Hi, When I first went into the hospital 9/05 the doctors didnt know what
the heck I had. So they started me on IVIG. They thought I might have
Guilliame Barre Syndrome. I was on it for 5 days - 3 bottles a day. Very
fine
hospital (teaching hospital) on Long Island in New York. The en
Hi Sue,
IVIG was one of the considered treatment options for me (I've got
relapsing Devic's), but we opted for Rituxan (My insurance doesn't
cover it either.), so I'm not sure what the insurance considerations
for IVIG might me.
Grace
On 7/5/07, Bob and Sue Mattis <[EMAIL PROTECTED]> wrote:
Hello All!
As part of the Pennsylvania Support Group, I received the following
E-mail and got permission from Carol to forward it to the group to see
if any of you have had any experience with IVIG (Intravenous Immune
Globulin). Have any of you heard of it, or have been given this
treatment? Ple
I have been on Enablex for about 2 months and it is working very well for
me. My urologist is very good and so I asked him about side effects (I don't
read the long list of side effects anymore on any medication. I wouldn't be
on anything at this point. Lyrica has quite a few side effects.) I do ne
I understand exactly how you feel. I don't know if this can help with not
having to cath. but at this point check it out with your doctor. it's worth
a chance!
Good Luck
Trudy
hot, muggy Virginia
_
From: Lynn Pouliot [mailto:[EMAIL PROTECTED]
Sent: Thursday, July 05, 2007 4:55 PM
T
Mark,
I was diagnosed in January. I've been cathing since last November. My
neurologist told me to not expect change either. I know it's annoying
and frustrating and awkward at times. But, I'm kind of getting used to
it now. And no one around me acts as though it bothers them. I just
hate
Hi Trudi,
I have been cathing since June of 2004. I would really love to not have to
cath adn go to the bathroom like a normal person. I am on 2 bladder meds.
detral la and ditrapan. Is Enablex a new med that can help with not having to
cath? I don't really have accidents much. But have t
Mark,
I just went to a urologist because I could not control my bladder! It was
awful and wearing diapers ARGH!!
I suggest you find a good urologist and have him check you out. There's
definitely some new "ideas" out there and hopefully, I pray one of them will
help you out.
I cathed for about
I went to my Internist the other day for a non TM related issue. Since I
had him cornered I asked him some questions about my TM. He has been seeing me
for years and has been involved since my TM.
I asked him about my urine retention problem. ( I have been cathing 4 times a
day since my TM, O
