Re: [TMIC] Hi all--I'm back again
Hi Sharon ~ YupI remember you.from ten years ago. :-) Welcome back..! I tend to agree with Trudy about calling your neuro back...it sounds like an MS flare from what you described. I'm happy to hear you didn't lose bladder control this time...!! Hopefully your neuro can get it under control by simply changing your meds. Prayers go up..blessings come down.. I will lift you. Hugs, Lynn **Pt...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com. (http://www.stylelist.com/trends?ncid=aolsty000514)
Re: [TMIC] Hi all--I'm back again
Sharon,Welcome back. sorry to hear about the flare ups. It is so difficult to know what the right answer is but I think I would definitely call back to neuro.. tell him you're worried and need to ask a few more questions. What are you taking for MS?? Is there anything that can be done? Increase the meds??? I take copaxone every day, since they can't seem to decide if it's truly MS or TM... Anyway when in doubt I'd call the neuro... just my opinion. Trudy On Fri, Sep 12, 2008 at 4:01 PM, Sharon M <[EMAIL PROTECTED]> wrote: > Hi everyone: > > Some of you may remember me and most won't. I had a TM attack in 1997 and > found this group. I rejoined several years ago and after a few months > forgot how to get into the group! lol So now I've subscribed once again. > > I have never been without symptoms since the TM attack in 97. In that > attack in just a few hours I became numb on the left side from just below > the breast to my toes. It was like a line had been drawn down the middle of > me and everything was totally numb on the left from that level down. I lost > bladder control, too. > > I was later dxed with MS in 1998. Among other symptoms, I have been numb > since the TM attack in different parts of my body and I have never been > without some degree of numbness. > > For the past 3 weeks I've been abnormally numb. It is very much like the > TM attack in 97 except I haven't lost bladder control and this time the > severe numbness is on the right side. It started under my right breast, > moving under my arm, around my back Now the numbness is all the way to > my toes, except part of my hip. > > I did call my neuro and he asked if I thought I was in the middle of a MS > flare. At the time I said no because I feel fine. Now I'm wondering if I > made a mistake. Could this be a TM thing? What do you all think? > > glad to be back > > Sharon Marsden > > >
Re: [TMIC] Hi all--I'm back again
Thanks Amanda. I am always in a quandary about what to do in situations like this. I don't want to go to the hospital. Stupid, huh? I'm sorry you have TM. How are you doing now? Sharon The bluebird in the cedar tree spoke to me... "Your heart's desire dwells here--this is where you belong" --- On Fri, 9/12/08, Amanda Diskey <[EMAIL PROTECTED]> wrote: From: Amanda Diskey <[EMAIL PROTECTED]> Subject: Re: [TMIC] Hi all--I'm back again To: [EMAIL PROTECTED] Date: Friday, September 12, 2008, 2:32 PM hey sharon, my name is amanda i was diagnosed about a month ago, and i would definitely be afraid it was a tm attack. i would go see my neuro and see if he could find out what is going on. i really hope u get feeling better and it is not a tm attack. good luck --- On Fri, 9/12/08, Sharon M <[EMAIL PROTECTED]> wrote: From: Sharon M <[EMAIL PROTECTED]> Subject: [TMIC] Hi all--I'm back again To: tmic-list@eskimo.com Date: Friday, September 12, 2008, 4:01 PM Hi everyone: Some of you may remember me and most won't. I had a TM attack in 1997 and found this group. I rejoined several years ago and after a few months forgot how to get into the group! lol So now I've subscribed once again. I have never been without symptoms since the TM attack in 97. In that attack in just a few hours I became numb on the left side from just below the breast to my toes. It was like a line had been drawn down the middle of me and everything was totally numb on the left from that level down. I lost bladder control, too. I was later dxed with MS in 1998. Among other symptoms, I have been numb since the TM attack in different parts of my body and I have never been without some degree of numbness. For the past 3 weeks I've been abnormally numb. It is very much like the TM attack in 97 except I haven't lost bladder control and this time the severe numbness is on the right side. It started under my right breast, moving under my arm, around my back Now the numbness is all the way to my toes, except part of my hip. I did call my neuro and he asked if I thought I was in the middle of a MS flare. At the time I said no because I feel fine. Now I'm wondering if I made a mistake. Could this be a TM thing? What do you all think? glad to be back Sharon Marsden
Re: [TMIC] Hi all--I'm back again
Hi Jan-- good to "see" you! The thoughts and prayers are always welcome. Sharon The bluebird in the cedar tree spoke to me... "Your heart's desire dwells here--this is where you belong" --- On Fri, 9/12/08, Jan Hargrove <[EMAIL PROTECTED]> wrote: From: Jan Hargrove <[EMAIL PROTECTED]> Subject: Re: [TMIC] Hi all--I'm back again To: [EMAIL PROTECTED], "tmic-list" Date: Friday, September 12, 2008, 2:29 PM Sharon, It's great to see your name pop up again!! I've wondered about you and your family...I'm sorry you're having another bout with whatever, but so good to hear from you. Please keep us updated.I (of course) have no clue to help, but will keep you in my thoughts and prayers! Hugs, janh --- On Fri, 9/12/08, Sharon M <[EMAIL PROTECTED]> wrote: From: Sharon M <[EMAIL PROTECTED]> Subject: [TMIC] Hi all--I'm back again To: tmic-list@eskimo.com Date: Friday, September 12, 2008, 3:01 PM Hi everyone: Some of you may remember me and most won't. I had a TM attack in 1997 and found this group. I rejoined several years ago and after a few months forgot how to get into the group! lol So now I've subscribed once again. I have never been without symptoms since the TM attack in 97. In that attack in just a few hours I became numb on the left side from just below the breast to my toes. It was like a line had been drawn down the middle of me and everything was totally numb on the left from that level down. I lost bladder control, too. I was later dxed with MS in 1998. Among other symptoms, I have been numb since the TM attack in different parts of my body and I have never been without some degree of numbness. For the past 3 weeks I've been abnormally numb. It is very much like the TM attack in 97 except I haven't lost bladder control and this time the severe numbness is on the right side. It started under my right breast, moving under my arm, around my back Now the numbness is all the way to my toes, except part of my hip. I did call my neuro and he asked if I thought I was in the middle of a MS flare. At the time I said no because I feel fine. Now I'm wondering if I made a mistake. Could this be a TM thing? What do you all think? glad to be back Sharon Marsden
Re: [TMIC] Hi all--I'm back again
Thanks Grace. I've been away from the TM community too long. No MRI has shown any lesions on my spine but my neuro told me he still thought I had a hidden spinal lesion. Sharon The bluebird in the cedar tree spoke to me... "Your heart's desire dwells here--this is where you belong" --- On Fri, 9/12/08, Grace M. <[EMAIL PROTECTED]> wrote: From: Grace M. <[EMAIL PROTECTED]> Subject: Re: [TMIC] Hi all--I'm back again To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Date: Friday, September 12, 2008, 1:25 PM Hi Sharon, It's not uncommon for an MS patient to have an episode of TM. I have Devic's NMO, and have frequent bouts of severe myelitis. We have to remember that the term Transverse Myelitis means just what it says. Transverse---transversing, or across, Myelitis---inflammation of the spinal cord. It can be caused by a variety of illnesses but is also often idiopathic. (No known cause.) Gracie (Devic's NMO since 2005)
Re: [TMIC] Hi all--I'm back again
Sharon, It's great to see your name pop up again!! I've wondered about you and your family...I'm sorry you're having another bout with whatever, but so good to hear from you. Please keep us updated.I (of course) have no clue to help, but will keep you in my thoughts and prayers! Hugs, janh --- On Fri, 9/12/08, Sharon M <[EMAIL PROTECTED]> wrote: From: Sharon M <[EMAIL PROTECTED]> Subject: [TMIC] Hi all--I'm back again To: tmic-list@eskimo.com Date: Friday, September 12, 2008, 3:01 PM Hi everyone: Some of you may remember me and most won't. I had a TM attack in 1997 and found this group. I rejoined several years ago and after a few months forgot how to get into the group! lol So now I've subscribed once again. I have never been without symptoms since the TM attack in 97. In that attack in just a few hours I became numb on the left side from just below the breast to my toes. It was like a line had been drawn down the middle of me and everything was totally numb on the left from that level down. I lost bladder control, too. I was later dxed with MS in 1998. Among other symptoms, I have been numb since the TM attack in different parts of my body and I have never been without some degree of numbness. For the past 3 weeks I've been abnormally numb. It is very much like the TM attack in 97 except I haven't lost bladder control and this time the severe numbness is on the right side. It started under my right breast, moving under my arm, around my back Now the numbness is all the way to my toes, except part of my hip. I did call my neuro and he asked if I thought I was in the middle of a MS flare. At the time I said no because I feel fine. Now I'm wondering if I made a mistake. Could this be a TM thing? What do you all think? glad to be back Sharon Marsden
Re: [TMIC] Hi all--I'm back again
*Hi Sharon,* ** *It's not uncommon for an MS patient to have an episode of TM. I have Devic's NMO, and have frequent bouts of severe myelitis. We have to remember that the term Transverse Myelitis means just what it says. Transverse---transversing, or across, Myelitis---inflammation of the spinal cord. It can be caused by a variety of illnesses but is also often idiopathic. (No known cause.)* ** *Gracie (Devic's NMO since 2005)*
