RE: [TMIC] Quality of Medical Care

[Patricia Cooley]

I DO KNOW WHERE JUDE LIVES.  SHE LIVES IN MT. MORRIS, MICHIGAN WHICH IS JUST
OUTSIDE OF FLINT.  I KNOW IN THE PAST SHE ASKED THAT WE DO NOT DO ANYTHING
LIKE THAT AT THIS TIME.  BUT, SHE MAY HAVE CHANGED HER MIND NOW.

 

PATTI - WISCONSIN

 

From: Janice [mailto:jan...@centurytel.net] 
Sent: Saturday, May 16, 2009 10:13 PM
To: tmic-list@eskimo.com; Akua
Subject: Re: [TMIC] Quality of Medical Care

 

Don't know where Jude lives, but would sending letters, calling, and emails
to here senator do any good?   This is an outrage

that this is happening and happening probably to others too.
Janice

- Original Message - 

From: Akua <mailto:a...@artfarm.com>  

To: tmic-list@eskimo.com 

Sent: Friday, May 15, 2009 3:13 PM

Subject: Re: [TMIC] Quality of Medical Care

 

 SHE WENT ALL THE WAY BY AMBULANCE TO GO TO SEE HER DOCTOR.WHEN SHE GOT
THERE SHE ONLY SAW HIS NURSE. THEY CHATTED BUT JUDE WAS FURIOUS. SHE TOLD ME
THEY DID NOT CHECK HER SORES THEY DID NOTHING.IT IS SO PAINFUL FOR JUDE AND
SHE HAS TO PAY NOW TO GO BY AMBULANCE TO GET TO A DOCTOR.

 

This is awful and surprising. For some reason I thought she had paratransit.
This is why I am starting

a paratransit nonprofit.  Ambulance is many orders of magnitude more
expensive than anything. Sorry to read this.

 

-- 

Re: [TMIC] Quality of Medical Care

[Janice]

Re: [TMIC] Quality of Medical CareDon't know where Jude lives, but would 
sending letters, calling, and emails to here senator do any good?   This is an 
outrage
that this is happening and happening probably to others too.  
Janice
  - Original Message - 
  From: Akua 
  To: tmic-list@eskimo.com 
  Sent: Friday, May 15, 2009 3:13 PM
  Subject: Re: [TMIC] Quality of Medical Care


 SHE WENT ALL THE WAY BY AMBULANCE TO GO TO SEE HER DOCTOR.WHEN SHE GOT 
THERE SHE ONLY SAW HIS NURSE. THEY CHATTED BUT JUDE WAS FURIOUS. SHE TOLD ME 
THEY DID NOT CHECK HER SORES THEY DID NOTHING.IT IS SO PAINFUL FOR JUDE AND SHE 
HAS TO PAY NOW TO GO BY AMBULANCE TO GET TO A DOCTOR.


  This is awful and surprising. For some reason I thought she had paratransit. 
This is why I am starting
  a paratransit nonprofit.  Ambulance is many orders of magnitude more 
expensive than anything. Sorry to read this.


-- 

Re: [TMIC] Quality of Medical Care

[Akua]

 SHE WENT ALL THE WAY BY AMBULANCE TO GO TO SEE HER DOCTOR.WHEN 
SHE GOT THERE SHE ONLY SAW HIS NURSE. THEY CHATTED BUT JUDE WAS 
FURIOUS. SHE TOLD ME THEY DID NOT CHECK HER SORES THEY DID 
NOTHING.IT IS SO PAINFUL FOR JUDE AND SHE HAS TO PAY NOW TO GO BY 
AMBULANCE TO GET TO A DOCTOR.


This is awful and surprising. For some reason I thought she had 
paratransit. This is why I am starting
a paratransit nonprofit.  Ambulance is many orders of magnitude more 
expensive than anything. Sorry to read this.


--

Re: [TMIC] Quality of Medical Care

[MontzMagic]

I SPOKE WITH DAVE AND JUDE YESTERDAY. SHE WENT ALL THE WAY BY AMBULANCE TO  
GO TO SEE HER DOCTOR.WHEN SHE GOT THERE SHE ONLY SAW HIS NURSE. THEY  
CHATTED BUT JUDE WAS FURIOUS. SHE TOLD ME THEY DID NOT CHECK HER SORES THEY DID 
 
NOTHING.IT IS SO PAINFUL FOR JUDE AND SHE HAS TO PAY NOW TO GO BY AMBULANCE 
TO  GET TO A DOCTOR.
SHE TOLD ME SHE IS JUST NOT CAPABLE TO TELL HER DOCTORS, NURSES ETC WHAT  
SHE THINKS OF HER TREATMENT.
I HAVE SPOKEN TO HER DOCTORS AND NURSES WHEN SHE WAS IN THE HOSPITAL AND A  
HOME, BUT I AM JUST OUTSIDE OF NEW ORLEANS, SO HER BEING IN MICHIGAN ITS 
HARD TO  REALLY GET IN THE NURSES AND DOCTORS FACES. I WAS A PHYS NURSE AND I 
DEALT  WITH SOME CRAZY PHYCIATRISTS AND REGULAR DOCTORS.
ITS ONLY GOING TO GET WORSE. IF WE GO SOCIALIZED MEDS WE ARE GOING TO BE IN 
 BAD SHAPE.
I HOPE THE US PEOPLE DO NOT WANT IT.
I DO UNDERSTAND THAT INSURANCE IS SO EXPENSIVE, I HAD NO MEDICAL INSURANCE  
FOR YEARS, NO ONE WOULD COVER ME. THATS WHEN I GOT TM, BEFORE THAT I HAD 
GREAT  INSURANCE.
THERE HAS TO BE AWAY THAT WE CAN LEAVE THE GOVERMENT OUT OF OUR MEDICAL  
SYSTEM. 
I KNOW SO MANY PEOPLE WHO HAVE NO INSURANCE AND SOME WHO DO ITS BREAKING  
THEM LITERALLY.
I SPOKE TO MY DOCTORS ABOUT IT, THEY TOLD ME I WOULD ALWAYS BE SEEN BY THEM 
 AND IF I HAD TO GO INTO THE HOSPITAL THEY WOULD GET ME IN.
HERE SO MANY OF OUR DOCTORS LEFT AFTER KATRINA HIT. WE HAVE MORE HOSPITALS  
OPENING BUT WE NEED CHARITY HOSPITAL TO REOPEN. I KNOW LA HAS BAD 
POLITICIANS,  NOT ALL BUT WAY TO MANY.THE PUBLIC HERE ARE FIGHTING BACK, ITS 
ABOUT 
TIME.
THATS WHAT WE HAVE TO DO WITH THE MEDICAL SYSTEM, MY DOCTOR TOLD ME HE  
SPENDS SO MUCH TIME TALKING TO INSURANCE COMPANIES ABOUT WHY HE HAS NOT 
RELEASED  SOME OF HIS PATIENTS I WAS ONE OF THE BIG PROBLEM CASE. A DOCTOR 
KNOWS IF 
HE IS  A GOOD DOCTOR HOW LONG HIS PATIENT NEEDS TO BE IN THE HOSPITAL. MY 
DOCTORS FIGHT  FOR ME AND THEIR OTHER PATIENTS, I GET TO STAY LONGER BECAUSE 
I HAVE TM ON  A BLOOD THINNER AND IF MY LEGS DO NOT MOVE I HAVE TO STAY.ITS 
VERY SCARY.
I AM ON DISABILITY HAVE BEEN FOR YEARS. I DO NOT KNOW WHY SO MANY LIKE JUDE 
 HAS BEEN TURNED DOWN.
TODAY MY CASE MANAGER IS COMING TO SEE ME. THEY HAD A HUGE MEETING, THEY  
WENT UP ON OUR DRUGS , STOPPED WATER AQUATICS PT UNTIL THE END OF THIS MONTH. 
I  HAVE A POOL BUT NOT THE WATER FLOWING ONE. I ONLY DRIVE AROUND AREAS 
WHERE  I DO NOT HAVE TO GET ON THE INTERSTATE. ITS TO DANGEROUS, I HAVE 
REOCURRING TM,  I CAN BE OK AND THEN I GET THE WARNING SIGN MY LEFT LEG WILL 
STOP 
THEN MY RIGHT  I DO NOT WANT TO CHANCE HURTING ANYONE NOR MYSELF.
I HOPE THE MEETING WENT WELL, I DO NOT TAKE ALOT OF MEDS, BUT OTHERS DO AND 
 ARE ON A FIXED INCOME.
I HOPE FOR ALL OF US THAT SOMETHING IS DONE, BUT LET THE DOCTORS DO THERE  
JOB, NOT A RECEPTIONIST DICTATATE TO THEM WHEN THEY HAVE TO DISCHARGE A  
PATIENT.
EVERYONE SHOULD HAVE GOOD HEALTH CARE, BUT THE INSURANCE COMPANIES ARE  
BEING TOLD WHAT TO DO AND SO MANY PEOPLE WILL NOW BE SEEING NURSE PRACTITIONERS 
 INSTEAD OF DOCTORS.
THIS IS AMERICA LETS FIGHT THIS TOGETHER FOR US TO HAVE GOOD MEDICAL CARE  
AND GET
THE INSURANCE RATES LOW AND IF POSSIBLE HARDLY PAY A THING.
WE ALL HAVE WORKED FOR IT AND THE WARS MEN WOMAN FOUGHT FOR THIS COUNTRY TO 
 BE THE LAND OF THE FREE AND BRAVE, THEY STILL ARE.
SORRY BUT WHEN IT COMES TO A DEAR FRIEND LIKE JUDE, LINDA SO MANY IT JUST  
REALLY ANNOYS ME!!! 
GOD BLESS US ALL TIAD  
PAM!!!
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Re: [TMIC] Quality of Medical Care

[L T CHERPESKI]

 Catherine - I try to remember this each day.  I have this written on a piece 
of paper right next to my computer.

  Jude - I'm so happy to see you on-line again.  And I'm so excited that you 
are able to sit up at times during the day.  Wow - you've come a long way.  Be 
careful not to overdo it; you need your rest.  Hey everyone - that would be 
true for most of us.

 Love and Prayers,

 Linda
  - Original Message - 
  From: Catherine<mailto:camoa...@yahoo.com> 
  To: Transverse Mylitis Group<mailto:tmic-list@eskimo.com> 
  Sent: Thursday, May 14, 2009 9:37 AM
  Subject: Fw: [TMIC] Quality of Medical Care





  Worrying does not empty tomorrow of its troubles;  It empties today of its 
strengths.





  - Forwarded Message 
  From: Catherine mailto:camoa...@yahoo.com>>
  To: heyjude48...@aol.com<mailto:heyjude48...@aol.com>
  Sent: Thursday, May 14, 2009 11:36:30 AM
  Subject: Re: [TMIC] Quality of Medical Care



 
   
Hey Jude,

Glad you are improving. Please keep us updated.  Thoughts 
and prayers to you and our family group.  Catherine










From: "heyjude48...@aol.com" 
To: tmic-list@eskimo.com
Sent: Sunday, May 10, 2009 4:11:04 AM
Subject: [TMIC] Quality of Medical Care

AOL Email 
Hello Everyone,
 
It has been some time since I posted to the List, so some 
of you may not know who I am.  I have been off-line because of some bad 
pressure ulcers on my behind that ended up going all the way to the bone and I 
had to have surgery to repair them.   I can now sit up for short periods of 
time...long enough to use my laptop for the first time.
 
Thanks to all of you who sent cards, gifts and Prayers 
during the time I was in the hospital and home recuperating.
 
I have had strange sensations up and down my legs since the 
surgery, and have even thought I was getting feeling and possibly movement 
back, but nothing has been lasting more than a few moments.
 
The docs have just given me permission to sit in my 
wheelchair for one hour in the morning and once in the evening.  I am taking PT 
three times a week to build up my upper body so that transferring will be 
easier.
 
Shoot...I've been up a while, answered several emails and 
read everything on the List that I have been missing out on, and now I find 
myself too tired and in too much pain to continue this at this time.
 
I will finish this later.  My love and Prayers go out to 
all of you.
 
May God keep you safe,
continue being your resting place,
and may He keep giving us reason to Hope
in our recovery.
 
Jude  



Recession-proof vacation ideas. Find free things to do in 
the U.S. 

   
 
 
   




<>

RE: [TMIC] Quality of Medical Care

[Tami Streeter]

Jude, 

 

You are an inspiration to all of us.  I am so happy you are doing better -
it is exciting to hear about the new changes!

 

Tami

 

  _  

From: Patricia Cooley [mailto:patticoo...@wi.rr.com] 
Sent: Sunday, May 10, 2009 10:35 AM
To: heyjude48...@aol.com; tmic-list@eskimo.com
Subject: RE: [TMIC] Quality of Medical Care

 

HI SWEETIE:

 

IT IS SO GOOD TO HEAR FROM YOU.  I HAVE BEEN WATCHING FOR POSTS FROM YOU,
BUT I KNEW YOU WERE STILL RECOVERING FROM YOUR SURGERY AND KNEW YOU WOULD
WRITE AS SOON AS YOU WERE ABLE.  I AM SO GLAD YOU ARE ABLE TO SIT UP SEVERAL
TIMES A DAY.  HOPEFULLY, AS YOU RECUPERATE THAT TIME CAN BE EXTENDED.  MAYBE
AS YOU RECOVER YOU WOULD BE ABLE TO GET OUTSIDE AND ENJOY WARMER WEATHER AND
GET SOME SUN.

 

TAKE CARE OF YOURSELF AND DON'T OVER DUE.

 

BLESSINGS ON YOU.

 

PATTI IN WISCONSIN

 

 

From: heyjude48...@aol.com [mailto:heyjude48...@aol.com] 
Sent: Sunday, May 10, 2009 3:11 AM
To: tmic-list@eskimo.com
Subject: [TMIC] Quality of Medical Care

 


Hello Everyone,

 

It has been some time since I posted to the List, so some of you may not
know who I am.  I have been off-line because of some bad pressure ulcers on
my behind that ended up going all the way to the bone and I had to have
surgery to repair them.   I can now sit up for short periods of time...long
enough to use my laptop for the first time.

 

Thanks to all of you who sent cards, gifts and Prayers during the time I was
in the hospital and home recuperating.

 

I have had strange sensations up and down my legs since the surgery, and
have even thought I was getting feeling and possibly movement back, but
nothing has been lasting more than a few moments.

 

The docs have just given me permission to sit in my wheelchair for one hour
in the morning and once in the evening.  I am taking PT three times a week
to build up my upper body so that transferring will be easier.

 

Shoot...I've been up a while, answered several emails and read everything on
the List that I have been missing out on, and now I find myself too tired
and in too much pain to continue this at this time.

 

I will finish this later.  My love and Prayers go out to all of you.

 

May God keep you safe,

continue being your resting place,

and may He keep giving us reason to Hope

in our recovery.

 

Jude 

 

  _  

Recession-proof vacation ideas. Find
<http://travel.aol.com/travel-ideas/domestic/national-tourism-week?ncid=emlc
ntustrav0002>  free things to do in the U.S.

Re: [TMIC] Quality of Medical Care

[Janice]

AOL EmailJude,

Keep on recovering and get back to "talking" to us more often when possible.
 Did you realize how strong you are to go
through all you have?   You are on the downhill ride now - just don't go too 
fast!!Janice
  - Original Message - 
  From: Patricia Cooley 
  To: heyjude48...@aol.com ; tmic-list@eskimo.com 
  Sent: Sunday, May 10, 2009 10:35 AM
  Subject: RE: [TMIC] Quality of Medical Care


  HI SWEETIE:

   

  IT IS SO GOOD TO HEAR FROM YOU.  I HAVE BEEN WATCHING FOR POSTS FROM YOU, BUT 
I KNEW YOU WERE STILL RECOVERING FROM YOUR SURGERY AND KNEW YOU WOULD WRITE AS 
SOON AS YOU WERE ABLE.  I AM SO GLAD YOU ARE ABLE TO SIT UP SEVERAL TIMES A 
DAY.  HOPEFULLY, AS YOU RECUPERATE THAT TIME CAN BE EXTENDED.  MAYBE AS YOU 
RECOVER YOU WOULD BE ABLE TO GET OUTSIDE AND ENJOY WARMER WEATHER AND GET SOME 
SUN.

   

  TAKE CARE OF YOURSELF AND DON'T OVER DUE.

   

  BLESSINGS ON YOU.

   

  PATTI IN WISCONSIN

   

   

  From: heyjude48...@aol.com [mailto:heyjude48...@aol.com] 
  Sent: Sunday, May 10, 2009 3:11 AM
  To: tmic-list@eskimo.com
  Subject: [TMIC] Quality of Medical Care

   

Hello Everyone,

 

It has been some time since I posted to the List, so some of you may 
not know who I am.  I have been off-line because of some bad pressure ulcers on 
my behind that ended up going all the way to the bone and I had to have surgery 
to repair them.   I can now sit up for short periods of time...long enough to 
use my laptop for the first time.

 

Thanks to all of you who sent cards, gifts and Prayers during the time 
I was in the hospital and home recuperating.

 

I have had strange sensations up and down my legs since the surgery, 
and have even thought I was getting feeling and possibly movement back, but 
nothing has been lasting more than a few moments.

 

The docs have just given me permission to sit in my wheelchair for one 
hour in the morning and once in the evening.  I am taking PT three times a week 
to build up my upper body so that transferring will be easier.

 

Shoot...I've been up a while, answered several emails and read 
everything on the List that I have been missing out on, and now I find myself 
too tired and in too much pain to continue this at this time.

 

I will finish this later.  My love and Prayers go out to all of you.

 

May God keep you safe,

continue being your resting place,

and may He keep giving us reason to Hope

in our recovery.

 

Jude 
   

   


--

  Recession-proof vacation ideas. Find free things to do in the U.S.

Re: [TMIC] Quality of Medical Care

[Akua]

Hi Jude!
Glad you are up and improving!
Akua
--

RE: [TMIC] Quality of Medical Care

[Patricia Cooley]

HI SWEETIE:

 

IT IS SO GOOD TO HEAR FROM YOU.  I HAVE BEEN WATCHING FOR POSTS FROM YOU,
BUT I KNEW YOU WERE STILL RECOVERING FROM YOUR SURGERY AND KNEW YOU WOULD
WRITE AS SOON AS YOU WERE ABLE.  I AM SO GLAD YOU ARE ABLE TO SIT UP SEVERAL
TIMES A DAY.  HOPEFULLY, AS YOU RECUPERATE THAT TIME CAN BE EXTENDED.  MAYBE
AS YOU RECOVER YOU WOULD BE ABLE TO GET OUTSIDE AND ENJOY WARMER WEATHER AND
GET SOME SUN.

 

TAKE CARE OF YOURSELF AND DON'T OVER DUE.

 

BLESSINGS ON YOU.

 

PATTI IN WISCONSIN

 

 

From: heyjude48...@aol.com [mailto:heyjude48...@aol.com] 
Sent: Sunday, May 10, 2009 3:11 AM
To: tmic-list@eskimo.com
Subject: [TMIC] Quality of Medical Care

 


Hello Everyone,

 

It has been some time since I posted to the List, so some of you may not
know who I am.  I have been off-line because of some bad pressure ulcers on
my behind that ended up going all the way to the bone and I had to have
surgery to repair them.   I can now sit up for short periods of time...long
enough to use my laptop for the first time.

 

Thanks to all of you who sent cards, gifts and Prayers during the time I was
in the hospital and home recuperating.

 

I have had strange sensations up and down my legs since the surgery, and
have even thought I was getting feeling and possibly movement back, but
nothing has been lasting more than a few moments.

 

The docs have just given me permission to sit in my wheelchair for one hour
in the morning and once in the evening.  I am taking PT three times a week
to build up my upper body so that transferring will be easier.

 

Shoot...I've been up a while, answered several emails and read everything on
the List that I have been missing out on, and now I find myself too tired
and in too much pain to continue this at this time.

 

I will finish this later.  My love and Prayers go out to all of you.

 

May God keep you safe,

continue being your resting place,

and may He keep giving us reason to Hope

in our recovery.

 

Jude 

 

  _  

Recession-proof vacation ideas. Find
  free things to do in the U.S.

Re: [TMIC] Quality of Medical Care

[Jan Hargrove]

Hey Jude!!
 
So glad to see your mail show up!!  Sounds like you're
making good progress.and having some movement
may just be the beginning..keep up the pt!!  I started
my road to walking with only being able to wiggle toes
on one footat 12+ years I still get a new sensation from
time to time.so who knows???
Don't know how much this had to do with my recovery,
but my older daughter brought me a crystal angel and
placed her where the sun could shine through her onto
my feetand we do believe in angels, both spiritual
and human..I know that angels have been with me
at times that I had special needs, their presence keeps
me in a positive mode!! 
Keep up the good work and update us as you're able.
Hugs, janh in OK


--- On Sun, 5/10/09, heyjude48...@aol.com  wrote:











Hello Everyone,
 
It has been some time since I posted to the List, so some of you may not know 
who I am.  I have been off-line because of some bad pressure ulcers on my 
behind that ended up going all the way to the bone and I had to have surgery to 
repair them.   I can now sit up for short periods of time...long enough to use 
my laptop for the first time.
 
Thanks to all of you who sent cards, gifts and Prayers during the time I was in 
the hospital and home recuperating.
 
I have had strange sensations up and down my legs since the surgery, and have 
even thought I was getting feeling and possibly movement back, but nothing has 
been lasting more than a few moments.
 
The docs have just given me permission to sit in my wheelchair for one hour in 
the morning and once in the evening.  I am taking PT three times a week to 
build up my upper body so that transferring will be easier.
 
Shoot...I've been up a while, answered several emails and read everything on 
the List that I have been missing out on, and now I find myself too tired and 
in too much pain to continue this at this time.
 
I will finish this later.  My love and Prayers go out to all of you.
 
May God keep you safe,
continue being your resting place,
and may He keep giving us reason to Hope
in our recovery.
 
Jude 



Recession-proof vacation ideas. Find free things to do in the U.S.