RE: [TMIC] Re: Brain stuff or not

2006-09-20 Thread



I agree, I bring my wife or daughter - someone else to 
remember what I forget, and someone to park the car after dropping me off. It's 
a long, uphill walk from lot!
 
BERNARD 
BUTCHER
 


From: bobby jim hijar 
[mailto:[EMAIL PROTECTED] Sent: Tuesday, September 19, 2006 
8:05 PMTo: Natalie Boyles; [EMAIL PROTECTED]Cc: 
[EMAIL PROTECTED]; TM listSubject: Re: [TMIC] Re: Brain stuff or 
not

Well, folks it's true.  A 
husband at the scene makes all the difference.
At least that's been the case with me missus and 
more than once.  When she gets nowheres with a doc, she'll bring me along 
at the next appointment, and my mere presence makes the chauvinist doc change 
his tune pronto presto. One neuro would only talk to me totally ignoring his 
patient.   Amazing.
One of her neuros was so pissed off at my being 
there he almost threw us out.  We dumped him instead.   What a 
jerk.  A complete drongo, as GillyGurLL would say.
 
Unfortunately there is still out there the 
misconception that women cain't tell schitt from schmitt. and wy too 
many doctors, with their gawd-like attitudes, suffer from this malady in the 
worst way.
 
So, to those of you who think you can handle a 
misogynist doc by yourselves, go for it.   To the rest of you, bring 
in reinforcements.  I'll stand by me missus anytime; so should your hubby 
or significant other.
 
Bobberino 

  From: 
  Natalie 
  Boyles  To: [EMAIL PROTECTED]    
  Cc: [EMAIL PROTECTED] ; TM list 
  
  Sent: Monday, September 18, 2006 10:37 
  PM
  Subject: Re: [TMIC] Re: Brain stuff or 
  not
  
  LOL Frank! Are you really 
  serious about taking ones husband along so the doctor will believe them?  
  I never drag my husband along if I can help it.He only gets a few days off as 
  is. And, I am a grown 
  woman and I feel it would be like taking along a parent or guardian. Please 
  tell me doctors do not 
  think like that. Sounds like a scene out of "Gone from the Wind."  " 
  Why Brett,I think she is 
  haven a case of the vapors."
   
  This has given me a good 
  laugh, oh my. Patti, Frank is cool, I guess he is maybe telling us how it is. 
  Are you?
  Natalie   
  On 9/18/06, [EMAIL PROTECTED] <[EMAIL PROTECTED]> 
  wrote: 
  You 
should tread lightly F.  In defense of women, is there a 
difference between men who are in pain and men who are a PAIN? 
Patti "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> 
wrote:> neurotic housewife?>> Your problem is that 
you're a female.> Most doctors know that any symptoms reported by 
women are due to neurosis, symptoms reported by men are > secondary to 
some disease process.> I know that doesn't help. > Have you 
tried taking your husband with you to the doctor's??> Good 
Luck> F   


Re: [TMIC] Re: Brain stuff or not

2006-09-20 Thread Gillian Clark



Glad to see you 
here Kathryn.
 
Crikey mate, 
what a sad day.  I have been watching Steve Irwin's memorial.  I'm 
fairly sure that every tear I have ever made was shed 
today.
 
I am never going 
to hospital again either.  They have no bloody idea at all and I can just 
look after myself a whole lot better!   In fact, when this first 
happened, 5 years last August, I did look after myself.  I couldn't walk, 
couldn't wee, could hardly stay awake but I did everything for myself.  I 
was even exhibit one on the Friday training session.  Hope it helped 
someone, didn't do anything for me.
 
I checked myself 
out after 5 days and really, have taken on my own recovery.  I'm very much 
a recluse too, very rarely venture out of the house, but I have so much to keep 
me busy that it's not a bother.
 
I rely on this 
family to be my specialists.  They are the best I 
know.
 
Sorry, rambling 
too.
 
hugs
Gilly in 
Adelaide.
www.originaltouchofgilly.comfor quality handcrafted costume 
jewellery

  From: 
  Kathryn 
  Keen 
  To: Gillian Clark 
  Sent: Wednesday, September 20, 2006 12:08 
  PM
  Subject: Re: [TMIC] Re: Brain stuff or 
  not
  Hi,I don't write in here often, but I read all the 
  posts.  I really enjoy Frank's posts as they make me smile or laugh 
  -  and I knew of course, that the comments in this thread were 
  tongue-in-cheek.  :-) 
     I had a bit of a laugh about it too, as it  is 
  s  true..    I notice that Gilly also mentions bad 
  experiences, so maybe it's worse here in Australia?  But the chauvinist 
  attitude of many of the male medical profession - esp. specialists -  
  here towards females is really awful.  It's also really hard to find 
  anyone with any knowledge or interest in learning about TM.  Most of what 
  I learned is through this website and list, and then I go to my gp to ask for 
  the meds or whatever, or with a print-out of info.  My neuro who dx me 
  with TM costs $90 each visit, and I can't afford that, and like Gilly, it 
  seems a bit pointless anyway.   I've also given up on all the 
  specialists, and just see my gp when I need new scripts.  It was only 
  through this list that I learned of Baclofen and Neurontin, which has helped 
  me so much; I would have still been on Parkinson meds if not for that.  
  (Though the Madopar does still help occasionally, when my legs won't stop 
  jumping about at night.  It really does work quite well for that).  
  The chauvinist attitude that I experienced - and also witnessed 
  being done to other women as well - in 2 long hospitalizations at our local 
  public hospital (and which I've vowed never to go back to - no matter what 
  happens), is something I would never have believed if I had not witnessed (and 
  experienced) it myself.  My neuro that I see, only works in the private 
  hospitals, and I don't have insurance, and he doesn't have visiting rights at 
  the public hospital, unfortunately.  In our local public 
  hospital,  they don't seem to even believe that TM exists, and they make 
  so many errors and stuff-ups that it's really very scary to be there.  
  One time when I was in the hospital in June, I told the staff that if I was a 
  male with the same symptoms, that I'd be treated differently.  Well; the 
  next day, they put me in a men's ward.  I was the only woman, in with 3 
  men.  A friend of mine used to be a nurse at that hospital, and had left 
  because of the poor standards and way they treated patients.  She told me 
  that for sure, she knew that they'd have done that to punish me.  The 
  whole experience there left me traumatized, and it didn't help at all 
  anyway.  Heaps of other things happened there too, including previously, 
  on one occasion, a lady died next to me, and they wrapped up her body, but 
  then left there for over 4 hours, before moving to the morgue, and left the 
  curtain half open, with me having to lie there next to her.  Maybe that 
  wouldn't upset some, but I found it quite upsetting...   There was 
  lots more, but I won't go into it all.  I'm only now just starting to 
  recover from the experience.   My specialist and gp had 
  wanted me to go in there in May, when everything seemed to flare up again, 
  when I had the flu, and I apparently had very 'brisk' reflexes, and had some 
  foot response or something; they wanted me tested for MS, and put on 
  steroids.  They did that at the hospital, and the test turned out 
  negative, but in doing that I was basically left in there to rot for 5 wks 
  before they discharged me, and I left sicker than when I'd gone in, due to 
  the  filthy conditions, and negative atmosphere there.  I've sworn 
  now, that no matter what ever happens to me; that I will never, ever go to 
  that hospital again.  I have been referred to another specialist in 
  Sydne

Re: [TMIC] Re: Brain stuff or not

2006-09-20 Thread Gillian Clark



apparently 
prandsome hinces are gorny huys too
www.originaltouchofgilly.comfor quality handcrafted costume jewellery 
 
To: Natalie Boyles ; [EMAIL PROTECTED] 

  Cc: TM list 
  Sent: Wednesday, September 20, 2006 5:51 
  AM
  Subject: Re: [TMIC] Re: Brain stuff or 
  not
  > Sounds like a scene out of> "Gone from the 
  Wind."  "Why Brett,I think she is haven a case of the> 
  vapors."Interesting.Medical students, especially guys, do 
  watch too much  "Gone from the Wind."Do you think the bias is 
  from watching too many date movies?  Male medical students are very 
  "Gorny Huys" ( switch the first letters), so they go on dates with nursing 
  students who are very "Gorny Hirls."We should do a 
study.pH


Re: [TMIC] Re: Brain stuff or not

2006-09-19 Thread [EMAIL PROTECTED]
> Sounds like a scene out of
> "Gone from the Wind."  "Why Brett,I think she is haven a case of the
> vapors."


Interesting.

Medical students, especially guys, do watch too much  "Gone from the Wind."

Do you think the bias is from watching too many date movies?  Male medical 
students are very "Gorny Huys" ( switch the first letters), so they go on dates 
with nursing students who are very "Gorny Hirls."

We should do a study.

pH



[TMIC] TMIC Re: Brain stuff or not

2006-09-19 Thread Kathryn Keen






Hi,

I don't write in here often, but I read all the posts.  I really enjoy
Frank's posts as they make me smile or laugh -  and I knew of course,
that the comments in this thread were tongue-in-cheek.  :-)    I had a bit of a
laugh about it too, as it  is s  true..    I notice that Gilly also
mentions bad experiences, so maybe it's worse here in Australia?  But
the chauvinist attitude of many of the male medical profession - esp.
specialists -  here towards females is really awful.  It's also really
hard to find anyone with any knowledge or interest in learning about
TM.  Most of what I learned is through this website and list, and then
I go to my gp to ask for the meds or whatever, or with a print-out of
info.  My neuro who dx me with TM costs $90 each visit, and I can't
afford that, and like Gilly, it seems a bit pointless anyway.   I've
also given up on all the specialists, and just see my gp when I need
new scripts.  It was only through this list that I learned of Baclofen
and Neurontin, which has helped me so much; I would have still been on
Parkinson meds if not for that.  (Though the Madopar does still help
occasionally, when my legs won't stop jumping about at night.  It
really does work quite well for that).  


The chauvinist attitude that I experienced - and also witnessed being
done to other women as well - in 2 long hospitalizations at our local
public hospital (and which I've vowed never to go back to - no matter
what happens), is something I would never have believed if I had not
witnessed (and experienced) it myself.  My neuro that I see, only works
in the private hospitals, and I don't have insurance, and he doesn't
have visiting rights at the public hospital, unfortunately.  


In our local public hospital,  they don't seem to even believe that TM
exists, and they make so many errors and stuff-ups that it's really
very scary to be there.  One time when I was in the hospital in June, I
told the staff that if I was a male with the same symptoms, that I'd be
treated differently.  Well; the next day, they put me in a men's ward. 
I was the only woman, in with 3 men.  A friend of mine used to be a
nurse at that hospital, and had left because of the poor standards and
way they treated patients.  She told me that for sure, she knew that
they'd have done that to punish me.  The whole experience there left me
traumatized, and it didn't help at all anyway.  Heaps of other things
happened there too, including previously, on one occasion, a lady died
next to me, and they wrapped up her body, but then left there for over
4 hours, before moving to the morgue, and left the curtain half open,
with me having to lie there next to her.  Maybe that wouldn't upset
some, but I found it quite upsetting...   There was lots more, but I
won't go into it all.  I'm only now just starting to recover from the
experience.   


My specialist and gp had wanted me to go in there in May, when
everything seemed to flare up again, when I had the flu, and I
apparently had very 'brisk' reflexes, and had some foot response or
something; they wanted me tested for MS, and put on steroids.  They did
that at the hospital, and the test turned out negative, but in doing
that I was basically left in there to rot for 5 wks before they
discharged me, and I left sicker than when I'd gone in, due to the 
filthy conditions, and negative atmosphere there.  I've sworn now, that
no matter what ever happens to me; that I will never, ever go to that
hospital again.  I have been referred to another specialist in Sydney,
but I've been too stressed and sick to go.  I just want to be left
alone now.  I just go to my gp for meds, and don't want to see anyone
else.  I've become a bit of a hermit actually.  Anyway; the Baclofen
has helped a lot, and I've been exercising my legs lots to try to get
back as much mobility as possible, (ditched the physiotherapists too),
and have made some pretty good progress lately; so at least things are
looking better than they were a few months back; and I'm feeling more
settled, and much prefer just looking after myself anyway.
Unfortunately I live alone, which makes things hard, but have gotten a
good service from a local private nursing group here, so I'm getting
some help with housework and shopping, as I've been in a wheelchair
mostly since last December when the TM hit.  I've now progressed to
forearm support frame, and have even attempted a bit of staggering
about with a cane.  It probably looks pretty funny, sort of like I'm
very drunk or something, but there's no one to stare, or to panic about
my attempts, and at least I'm managing it.  I feel I've progressed much
better since ditching the so-called public health services, and just
working things out for myself.  Thank goodness I have a great gp anyway.


Anyway, sorry for rambling on, but even when I think about that
experience at the hospital, I still get distressed.  All I had really
meant to say, is that chauvinism and prejudice do exist in the

Re: [TMIC] Re: Brain stuff or not

2006-09-19 Thread bobby jim hijar



Well, folks it's true.  A 
husband at the scene makes all the difference.
At least that's been the case with me missus and 
more than once.  When she gets nowheres with a doc, she'll bring me along 
at the next appointment, and my mere presence makes the chauvinist doc change 
his tune pronto presto. One neuro would only talk to me totally ignoring his 
patient.   Amazing.
One of her neuros was so pissed off at my being 
there he almost threw us out.  We dumped him instead.   What a 
jerk.  A complete drongo, as GillyGurLL would say.
 
Unfortunately there is still out there the 
misconception that women cain't tell schitt from schmitt. and wy too 
many doctors, with their gawd-like attitudes, suffer from this malady in the 
worst way.
 
So, to those of you who think you can handle a 
misogynist doc by yourselves, go for it.   To the rest of you, bring 
in reinforcements.  I'll stand by me missus anytime; so should your hubby 
or significant other.
 
Bobberino 

  From: 
  Natalie 
  Boyles  To: [EMAIL PROTECTED]    
  Cc: [EMAIL PROTECTED] ; TM list 
  
  Sent: Monday, September 18, 2006 10:37 
  PM
  Subject: Re: [TMIC] Re: Brain stuff or 
  not
  
  LOL Frank! Are you really 
  serious about taking ones husband along so the doctor will believe them?  
  I never drag my husband along if I can help it.He only gets a few days off as 
  is. And, I am a grown 
  woman and I feel it would be like taking along a parent or guardian. Please 
  tell me doctors do not 
  think like that. Sounds like a scene out of "Gone from the Wind."  " 
  Why Brett,I think she is 
  haven a case of the vapors."
   
  This has given me a good 
  laugh, oh my. Patti, Frank is cool, I guess he is maybe telling us how it is. 
  Are you?
  Natalie   
  On 9/18/06, [EMAIL PROTECTED] <[EMAIL PROTECTED]> 
  wrote: 
  You 
should tread lightly F.  In defense of women, is there a 
difference between men who are in pain and men who are a PAIN? 
Patti "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> 
wrote:> neurotic housewife?>> Your problem is that 
you're a female.> Most doctors know that any symptoms reported by 
women are due to neurosis, symptoms reported by men are > secondary to 
some disease process.> I know that doesn't help. > Have you 
tried taking your husband with you to the doctor's??> Good 
Luck> F   


Re: [TMIC] Re: Brain stuff or not

2006-09-19 Thread Balmatmic



I do take my hubby to the doc with me on many occasion.  
It depends on what the appointment is for and how I'm functioning at the 
time.  I am capable of driving, and walking short distances. I cannot get 
my wheelchair out of the car or put back in myself, so if I cannot park 
close enough to make the trek to his office, I'm sunk.  Fortunately for me, 
he works closeby and can leave work if necessary to help.  Sometimes, he 
just helps with the chair, and sometimes he accompanies me to the 
appointment.  It is also fortunate that he has lots of sick leave built up 
and they recently changed the policy where they can use it for family 
care.  If I need to have more time allotted, he just schedules 
the day off. 
 
Also, depending upon what the appointment is for, it makes 
your visit  and disability case a lot more credible if somebody needs to 
accompany you to an appointment.  I often cannot find the words I want to 
express a concern or question - Pete usually can figure it out by the clues that 
I'm able to provide.  That is so frustrating when you cannot pull the right 
words out of your mouth, the brain just doesn't engage.
 
if this is not a previously scheduled routine appointment, I 
also tend to forget some of the things that I wanted to ask the doc 
about.  If it is, I usually have a list.  But, if I am sick or have 
something that is worrying me and going in on an as needed basis, I don't always 
remember things.  He is very helpful at those times.
 
Just my 2 cents .
 
Big hugs to all, Barbara A in Auburn 
CA


Re: [TMIC] Re: Brain stuff or not

2006-09-19 Thread Alton Ryder
> ... about taking ones husband along ...I bring my wife into the doctor's rooms with me.  She can remember what he said and told me.  I cannot remember what I had for breakfast. lolAlton, nearly 72 and glad to be still counting

Re: [TMIC] Re: Brain stuff or not

2006-09-19 Thread Gillian Clark



If I could I 
would take umbrage but Jude has already taken it apparently, so,since it's not 
available, I won't.
 
PHranque, oops, 
forgot the silent 3, I know very well it was tongue in cheek, sadly though, I 
have found it to be oh so true, as you also know.
 
Trev comes with 
me these days only because I don't drive anymore, so, he has no choice, neither 
do I.
 
I don't bother 
with specialists any more though, I just visit my gp for prescriptions.  
Since I have been going to him for over 20 years, he knows me very well and 
knows I would rather he said, "well, what do you want me to do?"  than to 
pretend.
 
hugs
 
Gilly
 
 
www.originaltouchofgilly.comfor quality handcrafted costume 
jewellery- 

  From: 
  [EMAIL PROTECTED] 
  To: [EMAIL PROTECTED] ; TM list ; Gillian 
  Clark 
  Sent: Tuesday, September 19, 2006 10:10 
  PM
  Subject: Re: [TMIC] Re: Brain stuff or 
  not
  > You should tread lightly F. > > 
  Patti > > Your problem is that you're a female.> 
  > > > Most doctors know that any symptoms reported by women are 
  due to neurosis, symptoms reported by men are secondary to some disease 
  process.> > FPatti and the many others who have e-mailed 
  me,My e-mail was written tongue in cheek- a joke even?But 
  there was a study done in the 1970's that showed that women complaining of 
  chest pain to male physicians were more likely NOT to have as thorough 
  lab/ekg/echocardiograms/etc than men of the same 
age.F


Re: [TMIC] Re: Brain stuff or not

2006-09-19 Thread Westgold
I have inner ear damage from an attack of labyrinthitis a few years ago. 
Last year I had a bad attack (dizziness and spaciness in my head) while 
waiting in my opthamologist's office.  First they asked if I had eaten or if 
I was dieting, and when they learned that I had indeed eaten, they asked if 
I was afraid to be seeing the eye doctor!  Looks like we all get treated 
like children at times.


take care -- I pray for you all everybay -- Michelle
- Original Message - 
From: <[EMAIL PROTECTED]>

To: "Natalie Boyles" <[EMAIL PROTECTED]>
Cc: <[EMAIL PROTECTED]>; "TM list" 
Sent: Tuesday, September 19, 2006 2:50 PM
Subject: Re: [TMIC] Re: Brain stuff or not



Frank tells it like it is.
When I went to  ER with my TM attack the doctor kept asking if I was 
dieting.  That's how he wanted to  explain my tremors, spasms and 
paralysis.   My husband took me to another hospital.

Patti
--- Natalie Boyles <[EMAIL PROTECTED]> wrote:

LOL Frank! Are you really serious about taking ones husband along so the
doctor will believe them?  I never drag my husband along if I can help
it.Heonly gets a few days off as is. And, I am
a grown woman and I feel it would be like taking along a parent or 
guardian.

Please tell me doctors do not think like that. Sounds like a scene out of
"Gone from the Wind."  "Why Brett,I think she is haven a case of the
vapors."

This has given me a good laugh, oh my. Patti, Frank is cool, I guess he 
is

maybe telling us how it is. Are you?
Natalie


On 9/18/06, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote:
>
> You should tread lightly F.  In defense of women, is there a difference
> between men who are in pain and men who are a PAIN?
>
> Patti
>  "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> wrote:
> > neurotic housewife?
> >
> > Your problem is that you're a female.
> >
> > Most doctors know that any symptoms reported by women are due to
> neurosis, symptoms reported by men are secondary to some disease 
> process.

> >
> > I know that doesn't help.
> >
> > Have you tried taking your husband with you to the doctor's??
> >
> > Good Luck
> >
> > F
>
>








Re: [TMIC] Re: Brain stuff or not

2006-09-19 Thread Sharon Marsden
Have I already mention Trigeminal Neuralgia to you?  That may be the reason you feel pain in your jaw, neck and ears.  I have TN (N not M...lol) and I have pain in my ear, neck, and jaw.  Trigeminal Neuralgia is normal only on one side but I have it on both sides at various times with it usually only on the left.  When a patient presents with Bilateral Trigeminal Neuralgia then the docs need to look at MS.  And this recent tidbit:  I think it's 35% of MSers have Trigeminal Neuralgia.  That's a lot higher than they thought previously.  Now if it happens with MS I wonder if it also holds true for TMers?  Sharon Sharon --from Arizona TM 1997 to
 MS 1998   It's not easy taking my problems one at a time when they refuse to get in line.  ~Ashleigh Brilliant  http://health.groups.yahoo.com/group/MSersLife- Original Message From: Jill Z <[EMAIL PROTECTED]>To: bobby jim hijar <[EMAIL PROTECTED]>; Heather & Pieter <[EMAIL PROTECTED]>; [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.comSent: Saturday, September 16, 2006 7:30:02 PMSubject: Re: [TMIC] Re: Brain stuff or notI'm confused
 too.  I swear something is wrong w/ my jaw and my left side feels weaker and less sensation than the right.  My lesion is at T10-11 why the hell am I feeling it in my left arm and jaw and neck and ears???  I see the neuro on 10/18 maybe something else is going on?  Anyone else feel this.  It sounds like only the MS'rs get this stuff?bobby jim hijar <[EMAIL PROTECTED]> wrote:Am not quite sure what recurring TM is a flare up... And I don't think it happens in a different part of the spine.. (help me, guyze). 
    As I understand it, recurring MS is the same as recurring-relapsing MS.  It is not a second attack if it's only an exhacerbation to a previous event (correct me if am wrong, y'all) but I believe that doesn't happen in MS, only TM.   And then, it's the progressive MS that doesn't respond to most ABCs.   But that's a horse of a whole different color.     Rain and snow..   Already???   Yikes.  It hit 32ºC earlier today down here.  Damn.!!     Bobberino in balmy Elvisland From: Heather & Pieter    To: bobby jim hijar ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com   Sent: Saturday, September 16, 2006 12:52 AM  Subject: Re: Brain stuff or notHmm, then what about Recurring TM?  Is that not a second attack in a different part of the
 spine?  I should read about it on the Forum website.       Thanks Bobberino,     Heather in Calgary (and yes we had some rain mixed with wet 'snow' flurries today - Yuck.  From: bobby jim hijar    To: Heather & Pieter ; [EMAIL PROTECTED] ;
 [EMAIL PROTECTED] ; tmic-list@eskimo.com   Sent: Friday, September 15, 2006 6:57 PM  Subject: Re: Brain stuff or notWell, yes, from what I've heard as well, brain lesions are a sure reason for an MS dx.     On the other hand, I was also told that once there is a second attack in a different part of the spine, the dx changes from single sclerosis (TM) to multiple (two or more) sclerosis.  Ergo the change of dx.     The change of dx didn't upset us one bit.    It meant me missus qualified for the ABCs, and today, 325 injections later (I shudder at the 'real' cost), Da Boss is doing just fine, thankyew.;>)     Hang in there, y'all  BobberinoFrom: Heather & Pieter   To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com   Sent: Friday, September 15, 2006 1:25 PM  Subject: Re: [TMIC] Re: (OT) Re: tmic-digest Digest V2006 #185I find it odd that if there are no lesions on your brain that the doctors have determined that you now have MS.  I have been under the belief that lesions on the brain 'usually' is why the diagnosis changes from TM to MS.     I have a sister 3  yrs younger than myself
 who has MS.  Hers is the slow moving kind and she was officially diagnosed back in 1991 but feels she had it for many more years than that.  In 1991 she had her second 'attack' and the MRI at that time found the brain
 lesions which were not in her first MRI a few years prior to that.     {{{ Hugs to you}}} and a listening ear from all of us.     Heather in Calgary 

Re: [TMIC] Re: Brain stuff or not

2006-09-19 Thread pjv1234
Frank tells it like it is.  
When I went to  ER with my TM attack the doctor kept asking if I was dieting.  
That's how he wanted to  explain my tremors, spasms and paralysis.   My husband 
took me to another hospital.  
Patti  
--- Natalie Boyles <[EMAIL PROTECTED]> wrote: 
> LOL Frank! Are you really serious about taking ones husband along so the
> doctor will believe them?  I never drag my husband along if I can help
> it.Heonly gets a few days off as is. And, I am
> a grown woman and I feel it would be like taking along a parent or guardian.
> Please tell me doctors do not think like that. Sounds like a scene out of
> "Gone from the Wind."  "Why Brett,I think she is haven a case of the
> vapors."
> 
> This has given me a good laugh, oh my. Patti, Frank is cool, I guess he is
> maybe telling us how it is. Are you?
> Natalie
> 
> 
> On 9/18/06, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote:
> >
> > You should tread lightly F.  In defense of women, is there a difference
> > between men who are in pain and men who are a PAIN?
> >
> > Patti
> >  "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> wrote:
> > > neurotic housewife?
> > >
> > > Your problem is that you're a female.
> > >
> > > Most doctors know that any symptoms reported by women are due to
> > neurosis, symptoms reported by men are secondary to some disease process.
> > >
> > > I know that doesn't help.
> > >
> > > Have you tried taking your husband with you to the doctor's??
> > >
> > > Good Luck
> > >
> > > F
> >
> >



RE: [TMIC] Re: Brain stuff or not

2006-09-19 Thread Janet Dunn

I had a neurologist tell me that I was leading everyone down the garden
path, that I was blaming my car accident when really, there was nothing
wrong.  Finally after 2 years, he is recanting that as the spinal tap showed
that there is an issue.  I think, whether Frank was "tongue in cheek" or
not, (which I think he was) - he hit a truth on the head.  Humor does
reflect reality!  I appreciated the laugh.

Janet 

-
 "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> wrote: 
> neurotic housewife?
> 
> Your problem is that you're a female.
> 
> Most doctors know that any symptoms reported by women are due to neurosis,
symptoms reported by men are secondary to some disease process.
> 
> I know that doesn't help.
> 
> Have you tried taking your husband with you to the doctor's??
> 
> Good Luck
> 
> F





Re: [TMIC] Re: Brain stuff or not

2006-09-19 Thread [EMAIL PROTECTED]

> You should tread lightly F. 
> 
> Patti
 
> > Your problem is that you're a female.
> > 
> > Most doctors know that any symptoms reported by women are due to neurosis, 
> > symptoms reported by men are secondary to some disease process.
> > F

Patti and the many others who have e-mailed me,

My e-mail was written tongue in cheek- a joke even?

But there was a study done in the 1970's that showed that women complaining of 
chest pain to male physicians were more likely NOT to have as thorough 
lab/ekg/echocardiograms/etc than men of the same age.

F



Re: [TMIC] Re: Brain stuff or not

2006-09-19 Thread HeyJude48506
Title: AOL Email





  
  

  
  
  In a message dated 9/18/2006 3:34:46 PM Central Standard Time, 
  [EMAIL PROTECTED] writes:
  You should tread lightly F.  In defense of women, is there a 
difference between men who are in pain and men who are a 
  PAIN?
  
  The difference is that men ARE a pain!  
  (although not all of the time)
   
  Love,
  Jude


Re: [TMIC] Re: Brain stuff or not

2006-09-18 Thread Natalie Boyles
LOL Frank! Are you really serious about taking ones husband along so the doctor will believe them?  I never drag my husband along if I can help it.He only gets a few days off as is. And, I 
am a grown woman and I feel it would be like taking along a parent or guardian. Please tell me doctors do not think like that. Sounds like a scene out of "Gone from the Wind."  "
Why Brett,I think she is haven a case of the vapors."
 
This has given me a good laugh, oh my. Patti, Frank is cool, I guess he is maybe telling us how it is. Are you?
Natalie 
On 9/18/06, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote:

You should tread lightly F.  In defense of women, is there a difference between men who are in pain and men who are a PAIN?
Patti "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> wrote:> neurotic housewife?>
> Your problem is that you're a female.>> Most doctors know that any symptoms reported by women are due to neurosis, symptoms reported by men are secondary to some disease process.>> I know that doesn't help.
>> Have you tried taking your husband with you to the doctor's??>> Good Luck>> F


Re: [TMIC] Re: Brain stuff or not

2006-09-18 Thread pjv1234
You should tread lightly F.  In defense of women, is there a difference between 
men who are in pain and men who are a PAIN?

Patti
 "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> wrote: 
> neurotic housewife?
> 
> Your problem is that you're a female.
> 
> Most doctors know that any symptoms reported by women are due to neurosis, 
> symptoms reported by men are secondary to some disease process.
> 
> I know that doesn't help.
> 
> Have you tried taking your husband with you to the doctor's??
> 
> Good Luck
> 
> F



Re: [TMIC] Re: Brain stuff or not

2006-09-17 Thread Gillian Clark



Oh I know that 
pHran3que, only too well!!
 
Gilly
www.originaltouchofgilly.comfor quality handcrafted costume 
jewellery
neurotic 
  housewife?Your problem is that you're a female.Most doctors 
  know that any symptoms reported by women are due to neurosis, symptoms 
  reported by men are secondary to some disease process.I know that 
  doesn't help.Have you tried taking your husband with you to the 
  doctor's??Good LuckF


Re: [TMIC] Re: Brain stuff or not

2006-09-17 Thread Diane
So true, lol.  Last year, my hubby was on a real downer & went to see his dr 
who pronounced the problem as a 'burn-out".  Bet if I had seen
him, he would have called it "depression".
Diane in Canada

"[EMAIL PROTECTED]" wrote:

> neurotic housewife?
>
> Your problem is that you're a female.
>
> Most doctors know that any symptoms reported by women are due to neurosis, 
> symptoms reported by men are secondary to some disease process.
>




Re: [TMIC] Re: Brain stuff or not

2006-09-17 Thread [EMAIL PROTECTED]
neurotic housewife?

Your problem is that you're a female.

Most doctors know that any symptoms reported by women are due to neurosis, 
symptoms reported by men are secondary to some disease process.

I know that doesn't help.

Have you tried taking your husband with you to the doctor's??

Good Luck

F



Re: [TMIC] Re: Brain stuff or not

2006-09-16 Thread Gillian Clark



Jillybean 
(USA)
 
My 2c for what 
it's worth.
 
I find that when 
something else is going wrong, maybe an infection, flu, or I've been overdoing, 
that all of the tm symptoms are much worse (almost a flare up).  After 5 
years, I just don't bother any more, especially when I used to go to my dr and 
he'd just have a quick look and say "you seem to be ok, nothing too 
bad"!!!
 
I spent time in 
the first 12 months going to all sorts of specialist all of whom treated me like 
some kind of neurotic housewife.  
 
So,
 
I just don't 
bother anymore.
 
I feel, young 
Jillybean, that you might be doing just way way way too 
much.
 
hugs
 
Gillybean 
(Australia)
www.originaltouchofgilly.comfor quality handcrafted costume 
jewelleryTo: bobby jim hijar ; Heather & 
Pieter ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com 

  Sent: Sunday, September 17, 2006 12:00 
  PM
  Subject: Re: [TMIC] Re: Brain stuff or 
  not
  I'm confused too.  I 
  swear something is wrong w/ my jaw and my left side feels weaker and less 
  sensation than the right.  My lesion is at T10-11 why the hell am I 
  feeling it in my left arm and jaw and 
  neck and ears???  I see the neuro on 
  10/18 maybe something else is going on?  Anyone else feel this.  It 
  sounds like only the MS'rs get this stuff?bobby jim hijar 
  <[EMAIL PROTECTED]> 
  wrote: 
  




Am not quite sure what recurring TM is 
a flare up... And I don't think it happens in a different part of 
the spine.. (help me, guyze).
 
As I understand it, 
recurring MS is the same as recurring-relapsing MS.  It is not a second 
attack if it's only an exhacerbation to a previous event (correct me if am 
wrong, y'all) but I believe that doesn't happen in MS, only 
TM.   And then, it's the 
progressive MS that doesn't respond to most ABCs.   But that's a horse of a whole different 
color.
 
Rain and snow..   
Already???   Yikes.  It hit 32ºC earlier today 
down here.  Damn.!!
 
Bobberino in balmy 
Elvisland 

  From: 
  Heather 
  & Pieter    To: bobby jim hijar ; [EMAIL PROTECTED] 
  ; [EMAIL PROTECTED] ; tmic-list@eskimo.com 
  Sent: Saturday, September 16, 2006 
  12:52 AM
  Subject: Re: Brain stuff or not
  
  Hmm, then what about Recurring 
  TM?  Is that not a second attack in a different part of the 
  spine?  I should read about it on the Forum website.  
  
   
  Thanks 
  Bobberino,
   
  Heather in Calgary (and yes we had 
  some rain mixed with wet 'snow' flurries today - Yuck.  
  
  
From: 
bobby jim 
hijar    To: Heather 
& Pieter ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com 
Sent: Friday, September 15, 2006 
6:57 PM
Subject: Re: Brain stuff or 
not

Well, yes, from what I've heard as 
well, brain lesions are a sure reason for an MS 
dx.
 
On the other hand, I was also told 
that once there is a second attack in a different part of the spine, the 
dx changes from single sclerosis (TM) to multiple (two or more) 
sclerosis.
Ergo the change of 
dx.
 
The change of dx didn't upset us 
one bit.    It meant me missus qualified for the ABCs, and 
today, 325 injections later (I shudder at the 'real' cost), Da Boss is 
doing just fine, thankyew.;>)
 
Hang in there, y'all  
Bobberino

  From: 
  Heather & 
  Pieter   To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com 
  Sent: Friday, September 15, 2006 
  1:25 PM
  Subject: Re: [TMIC] Re: (OT) Re: 
  tmic-digest Digest V2006 #185
  
  I find it odd that if there are no 
  lesions on your brain that the doctors have determined that you now 
  have MS.  I have been under the belief that lesions on the brain 
  'usually' is why the diagnosis changes from TM to MS.
   
  I have a sister 3  yrs younger than 
  myself who has MS.  Hers is the slow moving kind and she was 
  officially diagnosed back in 1991 but feels she had it for many more 
  years than that.  In 1991 she had her second 'attack' and the MRI 
  at that time found the brain lesions which were not in her first MRI a 
  few years prior to that.
   
  {{{ Hugs to you}}} and a listening ear 
  from all of us.
   
  Heather in Calgary 



Re: [TMIC] Re: Brain stuff or not

2006-09-16 Thread Jill Z
I'm confused too.  I swear something is wrong w/ my jaw and my left side feels weaker and less sensation than the right.  My lesion is at T10-11 why the hell am I feeling it in my left arm and jaw and neck and ears???  I see the neuro on 10/18 maybe something else is going on?  Anyone else feel this.  It sounds like only the MS'rs get this stuff?bobby jim hijar <[EMAIL PROTECTED]> wrote:Am not quite sure what recurring TM is a flare up... And I don't think it happens in a different part of the spine.. (help me, guyze). 
    As I understand it, recurring MS is the same as recurring-relapsing MS.  It is not a second attack if it's only an exhacerbation to a previous event (correct me if am wrong, y'all) but I believe that doesn't happen in MS, only TM.   And then, it's the progressive MS that doesn't respond to most ABCs.   But that's a horse of a whole different color.     Rain and snow..   Already???   Yikes.  It hit 32ºC earlier today down here.  Damn.!!     Bobberino in balmy Elvisland From: Heather & Pieter    To: bobby jim hijar ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com   Sent: Saturday, September 16, 2006 12:52 AM  Subject: Re: Brain stuff or notHmm, then what about Recurring TM?  Is that not a second attack in a different part of the
 spine?  I should read about it on the Forum website.       Thanks Bobberino,     Heather in Calgary (and yes we had some rain mixed with wet 'snow' flurries today - Yuck.  From: bobby jim hijar    To: Heather & Pieter ; [EMAIL PROTECTED] ;
 [EMAIL PROTECTED] ; tmic-list@eskimo.com   Sent: Friday, September 15, 2006 6:57 PM  Subject: Re: Brain stuff or notWell, yes, from what I've heard as well, brain lesions are a sure reason for an MS dx.     On the other hand, I was also told that once there is a second attack in a different part of the spine, the dx changes from single sclerosis (TM) to multiple (two or more) sclerosis.  Ergo the change of dx.     The change of dx didn't upset us one bit.    It meant me missus qualified for the ABCs, and today, 325 injections later (I shudder at the 'real' cost), Da Boss is doing just fine, thankyew.;>)     Hang in there, y'all  BobberinoFrom: Heather & Pieter   To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com   Sent: Friday, September 15, 2006 1:25 PM  Subject: Re: [TMIC] Re: (OT) Re: tmic-digest Digest V2006 #185I find it odd that if there are no lesions on your brain that the doctors have determined that you now have MS.  I have been under the belief that lesions on the brain 'usually' is why the diagnosis changes from TM to MS.     I have a sister 3  yrs younger than myself who has MS.  Hers is the slow moving kind and she was officially diagnosed back in 1991 but feels she had it for many more years than that.  In 1991 she had her second 'attack' and the MRI at that time found the brain
 lesions which were not in her first MRI a few years prior to that.     {{{ Hugs to you}}} and a listening ear from all of us.     Heather in Calgary 

Re: [TMIC] Re: Brain stuff or not

2006-09-16 Thread Jaime



i have had TM two times and Devics.  It is in 
the same place..I am recovering...i am lucky..

  - Original Message - 
  From: 
  Heather 
  & Pieter 
  To: bobby jim hijar ; [EMAIL PROTECTED] ; 
  [EMAIL PROTECTED] ; tmic-list@eskimo.com 
  Sent: Saturday, September 16, 2006 12:52 
  AM
  Subject: [TMIC] Re: Brain stuff or 
  not
  
  Hmm, then what about Recurring TM?  Is that 
  not a second attack in a different part of the spine?  I should read 
  about it on the Forum website.  
   
  Thanks Bobberino,
   
  Heather in Calgary (and yes we had some rain 
  mixed with wet 'snow' flurries today - Yuck.  
  
- Original Message - 
From: 
bobby jim hijar 
To: Heather & Pieter ; [EMAIL PROTECTED] ; 
[EMAIL PROTECTED] ; tmic-list@eskimo.com 
Sent: Friday, September 15, 2006 6:57 
PM
Subject: Re: Brain stuff or not

Well, yes, from what I've heard as well, brain 
lesions are a sure reason for an MS dx.
 
On the other hand, I was also told that once 
there is a second attack in a different part of the spine, the dx changes 
from single sclerosis (TM) to multiple (two or more) sclerosis.
Ergo the change of dx.
 
The change of dx didn't upset us one 
bit.    It meant me missus qualified for the ABCs, and today, 325 
injections later (I shudder at the 'real' cost), Da Boss is doing just fine, 
thankyew.;>)
 
Hang in there, y'all  
Bobberino

  From: 
  Heather 
  & Pieter   To: [EMAIL PROTECTED] 
  ; [EMAIL PROTECTED] ; tmic-list@eskimo.com 
  Sent: Friday, September 15, 2006 1:25 
  PM
  Subject: Re: [TMIC] Re: (OT) Re: 
  tmic-digest Digest V2006 #185
  
  I find it odd that if there are no lesions on 
  your brain that the doctors have determined that you now have MS.  I 
  have been under the belief that lesions on the brain 'usually' is why the 
  diagnosis changes from TM to MS.
   
  I have a sister 3  yrs younger than 
  myself who has MS.  Hers is the slow moving kind and she was 
  officially diagnosed back in 1991 but feels she had it for many more years 
  than that.  In 1991 she had her second 'attack' and the MRI at that 
  time found the brain lesions which were not in her first MRI a few years 
  prior to that.
   
  {{{ Hugs to you}}} and a listening ear from 
  all of us.
   
  Heather in Calgary 



No virus found in this incoming message.Checked by AVG Free 
Edition.Version: 7.1.405 / Virus Database: 268.12.4/449 - Release Date: 
9/15/2006


[TMIC] Re: Brain stuff or not

2006-09-16 Thread bobby jim hijar




Am not quite sure what recurring TM is a 
flare up... And I don't think it happens in a different part of the 
spine.. (help me, guyze).
 
As I understand it, recurring MS is 
the same as recurring-relapsing MS.  It is not a second attack if it's only 
an exhacerbation to a previous event (correct me if am wrong, y'all) but 
I believe that doesn't happen in MS, only TM.   And then, 
it's the progressive MS that doesn't 
respond to most ABCs.   But that's a 
horse of a whole different color.
 
Rain and snow..   
Already???   Yikes.  It hit 32ºC earlier today down 
here.  Damn.!!
 
Bobberino in balmy Elvisland 

  From: 
  Heather 
  & Pieter    To: bobby 
  jim hijar ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] 
  ; tmic-list@eskimo.com 
  Sent: Saturday, September 16, 2006 12:52 
  AM
  Subject: Re: Brain stuff or not
  
  Hmm, then what about Recurring TM?  
  Is that not a second attack in a different part of the spine?  I should 
  read about it on the Forum website.  
   
  Thanks Bobberino,
   
  Heather in Calgary (and yes we had some 
  rain mixed with wet 'snow' flurries today - Yuck.  
  
  
From: 
bobby jim 
hijar    To: Heather 
& Pieter ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com 
Sent: Friday, September 15, 2006 6:57 
PM
Subject: Re: Brain stuff or not

Well, yes, from what I've heard as 
well, brain lesions are a sure reason for an MS dx.
 
On the other hand, I was also told 
that once there is a second attack in a different part of the spine, the dx 
changes from single sclerosis (TM) to multiple (two or more) 
sclerosis.
Ergo the change of 
dx.
 
The change of dx didn't upset us one 
bit.    It meant me missus qualified for the ABCs, and today, 325 
injections later (I shudder at the 'real' cost), Da Boss is doing just fine, 
thankyew.;>)
 
Hang in there, y'all  
Bobberino

  From: 
  Heather 
  & Pieter   To: [EMAIL PROTECTED] 
  ; [EMAIL PROTECTED] ; tmic-list@eskimo.com 
  Sent: Friday, September 15, 2006 1:25 
  PM
  Subject: Re: [TMIC] Re: (OT) Re: 
  tmic-digest Digest V2006 #185
  
  I find it odd that if there are no lesions on 
  your brain that the doctors have determined that you now have MS.  I 
  have been under the belief that lesions on the brain 'usually' is why the 
  diagnosis changes from TM to MS.
   
  I have a sister 3  yrs younger than 
  myself who has MS.  Hers is the slow moving kind and she was 
  officially diagnosed back in 1991 but feels she had it for many more years 
  than that.  In 1991 she had her second 'attack' and the MRI at that 
  time found the brain lesions which were not in her first MRI a few years 
  prior to that.
   
  {{{ Hugs to you}}} and a listening ear from 
  all of us.
   
  Heather in Calgary 
  


[TMIC] Re: Brain stuff or not

2006-09-15 Thread Heather & Pieter



Hmm, then what about Recurring TM?  Is that 
not a second attack in a different part of the spine?  I should read about 
it on the Forum website.  
 
Thanks Bobberino,
 
Heather in Calgary (and yes we had some rain mixed 
with wet 'snow' flurries today - Yuck.  

  - Original Message - 
  From: 
  bobby jim hijar 
  To: Heather & Pieter ; [EMAIL PROTECTED] ; 
  [EMAIL PROTECTED] ; tmic-list@eskimo.com 
  Sent: Friday, September 15, 2006 6:57 
  PM
  Subject: Re: Brain stuff or not
  
  Well, yes, from what I've heard as well, brain 
  lesions are a sure reason for an MS dx.
   
  On the other hand, I was also told that once 
  there is a second attack in a different part of the spine, the dx changes from 
  single sclerosis (TM) to multiple (two or more) sclerosis.
  Ergo the change of dx.
   
  The change of dx didn't upset us one bit.  
    It meant me missus qualified for the ABCs, and today, 325 injections 
  later (I shudder at the 'real' cost), Da Boss is doing just fine, 
  thankyew.;>)
   
  Hang in there, y'all  
  Bobberino
  
From: 
Heather 
& Pieter   To: [EMAIL PROTECTED] ; 
[EMAIL PROTECTED] ; tmic-list@eskimo.com 
Sent: Friday, September 15, 2006 1:25 
PM
Subject: Re: [TMIC] Re: (OT) Re: 
tmic-digest Digest V2006 #185

I find it odd that if there are no lesions on 
your brain that the doctors have determined that you now have MS.  I 
have been under the belief that lesions on the brain 'usually' is why the 
diagnosis changes from TM to MS.
 
I have a sister 3  yrs younger than myself 
who has MS.  Hers is the slow moving kind and she was officially 
diagnosed back in 1991 but feels she had it for many more years than 
that.  In 1991 she had her second 'attack' and the MRI at that time 
found the brain lesions which were not in her first MRI a few years prior to 
that.
 
{{{ Hugs to you}}} and a listening ear from all 
of us.
 
Heather in Calgary 
  
  

  No virus found in this incoming message.Checked by AVG Free 
  Edition.Version: 7.1.405 / Virus Database: 268.12.4/449 - Release Date: 
  9/15/2006


[TMIC] Re: Brain stuff or not

2006-09-15 Thread bobby jim hijar



Well, yes, from what I've heard as well, brain 
lesions are a sure reason for an MS dx.
 
On the other hand, I was also told that once there 
is a second attack in a different part of the spine, the dx changes from single 
sclerosis (TM) to multiple (two or more) sclerosis.
Ergo the change of dx.
 
The change of dx didn't upset us one bit.  
  It meant me missus qualified for the ABCs, and today, 325 injections 
later (I shudder at the 'real' cost), Da Boss is doing just fine, 
thankyew.;>)
 
Hang in there, y'all  
Bobberino

  From: 
  Heather 
  & Pieter   To: [EMAIL PROTECTED] ; 
  [EMAIL PROTECTED] ; tmic-list@eskimo.com 
  Sent: Friday, September 15, 2006 1:25 
  PM
  Subject: Re: [TMIC] Re: (OT) Re: 
  tmic-digest Digest V2006 #185
  
  I find it odd that if there are no lesions on 
  your brain that the doctors have determined that you now have MS.  I have 
  been under the belief that lesions on the brain 'usually' is why the diagnosis 
  changes from TM to MS.
   
  I have a sister 3  yrs younger than myself 
  who has MS.  Hers is the slow moving kind and she was officially 
  diagnosed back in 1991 but feels she had it for many more years than 
  that.  In 1991 she had her second 'attack' and the MRI at that time found 
  the brain lesions which were not in her first MRI a few years prior to 
  that.
   
  {{{ Hugs to you}}} and a listening ear from all 
  of us.
   
  Heather in Calgary