Here in CT there is a large chain called Stop & Shop. I don't know how
widespread they are, but they have a delivery service called PeaPod. It
was a long time before they started delivering to my neighborhood.
(guess they go to the rich folks first :)
It has been a lifesaver to my Mom and me.
That makes sense, Gunny - unless you realize that it didn't start hurting until
after about 9 months. By that time I was easily walking a mile a day, and
occassionally, even close to 2 miles. Before TM hit I walked a lot (a 15
minute mile) and even afterwards, would often stand to push my whee
This is from 1997:
http://www.napa.ufl.edu/oldnews/spinal.htm
Here's an article from 2006:
http://www.ns.umich.edu/htdocs/releases/story.php?id=361
Good to know it's being worked on. If we can just hang on
long enough..
Kevin
[EMAIL PROTECTED] wrote:
Jude, it has helped me to think o
With the price of gas these days, a small delivery charge is not out of line
at all. By the time you add in for time to pick out the groceries,
delivery, let alone somebody bringing them to your door, it would certainly be
worth
making up a decent list and trying it out. Just call around
BlankI'm wanting to know if Rick got my pictures. How do I find out?
Dennis
hi -- Rochester is a good-sized city -- please get out the yellow pages and
call around to the closest produce stores & small grocers, you'll be amazed
at how many offer delivery. I am in Toronto, and I wrote a whole book on
places that deliver a few years ago -- there were *hundreds* of stores
This is Rick, I just attended the teleconference on spastisity,and found it
very informative. Anyone who would like to find out more here are some numbers
and e-mail
addresses.--spastisicity.medtronics.com---for
a slide show or ge
I have to admit Heather I got quite a chuckle about you sewing in your "undies"
- that's funny. And I have the same thing going on at night as you do - and I'm
sure MANY MANY others do. I get kind of frustrated - probably because I'm so
tired when my sleep is disturbed (every night) that I forg
Boy can I ever relate to that. When I go out of the house I wear "flip-flops"
that I can take off in the car, and then the minute I get home those things are
OFF my burning feet. Also once my feet are burning like that, the burning likes
to keep traveling up my legs - and I've had TM over 5 year
There is another interesting thing about my diagnosis. Extensive MRI's,
CAT scans, exrays, spinal tap, etc. were done. There were no lesions to
be found in my brain or spine. But, in the spinal tap, there was a
raised myelin protein level. So, they can't take MS off the table for
me yet.
Tim H
Jim also led me to the brochure, but the original question wasn't mine.
Hi Akua, You wrote: As to Spreading the Word: mailings? Brochures we
could print out and send to hospitals? Information flyers in pdf form
that people could print out.
The TMA website already provides a brochure
Thanks!!!
I didn't know. Wonderful!
Akua wrote:
As to Spreading the Word: mailings? Brochures we could print out
and send to hospitals?
Information flyers in pdf form that people could print out?
We do have this one
http://myelitis.org/TMA_brochure_2005.pdf
Jim Lubin
At 12:40 PM 6/12/2007, Akua wrote:
As to Spreading the Word: mailings? Brochures we could print out
and send to hospitals?
Information flyers in pdf form that people could print out?
We do have this one
http://myelitis.org/TMA_brochure_2005.pdf
Jim Lubin
[EMAIL PROTECTED]
http://mako
LOL! What part of America are you in?
There's nothing free around here and freelancers charge my
elderly neighbors $20 hour plus gas
to do their shopping. An entreprenuer brings a small "store" to our
apartment building twice a week where she charges $1 for two apples
or 4 bananas, 75 cents
> I can't transfer into it from my manual chair(!!!)
Do you have a slide board, Akua?
yes I do. I use it to transfer from my bed to my chair.
The method you describe is more precarious than direct transfer, as
the "bridge"
has no back and has me more time in the air, in an unstable place..
Well, I just figured it was from the nerve damage. It never happened
until all the other TM symptoms started. I go to my neuron next month,
so I'll ask him then. I think I mentioned it to him once and he didn't
really respond. So, I didn't give it much thought. Good advice though.
I'll sure ge
My husband was just telling me that he saw where people could order
nonperishable food online, but I can't remember where. I'll have to ask him.
One other thought -- this comes to mind because we have a lot of college
students in our church who need jobs that can work around their class
Hello to All
Like most of you I have the burning, pins and needles, electric shock,
tingling feeling in my feet and legs. I am on Gabapentin and Perocodan. I
just want to mention a lovely lovely cream that my Dr. has given me by
prescription. I have it made at a compounding pharmacy - and le
Hello,
I just finished watching the Montel Williams show. Yes, I did find it here in
Calgary - just don't watch daytime TV very often so didn't realize we even got
the show.
I was moved to tears when Allen Rucker described how he tried to get up from a
nap and was paralyzed in 90 minutes. T
Hi everybody --- for those of you who do not have big grocery stores that
deliver in your city, call around to all the fruit stores, small corner
grocery stores and places like that. You'll be surprised at how many will
deliver for $5 or something like that... and many are free. Until we got a
I have a weird symptom. At night, while sleeping, I wake up with the
hip I'm laying on hurting. So, I turn over and fall back asleep until
THAT hip wakes me up from pain. If it hasn't been enough time for the
first side to stop hurting, I just have to lay on my back until I fall
asleep. It's re
think of it something like electrical wires. If something happens
between the source of power and the outlet I am trying to use, there
may be no power -- or, if the damage is not complete, the power may
be "dimmer" or faulty somehow. It may even cause sparks to sputter
forth.
Excellent analo
I believe that we have, somewhere inside our brains and bodies, the
ability to overcome things like TM. We ought to be growing new
lines of communication between the brain and our bodies.
So do I. I envision the regrowth. I think the pain are nerves
regrowing. I am taking naltrexone and ca
> I can't transfer into it from my manual chair(!!!)
Do you have a slide board, Akua?
A slide board is a strong piece of birch plywood measuring 8 x 24
inches, tapered at each end and very smooth and polished. You lift
one thigh and slide the board under you as far as possible. When you
l
For about 3 weeks I've had severe pain in my left hip (what used to be my good
leg). I've had pain for a long time, but I figured it was from putting my
weight on my 'good leg' since the leg that was originally paralyzed still had a
lot of numbness and 'malfunction'. But for the last 3 weeks i
I had my 2nd just 4 weeks after my initial episode. Dr. Kerr and my
neuro don't call it that - my first episode was just a continuation
of my initial. But with that much time in-between, I call it my
second! If I had a cold, recovered, and got another cold a month
later isn't one continutal
Congratulations!
I need hope and healing and am grateful to any and all who make that possible.
May God Bless and Heal Us.
Akua
--
http://www.healrecover.blogspot.com
http://www.akualezli.blogspot.com
Candy wrote:
I do believe in the message that the Montel show was trying to
convey - individuals define themselves no matter what life throws at
you. You need to learn to take what God has dealt you and help
whomever and wherever you can.
I believe in the philosphy that we all are put on th
I just can't get my mind around the fact that there are paraplegics
who are truly paralyzed and those that can walk.
Jude, you and me both. And not from folks I've heard about here, but
from my neighbors, who are all ambulatory, and many of whom told me
they have motorized chairs ( when I coul
I agree that Allen and his book is a good start.
I also agree with you, Akua, about the support that Allen has around him.
I think that some of us that are dealing with TM alone - no significate other,
spouse, family, or job we can continue on during our change in life - need to
write about our
I agree that Allen and his book is a good start.
I also agree with you, Akua, about the support that Allen has around him.
I think that some of us that are dealing with TM alone - no significate other,
spouse, family, or job we can continue on during our change in life - need to
write about our
Blank
I am not sure if my message was given to Rick. Is there any way that I can find
out? I don't have his personal address.
Dennis
A friend said to me o look at him. See I told you you should write a
boook about this! See how good he is doing. And I reminded her that
he was married, in California, had insurance and support and
finally--- took 8 years or so to write about it.
But I'm glad he's out there--- something and so
Jude, it has helped me to think of it something like electrical wires. If
something happens between the source of power and the outlet I am trying to
use, there may be no power -- or, if the damage is not complete, the power may
be "dimmer" or faulty somehow. It may even cause sparks to sp
Hi,
I wear Crocs in the yard and was thinking of buying a pair for slippers in the
house. They are as comfortable as anything I've worn so far because they don't
fit too closely to the foot.
I can't stand anything enclosing my feet -- even socks -- so I've bought some
diebetic socks that don'
I have a pair. They seem to be okay except if I have them on too long (after the swelling starts) they don't seem to stretch very well and begin to hurt.
Larry in Oklahoma where it is going to be hot and muggy today!
From: [EMAIL PROTECTED]To: [EMAIL PROTECTED], Tmic-list@eskimo.comSubj
Thanks Bernie,
That really cleared things up for me. My brother lost a leg to cancer
radiation treatment and he had a terrible time treating the "phantom" pain.
I wonder why there would be such pain at the site of the incision if we
cannot feel anything? We don't feel pain on the outs
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