Re: [TMIC] More questions/lyrica-neurontin
I plan on asking my neuro about the lyrica when I see him in august...tho I only take my neurontin so I can sleep at night , and relax my sensations..not for pain. I also guess I am lucky in the respect that I only take 900mg once a night. (sometimes 600 if its not so bad)my neuro says the 2 drugs are in the same class and do the same thing?So whats the argument I can give him to switch? whats the difference?Heather & Pieter <[EMAIL PROTECTED]> wrote: I hope he has you cutting back the neurontin slowly as you take the Lyrica??? Yes, taking 3600 mg per day my memory was the pits too. Not terrific now but I don't feel like I'm in such a fog. I feel fortunate that I am able to cut back as there are many who can't. Heather in Calgary- Original Message -From:TrudyTo: 'Heather & Pieter' ; [EMAIL PROTECTED] ; [EMAIL PROTECTED]; [EMAIL PROTECTED] ; tmic-list@eskimo.comSent: Wednesday, May 10, 2006 4:41PM Subject: RE: [TMIC] More questions Yes, neurontin was the drug of choice! I was up to3600mg. a day.. but I was having "memory" problems... so my new neuro wants meto cut back. I now take 600mg 4 times a day... morning, afternoon, evening andthen whenever I wake in the middle of the night to go to the bathroom.:) Trudy "Clothes make the man! Naked people have little orno influence on society." "Mark Twain" -Original Message-From: Heather &Pieter [mailto:[EMAIL PROTECTED] Sent: Wednesday, May 10, 2006 6:25PMTo: Trudy; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.comSubject: Re:[TMIC] More questions Trudy, Have you been taking Neurontin up tonow? Heather in Calgary - Original Message -From: "Trudy"<[EMAIL PROTECTED]> To: <[EMAIL PROTECTED]>;<[EMAIL PROTECTED]>;<[EMAIL PROTECTED]>; Sent: Wednesday, May 10, 2006 3:01 PM Subject: RE: [TMIC] More questions > > I have been on Neurontin for four years. Now I'mtrying Lyrica also...> Began > yesterday with 2 75mg. a day. I have a newneuro... we tried Cymbalta but > got a bad feel about it.. last June had ahorrendous reaction to Tegretol. > Long story short, it was shutting down my liver!!First time ever in four > years that my neuro called 3 days in a row to seehow I was doing. > > Trudy > > > > -Original Message- > From: [EMAIL PROTECTED][mailto:[EMAIL PROTECTED] > Sent: Wednesday, May 10, 2006 9:05AM > To: [EMAIL PROTECTED]; [EMAIL PROTECTED];tmic-list@eskimo.com > Subject: Re: [TMIC] Morequestions > >> I found all of these medicines to makemy muscles in >> my legs much weaker. > > I started Lyrica 10 days ago, and do noticeprogressive weakness in my> legs. > I will stay on the Lyrica to see if my strengthimproves. If not, I will > D/C. > > Thanks for the insight. > > F > > > > --> No virus found in this incomingmessage. > Checked by AVG Free Edition. > Version: 7.1.392 / Virus Database: 268.5.5/335 -Release Date: 5/9/2006 > > No virus found in this incoming message.Checked by AVG FreeEdition.Version: 7.1.392 / Virus Database: 268.5.5/335 - Release Date:5/9/2006Krissy ZoddaTri State Support Group Leaderhttp://www.geocities.com/tmladyk/home.html~I'm In pretty Good Shape For the Shape I am in~ Yahoo! Messenger with Voice. PC-to-Phone calls for ridiculously low rates.
Re: [TMIC] More questions
> Thanks Frank. D & C stands for something else so knew it couldn't be
> 'that'. {{ggg}}
I believe that discharge is abreviated d.c.- but I may be wrong.
Any help available?
Yes, I will make the barn handicap friendly if possible.
F
Re: [TMIC] More questions
I hope he has you cutting back the neurontin slowly as you take the Lyrica??? Yes, taking 3600 mg per day my memory was the pits too. Not terrific now but I don't feel like I'm in such a fog. I feel fortunate that I am able to cut back as there are many who can't. Heather in Calgary - Original Message - From: Trudy To: 'Heather & Pieter' ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Wednesday, May 10, 2006 4:41 PM Subject: RE: [TMIC] More questions Yes, neurontin was the drug of choice! I was up to 3600mg. a day.. but I was having "memory" problems... so my new neuro wants me to cut back. I now take 600mg 4 times a day... morning, afternoon, evening and then whenever I wake in the middle of the night to go to the bathroom. :) Trudy "Clothes make the man! Naked people have little or no influence on society." "Mark Twain" -Original Message-From: Heather & Pieter [mailto:[EMAIL PROTECTED] Sent: Wednesday, May 10, 2006 6:25 PMTo: Trudy; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.comSubject: Re: [TMIC] More questions Trudy, Have you been taking Neurontin up to now? Heather in Calgary - Original Message - From: "Trudy" <[EMAIL PROTECTED]> To: <[EMAIL PROTECTED]>; <[EMAIL PROTECTED]>; <[EMAIL PROTECTED]>; Sent: Wednesday, May 10, 2006 3:01 PM Subject: RE: [TMIC] More questions > > I have been on Neurontin for four years. Now I'm trying Lyrica also... > Began > yesterday with 2 75mg. a day. I have a new neuro... we tried Cymbalta but > got a bad feel about it.. last June had a horrendous reaction to Tegretol. > Long story short, it was shutting down my liver!! First time ever in four > years that my neuro called 3 days in a row to see how I was doing. > > Trudy > > > > -Original Message- > From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] > Sent: Wednesday, May 10, 2006 9:05 AM > To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.com > Subject: Re: [TMIC] More questions > >> I found all of these medicines to make my muscles in >> my legs much weaker. > > I started Lyrica 10 days ago, and do notice progressive weakness in my > legs. > I will stay on the Lyrica to see if my strength improves. If not, I will > D/C. > > Thanks for the insight. > > F > > > > -- > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.1.392 / Virus Database: 268.5.5/335 - Release Date: 5/9/2006 > > No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.392 / Virus Database: 268.5.5/335 - Release Date: 5/9/2006
Re: [TMIC] More questions
So send us the web site to this Hamilton thingie so the rest of us can find out how far into deep doo-doo we are. Bobberino From: [EMAIL PROTECTED] To: Heather & Pieter ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Wednesday, May 10, 2006 3:41 PM Subject: Re: [TMIC] More questions > P.S. What is D/C??> heather,D/C stands for DisContinue or DisCharge- as in Discharge the patient.Just one of the many abreviations.I was doing well, till renovations started, in November, on this house. The plan is to fix this house up, sell it, and use the money to fix up the farm- house and barn. The barn is post and beam, but losing roof and walls. I want to turn it into a retreat- have 4 to 6 "Guest"rooms, large living room and dining room, a full size comercial kitchen. The barn has a spectacular view down the Sheepscot river. If/when we have more money, I'd build small cottages, scattered around the property.Anyway the work on this house is still not done- massive amounts of trim need painting.So I'm roaming the internet and find this Hamilton Depression score. I score 35- normal is below 16. I call my neuro. He sees me the next day- I give him a great bottle of wine- he puts me on Lyrica, and sends me to a psycho.That's the news from MaineF
RE: [TMIC] More questions
Yes, neurontin was the drug of choice! I was up to 3600mg. a day.. but I was having "memory" problems... so my new neuro wants me to cut back. I now take 600mg 4 times a day... morning, afternoon, evening and then whenever I wake in the middle of the night to go to the bathroom. :) Trudy "Clothes make the man! Naked people have little or no influence on society." "Mark Twain" -Original Message- From: Heather & Pieter [mailto:[EMAIL PROTECTED] Sent: Wednesday, May 10, 2006 6:25 PM To: Trudy; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.com Subject: Re: [TMIC] More questions Trudy, Have you been taking Neurontin up to now? Heather in Calgary - Original Message - From: "Trudy" <[EMAIL PROTECTED]> To: <[EMAIL PROTECTED]>; <[EMAIL PROTECTED]>; <[EMAIL PROTECTED]>; Sent: Wednesday, May 10, 2006 3:01 PM Subject: RE: [TMIC] More questions > > I have been on Neurontin for four years. Now I'm trying Lyrica also... > Began > yesterday with 2 75mg. a day. I have a new neuro... we tried Cymbalta but > got a bad feel about it.. last June had a horrendous reaction to Tegretol. > Long story short, it was shutting down my liver!! First time ever in four > years that my neuro called 3 days in a row to see how I was doing. > > Trudy > > > > -Original Message- > From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] > Sent: Wednesday, May 10, 2006 9:05 AM > To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.com > Subject: Re: [TMIC] More questions > >> I found all of these medicines to make my muscles in >> my legs much weaker. > > I started Lyrica 10 days ago, and do notice progressive weakness in my > legs. > I will stay on the Lyrica to see if my strength improves. If not, I will > D/C. > > Thanks for the insight. > > F > > > > -- > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.1.392 / Virus Database: 268.5.5/335 - Release Date: 5/9/2006 > >
Re: [TMIC] More questions
I too was on Baclofen, Zanaflex and Neurontin. I was able to stop the Zanaflex about 5 months into TM. I have also cut down the Baclofen and the Neurontin to 1/2 of what I was on 2 years ago. It has made quite a difference in my fatigue being able to cut down from 3600mg of Neurontin and 80 mg of Baclofen to 1800 to 2400 of Neurontin and 30 to 40 of the Baclofen. I no longer need an afternoon nap. I am somewhat less comfortable with the pain but the meds still take the edge off. Heather in Calgary - Original Message - From: <[EMAIL PROTECTED]> To: <[EMAIL PROTECTED]> Cc: <[EMAIL PROTECTED]>; Sent: Sunday, May 07, 2006 5:10 PM Subject: Re: [TMIC] More questions I've had TM for 2.5 yrs and reread the "Patient Counseling Information" sheet that comes with my meds just to remind myself of some of the bad effects. The sheet for Baclofen says to check with doctor ASAP if you experience weakness of arms or legs. The sheet from Neurontin/Gabapentin says to check with doctor ASAP if you experience decreased coordination. My neuro confirmed my daughter's observation that I looked wobbly and drunk after I took my meds. I cut back 25% on both the baclofen and neurontin and have better coordination and less memory loss. Patti - Michigan [EMAIL PROTECTED] wrote: Dear Nima, I have had Tm for almost four years. I too have been getting considerably worse in my pain, walking etc. I have been on Bacloen, Tizanidine and Lyrica all at separate times. I found all of these medicines to make my muscles in my legs much weaker. Actually I was walking like a drunk all of the time. As soon as I came off of each medication (within a week) the muscles in my legs were much better and I certainly was walking better. In reading the posts for other people, I have not read where anyone's symptoms got worse and it seems that most people have had not trouble with any of the above medicines. I am taking neurotin and that does not bother me but am not sure if it helps. Ann in Virginia -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.392 / Virus Database: 268.5.5/333 - Release Date: 5/5/2006
Re: [TMIC] More questions
Thanks Frank. D & C stands for something else so knew it couldn't be
'that'. {{ggg}}
I also looked up Sheepscot river - that is beautiful and the Hamilton
Depression score. Renovations can drive you crazy but I'd say with a score
of 35 it is not all the renovating. :)
Heather in Calgary
p.s. your renos and future building sound marvellous. Maybe you could make
them all handicap friendly and we could all come and visit you.
- Original Message -
From: <[EMAIL PROTECTED]>
To: "Heather & Pieter" <[EMAIL PROTECTED]>; <[EMAIL PROTECTED]>;
<[EMAIL PROTECTED]>;
Sent: Wednesday, May 10, 2006 2:41 PM
Subject: Re: [TMIC] More questions
P.S. What is D/C??
heather,
D/C stands for DisContinue or DisCharge- as in Discharge the patient.
Just one of the many abreviations.
I was doing well, till renovations started, in November, on this house.
The plan is to fix this house up, sell it, and use the money to fix up the
farm- house and barn.
The barn is post and beam, but losing roof and walls. I want to turn it
into a retreat- have 4 to 6 "Guest"rooms, large living room and dining
room, a full size comercial kitchen. The barn has a spectacular view down
the Sheepscot river. If/when we have more money, I'd build small
cottages, scattered around the property.
Anyway the work on this house is still not done- massive amounts of trim
need painting.
So I'm roaming the internet and find this Hamilton Depression score. I
score 35- normal is below 16. I call my neuro. He sees me the next day-
I give him a great bottle of wine- he puts me on Lyrica, and sends me to a
psycho.
That's the news from Maine
F
--
No virus found in this incoming message.
Checked by AVG Free Edition.
Version: 7.1.392 / Virus Database: 268.5.5/335 - Release Date: 5/9/2006
Re: [TMIC] More questions
Trudy, Have you been taking Neurontin up to now? Heather in Calgary - Original Message - From: "Trudy" <[EMAIL PROTECTED]> To: <[EMAIL PROTECTED]>; <[EMAIL PROTECTED]>; <[EMAIL PROTECTED]>; Sent: Wednesday, May 10, 2006 3:01 PM Subject: RE: [TMIC] More questions I have been on Neurontin for four years. Now I'm trying Lyrica also... Began yesterday with 2 75mg. a day. I have a new neuro... we tried Cymbalta but got a bad feel about it.. last June had a horrendous reaction to Tegretol. Long story short, it was shutting down my liver!! First time ever in four years that my neuro called 3 days in a row to see how I was doing. Trudy -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Wednesday, May 10, 2006 9:05 AM To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.com Subject: Re: [TMIC] More questions I found all of these medicines to make my muscles in my legs much weaker. I started Lyrica 10 days ago, and do notice progressive weakness in my legs. I will stay on the Lyrica to see if my strength improves. If not, I will D/C. Thanks for the insight. F -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.392 / Virus Database: 268.5.5/335 - Release Date: 5/9/2006
RE: [TMIC] More questions
I have been on Neurontin for four years. Now I'm trying Lyrica also... Began yesterday with 2 75mg. a day. I have a new neuro... we tried Cymbalta but got a bad feel about it.. last June had a horrendous reaction to Tegretol. Long story short, it was shutting down my liver!! First time ever in four years that my neuro called 3 days in a row to see how I was doing. Trudy -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Wednesday, May 10, 2006 9:05 AM To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.com Subject: Re: [TMIC] More questions > I found all of these medicines to make my muscles in > my legs much weaker. I started Lyrica 10 days ago, and do notice progressive weakness in my legs. I will stay on the Lyrica to see if my strength improves. If not, I will D/C. Thanks for the insight. F
Re: [TMIC] More questions
> P.S. What is D/C?? > heather, D/C stands for DisContinue or DisCharge- as in Discharge the patient. Just one of the many abreviations. I was doing well, till renovations started, in November, on this house. The plan is to fix this house up, sell it, and use the money to fix up the farm- house and barn. The barn is post and beam, but losing roof and walls. I want to turn it into a retreat- have 4 to 6 "Guest"rooms, large living room and dining room, a full size comercial kitchen. The barn has a spectacular view down the Sheepscot river. If/when we have more money, I'd build small cottages, scattered around the property. Anyway the work on this house is still not done- massive amounts of trim need painting. So I'm roaming the internet and find this Hamilton Depression score. I score 35- normal is below 16. I call my neuro. He sees me the next day- I give him a great bottle of wine- he puts me on Lyrica, and sends me to a psycho. That's the news from Maine F
Re: [TMIC] More questions
WOW Frank!! I thought you would have tried Lyrica before this. Please do keep us up to snuff on what it is doing for you good and bad. P.S. What is D/C?? Heather in Calgary - Original Message - From: <[EMAIL PROTECTED]> To: <[EMAIL PROTECTED]>; <[EMAIL PROTECTED]>; Sent: Wednesday, May 10, 2006 7:05 AM Subject: Re: [TMIC] More questions I found all of these medicines to make my muscles in my legs much weaker. I started Lyrica 10 days ago, and do notice progressive weakness in my legs. I will stay on the Lyrica to see if my strength improves. If not, I will D/C. Thanks for the insight. F -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.392 / Virus Database: 268.5.5/334 - Release Date: 5/8/2006
Re: [TMIC] More questions
> I found all of these medicines to make my muscles in > my legs much weaker. I started Lyrica 10 days ago, and do notice progressive weakness in my legs. I will stay on the Lyrica to see if my strength improves. If not, I will D/C. Thanks for the insight. F
Re: [TMIC] More questions
Hello Nima: I am on Tizanidine and Lyrica. Both seem to work ok. Remember, I am not a doctor, so cannot give medical advice. I see several factors at work here: All medicines have side effects. One of Tizanidine's is drowsiness. So is Lyrica. I take naps after medication time so I can function. As we deal with our cluster of symptoms, we have to compensate for our deficiencies by overworking other parts, thus causing more problems. I see others on the list who regularly see a physiatrist to evaluate their functioning and suggest exercises and ways to strengthen and improve physical functioning. Be sure to let the doctor know about these problems! Be an advocate for him! Don't take no for an answer. And with everything else that is going on--is he being treated for depression? TM has the highest coincidence of depression of any disease, including MS. Hooray for you looking for answers! > Hi Everybody > > A lot has been said about Lyrica and before that about Baclofen. I would > like to clarify these points. > > a.. Those who are taking Lyrica are you on any other medication like > Baclofen or Tizanidine or Zanaflex? > b.. My husband Dev was put on Baclofen and Tizanidine. He started > getting very tired. His left leg is very weak he cannot use it. He does > regular physiotherapy but now he feels his right leg is getting weak. Is > it fatigue? > c.. He is using a walker at the moment and all the weight is borne by > his arms so his arms get tired and at times he gets blisters on his > palms. Will it be harmful or dangerous to his upper body if this goes > on? > d.. His back jams up at night. He is feeling a lot of pain lately. So he > was put on Lyrica. Is this usual with TM? > > These symptoms are coming now. Initially there was no pain (only burning), > no spasms, his legs were almost ok and his balance had come back 70% but > now after 1 1/2 year it is getting worse. Yet all the tests, MRI and > scans prove there is no further demyelination of the nerves and his VEP > and BERM (sight and hearing evoked potential tests) are normal so MS is > ruled out. > > I was under the impression that TM is one time attatck it doesn't get > worse, there is only residual effect of TM. > So is his condition getting worse because of > TM getting worse > or due to taking Baclofen > or overstraining of muscles > or what??? > > Hope someone has some answers for me > > Dev's love of life > Nima > from Kenyan coast >
Re: [TMIC] More questions
I've had TM for 2.5 yrs and reread the "Patient Counseling Information" sheet that comes with my meds just to remind myself of some of the bad effects. The sheet for Baclofen says to check with doctor ASAP if you experience weakness of arms or legs. The sheet from Neurontin/Gabapentin says to check with doctor ASAP if you experience decreased coordination. My neuro confirmed my daughter's observation that I looked wobbly and drunk after I took my meds. I cut back 25% on both the baclofen and neurontin and have better coordination and less memory loss. Patti - Michigan [EMAIL PROTECTED] wrote: > Dear Nima, > > I have had Tm for almost four years. I too have been getting considerably > worse in my pain, walking etc. I have been on Bacloen, Tizanidine and > Lyrica > all at separate times. I found all of these medicines to make my muscles in > my legs much weaker. Actually I was walking like a drunk all of the time. > As soon as I came off of each medication (within a week) the muscles in my > legs were much better and I certainly was walking better. > > In reading the posts for other people, I have not read where anyone's > symptoms got worse and it seems that most people have had not trouble with > any of > the above medicines. I am taking neurotin and that does not bother me but > am > not sure if it helps. > > Ann in Virginia
Re: [TMIC] More questions
Dear Nima, I have had Tm for almost four years. I too have been getting considerably worse in my pain, walking etc. I have been on Bacloen, Tizanidine and Lyrica all at separate times. I found all of these medicines to make my muscles in my legs much weaker. Actually I was walking like a drunk all of the time. As soon as I came off of each medication (within a week) the muscles in my legs were much better and I certainly was walking better. In reading the posts for other people, I have not read where anyone's symptoms got worse and it seems that most people have had not trouble with any of the above medicines. I am taking neurotin and that does not bother me but am not sure if it helps. Ann in Virginia
Re: [TMIC] More questions
> ... all the weight is borne by his arms so his > arms get tired and at times he gets blisters on his palms. Will it be harmful or > dangerous to his upper body if this goes on?This is not good. The rotator cuffs (shoulder joints) are not designed to carry the weight of the body. Moreover, past the age of 40 the tendons that are essential components of the shoulders will be less strong with time and easier to tear. Torn and unrepaired they compromise the ability to push a wheelchair.Use underarm crutches or a wheelchair for mobility.Alton, 71 and hurting
