Re: [TMIC] new member
Randy, we will always try to help anyone on this website with any TM problem. Thanks. Janice From: randy rankin Sent: Thursday, November 17, 2011 2:54 PM To: tmic-list@eskimo.com Subject: [TMIC] new member Hello tmi group I was in the library working on my dissertation and overheard a lady discussing ordeals about her mother. The problems related to m.s. not t.m.; however, she mentioned her mom's doctor talk about mylopothy, multiple mylopothy, ect. but didn't understand the terminology or issues. Her mom is going through foot drop, pain, has lessions on brain and along spinal chord. I might have been a 'busy body' but I had to talk with her about the issues. I told her about this support group and how it could help her understand what is going on with her mom as well as help her get directions and assistance. I don't know what the lady does for a living, and I didn't get her name, but I see her assisting individuals with writing projects, school work, ect. I hope it is ok that I gave her our email address and maybe some of you can help her out. Randy
Re: [TMIC] new member
like cause with like effect,she is sure to find direction towards answers in here. it is good. From: randy rankin To: "tmic-list@eskimo.com" Sent: Thursday, November 17, 2011 3:54 PM Subject: [TMIC] new member Hello tmi group I was in the library working on my dissertation and overheard a lady discussing ordeals about her mother. The problems related to m.s. not t.m.; however, she mentioned her mom's doctor talk about mylopothy, multiple mylopothy, ect. but didn't understand the terminology or issues. Her mom is going through foot drop, pain, has lessions on brain and along spinal chord. I might have been a 'busy body' but I had to talk with her about the issues. I told her about this support group and how it could help her understand what is going on with her mom as well as help her get directions and assistance. I don't know what the lady does for a living, and I didn't get her name, but I see her assisting individuals with writing projects, school work, ect. I hope it is ok that I gave her our email address and maybe some of you can help her out. Randy
[TMIC] new member
Hello tmi group I was in the library working on my dissertation and overheard a lady discussing ordeals about her mother. The problems related to m.s. not t.m.; however, she mentioned her mom's doctor talk about mylopothy, multiple mylopothy, ect. but didn't understand the terminology or issues. Her mom is going through foot drop, pain, has lessions on brain and along spinal chord. I might have been a 'busy body' but I had to talk with her about the issues. I told her about this support group and how it could help her understand what is going on with her mom as well as help her get directions and assistance. I don't know what the lady does for a living, and I didn't get her name, but I see her assisting individuals with writing projects, school work, ect. I hope it is ok that I gave her our email address and maybe some of you can help her out. Randy
Re: [TMIC] new member
Kelly, I've had TM since Jan. 5, 2006. Here's some websites that might help with TM and related. Help for meds can usually be done with/through the manufactures patient assistance departments. For general info with help try these website http://www.disabilityhelpsite.com/ http://www.christopherreeve.org/site/c.ddJFKRNoFiG/b.4048063/k.BDDB/Home.htm For Depression and help with nerve pain, I take Cymbalta. Try these websites: http://www.cymbalta.com/index.jsp Lilly is good about help with meds so try - http://www.lilly.com/responsibility/servingpatients/programs/ Another website for help with meds - http://www.pparx.org/ Some other meds are: Tizanidine (Zanaflex) for muscle spasms; Hydroco/APAP 7.5-500 Tab for break-thru pain; Tramadol HCL 50mg for pain, it is a narcotic; Gabapentin is a genetic for Lyrica - Try http://www.lyrica.com/index.aspx?source=yahoo&HBX_PK=s_lyrica&HBX_OU=51&o=44962814|221361396|0 and Voltaren Gel for pain in shoulder, arms, elbows, hands and legs. I also use an Electric Muscle Stimulator (EMS) for pain especially in my lower back and left neck/shoulder. I did use a TENS which is constant muscle stimulation but I've found that they EMS is better because I can program off/on periods of muscle stimulation. The muscles/nerves seem to like several seconds between the electrical pulsing. The EMS also delivers the stimul I've found that heat helps so I have multiple heating devices - heating pads, seat back covers with massage & heat (Homedic), back braces with removable gel pads that can be heated in the micro wave or chilled in refrig/freezer (which I never do because cold is torture to me). I also have back "packs" that are heated in the micro wave (I believe they are called Bed Buddy). For good info on TM try: http://www.hopkinsmedicine.org/neurology_neurosurgery/specialty_areas/transverse_myelitis/conditions/ http://www.mayoclinic.com/health/transverse-myelitis/DS00854 http://www.answers.com/topic/transverse-myelitis http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyelitis.htm For info on SSD and SSDI help and info: http://www.disabilitysecrets.com/ http://www.disabilityclaimssolutions.com/newsletters.html http://groups.yahoo.com/group/Disinissues/ http://en.wikipedia.org/wiki/Employee_Retirement_Income_Security_Act http://www.ddbchicago.com/Quick%20links/federal-disability-laws.html http://www.lectlaw.com/tgvb.htm http://erisa.petti-legal.com/ http://www.lectlaw.com/files/gvb07.htm http://www.govbenefits.gov/ TM is a "cousin" of MS so much of the info regarding MS will apply to TM http://www.medhelp.org/health_pages/Multiple-Sclerosis/General-Principles-of-Treating-Neuropathic-Nerve-Pain/show/452?cid=36 I'm not sure if you were working or if so, if you had LTD through your employer. If you do, be prepared to fight them. Most employer based LTD insurance companies will try to quit paying after 2 years. I recommend that you join http://groups.yahoo.com/group/Disinissues/ This website has many great links and recommendations for fight the LTD companies. I hope some of the info I've covered will help you. To help explain to your family and friends how TM affects you, read and explain by the Spoon Theory - http://www.butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: "Janice Nichols" To: "Kelly Jean Craig" , tmic-list@eskimo.com Sent: Friday, June 4, 2010 11:57:45 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] new member Kelly Jean, I have had TM since January of 2007. I just turned 60 the month before. I was paralyzed from the shoulder blades on down, but with proper meds, much physical therapy, and no one telling me that I would never do "whatever" again, I can walk on my own, sometimes with my cane. The banding is not that much of a bother now either. I was lucky to be living in a medical center with excellent doctors. By the 3rd day, they knew it was TM and had me on steroids immediately and for quite a while. It seems to have taken quite a while to get your diagnosis and start on the proper meds, but don't give up. My husband never told me the doctors didn't think I would ever walk again - it would have ruined my fighting spirit. If you feel you are not being treated properly, there are those that have gone to specialized places that have done research on the treatment of TM's damage
Re: [TMIC] new member
Kelly Jean, I have had TM since January of 2007. I just turned 60 the month before. I was paralyzed from the shoulder blades on down, but with proper meds, much physical therapy, and no one telling me that I would never do "whatever" again, I can walk on my own, sometimes with my cane.The banding is not that much of a bother now either. I was lucky to be living in a medical center with excellent doctors. By the 3rd day, they knew it was TM and had me on steroids immediately and for quite a while.It seems to have taken quite a while to get your diagnosis and start on the proper meds, but don't give up. My husband never told me the doctors didn't think I would ever walk again - it would have ruined my fighting spirit. If you feel you are not being treated properly, there are those that have gone to specialized places that have done research on the treatment of TM's damage to the body. Please keep emailing in to us. There is a lot of information that I know will be forthcoming from the other "TM'ers". Just keep in touch with us and good luck. If nothing else, we are able to help take some of the "isolation" feeling that we all seem to get from this disease being so rare. Janice, Missouri From: Kelly Jean Craig Sent: Thursday, June 03, 2010 11:58 AM To: tmic-list@eskimo.com Subject: [TMIC] new member Hi Everyone, Well, I was reluctantly admitted to the TM group last week. My name is Kelly Jean and I am 28 years old. I am a cancer research scientist, athlete, wife and pug lover. I was diagnosed after a strange string of events. I woke up two weeks ago with a coughing episode that left me feeling like there was a constrictive band around my chest. I thought I was having a heart attack. The ER visit left me feeling better after they gave me a Toradol injection in the left cheek . However, the next morning my toes felt numb and tingly on the injection side. As the day went on I noticed, the numbness and sensitivity was growing. By the next day, I couldn't stand to touch myself on the left leg. The worst pins/needles sensation you could imagine. Myy husband, splashed water on my leg near the garden and I fell down in pain. It was like someone poured liquid nitrogen down my body. I received my PhD studying a movement disorder (Parkinson disease), so I thought this could be peripheral neuropathy. I just knew that the nurse who gave my that Toradol injection damaged by nerves and I was having sensory neuron damage...little did I know. After 5 doctor visits and everyone saying these sensations would pass, I finally convinced another ER doc to give me an MRI. Almost 10 days later, they found a T3 lesion on my spinal column and 2 small lesions in my brain. They admitted me to the hospital and began my solumedrol treatments 1000mg/day x 5 days. The solumedrol nearly incapacitated me. I couldn't walk, lift my head, speak or chew. I was release from the hospital and I am just now on day 2 of my oral taper prednisone doses. I still feel like I am in a fog. My abdomen feels like a tons of bricks. After nearly two weeks of bed rest, I am feeling crippled physically and emotionally. My head aches just after sitting up for a few minutes. Does anyone else have this sort of reaction to the steroids? They did a lumbar puncture and we are awaiting the CSF lab results to rule out MS. Perhaps, the puncture hasn't fully healed yet. The doctors are guessing this was an infectious case of TM. I am praying that this is a monophasic event and this suffering will soon be over. Does anyone have any suggestions? Massage therapy? Physical therapy? Acupuncture? Reflexology? Homeopathic meds? I am desperate to be better. Any and all advice is welcomed. Sorry if this email seems to dance all over the place. Typing and reading this email has tuckered me out today. Thanks for your support, Kelly Jean --- On Mon, 5/31/10, Akua wrote: From: Akua Subject: Re: [TMIC] Shoes To: "Cody" , tmic-list@eskimo.com Date: Monday, May 31, 2010, 7:48 PM I wear hose and crocks and remind myself to turn my feet -- was getting a pressure sore on the side of my left foot from it laying on the side of foot rest went back to strapping feet in boots at night for a few nights > I am having a terrible time with pressures sores on my feet. I am interested in hearing what kind of shoes those of you who have to use wheelchairs are wearing. My problem is my left foot turns inward and lays on my footrest on its left side. And that's where the pressure sore is located on the ball of my foot just behind my little toe. My wife just bought me a pair of ankle high boots which hopefully will tend to keep my foot straight with the ankle support.
Re: [TMIC] new member
Fatigue is a symptom, as is pain. Ask about your levels of D, B12, whether you need folic acid, whether you are anemic. You can attend to these by diet and supplements. When i was ambulatory and thought i was recovering I embarked on a course of acupuncture which helped enormously to relieve the electric shock pains and increased my feeling of general well being. I didn't like steroids either and now harbor the suspicion that they set me up for the unresolved infection to take hold and paralyze me as my first bout was October 4, from which i recovered and my second was November 14 at 3:04 am, which has left me paralyzed. I sadly did not receive enough physical therapy-- I would urge you and anyone to get as much as they can if you have some knowledgeable experts. I've had folks who knew what i needed and what to do for me and have had others that seem to work by rote... Wishing you the best, healing and relief, Akua --
Fw: [TMIC] new member
Hey Kelly, A lot of the things that are happening to you does sound like TM and the doctors don't know how long you had it before YOU find it. It was you that asked for the MRI that found your lesions. For some of us, it took months to get a MRI. I did highlight your e-mail of things that did sound like TM. We could had been sick or gotten an injection that may or may not have given us TM. We just don't know. Try everything & anything that you thing might work for you, some will work & some will not and everyone is different. Glad you found us, but sorry you needed to, Todd in Corpus Christi, TX --- On Thu, 6/3/10, Kelly Jean Craig wrote: From: Kelly Jean Craig Subject: [TMIC] new member To: tmic-list@eskimo.com Date: Thursday, June 3, 2010, 11:58 AM Hi Everyone, Well, I was reluctantly admitted to the TM group last week. My name is Kelly Jean and I am 28 years old. I am a cancer research scientist, athlete, wife and pug lover. I was diagnosed after a strange string of events. I woke up two weeks ago with a coughing episode that left me feeling like there was a constrictive band around my chest. I thought I was having a heart attack. The ER visit left me feeling better after they gave me a Toradol injection in the left cheek . However, the next morning my toes felt numb and tingly on the injection side. As the day went on I noticed, the numbness and sensitivity was growing. By the next day, I couldn't stand to touch myself on the left leg. The worst pins/needles sensation you could imagine. Myy husband, splashed water on my leg near the garden and I fell down in pain. It was like someone poured liquid nitrogen down my body. I received my PhD studying a movement disorder (Parkinson disease), so I thought this could be peripheral neuropathy. I just knew that the nurse who gave my that Toradol injection damaged by nerves and I was having sensory neuron damage...little did I know. After 5 doctor visits and everyone saying these sensations would pass, I finally convinced another ER doc to give me an MRI. Almost 10 days later, they found a T3 lesion on my spinal column and 2 small lesions in my brain. They admitted me to the hospital and began my solumedrol treatments 1000mg/day x 5 days. The solumedrol nearly incapacitated me. I couldn't walk, lift my head, speak or chew. I was release from the hospital and I am just now on day 2 of my oral taper prednisone doses. I still feel like I am in a fog. My abdomen feels like a tons of bricks. After nearly two weeks of bed rest, I am feeling crippled physically and emotionally. My head aches just after sitting up for a few minutes. Does anyone else have this sort of reaction to the steroids? They did a lumbar puncture and we are awaiting the CSF lab results to rule out MS. Perhaps, the puncture hasn't fully healed yet. The doctors are guessing this was an infectious case of TM. I am praying that this is a monophasic event and this suffering will soon be over. Does anyone have any suggestions? Massage therapy? Physical therapy? Acupuncture? Reflexology? Homeopathic meds? I am desperate to be better. Any and all advice is welcomed. Sorry if this email seems to dance all over the place. Typing and reading this email has tuckered me out today. Thanks for your support, Kelly Jean
[TMIC] new member
Hi Everyone, Well, I was reluctantly admitted to the TM group last week. My name is Kelly Jean and I am 28 years old. I am a cancer research scientist, athlete, wife and pug lover. I was diagnosed after a strange string of events. I woke up two weeks ago with a coughing episode that left me feeling like there was a constrictive band around my chest. I thought I was having a heart attack. The ER visit left me feeling better after they gave me a Toradol injection in the left cheek . However, the next morning my toes felt numb and tingly on the injection side. As the day went on I noticed, the numbness and sensitivity was growing. By the next day, I couldn't stand to touch myself on the left leg. The worst pins/needles sensation you could imagine. Myy husband, splashed water on my leg near the garden and I fell down in pain. It was like someone poured liquid nitrogen down my body. I received my PhD studying a movement disorder (Parkinson disease), so I thought this could be peripheral neuropathy. I just knew that the nurse who gave my that Toradol injection damaged by nerves and I was having sensory neuron damage...little did I know. After 5 doctor visits and everyone saying these sensations would pass, I finally convinced another ER doc to give me an MRI. Almost 10 days later, they found a T3 lesion on my spinal column and 2 small lesions in my brain. They admitted me to the hospital and began my solumedrol treatments 1000mg/day x 5 days. The solumedrol nearly incapacitated me. I couldn't walk, lift my head, speak or chew. I was release from the hospital and I am just now on day 2 of my oral taper prednisone doses. I still feel like I am in a fog. My abdomen feels like a tons of bricks. After nearly two weeks of bed rest, I am feeling crippled physically and emotionally. My head aches just after sitting up for a few minutes. Does anyone else have this sort of reaction to the steroids? They did a lumbar puncture and we are awaiting the CSF lab results to rule out MS. Perhaps, the puncture hasn't fully healed yet. The doctors are guessing this was an infectious case of TM. I am praying that this is a monophasic event and this suffering will soon be over. Does anyone have any suggestions? Massage therapy? Physical therapy? Acupuncture? Reflexology? Homeopathic meds? I am desperate to be better. Any and all advice is welcomed. Sorry if this email seems to dance all over the place. Typing and reading this email has tuckered me out today. Thanks for your support, Kelly Jean --- On Mon, 5/31/10, Akua wrote: From: Akua Subject: Re: [TMIC] Shoes To: "Cody" , tmic-list@eskimo.com Date: Monday, May 31, 2010, 7:48 PM I wear hose and crocks and remind myself to turn my feet -- was getting a pressure sore on the side of my left foot from it laying on the side of foot rest went back to strapping feet in boots at night for a few nights > I am having a terrible time with pressures sores on my feet. I am interested > in hearing what kind of shoes those of you who have to use wheelchairs are > wearing. My problem is my left foot turns inward and lays on my footrest on > its left side. And that's where the pressure sore is located on the ball of > my foot just behind my little toe. My wife just bought me a pair of ankle > high boots which hopefully will tend to keep my foot straight with the ankle > support. I have been wearing regular tennis shoes. I would be interested in > what others are doing for shoes. The podiatrist put me in one of the boots > with velcro they use when you have foot surgery. Because it has high ankle > support it has tended to keep my foot straighter...Cody in Austin --
Re: [TMIC] New Member
Peggy, glad you found this website. I have been with this group only a few
months and it already means a lot to me. If we can't come up with answers, you
at least have our complete support. Personally, I think you need to go back
to your neurologist or surgeon and really bug them for help or have them give
you a referral to a doctor who can help you. Stay tuned, this is a
great group of people. Janice from Missouri
- Original Message -
From: jrushton
To: pwi1991...@aol.com ; tmic
Sent: Sunday, April 19, 2009 8:48 PM
Subject: Re: [TMIC] New Member
Hi, Peggy! Welcome to this wonderful group of people who will be here
for you through everything!
I constantly have the ice cold then hot feet. I have just learned to
live with it. When I wake each morning, my feet are always warm??? Don't know
why.
Just keep reading what all of the TMer's say and you will learn so much
and realize how you are not alone at all with this. We are all so blessed to
have found this site..Jeanne in Dayton
---Original Message---
From: pwi1991...@aol.com
Date: 4/19/2009 10:43:23 PM
To: tmic-list@eskimo.com
Subject: [TMIC] New Member
I was diagnosed in 2002 C 4-C 6 I am having problems with balance . My
hands and feet have started back to being extremely cold and sometimes hot. Any
suggestions from anyone. I had surgery in 2007 to remove the disc. They were
pressing on the spine. It was very successful,however it seems as if I am going
backward with a lot of muscle weakness, bladder and bowel problems. What Can I
do? for 7 years I have been doing very well. I have never really had pain
except when I would pull a muscle in my back. Almost pain free from the time I
contracted the disease. I stayed in rehab and hospitals where I lost all muscle
strength. With therapy on a daily basis I overcame until this sudden backward
spiral. I was taken off neurontin for a couple of month to try something
different have to take an EMG on next month. I am trusting God to touch, heal,
and deliver me from this terrible disease
There is none so amazing as God
Peggy Wilson
Access 350+ FREE radio stations anytime from anywhere on the web. Get
the Radio Toolbar!
<>
Re: [TMIC] New Member
Yes, it certainly is!! ::)) ---Original Message--- From: pwi1991...@aol.com Date: 4/19/2009 11:13:32 PM To: jrush...@columbiaenergyllc.com Subject: Re: [TMIC] New Member Thank you, just to talk with someone is a blessing straight from God. There is none so amazing as God Peggy Wilson In a message dated 4/19/2009 8:49:56 P.M. US Mountain Standard Time, jrush...@columbiaenergyllc.com writes: Hi, Peggy! Welcome to this wonderful group of people who will be here for you through everything! I constantly have the ice cold then hot feet. I have just learned to live with it. When I wake each morning, my feet are always warm??? Don't know why. Just keep reading what all of the TMer's say and you will learn so much and realize how you are not alone at all with this. We are all so blessed to have found this site..Jeanne in Dayton ---Original Message--- From: pwi1991...@aol.com Date: 4/19/2009 10:43:23 PM To: tmic-list@eskimo.com Subject: [TMIC] New Member I was diagnosed in 2002 C 4-C 6 I am having problems with balance . My hands and feet have started back to being extremely cold and sometimes hot. Any suggestions from anyone. I had surgery in 2007 to remove the disc. They were pressing on the spine. It was very successful,however it seems as if I am going backward with a lot of muscle weakness, bladder and bowel problems. What Can I do? for 7 years I have been doing very well. I have never really had pain except when I would pull a muscle in my back. Almost pain free from the time I contracted the disease. I stayed in rehab and hospitals where I lost all muscle strength. With therapy on a daily basis I overcame until this sudden backward spiral. I was taken off neurontin for a couple of month to try something different have to take an EMG on next month. I am trusting God to touch, heal, and deliver me from this terrible disease There is none so amazing as God Peggy Wilson Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar! Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar!<>
Re: [TMIC] New Member
Hi, Peggy! Welcome to this wonderful group of people who will be here for you through everything! I constantly have the ice cold then hot feet. I have just learned to live with it. When I wake each morning, my feet are always warm??? Don't know why. Just keep reading what all of the TMer's say and you will learn so much and realize how you are not alone at all with this. We are all so blessed to have found this site..Jeanne in Dayton ---Original Message--- From: pwi1991...@aol.com Date: 4/19/2009 10:43:23 PM To: tmic-list@eskimo.com Subject: [TMIC] New Member I was diagnosed in 2002 C 4-C 6 I am having problems with balance . My hands and feet have started back to being extremely cold and sometimes hot. Any suggestions from anyone. I had surgery in 2007 to remove the disc. They were pressing on the spine. It was very successful,however it seems as if I am going backward with a lot of muscle weakness, bladder and bowel problems. What Can I do? for 7 years I have been doing very well. I have never really had pain except when I would pull a muscle in my back. Almost pain free from the time I contracted the disease. I stayed in rehab and hospitals where I lost all muscle strength. With therapy on a daily basis I overcame until this sudden backward spiral. I was taken off neurontin for a couple of month to try something different have to take an EMG on next month. I am trusting God to touch, heal, and deliver me from this terrible disease There is none so amazing as God Peggy Wilson Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar! <>
[TMIC] New Member
I was diagnosed in 2002 C 4-C 6 I am having problems with balance . My hands and feet have started back to being extremely cold and sometimes hot. Any suggestions from anyone. I had surgery in 2007 to remove the disc. They were pressing on the spine. It was very successful,however it seems as if I am going backward with a lot of muscle weakness, bladder and bowel problems. What Can I do? for 7 years I have been doing very well. I have never really had pain except when I would pull a muscle in my back. Almost pain free from the time I contracted the disease. I stayed in rehab and hospitals where I lost all muscle strength. With therapy on a daily basis I overcame until this sudden backward spiral. I was taken off neurontin for a couple of month to try something different have to take an EMG on next month. I am trusting God to touch, heal, and deliver me from this terrible disease There is none so amazing as God Peggy Wilson **Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar! (http://toolbar.aol.com/aolradio/download.html?ncid=emlcntusdown0003)
[TMIC] NEW MEMBER!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
HI EVERYONE, I HAVE SPOKE WITH A LADY LAURA HESS WHO LIVES CLOSE TO ME. SHE IS GOING TO JOIN OUR GROUP. HER NAME IS LAURA HESS. I CANNOT WAIT TO MEET HER.SHE WILL TELL HER STORY. I KNOW EVERYONE WILL WELCOME HER WITH OPEN ARMS. TIAD PAM ** See what's new at http://www.aol.com
Re: [TMIC] New member
Hi Natalie, Welcome, I'm sorry you have TM to deal with. This group is very helpful and they have a lot of helpful information if you have questions. Jenna natalie mizenko <[EMAIL PROTECTED]> wrote: Hello to all, I just joined the group this week. I got early signs of TM around the 2nd week of Dec. 06 and by Christmas I was completely paralyzed from TM. My dr. tried using steriods by it didn't reverse my TM at all. I went to a couple small rehab. centers nearby, but by the 2nd one, I had decided I wanted to get out of a small one and go to a bigger one to Baylor Rehab. I recently returned from there, this month actually. I hope you all get this - I wasn't for sure if I used the correct address. Natalie - Ahhh...imagining that irresistible "new car" smell? Check out new cars at Yahoo! Autos. - Ahhh...imagining that irresistible "new car" smell? Check outnew cars at Yahoo! Autos.
Re: [TMIC] New member
I got your mail!! Welcome to the groupyou'll learn a bundle here! janh natalie mizenko <[EMAIL PROTECTED]> wrote: Hello to all, I just joined the group this week. I got early signs of TM around the 2nd week of Dec. 06 and by Christmas I was completely paralyzed from TM. My dr. tried using steriods by it didn't reverse my TM at all. I went to a couple small rehab. centers nearby, but by the 2nd one, I had decided I wanted to get out of a small one and go to a bigger one to Baylor Rehab. I recently returned from there, this month actually. I hope you all get this - I wasn't for sure if I used the correct address. Natalie - Ahhh...imagining that irresistible "new car" smell? Check out new cars at Yahoo! Autos.
[TMIC] New member
Hello to all, I just joined the group this week. I got early signs of TM around the 2nd week of Dec. 06 and by Christmas I was completely paralyzed from TM. My dr. tried using steriods by it didn't reverse my TM at all. I went to a couple small rehab. centers nearby, but by the 2nd one, I had decided I wanted to get out of a small one and go to a bigger one to Baylor Rehab. I recently returned from there, this month actually. I hope you all get this - I wasn't for sure if I used the correct address. Natalie - Ahhh...imagining that irresistible "new car" smell? Check outnew cars at Yahoo! Autos.
Re: [TMIC] new member
Hi Dennis, First of all I am very sorry about the divorce. That had to hurt! Don't worry about your your 3 yr old - it may take some time, but then they'll think it's a fun thing. Have you placed him/her on your lap and gone for a little ride? I truly believe that 2006 is going to be a better year for all of us. Even the slightest improvement is great - because that means we haven't gone backwards! Blessings to you Linda in hurricane-type winds Bothell, WA -- Original message -- From: dennis rabalais <[EMAIL PROTECTED]> HI LINDA, I AM 32YRS OLD. I WAS DIAGNOISED IN SEPT 2002. I CURRENTLY LIVE IN BEAUMONT, TEXAS. I AM ALSO A FATHER OF A 3 YR OLD. MY EX-WIFE WAS 5 MONTHS PREGNANT WHEN I TOOK SICK. I AM STILL TRYING TO GET MY DAUGHTER CLOSE TO ME. SHE I CURRENTLY SCARED OF MY ELECTRIC CHAIR. DENNIS [EMAIL PROTECTED] wrote: Hi Dennis, Thank you for sharing your story with us. Please never give up HOPE. Many people have continued to recover after having TM for years. And I agree with what Jeff said about having a good doctor who understands and knows how to treat TM. So many doctors have no idea. What state do you live in? Could you possibly get a second or third opinion - I believe there is a doctor out there who can help you. Bless you Linda in Bothell, WA -- Original message -- From: dennis rabalais <[EMAIL PROTECTED]> MY NAME IS DENNIS. I WAS PARALYIZED WITHIN A 4 HR. PERIOD. I STARTED FEELING FEVERISH FOR A WEEK, THEN COLLAPSED IN PAIN A FEW WEEKS LATER. I STARTED FEELING NUMBNESS AND COULDN'T WALK STRAIGHT. IT TOOK 4 HRS. TO PARALYIZE ME. NOW I CAN ONLY MOVE MY ELBOWS, WRIST(BARELY), AND ON UP TO HEAD. I HAVE BEEN THIS WAY FOR 3 LONG EXCRUTATING YEARS. I STILL HAVE NOT GIVEN UP HOPE.[EMAIL PROTECTED] wrote: Hi Dennis, Welcome aboard. Please feel free to tell us your story, ask any questions - and like Jeff said - we've all had one symptom or another. Hopefully we can help you with some questions you may have. Or at least offer support! Hugs Linda in Bothell, WA -- Original message -- From: jeff bernier <[EMAIL PROTECTED]> HI DENNIS!!! WELCOME TO THE LIST,IF YOUR LOOKING FOR ANSWERS YOUR IN THE RIGHT PLACE,EVERYONE ON HERE HAS JUST ABOUT EVERY SYMPTOM YOU CAN THINK OF.THIS IS A HUGE FAMILY AND WE ALL SUPPORT EACHOTHER,PLEASE TELL US SOME MORE ABOUT YOURSELF AND WHEN YOU WERE DX WITH TM\MS,PLEASE DONT BE AFRAID TO VENT YOUR FRUSTRATION ON HERE, WE ALL UNDERSTAND.JUST A QUICK WORD OF ADVICE FIND A GOOD DOCTOR THAT UNDERSTANDS THE DISEASE AND ITS PROCESS,MOST NEURO'S DONT HAVE A CLUE WHEN IT COMES TO TM. JEFF CENTRAL NY USAdennis rabalais <[EMAIL PROTECTED]> wrote: I AM A NEW SUBSCRIBER. MY NAME IS DENNIS RABALAIS. I AM A C3-L5 QUAD. IS THERE ANY STUDIES FOR ME TO BE AWARE OF? THANKS. What are the most popular cars? Find out at Yahoo! Autos DIPLOMACY DOES NOTWORK WHEN DEALING WITHNUT'S HELL BENT ONDESTROYING US. Bring words and photos together (easily) withPhotoMail - it's free and works with your Yahoo! Mail. Relax. Yahoo! Mail virus scanning helps detect nasty viruses! Brings words and photos together (easily) withPhotoMail - it's free and works with Yahoo! Mail.
Re: [TMIC] new member
Hi Dennis, Thank you for sharing your story with us. Please never give up HOPE. Many people have continued to recover after having TM for years. And I agree with what Jeff said about having a good doctor who understands and knows how to treat TM. So many doctors have no idea. What state do you live in? Could you possibly get a second or third opinion - I believe there is a doctor out there who can help you. Bless you Linda in Bothell, WA -- Original message -- From: dennis rabalais <[EMAIL PROTECTED]> MY NAME IS DENNIS. I WAS PARALYIZED WITHIN A 4 HR. PERIOD. I STARTED FEELING FEVERISH FOR A WEEK, THEN COLLAPSED IN PAIN A FEW WEEKS LATER. I STARTED FEELING NUMBNESS AND COULDN'T WALK STRAIGHT. IT TOOK 4 HRS. TO PARALYIZE ME. NOW I CAN ONLY MOVE MY ELBOWS, WRIST(BARELY), AND ON UP TO HEAD. I HAVE BEEN THIS WAY FOR 3 LONG EXCRUTATING YEARS. I STILL HAVE NOT GIVEN UP HOPE.[EMAIL PROTECTED] wrote: Hi Dennis, Welcome aboard. Please feel free to tell us your story, ask any questions - and like Jeff said - we've all had one symptom or another. Hopefully we can help you with some questions you may have. Or at least offer support! Hugs Linda in Bothell, WA -- Original message -- From: jeff bernier <[EMAIL PROTECTED]> HI DENNIS!!! WELCOME TO THE LIST,IF YOUR LOOKING FOR ANSWERS YOUR IN THE RIGHT PLACE,EVERYONE ON HERE HAS JUST ABOUT EVERY SYMPTOM YOU CAN THINK OF.THIS IS A HUGE FAMILY AND WE ALL SUPPORT EACHOTHER,PLEASE TELL US SOME MORE ABOUT YOURSELF AND WHEN YOU WERE DX WITH TM\MS,PLEASE DONT BE AFRAID TO VENT YOUR FRUSTRATION ON HERE, WE ALL UNDERSTAND.JUST A QUICK WORD OF ADVICE FIND A GOOD DOCTOR THAT UNDERSTANDS THE DISEASE AND ITS PROCESS,MOST NEURO'S DONT HAVE A CLUE WHEN IT COMES TO TM. JEFF CENTRAL NY USAdennis rabalais <[EMAIL PROTECTED]> wrote: I AM A NEW SUBSCRIBER. MY NAME IS DENNIS RABALAIS. I AM A C3-L5 QUAD. IS THERE ANY STUDIES FOR ME TO BE AWARE OF? THANKS. What are the most popular cars? Find out at Yahoo! Autos DIPLOMACY DOES NOTWORK WHEN DEALING WITHNUT'S HELL BENT ONDESTROYING US. Bring words and photos together (easily) withPhotoMail - it's free and works with your Yahoo! Mail. Relax. Yahoo! Mail virus scanning helps detect nasty viruses!
Re: [TMIC] new member
Hi there Dennis, So glad that you've found the list. As Linda said in her post, none of us have all the answers (Least of all me.) but we're always here to offer support. I found this list while I waa still in the physical rehab hospital, and it's been a Godsend. This is the only place that I can go to where the people really do understand the implications of living with things like TM, MS, or in my case Devic's. I know that you'll find all of the support that you need, and you'll make a lot of new, solid friendships here, too. Grace
Re: [TMIC] new member
Hi Dennis, Welcome aboard. Please feel free to tell us your story, ask any questions - and like Jeff said - we've all had one symptom or another. Hopefully we can help you with some questions you may have. Or at least offer support! Hugs Linda in Bothell, WA -- Original message -- From: jeff bernier <[EMAIL PROTECTED]> HI DENNIS!!! WELCOME TO THE LIST,IF YOUR LOOKING FOR ANSWERS YOUR IN THE RIGHT PLACE,EVERYONE ON HERE HAS JUST ABOUT EVERY SYMPTOM YOU CAN THINK OF.THIS IS A HUGE FAMILY AND WE ALL SUPPORT EACHOTHER,PLEASE TELL US SOME MORE ABOUT YOURSELF AND WHEN YOU WERE DX WITH TM\MS,PLEASE DONT BE AFRAID TO VENT YOUR FRUSTRATION ON HERE, WE ALL UNDERSTAND.JUST A QUICK WORD OF ADVICE FIND A GOOD DOCTOR THAT UNDERSTANDS THE DISEASE AND ITS PROCESS,MOST NEURO'S DONT HAVE A CLUE WHEN IT COMES TO TM. JEFF CENTRAL NY USAdennis rabalais <[EMAIL PROTECTED]> wrote: I AM A NEW SUBSCRIBER. MY NAME IS DENNIS RABALAIS. I AM A C3-L5 QUAD. IS THERE ANY STUDIES FOR ME TO BE AWARE OF? THANKS. What are the most popular cars? Find out at Yahoo! Autos DIPLOMACY DOES NOTWORK WHEN DEALING WITHNUT'S HELL BENT ONDESTROYING US. Bring words and photos together (easily) withPhotoMail - it's free and works with your Yahoo! Mail.
Re: [TMIC] new member
HI DENNIS!!! WELCOME TO THE LIST,IF YOUR LOOKING FOR ANSWERS YOUR IN THE RIGHT PLACE,EVERYONE ON HERE HAS JUST ABOUT EVERY SYMPTOM YOU CAN THINK OF.THIS IS A HUGE FAMILY AND WE ALL SUPPORT EACHOTHER,PLEASE TELL US SOME MORE ABOUT YOURSELF AND WHEN YOU WERE DX WITH TM\MS,PLEASE DONT BE AFRAID TO VENT YOUR FRUSTRATION ON HERE, WE ALL UNDERSTAND.JUST A QUICK WORD OF ADVICE FIND A GOOD DOCTOR THAT UNDERSTANDS THE DISEASE AND ITS PROCESS,MOST NEURO'S DONT HAVE A CLUE WHEN IT COMES TO TM. JEFF CENTRAL NY USAdennis rabalais <[EMAIL PROTECTED]> wrote:I AM A NEW SUBSCRIBER. MY NAME IS DENNIS RABALAIS. I AM A C3-L5 QUAD. IS THERE ANY STUDIES FOR ME TO BE AWARE OF? THANKS. What are the most popular cars? Find out at Yahoo! Autos DIPLOMACY DOES NOTWORK WHEN DEALING WITHNUT'S HELL BENT ONDESTROYING US. Bring words and photos together (easily) with PhotoMail - it's free and works with your Yahoo! Mail.
[TMIC] new member
I AM A NEW SUBSCRIBER. MY NAME IS DENNIS RABALAIS. I AM A C3-L5 QUAD. IS THERE ANY STUDIES FOR ME TO BE AWARE OF? THANKS. What are the most popular cars? Find out at Yahoo! Autos
