Re: [TMIC] Gabapentin
Say, uh; When you start, does Baclofen cause nausea? Dalton From: Janice Nichols Date: Sun, 19 Dec 2010 12:26:36 -0600 To: Kevin Wolfthal , Subject: Re: [TMIC] Gabapentin Resent-From: Resent-Date: Sun, 19 Dec 2010 10:26:27 -0800 YES, IT IS A LOW DOSAGE, BUT I STARTED THAT WAY TOO. I TAKE 1800MG NOW. I CAN UP IT IF I WANT TO.MY DOC'S ARE ENCOURAGING ME TO DO SO. I GUESS IT IS HELPING ME. HAVE NOT GONE OFF OF IT, SO HARD TO TELL. I MAY GET BRAVE SOME DAY AND LOWER THE DOSE AND SEE WHAT HAPPENS. JANICE -Original Message- From: Kevin Wolfthal Sent: Saturday, December 18, 2010 5:12 AM To: tmic-list@eskimo.com Subject: [TMIC] Gabapentin My new doctor visited me today. I asked him again about Gabapentin and he is going to start me on 100mg 3 times a day. For those who take this, I would like to hear how you did on it. I realize it's a low dosage. Thanks, Kevin
Re: [TMIC] Gabapentin
Actually, it is a painful spasm.The spasms are the knee-jerking reflexes
that keep you awake all nite.It is miserable.
Janice
From: john snodgrass
Sent: Sunday, December 19, 2010 2:21 PM
To: Janice Nichols
Cc: transverse myelitis
Subject: Re: [TMIC] Gabapentin
i reckon you have to define what we are calling a spaism and what we are
calling pain
--- On Sun, 12/19/10, Janice Nichols wrote:
From: Janice Nichols
Subject: Re: [TMIC] Gabapentin
To: "john snodgrass" , "Dalton Garis"
Cc: "transverse myelitis"
Date: Sunday, December 19, 2010, 1:29 PM
The Gabapentin will not help spasms.It is Baclofen that works on
spasms – it completely takes it away for me,
Janice
From: john snodgrass
Sent: Saturday, December 18, 2010 9:11 AM
To: Dalton Garis
Cc: transverse myelitis
Subject: Re: [TMIC] Gabapentin
realy bad spasms.
it helps some.
i thought this stuff made you sleepy.
i reckon i am immune.
--- On Sat, 12/18/10, Dalton Garis wrote:
From: Dalton Garis
Subject: Re: [TMIC] Gabapentin
To: "john snodgrass"
Date: Saturday, December 18, 2010, 9:33 AM
That is 4x what I am taking!
John, do you have paralysis and spasms? And is that why the
neuro has you on such a high dose?
Because I would love to be more medicated if I could.
Dalton
Office: +971-02-607-5070/5297
Mobile: +971-50-668-5760--
From: john snodgrass
Date: Sat, 18 Dec 2010 06:11:48 -0800 (PST)
To: Kevin Wolfthal
Cc: transverse myelitis
Subject: Re: [TMIC] Gabapentin
Resent-From:
Resent-Date: Sat, 18 Dec 2010 06:11:49 -0800
i am taking 2400 mg a day. it helps but it doesn't heal me
--- On Sat, 12/18/10, Kevin Wolfthal
wrote:
> From: Kevin Wolfthal
> Subject: [TMIC] Gabapentin
> To: tmic-list@eskimo.com
> Date: Saturday, December 18, 2010, 6:12 AM
>
> My new doctor visited me today. I asked him again about
> Gabapentin and he
> is going to start me on 100mg 3 times a day. For those who
> take this, I would
> like to hear how you did on it. I realize it's a low
> dosage.
>
> Thanks,
> Kevin
>
>
RE: [TMIC] Gabapentin
theres a lot of calcium in my diet,must be why it showed up ok in the blood work. --- On Sun, 12/19/10, Patricia Cooley wrote: > From: Patricia Cooley > Subject: RE: [TMIC] Gabapentin > To: "'Janice Nichols'" , kale...@sfcn.org, "'john > snodgrass'" > Cc: "'Dalton Garis'" , "'transverse myelitis'" > > Date: Sunday, December 19, 2010, 3:25 PM > I never heard that you get into > trouble with too much calcium. I take over > 1200 mg a day, but I don't take them all at once. I > take one at lunch and > one at dinner, plus my multi which has calcium in the > a.m. I also take one > magnesium tablet in the a.m. It helps to absorb the > calcium, but you don't > take it at the same time as your calcium. I was under > the impression if you > take more than you need, you just pee it out which is a > waste since they > aren't cheap. Plus I drink milk and have milk on my > cereal in the a.m. > > Patti - Wisconsin > > -Original Message- > From: Janice Nichols [mailto:jan...@centurytel.net] > > Sent: Sunday, December 19, 2010 12:32 PM > To: kale...@sfcn.org; > john snodgrass > Cc: Dalton Garis; transverse myelitis > Subject: Re: [TMIC] Gabapentin > > Sally, what would be too much calcium? > I know that if you take too much > you get into trouble for other things. > Janice > > -Original Message- > From: kale...@sfcn.org > Sent: Saturday, December 18, 2010 10:09 AM > To: john snodgrass > Cc: Dalton Garis ; transverse myelitis > Subject: Re: [TMIC] Gabapentin > > John, > > I'm not sure what your spasms are like - maybe yours are > much worse than > mine, but I've found that if I take sufficient calcium > supplements, I > don't have them. (What I refer to as 'spasms', for > me, is when nerves in > my legs actually cause my legs to jerk around when I'm > still. It makes it > hard to go to sleep.) > > I take maybe 800 mg to 1200 mg/day, depending on how much > calcium foods > I've eaten. If my legs start to spasm, I know I > didn't take enough and > get up and take some. (Calcium is more effective if > taken in smaller > doses - i.e. 400mg - throughout the day, rather than all at > once.) My > calcium levels were good before I was given the 5000 mg > methyl-prednisone > to zap the myelitis, but that zapped the calcium, > too. So this is likely > to be true for all of us who were given steroids to treat > the TM. It > might be worth it to give it a try. > > Sally > > > > > realy bad spasms. > > it helps some. > > i thought this stuff made you sleepy. > > i reckon i am immune. > > > > --- On Sat, 12/18/10, Dalton Garis > wrote: > > > > > > From: Dalton Garis > > Subject: Re: [TMIC] Gabapentin > > To: "john snodgrass" > > Date: Saturday, December 18, 2010, 9:33 AM > > > > > > That is 4x what I am taking! > > > > John, do you have paralysis and spasms? And is > that why the neuro has you > > on such a high dose? > > > > Because I would love to be more medicated if I could. > > > > Dalton > > > > Office: +971-02-607-5070/5297 > > Mobile: +971-50-668-5760-- > > > > > > > > > > > > From: john snodgrass > > Date: Sat, 18 Dec 2010 06:11:48 -0800 (PST) > > To: Kevin Wolfthal > > Cc: transverse myelitis > > Subject: Re: [TMIC] Gabapentin > > Resent-From: > > Resent-Date: Sat, 18 Dec 2010 06:11:49 -0800 > > > > i am taking 2400 mg a day. it helps but it doesn't > heal me > > > > --- On Sat, 12/18/10, Kevin Wolfthal > wrote: > > > >> From: Kevin Wolfthal > >> Subject: [TMIC] Gabapentin > >> To: tmic-list@eskimo.com > >> Date: Saturday, December 18, 2010, 6:12 AM > >> > >> My new doctor visited me today. I asked him again > about > >> Gabapentin and he > >> is going to start me on 100mg 3 times a day. For > those who > >> take this, I would > >> like to hear how you did on it. I realize it's a > low > >> dosage. > >> > >> Thanks, > >> Kevin > >> > >> > > > > > > > > > > > > > > > > > > > >
RE: [TMIC] Gabapentin
Sorry - I have a new email and they seem to come out of order. I missed this message which must have come before the last one. Generally, 1000 mg/day (under 50) to 1200 mg/day (over 50) is the recommended amount of calcium for adults. Of course, if you're consuming dairy products, almonds, broccoli, and other calcium foods, you're getting calcium there, and that's the best source - assuming it adds up to be enough. But with the steroids that many of us have been given, we need extra to keep our bone density up. I argued with my doctor about taking supplements when he first told me to, b/c I've always had high levels due to my diet. But I did a bone density test and was shocked at the difference in my bone density from before TM and after the TM!) Actually, another good source is weight bearing exercise - that helps bone density, too - among other things. Patti's right about water soluble vitas being peed out! But besides being a waste, an extreme amount of one vita can cause a 'deficiency' or and an imbalance, in another. I.e.: taking extra magnesium as well as extra calcium is more likely to keep the two in balance. So moderation is a good rule. But if I'm going to take a risk, I'd rather risk extra vitamin supplements than extra drugs. On the other hand, everyone's body is different, so 'whatever works!' is my motto. Which is why I like the TMIC - because hearing everyone's experiences helps me to see what the choices - and possible risks - are. Sally > I never heard that you get into trouble with too much calcium. I take > over > 1200 mg a day, but I don't take them all at once. I take one at lunch and > one at dinner, plus my multi which has calcium in the a.m. I also take > one > magnesium tablet in the a.m. It helps to absorb the calcium, but you > don't > take it at the same time as your calcium. I was under the impression if > you > take more than you need, you just pee it out which is a waste since they > aren't cheap. Plus I drink milk and have milk on my cereal in the a.m. > > Patti - Wisconsin > > -Original Message- > From: Janice Nichols [mailto:jan...@centurytel.net] > Sent: Sunday, December 19, 2010 12:32 PM > To: kale...@sfcn.org; john snodgrass > Cc: Dalton Garis; transverse myelitis > Subject: Re: [TMIC] Gabapentin > > Sally, what would be too much calcium? I know that if you take too > much > you get into trouble for other things. > Janice > > -Original Message- > From: kale...@sfcn.org > Sent: Saturday, December 18, 2010 10:09 AM > To: john snodgrass > Cc: Dalton Garis ; transverse myelitis > Subject: Re: [TMIC] Gabapentin > > John, > > I'm not sure what your spasms are like - maybe yours are much worse than > mine, but I've found that if I take sufficient calcium supplements, I > don't have them. (What I refer to as 'spasms', for me, is when nerves in > my legs actually cause my legs to jerk around when I'm still. It makes it > hard to go to sleep.) > > I take maybe 800 mg to 1200 mg/day, depending on how much calcium foods > I've eaten. If my legs start to spasm, I know I didn't take enough and > get up and take some. (Calcium is more effective if taken in smaller > doses - i.e. 400mg - throughout the day, rather than all at once.) My > calcium levels were good before I was given the 5000 mg methyl-prednisone > to zap the myelitis, but that zapped the calcium, too. So this is likely > to be true for all of us who were given steroids to treat the TM. It > might be worth it to give it a try. > > Sally > > > >> realy bad spasms. >> it helps some. >> i thought this stuff made you sleepy. >> i reckon i am immune. >> >> --- On Sat, 12/18/10, Dalton Garis wrote: >> >> >> From: Dalton Garis >> Subject: Re: [TMIC] Gabapentin >> To: "john snodgrass" >> Date: Saturday, December 18, 2010, 9:33 AM >> >> >> That is 4x what I am taking! >> >> John, do you have paralysis and spasms? And is that why the neuro has >> you >> on such a high dose? >> >> Because I would love to be more medicated if I could. >> >> Dalton >> >> Office: +971-02-607-5070/5297 >> Mobile: +971-50-668-5760-- >> >> >> >> >> >> From: john snodgrass >> Date: Sat, 18 Dec 2010 06:11:48 -0800 (PST) >> To: Kevin Wolfthal >> Cc: transverse myelitis >> Subject: Re: [TMIC] Gabapentin >> Resent-From: >> Resent-Date: Sat, 18 Dec 2010 06:11:49 -0800 >> >> i am taking 2400 mg a day. it helps but it doesn't heal me >> >> --- On Sat, 12/18/10, Kevin Wolfthal wrote: >> >>> From: Kevin Wolfthal >>> Subject: [TMIC] Gabapentin >>> To: tmic-list@eskimo.com >>> Date: Saturday, December 18, 2010, 6:12 AM >>> >>> My new doctor visited me today. I asked him again about >>> Gabapentin and he >>> is going to start me on 100mg 3 times a day. For those who >>> take this, I would >>> like to hear how you did on it. I realize it's a low >>> dosage. >>> >>> Thanks, >>> Kevin >>> >>> >> >> >> >> >> >> >> >> > > > >
RE: [TMIC] Gabapentin
I never heard that you get into trouble with too much calcium. I take over 1200 mg a day, but I don't take them all at once. I take one at lunch and one at dinner, plus my multi which has calcium in the a.m. I also take one magnesium tablet in the a.m. It helps to absorb the calcium, but you don't take it at the same time as your calcium. I was under the impression if you take more than you need, you just pee it out which is a waste since they aren't cheap. Plus I drink milk and have milk on my cereal in the a.m. Patti - Wisconsin -Original Message- From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Sunday, December 19, 2010 12:32 PM To: kale...@sfcn.org; john snodgrass Cc: Dalton Garis; transverse myelitis Subject: Re: [TMIC] Gabapentin Sally, what would be too much calcium? I know that if you take too much you get into trouble for other things. Janice -Original Message- From: kale...@sfcn.org Sent: Saturday, December 18, 2010 10:09 AM To: john snodgrass Cc: Dalton Garis ; transverse myelitis Subject: Re: [TMIC] Gabapentin John, I'm not sure what your spasms are like - maybe yours are much worse than mine, but I've found that if I take sufficient calcium supplements, I don't have them. (What I refer to as 'spasms', for me, is when nerves in my legs actually cause my legs to jerk around when I'm still. It makes it hard to go to sleep.) I take maybe 800 mg to 1200 mg/day, depending on how much calcium foods I've eaten. If my legs start to spasm, I know I didn't take enough and get up and take some. (Calcium is more effective if taken in smaller doses - i.e. 400mg - throughout the day, rather than all at once.) My calcium levels were good before I was given the 5000 mg methyl-prednisone to zap the myelitis, but that zapped the calcium, too. So this is likely to be true for all of us who were given steroids to treat the TM. It might be worth it to give it a try. Sally > realy bad spasms. > it helps some. > i thought this stuff made you sleepy. > i reckon i am immune. > > --- On Sat, 12/18/10, Dalton Garis wrote: > > > From: Dalton Garis > Subject: Re: [TMIC] Gabapentin > To: "john snodgrass" > Date: Saturday, December 18, 2010, 9:33 AM > > > That is 4x what I am taking! > > John, do you have paralysis and spasms? And is that why the neuro has you > on such a high dose? > > Because I would love to be more medicated if I could. > > Dalton > > Office: +971-02-607-5070/5297 > Mobile: +971-50-668-5760-- > > > > > > From: john snodgrass > Date: Sat, 18 Dec 2010 06:11:48 -0800 (PST) > To: Kevin Wolfthal > Cc: transverse myelitis > Subject: Re: [TMIC] Gabapentin > Resent-From: > Resent-Date: Sat, 18 Dec 2010 06:11:49 -0800 > > i am taking 2400 mg a day. it helps but it doesn't heal me > > --- On Sat, 12/18/10, Kevin Wolfthal wrote: > >> From: Kevin Wolfthal >> Subject: [TMIC] Gabapentin >> To: tmic-list@eskimo.com >> Date: Saturday, December 18, 2010, 6:12 AM >> >> My new doctor visited me today. I asked him again about >> Gabapentin and he >> is going to start me on 100mg 3 times a day. For those who >> take this, I would >> like to hear how you did on it. I realize it's a low >> dosage. >> >> Thanks, >> Kevin >> >> > > > > > > > >
Re: [TMIC] Gabapentin
i reckon you have to define what we are calling a spaism and what we are calling pain --- On Sun, 12/19/10, Janice Nichols wrote: From: Janice Nichols Subject: Re: [TMIC] Gabapentin To: "john snodgrass" , "Dalton Garis" Cc: "transverse myelitis" Date: Sunday, December 19, 2010, 1:29 PM The Gabapentin will not help spasms. It is Baclofen that works on spasms – it completely takes it away for me, Janice From: john snodgrass Sent: Saturday, December 18, 2010 9:11 AM To: Dalton Garis Cc: transverse myelitis Subject: Re: [TMIC] Gabapentin realy bad spasms. it helps some. i thought this stuff made you sleepy. i reckon i am immune. --- On Sat, 12/18/10, Dalton Garis wrote: From: Dalton Garis Subject: Re: [TMIC] Gabapentin To: "john snodgrass" Date: Saturday, December 18, 2010, 9:33 AM That is 4x what I am taking! John, do you have paralysis and spasms? And is that why the neuro has you on such a high dose? Because I would love to be more medicated if I could. Dalton Office: +971-02-607-5070/5297 Mobile: +971-50-668-5760-- From: john snodgrass Date: Sat, 18 Dec 2010 06:11:48 -0800 (PST) To: Kevin Wolfthal Cc: transverse myelitis Subject: Re: [TMIC] Gabapentin Resent-From: Resent-Date: Sat, 18 Dec 2010 06:11:49 -0800 i am taking 2400 mg a day. it helps but it doesn't heal me --- On Sat, 12/18/10, Kevin Wolfthal wrote: > From: Kevin Wolfthal > Subject: [TMIC] Gabapentin > To: tmic-list@eskimo.com > Date: Saturday, December 18, 2010, 6:12 AM > > My new doctor visited me today. I asked him again about > Gabapentin and he > is going to start me on 100mg 3 times a day. For those who > take this, I would > like to hear how you did on it. I realize it's a low > dosage. > > Thanks, > Kevin > >
Re: [TMIC] Gabapentin
dont know about calcium. I take vit D 50 ui per week. --- On Sun, 12/19/10, Janice Nichols wrote: > From: Janice Nichols > Subject: Re: [TMIC] Gabapentin > To: kale...@sfcn.org, "john snodgrass" > Cc: "Dalton Garis" , "transverse myelitis" > > Date: Sunday, December 19, 2010, 1:31 PM > Sally, what would be too much > calcium? I know that if you take too > much > you get into trouble for other things. > Janice > > -Original Message- > From: kale...@sfcn.org > Sent: Saturday, December 18, 2010 10:09 AM > To: john snodgrass > Cc: Dalton Garis ; transverse myelitis > Subject: Re: [TMIC] Gabapentin > > John, > > I'm not sure what your spasms are like - maybe yours are > much worse than > mine, but I've found that if I take sufficient calcium > supplements, I > don't have them. (What I refer to as 'spasms', for > me, is when nerves in > my legs actually cause my legs to jerk around when I'm > still. It makes it > hard to go to sleep.) > > I take maybe 800 mg to 1200 mg/day, depending on how much > calcium foods > I've eaten. If my legs start to spasm, I know I > didn't take enough and > get up and take some. (Calcium is more effective if > taken in smaller > doses - i.e. 400mg - throughout the day, rather than all at > once.) My > calcium levels were good before I was given the 5000 mg > methyl-prednisone > to zap the myelitis, but that zapped the calcium, > too. So this is likely > to be true for all of us who were given steroids to treat > the TM. It > might be worth it to give it a try. > > Sally > > > > > realy bad spasms. > > it helps some. > > i thought this stuff made you sleepy. > > i reckon i am immune. > > > > --- On Sat, 12/18/10, Dalton Garis > wrote: > > > > > > From: Dalton Garis > > Subject: Re: [TMIC] Gabapentin > > To: "john snodgrass" > > Date: Saturday, December 18, 2010, 9:33 AM > > > > > > That is 4x what I am taking! > > > > John, do you have paralysis and spasms? And is > that why the neuro has you > > on such a high dose? > > > > Because I would love to be more medicated if I could. > > > > Dalton > > > > Office: +971-02-607-5070/5297 > > Mobile: +971-50-668-5760-- > > > > > > > > > > > > From: john snodgrass > > Date: Sat, 18 Dec 2010 06:11:48 -0800 (PST) > > To: Kevin Wolfthal > > Cc: transverse myelitis > > Subject: Re: [TMIC] Gabapentin > > Resent-From: > > Resent-Date: Sat, 18 Dec 2010 06:11:49 -0800 > > > > i am taking 2400 mg a day. it helps but it doesn't > heal me > > > > --- On Sat, 12/18/10, Kevin Wolfthal > wrote: > > > >> From: Kevin Wolfthal > >> Subject: [TMIC] Gabapentin > >> To: tmic-list@eskimo.com > >> Date: Saturday, December 18, 2010, 6:12 AM > >> > >> My new doctor visited me today. I asked him again > about > >> Gabapentin and he > >> is going to start me on 100mg 3 times a day. For > those who > >> take this, I would > >> like to hear how you did on it. I realize it's a > low > >> dosage. > >> > >> Thanks, > >> Kevin > >> > >> > > > > > > > > > > > > > > > > > > > >
Re: [TMIC] Gabapentin
Sally, what would be too much calcium? I know that if you take too much you get into trouble for other things. Janice -Original Message- From: kale...@sfcn.org Sent: Saturday, December 18, 2010 10:09 AM To: john snodgrass Cc: Dalton Garis ; transverse myelitis Subject: Re: [TMIC] Gabapentin John, I'm not sure what your spasms are like - maybe yours are much worse than mine, but I've found that if I take sufficient calcium supplements, I don't have them. (What I refer to as 'spasms', for me, is when nerves in my legs actually cause my legs to jerk around when I'm still. It makes it hard to go to sleep.) I take maybe 800 mg to 1200 mg/day, depending on how much calcium foods I've eaten. If my legs start to spasm, I know I didn't take enough and get up and take some. (Calcium is more effective if taken in smaller doses - i.e. 400mg - throughout the day, rather than all at once.) My calcium levels were good before I was given the 5000 mg methyl-prednisone to zap the myelitis, but that zapped the calcium, too. So this is likely to be true for all of us who were given steroids to treat the TM. It might be worth it to give it a try. Sally realy bad spasms. it helps some. i thought this stuff made you sleepy. i reckon i am immune. --- On Sat, 12/18/10, Dalton Garis wrote: From: Dalton Garis Subject: Re: [TMIC] Gabapentin To: "john snodgrass" Date: Saturday, December 18, 2010, 9:33 AM That is 4x what I am taking! John, do you have paralysis and spasms? And is that why the neuro has you on such a high dose? Because I would love to be more medicated if I could. Dalton Office: +971-02-607-5070/5297 Mobile: +971-50-668-5760-- From: john snodgrass Date: Sat, 18 Dec 2010 06:11:48 -0800 (PST) To: Kevin Wolfthal Cc: transverse myelitis Subject: Re: [TMIC] Gabapentin Resent-From: Resent-Date: Sat, 18 Dec 2010 06:11:49 -0800 i am taking 2400 mg a day. it helps but it doesn't heal me --- On Sat, 12/18/10, Kevin Wolfthal wrote: From: Kevin Wolfthal Subject: [TMIC] Gabapentin To: tmic-list@eskimo.com Date: Saturday, December 18, 2010, 6:12 AM My new doctor visited me today. I asked him again about Gabapentin and he is going to start me on 100mg 3 times a day. For those who take this, I would like to hear how you did on it. I realize it's a low dosage. Thanks, Kevin
Re: [TMIC] Gabapentin
The Gabapentin will not help spasms.It is Baclofen that works on spasms –
it completely takes it away for me,
Janice
From: john snodgrass
Sent: Saturday, December 18, 2010 9:11 AM
To: Dalton Garis
Cc: transverse myelitis
Subject: Re: [TMIC] Gabapentin
realy bad spasms.
it helps some.
i thought this stuff made you sleepy.
i reckon i am immune.
--- On Sat, 12/18/10, Dalton Garis wrote:
From: Dalton Garis
Subject: Re: [TMIC] Gabapentin
To: "john snodgrass"
Date: Saturday, December 18, 2010, 9:33 AM
That is 4x what I am taking!
John, do you have paralysis and spasms? And is that why the neuro has
you on such a high dose?
Because I would love to be more medicated if I could.
Dalton
Office: +971-02-607-5070/5297
Mobile: +971-50-668-5760--
From: john snodgrass
Date: Sat, 18 Dec 2010 06:11:48 -0800 (PST)
To: Kevin Wolfthal
Cc: transverse myelitis
Subject: Re: [TMIC] Gabapentin
Resent-From:
Resent-Date: Sat, 18 Dec 2010 06:11:49 -0800
i am taking 2400 mg a day. it helps but it doesn't heal me
--- On Sat, 12/18/10, Kevin Wolfthal wrote:
> From: Kevin Wolfthal
> Subject: [TMIC] Gabapentin
> To: tmic-list@eskimo.com
> Date: Saturday, December 18, 2010, 6:12 AM
>
> My new doctor visited me today. I asked him again about
> Gabapentin and he
> is going to start me on 100mg 3 times a day. For those who
> take this, I would
> like to hear how you did on it. I realize it's a low
> dosage.
>
> Thanks,
> Kevin
>
>
Re: [TMIC] Gabapentin
YES, IT IS A LOW DOSAGE, BUT I STARTED THAT WAY TOO. I TAKE 1800MG NOW. I CAN UP IT IF I WANT TO.MY DOC'S ARE ENCOURAGING ME TO DO SO. I GUESS IT IS HELPING ME. HAVE NOT GONE OFF OF IT, SO HARD TO TELL. I MAY GET BRAVE SOME DAY AND LOWER THE DOSE AND SEE WHAT HAPPENS. JANICE -Original Message- From: Kevin Wolfthal Sent: Saturday, December 18, 2010 5:12 AM To: tmic-list@eskimo.com Subject: [TMIC] Gabapentin My new doctor visited me today. I asked him again about Gabapentin and he is going to start me on 100mg 3 times a day. For those who take this, I would like to hear how you did on it. I realize it's a low dosage. Thanks, Kevin
Re: [TMIC] Gabapentin
That¹s quite a dramatic wash-out!! Just a few hours and it is gone from your system. At least the Lyrica (pregabolin) lasts until I rise in the morning. I now take 900mg/day of that. Dalton Office: +971-02-607-5070/5297 Mobile: +971-50-668-5760-- From: Date: Sat, 18 Dec 2010 22:52:16 EST To: Subject: Re: [TMIC] Gabapentin Resent-From: Resent-Date: Sat, 18 Dec 2010 19:52:26 -0800 I take 600mg (or 900mg if needed) of Gabapentin [Neurontin] along with one (or two if needed) Hydrocodone APAP 7.5 325 TA [Norco] four times a day (every six hours). When I was first dx'd, my neuro had me on this same dosage, but at only three times a day. I was taking them after breakfast, mid afternoon and at bedtime. But by the time I woke up (which was 8-12 hours later), I hurt so bad and had such bad spasms, I could barely make it to the bathroom, let alone dress myself and go downstairs to start breakfast and take my next dose. I asked my doc if I could take an additional dose - spacing them out 6 hours apart, keeping a more even amount in my system at all times. This has worked pretty well for me for 3 years now. Depending on how strenuous my day has been, I start hurting pretty bad around about an hour before I'm due for my next dose, but on ordinary days, it's not so bad. Betty (in Northern California) In a message dated 12/18/2010 8:17:12 A.M. Pacific Standard Time, jcs...@yahoo.com writes: > my neuro said the backlofen he has me on was for the jerking, my wife made > him put me back on it when he took me off of it once,she said i almost kicked > her out of bed at night! > > has me on the high dosage of gabapentin for the nerve pain i am so familar > with > > --- On Sat, 12/18/10, kale...@sfcn.org wrote: > >> > From: kale...@sfcn.org >> > Subject: Re: [TMIC] Gabapentin >> > To: "john snodgrass" >> > Cc: "Dalton Garis" , "transverse myelitis" >> >> > Date: Saturday, December 18, 2010, 11:09 AM >> > John, >> > >> > I'm not sure what your spasms are like - maybe yours are >> > much worse than >> > mine, but I've found that if I take sufficient calcium >> > supplements, I >> > don't have them. (What I refer to as 'spasms', for >> > me, is when nerves in >> > my legs actually cause my legs to jerk around when I'm >> > still. It makes it >> > hard to go to sleep.) >> > >> > I take maybe 800 mg to 1200 mg/day, depending on how much >> > calcium foods >> > I've eaten. If my legs start to spasm, I know I >> > didn't take enough and >> > get up and take some. (Calcium is more effective if >> > taken in smaller >> > doses - i.e. 400mg - throughout the day, rather than all at >> > once.) My >> > calcium levels were good before I was given the 5000 mg >> > methyl-prednisone >> > to zap the myelitis, but that zapped the calcium, >> > too. So this is likely >> > to be true for all of us who were given steroids to treat >> > the TM. It >> > might be worth it to give it a try. >> > >> > Sally >> > >> > >> > >>> > > realy bad spasms. >>> > > it helps some. >>> > > i thought this stuff made you sleepy. >>> > > i reckon i am immune. >>> > > >>> > > --- On Sat, 12/18/10, Dalton Garis >> > wrote: >>> > > >>> > > >>> > > From: Dalton Garis >>> > > Subject: Re: [TMIC] Gabapentin >>> > > To: "john snodgrass" >>> > > Date: Saturday, December 18, 2010, 9:33 AM >>> > > >>> > > >>> > > That is 4x what I am taking! >>> > > >>> > > John, do you have paralysis and spasms? And is that >> > why the neuro has you >>> > > on such a high dose? >>> > > >>> > > Because I would love to be more medicated if I could. >>> > > >>> > > Dalton >>> > > >>> > > Office: +971-02-607-5070/5297 >>> > > Mobile: +971-50-668-5760-- >>> > > >>> > > >>> > > >>> > > >>> > > >>> > > From: john snodgrass >>> > > Date: Sat, 18 Dec 2010 06:11:48 -0800 (PST) >>> > > To: Kevin Wolfthal >>> > > Cc: transverse myelitis >>> > > Subject: Re: [TMIC] Gabapentin >>> > > Resent-From: >>> > > Resent-Date: Sat, 18 Dec 2010 06:11:49 -0800 >>> > > >>> > > i am taking 2400 mg a day. it helps but it doesn't >> > heal me >>> > > >>> > > --- On Sat, 12/18/10, Kevin Wolfthal >> > wrote: >>> > > >>>> > >> From: Kevin Wolfthal >>>> > >> Subject: [TMIC] Gabapentin >>>> > >> To: tmic-list@eskimo.com >>>> > >> Date: Saturday, December 18, 2010, 6:12 AM >>>> > >> >>>> > >> My new doctor visited me today. I asked him again >> > about >>>> > >> Gabapentin and he >>>> > >> is going to start me on 100mg 3 times a day. For >> > those who >>>> > >> take this, I would >>>> > >> like to hear how you did on it. I realize it's a >> > low >>>> > >> dosage. >>>> > >> >>>> > >> Thanks, >>>> > >> Kevin >>>> > >> >>>> > >> >>> > > >>> > > >>> > > >>> > > >>> > > >>> > > >>> > > >>> > > >> > >> > >> > > > >
Re: [TMIC] Gabapentin
I take 600mg (or 900mg if needed) of Gabapentin [Neurontin] along with one (or two if needed) Hydrocodone – APAP 7.5 – 325 TA [Norco] four times a day (every six hours). When I was first dx'd, my neuro had me on this same dosage, but at only three times a day. I was taking them after breakfast, mid afternoon and at bedtime. But by the time I woke up (which was 8-12 hours later), I hurt so bad and had such bad spasms, I could barely make it to the bathroom, let alone dress myself and go downstairs to start breakfast and take my next dose. I asked my doc if I could take an additional dose - spacing them out 6 hours apart, keeping a more even amount in my system at all times. This has worked pretty well for me for 3 years now. Depending on how strenuous my day has been, I start hurting pretty bad around about an hour before I'm due for my next dose, but on ordinary days, it's not so bad. Betty (in Northern California) In a message dated 12/18/2010 8:17:12 A.M. Pacific Standard Time, jcs...@yahoo.com writes: my neuro said the backlofen he has me on was for the jerking, my wife made him put me back on it when he took me off of it once,she said i almost kicked her out of bed at night! has me on the high dosage of gabapentin for the nerve pain i am so familar with --- On Sat, 12/18/10, kale...@sfcn.org wrote: > From: kale...@sfcn.org > Subject: Re: [TMIC] Gabapentin > To: "john snodgrass" > Cc: "Dalton Garis" , "transverse myelitis" > Date: Saturday, December 18, 2010, 11:09 AM > John, > > I'm not sure what your spasms are like - maybe yours are > much worse than > mine, but I've found that if I take sufficient calcium > supplements, I > don't have them. (What I refer to as 'spasms', for > me, is when nerves in > my legs actually cause my legs to jerk around when I'm > still. It makes it > hard to go to sleep.) > > I take maybe 800 mg to 1200 mg/day, depending on how much > calcium foods > I've eaten. If my legs start to spasm, I know I > didn't take enough and > get up and take some. (Calcium is more effective if > taken in smaller > doses - i.e. 400mg - throughout the day, rather than all at > once.) My > calcium levels were good before I was given the 5000 mg > methyl-prednisone > to zap the myelitis, but that zapped the calcium, > too. So this is likely > to be true for all of us who were given steroids to treat > the TM. It > might be worth it to give it a try. > > Sally > > > > > realy bad spasms. > > it helps some. > > i thought this stuff made you sleepy. > > i reckon i am immune. > > > > --- On Sat, 12/18/10, Dalton Garis > wrote: > > > > > > From: Dalton Garis > > Subject: Re: [TMIC] Gabapentin > > To: "john snodgrass" > > Date: Saturday, December 18, 2010, 9:33 AM > > > > > > That is 4x what I am taking! > > > > John, do you have paralysis and spasms? And is that > why the neuro has you > > on such a high dose? > > > > Because I would love to be more medicated if I could. > > > > Dalton > > > > Office: +971-02-607-5070/5297 > > Mobile: +971-50-668-5760-- > > > > > > > > > > > > From: john snodgrass > > Date: Sat, 18 Dec 2010 06:11:48 -0800 (PST) > > To: Kevin Wolfthal > > Cc: transverse myelitis > > Subject: Re: [TMIC] Gabapentin > > Resent-From: > > Resent-Date: Sat, 18 Dec 2010 06:11:49 -0800 > > > > i am taking 2400 mg a day. it helps but it doesn't > heal me > > > > --- On Sat, 12/18/10, Kevin Wolfthal > wrote: > > > >> From: Kevin Wolfthal > >> Subject: [TMIC] Gabapentin > >> To: tmic-list@eskimo.com > >> Date: Saturday, December 18, 2010, 6:12 AM > >> > >> My new doctor visited me today. I asked him again > about > >> Gabapentin and he > >> is going to start me on 100mg 3 times a day. For > those who > >> take this, I would > >> like to hear how you did on it. I realize it's a > low > >> dosage. > >> > >> Thanks, > >> Kevin > >> > >> > > > > > > > > > > > > > > > > > > >
Re: [TMIC] Gabapentin
my neuro said the backlofen he has me on was for the jerking, my wife made him put me back on it when he took me off of it once,she said i almost kicked her out of bed at night! has me on the high dosage of gabapentin for the nerve pain i am so familar with --- On Sat, 12/18/10, kale...@sfcn.org wrote: > From: kale...@sfcn.org > Subject: Re: [TMIC] Gabapentin > To: "john snodgrass" > Cc: "Dalton Garis" , "transverse myelitis" > > Date: Saturday, December 18, 2010, 11:09 AM > John, > > I'm not sure what your spasms are like - maybe yours are > much worse than > mine, but I've found that if I take sufficient calcium > supplements, I > don't have them. (What I refer to as 'spasms', for > me, is when nerves in > my legs actually cause my legs to jerk around when I'm > still. It makes it > hard to go to sleep.) > > I take maybe 800 mg to 1200 mg/day, depending on how much > calcium foods > I've eaten. If my legs start to spasm, I know I > didn't take enough and > get up and take some. (Calcium is more effective if > taken in smaller > doses - i.e. 400mg - throughout the day, rather than all at > once.) My > calcium levels were good before I was given the 5000 mg > methyl-prednisone > to zap the myelitis, but that zapped the calcium, > too. So this is likely > to be true for all of us who were given steroids to treat > the TM. It > might be worth it to give it a try. > > Sally > > > > > realy bad spasms. > > it helps some. > > i thought this stuff made you sleepy. > > i reckon i am immune. > > > > --- On Sat, 12/18/10, Dalton Garis > wrote: > > > > > > From: Dalton Garis > > Subject: Re: [TMIC] Gabapentin > > To: "john snodgrass" > > Date: Saturday, December 18, 2010, 9:33 AM > > > > > > That is 4x what I am taking! > > > > John, do you have paralysis and spasms? And is that > why the neuro has you > > on such a high dose? > > > > Because I would love to be more medicated if I could. > > > > Dalton > > > > Office: +971-02-607-5070/5297 > > Mobile: +971-50-668-5760-- > > > > > > > > > > > > From: john snodgrass > > Date: Sat, 18 Dec 2010 06:11:48 -0800 (PST) > > To: Kevin Wolfthal > > Cc: transverse myelitis > > Subject: Re: [TMIC] Gabapentin > > Resent-From: > > Resent-Date: Sat, 18 Dec 2010 06:11:49 -0800 > > > > i am taking 2400 mg a day. it helps but it doesn't > heal me > > > > --- On Sat, 12/18/10, Kevin Wolfthal > wrote: > > > >> From: Kevin Wolfthal > >> Subject: [TMIC] Gabapentin > >> To: tmic-list@eskimo.com > >> Date: Saturday, December 18, 2010, 6:12 AM > >> > >> My new doctor visited me today. I asked him again > about > >> Gabapentin and he > >> is going to start me on 100mg 3 times a day. For > those who > >> take this, I would > >> like to hear how you did on it. I realize it's a > low > >> dosage. > >> > >> Thanks, > >> Kevin > >> > >> > > > > > > > > > > > > > > > > > > >
Re: [TMIC] Gabapentin
John, I'm not sure what your spasms are like - maybe yours are much worse than mine, but I've found that if I take sufficient calcium supplements, I don't have them. (What I refer to as 'spasms', for me, is when nerves in my legs actually cause my legs to jerk around when I'm still. It makes it hard to go to sleep.) I take maybe 800 mg to 1200 mg/day, depending on how much calcium foods I've eaten. If my legs start to spasm, I know I didn't take enough and get up and take some. (Calcium is more effective if taken in smaller doses - i.e. 400mg - throughout the day, rather than all at once.) My calcium levels were good before I was given the 5000 mg methyl-prednisone to zap the myelitis, but that zapped the calcium, too. So this is likely to be true for all of us who were given steroids to treat the TM. It might be worth it to give it a try. Sally > realy bad spasms. > it helps some. > i thought this stuff made you sleepy. > i reckon i am immune. > > --- On Sat, 12/18/10, Dalton Garis wrote: > > > From: Dalton Garis > Subject: Re: [TMIC] Gabapentin > To: "john snodgrass" > Date: Saturday, December 18, 2010, 9:33 AM > > > That is 4x what I am taking! > > John, do you have paralysis and spasms? And is that why the neuro has you > on such a high dose? > > Because I would love to be more medicated if I could. > > Dalton > > Office: +971-02-607-5070/5297 > Mobile: +971-50-668-5760-- > > > > > > From: john snodgrass > Date: Sat, 18 Dec 2010 06:11:48 -0800 (PST) > To: Kevin Wolfthal > Cc: transverse myelitis > Subject: Re: [TMIC] Gabapentin > Resent-From: > Resent-Date: Sat, 18 Dec 2010 06:11:49 -0800 > > i am taking 2400 mg a day. it helps but it doesn't heal me > > --- On Sat, 12/18/10, Kevin Wolfthal wrote: > >> From: Kevin Wolfthal >> Subject: [TMIC] Gabapentin >> To: tmic-list@eskimo.com >> Date: Saturday, December 18, 2010, 6:12 AM >> >> My new doctor visited me today. I asked him again about >> Gabapentin and he >> is going to start me on 100mg 3 times a day. For those who >> take this, I would >> like to hear how you did on it. I realize it's a low >> dosage. >> >> Thanks, >> Kevin >> >> > > > > > > > >
RE: [TMIC] Gabapentin
Kevin I was put on gabapentin two weeks ago. My doctor prescribed 300mg once a day. I take it at night. The only affect I have noticed is that it makes me sleep good at night. But I noticed that if I take it later at night, I am a little groggy in the a.m., so I take it earlier in the evening. My doctor did say that the dosage may have to be increased. He prescribed it for the burning/freezing pain in my feet, and I have not noticed any improvement in reducing it. I know some in here take much higher dosages, some even over 2,000 mg a day. I go back to the doctor after he holidays and he may prescribed a higher dosage, but many in here have stopped taking it because it did not do any good. Patti - Wisconsin -Original Message- From: Kevin Wolfthal [mailto:wolft...@optonline.net] Sent: Saturday, December 18, 2010 5:13 AM To: tmic-list@eskimo.com Subject: [TMIC] Gabapentin My new doctor visited me today. I asked him again about Gabapentin and he is going to start me on 100mg 3 times a day. For those who take this, I would like to hear how you did on it. I realize it's a low dosage. Thanks, Kevin
Re: [TMIC] Gabapentin
realy bad spasms. it helps some. i thought this stuff made you sleepy. i reckon i am immune. --- On Sat, 12/18/10, Dalton Garis wrote: From: Dalton Garis Subject: Re: [TMIC] Gabapentin To: "john snodgrass" Date: Saturday, December 18, 2010, 9:33 AM That is 4x what I am taking! John, do you have paralysis and spasms? And is that why the neuro has you on such a high dose? Because I would love to be more medicated if I could. Dalton Office: +971-02-607-5070/5297 Mobile: +971-50-668-5760-- From: john snodgrass Date: Sat, 18 Dec 2010 06:11:48 -0800 (PST) To: Kevin Wolfthal Cc: transverse myelitis Subject: Re: [TMIC] Gabapentin Resent-From: Resent-Date: Sat, 18 Dec 2010 06:11:49 -0800 i am taking 2400 mg a day. it helps but it doesn't heal me --- On Sat, 12/18/10, Kevin Wolfthal wrote: > From: Kevin Wolfthal > Subject: [TMIC] Gabapentin > To: tmic-list@eskimo.com > Date: Saturday, December 18, 2010, 6:12 AM > > My new doctor visited me today. I asked him again about > Gabapentin and he > is going to start me on 100mg 3 times a day. For those who > take this, I would > like to hear how you did on it. I realize it's a low > dosage. > > Thanks, > Kevin > >
Re: [TMIC] Gabapentin
i am taking 2400 mg a day. it helps but it doesn't heal me --- On Sat, 12/18/10, Kevin Wolfthal wrote: > From: Kevin Wolfthal > Subject: [TMIC] Gabapentin > To: tmic-list@eskimo.com > Date: Saturday, December 18, 2010, 6:12 AM > > My new doctor visited me today. I asked him again about > Gabapentin and he > is going to start me on 100mg 3 times a day. For those who > take this, I would > like to hear how you did on it. I realize it's a low > dosage. > > Thanks, > Kevin > >
Re: [TMIC] Gabapentin ??
I have only been on it for 3 years, but have never had a problem with it. Janice From: Grace M. Sent: Thursday, January 14, 2010 12:24 PM To: CANDIS KALLEY Cc: TMIC-LIST Subject: Re: [TMIC] Gabapentin ?? I took 2400-3200 mgs per day for several years and did fine with it. After a while, my body adjusted and sleepiness wasn't a problem. Grace
Re: [TMIC] Gabapentin ??
Yes, I open the capsule - sometimes it takes awhile but I finally get it. I've found that if I twist the capsule it is easier BUT I have to have the capsule over whatever I'm putting it in. I have to cut or open all of my meds because I have an ileostomy ( I had to have all my colon removed due to ulcerated colitist over 35 years ago) and due to that pills and capsules don't desolve but go through me within an hour or so therefore doing nothing. I did read in the phamplet that openin and mixing with soft foods was acceptable but I also remember my mother doing that for my step-father after his stroke because he couldn't swallow anything except soft foods. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: rn11...@yahoo.com To: "CANDIS KALLEY" Sent: Thursday, January 14, 2010 2:11:25 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Gabapentin ?? Hi, Am I understanding that you are opening a capsule and splitting the contents in half? Cheryl in Easthampton,Mass. --- On Thu, 1/14/10, CANDIS KALLEY wrote: From: CANDIS KALLEY Subject: [TMIC] Gabapentin ?? To: "TMIC-LIST" Date: Thursday, January 14, 2010, 1:01 PM I started a week ago on Gabapentin 300 mg 1X daily but I take approx. 1/2 in the am mixed with my yogart and the other half in applesauce at night. The Gabapentin does help with some of the nerve pain - when I'm awake meaning that it does make me sleep much more - 4 to 12 hours at a time. I was just getting to the point of only sleeping 8 to 10 hours at night with a 2 to 4 hour nap. I also find that I'm dreaming as I'm waking up - something that I haven't done in the last 4 years since TM hit. My neuro told me to take 1 capsule the first week, 2 the next week, then 3 from there on. I called today and told the nurse that because it was making me so tired that I was going to stay on the 1 capsule per day until my body adjusts because I was sleeping way too much and not getting anything else done. I know this will happen because each time I've added a med that has a "sleepiness, fatigue" effect, within a month or so my body adjusts and I go back to my "normal" sleep pattern. I believe that I have seen others here thattake Gabapenin and wonder if they have had the same effects? Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] Gabapentin ??
I took 2400-3200 mgs per day for several years and did fine with it. After a while, my body adjusted and sleepiness wasn't a problem. Grace
Re: [TMIC] Gabapentin ??
I used to have really strange dreams when I was on Gabapentin. I was on it for 2 years then my neur switched me to Lyrica for which there is no generic. Two years later, my neuro has now switched me to Topomax to try to help control the weight gain from the Gabapentin and Lyrica. Good Luck. Laurie from Baltimore. -Original Message- From: CANDISKALLEY To: TMIC-LIST Sent: Thu, Jan 14, 2010 1:01 pm Subject: [TMIC] Gabapentin ?? I started a week ago on Gabapentin 300 mg 1X daily but I take approx. 1/2 in the am mixed with my yogart and the other half in applesauce at night. The Gabapentin does help with some of the nerve pain - when I'm awake meaning that it does make me sleep much more - 4 to 12 hours at a time. I was just getting to the point of only sleeping 8 to 10 hours at night with a 2 to 4 hour nap. I also find that I'm dreaming as I'm waking up - something that I haven't done in the last 4 years since TM hit. My neuro told me to take 1 capsule the first week, 2 the next week, then 3 from there on. I called today and told the nurse that because it was making me so tired that I was going to stay on the 1 capsule per day until my body adjusts because I was sleeping way too much and not getting anything else done. I know this will happen because each time I've added a med that has a "sleepiness, fatigue" effect, within a month or so my body adjusts and I go back to my "normal" sleep pattern. I believe that I have seen others here thattake Gabapenin and wonder if they have had the same effects? Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
[TMIC] Re: (TMIC) Gabapentin versus Lyrica
Out here in cold cold Calgary, with lots of snow too. Roads are like ice rinks. Current temp at 4 pm is minus 11F (minus 24C) with wind chil of minus 27F (minus 33C) I finally tried the Lyrica this month. I have been on 2400 mg of Gabapentin for 5 years now. Started out at 3200mg but decreased a few years ago. My neuro said that to be the equivalent of the 2400mg of Gabapentin I would need to take 600mg of Lyrica per day. So on Dec. 8 I started 300mg in the morning and 12 hours later I took another 300mg. The Lyrica made a huge difference to me in pain control. However, on Dec. 16 I started to notice my ankles swelling and retaining fluid. That has happened usually in the summer when it is hot or if I overdo things. The ankles usually went back to normal after a good nights rest and I would be fine again. On Dec. 17 and Dec. 18 my feet, ankles, legs below the knees were retaining lots of fluid and started to swell more as the day went on. I called the neuro yesterday (Dec. 18) for advice. I know one of the side effects of Lyrica is swelling in the legs. Since there is a lot of heart problems in my family this really frightened me. The neuro called me this afternoon and we talked about it. He has put me back on the 2400mg of Gabapentin. He said it is unfortunate that it didn't work for me since it controlled the pain so well. I asked him if I took less would it still make my legs swell. I don't remember his words but he indicated that no matter what dosage I took it would do the same. So I'm off the Lyrica and back on the Gabapentin tomorrow. Glad the pharmacy suggested only taking one months prescription of the Lyrica (it is more expensive than the Gaba). Has anyone else taken Lyrica and then had to go back to the Gabapentin because of adverse effects? I'm sure there are lots of us who have and it is just our own body chemistry. Just wondering how many have been adversely affected. Heather in cold Calgary
