Re: [TMIC] That banding feeling
Connie, I take 10mg Baclofen 3 times daily and 100mg Lyrica approx every 8 hours. I think the Baclofen helps the most with the banding and know I would be bed- ridden without it. I've been on Baclofen for five years and on this dose for the last three. Patti - Michigan connie markovich wrote: > I didn't know there were meds that could lessen the tight banding feeling > and would love to hear feedback on what meds work and of any side-effects > from them. Never heard of Tegretol before but will look into it. > > Thanks! > > On Mon, Aug 17, 2009 at 5:09 PM, wrote: > > > *Hi Jeanne,* > > ** > > *The banding has been exactly the same for me. It has been with me since > > day one and starts underneath my breasts and goes all the way around my > > abdomen. When it gets real bad, it continues downward until I feel > > completely enveloped by it. Sometimes it hurts so badly it hurts to even > > breathe.* > > ** > > *I don't let TM or anything get me down, but I am beginning to feel angry, > > after seven years. I am pissed because I cannot work in the garden and go > > places without it being a big deal to get dressed, fix my hair and sometimes > > put on make up so the pain doesn't show so badly. I was told that I looked > > old when I am in pain...by a sweet 14 year old boy. "Thank you very much". > > * > > ** > > *For the constipation problem, for years I have used Fish Oil capsules, > > one per day and I get them from the health food store or my pharmacy. They > > work like a dream. And I have the kind of bowel that moves the poop down to > > "the vault", but will not push it out, so I have done digital removable for > > ever and ever. It's not fun, but we need to do what we need to do...* > > ** > > *Love and Prayers,* > > *Jude* > > > > In a message dated 8/11/2009 1:09:43 P.M. Eastern Daylight Time, > > jrush...@columbiaenergyllc.com writes: > > > > The banding came on immediately with the TM and has never left. > > Without the meds, it is excruciatingly painful and just heads south to my > > toes. Funny how you can hurt so bad and 'not feel'??? Explain that to > > someone?? ::)) Gosh, I'm so happy you all are in my life..Jeanne > > > > *---Original Message---* > > > > *From:* laura.eich...@gmail.com > > *Date:* 8/10/2009 10:56:05 PM > > *To:* tmic-list@eskimo.com > > *Subject:* [TMIC] That banding feeling > > > > Those of you who got that banding feeling do you all just have TM or did > > you also get subsequently diagnosed with MS too? And if you did experience > > the banding feeling, did you experience it at the beginning of your TM (or > > MS) journey or somewhere down the road? :-) > > Just wondering if TM'ers get the banding feeling or is it only those that > > get MS too. I had it at the start of my TM but it went away after a month or > > two. I had a very mild case of TM and as of yet not diagnosed with MS. > > Thanks! > > > > -- > > Laura > > > > > > > > > > -- > >
Re: [TMIC] That banding feeling
I didn't know there were meds that could lessen the tight banding feeling and would love to hear feedback on what meds work and of any side-effects from them. Never heard of Tegretol before but will look into it. Thanks! On Mon, Aug 17, 2009 at 5:09 PM, wrote: > *Hi Jeanne,* > ** > *The banding has been exactly the same for me. It has been with me since > day one and starts underneath my breasts and goes all the way around my > abdomen. When it gets real bad, it continues downward until I feel > completely enveloped by it. Sometimes it hurts so badly it hurts to even > breathe.* > ** > *I don't let TM or anything get me down, but I am beginning to feel angry, > after seven years. I am pissed because I cannot work in the garden and go > places without it being a big deal to get dressed, fix my hair and sometimes > put on make up so the pain doesn't show so badly. I was told that I looked > old when I am in pain...by a sweet 14 year old boy. "Thank you very much". > * > ** > *For the constipation problem, for years I have used Fish Oil capsules, > one per day and I get them from the health food store or my pharmacy. They > work like a dream. And I have the kind of bowel that moves the poop down to > "the vault", but will not push it out, so I have done digital removable for > ever and ever. It's not fun, but we need to do what we need to do...* > ** > *Love and Prayers,* > *Jude* > > In a message dated 8/11/2009 1:09:43 P.M. Eastern Daylight Time, > jrush...@columbiaenergyllc.com writes: > > The banding came on immediately with the TM and has never left. > Without the meds, it is excruciatingly painful and just heads south to my > toes. Funny how you can hurt so bad and 'not feel'??? Explain that to > someone?? ::)) Gosh, I'm so happy you all are in my life..Jeanne > > *---Original Message---* > > *From:* laura.eich...@gmail.com > *Date:* 8/10/2009 10:56:05 PM > *To:* tmic-list@eskimo.com > *Subject:* [TMIC] That banding feeling > > Those of you who got that banding feeling do you all just have TM or did > you also get subsequently diagnosed with MS too? And if you did experience > the banding feeling, did you experience it at the beginning of your TM (or > MS) journey or somewhere down the road? :-) > Just wondering if TM'ers get the banding feeling or is it only those that > get MS too. I had it at the start of my TM but it went away after a month or > two. I had a very mild case of TM and as of yet not diagnosed with MS. > Thanks! > > -- > Laura > > > > > -- > <<01_side.gif>>
Re: [TMIC] That banding feeling
Have you talked to your doc yet about this?I fullly understand asking the TM'ers first - they know more about it. But surely your doc can come up with a reason for this. If you find out, please let us know, and I hope it never happens again. Janice - Original Message - From: To: "Priscilla Keene" ; "L T CHERPESKI" ; Sent: Tuesday, August 18, 2009 4:48 AM Subject: Re: [TMIC] That banding feeling I too have banding but I also have something else similiar but more painful that happens from time to time and I don't understand it. Lately it has increased. It generally starts in one ankle and the sole of the foot and runs up my leg to my spine. It hurts one time and hurts so bad that I don't even realize that it just happened. I don't know what it is. I had it happen this time last year when I would stand and look down. It would hit my back of the neck and run down to my feet. Then I would feel like I was stranding on an electric grid for a little while. Latelky the souls of my feet have been hurting - soar all the time. I am up right now with pain in souls of both feet. What causes this? Sent from my Verizon Wireless BlackBerry -Original Message- From: Priscilla Keene Date: Mon, 17 Aug 2009 21:05:39 To: L T CHERPESKI; Subject: Re: [TMIC] That banding feeling I, too, have banding, but it has lessened over the 8 years I've had TM. It was extremely painful for the first few years, but now I only have pain below my right breast at night. My hands are paralyzed, and I can't unhook my bra so sometimes I have to sleep with it on, and that really hurts--I try to go to sleep asap! Lyrica helps me a lot with the banding. ~I've got that banding feeling, ohohoh, that banding feeling I've got that banding feeling And it's not gone, gone, gone It's not gone, gone, gone ohohohohoh!~ LOL Have a wonderful day! Priscilla From: L T CHERPESKI To: jrush...@columbiaenergyllc.com; tmic-list@eskimo.com; heyjude48...@aol.com Sent: Monday, August 17, 2009 11:20:58 PM Subject: Re: [TMIC] That banding feeling Hi Jude, It's so good to see you posting. It's been too long and we've missed you. I'm getting pretty sick of this banding too. And I've had the same thing with the breathing. What's up with that?? The first time it happened I was actually a little scared. If I would mind my P's and Q's and not try to do too much in one day, ALL of my aches and pains would be more manageable.well, maybe love, Linda - Original Message - From: heyjude48...@aol.com To: jrush...@columbiaenergyllc.com ; tmic-list@eskimo.com Sent: Monday, August 17, 2009 6:09 PM Subject: Re: [TMIC] That banding feeling Hi Jeanne, The banding has been exactly the same for me. It has been with me since day one and starts underneath my breasts and goes all the way around my abdomen. When it gets real bad, it continues downward until I feel completely enveloped by it. Sometimes it hurts so badly it hurts to even breathe. I don't let TM or anything get me down, but I am beginning to feel angry, after seven years. I am pissed because I cannot work in the garden and go places without it being a big deal to get dressed, fix my hair and sometimes put on make up so the pain doesn't show so badly. I was told that I looked old when I am in pain...by a sweet 14 year old boy. "Thank you very much". For the constipation problem, for years I have used Fish Oil capsules, one per day and I get them from the health food store or my pharmacy. They work like a dream. And I have the kind of bowel that moves the poop down to "the vault", but will not push it out, so I have done digital removable for ever and ever. It's not fun, but we need to do what we need to do... Love and Prayers, Jude In a message dated 8/11/2009 1:09:43 P.M. Eastern Daylight Time, jrush...@columbiaenergyllc.com writes: The banding came on immediately with the TM and has never left. Without the meds, it is excruciatingly painful and just heads south to my toes. Funny how you can hurt so bad and 'not feel'??? Explain that to someone?? ::)) Gosh, I'm so happy you all are in my life..Jeanne ---Original Message--- From: laura.eich...@gmail.com Date: 8/10/2009 10:56:05 PM To: tmic-list@eskimo.com Subject: [TMIC] That banding feeling Those of you who got that banding feeling do you all just have TM or did you also get subsequently diagnosed with MS too? And if you did experience the banding feeling, did you experience it at the beginning of your TM (or MS) journey or somewhere down the road? :-) Just wondering if TM'ers get the banding feeling or is it only those that get MS too. I had it at the start of my TM but it went away after a month or two. I had a very mild case of TM and as of yet not diagnosed with MS. Thanks! -- Laura
Re: [TMIC] That banding feeling
Yeah, it's great, huh! Linda Original Message - From: Janice<mailto:jan...@centurytel.net> To: L T CHERPESKI<mailto:cherp...@msn.com> ; tmic-list@eskimo.com<mailto:tmic-list@eskimo.com> ; Priscilla Keene<mailto:pkeen...@yahoo.com> Sent: Tuesday, August 18, 2009 3:39 PM Subject: Re: [TMIC] That banding feeling The things we learn about each other on this site!!! Janice - Original Message - From: L T CHERPESKI<mailto:cherp...@msn.com> To: tmic-list@eskimo.com<mailto:tmic-list@eskimo.com> ; Priscilla Keene<mailto:pkeen...@yahoo.com> Sent: Tuesday, August 18, 2009 12:07 AM Subject: Re: [TMIC] That banding feeling LOL Priscilla - I'm sitting here singing your new SONG! That's a good one. Umm, you can't unhook your bra - what bra??? I finally stopped wearing one except when I have to leave the house. shhh don't tell anyone just me - Original Message - From: Priscilla Keene<mailto:pkeen...@yahoo.com> To: L T CHERPESKI<mailto:cherp...@msn.com> ; tmic-list@eskimo.com<mailto:tmic-list@eskimo.com> Sent: Monday, August 17, 2009 10:05 PM Subject: Re: [TMIC] That banding feeling I, too, have banding, but it has lessened over the 8 years I've had TM. It was extremely painful for the first few years, but now I only have pain below my right breast at night. My hands are paralyzed, and I can't unhook my bra so sometimes I have to sleep with it on, and that really hurts--I try to go to sleep asap! Lyrica helps me a lot with the banding. ~I've got that banding feeling, ohohoh, that banding feeling I've got that banding feeling And it's not gone, gone, gone It's not gone, gone, gone ohohohohoh!~ LOL Have a wonderful day! Priscilla -- From: L T CHERPESKI To: jrush...@columbiaenergyllc.com; tmic-list@eskimo.com; heyjude48...@aol.com Sent: Monday, August 17, 2009 11:20:58 PM Subject: Re: [TMIC] That banding feeling Hi Jude, It's so good to see you posting. It's been too long and we've missed you. I'm getting pretty sick of this banding too. And I've had the same thing with the breathing. What's up with that?? The first time it happened I was actually a little scared. If I would mind my P's and Q's and not try to do too much in one day, ALL of my aches and pains would be more manageable.well, maybe love, Linda - Original Message - From: heyjude48...@aol.com<mailto:heyjude48...@aol.com> To: jrush...@columbiaenergyllc.com<mailto:jrush...@columbiaenergyllc.com> ; tmic-list@eskimo.com<mailto:tmic-list@eskimo.com> Sent: Monday, August 17, 2009 6:09 PM Subject: Re: [TMIC] That banding feeling Hi Jeanne, The banding has been exactly the same for me. It has been with me since day one and starts underneath my breasts and goes all the way around my abdomen. When it gets real bad, it continues downward until I feel completely enveloped by it. Sometimes it hurts so badly it hurts to even breathe. I don't let TM or anything get me down, but I am beginning to feel angry, after seven years. I am pissed because I cannot work in the garden and go places without it being a big deal to get dressed, fix my hair and sometimes put on make up so the pain doesn't show so badly. I was told that I looked old when I am in pain...by a sweet 14 year old boy. "Thank you very much". For the constipation problem, for years I have used Fish Oil capsules, one per day and I get them from the health food store or my pharmacy. They work like a dream. And I have the kind of bowel that moves the poop down to "the vault", but will not push it out, so I have done digital removable for ever and ever. It's not fun, but we need to do what we need to do... Love and Prayers, Jude In a message dated 8/11/2009 1:09:43 P.M. Eastern Daylight Time, jrush...@columbiaenergyllc.com writes: The banding came on immediately with the TM and has never left. Without the meds, it is excruciatingly painful and just heads south to my toes. Funny how you can hurt so bad and 'not feel'??? Explain that to someone?? ::)) Gosh, I'm so happy you all are in my life..Jeanne ---Original Message--- From: laura.eich...@gmail.com<mailto:laura.eich...@gmail.com> Date: 8/10/2009 10:56:05 PM
Re: [TMIC] That banding feeling
The things we learn about each other on this site!!!
Janice
- Original Message -
From: L T CHERPESKI
To: tmic-list@eskimo.com ; Priscilla Keene
Sent: Tuesday, August 18, 2009 12:07 AM
Subject: Re: [TMIC] That banding feeling
LOL Priscilla - I'm sitting here singing your new SONG! That's a good one.
Umm, you can't unhook your bra - what bra??? I finally stopped wearing one
except when I have to leave the house. shhh don't tell anyone
just me
- Original Message -
From: Priscilla Keene
To: L T CHERPESKI ; tmic-list@eskimo.com
Sent: Monday, August 17, 2009 10:05 PM
Subject: Re: [TMIC] That banding feeling
I, too, have banding, but it has lessened over the 8 years I've had TM. It
was extremely painful for the first few years, but now I only have pain below
my right breast at night. My hands are paralyzed, and I can't unhook my bra so
sometimes I have to sleep with it on, and that really hurts--I try to go to
sleep asap! Lyrica helps me a lot with the banding.
~I've got that banding feeling,
ohohoh, that banding feeling
I've got that banding feeling
And it's not gone, gone, gone
It's not gone, gone, gone ohohohohoh!~
LOL
Have a wonderful day!
Priscilla
From: L T CHERPESKI
To: jrush...@columbiaenergyllc.com; tmic-list@eskimo.com;
heyjude48...@aol.com
Sent: Monday, August 17, 2009 11:20:58 PM
Subject: Re: [TMIC] That banding feeling
Hi Jude,
It's so good to see you posting. It's been too long and we've missed you.
I'm getting pretty sick of this banding too. And I've had the same thing with
the breathing. What's up with that?? The first time it happened I was
actually a little scared. If I would mind my P's
and Q's and not try to do too much in one day, ALL of my aches and pains
would be more manageable.well, maybe
love,
Linda
- Original Message -
From: heyjude48...@aol.com
To: jrush...@columbiaenergyllc.com ; tmic-list@eskimo.com
Sent: Monday, August 17, 2009 6:09 PM
Subject: Re: [TMIC] That banding feeling
Hi Jeanne,
The banding has been exactly the same for me. It has been with me
since day one and starts underneath my breasts and goes all the way around my
abdomen. When it gets real bad, it continues downward until I feel completely
enveloped by it. Sometimes it hurts so badly it hurts to even breathe.
I don't let TM or anything get me down, but I am beginning to feel
angry, after seven years. I am pissed because I cannot work in the garden and
go places without it being a big deal to get dressed, fix my hair and sometimes
put on make up so the pain doesn't show so badly. I was told that I looked old
when I am in pain...by a sweet 14 year old boy. "Thank you very much".
For the constipation problem, for years I have used Fish Oil
capsules, one per day and I get them from the health food store or my pharmacy.
They work like a dream. And I have the kind of bowel that moves the poop down
to "the vault", but will not push it out, so I have done digital removable for
ever and ever. It's not fun, but we need to do what we need to do...
Love and Prayers,
Jude
In a message dated 8/11/2009 1:09:43 P.M. Eastern Daylight Time,
jrush...@columbiaenergyllc.com writes:
The banding came on immediately with the TM and has
never left. Without the meds, it is excruciatingly painful and just heads
south to my toes. Funny how you can hurt so bad and 'not feel'??? Explain
that to someone?? ::)) Gosh, I'm so happy you all are in my life..Jeanne
---Original Message---
From: laura.eich...@gmail.com
Date: 8/10/2009 10:56:05 PM
To: tmic-list@eskimo.com
Subject: [TMIC] That banding feeling
Those of you who got that banding feeling do you all
just have TM or did you also get subsequently diagnosed with MS too? And if you
did experience the banding feeling, did you experience it at the beginning of
your TM (or MS) journey or somewhere down the road? :-)
Just wondering if TM'ers get the banding feeling or
is it only those that get MS too. I had it at the start of my TM but it went
away after a month or two. I had a very mild case of TM and as of yet not
diagnosed with MS.
Thanks!
--
Laura
--
<>
Re: [TMIC] That banding feeling
I too have banding but I also have something else similiar but more painful that happens from time to time and I don't understand it. Lately it has increased. It generally starts in one ankle and the sole of the foot and runs up my leg to my spine. It hurts one time and hurts so bad that I don't even realize that it just happened. I don't know what it is. I had it happen this time last year when I would stand and look down. It would hit my back of the neck and run down to my feet. Then I would feel like I was stranding on an electric grid for a little while. Latelky the souls of my feet have been hurting - soar all the time. I am up right now with pain in souls of both feet. What causes this? Sent from my Verizon Wireless BlackBerry -Original Message- From: Priscilla Keene Date: Mon, 17 Aug 2009 21:05:39 To: L T CHERPESKI; Subject: Re: [TMIC] That banding feeling I, too, have banding, but it has lessened over the 8 years I've had TM. It was extremely painful for the first few years, but now I only have pain below my right breast at night. My hands are paralyzed, and I can't unhook my bra so sometimes I have to sleep with it on, and that really hurts--I try to go to sleep asap! Lyrica helps me a lot with the banding. ~I've got that banding feeling, ohohoh, that banding feeling I've got that banding feeling And it's not gone, gone, gone It's not gone, gone, gone ohohohohoh!~ LOL Have a wonderful day! Priscilla From: L T CHERPESKI To: jrush...@columbiaenergyllc.com; tmic-list@eskimo.com; heyjude48...@aol.com Sent: Monday, August 17, 2009 11:20:58 PM Subject: Re: [TMIC] That banding feeling Hi Jude, It's so good to see you posting. It's been too long and we've missed you. I'm getting pretty sick of this banding too. And I've had the same thing with the breathing. What's up with that?? The first time it happened I was actually a little scared. If I would mind my P's and Q's and not try to do too much in one day, ALL of my aches and pains would be more manageable.well, maybe love, Linda - Original Message - >From: heyjude48...@aol.com >To: jrush...@columbiaenergyllc.com ; tmic-list@eskimo.com >Sent: Monday, August 17, 2009 6:09 PM >Subject: Re: [TMIC] That banding feeling > > >Hi Jeanne, > >The banding has been exactly the same for me. It has been with me since day >one and starts underneath my breasts and goes all the way around my abdomen. >When it gets real bad, it continues downward until I feel completely enveloped >by it. Sometimes it hurts so badly it hurts to even breathe. > >I don't let TM or anything get me down, but I am beginning to feel angry, >after seven years. I am pissed because I cannot work in the garden and go >places without it being a big deal to get dressed, fix my hair and sometimes >put on make up so the pain doesn't show so badly. I was told that I looked >old when I am in pain...by a sweet 14 year old boy. "Thank you very much". > >For the constipation problem, for years I have used Fish Oil capsules, one per >day and I get them from the health food store or my pharmacy. They work like >a dream. And I have the kind of bowel that moves the poop down to "the >vault", but will not push it out, so I have done digital removable for ever >and ever. It's not fun, but we need to do what we need to do... > >Love and Prayers, >Jude > >In a message dated 8/11/2009 1:09:43 P.M. Eastern Daylight Time, >jrush...@columbiaenergyllc.com writes: > The banding came on immediately with the TM and has never left. Without the >meds, it is excruciatingly painful and just heads south to my toes. Funny how >you can hurt so bad and 'not feel'??? Explain that to someone?? ::)) Gosh, >I'm so happy you all are in my life..Jeanne >> >>---Original Message--- >> >>From: laura.eich...@gmail.com >>Date: 8/10/2009 10:56:05 PM >>To: tmic-list@eskimo.com >>Subject: [TMIC] That banding feeling >>Those of you who got that banding feeling do you all just have TM or did you >>also get subsequently diagnosed with MS too? And if you did experience the >>banding feeling, did you experience it at the beginning of your TM (or MS) >>journey or somewhere down the road? :-) >>Just wondering if TM'ers get the banding feeling or is it only those that get >>MS too. I had it at the start of my TM but it went away after a month or two. >>I had a very mild case of TM and as of yet not diagnosed with MS. >>Thanks! >> >>-- >>Laura >> >> >> > >
Re: [TMIC] That banding feeling
LOL Priscilla - I'm sitting here singing your new SONG! That's a good one. Umm, you can't unhook your bra - what bra??? I finally stopped wearing one except when I have to leave the house. shhh don't tell anyone just me - Original Message - From: Priscilla Keene<mailto:pkeen...@yahoo.com> To: L T CHERPESKI<mailto:cherp...@msn.com> ; tmic-list@eskimo.com<mailto:tmic-list@eskimo.com> Sent: Monday, August 17, 2009 10:05 PM Subject: Re: [TMIC] That banding feeling I, too, have banding, but it has lessened over the 8 years I've had TM. It was extremely painful for the first few years, but now I only have pain below my right breast at night. My hands are paralyzed, and I can't unhook my bra so sometimes I have to sleep with it on, and that really hurts--I try to go to sleep asap! Lyrica helps me a lot with the banding. ~I've got that banding feeling, ohohoh, that banding feeling I've got that banding feeling And it's not gone, gone, gone It's not gone, gone, gone ohohohohoh!~ LOL Have a wonderful day! Priscilla -- From: L T CHERPESKI To: jrush...@columbiaenergyllc.com; tmic-list@eskimo.com; heyjude48...@aol.com Sent: Monday, August 17, 2009 11:20:58 PM Subject: Re: [TMIC] That banding feeling Hi Jude, It's so good to see you posting. It's been too long and we've missed you. I'm getting pretty sick of this banding too. And I've had the same thing with the breathing. What's up with that?? The first time it happened I was actually a little scared. If I would mind my P's and Q's and not try to do too much in one day, ALL of my aches and pains would be more manageable.well, maybe love, Linda - Original Message - From: heyjude48...@aol.com<mailto:heyjude48...@aol.com> To: jrush...@columbiaenergyllc.com<mailto:jrush...@columbiaenergyllc.com> ; tmic-list@eskimo.com<mailto:tmic-list@eskimo.com> Sent: Monday, August 17, 2009 6:09 PM Subject: Re: [TMIC] That banding feeling Hi Jeanne, The banding has been exactly the same for me. It has been with me since day one and starts underneath my breasts and goes all the way around my abdomen. When it gets real bad, it continues downward until I feel completely enveloped by it. Sometimes it hurts so badly it hurts to even breathe. I don't let TM or anything get me down, but I am beginning to feel angry, after seven years. I am pissed because I cannot work in the garden and go places without it being a big deal to get dressed, fix my hair and sometimes put on make up so the pain doesn't show so badly. I was told that I looked old when I am in pain...by a sweet 14 year old boy. "Thank you very much". For the constipation problem, for years I have used Fish Oil capsules, one per day and I get them from the health food store or my pharmacy. They work like a dream. And I have the kind of bowel that moves the poop down to "the vault", but will not push it out, so I have done digital removable for ever and ever. It's not fun, but we need to do what we need to do... Love and Prayers, Jude In a message dated 8/11/2009 1:09:43 P.M. Eastern Daylight Time, jrush...@columbiaenergyllc.com writes: The banding came on immediately with the TM and has never left. Without the meds, it is excruciatingly painful and just heads south to my toes. Funny how you can hurt so bad and 'not feel'??? Explain that to someone?? ::)) Gosh, I'm so happy you all are in my life..Jeanne ---Original Message--- From: laura.eich...@gmail.com<mailto:laura.eich...@gmail.com> Date: 8/10/2009 10:56:05 PM To: tmic-list@eskimo.com<mailto:tmic-list@eskimo.com> Subject: [TMIC] That banding feeling Those of you who got that banding feeling do you all just have TM or did you also get subsequently diagnosed with MS too? And if you did experience the banding feeling, did you experience it at the beginning of your TM (or MS) journey or somewhere down the road? :-) Just wondering if TM'ers get the banding feeling or is it only those that get MS too. I had it at the start of my TM but it went away after a month or two. I had a very mild case of TM and as of yet not diagnosed with MS. Thanks! -- Laura <>
Re: [TMIC] That banding feeling
I, too, have banding, but it has lessened over the 8 years I've had TM. It was extremely painful for the first few years, but now I only have pain below my right breast at night. My hands are paralyzed, and I can't unhook my bra so sometimes I have to sleep with it on, and that really hurts--I try to go to sleep asap! Lyrica helps me a lot with the banding. ~I've got that banding feeling, ohohoh, that banding feeling I've got that banding feeling And it's not gone, gone, gone It's not gone, gone, gone ohohohohoh!~ LOL Have a wonderful day! Priscilla From: L T CHERPESKI To: jrush...@columbiaenergyllc.com; tmic-list@eskimo.com; heyjude48...@aol.comSent: Monday, August 17, 2009 11:20:58 PMSubject: Re: [TMIC] That banding feeling Hi Jude, It's so good to see you posting. It's been too long and we've missed you. I'm getting pretty sick of this banding too. And I've had the same thing with the breathing. What's up with that?? The first time it happened I was actually a little scared. If I would mind my P's and Q's and not try to do too much in one day, ALL of my aches and pains would be more manageable.well, maybe love, Linda - Original Message - From: heyjude48...@aol.com To: jrush...@columbiaenergyllc.com ; tmic-list@eskimo.com Sent: Monday, August 17, 2009 6:09 PM Subject: Re: [TMIC] That banding feeling Hi Jeanne, The banding has been exactly the same for me. It has been with me since day one and starts underneath my breasts and goes all the way around my abdomen. When it gets real bad, it continues downward until I feel completely enveloped by it. Sometimes it hurts so badly it hurts to even breathe. I don't let TM or anything get me down, but I am beginning to feel angry, after seven years. I am pissed because I cannot work in the garden and go places without it being a big deal to get dressed, fix my hair and sometimes put on make up so the pain doesn't show so badly. I was told that I looked old when I am in pain...by a sweet 14 year old boy. "Thank you very much". For the constipation problem, for years I have used Fish Oil capsules, one per day and I get them from the health food store or my pharmacy. They work like a dream. And I have the kind of bowel that moves the poop down to "the vault", but will not push it out, so I have done digital removable for ever and ever. It's not fun, but we need to do what we need to do... Love and Prayers, Jude In a message dated 8/11/2009 1:09:43 P.M. Eastern Daylight Time, jrush...@columbiaenergyllc.com writes: The banding came on immediately with the TM and has never left. Without the meds, it is excruciatingly painful and just heads south to my toes. Funny how you can hurt so bad and 'not feel'??? Explain that to someone?? ::)) Gosh, I'm so happy you all are in my life..Jeanne ---Original Message--- From: laura.eich...@gmail.com Date: 8/10/2009 10:56:05 PM To: tmic-list@eskimo.com Subject: [TMIC] That banding feeling Those of you who got that banding feeling do you all just have TM or did you also get subsequently diagnosed with MS too? And if you did experience the banding feeling, did you experience it at the beginning of your TM (or MS) journey or somewhere down the road? :-)Just wondering if TM'ers get the banding feeling or is it only those that get MS too. I had it at the start of my TM but it went away after a month or two. I had a very mild case of TM and as of yet not diagnosed with MS. Thanks!-- Laura
Re: [TMIC] That banding feeling
Hi Jude, It's so good to see you posting. It's been too long and we've missed you. I'm getting pretty sick of this banding too. And I've had the same thing with the breathing. What's up with that?? The first time it happened I was actually a little scared. If I would mind my P's and Q's and not try to do too much in one day, ALL of my aches and pains would be more manageable.well, maybe love, Linda - Original Message - From: heyjude48...@aol.com<mailto:heyjude48...@aol.com> To: jrush...@columbiaenergyllc.com<mailto:jrush...@columbiaenergyllc.com> ; tmic-list@eskimo.com<mailto:tmic-list@eskimo.com> Sent: Monday, August 17, 2009 6:09 PM Subject: Re: [TMIC] That banding feeling Hi Jeanne, The banding has been exactly the same for me. It has been with me since day one and starts underneath my breasts and goes all the way around my abdomen. When it gets real bad, it continues downward until I feel completely enveloped by it. Sometimes it hurts so badly it hurts to even breathe. I don't let TM or anything get me down, but I am beginning to feel angry, after seven years. I am pissed because I cannot work in the garden and go places without it being a big deal to get dressed, fix my hair and sometimes put on make up so the pain doesn't show so badly. I was told that I looked old when I am in pain...by a sweet 14 year old boy. "Thank you very much". For the constipation problem, for years I have used Fish Oil capsules, one per day and I get them from the health food store or my pharmacy. They work like a dream. And I have the kind of bowel that moves the poop down to "the vault", but will not push it out, so I have done digital removable for ever and ever. It's not fun, but we need to do what we need to do... Love and Prayers, Jude In a message dated 8/11/2009 1:09:43 P.M. Eastern Daylight Time, jrush...@columbiaenergyllc.com writes: The banding came on immediately with the TM and has never left. Without the meds, it is excruciatingly painful and just heads south to my toes. Funny how you can hurt so bad and 'not feel'??? Explain that to someone?? ::)) Gosh, I'm so happy you all are in my life..Jeanne ---Original Message--- From: laura.eich...@gmail.com<mailto:laura.eich...@gmail.com> Date: 8/10/2009 10:56:05 PM To: tmic-list@eskimo.com<mailto:tmic-list@eskimo.com> Subject: [TMIC] That banding feeling Those of you who got that banding feeling do you all just have TM or did you also get subsequently diagnosed with MS too? And if you did experience the banding feeling, did you experience it at the beginning of your TM (or MS) journey or somewhere down the road? :-) Just wondering if TM'ers get the banding feeling or is it only those that get MS too. I had it at the start of my TM but it went away after a month or two. I had a very mild case of TM and as of yet not diagnosed with MS. Thanks! -- Laura -- <>
Re: [TMIC] That banding feeling
Hi Jeanne, The banding has been exactly the same for me. It has been with me since day one and starts underneath my breasts and goes all the way around my abdomen. When it gets real bad, it continues downward until I feel completely enveloped by it. Sometimes it hurts so badly it hurts to even breathe. I don't let TM or anything get me down, but I am beginning to feel angry, after seven years. I am pissed because I cannot work in the garden and go places without it being a big deal to get dressed, fix my hair and sometimes put on make up so the pain doesn't show so badly. I was told that I looked old when I am in pain...by a sweet 14 year old boy. "Thank you very much". For the constipation problem, for years I have used Fish Oil capsules, one per day and I get them from the health food store or my pharmacy. They work like a dream. And I have the kind of bowel that moves the poop down to "the vault", but will not push it out, so I have done digital removable for ever and ever. It's not fun, but we need to do what we need to do... Love and Prayers, Jude In a message dated 8/11/2009 1:09:43 P.M. Eastern Daylight Time, jrush...@columbiaenergyllc.com writes: The banding came on immediately with the TM and has never left. Without the meds, it is excruciatingly painful and just heads south to my toes. Funny how you can hurt so bad and 'not feel'??? Explain that to someone?? ::)) Gosh, I'm so happy you all are in my life..Jeanne ---Original Message--- From: _laura.eich...@gmail.com_ (mailto:laura.eich...@gmail.com) Date: 8/10/2009 10:56:05 PM To: _tmic-l...@eskimo.com_ (mailto:tmic-list@eskimo.com) Subject: [TMIC] That banding feeling Those of you who got that banding feeling do you all just have TM or did you also get subsequently diagnosed with MS too? And if you did experience the banding feeling, did you experience it at the beginning of your TM (or MS) journey or somewhere down the road? :-) Just wondering if TM'ers get the banding feeling or is it only those that get MS too. I had it at the start of my TM but it went away after a month or two. I had a very mild case of TM and as of yet not diagnosed with MS. Thanks! -- Laura <>
Re: [TMIC] That banding feeling
Hi, I tried tegretol years ago.Unfortunately,I'm allergic to it (I get an awful,itchy rash).It did work well for me the short time I took it. Cheryl in gloomy,humid Easthampton,MA. --- On Wed, 8/12/09, rj_ran...@yahoo.com wrote: From: rj_ran...@yahoo.com Subject: Re: [TMIC] That banding feeling To: "lynne myers" , "tmic" Date: Wednesday, August 12, 2009, 1:06 PM I take tegertol for trigeminal neurolgia. Its a very powerful drug. Sent from my Verizon Wireless BlackBerry From: lynne myers Date: Wed, 12 Aug 2009 05:36:02 -0700 (PDT) To: tmic Subject: Re: [TMIC] That banding feeling I take tegretol 200 mg. twice a day and it helps with the banding. Only have it occasionally now and thats only if I have really over done it. Lynne --- On Wed, 8/12/09, rn11...@yahoo.com wrote: From: rn11...@yahoo.com Subject: Re: [TMIC] That banding feeling To: "Janice" Cc: tmic-list@eskimo.com Date: Wednesday, August 12, 2009, 7:52 AM Hi Janice, I have the banding;it's a severe tightness around my trunk from T4 to just below my waist. It has been constant since 8/13/95 when tm hit me. It gets tighter and more uncomfortable if I do anything more than my usual routine. At times it is so tight I can't take in a deep breath.It is not painful. I take baclofen 30 mgm twice a day;have been on that amount since onset of tm.I tried to cut down the baclofen,but then the tightness becomes unbearable.
Re: [TMIC] That banding feeling
I take tegertol for trigeminal neurolgia. Its a very powerful drug. Sent from my Verizon Wireless BlackBerry -Original Message- From: lynne myers Date: Wed, 12 Aug 2009 05:36:02 To: tmic Subject: Re: [TMIC] That banding feeling I take tegretol 200 mg. twice a day and it helps with the banding. Only have it occasionally now and thats only if I have really over done it. Lynne --- On Wed, 8/12/09, rn11...@yahoo.com wrote: From: rn11...@yahoo.com Subject: Re: [TMIC] That banding feeling To: "Janice" Cc: tmic-list@eskimo.com Date: Wednesday, August 12, 2009, 7:52 AM Hi Janice, I have the banding;it's a severe tightness around my trunk from T4 to just below my waist. It has been constant since 8/13/95 when tm hit me. It gets tighter and more uncomfortable if I do anything more than my usual routine. At times it is so tight I can't take in a deep breath.It is not painful. I take baclofen 30 mgm twice a day;have been on that amount since onset of tm.I tried to cut down the baclofen,but then the tightness becomes unbearable.
Re: [TMIC] That banding feeling
I take tegretol 200 mg. twice a day and it helps with the banding. Only have it occasionally now and thats only if I have really over done it. Lynne --- On Wed, 8/12/09, rn11...@yahoo.com wrote: From: rn11...@yahoo.com Subject: Re: [TMIC] That banding feeling To: "Janice" Cc: tmic-list@eskimo.com Date: Wednesday, August 12, 2009, 7:52 AM Hi Janice, I have the banding;it's a severe tightness around my trunk from T4 to just below my waist. It has been constant since 8/13/95 when tm hit me. It gets tighter and more uncomfortable if I do anything more than my usual routine. At times it is so tight I can't take in a deep breath.It is not painful. I take baclofen 30 mgm twice a day;have been on that amount since onset of tm.I tried to cut down the baclofen,but then the tightness becomes unbearable.
Re: [TMIC] That banding feeling
Hi Janice, I have the banding;it's a severe tightness around my trunk from T4 to just below my waist. It has been constant since 8/13/95 when tm hit me. It gets tighter and more uncomfortable if I do anything more than my usual routine. At times it is so tight I can't take in a deep breath.It is not painful. I take baclofen 30 mgm twice a day;have been on that amount since onset of tm.I tried to cut down the baclofen,but then the tightness becomes unbearable. Cheryl in humid Easthampton,MA.wrote: From: Janice Subject: Re: [TMIC] That banding feeling To: laura.eich...@gmail.com, tmic-list@eskimo.com Date: Tuesday, August 11, 2009, 11:39 PM Okay, I have decided that I don't really have any banding. I have a pressure feeling about my waist, but no pain. I am really for you all that have the pain - surely there is something a doc can do to help relieve this. Does anyone out there get relief from the banding pain - any meds? Janice - Original Message - From: laura.eich...@gmail.com To: tmic-list@eskimo.com Sent: Tuesday, August 11, 2009 9:07 AM Subject: Re: [TMIC] That banding feeling Subject: [TMIC] That banding feeling Thank you everyone for your replies. I recently got to thinking about that banding feeling that I had experienced early on (for me it was completely around the bra line and felt as if I had a belt on way too tight there) and wondered if there was a relationship between those that had that and developed MS. I thought that maybe the banding was unique to MS but apparently I was wrong. :-) I am thankful that my experience with the banding was just weird and uncomfortable, not painful as some of you felt. This TM business is some weird stuff, isn't it? Thanks again! Laura
Re: [TMIC] That banding feeling
Jeanne, I have had an awful time trying to answer questions about how TM makes me feel - inside and out. I feel pain in the inside of my legs, but can't feel hot or cold on the outside! I also spasm when I have to lay back in a chair or - worse yet - when I go to the dentist, etc., and they have me lay back to clean my teeth.They have to put pillows under my legs so I don't spasm. So weird - hate it!! Janice - Original Message - From: jrushton To: laura.eich...@gmail.com ; tmic Sent: Tuesday, August 11, 2009 10:08 PM Subject: Re: [TMIC] That banding feeling The banding came on immediately with the TM and has never left. Without the meds, it is excruciatingly painful and just heads south to my toes. Funny how you can hurt so bad and 'not feel'??? Explain that to someone?? ::)) Gosh, I'm so happy you all are in my life..Jeanne ---Original Message--- From: laura.eich...@gmail.com Date: 8/10/2009 10:56:05 PM To: tmic-list@eskimo.com Subject: [TMIC] That banding feeling Those of you who got that banding feeling do you all just have TM or did you also get subsequently diagnosed with MS too? And if you did experience the banding feeling, did you experience it at the beginning of your TM (or MS) journey or somewhere down the road? :-) Just wondering if TM'ers get the banding feeling or is it only those that get MS too. I had it at the start of my TM but it went away after a month or two. I had a very mild case of TM and as of yet not diagnosed with MS. Thanks! -- Laura <<01_side.gif>><<01_tile.jpg>>
Re: [TMIC] That banding feeling
How do you know that you only get some of the messages? Maybe I don't get all of mine either. Janice - Original Message - From: jrushton To: pjv1...@chartermi.net ; tmic Sent: Wednesday, August 12, 2009 5:56 AM Subject: Re: [TMIC] That banding feeling I can't figure out why I only get some of the TMIC notes??? Anyone else have the same problem? Jeanne ---Original Message--- From: pjv1...@chartermi.net Date: 8/11/2009 6:38:33 PM To: laura.eich...@gmail.com; tmic-list@eskimo.com Subject: Re: [TMIC] That banding feeling I've had TM for five years and don't "expect" an MS diagnosis. I've had the banding trom the beginning. During one of my steroid IV's (first five days) I rang for help and told the nurse I couldn't breath and something was squeezing my chest. It was painful and I asked her if I could be having a heart attack. I still get banding on a regular basis, however, I don't panic, I work harder at breathing and hope its time for some Baclofin. Patti - Michigan laura.eich...@gmail.com wrote: > Those of you who got that banding feeling do you all just have TM or did you > also get subsequently diagnosed with MS too? And if you did experience the > banding feeling, did you experience it at the beginning of your TM (or MS) > journey or somewhere down the road? :-) > Just wondering if TM'ers get the banding feeling or is it only those that > get MS too. I had it at the start of my TM but it went away after a month or > two. I had a very mild case of TM and as of yet not diagnosed with MS. > Thanks! > > -- > Laura <<01_side.gif>><<01_tile.jpg>>
Re: [TMIC] That banding feeling
Okay, I have decided that I don't really have any banding. I have a pressure feeling about my waist, but no pain. I am really for you all that have the pain - surely there is something a doc can do to help relieve this.Does anyone out there get relief from the banding pain - any meds? Janice - Original Message - From: laura.eich...@gmail.com To: tmic-list@eskimo.com Sent: Tuesday, August 11, 2009 9:07 AM Subject: Re: [TMIC] That banding feeling Subject: [TMIC] That banding feeling Thank you everyone for your replies. I recently got to thinking about that banding feeling that I had experienced early on (for me it was completely around the bra line and felt as if I had a belt on way too tight there) and wondered if there was a relationship between those that had that and developed MS. I thought that maybe the banding was unique to MS but apparently I was wrong. :-) I am thankful that my experience with the banding was just weird and uncomfortable, not painful as some of you felt. This TM business is some weird stuff, isn't it? Thanks again! Laura
Re: [TMIC] That banding feeling
Janet, I only have TM too - thank goodnessNo problems. I think what you are talking about with the razor-sharp pain is nerve pain. There is stuff out there that your doc's can help you with - you just have to bug them with it.Hope things get a lot better for you. Janice - Original Message - From: Janet Dunn To: laura.eich...@gmail.com ; tmic-list@eskimo.com Sent: Monday, August 10, 2009 11:47 PM Subject: RE: [TMIC] That banding feeling Hi I just have TM. Ha, just have. What a thing to say. I have TM. And I have no evidence of MS or anything else. And the banding has been helped by lyrica. But the burning/razor blade feeling has not been helped. And my legs ache. Like chewing on a piece of tinfoil ache. All the time. Drives me crazy. Glad that you only have a very mild case of TM. I was told by a neurologist in Vancouver that if you are going to have another TM attack it will occur within 5 years. This is my 5 year anniversary month. Yay me. Janet From: laura.eich...@gmail.com [mailto:laura.eich...@gmail.com] Sent: August 10, 2009 8:56 PM To: tmic-list@eskimo.com Subject: [TMIC] That banding feeling Those of you who got that banding feeling do you all just have TM or did you also get subsequently diagnosed with MS too? And if you did experience the banding feeling, did you experience it at the beginning of your TM (or MS) journey or somewhere down the road? :-) Just wondering if TM'ers get the banding feeling or is it only those that get MS too. I had it at the start of my TM but it went away after a month or two. I had a very mild case of TM and as of yet not diagnosed with MS. Thanks! -- Laura
Re: [TMIC] That banding feeling
Hi Jill, just curious. You had TM for 5 years and then had a second attack in January? Do you have another autoimmune disease too? Glad to hear you didn't have the banding with the 2nd attack - not too happy that you HAD a 2nd attack, though Linda - Original Message - From: Jill Z<mailto:jillybean60...@yahoo.com> To: tmic-list@eskimo.com<mailto:tmic-list@eskimo.com> Sent: Tuesday, August 11, 2009 8:53 PM Subject: Re: [TMIC] That banding feeling I had that banding feeling when I first got diagnosed 5 years ago also. But with my second attack in January I didn't have it thank God! --- On Tue, 8/11/09, pjv1...@chartermi.net<mailto:pjv1...@chartermi.net> mailto:pjv1...@chartermi.net>> wrote: From: pjv1...@chartermi.net<mailto:pjv1...@chartermi.net> mailto:pjv1...@chartermi.net>> Subject: Re: [TMIC] That banding feeling To: laura.eich...@gmail.com, tmic-list@eskimo.com Date: Tuesday, August 11, 2009, 6:38 PM I've had TM for five years and don't "expect" an MS diagnosis. I've had the banding trom the beginning. During one of my steroid IV's (first five days) I rang for help and told the nurse I couldn't breath and something was squeezing my chest. It was painful and I asked her if I could be having a heart attack. I still get banding on a regular basis, however, I don't panic, I work harder at breathing and hope its time for some Baclofin. Patti - Michigan laura.eich...@gmail.com<http://us.mc343.mail.yahoo.com/mc/compose?to=laura.eich...@gmail.com> wrote: > Those of you who got that banding feeling do you all just have TM or did you > also get subsequently diagnosed with MS too? And if you did experience the > banding feeling, did you experience it at the beginning of your TM (or MS) > journey or somewhere down the road? :-) > Just wondering if TM'ers get the banding feeling or is it only those that > get MS too. I had it at the start of my TM but it went away after a month or > two. I had a very mild case of TM and as of yet not diagnosed with MS. > Thanks! > > -- > Laura
Re: [TMIC] That banding feeling
I had that banding feeling when I first got diagnosed 5 years ago also. But with my second attack in January I didn't have it thank God! --- On Tue, 8/11/09, pjv1...@chartermi.net wrote: From: pjv1...@chartermi.net Subject: Re: [TMIC] That banding feeling To: laura.eich...@gmail.com, tmic-list@eskimo.com Date: Tuesday, August 11, 2009, 6:38 PM I've had TM for five years and don't "expect" an MS diagnosis. I've had the banding trom the beginning. During one of my steroid IV's (first five days) I rang for help and told the nurse I couldn't breath and something was squeezing my chest. It was painful and I asked her if I could be having a heart attack. I still get banding on a regular basis, however, I don't panic, I work harder at breathing and hope its time for some Baclofin. Patti - Michigan laura.eich...@gmail.com wrote: > Those of you who got that banding feeling do you all just have TM or did you > also get subsequently diagnosed with MS too? And if you did experience the > banding feeling, did you experience it at the beginning of your TM (or MS) > journey or somewhere down the road? :-) > Just wondering if TM'ers get the banding feeling or is it only those that > get MS too. I had it at the start of my TM but it went away after a month or > two. I had a very mild case of TM and as of yet not diagnosed with MS. > Thanks! > > -- > Laura
Re: [TMIC] That banding feeling
I can't figure out why I only get some of the TMIC notes??? Anyone else have the same problem? Jeanne ---Original Message--- From: pjv1...@chartermi.net Date: 8/11/2009 6:38:33 PM To: laura.eich...@gmail.com; tmic-list@eskimo.com Subject: Re: [TMIC] That banding feeling I've had TM for five years and don't "expect" an MS diagnosis. I've had the banding trom the beginning. During one of my steroid IV's (first five days) I rang for help and told the nurse I couldn't breath and something was squeezing my chest. It was painful and I asked her if I could be having a heart attack. I still get banding on a regular basis, however, I don't panic, I work harder at breathing and hope its time for some Baclofin. Patti - Michigan laura.eich...@gmail.com wrote: > Those of you who got that banding feeling do you all just have TM or did you > also get subsequently diagnosed with MS too? And if you did experience the > banding feeling, did you experience it at the beginning of your TM (or MS) > journey or somewhere down the road? :-) > Just wondering if TM'ers get the banding feeling or is it only those that > get MS too. I had it at the start of my TM but it went away after a month or > two. I had a very mild case of TM and as of yet not diagnosed with MS. > Thanks! > > -- > Laura <<01_tile.jpg>><<01_side.gif>>
Re: [TMIC] That banding feeling
I've had TM for five years and don't "expect" an MS diagnosis. I've had the banding trom the beginning. During one of my steroid IV's (first five days) I rang for help and told the nurse I couldn't breath and something was squeezing my chest. It was painful and I asked her if I could be having a heart attack. I still get banding on a regular basis, however, I don't panic, I work harder at breathing and hope its time for some Baclofin. Patti - Michigan laura.eich...@gmail.com wrote: > Those of you who got that banding feeling do you all just have TM or did you > also get subsequently diagnosed with MS too? And if you did experience the > banding feeling, did you experience it at the beginning of your TM (or MS) > journey or somewhere down the road? :-) > Just wondering if TM'ers get the banding feeling or is it only those that > get MS too. I had it at the start of my TM but it went away after a month or > two. I had a very mild case of TM and as of yet not diagnosed with MS. > Thanks! > > -- > Laura
Re: [TMIC] That banding feeling
The banding came on immediately with the TM and has never left. Without the meds, it is excruciatingly painful and just heads south to my toes. Funny how you can hurt so bad and 'not feel'??? Explain that to someone?? ::)) Gosh, I'm so happy you all are in my life..Jeanne ---Original Message--- From: laura.eich...@gmail.com Date: 8/10/2009 10:56:05 PM To: tmic-list@eskimo.com Subject: [TMIC] That banding feeling Those of you who got that banding feeling do you all just have TM or did you also get subsequently diagnosed with MS too? And if you did experience the banding feeling, did you experience it at the beginning of your TM (or MS) journey or somewhere down the road? :-) Just wondering if TM'ers get the banding feeling or is it only those that get MS too. I had it at the start of my TM but it went away after a month or two. I had a very mild case of TM and as of yet not diagnosed with MS. Thanks! -- Laura <<01_tile.jpg>><<01_side.gif>>
Re: [TMIC] That banding feeling
> *Subject:* [TMIC] That banding feeling > > > Thank you everyone for your replies. I recently got to thinking about that > banding feeling that I had experienced early on (for me it was completely > around the bra line and felt as if I had a belt on way too tight there) > and wondered if there was a relationship between those that had that and > developed MS. I thought that maybe the banding was unique to MS but > apparently I was wrong. :-) I am thankful that my experience with the > banding was just weird and uncomfortable, not painful as some of you felt. > This > TM business is some weird stuff, isn't it? > Thanks again! > Laura >
RE: [TMIC] That banding feeling
Hi Laura - I was diagnosed with TM in 2002, then MS in 2008. I never experienced any banding (?) Bernie From: laura.eich...@gmail.com [mailto:laura.eich...@gmail.com] Sent: Monday, August 10, 2009 11:56 PM To: tmic-list@eskimo.com Subject: [TMIC] That banding feeling Those of you who got that banding feeling do you all just have TM or did you also get subsequently diagnosed with MS too? And if you did experience the banding feeling, did you experience it at the beginning of your TM (or MS) journey or somewhere down the road? :-) Just wondering if TM'ers get the banding feeling or is it only those that get MS too. I had it at the start of my TM but it went away after a month or two. I had a very mild case of TM and as of yet not diagnosed with MS. Thanks! -- Laura
Re: [TMIC] That banding feeling
About the banding. I actually had banding pains as early as age 19. 5 years later I got left foot drop. 10 more years I got right drop followed by lose of right leg. The banding that came after tm was far more painful. Took sleep and energy and seemed to never end. --Original Message-- From: laura.eich...@gmail.com To: tmic-list@eskimo.com Subject: [TMIC] That banding feeling Sent: Aug 10, 2009 11:55 PM Those of you who got that banding feeling do you all just have TM or did you also get subsequently diagnosed with MS too? And if you did experience the banding feeling, did you experience it at the beginning of your TM (or MS) journey or somewhere down the road? :-) Just wondering if TM'ers get the banding feeling or is it only those that get MS too. I had it at the start of my TM but it went away after a month or two. I had a very mild case of TM and as of yet not diagnosed with MS. Thanks! -- Laura Sent from my Verizon Wireless BlackBerry
RE: [TMIC] That banding feeling
Hi I just have TM. Ha, just have. What a thing to say. I have TM. And I have no evidence of MS or anything else. And the banding has been helped by lyrica. But the burning/razor blade feeling has not been helped. And my legs ache. Like chewing on a piece of tinfoil ache. All the time. Drives me crazy. Glad that you only have a very mild case of TM. I was told by a neurologist in Vancouver that if you are going to have another TM attack it will occur within 5 years. This is my 5 year anniversary month. Yay me. Janet From: laura.eich...@gmail.com [mailto:laura.eich...@gmail.com] Sent: August 10, 2009 8:56 PM To: tmic-list@eskimo.com Subject: [TMIC] That banding feeling Those of you who got that banding feeling do you all just have TM or did you also get subsequently diagnosed with MS too? And if you did experience the banding feeling, did you experience it at the beginning of your TM (or MS) journey or somewhere down the road? :-) Just wondering if TM'ers get the banding feeling or is it only those that get MS too. I had it at the start of my TM but it went away after a month or two. I had a very mild case of TM and as of yet not diagnosed with MS. Thanks! -- Laura
Re: [TMIC] That banding feeling
I was told that I had m.s. within 5 minutes after meeting the first neuro in 2oo5. The t.m. diagnosis came almost a year later after colon then bladder stopped working but tm WAS what hit me n 05 according to the neuro. The info confused the hell out of me. I was hit with trigeminal neurologia and brain stem demylination last fall. MS seems to be the underlyning factor with each wierd thing. It might be why I recovered so well from tm. But I have to worry with future attacls and problems. --Original Message-- From: laura.eich...@gmail.com To: tmic-list@eskimo.com Subject: [TMIC] That banding feeling Sent: Aug 10, 2009 11:55 PM Those of you who got that banding feeling do you all just have TM or did you also get subsequently diagnosed with MS too? And if you did experience the banding feeling, did you experience it at the beginning of your TM (or MS) journey or somewhere down the road? :-) Just wondering if TM'ers get the banding feeling or is it only those that get MS too. I had it at the start of my TM but it went away after a month or two. I had a very mild case of TM and as of yet not diagnosed with MS. Thanks! -- Laura Sent from my Verizon Wireless BlackBerry
