Re: [TMIC] leg and foot comfort in bed
Janice, Allen Rucker was on here for a little while. I too read his book.
Borrowed it from the library after I heard about it. He was one of the
speakers at the Symposium in Seattle last summer.
Heather in Calgary
- Original Message -
From: Janice
To: patticoo...@wi.rr.com ; tmic-list@eskimo.com ; balmat...@aol.com
Sent: Tuesday, April 21, 2009 6:55 PM
Subject: Re: [TMIC] leg and foot comfort in bed
Actually, the way I got in contact with this group is from a TM'er that did
write a book about his TM experience. I contacted him
after reading the book and after 2-3 emails he asked me if I had joined this
group. So I did! Funny thing though, he hasn't joined
in with any emails. He lives in California and is a writer as an
occupation. His book is "The Best Seat in the House" and the
author is Allen Rucker. He has had TM for about 9 years. I identified
with some of it too.Janice
- Original Message -
From: balmat...@aol.com
To: jan...@centurytel.net ; patticoo...@wi.rr.com ; tmic-list@eskimo.com
Sent: Monday, April 20, 2009 11:13 PM
Subject: Re: [TMIC] leg and foot comfort in bed
Absolutely Janice,
I was like a Raggedy Ann doll. Totally floppy from the waist down,
couldn't sit without being propped up, and no matter what position my legs were
put in, they flopped. It is painful to look back and see what I was like when
TM happened, but good to see how far I've come. I often forget about all that
has happened to me, all the strange little occurances as well. I could write a
book, but then, I really wouldn't want to write it all down, and surely, I
doubt anyone would want to read as much of it as there is.
We've come a long way baby!
Hugs to all! Barbara A
-Original Message-
From: Janice
To: Patricia Cooley ; tmic-list@eskimo.com;
balmat...@aol.com
Sent: Sun, 19 Apr 2009 8:34 pm
Subject: Re: [TMIC] leg and foot comfort in bed
You reminded me of my old hospital days where I could not turn over without
help, or slide up in the bed. When you can
look back and see where your body has actually gotten stronger - even with
the problems TM has left us - you realize how
fortunate we are. I am comparing us to 2 people I know that are dying of
cancer. Parts of our lives are the pits, but we
know we have our lives to live and in most cases, improvement to look
forward to. Jance
- Original Message -
From: Patricia Cooley
To: 'Janice' ; tmic-list@eskimo.com ; balmat...@aol.com
Sent: Sunday, April 19, 2009 10:47 AM
Subject: RE: [TMIC] leg and foot comfort in bed
I, TOO, AM FORTUNATE THAT I DON’T HAVE ANY SKIN SENSITIVITY. I ALSO
DON’T HAVE THE PAIN SO MANY OF US HAVE. I DO HAVE A SPASMS IN MY LEFT LEG ONCE
IN A WHILE. IN FACT, I CAN CAUSE A SPASM BY TURNING MY LEFT FOOT TO THE LEFT
AND ALL OF A SUDDEN I CAN FEEL A SPASM. WHEN I GOT TM AND WAS IN THE HOSPITAL
I WAS UNABLE TO TURN OVER AND HAD TO SLEEP ON MY BACK WHICH WAS ALSO SO
UNCOMFORTABLE BEFORE. I FOUND THE HOSPITAL BED PROVIDED SOME RELIEF AS I COULD
RAISE THE HEAD OF THE BED SO I WASN’T SO FLAT ON MY BACK. I WAS EVEN NOT ABLE
TO LIFT MY LEGS UP IF THEY SLID OFF THE SIDE OF THE BAD AND HAD TO RING FOR A
NURSE. I HAVE A STRONG RAILING ON THE SIDE OF MY BED WHICH MADE IT POSSIBLE
FOR ME TO FINALLY TURN OVER. I HAVE IMPROVED TREMDOUSLY AND AM ABLE TO TURN
OVER WITHOUT MUCH ASSISTANCE. ONE OF MY PROBLEMS THIS PAST WINTER WAS I WAS
ALWAYS SO COLD??? I SLEPT IN FLANNEL NIGHTGOWNS AND AT LEAST 3-4 BLANKETS. IT
WAS THE ONLY PLACE I COULD GET WARM. WITH WARMER TEMPS I AM NOW ABLE TO SWITCH
TO SUMMER SLEEPWEAR. AS MUCH AS I FEEL SORRY FOR MYSELF AT TIMES, I KNOW HOW
VERY LUCKY I AM THAT I DON’T SUFFER MANY OF THE PROBLEMS A LOT OF TM’ERS DO.
MY MENTAL OUTLOOK HAS IMPROVED TREMDOUSLY, WHICH I THINK IS BECAUSE OF ALL THE
SUPPORT FROM ALL OF YOU ON THIS WEB SITE.
PATTI IN WISCONSIN
From: Janice=2 0[mailto:jan...@centurytel.net]
Sent: Saturday, April 18, 2009 11:34 PM
To: tmic-list@eskimo.com; balmat...@aol.com
Subject: Re: [TMIC] leg and foot comfort in bed
I am s fortunate that I don't have the skin sensitivity that so many
of you talk about.If I pull up something really soft, like my gown or robe,
I will spasm for a minute, but I don't really have pain, just discomfort and
only for a minute. I would think that
the cotton knit would be a blessing. I like 100% cotton to sleep in for
summer - it helps keep me cool.
Janice
- Original Message -
From: balmat...@aol.com
To: tmic-list@eskimo.com
Sent: Thursday, April 16, 2009 12:20 AM
Subject: Re: [TMIC] leg and foot comfort in bed
I am such a happy camper with my cotton k
Re: [TMIC] leg and foot comfort in bed
Actually, the way I got in contact with this group is from a TM'er that did
write a book about his TM experience. I contacted him
after reading the book and after 2-3 emails he asked me if I had joined this
group. So I did! Funny thing though, he hasn't joined
in with any emails. He lives in California and is a writer as an occupation.
His book is "The Best Seat in the House" and the
author is Allen Rucker. He has had TM for about 9 years. I identified with
some of it too.Janice
- Original Message -
From: balmat...@aol.com
To: jan...@centurytel.net ; patticoo...@wi.rr.com ; tmic-list@eskimo.com
Sent: Monday, April 20, 2009 11:13 PM
Subject: Re: [TMIC] leg and foot comfort in bed
Absolutely Janice,
I was like a Raggedy Ann doll. Totally floppy from the waist down, couldn't
sit without being propped up, and no matter what position my legs were put in,
they flopped. It is painful to look back and see what I was like when TM
happened, but good to see how far I've come. I often forget about all that has
happened to me, all the strange little occurances as well. I could write a
book, but then, I really wouldn't want to write it all down, and surely, I
doubt anyone would want to read as much of it as there is.
We've come a long way baby!
Hugs to all! Barbara A
-Original Message-
From: Janice
To: Patricia Cooley ; tmic-list@eskimo.com;
balmat...@aol.com
Sent: Sun, 19 Apr 2009 8:34 pm
Subject: Re: [TMIC] leg and foot comfort in bed
You reminded me of my old hospital days where I could not turn over without
help, or slide up in the bed. When you can
look back and see where your body has actually gotten stronger - even with
the problems TM has left us - you realize how
fortunate we are. I am comparing us to 2 people I know that are dying of
cancer. Parts of our lives are the pits, but we
know we have our lives to live and in most cases, improvement to look forward
to. Jance
- Original Message -
From: Patricia Cooley
To: 'Janice' ; tmic-list@eskimo.com ; balmat...@aol.com
Sent: Sunday, April 19, 2009 10:47 AM
Subject: RE: [TMIC] leg and foot comfort in bed
I, TOO, AM FORTUNATE THAT I DON’T HAVE ANY SKIN SENSITIVITY. I ALSO DON’T
HAVE THE PAIN SO MANY OF US HAVE. I DO HAVE A SPASMS IN MY LEFT LEG ONCE IN A
WHILE. IN FACT, I CAN CAUSE A SPASM BY TURNING MY LEFT FOOT TO THE LEFT AND
ALL OF A SUDDEN I CAN FEEL A SPASM. WHEN I GOT TM AND WAS IN THE HOSPITAL I
WAS UNABLE TO TURN OVER AND HAD TO SLEEP ON MY BACK WHICH WAS ALSO SO
UNCOMFORTABLE BEFORE. I FOUND THE HOSPITAL BED PROVIDED SOME RELIEF AS I COULD
RAISE THE HEAD OF THE BED SO I WASN’T SO FLAT ON MY BACK. I WAS EVEN NOT ABLE
TO LIFT MY LEGS UP IF THEY SLID OFF THE SIDE OF THE BAD AND HAD TO RING FOR A
NURSE. I HAVE A STRONG RAILING ON THE SIDE OF MY BED WHICH MADE IT POSSIBLE
FOR ME TO FINALLY TURN OVER. I HAVE IMPROVED TREMDOUSLY AND AM ABLE TO TURN
OVER WITHOUT MUCH ASSISTANCE. ONE OF MY PROBLEMS THIS PAST WINTER WAS I WAS
ALWAYS SO COLD??? I SLEPT IN FLANNEL NIGHTGOWNS AND AT LEAST 3-4 BLANKETS. IT
WAS THE ONLY PLACE I COULD GET WARM. WITH WARMER TEMPS I AM NOW ABLE TO SWITCH
TO SUMMER SLEEPWEAR. AS MUCH AS I FEEL SORRY FOR MYSELF AT TIMES, I KNOW HOW
VERY LUCKY I AM THAT I DON’T SUFFER MANY OF THE PROBLEMS A LOT OF TM’ERS DO.
MY MENTAL OUTLOOK HAS IMPROVED TREMDOUSLY, WHICH I THINK IS BECAUSE OF ALL THE
SUPPORT FROM ALL OF YOU ON THIS WEB SITE.
PATTI IN WISCONSIN
From: Janice=2 0[mailto:jan...@centurytel.net]
Sent: Saturday, April 18, 2009 11:34 PM
To: tmic-list@eskimo.com; balmat...@aol.com
Subject: Re: [TMIC] leg and foot comfort in bed
I am s fortunate that I don't have the skin sensitivity that so many of
you talk about.If I pull up something really soft, like my gown or robe, I
will spasm for a minute, but I don't really have pain, just discomfort and only
for a minute. I would think that
the cotton knit would be a blessing. I like 100% cotton to sleep in for
summer - it helps keep me cool.
Janice
- Original Message -
From: balmat...@aol.com
To: tmic-list@eskimo.com
Sent: Thursday, April 16, 2009 12:20 AM
Subject: Re: [TMIC] leg and foot comfort in bed
I am such a happy camper with my cotton knit. Such a miraculous fiber.
Isn't it great when we find something that works for us, most of the time
It's just amazing! It's definately a game of trial and error, that's for sure.
Life is so much fun when you have TM.
The majority of my sensitivity is in the evening and during the night.
There are times when I cannot even stand skin to skin contact. That's why I
sleep on my back with my knees bent many nights.
Take care everyone!
Hugs, Barbar
Re: [TMIC] leg and foot comfort in bed
I keep saying we are like 'snowflakes' a lot the same but no two exactly the
same.
I did say 'snowflakes' and not just 'flaky' .. :)
Heather in Calgary
- Original Message -
From: Gillian Clark
To: TM list
Sent: Monday, April 20, 2009 9:11 PM
Subject: Re: [TMIC] leg and foot comfort in bed
Yep, so much the same and so very different. That's just another reason this
list is so wonderful, there are so many solutions offered to all sorts of
problems.
- Original Message -
From: Janice
To: Gillian Clark ; TM list
Sent: Tuesday, April 21, 2009 12:19 PM
Subject: Re: [TMIC] leg and foot comfort in bed
We all find what makes us comfortable. Funny how different we all are.
janice
- Original Message -
From: Gillian Clark
To: TM list
Sent: Monday, April 20, 2009 12:22 AM
Subject: Re: [TMIC] leg and foot comfort in bed
Janice, I am now able to move enough to get on my side but the pain is
intolerable in that position and I can't do the pillow between the legs thing.
I think it might be because they are too short and far too fat!
hugs
Gilly
- Original Message -
From: Janice
To: Gillian Clark ; TM list
Sent: Sunday, April 19, 2009 2:27 PM
Subject: Re: [TMIC] leg and foot comfort in bed
Just thought I'd let you know that I am completely opposite. I can
not sleep on my back. I really spasm around my middle
section trying to get in that position and trying to get back up is a
nitemare. I stick to sleeping on my side with a pillow between
my legs to lessen spasms. Also take baclofen for spasms - helps a
lot. I also have developed a thing of needing to have
air movement when I go to bed. I have the ceiling fan going on no
matter what the room temperature is. I just need air movement.
This has really been an adventure/nitemare. Love the support of
family and friends - and other TM'ers!
- Original Message -
From: Gillian Clark
To: TM list
Sent: Thursday, April 16, 2009 10:04 PM
Subject: Re: [TMIC] leg and foot comfort in bed
It has only just occurred to me that sleeping on my back is the only
way I have slept now for years. Since the day of the attack I haven't been able
to sleep any other way, in the beginning, I couldn't move at all from that
position, I can now at least move my legs into a more comfy position. I can't
sleep with them bent up though Barb, that causes huge spasms.
Everything hurts, no matter what but it's trying to minimize the pain
is the answer isn't it? I know that when you are new to this crap it's so hard
to realise the things that you suddenly have to pay attention to. Not only
what you wear but where you are walking, avoiding anything that will brush on
you. Shopping is a nightmare when someone brushes past etc.
Since I was born being unconventional a lot of things came easily for
me. If you were not born that way, it's time to change and not give an obese
rodent's derriere what anyone else thinks. Find what works for you and don't
worry about what the "normal" people are doing.
I think I've just about got my life into a reasonable degree of
comfort but sometimes it just changes again.
hugs all
Gilly
- Original Message -
From: balmat...@aol.com
To: tmic-list@eskimo.com
Sent: Thursday, April 16, 2009 2:50 PM
Subject: Re: [TMIC] leg and foot comfort in bed
I am such a happy camper with my cotton knit. Such a miraculous
fiber. Isn't it great when we find something that works for us, most of the
time It's just amazing! It's definately a game of trial and error, that's
for sure. Life is so much fun when you have TM.
The majority of my sensitivity is in the evening and during the
night. There are times when I cannot even stand skin to skin contact. That's
why I sleep on my back with my knees bent many nights.
Take care everyone!
Hugs, Barbara A
-Original Message-
From: Janice
To: tmic-list@eskimo.com; balmat...@aol.com
Sent: Wed, 15 Apr 2009 8:30 pm
Subject: Re: [TMIC] leg and foot comfort in bed
I have the sensitivity of cloth rubbing (or barely touching) my
legs too. But, I have no problem with sheets and blankets on
me at nite. I sleep with a pillow between my knees and that takes
care of any problems I guess. I have slept with a summer
gown all winter, otherwise I get too hot.
Re: [TMIC] leg and foot comfort in bed
Absolutely Janice, I was like a Raggedy Ann doll. Totally floppy from the waist down, couldn't sit without being propped up, and no matter what position my legs were put in, they flopped. It is painful to look back and see what I was like when TM happened, but good to see how far I've come. I often forget about all that has happened to me, all the strange little occurances as well. I could write a book, but then, I really wouldn't want to write it all down, and surely, I doubt anyone would want to read as much of it as there is. We've come a long way baby! Hugs to all! Barbara A -Original Message- From: Janice To: Patricia Cooley ; tmic-list@eskimo.com; balmat...@aol.com Sent: Sun, 19 Apr 2009 8:34 pm Subject: Re: [TMIC] leg and foot comfort in bed You reminded me of my old hospital days where I could not turn over without help, or slide up in the bed. When you can look back and see where your body has actually gotten stronger - even with the problems TM has left us - you realize how fortunate we are. I am comparing us to 2 people I know that are dying of cancer. Parts of our lives are the pits, but we know we have our lives to live and in most cases, improvement to look forward to. Jance - Original Message - From: Patricia Cooley To: 'Janice' ; tmic-list @eskimo.com ; balmat...@aol.com Sent: Sunday, April 19, 2009 10:47 AM Subject: RE: [TMIC] leg and foot comfort in bed I, TOO, AM FORTUNATE THAT I DON’T HAVE ANY SKIN SENSITIVITY. I ALSO DON’T HAVE THE PAIN SO MANY OF US HAVE. I DO HAVE A SPASMS IN MY LEFT LEG ONCE IN A WHILE. IN FACT, I CAN CAUSE A SPASM BY TURNING MY LEFT FOOT TO THE LEFT AND ALL OF A SUDDEN I CAN FEEL A SPASM. WHEN I GOT TM AND WAS IN THE HOSPITAL I WAS UNABLE TO TURN OVER AND HAD TO SLEEP ON MY BACK WHICH WAS ALSO SO UNCOMFORTABLE BEFORE. I FOUND THE HOSPITAL BED PROVIDED SOME RELIEF AS I COULD RAISE THE HEAD OF THE BED SO I WASN’T SO FLAT ON MY BACK. I WAS EVEN NOT ABLE TO LIFT MY LEGS UP IF THEY SLID OFF THE SIDE OF THE BAD AND HAD TO RING FOR A NURSE. I HAVE A STRONG RAILING ON THE SIDE OF MY BED WHICH MADE IT POSSIBLE FOR ME TO FINALLY TURN OVER. I HAVE IMPROVED TREMDOUSLY AND AM ABLE TO TURN OVER WITHOUT MUCH ASSISTANCE. ONE OF MY PROBLEMS THIS PAST WINTER WAS I WAS ALWAYS SO COLD??? I SLEPT IN FLANNEL NIGHTGOWNS AND AT LEAST 3-4 BLANKETS. IT WAS THE ONLY PLACE I COULD GET WARM. WITH WARMER TEMPS I AM NOW ABLE TO SWITCH TO SUMMER SLEEPWEAR. AS MUCH AS I FEEL SORRY FOR MYSELF AT TIMES, I KNOW HOW VERY LUCKY I AM THAT I DON’T SUFFER MANY OF THE PROBLEMS A LOT OF TM’ERS DO. MY MENTAL OUTLOOK HAS IMPROVED TREMDOUSLY, WHICH I THINK IS BECAUSE=2 0OF ALL THE SUPPORT FROM ALL OF YOU ON THIS WEB SITE. PATTI IN WISCONSIN From: Janice [mailto:jan...@centurytel.net] Sent: Saturday, April 18, 2009 11:34 PM To: tmic-list@eskimo.com; balmat...@aol.com Subject: Re: [TMIC] leg and foot comfort in bed I am s fortunate that I don't have the skin sensitivity that so many of you talk about. If I pull up something really soft, like my gown or robe, I will spasm for a minute, but I don't really have pain, just discomfort and only for a minute. I would think that the cotton knit would be a blessing. I like 100% cotton to sleep in for summer - it helps keep me cool. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Thursday, April 16, 2009 12:20 AM Subject: Re: [TMIC] leg and foot comfort in bed I am such a happy camper with my cotton knit. Such a miraculous fiber. Isn't it great when we find something that works for us, most of the time It's just amazing! It's definately a game of trial and error, that's for sure. Life is so much fun when you have TM. The majority of my sensitivity is in the evening and during the night. There are times when I cannot even stand skin to skin contact. That's why I sleep on my back with my knees bent many nights. Take care everyone! Hugs, Barbara A 0A -Original Message- From: Janice To: tmic-list@eskimo.com; balmat...@aol.com Sent: Wed, 15 Apr 2009 8:30 pm Subject: Re: [TMIC] leg and foot comfort in bed I have the sensitivity of cloth rubbing (or barely touching) my legs too. But, I have no problem with sheets and blankets on me at nite. I sleep with a pillow between my knees and that takes care of any problems I guess. I have slept with a summer gown all winter, otherwise I get too hot. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Wednesday, April 15, 2009 12:23 AM Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are
Re: [TMIC] leg and foot comfort in bed
Yep, so much the same and so very different. That's just another reason this
list is so wonderful, there are so many solutions offered to all sorts of
problems.
- Original Message -
From: Janice
To: Gillian Clark ; TM list
Sent: Tuesday, April 21, 2009 12:19 PM
Subject: Re: [TMIC] leg and foot comfort in bed
We all find what makes us comfortable. Funny how different we all are.
janice
- Original Message -
From: Gillian Clark
To: TM list
Sent: Monday, April 20, 2009 12:22 AM
Subject: Re: [TMIC] leg and foot comfort in bed
Janice, I am now able to move enough to get on my side but the pain is
intolerable in that position and I can't do the pillow between the legs thing.
I think it might be because they are too short and far too fat!
hugs
Gilly
- Original Message -
From: Janice
To: Gillian Clark ; TM list
Sent: Sunday, April 19, 2009 2:27 PM
Subject: Re: [TMIC] leg and foot comfort in bed
Just thought I'd let you know that I am completely opposite. I can not
sleep on my back. I really spasm around my middle
section trying to get in that position and trying to get back up is a
nitemare. I stick to sleeping on my side with a pillow between
my legs to lessen spasms. Also take baclofen for spasms - helps a lot.
I also have developed a thing of needing to have
air movement when I go to bed. I have the ceiling fan going on no
matter what the room temperature is. I just need air movement.
This has really been an adventure/nitemare. Love the support of family
and friends - and other TM'ers!
- Original Message -
From: Gillian Clark
To: TM list
Sent: Thursday, April 16, 2009 10:04 PM
Subject: Re: [TMIC] leg and foot comfort in bed
It has only just occurred to me that sleeping on my back is the only
way I have slept now for years. Since the day of the attack I haven't been able
to sleep any other way, in the beginning, I couldn't move at all from that
position, I can now at least move my legs into a more comfy position. I can't
sleep with them bent up though Barb, that causes huge spasms.
Everything hurts, no matter what but it's trying to minimize the pain
is the answer isn't it? I know that when you are new to this crap it's so hard
to realise the things that you suddenly have to pay attention to. Not only
what you wear but where you are walking, avoiding anything that will brush on
you. Shopping is a nightmare when someone brushes past etc.
Since I was born being unconventional a lot of things came easily for
me. If you were not born that way, it's time to change and not give an obese
rodent's derriere what anyone else thinks. Find what works for you and don't
worry about what the "normal" people are doing.
I think I've just about got my life into a reasonable degree of comfort
but sometimes it just changes again.
hugs all
Gilly
- Original Message -
From: balmat...@aol.com
To: tmic-list@eskimo.com
Sent: Thursday, April 16, 2009 2:50 PM
Subject: Re: [TMIC] leg and foot comfort in bed
I am such a happy camper with my cotton knit. Such a miraculous
fiber. Isn't it great when we find something that works for us, most of the
time It's just amazing! It's definately a game of trial and error, that's
for sure. Life is so much fun when you have TM.
The majority of my sensitivity is in the evening and during the
night. There are times when I cannot even stand skin to skin contact. That's
why I sleep on my back with my knees bent many nights.
Take care everyone!
Hugs, Barbara A
-Original Message-
From: Janice
To: tmic-list@eskimo.com; balmat...@aol.com
Sent: Wed, 15 Apr 2009 8:30 pm
Subject: Re: [TMIC] leg and foot comfort in bed
I have the sensitivity of cloth rubbing (or barely touching) my legs
too. But, I have no problem with sheets and blankets on
me at nite. I sleep with a pillow between my knees and that takes
care of any problems I guess. I have slept with a summer
gown all winter, otherwise I get too hot. Janice
- Original Message -
From: balmat...@aol.com
To: tmic-list@eskimo.com
Sent: Wednesday, April 15, 2009 12:23 AM
Subject: [TMIC] leg and foot comfort in bed
I think that this is something that most of us suffer from at some
point during our TM lives, skin sensitivity against fabric, and it's the worst
when we are trying to get some much needed sleep.
Re: [TMIC] leg and foot comfort in bed
We all find what makes us comfortable. Funny how different we all are.
janice
- Original Message -
From: Gillian Clark
To: TM list
Sent: Monday, April 20, 2009 12:22 AM
Subject: Re: [TMIC] leg and foot comfort in bed
Janice, I am now able to move enough to get on my side but the pain is
intolerable in that position and I can't do the pillow between the legs thing.
I think it might be because they are too short and far too fat!
hugs
Gilly
- Original Message -
From: Janice
To: Gillian Clark ; TM list
Sent: Sunday, April 19, 2009 2:27 PM
Subject: Re: [TMIC] leg and foot comfort in bed
Just thought I'd let you know that I am completely opposite. I can not
sleep on my back. I really spasm around my middle
section trying to get in that position and trying to get back up is a
nitemare. I stick to sleeping on my side with a pillow between
my legs to lessen spasms. Also take baclofen for spasms - helps a lot.
I also have developed a thing of needing to have
air movement when I go to bed. I have the ceiling fan going on no matter
what the room temperature is. I just need air movement.
This has really been an adventure/nitemare. Love the support of family
and friends - and other TM'ers!
- Original Message -
From: Gillian Clark
To: TM list
Sent: Thursday, April 16, 2009 10:04 PM
Subject: Re: [TMIC] leg and foot comfort in bed
It has only just occurred to me that sleeping on my back is the only way
I have slept now for years. Since the day of the attack I haven't been able to
sleep any other way, in the beginning, I couldn't move at all from that
position, I can now at least move my legs into a more comfy position. I can't
sleep with them bent up though Barb, that causes huge spasms.
Everything hurts, no matter what but it's trying to minimize the pain is
the answer isn't it? I know that when you are new to this crap it's so hard to
realise the things that you suddenly have to pay attention to. Not only what
you wear but where you are walking, avoiding anything that will brush on you.
Shopping is a nightmare when someone brushes past etc.
Since I was born being unconventional a lot of things came easily for me.
If you were not born that way, it's time to change and not give an obese
rodent's derriere what anyone else thinks. Find what works for you and don't
worry about what the "normal" people are doing.
I think I've just about got my life into a reasonable degree of comfort
but sometimes it just changes again.
hugs all
Gilly
- Original Message -
From: balmat...@aol.com
To: tmic-list@eskimo.com
Sent: Thursday, April 16, 2009 2:50 PM
Subject: Re: [TMIC] leg and foot comfort in bed
I am such a happy camper with my cotton knit. Such a miraculous fiber.
Isn't it great when we find something that works for us, most of the time
It's just amazing! It's definately a game of trial and error, that's for sure.
Life is so much fun when you have TM.
The majority of my sensitivity is in the evening and during the night.
There are times when I cannot even stand skin to skin contact. That's why I
sleep on my back with my knees bent many nights.
Take care everyone!
Hugs, Barbara A
-Original Message-
From: Janice
To: tmic-list@eskimo.com; balmat...@aol.com
Sent: Wed, 15 Apr 2009 8:30 pm
Subject: Re: [TMIC] leg and foot comfort in bed
I have the sensitivity of cloth rubbing (or barely touching) my legs
too. But, I have no problem with sheets and blankets on
me at nite. I sleep with a pillow between my knees and that takes
care of any problems I guess. I have slept with a summer
gown all winter, otherwise I get too hot. Janice
- Original Message -
From: balmat...@aol.com
To: tmic-list@eskimo.com
Sent: Wednesday, April 15, 2009 12:23 AM
Subject: [TMIC] leg and foot comfort in bed
I think that this is something that most of us suffer from at some
point during our TM lives, skin sensitivity against fabric, and it's the worst
when we are trying to get some much needed sleep.
I have purchased so many sets of sheets and blankets over my TM years
(T 8-10, 6/1/99), and I have had this sensitivity for most of that time. It
started as sensitivity and is so often PAIN. I've gone from egyptian cotton,
very good quality flannel, jersey (like T-shirt material) and all sorts of
thread counts of cotton. In sheets, I think that most of the time, my most
comfortable sheet happens to be the jersey. I'm not saying
Re: [TMIC] leg and foot comfort in bed
Janice, I am now able to move enough to get on my side but the pain is
intolerable in that position and I can't do the pillow between the legs thing.
I think it might be because they are too short and far too fat!
hugs
Gilly
- Original Message -
From: Janice
To: Gillian Clark ; TM list
Sent: Sunday, April 19, 2009 2:27 PM
Subject: Re: [TMIC] leg and foot comfort in bed
Just thought I'd let you know that I am completely opposite. I can not
sleep on my back. I really spasm around my middle
section trying to get in that position and trying to get back up is a
nitemare. I stick to sleeping on my side with a pillow between
my legs to lessen spasms. Also take baclofen for spasms - helps a lot.
I also have developed a thing of needing to have
air movement when I go to bed. I have the ceiling fan going on no matter
what the room temperature is. I just need air movement.
This has really been an adventure/nitemare. Love the support of family and
friends - and other TM'ers!
- Original Message -
From: Gillian Clark
To: TM list
Sent: Thursday, April 16, 2009 10:04 PM
Subject: Re: [TMIC] leg and foot comfort in bed
It has only just occurred to me that sleeping on my back is the only way I
have slept now for years. Since the day of the attack I haven't been able to
sleep any other way, in the beginning, I couldn't move at all from that
position, I can now at least move my legs into a more comfy position. I can't
sleep with them bent up though Barb, that causes huge spasms.
Everything hurts, no matter what but it's trying to minimize the pain is
the answer isn't it? I know that when you are new to this crap it's so hard to
realise the things that you suddenly have to pay attention to. Not only what
you wear but where you are walking, avoiding anything that will brush on you.
Shopping is a nightmare when someone brushes past etc.
Since I was born being unconventional a lot of things came easily for me.
If you were not born that way, it's time to change and not give an obese
rodent's derriere what anyone else thinks. Find what works for you and don't
worry about what the "normal" people are doing.
I think I've just about got my life into a reasonable degree of comfort but
sometimes it just changes again.
hugs all
Gilly
- Original Message -
From: balmat...@aol.com
To: tmic-list@eskimo.com
Sent: Thursday, April 16, 2009 2:50 PM
Subject: Re: [TMIC] leg and foot comfort in bed
I am such a happy camper with my cotton knit. Such a miraculous fiber.
Isn't it great when we find something that works for us, most of the time
It's just amazing! It's definately a game of trial and error, that's for sure.
Life is so much fun when you have TM.
The majority of my sensitivity is in the evening and during the night.
There are times when I cannot even stand skin to skin contact. That's why I
sleep on my back with my knees bent many nights.
Take care everyone!
Hugs, Barbara A
-Original Message-
From: Janice
To: tmic-list@eskimo.com; balmat...@aol.com
Sent: Wed, 15 Apr 2009 8:30 pm
Subject: Re: [TMIC] leg and foot comfort in bed
I have the sensitivity of cloth rubbing (or barely touching) my legs too.
But, I have no problem with sheets and blankets on
me at nite. I sleep with a pillow between my knees and that takes care
of any problems I guess. I have slept with a summer
gown all winter, otherwise I get too hot. Janice
- Original Message -
From: balmat...@aol.com
To: tmic-list@eskimo.com
Sent: Wednesday, April 15, 2009 12:23 AM
Subject: [TMIC] leg and foot comfort in bed
I think that this is something that most of us suffer from at some
point during our TM lives, skin sensitivity against fabric, and it's the worst
when we are trying to get some much needed sleep.
I have purchased so many sets of sheets and blankets over my TM years
(T 8-10, 6/1/99), and I have had this sensitivity for most of that time. It
started as sensitivity and is so often PAIN. I've gone from egyptian cotton,
very good quality flannel, jersey (like T-shirt material) and all sorts of
thread counts of cotton. In sheets, I think that most of the time, my most
comfortable sheet happens to be the jersey. I'm not saying that I can always
have my legs against them, because I cannot, I lay on my back many nights with
my knees bent so nothing touches my legs. Blankets are much worse, so you need
to get the most comfortable sheet you can near your skin. If you have any
"old" pajama bottoms, those are also some of the most comfortable, or I wear
the
Re: [TMIC] leg and foot comfort in bed
Any you know what Barb? It took me so damn long to learn about the
wrinkles!!
- Original Message -
From: balmat...@aol.com
To: mingalett...@activ8.net.au ; tmic-list@eskimo.com
Sent: Friday, April 17, 2009 1:41 PM
Subject: Re: [TMIC] leg and foot comfort in bed
Gilly, I know what you mean about the wrinkles in the bed. It actually
causes pain with the wrinkles, like something is stabbing you. Using the knit
sheets makes them warmer, and it's so hard for me to imagine you with the
pillow on your feet. I cannot stand much weight on me at all, especially my
feet. I love my down blanket, nice and lightweight, yet warm.
The warmer weather brings less clothes, no blankets, and a happier me! Come
on summer!
Warm hugs you Gilly, and all, Barbara A
-Original Message-
From: Gillian Clark
To: TM list
Sent: Thu, 16 Apr 2009 8:04 pm
Subject: Re: [TMIC] leg and foot comfort in bed
It has only just occurred to me that sleeping on my back is the only way I
have slept now for years. Since the day of the attack I haven't been able to
sleep any other way, in the beginning, I couldn't move at all from that
position, I can now at least move my legs into a more comfy position. I can't
sleep with them bent up though Barb, that causes huge spasms.
Everything hurts, no matter what but it's trying to minimize the pain is the
answer isn't it? I know that when you are new to this crap it's so hard to
realise the things that you suddenly have to pay attention to. Not only what
you wear but where you are walking, avoiding anything that will brush on you.
Shopping is a nightmare when someone brushes past etc.
Since I was born being unconventional a lot of things came easily for me. If
you were not born that way, it's time to change and not give an obese rodent's
derriere what anyone else thinks. Find what works for you and don't worry about
what the "normal" people are doing.
I think I've just about got my life into a reasonable degree of comfort but
sometimes it just changes again.
hugs all
Gilly
- Original Message -
From: balmat...@aol.com
To: tmic-list@eskimo.com
Sent: Thursday, April 16, 2009 2:50 PM
Subject: Re: [TMIC] leg and foot comfort in bed
I am such a happy camper with my cotton knit. Such a miraculous fiber.
Isn't it great when we find something that works for us, most of the time
It's just amazing! It's definately a game of trial and error, that's for sure.
Life is so much fun when you have TM.
The majority of my sensitivity is in the evening and during the night.
There are times when I cannot even stand skin to skin contact. That's why I
sleep on my back with my knees bent many nights.
Take care everyone!
Hugs, Barbara A
-Original Message-
From: Janice
To: tmic-list@eskimo.com; balmat...@aol.com
Sent: Wed, 15 Apr 2009 8:30 pm
Subject: Re: [TMIC] leg and foot comfort in bed
I have the sensitivity of cloth rubbing (or barely touching) my legs too.
But, I have no problem with sheets and blankets on
me at nite. I sleep with a pillow between my knees and that takes care of
any problems I guess. I have slept with a summer
gown all winter, otherwise I get too hot. Janice
- Original Message -
From: balmat...@aol.com
To: tmic-list@eskimo.com
Sent: Wednesday, April 15, 2009 12:23 AM
Subject: [TMIC] leg and foot comfort in bed
I think that this is something that most of us suffer from at some point
during our TM lives, skin sensitivity against fabric, and it's the worst when
we are trying to get some much needed sleep.
I have purchased so many sets of sheets and blankets over my TM years (T
8-10, 6/1/99), and I have had this sensitivity for most of that time. It
started as sensitivity and is so often PAIN. I've gone from egyptian cotton,
very good quality flannel, jersey (like T-shirt material) and all sorts of
thread counts of cotton. In sheets, I think that most of the time, my most
comfortable sheet happens to be the jersey. I'm not saying that I can always
have my legs against them, because I cannot, I lay on my back many nights with
my knees bent so nothing touches my legs. Blankets are much worse, so you need
to get the most comfortable sheet you can near your skin. If you have any
"old" pajama bottoms, those are also some of the most comfortable, or I wear
the short ones.
I've bought some microfiber plush pants this year from OldNavy.com and
they have been warm on my legs and haven't irritated them. I am very much
looking forward to warmer weather when I can wear short pants all the time and
not being uncomfortable.
Hugs to all, Barbara A in CA
-
Re: [TMIC] leg and foot comfort in bed
You reminded me of my old hospital days where I could not turn over without
help, or slide up in the bed. When you can
look back and see where your body has actually gotten stronger - even with the
problems TM has left us - you realize how
fortunate we are. I am comparing us to 2 people I know that are dying of
cancer. Parts of our lives are the pits, but we
know we have our lives to live and in most cases, improvement to look forward
to. Jance
- Original Message -
From: Patricia Cooley
To: 'Janice' ; tmic-list@eskimo.com ; balmat...@aol.com
Sent: Sunday, April 19, 2009 10:47 AM
Subject: RE: [TMIC] leg and foot comfort in bed
I, TOO, AM FORTUNATE THAT I DON'T HAVE ANY SKIN SENSITIVITY. I ALSO DON'T
HAVE THE PAIN SO MANY OF US HAVE. I DO HAVE A SPASMS IN MY LEFT LEG ONCE IN A
WHILE. IN FACT, I CAN CAUSE A SPASM BY TURNING MY LEFT FOOT TO THE LEFT AND
ALL OF A SUDDEN I CAN FEEL A SPASM. WHEN I GOT TM AND WAS IN THE HOSPITAL I
WAS UNABLE TO TURN OVER AND HAD TO SLEEP ON MY BACK WHICH WAS ALSO SO
UNCOMFORTABLE BEFORE. I FOUND THE HOSPITAL BED PROVIDED SOME RELIEF AS I COULD
RAISE THE HEAD OF THE BED SO I WASN'T SO FLAT ON MY BACK. I WAS EVEN NOT ABLE
TO LIFT MY LEGS UP IF THEY SLID OFF THE SIDE OF THE BAD AND HAD TO RING FOR A
NURSE. I HAVE A STRONG RAILING ON THE SIDE OF MY BED WHICH MADE IT POSSIBLE
FOR ME TO FINALLY TURN OVER. I HAVE IMPROVED TREMDOUSLY AND AM ABLE TO TURN
OVER WITHOUT MUCH ASSISTANCE. ONE OF MY PROBLEMS THIS PAST WINTER WAS I WAS
ALWAYS SO COLD??? I SLEPT IN FLANNEL NIGHTGOWNS AND AT LEAST 3-4 BLANKETS. IT
WAS THE ONLY PLACE I COULD GET WARM. WITH WARMER TEMPS I AM NOW ABLE TO SWITCH
TO SUMMER SLEEPWEAR. AS MUCH AS I FEEL SORRY FOR MYSELF AT TIMES, I KNOW HOW
VERY LUCKY I AM THAT I DON'T SUFFER MANY OF THE PROBLEMS A LOT OF TM'ERS DO.
MY MENTAL OUTLOOK HAS IMPROVED TREMDOUSLY, WHICH I THINK IS BECAUSE OF ALL THE
SUPPORT FROM ALL OF YOU ON THIS WEB SITE.
PATTI IN WISCONSIN
From: Janice [mailto:jan...@centurytel.net]
Sent: Saturday, April 18, 2009 11:34 PM
To: tmic-list@eskimo.com; balmat...@aol.com
Subject: Re: [TMIC] leg and foot comfort in bed
I am s fortunate that I don't have the skin sensitivity that so many of
you talk about.If I pull up something really soft, like my gown or robe, I
will spasm for a minute, but I don't really have pain, just discomfort and only
for a minute. I would think that
the cotton knit would be a blessing. I like 100% cotton to sleep in for
summer - it helps keep me cool.
Janice
- Original Message -
From: balmat...@aol.com
To: tmic-list@eskimo.com
Sent: Thursday, April 16, 2009 12:20 AM
Subject: Re: [TMIC] leg and foot comfort in bed
I am such a happy camper with my cotton knit. Such a miraculous fiber.
Isn't it great when we find something that works for us, most of the time
It's just amazing! It's definately a game of trial and error, that's for sure.
Life is so much fun when you have TM.
The majority of my sensitivity is in the evening and during the night.
There are times when I cannot even stand skin to skin contact. That's why I
sleep on my back with my knees bent many nights.
Take care everyone!
Hugs, Barbara A
-Original Message-
From: Janice
To: tmic-list@eskimo.com; balmat...@aol.com
Sent: Wed, 15 Apr 2009 8:30 pm
Subject: Re: [TMIC] leg and foot comfort in bed
I have the sensitivity of cloth rubbing (or barely touching) my legs too.
But, I have no problem with sheets and blankets on
me at nite. I sleep with a pillow between my knees and that takes care of
any problems I guess. I have slept with a summer
gown all winter, otherwise I get too hot. Janice
- Original Message -
From: balmat...@aol.com
To: tmic-list@eskimo.com
Sent: Wednesday, April 15, 2009 12:23 AM
Subject: [TMIC] leg and foot comfort in bed
I think that this is something that most of us suffer from at some point
during our TM lives, skin sensitivity against fabric, and it's the worst when
we are trying to get some much needed sleep.
I have purchased so many sets of sheets and blankets over my TM years (T
8-10, 6/1/99), and I have had this sensitivity for most of that time. It
started as sensitivity and is so often PAIN. I've gone from egyptian cotton,
very good quality flannel, jersey (like T-shirt material) and all sorts of
thread counts of cotton. In sheets, I think that most of the time, my most
comfortable sheet happens to be the jersey. I'm not saying that I can always
have my legs against them, because I cannot, I lay on my back many nights with
my knees bent so nothing touches my legs. Blankets are much worse, so you need
to get the
FW: [TMIC] leg and foot comfort in bed
From: heyjude48...@aol.com [mailto:heyjude48...@aol.com] Sent: Sunday, April 19, 2009 12:09 PM To: patticoo...@wi.rr.com Subject: Fwd: [TMIC] leg and foot comfort in bed Pattie, Please forward this string to the List as I must have a wrong addy for it and I keep getting my mail back. Thanks, Jude _ From: Heyjude48458 To: patticoo...@wi.rr.com, www.tmic-l...@eskimo.com Sent: 4/19/2009 12:19:43 P.M. Eastern Daylight Time Subj: Re: [TMIC] leg and foot comfort in bed I too, believe that much of the power of this group is in the fact that there are such a diverse type of symptoms and problems endured by the people who make up this site. It makes my own aches and pains seem less important than they really are and gives me something to focus on besides myself. I don't have a lot of the symptoms that others do, for example, the problem of fabric touching skin that has been the latest topic of conversation on the List. It doesn't take long for TM to make one humble, especially when exposed to others with it and reading how they suffer with different symptoms than I. There is no way I would want to suffer with some of the difficulties that others describe and without a doubt, it is this fabulously giving group of people, who, in their suffering, take the time to give support, knowledge and love to people seeking help for the terrors of the initial fears of TM. God help us all... Jude In a message dated 4/19/2009 11:48:35 A.M. Eastern Daylight Time, patticoo...@wi.rr.com writes: I, TOO, AM FORTUNATE THAT I DON’T HAVE ANY SKIN SENSITIVITY. I ALSO DON’T HAVE THE PAIN SO MANY OF US HAVE. I DO HAVE A SPASMS IN MY LEFT LEG ONCE IN A WHILE. IN FACT, I CAN CAUSE A SPASM BY TURNING MY LEFT FOOT TO THE LEFT AND ALL OF A SUDDEN I CAN FEEL A SPASM. WHEN I GOT TM AND WAS IN THE HOSPITAL I WAS UNABLE TO TURN OVER AND HAD TO SLEEP ON MY BACK WHICH WAS ALSO SO UNCOMFORTABLE BEFORE. I FOUND THE HOSPITAL BED PROVIDED SOME RELIEF AS I COULD RAISE THE HEAD OF THE BED SO I WASN’T SO FLAT ON MY BACK. I WAS EVEN NOT ABLE TO LIFT MY LEGS UP IF THEY SLID OFF THE SIDE OF THE BAD AND HAD TO RING FOR A NURSE. I HAVE A STRONG RAILING ON THE SIDE OF MY BED WHICH MADE IT POSSIBLE FOR ME TO FINALLY TURN OVER. I HAVE IMPROVED TREMDOUSLY AND AM ABLE TO TURN OVER WITHOUT MUCH ASSISTANCE. ONE OF MY PROBLEMS THIS PAST WINTER WAS I WAS ALWAYS SO COLD??? I SLEPT IN FLANNEL NIGHTGOWNS AND AT LEAST 3-4 BLANKETS. IT WAS THE ONLY PLACE I COULD GET WARM. WITH WARMER TEMPS I AM NOW ABLE TO SWITCH TO SUMMER SLEEPWEAR. AS MUCH AS I FEEL SORRY FOR MYSELF AT TIMES, I KNOW HOW VERY LUCKY I AM THAT I DON’T SUFFER MANY OF THE PROBLEMS A LOT OF TM’ERS DO. MY MENTAL OUTLOOK HAS IMPROVED TREMDOUSLY, WHICH I THINK IS BECAUSE OF ALL THE SUPPORT FROM ALL OF YOU ON THIS WEB SITE. PATTI IN WISCONSIN From: Janice [mailto:jan...@centurytel.net] Sent: Saturday, April 18, 2009 11:34 PM To: tmic-list@eskimo.com; balmat...@aol.com Subject: Re: [TMIC] leg and foot comfort in bed I am s fortunate that I don't have the skin sensitivity that so many of you talk about.If I pull up something really soft, like my gown or robe, I will spasm for a minute, but I don't really have pain, just discomfort and only for a minute. I would think that the cotton knit would be a blessing. I like 100% cotton to sleep in for summer - it helps keep me cool. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Thursday, April 16, 2009 12:20 AM Subject: Re: [TMIC] leg and foot comfort in bed I am such a happy camper with my cotton knit. Such a miraculous fiber. Isn't it great when we find something that works for us, most of the time It's just amazing! It's definately a game of trial and error, that's for sure. Life is so much fun when you have TM. The majority of my sensitivity is in the evening and during the night. There are times when I cannot even stand skin to skin contact. That's why I sleep on my back with my knees bent many nights. Take care everyone! Hugs, Barbara A -Original Message- From: Janice To: tmic-list@eskimo.com; balmat...@aol.com Sent: Wed, 15 Apr 2009 8:30 pm Subject: Re: [TMIC] leg and foot comfort in bed I have the sensitivity of cloth rubbing (or barely touching) my legs too. But, I have no problem with sheets and blankets on me at nite. I sleep with a pillow between my knees and that takes care of any problems I guess. I have slept with a summer gown all winter, otherwise I get too hot. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Wednesday, April 15, 2009 12:23 AM Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against f
RE: [TMIC] leg and foot comfort in bed
I just remembered that when I first came home and lay in bed I had the sensation that my legs were both in mid air, about a foot off of the bed. Now, 4 years later, my right leg feels like the leg is bent and only the knee is up. Isn't that strange or another normal/abnormal for us TMer's?? Jeanne ---Original Message--- From: Patricia Cooley Date: 4/19/2009 10:50:57 AM To: 'Janice'; tmic-list@eskimo.com; balmat...@aol.com Subject: RE: [TMIC] leg and foot comfort in bed I, TOO, AM FORTUNATE THAT I DONT HAVE ANY SKIN SENSITIVITY. I ALSO DONT HAVE THE PAIN SO MANY OF US HAVE. I DO HAVE A SPASMS IN MY LEFT LEG ONCE IN A WHILE. IN FACT, I CAN CAUSE A SPASM BY TURNING MY LEFT FOOT TO THE LEFT AND ALL OF A SUDDEN I CAN FEEL A SPASM. WHEN I GOT TM AND WAS IN THE HOSPITAL I WAS UNABLE TO TURN OVER AND HAD TO SLEEP ON MY BACK WHICH WAS ALSO SO UNCOMFORTABLE BEFORE. I FOUND THE HOSPITAL BED PROVIDED SOME RELIEF AS I COULD RAISE THE HEAD OF THE BED SO I WASNT SO FLAT ON MY BACK. I WAS EVEN NOT ABLE TO LIFT MY LEGS UP IF THEY SLID OFF THE SIDE OF THE BAD AND HAD TO RING FOR A NURSE. I HAVE A STRONG RAILING ON THE SIDE OF MY BED WHICH MADE IT POSSIBLE FOR ME TO FINALLY TURN OVER. I HAVE IMPROVED TREMDOUSLY AND AM ABLE TO TURN OVER WITHOUT MUCH ASSISTANCE. ONE OF MY PROBLEMS THIS PAST WINTER WAS I WAS ALWAYS SO COLD??? I SLEPT IN FLANNEL NIGHTGOWNS AND AT LEAST 3-4 BLANKETS. IT WAS THE ONLY PLACE I COULD GET WARM. WITH WARMER TEMPS I AM NOW ABLE TO SWITCH TO SUMMER SLEEPWEAR. AS MUCH AS I FEEL SORRY FOR MYSELF AT TIMES, I KNOW HOW VERY LUCKY I AM THAT I DONT SUFFER MANY OF THE PROBLEMS A LOT OF TMERS DO. MY MENTAL OUTLOOK HAS IMPROVED TREMDOUSLY, WHICH I THINK IS BECAUSE OF ALL THE SUPPORT FROM ALL OF YOU ON THIS WEB SITE. PATTI IN WISCONSIN From: Janice [mailto:jan...@centurytel.net] Sent: Saturday, April 18, 2009 11:34 PM To: tmic-list@eskimo.com; balmat...@aol.com Subject: Re: [TMIC] leg and foot comfort in bed I am s fortunate that I don't have the skin sensitivity that so many of you talk about.If I pull up something really soft, like my gown or robe, I will spasm for a minute, but I don't really have pain, just discomfort and only for a minute. I would think that the cotton knit would be a blessing. I like 100% cotton to sleep in for summer - it helps keep me cool. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Thursday, April 16, 2009 12:20 AM Subject: Re: [TMIC] leg and foot comfort in bed I am such a happy camper with my cotton knit. Such a miraculous fiber. Isn t it great when we find something that works for us, most of the time It's just amazing! It's definately a game of trial and error, that's for sure. Life is so much fun when you have TM. The majority of my sensitivity is in the evening and during the night. There are times when I cannot even stand skin to skin contact. That's why I sleep on my back with my knees bent many nights. Take care everyone! Hugs, Barbara A -Original Message- From: Janice To: tmic-list@eskimo.com; balmat...@aol.com Sent: Wed, 15 Apr 2009 8:30 pm Subject: Re: [TMIC] leg and foot comfort in bed I have the sensitivity of cloth rubbing (or barely touching) my legs too. But, I have no problem with sheets and blankets on me at nite. I sleep with a pillow between my knees and that takes care of any problems I guess. I have slept with a summer gown all winter, otherwise I get too hot. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Wednesday, April 15, 2009 12:23 AM Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep. I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time. It started as sensitivity and is so often PAIN. I've gone from egyptian cotton very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton. In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey. I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with my knees bent so nothing touches my legs. Blankets are much worse, so you need to get the most comfortable sheet you can near your skin. If you have any "old" pajama bottoms, those are also some of the most comfortable, or I wear the short ones. I've bought some microfiber plush pants this year from OldNavy.com and they have been warm on my legs and haven't irritated them. I am very much looking forward to warmer weather when I can wear short pants all the time and not being
RE: [TMIC] leg and foot comfort in bed
I, TOO, AM FORTUNATE THAT I DON'T HAVE ANY SKIN SENSITIVITY. I ALSO DON'T HAVE THE PAIN SO MANY OF US HAVE. I DO HAVE A SPASMS IN MY LEFT LEG ONCE IN A WHILE. IN FACT, I CAN CAUSE A SPASM BY TURNING MY LEFT FOOT TO THE LEFT AND ALL OF A SUDDEN I CAN FEEL A SPASM. WHEN I GOT TM AND WAS IN THE HOSPITAL I WAS UNABLE TO TURN OVER AND HAD TO SLEEP ON MY BACK WHICH WAS ALSO SO UNCOMFORTABLE BEFORE. I FOUND THE HOSPITAL BED PROVIDED SOME RELIEF AS I COULD RAISE THE HEAD OF THE BED SO I WASN'T SO FLAT ON MY BACK. I WAS EVEN NOT ABLE TO LIFT MY LEGS UP IF THEY SLID OFF THE SIDE OF THE BAD AND HAD TO RING FOR A NURSE. I HAVE A STRONG RAILING ON THE SIDE OF MY BED WHICH MADE IT POSSIBLE FOR ME TO FINALLY TURN OVER. I HAVE IMPROVED TREMDOUSLY AND AM ABLE TO TURN OVER WITHOUT MUCH ASSISTANCE. ONE OF MY PROBLEMS THIS PAST WINTER WAS I WAS ALWAYS SO COLD??? I SLEPT IN FLANNEL NIGHTGOWNS AND AT LEAST 3-4 BLANKETS. IT WAS THE ONLY PLACE I COULD GET WARM. WITH WARMER TEMPS I AM NOW ABLE TO SWITCH TO SUMMER SLEEPWEAR. AS MUCH AS I FEEL SORRY FOR MYSELF AT TIMES, I KNOW HOW VERY LUCKY I AM THAT I DON'T SUFFER MANY OF THE PROBLEMS A LOT OF TM'ERS DO. MY MENTAL OUTLOOK HAS IMPROVED TREMDOUSLY, WHICH I THINK IS BECAUSE OF ALL THE SUPPORT FROM ALL OF YOU ON THIS WEB SITE. PATTI IN WISCONSIN From: Janice [mailto:jan...@centurytel.net] Sent: Saturday, April 18, 2009 11:34 PM To: tmic-list@eskimo.com; balmat...@aol.com Subject: Re: [TMIC] leg and foot comfort in bed I am s fortunate that I don't have the skin sensitivity that so many of you talk about.If I pull up something really soft, like my gown or robe, I will spasm for a minute, but I don't really have pain, just discomfort and only for a minute. I would think that the cotton knit would be a blessing. I like 100% cotton to sleep in for summer - it helps keep me cool. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Thursday, April 16, 2009 12:20 AM Subject: Re: [TMIC] leg and foot comfort in bed I am such a happy camper with my cotton knit. Such a miraculous fiber. Isn't it great when we find something that works for us, most of the time It's just amazing! It's definately a game of trial and error, that's for sure. Life is so much fun when you have TM. The majority of my sensitivity is in the evening and during the night. There are times when I cannot even stand skin to skin contact. That's why I sleep on my back with my knees bent many nights. Take care everyone! Hugs, Barbara A -Original Message- From: Janice To: tmic-list@eskimo.com; balmat...@aol.com Sent: Wed, 15 Apr 2009 8:30 pm Subject: Re: [TMIC] leg and foot comfort in bed I have the sensitivity of cloth rubbing (or barely touching) my legs too. But, I have no problem with sheets and blankets on me at nite. I sleep with a pillow between my knees and that takes care of any problems I guess. I have slept with a summer gown all winter, otherwise I get too hot. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Wednesday, April 15, 2009 12:23 AM Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep. I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time. It started as sensitivity and is so often PAIN. I've gone from egyptian cotton, very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton. In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey. I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with my knees bent so nothing touches my legs. Blankets are much worse, so you need to get the most comfortable sheet you can near your skin. If you have any "old" pajama bottoms, those are also some of the most comfortable, or I wear the short ones. I've bought some microfiber plush pants this year from OldNavy.com and they have been warm on my legs and haven't irritated them. I am very much looking forward to warmer weather when I can wear short pants all the time and not being uncomfortable. Hugs to all, Barbara A in CA _ Great deals on Dell s most popular laptops <http://pr.atwola.com/promoclk/100126575x1220631252x1201390195/aol?redir=htt p:%2F%2Fad.doubleclick.net%2Fclk%3B213968550%3B35701427%3Bh> Starting at $479 _ Why pay full price? Check out this month's <http://shopping.aol.com/?ncid=emlweinstor0002> deals on the new AOL Shopping.
Re: [TMIC] leg and foot comfort in bed
Just thought I'd let you know that I am completely opposite. I can not sleep
on my back. I really spasm around my middle
section trying to get in that position and trying to get back up is a nitemare.
I stick to sleeping on my side with a pillow between
my legs to lessen spasms. Also take baclofen for spasms - helps a lot.
I also have developed a thing of needing to have
air movement when I go to bed. I have the ceiling fan going on no matter what
the room temperature is. I just need air movement.
This has really been an adventure/nitemare. Love the support of family and
friends - and other TM'ers!
- Original Message -
From: Gillian Clark
To: TM list
Sent: Thursday, April 16, 2009 10:04 PM
Subject: Re: [TMIC] leg and foot comfort in bed
It has only just occurred to me that sleeping on my back is the only way I
have slept now for years. Since the day of the attack I haven't been able to
sleep any other way, in the beginning, I couldn't move at all from that
position, I can now at least move my legs into a more comfy position. I can't
sleep with them bent up though Barb, that causes huge spasms.
Everything hurts, no matter what but it's trying to minimize the pain is the
answer isn't it? I know that when you are new to this crap it's so hard to
realise the things that you suddenly have to pay attention to. Not only what
you wear but where you are walking, avoiding anything that will brush on you.
Shopping is a nightmare when someone brushes past etc.
Since I was born being unconventional a lot of things came easily for me. If
you were not born that way, it's time to change and not give an obese rodent's
derriere what anyone else thinks. Find what works for you and don't worry about
what the "normal" people are doing.
I think I've just about got my life into a reasonable degree of comfort but
sometimes it just changes again.
hugs all
Gilly
- Original Message -
From: balmat...@aol.com
To: tmic-list@eskimo.com
Sent: Thursday, April 16, 2009 2:50 PM
Subject: Re: [TMIC] leg and foot comfort in bed
I am such a happy camper with my cotton knit. Such a miraculous fiber.
Isn't it great when we find something that works for us, most of the time
It's just amazing! It's definately a game of trial and error, that's for sure.
Life is so much fun when you have TM.
The majority of my sensitivity is in the evening and during the night.
There are times when I cannot even stand skin to skin contact. That's why I
sleep on my back with my knees bent many nights.
Take care everyone!
Hugs, Barbara A
-Original Message-
From: Janice
To: tmic-list@eskimo.com; balmat...@aol.com
Sent: Wed, 15 Apr 2009 8:30 pm
Subject: Re: [TMIC] leg and foot comfort in bed
I have the sensitivity of cloth rubbing (or barely touching) my legs too.
But, I have no problem with sheets and blankets on
me at nite. I sleep with a pillow between my knees and that takes care of
any problems I guess. I have slept with a summer
gown all winter, otherwise I get too hot. Janice
- Original Message -
From: balmat...@aol.com
To: tmic-list@eskimo.com
Sent: Wednesday, April 15, 2009 12:23 AM
Subject: [TMIC] leg and foot comfort in bed
I think that this is something that most of us suffer from at some point
during our TM lives, skin sensitivity against fabric, and it's the worst when
we are trying to get some much needed sleep.
I have purchased so many sets of sheets and blankets over my TM years (T
8-10, 6/1/99), and I have had this sensitivity for most of that time. It
started as sensitivity and is so often PAIN. I've gone from egyptian cotton,
very good quality flannel, jersey (like T-shirt material) and all sorts of
thread counts of cotton. In sheets, I think that most of the time, my most
comfortable sheet happens to be the jersey. I'm not saying that I can always
have my legs against them, because I cannot, I lay on my back many nights with
my knees bent so nothing touches my legs. Blankets are much worse, so you need
to get the most comfortable sheet you can near your skin. If you have any
"old" pajama bottoms, those are also some of the most comfortable, or I wear
the short ones.
I've bought some microfiber plush pants this year from OldNavy.com and
they have been warm on my legs and haven't irritated them. I am very much
looking forward to warmer weather when I can wear short pants all the time and
not being uncomfortable.
Hugs to all, Barbara A in CA
--
Great deals on Dell s most popular laptops Starting at $479
--
Re: [TMIC] leg and foot comfort in bed
I am s fortunate that I don't have the skin sensitivity that so many of you talk about.If I pull up something really soft, like my gown or robe, I will spasm for a minute, but I don't really have pain, just discomfort and only for a minute. I would think that the cotton knit would be a blessing. I like 100% cotton to sleep in for summer - it helps keep me cool. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Thursday, April 16, 2009 12:20 AM Subject: Re: [TMIC] leg and foot comfort in bed I am such a happy camper with my cotton knit. Such a miraculous fiber. Isn't it great when we find something that works for us, most of the time It's just amazing! It's definately a game of trial and error, that's for sure. Life is so much fun when you have TM. The majority of my sensitivity is in the evening and during the night. There are times when I cannot even stand skin to skin contact. That's why I sleep on my back with my knees bent many nights. Take care everyone! Hugs, Barbara A -Original Message- From: Janice To: tmic-list@eskimo.com; balmat...@aol.com Sent: Wed, 15 Apr 2009 8:30 pm Subject: Re: [TMIC] leg and foot comfort in bed I have the sensitivity of cloth rubbing (or barely touching) my legs too. But, I have no problem with sheets and blankets on me at nite. I sleep with a pillow between my knees and that takes care of any problems I guess. I have slept with a summer gown all winter, otherwise I get too hot. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Wednesday, April 15, 2009 12:23 AM Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep. I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time. It started as sensitivity and is so often PAIN. I've gone from egyptian cotton, very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton. In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey. I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with my knees bent so nothing touches my legs. Blankets are much worse, so you need to get the most comfortable sheet you can near your skin. If you have any "old" pajama bottoms, those are also some of the most comfortable, or I wear the short ones. I've bought some microfiber plush pants this year from OldNavy.com and they have been warm on my legs and haven't irritated them. I am very much looking forward to warmer weather when I can wear short pants all the time and not being uncomfortable. Hugs to all, Barbara A in CA Great deals on Dell s most popular laptops Starting at $479 -- Why pay full price? Check out this month's deals on the new AOL Shopping.
Re: [TMIC] leg and foot comfort in bed
Gilly, I know what you mean about the wrinkles in the bed.? It actually causes pain with the wrinkles, like something is stabbing you.? Using the knit sheets makes them?warmer, and it's so hard for me to imagine you with the pillow on?your feet.? I?cannot stand?much weight on me at all,?especially my feet.??I love my down blanket, nice and lightweight, yet warm. The warmer weather brings less clothes, no blankets, and?a?happier me!? Come on summer! Warm hugs?you Gilly, and all, Barbara A? -Original Message- From: Gillian Clark To: TM list Sent: Thu, 16 Apr 2009 8:04 pm Subject: Re: [TMIC] leg and foot comfort in bed It has only just occurred to me that sleeping on my back is the only way I have slept now for years. Since the day of the attack I haven't been able to sleep any other way, in the beginning, I couldn't move at all from that position, I can now at least move my legs into a more comfy position.? I can't sleep with them bent up though Barb, that causes huge spasms. ? Everything hurts, no matter what but it's trying to minimize the pain is the answer isn't it?? I know that when you are new to this crap it's so hard to realise the things that you suddenly have to pay attention to.? Not only what you wear but where you are walking, avoiding anything that will brush on you.? Shopping is a nightmare when someone brushes past etc. ? Since I was born being unconventional a lot of things came easily for me.? If you were not? born that way, it's time to change and not give an obese rodent's derriere what anyone else thinks. Find what works for you and don't worry about what the "normal" people are doing. ? I think I've just about got my life into a reasonable degree of comfort but sometimes it just changes again. ? hugs all Gilly ? - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Thursday, April 16, 2009 2:50 PM Subject: Re: [TMIC] leg and foot comfort in bed I am such a happy camper with my cotton knit.? Such a miraculous fiber.? Isn't it great when we find something that works for us, most of the time? It's just amazing!? It's definately a game of trial and error, that's for sure.??Life is so much fun when you have TM.? The majority of my sensitivity is in the evening and during the night.? There are times when I cannot even?stand skin to skin contact.? That's why I sleep on my back with my knees bent many nights.? Take care everyone! Hugs, Barbara A -Original Message- From: Janice To: tmic-list@eskimo.com; balmat...@aol.com Sent: Wed, 15 Apr 2009 8:30 pm Subject: Re: [TMIC] leg and foot comfort in bed I have the sensitivity of cloth rubbing (or barely touching) my legs too.?? But, I have no problem with sheets and blankets on me at nite.?? I sleep with a pillow between my knees and that takes care of any problems I guess.? I have slept with a summer gown all winter, otherwise I get too hot. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Wednesday, April 15, 2009 12:23 AM Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep. I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time.? It started as sensitivity and is so often PAIN.? I've gone from egyptian cotton, very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton.? In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey.? I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with my knees bent so nothing touches my legs.? Blankets are much worse, so you need to get the most comfortable sheet you can near your skin.? If you have any "old" pajama bottoms, those are also some of the most comfortable, or I wear the short ones.? I've bought some microfiber plush pants this year from OldNavy.com and they have been warm on my legs and haven't irritated them.? I am very much looking forward to warmer weather when I can wear short pants all the time and not being uncomfortable. Hugs to all, Barbara A in CA Great deals on Dell s most popular laptops Starting at $479 Why pay full price? Check out this month's deals on the new AOL Shopping.
Re: [TMIC] leg and foot comfort in bed
It has only just occurred to me that sleeping on my back is the only way I have
slept now for years. Since the day of the attack I haven't been able to sleep
any other way, in the beginning, I couldn't move at all from that position, I
can now at least move my legs into a more comfy position. I can't sleep with
them bent up though Barb, that causes huge spasms.
Everything hurts, no matter what but it's trying to minimize the pain is the
answer isn't it? I know that when you are new to this crap it's so hard to
realise the things that you suddenly have to pay attention to. Not only what
you wear but where you are walking, avoiding anything that will brush on you.
Shopping is a nightmare when someone brushes past etc.
Since I was born being unconventional a lot of things came easily for me. If
you were not born that way, it's time to change and not give an obese rodent's
derriere what anyone else thinks. Find what works for you and don't worry about
what the "normal" people are doing.
I think I've just about got my life into a reasonable degree of comfort but
sometimes it just changes again.
hugs all
Gilly
- Original Message -
From: balmat...@aol.com
To: tmic-list@eskimo.com
Sent: Thursday, April 16, 2009 2:50 PM
Subject: Re: [TMIC] leg and foot comfort in bed
I am such a happy camper with my cotton knit. Such a miraculous fiber.
Isn't it great when we find something that works for us, most of the time
It's just amazing! It's definately a game of trial and error, that's for sure.
Life is so much fun when you have TM.
The majority of my sensitivity is in the evening and during the night. There
are times when I cannot even stand skin to skin contact. That's why I sleep on
my back with my knees bent many nights.
Take care everyone!
Hugs, Barbara A
-Original Message-
From: Janice
To: tmic-list@eskimo.com; balmat...@aol.com
Sent: Wed, 15 Apr 2009 8:30 pm
Subject: Re: [TMIC] leg and foot comfort in bed
I have the sensitivity of cloth rubbing (or barely touching) my legs too.
But, I have no problem with sheets and blankets on
me at nite. I sleep with a pillow between my knees and that takes care of
any problems I guess. I have slept with a summer
gown all winter, otherwise I get too hot. Janice
- Original Message -
From: balmat...@aol.com
To: tmic-list@eskimo.com
Sent: Wednesday, April 15, 2009 12:23 AM
Subject: [TMIC] leg and foot comfort in bed
I think that this is something that most of us suffer from at some point
during our TM lives, skin sensitivity against fabric, and it's the worst when
we are trying to get some much needed sleep.
I have purchased so many sets of sheets and blankets over my TM years (T
8-10, 6/1/99), and I have had this sensitivity for most of that time. It
started as sensitivity and is so often PAIN. I've gone from egyptian cotton,
very good quality flannel, jersey (like T-shirt material) and all sorts of
thread counts of cotton. In sheets, I think that most of the time, my most
comfortable sheet happens to be the jersey. I'm not saying that I can always
have my legs against them, because I cannot, I lay on my back many nights with
my knees bent so nothing touches my legs. Blankets are much worse, so you need
to get the most comfortable sheet you can near your skin. If you have any
"old" pajama bottoms, those are also some of the most comfortable, or I wear
the short ones.
I've bought some microfiber plush pants this year from OldNavy.com and they
have been warm on my legs and haven't irritated them. I am very much looking
forward to warmer weather when I can wear short pants all the time and not
being uncomfortable.
Hugs to all, Barbara A in CA
Great deals on Dell s most popular laptops Starting at $479
--
Why pay full price? Check out this month's deals on the new AOL Shopping.
Re: [TMIC] leg and foot comfort in bed
I am so amazed that in this we are all so similar! Each time I read your letters it is like I've written them myself. Another one is that even tho I can't feel anything on the bottoms of my feet if I step on something it shoots a spasm of pain right up my leg. I also have to watch my feet to see where they are. I can walk without doing that but only in my house. I step out on the porch and my eyes go right down to my feet. Jeanne Message--- From: kimr1...@bellsouth.net Date: 4/16/2009 6:52:58 PM To: bradebi; balmat...@aol.com; tmic-list; jrushton Subject: Re: [TMIC] leg and foot comfort in bed I love summer as I can wear shorts and don't have anything touching my legs !! I can not take ANYTHING touching my feet, no "soft socks" shoes even my feet resting on the foot pegs on my wheel chair hurts.. the stinging inmy feet somedays so unbearable but have learen to just cope and deal with it. It is a comfort to have my extended TM family and know that I am not the only one who goes thru this everyday, -- Original message from "bradebi" : -- I miss jeans (Levi's) the most...I have worn Jeans and a t-shirt all my life .I cant wear shoes or socks or stand sheets or blankets on me, and if my Husband rubs my back by going up my spine then it puts me in a spasm that is very painful..I hate it..but I don't want my Husband to stop touching me. Debi T4 Spastic paraplegic South Lake Tahoe, Ca. ---Original Message--- From: jrushton Date: 4/15/2009 8:49:19 AM To: balmat...@aol.com; tmic Subject: Re: [TMIC] leg and foot comfort in bed One thing I did find is that I sure can't wear jeans anymore because the denim causes immediate pain and leads to painful spasms. There are a few other fabrics that do the same thing. The safest is lightweight cotton knit Jeanne ---Original Message--- From: balmat...@aol.com Date: 04/15/09 00:23:53 To: tmic-list@eskimo.com Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep. I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time. It started as sensitivity and is so often PAIN. I've gone from egyptian cotton very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton. In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey. I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with my knees bent so nothing touches my legs. Blankets are much worse, so you need to get the most comfortable sheet you can near your skin. If you have any "old" pajama bottoms, those are also some of the most comfortable, or I wear the short ones. I've bought some microfiber plush pants this year from OldNavy.com and they have been warm on my legs and haven't irritated them. I am very much looking forward to warmer weather when I can wear short pants all the time and not being uncomfortable. Hugs to all, Barbara A in CA Great deals on Dell s most popular laptops Starting at $479
Re: [TMIC] leg and foot comfort in bed
I love summer as I can wear shorts and don't have anything touching my legs !! I can not take ANYTHING touching my feet, no "soft socks" shoes even my feet resting on the foot pegs on my wheel chair hurts.. the stinging inmy feet somedays so unbearable but have learen to just cope and deal with it. It is a comfort to have my extended TM family and know that I am not the only one who goes thru this everyday, -- Original message from "bradebi" : -- I miss jeans (Levi's) the most...I have worn Jeans and a t-shirt all my life..I cant wear shoes or socks or stand sheets or blankets on me, and if my Husband rubs my back by going up my spine then it puts me in a spasm that is very painful..I hate it..but I don't want my Husband to stop touching me. Debi T4 Spastic paraplegic South Lake Tahoe, Ca. ---Original Message--- From: jrushton Date: 4/15/2009 8:49:19 AM To: balmat...@aol.com; tmic Subject: Re: [TMIC] leg and foot comfort in bed One thing I did find is that I sure can't wear jeans anymore because the denim causes immediate pain and leads to painful spasms. There are a few other fabrics that do the same thing. The safest is lightweight cotton knit. Jeanne ---Original Message--- From: balmat...@aol.com Date: 04/15/09 00:23:53 To: tmic-list@eskimo.com Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep.I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time. It started as sensitivity and is so often PAIN. I've gone from egyptian cotton, very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton. In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey. I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with my knees bent so nothing touches my legs. Blankets are much worse, so you need to get the most comfortable sheet you can near your skin. If you have any "old" pajama bottoms, those are also some of the most comfortable, or I wear the short ones. I've bought some microfiber plush pants this year from OldNavy.com and they have been warm on my legs and haven't irritated them. I am very much looking forward to warmer weather when I can wear short pants all the time and not being uncomfortable.Hugs to all, Barbara A in CA Great deals on Dell s most popular laptops Starting at $479
Re: [TMIC] leg and foot comfort in bed
I miss jeans (Levi's) the most...I have worn Jeans and a t-shirt all my life .I cant wear shoes or socks or stand sheets or blankets on me, and if my Husband rubs my back by going up my spine then it puts me in a spasm that is very painful..I hate it..but I don't want my Husband to stop touching me. Debi T4 Spastic paraplegic South Lake Tahoe, Ca. ---Original Message--- From: jrushton Date: 4/15/2009 8:49:19 AM To: balmat...@aol.com; tmic Subject: Re: [TMIC] leg and foot comfort in bed One thing I did find is that I sure can't wear jeans anymore because the denim causes immediate pain and leads to painful spasms. There are a few other fabrics that do the same thing. The safest is lightweight cotton knit Jeanne ---Original Message--- From: balmat...@aol.com Date: 04/15/09 00:23:53 To: tmic-list@eskimo.com Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep. I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time. It started as sensitivity and is so often PAIN. I've gone from egyptian cotton very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton. In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey. I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with my knees bent so nothing touches my legs. Blankets are much worse, so you need to get the most comfortable sheet you can near your skin. If you have any "old" pajama bottoms, those are also some of the most comfortable, or I wear the short ones. I've bought some microfiber plush pants this year from OldNavy.com and they have been warm on my legs and haven't irritated them. I am very much looking forward to warmer weather when I can wear short pants all the time and not being uncomfortable. Hugs to all, Barbara A in CA Great deals on Dell s most popular laptops Starting at $479
Re: [TMIC] leg and foot comfort in bed
Gilly, I love your way of explaining what we all have experiencing.reading you makes it sound like we've had fun trying to find what works for us and really, that's the way we should look at it..I could just see that mother centipede putting shoes on each foot, then having to change to another shoe!! Laughter is the Best Medicine!! Thanks for being you!! Hugs, jan --- On Wed, 4/15/09, Gillian Clark wrote: G'day Barb and everyone, Over the last nearly 8 years, I've been like you. I've purchased more pairs of shoes than a mother of growing centipedes could possibly need, more clothes that just hurt too much (yep, certainly jeans). I've found with the sheets that as long as they are warm, as long as they have no wrinkles and as long as I don't move, I don't have too much pain or too many spasms :)). Another thing is that sleeping on my own is an absolute essential now for me. A strange little thing I've found lately that helps is having a pillow over my feet. I have no idea why. Of course Barb, I reckon the brownies help a lot with the sleeping. I've found that I have to have mule type shoes, socks worn inside out, no dresses, no stockings, no jeans. T-shirt material or jersey is the easiest to wear. Wouldn't you just like Trinny and Susannah try and make us look like a million dollars with our restrictions? gentle hugs to all Gilly
Re: [TMIC] leg and foot comfort in bed
I am such a happy camper with my cotton knit.? Such a miraculous fiber.? Isn't it great when we find something that works for us, most of the time? It's just amazing!? It's definately a game of trial and error, that's for sure.??Life is so much fun when you have TM.? The majority of my sensitivity is in the evening and during the night.? There are times when I cannot even?stand skin to skin contact.? That's why I sleep on my back with my knees bent many nights.? Take care everyone! Hugs, Barbara A -Original Message- From: Janice To: tmic-list@eskimo.com; balmat...@aol.com Sent: Wed, 15 Apr 2009 8:30 pm Subject: Re: [TMIC] leg and foot comfort in bed I have the sensitivity of cloth rubbing (or barely touching) my legs too.?? But, I have no problem with sheets and blankets on me at nite.?? I sleep with a pillow between my knees and that takes care of any problems I guess.? I have slept with a summer gown all winter, otherwise I get too hot. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Wednesday, April 15, 2009 12:23 AM Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep. I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time.? It started as sensitivity and is so often PAIN.? I've gone from egyptian cotton, very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton.? In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey.? I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with my knees bent so nothing touches my legs.? Blankets are much worse, so you need to get the most comfortable sheet you can near your skin.? If you have any "old" pajama bottoms, those are also some of the most comfortable, or I wear the short ones.? I've bought some microfiber plush pants this year from OldNavy.com and they have been warm on my legs and haven't irritated them.? I am very much looking forward to warmer weather when I can wear short pants all the time and not being uncomfortable. Hugs to all, Barbara A in CA Great deals on Dell s most popular laptops Starting at $479
Re: [TMIC] leg and foot comfort in bed
I agree. I always wear the cotton knit at home and the other stuff only when going out. Thank heavens for stretchy jeans now. janice - Original Message - From: jrushton To: balmat...@aol.com ; tmic Sent: Wednesday, April 15, 2009 8:48 AM Subject: Re: [TMIC] leg and foot comfort in bed One thing I did find is that I sure can't wear jeans anymore because the denim causes immediate pain and leads to painful spasms. There are a few other fabrics that do the same thing. The safest is lightweight cotton knit. Jeanne ---Original Message--- From: balmat...@aol.com Date: 04/15/09 00:23:53 To: tmic-list@eskimo.com Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep. I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time. It started as sensitivity and is so often PAIN. I've gone from egyptian cotton, very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton. In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey. I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with my knees bent so nothing touches my legs. Blankets are much worse, so you need to get the most comfortable sheet you can near your skin. If you have any "old" pajama bottoms, those are also some of the most comfortable, or I wear the short ones. I've bought some microfiber plush pants this year from OldNavy.com and they have been warm on my legs and haven't irritated them. I am very much looking forward to warmer weather when I can wear short pants all the time and not being uncomfortable. Hugs to all, Barbara A in CA Great deals on Dell s most popular laptops Starting at $479 <<02.jpg>>
Re: [TMIC] leg and foot comfort in bed
I have the sensitivity of cloth rubbing (or barely touching) my legs too. But, I have no problem with sheets and blankets on me at nite. I sleep with a pillow between my knees and that takes care of any problems I guess. I have slept with a summer gown all winter, otherwise I get too hot. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Wednesday, April 15, 2009 12:23 AM Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep. I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time. It started as sensitivity and is so often PAIN. I've gone from egyptian cotton, very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton. In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey. I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with my knees bent so nothing touches my legs. Blankets are much worse, so you need to get the most comfortable sheet you can near your skin. If you have any "old" pajama bottoms, those are also some of the most comfortable, or I wear the short ones. I've bought some microfiber plush pants this year from OldNavy.com and they have been warm on my legs and haven't irritated them. I am very much looking forward to warmer weather when I can wear short pants all the time and not being uncomfortable. Hugs to all, Barbara A in CA -- Great deals on Dell s most popular laptops Starting at $479
Re: [TMIC] leg and foot comfort in bed
G'day Barb and everyone, Over the last nearly 8 years, I've been like you. I've purchased more pairs of shoes than a mother of growing centipedes could possibly need, more clothes that just hurt too much (yep, certainly jeans). I've found with the sheets that as long as they are warm, as long as they have no wrinkles and as long as I don't move, I don't have too much pain or too many spasms :)). Another thing is that sleeping on my own is an absolute essential now for me. A strange little thing I've found lately that helps is having a pillow over my feet. I have no idea why. Of course Barb, I reckon the brownies help a lot with the sleeping. I've found that I have to have mule type shoes, socks worn inside out, no dresses, no stockings, no jeans. T-shirt material or jersey is the easiest to wear. Wouldn't you just like Trinny and Susannah try and make us look like a million dollars with our restrictions? gentle hugs to all Gilly - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Wednesday, April 15, 2009 2:53 PM Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep. I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time. It started as sensitivity and is so often PAIN. I've gone from egyptian cotton, very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton. In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey. I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with my knees bent so nothing touches my legs. Blankets are much worse, so you need to get the most comfortable sheet you can near your skin. If you have any "old" pajama bottoms, those are also some of the most comfortable, or I wear the short ones. I've bought some microfiber plush pants this year from OldNavy.com and they have been warm on my legs and haven't irritated them. I am very much looking forward to warmer weather when I can wear short pants all the time and not being uncomfortable. Hugs to all, Barbara A in CA -- Great deals on Dell s most popular laptops Starting at $479
Re: [TMIC] leg and foot comfort in bed
Another place you can find them at pretty good prices off and on is Amazon. I didn't realize they sold everything until last Christmas. These are brand names, too, and you just list what you are looking for and it will narrow it down where you don't have to look thru a hundred things to find the one you are looking for! I just happened to be looking for flat sheets to make a quilt and that was where I went first! Jeanne ---Original Message--- From: Jan Hargrove Date: 4/15/2009 10:04:52 AM To: balmat...@aol.com; tmic-list Subject: Re: [TMIC] leg and foot comfort in bed Years ago, my dermatologist at that time prescribed satin sheets .the reason was that the fabric of other sheets caused friction on my skinI've used them since 1984 and they make sleep possible today with tm..I don't mean the knit kind either. The first set cost me $144.00 which I couldn't afford, but they allowed me to sleep so I couldn't afford not to get them!! I've since then purched them from Sears or JC Penney, at MUCH more reasonable prices!! I take them whenever we travel, and the first thing I do when I arrive wherever, is to put them on the bed I'll be sleeping on! My 2¢ worth, janh --- On Wed, 4/15/09, balmat...@aol.com wrote: From: balmat...@aol.com Subject: [TMIC] leg and foot comfort in bed To: tmic-list@eskimo.com Date: Wednesday, April 15, 2009, 12:23 AM I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep. I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time. It started as sensitivity and is so often PAIN. I've gone from egyptian cotton very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton. In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey. I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with my knees bent so nothing touches my legs. Blankets are much worse, so you need to get the most comfortable sheet you can near your skin. If you have any "old" pajama bottoms, those are also some of the most comfortable, or I wear the short ones. I've bought some microfiber plush pants this year from OldNavy.com and they have been warm on my legs and haven't irritated them. I am very much looking forward to warmer weather when I can wear short pants all the time and not being uncomfortable. Hugs to all, Barbara A in CA Great deals on Dell s most popular laptops Starting at $479 <<17.jpg>>
Re: [TMIC] leg and foot comfort in bed
One thing I did find is that I sure can't wear jeans anymore because the denim causes immediate pain and leads to painful spasms. There are a few other fabrics that do the same thing. The safest is lightweight cotton knit Jeanne ---Original Message--- From: balmat...@aol.com Date: 04/15/09 00:23:53 To: tmic-list@eskimo.com Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep. I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time. It started as sensitivity and is so often PAIN. I've gone from egyptian cotton very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton. In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey. I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with my knees bent so nothing touches my legs. Blankets are much worse, so you need to get the most comfortable sheet you can near your skin. If you have any "old" pajama bottoms, those are also some of the most comfortable, or I wear the short ones. I've bought some microfiber plush pants this year from OldNavy.com and they have been warm on my legs and haven't irritated them. I am very much looking forward to warmer weather when I can wear short pants all the time and not being uncomfortable. Hugs to all, Barbara A in CA Great deals on Dell s most popular laptops Starting at $479 <<02.jpg>>
Re: [TMIC] leg and foot comfort in bed
Years ago, my dermatologist at that time prescribed satin sheets..the reason was that the fabric of other sheets caused friction on my skinI've used them since 1984 and they make sleep possible today with tm..I don't mean the knit kind either. The first set cost me $144.00 which I couldn't afford, but they allowed me to sleep so I couldn't afford not to get them!! I've since then purched them from Sears or JC Penney, at MUCH more reasonable prices!! I take them whenever we travel, and the first thing I do when I arrive wherever, is to put them on the bed I'll be sleeping on! My 2¢ worth, janh --- On Wed, 4/15/09, balmat...@aol.com wrote: From: balmat...@aol.com Subject: [TMIC] leg and foot comfort in bed To: tmic-list@eskimo.com Date: Wednesday, April 15, 2009, 12:23 AM I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep. I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time. It started as sensitivity and is so often PAIN. I've gone from egyptian cotton, very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton. In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey. I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with my knees bent so nothing touches my legs. Blankets are much worse, so you need to get the most comfortable sheet you can near your skin. If you have any "old" pajama bottoms, those are also some of the most comfortable, or I wear the short ones. I've bought some microfiber plush pants this year from OldNavy.com and they have been warm on my legs and haven't irritated them. I am very much looking forward to warmer weather when I can wear short pants all the time and not being uncomfortable. Hugs to all, Barbara A in CA Great deals on Dell s most popular laptops Starting at $479
[TMIC] leg and foot comfort in bed
I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep. I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time.? It started as sensitivity and is so often PAIN.? I've gone from egyptian cotton, very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton.? In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey.? I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with my knees bent so nothing touches my legs.? Blankets are much worse, so you need to get the most comfortable sheet you can near your skin.? If you have any "old" pajama bottoms, those are also some of the most comfortable, or I wear the short ones.? I've bought some microfiber plush pants this year from OldNavy.com and they have been warm on my legs and haven't irritated them.? I am very much looking forward to warmer weather when I can wear short pants all the time and not being uncomfortable. Hugs to all, Barbara A in CA
