Re: [TMIC] (no subject)

2008-10-17 Thread LinLeftwi
The reason I am curious about sarcoid is I got out my initial brain MRI from 6 years ago and it was one of the differential diagnosis. I have 9 spots on my brain and a lesion -T4-T5 in my spinal cord. Forty days in and still progressing the neuro finally put me on predinsone. It seemed t

Re: [TMIC] (no subject)

2008-10-16 Thread LinLeftwi
It is just a theory. I am trying to figure out what it is. It was my family physician that sent me for a cat scan and MRI. He has not talked to me about the findings. Very frustrating **New MapQuest Local shows what's happening at your destination. Dining, Movies, Events,

Re: [TMIC] (no subject)

2008-10-16 Thread LinLeftwi
I don't know Jean, I am just very frustrated. I had a cat scan done last month and I have an enlarged lymph node in my lung along with 1 cyst in my spleen, a few in my liver, and a few in my kidneys. I have had a lot of wheezing and coughing. I was on prednisone and an antibiotic again a

[TMIC] (no subject)

2008-10-15 Thread LinLeftwi
Anybody out there ever had sarcoidosis??? Linda in Pa **New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News & more. Try it out (http://local.mapquest.com/?ncid=emlcntnew0002)

[TMIC] (no subject)

2008-09-16 Thread LinLeftwi
WOW!! YOU ARE AWESOME PEOPLE! THANK YOU SO MUCH FOR ALL YOUR SUGGESTIONS REGARDING SINUS ISSUES. I WILL CERTAINLY GIVE THEM A TRY. THIS IS A FANTASTIC SITE AND FASTER THAN ANY DOCTOR! I AM SO GLAD TO BE A PART OF THIS ORGANIZATION. THANK YOU.

Re: [TMIC] (no subject)

2008-09-15 Thread LinLeftwi
In February I had my yearly MRI and it showed severe sinus problems. Everything is blocked. The ENT put me on Prednisone and an antibiotic. It cleared up, but this summer I am having a lot of problems again. I am back on the same regimen again. My family Doc said something about getti

[TMIC] (no subject)

2008-09-15 Thread LinLeftwi
Anybody out there have any problems with chronic sinus infections??? Second time this year I am on Prednisone and antibiotics. It is getting old. Linda in Pa **Pt...Have you heard the news? There's a ne

Re: [TMIC] "Key Points" re symposium

2008-07-24 Thread LinLeftwi
I WAS TESTED FOR ALL THREE DISORDERS BY MY NEURO. LINDA IN PA **Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. (http://www.fanhouse.com/fantasyaffair?ncid=aolspr000520)

Re: [TMIC] Frustrated!!

2008-07-20 Thread LinLeftwi
I know what it is like also. You never know what your day is going to be like. Sometimes numb, sometimes tingling, sometimes stinging. It is like it has its own personality! Trying not to let fear get the best of you is hard. I also go to bed thinking about the possibility of not being

Re: [TMIC]

2008-07-08 Thread LinLeftwi
WOW!!! What an inspiration you are. I am among the walking wounded. The next time I think about complaining, I will remember your courage and determination. Thank you for sharing. Linda in Pa **Gas pr

Re: [TMIC] age related tm

2008-06-08 Thread LinLeftwi
A few months before I got hit with tm I had a bad virus or something in my sinuses. After that I had a tingling in the left side of my back that would not go away. Linda in Pa **Get trade secrets for amazing burgers. W

Re: [TMIC] 19 year TM Anniversary - my thanks to TMIC

2008-05-21 Thread LinLeftwi
Even though I never lost my ability to walk,barely, I was so exhausted for the first 3 or 4 months. I spent more time sleeping than awake. After doing any task, I would have to lay down. Six months later I went back to work. I was unable to do my old job so they put me in an office. I t

[TMIC] (no subject)

2008-05-11 Thread LinLeftwi
HAPPY MOTHER'S DAY TO ALL YOU MOMS OUT THERE!! **Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod000301)

Re: [TMIC] Thanks to the list/understanding TM

2008-04-17 Thread LinLeftwi
I think we need to be realistic about this. If I had a husband who was disabled I am not sure I would be happy all the time. You can't fully understand anything if you haven't walked in someone else's shoes. Just like anything in life. Everyone is different. Some people can handle it a

Re: [TMIC] Need a little help

2008-04-11 Thread LinLeftwi
HI ROB, MY LESION IS T4-T5. THAT MEANS THORACIC VERTEBRAE 4 AND 5. WHAT REALLY TELLS THE TAIL OF WHAT WE CAN DO IS THE LOCATION WITHIN THE SPINAL CORD. IF IT IS POSTERIOR IT CAN MEAN ONE THING, OR ANTERIOR MAY MEAN ANOTHER. I HAVE TO DIG UP MY ORIGINAL REPORT BECAUSE I KNOW IT SAID

Re: [TMIC] queston

2008-04-05 Thread LinLeftwi
Hi Diane, It is such a strange thing. I know the price of overdoing it. Usually 2-3 days of complete rest. It is not easy when you are a single Mom of a 13 year old. I have 4 acres, a horse, dog, and cat. I also work part time. I am not complaining. I love my life. But before TM

Re: [TMIC] RE: tmic-digest Digest V2008 #158

2008-04-05 Thread LinLeftwi
What is ITP? One thing that comes and goes is a dull pain under my left rib cage. I have asked my doctor about this and have never got an answer. Linda in Pa **Planning your summer road trip? Check ou

Re: [TMIC] queston

2008-04-04 Thread LinLeftwi
I think it is so strange that sometimes I feel good and other days I have burning and tingling. What makes us feel so different if there is no change? I cannot understand that at all. I have had MRI's every year for the past 5 years and as far as lesions and spots on my brain goes, nothing

Re: [TMIC] QUESTION

2008-04-02 Thread LinLeftwi
I HAVEN'T BEEN SICK ALL THAT MUCH EITHER SINCE TM HIT. MY SYSTEM'S ONE WEAKNESS IS SINUS INFECTIONS. I BELIEVE THAT IS WHAT INITIALLY CAUSED ALL THE PROBLEMS. I THINK I TOLD YOU I HAD A ROUGH 2 MONTHS AND WHEN I HAD AN MRI DONE, SINUS INFECTION WAS BACK AFTER 5 YEARS. A WEEK AFTER ANTIBI

Re: [TMIC] Living to be 150 - regenerating cells

2008-04-02 Thread LinLeftwi
Hi Candy, I watched it last night. Very interesting and hopeful info. I am not wanting to live to be 100, but it would be nice to get rid of the TM! It sounds like they can do a lot, but still in experimental stage.

Re: [TMIC] Premature?

2008-04-01 Thread LinLeftwi
OH MY GOD!! I SENT OUT THAT REPLY TOO EARLY THIS MORNING! I WAS 6 POUNDS, NOT 16. SORRY!!! LINDA IN PA **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-imp

Re: [TMIC] Premature?

2008-04-01 Thread LinLeftwi
NO, I WAS 16 POUNDS 4 OUNCES. WHEN I WAS GROWING UP THERE WERE NO VACCINES EXCEPT POLIO, THEREFORE I HAD IT ALL-CHICKEN POX, 3-DAY MEASLES, GERMAN MEASLES, MUMPS, AND WHEN I WAS 16 I HAD MONO. LINDA IN PA

Re: [TMIC] queston

2008-04-01 Thread LinLeftwi
Rob, I had an incident starting in January of this year. My legs started tingling and burning, then my arms started, which I never had before. Very Scary! I went for 2 MRI's, one of the brain and one cervical. Nothing new in the scans. But I did show very bad sinus problems.

Re: [TMIC] Re: Sweating

2008-03-28 Thread LinLeftwi
HI LYNN, USUALLY A VIRUS CAN LAY DORMANT IN YOUR SYSTEM FOR MANY YEARS AND SOMETHING CAN CAUSE IT TO BECOME ACTIVE AGAIN. I'M NOT SAYING THAT MONO CAUSED TM, BUT I AM TRYING TO FIND OUT THINGS THAT WE ALL HAVE IN COMMON. ONE OF MY FRIENDS HAS SACOIDOSIS AND IS RECOVERING NOW. SHE

Fwd: [TMIC] Nursing homes

2008-03-27 Thread LinLeftwi
**Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15&ncid=aolhom000301) --- Begin Message --- It's a shame Jude had to put up with poor help in the nursing home, but I was not surprised to

Re: [TMIC] A month before TM -

2008-03-27 Thread LinLeftwi
I do believe it is a combination of stress and virus. It just feels like there should be some way to get your system working correctly!!! I never give up hope. Linda in Pa **Create a Home Theater Lik

Fwd: [TMIC] UNBELIEVABLE!

2008-03-26 Thread LinLeftwi
**Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301) --- Begin Message --- I dont know about you guys but I was treated with IVIGi think 2 or 3 different times... [

Re: [TMIC] UNBELIEVABLE!

2008-03-26 Thread LinLeftwi
Rob I hope you are keeping tabs on this. Looks like a whole lo of people,myself included had some type of viral infection plus stress just prior to TM. I am no medical expert but maybe we should have been treated with some potent antiviral medicine at onset. Need some input on this

Re: [TMIC] Fluid retention

2008-03-26 Thread LinLeftwi
Hi, What is cellulitis? I also start the day out with thin ankles and end up with fat ones. I find not eating any salty junk food and cutting way back on sodium helps. I also find if I can lay down for about an hour a day, seems to help.

Re: [TMIC] UNBELIEVABLE! Thanks, everyone!! jr

2008-03-26 Thread LinLeftwi
I am not even sure how long, but it was weeks before I got to my worst. Linda in Pa **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?nci

Re: [TMIC] UNBELIEVABLE!

2008-03-26 Thread LinLeftwi
AMEN!! I am a believer also. God is in charge. I do believe in the power of prayer. We have to take what we are given and do the best with it. Hard times can either make or break you and if you have God in your heart, you can make it through anything. I think we as a group we a

Re: [TMIC] time has passed but....this is for Every1 on the TMA list

2008-03-25 Thread LinLeftwi
Hi, I was also very stressed out. I kept thinking if I had to take on one more thing I would break. I also had a severe sinus infection. Was on antibiotics, but all summer I had a terrible smell in my left nostril. Of course I never went back to the doctor. Then TM hit. My fir

Re: [TMIC] So strange

2008-03-25 Thread LinLeftwi
Rob, I count my blessings everyday, and this group is high on my list. Before I became involved, it was like walking in the darkness not knowing what was next. Just learning how many of the little things going on in my body are also going on with many others is like walking into t

Re: [TMIC] So strange

2008-03-24 Thread LinLeftwi
HI ROB, I AGREE. I HAD 2 BAD MONTHS BUT SEEM TO BE ON THE UPSWING. EVERYDAY IS A NEW ADVENTURE. SOMETIMES IT IS GOOD TO VENT AND WE ALL KNOW HOW THIS CRAZY THING GOES, SO DON'T APOLOGIZE, WE ALL FEEL THE SAME WAY. LIN

Fwd: [TMIC] Re: Sweating

2008-03-24 Thread LinLeftwi
**Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301) --- Begin Message --- Hi there, I had mono (didn't know it was called Epstein Barre) when I was 40. My doctor laug

[TMIC] Re: Sweating

2008-03-23 Thread LinLeftwi
HI DEBI, I GET RASHES OUT OF THE BLUE. ON MY LEGS AND RECENTLY ON MY BACK. VERY ITCHY AND TAKES ALONG TIME FOR THEM TO GO AWAY. I AM GOING TO POST ANOTHER QUESTION TO EVERYONE. HAS ANYONE OUT THERE HAD MONONUCLEOSIS (EPSTEIN BARRE) IN THEIR LIFE?

[TMIC] (no subject)

2008-03-23 Thread LinLeftwi
JUST WANT TO WISH EVERYONE OUT THERE A HAPPY EASTER. YOU ARE ALL BEAUTIFUL PEOPLE LOVE, LINDA IN PA **Create a Home Theater Like the Pros. Watch the video on AOL Home. (htt

Re: [TMIC] requesting advice from you experienced souls

2008-03-21 Thread LinLeftwi
My neuro doesn't want me on prednisone because of osteoperosis. It is not good for the bones. **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301)

Re: [TMIC] Fwd: Sweating

2008-03-21 Thread LinLeftwi
Hi, I can' take a hot bath or shower. I also find that anything that boots immune system triggers an opposite effect. I went from drinking 8 cups of coffee a day down to one. Also, no ginseng, no green tea, chocolate is bad. There are a lot of things I have found over the years tha

[TMIC] Fwd: Sweating

2008-03-21 Thread LinLeftwi
**Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301) --- Begin Message --- Hi Jeanne, I am so glad to know I am not the only one with these red blotches! It i

[TMIC] Fwd: Sweating

2008-03-20 Thread LinLeftwi
**Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301) --- Begin Message --- I think we all need to put our heads together and figure some of this stuff out. I am very a

Re: [TMIC] (no subject)

2008-03-20 Thread LinLeftwi
Thanks for the response. My feet are hot all the time!!! It is hard in the winter when I have to wear shoes. I could not wear a pair of heels to save my life. I have tried in the shoe store and have to hold on or I will fall over! I am so glad for the response, at least there is one ot

Re: [TMIC] (no subject)

2008-03-20 Thread LinLeftwi
Hi Jeanne, I also have the band 24 hours a day. Mine is T4-T5 area. That is where my lesion is in my spinal cord. I also get a lot of tingling on the left side of that area. The grease line I was talking was actually a very greasy to the touch line . As the numbness was a

[TMIC] (no subject)

2008-03-19 Thread LinLeftwi
Hello out there, Just had a question to ask. My first neuro was 77 years old. He talked about a grease line on my body. As the numbness crept up my body I could feel the line around me, but he never explained it to me. Anybody out there know anything about this? It took weeks be

Fwd: [TMIC] Unidentified subject!

2008-03-17 Thread LinLeftwi
**It's Tax Time! Get tips, forms, and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolprf000301) --- Begin Message --- Top of the Morning! I wish all of you a Happy St. Patrick's Day. It has been extremely quiet. Has anyone out there tried a

Re: [TMIC] Unidentified subject!

2008-03-17 Thread LinLeftwi
**It's Tax Time! Get tips, forms, and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolprf000301)

[TMIC] Fwd: (no subject)

2008-03-07 Thread LinLeftwi
**It's Tax Time! Get tips, forms, and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolprf000301) --- Begin Message --- Hi All, I just wanted to share this with you. I just wanted to share this experience with you. I went to an Iridologist y

[TMIC] (no subject)

2008-03-06 Thread LinLeftwi
Hi everyone, This is a test. Am I coming through? Linda in Pa **It's Tax Time! Get tips, forms, and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolprf000301)