Hi Jenna - yes it is bad for your body - I took a bone density scan test
& flunked - now I have osteo penia.
Bernie
From: Jenna [mailto:[EMAIL PROTECTED]
Sent: Friday, November 14, 2008 8:47 AM
To: [EMAIL PROTECTED]; Butcher, Bernard G (NY80);
TMIC-LIST@eskimo.com
Subject: Re: [TMIC] Question from Randy-Solu-Medrol
Jude,
Most of the time when they give you Solu-Medrol for MS or TM you get
1000mgs a day. The dose pac's are much lower dose of steroids.
I have such bad reactions to it that I had to be put in the hospital
each time I needed it. Instead of doing 1000mg once a day, they have to
spread it out and do 250mg every 6 hours. It makes me very sick and I
spend 6 days in the hospital. Then come home for a day or two and then
go back for a day, because my blood sugar is so messed up and has
problems readjusting. Spend a day and get things settled down. I am
always very sick for two weeks following the Solu-Medrol. It takes 9
weeks or so before I really start feeling good again. Durning all this
time I can't drive and spend most of the time in bed. And am very
grouchy <http://mail.yimg.com/a/i/mesg/tsmileys2/02.gif>
Thank goodness I have not had to that for almost 3 years now. I am so
very blessed and happy about that. I have a friend here that did the
Solu-Medrol for the first time and was asking me if I ever had a relaps
again would I do the steroids again. And I told her as bad as it is on
my body, yes I would because it did help so much. As Frank said in an
e-mail there are some bad permanet side effects. It is something you
really need to talk about with your Dr.
Jenna
From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>
To: [EMAIL PROTECTED]; TMIC-LIST@eskimo.com
Sent: Friday, November 14, 2008 3:39:05 AM
Subject: Re: [TMIC] Question from Randy
Hello Bernie
It has been ages since we have heard from you. What has been going on
in your life? You always have such interesting stories to tell and new
ideas you say we ought to try.
What is the big idea about Solu-Medrol? What kind of positive effects
do get from it? Isn't is comparable to a "dose-pack"? How bad is the
pain on the fourth day? I figure that it must be worth it.
God Bless,
Jude
In a message dated 11/12/2008 2:26:12 P.M. Eastern Standard Time,
[EMAIL PROTECTED] writes:
Diagnosed with TM in 2002, MS in 2008. But I was getting it
before the
MS diagnosis. Last time I got it was 9/08, due next month. The
sick
effect goes away completely in a week, then I feel better.
Overall, I
don't know if it does anything, but it is supposed to reduce
inflammation in my spinal cord and nerve myelin, and therefore
prevent
damage.
Bernie
-Original Message-
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Wednesday, November 12, 2008 1:55 PM
To: Butcher; Butcher, Bernard G (NY80); Jenna; TMIC
Subject: Re: RE: [TMIC] Question from Randy
> Yes, I get this infusion every 3 months, 1G/day for 3 days.
It's
> prednisone. For me, I get a bit sick after the fourth day, but
my
neuro
> says that that is not the norm - just me. After that I feel
pretty
good,
> stronger.
Bernie,
That'sa lot of medication!!
For what disease do you get that much Solu-Medro??
Have you started to get the side effects?
Good Luck
F
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