Barbara..You reminded me of a funny saying we had when I lived in Wyoming.
"It really never gets cold, but somtimes you don't wear enough clothes" I get
sweats around my neck and head at night. My pillow is wet every morning. I have
a remote controlled ceiling fan which is a Godsend for me a
I can't even go to the grocery store or Wal-Mart without coming back drippy,
sweaty, hot and tired. Of course, I live in a very hot and humid climate in
SC, but I see hardly anyone else at the store as red-faced and sweaty as I
am. My family thinks I keep the house as cold as a meat locker. I tell
Hi Dalton,
I don't disagree with what you are saying, however it depends upon how far
down the line you are. I think we all need that diagnosis, we need to know
what has gone wrong, we need a label. It takes a long time to accept what's
done is done...when we have got there you're right, the la
Glad I could helpit's amazing, this human body, and what it does
or doesn't do!!Prior to tm I never thought what 'made' me do one thing or anotherbut
since tm I've learned that I now have to make demands that I used to do
without thinkinglearning to walk again was p
Hi Janice,
Since tm,especially in summer,I sweat only on the right side of my face,and
that side gets red when it's hot.The left side stays pale and dry. No one knows
why since my lesion was T4-T5 ; as one doc said,"it doesn't make any sense at
all".
But then,not much about tm makes sense to
Thanks, Gracie;
I feel as if in some kind of mixer with all these
you-don't-have-you-did-have's going back in forth. Your statement takes
some of the pressure off somehow.
Here is what has happened since 9 January of this year:
The first attack was left side weakness, girdling, etc, on
>
> Hello Dalton,
>
I have many MS friends and among them are those who have experienced TM.
Some prior to their MS diagnosis, and some after. I myself experience
episodes of relapsing LETM (Longitudinally Extensive Transverse Myelitis)
but as a result of having NMO.
Gracie
Deborah;
Actually, I'm not concerned what the drs call it; it doesn't change how I
live if they end up calling it TM or MS or whatever. The name of the thing
is their business. It's done its thing if TM and if MS. I just live with
it. I don't see any difference, actually. It's not as if we
Is it actually that you "had" MS and now you "have" TM, or just that the
doctors speculated that you might have MS, and then after a while determined
that your actual diagnosis is TM due to the results of your testing?
Some doctors are very conservative in their diagnoses while others jump the
Hi Jan
Thanks for that info. I have been in a far infra red sauna and I definitely
can “sweat” below my injury. When in the sauna even the calves of my legs can
sweat and I didn’t even know that was possible. That is an induced sweat.
When my body overheats naturally, it is only from
Janet,
My neuro told me that my temp control would never come back, and that I
would only sweat above where I was attacked, t8. And, he was correct!!
That was the only thing he told wouldn't be repaired and after 14½ years
I'm a believer!!I was warned not to stay out in heat for long periods
Garry;
I utilize the MS World chatroom because it is frequented a lot by
demyelinating disease sufferers; and some even have TM themselves. I found
several who had MS after getting TM, but so far, I am the only one getting
TM after getting MS (things happen!).
Good luck,
Dalton Garis
hi there; while I had chronic myletopy; I received many good wishes. thank you
again for your caring and support. I have a question is the chat line still in
operation if so what is the link to it. thanks Gerry in montreal
Personally, I am not bothered by the sweats, a good thing since I live and
work in Abu Dhabi, where it is now above 100 every day and the humidity is
so high you mop your glasses whenever you leave the air conditioned confines
of a building or car. I know that MS-ers are supposed to be universally
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