RE: [TMIC] Lyrica - muscle stffness
Dalton and Patti;Years ago I had a pain management doctor tell me neurontin, or gabapentin, could cause hip and muscle pain and stiffness in some people. So does TM though apparently. Lyrica is pregabalin. It's a med developed with a few changes from gabapentin. They have a lot of similarities. Lyrica and Cymbalta can bother diabetes, though. I thought we all had some of this stiffness and discomfort especially after being in a still position. I can stay in one position for long without stuff going stiff and spasmy on me. I have to make some kind of move or get up. I get around, just have a lot of fatigue and weakness, but if I were to sit for long, I would have the same problem. So how would we know what is a side effect from med or from the ''problem". Patti; did you know I was in Kalamazoo when i first came down with this? I read somewhere that MS was pretty frequent in the area? Pam Date: Sat, 8 Oct 2011 09:45:18 -0400 From: pjv1...@chartermi.net To: tmic-list@eskimo.com Subject: [TMIC] Lyrica - muscle stffness Dalton You mentioned that you have muscle stffness when rising from a chair n the same post you when you said you are now taking Lyrica instead of gabapentin. I think I remember that as being a possible side-effect, but shrugged it off, because it would not stop me from taking Lyrica for the pain. Were you blaming the muscle stiffness directly on the Lyrica or was I reading something into your comment? Patti - Michigan
[TMIC] Lyrica - muscle stffness
Dalton You mentioned that you have muscle stffness when rising from a chair n the same post you when you said you are now taking Lyrica instead of gabapentin. I think I remember that as being a possible side-effect, but shrugged it off, because it would not stop me from taking Lyrica for the pain. Were you blaming the muscle stiffness directly on the Lyrica or was I reading something into your comment? Patti - Michigan
Re: [TMIC] Lyrica
I am so happy, Jim; Especially as you have your livelihood back again. It gives us dignity and spiritual satisfaction to be able to do something useful for others in life! I just lost my job due to TM, so I am sort of starting over. As to dosage, I am up to 375 mg 2x/day and am better for it, but I think that is the limit for me. I am 205 lbs and have intense burning pain, pins and needles, voltage-the works!--without Lyrica, and have been this way since first getting sick in early april 2010. But I can walk most of the time, thank the Lord!--so I am happy with things. But I need to get new work! It's ok, I write and am working on my second book; and I will help my wie in her real estate business back in NYC. Best of luck, Jim. Keep in touch! Dalton Dalton H. Garis, Ph.D Was!--Associate Professor, Commodity Price Behavior The Petroleum Institute P.O. Box 2533, Umm al Nar Abu Dhabi, United Arab Emirates Office: +971-02-607-5070/5297 Mobile: +971-50-668-5760 New York: (718) 271-2738 From: Deb Monteleone Date: Sat, 11 Jun 2011 21:32:20 -0400 To: 'James Berg' , Dalton Garis Cc: 'transverse myelitis' Subject: RE: [TMIC] Lyrica Jim, That is great. Kind of makes you giddy doesn¹t it. Make it a great day, Deb From: James Berg [mailto:molokai...@gmail.com] Sent: Saturday, June 11, 2011 4:07 PM To: malugss...@gmail.com Cc: transverse myelitis Subject: [TMIC] Lyrica Dalton--thank you so much for steering me to Lyrica. after three weeks of 450 mg a day, I guess I reached my saturation point and rather than taking it on a schedule, I take it when my legs start to jump again and it quiets them in about 30 minutes. I sharpen knives as a small business and I had stopped because of the leg jumping. Just can't have it when you have a blade on the wheel. Now for the first time in two years I am sharpening knives again. Hope I can get all the old customes back! Anyway, thanks alot. Jim
RE: [TMIC] Lyrica
Jim, That is great. Kind of makes you giddy doesn't it. Make it a great day, Deb From: James Berg [mailto:molokai...@gmail.com] Sent: Saturday, June 11, 2011 4:07 PM To: malugss...@gmail.com Cc: transverse myelitis Subject: [TMIC] Lyrica Dalton--thank you so much for steering me to Lyrica. after three weeks of 450 mg a day, I guess I reached my saturation point and rather than taking it on a schedule, I take it when my legs start to jump again and it quiets them in about 30 minutes. I sharpen knives as a small business and I had stopped because of the leg jumping. Just can't have it when you have a blade on the wheel. Now for the first time in two years I am sharpening knives again. Hope I can get all the old customes back! Anyway, thanks alot. Jim
[TMIC] Lyrica
Dalton--thank you so much for steering me to Lyrica. after three weeks of 450 mg a day, I guess I reached my saturation point and rather than taking it on a schedule, I take it when my legs start to jump again and it quiets them in about 30 minutes. I sharpen knives as a small business and I had stopped because of the leg jumping. Just can't have it when you have a blade on the wheel. Now for the first time in two years I am sharpening knives again. Hope I can get all the old customes back! Anyway, thanks alot. Jim
Re: [TMIC] Lyrica
I have been taking 450 mg of Lyrica for over 5 years and it has been the most effective medicine I have used in 13+ years of TM. I also take 60 mgs of Cymbalta which also helps the fibro neuralgia as well as miled depression as well! All the best! Rob in New Jersey -Original Message- From: James Berg To: transverse myelitis Sent: Sun, May 29, 2011 9:03 pm Subject: [TMIC] Lyrica I finally gave up my no drugs stand and started taking Lyica to see if it would calm my legs. I slowly reached a point where at 150 mg, three times a day (450mg total) I can see some improvement. The spasms are smaller and the pins and needles or vibrating is less. My question is how high a dosage can I go? I can't afford to see a DR to get a prescription as it costs $250.00 to walk in the door so I use a black market/no prescription necessary route to get my medications. I've looked on line for dosages and it looks like I am at the max now. Can anyone give me some advise?
Re: [TMIC] Lyrica
I sure can; I have been taking Lyrica for 16 months now, and the stuff works. When I tried cutting backfeeling that I must have turned some kind of cornerit took about two days until all the old fire and needles came back. My Neuro tells me that around 300 2x/day is about the limit of its effectiveness, but it takes about two weeks for it to reach its optimal efficiency of use in the body; and that taking more doesn't really offer more relief. My guess is that it all depends on the size of the human being. But my Neuro is Indian and probably 150 lbs. For non-Asians, it could be that the dosage might be larger. I have taken more than 600/day on a need-basis, when I am having a particularly bad day, or about to take a plane trip somewhere, or are getting seizures and contractions, and have noticed increased relief for that brief time. But I am fighting pseudo-seizures, as well. These are non-epileptic seizures that act the same wayand also take anti-seizure medications. For Lyrica I have not read anything about overdosing. So, if you are around 200 lbsand believe me, if you aren't that weight now, you soon will be, on Lyrica!--you could maybe benefit from a larger dose. Now, question for you: This stuff is expensive! How can you get it for less?--because I am returning to New York City for the summer and will need a supply over there, since I will have no insurance while in NYC. Thanks, Dalton Dalton H. Garis Associate Professor of Economics And Petroleum Market Behavior The Petroleum Institute P.O. Box 2533, Umm al Nar Abu Dhabi, United Arab Emirates Office: +971-02-607-5070/5297 Mobile: +971-50-668-5760 From: James Berg Date: Sun, 29 May 2011 15:03:20 -1000 To: transverse myelitis Subject: [TMIC] Lyrica Resent-From: Resent-Date: Sun, 29 May 2011 18:04:09 -0700 I finally gave up my no drugs stand and started taking Lyica to see if it would calm my legs. I slowly reached a point where at 150 mg, three times a day (450mg total) I can see some improvement. The spasms are smaller and the pins and needles or vibrating is less. My question is how high a dosage can I go? I can't afford to see a DR to get a prescription as it costs $250.00 to walk in the door so I use a black market/no prescription necessary route to get my medications. I've looked on line for dosages and it looks like I am at the max now. Can anyone give me some advise?
[TMIC] Lyrica
I finally gave up my no drugs stand and started taking Lyica to see if it would calm my legs. I slowly reached a point where at 150 mg, three times a day (450mg total) I can see some improvement. The spasms are smaller and the pins and needles or vibrating is less. My question is how high a dosage can I go? I can't afford to see a DR to get a prescription as it costs $250.00 to walk in the door so I use a black market/no prescription necessary route to get my medications. I've looked on line for dosages and it looks like I am at the max now. Can anyone give me some advise?
Re: [TMIC] Lyrica
Sally, I took Lyrica and had problems with swelling in ankles and feet.I take Gabapentin with no problem. Janice -Original Message- From: kale...@sfcn.org Sent: Friday, December 17, 2010 12:57 PM To: tmic-list@eskimo.com Subject: [TMIC] Lyrica Hi everyone! I haven't been here in quite awhile (on TMIC), but after 5 1/2 yrs with TM, I've finally given in to taking stronger meds. I was given Lyrica yesterday, by my podiatrist, for what he diagnosed as 'sural nerve neuritis' in my foot. He thought it would also help the spacticity (which is probably irritating the neuritis). So I'd like to hear your feedback on Lyrica: if it helps, how much you take, side effects, etc. Thanks, Sally
Re: [TMIC] Lyrica
I USE LYRICA, 600MG/DAY, AND NO COMPLAINTS, EXCEPT THAT IT DOES NOTHIN FOR SPASMS AND CONVULSIONS, AND THE NEURO DOESN¹T WANT ME TO TAKE TOO MANY MEDS. Dalton H. Garis, Ph.D. Associate Professor of Economics And Petroleum Market Behavior The Petroleum Institute P.O. Box 2533, Umm al Nar Abu Dhabi, United Arab Emirates Office: +971-02-607-5070/5297 Mobile: +971-50-668-5760-- From: Date: Fri, 17 Dec 2010 11:57:56 -0700 (MST) To: Subject: [TMIC] Lyrica Resent-From: Resent-Date: Fri, 17 Dec 2010 10:58:23 -0800 Hi everyone! I haven't been here in quite awhile (on TMIC), but after 5 1/2 yrs with TM, I've finally given in to taking stronger meds. I was given Lyrica yesterday, by my podiatrist, for what he diagnosed as 'sural nerve neuritis' in my foot. He thought it would also help the spacticity (which is probably irritating the neuritis). So I'd like to hear your feedback on Lyrica: if it helps, how much you take, side effects, etc. Thanks, Sally
[TMIC] Lyrica
Hi everyone! I haven't been here in quite awhile (on TMIC), but after 5 1/2 yrs with TM, I've finally given in to taking stronger meds. I was given Lyrica yesterday, by my podiatrist, for what he diagnosed as 'sural nerve neuritis' in my foot. He thought it would also help the spacticity (which is probably irritating the neuritis). So I'd like to hear your feedback on Lyrica: if it helps, how much you take, side effects, etc. Thanks, Sally
Re: [TMIC] Lyrica, Cymbalta AND Baclofen
I also take all three drugs. I've been taking the Cymbalta and Lyrica, for nearly 5 years, and the Baclofen since last September, after I had my Baclofen pump removed. They all serve different purposes for me. The Cymbalta is an antidepressant (and also used for pain), the Lyrica is for neuro pain and the Baclofen is for spasticity. They all work well for me. Naomi C-4 quadriplegic since July 2, 2005 -Original Message- From: pjv1...@chartermi.net To: tmic Sent: Tue, May 18, 2010 9:15 am Subject: [TMIC] Lyrica, Cymbalta AND Baclofen Rob think I was typing my last post wile you were sending yours. I take Lyrica and Cymbalta and must also take Baclofen for the banding and uscle spasms. yrica and Cymbalta decrease the neuro pain, but he Baclofen is the first thing reach for when I've over exerted and my mucles are tightening so bad I can't ove. Those were my first TM symptoms and the one that sent me to ER. Patti - Michigan
[TMIC] Lyrica, Cymbalta AND Baclofen
Rob I think I was typing my last post wile you were sending yours. I take Lyrica and Cymbalta and must also take Baclofen for the banding and muscle spasms. Lyrica and Cymbalta decrease the neuro pain, but he Baclofen is the first thing I reach for when I've over exerted and my mucles are tightening so bad I can't move. Those were my first TM symptoms and the one that sent me to ER. Patti - Michigan
Re: [TMIC] Lyrica
Mindy, that is wonderful news and speaks well of you too. Just another sign that past the 2-year mark, improvement is still shown. Great! Janice From: Lori Biehler Sent: Monday, March 15, 2010 6:53 AM To: Mindy King ; tmic-list@eskimo.com Subject: Re: [TMIC] Lyrica Congrats! That is a huge accomplishment and I am glad that you are able to cut down and not feel any worse after the withdrawal period, how wonderful for you! From: Mindy King Sent: Monday, March 15, 2010 12:45 AM To: tmic-list@eskimo.com Cc: Mindy King Subject: [TMIC] Lyrica Hi all, I weaned off Cymbalta 10 months ago after a major improvement in pain, my other medication is Lyrica and I have been on it since before TM was diagnosed as the cause of my nerve pain. I was taking 150 mg 2X a day for the majority of the last 3 years, not knowing if it was really still helping all that much (or at all) and wanting to know if I could tolerate life on a smaller dosage. You can't just stop taking it or you'll have hell to pay (physical withdrawal), every time I've missed a dose I've been in agony, so I've set about weaning off. first I dropped to 75mg at night and 150 during the day. the first 4 days were miserable but after that I felt no worse than I did at the higher level. Then I halved the day time dosage and after 4 days still felt okay. I tried quitting the night dose altogether but that didn't work out so I switched to 50 mg morning and night. I had hoped I could go completely unmedicated but I have to be realistic and feel good about my accomplishment. 1/3 of my previous dosage is a big gain, I'm more alert and functional on less and that is such a gift! I have too much on my plate right now to lose a week to withdrawal misery. I don't post much but thanks for being there when I need you. Mindy the artisan
Re: [TMIC] Lyrica
Congrats! That is a huge accomplishment and I am glad that you are able to cut down and not feel any worse after the withdrawal period, how wonderful for you! From: Mindy King Sent: Monday, March 15, 2010 12:45 AM To: tmic-list@eskimo.com Cc: Mindy King Subject: [TMIC] Lyrica Hi all, I weaned off Cymbalta 10 months ago after a major improvement in pain, my other medication is Lyrica and I have been on it since before TM was diagnosed as the cause of my nerve pain. I was taking 150 mg 2X a day for the majority of the last 3 years, not knowing if it was really still helping all that much (or at all) and wanting to know if I could tolerate life on a smaller dosage. You can't just stop taking it or you'll have hell to pay (physical withdrawal), every time I've missed a dose I've been in agony, so I've set about weaning off. first I dropped to 75mg at night and 150 during the day. the first 4 days were miserable but after that I felt no worse than I did at the higher level. Then I halved the day time dosage and after 4 days still felt okay. I tried quitting the night dose altogether but that didn't work out so I switched to 50 mg morning and night. I had hoped I could go completely unmedicated but I have to be realistic and feel good about my accomplishment. 1/3 of my previous dosage is a big gain, I'm more alert and functional on less and that is such a gift! I have too much on my plate right now to lose a week to withdrawal misery. I don't post much but thanks for being there when I need you. Mindy the artisan
[TMIC] Lyrica
Hi all, I weaned off Cymbalta 10 months ago after a major improvement in pain, my other medication is Lyrica and I have been on it since before TM was diagnosed as the cause of my nerve pain. I was taking 150 mg 2X a day for the majority of the last 3 years, not knowing if it was really still helping all that much (or at all) and wanting to know if I could tolerate life on a smaller dosage. You can't just stop taking it or you'll have hell to pay (physical withdrawal), every time I've missed a dose I've been in agony, so I've set about weaning off. first I dropped to 75mg at night and 150 during the day. the first 4 days were miserable but after that I felt no worse than I did at the higher level. Then I halved the day time dosage and after 4 days still felt okay. I tried quitting the night dose altogether but that didn't work out so I switched to 50 mg morning and night. I had hoped I could go completely unmedicated but I have to be realistic and feel good about my accomplishment. 1/3 of my previous dosage is a big gain, I'm more alert and functional on less and that is such a gift! I have too much on my plate right now to lose a week to withdrawal misery. I don't post much but thanks for being there when I need you. Mindy the artisan
RE: [TMIC] Lyrica
Hi I was unable to take the gabapentin, so I have been on lyrica for 2.5 years. Just recently the dosage was increased to 225mg in the a.m. and 150mg in the p.m. Weight gain, ya, but I am now built for comfort, not for speed! And the burning band has eased up considerably. The downside to lyrica is the cost, for me anyway, here in BC Canada. Oh well, the alternative of not walking is worth the expense. I do not recall a headache, though. I do know that it has helped with the burning, tingling, shock feeling, and now I only experience the numbness. I think it is worth the try. Janet From: Regina Rummel [mailto:regina...@sbcglobal.net] Sent: January 25, 2009 5:45 AM To: tmic-list@eskimo.com Subject: [TMIC] Lyrica My neuro now tells me that my symptoms are caused by much more than TM. Namely vasculatis. She put me on Lyrica and I woke up this AM with a pretty nasty headache. Should I put up with this and it will pass? What were your problems or successes with Lyrica? R E-mail message checked by Spyware Doctor (6.0.0.386) Database version: 5.11610 http://www.pctools.com/spyware-doctor-antivirus/ <http://www.pctools.com/en/spyware-doctor-antivirus/> E-mail message checked by Spyware Doctor (6.0.0.386) Database version: 5.11610 http://www.pctools.com/en/spyware-doctor-antivirus/
Re: [TMIC] Lyrica
I never tried Neurontin, opting for lyrica first and yes I had a headache for 4-5 days and then it subsided, balance was also messed up for a while. really took 2 weeks for the full benefit and the addition of Amantadine to counter the sleepiness but in combination with cymbalta gave me my life back! Mindy the Artist On Jan 25, 2009, at 7:44 AM, Regina Rummel wrote: My neuro now tells me that my symptoms are caused by much more than TM. Namely vasculatis. She put me on Lyrica and I woke up this AM with a pretty nasty headache. Should I put up with this and it will pass? What were your problems or successes with Lyrica? R
Re: [TMIC] Lyrica
I have been taking Lyrica for quite a while and it really helps me walk better. Lately, I have had pain in my arm muscles; my orthopedic doctor said my left arm has slipped out of the socket two inches. I wonder if this is caused by the Lyrica? Would steroids help my muscles? I am going to my neuro asap but would like to have your imput first. PRISCILLA :) -Original Message- From: Regina Rummel To: tmic-list@eskimo.com Sent: Sun, 25 Jan 2009 7:44 am Subject: [TMIC] Lyrica My neuro now tells me that my symptoms are caused by much more than TM. Namely vasculatis. She put me on Lyrica and I woke up this AM with a pretty nasty headache. Should I put up with this and it will pass? What were your problems or successes with Lyrica? R
Re: [TMIC] Lyrica
Regina, I have been on Gabapentin for 51/2 yrs now. Started at 3200mg/day now down to 2400mg/day divided into 600mg 4 times per day. Early Dec. 2008 I tried the Lyrica at 600mg per day divided into 2 doses of 300mg in a.m. and p.m. After 10 days I had to call neuro and go back to the Gabapentin. My lower legs and feet started to swell very badly. Since there is heart and high blood pressure problems in my immediate family I did not want that problem. It was difficult to put on shoes and walk when so swollen. The pain relief was terrific though compared to the Gabapentin. So after the 10 days I was switched back to the Gabapentin. Took a while for all the swelling to go down. Talk to your neuro. Sometimes the adverse effects outweigh the good of the Lyrica. That was my findings anyway. Hugs, Heather in Calgary - Original Message - From: Regina Rummel To: tmic-list@eskimo.com Sent: Sunday, January 25, 2009 5:44 AM Subject: [TMIC] Lyrica My neuro now tells me that my symptoms are caused by much more than TM. Namely vasculatis. She put me on Lyrica and I woke up this AM with a pretty nasty headache. Should I put up with this and it will pass? What were your problems or successes with Lyrica? R
Re: [TMIC] Lyrica
Good Morning! I've taken it now for about 2 1/2 years and have had very few side effects other than weight gain but I think that was because they had put me on a very high dose to start with. It has been so easy to take (because of the lack of bad side effects (for me)) and it really does work for me in that it takes the horrific pain away and replaces it with warmth instead of the icy cold/acid-like pain and spasms. The pain is still there but very tolerable. It takes about 20 minutes to work and stays with me for several hours. I only take (2) 75mg a day but it had gotten where that smaller amount was not working and the pain increase was putting me in bed. My provider wanted me to try Ultracet added to the Lyrica and that has made me feel better than I have since I came down with TM. I had a few side effects when I started that but I was also started on Lamisil at the same time for toenail fungus. Hooray!!! I just hung in there and the SE finally went away. I finally had to break down and get one of those little weekly pill holders!!! Each person is different and I know it hasn't worked for others so it seems to be a matter of trying it out. Good luck and hugs for you on this snowing Sunday morning!!! Jeanne ---Original Message--- From: Regina Rummel Date: 1/25/2009 6:45:02 AM To: tmic-list@eskimo.com Subject: [TMIC] Lyrica My neuro now tells me that my symptoms are caused by much more than TM. Namely vasculatis. She put me on Lyrica and I woke up this AM with a pretty nasty headache. Should I put up with this and it will pass? What were your problems or successes with Lyrica? R <><>
[TMIC] Lyrica
My neuro now tells me that my symptoms are caused by much more than TM. Namely vasculatis. She put me on Lyrica and I woke up this AM with a pretty nasty headache. Should I put up with this and it will pass? What were your problems or successes with Lyrica? R
[TMIC] Lyrica vs. Neurontin, etc.
Trudy, Re your question to Frank, I asked that same question to my neurologist two weeks ago. She told me that they are very similar and recommended that I stay with Neurontin. I decided to do that but not in the super-increased dosage that she suggested. She gave me a prescription for Cymbalta that I haven't tried yet, to be taken before I exercise. My understanding is that it's a muscle relaxant to be taken as needed and I'm anxious to see if it works since so many in the group take it. I make notes of all the group's suggestions (thank you all by the way) and my neurologist would be willing to let me try just about anything, but I can tell by the look on her face that she doesn't advise me to do it. And... I'd prefer to take as little drugs as possible. As soon as I read a drug that someone suggests, I check it on Google, and oh my! no... no. Scary stuff out there. As to your question re medical marijuana, Frank gave me instructions some time ago on how to go about it and I didn't have a problem getting it. As you do, I live in Calif. and you shouldn't have a problem either. The feds still won't leave it alone and of the 3 pres. candidates, only Obama is calling for needed change in federal policy to stop federal raids in the 12 states that have passed laws legalizing its use. And even his position is not as clear as it could be. Good luck. R
Re: [TMIC] Lyrica
I took it for about a week, the pain was almost nil but had to cease as it cause my hands to swell terribly and my vision was beginning to blur...Ella **See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop000304)
Re: [TMIC] Lyrica
Hi Regina, I have tried for a couple of months to make the switch. I am not very successful. I was taking 5200 mg of Neurontin per day, and my Neuro started me on 50 mg 1xper day for a week, then 2xper day for another week, then up to 3xper day for another week. After that, after a few weeks, I was to start to decrease my Neurontin by 400 mg gradually. I got by the first reduction pretty well, without much trouble. I was feeling so wonderful - without the pain, not really any tingling or burning, no hypersensitivity either late at night. It was great. Then I tried lowering it again. Well, that was a problem. I had such pain in my legs. I did this for 4 days, figuring that my body would adjust, but I was so miserable and climbing out of my skin. So, my Neuro told me to add it back in. I love the mentally clearer feeling with the Lyrica. So, at this time I am still at the same level, but I think I am actually over-medicated at this point. I was supposed to try to reduce the Lyrica since I cannot reduce my Neurontin at this time, and try again another time. So, at this time I feel better that my Neurontin is down to 4800 mg/day, but I am still at 150mg of Lyrica. I think that the winter time is also possibly the worst time to try to do this. This is my experience. I do not know if I am having any side effects from the Lyrica, I don't think so, except I have put on a few pounds. I have also been sick for about a month and my husband has been in charge of the meals and he takes the easy way out of it, and I have had very little movement going on. Good luck, in my book, it's definately worth the try. Hugs, Barbara A **See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop000304)
[TMIC] Lyrica
I am considering switching from Neurontin to Lyrica. Would like to hear from anyone in the group with negative concerns after having taken Lyrica. Thanks! R
Re: [TMIC] lyrica
Cookie I think you will also get some relief from your TM neuropathic pain. On Oct 11th, I replaced my gabapentin rx with Lyrica at the suggestion of my Neuro. I was taking 600mg of gabapentin every 6 hours, but now take 75 mg Lyrica every 12 hours. My pain level is about the same, however, I don't get the horrid spikes that make me wank to cut my leg off. I've only had one of those evenings since starting the Lyrica. The advantage over gabapentin is that Lyrica begins working within 20 minutes. I used to suffer in pain for up to 2 hours waiting for the gabapentin to take effect when I had been over-active or the weather and temperatures played havoc with my pain level. Knowing that the Lyrica works faster is a great mental and physical relief. I've learned that Lyrica works faster on an empty stomach. Good Luck Patti - Michigan LifeIsJoy <[EMAIL PROTECTED]> wrote: = My doctor and I have discussed Lyrica for my diabetic neuropathy. I think I will try it. Those of you who have used this medication for TM-tell me, please, is it helpful for TM, also? Will I be helping two problems??? Cookie
RE: [TMIC] lyrica
Hi Rob, Can you please explain what "banding" is? I have a pain around my lower back that causes me to be stiff. I am wondering if that is banding. Thanks!! Wendy in NJ _ From: Robert Pall [mailto:[EMAIL PROTECTED] Sent: Monday, December 10, 2007 8:11 AM To: LifeIsJoy; tm Subject: RE: [TMIC] lyrica Cookie: I have stated this previouslyI have now been on Lyrica (450 mg) for about 2 years. For me this has been the most effective med I have taken for TM in 10 years. It has helped the pins & needles, numbness and excessive banding. I have encountered no side effects. Rob in New Jersey _ From: LifeIsJoy [mailto:[EMAIL PROTECTED] Sent: Monday, December 10, 2007 12:12 AM To: 'tm' Subject: [TMIC] lyrica My doctor and I have discussed Lyrica for my diabetic neuropathy. I think I will try it. Those of you who have used this medication for TM-tell me, please, is it helpful for TM, also? Will I be helping two problems??? Cookie
RE: [TMIC] lyrica
Hi Cookie, Lyrica has been great for me. I had good luck with gabapentin (neurontin) but had to take about a pound of capsules a day. With Lyrica the pain relief is at least as good if not better and until the day comes that they let me smoke marijuana in my office I'll stick with the Lyrica. I also find there are very minimal, if any side effects. All in all...I highly recommend giving it a try. It is not a cure...but it makes my life a lot easier. Best wishes and good luck, Neil in NS From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: Sun, 9 Dec 2007 22:12:11 -0700Subject: [TMIC] lyrica My doctor and I have discussed Lyrica for my diabetic neuropathy. I think I will try it. Those of you who have used this medication for TM—tell me, please, is it helpful for TM, also? Will I be helping two problems??? Cookie _ Introducing the City @ Live! Take a tour! http://getyourliveid.ca/?icid=LIVEIDENCA006
RE: [TMIC] lyrica
Cookie: I have stated this previouslyI have now been on Lyrica (450 mg) for about 2 years. For me this has been the most effective med I have taken for TM in 10 years. It has helped the pins & needles, numbness and excessive banding. I have encountered no side effects. Rob in New Jersey From: LifeIsJoy [mailto:[EMAIL PROTECTED] Sent: Monday, December 10, 2007 12:12 AM To: 'tm' Subject: [TMIC] lyrica My doctor and I have discussed Lyrica for my diabetic neuropathy. I think I will try it. Those of you who have used this medication for TM-tell me, please, is it helpful for TM, also? Will I be helping two problems??? Cookie
RE: [TMIC] lyrica
From: LifeIsJoy [mailto:[EMAIL PROTECTED] Sent: Monday, December 10, 2007 12:12 AM To: 'tm' Subject: [TMIC] lyrica My doctor and I have discussed Lyrica for my diabetic neuropathy. I think I will try it. Those of you who have used this medication for TM-tell me, please, is it helpful for TM, also? Will I be helping two problems??? Cookie
[TMIC] lyrica
My doctor and I have discussed Lyrica for my diabetic neuropathy. I think I will try it. Those of you who have used this medication for TM-tell me, please, is it helpful for TM, also? Will I be helping two problems??? Cookie
Re: [TMIC] Lyrica/Neurontin
Hi Stacy, I had headaches for a few days as well, but they were on the mild side. I don't suffer from headaches as a general rule, so it was unusual to have them for those few days. I was happy to have them stop, and think it was just the initial Lyrica in my system since I hadn't decreased the Neurontin at that time yet. Thanks for your response. It was after reading many people discussing that I felt that I would give it a try, but it really took me months to get up the nerve. Our grandchildren were visiting for most of the summer, so I waited until they were going to be home so I could try to handle it, and so they wouldn't need to see me in any more pain than they already are exposed to. Take care, Hugs, Barbara A ** See what's new at http://www.aol.com
Re: [TMIC] Lyrica/Neurontin
Hi Barbara, I had terrible headaches after coming off the neurontin. I was on 1200 3x a day and did the same as you. I decreased the neurontin as I increased the lyrica. It was like the verge of migraines. I even took exedrine migraine andit didn't help. Eventually I adjusted and everything is all good. It's been about a year now. My spasms were pretty crazy but maybe it was the med. The only good thing about my spinal fusion is that I've had a decrease in my meds and got off of a couple. I'm taking half of the baclofen I was before and if I miss a dose, I'm fine. However, I would rather have the spasms and be able to get my balance back and get myself into the wheelchair again without help. I am grateful, however that I'm not more paralyzed than I was before since a few discs were fused above my level. Stacy - Original Message - From: [EMAIL PROTECTED]<mailto:[EMAIL PROTECTED]> To: tmic-list@eskimo.com<mailto:tmic-list@eskimo.com> Sent: Thursday, September 13, 2007 2:27 AM Subject: [TMIC] Lyrica/Neurontin Hi Gang, I know that we've discussed the Lyrica/Neurontin conversions, controversies, etc, but I have a question that I'd like some feedback on. I am on a high dose of Neurontin and starting to lower my dosage after being on the Lyrica for three weeks. I have 50 mg capsules, and have added one capsule a day per week for the past three weeks. For the first week with one capsule I had really horrible fatigue, like falling asleep almost every time that I got too comfy. Then the second week with two capsules I started feeling less fatigue, until the third week where I was very mentally clear and very little increased fatigue at all. At the end of three weeks I was so very mentally clear, so much that it was really noticed by my family. I mean my brothers and sisters, who don't see me everyday. They said that I didn't talk like I was in a fog anymore. So, the Lyrica has done that for me for sure, cleared up the fogginess, and for that I am so thankful. I feel like I can form my thoughts and actually execute some of them. And, talk in real sentences, amazing! On Saturday I started to decrease my Neurontin by 400mg, once a day. I'm supposed to decrease by this much each week if I can tolerate. My problem is that I have been having so much pain in my legs during the night. It's like my body loved the extra Lyrica that it had, but doesn't like losing the Neurontin. I can understand this as I wasn't having effective pain control for quite some time just using the Neurontin, but... My spasms are worse, so I have had to increase my Baclofen also, but the neuro told me that I was on a very low dose and I could increase as needed. Is this the same kind of thing that happened to others who made the change from Neurontin to Lyrica or not? Can you please let me know how your transition went and what worked for you? I know that at some point I will get a higher dosage of Lyrica, but I will have to decrease my Neurontin before that will happen. I know that there is a transition period for my body to adjust. I think this is going to be a really long haul though. I appreciate any feedback that comes my way. Hugs, Barbara A -- See what's new at AOL.com<http://www.aol.com/?NCID=AOLCMP0030001170> and Make AOL Your Homepage<http://www.aol.com/mksplash.adp?NCID=AOLCMP0030001169>.
[TMIC] Lyrica/Neurontin
Hi Gang, I know that we've discussed the Lyrica/Neurontin conversions, controversies, etc, but I have a question that I'd like some feedback on. I am on a high dose of Neurontin and starting to lower my dosage after being on the Lyrica for three weeks. I have 50 mg capsules, and have added one capsule a day per week for the past three weeks. For the first week with one capsule I had really horrible fatigue, like falling asleep almost every time that I got too comfy. Then the second week with two capsules I started feeling less fatigue, until the third week where I was very mentally clear and very little increased fatigue at all. At the end of three weeks I was so very mentally clear, so much that it was really noticed by my family. I mean my brothers and sisters, who don't see me everyday. They said that I didn't talk like I was in a fog anymore. So, the Lyrica has done that for me for sure, cleared up the fogginess, and for that I am so thankful. I feel like I can form my thoughts and actually execute some of them. And, talk in real sentences, amazing! On Saturday I started to decrease my Neurontin by 400mg, once a day. I'm supposed to decrease by this much each week if I can tolerate. My problem is that I have been having so much pain in my legs during the night. It's like my body loved the extra Lyrica that it had, but doesn't like losing the Neurontin. I can understand this as I wasn't having effective pain control for quite some time just using the Neurontin, but... My spasms are worse, so I have had to increase my Baclofen also, but the neuro told me that I was on a very low dose and I could increase as needed. Is this the same kind of thing that happened to others who made the change from Neurontin to Lyrica or not? Can you please let me know how your transition went and what worked for you? I know that at some point I will get a higher dosage of Lyrica, but I will have to decrease my Neurontin before that will happen. I know that there is a transition period for my body to adjust. I think this is going to be a really long haul though. I appreciate any feedback that comes my way. Hugs, Barbara A ** See what's new at http://www.aol.com
Re: [TMIC] Lyrica/Neurontin
> I am taking Neurontin 5200mg/day and Topomax 100mg/day. I was given 50mg > caps of Lyrica. I was told to take one Lyrica for a week with no change in > anything. Then if successful, I can take away 400mg Neurontin and add 50 > more > Lyrica once per day. Sounnds good to me to decrease neurontin by 400 mg each week. I can't remember Lyrica dosing. F
Re: [TMIC] Lyrica/Neurontin
Hi Frank, I am taking Neurontin 5200mg/day and Topomax 100mg/day. I was given 50mg caps of Lyrica. I was told to take one Lyrica for a week with no change in anything. Then if successful, I can take away 400mg Neurontin and add 50 more Lyrica once per day. This is where we will start. How does this sound to you? No other pain meds, other than Vicodin when I need it, about 3x week or so. Hugs to you, Barbara A ** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour
Re: [TMIC] Lyrica/Neurontin
Barbara, The neurontin needs to be tapered slowly. Are you taking anything else for the pain? Dr. Kerr put me on Nortriptyline, Phenobarbital, and Marinol, and then I added Dextromethorphan. In Canada I get Sativex that works better than Marinol. take care F
Re: [TMIC] Lyrica/Neurontin
> You mention that TM may be starting in your neck area. Where was the > initial lesion? > I thought that if new lesions form, the diagnosis changes. Anyone? Kevin, you are right- two lesions means M.S. F
Re: [TMIC] Lyrica/Neurontin
my oringinal lesions in 2004 were on the lower part of my spinal colomnwhitch still are there on my recent MRI.my mid section has been numb and feels like i have a tight band around me..when my neurolist told me about TM starting on my neck area i asked him if i was starting with MS but he told me no at the present time...he said further MRI's will be done to see how it is doing. - Original Message - From: "Kevin Wolfthal" <[EMAIL PROTECTED]> To: Sent: Monday, August 20, 2007 11:56 PM Subject: Re: [TMIC] Lyrica/Neurontin Hi Robert, Glad to hear the neurontin is helping you. I still don't know why my diagnosing doctor wouldn't put me on neurontin when I asked him about it. You mention that TM may be starting in your neck area. Where was the initial lesion? I thought that if new lesions form, the diagnosis changes. Anyone? Kevin robert diehl wrote: i was put on lycaria by my pcp but my neurolgist took me off of it becuse he said it not right for me. he put me on neurontin.. take 300mg..one in the morning and one at bed time...had not had any side effects frm it at all ...for me now i feel pain freejust was in the hospital for five days then taken to a rehab hosp..was therefor almost trhee weeks til they got me walking again...in the hosp they did a MRI from the top of my head to my butt..showed sigs of TM starting in my neck area..put me on steroids for four days...will have anther MRI done shortly BOB FROM PANOW LIVING IN LAS VEGAS WITH MY DAUGHTER - Original Message - *From:* [EMAIL PROTECTED] <mailto:[EMAIL PROTECTED]> *To:* tmic-list@eskimo.com <mailto:tmic-list@eskimo.com> *Sent:* Monday, August 20, 2007 8:52 PM *Subject:* [TMIC] Lyrica/Neurontin Hello Gang, After more than a year suffering through too much pain than my 5200mg/day Neurontin could handle, I have seen a new neurologist who has started me on Lyrica as a chance of getting my pain under control. She didn't want to increase my Neurontin, and I wasn't really interested in that either. She also helped me with better information about my Baclofen dosing and spasms, so that's working out much better. I've actually been getting a bit more sleep at night. I didn't really want to change anything around, as I was doing well on the Neurontin for 8 yrs. Well, that is until it just wasn't handling the pain. I was doing well without any bad side effects. I had some speech problems where I couldn't grasp my words for the entire time really, some weight gain, but not really anything else that was noticable or that I remember at the moment, lol. Heck, I've taken it for so long that I'm used to whatever state that I'm in. It takes someone on the outside to notice that I'm a bit odd or off. Can anyone out there tell me how long it took them to get over the really bad fatigue factor? So far I'm not noticing any other symptoms. I've taken for 4 days now, and am still on the same dosage of Neurontin. The doc gave me 50mg caps, and told me to take for a week before changing my regime with Neurontin. I am then to raise it and lower my Neurontin based on her instructions. Hugs to all, Barbara A Get a sneak peek of the all-new AOL.com <http://discover.aol.com/memed/aolcom30tour/?ncid=AOLAOF0002000982>.
Re: [TMIC] Lyrica/Neurontin
Hi Robert, Glad to hear the neurontin is helping you. I still don't know why my diagnosing doctor wouldn't put me on neurontin when I asked him about it. You mention that TM may be starting in your neck area. Where was the initial lesion? I thought that if new lesions form, the diagnosis changes. Anyone? Kevin robert diehl wrote: i was put on lycaria by my pcp but my neurolgist took me off of it becuse he said it not right for me. he put me on neurontin.. take 300mg..one in the morning and one at bed time...had not had any side effects frm it at all ...for me now i feel pain freejust was in the hospital for five days then taken to a rehab hosp..was therefor almost trhee weeks til they got me walking again...in the hosp they did a MRI from the top of my head to my butt..showed sigs of TM starting in my neck area..put me on steroids for four days...will have anther MRI done shortly BOB FROM PANOW LIVING IN LAS VEGAS WITH MY DAUGHTER - Original Message - *From:* [EMAIL PROTECTED] <mailto:[EMAIL PROTECTED]> *To:* tmic-list@eskimo.com <mailto:tmic-list@eskimo.com> *Sent:* Monday, August 20, 2007 8:52 PM *Subject:* [TMIC] Lyrica/Neurontin Hello Gang, After more than a year suffering through too much pain than my 5200mg/day Neurontin could handle, I have seen a new neurologist who has started me on Lyrica as a chance of getting my pain under control. She didn't want to increase my Neurontin, and I wasn't really interested in that either. She also helped me with better information about my Baclofen dosing and spasms, so that's working out much better. I've actually been getting a bit more sleep at night. I didn't really want to change anything around, as I was doing well on the Neurontin for 8 yrs. Well, that is until it just wasn't handling the pain. I was doing well without any bad side effects. I had some speech problems where I couldn't grasp my words for the entire time really, some weight gain, but not really anything else that was noticable or that I remember at the moment, lol. Heck, I've taken it for so long that I'm used to whatever state that I'm in. It takes someone on the outside to notice that I'm a bit odd or off. Can anyone out there tell me how long it took them to get over the really bad fatigue factor? So far I'm not noticing any other symptoms. I've taken for 4 days now, and am still on the same dosage of Neurontin. The doc gave me 50mg caps, and told me to take for a week before changing my regime with Neurontin. I am then to raise it and lower my Neurontin based on her instructions. Hugs to all, Barbara A Get a sneak peek of the all-new AOL.com <http://discover.aol.com/memed/aolcom30tour/?ncid=AOLAOF0002000982>.
Re: [TMIC] Lyrica/Neurontin
i was put on lycaria by my pcp but my neurolgist took me off of it becuse he said it not right for me. he put me on neurontin.. take 300mg..one in the morning and one at bed time...had not had any side effects frm it at all ...for me now i feel pain freejust was in the hospital for five days then taken to a rehab hosp..was therefor almost trhee weeks til they got me walking again...in the hosp they did a MRI from the top of my head to my butt..showed sigs of TM starting in my neck area..put me on steroids for four days...will have anther MRI done shortly BOB FROM PANOW LIVING IN LAS VEGAS WITH MY DAUGHTER - Original Message - From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Monday, August 20, 2007 8:52 PM Subject: [TMIC] Lyrica/Neurontin Hello Gang, After more than a year suffering through too much pain than my 5200mg/day Neurontin could handle, I have seen a new neurologist who has started me on Lyrica as a chance of getting my pain under control. She didn't want to increase my Neurontin, and I wasn't really interested in that either. She also helped me with better information about my Baclofen dosing and spasms, so that's working out much better. I've actually been getting a bit more sleep at night. I didn't really want to change anything around, as I was doing well on the Neurontin for 8 yrs. Well, that is until it just wasn't handling the pain. I was doing well without any bad side effects. I had some speech problems where I couldn't grasp my words for the entire time really, some weight gain, but not really anything else that was noticable or that I remember at the moment, lol. Heck, I've taken it for so long that I'm used to whatever state that I'm in. It takes someone on the outside to notice that I'm a bit odd or off. Can anyone out there tell me how long it took them to get over the really bad fatigue factor? So far I'm not noticing any other symptoms. I've taken for 4 days now, and am still on the same dosage of Neurontin. The doc gave me 50mg caps, and told me to take for a week before changing my regime with Neurontin. I am then to raise it and lower my Neurontin based on her instructions. Hugs to all, Barbara A -- Get a sneak peek of the all-new AOL.com.
[TMIC] Lyrica/Neurontin
Hello Gang, After more than a year suffering through too much pain than my 5200mg/day Neurontin could handle, I have seen a new neurologist who has started me on Lyrica as a chance of getting my pain under control. She didn't want to increase my Neurontin, and I wasn't really interested in that either. She also helped me with better information about my Baclofen dosing and spasms, so that's working out much better. I've actually been getting a bit more sleep at night. I didn't really want to change anything around, as I was doing well on the Neurontin for 8 yrs. Well, that is until it just wasn't handling the pain. I was doing well without any bad side effects. I had some speech problems where I couldn't grasp my words for the entire time really, some weight gain, but not really anything else that was noticable or that I remember at the moment, lol. Heck, I've taken it for so long that I'm used to whatever state that I'm in. It takes someone on the outside to notice that I'm a bit odd or off. Can anyone out there tell me how long it took them to get over the really bad fatigue factor? So far I'm not noticing any other symptoms. I've taken for 4 days now, and am still on the same dosage of Neurontin. The doc gave me 50mg caps, and told me to take for a week before changing my regime with Neurontin. I am then to raise it and lower my Neurontin based on her instructions. Hugs to all, Barbara A ** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour
Re: [TMIC] Lyrica
I am taking lyrica. I have been on it about 1 year and it has helped with pain in my legs. My legs were aching and hurting all the time before lyrica. Now they still hurt on accasion but not all the time. Lynn in RI - Original Message - From: "Gunny" <[EMAIL PROTECTED]> To: Sent: Monday, May 07, 2007 9:17 AM Subject: [TMIC] Lyrica Is anybody on Lyrica and if so, could you tell me the benefits. I was turned down for it because it's not designed to aid in Pain caused by TM. It's supposed to be for pain caused by Diabetes which to me would be diabetic Neuropathy, Not Peripheral. SAnyhoo, I ned to file an appeal, so any info would be helpful. gunny PeoplePC Online A better way to Internet http://www.peoplepc.com
Re: [TMIC] Lyrica
Gunny, I have been on Lyrica for nearly a year now. Without it I wouldn't be able to function. I tried Neurotin, and the whole gang of other pain medicines. Lyrica was the only thing that worked for me. I don't understand why your doctor would not prescribe it for you. The pain that we have is considered neuropathy. I take 400 mg, twice a day. This is a pretty high dose, but it works for me. Good luck with your grievance. Naomi C-4 quad since July 2, 2005 ** See what's free at http://www.aol.com.
RE: [TMIC] Lyrica
Gunny, I have been on Lyrica for almost 2 years. Dr Kerr prescribed it for me. I started out with 300 mg per day and since last October I have been taking 450 mg.I cannot say if it helps pain because I am not really in pain...I am in constant discomfort.Having said that Lyrica has been the most effective med I have taken in 10 years. It has reduced the feeling of pins & needles, numbness and banding. I have also found no side effects other than I believe it increases my appetite (like marinal). Rob in New Jersey -Original Message- From: Gunny [mailto:[EMAIL PROTECTED] Sent: Monday, May 07, 2007 10:18 AM To: Tmic-list@eskimo.com Subject: [TMIC] Lyrica Is anybody on Lyrica and if so, could you tell me the benefits. I was turned down for it because it's not designed to aid in Pain caused by TM. It's supposed to be for pain caused by Diabetes which to me would be diabetic Neuropathy, Not Peripheral. SAnyhoo, I ned to file an appeal, so any info would be helpful. gunny PeoplePC Online A better way to Internet http://www.peoplepc.com
Re: [TMIC] Lyrica
Hi Gunny, Do a www.yahoo.com search using the words: Lyrica and Transverse Myelitis Guess do a google.com search too. I did find lots of good links on yahoo. I dont take Lyrica. I am still working with the Low Dose Naltexone off and on. It makes me sick after a while, but boy it can work wonders. I must find a doctor who will prescribe the patch version for me so I can by pass the stomach problems it causes for me. Natalie On 5/7/07, Gunny <[EMAIL PROTECTED]> wrote: Is anybody on Lyrica and if so, could you tell me the benefits. I was turned down for it because it's not designed to aid in Pain caused by TM. It's supposed to be for pain caused by Diabetes which to me would be diabetic Neuropathy, Not Peripheral. SAnyhoo, I ned to file an appeal, so any info would be helpful. gunny PeoplePC Online A better way to Internet http://www.peoplepc.com
[TMIC] Lyrica
Is anybody on Lyrica and if so, could you tell me the benefits. I was turned down for it because it's not designed to aid in Pain caused by TM. It's supposed to be for pain caused by Diabetes which to me would be diabetic Neuropathy, Not Peripheral. SAnyhoo, I ned to file an appeal, so any info would be helpful. gunny PeoplePC Online A better way to Internet http://www.peoplepc.com
Re: [TMIC] Lyrica and my EMG results-- my update
I started at 50mg three times a day, then increased it after a couple of weeks. I didn't wean off neurontin but started lyrica immediately after stopping neurontin with no problems. Priscilla in spooky TN
Re: [TMIC] Lyrica and my EMG results-- my update
Thanks. Three times a day? Did you start at that dose or did the docs increase it? Sharon --from Arizona TM 1997 to MS 1998 It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant http://health.groups.yahoo.com/group/MSersLife/ - Original Message From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>To: [EMAIL PROTECTED]; tmic-list@eskimo.comSent: Saturday, October 28, 2006 10:37:32 PMSubject: Re: [TMIC] Lyrica and my EMG results-- my update I'm taking 75 mg three times a day at 10, 2, and 6pm. Priscilla in TN
Re: [TMIC] Lyrica and my EMG results-- my update
I'm taking 75 mg three times a day at 10, 2, and 6pm. Priscilla in TN
[TMIC] Lyrica and my EMG results-- my update
I had the EMG on my legs finally. I have been putting it off since January. I had already been told by one neuro that I had peripheral neuropathy and (as he abruptly walked out the door) "I can guarantee this isn't from MS because MS pain is not symmetrical" . So I ditched that neuro and I went back to my first neuro for the test. Guess what? There is is nothing wrong with my legs, according to the EMG. I asked "then why the heck do they hurt so bad?" Doc feels that the pain is caused from the lesions I have on both sides of my brain that governs sensory issues. So I guess that other jerky neuro who "Guaranteed" the pain wasn't from MS was not so correct, was he? lol I have been on 3200 mg. of Neurontin, 80 mg. of Baclofen, a little Klonopin, and 60 mg. of Cymbalta. The Cymbalta was started this summer and it cut the severe nocturnal leg pain in half. At least then I could sleep some. Now the past month the pain has been increasing again. The neuro wants me on Lyrica and I'm to wean off of the Neurontin. I'm staying on Cymbalta for now but we'll see what changes to make in 6 weeks. The problem is my insurance has denied the Lyrica. I was able to get samples of the Lyrica to start on while the doc fights the insurance. Yesterday was my first day on Lyrica. I know for sure it helped the Trigeminal Neuralgia pain and I think it helped my legs. For those on Lyrica--what time of day do you take it? Sharon --from Arizona TM 1997 to MS 1998 It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant http://health.groups.yahoo.com/group/MSersLife/
[TMIC] Lyrica
There have been extensive discussions about Lyrica on this list and I didn't pay much attention because it didn't concern me personally. My neuro has now started me on it and I have a couple of questions about dosage and side-effects. If some of you who are on Lyrica could write me directly, we won't fill everybody's mailbox. Thanks. Diane in Canada
Re: [TMIC] Lyrica
Trudy, My husband just recently started taking Lyrica and had the opposite result. After a few weeks of taking it, he has regained some sensation in his feet. He hasn't been able to feel his feet for almost 2 years and he could feel 3 of his toes last week. I can't say that it's a direct result of the Lyrica or if it is merely coincidental. He did have one bad side effect from the Lyrica - for the first week he was really hot and couldn't stop sweating (particularly his head). His doctor told him to stick with it and now that side effect has completely subsided and he's feeling better than he has in a long time. Michelle Atlanta, GA Trudy <[EMAIL PROTECTED]> wrote: > I was on 2400mg of Neurontin a day. New neuro switched me to 2 -75mg. of > Lyrica and 4-10mg of Baclophen and 3- 300mg of neurontin. My legs have since > become completely numb! So much so that I fell and wound up with a hair-line > fracture of the knee. In four years I haven't fallen that hard!! Back to the > wheelchair for six weeks. I can't feel my feet they are so numb. I use a > walker to get around but I felt very steady but now I'm not steady at all... > > Is it the lyrica or the baclophen that could cause this??? - Also have > headaches every day. > > > > Trudyin hot and thunderstorm Virginia > > > > I have found in the four years since I have had TM, using a walker at all > times, that people are really very, very kind. > > > > They smile at you, say hi or good morning, strangers offering to put my > walker in the car for me. Why is that?? cause we're different?? Rarely did > people smile and acknowledge me when I was not "challenged". We were all in > such a great rush! TM has certainly slowed down my life. > > > > P.S. Yesterday my neuro took me off baclophen! > > >
[TMIC] Lyrica
I was on 2400mg of Neurontin a day. New neuro switched me to 2 -75mg. of Lyrica and 4-10mg of Baclophen and 3- 300mg of neurontin. My legs have since become completely numb! So much so that I fell and wound up with a hair-line fracture of the knee. In four years I haven't fallen that hard!! Back to the wheelchair for six weeks. I can't feel my feet they are so numb. I use a walker to get around but I felt very steady but now I'm not steady at all... Is it the lyrica or the baclophen that could cause this??? - Also have headaches every day. Trudy in hot and thunderstorm Virginia I have found in the four years since I have had TM, using a walker at all times, that people are really very, very kind. They smile at you, say hi or good morning, strangers offering to put my walker in the car for me. Why is that?? cause we're different?? Rarely did people smile and acknowledge me when I was not "challenged". We were all in such a great rush! TM has certainly slowed down my life. P.S. Yesterday my neuro took me off baclophen!
Re: [TMIC] Lyrica
HI Trudy, I'm Stacy and had acute disseminated encephalomyelitis. It's been 5 yrs memeorial weekend. I was also on neurontin 1200mg 3x a day. As I decreased the neurontin and increased the lyrica (200mg 3x a day). I still had withdraw after I got off of the neurontin. I did it slowly but still got the headaches. If you get them, don't worry. They will go away. I also take oxycodone twice a day. I am on baclofen, valium, and zanaflex for the spasms. that is the whole spinal cord injury fact of it. I have left over damage on my spine that paralyzed me from right below my chest. I am dealinig with a pressure sore that I am sure that is making the spasms worse but I am getting surgery actually at the end of the month. What are the odds? lol. Anyhow I wanted to let you know what could happen since you are or were on a great deal of neurontin. I also love lyrica compared and love the fact the pills are smaller. LOL. I hope it works for you as well as it does for me. Stacy - Original Message - From: Trudy To: 'Alan Junghans' Cc: Transverse Myelitis Sent: Wednesday, May 17, 2006 8:40 AM Subject: [TMIC] Lyrica I have also just begun taking Lyrica. I've had TM 4 years, am able to use a walker to get around. I have been on 2400mg. of Neurontin. I told my new neuro that I was concerned about my memory loss... Of course turning 60 doesn't help. So I am to take 75mg. (lyrica) twice a day and start on Baclofen 5mg. twice a day (eventually to get to 10mg. 3xday) and each week decrease my Neurontin by 300.. For my birthday my brother treated me to a helicopter ride over New York City! What an incredible sight.. the world looks so beautiful from that height. Trudy in Virginia where the days have been awesome!
[TMIC] Lyrica
I have also just begun taking Lyrica. I've had TM 4 years, am able to use a walker to get around. I have been on 2400mg. of Neurontin. I told my new neuro that I was concerned about my memory loss... Of course turning 60 doesn't help. So I am to take 75mg. (lyrica) twice a day and start on Baclofen 5mg. twice a day (eventually to get to 10mg. 3xday) and each week decrease my Neurontin by 300.. For my birthday my brother treated me to a helicopter ride over New York City! What an incredible sight.. the world looks so beautiful from that height. Trudy in Virginia where the days have been awesome!
[TMIC] Lyrica + Insulin?
Hi Guys My husband had to stop taking Lyrica as he bloated right up and his legs and feel became so swollen he couldn’t walk. Apart from having TM he has type 2 diabetes. He has just started taking insulin for this and it suddenly occurred to me that once his blood sugar levels are better controlled that he might be OK on Lyrica. I expect this is just wishful thinking on my part because it helped with the pain levels dramatically and also gave him a twitch free very good night’s sleep. (And me!) Are any of you guys on both Lyrica and Insulin and how has it affected you? Have a good weekend Sally in the UK
Re: [TMIC] Lyrica Progress
Rob, Yeah I have to agree with you on the banding and my burning/pins and needles symptoms. I haven't noticed having the munchies as of yet though. Hopefully I won't gain weight like I did on Neurontin. So 150mg twice a day is your prescribed therapeutic dose? Alan in H-Town (Home of the up and coming Houston Texans minus Reggie Bush..haha!) - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Thursday, May 11, 2006 4:17 PM Subject: Re: [TMIC] Lyrica Progress YOU ARE NOW UP TO THE DOSE I HAVE BEEN ON SINCE OCTOBER. AT LEAST FOR ME LYRICA HAS HELPED THE BANDING, PINS & NEEDLES AND NUMBNESS MORE THAN ANY MEDICATION I HAVE TAKEN OVER THE PAST 8+ YEARS. THE ONLY SIDE EFFECT I HAVE FOUND IS LIKE MARINAL IT MAKES ME HUNGRY. ROB IN NEW JERSEY -Original Message-From: Alan Junghans <[EMAIL PROTECTED]>To: tmic-list@eskimo.comSent: Thu, 11 May 2006 08:11:53 -0500Subject: [TMIC] Lyrica Progress Just a little update on how my experience is going so far. I have just switched over to 2 - 75mg twice daily. I do feel a little groggy this morning, but nothing I can't deal with. The pain and burning sensations in my legs have gotten a little better, but I will wait until the full therapeutic dose is administered before getting too excited about it. Hasn't done anything for the excess gashaha!!! I don't think that is part of the deal anyway. So far so good, Alan
Re: [TMIC] Lyrica Progress
YOU ARE NOW UP TO THE DOSE I HAVE BEEN ON SINCE OCTOBER. AT LEAST FOR ME LYRICA HAS HELPED THE BANDING, PINS & NEEDLES AND NUMBNESS MORE THAN ANY MEDICATION I HAVE TAKEN OVER THE PAST 8+ YEARS. THE ONLY SIDE EFFECT I HAVE FOUND IS LIKE MARINAL IT MAKES ME HUNGRY. ROB IN NEW JERSEY -Original Message-From: Alan Junghans <[EMAIL PROTECTED]>To: tmic-list@eskimo.comSent: Thu, 11 May 2006 08:11:53 -0500Subject: [TMIC] Lyrica Progress Just a little update on how my experience is going so far. I have just switched over to 2 - 75mg twice daily. I do feel a little groggy this morning, but nothing I can't deal with. The pain and burning sensations in my legs have gotten a little better, but I will wait until the full therapeutic dose is administered before getting too excited about it. Hasn't done anything for the excess gashaha!!! I don't think that is part of the deal anyway. So far so good, Alan
[TMIC] Lyrica Progress
Just a little update on how my experience is going so far. I have just switched over to 2 - 75mg twice daily. I do feel a little groggy this morning, but nothing I can't deal with. The pain and burning sensations in my legs have gotten a little better, but I will wait until the full therapeutic dose is administered before getting too excited about it. Hasn't done anything for the excess gashaha!!! I don't think that is part of the deal anyway. So far so good, Alan
[TMIC] LYRICA and Fibro interesting
Hi Everybody I thought I would tell you about my nephew,he has Fibro, it been 13 years. He has started taking Lyrica, 75 mgs, just 3 days ago and after his first dose, at night, the next day his dull headache was gone. The second day he had a little bit of the headache but today he doesn't, he has these every day. He told me today that he thinks it has also helped with his joint and muscle pain too, some days are better then others. I will keep you up dated as he uses it longer and maybe this will help other with Fibro, he also has CFS. I hope his energy level will get better too, he said he seems more alert mentally, thinks that is cuz of his of headaches. He seems to feel better energy wise BUT will see if he feels better in a few more days. I hope this might give some of you a chance to think about asking to try Lyrica. I will let you all know in another 3-4 days how he feels. You all take care and hope you pain is just a little bit better. Love you all Sally NC
Re: [TMIC] Lyrica/Banding
I have banding as well in my legs, mostly my right calf and ankle...and lately seems worse than beforemy left even has a little in the foot area at times lately too... If there is something i can take to lesson the sensations , as I have no true deep pain I would...something to get thru the day time maybe, but I don't take my neurontin during the day, because I do not want to walk around like a zombie..right now I just live with what I feel every day. (tho right now it feels like it's regressing a little :( ) ~Brightest of Blessings~ ~Krissy ~ http://www.geocities.com/tmladyk/home.html ~I'm In pretty Good Shape For the Shape I am in~ ·.»§« ·´¯`·.,¸*¸,.·´¯`·.»§«·.»§« ·´May today there be peace within you. May you trust that you are exactly where you want to be. Life is not measured by how many breaths we take, but by the moments that take our breath away. Destiny is no matter of chance. It is a matter of choice. It is not a thing to be waited for, it is a thing to be achieved. ! ; ·.»§« ·´¯`·.,¸*¸,.·´¯`·.»§«·.»§« ·´¯`·.,¸*¸,.·´¯`·.»§«·. Cody Kidwell <[EMAIL PROTECTED]> wrote: Jude.I have had the banding but it has not really been that painful or bothersome compared to the burning and tingling in my lower extremities. I really can't say if the Lyrica has helped with he banding or not because I don't pay that much attention to the banding..Cody in Austin Yahoo! Mail Use Photomail to share photos without annoying attachments.
Re: [TMIC] Lyrica
Jude.I have had the banding but it has not really been that painful or bothersome compared to the burning and tingling in my lower extremities. I really can't say if the Lyrica has helped with he banding or not because I don't pay that much attention to the banding..Cody in Austin - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Sent: Thursday, February 23, 2006 8:36 PM Subject: Re: [TMIC] Lyrica In a message dated 2/23/2006 4:57:35 PM Central Standard Time, [EMAIL PROTECTED] writes: I have been on Lyrica for over two months now. I was taking Neurontin and Baclofen. I quit the neurontin and Baclofen a couple of years ago and started taking Effexor which worked pretty good for my pain. I also tried the Marinol but it made me feel to lethargic so I quit that pretty quick. I am now weaning myself off the Effexor. In about one more week I will be completely off the Effexor. The Lyrica seems to be working pretty good but I want to see how it works without any other medication for the pain. So for so good..Cody in Austin Cody, My interest in Lyrica is in the eradication of the terribly tight banding sensation that people talk about. I am plagued with a pretty good case of it around my torso. Has it helped you in that way too? Thanks, Jude Peace, Light and Lovefromme
[TMIC] Lyrica
I have been on Lyrica for over two months now. I was taking Neurontin and Baclofen. I quit the neurontin and Baclofen a couple of years ago and started taking Effexor which worked pretty good for my pain. I also tried the Marinol but it made me feel to lethargic so I quit that pretty quick. I am now weaning myself off the Effexor. In about one more week I will be completely off the Effexor. The Lyrica seems to be working pretty good but I want to see how it works without any other medication for the pain. So for so good..Cody in Austin
[TMIC] LYRICA
HI ALL, I AM RECENTLY BEEN PUT ON LYRICA FOR PAIN. I WAS WONDERING IF MOST OF YOU WERE ON LYRICA, OR HEARD ABOUT IT'S EFFECTIVE ON NEURO PAIN? I AM ALSO ON VICADIN 7/750 EVERY 4 HOURS. THANK YOU. DENNIS BEAUMONT, TX What are the most popular cars? Find out at Yahoo! Autos
Re: [TMIC] Lyrica
Hi Priscilla, Welcome back - I hope you will regularly write and keep us informed on how you are doing. I'm glad you discovered Neurontin was the cause of the diarrhea - it's not a nice thing to have to deal with that when you have TM! Lyrica is a great med. I also take Cymbalta - I like it as well. Thank you for sharing your experiences with us. We are here to support each other - and I have learned a lot since I have been here - and also have made some great friends along the way! Blessings Linda in Bothell, WA -- Original message -- From: [EMAIL PROTECTED] I don't write often, but I read the posts every day. I am 63 and I have had TM since May of 2001. I can walk short distances like from my front door down the sidewalk to a car, and then my legs get weak, and I have to sit a while. I have very little use of my fingers, hands, and arms which makes it impossible to hold anything like a fork or book or newspaper, or bathe or dress myself. You can imagine me trying to go to the bathroom. I have had chronic diarrhea over 4 years until last week. I asked my doctor to prescribe Lyrica instead of Neurontin. So far it is working great for me and no more diarrhea three times a day! What a blessing to be regular again and no more accidents. I wish my doctor had found Neurontin was causing it long ago, instead of treating me for Crohn's Disease. Thanks to this website I have learned so much about TM and its treatment. I now take 75 mg. of Cymbalta once a day, 50 mg. of Lyrica 3 times a day, Oxytrol patches, and Proamatine for low bp twice a day. Next week I will increase the Lyrica to 75 mg. Lyrica is helping my mobility just a little more than Neurontin, but my legs feel colder. Its side effects for me are thirst and insomnia. Thank you, my friends, for sharing your experiences. I am feeling so much better. Priscilla in TN My prayers are with Tom Carr's family and friends. I do believe he has passed away.
[TMIC] Lyrica
I don't write often, but I read the posts every day. I am 63 and I have had TM since May of 2001. I can walk short distances like from my front door down the sidewalk to a car, and then my legs get weak, and I have to sit a while. I have very little use of my fingers, hands, and arms which makes it impossible to hold anything like a fork or book or newspaper, or bathe or dress myself. You can imagine me trying to go to the bathroom. I have had chronic diarrhea over 4 years until last week. I asked my doctor to prescribe Lyrica instead of Neurontin. So far it is working great for me and no more diarrhea three times a day! What a blessing to be regular again and no more accidents. I wish my doctor had found Neurontin was causing it long ago, instead of treating me for Crohn's Disease. Thanks to this website I have learned so much about TM and its treatment. I now take 75 mg. of Cymbalta once a day, 50 mg. of Lyrica 3 times a day, Oxytrol patches, and Proamatine for low bp twice a day. Next week I will increase the Lyrica to 75 mg. Lyrica is helping my mobility just a little more than Neurontin, but my legs feel colder. Its side effects for me are thirst and insomnia. Thank you, my friends, for sharing your experiences. I am feeling so much better. Priscilla in TN My prayers are with Tom Carr's family and friends. I do believe he has passed away.
Re: [TMIC] Lyrica
I'm paraplegic from ADEM and wear them bc of swelling. The help the circulation. If I were you, I would take the advice of your doctor. Stacy - Original Message - From: ROBERT COOK To: tmic-list@eskimo.com Sent: Friday, January 13, 2006 12:39 PM Subject: Re: [TMIC] Lyrica DO BE CAREFUL OF SUPPORT HOSIERY, YOU DO NOT WANT TO RESTRICT BLOOD FLOW IN YOUR LEGS, ANY AT ALL. IF YOU HAVE SWELLING, I SUGGEST YOU LIE DOWN AND/OR PROP YOUR FEET UP LOTS. BOB T-1, PARA This electronic message is confidential and is intended only for the use of the individual to whom it is addressed. The information may also be legally privileged. This transmission is sent in trust, for the sole purpose of delivery to the intended recipient. If you have received this transmission in error, you are hereby notified, that any use, dissemination, distribution or reproduction of this, transmission is strictly prohibited. If you are not the intended, recipient, please immediately notify me by reply electronic message and delete the message from your system. IRS Circular 230 Notice: Any advice contained in this message was not written and is not intended to be used, and cannot be used, by any taxpayer for the purpose of avoiding penalties with respect to taxes that may be imposed upon the taxpayer. - Original Message - From: To: [EMAIL PROTECTED];tmic-list@eskimo.com Sent: 1/12/2006 4:27:52 PM Subject: Re: [TMIC] Lyrica Have you tried the support knee hi's? I just happend to have a pair that I purchased years ago and put them on today. Really seems to help. I do not mean the prescription kind but the kind that you can buy anywhere. Ann in Virginia
Re: [TMIC] Lyrica (Tequila)
Well, te he ... I've heard very very unofficially that tequila is a banned substance in Canada :>):>):>) just kidding. Maybe the Scots in charge over there would rather everybody drink a good single malt instead. Eh Bobberino From: Heather & Pieter To: Rod, Karyne & Tyler Jenke ; 'BobbyJim' ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Cc: [EMAIL PROTECTED] Sent: Thursday, January 12, 2006 7:58 PM Subject: Re: [TMIC] Lyrica (Tequila) Actually I've never had tequila but it does sound interesting. Never heard the little ditty either. I'd really have to be careful as most of us would as FLOOR would NOT be good. Heather in Calgary From: Rod, Karyne & Tyler Jenke To: 'BobbyJim' ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Cc: [EMAIL PROTECTED] Sent: Thursday, January 12, 2006 6:14 PM Subject: RE: [TMIC] Lyrica (Tequila) Yum! We must all be careful though while consuming so as not to live up to the little ditty: One tequila, two tequila, three tequila, FLOOR! Love Karyne
Re: [TMIC] Lyrica
DO BE CAREFUL OF SUPPORT HOSIERY, YOU DO NOT WANT TO RESTRICT BLOOD FLOW IN YOUR LEGS, ANY AT ALL. IF YOU HAVE SWELLING, I SUGGEST YOU LIE DOWN AND/OR PROP YOUR FEET UP LOTS. BOB T-1, PARA This electronic message is confidential and is intended only for the use of the individual to whom it is addressed. The information may also be legally privileged. This transmission is sent in trust, for the sole purpose of delivery to the intended recipient. If you have received this transmission in error, you are hereby notified, that any use, dissemination, distribution or reproduction of this, transmission is strictly prohibited. If you are not the intended, recipient, please immediately notify me by reply electronic message and delete the message from your system. IRS Circular 230 Notice: Any advice contained in this message was not written and is not intended to be used, and cannot be used, by any taxpayer for the purpose of avoiding penalties with respect to taxes that may be imposed upon the taxpayer. - Original Message - From: To: [EMAIL PROTECTED];tmic-list@eskimo.com Sent: 1/12/2006 4:27:52 PM Subject: Re: [TMIC] Lyrica Have you tried the support knee hi's? I just happend to have a pair that I purchased years ago and put them on today. Really seems to help. I do not mean the prescription kind but the kind that you can buy anywhere. Ann in Virginia
Re: [TMIC] Lyrica (Tequila)
Karyne, That is one of the funniest things I have ever heard! I doubt I'd make it past the first Tequila! Linda in Bothell, WA -- Original message -- From: Heather & Pieter <[EMAIL PROTECTED]> Actually I've never had tequila but it does sound interesting. Never heard the little ditty either. I'd really have to be careful as most of us would as FLOOR would NOT be good. Heather in Calgary - Original Message - From: Rod, Karyne & Tyler Jenke To: 'BobbyJim' ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Cc: [EMAIL PROTECTED] Sent: Thursday, January 12, 2006 6:14 PM Subject: RE: [TMIC] Lyrica (Tequila) Yum! We must all be careful though while consuming so as not to live up to the little ditty: One tequila, two tequila, three tequila, FLOOR! Love Karyne From: BobbyJim [mailto:[EMAIL PROTECTED] Sent: Friday, 13 January 2006 10:51 AMTo: [EMAIL PROTECTED]; tmic-list@eskimo.comCc: [EMAIL PROTECTED]Subject: Re: [TMIC] Lyrica (Tequila) Ah yes, tequila the mexican gawds' elixir of choice. Great stuff, but stay away from the cheapies... they burn too much going down. The premium stuff is superb. It helps me forget the daily vicissitudes when I get home from work. Bobberino From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Thursday, January 12, 2006 10:53 AM Subject: [TMIC] Lyrica (Tequila) That is the best med for Terry... Helps me a bit, too, (when he's suffering)... Sandy I DON'T KNOW WHY A BIT OF TEQUILA ON A DAILY BASIS WOULD NOT DO THE SAME THING, --No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.371 / Virus Database: 267.14.17/228 - Release Date: 12/01/2006 --No virus found in this outgoing message.Checked by AVG Free Edition.Version: 7.1.371 / Virus Database: 267.14.17/228 - Release Date: 12/01/2006 No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.371 / Virus Database: 267.14.17/227 - Release Date: 1/11/2006
Re: [TMIC] Lyrica (Tequila)
even better
- Original Message -
From:
Gillian
Clark
To: TM list
Sent: Thursday, January 12, 2006 6:20
PM
Subject: Re: [TMIC] Lyrica
(Tequila)
oh Karyne,
with a little bit of careful planning it can be
"one tequila,
two tequila, three tequila, BED and hopefully
unconscious!
Gillywww.originaltouchofgilly.com
- Original Message -
From:
Rod,
Karyne & Tyler Jenke
To: 'BobbyJim' ; [EMAIL PROTECTED] ; tmic-list@eskimo.com
Cc: [EMAIL PROTECTED]
Sent: Friday, January 13, 2006 11:44
AM
Subject: RE: [TMIC] Lyrica
(Tequila)
Yum!
We must all be careful
though while consuming so as not to live up to the little
ditty:
One tequila, two
tequila, three tequila, FLOOR!
Love
Karyne
From:
BobbyJim [mailto:[EMAIL PROTECTED] Sent: Friday, 13 January 2006 10:51
AMTo: [EMAIL PROTECTED]; tmic-list@eskimo.comCc: [EMAIL PROTECTED]Subject: Re: [TMIC] Lyrica
(Tequila)
Ah yes, tequila
the mexican gawds' elixir of choice.
Great stuff,
but stay away from the cheapies... they burn too much going
down.
The premium
stuff is superb.
It helps me
forget the daily vicissitudes when I get home from
work.
Bobberino
From: [EMAIL PROTECTED]
To:
[EMAIL PROTECTED] ; tmic-list@eskimo.com
Sent: Thursday,
January 12, 2006 10:53 AM
Subject: [TMIC] Lyrica
(Tequila)
That
is the best med for Terry... Helps me a bit, too, (when
he's
suffering)...
Sandy
I
DON'T KNOW WHY A BIT OF
TEQUILA ON A DAILY BASIS WOULD NOT DO THE
SAME THING,
--No virus found in this incoming message.Checked by
AVG Free Edition.Version: 7.1.371 / Virus Database: 267.14.17/228 -
Release Date: 12/01/2006
--No virus found in this outgoing message.Checked by
AVG Free Edition.Version: 7.1.371 / Virus Database: 267.14.17/228 -
Release Date: 12/01/2006
No virus found in this incoming message.Checked by AVG Free
Edition.Version: 7.1.371 / Virus Database: 267.14.17/227 - Release Date:
1/11/2006
Re: [TMIC] Lyrica (Tequila)
Actually I've never had tequila but it does sound interesting. Never heard the little ditty either. I'd really have to be careful as most of us would as FLOOR would NOT be good. Heather in Calgary - Original Message - From: Rod, Karyne & Tyler Jenke To: 'BobbyJim' ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Cc: [EMAIL PROTECTED] Sent: Thursday, January 12, 2006 6:14 PM Subject: RE: [TMIC] Lyrica (Tequila) Yum! We must all be careful though while consuming so as not to live up to the little ditty: One tequila, two tequila, three tequila, FLOOR! Love Karyne From: BobbyJim [mailto:[EMAIL PROTECTED] Sent: Friday, 13 January 2006 10:51 AMTo: [EMAIL PROTECTED]; tmic-list@eskimo.comCc: [EMAIL PROTECTED]Subject: Re: [TMIC] Lyrica (Tequila) Ah yes, tequila the mexican gawds' elixir of choice. Great stuff, but stay away from the cheapies... they burn too much going down. The premium stuff is superb. It helps me forget the daily vicissitudes when I get home from work. Bobberino From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Thursday, January 12, 2006 10:53 AM Subject: [TMIC] Lyrica (Tequila) That is the best med for Terry... Helps me a bit, too, (when he's suffering)... Sandy I DON'T KNOW WHY A BIT OF TEQUILA ON A DAILY BASIS WOULD NOT DO THE SAME THING, --No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.371 / Virus Database: 267.14.17/228 - Release Date: 12/01/2006 --No virus found in this outgoing message.Checked by AVG Free Edition.Version: 7.1.371 / Virus Database: 267.14.17/228 - Release Date: 12/01/2006 No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.371 / Virus Database: 267.14.17/227 - Release Date: 1/11/2006
Re: [TMIC] Lyrica (Tequila)
oh Karyne, with a little bit of careful planning it can be "one tequila, two tequila, three tequila, BED and hopefully unconscious! Gillywww.originaltouchofgilly.com - Original Message - From: Rod, Karyne & Tyler Jenke To: 'BobbyJim' ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Cc: [EMAIL PROTECTED] Sent: Friday, January 13, 2006 11:44 AM Subject: RE: [TMIC] Lyrica (Tequila) Yum! We must all be careful though while consuming so as not to live up to the little ditty: One tequila, two tequila, three tequila, FLOOR! Love Karyne From: BobbyJim [mailto:[EMAIL PROTECTED] Sent: Friday, 13 January 2006 10:51 AMTo: [EMAIL PROTECTED]; tmic-list@eskimo.comCc: [EMAIL PROTECTED]Subject: Re: [TMIC] Lyrica (Tequila) Ah yes, tequila the mexican gawds' elixir of choice. Great stuff, but stay away from the cheapies... they burn too much going down. The premium stuff is superb. It helps me forget the daily vicissitudes when I get home from work. Bobberino From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Thursday, January 12, 2006 10:53 AM Subject: [TMIC] Lyrica (Tequila) That is the best med for Terry... Helps me a bit, too, (when he's suffering)... Sandy I DON'T KNOW WHY A BIT OF TEQUILA ON A DAILY BASIS WOULD NOT DO THE SAME THING, --No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.371 / Virus Database: 267.14.17/228 - Release Date: 12/01/2006 --No virus found in this outgoing message.Checked by AVG Free Edition.Version: 7.1.371 / Virus Database: 267.14.17/228 - Release Date: 12/01/2006
RE: [TMIC] Lyrica (Tequila)
Yum! We must all be careful though while consuming so as not to live up to the little ditty: One tequila, two tequila, three tequila, FLOOR! Love Karyne From: BobbyJim [mailto:[EMAIL PROTECTED] Sent: Friday, 13 January 2006 10:51 AM To: [EMAIL PROTECTED]; tmic-list@eskimo.com Cc: [EMAIL PROTECTED] Subject: Re: [TMIC] Lyrica (Tequila) Ah yes, tequila the mexican gawds' elixir of choice. Great stuff, but stay away from the cheapies... they burn too much going down. The premium stuff is superb. It helps me forget the daily vicissitudes when I get home from work. Bobberino From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Thursday, January 12, 2006 10:53 AM Subject: [TMIC] Lyrica (Tequila) That is the best med for Terry... Helps me a bit, too, (when he's suffering)... Sandy I DON'T KNOW WHY A BIT OF TEQUILA ON A DAILY BASIS WOULD NOT DO THE SAME THING, -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.371 / Virus Database: 267.14.17/228 - Release Date: 12/01/2006 -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.371 / Virus Database: 267.14.17/228 - Release Date: 12/01/2006
Re: RE: [TMIC] Lyrica
> I DON'T KNOW WHY A BIT OF TEQUILA ON A DAILY BASIS WOULD NOT DO THE SAME > THING, FROM WHAT YOU ALL ARE >POSTING, BESIDES, IT HAS MORE FAVORABLE SIDE > EFFECTS. I love it. F
Re: [TMIC] Lyrica (Tequila)
Ah yes, tequila the mexican gawds' elixir of choice. Great stuff, but stay away from the cheapies... they burn too much going down. The premium stuff is superb. It helps me forget the daily vicissitudes when I get home from work. Bobberino From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Thursday, January 12, 2006 10:53 AM Subject: [TMIC] Lyrica (Tequila) That is the best med for Terry... Helps me a bit, too, (when he's suffering)... Sandy I DON'T KNOW WHY A BIT OF TEQUILA ON A DAILY BASIS WOULD NOT DO THE SAME THING,
[TMIC] Lyrica (Tequila)
That is the best med for Terry... Helps me a bit, too, (when he's suffering)... Sandy I DON'T KNOW WHY A BIT OF TEQUILA ON A DAILY BASIS WOULD NOT DO THE SAME THING,
Re: [TMIC] Lyrica
Wow - someone else who didn't have luck with Lyrica. My legs got so weak I couldn't stand/walk alone. They still don't feel as strong as they did before the Lyrica (if you could say the word "strong"). I'm back to accupuncture (which really seems to be the best thing right now), riding my stationary bike for 10 minutes a day and swimming when I can get my legs to get me there! Margie in Naperville, IL where it is 53 degrees! On Thu, 12 Jan 2006 08:40:25 EST, AnnDillon wrote > > I tried Lyrica for about ten days. At the end of that time my walking was such that I did not know which way my legs would take me. Lyrica had the same effect on me that Baclofin (sp) did. I took the Lyrica in November. I am now walking better but my legs still feel like wooden solders and they did not feel like this prior to the Lyrica. My insurance company would pay for it so am certainly sorry it did not help me. > > > Ann in Virginia -- WOW! Homepage (http://www.wowway.com)
Re: [TMIC] Lyrica
Have you tried the support knee hi's? I just happend to have a pair that I purchased years ago and put them on today. Really seems to help. I do not mean the prescription kind but the kind that you can buy anywhere. Ann in Virginia
RE: [TMIC] Lyrica
I DON'T KNOW WHY A BIT OF TEQUILA ON A DAILY BASIS WOULD NOT DO THE SAME THING, FROM WHAT YOU ALL ARE POSTING, BESIDES, IT HAS MORE FAVORABLE SIDE EFFECTS. AS: Do you have feelings of inadequacy? Do you suffer from shyness? Do you sometimes wish you were more assertive? If you answered yes to any of these questions, ask your doctor or pharmacist about Tequila®. Tequila® is the safe, natural way to feel better and more confident about yourself and your actions. Tequila® can help ease you out of your shyness and let you tell the world that you're ready and willing to do just about anything. You will notice the benefits of Tequila® almost immedia! tely, and with a regimen of regular doses you can overcome any obstacles that prevent you from living the life you want to live. Shyness and awkwardness will be a thing of the past, and you will discover many talents you never knew you had. Stop hiding and start living, with Tequila®. ! Tequila® may not be right for everyone. Women who are pregnant or nursing should not use Tequila®. However, women who wouldn't mind nursing or becoming pregnant are encouraged to try it. Side effects may include dizziness, nausea, vomiting, incarceration, erotic lustfulness, loss of motor control, loss of clothing, loss of money, loss of virginity, delusions of grandeur, table dancing, headache, dehydration, dry mouth, and a desire to sing Karaoke and play all-night rounds of Stri! p Poker, Truth Or Dare, and Naked Twister. - Original Message - From: To: tmic-list@eskimo.com Sent: 1/12/2006 7:51:56 AM Subject: [TMIC] Lyrica I tried Lyrica for about ten days. At the end of that time my walking was such that I did not know which way my legs would take me. Lyrica had the same effect on me that Baclofin (sp) did. I took the Lyrica in November. I am now walking better but my legs still feel like wooden solders and they did not feel like this prior to the Lyrica. My insurance company would pay for it so am certainly sorry it did not help me. Ann in Virginia
[TMIC] Lyrica
I tried Lyrica for about ten days. At the end of that time my walking was such that I did not know which way my legs would take me. Lyrica had the same effect on me that Baclofin (sp) did. I took the Lyrica in November. I am now walking better but my legs still feel like wooden solders and they did not feel like this prior to the Lyrica. My insurance company would pay for it so am certainly sorry it did not help me. Ann in Virginia
Re: [TMIC] TMIC Lyrica
I also took the Lyrica and could not tolerate it. Definitely caused muscle weakness in legs. Did not have any trouble getting approval for it from Anthem here in Virginia. Physician had to write and as soon as he did drug was approved. Just wish I could take it. Would certainly be nice to have something that would help.
[TMIC] TMIC Lyrica
Hi Mary Eden, I don't know the cost of Lyrica, but it has been suggested to me that I do exactly that and I will call the drug rep about it. I think it is pretty expensive, as there is no generic form yet. So I've heard. I will find out though. Thanks - Hugs to you Linda in Bothell, WA
[TMIC] TMIC Lyrica
Robert, Loved your response! Linda in Bothell, WA
[TMIC] TMIC Lyrica
Hi Debbie, I have Regence Blue Shield. Funny thing, when I was giving myself high doses of methotrexate shots, they were willing to pay for my anti-nausea drug which $54.00!!! per pill!! My neurologist says he won't give up. He will go some research on other drugs, write another letter to Regence and cc it to the Insurance Commissioner. We'll see what happens. It's ridiculous. Linda in snowy, icy Bothell, WA
Re: [TMIC] TMIC Lyrica
Linda & Rob and all, You can take the rest of my perscription! I was doing so well for a while there with the leg weakness and then I started on Lyrica. I started slow for a couple of weeks, then I noticed I could hardly make it up the stairs at night. I also couldn't even button a blouse. I couldn't figure out what was wrong. (I also couldn't "go" to the bathroom for days) I finally looked at the side effects sheet and lo and behold - muscle weakness/decreased manually dexterity/constipation. It never gave me the relief I hoped for either. I know I was on a very low dose and maybe I should have stuck it out but I couldn't even function. I'd rather live with the pain than not be able to function in the shortened capacity that I already have to live with. I'll buy it for you and send you the bill! Margie in Naperville, IL On Thu, 01 Dec 2005 04:17:01 +, cherpent wrote > Rob, > > I'm so glad you have had such success with Lyrica. My neuro gave me a month supply to see if it agreed with me and helped me. Well I had no side effects and it was the first time in almost 4 years with TM that I have had any relief from the constant burning, tingling etc. So my neuro called in a prescription for me. > > Long story short, after 4 appeals, my insurance company will NOT pay for it because it is marketed for those with neuropathic pain associated with diabetes. So I cannot get it! And I am back to the same old burning etc on the neurontin. It only takes the edge off. Really wish I could get the Lyrica back!!! > > Good luck - I hope it continues to work wonders for you. > > Linda in Bothell, WA -- WOW! Homepage (http://www.wowway.com)
[TMIC] TMIC Lyrica
Rob, I'm so glad you have had such success with Lyrica. My neuro gave me a month supply to see if it agreed with me and helped me. Well I had no side effects and it was the first time in almost 4 years with TM that I have had any relief from the constant burning, tingling etc. So my neuro called in a prescription for me. Long story short, after 4 appeals, my insurance company will NOT pay for it because it is marketed for those with neuropathic pain associated with diabetes. So I cannot get it! And I am back to the same old burning etc on the neurontin. It only takes the edge off. Really wish I could get the Lyrica back!!! Good luck - I hope it continues to work wonders for you. Linda in Bothell, WA
[TMIC] Lyrica
I have not posted in a long time because I really had nothing to say. Now I do! I saw Dr. Kerr around 6 weeks ago. He prescribed Lyrica at that time. It took a few weeks to build up to my prescribed dosage. At first I had some poor side effects such as cramping and constipation. I contacted Dr. Kerr and he said to give it a little time as my body was probably adjusting to the new med. He was right! I have now been on Lyrica for about 6 weeks and I can say now that the drug has truly helped. I have had TM for over 8 years and this is the first drug to help the pins and needles, numbness and banding. I am really excited about how this drug has helped me and I hope other TM'rs will speak to their neuro's and see if it may benefit them as well. Rob in New Jersey
Re: [TMIC] Lyrica
Ann I started taking it 2 weeks ago in small doses. I haven't felt any huge improvement but I have had NO SIDE EFFECTS- which for me is huge! I'm hoping as I increase the dosage it will help more. Margie in IL On Fri, 11 Nov 2005 21:19:26 EST, AnnDillon wrote > > Is anyone talking Lyrica and if so has it made your legs feel stiff? Also want to know if it has helped anyone. Thanks > > Ann in Virginia -- WOW! Homepage (http://www.wowway.com)
[TMIC] Lyrica
Hi Ann, My neuro gave me a one month's supply of Lyrica to sample. I could not believe the relief from the constant burning, tingling etc! I virtually had none. I did not have stiff legs from it - in fact I had NO side effects at all. But I started slowly, gradually increasing to the full dosage. However, when my neuro called in the prescription for me, my insurance company denied cov for the drug. So my neuro has called my ins co and also has written a letter. Hopefully, I will be able to get it again as I have the burning back! It is a brand new drug and I am told it is very expensive. Are you taking it now ? And having stiffness in your legs? Or are you just considering trying it. Oh it was so well worth it for me. I hope it works for you. Hugs Linda in "hailing right now" Bothell, WA
[TMIC] Lyrica
Is anyone talking Lyrica and if so has it made your legs feel stiff? Also want to know if it has helped anyone. Thanks Ann in Virginia
Re: [TMIC] Lyrica
You are funny Ann. What a unique and novel way to get him to listen to you and pay attention. If you figure out how to lose that 15 lbs please post it here. I know I'd like the recipe. I could stand to lose twice that. I'm trying but only 5 1/2 lbs in a month. Sheesh. Heather in Calgary - Original Message - From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Sunday, November 06, 2005 12:25 PM Subject: [TMIC] Lyrica Was so excited - saw my neurologist on this past Wednesday and he put me on Lycia. He gave me a couple of samples. Went to pharmacy today to pick up prescription and realize that I should have gotten on my knees and thanked him for samples. Boy is that stuff expensive. I know some of you are on Lyrica - is it worth the additional money over Neurotin /Gabapentin? Actually it was quite interesting seeing my doctor. He is not one that you can get to talk to you at great lengths and lord forbid he would ever return a phone call. Anyway, I made a sign and put on the door to the examing room saying Medicine men pow -wow. Paleface beware. Then on the examing table I had lined up all the medicine that has been suggested to me plus flashcards for medicine that you guys have suggested. He actually went over everything. and on top of that he promised if I lost l5 pounds he would return two phone calls. Guess he figured he was safe but I might surprise the fool. Have a great Sunday. Ann in Virginia No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.362 / Virus Database: 267.12.8/162 - Release Date: 11/5/2005
[TMIC] Lyrica
Was so excited - saw my neurologist on this past Wednesday and he put me on Lycia. He gave me a couple of samples. Went to pharmacy today to pick up prescription and realize that I should have gotten on my knees and thanked him for samples. Boy is that stuff expensive. I know some of you are on Lyrica - is it worth the additional money over Neurotin /Gabapentin? Actually it was quite interesting seeing my doctor. He is not one that you can get to talk to you at great lengths and lord forbid he would ever return a phone call. Anyway, I made a sign and put on the door to the examing room saying Medicine men pow -wow. Paleface beware. Then on the examing table I had lined up all the medicine that has been suggested to me plus flashcards for medicine that you guys have suggested. He actually went over everything. and on top of that he promised if I lost l5 pounds he would return two phone calls. Guess he figured he was safe but I might surprise the fool. Have a great Sunday. Ann in Virginia
