RE: [TMIC] Re: Brain stuff or not
I agree, I bring my wife or daughter - someone else to remember what I forget, and someone to park the car after dropping me off. It's a long, uphill walk from lot! BERNARD BUTCHER From: bobby jim hijar [mailto:[EMAIL PROTECTED] Sent: Tuesday, September 19, 2006 8:05 PMTo: Natalie Boyles; [EMAIL PROTECTED]Cc: [EMAIL PROTECTED]; TM listSubject: Re: [TMIC] Re: Brain stuff or not Well, folks it's true. A husband at the scene makes all the difference. At least that's been the case with me missus and more than once. When she gets nowheres with a doc, she'll bring me along at the next appointment, and my mere presence makes the chauvinist doc change his tune pronto presto. One neuro would only talk to me totally ignoring his patient. Amazing. One of her neuros was so pissed off at my being there he almost threw us out. We dumped him instead. What a jerk. A complete drongo, as GillyGurLL would say. Unfortunately there is still out there the misconception that women cain't tell schitt from schmitt. and wy too many doctors, with their gawd-like attitudes, suffer from this malady in the worst way. So, to those of you who think you can handle a misogynist doc by yourselves, go for it. To the rest of you, bring in reinforcements. I'll stand by me missus anytime; so should your hubby or significant other. Bobberino From: Natalie Boyles To: [EMAIL PROTECTED] Cc: [EMAIL PROTECTED] ; TM list Sent: Monday, September 18, 2006 10:37 PM Subject: Re: [TMIC] Re: Brain stuff or not LOL Frank! Are you really serious about taking ones husband along so the doctor will believe them? I never drag my husband along if I can help it.He only gets a few days off as is. And, I am a grown woman and I feel it would be like taking along a parent or guardian. Please tell me doctors do not think like that. Sounds like a scene out of "Gone from the Wind." " Why Brett,I think she is haven a case of the vapors." This has given me a good laugh, oh my. Patti, Frank is cool, I guess he is maybe telling us how it is. Are you? Natalie On 9/18/06, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote: You should tread lightly F. In defense of women, is there a difference between men who are in pain and men who are a PAIN? Patti "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> wrote:> neurotic housewife?>> Your problem is that you're a female.> Most doctors know that any symptoms reported by women are due to neurosis, symptoms reported by men are > secondary to some disease process.> I know that doesn't help. > Have you tried taking your husband with you to the doctor's??> Good Luck> F
Re: [TMIC] Re: Brain stuff or not
Glad to see you here Kathryn. Crikey mate, what a sad day. I have been watching Steve Irwin's memorial. I'm fairly sure that every tear I have ever made was shed today. I am never going to hospital again either. They have no bloody idea at all and I can just look after myself a whole lot better! In fact, when this first happened, 5 years last August, I did look after myself. I couldn't walk, couldn't wee, could hardly stay awake but I did everything for myself. I was even exhibit one on the Friday training session. Hope it helped someone, didn't do anything for me. I checked myself out after 5 days and really, have taken on my own recovery. I'm very much a recluse too, very rarely venture out of the house, but I have so much to keep me busy that it's not a bother. I rely on this family to be my specialists. They are the best I know. Sorry, rambling too. hugs Gilly in Adelaide. www.originaltouchofgilly.comfor quality handcrafted costume jewellery From: Kathryn Keen To: Gillian Clark Sent: Wednesday, September 20, 2006 12:08 PM Subject: Re: [TMIC] Re: Brain stuff or not Hi,I don't write in here often, but I read all the posts. I really enjoy Frank's posts as they make me smile or laugh - and I knew of course, that the comments in this thread were tongue-in-cheek. :-) I had a bit of a laugh about it too, as it is s true.. I notice that Gilly also mentions bad experiences, so maybe it's worse here in Australia? But the chauvinist attitude of many of the male medical profession - esp. specialists - here towards females is really awful. It's also really hard to find anyone with any knowledge or interest in learning about TM. Most of what I learned is through this website and list, and then I go to my gp to ask for the meds or whatever, or with a print-out of info. My neuro who dx me with TM costs $90 each visit, and I can't afford that, and like Gilly, it seems a bit pointless anyway. I've also given up on all the specialists, and just see my gp when I need new scripts. It was only through this list that I learned of Baclofen and Neurontin, which has helped me so much; I would have still been on Parkinson meds if not for that. (Though the Madopar does still help occasionally, when my legs won't stop jumping about at night. It really does work quite well for that). The chauvinist attitude that I experienced - and also witnessed being done to other women as well - in 2 long hospitalizations at our local public hospital (and which I've vowed never to go back to - no matter what happens), is something I would never have believed if I had not witnessed (and experienced) it myself. My neuro that I see, only works in the private hospitals, and I don't have insurance, and he doesn't have visiting rights at the public hospital, unfortunately. In our local public hospital, they don't seem to even believe that TM exists, and they make so many errors and stuff-ups that it's really very scary to be there. One time when I was in the hospital in June, I told the staff that if I was a male with the same symptoms, that I'd be treated differently. Well; the next day, they put me in a men's ward. I was the only woman, in with 3 men. A friend of mine used to be a nurse at that hospital, and had left because of the poor standards and way they treated patients. She told me that for sure, she knew that they'd have done that to punish me. The whole experience there left me traumatized, and it didn't help at all anyway. Heaps of other things happened there too, including previously, on one occasion, a lady died next to me, and they wrapped up her body, but then left there for over 4 hours, before moving to the morgue, and left the curtain half open, with me having to lie there next to her. Maybe that wouldn't upset some, but I found it quite upsetting... There was lots more, but I won't go into it all. I'm only now just starting to recover from the experience. My specialist and gp had wanted me to go in there in May, when everything seemed to flare up again, when I had the flu, and I apparently had very 'brisk' reflexes, and had some foot response or something; they wanted me tested for MS, and put on steroids. They did that at the hospital, and the test turned out negative, but in doing that I was basically left in there to rot for 5 wks before they discharged me, and I left sicker than when I'd gone in, due to the filthy conditions, and negative atmosphere there. I've sworn now, that no matter what ever happens to me; that I will never, ever go to that hospital again. I have been referred to another specialist in Sydne
Re: [TMIC] Re: Brain stuff or not
apparently prandsome hinces are gorny huys too www.originaltouchofgilly.comfor quality handcrafted costume jewellery To: Natalie Boyles ; [EMAIL PROTECTED] Cc: TM list Sent: Wednesday, September 20, 2006 5:51 AM Subject: Re: [TMIC] Re: Brain stuff or not > Sounds like a scene out of> "Gone from the Wind." "Why Brett,I think she is haven a case of the> vapors."Interesting.Medical students, especially guys, do watch too much "Gone from the Wind."Do you think the bias is from watching too many date movies? Male medical students are very "Gorny Huys" ( switch the first letters), so they go on dates with nursing students who are very "Gorny Hirls."We should do a study.pH
Re: [TMIC] Re: Brain stuff or not
> Sounds like a scene out of > "Gone from the Wind." "Why Brett,I think she is haven a case of the > vapors." Interesting. Medical students, especially guys, do watch too much "Gone from the Wind." Do you think the bias is from watching too many date movies? Male medical students are very "Gorny Huys" ( switch the first letters), so they go on dates with nursing students who are very "Gorny Hirls." We should do a study. pH
[TMIC] TMIC Re: Brain stuff or not
Hi, I don't write in here often, but I read all the posts. I really enjoy Frank's posts as they make me smile or laugh - and I knew of course, that the comments in this thread were tongue-in-cheek. :-) I had a bit of a laugh about it too, as it is s true.. I notice that Gilly also mentions bad experiences, so maybe it's worse here in Australia? But the chauvinist attitude of many of the male medical profession - esp. specialists - here towards females is really awful. It's also really hard to find anyone with any knowledge or interest in learning about TM. Most of what I learned is through this website and list, and then I go to my gp to ask for the meds or whatever, or with a print-out of info. My neuro who dx me with TM costs $90 each visit, and I can't afford that, and like Gilly, it seems a bit pointless anyway. I've also given up on all the specialists, and just see my gp when I need new scripts. It was only through this list that I learned of Baclofen and Neurontin, which has helped me so much; I would have still been on Parkinson meds if not for that. (Though the Madopar does still help occasionally, when my legs won't stop jumping about at night. It really does work quite well for that). The chauvinist attitude that I experienced - and also witnessed being done to other women as well - in 2 long hospitalizations at our local public hospital (and which I've vowed never to go back to - no matter what happens), is something I would never have believed if I had not witnessed (and experienced) it myself. My neuro that I see, only works in the private hospitals, and I don't have insurance, and he doesn't have visiting rights at the public hospital, unfortunately. In our local public hospital, they don't seem to even believe that TM exists, and they make so many errors and stuff-ups that it's really very scary to be there. One time when I was in the hospital in June, I told the staff that if I was a male with the same symptoms, that I'd be treated differently. Well; the next day, they put me in a men's ward. I was the only woman, in with 3 men. A friend of mine used to be a nurse at that hospital, and had left because of the poor standards and way they treated patients. She told me that for sure, she knew that they'd have done that to punish me. The whole experience there left me traumatized, and it didn't help at all anyway. Heaps of other things happened there too, including previously, on one occasion, a lady died next to me, and they wrapped up her body, but then left there for over 4 hours, before moving to the morgue, and left the curtain half open, with me having to lie there next to her. Maybe that wouldn't upset some, but I found it quite upsetting... There was lots more, but I won't go into it all. I'm only now just starting to recover from the experience. My specialist and gp had wanted me to go in there in May, when everything seemed to flare up again, when I had the flu, and I apparently had very 'brisk' reflexes, and had some foot response or something; they wanted me tested for MS, and put on steroids. They did that at the hospital, and the test turned out negative, but in doing that I was basically left in there to rot for 5 wks before they discharged me, and I left sicker than when I'd gone in, due to the filthy conditions, and negative atmosphere there. I've sworn now, that no matter what ever happens to me; that I will never, ever go to that hospital again. I have been referred to another specialist in Sydney, but I've been too stressed and sick to go. I just want to be left alone now. I just go to my gp for meds, and don't want to see anyone else. I've become a bit of a hermit actually. Anyway; the Baclofen has helped a lot, and I've been exercising my legs lots to try to get back as much mobility as possible, (ditched the physiotherapists too), and have made some pretty good progress lately; so at least things are looking better than they were a few months back; and I'm feeling more settled, and much prefer just looking after myself anyway. Unfortunately I live alone, which makes things hard, but have gotten a good service from a local private nursing group here, so I'm getting some help with housework and shopping, as I've been in a wheelchair mostly since last December when the TM hit. I've now progressed to forearm support frame, and have even attempted a bit of staggering about with a cane. It probably looks pretty funny, sort of like I'm very drunk or something, but there's no one to stare, or to panic about my attempts, and at least I'm managing it. I feel I've progressed much better since ditching the so-called public health services, and just working things out for myself. Thank goodness I have a great gp anyway. Anyway, sorry for rambling on, but even when I think about that experience at the hospital, I still get distressed. All I had really meant to say, is that chauvinism and prejudice do exist in the
Re: [TMIC] Re: Brain stuff or not
Well, folks it's true. A husband at the scene makes all the difference. At least that's been the case with me missus and more than once. When she gets nowheres with a doc, she'll bring me along at the next appointment, and my mere presence makes the chauvinist doc change his tune pronto presto. One neuro would only talk to me totally ignoring his patient. Amazing. One of her neuros was so pissed off at my being there he almost threw us out. We dumped him instead. What a jerk. A complete drongo, as GillyGurLL would say. Unfortunately there is still out there the misconception that women cain't tell schitt from schmitt. and wy too many doctors, with their gawd-like attitudes, suffer from this malady in the worst way. So, to those of you who think you can handle a misogynist doc by yourselves, go for it. To the rest of you, bring in reinforcements. I'll stand by me missus anytime; so should your hubby or significant other. Bobberino From: Natalie Boyles To: [EMAIL PROTECTED] Cc: [EMAIL PROTECTED] ; TM list Sent: Monday, September 18, 2006 10:37 PM Subject: Re: [TMIC] Re: Brain stuff or not LOL Frank! Are you really serious about taking ones husband along so the doctor will believe them? I never drag my husband along if I can help it.He only gets a few days off as is. And, I am a grown woman and I feel it would be like taking along a parent or guardian. Please tell me doctors do not think like that. Sounds like a scene out of "Gone from the Wind." " Why Brett,I think she is haven a case of the vapors." This has given me a good laugh, oh my. Patti, Frank is cool, I guess he is maybe telling us how it is. Are you? Natalie On 9/18/06, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote: You should tread lightly F. In defense of women, is there a difference between men who are in pain and men who are a PAIN? Patti "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> wrote:> neurotic housewife?>> Your problem is that you're a female.> Most doctors know that any symptoms reported by women are due to neurosis, symptoms reported by men are > secondary to some disease process.> I know that doesn't help. > Have you tried taking your husband with you to the doctor's??> Good Luck> F
Re: [TMIC] Re: Brain stuff or not
I do take my hubby to the doc with me on many occasion. It depends on what the appointment is for and how I'm functioning at the time. I am capable of driving, and walking short distances. I cannot get my wheelchair out of the car or put back in myself, so if I cannot park close enough to make the trek to his office, I'm sunk. Fortunately for me, he works closeby and can leave work if necessary to help. Sometimes, he just helps with the chair, and sometimes he accompanies me to the appointment. It is also fortunate that he has lots of sick leave built up and they recently changed the policy where they can use it for family care. If I need to have more time allotted, he just schedules the day off. Also, depending upon what the appointment is for, it makes your visit and disability case a lot more credible if somebody needs to accompany you to an appointment. I often cannot find the words I want to express a concern or question - Pete usually can figure it out by the clues that I'm able to provide. That is so frustrating when you cannot pull the right words out of your mouth, the brain just doesn't engage. if this is not a previously scheduled routine appointment, I also tend to forget some of the things that I wanted to ask the doc about. If it is, I usually have a list. But, if I am sick or have something that is worrying me and going in on an as needed basis, I don't always remember things. He is very helpful at those times. Just my 2 cents . Big hugs to all, Barbara A in Auburn CA
Re: [TMIC] Re: Brain stuff or not
> ... about taking ones husband along ...I bring my wife into the doctor's rooms with me. She can remember what he said and told me. I cannot remember what I had for breakfast. lolAlton, nearly 72 and glad to be still counting
Re: [TMIC] Re: Brain stuff or not
If I could I would take umbrage but Jude has already taken it apparently, so,since it's not available, I won't. PHranque, oops, forgot the silent 3, I know very well it was tongue in cheek, sadly though, I have found it to be oh so true, as you also know. Trev comes with me these days only because I don't drive anymore, so, he has no choice, neither do I. I don't bother with specialists any more though, I just visit my gp for prescriptions. Since I have been going to him for over 20 years, he knows me very well and knows I would rather he said, "well, what do you want me to do?" than to pretend. hugs Gilly www.originaltouchofgilly.comfor quality handcrafted costume jewellery- From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; TM list ; Gillian Clark Sent: Tuesday, September 19, 2006 10:10 PM Subject: Re: [TMIC] Re: Brain stuff or not > You should tread lightly F. > > Patti > > Your problem is that you're a female.> > > > Most doctors know that any symptoms reported by women are due to neurosis, symptoms reported by men are secondary to some disease process.> > FPatti and the many others who have e-mailed me,My e-mail was written tongue in cheek- a joke even?But there was a study done in the 1970's that showed that women complaining of chest pain to male physicians were more likely NOT to have as thorough lab/ekg/echocardiograms/etc than men of the same age.F
Re: [TMIC] Re: Brain stuff or not
I have inner ear damage from an attack of labyrinthitis a few years ago. Last year I had a bad attack (dizziness and spaciness in my head) while waiting in my opthamologist's office. First they asked if I had eaten or if I was dieting, and when they learned that I had indeed eaten, they asked if I was afraid to be seeing the eye doctor! Looks like we all get treated like children at times. take care -- I pray for you all everybay -- Michelle - Original Message - From: <[EMAIL PROTECTED]> To: "Natalie Boyles" <[EMAIL PROTECTED]> Cc: <[EMAIL PROTECTED]>; "TM list" Sent: Tuesday, September 19, 2006 2:50 PM Subject: Re: [TMIC] Re: Brain stuff or not Frank tells it like it is. When I went to ER with my TM attack the doctor kept asking if I was dieting. That's how he wanted to explain my tremors, spasms and paralysis. My husband took me to another hospital. Patti --- Natalie Boyles <[EMAIL PROTECTED]> wrote: LOL Frank! Are you really serious about taking ones husband along so the doctor will believe them? I never drag my husband along if I can help it.Heonly gets a few days off as is. And, I am a grown woman and I feel it would be like taking along a parent or guardian. Please tell me doctors do not think like that. Sounds like a scene out of "Gone from the Wind." "Why Brett,I think she is haven a case of the vapors." This has given me a good laugh, oh my. Patti, Frank is cool, I guess he is maybe telling us how it is. Are you? Natalie On 9/18/06, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote: > > You should tread lightly F. In defense of women, is there a difference > between men who are in pain and men who are a PAIN? > > Patti > "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> wrote: > > neurotic housewife? > > > > Your problem is that you're a female. > > > > Most doctors know that any symptoms reported by women are due to > neurosis, symptoms reported by men are secondary to some disease > process. > > > > I know that doesn't help. > > > > Have you tried taking your husband with you to the doctor's?? > > > > Good Luck > > > > F > >
Re: [TMIC] Re: Brain stuff or not
Have I already mention Trigeminal Neuralgia to you? That may be the reason you feel pain in your jaw, neck and ears. I have TN (N not M...lol) and I have pain in my ear, neck, and jaw. Trigeminal Neuralgia is normal only on one side but I have it on both sides at various times with it usually only on the left. When a patient presents with Bilateral Trigeminal Neuralgia then the docs need to look at MS. And this recent tidbit: I think it's 35% of MSers have Trigeminal Neuralgia. That's a lot higher than they thought previously. Now if it happens with MS I wonder if it also holds true for TMers? Sharon Sharon --from Arizona TM 1997 to MS 1998 It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant http://health.groups.yahoo.com/group/MSersLife- Original Message From: Jill Z <[EMAIL PROTECTED]>To: bobby jim hijar <[EMAIL PROTECTED]>; Heather & Pieter <[EMAIL PROTECTED]>; [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.comSent: Saturday, September 16, 2006 7:30:02 PMSubject: Re: [TMIC] Re: Brain stuff or notI'm confused too. I swear something is wrong w/ my jaw and my left side feels weaker and less sensation than the right. My lesion is at T10-11 why the hell am I feeling it in my left arm and jaw and neck and ears??? I see the neuro on 10/18 maybe something else is going on? Anyone else feel this. It sounds like only the MS'rs get this stuff?bobby jim hijar <[EMAIL PROTECTED]> wrote:Am not quite sure what recurring TM is a flare up... And I don't think it happens in a different part of the spine.. (help me, guyze). As I understand it, recurring MS is the same as recurring-relapsing MS. It is not a second attack if it's only an exhacerbation to a previous event (correct me if am wrong, y'all) but I believe that doesn't happen in MS, only TM. And then, it's the progressive MS that doesn't respond to most ABCs. But that's a horse of a whole different color. Rain and snow.. Already??? Yikes. It hit 32ºC earlier today down here. Damn.!! Bobberino in balmy Elvisland From: Heather & Pieter To: bobby jim hijar ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Saturday, September 16, 2006 12:52 AM Subject: Re: Brain stuff or notHmm, then what about Recurring TM? Is that not a second attack in a different part of the spine? I should read about it on the Forum website. Thanks Bobberino, Heather in Calgary (and yes we had some rain mixed with wet 'snow' flurries today - Yuck. From: bobby jim hijar To: Heather & Pieter ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Friday, September 15, 2006 6:57 PM Subject: Re: Brain stuff or notWell, yes, from what I've heard as well, brain lesions are a sure reason for an MS dx. On the other hand, I was also told that once there is a second attack in a different part of the spine, the dx changes from single sclerosis (TM) to multiple (two or more) sclerosis. Ergo the change of dx. The change of dx didn't upset us one bit. It meant me missus qualified for the ABCs, and today, 325 injections later (I shudder at the 'real' cost), Da Boss is doing just fine, thankyew.;>) Hang in there, y'all BobberinoFrom: Heather & Pieter To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Friday, September 15, 2006 1:25 PM Subject: Re: [TMIC] Re: (OT) Re: tmic-digest Digest V2006 #185I find it odd that if there are no lesions on your brain that the doctors have determined that you now have MS. I have been under the belief that lesions on the brain 'usually' is why the diagnosis changes from TM to MS. I have a sister 3 yrs younger than myself who has MS. Hers is the slow moving kind and she was officially diagnosed back in 1991 but feels she had it for many more years than that. In 1991 she had her second 'attack' and the MRI at that time found the brain lesions which were not in her first MRI a few years prior to that. {{{ Hugs to you}}} and a listening ear from all of us. Heather in Calgary
Re: [TMIC] Re: Brain stuff or not
Frank tells it like it is. When I went to ER with my TM attack the doctor kept asking if I was dieting. That's how he wanted to explain my tremors, spasms and paralysis. My husband took me to another hospital. Patti --- Natalie Boyles <[EMAIL PROTECTED]> wrote: > LOL Frank! Are you really serious about taking ones husband along so the > doctor will believe them? I never drag my husband along if I can help > it.Heonly gets a few days off as is. And, I am > a grown woman and I feel it would be like taking along a parent or guardian. > Please tell me doctors do not think like that. Sounds like a scene out of > "Gone from the Wind." "Why Brett,I think she is haven a case of the > vapors." > > This has given me a good laugh, oh my. Patti, Frank is cool, I guess he is > maybe telling us how it is. Are you? > Natalie > > > On 9/18/06, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote: > > > > You should tread lightly F. In defense of women, is there a difference > > between men who are in pain and men who are a PAIN? > > > > Patti > > "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> wrote: > > > neurotic housewife? > > > > > > Your problem is that you're a female. > > > > > > Most doctors know that any symptoms reported by women are due to > > neurosis, symptoms reported by men are secondary to some disease process. > > > > > > I know that doesn't help. > > > > > > Have you tried taking your husband with you to the doctor's?? > > > > > > Good Luck > > > > > > F > > > >
RE: [TMIC] Re: Brain stuff or not
I had a neurologist tell me that I was leading everyone down the garden path, that I was blaming my car accident when really, there was nothing wrong. Finally after 2 years, he is recanting that as the spinal tap showed that there is an issue. I think, whether Frank was "tongue in cheek" or not, (which I think he was) - he hit a truth on the head. Humor does reflect reality! I appreciated the laugh. Janet - "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> wrote: > neurotic housewife? > > Your problem is that you're a female. > > Most doctors know that any symptoms reported by women are due to neurosis, symptoms reported by men are secondary to some disease process. > > I know that doesn't help. > > Have you tried taking your husband with you to the doctor's?? > > Good Luck > > F
Re: [TMIC] Re: Brain stuff or not
> You should tread lightly F. > > Patti > > Your problem is that you're a female. > > > > Most doctors know that any symptoms reported by women are due to neurosis, > > symptoms reported by men are secondary to some disease process. > > F Patti and the many others who have e-mailed me, My e-mail was written tongue in cheek- a joke even? But there was a study done in the 1970's that showed that women complaining of chest pain to male physicians were more likely NOT to have as thorough lab/ekg/echocardiograms/etc than men of the same age. F
Re: [TMIC] Re: Brain stuff or not
Title: AOL Email In a message dated 9/18/2006 3:34:46 PM Central Standard Time, [EMAIL PROTECTED] writes: You should tread lightly F. In defense of women, is there a difference between men who are in pain and men who are a PAIN? The difference is that men ARE a pain! (although not all of the time) Love, Jude
Re: [TMIC] Re: Brain stuff or not
LOL Frank! Are you really serious about taking ones husband along so the doctor will believe them? I never drag my husband along if I can help it.He only gets a few days off as is. And, I am a grown woman and I feel it would be like taking along a parent or guardian. Please tell me doctors do not think like that. Sounds like a scene out of "Gone from the Wind." " Why Brett,I think she is haven a case of the vapors." This has given me a good laugh, oh my. Patti, Frank is cool, I guess he is maybe telling us how it is. Are you? Natalie On 9/18/06, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote: You should tread lightly F. In defense of women, is there a difference between men who are in pain and men who are a PAIN? Patti "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> wrote:> neurotic housewife?> > Your problem is that you're a female.>> Most doctors know that any symptoms reported by women are due to neurosis, symptoms reported by men are secondary to some disease process.>> I know that doesn't help. >> Have you tried taking your husband with you to the doctor's??>> Good Luck>> F
Re: [TMIC] Re: Brain stuff or not
You should tread lightly F. In defense of women, is there a difference between men who are in pain and men who are a PAIN? Patti "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> wrote: > neurotic housewife? > > Your problem is that you're a female. > > Most doctors know that any symptoms reported by women are due to neurosis, > symptoms reported by men are secondary to some disease process. > > I know that doesn't help. > > Have you tried taking your husband with you to the doctor's?? > > Good Luck > > F
Re: [TMIC] Re: Brain stuff or not
Oh I know that pHran3que, only too well!! Gilly www.originaltouchofgilly.comfor quality handcrafted costume jewellery neurotic housewife?Your problem is that you're a female.Most doctors know that any symptoms reported by women are due to neurosis, symptoms reported by men are secondary to some disease process.I know that doesn't help.Have you tried taking your husband with you to the doctor's??Good LuckF
Re: [TMIC] Re: Brain stuff or not
So true, lol. Last year, my hubby was on a real downer & went to see his dr who pronounced the problem as a 'burn-out". Bet if I had seen him, he would have called it "depression". Diane in Canada "[EMAIL PROTECTED]" wrote: > neurotic housewife? > > Your problem is that you're a female. > > Most doctors know that any symptoms reported by women are due to neurosis, > symptoms reported by men are secondary to some disease process. >
Re: [TMIC] Re: Brain stuff or not
neurotic housewife? Your problem is that you're a female. Most doctors know that any symptoms reported by women are due to neurosis, symptoms reported by men are secondary to some disease process. I know that doesn't help. Have you tried taking your husband with you to the doctor's?? Good Luck F
Re: [TMIC] Re: Brain stuff or not
Jillybean (USA) My 2c for what it's worth. I find that when something else is going wrong, maybe an infection, flu, or I've been overdoing, that all of the tm symptoms are much worse (almost a flare up). After 5 years, I just don't bother any more, especially when I used to go to my dr and he'd just have a quick look and say "you seem to be ok, nothing too bad"!!! I spent time in the first 12 months going to all sorts of specialist all of whom treated me like some kind of neurotic housewife. So, I just don't bother anymore. I feel, young Jillybean, that you might be doing just way way way too much. hugs Gillybean (Australia) www.originaltouchofgilly.comfor quality handcrafted costume jewelleryTo: bobby jim hijar ; Heather & Pieter ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Sunday, September 17, 2006 12:00 PM Subject: Re: [TMIC] Re: Brain stuff or not I'm confused too. I swear something is wrong w/ my jaw and my left side feels weaker and less sensation than the right. My lesion is at T10-11 why the hell am I feeling it in my left arm and jaw and neck and ears??? I see the neuro on 10/18 maybe something else is going on? Anyone else feel this. It sounds like only the MS'rs get this stuff?bobby jim hijar <[EMAIL PROTECTED]> wrote: Am not quite sure what recurring TM is a flare up... And I don't think it happens in a different part of the spine.. (help me, guyze). As I understand it, recurring MS is the same as recurring-relapsing MS. It is not a second attack if it's only an exhacerbation to a previous event (correct me if am wrong, y'all) but I believe that doesn't happen in MS, only TM. And then, it's the progressive MS that doesn't respond to most ABCs. But that's a horse of a whole different color. Rain and snow.. Already??? Yikes. It hit 32ºC earlier today down here. Damn.!! Bobberino in balmy Elvisland From: Heather & Pieter To: bobby jim hijar ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Saturday, September 16, 2006 12:52 AM Subject: Re: Brain stuff or not Hmm, then what about Recurring TM? Is that not a second attack in a different part of the spine? I should read about it on the Forum website. Thanks Bobberino, Heather in Calgary (and yes we had some rain mixed with wet 'snow' flurries today - Yuck. From: bobby jim hijar To: Heather & Pieter ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Friday, September 15, 2006 6:57 PM Subject: Re: Brain stuff or not Well, yes, from what I've heard as well, brain lesions are a sure reason for an MS dx. On the other hand, I was also told that once there is a second attack in a different part of the spine, the dx changes from single sclerosis (TM) to multiple (two or more) sclerosis. Ergo the change of dx. The change of dx didn't upset us one bit. It meant me missus qualified for the ABCs, and today, 325 injections later (I shudder at the 'real' cost), Da Boss is doing just fine, thankyew.;>) Hang in there, y'all Bobberino From: Heather & Pieter To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Friday, September 15, 2006 1:25 PM Subject: Re: [TMIC] Re: (OT) Re: tmic-digest Digest V2006 #185 I find it odd that if there are no lesions on your brain that the doctors have determined that you now have MS. I have been under the belief that lesions on the brain 'usually' is why the diagnosis changes from TM to MS. I have a sister 3 yrs younger than myself who has MS. Hers is the slow moving kind and she was officially diagnosed back in 1991 but feels she had it for many more years than that. In 1991 she had her second 'attack' and the MRI at that time found the brain lesions which were not in her first MRI a few years prior to that. {{{ Hugs to you}}} and a listening ear from all of us. Heather in Calgary
Re: [TMIC] Re: Brain stuff or not
I'm confused too. I swear something is wrong w/ my jaw and my left side feels weaker and less sensation than the right. My lesion is at T10-11 why the hell am I feeling it in my left arm and jaw and neck and ears??? I see the neuro on 10/18 maybe something else is going on? Anyone else feel this. It sounds like only the MS'rs get this stuff?bobby jim hijar <[EMAIL PROTECTED]> wrote:Am not quite sure what recurring TM is a flare up... And I don't think it happens in a different part of the spine.. (help me, guyze). As I understand it, recurring MS is the same as recurring-relapsing MS. It is not a second attack if it's only an exhacerbation to a previous event (correct me if am wrong, y'all) but I believe that doesn't happen in MS, only TM. And then, it's the progressive MS that doesn't respond to most ABCs. But that's a horse of a whole different color. Rain and snow.. Already??? Yikes. It hit 32ºC earlier today down here. Damn.!! Bobberino in balmy Elvisland From: Heather & Pieter To: bobby jim hijar ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Saturday, September 16, 2006 12:52 AM Subject: Re: Brain stuff or notHmm, then what about Recurring TM? Is that not a second attack in a different part of the spine? I should read about it on the Forum website. Thanks Bobberino, Heather in Calgary (and yes we had some rain mixed with wet 'snow' flurries today - Yuck. From: bobby jim hijar To: Heather & Pieter ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Friday, September 15, 2006 6:57 PM Subject: Re: Brain stuff or notWell, yes, from what I've heard as well, brain lesions are a sure reason for an MS dx. On the other hand, I was also told that once there is a second attack in a different part of the spine, the dx changes from single sclerosis (TM) to multiple (two or more) sclerosis. Ergo the change of dx. The change of dx didn't upset us one bit. It meant me missus qualified for the ABCs, and today, 325 injections later (I shudder at the 'real' cost), Da Boss is doing just fine, thankyew.;>) Hang in there, y'all BobberinoFrom: Heather & Pieter To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Friday, September 15, 2006 1:25 PM Subject: Re: [TMIC] Re: (OT) Re: tmic-digest Digest V2006 #185I find it odd that if there are no lesions on your brain that the doctors have determined that you now have MS. I have been under the belief that lesions on the brain 'usually' is why the diagnosis changes from TM to MS. I have a sister 3 yrs younger than myself who has MS. Hers is the slow moving kind and she was officially diagnosed back in 1991 but feels she had it for many more years than that. In 1991 she had her second 'attack' and the MRI at that time found the brain lesions which were not in her first MRI a few years prior to that. {{{ Hugs to you}}} and a listening ear from all of us. Heather in Calgary
Re: [TMIC] Re: Brain stuff or not
i have had TM two times and Devics. It is in the same place..I am recovering...i am lucky.. - Original Message - From: Heather & Pieter To: bobby jim hijar ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Saturday, September 16, 2006 12:52 AM Subject: [TMIC] Re: Brain stuff or not Hmm, then what about Recurring TM? Is that not a second attack in a different part of the spine? I should read about it on the Forum website. Thanks Bobberino, Heather in Calgary (and yes we had some rain mixed with wet 'snow' flurries today - Yuck. - Original Message - From: bobby jim hijar To: Heather & Pieter ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Friday, September 15, 2006 6:57 PM Subject: Re: Brain stuff or not Well, yes, from what I've heard as well, brain lesions are a sure reason for an MS dx. On the other hand, I was also told that once there is a second attack in a different part of the spine, the dx changes from single sclerosis (TM) to multiple (two or more) sclerosis. Ergo the change of dx. The change of dx didn't upset us one bit. It meant me missus qualified for the ABCs, and today, 325 injections later (I shudder at the 'real' cost), Da Boss is doing just fine, thankyew.;>) Hang in there, y'all Bobberino From: Heather & Pieter To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Friday, September 15, 2006 1:25 PM Subject: Re: [TMIC] Re: (OT) Re: tmic-digest Digest V2006 #185 I find it odd that if there are no lesions on your brain that the doctors have determined that you now have MS. I have been under the belief that lesions on the brain 'usually' is why the diagnosis changes from TM to MS. I have a sister 3 yrs younger than myself who has MS. Hers is the slow moving kind and she was officially diagnosed back in 1991 but feels she had it for many more years than that. In 1991 she had her second 'attack' and the MRI at that time found the brain lesions which were not in her first MRI a few years prior to that. {{{ Hugs to you}}} and a listening ear from all of us. Heather in Calgary No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.405 / Virus Database: 268.12.4/449 - Release Date: 9/15/2006
[TMIC] Re: Brain stuff or not
Am not quite sure what recurring TM is a flare up... And I don't think it happens in a different part of the spine.. (help me, guyze). As I understand it, recurring MS is the same as recurring-relapsing MS. It is not a second attack if it's only an exhacerbation to a previous event (correct me if am wrong, y'all) but I believe that doesn't happen in MS, only TM. And then, it's the progressive MS that doesn't respond to most ABCs. But that's a horse of a whole different color. Rain and snow.. Already??? Yikes. It hit 32ºC earlier today down here. Damn.!! Bobberino in balmy Elvisland From: Heather & Pieter To: bobby jim hijar ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Saturday, September 16, 2006 12:52 AM Subject: Re: Brain stuff or not Hmm, then what about Recurring TM? Is that not a second attack in a different part of the spine? I should read about it on the Forum website. Thanks Bobberino, Heather in Calgary (and yes we had some rain mixed with wet 'snow' flurries today - Yuck. From: bobby jim hijar To: Heather & Pieter ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Friday, September 15, 2006 6:57 PM Subject: Re: Brain stuff or not Well, yes, from what I've heard as well, brain lesions are a sure reason for an MS dx. On the other hand, I was also told that once there is a second attack in a different part of the spine, the dx changes from single sclerosis (TM) to multiple (two or more) sclerosis. Ergo the change of dx. The change of dx didn't upset us one bit. It meant me missus qualified for the ABCs, and today, 325 injections later (I shudder at the 'real' cost), Da Boss is doing just fine, thankyew.;>) Hang in there, y'all Bobberino From: Heather & Pieter To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Friday, September 15, 2006 1:25 PM Subject: Re: [TMIC] Re: (OT) Re: tmic-digest Digest V2006 #185 I find it odd that if there are no lesions on your brain that the doctors have determined that you now have MS. I have been under the belief that lesions on the brain 'usually' is why the diagnosis changes from TM to MS. I have a sister 3 yrs younger than myself who has MS. Hers is the slow moving kind and she was officially diagnosed back in 1991 but feels she had it for many more years than that. In 1991 she had her second 'attack' and the MRI at that time found the brain lesions which were not in her first MRI a few years prior to that. {{{ Hugs to you}}} and a listening ear from all of us. Heather in Calgary
[TMIC] Re: Brain stuff or not
Hmm, then what about Recurring TM? Is that not a second attack in a different part of the spine? I should read about it on the Forum website. Thanks Bobberino, Heather in Calgary (and yes we had some rain mixed with wet 'snow' flurries today - Yuck. - Original Message - From: bobby jim hijar To: Heather & Pieter ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Friday, September 15, 2006 6:57 PM Subject: Re: Brain stuff or not Well, yes, from what I've heard as well, brain lesions are a sure reason for an MS dx. On the other hand, I was also told that once there is a second attack in a different part of the spine, the dx changes from single sclerosis (TM) to multiple (two or more) sclerosis. Ergo the change of dx. The change of dx didn't upset us one bit. It meant me missus qualified for the ABCs, and today, 325 injections later (I shudder at the 'real' cost), Da Boss is doing just fine, thankyew.;>) Hang in there, y'all Bobberino From: Heather & Pieter To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Friday, September 15, 2006 1:25 PM Subject: Re: [TMIC] Re: (OT) Re: tmic-digest Digest V2006 #185 I find it odd that if there are no lesions on your brain that the doctors have determined that you now have MS. I have been under the belief that lesions on the brain 'usually' is why the diagnosis changes from TM to MS. I have a sister 3 yrs younger than myself who has MS. Hers is the slow moving kind and she was officially diagnosed back in 1991 but feels she had it for many more years than that. In 1991 she had her second 'attack' and the MRI at that time found the brain lesions which were not in her first MRI a few years prior to that. {{{ Hugs to you}}} and a listening ear from all of us. Heather in Calgary No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.405 / Virus Database: 268.12.4/449 - Release Date: 9/15/2006
[TMIC] Re: Brain stuff or not
Well, yes, from what I've heard as well, brain lesions are a sure reason for an MS dx. On the other hand, I was also told that once there is a second attack in a different part of the spine, the dx changes from single sclerosis (TM) to multiple (two or more) sclerosis. Ergo the change of dx. The change of dx didn't upset us one bit. It meant me missus qualified for the ABCs, and today, 325 injections later (I shudder at the 'real' cost), Da Boss is doing just fine, thankyew.;>) Hang in there, y'all Bobberino From: Heather & Pieter To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Friday, September 15, 2006 1:25 PM Subject: Re: [TMIC] Re: (OT) Re: tmic-digest Digest V2006 #185 I find it odd that if there are no lesions on your brain that the doctors have determined that you now have MS. I have been under the belief that lesions on the brain 'usually' is why the diagnosis changes from TM to MS. I have a sister 3 yrs younger than myself who has MS. Hers is the slow moving kind and she was officially diagnosed back in 1991 but feels she had it for many more years than that. In 1991 she had her second 'attack' and the MRI at that time found the brain lesions which were not in her first MRI a few years prior to that. {{{ Hugs to you}}} and a listening ear from all of us. Heather in Calgary