From: Barbaraalma1
To: Barbaraalma1
BCC: Balmatmic
Sent: 11/20/2008 8:59:26 P.M. Pacific Standard Time
Subj: OT: Fwd: Holiday Gift Cards Warning
=Subject: Holiday Gift Cards: BE CAREFUL
A Special Note Regarding Holiday Gift Cards: BE
Ok better yet.my foot was hanging down under my foot pegs and I rolled over my OWN foot!!! Yep it smarted!!!
-- Original message from [EMAIL PROTECTED]: --
One site has it all. Your email accounts, your social networks, and the things you love. Try t
Hi, Sandy! Good to see your name here, too! What fun that Facebook is!!
I think sometimes the caregivers/spouses might forget that TM'ers certainly
didn't choose to have this situation and whoever said that we look fine on the
outside but oh, the inside is another story, said it perfectly.
Amanda, you couldn't have come to a better group. We go clear across the chart
in where we are in our post TM onset so you will have a lot of support. I
don't think anyone really knows where each person will be with their TM. Some
do improve right away, some improve partially from the onset,
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--- Begin
Patti, I am slowly getting rid of all of my nice work clothes and my uniforms
and scrubs went into a box that I'll have to give to my daughter who has also
decided to become a nurse to my delight! I had to laugh at your clothes with
the tags still on them because I had the same thing!! j
Gilly, bless your heart.. Do not worry about this as there will be or has been
a time when each of us has gone through something similar and shared our
feelings with all of our TMIC 'family'. That is what we are here for..each
other. We go through our days trying to be as 'up' and cheerful as
Well here is my two cents The nerve damage is so bad in my feet I can't wear shoes or socks.. so this time of the year everyone in public will stop to tell me "It's cold you should have shoes on" DUH!! as for the Anti-depresents.. they were given to me to the "nerve damage" and does not
GO ELLA, Jim and I both agree and hope you have those little hard wheels on
your chair! You just have to laugh! Happy Thanksgiving.
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I had to look to see if I started this message. LOL My sister broke her toe 3
weeks ago and said she had to stay in bed for 2 days because it hurt. It was
a bad day for pain for me when she told me and I had to apologize the next day
because I told her...excuse my for being indifferrent but I ha
I am happy to have people that understand what it is like to be in pain
24/7. And now, with the winter setting in, just walking in the cold is hard
enough, never mind the winter boots and the weight they add. And the snow -
doesn't seem like much, but it sure adds to the discomfort. Right Neil
Oh Jan! You just always brighten my day. You seem like you are always so
positive and under duress from TM! Thank you so much. Wow! I've become
active again on the forum. We go thru those lulls where some things don't
always pertain.
This forum has helped me so much, (I am sure
Absolutely, Jan! Gilly offended no one! I spoke out as a caregiver in
hopes that those of you that want to hear my perspective, can ponder it...
Sandy
**One site has it all. Your email accounts, your social networks,
and the things you love. Try the new AOL.com
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Sandy,
I just told a friend whose hubby had failed rapidly and is now gone, that I
knew how much she did for him, while letting her ailments take a backseat. I
told her that I knew how lucky Roy had
been having her as his caretakerand that I knew how important that was for
both of them...
Oh, Gilly, I don't think you upset anyone -- I think we've all been having a
great conversation seeing things from both sides.
We have a relative like that, too -- it IS always about her (in her mind),
no matter what else is going on with anyone else. When someone in her family
had a seriou
Gilly,
No need to apologize or even explain!! I bet if truth be known, each of us has
at LEAST one in-law (or out-law) who must tell each breath they take and the
pain it causes them...am also certain they have no idea what a
pain!! they are.
Venting is allowed here! Th
AOL EmailDear Jude,
As usual, beautifully said and of course so right.
I'm afraid I had a bit of a rant which was not aimed at our list and certainly
not of the many wonderful caregivers, who I acknowledge suffer as much as we do
in a different way. I also acknowledge that we certainly don't s
Thanks Jeanne, A group hug always helps
- Original Message -
From: jrushton
To: Gillian Clark ; tmic
Sent: Thursday, November 20, 2008 1:48 PM
Subject: Re: [TMIC] Anybody else been there?
...and hugs to you, too, Gilly!! As a matter of fact, hugs to ALL of you
Jean
Hey Patti,
I do understand the weekly call in the beginning, but they do tapper off in a
few months. Sometimes the people we know will stop calling and stop coming
over to see you too. We lose some friends just because we can't do the things
they can do.
I had a close friend and my mother ea
I am in Carrollton and part of the "Douglasville TM" group, we had a meeting last Sunday and trying to figure of a date for December. I will send you a seperate email with our addresses
-- Original message from [EMAIL PROTECTED]: --
Amanda,
I also don't have lesi
I am sure a lot of you can relate. Since I came down with TM in June, my
closet was full of summer clothes. It is getting mighty cold here in
Wisconsin so I guess I was motivated. Anyway with the help of my wonderful
husband we were able to bring up all my nice warm winter clothes and store
all
Amanda,
I also don't have lesions on my spine but was told I had swelling. You'd
think that when the swelling went down. everything would go back to normal,
but,
though I did gain back a great deal, I didn't have full recovery. In an
informal survey several years ago that the TMA did, abou
Sandy:
Thank you so much for responding to this email. I am a caregiver also.
Although I am a caregiver of a young woman, she will be 15 in a few
days, I try my very best to relate to everything that she is going
through. I think that this may be easier on me than the rest of the
caregivers on here
i have a question, has anyone else been told that they don't have lesions on
their spine? my neuro says mine is just swelling from c6-t3 and t9-t10., so
what does that mean? will the swelling go down? will i be able to recover? i am
a single mother of two and i really want to be able to take car
Bettie,
I wear a TENS machine. I was given the option of the permanent spinal
stimulator implant or the TENS. I choose the TENS because I was afraid to go
through an operation and what may happen with my autoimmune system. I am so
allergic to so many things and it seems like I alway get a
Sandy and Jude, you both put into words what I was thinking but couldn't
figure out how to say. Thank you! Caregivers, spouses, significant others, and
friends all need to know that their pain and ailments are valid and
sympathized with, whether or not it is greater or longer-lasting than o
So perfectly put, Sandy. What a wonderful caregiver you must be! I live with
one, also, and he spoils me rotten! I am so blessed...
Jeanne in Dayton, WA
Leila, ( I love your name)!
I asked Terry what he feels has made him take all these steps recently and
he can't really pinpoint one thing. His muscles definitely atrophied, but he
has begun to rebuild them a bit. He had GREAT LEGS! He doesn't do PT accept
in the summer in a pool. He can
Bettie, please keep us posted on how it is going!! I have never heard of
this and wouldn't it be wonderful if it keeps on working and our own
insurances would cover it!! I, too, have been having much increased pain
which is getting in the way of a good 'quality of life'!! It has been
increasingl
You will never be alone as long as we all hang in there together. What I
write comes from the bottom of my heart even if it doesn't always come out
right!! And, yes, we do understand. We are a chosen few and that makes us
pretty special! j
---Original Message---
From: Robert Pall
D
First off, Jude suffers so much and what she wrote is so selfLESS. She is
always thinking of someone else. We love you Jude!
As a caregiver I will put my 2 cents in. I SO sympathize with the daily
pain that goes with TM. I KNOW, but I don't FEEL the pain. I know it because
Terry is
I am rather new at this, but the thing I HATE the most is when I talk to a
friend I just talked to a week or so
ago and they want to know how much I have improved. I keep telling them it
will be a long process and yes I see an small improvement in strength.
They can't seem to understand that, n
You are both in my thoughts and prayers. It will be a great Thanksgiving to
get him home. Take care and enjoy our one day of the year dedicated just to
eating food...with NO guilt :)
Trudy
On Wed, Nov 19, 2008 at 9:45 PM, Jan Hargrove <[EMAIL PROTECTED]> wrote:
> Glad all went well!! am sure h
Thank all of you who replied to my post yesterday regarding our
caretakers and or spouses and parents understanding what we go thru
everyday. For me this is what the list does best...it allows me to talk
to people who can relate.
All the best!
Rob in New Jersey
I am undergoing the knife Dec 2 and receiving a spinal stimulator inplant.
I am curious if anyone in our group has any experience with this operation
and what kind of results you had. I did fairly well with the trial that
reduced the pain by 70% (which was heaven). I have had TM for 14 ye
In a message dated 11/20/2008 2:32:49 A.M. Eastern Standard Time,
Heyjude48458 writes:
Please read the attached...
From: Heyjude48458
To: CJBJWB, [EMAIL PROTECTED]
Sent: 11/20/2008 2:28:45 A.M. Eastern Standard Time
Subj: Re: [T
Hello All,
Don't we remember how much it hurts to stub one's toe? I do...it hurts like
hell for a few minutes. And, no...on the scale of TM, a stubbed toe is
nothing, but for those few minutes it is something to the person it happens
to.
My husband is my only caretaker as we h
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