The reason I am curious about sarcoid is I got out my initial brain MRI
from 6 years ago and it was one of the differential diagnosis. I have 9 spots
on my brain and a lesion -T4-T5 in my spinal cord. Forty days in and still
progressing the neuro finally put me on predinsone. It seemed t
It is just a theory. I am trying to figure out what it is. It was my
family physician that sent me for a cat scan and MRI. He has not talked to me
about the findings. Very frustrating
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I don't know Jean, I am just very frustrated. I had a cat scan done last
month and I have an enlarged lymph node in my lung along with 1 cyst in my
spleen, a few in my liver, and a few in my kidneys. I have had a lot of
wheezing
and coughing. I was on prednisone and an antibiotic again a
Anybody out there ever had sarcoidosis???
Linda in Pa
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WOW!! YOU ARE AWESOME PEOPLE! THANK YOU SO MUCH FOR ALL YOUR
SUGGESTIONS REGARDING SINUS ISSUES. I WILL CERTAINLY GIVE THEM A TRY. THIS
IS A
FANTASTIC SITE AND FASTER THAN ANY DOCTOR! I AM SO GLAD TO BE A PART OF
THIS
ORGANIZATION. THANK YOU.
In February I had my yearly MRI and it showed severe sinus problems.
Everything is blocked. The ENT put me on Prednisone and an antibiotic. It
cleared
up, but this summer I am having a lot of problems again. I am back on the
same regimen again. My family Doc said something about getti
Anybody out there have any problems with chronic sinus infections??? Second
time this year I am on Prednisone and antibiotics. It is getting old.
Linda
in Pa
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I WAS TESTED FOR ALL THREE DISORDERS BY MY NEURO.
LINDA IN PA
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I know what it is like also. You never know what your day is going to be
like. Sometimes numb, sometimes tingling, sometimes stinging. It is like it
has its own personality! Trying not to let fear get the best of you is hard.
I also go to bed thinking about the possibility of not being
WOW!!!
What an inspiration you are. I am among the walking wounded. The next
time I think about complaining, I will remember your courage and
determination. Thank you for sharing.
Linda in Pa
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A few months before I got hit with tm I had a bad virus or something in my
sinuses. After that I had a tingling in the left side of my back that would
not go away.
Linda in Pa
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Even though I never lost my ability to walk,barely, I was so exhausted for
the first 3 or 4 months. I spent more time sleeping than awake. After doing
any task, I would have to lay down. Six months later I went back to work. I
was unable to do my old job so they put me in an office. I t
HAPPY MOTHER'S DAY TO ALL YOU MOMS OUT THERE!!
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I think we need to be realistic about this. If I had a husband who was
disabled I am not sure I would be happy all the time. You can't fully
understand
anything if you haven't walked in someone else's shoes. Just like anything
in life. Everyone is different. Some people can handle it a
HI ROB,
MY LESION IS T4-T5. THAT MEANS THORACIC VERTEBRAE 4 AND 5. WHAT REALLY
TELLS THE TAIL OF WHAT WE CAN DO IS THE LOCATION WITHIN THE SPINAL CORD. IF
IT IS POSTERIOR IT CAN MEAN ONE THING, OR ANTERIOR MAY MEAN ANOTHER. I HAVE
TO DIG UP MY ORIGINAL REPORT BECAUSE I KNOW IT SAID
Hi Diane,
It is such a strange thing. I know the price of overdoing it. Usually
2-3 days of complete rest. It is not easy when you are a single Mom of a 13
year old. I have 4 acres, a horse, dog, and cat. I also work part time. I
am not complaining. I love my life. But before TM
What is ITP? One thing that comes and goes is a dull pain under my left rib
cage. I have asked my doctor about this and have never got an answer.
Linda in Pa
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I think it is so strange that sometimes I feel good and other days I have
burning and tingling. What makes us feel so different if there is no change?
I cannot understand that at all. I have had MRI's every year for the past 5
years and as far as lesions and spots on my brain goes, nothing
I HAVEN'T BEEN SICK ALL THAT MUCH EITHER SINCE TM HIT. MY SYSTEM'S ONE
WEAKNESS IS SINUS INFECTIONS. I BELIEVE THAT IS WHAT INITIALLY CAUSED ALL THE
PROBLEMS. I THINK I TOLD YOU I HAD A ROUGH 2 MONTHS AND WHEN I HAD AN MRI
DONE, SINUS INFECTION WAS BACK AFTER 5 YEARS. A WEEK AFTER ANTIBI
Hi Candy,
I watched it last night. Very interesting and hopeful info. I am not
wanting to live to be 100, but it would be nice to get rid of the TM! It
sounds like they can do a lot, but still in experimental stage.
OH MY GOD!!
I SENT OUT THAT REPLY TOO EARLY THIS MORNING! I WAS 6 POUNDS, NOT
16. SORRY!!!
LINDA IN PA
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NO, I WAS 16 POUNDS 4 OUNCES. WHEN I WAS GROWING UP THERE WERE NO VACCINES
EXCEPT POLIO, THEREFORE I HAD IT ALL-CHICKEN POX, 3-DAY MEASLES, GERMAN
MEASLES, MUMPS, AND WHEN I WAS 16 I HAD MONO.
LINDA IN PA
Rob,
I had an incident starting in January of this year. My legs started
tingling and burning, then my arms started, which I never had before. Very
Scary! I went for 2 MRI's, one of the brain and one cervical. Nothing new in
the scans. But I did show very bad sinus problems.
HI LYNN,
USUALLY A VIRUS CAN LAY DORMANT IN YOUR SYSTEM FOR MANY YEARS AND
SOMETHING CAN CAUSE IT TO BECOME ACTIVE AGAIN. I'M NOT SAYING THAT MONO
CAUSED
TM, BUT I AM TRYING TO FIND OUT THINGS THAT WE ALL HAVE IN COMMON. ONE OF MY
FRIENDS HAS SACOIDOSIS AND IS RECOVERING NOW. SHE
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It's a shame Jude had to put up with poor help in the nursing home, but I was
not surprised to
I do believe it is a combination of stress and virus. It just feels like
there should be some way to get your system working correctly!!! I never give
up hope.
Linda in Pa
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I dont know about you guys but I was treated with IVIGi think 2 or 3
different times...
[
Rob
I hope you are keeping tabs on this. Looks like a whole lo of
people,myself included had some type of viral infection plus stress just prior
to TM.
I am no medical expert but maybe we should have been treated with some
potent antiviral medicine at onset. Need some input on this
Hi,
What is cellulitis? I also start the day out with thin ankles and end
up with fat ones. I find not eating any salty junk food and cutting way back
on sodium helps. I also find if I can lay down for about an hour a day,
seems to help.
I am not even sure how long, but it was weeks before I got to my worst.
Linda in Pa
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AMEN!!
I am a believer also. God is in charge. I do believe in the power of
prayer. We have to take what we are given and do the best with it. Hard
times can either make or break you and if you have God in your heart, you can
make it through anything. I think we as a group we a
Hi,
I was also very stressed out. I kept thinking if I had to take on one
more thing I would break. I also had a severe sinus infection. Was on
antibiotics, but all summer I had a terrible smell in my left nostril. Of
course I
never went back to the doctor. Then TM hit. My fir
Rob,
I count my blessings everyday, and this group is high on my list.
Before I became involved, it was like walking in the darkness not knowing
what
was next. Just learning how many of the little things going on in my body are
also going on with many others is like walking into t
HI ROB,
I AGREE. I HAD 2 BAD MONTHS BUT SEEM TO BE ON THE UPSWING. EVERYDAY
IS A NEW ADVENTURE. SOMETIMES IT IS GOOD TO VENT AND WE ALL KNOW HOW THIS
CRAZY THING GOES, SO DON'T APOLOGIZE, WE ALL FEEL THE SAME WAY.
LIN
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Hi there,
I had mono (didn't know it was called Epstein Barre) when I was 40. My doctor
laug
HI DEBI,
I GET RASHES OUT OF THE BLUE. ON MY LEGS AND RECENTLY ON MY BACK.
VERY ITCHY AND TAKES ALONG TIME FOR THEM TO GO AWAY.
I AM GOING TO POST ANOTHER QUESTION TO EVERYONE. HAS ANYONE OUT THERE
HAD MONONUCLEOSIS (EPSTEIN BARRE) IN THEIR LIFE?
JUST WANT TO WISH EVERYONE OUT THERE A HAPPY EASTER. YOU ARE ALL BEAUTIFUL
PEOPLE
LOVE, LINDA IN PA
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My neuro doesn't want me on prednisone because of osteoperosis. It is not
good for the bones.
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Hi,
I can' take a hot bath or shower. I also find that anything that boots
immune system triggers an opposite effect. I went from drinking 8 cups of
coffee a day down to one. Also, no ginseng, no green tea, chocolate is bad.
There are a lot of things I have found over the years tha
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Hi Jeanne,
I am so glad to know I am not the only one with these red blotches!
It i
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I think we all need to put our heads together and figure some of this stuff
out. I am very a
Thanks for the response. My feet are hot all the time!!! It is hard in the
winter when I have to wear shoes. I could not wear a pair of heels to save
my life. I have tried in the shoe store and have to hold on or I will fall
over! I am so glad for the response, at least there is one ot
Hi Jeanne,
I also have the band 24 hours a day. Mine is T4-T5 area. That is
where my lesion is in my spinal cord. I also get a lot of tingling on the
left
side of that area. The grease line I was talking was actually a very greasy
to the touch line .
As the numbness was a
Hello out there,
Just had a question to ask. My first neuro was 77 years old. He
talked about a grease line on my body. As the numbness crept up my body I
could
feel the line around me, but he never explained it to me. Anybody out there
know anything about this? It took weeks be
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Top of the Morning!
I wish all of you a Happy St. Patrick's Day. It has been extremely
quiet. Has anyone out there tried a
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Hi All,
I just wanted to share this with you. I just wanted to share this
experience with you. I went to an Iridologist y
Hi everyone,
This is a test. Am I coming through?
Linda
in Pa
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