Re: [TMIC] weather and TM
Ditto - It's amazing all - we are all so different yet all the same - it's so good to know that I'm not alone dealing with all this! Margie On Sat, 18 Mar 2006 22:55:37 EST, JHarper33 wrote > > A lot of times, even just watching TV on the couch, I'll take a throw blanket to cover my arms, which are cold, but have to leave it off my feet, which get too hot. Unless its' really, really cold, I start off at bed at night with just a sheet over me and my lower legs sticking out, then some time during the night pull the bedspread on and bring my feet in. My thermostat is all messed up! > > Both the heat and the cold affect me -- the cold makes my muscles stiffen up, and heat just drains energy from me. > > Barbara H. -- WOW! Homepage (http://www.wowway.com)
Re: [TMIC] weather and TM
> My thermostat is all > messed up! Barbara, that's it!! we need new thermostats!!! f
Re: [TMIC] weather and TM
> We too use a down comforter from Oct to May. However, even in winter > > sometimes during the night I end up uncovering as it is too warm. Go > > figger. yeah, either too warm or too cold. our room temp drops to 50 F. during the night, turns on at 6 am, wakes the dogs, my woman gets up to let them out, turn up the thermostat to 68, get a cup of coffee, read the paper. i sleep till 8 am when the upstairs heat comes on and wakes me. f
Re: [TMIC] weather and TM
Sure sounds familiar. And these hot flashes can't all be about the change of life! Cora in OK > A lot of times, even just watching TV on the couch, I'll take a throw > blanket to cover my arms, which are cold, but have to leave it off my > feet, which > get too hot. Unless its' really, really cold, I start off at bed at night > with > just a sheet over me and my lower legs sticking out, then some time > during > the night pull the bedspread on and bring my feet in. My thermostat is > all > messed up! > > Both the heat and the cold affect me -- the cold makes my muscles stiffen > up, and heat just drains energy from me. > > Barbara H. >
Re: [TMIC] weather and TM
In a message dated 3/18/2006 7:35:39 A.M. Hawaiian Standard Time, [EMAIL PROTECTED] writes: Weird too is the fact that sometimes I am cold when going to bed even after a hot shower but then am up in the middle of the night shedding warm nightwear for a light cotton nightie. What is with all that??? Drives me nuts. I can also wear a fleece sweatshirt first thing in the morning and then a short sleeve t-shirt in mid-day and back to warm wear in the evening. And this is in the winter. Sheesh. Keeps my laundry going crazy. Like someone said on here before our Thermostats are broken. Heather in Calgary Ditto! It seems I wear 2 or 3 outfits a day, which seems ridiculous to me! Sally
Re: [TMIC] weather and TM
A lot of times, even just watching TV on the couch, I'll take a throw blanket to cover my arms, which are cold, but have to leave it off my feet, which get too hot. Unless its' really, really cold, I start off at bed at night with just a sheet over me and my lower legs sticking out, then some time during the night pull the bedspread on and bring my feet in. My thermostat is all messed up! Both the heat and the cold affect me -- the cold makes my muscles stiffen up, and heat just drains energy from me. Barbara H.
Re: [TMIC] weather and TM
We too use a down comforter from Oct to May. However, even in winter sometimes during the night I end up uncovering as it is too warm. Go figger. Heather in Calgary - Original Message - From: BobbyJim To: Lynn Pouliot ; tmic-list@eskimo.com Sent: Saturday, March 18, 2006 4:46 PM Subject: Re: [TMIC] weather and TM A nice down comforter is all we need here to keep warm under the covers. Utility bills have climbed so much that we keep the thermostat at 61º during the night but under that comforter, it's just fine and toasty. Bobberino From: Lynn Pouliot To: tmic-list@eskimo.com Sent: Saturday, March 18, 2006 10:04 AM Subject: Re: [TMIC] weather and TM The cold never bothered me this much before. Now I have flannel sheets on the bed but have to wrap myself up in a fleece blandet like a mummy under the sheets and often have to put one ot those heat packs on my feet! I can't wait for spring. Lynn in RI From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Friday, March 17, 2006 7:38 PM Subject: Re: [TMIC] weather and TM I agree with you, Bernie, about the weather affecting how we feel. And I live in Hawaii! But we had several weeks of cold, and I wore sweat suits and 2 pair of socks, constantly. I spent two weeks in Long Beach, CA, with my sister, in Feb, and wore TWO sweat suits to bed, with THREE pairs of socks! So I really empathize with you folks who live in really cold weather! (You have to realize, tho, that all we can do when the cold weather hits us in Hawaii, is to close the windows. We don't have heaters or fireplaces. And when you live here, your blood thins out. I won't tell you the weather in degrees, though, as I'm sure I wouldn't get any sympathy at all! :) I have at times not gone places that I really wanted to go, because I couldn't bear the air conditioning on my feet and legs. Sally No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.375 / Virus Database: 268.2.2/280 - Release Date: 3/13/2006
Re: [TMIC] weather and TM
A nice down comforter is all we need here to keep warm under the covers. Utility bills have climbed so much that we keep the thermostat at 61º during the night but under that comforter, it's just fine and toasty. Bobberino From: Lynn Pouliot To: tmic-list@eskimo.com Sent: Saturday, March 18, 2006 10:04 AM Subject: Re: [TMIC] weather and TM The cold never bothered me this much before. Now I have flannel sheets on the bed but have to wrap myself up in a fleece blandet like a mummy under the sheets and often have to put one ot those heat packs on my feet! I can't wait for spring. Lynn in RI From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Friday, March 17, 2006 7:38 PM Subject: Re: [TMIC] weather and TM I agree with you, Bernie, about the weather affecting how we feel. And I live in Hawaii! But we had several weeks of cold, and I wore sweat suits and 2 pair of socks, constantly. I spent two weeks in Long Beach, CA, with my sister, in Feb, and wore TWO sweat suits to bed, with THREE pairs of socks! So I really empathize with you folks who live in really cold weather! (You have to realize, tho, that all we can do when the cold weather hits us in Hawaii, is to close the windows. We don't have heaters or fireplaces. And when you live here, your blood thins out. I won't tell you the weather in degrees, though, as I'm sure I wouldn't get any sympathy at all! :) I have at times not gone places that I really wanted to go, because I couldn't bear the air conditioning on my feet and legs. Sally
Re: [TMIC] weather and TM
Heather, you sound like me. My hubby says my thermostat is royally f---ed-up. He can always make me laugh. Diane in Canada Heather & Pieter wrote: Weird too is the fact that sometimes I am cold when going to bed even after a hot shower but then am up in the middle of the night shedding warm nightwear for a light cotton nightie. What is with all that??? Drives me nuts. I can also wear a fleece sweatshirt first thing in the morning and then a short sleeve t-shirt in mid-day and back to warm wear in the evening. And this is in the winter. Sheesh. Keeps my laundry going crazy. Like someone said on here before our Thermostats are broken. Heather in Calgary
Re: [TMIC] weather and TM
I do the same thing...I wear my sweats and nighshirt and socks to bed, sometimes with a heating pad to warm my feet and right calf., then eventually, I shed them, all, (cept the night shirt hehe), and feel almost too warm...I even turn my fan on...tho I do have a heated water bed :PHeather & Pieter <[EMAIL PROTECTED]> wrote: Weird too is the fact that sometimes I am cold when going to bed even after a hot shower but then am up in the middle of the night shedding warm nightwear for a light cotton nightie. What is with all that??? Drives me nuts. I can also wear a fleece sweatshirt first thing in the morning and then a short sleeve t-shirt in mid-day and back! to warm wear in the evening. And this is in the winter. Sheesh. Keeps my laundry going crazy. Like someone said on here before our Thermostats are broken. Yahoo! Mail Use Photomail to share photos without annoying attachments.
Re: [TMIC] weather and TM
Weird too is the fact that sometimes I am cold when going to bed even after a hot shower but then am up in the middle of the night shedding warm nightwear for a light cotton nightie. What is with all that??? Drives me nuts. I can also wear a fleece sweatshirt first thing in the morning and then a short sleeve t-shirt in mid-day and back to warm wear in the evening. And this is in the winter. Sheesh. Keeps my laundry going crazy. Like someone said on here before our Thermostats are broken. Heather in Calgary - Original Message - From: Lynn Pouliot To: tmic-list@eskimo.com Sent: Saturday, March 18, 2006 9:04 AM Subject: Re: [TMIC] weather and TM The cold never bothered me this much before. Now I have flannel sheets on the bed but have to wrap myself up in a fleece blandet like a mummy under the sheets and often have to put one ot those heat packs on my feet! I can't wait for spring. Lynn in RI - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Friday, March 17, 2006 7:38 PM Subject: Re: [TMIC] weather and TM I agree with you, Bernie, about the weather affecting how we feel. And I live in Hawaii! But we had several weeks of cold, and I wore sweat suits and 2 pair of socks, constantly. I spent two weeks in Long Beach, CA, with my sister, in Feb, and wore TWO sweat suits to bed, with THREE pairs of socks! So I really empathize with you folks who live in really cold weather! (You have to realize, tho, that all we can do when the cold weather hits us in Hawaii, is to close the windows. We don't have heaters or fireplaces. And when you live here, your blood thins out. I won't tell you the weather in degrees, though, as I'm sure I wouldn't get any sympathy at all! :) I have at times not gone places that I really wanted to go, because I couldn't bear the air conditioning on my feet and legs. Sally No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.375 / Virus Database: 268.2.2/280 - Release Date: 3/13/2006
Re: [TMIC] weather and TM
The cold never bothered me this much before. Now I have flannel sheets on the bed but have to wrap myself up in a fleece blandet like a mummy under the sheets and often have to put one ot those heat packs on my feet! I can't wait for spring. Lynn in RI - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Friday, March 17, 2006 7:38 PM Subject: Re: [TMIC] weather and TM I agree with you, Bernie, about the weather affecting how we feel. And I live in Hawaii! But we had several weeks of cold, and I wore sweat suits and 2 pair of socks, constantly. I spent two weeks in Long Beach, CA, with my sister, in Feb, and wore TWO sweat suits to bed, with THREE pairs of socks! So I really empathize with you folks who live in really cold weather! (You have to realize, tho, that all we can do when the cold weather hits us in Hawaii, is to close the windows. We don't have heaters or fireplaces. And when you live here, your blood thins out. I won't tell you the weather in degrees, though, as I'm sure I wouldn't get any sympathy at all! :) I have at times not gone places that I really wanted to go, because I couldn't bear the air conditioning on my feet and legs. Sally
Re: [TMIC] weather and TM
makes sense to me :)[EMAIL PROTECTED] wrote: I just replied to Bernie's email, but remembered when I read this one, that I didn't even say what I meant too. :) I read in a book about MS (that was recommended for TMers, too) that we are so much more sensitive to hot and cold, b/c some of the myelin, which is actually the insulation to the nerve, is missing/damaged, so it only makes sense that we would be more sensitive (unfortunately!) Sally Yahoo! Travel Find great deals to the top 10 hottest destinations!
Re: [TMIC] weather and TM
I just replied to Bernie's email, but remembered when I read this one, that I didn't even say what I meant too. :) I read in a book about MS (that was recommended for TMers, too) that we are so much more sensitive to hot and cold, b/c some of the myelin, which is actually the insulation to the nerve, is missing/damaged, so it only makes sense that we would be more sensitive (unfortunately!) Sally
Fw: [TMIC] weather and TM
: [TMIC] weather and TM Cold weather is the worst for me to deal with. Although our Penna summers can get very hot with high humidity, I seem to be able to deal with them a lot better than with late fall and winter. We had one 70 degreee day already and I was thrilled---sat outside and enjoyed the fresh air. Then the temps dropped down into the thirties again and I was back to square one---shivering, stiff and uncomfortable. Right now my house is at a reasonable temperature, but I am sitting here all bundled up in my sweats and warm socks. Also, my daughter brought my mattress downstairs so that I would be warmer. Oh well, it's kind of like being on a Girl Scout Campout. Grace
Re: [TMIC] weather and TM
I agree with you, Bernie, about the weather affecting how we feel. And I live in Hawaii! But we had several weeks of cold, and I wore sweat suits and 2 pair of socks, constantly. I spent two weeks in Long Beach, CA, with my sister, in Feb, and wore TWO sweat suits to bed, with THREE pairs of socks! So I really empathize with you folks who live in really cold weather! (You have to realize, tho, that all we can do when the cold weather hits us in Hawaii, is to close the windows. We don't have heaters or fireplaces. And when you live here, your blood thins out. I won't tell you the weather in degrees, though, as I'm sure I wouldn't get any sympathy at all! :) I have at times not gone places that I really wanted to go, because I couldn't bear the air conditioning on my feet and legs. Sally
Re: [TMIC] weather and TM
The cold makes me seize up. Those really cold
days I just turn on the fireplace and my heating pad and stay put.
Thankfully it has not been too miserable here in Alberta this winter. I
feel like the Tin Man from the Wizard of Oz who needs the oil can when it gets
cold out. The legs just come to a complete halt.
However, today is not that cold and I can barely
move. It was so hard to get out of bed this morning. Mornings are so
bad when I first way up I hate to try and move as everything is so stiff.
Takes so long to get mobile.
Heather in Calgary
- Original Message -
From:
Jan
Hargrove
To: Rod, Karyne & Tyler Jenke ; Bernie ; tmic-list
Sent: Friday, March 17, 2006 8:10
AM
Subject: RE: [TMIC] weather and TM
The only thing my neuro told me wouldn't
come back was my temperature control..and, yes weather plays a big part in
how I feel!!
With the cold, I'm barely functional and NOT good company at all! With
the heat, we can sweat only above our point of tm (t8)thus makes
heat
stroke big possibility if we'reout too long in Oklahoma 90-100º
summers!
I remember when I first was on the list, there was a gentleman in
Arizona
who had only one side of his face that had not been paralyzed, and he
could
go out in summer and sit under tree for five minutes only, but loved the
heat
so much that he did that every day he possibly could
janh Stillwater, OK"Rod, Karyne & Tyler Jenke"
<[EMAIL PROTECTED]> wrote:
Me
too Bernie,
We
watch the weather like hawks if we have something big coming up cause if
there is a low it will play havoc with everything. The reason that we cant
regulate our temperature is because our internal thermostats are dicky
(think of all the damage that has happened to our spinal cords) and there is
not a lot we can do about it!
In
it with you,
Love
Karyne
T8/9
Para.
Oct.92
From: Bernie
[mailto:[EMAIL PROTECTED] Sent: Friday, 17 March 2006 3:15
PMTo: TMICSubject: [TMIC] weather and
TM
With
my now 16 years of experience of TM, I will attest to the fact that weather
plays a very important role in how we feel, and how our bodies react to
different weather stimulus. Most docs say that this is a bunch of bunko, but
my pain management doc agrees with me. Weather affects many types of pain,
but especially neuropathic! I can tell a day in advance when a storm is
coming! The best I have found to do when it is cold
is to dress appropriately. Wear surgical stockings on the legs first, then
add long johns, and if needed sweat pants. If the feet get really cold, it
will cause many different types of reactions to the normal part of the body
to let it know the feet are cold. So I got some battery operated heating
socks! Work like a charm but don't have to use them to often here in
Texas.
The weather I have
the problem with is the heat. It is easy to keep warm by dressing
properly. But in the heat of the summer I cannot go out at all during the
day. For whatever reason I cannot regulate the ability to cool myself off. I
tried umbrellas to block the sun, fans, mist bottles, wearing as few clothes
as possible; nothing worked. So now I d! on't go out until after sundown in
the summer. Which is why fall and spring are my favorite times of the
year.Peace,Bernie
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Release Date: 16/03/2006
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by AVG Free Edition.Version: 7.1.385 / Virus Database: 268.2.4/283 -
Release Date: 16/03/2006
No virus found in this incoming message.Checked by AVG Free
Edition.Version: 7.1.375 / Virus Database: 268.2.2/280 - Release Date:
3/13/2006
RE: [TMIC] weather and TM
The only thing my neuro told me wouldn't come back was my temperature control..and, yes weather plays a big part in how I feel!! With the cold, I'm barely functional and NOT good company at all! With the heat, we can sweat only above our point of tm (t8)thus makes heat stroke big possibility if we'reout too long in Oklahoma 90-100º summers! I remember when I first was on the list, there was a gentleman in Arizona who had only one side of his face that had not been paralyzed, and he could go out in summer and sit under tree for five minutes only, but loved the heat so much that he did that every day he possibly could janh Stillwater, OK"Rod, Karyne & Tyler Jenke" <[EMAIL PROTECTED]> wrote:Me too Bernie, We watch the weather like hawks if we have something big coming up cause if there is a low it will play havoc with everything. The reason that we cant regulate our temperature is because our internal thermostats are dicky (think of all the damage that has happened to our spinal cords) and there is not a lot we can do about it! In it with you, Love Karyne T8/9 Para. Oct.92 From: Bernie [mailto:[EMAIL PROTECTED] Sent: Friday, 17 March 2006 3:15 PMTo: TMICSubject: [TMIC] weather and TM With my now 16 years of experience of TM, I will attest to the fact that weather plays a very important role in how we feel, and how our bodies react to different weather stimulus. Most docs say that this is a bunch of bunko, but my pain management doc agrees with me. Weather affects many types of pain, but especially neuropathic! I can tell a day in advance when a storm is coming! The best I have found to do when it is cold is to dress appropriately. Wear surgical stockings on the legs first, then add long johns, and if needed sweat pants. If the feet get really cold, it will cause many different types of reactions to the normal part of the body to let it know the feet are cold. So I got some battery operated heating socks! Work like a charm but don't have to use them to often here in Texas. The weather I have the problem with is the heat. It is easy to keep warm by dressing properly. But in the heat of the summer I cannot go out at all during the day. For whatever reason I cannot regulate the ability to cool myself off. I tried umbrellas to block the sun, fans, mist bottles, wearing as few clothes as possible; nothing worked. So now I d! on't go out until after sundown in the summer. Which is why fall and spring are my favorite times of the year.Peace,Bernie --No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.385 / Virus Database: 268.2.4/283 - Release Date: 16/03/2006 --No virus found in this outgoing message.Checked by AVG Free Edition.Version: 7.1.385 / Virus Database: 268.2.4/283 - Release Date: 16/03/2006
RE: [TMIC] weather and TM
Me too Bernie, We watch the weather like hawks if we have something big coming up ‘cause if there is a low it will play havoc with everything. The reason that we can’t regulate our temperature is because our internal thermostats are dicky (think of all the damage that has happened to our spinal cords) and there is not a lot we can do about it! In it with you, Love Karyne T8/9 Para. Oct.’92 From: Bernie [mailto:[EMAIL PROTECTED] Sent: Friday, 17 March 2006 3:15 PM To: TMIC Subject: [TMIC] weather and TM With my now 16 years of experience of TM, I will attest to the fact that weather plays a very important role in how we feel, and how our bodies react to different weather stimulus. Most docs say that this is a bunch of bunko, but my pain management doc agrees with me. Weather affects many types of pain, but especially neuropathic! I can tell a day in advance when a storm is coming! The best I have found to do when it is cold is to dress appropriately. Wear surgical stockings on the legs first, then add long johns, and if needed sweat pants. If the feet get really cold, it will cause many different types of reactions to the normal part of the body to let it know the feet are cold. So I got some battery operated heating socks! Work like a charm but don't have to use them to often here in Texas. The weather I have the problem with is the heat. It is easy to keep warm by dressing properly. But in the heat of the summer I cannot go out at all during the day. For whatever reason I cannot regulate the ability to cool myself off. I tried umbrellas to block the sun, fans, mist bottles, wearing as few clothes as possible; nothing worked. So now I don't go out until after sundown in the summer. Which is why fall and spring are my favorite times of the year. Peace, Bernie -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.385 / Virus Database: 268.2.4/283 - Release Date: 16/03/2006 -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.385 / Virus Database: 268.2.4/283 - Release Date: 16/03/2006
[TMIC] weather and TM
With my now 16 years of experience of TM, I will attest to the fact that weather plays a very important role in how we feel, and how our bodies react to different weather stimulus. Most docs say that this is a bunch of bunko, but my pain management doc agrees with me. Weather affects many types of pain, but especially neuropathic! I can tell a day in advance when a storm is coming! The best I have found to do when it is cold is to dress appropriately. Wear surgical stockings on the legs first, then add long johns, and if needed sweat pants. If the feet get really cold, it will cause many different types of reactions to the normal part of the body to let it know the feet are cold. So I got some battery operated heating socks! Work like a charm but don't have to use them to often here in Texas. The weather I have the problem with is the heat. It is easy to keep warm by dressing properly. But in the heat of the summer I cannot go out at all during the day. For whatever reason I cannot regulate the ability to cool myself off. I tried umbrellas to block the sun, fans, mist bottles, wearing as few clothes as possible; nothing worked. So now I don't go out until after sundown in the summer. Which is why fall and spring are my favorite times of the year. Peace, Bernie
