on 60mg a day now. You have to find for your self the good combination, 
between the amount of Baclofen and the movement you still can do the best. 
Baclofen is taking away some strength, but it also take away the stiffness. 
Normal you start with a low dose of 15 a day, and after a few month you can say 
if it is enough or you go to a higher dose. In that time I had also trouble 
with short memory loss, if it was the Baclofen or the TM, still don't know. Now 
it is almost back to normal. Wim



Subject: RE: [TMIC]Date: Mon, 25 Aug 2008 08:21:41 -0400From: [EMAIL 
PROTECTED]: [EMAIL PROTECTED]; tmic-list@eskimo.com
Thanks Wim - interesting - - have you tried Baclofen? I also can walk (with 
walker) and since taking baclofen pills for 1 1/2 weeks, it has gotten harder 
to do - especially getting up - I have been blaming it on over-exercise, I have 
been getting down on the floor & doing some exercises a couple of days per 
week, and I am going to stop for a while to see if it improves. 

 
BERNARD BUTCHER

 
 



From: wim from holland [mailto:[EMAIL PROTECTED] Sent: Saturday, August 23, 
2008 6:43 PMTo: Butcher, Bernard G (NY80); tmic-list-at-eskimo.comSubject: RE: 
[TMIC]
My neuro told me that a pump is not a good idea. Because the stiffness I can 
stand on my legs, even walk a little with crutches. Handy for going to a toilet 
or take a shower. When a pump is installed, standing is out of the question, no 
stiffnes and bad feelings is one, but no function is for me out of the 
question. Wim> Date: Fri, 22 Aug 2008 16:18:32 -0400> From: [EMAIL PROTECTED]> 
To: tmic-list@eskimo.com> Subject: [TMIC] > > > Hi all - I was told by my neuro 
that I may need to get a baclofen pump.> Right now I am taking baclofen pills, 
and next (if I have no bad> reactions, I guess) I have to go through an 
evaluation test whereby they> inject baclofen into my spinal cord - then the 
pump gets installed with> a tube which automatically injects small amounts of 
baclofen into my> spinal cord.> Has anyone gone through this process? Stiffness 
is one of my biggest> problems right now & she tells me the pump is the way to 
go. Sounds> scary, the pump is actually inside me.> > BARNEY> > 



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RE: [TMIC]

2008-09-03 Thread wim from holland

I also swim a lot. My PT explained to me that because of the weightless in the 
water , you have a better bloodstream in the leggs. You can exercise in the 
water without using the muscles power. I too have a lot of benefits of my 
swimming.
 
Wim



Subject: RE: [TMIC]Date: Wed, 3 Sep 2008 09:11:41 -0400From: [EMAIL PROTECTED]: 
[EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.com



Regarding the exercise question...I have found that over exercising is 
detrimental to my condition. We want to exercise in the hope we will feel 
better...but in the case of TM this is not true. I have gone from going to the 
gym 4 times a week for a couple hours each time to simply swimming 3 times a 
week for 45 minutes. I am getting some good cardio and I am not letting my 
muscles atrophy. Swimming was recommended to me by Dr. Kerr and since going on 
this regiment I feel better and less fatigued. I am also not messing up my 
knees and or hips.The best thing about swimming is that I can now run...in the 
pool...and not worry about falling!
 
Rob in New Jersey


From: wim from holland [mailto:[EMAIL PROTECTED] Sent: Wednesday, September 03, 
2008 9:02 AMTo: Butcher, Bernard G (NY80); tmic-list-at-eskimo.comSubject: RE: 
[TMIC]
About the exercisings you do, dont overdo. It breakes more than it builds up. 
The exercises you have to do is for maintain the muscles. When you try to build 
up, the effect can be the opposit. Take care Wim

Subject: RE: [TMIC]Date: Mon, 25 Aug 2008 08:21:41 -0400From: [EMAIL 
PROTECTED]: [EMAIL PROTECTED]; tmic-list@eskimo.com


Thanks Wim - interesting - - have you tried Baclofen? I also can walk (with 
walker) and since taking baclofen pills for 1 1/2 weeks, it has gotten harder 
to do - especially getting up - I have been blaming it on over-exercise, I have 
been getting down on the floor & doing some exercises a couple of days per 
week, and I am going to stop for a while to see if it improves. 
 
BERNARD BUTCHER
 


From: wim from holland [mailto:[EMAIL PROTECTED] Sent: Saturday, August 23, 
2008 6:43 PMTo: Butcher, Bernard G (NY80); tmic-list-at-eskimo.comSubject: RE: 
[TMIC]
My neuro told me that a pump is not a good idea. Because the stiffness I can 
stand on my legs, even walk a little with crutches. Handy for going to a toilet 
or take a shower. When a pump is installed, standing is out of the question, no 
stiffnes and bad feelings is one, but no function is for me out of the 
question. Wim> Date: Fri, 22 Aug 2008 16:18:32 -0400> From: [EMAIL PROTECTED]> 
To: tmic-list@eskimo.com> Subject: [TMIC] > > > Hi all - I was told by my neuro 
that I may need to get a baclofen pump.> Right now I am taking baclofen pills, 
and next (if I have no bad> reactions, I guess) I have to go through an 
evaluation test whereby they> inject baclofen into my spinal cord - then the 
pump gets installed with> a tube which automatically injects small amounts of 
baclofen into my> spinal cord.> Has anyone gone through this process? Stiffness 
is one of my biggest> problems right now & she tells me the pump is the way to 
go. Sounds> scary, the pump is actually inside me.> > BARNEY> > 

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RE: [TMIC] can you answer?

2008-09-03 Thread wim from holland

The TM it self is temporarely. It is the damage what is done to us that is 
different. What your husband has now, is caused by a TM, it is the outcome of a 
few years hard working to try the damage keep as small as possible. For only a 
third of the TMers it is succesfull, an other third keep a few small matters, 
as cold feet and so on. The group here are the most of the third which has 
large damages of the TM, most of the others are not in this group anymore or 
has never been here. For those it was just a temporarely nightmare.
 
Wim



From: [EMAIL PROTECTED]: Wed, 27 Aug 2008 21:45:17 -0400To: [EMAIL PROTECTED]: 
[TMIC] can you answer?

My husband Jim was diagnosed with TM in May 2005. Since then he has been to  
many doctors, rehab, physical  therapies, ETC. A few days ago he had  an 
appointment with his neuro to discuss recent tests he'd had done. The neuro  
told him that he doesn't have TM anymore but now has AXONAL PERIPHERAL  
NEUROPATHY. Have any of you ever been told this. This is very confusing to us.  
Thanks to all of you for giving us the opportunity to ask questions. I  will 
watch for a reply.  Carol and Jim Belz MI 


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RE: [TMIC]

2008-09-03 Thread wim from holland

About the exercisings you do, dont overdo. It breakes more than it builds up. 
The exercises you have to do is for maintain the muscles. When you try to build 
up, the effect can be the opposit.
 
Take care
 
Wim



Subject: RE: [TMIC]Date: Mon, 25 Aug 2008 08:21:41 -0400From: [EMAIL 
PROTECTED]: [EMAIL PROTECTED]; tmic-list@eskimo.com



Thanks Wim - interesting - - have you tried Baclofen? I also can walk (with 
walker) and since taking baclofen pills for 1 1/2 weeks, it has gotten harder 
to do - especially getting up - I have been blaming it on over-exercise, I have 
been getting down on the floor & doing some exercises a couple of days per 
week, and I am going to stop for a while to see if it improves. 
 
BERNARD BUTCHER
 


From: wim from holland [mailto:[EMAIL PROTECTED] Sent: Saturday, August 23, 
2008 6:43 PMTo: Butcher, Bernard G (NY80); tmic-list-at-eskimo.comSubject: RE: 
[TMIC]
My neuro told me that a pump is not a good idea. Because the stiffness I can 
stand on my legs, even walk a little with crutches. Handy for going to a toilet 
or take a shower. When a pump is installed, standing is out of the question, no 
stiffnes and bad feelings is one, but no function is for me out of the 
question. Wim> Date: Fri, 22 Aug 2008 16:18:32 -0400> From: [EMAIL PROTECTED]> 
To: tmic-list@eskimo.com> Subject: [TMIC] > > > Hi all - I was told by my neuro 
that I may need to get a baclofen pump.> Right now I am taking baclofen pills, 
and next (if I have no bad> reactions, I guess) I have to go through an 
evaluation test whereby they> inject baclofen into my spinal cord - then the 
pump gets installed with> a tube which automatically injects small amounts of 
baclofen into my> spinal cord.> Has anyone gone through this process? Stiffness 
is one of my biggest> problems right now & she tells me the pump is the way to 
go. Sounds> scary, the pump is actually inside me.> > BARNEY> > 

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RE: [TMIC]

2008-09-03 Thread wim from holland

I am on 60mg a day now. You have to find for your self the good combination, 
between the amount of Baclofen and the movement you still can do the best. 
Baclofen is taking away some strength, but it also take away the stiffness. 
Normal you start with a low dose of 15 a day, and after a few month you can say 
if it is enough or you go to a higher dose. In that time I had also trouble 
with short memory loss, if it was the Baclofen or the TM, still don't know. Now 
it is almost back to normal.
 
Wim



Subject: RE: [TMIC]Date: Mon, 25 Aug 2008 08:21:41 -0400From: [EMAIL 
PROTECTED]: [EMAIL PROTECTED]; tmic-list@eskimo.com



Thanks Wim - interesting - - have you tried Baclofen? I also can walk (with 
walker) and since taking baclofen pills for 1 1/2 weeks, it has gotten harder 
to do - especially getting up - I have been blaming it on over-exercise, I have 
been getting down on the floor & doing some exercises a couple of days per 
week, and I am going to stop for a while to see if it improves. 
 
BERNARD BUTCHER
 


From: wim from holland [mailto:[EMAIL PROTECTED] Sent: Saturday, August 23, 
2008 6:43 PMTo: Butcher, Bernard G (NY80); tmic-list-at-eskimo.comSubject: RE: 
[TMIC]
My neuro told me that a pump is not a good idea. Because the stiffness I can 
stand on my legs, even walk a little with crutches. Handy for going to a toilet 
or take a shower. When a pump is installed, standing is out of the question, no 
stiffnes and bad feelings is one, but no function is for me out of the 
question. Wim> Date: Fri, 22 Aug 2008 16:18:32 -0400> From: [EMAIL PROTECTED]> 
To: tmic-list@eskimo.com> Subject: [TMIC] > > > Hi all - I was told by my neuro 
that I may need to get a baclofen pump.> Right now I am taking baclofen pills, 
and next (if I have no bad> reactions, I guess) I have to go through an 
evaluation test whereby they> inject baclofen into my spinal cord - then the 
pump gets installed with> a tube which automatically injects small amounts of 
baclofen into my> spinal cord.> Has anyone gone through this process? Stiffness 
is one of my biggest> problems right now & she tells me the pump is the way to 
go. Sounds> scary, the pump is actually inside me.> > BARNEY> > 

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RE: [TMIC]

2008-08-23 Thread wim from holland

My neuro told me that a pump is not a good idea. Because the stiffness I can 
stand on my legs, even walk a little with crutches. Handy for going to a toilet 
or take a shower. When a pump is installed, standing is out of the question, no 
stiffnes and bad feelings is one, but no function is for me out of the question.
 
Wim> Date: Fri, 22 Aug 2008 16:18:32 -0400> From: [EMAIL PROTECTED]> To: 
tmic-list@eskimo.com> Subject: [TMIC] > > > Hi all - I was told by my neuro 
that I may need to get a baclofen pump.> Right now I am taking baclofen pills, 
and next (if I have no bad> reactions, I guess) I have to go through an 
evaluation test whereby they> inject baclofen into my spinal cord - then the 
pump gets installed with> a tube which automatically injects small amounts of 
baclofen into my> spinal cord.> Has anyone gone through this process? Stiffness 
is one of my biggest> problems right now & she tells me the pump is the way to 
go. Sounds> scary, the pump is actually inside me.> > BARNEY> > 
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RE: [TMIC] HAPPY BROWNIES (mj)

2008-07-31 Thread wim from holland

Please send us the recipe.
 
Wim from Holland



Date: Wed, 30 Jul 2008 22:29:43 -0700From: [EMAIL PROTECTED]: 
tmic-list@eskimo.com; [EMAIL PROTECTED]: [TMIC] HAPPY BROWNIES (mj)

For a while I have been using "Happy Brownies" made with marijuana to help me 
sleep at night when I get the heebie jeebies, fuzzy feelings, burning/freezing 
pain, spasms, or whatever seems to be keeping me awake.  I get by pretty well 
during the day with my meds, but they don't seem to help as much at night.  
 
We just hadn't gotten a very good tasting brownie, however, I was getting kind 
of used to it.  I needed a little something to eat afterwards and plenty to 
swallow it down.  We have experimented with several different brands of mixes, 
but yesterday tried a recipe from one of my cookbooks.  We were so surprised, 
as the butter came out tasting terrible, but the brownies were really good.  I 
didn't even need anything afterwards.
 
If anyone is interested in trying to make there own "happy brownies", I'll be 
happy to forward the recipe to you.
 
Hugs to all, Barbara A


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RE: [TMIC] Steriods AGAIN!

2008-05-04 Thread wim from holland

Carol
 
I too hatet the steroids every time, but looking back it kept me able to walk a 
little with canes, every time just before I was having trouble to do the most 
simple matters on my feet (toilet, bathing and dressing) . Still also after 11 
years I go back this summer for a short treatment. Everytime after I felt sick 
for a few weeks, but it was worse it. The last time was more than three years 
ago. Every time now the benefits is longer and the total picture gives a study 
image.
 
It also gives me a better state of mind, I can here now what my wife and gids 
are going to say, after the treatment.   SHUT UP!
 
Wim from Holland


From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: Sat, 3 May 2008 12:15:33 
-0400Subject: [TMIC] Steriods AGAIN!



Hi all,
I know some of you do not believe in going the steroid route, but when that's 
what your neurologist recommends and you are "getting worse", what is one 
suppose to do?  Anyway, I will be receiving out-patient solumedrol next week, 
Mon-Fri.  I hate steroids because they not only make my blood sugar out of 
control, they also make me crazy.  I remember 2 years ago when I had this 
treatment, by day 3 all I did was cry.  I was never so glad to get something 
out of my system as these steroids.
 
My local neuro says either I am having a TM flair-up or I have MS and it just 
has not shown itself yet.  Last week, I had a MRI of my brain and thoracic 
spine, with and without contrast and there was no change from 2 years ago, 
which is great news, but then WHY is my good leg getting worse  It feels 
like it is shot full of Novocain from the knee down.  When I met with Dr. Kerr 
2 years ago, he said I definitely do not have MS and didn't think I would have 
any flair ups of TM.  I am in a state of confusion.  If I have MS like my local 
neuro thinks, don't you think it would be evident in my new MRI's?   
 
Wish me luck.
Carol in Culver, IN
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[TMIC] again Lyrica

2008-04-22 Thread wim from holland

Please before you bring up a subject, please check the archives. Ofcourse 
things will change in time, but some discussions are still fresh.
 
By checking the archives on subjects you only can find a answer to your 
questions, but can also get a better few in the case you are interested in and 
come up with questions no one had thought about.
 
Not that I will say that any question have to be checked, but a lot of 
medication is already discussed. 
 
Wim from Holland
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RE: [TMIC] QUESTION

2008-04-04 Thread wim from holland

The TM made that some tissue around the spine is damaged. This damaged tissue 
is seen by the body as wrong element. The immune system attacs this tissue. The 
fact that some parts are not working or bad working is proof that the immune 
system is working.
 
Thats why some people get treatments to bring the immune system to zero, in the 
hope that when it recoveres, the body is back to normal. At the end, I never 
heard proof it worked, sometimes for a short period.
 
Fact is when I have a UTI, I have erections , while being heathy, forget it. 
What ever I tried. Also when I go for a pee, I can empty my bladder complete, 
normal I have to caterise. So when the immune system let me down at some 
points, parts will work.
 
Wim from Holland
 
 


Date: Wed, 2 Apr 2008 13:09:29 -0400From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: 
[TMIC] QUESTION

It is funny after having TM for more than 10 years I still don't truly 
understand it. Do we have weak immune systems or did we merely have an episode 
in which our immune system did not work properly…a one time (for many of us) 
thing?
Rob in New Jersey 
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RE: [TMIC] UNBELIEVABLE!

2008-03-25 Thread wim from holland

If you look in to the archives, probenly you will find a lot of people that 
think, or almost know for sure, that stress is related to sicknesses by 
lowering the immune system. This discussion has been done for several times, 
also blurry vision, cold feet, painfull knees and ancles, sensitivity, no sex , 
marijuana and more.
 
Follow this group now for over more than 10 years.
 
Wim from Holland


Date: Tue, 25 Mar 2008 17:27:47 -0400From: [EMAIL PROTECTED]: [EMAIL 
PROTECTED]: [TMIC] UNBELIEVABLE!

OK…Is this list good or not! So far having approx. 10 responses….9 out of 10 
state that they had a minor sickness but they were going thru a very stressful 
time in there lives. I am totally convinced that stress lowered my immume 
system to the point that TM  occurred. I find it unbelievable how many on the 
list agree! I believe in order to find a cure you must first find the 
cause….perhaps we have!!!
Rob in New Jersey 
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RE: [TMIC] my story

2008-02-25 Thread wim from holland

Gerry
 
Sorry to here that you have such a hard time. From expirience I had the same 
problems with the shaking in bed. I noticed when on the evening you keep your 
legs warmer ( mine are always cold) even when they feels warm enough, the 
muscle spams in bed are much lesser. Cuddle up to your wife, because of the big 
difference in tempeture can also make it worse. We can only do that from half 
spring, untill half autum. I wrap a blanket around my legs in the evening to 
keep them warm. Look out for draft, that cools down the most in house. 
Especialy in spring, the first nice days and then the windows open for fresh 
air. Those are my baddest times.
 
Wim from Holland> From: [EMAIL PROTECTED]> To: tmic-list@eskimo.com> Date: Mon, 
25 Feb 2008 16:19:32 -0500> Subject: [TMIC] my story> > HI; My name is gerry; 
someone asked me for my "story" why i do not know > anyway here goes. I am 60 
years young. I first contact mt at the age of 21. > I paralysized from the lung 
cage down. including a 2month stay in icu I was > in the hospital for 
approximately 5 months. I had to learn to walk again > etc. three years later I 
had another episode this time lasting two months. > full recovery until 2001 
when the symtoms returned. I now have constant pain > 24/7 I have no 
circulation to speak of My brain can not g9ive my body > correct temperatures. 
sometimes I feel cold when I am actually quite warm > and sometimes I feel warm 
when I am actually cold. This event is certainly > brought to the forefront 
when I cuddle up to my poor wife in the middle to > the night. and wrap my cold 
hands around her body. since last Saturday I > have slept but 4 hours. I get 
these muscle spasms which hurt like hell > pardon the expression. There is 
nothing to be done for them . I take quinne > but it doesn't seem to help. 
These last from a few minutes to 6 hours as it > did last noth. soemtimes I get 
five or six a night. I take wellbutrin for > depression,gabapentine for pain 
and a whole bunch of othere pills to help me > walk. Yes I am fortunate that I 
can still walk . Every step is pain galore. > I use a cane but have a walker 
and wheelchair for the very near future. Last > week I was diganosed with ITP 
ablood cell disorder whereby my white blood > cells are killing each other off. 
Next Monday I will be enteing the hospital > for chemo , radiation and a bone 
marrow transplant. Oh my life is far from > dull. Every day brings new 
challenges, new adventures,. Every morning I pray > for strenght. Every day I 
try to accomplish something whether its laundry > preparing evening meals or 
just cleaning up the apartment. we have a cat ; > Astray I picked up .She feels 
right at home. She sleeps at the foot of the > bed. I love cooking; barbequing; 
walking; Yes I force myself to walk and > when the weather is bad I walk along 
the corridor sometimes climbing up and > down the stairs. but most of all I 
love my wife. it is scary but she reads > my mind. She is my caregiver; my 
soulmate. I don't know what i would do > without her. I thank God almighty for 
sending here to me.I too will need > your prayers for next week. many thanks. 
gerry> > 
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OT RE: [TMIC] Obama

2008-02-20 Thread wim from holland

Gunny wrote: will he take the oath of office on a bible or the koran?
 
As European I thought, that he took his oath to the people of America, to show 
he means it for him self he used the bible. I don't know what Bush used, a roll 
of toilet paper is the only thing I can think of, seeing how he helped your 
country in the shit and how rich he maked his buddies and family. Cut the value 
of the dollar almost in half during his time.
 
Because of a lot financial problems in your country, we hope here on Clinton, 
but we understand also the popularity of Obama. As we see it here, he will 
easerly win it from McCain at the end. Better chanches as Clinton seeing his 
speatches.
 
Wim from Hollland


From: [EMAIL PROTECTED]: Tue, 19 Feb 2008 14:39:52 -0500To: [EMAIL PROTECTED]: 
[TMIC] Obama

Think about this long and hard people. I found this article I have 
attached, it's Worth the read. I have to ask myself, if Obama is elected 
President, will he take the oath of office on a bible or the koran?
Media Matters - Schlussel: Should Barack Hussein Obama be president "when we a 


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RE: [TMIC] FW: Unable to deliver your message

2008-02-06 Thread wim from holland

That happens to me sometimes when I make the choise Aswer All. Bug in the 
program somewere?
 
Wim from Holland
From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: Wed, 6 Feb 2008 18:48:11 
+Subject: [TMIC] FW: Unable to deliver your message  --GOD BLESS US ALL>
  -- Forwarded Message: --From: Yahoo! Groups <[EMAIL 
PROTECTED]>To: [EMAIL PROTECTED]: Unable to deliver your messageDate: Wed, 6 
Feb 2008 17:22:26 +>> > We are unable to deliver the message from <[EMAIL 
PROTECTED]>> to <[EMAIL PROTECTED]>.> > The email address used to send your 
message is not subscribed to this > group. If you are a member of this group, 
please be aware that you may > only send messages to this group using the email 
address(es) you have > registered with Yahoo! Groups.>   > If you would like to 
subscribe to this group:> 1. visit>
http://groups.yahoo.com/group/transversemyelitissupport/join> -OR-> 2. send 
email to [EMAIL PROTECTED]>   > For further assistance, please visit > 
http://help.yahoo.com/l/us/yahoo/groups/original/members/web/index.html   
--Doorgestuurd bericht in de bijlage--From: [EMAIL PROTECTED]: [EMAIL 
PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]: Re: [TMIC] Question - 
possible relasp?Date: Wed, 6 Feb 2008 17:18:11 +Candi, Don't wait call your 
neuro. Did you get a flu shot. I did and I almost died from it with pain and 
memories of the first time I was hit. Please let us know what he says. 
Reacurrant TM is rare ,they say but I think my flu shot gave me mine back. I 
feel all the old tingling and pain. And I was fine before I took that shot. I 
won't take another one. Rick --GOD BLESS US ALL>  -- Original 
message --From: CANDISKALLEY <[EMAIL 
PROTECTED]>>> > > I'm not sure what is going on but for the past 3 days the 
pain in my back has > been horrible - no matter what I do.  The usual doesn't 
seem to be helping. > > I've also noticed more tingling in my left hand/arm 
than usual.  I've also been > terribly tired - sleeping 13+ hours at night 
plus falling asleep in the > afternoons.  I haven't felt like this for a long 
time.  Up untill last > weekend, I was feeling "good" and other than shopping 
nothing more strenious to > make me feel like this.  > > Is this an intication 
that I'm having a relasp or on the verge of a relasp?  > Should I get on the 
phone with my neuro? > > Candy K. > >   
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RE: [TMIC] Question - possible relasp?

2008-02-05 Thread wim from holland

Can also mean that on the good day, while shopping you get a biginning cold or 
felt so good that you did too much that day. Especialy outside they feel good 
during the cold, the sensativity is less. Can take a few days before you are 
recovered from a good day, I had that experience before. Sometimes it took me a 
week. Keep the legs warm and hope for the best, when it stays you can discus it 
with the neuro.
 
Wim from Holland


Date: Tue, 5 Feb 2008 15:00:25 -0500From: [EMAIL PROTECTED]: [EMAIL PROTECTED]; 
[EMAIL PROTECTED]: [TMIC] Question - possible relasp?



I'm not sure what is going on but for the past 3 days the pain in my back has 
been horrible - no matter what I do.  The usual doesn't seem to be helping.
I've also noticed more tingling in my left hand/arm than usual.  I've also been 
terribly tired - sleeping 13+ hours at night plus falling asleep in the 
afternoons.  I haven't felt like this for a long time.  Up untill last weekend, 
I was feeling "good" and other than shopping nothing more strenious to make me 
feel like this.  
Is this an intication that I'm having a relasp or on the verge of a relasp?  
Should I get on the phone with my neuro?
Candy K.
 
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RE: [TMIC] OT new MS drug

2008-02-04 Thread wim from holland

Thanks Kevin, this is te news we are waiting for. A drug wich tell the immune 
system that our own body is no longer the enemy.
 
Wim from Holland
 
 > Date: Sun, 3 Feb 2008 21:03:14 -0500> From: [EMAIL PROTECTED]> To: 
 > Tmic-list@eskimo.com> Subject: [TMIC] OT new MS drug> > > > 
 > http://www.ft.com/cms/s/0/a5e43474-cec0-11dc-877a-77b07658.html?nclick_check=1>
 >  
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RE: [TMIC] OT - Tax rebates

2008-01-24 Thread wim from holland

The fact that 56 million people has no medicalcare at all, place the US on a 
place in the top 100, around 37. Above you are third world countries, who maybe 
does not have the quality, but there is enough medical care for everyone.


Date: Thu, 24 Jan 2008 17:20:44 -0500From: [EMAIL PROTECTED]: [EMAIL 
PROTECTED]; [EMAIL PROTECTED]: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL 
PROTECTED]; [EMAIL PROTECTED]: [TMIC] OT - Tax rebates



If I understand the NEW tax rebates properly, you must be working and pay taxes 
to get a rebate.
OK, if you are working or you're blind - you get help from the government.  I 
worked for 40 years - true only part time thru high school and college  and 3 
mo. off to have my daughter total of 4 1/2 yrs max  - but I still worked 40 - 
80 hrs per week for 36+ years.
Now when I, as with all who are disabled, and could use a break from the 
government, we don't get counted.  GREAT COUNTRY we live in!  Help those that 
are able to help themselves!
Sorry but I read what 2nd and 3rd world countries are doing for health care and 
medical breakthroughs - and then the GREAT USA wants to go around telling 
countries/governments how to run their business.   Out of 11 countries with 
less deaths and greatest medical care per capital - guess where the USA was?  
Not at the top as most of us would like to think OR our government would like 
us to believe, but #11 WAY BELOW #10 this as ranked by USA TODAY or TIMES 
magazine I forget which one I was reading!
Sorry- I hate to rant but I really am feeling cheated by nature and my 
government!
Candy K.
 
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[TMIC] OT: voting in Holland for USA

2008-01-10 Thread wim from holland

Because we have here a lot of political parties, there are in the internet 
voting helps. Simpel system. The most important issues you can agree or not 
agree or dont know. At the end you can point at what is most important for you. 
Now there is also one on the issues for the USA. Typical is here that Hillary 
Clinton (40%) is the most popular as person, second Obama(37%). Republicans 
scores all very low here, All together 12%. 
 
After filling in the voting helplist, John Edwards is the winner, second is 
Clinton. These are only at the issues. Those were about Iraq, Iran, death 
panalty, health system, eldery payment, taxes, polution and some more.
 
Interest? Look on 
http://www.eenvandaag.nl/index.php?module=PX_Story&type=user&func=view&cid=464
There is also an Enlish version. Subjects are chosen by Dutch, what here should 
be the hot items.
 
Wim from Holland 
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RE: [TMIC] Angry here.

2008-01-04 Thread wim from holland

Grace  Good for you to come out with this problem.I'll try to remember and next 
time in answers use a larger font, so all of the members with the same problem 
can read the letters.
 
 
I have a special puter glasses for this problem, what do for me the job, but we 
are not all the same.
 Wim from Holland


Date: Fri, 4 Jan 2008 12:08:19 -0500From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: 
[TMIC] Angry here.
Hi Guys,
 
You know, there are several of us who need to write in caps, due to severe 
vision problems.  Though I don't use caps, I do use large font.  I have to, in 
order to see what I am writing.  Recently, one of the long term members of the 
TMIC, who is also a personal friend of mine, received an extremely obnoxious 
email regarding this.  (Complete with *language*.)  You know, this little group 
is for the most part---wonderful.  It was the very first site that I discovered 
at the time of my NMO diagnosis, and I have been made to feel at home here.  
It's like having a virtual *family*.  This unnecessary haranguing, of a long 
standing member, has left a very bad taste in my mouth.  Think of it this way:  
In the big scheme of things, say, ten years from now, is it really going to 
*matter* if someone had to use caps in order to communicate?   I know that I, 
for one, will certainly not be thinking about something as trivial as that 
whenever I prepare to meet my Maker.  Let's put it to rest, okaye? 
 
Grace 
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[TMIC] "virus: Essa voce precisa VER"

2007-12-21 Thread wim from holland

Do not open this card. It looks like a card someone send you. But it is a virus 
spread by your adresbook to all of them.
 
Did you open it. Find the solution on the internet en spread it to all of your 
adresbook.
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RE: [TMIC] RE: tmic-digest Digest V2007 #341

2007-12-17 Thread wim from holland

Hey Cookie, what is wrong with the rest of the world, you are on email, just 
two seconds away from my door!
 
Wim from Holland


From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: Mon, 17 Dec 2007 09:48:12 
-0700Subject: [TMIC] RE: tmic-digest Digest V2007 #341




I’d love to be in touch with anyone who lives in Arizona….Cookie
 

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Saturday, December 15, 
2007 10:40 AMTo: [EMAIL PROTECTED]: tmic-digest Digest V2007 #341
 
 
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[TMIC] morning cramps

2007-11-30 Thread wim from holland

group
 
since the summer i have no cramps in my legs anymore. How come?
 
Sometimes when I took a painkiller or alcohol, the next day in the morning it 
went a little better as normal. I figgered out, could be that the blood is 
thinner a little and that could be the reason. because of alcohol problems in 
the past and not want to take painkillers every day, I read that is was also a 
side effect of fish-oil capsules. Used them, 1000mg a day for two month. I did 
not work.
 
After stopping I noticed that my morning leg cramps came back. When the cramps 
slowly got away, I did not think about it. But when they came back after I 
while I connect it with the fish-oil. And indeed, after taking them in a few 
days it was gone. No cramps anymore.
 
But One WARNING! It makes your bowl a lot harder. So I had to double the dose 
of my Lactulose. It worked. It seems to be also good for the hart and a lot of 
other matters. 
 
Wim from Holland.
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RE: [TMIC] Question

2007-11-28 Thread wim from holland

I and a lot other, longer with this club, do not read every letter, just quick 
the headlines. I pick out what interests me and letter with help or question. 
 
Suggestion: send it again to the group, not to single persons.
 
Wim from Holland.


Date: Mon, 26 Nov 2007 09:13:42 -0600From: [EMAIL PROTECTED]: [EMAIL 
PROTECTED]: [TMIC] Question
















Good Morning, Trudy!  I'm actually testing something...
I've had this site for a few months now and have e-mailed to several different 
people, often asking questions but seem to not be getting any response.  I'm 
wondering if there is a problem with my e-mail or if I'm not 'signed' up 
correctly. Are my responses and questions even being viewed by other TM people 
which is what I was hoping for when I signed up?  Any suggestions?
 
Jeanne in Dayton, WA  








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RE: [TMIC] PLEASE HELP!!

2007-11-28 Thread wim from holland

Keep calm, no panic dear.
 
It is all in the picture of TM, double vision, blurr vision. There are a lot 
letters about it in the archives. Bottum line is, see that you get a pair 
glasses that will bring the problem back to normal. Start with cheap glasses, 
things change in the beginning. If you are also above 40, join the club.
 
Wim from Holland.
 
 


Date: Tue, 27 Nov 2007 15:41:08 -0800From: [EMAIL PROTECTED]: [EMAIL 
PROTECTED]: [TMIC] PLEASE HELP!!
I am so frustrated! i can not find 1 doctor who knows whats wrong with my 
eyes.  ive been to an ENT, i sent my records to an nuero-opth and also 
neurologists no ones.  i need HELP! its keeping me from walking...PLEASE 
HELP ME!!! I DONT KNO WAT TO DO.
 
The problem ls that my eyes move up and down and i also have double 
visionive got an MRI  of the brain and so came back normal...


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RE: [TMIC] Sicko

2007-11-19 Thread wim from holland

In Holland, there is also the waiting problem. But there is always a way out 
here. We always can go to Belgium or Germany who do not have these problems. 
That is not a problem wich lies in the medical care, but a gouverment who does 
not do the right things. Like in France and England. There is a hope discussion 
about it. Holland is now lead by right wing parties. Hope in the next elections 
the socialists have the majority, then it will get better, like it was ten 
years ago. Here the right wing only looks at the money, while the left wing 
looks for the care and the people. All the stories told in your country about 
socialism is not the way we see it. It is more how christianity should be in 
practic. The strong looks after the week. They do not hate rich people, they 
hate poverty in a rich world.


From: [EMAIL PROTECTED]: Mon, 19 Nov 2007 08:03:04 -0500Subject: Re: [TMIC] 
SickoTo: [EMAIL PROTECTED]; tmic-list@eskimo.com


I haven't seen the film, but from what I have heard about national socialized 
medicine, I'm not for that, either. Someone just posted a few weeks ago some 
facts about Canadian health care with its waits and all. I know one local 
family from Canada who had a family member there die while waiting for 
treatment for an easily fixable problem. I don't know what the answer to the 
health care crisis is, but I don't think that's it.
 
Barbara H.
http://barbarah.wordpress.com/
 
In a message dated 11/18/2007 7:16:14 PM Eastern Standard Time, [EMAIL 
PROTECTED] writes:
Group I have seen the film Sicko from Michael More. A part of the film was in 
Europe, France and England. I know the systems there, the basic what he showed 
in the film was right. But it is not that way in all the countries, but the 
basic in Europe is the same. In principal, everyone is insured, sick or 
healthy. Part of the social system. As Dutch, my insurance works also in Spain 
and other countries. Fact is also, (what was not in the movie) when I become in 
an hospital in a cheaper country, my insurance forced me to stay there for the 
complete treatment and let me come back when I am completely done. What he 
showed from the States. The samples he showed were picked out, to show how bad 
it is. I can look through that. BBut how do you think about the movie, or is it 
not in the cinema's there. Who has seen it (it is on the internet to download, 
in the newsgroups) and what are the reactions about you from the States? Wim 
from Holland

 


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[TMIC] Sicko

2007-11-18 Thread wim from holland
Group
 
I have seen the film Sicko from Michael More. A part of the film was in Europe, 
France and England. I know the systems there, the basic what he showed in the 
film was right. But it is not that way in all the countries, but the basic in 
Europe is the same. In principal, everyone is insured, sick or healthy. Part of 
the social system. As Dutch, my insurance works also in Spain and other 
countries. Fact is also, (what was not in the movie) when I become in an 
hospital in a cheaper country, my insurance forced me to stay there for the 
complete treatment and let me come back when I am completely done.
 
What he showed from the States. The samples he showed were picked out, to show 
how bad it is. I can look through that. BBut how do you think about the movie, 
or is it not in the cinema's there. Who has seen it (it is on the internet to 
download, in the newsgroups) and what are the reactions about you from the 
States?
 
Wim from Holland
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RE: [TMIC] MRI's

2007-11-18 Thread wim from holland
With contrast it shows the bloodstream, at least the large vaines. To show the 
small vaines it is an complete other test. I had it too, that is more like an 
operation, because they open an vaine and with a smal catheter they bring the 
contrast fluid in place. All 22 backbones, left and right. All 44 pictures did 
not find the course.


Date: Thu, 15 Nov 2007 13:26:33 -0800From: [EMAIL PROTECTED]: [EMAIL 
PROTECTED]: [TMIC] MRI'sI always wondered what the difference between an MRI 
with contrast and w/o contrast is...why do they do both? please explain...


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Re: [TMIC] Stem cells

2007-01-12 Thread wim from holland
Are those who are against, the same who will send out 21000 men to a 
hopeless war, based on lies?


Wim from Holland



From: "bobby jim hijar" <[EMAIL PROTECTED]>
To: "Sandy Heidel" <[EMAIL PROTECTED]>, "Gunny" 
<[EMAIL PROTECTED]>,

Subject: Re: [TMIC] Stem cells
Date: Thu, 11 Jan 2007 19:40:22 -0600

In my not so humble opinion re this stem cell controversy, the only problem 
comes from those whose religious beliefs prevent them from looking at 
medical advances right in the eye and taking advantage of them.  So let 
those folks be.


As for me, them crazy theosalopians will never stand in the way of my 
trying to get the best medical treatments for my gimped missus.So 
there.


Bobberino in redneck Elvisland
-
From: "Sandy Heidel" <[EMAIL PROTECTED]>
To: "Gunny" <[EMAIL PROTECTED]>;
Sent: Thursday, January 11, 2007 3:40 PM
Subject: Re: [TMIC] Stem cells


> Ya know, you put this together with the blood and cells taken from the
> umbilical cords and we might just  find a clear path through this
> controversy.   Sometimes this stuff makes discovering electricity look 
easy.

> Sandy
>
> - Original Message -
> From: "Gunny" <[EMAIL PROTECTED]> To: 
> Sent: Thursday, January 11, 2007 2:03 PM
> Subject: [TMIC] Stem cells
> > I don't know how many of you have heard but, the stem cells needed for
> > our particular condition have been found in embryonic fluid. No matter
> > what happens about the embryonic cells, the one found in the fluid can 
be

> > used. Were well on our way.
> >
> > Gunny


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[TMIC] slow

2007-01-10 Thread wim from holland
Maybe it is a good sign. Ten years ago there wre a bunch of people dayly on 
the net with all kinds of questions. The good sign can be that doctors now 
know so much more over TM that the people have the most answers they need 
already for TM.


The fact that they don't need this group to communicate about this subject 
and with there problems, can mean that they have people around them for 
support.


Internet is faster, people have learned to Google, more info is available,

still I have my doubts.....

Wim from Holland

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[TMIC] Happy 007

2006-12-28 Thread wim from holland
For all you people all over the world, happy New Year and all the best for 
007


As we say in Holland:

Gelukkig Nieuwjaar
en de
beste wensen voor 007

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RE: [TMIC] (no subject)

2006-10-12 Thread wim from holland
Gunny, you can't mean that after all these years. I know the questions and 
subject are the same year after year. Nothing new is coming to us, but still 
after all these years I look in to it so now and then.


But if you really will end it, visit the the TMIC page of the TMA and there 
is the link tyhat will help you .


Wim from Holland.


From: [EMAIL PROTECTED]
To: Tmic-list@eskimo.com
Subject: [TMIC] (no subject)
Date: Tue, 10 Oct 2006 16:02:19 EDT

How the hell do you unsubscribe from this damn list?


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RE: [TMIC] Check out Message not related to TM but friends

2006-09-29 Thread wim from holland

Thanks, I was looking for that kind of animated gifs for another site.

Wim from Holland



From: [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Subject: [TMIC] Check out Message  not related to TM but friends
Date: Thu, 28 Sep 2006 23:13:02 EDT

_Click  here: Message_
(http://www.frontiernet.net/~jimdandy/specials/friend/friend.html)


ann in virginia


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[TMIC] omega 3

2006-08-12 Thread wim from holland

Group

Since a few month I use, Omega 3 (fish oil), 1000mg a day. For me are the 
benefids, less stiffer in the legs and ancles, also less or not painfull 
anymore. Less awareness of cold in the legs (draft and so on). Those pills 
helps for me. I have TM for more than 9 years now.


Negative: The bowl is some harder and slower, and I have the idear that my 
body smell is changed, but not confermed by my wife. Just put some more 
stuff on my body.


Bought it by the pharmasist, €15 for 100 pills of 1000mg, his own brand, the 
one on internet were almost twice the price.


Wim from Holland.

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RE: [TMIC] Diabetes Vs TM

2006-06-26 Thread wim from holland
There is no relation in the illness, only in the treatment. Non diabetes can 
be treated with high doses of prednison, while diabetes needs other kinds of 
treatments wich are not so very helpfull.


Wim from Holland



From: Pymed <[EMAIL PROTECTED]>
To: tmic-list@eskimo.com
Subject: [TMIC] Diabetes Vs TM
Date: Sun, 18 Jun 2006 15:43:06 -0700 (PDT)


Hello everybody!!, I have been diabetica for 30 years,
and in June of the 2005 I was diagnosed with myelitis
transverse.
I want to know, That relation exists between the
diabetes and mielitis.?

I;m sorry for my english, I'm just speak spanish.

Dalida Ortiz de Garcia
C5 - T10 TM
Dominican Republic



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[TMIC] stunk by the bees

2006-05-30 Thread wim from holland


Some talked about stunked by bees, needle picks etc. My experience is that 
when I keep my legs warm, just like grandpa with a blanket over my legs, The 
spasm schocks and needle picks are much lesser then when I don't do this.


During the day, outside the house is nice , but we move too less and the 
legs are couling down. For my upper part of the body the wind feels nice, 
but my legs can't have it. In the evening I have to avoid draft and have my 
legs covered with a blanket. Still ware also termic undertrousers.


That is what helped me, have TM now for 9 years this month.

Wim

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[TMIC] Tom Carr

2006-02-10 Thread wim from holland
The time we got the message about Tom, I asked his wife then for some more 
information. She wrote back to me last week. This is a part of the letter 
with the information we were curious about.



I am Tom's wife of just two months we married on Oct 24th and I lost him 
on
December 20th.  This has been hard for me as I did and didn't see it coming. 
I
loved him and will share about him if you wish me to? How long did you know 
him?

If you don't mind my asking and how did you meet? I assume on line... It has
been like I got to know one man, fell in love and then he died and now I am
finding out about how much I didn't know about him... It has been a very 
rough
road. I was married before for 26 years... I expected to live a long happy 
life

with Tom.

If I sound lost I am... so sorry but I sort of am a bit lost... This is just 
so

hard. I do want to thank you for writing me back and am looking forward to
writing more in the future.

Tom was survived by three children. A daughter in college who will graduate 
in

April, a 16 year old son and 11 year old daughter. They all live with their
grandparents now. He was also survived by a sister and two brothers. He was
strong in Masons and loved many people. He was a giver and did all he could 
for

those around him. >


Wim from Holland

Some quotes to hang on:
When in the morning the sun rises, it is also ment for you!
Enjoy the good days all day long.
Bad days only last 24 hours.

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RE: [TMIC] loss of bowel control

2006-01-24 Thread wim from holland
Had the same problem. Then it went too fast but most of the times too slow. 
I ended in hospital for a few days. From there on I used lactulose dayly to 
keep it soft, and had bowl every day. When I did not manage to push it out, 
me was recomment, try to cauf it out. That works for me. Every day I see to 
get it out in time and accident hardly happened after that time.




Wim from Holland

Some quotes to hang on:
When in the morning the sun rises, it is also ment for you!
Enjoy the good days all day long.
Bad days only last 24 hours.






From: Sue Zieke <[EMAIL PROTECTED]>
To: transverse myelitis club 
Subject: [TMIC] loss of bowel control
Date: Sat, 21 Jan 2006 17:23:34 -0600

any suggestions for embarrassing loss of bowel control?  it doesn't happen 
that often, every 2-3 weeks but is s embarrassing.  please help.  sue




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RE: [TMIC] Foods?

2006-01-14 Thread wim from holland
Not just for TM group, better for everyone to use organic food. Everrything 
what is added in food to let it grow faster, make it brighter or colorfull 
you get it also in your body. And we did not mentioned pestisides yet


When you grow your own fruit end vetchtebles, more work but much better 
tast.




Wim from Holland

Some quotes to hang on:
When in the morning the sun rises, it is also ment for you!
Enjoy the good days all day long.
Bad days only last 24 hours.






From: "Krissy" <[EMAIL PROTECTED]>
To: "TM List" 
Subject: [TMIC] Foods?
Date: Sat, 14 Jan 2006 17:41:02 -0500

  ­
  ­ has anyone heard this?:
  a.. remove any toothpaste that contains fluoride
  a.. minimal red meat
  a.. EXTREMELY important is to try to ingest ONLY organic foods, 
including free-range chickens, etc



  -:¦:- )) Blessed Be! (( -:¦:- ­
  ­~Lady K/Krissy~­
  ­ ­


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[TMIC] birthdays

2005-11-30 Thread wim from holland


For those who do the birthday dates. It is still dec 3 1953, but my email 
adres is changed.



Wim from Holland

Some quotes to hang on:
When in the morning the sun rises, it is also ment for you!
Enjoy the good days all day long.
Bad days only last 24 hours.

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RE: [TMIC] Flu shot anyone?

2005-11-09 Thread wim from holland

As a nurse, have a lot of contact with people, I can only say ..DO IT.

After having mine, the first time I felt bad a few days, but later a noticed 
that I had a better resistence against cold and other minor things that will 
come over yuo in the cold and wet times of year. Better resistence between 
the sneesing and caughing people.




Wim from Holland

Some quotes to hang on:
When in the morning the sun rises, it is also ment for you!
Enjoy the good days all day long.
Bad days only last 24 hours.






From: "Bobby Piper" <[EMAIL PROTECTED]>
To: 
Subject: [TMIC] Flu shot anyone?
Date: Tue, 8 Nov 2005 22:23:30 -0600

I want to know who is getting the flu shot? I have mixed feelings about 
this. Last year I was just out of the hospital and steroided to the max and 
was told I did'nt need to take it. I am a walking wounded, back at work as 
a hospice nurse now. I am afraid not to get for fear of the flu  and afraid 
of my immune system going nuts either way. Not been dx'd with MS but that 
is still looming out there as a possibility any input is appreciated. Also, 
does anyone have "sinking" spells, all at once it just feels as though all 
energy has drained not sleepy just wiped out? today I had this happen and 
my feet were tingling and legs felt terribly waek almost trembly! Am I 
weird or what?


Becky


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[TMIC] improvement also

2005-11-08 Thread wim from holland



After more than 8 years, there is a little improvement in the bladder. Still 
have to cath 3 times a day, but the feeling has became stronger and notice 
pressure better in between. Manage also sitting to urinate, little by 
little, pusing on the bladder, but also feel after that a relieve again. 
That was the most greatest lost for me, the pleasent feeling.


I accept that to much is left after going to the toilet, and thats why the 
self-cath 3 times. But when visiting people never taking them with me 
anymore, fot those days I can trust on doing it well enough. Think I can get 
80% out every time.


Wim from Holland

Some quotes to hang on:
When in the morning the sun rises, it is also ment for you!
Enjoy the good days all day long.
Bad days only last 24 hours.

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RE: [TMIC] Today with TM.....

2005-10-17 Thread wim from holland

OK Grace

finished nagging., Ok your gymnastics went wrong this morning

Now after all, also a kick under your but!

The Grace on the outside has a little bit changed. (yes a little bit). 
Steriods are not for ever and there are enought way to loose that weight 
again. What you can do in between, see that it don't get worse. Keep your 
condition as good as possible, now that you use the steriods. Don't look 
only to the negative side of it, that will come without asking. Look to the 
benefits now. Cheer up so that vereyone around you see a chearfull Grace, 
wich you are on the inside.


See, the inside Grace is still the same, you are still the same person. See 
that what you loose on the outside, balance it with the inside. That will 
have its affect on the people around you and help you to improof your 
condition and looks on the outside. And within a no time you will see that 
middle aged fox again.


Dry your tears, take a deepbreath and start again. Don't ask a mirror for 
help, they are mean. They show me gray hears, and an old face. While I feel 
me still young and sexy. ( I am a male from around 50). OK, I am the only 
who sees it this way in our house but as long I beleive in it...


There are no photo's of me on the net, they only can show a gray guy with an 
old face in a wheelchair, he only has my name




Wim from Holland

Some quotes to hang on:
When in the morning the sun rises, it is also ment for you!
Enjoy the good days all day long.
Bad days only last 24 hours.






From: "Grace" <[EMAIL PROTECTED]>
To: "TMIC LIST" 
Subject: [TMIC] Today with TM.
Date: Sun, 16 Oct 2005 21:00:59 -0400

AAARGH!  The day started off semi bad.  Was walking through my bedroom and 
my toe happened to touch---just touch---a folded pair of blue jean shorts 
that I had lain on my floor.  The end result being that I almost tripped 
and went into a pinwheel--old arms a flyin'---motion across my bedroom 
floor, to barely make it to the safety of the bed where I landed in a very 
unladylike heap.  Next, it was off the the bathroom to attempt the morning 
*pee*.  Still being half asleep, I very undecorously flopped down onto the 
commode, only to miss it by *half a  numb butt cheek*,  doing an 
unceremonious roll into the wall and toilet paper holderbut (No pun 
intended.) I still managed to stay seated.  The bath went well.  Getting 
dressed was another shock.  Since beginning the steroids I've gained 
weight, but not a huge amount.  Still, my underwear (I wear the old 
fashioned *Bubba Briefs*) should fitRight?  Wrong!  The danged things 
curl up in a ball and sit right under my bellyI look and feel like 
Homer Simpson.  Viewing this in my full length bedroom mirror was 
absolutely mortifying.  There I was in all of my glory, big ol' belly 
sticking out like a five month pregnancy, bird legs with knobby knees, a 
puffy full moon face AND the worst part...the beginnings of a moustache 
on my upper lip.  I've also lately discovered just the hint of beginning 
sideburns.  I'm so sad.  Before TM/Devic's I was considered to be a middle 
aged fox, but nowOH MY!


Grace :-(


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Re: [TMIC] sequel(TMIC)

2005-10-16 Thread wim from holland

you wrote:
I asked my new neuro if I should be checked for MS (TMer since 2001)this 
year and he said I was too old (I'm 63) to get MS.  He also said there was 
no need for me to come for annual checkups!  Is that true?  He was a jerk 
and I'm looking for a new doctor.


Peachy in TN

In my knowledge is indeed very rare to develop MS when you are at older age. 
When it will happen, the devopment because the age is probenly very slow. It 
always will be the question, is it hardening the tissue caused by TM, or is 
it MS. In your first chech-up in 2001 is also looked into this matter. TM 
can grow out to a MS, but normaly this will happen in the first 5 years, 
after that you can speak of a study TM with no large ups and downs anymore. 
TM can always stays ligth progressive.




Wim from Holland

Some quotes to hang on:
When in the morning the sun rises, it is also ment for you!
Enjoy the good days all day long.
Bad days only last 24 hours.

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Nieuw op MSN Messenger 7.5: Dynamische achtergronden 
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