Re: [TMIC] Children
Jeron, Thank you so much for your help, especially under the circumstances you were in. Sure hope you end up feeling MUCH better soon. Keep us informed on how things are going for you. Janice From: j ra Sent: Tuesday, March 23, 2010 3:14 AM To: jan...@centurytel.net ; pieterheat...@shaw.ca ; Transverse Myelytis Subject: RE: [TMIC] Children Hey all, Firstly, I'm in the hospital again for more treatments (severe back pain due to herniated discs and dragging right leg, pins and needles etc). I asked Prof. Ivan about the connection and he disagrees based on many things he started to explain that I may have been too drugged up to understand. So, I asked him for medical journals on said topic and he reckons he has got some. I will get back to you on this. Also, stem cell research is still probably the only help for TMers with chronic pain and disabilities directly attributed to TM and MS. my 2 cents at 4 am at Clinica Sao Vincente Gavea, Rio de Janeiro, Brasil Jeron From: jan...@centurytel.net To: pieterheat...@shaw.ca; tmic-list@eskimo.com Subject: Re: [TMIC] Children Date: Mon, 22 Mar 2010 22:30:22 -0500 Jeepers! You do have a lot of autoimmune illnesses in your family.Kind of scary. I really don't understand insurance companies. They would be really happy if they only had to insure very healthy people that have no accidents of any kind.What a crock. Janice From: Pieter and Heather Sent: Sunday, March 21, 2010 12:57 PM To: Janice Nichols ; tmic-list@eskimo.com Subject: Re: [TMIC] Children Janice, I'm not sure about TM being passed on. However, there are a lot of autoimmune illnesses in my immediate family. I'm eldest of 3 girls (I'm going on 65). My father had rheumtoild arthritis. My sister 3 yrs younger has MS (was diagnosed in 1991 but figures she had it much longer) My sister 7 yrs younger was diagnosed with Ulcerative Colitis at age 19 and had large bowel and rectum removed then. My daughter has none of the above. However, this past year she signed up for extra medical insurance coverage and was denied MS coverage should she get it in the future. She had to include on her application any illnesses in her immediate family, mother, father, sibling. She had to declare that I have TM. So that tells me that insurance companies anyway figure there could be a connection. Heather in Calgary - Original Message - From: Janice Nichols To: tmic-list@eskimo.com Sent: Sunday, March 21, 2010 6:29 AM Subject: [TMIC] Children Good Morning. It is the first day of SPRING! I have a question for you "smarter than me" TM'ers. In the future, do we have any information on chances for our children ending up with TM also? Janice Your E-mail and More On-the-Go. Get Windows Live Hotmail Free. Sign up now.
RE: [TMIC] Children
Hey all, Firstly, I'm in the hospital again for more treatments (severe back pain due to herniated discs and dragging right leg, pins and needles etc). I asked Prof. Ivan about the connection and he disagrees based on many things he started to explain that I may have been too drugged up to understand. So, I asked him for medical journals on said topic and he reckons he has got some. I will get back to you on this. Also, stem cell research is still probably the only help for TMers with chronic pain and disabilities directly attributed to TM and MS. my 2 cents at 4 am at Clinica Sao Vincente Gavea, Rio de Janeiro, Brasil Jeron From: jan...@centurytel.net To: pieterheat...@shaw.ca; tmic-list@eskimo.com Subject: Re: [TMIC] Children Date: Mon, 22 Mar 2010 22:30:22 -0500 Jeepers! You do have a lot of autoimmune illnesses in your family.Kind of scary. I really don't understand insurance companies. They would be really happy if they only had to insure very healthy people that have no accidents of any kind.What a crock. Janice From: Pieter and Heather Sent: Sunday, March 21, 2010 12:57 PM To: Janice Nichols ; tmic-list@eskimo.com Subject: Re: [TMIC] Children Janice, I'm not sure about TM being passed on. However, there are a lot of autoimmune illnesses in my immediate family. I'm eldest of 3 girls (I'm going on 65). My father had rheumtoild arthritis. My sister 3 yrs younger has MS (was diagnosed in 1991 but figures she had it much longer) My sister 7 yrs younger was diagnosed with Ulcerative Colitis at age 19 and had large bowel and rectum removed then. My daughter has none of the above. However, this past year she signed up for extra medical insurance coverage and was denied MS coverage should she get it in the future. She had to include on her application any illnesses in her immediate family, mother, father, sibling. She had to declare that I have TM. So that tells me that insurance companies anyway figure there could be a connection. Heather in Calgary - Original Message - From: Janice Nichols To: tmic-list@eskimo.com Sent: Sunday, March 21, 2010 6:29 AM Subject: [TMIC] Children Good Morning. It is the first day of SPRING! I have a question for you "smarter than me" TM'ers. In the future, do we have any information on chances for our children ending up with TM also? Janice _ Your E-mail and More On-the-Go. Get Windows Live Hotmail Free. https://signup.live.com/signup.aspx?id=60969
Re: [TMIC] Children
Jeepers! You do have a lot of autoimmune illnesses in your family.Kind of scary. I really don't understand insurance companies. They would be really happy if they only had to insure very healthy people that have no accidents of any kind.What a crock. Janice From: Pieter and Heather Sent: Sunday, March 21, 2010 12:57 PM To: Janice Nichols ; tmic-list@eskimo.com Subject: Re: [TMIC] Children Janice, I'm not sure about TM being passed on. However, there are a lot of autoimmune illnesses in my immediate family. I'm eldest of 3 girls (I'm going on 65). My father had rheumtoild arthritis. My sister 3 yrs younger has MS (was diagnosed in 1991 but figures she had it much longer) My sister 7 yrs younger was diagnosed with Ulcerative Colitis at age 19 and had large bowel and rectum removed then. My daughter has none of the above. However, this past year she signed up for extra medical insurance coverage and was denied MS coverage should she get it in the future. She had to include on her application any illnesses in her immediate family, mother, father, sibling. She had to declare that I have TM. So that tells me that insurance companies anyway figure there could be a connection. Heather in Calgary - Original Message - From: Janice Nichols To: tmic-list@eskimo.com Sent: Sunday, March 21, 2010 6:29 AM Subject: [TMIC] Children Good Morning. It is the first day of SPRING! I have a question for you "smarter than me" TM'ers. In the future, do we have any information on chances for our children ending up with TM also? Janice
Re: [TMIC] Children
Janice, I'm not sure about TM being passed on. However, there are a lot of autoimmune illnesses in my immediate family. I'm eldest of 3 girls (I'm going on 65). My father had rheumtoild arthritis. My sister 3 yrs younger has MS (was diagnosed in 1991 but figures she had it much longer) My sister 7 yrs younger was diagnosed with Ulcerative Colitis at age 19 and had large bowel and rectum removed then. My daughter has none of the above. However, this past year she signed up for extra medical insurance coverage and was denied MS coverage should she get it in the future. She had to include on her application any illnesses in her immediate family, mother, father, sibling. She had to declare that I have TM. So that tells me that insurance companies anyway figure there could be a connection. Heather in Calgary - Original Message - From: Janice Nichols To: tmic-list@eskimo.com Sent: Sunday, March 21, 2010 6:29 AM Subject: [TMIC] Children Good Morning. It is the first day of SPRING! I have a question for you "smarter than me" TM'ers. In the future, do we have any information on chances for our children ending up with TM also? Janice
Re: [TMIC] Children
I'm going to chime in here even though I'm not a medical professional. TM is probably not directly hereditary but whatever genes predict the autoimmune system will be passed on - just like the genes for cancer, poor eye sight, etc. My paternal grandmother had digestive problems, I too have had these, the only one of 4 kids to have these. My maternal great-grandfather and my paternal grandfather had mental problems, which what would probably be called Schizophrenia which my sister was dx'd with. My brother died of cancer, my maternal granfather died of cancer. Just as any thing in life, our ancestry and enviroment can't be predicted. That's why the study and research in genetics is so important along with cleaning up our enviroment. Just my thoughts. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: "Janet Dunn" To: tmic-list@eskimo.com Sent: Sunday, March 21, 2010 10:09:39 AM GMT -05:00 US/Canada Eastern Subject: FW: [TMIC] Children Ok, Janice, first day of spring or not, it is freakin cold here this morning. Minus eleven, with the wind-chill bringing it to -23C. And it is windy! An inside day for me for sure, I had planned on going fishing – yesterday it was beautiful and warm. So today with the cold, my legs are yelling at me. As for the familial thing: I was told no, it is not familial. However, my 15 year old son has extreme difficulties with his legs, the pain, etc. They have ruled out everything – the good and the bad – but he still has the same kind of pain that I do. He has a small spot on his spine at T2, but of course: “there is no way that can be giving him the symptoms he describes” I am hoping that it is not hereditary, as I have four children. Interestingly enough, when I was diagnosed, the afflicted son was the only one to ask that question! Have a great day. Janet From: Janice Nichols [mailto:jan...@centurytel.net] Sent: March 21, 2010 5:29 AM To: tmic-list@eskimo.com Subject: [TMIC] Children Good Morning. It is the first day of SPRING! I have a question for you "smarter than me" TM'ers. In the future, do we have any information on chances for our children ending up with TM also? Janice
Re: [TMIC] Children
*I was also told that TM itself is not familial. The verdict is still ouit on NMO. (Which I have.)* ** *Gracie*
RE: [TMIC] Children
Janice I never received anything definite, but when I asked my Neuro he said there is no reason to believe it is passed on. It is just one of those things, that I consider "the luck of the draw". However, he did say they should mention it to their primary care physician just so it is in their health records in case they ever show any of the funny symptoms that come with TM. Each of us had different symptoms to being with. Hope this helps a little. Yes it is Spring here at last. It has been a long and terrible winter. We should have sunshine and almost 50 today and warmer during the week. Let's hope it lasts. Patti - Wisconsin From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Sunday, March 21, 2010 7:29 AM To: tmic-list@eskimo.com Subject: [TMIC] Children Good Morning. It is the first day of SPRING! I have a question for you "smarter than me" TM'ers. In the future, do we have any information on chances for our children ending up with TM also? Janice
Re: [TMIC] Children
I was told it was not familial. My son has Crohn's and one of his meds lists TM as a possible side effect. Needless to say, I freaked and discussed this with Dr. Kerr and was told it was nothing to worry about. Lori From: Janice Nichols Sent: Sunday, March 21, 2010 8:29 AM To: tmic-list@eskimo.com Subject: [TMIC] Children Good Morning. It is the first day of SPRING! I have a question for you "smarter than me" TM'ers. In the future, do we have any information on chances for our children ending up with TM also? Janice
Re: [TMIC] Children with TM (was Needing help...)
What a wonderful group we have here on TMIC!! j ---Original Message--- From: kimr1...@bellsouth.net Date: 1/14/2009 1:18:19 PM To: jharpe...@aol.com; tmic-list@eskimo.com Subject: Re: [TMIC] Children with TM (was Needing help...) The Transverse Myelitis Network try this link http://transversemyelitis.ning.com/?xgsi=1 -- Original message from jharpe...@aol.com: -- There is a little girl named Rachel with TM whose mom used to be on here. Her brothers started a Reading For Rachel program. the web site is here which includes a video of Rachel:http://www.readingforrachel.org/ She's 9 years old now and contracted TM when she was less than a year. There is a family camp coming up in August for children with TM: http://www.myelitis.org/forum/viewtopic.php?f=106&t=3294 The TM Message forums have one forum for children with TM and another for teens with TM: http://www.myelitis.org/forum/ There is a little boy named Cole whose parents, I believe, are Neil and Wendy (hope I have that right!) Maybe they'll see this. In fact, I think I ll change the subject to Children with TM so that hopefully they will. Photos of him are here: http://www.myelitis.org/gallery/thumbnails php?album=search&type=full&search=Cole Hope that helps! Barbara H. http://barbarah.wordpress.com/ In a message dated 1/14/2009 1:43:57 P.M. Eastern Standard Time, wolft...@optonline.net writes: Cody Unser is an inspirational young woman who was struck with TM in her teens. Here is her website: http://www.cufsf.org/content asp?CustComKey=346548&CategoryKey=350032&pn=Page&DomName=cufsf.org Also, Netta Ganor is on the TMIC, and is a wonderful young woman with TM. I don't have her address, but I'm sure someone will. Kevin jrushton wrote: > Hi, everyone, I recently found out about a little girl in the third > grade that is really having a tough time with her TM and needs to find > some other children or even someone that might have been stricken with > TM when they were young and are older now. I am getting the details > to see how she can 'chat' with someone but this is my first step. > Sure hope someone can help her.. Jeanne in Dayton > > > A Good Credit Score is 700 or Above. See yours in just 2 easy steps!
Re: [TMIC] Children with TM (was Needing help...)
The Transverse Myelitis Network try this link http://transversemyelitis.ning.com/?xgsi=1 -- Original message from jharpe...@aol.com: -- There is a little girl named Rachel with TM whose mom used to be on here. Her brothers started a Reading For Rachel program. the web site is here which includes a video of Rachel:http://www.readingforrachel.org/ She's 9 years old now and contracted TM when she was less than a year. There is a family camp coming up in August for children with TM: http://www.myelitis.org/forum/viewtopic.php?f=106&t=3294 The TM Message forums have one forum for children with TM and another for teens with TM: http://www.myelitis.org/forum/ There is a little boy named Cole whose parents, I believe, are Neil and Wendy (hope I have that right!) Maybe they'll see this. In fact, I think I'll change the subject to Children with TM so that hopefully they will. Photos of him are here: http://www.myelitis.org/gallery/thumbnails.php?album=search&type=full&search=Cole Hope that helps! Barbara H. http://barbarah.wordpress.com/ In a message dated 1/14/2009 1:43:57 P.M. Eastern Standard Time, wolft...@optonline.net writes: Cody Unser is an inspirational young woman who was struck with TMin her teens.Here is her website: http://www.cufsf.org/content.asp?CustComKey=346548&CategoryKey=350032&pn=Page&DomName=cufsf.orgAlso, Netta Ganor is on the TMIC, and is a wonderful young woman with TM. I don't have her address, but I'm sure someone will.Kevinjrushton wrote:> Hi, everyone, I recently found out about a little girl in the third > grade that is really having a tough time with her TM and needs to find > some other children or even someone that might have been stricken with > TM when they were young and are older now. I am getting the details > to see how she can 'chat' with someone but this is my first step. > Sure hope someone can help her.. Jeanne in Dayton>> > A Good Credit Score is 700 or Above. See yours in just 2 easy steps!
Re: [TMIC] Children with TM (was Needing help...)
There is a little girl named Rachel with TM whose mom used to be on here. Her brothers started a Reading For Rachel program. the web site is here which includes a video of Rachel:_http://www.readingforrachel.org/_ (http://www.readingforrachel.org/) She's 9 years old now and contracted TM when she was less than a year. There is a family camp coming up in August for children with TM: _http://www.myelitis.org/forum/viewtopic.php?f=106&t=3294_ (http://www.myelitis.org/forum/viewtopic.php?f=106&t=3294) The TM Message forums have one forum for children with TM and another for teens with TM: _http://www.myelitis.org/forum/_ (http://www.myelitis.org/forum/) There is a little boy named Cole whose parents, I believe, are Neil and Wendy (hope I have that right!) Maybe they'll see this. In fact, I think I'll change the subject to Children with TM so that hopefully they will. Photos of him are here: _http://www.myelitis.org/gallery/thumbnails.php?album=search&type=full&search= Cole_ (http://www.myelitis.org/gallery/thumbnails.php?album=search&type=full&search=Cole) Hope that helps! Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 1/14/2009 1:43:57 P.M. Eastern Standard Time, wolft...@optonline.net writes: Cody Unser is an inspirational young woman who was struck with TM in her teens. Here is her website: http://www.cufsf.org/content.asp?CustComKey=346548&CategoryKey=350032&pn=Page&; DomName=cufsf.org Also, Netta Ganor is on the TMIC, and is a wonderful young woman with TM. I don't have her address, but I'm sure someone will. Kevin jrushton wrote: > Hi, everyone, I recently found out about a little girl in the third > grade that is really having a tough time with her TM and needs to find > some other children or even someone that might have been stricken with > TM when they were young and are older now. I am getting the details > to see how she can 'chat' with someone but this is my first step. > Sure hope someone can help her.. Jeanne in Dayton > > > **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/10075x1215855013x1201028747/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62)