Re: [TMIC] Friends
Hi Patti I think you've probably got it just right. Like you, I do try to answer with a thank you when told I look good, it certainly beats being told you look bad!! Iris Sent from my iPad On 12 Jul 2013, at 01:19, Pat Voorheis wrote: > I also answer "fine" when asked how I am and I gave up explaining much about > TM. I've told people it's a interesting illness that's impossible to > understand, I have said that I'm in constant pain that I take meds for, but I > try hard not to dwell on it. I might say there is a lot of info that they can > do a google search on if they would like to write down the correct spelling > of transverse myelitis. A couple people wrote it down. Most of my answers > are one liners. > > However, unlike the other responses I like it when told, "Well, you look > good." I answer with a genuine thank you. I enjoyed compliments when I > worked and really, really miss them. .and I really,really don't want to > look as bad as I feel, > > Patti - Michigan > > On Jul 9, 2013, at 2:54 AM, "I.WHIDDETT" wrote: > >> She's history Janice! >> >> To the group - I seem to have a problem with my incoming mail, Janice's >> being all I've received for 2 days, so apologies to anyone who's not had a >> reply. >> >> Regards >> Iris >> >> >> >> >> Sent from my iPad >> >> On 8 Jul 2013, at 22:18, "Janice Nichols" wrote: >> >>> Iris, your ex-friend was a jerk.Just stay with the good ones. >>> Janice >>> >>> >>> -Original Message- From: I.WHIDDETT >>> Sent: Sunday, July 07, 2013 1:22 AM >>> To: Susan Kleinz >>> Cc: nmacleo...@yahoo.co.uk ; >>> Subject: Re: [TMIC] Friends >>> >>> Susan, you can't win. When I was frustrated enough to let my feelings show >>> with a particular "friend" the patronising response was that "people change >>> when they're ill"..!!! >>> >>> Iris >>> >>> Sent from my iPad >>> >>> On 6 Jul 2013, at 20:28, Susan Kleinz wrote: >>> >>>> amen Iris. I do the exact same thing. I also hate being told I look >>>> good, when I am in excruciating pain. This ™ has ruined my life, and I'm >>>> pissed! >>>> On Jul 6, 2013, at 6:06 AM, I.WHIDDETT wrote: >>>> >>>>> >>>>> Nikki, just been reading Dalton's words and I totally agree with his >>>>> response to "how are you". I always say "fine". This is partly for the >>>>> reason he gives but also because I learnt early on that it is impossible >>>>> for any non- TMer to understand our symptoms - certainly unlike anything >>>>> they will ever have experienced - and I'm all out of patience in trying >>>>> to explain. By far the most aggravating question to be asked is "Are you >>>>> better now?"! >>>>> >>>>> Iris >>
Re: [TMIC] Friends
I also answer "fine" when asked how I am and I gave up explaining much about TM. I've told people it's a interesting illness that's impossible to understand, I have said that I'm in constant pain that I take meds for, but I try hard not to dwell on it. I might say there is a lot of info that they can do a google search on if they would like to write down the correct spelling of transverse myelitis. A couple people wrote it down. Most of my answers are one liners. However, unlike the other responses I like it when told, "Well, you look good." I answer with a genuine thank you. I enjoyed compliments when I worked and really, really miss them. .and I really,really don't want to look as bad as I feel, Patti - Michigan On Jul 9, 2013, at 2:54 AM, "I.WHIDDETT" wrote: > She's history Janice! > > To the group - I seem to have a problem with my incoming mail, Janice's being > all I've received for 2 days, so apologies to anyone who's not had a reply. > > Regards > Iris > > > > > Sent from my iPad > > On 8 Jul 2013, at 22:18, "Janice Nichols" wrote: > >> Iris, your ex-friend was a jerk.Just stay with the good ones. >> Janice >> >> >> -Original Message- From: I.WHIDDETT >> Sent: Sunday, July 07, 2013 1:22 AM >> To: Susan Kleinz >> Cc: nmacleo...@yahoo.co.uk ; >> Subject: Re: [TMIC] Friends >> >> Susan, you can't win. When I was frustrated enough to let my feelings show >> with a particular "friend" the patronising response was that "people change >> when they're ill"..!!! >> >> Iris >> >> Sent from my iPad >> >> On 6 Jul 2013, at 20:28, Susan Kleinz wrote: >> >>> amen Iris. I do the exact same thing. I also hate being told I look good, >>> when I am in excruciating pain. This ™ has ruined my life, and I'm pissed! >>> On Jul 6, 2013, at 6:06 AM, I.WHIDDETT wrote: >>> >>>> >>>> Nikki, just been reading Dalton's words and I totally agree with his >>>> response to "how are you". I always say "fine". This is partly for the >>>> reason he gives but also because I learnt early on that it is impossible >>>> for any non- TMer to understand our symptoms - certainly unlike anything >>>> they will ever have experienced - and I'm all out of patience in trying to >>>> explain. By far the most aggravating question to be asked is "Are you >>>> better now?"! >>>> >>>> Iris >
Re: [TMIC] Friends
She's history Janice! To the group - I seem to have a problem with my incoming mail, Janice's being all I've received for 2 days, so apologies to anyone who's not had a reply. Regards Iris Sent from my iPad On 8 Jul 2013, at 22:18, "Janice Nichols" wrote: > Iris, your ex-friend was a jerk.Just stay with the good ones. > Janice > > > -Original Message- From: I.WHIDDETT > Sent: Sunday, July 07, 2013 1:22 AM > To: Susan Kleinz > Cc: nmacleo...@yahoo.co.uk ; > Subject: Re: [TMIC] Friends > > Susan, you can't win. When I was frustrated enough to let my feelings show > with a particular "friend" the patronising response was that "people change > when they're ill"..!!! > > Iris > > Sent from my iPad > > On 6 Jul 2013, at 20:28, Susan Kleinz wrote: > >> amen Iris. I do the exact same thing. I also hate being told I look good, >> when I am in excruciating pain. This ™ has ruined my life, and I'm pissed! >> On Jul 6, 2013, at 6:06 AM, I.WHIDDETT wrote: >> >>> >>> Nikki, just been reading Dalton's words and I totally agree with his >>> response to "how are you". I always say "fine". This is partly for the >>> reason he gives but also because I learnt early on that it is impossible >>> for any non- TMer to understand our symptoms - certainly unlike anything >>> they will ever have experienced - and I'm all out of patience in trying to >>> explain. By far the most aggravating question to be asked is "Are you >>> better now?"! >>> >>> Iris >
Re: [TMIC] Friends
Iris, your ex-friend was a jerk.Just stay with the good ones. Janice -Original Message- From: I.WHIDDETT Sent: Sunday, July 07, 2013 1:22 AM To: Susan Kleinz Cc: nmacleo...@yahoo.co.uk ; Subject: Re: [TMIC] Friends Susan, you can't win. When I was frustrated enough to let my feelings show with a particular "friend" the patronising response was that "people change when they're ill"..!!! Iris Sent from my iPad On 6 Jul 2013, at 20:28, Susan Kleinz wrote: amen Iris. I do the exact same thing. I also hate being told I look good, when I am in excruciating pain. This ™ has ruined my life, and I'm pissed! On Jul 6, 2013, at 6:06 AM, I.WHIDDETT wrote: Nikki, just been reading Dalton's words and I totally agree with his response to "how are you". I always say "fine". This is partly for the reason he gives but also because I learnt early on that it is impossible for any non- TMer to understand our symptoms - certainly unlike anything they will ever have experienced - and I'm all out of patience in trying to explain. By far the most aggravating question to be asked is "Are you better now?"! Iris
Re: [TMIC] Friends
Nikki, you are right on!! Janice -Original Message- From: I.WHIDDETT Sent: Saturday, July 06, 2013 8:06 AM To: nmacleo...@yahoo.co.uk Cc: Subject: [TMIC] Friends Nikki, just been reading Dalton's words and I totally agree with his response to "how are you". I always say "fine". This is partly for the reason he gives but also because I learnt early on that it is impossible for any non- TMer to understand our symptoms - certainly unlike anything they will ever have experienced - and I'm all out of patience in trying to explain. By far the most aggravating question to be asked is "Are you better now?"! Iris
RE: [TMIC] Friends
Hi, You're right TM sucks and has ruined a big part of my life. It has been 5 years and I am still finding more things it has ruined (thinking about disability due to it getting harder to work full time and do anything else, but that is a whole can of worms). BUT it has not taken away my family or my hero of a husband. Still have some of my friends. Actually work has been great for keeping my busy and having a social life. I have some woodworking I'd like to do but between work and regular maintenance stuff I run out of energy and the pain gets too bad. My husband has taken over the daily chores so he is more worn out but keeps going. It hurts him very much to see me pushing to do small stuff around the house instead of living my lively active life. It's changed the whole dynamic of my home but we are still together going a day at a time. Pat I like your return "I am doing the best I can", it politely reminds them you have issues but you're dealing with them. Betty you are so right about finding something to do to pass the time. I can't tell you how many things have turned into "I can't go", everyday things like food store, pharmacy, Lowes. Then there are the "if I feel okay, then maybe", movies, eat out go over a friend's house. So yes it has taken a very big part of my life away but I guess I'm lucky because I have always pushed forward to find something else. There are times the pain and all gets me to a point where I say can't do it anymore, the next day or one after usually gets me going again especially if I can interact with someone. Find something to smile about, even if it's looking out your window at nature, kids, etc. A smile is what helps me keep going, so I can find more feel good smiles. Make it a great day, Deb From: Pat Cooley [mailto:patticoole...@gmail.com] Sent: Saturday, July 06, 2013 3:36 PM To: Susan Kleinz Cc: I.WHIDDETT; nmacleo...@yahoo.co.uk; Subject: Re: [TMIC] Friends I agree completely. My family and close friends know that I will never be cured and no longer ask those stupid questions. To people who don't have a clue and ask how I am doing, I always say "I am doing the best I can", and that usually shuts them up. On Sat, Jul 6, 2013 at 2:28 PM, Susan Kleinz wrote: amen Iris. I do the exact same thing. I also hate being told I look good, when I am in excruciating pain. This T has ruined my life, and I'm pissed! On Jul 6, 2013, at 6:06 AM, I.WHIDDETT wrote: > > Nikki, just been reading Dalton's words and I totally agree with his response to "how are you". I always say "fine". This is partly for the reason he gives but also because I learnt early on that it is impossible for any non- TMer to understand our symptoms - certainly unlike anything they will ever have experienced - and I'm all out of patience in trying to explain. By far the most aggravating question to be asked is "Are you better now?"! > > Iris > > >
Re: [TMIC] Friends
Susan, you can't win. When I was frustrated enough to let my feelings show with a particular "friend" the patronising response was that "people change when they're ill"..!!! Iris Sent from my iPad On 6 Jul 2013, at 20:28, Susan Kleinz wrote: > amen Iris. I do the exact same thing. I also hate being told I look good, > when I am in excruciating pain. This ™ has ruined my life, and I'm pissed! > On Jul 6, 2013, at 6:06 AM, I.WHIDDETT wrote: > >> >> Nikki, just been reading Dalton's words and I totally agree with his >> response to "how are you". I always say "fine". This is partly for the >> reason he gives but also because I learnt early on that it is impossible for >> any non- TMer to understand our symptoms - certainly unlike anything they >> will ever have experienced - and I'm all out of patience in trying to >> explain. By far the most aggravating question to be asked is "Are you >> better now?"! >> >> Iris >
Re: [TMIC] Friends
When they say you look good retort that no one is perfect. Original message From: Susan Kleinz Date: 07/06/2013 15:48 (GMT-05:00) To: Pat Cooley Cc: "I.WHIDDETT" ,nmacleo...@yahoo.co.uk,"" Subject: Re: [TMIC] Friends That's a good coice of words. I will try that! On Jul 6, 2013, at 12:35 PM, Pat Cooley wrote: I agree completely. My family and close friends know that I will never be cured and no longer ask those stupid questions. To people who don't have a clue and ask how I am doing, I always say "I am doing the best I can", and that usually shuts them up. On Sat, Jul 6, 2013 at 2:28 PM, Susan Kleinz wrote: amen Iris. I do the exact same thing. I also hate being told I look good, when I am in excruciating pain. This ™ has ruined my life, and I'm pissed! On Jul 6, 2013, at 6:06 AM, I.WHIDDETT wrote: > > Nikki, just been reading Dalton's words and I totally agree with his response > to "how are you". I always say "fine". This is partly for the reason he > gives but also because I learnt early on that it is impossible for any non- > TMer to understand our symptoms - certainly unlike anything they will ever > have experienced - and I'm all out of patience in trying to explain. By far > the most aggravating question to be asked is "Are you better now?"! > > Iris > > >
Re: [TMIC] Friends
That's a good coice of words. I will try that! On Jul 6, 2013, at 12:35 PM, Pat Cooley wrote: > I agree completely. My family and close friends know that I will never be > cured and no longer ask those stupid questions. To people who don't have a > clue and ask how I am doing, I always say "I am doing the best I can", and > that usually shuts them up. > > > On Sat, Jul 6, 2013 at 2:28 PM, Susan Kleinz wrote: > amen Iris. I do the exact same thing. I also hate being told I look good, > when I am in excruciating pain. This ™ has ruined my life, and I'm pissed! > On Jul 6, 2013, at 6:06 AM, I.WHIDDETT wrote: > > > > > Nikki, just been reading Dalton's words and I totally agree with his > > response to "how are you". I always say "fine". This is partly for the > > reason he gives but also because I learnt early on that it is impossible > > for any non- TMer to understand our symptoms - certainly unlike anything > > they will ever have experienced - and I'm all out of patience in trying to > > explain. By far the most aggravating question to be asked is "Are you > > better now?"! > > > > Iris > > > > > > > >
Re: [TMIC] Friends
I agree completely. My family and close friends know that I will never be cured and no longer ask those stupid questions. To people who don't have a clue and ask how I am doing, I always say "I am doing the best I can", and that usually shuts them up. On Sat, Jul 6, 2013 at 2:28 PM, Susan Kleinz wrote: > amen Iris. I do the exact same thing. I also hate being told I look > good, when I am in excruciating pain. This ™ has ruined my life, and I'm > pissed! > On Jul 6, 2013, at 6:06 AM, I.WHIDDETT wrote: > > > > > Nikki, just been reading Dalton's words and I totally agree with his > response to "how are you". I always say "fine". This is partly for the > reason he gives but also because I learnt early on that it is impossible > for any non- TMer to understand our symptoms - certainly unlike anything > they will ever have experienced - and I'm all out of patience in trying to > explain. By far the most aggravating question to be asked is "Are you > better now?"! > > > > Iris > > > > > > > >
Re: [TMIC] Friends
amen Iris. I do the exact same thing. I also hate being told I look good, when I am in excruciating pain. This ™ has ruined my life, and I'm pissed! On Jul 6, 2013, at 6:06 AM, I.WHIDDETT wrote: > > Nikki, just been reading Dalton's words and I totally agree with his response > to "how are you". I always say "fine". This is partly for the reason he > gives but also because I learnt early on that it is impossible for any non- > TMer to understand our symptoms - certainly unlike anything they will ever > have experienced - and I'm all out of patience in trying to explain. By far > the most aggravating question to be asked is "Are you better now?"! > > Iris > > >
[TMIC] Friends
Nikki, just been reading Dalton's words and I totally agree with his response to "how are you". I always say "fine". This is partly for the reason he gives but also because I learnt early on that it is impossible for any non- TMer to understand our symptoms - certainly unlike anything they will ever have experienced - and I'm all out of patience in trying to explain. By far the most aggravating question to be asked is "Are you better now?"! Iris
Re: [TMIC] FRIENDS OF CINDY MCLEROY........
please convey my wishes for her swift and thorough healing. Akua Cindy fractured her femur two weeks ago while transferring. She had an immediate surgery to place a rod. Last week, the wound became infected and another surgery was performed. She is in St. Jude Hospital in Fullerton, CA. She is totally immobile to give the best chance of healing, as well as on IV antibiotics. Am sure she would enjoy hearing from friends. Will keep the list updated as I get more information. Thoughts and prayers will be greatly appreciated. --
Re: [TMIC] FRIENDS OF CINDY MCLEROY........
Joan, Thanks for letting us know about Cindy. She's one who thinks of us before herself and we need to be kept up with her condition. She'll be in our thoughts and prayers!! Please let her know that we're thinking of her. Again, thanks for being Cindy's friend and keeping us in the loop. janh From: JOAN FINK To: tmic-list@eskimo.com Sent: Sun, December 26, 2010 11:35:48 PM Subject: [TMIC] FRIENDS OF CINDY MCLEROY Cindy fractured her femur two weeks ago while transferring. She had an immediate surgery to place a rod. Last week, the wound became infected and another surgery was performed. She is in St. Jude Hospital in Fullerton, CA. She is totally immobile to give the best chance of healing, as well as on IV antibiotics. Am sure she would enjoy hearing from friends. Will keep the list updated as I get more information. Thoughts and prayers will be greatly appreciated.
Re: [TMIC] FRIENDS OF CINDY MCLEROY........
I'm saddened to hear this and pray she has a speedy recovery and keeps her spirits up. Thanks for letting us know...Ella
Re: [TMIC] FRIENDS OF CINDY MCLEROY........
Joan, thank you so much for contacting us and would love updates on her. Janice PS For those who do not have Cindy’s email address, it is: cindymcle...@socal.rr.com From: JOAN FINK Sent: Sunday, December 26, 2010 11:35 PM To: tmic-list@eskimo.com Subject: [TMIC] FRIENDS OF CINDY MCLEROY Cindy fractured her femur two weeks ago while transferring. She had an immediate surgery to place a rod. Last week, the wound became infected and another surgery was performed. She is in St. Jude Hospital in Fullerton, CA. She is totally immobile to give the best chance of healing, as well as on IV antibiotics. Am sure she would enjoy hearing from friends. Will keep the list updated as I get more information. Thoughts and prayers will be greatly appreciated.
Re: [TMIC] FRIENDS OF CINDY MCLEROY........
Joan, thank you for letting us know that Cindy is in the hospital. I'm saddened to hear that she is having such a rough time. She is in my thoughts and prayers daily. I will pray for total healing. Linda C (Eagle, Idaho) - Original Message - From: JOAN FINK<mailto:mafi...@yahoo.com> To: tmic-list@eskimo.com<mailto:tmic-list@eskimo.com> Sent: Sunday, December 26, 2010 10:35 PM Subject: [TMIC] FRIENDS OF CINDY MCLEROY Cindy fractured her femur two weeks ago while transferring. She had an immediate surgery to place a rod. Last week, the wound became infected and another surgery was performed. She is in St. Jude Hospital in Fullerton, CA. She is totally immobile to give the best chance of healing, as well as on IV antibiotics. Am sure she would enjoy hearing from friends. Will keep the list updated as I get more information. Thoughts and prayers will be greatly appreciated.
Re: [TMIC] FRIENDS OF CINDY MCLEROY........
We shall pray for her comfort and quick recovery. Dalton From: JOAN FINK Date: Sun, 26 Dec 2010 21:35:48 -0800 (PST) To: Subject: [TMIC] FRIENDS OF CINDY MCLEROY Resent-From: Resent-Date: Sun, 26 Dec 2010 21:35:49 -0800 Cindy fractured her femur two weeks ago while transferring. She had an immediate surgery to place a rod. Last week, the wound became infected and another surgery was performed. She is in St. Jude Hospital in Fullerton, CA. She is totally immobile to give the best chance of healing, as well as on IV antibiotics. Am sure she would enjoy hearing from friends. Will keep the list updated as I get more information. Thoughts and prayers will be greatly appreciated.
Re: [TMIC] FRIENDS OF CINDY MCLEROY........
it is hard enough dealing with Holidays in any condition other than healthy. Tell Cindy she is in our prayers and thoughts as she recovers from this madness she has found herself in. John from WV --- On Mon, 12/27/10, JOAN FINK wrote: From: JOAN FINK Subject: [TMIC] FRIENDS OF CINDY MCLEROY To: tmic-list@eskimo.com Date: Monday, December 27, 2010, 12:35 AM Cindy fractured her femur two weeks ago while transferring. She had an immediate surgery to place a rod. Last week, the wound became infected and another surgery was performed. She is in St. Jude Hospital in Fullerton, CA. She is totally immobile to give the best chance of healing, as well as on IV antibiotics. Am sure she would enjoy hearing from friends. Will keep the list updated as I get more information. Thoughts and prayers will be greatly appreciated.
[TMIC] FRIENDS OF CINDY MCLEROY........
Cindy fractured her femur two weeks ago while transferring. She had an immediate surgery to place a rod. Last week, the wound became infected and another surgery was performed. She is in St. Jude Hospital in Fullerton, CA. She is totally immobile to give the best chance of healing, as well as on IV antibiotics. Am sure she would enjoy hearing from friends. Will keep the list updated as I get more information. Thoughts and prayers will be greatly appreciated.
[TMIC] Friends then and now!
Before TM came into my life I was into numerous sports that I played every week. Many if not most of my "good" friends were my fellow athletes. When TM hit me it is true that some did make a visit or two...but after 6 months I started losing touch with almost all of them. My "true" friends are still my true friends...yes this is a much smaller group...but at least they are real! I complain sometimes about my wife but for the most part she has always been there for me. When I read Gunny's story it broke my heartI can live without my so called friendsbut to lose touch with my children and or grandchildren would be catastrophic! I hope things turn out ok for Gunny ...at least I pray they do. Rob in New Jersey
