Re: [TMIC] MS drugs for TM
If you do not now have MS, I would suggest staying clear of those heavy-duty MS treatments. However, some of the newer medications which prevent seizures, spasms, convulsions, relapses, and inflamed nerves, can be used for both MS and TM. I know this due to my having been diagnosed with MS in January with classic MS symptoms; then with TM in April after an attack of convulsions and other symptoms linked to TM, then getting Lyrica and epileptic anti-seizure medications. Brain MRIs showing lesions are indeed suggestive of MS. Good luck Dalton Garis Abu Dhabi, UAE On 21/8/10 3:18 AM, "bobby jim" wrote: > My wife has been on Avonex since March 1999 and she's never had any worse > sideeffects than the usual aches and cold symptoms that have been predicted. > > Each patient is unique and side effects will vary from one to another. > > BobbyJim in Elvisland >> >> - Original Message - >> >> From: Kelly Jean Craig <mailto:n2resea...@yahoo.com> >> >> To: tmic-list@eskimo.com >> >> Sent: Thursday, August 19, 2010 12:37 >> >> Subject: [TMIC] MS drugs for TM >> >> >> >> Hi Everyone, >> >> I was Dx with TM in May and have recovered quite well after being >> temporarily paralyzed. However, I still suffer from the sensory, >> coordination, bladder and sexual problems. I have just been prescribed >> gabapentin for my neuropathy. >> >> After meeting with four different neurologists, one is of the opinion that I >> should take MS therapies to prevent future relapses. Even though he says I >> do not have MS, he calls it a clinically isolated syndrome. Since my brain >> MRI is abnormal, he suggests that my risk of really having MS is extremely >> high. >> >> I just wanted to ask if your neurologists recommended taking interferon beta >> or copaxone therapies? The side effects are pretty horrendous and I am >> really concerned about quality of life, but at the same time, I don't want >> to have another episode and be paralyzed permanently. I would greatly >> appreciate any feedback on experiences, side effects, etc. >> >> Thanks, >> Kelly Jean >> >> Dalton H. Garis, Ph.D. Associate Professor of Economics And Petroleum Market Behavior The Petroleum Institute P.O. Box 2533, Umm al Nar Abu Dhabi, United Arab Emirates Office: +971-02-607-5070/5297 Mobile: +971-50-668-5760--
Re: [TMIC] MS drugs for TM
My wife has been on Avonex since March 1999 and she's never had any worse sideeffects than the usual aches and cold symptoms that have been predicted. Each patient is unique and side effects will vary from one to another. BobbyJim in Elvisland - Original Message - From: Kelly Jean Craig To: tmic-list@eskimo.com Sent: Thursday, August 19, 2010 12:37 Subject: [TMIC] MS drugs for TM Hi Everyone, I was Dx with TM in May and have recovered quite well after being temporarily paralyzed. However, I still suffer from the sensory, coordination, bladder and sexual problems. I have just been prescribed gabapentin for my neuropathy. After meeting with four different neurologists, one is of the opinion that I should take MS therapies to prevent future relapses. Even though he says I do not have MS, he calls it a clinically isolated syndrome. Since my brain MRI is abnormal, he suggests that my risk of really having MS is extremely high. I just wanted to ask if your neurologists recommended taking interferon beta or copaxone therapies? The side effects are pretty horrendous and I am really concerned about quality of life, but at the same time, I don't want to have another episode and be paralyzed permanently. I would greatly appreciate any feedback on experiences, side effects, etc. Thanks, Kelly Jean
Re: [TMIC] MS drugs for TM
Kelly, Very few TM patients respond to MS drugs. Mostly MS patients respond, though. I would get connected to the neurology department of a major teaching hospital. Where do you live? I can be your "Google" to get you to the closest best hospital. (I used to be a Family Dr., now am a professional patient.) I'm sorry we had to meet this way. I was afflicted with TM for just over 10 years and discovered this site 9 years ago. Take care Frank
Re: [TMIC] MS drugs for TM
Hi Kelley, I was hit with TM in 2005 and went through paralysis from the right leg down, horrific pain in gluts and around waist and had coordination issues. Less than a year later, just as the neuro predicted, I had bladder problems which put me in the hospital. That was no laughing matter. I too was treated as if it were early MS, even though it was not. I was but on beta but not copaxion. There was brief discussion of that possibility in the future but that never materialized. I am GLAD that the doc treated me so seriously because NOW I AM WALKING Walking is a BIG BIG DEAL! LISTEN to the doctor, don't listen to common folks. You can go for second opinions if you like. "A bird in hand is better than two in flight," so the saying goes. I battled with this condition for years!!! My neuro did NOT recommend PT but I went for a second opinion, which was hard to find someone to give me one, and it was actually hard for me to find someone who was willing to send me to a good PT. Before the PT, I could NOT cross my legs. Actually, I could barely drag my foot over the other. The PT was one of the BEST events. I learned how to stretch my leg and other muscles on my own. Eventually, I was able to walk a tread mill without falling off (sideways lol). One good summer on the tread mill for about 2 hours a day got me to where I could jog again but not run. That was in 2007. Another doc, that I went to for a second opinion, gave me bachlofen (sp.) and it made a HUGE different in pain management, sleep, and recovery. Another doc put me on neurotin (gabepiten) and tegretal and both made the pain go away so I could at least sleep!! and have a life. Now, I am pain free, can RUN, and only occasionally have pain and tightness in specific spots in my right leg, right glut and lower back - usually about 5 am or so. I was persistent because I did NOT want to continue life that way. I chose to mentally reject the notion that I would never walk again although THREE different doctors from two facilities told me that the best shot I had was to save my left leg and my bladder before it was too late. Now, I don't believe that one can simply "not believe" something and that changes things. I do have faith, believe in prayer, believe that faith makes a difference, and also believe that our mind can impact our bodies. However, that doesn't just simply mean we can "wish" something away. i know this isn't a philosophy or religious site; however, many of us have experienced miracles and my not so religious neuro said that I was a "walking miracle." Interestingly, aside from the TM, I had non TM related neurological issues. My fatigue level was through the roof, or rather, in the basement. For quite some time, I was not able to get myself up in the morning and within 15 minutes my energy level would crash. I felt like I was in constant jet lag. I also had memory problems, esp with names. Concentration was a huge issue and I grew heavily depressed. THEN the walking suddenly came to a stop and along came the TM related pain and funny feelings. During that time, I really felt ostracized by most of the doctors that I went to; however, I was relentless and determined to get a treament that worked for me. The doctors were a pain in the butt - I don't know if doctors realize just how they come across to us sometimes. Seeing different people allowed different ideas and perspectives and a piece of the puzzle to come together with each new practitioner. Hope this helps. From: Kelly Jean Craig To: tmic-list@eskimo.com Sent: Thu, August 19, 2010 1:37:29 PM Subject: [TMIC] MS drugs for TM Hi Everyone, I was Dx with TM in May and have recovered quite well after being temporarily paralyzed. However, I still suffer from the sensory, coordination, bladder and sexual problems. I have just been prescribed gabapentin for my neuropathy. After meeting with four different neurologists, one is of the opinion that I should take MS therapies to prevent future relapses. Even though he says I do not have MS, he calls it a clinically isolated syndrome. Since my brain MRI is abnormal, he suggests that my risk of really having MS is extremely high. I just wanted to ask if your neurologists recommended taking interferon beta or copaxone therapies? The side effects are pretty horrendous and I am really concerned about quality of life, but at the same time, I don't want to have another episode and be paralyzed permanently. I would greatly appreciate any feedback on experiences, side effects, etc. Thanks, Kelly Jean
[TMIC] MS drugs for TM
Hi Everyone, I was Dx with TM in May and have recovered quite well after being temporarily paralyzed. However, I still suffer from the sensory, coordination, bladder and sexual problems. I have just been prescribed gabapentin for my neuropathy. After meeting with four different neurologists, one is of the opinion that I should take MS therapies to prevent future relapses. Even though he says I do not have MS, he calls it a clinically isolated syndrome. Since my brain MRI is abnormal, he suggests that my risk of really having MS is extremely high. I just wanted to ask if your neurologists recommended taking interferon beta or copaxone therapies? The side effects are pretty horrendous and I am really concerned about quality of life, but at the same time, I don't want to have another episode and be paralyzed permanently. I would greatly appreciate any feedback on experiences, side effects, etc. Thanks, Kelly Jean
Re: [TMIC] MS Pills Work, Carry Severe Side Effects
There's an article someone sent on the ms websight. I'll repost it for ya on my facebook for those of you that have me on facebook. Its the same guy from NPR. Said one side effect could be cancer. Jay leno would have fun with this discussion. --Original Message-- From: Grace M. To: tmic-list@eskimo.com Subject: [TMIC] MS Pills Work, Carry Severe Side Effects Sent: Jan 21, 2010 8:57 PM ATLANTA -- Tests of the first two oral drugs developed for treating multiple sclerosis show that both cut the frequency of relapses and may slow progression of the disease, but with side effects that could pose a tough decision for patients. Two experts not involved in the studies said the drugs appear effective but with potentially dangerous side effects. It's too soon to know if the pills will be approved by the government or widely adopted by physicians, they said. CONTINUED AT: http://www.wfsb.com/health/22285876/detail.html <http://www.wfsb.com/health/22285876/detail.html> Sent from my Verizon Wireless BlackBerry
[TMIC] MS Pills Work, Carry Severe Side Effects
*ATLANTA -- *Tests of the first two oral drugs developed for treating multiple sclerosis show that both cut the frequency of relapses and may slow progression of the disease, but with side effects that could pose a tough decision for patients. Two experts not involved in the studies said the drugs appear effective but with potentially dangerous side effects. It's too soon to know if the pills will be approved by the government or widely adopted by physicians, they said. CONTINUED AT: http://www.wfsb.com/health/22285876/detail.html
Re: [TMIC] MS
Isn't it capoxel? (sp). It was in shot form only but now in pill. --Original Message-- From: Laura Beaudin To: bgunny7...@aol.com Cc: Tmic-list@eskimo.com Subject: Re: [TMIC] MS Sent: Jan 21, 2010 5:50 PM How can someone even claim this if they still aren't even sure what causes MS? A little putting the cart before the horse, no? What studies and clinical trials have been done? And what's the name of this pill? Laura http://www.bananga.com ...empowering ourselves! On Practical-Homeschooling: Resourcefulness http://www.practical-homeschooling.org View my photo albums: http://www.flickr.com/photos/khaleeka/ On 21/01/2010 2:21 PM, bgunny7...@aol.com wrote: > Did anyone see Fox News today with a Dr. Steven Garner from New York > Methodist Hospital. Apparently he has discover a new pill for treating > MS that destroys the the cells that cause MS before they can do > damage. That's all I got from the show, but you can find it on Fox > News Network under health topics. Sent from my Verizon Wireless BlackBerry
Re: [TMIC] MS
How can someone even claim this if they still aren't even sure what causes MS? A little putting the cart before the horse, no? What studies and clinical trials have been done? And what's the name of this pill? Laura http://www.bananga.com ...empowering ourselves! On Practical-Homeschooling: Resourcefulness http://www.practical-homeschooling.org View my photo albums: http://www.flickr.com/photos/khaleeka/ On 21/01/2010 2:21 PM, bgunny7...@aol.com wrote: Did anyone see Fox News today with a Dr. Steven Garner from New York Methodist Hospital. Apparently he has discover a new pill for treating MS that destroys the the cells that cause MS before they can do damage. That's all I got from the show, but you can find it on Fox News Network under health topics.
Re: [TMIC] MS
It was on NPR yesterday. --Original Message-- From: bgunny7...@aol.com To: Tmic-list@eskimo.com Subject: [TMIC] MS Sent: Jan 21, 2010 4:21 PM Did anyone see Fox News today with a Dr. Steven Garner from New York Methodist Hospital. Apparently he has discover a new pill for treating MS that destroys the the cells that cause MS before they can do damage. That's all I got from the show, but you can find it on Fox News Network under health topics. Sent from my Verizon Wireless BlackBerry
[TMIC] MS
Did anyone see Fox News today with a Dr. Steven Garner from New York Methodist Hospital. Apparently he has discover a new pill for treating MS that destroys the the cells that cause MS before they can do damage. That's all I got from the show, but you can find it on Fox News Network under health topics.
RE: [TMIC] MS
Hi Janice - TM - 8/2002 then MS - 2/2008 BERNARD BUTCHER From: Janice [mailto:jan...@centurytel.net] Sent: Thursday, March 12, 2009 7:04 PM To: transverse myelitis Subject: [TMIC] MS I am curious to know how many of you with TM also are dealing with MS. I know there are similarities between the two, but I think some of you may have actually been diagnosed with both. One first and later on, the other. Just curious, Janice
[TMIC] MS
I am curious to know how many of you with TM also are dealing with MS.I know there are similarities between the two, but I think some of you may have actually been diagnosed with both. One first and later on, the other. Just curious, Janice
[TMIC] MS List
I know there's a great MS list available to anyone who wishes to join. I went to the MS website and there's quite a few and could not find the one Iam looking for. I know it's YAHOO but there are quite a few lists... any ideas.. Thanks Trudy
[TMIC] MS
Thanks F for the info. Rick
FW: [TMIC] MS drug /maybe??
Hi there This is excellent information, and the reason that I re-subscribed. I am a wife of a TM'er in the UK, and wanted to find out if this drug was suitable for people that have TM. In the UK the media never cover TM. Do we know yet? I only came back on line on Friday so I may have missed something regarding this matter! Any information would be greatly received. Many people helped me a great deal a couple of years ago, as I had so many questions, and a husband unwilling to ask, and doctors in the UK in the dark about TM. Thank you so much to those people. I must say that one of the reasons I did not stay on the list was that people said they would pray for me, which I found very upsetting and also annoying. In the subject heading I had no idea before I read their post that it would contain such statements, so I am not sure about the advice given to Sandy? How do you know to delete it before you have read it? And if you read it before deleting the damage is done. I am an atheist and I would never think to mention it. Positive thoughts can mean many things to many people, so why not just say that? Sandy and Rob are so right when they say it's just not a place for politics or religion. BUT if you mark the content in the subject heading and people on the list think they might be offended they can DELETE! Anyway this is just the opinion of a TM'ers wife from the UK! Please take no notice of my ramblings if it gives offence! Kind regards Sally in the UK! -Original Message- From: Trudy OGILVIE [mailto:[EMAIL PROTECTED] Sent: 25 October 2008 01:05 To: TMIC-LIST@eskimo.com Subject: [TMIC] MS drug /maybe?? My daughter saw this article on Yahoo and sent it on to me. Very interesting since some of us have TM/MS I thought you might want to read it... It's certainly an improvement over what's being going on with some of the TM'ers on this list. :) Frank. welcome back!! you certainly arrived with an agenda!!! Now read this article tell us what you think and then have your martini... There is always Hope! Trudy - Researchers at the University of Cambridge said they have found that alemtuzumab, a drug originally developed . > > LONDON (AFP) - Researchers at the University of Cambridge said Thursday they have found that a drug originally developed to treat leukaemia can halt and even reverse the debilitating effects of multiple sclerosis (MS). > > In trials, alemtuzumab reduced the number of attacks in sufferers and also helped them recover lost functions, apparently allowing damaged brain tissue to repair so that individuals were less disabled than at the start of the study. > > "The ability of an MS drug to promote brain repair is unprecedented," said Dr Alasdair Coles, a lecturer at Cambridge university's department of clinical neurosciences, who coordinated many aspects of the study. > > "We are witnessing a drug which, if given early enough, might effectively stop the advancement of the disease and also restore lost function by promoting repair of the damaged brain tissue." > > The MS Society, Britain's largest support charity for those affected by the condition, said it was "delighted" at the trial's results, which must be followed up with more research before the drug can be licensed. > > "This is the first drug that has shown the potential to halt and even reverse the debilitating effects of MS and this news will rightly bring hope to people living with the condition day in, day out," said head of research Lee Dunster. > > MS is an auto-immune disease that affects millions of people worldwide, including almost 100,000 in Britain and 400,000 in the United States. > > It is caused by the body's immune system attacking nerve fibres in the central nervous system, and can lead to loss of sight and mobility, depression, fatigue and cognitive problems. There is no cure, and few effective treatments. > > In the trial, 334 patients diagnosed with early-stage relapsing-remitting MS who had not previously been treated were given alemtuzumab or interferon beta-1a, one of the most effective licensed therapies for similar MS cases. > > After three years, alemtuzumab was found to reduce the number of attacks the patients suffered by 74 percent over the other treatment, and reduce the risk of sustained accumulation of disability by 71 percent over interferon beta-1a. > > Many individuals who took alemtuzumab also recovered some of their lost functions, becoming less disabled by the end, while the disabilities of the other patients worsened, the study in the New England Journal of Medicine said. > > Alastair Compston, professor of neurology and head of the clinical neurosciences department at Cambridge, said alemtuzumab was the "most promising" experimental drug for the treatment of MS. > > He expresse
RE: [TMIC] MS drug /maybe??
-Original Message- From: Sally Wilkinson [mailto:[EMAIL PROTECTED] Sent: Monday, October 27, 2008 11:13 AM To: Robert Pall Subject: FW: [TMIC] MS drug /maybe?? Hi Rob Have I gone totally nuts? I think I have sent this to the whole list by sending it to Trudy, but nothing bounced back at me, so maybe not! If I haven't how do I do it. Sorry sorry sorry! Your totally mad supporter in the UK! Sx -Original Message- From: Sally Wilkinson [mailto:[EMAIL PROTECTED] Sent: 27 October 2008 10:31 To: 'Trudy OGILVIE' Subject: RE: [TMIC] MS drug /maybe?? Importance: High Hi there This is excellent information, and the reason that I re-subscribed. I am a wife of a TM'er in the UK, and wanted to find out if this drug was suitable for people that have TM. In the UK the media never cover TM. Do we know yet? I only came back on line on Friday so I may have missed something regarding this matter! Any information would be greatly received. Many people helped me a great deal a couple of years ago, as I had so many questions, and a husband unwilling to ask, and doctors in the UK in the dark about TM. Thank you so much to those people. I must say that one of the reasons I did not stay on the list was that people said they would pray for me, which I found very upsetting and also annoying. In the subject heading I had no idea before I read their post that it would contain such statements, so I am not sure about the advice given to Sandy? How do you know to delete it before you have read it? And if you read it before deleting the damage is done. I am an atheist and I would never think to mention it. Positive thoughts can mean many things to many people, so why not just say that? Sandy and Rob are so right when they say it's just not a place for politics or religion. BUT if you mark the content in the subject heading and people on the list think they might be offended they can DELETE! Anyway this is just the opinion of a TM'ers wife from the UK! Please take no notice of my ramblings if it gives offence! Kind regards Sally in the UK! -Original Message- From: Trudy OGILVIE [mailto:[EMAIL PROTECTED] Sent: 25 October 2008 01:05 To: TMIC-LIST@eskimo.com Subject: [TMIC] MS drug /maybe?? My daughter saw this article on Yahoo and sent it on to me. Very interesting since some of us have TM/MS I thought you might want to read it... It's certainly an improvement over what's being going on with some of the TM'ers on this list. :) Frank. welcome back!! you certainly arrived with an agenda!!! Now read this article tell us what you think and then have your martini... There is always Hope! Trudy - Researchers at the University of Cambridge said they have found that alemtuzumab, a drug originally developed . > > LONDON (AFP) - Researchers at the University of Cambridge said Thursday they have found that a drug originally developed to treat leukaemia can halt and even reverse the debilitating effects of multiple sclerosis (MS). > > In trials, alemtuzumab reduced the number of attacks in sufferers and also helped them recover lost functions, apparently allowing damaged brain tissue to repair so that individuals were less disabled than at the start of the study. > > "The ability of an MS drug to promote brain repair is unprecedented," said Dr Alasdair Coles, a lecturer at Cambridge university's department of clinical neurosciences, who coordinated many aspects of the study. > > "We are witnessing a drug which, if given early enough, might effectively stop the advancement of the disease and also restore lost function by promoting repair of the damaged brain tissue." > > The MS Society, Britain's largest support charity for those affected by the condition, said it was "delighted" at the trial's results, which must be followed up with more research before the drug can be licensed. > > "This is the first drug that has shown the potential to halt and even reverse the debilitating effects of MS and this news will rightly bring hope to people living with the condition day in, day out," said head of research Lee Dunster. > > MS is an auto-immune disease that affects millions of people worldwide, including almost 100,000 in Britain and 400,000 in the United States. > > It is caused by the body's immune system attacking nerve fibres in the central nervous system, and can lead to loss of sight and mobility, depression, fatigue and cognitive problems. There is no cure, and few effective treatments. > > In the trial, 334 patients diagnosed with early-stage relapsing-remitting MS who had not previously been treated were given alemtuzumab or interferon beta-1a, one of the most effective licensed therapies for similar MS cases. > > After three years, alemtuzumab was found to reduce the number of attacks the patients suffered by 7
Re: [TMIC] MS drug /maybe??
Trudy, it would be really interesting to see what Dr. Kerr and his staff know about this. Jeanne in Dayton
[TMIC] MS drug /maybe??
My daughter saw this article on Yahoo and sent it on to me. Very interesting since some of us have TM/MS I thought you might want to read it... It's certainly an improvement over what's being going on with some of the TM'ers on this list. :) Frank. welcome back!! you certainly arrived with an agenda!!! Now read this article tell us what you think and then have your martini... There is always Hope! Trudy – Researchers at the University of Cambridge said they have found that alemtuzumab, a drug originally developed … > > LONDON (AFP) – Researchers at the University of Cambridge said Thursday they > have found that a drug originally developed to treat leukaemia can halt and > even reverse the debilitating effects of multiple sclerosis (MS). > > In trials, alemtuzumab reduced the number of attacks in sufferers and also > helped them recover lost functions, apparently allowing damaged brain tissue > to repair so that individuals were less disabled than at the start of the > study. > > "The ability of an MS drug to promote brain repair is unprecedented," said Dr > Alasdair Coles, a lecturer at Cambridge university's department of clinical > neurosciences, who coordinated many aspects of the study. > > "We are witnessing a drug which, if given early enough, might effectively > stop the advancement of the disease and also restore lost function by > promoting repair of the damaged brain tissue." > > The MS Society, Britain's largest support charity for those affected by the > condition, said it was "delighted" at the trial's results, which must be > followed up with more research before the drug can be licensed. > > "This is the first drug that has shown the potential to halt and even reverse > the debilitating effects of MS and this news will rightly bring hope to > people living with the condition day in, day out," said head of research Lee > Dunster. > > MS is an auto-immune disease that affects millions of people worldwide, > including almost 100,000 in Britain and 400,000 in the United States. > > It is caused by the body's immune system attacking nerve fibres in the > central nervous system, and can lead to loss of sight and mobility, > depression, fatigue and cognitive problems. There is no cure, and few > effective treatments. > > In the trial, 334 patients diagnosed with early-stage relapsing-remitting MS > who had not previously been treated were given alemtuzumab or interferon > beta-1a, one of the most effective licensed therapies for similar MS cases. > > After three years, alemtuzumab was found to reduce the number of attacks the > patients suffered by 74 percent over the other treatment, and reduce the risk > of sustained accumulation of disability by 71 percent over interferon beta-1a. > > Many individuals who took alemtuzumab also recovered some of their lost > functions, becoming less disabled by the end, while the disabilities of the > other patients worsened, the study in the New England Journal of Medicine > said. > > Alastair Compston, professor of neurology and head of the clinical > neurosciences department at Cambridge, said alemtuzumab was the "most > promising" experimental drug for the treatment of MS. > > He expressed hope that further trials "will confirm that it can both > stabilise and allow some recovery of what had previously been assumed to be > irreversible disabilities". > > Alemtuzumab was developed in Cambridge and has been licensed for the > treatment of chronic lymphocytic leukaemia. > > _ You live life beyond your PC. So now Windows goes beyond your PC. http://clk.atdmt.com/MRT/go/115298556/direct/01/
Re: [TMIC] MS ,BUT I WONT LEAVE
Hey, I have TM but usually spend sdignificant time on BrainTalk, MS group, out of Mass Gen. Hosp. The BrainTalk site has been down a long time this summer, so I haven't those friends lately. Take care, F
Re: [TMIC] MS ,BUT I WONT LEAVE
After I was dxed with MS I stayed on the TMIC for a while then I left because I felt I didn't really belong and I started an MS group. The MS group is great for info and chatting and fun with other MSers but when I was in such distress last winter I came back to TMIC. I felt at home again. (thanks everyone!) If you have MS, Jeff, I would welcome you at MSersLife. I would welcome any MSer to join us. We have a lot of detailed info pertaining to MS and any MSer would benefit. But TMIC will always be "home". Good luck with your testing! Sharon --from Arizona TM 1997 to MS 1998 It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant http://health.groups.yahoo.com/group/MSersLife/ - Original Message From: jeff bernier <[EMAIL PROTECTED]>To: tmic-list@eskimo.comSent: Tuesday, August 8, 2006 5:44:54 PMSubject: [TMIC] MS ,BUT I WONT LEAVE WELL,I HAVE AN MRI FOR NEXT WEEK,THEN THEY WILL MAKE THE DX OF MS DEPENDING ON THE RESULTS,MY LAST TAP CAME BACK + FOR ALL THE JUNK THEY SUSPECTED,IM NOT LOOKING FORWARD TO IT,MS SOUNDS SO FINAL.EVEN THOUGH IT OPENS A WHOLE NEW WORLD OF TREATMENTS AND OPTIONS,AND THE FIGHTS WITH THE INS COMPANIES WONT BE AS TOUGH,ILL NEVER LEAVE ANY OF YOU GUYS ON HERE,IVE BEEN ON THE LIST SINCE FEB 2000 AND IVE LEARNED SO MUCH FROM EVERYONE AND EVEN GOTTEN INTO A FEW DEBATES OVER THE YEARS,BUT I WANT TO THANK ALL OF YOU FOR THE DIFFERENCE YOUVE MADE IN MY LIFE.THATS WHAT SETS EVERYONE ON THE LIST APART FROM EVERYONE ELSE. AGAIN THANKS TO YOU ALL JEFF Get your email and more, right on the new Yahoo.com
Re: [TMIC] MS ,BUT I WONT LEAVE
Jeff, I'm right there with you. I have waited 6 months for my appointment with Dr. Kerr and hoping I will have a final diagnosis, but that sounds so FINAL. If I have MS, I too will remain with the list. I was SO lost until I found this TM group. Carol in Culver, IN - Original Message - From: jeff bernier To: tmic-list@eskimo.com Sent: Tuesday, August 08, 2006 8:44 PM Subject: [TMIC] MS ,BUT I WONT LEAVE WELL,I HAVE AN MRI FOR NEXT WEEK,THEN THEY WILL MAKE THE DX OF MS DEPENDING ON THE RESULTS,MY LAST TAP CAME BACK + FOR ALL THE JUNK THEY SUSPECTED,IM NOT LOOKING FORWARD TO IT,MS SOUNDS SO FINAL.EVEN THOUGH IT OPENS A WHOLE NEW WORLD OF TREATMENTS AND OPTIONS,AND THE FIGHTS WITH THE INS COMPANIES WONT BE AS TOUGH,ILL NEVER LEAVE ANY OF YOU GUYS ON HERE,IVE BEEN ON THE LIST SINCE FEB 2000 AND IVE LEARNED SO MUCH FROM EVERYONE AND EVEN GOTTEN INTO A FEW DEBATES OVER THE YEARS,BUT I WANT TO THANK ALL OF YOU FOR THE DIFFERENCE YOUVE MADE IN MY LIFE.THATS WHAT SETS EVERYONE ON THE LIST APART FROM EVERYONE ELSE. AGAIN THANKS TO YOU ALL JEFF Get your email and more, right on the new Yahoo.com
[TMIC] MS ,BUT I WONT LEAVE
WELL,I HAVE AN MRI FOR NEXT WEEK,THEN THEY WILL MAKE THE DX OF MS DEPENDING ON THE RESULTS,MY LAST TAP CAME BACK + FOR ALL THE JUNK THEY SUSPECTED,IM NOT LOOKING FORWARD TO IT,MS SOUNDS SO FINAL.EVEN THOUGH IT OPENS A WHOLE NEW WORLD OF TREATMENTS AND OPTIONS,AND THE FIGHTS WITH THE INS COMPANIES WONT BE AS TOUGH,ILL NEVER LEAVE ANY OF YOU GUYS ON HERE,IVE BEEN ON THE LIST SINCE FEB 2000 AND IVE LEARNED SO MUCH FROM EVERYONE AND EVEN GOTTEN INTO A FEW DEBATES OVER THE YEARS,BUT I WANT TO THANK ALL OF YOU FOR THE DIFFERENCE YOUVE MADE IN MY LIFE.THATS WHAT SETS EVERYONE ON THE LIST APART FROM EVERYONE ELSE. AGAIN THANKS TO YOU ALL JEFF Get your email and more, right on the new Yahoo.com
[TMIC] MS depression: clue to better treatment
MS depression: clue to better treatment PHILADELPHIA, -- U.S. neuropsychologists say depression increases in some patients with multiple sclerosis, and that finding might help in better treatment strategies. "Depressed mood in patients with multiple sclerosis changes more significantly over time than other stable depression symptoms such as a negative view of oneself or problems in sleep, fatigue, concentration, and appetite," said Peter Arnett, associate professor of psychology at Penn State University. In addition, data from the tests show a larger number of patients in the increased depressed mood group were also using interferon beta drugs to slow progression of the disease, but researchers say it is too early to say whether the drugs might be causing the depression. "At this point we can only make an inference but not a causal connection," said Arnett. "We have to understand the characteristics of how depression changes and evolves over time. A better understanding of the natural history of these changes might help inform better treatment strategies. This is the first study to have done this." The research appears in the Journal of Neurology, Neurosurgery and Psychiatry. Krissy ZoddaTri State Support Group Leader(603)589-1894http://www.geocities.com/tmladyk/home.html~I'm In pretty Good Shape For the Shape I am in~ Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.
[TMIC] MS depression: clue to better treatment
MS depression: clue to better treatment PHILADELPHIA, -- U.S. neuropsychologists say depression increases in some patients with multiple sclerosis, and that finding might help in better treatment strategies. "Depressed mood in patients with multiple sclerosis changes more significantly over time than other stable depression symptoms such as a negative view of oneself or problems in sleep, fatigue, concentration, and appetite," said Peter Arnett, associate professor of psychology at Penn State University. In addition, data from the tests show a larger number of patients in the increased depressed mood group were also using interferon beta drugs to slow progression of the disease, but researchers say it is too early to say whether the drugs might be causing the depression. "At this point we can only make an inference but not a causal connection," said Arnett. "We have to understand the characteristics of how depression changes and evolves over time. A better understanding of the natural history of these changes might help inform better treatment strategies. This is the first study to have done this." The research appears in the Journal of Neurology, Neurosurgery and Psychiatry. Krissy ZoddaTri State Support Group Leaderhttp://www.geocities.com/tmladyk/home.html~I'm In pretty Good Shape For the Shape I am in~ Sneak preview the all-new Yahoo.com. It's not radically different. Just radically better.
[TMIC] MS or TM
Hi I was on a MS site and copied this little bit from "Diagnosis of MS" 1) Nine or more T2 lesions in brain or 2) 2 or more lesions in spinal cord, or 3) 4-8 brain plus 1 spinal cord lesion or abnormal VEPe associated with 4-8 brain lesions or with fewer than 4 brain lesions plus 1 spinal cord lesion demonstrated by MRI and Dissemination in time, demonstrated by MRI or Continued progression for 1 year suggests MS This I hope will make us understand a bit more if it is TM or MS. Nima
